TULIP TALKS - Parkinson's New ...

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TULIP TALKS - Parkinson's New ...
TULIP TALKS      THE QUARTERLY NEWSLETTER FOR
                   THE PNZCT NORTHERN REGION

                                  ISSUE 1       |    MARCH 2021

Red Tulip Appeal
April 2021
Parkinson's New Zealand annual appeal
week has moved from November each year
to April, to align with World Parkinson's Day.

World Parkinson's Day is recognised on the 11th of
April each year all around the world with various
activities planned by Parkinson's Groups globally.
To align our own activities with the global
Parkinson's community, we have moved our
Appeal week to April. This April, your local Action
Group has various activities planned including the
sale of tulip bulbs and collections at various
supermarkets and malls in your region. PNZCT will
have a fresh logo for the Red Tulip Appeal to
complement our efforts to strengthen the public’s
knowledge of the significance of the red tulip to
our organisation.
                                                      Appeal Week volunteers doing good for our cause in 2019.
I look forward to working with local volunteers in
the region to make this year's Red Tulip Appeal       Can you spare two hours?
Week a successful one.
                                                      Your local Parkinson's Action Group is calling
Karen Schade - Community Engagement Advisor
                                                      for volunteers to join the Red Tulip Appeal
                                                      Week team of collectors.

                                                      Around New Zealand, your regional Action Groups
                                                      are busy securing sites for collection stations and
                                                      the sale of Tulip Bulbs to raise funds and
                                                      awareness of Parkinson's. If you have two hours to
                                                      spare, please consider donating some time to help.

                                                      Please email your local Parkinson's contact below
                                                      to register as a Red Tulip Appeal collector.

                                                      Waikato: Peter - janandpetert@gmail.com
                                                      Auckland: Melissa - volunteer@parkinsons.org.nz
                                                      Northland: Michael - michael.88.md@gmail.com
TULIP TALKS - Parkinson's New ...
TULIP TALKS – NORTHERN REGION                                                         ISSUE 1 – MARCH 2021

Parkinson's New Zealand Charity Golf
Tournament - Monday, March 1, 2021
Our annual golf tournament in Auckland is confirmed and we
encourage all of those keen on golf to register a team.

The tournament has raised over $50,000 for Parkinson's Nursing
services in the Auckland region over the past four years. Held
annually, the tournament has grown to become a key fundraising
activity for the Auckland region. Ann Cambie who has co-ordinated
the event four years running retires her services this year with our
heartfelt thanks and appreciation.

Volunteers Diane Nicholson and Sandie Jennins, both Parkinson's
members and keen golfers, have stepped in to work with our
National Office team to coordinate and run the event this year. As
Wainui is undertaking greens maintenance this summer, we have
moved the event to the popular Pupuke Golf Club in Campbells Bay.

The Ambrose Tournament will tee off at 12.30 noon and will be
followed by prize giving and dinner. Registration is just $500 per
team of four.

The event is supported by Summerset and Catalyst Group as major
partners.
                                                                              Thank you to Ann Cambie (pictured)
                                                                              for her dedicated co-ordination of the
Enquiries can be made to golf@parkinsons.org.nz                               event over the past four years.

                                                     Tulip Bulbs on Sale from April 1
                                                     The Tulip is the international symbol for
                                                     Parkinson's and the red tulip is the official
                                                     symbol of our organisation.

                                                     Every year in April, Parkinson's Action Groups sell Tulip
                                                     bulbs as part of their annual fundraising activities. This
                                                     year we have six varieties of Tulips available.

                                                     Tulip Bulbs will be sold as part of the Red Tulip Appeal
                                                     from April and at social activities run by your local
Six cheerful Tulip colours to choose from in 2021.   Action Group volunteers through April and May.

                                                     Colours include a deep red, white, black, pink, yellow
                                                     and orange, all of which have proven popular in recent
                                                     years. Packets of five bulbs sell for $7.00. Tulips are
                                                     very popular with growers, who typically do planting in
                                                     May, to see Tulips blooming in Spring. All proceeds go
                                                     towards supporting PNZCT services in the region.

                                                     To secure your Tulip bulbs, speak to your Parkinson's
                                                     Nurse or local Action Group members, or visit a
                                                     Parkinson's collection stand during Awareness Week.
TULIP TALKS - Parkinson's New ...
TULIP TALKS – NORTHERN REGION                                                      ISSUE 1 – MARCH 2021

UPBEAT 2021                            2020 Tulip Cream Tea Hosts recognised
Rotorua | July 30 & 31, 2021           $50,000 was raised during last year's TCT Campaign!

This year's UPBEAT conference
                                       In Spring 2020 we launched our nationwide Tulip Cream Tea campaign,
for people with early-onset
                                       encouraging people and businesses all around New Zealand to host a
Parkinson's will take place in the
geyser city of Rotorua.                Tulip Cream Tea in their home, rest home, or workplace. We were
                                       humbled with nearly 100 event hosting registrations last year, and the
Anyone with early-onset                campaign is now an annual activity, with us eagerly looking forward to
Parkinson's and their carers,          an even bigger campaign in 2021!
partner or support person are
invited to register.                   Due to COVID-19, we were unsure of how successful our Tulip Cream Tea
                                       fundraising campaign would be, however to our delight, despite a
The event will run over two days       country-wide lockdown ( two in Auckland), we managed to raise $50,000
and you'll be joined by some of        from events being hosted as far south as Wanaka and into the far north.
New Zealand’s top Neurologists,
researchers and performance
                                       Thank you to our wonderful hosts and campaign partners, Dilmah NZ
coaches to explore how to live
                                       and Lewis Road Creamery. Thanks to them, every TCT host received a
your best life ever with
Parkinson’s during this fun,           Dilmah Tea Premium 100-pack and a Lewis Road Creamery Milk and
interactive weekend                    Cream voucher in their host pack.

You’ll be joined by some of NZ's       Sewers from all around New Zealand have sewn close to 200 aprons that
top Neurologists, researchers and      were purchased for a donation at Tulip Cream Tea events around the
performance coaches to explore         country. An amazing level of creativity has been demonstrated, with
how to live your best life ever with   some absolutely beautiful Aprons being sewn. Thanks to our Parkinson's
Parkinson’s!                           Sewers Group, we raised $1,000 in additional funds.

Enquiries to:                          The 2021 TCT Campaign will take place again this coming Spring.
info@parkinsons.org.nz

Powhiri by local Iwi at UPBEAT 2019

UPBEAT 2019 was held in Whangarei

Geysers at Rotorua, the 2021 UPBEAT
Retreat destination
TULIP TALKS - Parkinson's New ...
TULIP TALKS – NORTHERN REGION                                                       ISSUE 1 – MARCH 2021

Social Activities                                                            Northland
North Shore                                                                  Living Positively with
                                                                             Parkinson's Social
Living Positively with
Parkinson's Social
                                                                             Wednesday 3rd March 2021
                                                                             Kamo Football Club
Sunday, 11th April 2021
                                                                             5:30 pm - 8:00 pm
Pupuke Golf Course, Campbells
Bay | 3:00 pm - 5:00 pm
                                                                             Guest Speaker - Robyn Cotton
Nibbles provided
                                                                             Author with early-onset Robyn
                                                                             will give a talk on her book "A
To mark World Parkinson's Day,
                                                                             Skylark Flies". Bring a plate of
we have an exciting new book          Volunteers are the life-blood of our   nibbles and enjoy the company
launch "Mary and Me" by author        organisation.
and Parkinson's member Robyn                                                 of others.
Cotton. Mary and Me tells the         Auckland-wide                          Please RSVP to Elizabeth Staats
story of two women with
Parkinson's living 200 years apart.   Volunteers                             via email or phone 09 436 0819 |
All proceeds from the book sales                                             staats60@gmail.com
are being donated to Parkinson's      Morning Tea
projects. Please let us know if you                                          Waikato
are coming                            This year, during National             Living Positively with
                                      Volunteer Week from June 20-
                                                                             Parkinson's Social
                                      26, 2021, Parkinson's New
                                      Zealand will host a morning
                                                                             The Waikato Action Group are
                                      tea to thank volunteers who
                                                                             planning a fun creative day where
                                      have contributed to Auckland-
                                                                             PWP can showcase and sell their
                                      wide activities in the past 18
                                                                             creations. The event will include
                                      months. This includes Action
                                                                             afternoon tea and everyone will
                                      Group, fundraising events and
                                                                             be welcome.
                                      Red Tulip Appeal volunteers.
                                                                             Once the date and venue is
                                      Thursday, 24th June 2021
                                                                             confirmed, an email will be sent
                                      The Wintergarden Cafe
                                                                             out to our contacts in the region.
                                      Auckland Domain
                                      10:00 am - 11:00 am
                                                                             Mangere Bridge
                                      Registrations are essential for        Living Positively with
                                      catering purposes.                     Parkinson's Walk
                                      volunteer@parkinsons.org.nz
                                      no later than Friday, June 12.         Ambury Park Walk
Living Positively with
                                                                             Sunday 27th June 2021
Parkinson's Social
                                                                             1:00 pm - 3:00 pm

Sunday, 6 June 2021                   South Auckland                         Contact Vivienne Palmer
3:00 pm to 5:00 pm                    Walking & Coffee Group for             regarding this event via email
Pupuke Golf Club                      those recently diagnosed               vp@5162.co.nz
Nia Dance Specialist - Mariska
van Egmond                            Nikki and Susan live in South
                                      Auckland and have early-onset
Living Positively with                Parkinson's. They invite anyone
Parkinson's Social                    with a PD diagnosis to join them
                                      and others for a chat over coffee
Sunday, 25th July 2021                followed by a walk .Conifer
3:00 pm to 5:00 pm                    Bakery Cafe, 68a Walter Strevens
A fun quiz afternoon                  Drive, Conifer Grove, 2pm,
                                      Sunday 21st March. Contact Nikki
Contact Wendy regarding the           Weir regarding this group
above events via email                027 457 2882                           Members enjoying the February walk
ud1family99@gmail.com                 ogilvieb1912@gmail.com                 at Long Bay Regional Park.
TULIP TALKS - Parkinson's New ...
TULIP TALKS – NORTHERN REGION                                                     ISSUE 1 – MARCH 2021

                                                    Red Tulip Walk Whangarei
                                                    Sunday, April 11, 2021
                                                    10:00 am - 1:00 pm
                                                    World Parkinson's Day
                                                    The Hātea Loop - Huarahi o te Wha

                                                    The Parkinson's Northland Action Group invite
                                                    members and their families to take part in the
                                                    inaugural Red Tulip Walk, to mark World
                                                    Parkinson's Day.

                                                    Tickets are just $12.50 for adults and $7.50 for
                                                    children under 16. This includes a sausage sizzle
                                                    and refreshments at the completion of the walk.
                                                    Any funds raised will contribute to the regions
                                                    annual fundraising.
Aio Wira Centre, Bethells Beach, Auckland
                                                    There will be prizes for best-dressed individual
                                                    and family group, in the Red and Blue
Wellness Weekend                                    Parkinson's colours.
June 25 - 27, 2021
The Auckland Central and West Action                Tickets are on sale now via iTicket use the search
Group is hosting a wellness weekend in              words "Red Tulip Walk".
June for people living with early-onset
Parkinson's and their carer or partner.

The weekend aims to give people living with
Parkinson's and their carer/partner a restorative
weekend away to re-energise and reconnect
with their own self. The event is non-clinical,
offering activities focused on the mind, body
and soul.

Commencing on Friday, June 25 at 4:00 pm,
guests will enjoy delicious home-cooked
wholesome vegetarian meals, herbal teas,
plenty of fresh fruit, beach walks, wellness and
exercise classes and guided meditation
sessions. The large spa pool and sauna will be
                                                    The Hatea Loop is the venue of our 2021 Red Tulip Walk on
available to guests, and a massage practitioner
                                                    World Parkinson's Day.
will be available for those who wish to treat
themselves. If that does not sound like enough
bliss, the fireplace will be burning through the    Action Group Members
weekend to warm the heart or to enjoy the           We are recruiting for new team members.
simple pleasure of reading a book.
                                                    Parkinson's New Zealand relies on the goodwill
Aio Wira offers a natural sanctuary where you       of volunteers to be ambassadors for our cause in
can escape the stresses of life for a while.        their local communities.
Nestled within the beautiful native bush of the
Waitakere Ranges, it’s a place to breathe,          If you have five hours a month to give and would
meditate, heal, relax and share in a safe           like to make a tangible difference to people with
environment. Singles and couples are welcome.       Parkinson's in your local area, then please get in
The weekend is subsidised by Parkinson’s New        touch with your local Action Group contact as
Zealand, will cost $250 per person, and is          listed on the back page.
open to anyone living in the Auckland region.
                                                    We need new members in Waikato and
Enquiries to:                                       throughout Auckland.
karen.schade@parkinsons.org.nz or 021 302 580.
TULIP TALKS - Parkinson's New ...
TULIP TALKS – NORTHERN REGION                                                              ISSUE 1 – MARCH 2021

                                                                                 Northern Area Contacts
                                                                                       Local Action Group
                                                                                            Karen Schade
                                                                                   Community Engagement Advisor
                                                                                   karen.schade@parkinsons.org.nz
                                                                                    Jo van Kan - Akl Central & West
                                                                                          jovk90@gmail.com
                                                                                      Nikki Weir - Akl South & East
                                                                                        ogilvieb1912@gmail.com
                                                                               Wendy Horton - Akl Northshore & Rodney
                                                                                      ud1family99@gmail.com
                                                                                    Michael Dragicevich - Northland
Parkinson's Action Groups Plans for 2021                                              michael.88.md@gmail.com

At the Parkinson's New Zealand Annual Hui in Wellington on                             Peter Theobald - Waikato
                                                                                       janandpetert@gmail.com
November 26 & 27, 2020, representatives from all regional
Action Groups, supported by their Community Engagement                                 Parkinson's Nurses
Advisor, presented their annual activity plans for 2021.                         Margaret McNab – Central Auckland
                                                                                 margaret.mcnab@parkinsons.org.nz

All regional Action Groups have a confirmed plan of activities to drive           Yvonne Glassborow – East Auckland
                                                                                yvonne.glassborow@parkinsons.org.nz
awareness and funds that support regional activities during 2021.
                                                                                     Debbie Pincott – North Shore
                                                                                   debbie.pincott@parkinsons.org.nz
Action Groups have been provided with tools and guidance to
successfully run a series of activities supported by National Office                 Rachel Turner – West Auckland
                                                                                    rachel.turner@parkinsons.org.nz
including the Red Tulip Appeal and tulip bulb sales, the newly
launched Red Tulip Walk events, National Volunteer Awards in June                    Glenys Best – South Auckland
                                                                                     glenys.best@parkinsons.org.nz
and Living Positively with Parkinson's social events and walks, which
will run throughout the year. A key focus for all regions in 2021 will be              Janine Mair - Waikato South
                                                                                     janine.mair@parkinsons.org.nz
engaging with their communities when the Tulip Cream Tea campaign
                                                                                  Vicki Donderwinkel - Waikato North
commences in Spring.                                                            vicki.donderwinkell@parkinsons.org.nz
                                                                                       Liz Cook - Far North District
From 2021, the new-look Tulip Talks will focus on sharing news on social           elizabeth.cook@parkinsons.org.nz
and fundraising activities with a new activities calendar being sent out
                                                                               Vicki Sadgrove - South of Far North District
separately to provide a snapshot of dates and details on all clinical and          vicki.sadgrove@parkinsons.org.nz
social activities for a three month period. The PNZCT calendar will be
sent out on the 1st of each month, commencing in March.
                                                                               Parkinson's New Zealand
                                                                                     PO Box 11 067, Manners Street,
                                                                                            Wellington 6142
                                                                                        Phone: 0800 473 4636
                                                                                     Email: info@parkinsons.org.nz
                                                                                     Web: www.parkinsons.org.nz
                                                                                      Follow us on social media:

                                                                                        Thanks to our
                                                                                       recent sponsors

                                                                                James Searle Say
                                                                                  Foundation

From left: Stephen Parsons (Manawatu AG Chair), Peter Garelja (PNZCT Chair),
Stephen Goodman (PNZCT Board Member) and CEO Andrew Bell model some of
the aprons made for the 2020 Tulip Cream Tea campaign, at the November Hui.
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