Abstracts of the Queensland Paediatric Rehabilitation Conference 6th - 8th March 2019

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Abstracts of the Queensland Paediatric Rehabilitation Conference 6th - 8th March 2019
Abstracts of the Queensland Paediatric
      Rehabilitation Conference
        6th – 8th March 2019

                                         1
Wednesday 6th March, 2019                                         This workshop for parents and families aims to offer
                                                                  information and develop understanding about parental
                                                                  empowerment in systemic interactions as well as providing a
Preconference Workshops                                           supportive peer experience.

Spotlight on Concussion Rehabilitation                            AusACPDM practice update – Holistic classification in
                                                                  cerebral palsy
A/Prof Karen Barlow, Prof Keith Yeates
Summary of Content:                                               Pam Thomason, Dr Leanne Sakzewski, Katy Caynes,
•  What happens after the hit: an overview of concussion          Debbie Burmester, Dr Kelly Weir, Dr Kristie Bell
   and post-concussion syndrome in children                       Summary of Content:
•  Knowledge itself is power: Getting the right information       •  GMFCS update: When a picture paints a thousand
   to families after a concussion                                    words
•  The development of Paediatric Head Injury Follow-up            •  MACS update: Clinical utility and stability
   Clinical Pathway in Queensland                                 •  The Functional Communication Classification System
•  The role of the rehabilitation nurse after a concussion           (FCCS): Development and applications
•  Sensorimotor and physiological integration following a         •  Correlation between the Eating and Drinking Ability
   concussion                                                        Classification System (EDACS) and standardised
•  Neuropsychology’s role in the management of                       assessment of oropharyngeal dysphagia in children with
   concussion                                                        cerebral palsy
•  Monitoring and Treatment options for Persistent Post-          •  Screening for feeding difficulties and undernutrition in
   Concussion Syndrome                                               cerebral palsy
•  Panel discussion
                                                                  Second   AROC     paediatric   rehabilitation       quality
Practical workshop on          the    Hammersmith       Infant    form/benchmarking workshops for specialist facilities
Neurological Assessment                                           Frances Simmonds, Jacquelin Capell
Rachel Thomas, Carly Dickinson
The Hammersmith Infant Neurological Examination (HINE) is
a simple, quantifiable neurological examination validated for
infants between 2 and 24 months of age. In conjunction with
other assessment tools, it has been shown to have predictive
value in identifying children ‘at high risk’ of cerebral palsy.
By the end of the four-hour workshop, participants will be
provided with resources and have a solid understanding of
the HINE including: overview of the tool; item by item
administration and scoring; evidence base including scoring
cut-points and their predictive validity; interpretation of
results. There will be two practical demonstrations where
participants will score the HINE, followed by group questions
and discussion.

Champion your Child: How to be the voice your child needs
in a complex system
Fiona Russo- (University of Southern Queensland)
Objectives: The Australian National Disability Insurance
Scheme (NDIS) represents a significant change in the
delivery of funded supports to Australians living with
disability. Previous block-funding arrangements saw many
people waiting on registers of unmet need. Individual
funding allows for greater choice and control for
participants, but it also shifts the responsibility for support
coordination and access from ‘the system’ to families
themselves.
The parents of newly diagnosed children are often
newcomers to the world of typical parenting and have little
or no experience of disability. Managing multi-system
interactions – NDIS, Health, Education, Social Services and
others – will become a common feature of their lives as they
seek and secure the right treatments, services, and
equipment to support their child/ren.            This research
explored the way parents develop the advocacy skills to
champion their child/ren throughout their lives.

                                                                                                                           2
Thursday 7th March, 2019                                          wrong door’ approach, facilitation of peer support,
                                                                  consistency of case managers, and the provision of timely
                                                                  and jargon-free information tailored to the needs of the
Stream 1: 10:30am – 12:55pm                                       families.
                                                                  Design: Mixed Methods – Qualitative / Action research
S1-1                                                              Conclusion: Families entering the NDIS – or indeed the
Parent Empowerment and the NDIS                                   disability landscape more generally – require the support of
Fiona Russo (University of Southern Queensland)                   peers and consistent service providers. Under the NDIS
Background: The Australian National Disability Insurance          model, new families are less likely to have established
Scheme (NDIS) represents a significant change in the              relationships with early intervention support providers since
delivery of funded supports to Australians living with            the vast majority of these services are now accessible only
disability. Previous block-funding arrangements saw many          via the NDIS itself. The early childhood early intervention
people waiting on registers of unmet need. Individual             (ECEI) entry pathway for NDIS participants under 7 years old
funding allows for greater choice and control for                 acknowledges this gap and makes some effort to address it
participants, but it also shifts the responsibility for support   but does not address the issues of social isolation and the
coordination and access from ‘the system’ to families             need for peer support links. Health – as a first responder to
themselves.                                                       disability – is uniquely positioned to support families in this
The parents of newly diagnosed children are often                 space.
newcomers to the world of typical parenting and have little
or no experience of disability. Managing multi-system             S1-2
interactions – NDIS, Health, Education, Social Services and       New Beginnings: Transition to the NDIS for children and
others – will become a common feature of their lives as they      young people with a newly acquired disability
seek and secure the right treatments, services, and               Kirsten Bula (The Sydney Children’s Hospitals Network)
equipment to support their child/children. This research          Background: For children and young people with a newly
explored the way parents develop the advocacy skills to           acquired disability, and their families and carers, navigating
champion their child/children throughout their lives.             the disability services environment and the transition to self-
Objectives:      Specifically, this project considered the        directed funding under the NDIS represents a significant
development of the advocacy skillset and mindset, barriers        change.
to success, advocacy supports, the role of family-centred         Evidence indicates that variability in confidence and capacity
care models, and initial NDIS engagement through a series of      can have an impact on the alignment of NDIS plans with
individual interviews with parents and focus groups with          individual needs, and on access to/engagement with both
service providers. The second phase of the study involved         formal and informal supports1.
the design and delivery of a series of workshops for parents      Objectives: The vision of this NSW Health Information,
that aimed to offer information and develop understanding         Linkages and Capacity (ILC) Project is to:
about parental empowerment in systemic interactions as            Build the capacity of clients with newly acquired Spinal Cord
well as providing a supportive peer experience.                   Injury (SCI) or Acquired Brain Injury (ABI), their families and
Methods: Participants were recruited with the assistance of       carers across NSW, to engage with the NDIS and the broader
the Early Childhood Development Program (Ed Qld), Carers          disability and mainstream service environment.
Qld, Children’s Health Queensland (Paed Rehab and Child           The target audience includes current, past and future
Development Services), Hummingbird House, and social              paediatric clients of NSW Health services. The format and
media (Facebook peer support groups). Participants self-          content of project deliverables will take into account the
identified as primary parent-carers for children with             individual and diverse needs of children and young people,
disability. Ten (10) parents participated in in-depth, semi-      their families and carers.
structured, narrative individual interviews. Two 5-member         Design: Qualitative Project
focus groups were held with service provider                      Methods: Project deliverables will be specifically tailored to
representatives including Education Qld, CHQ, Carers Qld,         the needs of people with newly acquired disability, their
Catholic Education Qld, Allied Health (private provider), Child   families and carers, and informed by deep insight into the
and Youth Mental Health Service, Qld Maternal Health              local context, stakeholder experiences of the NDIS to date,
Service, and Goodstart Kindy Program. Both interviews and         and the availability of services (formal and informal
focus groups gathered data on advocacy experience,                supports).
support, development, and activities and included discussion      Patient experience interviews are being conducted with an
of barriers and factors for success.                              aim to gain a deep insight into the patient/family/carer and
A further forty (40) parents participated in a capacity           staff experiences of the NDIS to date. Interviews will
building program held over four weeks in mid-2018. These          continue until data saturation has been achieved. Consistent
respondents completed pre- and post-intervention surveys -        themes will be extracted to guide the project deliverables.
Beach Institute Family Quality of Life (FQoL) (Summers            Results: This project proposes to deliver individual capacity-
2006), Paediatric Inventory for Parents (PIP) (Streisand,         building sessions, as well as an education resource kit for
Braniecki et al. 2001), and the Parental Empowerment and          clients with newly acquired disability, their families and
Efficacy Measure (PEEM) (Freiberg, Homel et al. 2014) – as        carers. These will be rolled out in October 2018 and
well as a short structured interview post-intervention.           outcomes will be evaluated via questionnaires and
Results: Findings highlight the importance of existing family     qualitative interviews.
relationships with early intervention providers, the ‘no

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Conclusion: It is anticipated that the project deliverables will   S1-4
assist clients, their families and carers to work effectively      A 5-½ year retrospective study of individuals with mild to
with NDIA representatives and service providers to                 moderate traumatic brain injury: consecutive presentations
(a) develop and implement NDIS plans which are suited to           to a tertiary hospital paediatric rehabilitation outpatient
their needs, and                                                   clinic.
(b) establish links with other informal and community-based        R. Zarrinkalam (WCHN), R. Russo (WCHN), J. Rice (Flinders
supports.                                                          University School of Medicine; WCHN)
The project deliverables will be available on an ongoing basis     Background: Traumatic brain injury (TBI) is common, with
to ensure sustainable benefits for future clients of NSW           mild TBI accounting for at least 90% of them. TBI can result
Health services. Future directions will be outlined in the         in lifelong physical, cognitive, behavioural and emotional
project summary report.                                            consequences. Studies indicate sequelae in 5-15% of cases
                                                                   with mild TBI. Accurate classification of severity, careful
S1-3                                                               monitoring and appropriate and timely management of
Management of symptomatic mild traumatic head injury               children and youth with mild to moderate TBI is warranted
(Concussion).                                                      to ensure maximal recovery.
Kathryn Asher (Rehab2Kids), Naomi Brookes                          Objectives:       The primary aim was to audit the
(Rehab2Kids), Dr Anna Ward (Rehab2Kids), Glenda                    documentation of brain injury severity and provide a
Mullen (Emergency Department)                                      description of cause, services utilised, investigations and
Background: Research indicates that concussion has the             interventions that they received.
potential for long term consequences in some children.             Design: Retrospective study
Early identification, thorough assessment and appropriate          Methods: 128 patients, 2-18 years of age (mean [SD] 13
follow-up are crucial in preventing persistent symptoms.           years 1 month [4 years 2 months]), who presented to the
It was identified by our team that some post concussive            Rehabilitation outpatient clinic over a 5 ½ year period
children were re-presenting to the Emergency Department            (January 2012 to July 2017) with a diagnosis of mild to
with persistent symptoms and that the Brain Injury                 moderate TBI were identified and their case notes reviewed.
Rehabilitation Program (BIRP) was receiving a number of late       Brain injuries as a result of infection, asphyxia/hypoxia, and
referrals for children who continued to be symptomatic.            non-accidental causes were excluded. The severity of TBI
Further investigation suggested that management strategies         was classified as mild or moderate based on Loss of
and expertise in the busy Emergency Department (ED)                Consciousness (LOC), Galscow Coma Scale (GCS) score, Post
setting were quite variable and there were inconsistent            Traumatic Amnesia (PTA) duration and results of cranial
approaches to follow up post ED discharge.                         imaging.
Objectives: Within 12 months 100% of patients (8-16 years)         Results: The Male: Female ratio = 2.3:1. Fifty four percent
presenting to the Emergency Department at Sydney                   had Mild and 46% moderate TBI. Almost a third had missing
Children’s Hospital, within 24 hours of a symptomatic mild         data for LOC or GCS, and 40% of the patients did not have
head injury are correctly managed according to the current         PTA status recorded. One hundred patients (78%) did not
available evidence.                                                have information on the number of missed days of school.
Design: A joint Quality Project between the Brain Injury           Most cases of moderate (84%) TBI did not have
Rehabilitation Program and the Emergency Department was            neuropsychometric assessment completed, while nearly a
undertaken       using    Clinical    Practice   Improvement       third those who underwent testing showed abnormal
methodology.                                                       results. Half of the patients sustained mild/moderate TBI as
Methods: Benchmarking with specialised paediatric                  a result of sporting injury and of these almost a third due to
rehabilitation services across Australia and New Zealand was       involvement with Australian Rules football (AFL). Nearly 1 in
undertaken. Key stakeholders were engaged. Consumer                5 was the result of a motor vehicle accident.
and staff feedback obtained. Problem identification was            Conclusions: Diligent documentation of relevant medical
facilitated by process mapping and a driver diagram utilised       information is required in order to correctly classify the
to determine interventions for ongoing PDSA cycles.                severity of TBI as management and outcome will vary. It
Quantitative and qualitative data collection was used.             seems sensible to have a lower threshold for undertaking
Interventions will include staff training, improvement in staff    neuropsychometric assessment in all cases of moderate TBI
and patient resources, access to updated clinical resources        and those with mild TBI presenting with ongoing symptoms.
and pathways and clarification of the referral process.            With regards to safety educational campaigns, the priority
Results: Results will address our identified primary drivers       appears to be in motor vehicle/road safety and high-risk
including change in staff knowledge and confidence, patient        sports such as AFL.
/ family confidence and satisfaction, numbers of
representations and referrals to a tertiary service. We will       S1-5
address outcome and process measures along with                    The Friends Project: Optimizing social competency in youth
balancing measures.                                                with acquired brain injury and cerebral palsy.
Conclusions: This paper addresses the strategies that were         Rose Gilmore (QPRS; QCPRRC), Nicola Hilton (QPRS), Dr
implemented to address knowledge, confidence and                   Sarah McIntyre (CP Alliance; The University of Sydney), Dr
satisfaction in the delivery of consistent, evidence based         Hayley Smithers-Sheedy (CP Alliance; The University of
management of children with concussion.                            Sydney), Dr Tracey Williams (The Children’s Hospital at
                                                                   Westmead), Sarah Coombes (The Children’s Hospital at
                                                                   Westmead), Sarah Goodman (QCPRRC), Bianca Botha
                                                                                                                               4
(The Children’s Hospital at Westmead), Kirsten Quinn (CP          Background: Self-awareness has been found to influence
Alliance), Kate Hooke (CP Alliance), Isabelle Balde (CP           mental health and functional outcomes following acquired
Alliance), Honnie Gorry (QPRS), Dr Leanne Sakzewski               brain injury (ABI) in adulthood, but has received little
(QCPRRC)                                                          attention after paediatric ABI.
Background: For adolescents with acquired brain injury            Objectives: This study investigated the relationship between
(ABI) and cerebral palsy (CP), making friends and maintaining     self-awareness, mental health and adaptive functioning after
social networks can be a major challenge influenced by co-        paediatric ABI.
morbidities such as Attention Deficit and Hyperactivity           Design: Cross-sectional
Disorder (ADHD), Autism Spectrum Disorder (ASD) and other         Methods: 109 children with ABI (58% male) aged 8-16 years
behavioural problems, poor social functioning, difficulties       were consecutively recruited from a statewide paediatric
with mobility, communication and limited social                   rehabilitation service and administered the Paediatric
opportunities.                                                    Awareness Questionnaire (PAQ) and depression, anxiety and
Objectives: This pilot study will test the efficacy of the 14     self-concept scales of the Beck Youth Inventories (BYI-II).
week PEERS® (Program for the Education and Enrichment of          Parents completed the PAQ and Adaptive Behaviour
Relational Skills) social skill group program to improve social   Assessment System (ABAS-III). Larger negative discrepancy
competence and friendship skills of adolescents with a brain      scores on the PAQ (parent minus child scores) were
injury.                                                           interpreted as less accurate or lower self-awareness.
Design: A waitlist randomised control trial study, inclusive      Results: Children’s self-awareness did not vary according to
of a 12 week follow-up conducted in Queensland and NSW.           cause of ABI (i.e., trauma, stroke, infection, tumour). Higher
Methods: Adolescents were recruited through the QCPRRC            self-awareness was significantly related to older age at onset
research database and QPRS and the CP Alliance, NSW CP            (r = .37), lower self-concept (r = -.33) and better adaptive
Register and Kids Rehab, Sydney Children’s Hospital               functioning (r = .53). After controlling for age at onset, self-
Network. Participants had a diagnosis of ABI or CP; were          concept significantly moderated the relationship between
aged 11-17, had a verbal IQ score >70 on the Wechsler             self-awareness and adaptive functioning (p = .005). The
Abbreviated Scale of Intelligence 2nd Edition (WASI-II) with      positive relationship between self-awareness and adaptive
parental reports of difficulties with social competency.          functioning was most pronounced for those with higher self-
Exclusion criteria included uncontrolled epilepsy, severe         concept; children with a combination of high self-awareness
visual or auditory impairment or non-verbal. Participants         and high self-concept had the more favourable functional
were randomised to receive PEERS® immediately, or waitlist        outcomes. Low self-awareness was related to poorer
usual care. The waitlist group proceed to receive PEERS®          adaptive functioning irrespective of self-concept.
after the 26 week retention time point.                           Conclusions: Children injured at a younger age may perceive
Outcome measures include the Social Skills Improvement            their functional abilities less accurately than those injured at
System (SSIS) Rating Scales, Quality of Socialization             an older age. Self-awareness is related to better functional
Questionnaire (QSQ), Social Responsiveness Scale and the          outcomes, particularly for children with a more positive self-
Test of Adolescent Social Skills Knowledge (TASSK). Analyses      concept.
will follow standard principles for RCTs, using two group
comparisons on all participants. The primary comparison H1        S1-7
immediately post the intervention at 14 weeks will be based       Cognitive and Psychosocial Outcome of Paediatric Acute
on the SSRS caregiver and child self-report.                      Disseminated Encephalomyelitis, Transverse Myelitis, and
Results: 25 adolescents were recruited; 12 were allocated         Gullian Barre Syndrome.
to the “immediate” treatment group, (6 in QLD and 6 in            Dr. Katherine Olsson (QPRS). Dr. Tania Malouf (QPRS),
NSW) completed the intervention.               24 participants    Dr. Kim McLennan (QPRS), Dr. Penny Ireland (QPRS),
completed follow up assessments immediately following the         Ceridwen Cromac (University of QLD)
intervention in QLD (n= 6 “immediate” group; n= 7 “waitlist
                                                                  Background: Acute Demyelinating Encephalomyelitis
group”) and NSW (n= 6 “immediate” group; n=5 “waitlist
group”).                                                          (ADEM), Transverse Myelitis (TM), and Guillian Barre
Results will be ready for presentation in March 2019 and will     Syndrome (GBS) are sudden onset, inflammatory conditions,
determine whether the PEERS® results in greater student           characterised by rapid progression of symptoms including
self and caregiver reported social skills, greater frequency of   neurological symptoms, motor weakness, and loss of
get-togethers with PEERS® and reduced level of conflict           sensation. The conditions differ in regard to their area of
during get-togethers.                                             inflammation - central nervous system (ADEM), peripheral
Conclusions: This research will guide clinical practice in
                                                                  nervous system (GBS), or a restricted transverse section of
rehabilitation of social skills after brain injury and for
adolescents with CP and inform researchers of any                 the spinal cord (TM). To date research and clinical
modifications required to adapt the PEERS® for adolescents        involvement have typically focussed on understanding and
with a brain injury and in Australia.                             rehabilitating children's physical symptoms. While it is
                                                                  expected that such sudden and severe illnesses would also
S1-6                                                              be associated with complex psychological interactions, a
Self-awareness following paediatric brain injury:
                                                                  review of the literature shows currently sparse research with
Relationship to mental health and adaptive functioning
                                                                  regard to psychosocial outcomes. Among existing research,
Owen Lloyd (QPRS), Tamara Ownsworth, Taylor West-
                                                                  no studies have explored the cognitive or psychosocial
Taylor, Melanie Zimmer-Gembeck

                                                                                                                                5
outcome following GBS, or compared the three conditions           current processes, identify key issues to be resolved and
with each other.                                                  inform the design and implementation of solutions.
Objectives: The objectives of the current study are               • The diagnostic phase identified an additional 65 children
a. Understand the cognitive, psychosocial, and academic           admitted to JHCH in 2016 with a diagnostic profile indicating
outcomes of children with ADEM, GBS, and TM compared to           a potential need to access rehabilitation care (e.g. multiple
normative samples, and                                            trauma, complex orthopaedics, neurosurgery, complex
b. Understand and compare outcome across conditions.              illness or disease) who did not access rehabilitation care
Design: The study is a cross-sectional research design. For       during their admission or following discharge.
the main quantitative analysis, the three conditions will         • A range of solutions were subsequently developed
serve as the independent variables while cognitive and            including: refined referral criteria, centralised referral
psychosocial outcomes will represent dependent outcome            management systems, networking with JHCH staff, and
measures.                                                         enhanced information for families.
Methods: Participants are existing QPRS patients, aged 6-16       • Case study - 16 year old young man residing in rural NSW –
years with ADEM, TM, or GBS. Participants are recruited           motorbike vs truck - and the role of specialist rehabilitation
through QPRS by a clinician not overseeing their treatment.       care in supporting his recovery.
An assessment protocol comprising cognitive (IQ, Memory,          Implications and Recommendations for Current Clinical
Executive Function, Academic attainment and Attention) and        Practice: The Centre for Healthcare Redesign Methodology
psychosocial measures (Pain, Mood, Behaviour, Parent              provides a robust and systematic framework for project
coping) was conducted with all participants.                      work, and involves strong involvement of staff and children,
Statistical analyses will comprise analysis of descriptive data   young people and families.
within groups and analysis of variance and covariance within      Future Direction/s: The project is continuing to work
and between groups. Given the cross-sectional nature, the         towards ensuring equity of access to rehabilitation care for
specific comparisons chosen will be data led.                     all children and young people admitted to JHCH who would
Results: Results will describe cognitive and psychosocial         benefit from specialised rehabilitation care. This work can
outcomes within and between the conditions, and explore           potentially be expanded and applied within the
any covariates impacting outcomes.                                development of the NSW Statewide Model of Care for
It is expected results will offer greater understanding of        Paediatric Rehabilitation.
cognitive and psychosocial outcomes in these conditions,
and guide future longitudinal research. Clinically, it is         S1-9
anticipated results will inform assessment protocols and          Animal Assisted Therapy: A therapist’s best friend
highlight intervention needs.                                     Catherine Norman, Jane Fong, Victoria Bruce (Women’s
                                                                  and Children’s Hospital, Adelaide)
                                                                  Background: Animal Assisted Therapy (AAT) is an evidence
                                                                  based, goal directed intervention delivered by a trained
Stream 1: 1:55pm – 3:15pm
                                                                  handler & animal (dog) team who work under the direction
                                                                  of a health care professional. The Women’s and Children’s
S1-8
                                                                  Hospital, Paediatric Rehabilitation Department pursued
Breaking Down Barriers: Improving Access to Paediatric
                                                                  development of an AAT from 2014. The program was
Rehabilitation
                                                                  inspired by a patient story and supported by resounding
Karen Height (HNEkidsRehab), Carolyn Matthews (John               international evidence demonstrating AAT as an inclusive
Hunter Children’s Hospital), Dr Heather Burnett                   therapy approach that is motivating, opportunistic and
(HNEkidsRehab)                                                    crosses social, cognitive and participation barriers.
Background: HNEkidsRehab is the tertiary level service            The AAT program was developed through a consultative
responsible for providing specialist paediatric rehabilitation    process that involved risk mitigation, securing funding and
care for the children and young people of the Hunter New          building agreements to create a sustainable and seamless
England Local Health District (HNELHD) in NSW.                    model of care. The AAT program was established within the
• A project was undertaken to address a growing awareness         Paediatric Rehabilitation team in 2016, and is now an
that a number of acute inpatients at John Hunter Children’s       embedded component of the inpatient and ambulatory
Hospital (JHCH) were not consistently accessing paediatric        services. Consumer feedback and staff surveys indicate the
rehabilitation care following significant injury, illness or      success of the program.
complex disease process.                                          Objectives: To describe the implementation of the Animal
• Without early access to specialist rehabilitation care these    Assisted Therapy (AAT) program at the Women’s and
children can continue to experience pain, reduced mobility,       Children’s Hospital, Paediatric Rehabilitation Department.
limited attendance at school and restricted function which        To summarise the program delivery model and report
have long term implications physically, socially and              therapist and family experiences within the AAT program.
psychologically.                                                  To report strategies learnt to achieve interdisciplinary goals
Objectives: To improve the transfer of care between JHCH          through animal interactions.
inpatient unit and HNEkidsRehab services for paediatric           Summary of Content: In 2014, a submission to “Bright
patients requiring specialist multidisciplinary rehabilitation    Ideas” panel within WCH was successful to establish AAT.
care by July 2018.                                                Based on client need, and international evidence, the
Summary of Content: Centre for Healthcare Redesign                Paediatric Rehabilitation team proposed a structured mode
Methodology was used to systematically assess data about          of tailored, individual, animal assisted therapy, run under
                                                                  therapist prescription. The AAT program was developed
                                                                                                                              6
through a consultative process to create a sustainable and          S1-11
seamless model of care. The program was designed to                 The Self-Concept Feedback Loop: Describing the impact of
improve the physical, social, emotional and/or cognitive            disability on the development of self-concept
functioning of the patient, and enhance the rehabilitation          Sau Kuan Cheong (Guide Dogs Queensland)
experience.                                                         Background: Self-concept is an individual’s perception of
AAT has provided a positive medium to work on goals. The            him/herself. This perception presents in forms of
nature of the therapy has provided social interaction and           characteristics or attributes that an individual use to define
acted as a distraction; it removes focus from a therapist           themselves in various aspects of life. Recent literature
instructing. Families report joy & a good memory to relate          supports the view that self-concept is a multidimensional
to. The WCH team hope to share their learnings of                   construct where self-concept is constructed from several
developing and running this innovative program.                     core domains that are salient at different developmental life
Implications and Recommendations for Current Clinical               stages. The self-concept of typically developing children is
Practice: Animal assisted therapy is an established and             widely researched but research into the self-concept of
embedded component of the Paediatric Rehabilitation                 children with specific disabilities are limited. Studies
inpatient and ambulatory services. This program model can           comparing the self-concept of children with disabilities to
be recommended to other departments or hospital based               typically developing children revealed inconclusive findings.
services.                                                           Some studies reported similar self-concept across the groups
Future Direction/s: The WCH Paediatric Rehabilitation team          but other studies found that children with disabilities
hope to achieve expansion of the AAT program to the wider           reported lower self-concept compared to their typically
hospital and other interested centres. Further systematic           developing peers. However, very few literature explored the
studies are required for collating data on the benefits of AAT      mechanics of self-concept development; especially the role
within this specialised area of paediatric rehabilitation           of disability and its influence in the development of self-
therapy practice.                                                   concept for children with disabilities.
                                                                    Objectives: This presentation aims to introduce the Self-
S1-10                                                               Concept Feedback Loop. This framework demonstrates the
Eva’s Story: Adventures in CVI and Neuroplasticity                  process of self-concept development. In addition, the Self-
Laura Garcia (Parent), Kerri Weaver (Eyes &                         Concept Feedback Loop includes components to explain the
Independence)                                                       potential impact of disabilities to the development of self-
Background: Laura and her family have needed to invite              concept.
specialists into the home ever since their daughter fell ill as a   Methods: The Self-Concept Feedback Loop framework was
1 year old. She is almost 7 years now and her journey has           first introduced in the development of a population-specific
been such a positive one despite her initial challenges and         self-concept instrument for preadolescent children with
low vision. Her empowered parents have been such a strong           cerebral palsy. It is believed that this framework can be
supporter in rehabilitation and ensuring that Eva can achieve       adapted to other disabilities.
alongside her peers and family, with the realistic                  Results: Based on existing self-concept theories, it is known
expectations of a fulfilling life ahead.                            that self-concept develops as a result of the interaction
Objectives:                                                         between cognitive processes and social experiences. The
     •     Introduction to the medical world                        Self-Concept Feedback Loop postulates that the individual
                                                                    first needs to be exposed to socialisation experiences or
     •     Share the hospital experience
                                                                    opportunities. The individual’s behaviour during social
     •     Share the importance of ongoing multidisciplinary
                                                                    experiences is influenced by their self-concept in relevant
           team support and follow-up
                                                                    domains. Then, the outcomes of these social experiences are
     •     Enlighten audience – success stories
                                                                    analysed cognitively. The analysis involves evaluating the
Summary of Content: Case Study – Acquired loss as a 1 year
                                                                    outcomes of social experiences against personal, social, and
old
                                                                    perceived internal standards. Lastly, this analysis may result
     •     Medical Definition – Cortical/Cerebral Vision
                                                                    in adjustments to existing standards or creation of new
           Impairment & Neuroplasticity
                                                                    personal standards; which in turn, shape the individual’s
     •     Presentation – onset, rehabilitating, ongoing, now       self-concept and future behaviours. It is postulated that
     •     Diagnosis to Prognosis                                   features of disability may directly and/or indirectly impact
     •     Parents’ Perspective                                     the individual’s behaviour during social experiences.
     •     Specialist’ Perspective                                  Furthermore, features of disability may also interfere with
     •     Photographic evidence                                    cognitive processes and interrupts the analysis of outcomes
Implications and Recommendations for Current Clinical               from social experiences. Hence, features of disabilities may
Practice:                                                           influence the development and processes of self-concept.
     •     Recommendations from a parent                            Conclusions: The Self-Concept Feedback Loop can be used
     •     Recommendations from support staff                       as a framework to understand the development of self-
Future Direction/s:                                                 concept which takes into account of the potential impact of
     •     Provide updates, sharing successes                       disability.
     •     Share experiences to support other families and
           specialists
     •     Ongoing research – neuroplasticity and cerebral
           vision impairment

                                                                                                                                7
Stream 1: 3:45pm – 4:50pm                                        BF underwent the following nerve transfer surgery on his left
                                                                 upper limb, with the goal of restoring hand function;
                                                                 brachialis to anterior interosseous nerve (finger flexion) and
S1-12                                                            supinator to posterior interosseous nerve (finger extension).
Neurocognitive Program: An interdisciplinary allied health       Results: At 2 years post-surgery, BF’s MMT improved from
care coordination approach to rehab for children and             0/5 to 4/5 for left finger flexion and extension. BF’s COPM
adolescents with brain injuries.                                 reassessment at 2 years had significant change; performance
Nicola Hilton, Rose Gilmore, Katherine Olsson, Megan             and satisfaction scores improved 5.2 and 5.8 points,
Jackson (QPRS)                                                   respectively.
Learning Objectives:                                             Conclusions: Current evidence is based on a small number of
1. Increased knowledge of long term effects of brain injury      single case reports, BF’s results indicate that upper limb
and how to support function in the community.                    nerve transfer should be considered as a treatment option
2. Understanding of QPRS Neurocognitive Program and how          for appropriate paediatric cases of transverse myelitis. Time
it works.                                                        frame for surgery requires further investigation in regards to
3. Develop confidence using strategies when working with         allowing adequate chance for natural recovery versus
children and adolescents with acquired brain injury in the       preventing lower motor neuron death.
community.
Summary of Content: Provide up to date information about         S2-2
the cognitive, communication, social and emotional long          Upper limb rehabilitation for children with transverse
term effects of acquired brain injury. Demonstrate a case        myelitis
management approach based at a tertiary hospital through         Cate Biesot, Debra Khan (QPRS)
clinical examples. Present methods of intervention including     Background: Very limited research exists describing
interpretation of assessments, use of telehealth and group       rehabilitation for children with transverse myelitis. Research
programs and use of strategies built in to daily routines at     suggests that despite any initial neurological findings
home and in the community. Design: Literature review and         predicting poor recovery, inpatient rehabilitation brings
systematic review                                                significant functional improvement.
Interactive Elements: Problem solving and small group            It has been suggested that general therapeutic principles
discussion through case studies.                                 apply equally to patients with traumatic and non-traumatic
Target Audience: Community and hospital therapists, case         spinal cord injury. However transverse myelitis brings
managers and insurers.                                           unique challenges due to the great variation in the imaging
Equipment Required: Audiovisual equipment required for           level and clinical presentation, and the unpredictable nature
videos.                                                          of the recovery.
                                                                 Objectives:
Stream 2: 10:30am – 12:55pm                                      - To define transverse myelitis – symptoms and causes
                                                                 - To draw on case examples to understand:
                                                                       o The varying clinical presentations of transverse
S2-1
                                                                            myelitis
Upper Limb Nerve Transfer to Restore Hand Function Post
                                                                       o Medical interventions for acute transverse myelitis
Transverse Myelitis - A Paediatric Case study
                                                                       o Upper limb interventions at different stages
Sky Fosbrook (Sydney Children’s Hospital, Randwick)
                                                                            through recovery
Background: Nerve transfer post SCI is a surgical procedure
                                                                 Summary of content: Transverse myelitis is an acute
that involves cutting a functioning donor nerve (originating
                                                                 inflammation of the grey and white matter in one or more
above the level of injury) and reconnecting it to a more
                                                                 spinal cord segments that causes loss of motor and sensory
crucial but non-functioning nerve (below the level of injury).
                                                                 function below the level of injury. However imaging findings
                                                                 often do not correlate to clinical presentation and are not
The following will outline the case of BF, an 11 year old boy
                                                                 reliable in predicting functional outcomes.
who had upper limb nerve transfer surgery on the 8/2/16,
                                                                 As the state-wide rehabilitation service, QPRS have been
after being diagnosed with longitudinally extensive
                                                                 involved in providing rehabilitation for a number of children
transverse myelitis (LETM), C5 AIS D on the 10/8/15.
Objectives: Our aim is to present the improvements BF had        with transverse myelitis. Their age, clinical presentation and
in his motor function and Canadian Occupational                  outcomes have varied, however a number of therapeutic
Performance Measure (COPM) scores, at 2 years post-              interventions have seemed to be effective in preventing and
surgery.                                                         managing secondary complications and maximising function.
Design: Single case study                                        Implications and Recommendations for Current Clinical
Methods: A COPM, conducted with BF, highlighted hand
                                                                 Practice: We will present the upper limb rehabilitation
function as the major issue preventing his independence in
completing activities of daily living and his ability to         interventions trialled successfully with children in the
participate in activities of leisure and education. BF had       months and years following transverse myelitis. We will
needle electromyography on the 21/12/15, which confirmed         show how we have learned from our long-term patients to
the results of the manual muscle test (MMT) of nil voluntary     inform our care of more recent patients.
motor units in his left C7/8 muscles and normal motor
units/volitional movement of C5-C6 muscles.                      Future Direction/s: We would like to support the
                                                                 development of clinical guidelines for upper limb
                                                                                                                             8
rehabilitation in transverse myelitis, especially given the       paediatric rehabilitation, there is less evidence available to
long-term nature of medical treatment and recovery.               guide practice due to lower population numbers. This
                                                                  presentation will explore how we are working towards
S2-3                                                              applying the adult literature to paediatric population to
Use of electrical stimulation to prevent and manage               ensure best practice.
shoulder subluxation in children.                                 Objectives: To review best practice for the management of
Debra Khan (QPRS), Erin Lunn (QCH OT Dept; QPRS), Dana            upper limb post stroke and the application into our daily
Loader (UQ)                                                       practice in an acute paediatric tertiary hospital across the
                                                                  continuum of care.
Background: Functional electrical stimulation can be used
                                                                  Summary of Content: This presentation aims to outline the
by patients with spinal cord injury and brain injury to
                                                                  evidence available to guide assessment and intervention for
improve muscle strength and assist in the recovery of
                                                                  upper limb impairments following stroke. It will apply the
functional movement. QPRS is able to offer FES to children
                                                                  recommendations from the stroke guidelines to the
post brain and spinal cord injury and with cerebral palsy.
                                                                  paediatric population, and to compare and contrast this to
In the adult stroke literature there is evidence to support use
                                                                  our routine practice.
of neuromuscular electrical stimulation around the affected
                                                                  We will explore how we have engaged therapists across
shoulder muscles to prevent subluxation of the shoulder
                                                                  teams to apply available evidence to our everyday treatment
while awaiting recovery of shoulder muscle activity. QPRS
                                                                  and how we are striving to embed and translate the
has recently acquired small portable electrical stimulation
                                                                  evidence in practice.
units which have the potential to be used at the bedside to
                                                                  Implications and Recommendations for Current Clinical
specifically address weakness at the shoulder.
                                                                  Practice: This presentation will outline direct implications
Objectives: To develop a guideline for the use of electrical
                                                                  for clinical occupational therapy practice in the management
stimulation in children following acquired brain injury,
                                                                  of paediatric stroke
including stroke, to prevent and/or manage shoulder
                                                                  Future Direction/s: Managing change in current practice
subluxation.
                                                                  and ongoing processes will be required to ensure new
The presentation demonstrates our process in reviewing the
                                                                  evidence is readily adopted into practice
literature and benchmarking with other paediatric and adult
based services to develop a guideline for the use of electrical
                                                                  S2-5
stimulation to prevent and/or manage shoulder subluxation
                                                                  What does hand function look like pre and post paediatric
for children at LCCH. The guideline will be developed by the
                                                                  hemispherectomy?
QPRS OTs and the Neurosciences OTs from the OT
Department to ensure the best treatment across the                Ellena Oakes (QCH Occupational Therapy Dept)
continuity of care.                                               Background: Hemispherectomy surgery for drug resistance
Summary of Content: The guideline will provide therapists         epilepsy is becoming more standard practice. In the past
with:                                                             years we have seen a shift to this surgery being carried out
      •    Indications to commence therapy                        of younger and younger children. At present we are
      •    Muscles stimulated – clinical reasoning around         predicting hand function post Hemispherectomy based on
           this?                                                  studies of adults and older children. With the recent
                                                                  advances in both assessments available pre surgery and
      •    Guidelines around dose – how often, when used,
                                                                  motor learning treatments post it is essential to review the
           how long, settings on stimulator
                                                                  outcomes for these children.
      •    Type of stimulation FES vs NMES
                                                                  Objectives:
      •    Contraindications or precautions
                                                                       •    Inform the audience of the current available
      •    Other therapy recommendations used in
                                                                            research regarding hand function pre and post
           conjunction with stimulation e.g. exercises, use of
                                                                            Hemispherectomy in children 0-18
           slings or supports
                                                                       •    Provide pre and post case studies highlighting
Implications and Recommendations for Current Clinical
                                                                            hand function and it implication for practice
Practice: We demonstrate how we evaluate the evidence
                                                                       •    Highlight potential areas for change in practice and
and current practice to develop and implement guidelines
                                                                            ongoing research
for therapists across LCCH service areas.
                                                                  Summary of Content:
Future Direction/s: Measurement of the outcomes of the
                                                                       •    Provide overview of systematic review looking at
use of electrical stimulation to prevent and/or manage
shoulder subluxation in the paediatric acquired brain injury                hand function in children 0-18 years pre and post
                                                                            Hemispherectomy
population. Opportunities for the development of guidelines
for all treating therapists across the continuum of care               •    Utilise case studies to highlight the differences pre
within LCCH.                                                                and post-surgery
                                                                       •    Incorporate elements of a practice guideline
                                                                            including Ax and Rx
S2-4                                                                   •    Explore possibility of further research.
Getting the upper hand in early stroke management                 Implications and Recommendations for Current Clinical
Alison Waite, Erin Lunn (QPRS)                                    Practice:
                                                                       •    Provide evidence based recommendations
Background: There has been extensive work in the adult
                                                                            regarding pre and post assessments
rehabilitation world to establish Stroke Guidelines in an
effort to ensure best practice and maximise outcomes. In
                                                                                                                               9
•    Provide     evidence    based    recommendation         that is sufficient to evoke muscular contractions. When
          regarding post op treatment approaches                  applied during cycling, FES can provide sensory cues to help
Results: Research pre and positively with LCCH cohort and         the child contract a muscle at an exact point in the cycling
other cohorts at national centres                                 phase, with the aim to improve the timing and synergy of
Including looking at left and right hemispherectomy               muscle contractions. Alternatively, it can evoke stronger
differences.                                                      muscle contractions to help the child achieve full cycling
? need to have fMRI                                               revolutions.
? any other anatomical findings including corticospinal tract     As part of an ongoing Randomised Controlled Trial of FES-
projects as predictors indications for hand function              cycling and adapted cycling for children with Cerebral Palsy
outcomes.                                                         (GMFCS levels II-IV), participants have completed an 8-week
                                                                  training program of FES-cycling, functional exercises and
S2-6                                                              recreational cycling on adapted bikes. The training program
Gait re-education in a young man with Dravet’s syndrome           consists of two one-hour physiotherapy sessions per week,
Erin Ralph, Dr Heather Burnett (HNEKidsRehab)                     including 30 minutes of FES-cycling each session. The
Background: Dravet’s syndrome is an epileptic disorder that       purpose of this presentation is to identify and discuss some
has a known loss of walking function into adolescence.            of the key facilitators and barriers to incorporating FES-
Children tend to weaken, and develop crouch gait.                 cycling into physiotherapy programs for children with CP,
This case study presents the history, progress and results of     including children with cognitive impairments.
gait re-education using serial casting to progressively re-       Objectives: The aims of this presentation are to:
educate walking ability.                                               •     Identify the facilitators and barriers to delivering
Objectives: Can casting be used to effectively re-train gait in              FES-cycling training to children with CP (GMFCS
a young man who isn’t able to complete other, more                           levels II-IV), aged 6-18 years.
conventional re-training methods?                                      •     To discuss strategies to help clinicians introduce
Casting was completed over a period of several weeks, with                   and describe FES-cycling to children with CP,
outcome measures evaluated throughout. This presentation                     including those with a cognitive impairment.
will present the findings of the series, including the outcome         •     To provide recommendations to clinicians who are
and the young man’s current function.                                        currently using, or plan to use FES-cycling in their
Summary of Content: As this was a single case study, the                     training programs.
recruitment was opportunistic, in response to a problem           Summary of Content: The presentation will focus solely on
presented by a client during regular clinical review.             the FES-cycling component of a larger Randomised
Gait re-training is a known treatment method for people           Controlled Trial. It will include:
with gait disorders, but presents an additional challenge              •     A brief overview of the study design
when they aren’t able to complete more traditional training            •     An overview of the FES-parameters used in our
methods. This case study evaluates the effectiveness of                      training program
serial casting to change the gait pattern of this young man.           •     Notes on describing the concept of FES to children,
Implications and Recommendations for Current Clinical                        with quotes from participants
Practice: The outcome of this case study may be able to be             •     Tips to help clinicians introduce FES to children
used in the future for those people who are unable to                        with cognitive impairments
complete more traditional gait retraining methods, or where            •     Examples of motivation strategies to help children
traditional methods are unavailable.                                         remain engaged over an 8-week FES cycling
Recommendations on progression, type of casting, and                         program
positioning may be able to be extrapolated from the                    •     Perceived benefits and feedback from families and
outcome of this case study.                                                  children who have participated in the FES-cycling
Future Direction/s: Future use of this method may be                         program
considered with the use in younger children and other                  •     Things to consider when delivering an FES-cycling
conditions where other methods of gait retraining have been                  program, including possible barriers
unsuccessful or are unable to be completed.                            •     Take home messages for clinicians who are
                                                                             interested in using FES-cycling as a training
S2-7                                                                         modality.
Pearls and Pitfalls of FES - Cycling for Children with Cerebral   Implications and Recommendations for Current Clinical
Palsy                                                             Practice: FES-cycling can provide an alternate mode of
Ellen Armstrong (Griffith University; QPRS), Dr Sean              exercise for children with CP who have reduced mobility
Horan (Griffith University), Ms Megan Kentish (QPRS),             when the program aligns with, and is appropriately tailored
Professor Roslyn Boyd (QCPRRC, The University of                  to, the child’s goals. When delivering an FES-cycling
Queensland), Dr Christopher Carty (Griffith University;           program, it is important to establish a sound rationale for
CHQ)                                                              using the device over an alternative mode of exercise and to
Background: Functional Electrical Stimulation (FES) cycling       consider: the time required to set-up the equipment and to
provides a solution for children with Cerebral Palsy (CP) who     establish training parameters; the age and level of cognition
have limited ability to pedal a traditional bicycle due to        of the child; the expectations of the family; the language and
muscle weakness, spasticity and general deconditioning. FES       methods that will be used to explain FES to the patient and;
refers to electrical impulses that are delivered to the           motivational strategies that are appropriate for the
muscles via surface electrodes at an intensity and frequency      individual child.

                                                                                                                             10
Future Direction/s: Information from this presentation can        Rehab clinicians have varying experience with assessing
be implemented immediately into clinical practice and is          children for sport and recreational activity. Participation in
intended to assist clinicians who are currently using, or         sport and recreation activities is often identified as a goal for
intend to use, FES cycling with patients with CP or similar       paediatric patients
conditions. The functional outcomes of the FES-cycling and        A review of data in Rehab2Kids suggested a clinical need:
recreational cycling program will be analysed and presented        -    86% of children in subacute rehab identified goals on
on conclusion of the larger RCT. It is hoped that this                  the COPM
information will further assist clinicians to make informed       A survey was developed to gain information from consumers
decisions around incorporating FES-cycling into their therapy     about their sport and recreation needs, and gaps in our
programs for children with CP.                                    service.
                                                                  Objectives: Within 6 months, children receiving services
S2-8                                                              through the Sydney Children Hospital (SCH) Randwick will
Look at those Legs! FES Cycle as an adjunct to Rehab              have Sport and              Recreational goals addressed.
Rebecca McDonald, Sky Fosbrooke, April Sutcliffe,                 Patients/families will have access to information on where
Kath Asher, Catherine O’Sullivan (Rehab2Kids, SCH)                they can access activities.
Background: The functional electrical stimulation (FES) cycle     Design: Quality project performed using the model for QI.
is being used as an adjunct to physiotherapy and                  Quantitative and qualitative data collection was used along
occupational therapy sessions in Rehab2Kids. We have had          with process mapping, and driver diagrams to determine
successful results with children using it regularly and when      interventions.
presenting with hemiplegia.                                       Methods:
Objectives:                                                        -    The diagnostic and problem identification phase
1.         To describe the current FES Cycle practice at SCH.           adopted techniques of brainstorming, process
2.         To present a single case study on the use of upper           mapping, and driver diagram.
(UL) and lower limb (LL) FES Cycle for a male (‘Tom’)              -    A survey was conducted of 212 families/children
presenting with an extensive acquired brain injury.                     accessing SCH rehab services to ascertain Sport and
Summary of Content: Discussion about current practice at                Recreation needs, and gaps in services.
SCH will include patient selection and suitability, set up of      -    Rehab2Kids staff were surveyed to determine current
FES cycle and outcome measures collected.                               knowledge, and any links with organisations.
Our case study will summarise Tom’s 206 day journey at            Future Direction/s:
SCH. We will discuss his rocky acute admission and his            Main findings from consumer survey:
primary issues, which included a dense left hemiparesis.           -    50% stated sport and recreation goals were discussed
Tom’s primary goals were identified using the COPM, and                 & 29.89% reported goals were not addressed
included being independent in mobilising and completing           Most important factors when accessing Sport/Recreation:
self-care tasks and to be able to use his left UL in fine motor    -    child’s enjoyment 71%,
activities that require two hands. Tom was introduced to the           closeness to home 53%
FES cycle after being referred to sub-acute rehabilitation.        The biggest challenges:
This was part of his very busy activity based therapy              -    child’s physical and cognitive difficulties 63.86%
program. He used the cycle a total of 59 UL session and 35 LL      -     availability of suitable services 50%
sessions. Tom worked very hard during his inpatient stay and       -     unaware of services 41%
made significant functional gains and all his measures            How we could improve our service:
improved. Tom and his family reported high satisfaction with       -    dissemination of information
using the FES cycle during his admission.                          -    sport and Recreation services suitable to child’s needs
Implications and Recommendations for Current Clinical              -    73% of staff reported that they would like information
Practice: We strongly advocate for the use of the FES cycle             on Sport and Recreation organisations
in early rehabilitation for both the upper and lower limb. We     Conclusions: This project has identified gaps in our current
have found it a useful adjunct to therapy. We are also            processes, and lack of knowledge of staff and families about
currently investigating the option of purchasing an “Xcite”       suitable Sport and Recreation organisations
multi-channel FES program which allows for more task              Main areas of focus:
specific, strengthening and gross motor training activities.           -     Improve staff knowledge through training from
Future Direction/s: We have successfully applied for and                     external rehab organisations
been granted funding to receive a Supine FES cycle. We hope            -     Improve access of families to Sport and Recreation
that by being more proactive in the early phases of recovery,                organisations through Sydney Children website
we may help prevent some of the secondary complications                      page
of long term CICU admissions.                                          -     Formalised process for Rehab therapists
                                                                  The team hopes to improve family’s ability to access suitable
S2-9                                                              organisations, and our ability to meet families and patient
The Role of       Sport    and   Recreation    in   Paediatric    goals.
Rehabilitation
Kate Clark, Kathryn Asher, Catriona Murray
Background: The participation of children with disabilities in
sports and recreational activities promotes inclusion and
optimised physical function.

                                                                                                                               11
Stream 2: 1:55pm – 3:15pm                                         Stream 2: 3:45pm – 4:50pm
S2-10                                                             S2-11
Selective Dorsal Rhizotomy the Australian Experience:             Evaluation of a virtual clinic model for cerebral palsy hip
Selection, rehabilitation, orthopaedic management and             surveillance
outcomes.                                                         Dr Heather Burnett, Elisabeth Bowes, Erin Ralph, Ann
Pam Thomason (Royal Children’s Hospital, Melbourne),              Leonard (HNEkidsRehab)
Olivia Lee (VPRS), Kim McLennan (QPRS), Meredith                  Background: The HNEkidsRehab Cerebral Palsy Hip
Wynter (QPRS), Carly Dickinson (QPRS), Cate Biesot                Surveillance Program (CPHS) has been operating using a
(QPRS), Neil Wimalasundera (VPRS)                                 virtual clinic model since 2013 to coordinate hip surveillance
Learning Objectives: To understand:                               for children with cerebral palsy in the Child Health Network -
     -     the indications and selection criteria for SDR in      Northern in New South Wales. The aims of this program are:
           Australia and the clinical characteristics of the
           ideal candidate                                             1.   Engage all children requiring cerebral palsy hip
     -     the indications for and orthopaedic management                   surveillance
           of lower limb deformities in children post-SDR and          2.   Ensure compliance with hip surveillance guidelines
           the rationale for long-term orthopaedic follow-up           3.   Achieve early detection of hip displacement and
     -     the bioethical issues involved with SDR in Australia             prompt referral for orthopaedic review
     -     To gain knowledge about the outcome evidence                4.   Optimize health resource utilisation
           post-SDR across the ICF domains in the context of
           the child and family                                   Objectives: A five year quality assurance audit was
Summary of Content: Selective Dorsal Root Rhizotomy               undertaken to evaluate how well the HNEkidsRehab
(SDR) is a neurosurgical procedure used to reduce spasticity      Cerebral Palsy Hip Surveillance Program has performed in
in children with bilateral cerebral palsy (CP) aiming to          achieving its stated objectives.
improve gait and function. SDR has been utilised in Australia     Summary of Content: Our audit demonstrated that our
since 2003. SDR is an irreversible, time consuming procedure      program is seeing 46% of the expected paediatric CP
which requires intensive post-operative rehabilitation and        population in our area. The geographic spread of our CPHS
time commitment by children and their families.                   patients was skewed toward metropolitan areas. Referrals
The decision whether an SDR is the most appropriate               were primarily from our CPMD clinic and community
management is a difficult one and requires a comprehensive        physiotherapists. Significant issues were found with delay in
multidisciplinary assessment, instrumented gait analysis in       x-rays being completed and reports being issued.
most instances and realistic goal setting with the child and      Orthopaedic referral rate was lower than our comparison
family. Selection criteria are clinically based and vary          site (QPRS), with similar numbers ultimately undergoing
between centres internationally. The selection criteria used      surgery. We identified two patients with progressive hip
in Australian will be presented and discussed.                    displacement and one with hip dislocation who had not
Published evidence for outcomes post SDR in Australia is          been referred to CPHS. All had CP-like conditions.
limited however, follow up of a small group of children who       Our audit included a survey of CPHS families and carers,
have undergone SDR in Melbourne found short term                  which reflected difficulties in obtaining x-rays and
improvements in spasticity, gait and gross motor function         interpreting CPHS reports. We also included a survey of
with emerging evidence for these to be maintained long            potential referrers, which demonstrated that general
term.                                                             paediatricians and GPs in our area want more information
Outcomes will be discussed in the context of the ICF frame-       about hip surveillance for children with CP and CP-like
work with emphasis on participation, performance and              conditions.
family/child perspectives and will be a focus of interactive      Implications and Recommendations for Current Clinical
case discussions.                                                 Practice: We have undertaken several changes to our CPHS
Musculoskeletal       issues    and     outcomes      affecting   program since completing this audit, including renaming the
children/adolescents who have undergone SDR will be               program High Risk Hip Surveillance (HRHS) in order to
explored and compared with children who have not had              capture more children with CP-like conditions. We are
SDR.                                                              working with families to improve access to x-rays and have
The risk of complications following SDR is now considered         changed our report format to make it more easily
very low however clinicians may be cautious about                 understandable for families. We have also changed our
suggesting SDR as a management option to families. The            processes to improve timely review of x-rays. We have
possible reasons for this will be explored and bioethical         issued new educational materials about our HRHS program
issues relating to SDR will be discussed.                         to general paediatricians and GPs in our area, and we are
The Australian SDR Research Registry will be introduced and       developing a GP HEalthpathway in conjunction with our local
a potential early referral and assessment pathway will be         primary health care network in order to facilitate referrals to
explained.                                                        our service.
                                                                  Future Direction/s: We will plan to reassess our HRHS
                                                                  program in 2021 to evaluate the impact of our recent
                                                                  changes on achievement of the program’s objectives.

                                                                                                                             12
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