Palliative Care and Quality of Life Interdisciplinary Advisory Council - October 7, 2021

Page created by Janice Dawson
 
CONTINUE READING
Palliative Care and Quality of Life Interdisciplinary Advisory Council - October 7, 2021
Palliative Care and Quality of Life
Interdisciplinary Advisory Council

          October 7, 2021
              1:00-2:00 PM
       Virtual Meeting via ZoomGov
AGENDA

        PALLIATIVE CARE AND QUALITY OF LIFE INTERDISCIPLINARY ADVISORY COUNCIL

                                           October 7, 2021

                                            1:00-2:00 PM

                                   Virtual Meeting Via ZoomGov

https://www.zoomgov.com/j/1615812765?pwd=cmVabW9SaGlUQXNtbFJNMEJCY010UT09

                                     All times are approximate

 I.        Call to Order, Roll Call – Mark Altenhofen                                            1:00 PM

 II.       Selecting New Chair & Vice Chair                                                      1:05 PM

 III.      New Member Recruiting                                                                 1:15 PM

 IV.       Meeting Dates 2022                                                                    1:20 PM

 V.        Scope of Work for 2022                                                                1:30 PM

 VI.       Public comment                                                                        1:50 PM

 VII.      Adjournment                                                                           2:00 PM

           Palliative Care & Quality of Life Interdisciplinary Advisory Council (503) 673-1189
MINUTES

                   Palliative Care and Quality of Life Interdisciplinary Advisory Council

                                           Virtual via ZoomGov

                                            September 2, 2021

Members Present: Jamie Newell, Barb Hansen, Linda DeSitter, Glen Patrizio, Bob McCauley

Members Absent: Andrea Cano

Staff Present: Mark Altenhofen, Jason Gingerich

Call to Order

A quorum was established. The meeting was called to order by Mark Altenhofen, OHA Staff, at 1:05 PM.

Minutes Approval

N/A

Staff Report

Mark provided a brief update on the current status of the Council and conducted roll call. He then
began introduction of new members, current members and other OHA staff in attendance.

Draft Charter – Mark provided an overview of the charter and presented to the Council for feedback.
There are currently vacancies for the Chair and Vice Chair role and Mark asked the members to email
him if they are interested in serving in either role. These roles will be forwarded for consideration and
appointed by the Director of OHA.

PCAC Website – A draft structure of the new website was presented and will be one of the projects the
Council will need to work on completing in the near future. Mark asked members to provide feedback
and email him if they have any suggestions for content. He also asked new members to send him a draft
of their Bios to add. Linda asked how often the website will be updated. Mark indicated that this will
vary depending upon content area. For example, public meeting notices will be updated regularly and
as required by public records policy. Linda wondered how articles and other content would be vetted
prior to adding to the website. Mark said this will be at the discretion of Council leadership and OHA
Staff. He agreed that this can be a bit challenging given the broad range of possibilities.

Mark reviewed the current open positions for the membership and encouraged Council members to
refer colleagues that they think would be interested.

PCAC Minutes September 2, 2021                                                                    1
OHA Psilocybin Advisory Board

Barb Hansen is currently the PCAC representative serving on the OHA Psilocybin Advisory Board. She
provided a summary of the current work of the Oregon Psilocybin Advisory Board. She indicated that
there is a two-year implementation process associated with Senate Bill 109 which passed last
November. Meeting materials are available on the OHA website and there is a list of current members.
She referenced the work that has been done by the rapid evidence review sub-committee and
completed this past July. Barb is currently working on the licensing sub-committee and presented the
eligibility requirements and standards for the four different licensure types currently under
consideration. She indicated that some of the licensure requirements are called out in the statute and a
lot is not. For example, under the Facilitator license type, there is a separate training sub-committee
that is vetting content for a 10-month training program that a Facilitator must complete. Then the
licensing sub-committee will review the content and testing requirements that will be required prior to
implementation. There is also a Products sub-committee that will determine whether there will be
natural mushroom or manufacture of prescribed psilocybin products. The role of the Advisory Board is
to recommend what rules should be adopted by OHA for the administration of this program. The rule
making process will follow standard OHA administrative rule procedures and include public testimony
prior to finalizing the program. The process is expected to take much of next year to complete with the
goal of having licensure requirements and programs available by January of 2023. Barb also said that
out of state applicants who would like to be a facilitator are not going to be allowed at this time. The
current requirements in statute call out that Facilitators must be Oregon residents who have lived in the
state for two years. Glenn said he is very interested in reviewing the evidence that is under
consideration and will be taking time to take a look at it. Barb provided information how to find this
information on the OHA website.

HB 2981

Barb provided an update on this bill. She said this bill was similar to what was presented in 2019 and
passed in the last legislative session. HB2981 did not have as much detail as what was previously
submitted, but does direct the Oregon Health Authority to work toward a palliative care benefit that
could be contracted with CCO’s around the state. Barb shared the website information with the Council
members. She thought this would be a good group to help work on the rule making process once that
begins with OHA. Barb specifically pointed out that there will be a need to establish provider
qualifications and eligibility criteria which is relevant to the work of the Council. There are some criteria
that are spelled out in the statute and much that is not. Mark said that this would be a good area of
focus for the Council and that staff are monitoring the process within OHA.

Public Comment

There was not any public comment at this meeting.

Adjournment

Meeting adjourned at 2:00 PM. Next meeting is scheduled for October 7th, 2021 from 1:00-2:00 PM.

PCAC Minutes September 2, 2021                                                                      2
Palliative Care and Quality of Life Interdisciplinary Advisory Council
                                  2022 Planning

Meeting Location:
Virtual via ZoomGov until further notice.
Historically: Clackamas Community College, Wilsonville Training Center
Teleconference is always an option for members

Time: 1:00-3:00 pm

Proposed Meeting Dates:
   •    February 3rd, 2022
   •    April 7th, 2022
   •    September 8th, 2022
   •    November 3rd, 2022

Topics/ Projects for Consideration and Discussion:
   •    Appointment of Chair and Vice Chair; establish meeting schedule with OHA Staff.
   •    PCAC Website – build out content.
   •    HB2981 Legislation – Tracking OHA process and opportunities for involvement in
        rule making.
   •    Psylocibin Advisory Board - guest speaker, tracking process, engage with rule
        making process.
   •    Other ideas within the scope of PCAC Charter.
Palliative Care and Quality of Life Interdisciplinary Advisory Council (PCAC)

PCAC HOME                        What Is Palliative Care?

     About Us
                                  Palliative care means patient-centered and family-centered medical care that
                                  optimizes a patient's quality of life by anticipating, preventing and treating the
     Meetings                     suffering caused by serious illness and involves addressing the patient's
                                  physical, social and spiritual needs and facilitating the patient's authority, access   Image
     News & Information           to information and choice.

     Contact Us                   Palliative care includes, but is not limited to:

                                         • Discussing a patient's goals for treatment;
     Reports/ Publications               • Discussing the treatment options that are appropriate for the patient;
                                           and
Healthcare Providers                     • Comprehensive pain and symptom management

     Resources

     Continuing Education/
     Conferences

Patients & Families

     Services

     Advance Directives
Palliative Care and Quality of Life Interdisciplinary Advisory Council (PCAC)

PCAC HOME                                                                                                                                                                                             About Us
                                                                                                                                                                                                      Contact Us
     About Us
                                                                                                                                                                                                      Member Bios
     Meetings
                                                                                                                                                                                                         Subscribe to notifications

     News & Information                                                                                                                                                                               Receive email notification of
                                                                                                                                                                                                      meetings and updates.

     Contact Us
                              The OHA Director has appointed the following members to the Council:
     Reports/ Publications
                              Margaret Klein, RN, MS, MSN, JD, Chair, Director of Care Management, Adventist Health, Portland
                              Andrea Cano, Chaplain, Providence Health & Services, Hood River
Healthcare Providers          Barabara Hansen, RN, Oregon Hospice & Palliative Care Association, Portland
                              Jamie Newell, LCSW, Compass Oncology, Portland
                              Jennifer Neahring, MD, Bend

     Resources                The council has expertise in the following areas:
                              •Nursing;
                              •Social work;
     Continuing Education/    •Pharmacy;
                              •Clergy or individuals who have professional spiritual expertise; and
     Conferences              •At least two board-certified physicians or nurses with expertise in palliative care.

                              The members will meet at least twice a year or more upon request.

Patients & Families           The role of the Council is to consult with and advise the OHA director on the:
                              •Establishment, maintenance, operation and evaluation of palliative care initiatives in Oregon;
                              •Implementation of Section 5 of Senate Bill 608, requiring health facilities to identify patients or residents who could benefit from palliative care; provide information to patients, residents and
     Services                 their families about palliative care; and coordinate with a patient's or resident's primary care provider, if practicable, to facilitate the access of patients and residents with serious illnesses to
                              appropriate palliative care; and
                              •Information and resources to publish on its website relating to palliative care, which may include best practices, continuing educational opportunities, consumer education, and referral
                              information.
     Advance Directives
Palliative Care and Quality of Life Interdisciplinary Advisory Council (PCAC)

PCAC HOME
                                 Meetings
     About Us             .
                                                                                                                                                           Meeting archives
     Meetings                    2016                                                          2017

                                 March 31, 2016, 1:00-4:00 pm (Agenda) (Minutes)               January 19, 2017 (Agenda) (Minutes)
     News & Information          September 29, 2016, 1:00-4:00 pm (Agenda) (Minutes            April 20, 2017 (Meeting Cancelled)                         Meeting Locations/
                                                                                               May 11, 2017 (Agenda) (Minutes)                            Maps
     Contact Us                                                                                July 20, 2017 (Agenda) (Minutes)
                                                                                               October 19, 2017, 100-4:00 pm (Agenda) (Minutes)

     Reports/ Publications       2018
                                                                                               2019
                                 January 11, 2018 (Room 155) (Agenda)
Healthcare Providers             May 10, 2018 (211) (Agenda)                                   January 10, 2019 (Room 155)
                                 July 12, 2018 (Room 112) (Agenda)                             April 11, 2019 (Room 155)
     Resources                   October 11, 2018 (Room 155)                                   July 11, 2019 (Room 155)
                                                                                               October 10, 2019 (Room 155)

     Continuing Education/
     Conferences
                                 All 2018 meetings will be held at Clackamas Community College's Wilsonville Training Center, 29353 SW Town Center Loop E Wilsonville, Oregon 97070
Patients & Families
                                  Subscribe to receive email notification of meetings and updates.
     Services

     Advance Directives
Palliative Care and Quality of Life Interdisciplinary Advisory Council (PCAC)

PCAC HOME

     About Us             .

     Meetings

     News & Information

     Contact Us

     Reports/ Publications

Healthcare Providers

     Resources

     Continuing Education/
     Conferences

Patients & Families

     Services

     Advance Directives
Palliative Care and Quality of Life Interdisciplinary Advisory Council (PCAC)

PCAC HOME                     Address
     About Us                 Clinical Services Improvement
                              Palliative Care & Quality of Life Interdisciplinary Advisory Council
                              500 Summer St. NE, E-65
     Meetings
                              Salem OR 97301

     News & Information       Please include a return email address with any mailed correspondence.

     Contact Us               You may also directly email the Commission staff as listed below:

                              PCAC.Info@state.or.us
     Reports/ Publications

Healthcare Providers          Commission Staff
     Resources                Mark Altenhofen, MS

     Continuing Education/    Mark.Altenhofen@dhsoha.state.or.us
     Conferences
                              (971) 673-1189
Patients & Families
                              This commission is administered through the Health Policy and Analytics, Clinical Services Improvement, Darren Coffman, Director,
     Services                 Health Evidence Review Commission.

     Advance Directives
Palliative Care and Quality of Life Interdisciplinary Advisory Council (PCAC)

PCAC HOME                      Reports

     About Us

     Meetings
                               • Community based Palliative Care
                               • Physician Survey on Palliative Care
     News & Information        • LCSW Survey on Palliative Care
     Contact Us

     Reports/ Publications
                                Publications
Healthcare Providers

     Resources

     Continuing Education/
     Conferences

Patients & Families

     Services

     Advance Directives
Palliative Care and Quality of Life Interdisciplinary Advisory Council (PCAC)

PCAC HOME                        Healthcare Provider Resources

     About Us             .       The Palliative Care Quality Network - www.pcqn.org - a national but mostly West Coast based
                                  quality network with strong leadership from UCSF's palliative care program, website has lots of
     Meetings                     helpful resources for providers. Also a membership organization, but some of the resources
                                  are available to anyone. Our program at St. Charles is a member.
     News & Information
                                  Weaving Palliative Care into Primary Care: A Guide for Community Health Centers (see I:drive
                                  file for pdf. The document indicates it is “SECURED” and am not sure we are allowed to link or
     Contact Us                   use it on our website) Sent from CKiel email

     Reports/ Publications        Health Facilities – Program Development
                                  www.nationalconsensusproject.org - National Consensus Project for Quality Palliative Care,
Healthcare Providers              good resource for providers working on program development
                                  www.capc.org - This is a great resource for providers working on program development, and I
     Resources                    think would be helpful to include on our website. CAPC became a membership organization a
                                  little over a year ago, and some of the materials are now only available to CAPC members.
                                  There is a significant fee for hospitals to join. I unfortunately think a hospital might now have to
     Continuing Education/        be a CAPC member in order to access the Joint Commmission Crosswalk of National Quality
     Conferences                  Forum Preferred Practices for Hospital Palliative Care Programs that I mentioned during our
                                  meeting. Our program at St. Charles is a member
Patients & Families
                                  Billing for palliative care services:
     Services                     www.cms.gov/Outreach-and-Education/Medicare-Learning-Network-
                                  MLN/MLNMattersArticles/downloads/MM9271.pdf

     Advance Directives           http://www.nahc.org/NAHCReport/nr151113_1/
Palliative Care and Quality of Life Interdisciplinary Advisory Council (PCAC)

PCAC HOME                        Continuing Education

     About Us

     Meetings

     News & Information

     Contact Us

     Reports/ Publications
                                  Conferences
Healthcare Providers

     Resources

     Continuing Education/
     Conferences

Patients & Families

     Services

     Advance Directives
Palliative Care and Quality of Life Interdisciplinary Advisory Council (PCAC)

PCAC HOME                     Cancer is Not a Solo Experience

     About Us                 If you or a loved one has cancer, there are places in our community to turn to for additional help. No one
                              understands what you're going through better than cancer survivors and the care givers who help patients every
                              day. Consider a support group or other organized support program to answer questions and concerns you might
     Meetings                 have.

     News & Information       There are also the physical effects of cancer and treatment that can be difficult to manage on your own. Use these
                              various resources as one way to help you and your family through the challenges with friends and advocates at your
     Contact Us               side.
                              Local Resources - Support Groups
                              National Resources
     Reports/ Publications    Disease-Specific Resources
                              Caregiver Resources
Healthcare Providers          Hospice & Palliative Resources
                              Other Local Resources
     Resources
                              Adventist Medical Center
                              Knight Cancer Institute
     Continuing Education/
                              Legacy Health
     Conferences
                              Leukemia and Lymphoma Society
                              PeaceHealth Southwest Medical Center
Patients & Families
                              Providence Cancer Center
                              Susan G. Komen of Oregon and SW Washington
     Services
                               Support Groups
     Advance Directives
Palliative Care and Quality of Life Interdisciplinary Advisory Council (PCAC)

PCAC HOME                          Advance Directives:
     About Us             .

     Meetings                      POLST:
     News & Information

     Contact Us                    Guidance and support around treatment decisions and goals of care.

     Reports/ Publications         Resources
                                   A Guide to Palliative or Supportive Care
Healthcare Providers
                                   Advance Directives
     Resources                     10 Tips For Understanding How Palliative Care Can Help People With Cancer

     Continuing Education/         Videos
     Conferences                   Palliative Care: YOU Are a BRIDGE
                                   What is Palliative Care – An Introduction for Patients and their Families
Patients & Families
                                   Palliative Care Helps You Live Well
     Services                      How to Choose a Health Care Proxy & How to Be a Health Care Proxy
                                   National Healthcare Decisions Day Speak Up Video
     Advance Directives
Palliative Care and Quality of Life Interdisciplinary Advisory Council (PCAC)

PCAC HOME                          Council Member Bios

     About Us             .
                                   Margaret Klein, RN, MS, MSN, JD, Chair
                                   Director of Care Management – Oregon Health & Sciences University
                                   Margaret is a nurse, attorney, ethicist, educator, and published author with over 40 years of experience in healthcare, law, ethics and the insurance industry.
     Meetings                      Margaret has held positions in direct patient care, management and administration – serving in healthcare leadership positions for Legacy Health System,
                                   Oregon Health Sciences University, and Providence Health and Services. Currently Margaret is Chief Clinical Officer for Vibra Specialty Hospital, Portland,
                                   OR.
     News & Information
                                   As an ethicist, Margaret has served in a clinical ethics role at the bedside and in an organizational ethics role at the table and in the boardroom. For 11 years,
                                   she served with the United Network for Organ Sharing national Ethics Committee, four years as vice chair and three years as chair; as co-Chair of the Oregon
     Contact Us                    Providence Health System Ethics Committee, Chair of the Ethics Consult Service at Oregon Health Sciences University, as a member of the Legacy Health
                                   System Ethics Service, and currently serves as a Senior Scholar with the OHSU Center for HealthCare Ethics. As an ethics consultant, Margaret has
                                   extensive experience working with patients and families at end-of-life and has worked with hospitals throughout the country in development of organ donation
     Reports/ Publications         programs, speaking extensively on integrating palliative care in the organ donation process. Recently Margaret was recognized for her work by the national
                                   Supportive Care Coalition, in development of new innovations in the area of advancing end-of-life care and advance care planning. Margaret currently serves
                                   as Chair of the POLST Registry Advisory Council, and as a member of the Immunization Policy Advisory Task Force.
Healthcare Providers               As an educator, Professor Klein has taught University-level courses in Personal Ethics in Organizations and Health & Wellness to undergraduate students;
                                   and, Healthcare Ethics, Healthcare Leadership, Ethical Healthcare Management, and Healthcare Administration Law and Ethics to graduate MBA students.
                                   Margaret currently serves as adjunct faculty with Concordia University, and has held similar positions with Marylhurst University since 2007, and DeVry
     Resources                     University since 2012.

                                   In her spare time, Margaret helps at the family-owned restaurant Tebo’s with her husband and co-owner, Craig; has served as the photojournalist and now
     Continuing Education/         team administrator for a medical mission team to Guatemala through Faith in Practice out of Houston Texas; serves on the boards for the local chapter of
                                   Hockey Ministry International and the Portland Winterhawks Booster Club; grows roses, and has three beautiful Shih Tzu pups, Porsche, Lincoln, Tesla and
     Conferences                   their domestic cat, Miss Bentley.

                                   Jennifer Levi, LCSW, Vice-Chair
Patients & Families                Jennifer Levi, LCSW ACHP currently serves in a palliative care position with Providence Health and Services. She is an adjunct instructor at Portland State
                                   University in the graduate school of social work. Jennifer received her masters training in social work at the University of South Florida and her undergraduate
                                   at Eastern Michigan University. Jennifer has previous experience serving a hospice population in Florida before moving to the NW. She recently completed
     Services                      her post masters certificate in palliative care through California State University. Jennifer shares a passion for culturally relevant, early advance care planning
                                   and is active working with the interpreter community. Jennifer strives to increase awareness for individuals that are faced with a serious illness, their families
                                   and healthcare team has a better understanding of each person’s values and outlook on life.
     Advance Directives
You can also read