Towards better Indigenous health data

Towards better Indigenous health data

Towards better Indigenous health data

Towards better Indigenous health data

Australian Institute of Health and Welfare Canberra Cat. no. IHW 93 Towards better Indigenous health data

The Australian Institute of Health and Welfare is a major national agency which provides reliable, regular and relevant information and statistics on Australia’s health and welfare. The Institute’s mission is authoritative information and statistics to promote better health and wellbeing. © Australian Institute of Health and Welfare 2013 This product, excluding the AIHW logo, Commonwealth Coat of Arms and any material owned by a third party or protected by a trademark, has been released under a Creative Commons BY 3.0 (CC-BY 3.0) licence.

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Australian Institute of Health and Welfare Board Chair Dr Andrew Refshauge Director David Kalisch Any enquiries about or comments on this publication should be directed to: Communications, Media and Marketing Unit Australian Institute of Health and Welfare GPO Box 570 Canberra ACT 2601 Tel: (02) 6244 1032 Email: info@aihw.gov.au Published by the Australian Institute of Health and Welfare Please note that there is the potential for minor revisions of data in this report.

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Towards better Indigenous health data iii Contents Acknowledgments . v Abbreviations . . vi Summary . viii 1 Background . . 1 1.1 Why Indigenous status is important . . 1 1.2 National best practice guidelines for collecting Indigenous status in health data sets . . 2 1.3 COAG Closing the Gap commitments . . 3 2 The Guidelines support and evaluation project . . 6 2.1 Description and methodology . . 6 2.2 AIHW support for Guidelines implementation . . 11 2.3 Other AIHW data improvement projects . . 15 3 Information on sectors and data sets . . 17 3.1 Hospital sector . . 18 3.2 Alcohol and other drug treatment services sector .

. 24 3.3 Mental health services sector . . 27 3.4 Cross-sector data sets . . 32 3.5 Summary of Indigenous data quality . . 40 3.6 Discussion . . 42 4 Jurisdiction-based data improvement activities . . 43 4.1 New South Wales . . 43 4.2 Victoria . . 47 4.3 Queensland . . 50 4.4 Western Australia . . 52 4.5 South Australia . . 53 4.6 Tasmania . . 56 4.7 Australian Capital Territory . . 56 4.8 Northern Territory . . 58 4.9 Discussion . . 59 5 General practice sector . . 62 5.1 Context and recent developments . . 62 5.2 Improving identification in general practice . . 64 5.3 Improving identification in e-health systems .

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iv Towards better Indigenous health data 5.4 Discussion . . 67 6 Conclusions and next steps . . 68 6.1 Summary of current state of play . . 68 6.2 Areas for further work . . 69 Appendix A: National Indigenous Reform Agreement, Schedule F . . 71 References . . 74 List of tables . . 77 List of figures . . 78

Towards better Indigenous health data v Acknowledgments This report was written by Helen Kehoe, Helen Johnstone, Meke Kamps and Ronda Ramsay from the Social and Indigenous Group at the Australian Institute of Health and Welfare, with assistance from Mieke Van Doeland and Kathleen Jackson.

Fadwa Al-Yaman managed the project and the writing of the report. Thanks are extended to staff of state and territory governments who provided substantial input to Chapter 4, and to staff of the Office for Aboriginal and Torres Strait Islander Health who provided valuable comments on the drafts.

vi Towards better Indigenous health data Abbreviations ABS Australian Bureau of Statistics ACCHS Aboriginal Community Controlled Health Services AHMAC Australian Health Ministers’ Advisory Council AIHW Australian Institute of Health and Welfare AODTS NMDS Alcohol and Other Drug Treatment Services National Minimum Data Set COAG Council of Australian Governments DoHA Department of Health and Ageing MBS Medicare Benefits Schedule NAGATSIHID National Advisory Group on Aboriginal and Torres Strait Islander Health Information and Data NATSIHON National Aboriginal and Torres Strait Islander Health Officials’ Network (renamed NATSIHSC in 2012) NATSIHSC National Aboriginal and Torres Strait Islander Health Standing Committee (previously NATSIHON) NEHTA National E-Health Transition Authority NIDISC National Indigenous Data Improvement Support Centre NIRA National Indigenous Reform Agreement NIRA PIMG National Indigenous Reform Agreement Performance Information Management Group NMDS National Minimum Data Set NPESU National Perinatal Epidemiology and Statistics Unit OATSIH Office for Aboriginal and Torres Strait Islander Health OBIP Overarching Bilateral Indigenous Plan OSR OATSIH Services Reporting PBS Pharmaceutical Benefits Scheme PCEHR Personally Controlled Electronic Health Record RACGP Royal Australian College of General Practitioners

Towards better Indigenous health data vii Symbols — rounded to zero % per cent n.a. not available . . not applicable n.p. not published

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