OSTOMY AUTUMN 2020 NSW LTD - Ostomy NSW
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OSTOMY AUTUMN 2020 NSW LTD
Stoma
Skin
Soul
Feeling comfortable
in your own skin
Jen, Crohn’s Hero
The Full Range of NovaLife TRE Ostomy Barriers
These real people feel comfortable to show their stomas
and are proud to say that their stoma doesn’t define who
they are. It helps to break down perceptions and taboos
of the invisible illness they live with.
Being comfortable in your own skin and advocating the
power of body confidence to inspire others that if you feel
comfortable and confident, the stoma can go unnoticed Flat • Soft Convex • Convex •2 Piece*
and is just another part of who you are.
Prior to use, be sure to read the Instructions for Use for information regarding
Intended Use, Contraindications, Warnings, Precautions, and Instructions.
For more information and to order a sample, please call
Customer Care on 1800 880 851 or visit www.dansac.com.au
*Available in closed and drainable pouches
The Dansac logo, NovaLife, and TRE are trademarks of Dansac A/S.
©2020 Dansac A/S. DAN027. February 2020.
INSIDE
CONTENTS
Responding to the Bushfire Emergency ����������������������������� 4-5 BOARD OF DIRECTORS
Stomal Therapy Services (NSW & ACT) Directory ����������� 6-11 President: Tom Flood
ACSA Professional Achievement Award 02 4333 4727
for Tom Flood ����������������������������������������������������������������������� 12-13
Travel Tales and Tips from Member Christine ������������� 14-16 Vice
Arranging Travel Insurance ����������������������������������������������� 20-21 President: Stephen Grange
What Products are available on the
Stoma Appliance Scheme? ������������������������������������������������ 25-27 Treasurer: Vacant
Donations ������������������������������������������������������������������������������������ 27
Directors: Ian Denney
Regional Information Meetings 2020 ����������������������������� 28-29
Greg Doyle
Parastomal Hernias �������������������������������������������������������������� 31-34
Perry Johnstone
TO CONTRIBUTE ARTICLES/FEEDBACK Adam Keam
Email to the editor (Manager) at info@ostomynsw.org.au Michael Rochford
Helen Richards
Deadlines
Winter Edition...........................................................4th May 2020 Manager: Stephen Lardner
Spring Edition................................................... 10th August 2020
Summer Edition...........................................9th November 2020 YOUR ONL TEAM:
ONL Phone: 02 9542 1300 Operation
ONL FAX: 02 9542 1400 Supervisor: Colleen
WEBSITE: www.ostomynsw.org.au
Warehouse
ORDERS: We are unable to accept phone orders Supervisor: Steve
Email orders to: orders@ostomynsw.org.au
Fax orders to: 02 9542 1400 The team:
Post orders to: PO Box 3068, Kirrawee NSW 2232 Angie, Aye Aye, Belinda, Bev,
Carol-Anne, Cheryl, Frank, Kim,
PICKING UP ORDERS: Counter hours of operation Luke, Matt, Rhys.
We are open four days a week
PLUS OUR DEDICATED
Monday to Thursday 9:00 am to 2:00 pm
(Please place orders 48-72hrs before desired pick-up) VOLUNTEERS
Express Counter - Unit 6, 555 Princes Hwy, Kirrawee
Warehouse Counter - Unit 6, 18 Monro Ave, Kirrawee DISCLAIMER
Advertisements in this newsletter are
published as submitted by advertis-
PAYMENTS ers. The publisher has not checked the
Payments can be paid by bank transfer (EFT) to: veracity of the advertisements and ac-
Account Name: ONL cepts no responsibility for their content.
The publisher specifically disclaims all
BSB: 112879 (St George Bank) responsibility and liability for any mate-
Account Number: 45 664 3389 rial contained in this Newsletter and in
particular any material that may breach
Reference: Your Member Number and Surname confidentiality or privacy or may be con-
sidered defamatory. Such liability shall
POSTAGE RATES be assumed by the relevant author of
Standard NSW $13; Interstate $16 the material. The reader is strongly ad-
vised to first obtain appropriate medical
Express NSW $20; Interstate $30 advice from an STN or GP before trialling
Holiday/double orders NSW $18; Interstate $24 any products advertised in this publica-
tion. No advertisements published in
Holiday/double Express NSW $25; Interstate $35. this Newsletter shall be taken to con-
stitute an endorsement of products
OSTOMY NSW LTD STN CLINIC – Janet Forsyth contained in that advertisement, either
Please phone 02 9542 1300 for appointment Second by the Editor, this association or any gov-
ernment department connected with
Tuesday of each month. Unit 6, 18 Monro Ave Kirrawee the Stoma Appliance Scheme.
AUTUMN 2020 3
NEWS Responding to the Bushfire emergency It will take a long time to forget responses for ostomates affected by the “black summer” of 2019-20. the fires rose to the challenge. In early The devastation brought by an November, the Federal Department unprecedented fire season caused of Health responded to the need havoc from September until February for members to get supplies under when rains, sometimes flooding, difficult circumstances. As Stoma finally doused most of the fire Associations we were authorised to fields. We were saddened by the provide an additional supply to those loss of lives, particularly of those members who were unable to access volunteers who put their lives at risk their already issued November supply to help others. We were shocked because of property destruction by the devastation of the natural or evacuation. At that stage it was environment including wildlife and northern NSW that was affected. By their ecosystems that may never fully January, the Department of Health recover. We know that it will also take extended this arrangement to all areas a long time to make good the damage that were affected by bushfires until to structures, businesses and whole the end of February. communities. At Ostomy NSW, we directly Emergency response systems across supported a small number of members the country were severely tested this who were affected by the bushfires. summer. Fortunately, emergency We assisted members in northern 4 AUTUMN 2020
NEWS
NSW with additional orders and others
in southern NSW with phone orders Hollister Incorporated CEO,
and deliveries to special addresses. We George Maliekel announced in
maintained a small staff presence in the early January, that the company
office over the closed period to ensure has donated $14,000 to St
that we could respond quickly if required. Vincent de Paul Society which
The opportunity for our members to be is on the front line, supporting
covered for their supplies was one less those affected and who will be
concern during a difficult time for them. impacted for some considerable
The horror of the bushfires brought time. The Australian bushfires
out the best in many people in Australia have had a significant impact to
and around the world, with recovery people, communities, properties
organisations overwhelmed by the and wildlife, and the losses
practical and financial support that weigh heavy on the hearts of
was given. Our ostomy suppliers were Liberty Medical and Hollister
also generous in providing financial Incorporated employees around
donations and product assistance to the globe. Liberty Medical is
our members. the global parent company for
Hollister and Dansac ostomy
The Ostomy member associations
supplies. Joe Ozzimo, Managing
in New Zealand offered their kind
Director of Liberty Medical ANZ,
thoughts and support in a letter to ACSA
said he was “humbled, not
President David Munro. It reads:
only by the donation from our
Hello David, We over here in New global parent, but also from the
Zealand are all very much aware many individuals and employee
of the terrible tragedy currently stories around their own
happening in your country. We all personal donations to bushfire
feel very helpless knowing there is not assistance”.
a lot we can do from this distance
and we do know there will obviously Liberty Medical also let
be people in the Ostomy world who Australian ostomy associations
are affected. Please know that we that they would replace any
are thinking of them all. Please be Hollister or Dansac supplies that
patient with family, friends and may have been destroyed or are
colleagues while this terrible tragedy inaccessible due to the fires.
is happening, everyone is hurting as Liberty Medical’s donation went
we watch and listen to reports. Our to the St Vincent de Paul Society
hearts and prayers go out to everyone which is key player in providing
who is affected in any way. much needed support to
Best Regards, bushfire affected Australians.
Jill Newton,
President Ostomy New Zealand
AUTUMN 2020 5
STOMAL THERAPY SERVICES - (NSW &
Any errors or omissions please email Heather Hill at
heathermaryhyde@yahoo.com OR phone: 0422 204 497(M)
SYDNEY METRO AREA MACQUARIE UNIVERSITY HOSPITAL
Colette Craft CNC STN
BANKSTOWN-LIDCOMBE, FAIRFIELD & Colette.craft@muh.org.au
BRAESIDE HOSPITALS Phone: (02) 9812 3484
Fiona Le STN (on maternity leave) Kenneth Salazar CNS STN
Tracey McMorrow (cover for Fiona Le) Kenneth.salazar@muh.org.au
Phone: (02) 9722 8000 (pager) 28380 (02) 9812 3484
Direct number (02) 9722 7196
MATER HOSPITAL
BLACKTOWN & MOUNT DRUITT Johanna Ward STN.
HOSPITALS johannaward24@gmail.com
Lesley Jack CNC STN. Mobile: 0401 532 108
Phone: (02) 9881 8000 Julie Choi STN
Pager 7610 Mon to Fri. Phone: (02) 9900 7381
Email: Julie.choi@svha.org.au
CAMPBELLTOWN PRIVATE HOSPITAL
Lisa Howarth STN NEPEAN PRIVATE HOSPITAL
42 Parkside Crescent, Campbelltown. Nothabo Ndoweni STN
Phone: (02) 4621 9111 Phone: (02) 4732 7333
Phone the Banksia Ward and leave a message.
CONCORD HOSPITAL
NEPEAN PUBLIC HOSPITAL
Ian Whiteley NP.
Naomi Houston CNS STN.
Anne Marie Lyons CNS.
Phone: (02) 4734 1245
Roger Riccardi CNS.
Email: Naomi.Houston@health.nsw. gov.au
Phone: (02) 9767 6761
IF URGENT: phone (02) 4734 2000 and
HORNSBY HOSPITAL request a page.
Michelle Noon CNC Stomal Therapy HAWKESBURY HOSPITAL
and Wounds. Phone: (02) 9477 9184 Shauna Smith STN.
Phone: (02) 4560 5555
HURSTVILLE PRIVATE HOSPITAL
Linda Zhang STN (Mon-Wed) NORTH SHORE PRIVATE
Trish Doherty CNS (Wed-Fri) (on maternity leave) Johanna Ward STN.
(02) 9579 7865 Phone: (02) 8425 3540
KAREENA PRIVATE HOSPITAL NORWEST PRIVATE HOSPITAL
Kelly Taylor RN STN. Mondays and Fridays only. Sharon Mallary STN
86 Kareena Road, Caringbah NSW 2229. Phone: (02) 8882 8882
Phone: (02) 9717 0000 Sharon.Mallary@healthscope.com.au
Kieran Zaballa STN
LIVERPOOL, CAMPBELLTOWN AND Kieran.zaballa@healthscope.com.au
CAMDEN HOSPITALS Phone: (02) 8882 8882 for an appointment.
Phone: (02) 8738 3408
Dianne Hooper CNC. (on Long Service Leave) PRINCE OF WALES
Mobile: 0419 224 662 Carol Stott CNC (pager 44220)
Dianne.hooper@health.nsw.gov.au Lisa Graaf CNC (pager 44403)
Lu Wang CNS 2. Jo Di Blasio CNC Mon & Tues (cover K. Wykes)
Mobile: 0417 026 109 Katherine Wykes (Maternity leave to Feb 2019)
Erin Wagner STN Office direct: (02) 9382 3869
6 AUTUMN 2020
ACT) DIRECTORY as at FEBRUARY 2020
SYDNEY CHILDREN’S HOSPITALS ST VINCENT’S PUBLIC HOSPITAL
Alison Kennedy STN (pager 44253) Mark Murtagh CNC.
Sydney Children’s (02) 9382 1627 Phone: (02) 8382 2671
* For ALL pages ring: (02) 9382 2222 Phone: (02) 8382 1111 (pager 6158)
PRINCE OF WALES PRIVATE HOSPITAL STRATHFIELD PRIVATE HOSPITAL
Mandy Richardson CNC. Maureen O’Shannessy CNC.
Phone: (02) 9650 4470 for an appointment. Phone: (02) 9745 7444
Sharon Mallary Stomal Therapy / Wound
Management CNS. (Maternity leave to Feb 2019) SUTHERLAND HOSPITAL
Phone: (02) 9650 4470 for an appointment. Joan Walsh CNC.
Sharon.Mallary@healthscope.com.au Mon to Thurs, 8am – 4pm
ROYAL NORTH SHORE HOSPITAL Phone: (02) 9540 7111 (pager 473)
Betty Brown CNC (Mon-Tue)
betty.brown1@health.nsw.gov.au SYDNEY ADVENTIST HOSPITAL
Kathryn Bolton CNC (Wed-Fri) Glenda Flew CNS
Phone: (02) 9463 2824 (Pager 41244) Sandra Cryer CNC STN (Relieves when
Fax: (02) 9463 2082. necessary)
Email: Kathryn.Bolton@health.nsw.gov.au Kerrie Whitsome CNC STN 0419 285 113
Phone: (02) 9487 9111
ROYAL WOMEN’S HOSPITAL Email: StomalTherapy@sah.org.au
Jenny Duggan STN
0417944297 WESTMEAD CHILDREN’S HOSPITAL
Charmaine (Chary) Richards
ROYAL PRINCE ALFRED HOSPITAL
CNC Stomal Therapy/Wound Management.
Colleen Mendes CNC/STN
Phone: (02) 9845 2148 or
colleen.mendes@health.nsw.gov.au
Email: Charmaine.Richards@health. nsw.gov.au
Betty Brown CNS (Wed-Fri)
betty.brown1@health.nsw.gov.au
WESTMEAD HOSPITAL
Phone: (02) 9515 7280 (02) 9515 6111 (page)
Fiona (Lee) Gavegan CNC.
RYDE HOSPITAL Phone: 0409 962 111 or
Tanya O’Hara Would/Stomal Therapy CNS. Fiona.Gavegan@health.nsw. gov.au
(on Long Service Leave) Karen Shedden CNC.
Lisa Naylon (cover for Tanya O’Hara) Phone: 0427 127 795 or
Mon and Thurs. Phone: (02) 9858 7987 Karen.Shedden@health.nsw. gov.au
Phone: (02) 8890 5555
ST GEORGE PRIVATE HOSPITAL, (page 22888 or 27904).
KOGARAH
Kerrin Hammon CNS. Call the answering service on (02) 8890 7969
Frances Day STN if unable to contact via pager.
Phone: (02) 9598 5342 (direct)
ST GEORGE PUBLIC HOSPITAL
Daniela Levido CNC ILLWARRA AND
Anne Mamo CNS
Deborah Dutchak CNS SOUTH COAST
Melanie Perez
Phone: (02) 9113 3519 or BATEMANS BAY & MORUYA HOSPITALS
Pager: (02) 9113 1111 page 224 Trena O’Shea CNS STN (Clinical Co-ordinator)
Email: Daniela.Levido@health.nsw.gov.au Phone: (02) 4474 2666
Servicing Monaro, South Coast & Southern
ST VINCENT’S PRIVATE HOSPITAL Tablelands.
Office: (02) 8382 7010 trena.Oshea@health.nsw.gov.au
AUTUMN 2020 7
STOMAL THERAPY SERVICES - (NSW &
WOLLONGONG HOSPTIAL JOHN HUNTER HOSPITAL
Julia Kittscha CNC Jenny O’Donnell CNC.
Phone: (02) 4222 5303 or 0414 421 021 Karen Cole STN
Julia.Kittscha@health.nsw.gov.au Phone: (02) 4921 3000
HNELHD_JHHStomal@hnehealth.nsw.gov.au
WOLLONGONG PRIVATE HOSPITAL
Ward 4 South HUNTER VALLEY PRIVATE HOSPITAL
Helen Richards CNC. Mondays only. Alison Lincoln STN.
Phone: (02) 4286 1000 Fax: 4286 1312 Phone (02) 4944 3777
Alison.lincoln@healthecare.com.au
BEGA COMMUNITY HEALTH CENTRE
Julie Metcalf CNS STN. LAKE MACQUARIE PRIVATE HOSPITAL
8:30am – 4pm Mon-Thurs. vacant
Phone: (02) 6491 9800 Phone: (02) 4947 5362 Mon to Thurs.
Please leave your name & phone number on
the answering machine for a return call. LINGARD PRIVATE HOSPITAL
Email: julie.metcalf@health.nsw.gov.au Alison Lincoln STN.
P O Box 173, Bega NSW 2550 Phone (02) 4969 6799 for an appointment.
Alison.lincoln@healthecare.com.au
NOWRA COMMUNITY HEALTH CENTRE MAITLAND PUBLIC HOSPITAL
5 – 7 Lawrence Ave, Nowra 2541. Stomal Fabia Fiveash CNS STN
Therapy Clinic: Mondays by appointment. Fabia.fiveash@hnehealth.nsw.gov.au
Phone: (02) 4424 6300 Mimi Wilson STN.
Or Fax: (02) 4424 6347 Remedis.wilson@hnehealth.nsw.gov.au
Brenda Christiansen STN (Mon- Friday, Clinic). Please Phone: (02) 4939 2000
Available Mon to Fri.
RAMSAY PRIVATE NOWRA
Liz McLeod MAITLAND PRIVATE HOSPITAL
Phone: (02) 4421 5855 vacant
Phone: (02) 4931 2304
CENTRAL COAST NEWCASTLE PRIVATE HOSPITAL
GOSFORD DISTRICT HOSPITAL Jill Fairhall STN CNC.
Debbie Day CNC. Phone: (02) 4941 8741
Sharon Gibbins WALLSEND COMMUNITY HEALTH
Mary Cuzner vacant
Annika Leyshon, Emma Cutugno (relief) Nash Street, Wallsend.
Phone: (02) 4320 3323 8am to 4pm Mon-Fri. Phone: (02) 4924 6100
GOSFORD PRIVATE HOSPITAL
(Surgical Ward) NORTH COAST
Karen McNamara, STN COFFS HARBOUR COMMUNITY NURSING
Dee Coulton (Reliever) 4324 7111 HEALTH CAMPUS
Mandy Hawkins CNC, STN/Continence.
NEWCASTLE REGION Phone: (02) 6656 7804
Serving the towns of Coffs Harbour, Dorrigo,
CALVARY MATER HOSPITAL
Bellingen, Macksville and Woolgoolga.
Tess Richards CNC.
Jane Fifield STN GRAFTON BASE HOSPITAL
Lara Riley STN Robyn Paterson STN.
Phone: (02) 4014 4815 Phone: (02) 6640 2222
stomaltherapy@calvarymater.org.au Robyn.Paterson@health.nsw.gov.au
8 AUTUMN 2020
ACT) DIRECTORY as at FEBRUARY 2020
GRAFTON COMMUNITY HEALTH TWEED COMMUNITY HEALTH CENTRE
Anne Onions STN. Mon, Tues & Fri. Lisa Clare Stomal/Continence Advisor.
Phone: (02) 6641 8200 Phone: (07) 5506 7828 or (07) 5506 7540
Anne.onions@health.nsw.gov.au Lisa.Clare@health.nsw.gov.au
Covering Tweed Heads Hospital &
LISMORE BASE HOSPITAL Communities from the Tween NSW/QLD
Margaret McKee STN CNC. border to Bangalow.
Belinda Sams CNS for in-hospital.
Phone: (02) 6620 2850
Ed Cooke STN for all out-of-hospital ostomy NEW ENGLAND
patients. TAMWORTH BASE HOSPITAL
Phone: (02) 6621 3252. Robin Skillman CNC
Outpatient service also available on Tues & Fri. Phone: (02) 6767 7733 (office direct) or
Phone: (02) 6767 7700 & page 29604 for
LISMORE COMMUNITY HEALTH
assistance or an appointment.
Jane Kulas STN CNS (Stoma, Wound & Continence).
Serving towns and communities between
29 Molesworth Street, Lismore.
Tenterfield, Boggabilla, Mungindi, Moree, Wee
Phone: (02) 6620 2967 or Fax: (02) 6620 2963
Waa, Quirindi, Armidale, Walcha, Uralla, Guyra,
Bundarra, Tingha, Glen Innes, Emmaville,
MACLEAN DISTRICT HOSPITAL
Ashford, Warialda, Inverell, Bingara, Barraba,
AND COMMUNITY HEALTH
Boggabri, Manilla, Gunnedah, Tamworth,
Please contact Grafton or Lismore
Werris Creek, Nundle.
MANNING HOSPITAL (TAREE)
Karla MacTaggart STN. NARRABRI COMMUNITY HEALTH
Naomi Case STN Lavinia (Alvin) Hill
Phone: (02) 6592 9469 (02) 67992800
Available: Tues, Wed and Thurs. Serving towns
& communities between Wingham, Forster,
Tuncurry, Taree, Harrington, Gloucester and
WESTERN NSW
Bulahdelah. BATHURST HEALTH SERVICE
Louise Linke NP.
PORT MACQUARIE BASE HOSPITAL Phone: (02) 6330 5676 | Fax: (02) 6330 5742
Jeanie McCarroll STN. Mon & Wed louise.linke@health.nsw.gov.au
Mobile: 0427795765 Phone: (02) 5524 2439 Howick Street Bathurst
or (02) 5524 2000 pager 1140. Serving Bathurst, Orange, Parkes, Forbes,
Office in Surgical Ward 2C. Cowra, Lithgow, Condobolin and surrounds.
Jeanie.McCarroll@health.nsw.gov.au
BROKEN HILL BASE HOSPITAL
PORT MACQUARIE AND KEMPSEY Shirley Victory (Resource person only)
COMMUNITY HEALTH CENTRES Phone: (08) 8080 1642
Maria Emerton-Bell STN CNC.
Phone: (02) 6561 2790 DUBBO BASE HOSPITAL
Casey Luke STN RN Phone: (02) 6588 2731 Jill Archer STN
Serving towns and communities between Thulisile Moyo STN
Laurieton, Port Macquarie, Kempsey, Phone: (02) 6809 6926
Wauchope, South West Rocks and Stuarts Point. Phone: (02) 6841 5555 or 0427 150 649
PORT MACQUARIE PRIVATE HOSPITAL Serving Dubbo, Cobar, Coonamble, Narromine,
Phone: (02) 6582 9660 Nyngan, Trangie, Warren, Wellington,
Baradine, Gulargambone, Coolah, Gilgandra,
ST VINCENT’S HOSPITAL (LISMORE) Coonabarabran, Dunedoo, Gulgong, Mudgee,
Debbie Flick STN. Bourke, Brewarrina, Collarenebri, Goodooga,
Phone: (02) 6627 9448 or (02) 6627 9449 Lightning Ridge & Walgett.
AUTUMN 2020 9
STOMAL THERAPY SERVICES -
(NSW & ACT) DIRECTORY
as at FEBRUARY 2020
GRIFFITH BASE HOSPITAL CANBERRA HOSPITAL
vacant Kellie Burke CNC.
Phone: (02) 6969 5555 Ext 695 Phone: (02) 6244 2222 then page Stomal
Therapist
GRIFFITH COMMUNITY HEALTH
Raye Martin STN
Phone: (02) 6966 9903 COOMA HEALTH SERVICE
raye.martin@gsahs.health.nsw.gov.au Vicki Black STN
Phone: (02) 6455 3222
ORANGE HEALTH SERVICES
Joe Webster STN.
Phone: (02) 6369 7455 COOTAMUNDRA HOSPITAL
Joseph.Webster@health.nsw.gov.au Raylene Godvier
Phone: (02) 6942 1861 or 0419 123 508
ORANGE AND REGIONAL NURSING SERVICE
Phone: (02) 6362 6184 QUEANBEYAN COMMUNITY
WAGGA WAGGA RURAL REFFERAL HEALTH CENTRE
HOSPITAL Jo Morgan STN
Naomi Smith Phone: 6150 7144 or 6150 7670
Phone: (02) 5943 2444 or 0412 324 136 Visits patients in Queanbeyan & Yarralumla areas.
YOUNG MERCY CENTRE
Contact Community Nurses
Phone: (02) 6382 8444 ALBURY/WODONGA
Serving Young, Harden, Cootamundra,
Boorowa, Grenfell and district. ALBURY WONDONGA HEALTH SERVICE
Rosaline Watson STN.
CANBERRA AND DISTRICT Both Albury (NSW) & Wodonga (VIC) Hospitals.
Located Albury Hospital, Borella Rd, Albury. 2640
ACT COMMUNITY HEALTH CARE Phone: (02) 6058 4444
Clare Love CNC. (hospital switch) Pager 416.
Phone: (02) 6205 2147 Rosaline.Watson@awh.org.au
BELCONNEN HEALTH
Cheryl Jannaray CNC. ALBURY WODONGA PRIVATE HOSPITAL
Phone: (02) 6205 1201 (AWPH/ASG)
1125 Pemberton St., Albury 2640
CALVARY HOSPITAL (CANBERRA) Gerardine O’Brien STN.
Marree Pegrem STN. Phone: (02) 6022 4350 or (02) 6021 7111
Phone: (02) 6201 6045 gerardine@alburysurgical.com.au
Any errors or omissions please email Heather Hill at
heathermaryhyde@yahoo.com OR phone: 0422 204 497(M)
10 AUTUMN 2020NSW OSTOMY
STOMA LTD. CLINIC NSW LIMITED CLINIC
Anne Marie Lyons STN Janet Forsyth STN
Phone: 1300 OSTOMY Phone: (02) 9542 1300
or (02) 9565 4315
info@nswstoma.com.au A free Clinic is held on the
second Tuesday of each month
The NSW Stoma Clinic (members
commencing at 10:00am. Please
free) is open from 11am to 1pm at
half-hour intervals on the second ring ONL to make an appointment.
and fourth Thursday of each month The rear entrance is Unit 6/18
in the private room at our office in Monro Avenue Kirrawee (between
Unit 5, 7-29 Bridge Rd Stanmore. Oak and Bath Roads). This entrance
Our lift has wheelchair access. has no steps so is suitable for
Members with an ostomy problem
people with disabilities.
may phone to organise a free
consultation.
CASH SALES ITEMS AVAILABLE
OTHER PRODUCTS
K-Y Gel $7.50
L-Gel $8.50
Rediwipe Silk
(Box 100 wipes) $10.00
Scissors Curved $12.50
TAPES 1/2” 1” 2” Scissors Straight $12.50
White Micropore Tape $2.00 $3.50 $5.00
Syringes $4.00
Tan Micropore Tape $3.50
Red Leukoplast Tape $6.50 $11.00
ODOUR CONTROL
Blue Leukoplast Tape $11.50
Daintree Spray
Leukopore Tape $3.50 $6.00 500ml $8.50
Likeskin Tape $2.20 $4.00
Host-to-Gel $47.00
Leukoflex Tape $7.00
Hostoma
1 Litre Pack $25.00
Hostoma
120ml Spray $8.00
Hostoma odour
be gone 500ml $18.00
AUTUMN 2020 11NEWS
ACSA Professional Achievement Award
for Tom Flood
The Australian Council of Stoma
Associations (ACSA) awarded
three deserving recipients the
Professional Achievement Award
for their outstanding efforts in
supporting ostomates. One of
the recipients was Tom Flood
member of Ostomy NSW Limited.
You may know Tom as President
of ONL, but you may not know
his personal story of courage and
commitment to assist those with a
stoma or bladder irregularity.
Tom Flood
TOM’S STORY ...
Tom was born in 1930 with bladder special consideration and joined in
exstrophy, which is a rare birth everything. Nothing stopped Tom and
defect in which the bladder develops he would be involved in everything,
outside the baby’s body. The exposed including school, camping trips,
bladder can’t store urine or function walking, playing tennis and swimming
normally, resulting in urine leakage in the surf.
(incontinence). In those days, babies At school Tom says he was not
such as Tom were not expected to allowed to drink too much fluid which
survive, and treatment options were was hard in the summer heat. Each
not readily available. day he would have to go home to
With wonderful support from have the “dressings” of cotton wool
his mother Tom was brought up and towels changed when he was
as “normal”. At the age of five wet. Tom recalls this as being very
he attended the local school and uncomfortable and smelly, he says
Sunday school; he was given no smelling all the time was the hardest.
12 AUTUMN 2020NEWS He learnt to handle difficult situations awoke to the sight of a bag full of and although he wished he didn’t have urine right beside my bed. Had I not such problems, Tom decided he was been tethered to that bed with an going to get on with life. assortment of drips, tubes etc. I would Tom left school after completing have jumped for joy and shouted, ‘It’s his Intermediate Certificate and for in the bag!’ I felt so liberated and just a short time worked at Anthony could not wait to try this new life out!” Horden’s before getting a job at One of Tom’s mottos that he lives by is Lysaght Bros where he worked for 24 “Don’t let problems mar being a useful years. Tom rode his bike to work in all person”. Tom became even more weathers. involved with the IA in NSW: manning When he was 19 or 20 Tom became the counter, working on the Newsletter, a Sunday School Superintendent and organising and attending the United through this he met Kate, a Sunday Ostomy Associations, NSW country school teacher. Romance blossomed meetings and championing stoma and they married in 1966 despite support groups. Tom served on the opposition from Tom’s family because ONL Board of Directors as Secretary, they did not think Kate would be able Vice-president and then President - a “handle the situation”. Kate proved position he still holds today. Tom says them wrong and joined Tom in cycling, that he loves being one of a team walking and swimming in the surf, bringing peace of mind to others besides helping him in his endeavours through support, reassurance and to provide people with a better life. provision of information. The turning point for Tom came In recognition of his one evening in the 1970s. Until then service to community all Tom’s schooling, social events, and work life were undertaken health through leadership wearing a towel, safety pins and and advocacy for people cottonwool inside a thick pair of living with stomas Tom pants. Throughout the day Tom would have to keep changing these. Then was awarded the ‘Order he heard a radio interview of Betty of Australia Medal’ (OAM) Hughes and Hugh Rolfe from the NSW in the Queen’s Birthday Ileostomy Association (as ONL was called then) and Tom was introduced Honours of 2014. to the ostomy scene! After becoming As you can see from his story, Tom involved with the association and has made an exceptional contribution talking with many people Tom decided over many years, and deeply deserves in December 1985 at the age of 55 his most recent award from ACSA. to have an ileal conduit. Tom says ONL congratulates Tom and thanks “the morning after the operation I him for his years of service. AUTUMN 2020 13
NEWS Travel tales and tips from member Christine Being diagnosed with Stage 4 Rectal ones and this is, in a small part, due to Cancer in November 2016, one month remaining “the eternal optimist”. prior to my 66th birthday was not Since having my stoma operation what I had planned for my retirement in 2017 I keep myself busy attending - laying in the not-too-distant future. monthly meetings and outings with Nor was the next 31 months where I Probus, Bookclub and my Stoma had radiation treatment, 10 surgeries/ Support Group. I go to plays/musicals procedures, vacuum pumps fitted using my theatre membership, after two of the surgeries and 4 catch up with friends for movies months of daily community nurse and meals and volunteer at Ostomy home visits followed by 3 months of NSW (a wonderful group of staff and clinic appointments to heal an open volunteers to work with). I live with and wound. am the full-time carer for my 90-year- My surgeries included the initial old mother, with help from DVA, and operation to remove the cancer and this Monday coming I am booked in for site the original stoma (not reversible), my very first Bridge lesson! plastic surgery for a wound that On the upside I have also managed to refused to heal, two parastomal hernia fit in one month in Penang (Malaysia), operations (a year apart) and two a cruise for 28 days from Durban to bowel perforations that necessitated Venice and a cruise for 30 days from two new sites for my stoma. Sounds Copenhagen to New Orleans. All of bleak – yes, some months definitely these holidays included long distance were. I don’t know how I would plane travel and hotel stays. have fared without the unbelievable support from my family, my friends, my doctors, staff at Kareena Hospital and Southcare, and of course my Stoma Therapy Nurse (STN), Kelly. One particular friend would drive down each week from the Central Coast with a carload of pre-cooked meals and stay with my mother during my admissions to hospital and while I was recovering – she is an absolute gem! I consider myself one of the very lucky 14 AUTUMN 2020
NEWS
I would like to pass on a few of my has changed since purchasing
personal tips that, in the past, have the insurance policy obtain a
given me a trouble-free overseas revised letter from the doctor.
holiday. You may also find some of 4. Ask your STN for contacts
these tips useful. in the countries you are
visiting just in case you need
1. Check out these good on- assistance.
line documents of “Travelling
Overseas” and “Travelling with
5. Pack additional supplies.
I take an additional 25% of the
a stoma” for specific travel
bags I would normally use –
tips which you can find at the
just in case.
addresses below.
http://www.australianstoma.
6. Keep 75% of your stoma
supplies with you in your
com.au/index.php/general/
hand luggage when travelling
travelling-overseas
on planes or boarding ships.
https://www.stomaltherapy. The remaining 25% (the
com/documents/PEP_travelling_ additional supplies) can be
with_a_stoma_2017.pdf packed away in your checked-
2. Obtain a letter from your in luggage.
doctor stating that you are 7. When travelling by plane
an Ostomate and therefore pre-cut some of your bags to
required to carry stoma take as hand luggage so you can
supplies. This letter must also pack scissors (and liquids such
state that you are “fit to travel” as adhesive remover spray) in
and list any medications and checked-in luggage only.
medical issues e.g. stoma, 8. Take drainable bags only.
parastomal hernia etc. Keep It is often easier to “empty”
a copy of this letter with your than “change” when using
passport, one in your luggage public facilities overseas.
and leave the original at home. Although, Asian/squat toilets
can be very tricky!
3. Purchase travel insurance
before paying the balance of 9. Use Elastic Tape to ensure
your holiday – state all medical additional protection/adhesion.
issues and medications. When 10. Write the Lot Number on
full payment is required well in each bag. I have been caught
advance it may be necessary with bags that did not stick and
to re-contact the insurance ones where the plastic backing
provider if your health could not be removed. This
circumstances have changed makes it easier to identify the
to update policy. If anything faulty bags.
AUTUMN 2020 15NEWS
11. Put together resealable 13. Tell your travel companion
plastic bags with supplies before travelling that if you
to enable 3 complete changes are missing on a bathroom
e.g. stoma bags, antiseptic visit for more than what they
wipes, seals, elastic tape, consider a reasonable time you
adhesive remover wipes (travel may need some assistance.
pack size), silk wipes (or similar Unfortunately, I had a major
cloths) and plastic bags for bag leak at the Albion Park
disposal of used supplies. Races. Thankfully, I had a friend
I just grab a “full” pack each day who came to check on me
to carry with me in my handbag and give me the assistance
or backpack when on day I required. I travelled home
tours. on the train to Sydney minus
my knickers and socks – I can
I also carry a roll of adhesive
laugh now!
tape (separate to the packs)
to stick the disposable bag to 14. Remember that other
the toilet wall if there are no countries may not have the
adequate disabled facilities – same level of hygiene in public
a tip from Kelly my wonderful facilities that we do in Australia
STN. so regular hand washing
As the holiday proceeds I can and using antiseptic wipes is
amalgamate the packs as I use imperative to stay healthy.
the supplies – I don’t make a
pack for each day. I hope my personal tips are of
benefit to other Ostomates travelling
12. If possible, pack each
overseas.
resealable bag with
3 stoma bags with different
Lot Numbers - just in case Bon Voyage,
one Lot is faulty. Christine J
PS: My Central Coast friend and I
have decided that 2020 is the year to
support Australia after the bushfires
so we are planning a road trip to visit
the “Painted Silos” and a number of
country towns in NSW and Victoria.
March 2021 is a 15-day
Princess cruise to New Guinea.
16 AUTUMN 2020Win a $1,000 holiday voucher And Travel with Confidence Pack We are giving YOU the opportunity to win a $1,000 holiday voucher you can use towards your holiday. Having an ostomy should not prevent you from pursuing and enjoying travelling. Opening your horizons to experience completely different cultures, landscapes and experiences is one of the greatest joys of travelling. Our Coloplast Care team are dedicated to empowering you to be confident in travelling and not letting your ostomy hold you back. Coloplast is proud to partner with Crohn’s & Colitis Australia to give YOU the opportunity to win the ultimate Travel with Confidence Prize. Travel with Confidence Pack includes • Kindle ($139 value) • Brava® Protective Seals • Travel Guide • Brava® Adhesive Remover • Poo Pourri • Brava® Skin Barrier Wipes • Disposable Bags • Brava® Elastic Tape • Brava® Skin Cleanser Wipes • Brava® Lubricating Deodorant Packed into a stylish custom designed Venture Case for your convenience. To enter, visit our website www.coloplast.com.au/travelwithconfidence and complete the online form during the promotion period. Crohn’s & Colitis Australia (CCA) are the peak national body representing more than 85,000 Australians living with Crohn’s disease and ulcerative colitis. CCA is dedicated to creating a future where no-one lives with or suffers from inflammatory bowel diseases, Crohn’s disease and ulcerative colitis for which there is currently no cure. Visit www.crohnsandcolitis.com.au to learn more about how CCA support the Crohn’s and colitis community. Entries open 01/11/19 at 12:00am AEST and close 31/07/20 at 11:59pm AEST. Open to all Australian residents aged 18+ only. Limit 1 entry per person. Total prize pool valued at $1,450.00. Full terms and conditions are available at www.coloplast.com.au/termsandconditions Coloplast Pty Ltd, PO Box 240, Mount Waverley, VIC 3149 Australia www.coloplast.com.au The Coloplast logo is a registered trademark of Coloplast A/S. ©2019-10 OST644. All rights reserved Coloplast A/S
BRING IT O N...
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I spend a lot of my spare
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I’ve had an ileostomy since
1978 due to ulcerative colitis.
After 40 years on a different
brand I’m changing to
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www.omnigon.com.auNEWS
Arranging Travel Insurance
by Stephen Grange, ONL Board Member February 2020
I write this article from personal Each insurance company has its own
experience as a Urostomate since 2006, restrictions to do with pre-existing
dedicated to achieving my travel Bucket conditions. Some may simply exclude the
List. I also worked professionally in general condition from cover while others may
insurance both in Australia and overseas. cover the condition after assessment and
I do not travel outside of Australia without payment of an extra premium. If you have
travel health insurance. multiple conditions they may just cover
I have no idea of your circumstance, so some of them.
I am not giving personal advice (you will The exclusion applies unless you request
need to seek your own advice) but hope and are expressly granted cover in writing
my experience will be general assistance to for your pre-existing condition/s.
fellow ostomates.
What if I don’t get insurance for
Why you should get travel insurance my condition?
If you become seriously ill or have an If you have not declared a pre-existing
accident while overseas you will be in condition, or you declare it but cover for
a very difficult and expensive situation the condition is declined, you will have no
if you do not have insurance. You cover for a claim that is related (directly or
will face treatment bills, costs of extra indirectly) to that pre-existing condition, even
accommodation and the cost of new in the case of an accident. For example, if
airfares and reservations etc. you have not declared your stoma and a
In some countries hospital treatment seat belt damages your stoma during a car
may be refused if you don’t pay up-front accident you will not be covered for the costs
or hand over your insurance details – even of treatment of the stoma.
if this means you may die. You may be You would still have medical insurance for
blocked from exiting the country until conditions unrelated to your pre-existing
you have paid your bills. The Australian condition (eg if you break your leg in that
Government will not pay them for you. car accident).
It’s just not worth the risk of travelling
without insurance. How your insurer finds out about
your undeclared conditions
What is a “Pre -existing medical Your insurer learns of your condition when
condition” and do I have one? the foreign hospital contacts your insurer,
In travel insurance, a pre-existing medical or you contact your insurer. Your insurer
condition is a diagnosed medical condition will ask the foreign hospital or doctor for
that you have had or for which you have information and also asks your Australian
received any sort of medical advice, doctors. It will be obvious from those
treatment or medication before you reports that you have an ongoing medical
bought the policy. condition. So your disclosures when taking
As ostomates, we all have at least one out the policy must align to your medical
pre-existing condition. history - otherwise you are not covered.
20 AUTUMN 2020NEWS
What about my relatives? inform if asked.
They are also affected by your excluded Once assessed, you will receive a letter
pre-existing medical conditions. If they explaining what medical conditions are still
have to change their travel arrangements pre-existing and therefore excluded, and
to be with you while you are being treated which conditions are deemed not pre-
their own policy will not cover their existing - being those for which you are
additional costs unless your condition has covered.
also been declared and expressly covered. Be absolutely sure to understand the
It is advisable to take out your policies insurer‘s letter and the Product Disclosure
together, with the same insurer. Statement. If unsure, call them yourself to
clarify.
Shopping for cover I’ve been refused cover – what do I do?
Your approach to buying cover should
If you have been assessed and you receive
be honest and well-planned. You will
an exclusion for one or more of your pre-
probably not get cover for pre-existing
existing conditions you need to consider
conditions unless you have had at least
whether you are prepared to take the risk
twelve months without a health problem.
of travelling with an excluded condition.
Consider your doctor‘s advice on whether
you should travel. To travel without insurance is incredibly
risky as it could cost you $250,000 for
Some insurers have an on-line process
treatment; and you may be denied life-
of assessment, some do it over the
saving treatment if you cannot pay.
phone. Some will require submission of
supporting documents. A few countries have Reciprocal Health
Care Agreements with Australia — for
It may be helpful to obtain a letter
details go to www.medicareaustralia.gov.au
from your doctor explaining your pre-
and search for travelling overseas. While
existing conditions, on-going care and
this may assist with your direct public
how successfully you self-manage without
system medical treatment it would not
adverse medical outcomes. You can use
cover medical evacuation or costs of extra
this to help you to declare everything
accommodation, flights etc.
and you may need to submit it during
the assessment process. A very positive
letter can be a key component to gaining Other health tips
insurance cover. Whilst overseas, it’s best not to cancel
or suspend your Australian private
The sort of questions you will be asked
health insurance. You may have to come
include what is the condition, what
home earlier than expected and within a
treatment and specialist assessments have
suspension period.
you had and when, what medications are
I personally don‘t travel to countries
you taking, has there been any subsequent
with poor hygiene or medical facilities,
spread of the condition, etc.
countries where a stoma is a rarity,
It is best to do the assessment process or where food poisoning (diarrhoea)
yourself but if you wish to use a travel often occurs. Other ostomates may be
agent make sure they have your doctor’s prepared to take these risks.
letter with full list of conditions.
Once one insurer rejects your application Finally, relax and have fun!
others may well follow and you must See ONL web site for full detailed article.
AUTUMN 2020 21Advertising Feature Tania’s Journey – Regaining Her Life My name is Tania and I am a 53 year old wife, mother, daughter and sister. I have four children, all grown up, and two grandchildren. Family is the most important thing to me in the world. We are all very close and love spending time together, having meals together and holidays together. First Diagnosis Just over two years ago. I became very sick. I was in so much pain, my bowels felt like they were going to explode, I found it extremely difficult to eat and couldn’t do anything. I had an operation called a rectopexy, where the surgeon implants mesh on both sides of the rectum and secures it to the sacrum to hold the rectum up and stop it from blocking the exit. I had several other operations to try and help but nothing worked. The problem was that the mechanics of my colon had failed. Since then I have been diagnosed with intestinal failure and gastroparesis. Gastroparesis is a delayed emptying of the stomach. So not only was it hard for everything to come out, it was also hard for it to get in! Ileostomy Surgery The first decision to make was to have the ileostomy. The surgery went well except I developed a parastomal hernia the day the stoma was created. Here is probably a good place to mention that I have a condition called Ehlers-Danlos Syndrome, which affects the integrity of the connective tissue in my body. This is the reason for my prolapses and paralysis in my digestive system. It is also the reason for the hernia as my connective tissue is weak and difficult to stitch together. I have mesh all through my body because of hernias and prolapses. When I first had the ileostomy formed the hospital used their regular Ostomy products on me and within days I was covered in a rash. It was awful. Within two weeks of getting my stoma the hernia had strangled and I had to have urgent surgery at Auckland Hospital. It was after that operation that I woke up with a two piece Hollister system on. That was over a year ago and I’ve never looked back!! Living with an Ileostomy My skin loves Hollister products, especially the CeraPlusTM barrier. I love the two piece system. It is so easy to fit and put on. I’ve had a few hiccups with my stoma because of the Elhers-Danlos which has meant several surgeries to put it back into place but we have finally got there.
Advertising Feature
I am no longer in excruciating pain from the constipation and the prolapses and with the
ease of using the Hollister products I will be sticking with a permanent ileostomy. It’s
amazing how much easier it has made life for me. I’m sleeping really well for the first
time in as long as I can remember and the confidence I have in the Hollister products
contribute to that.
Ostomy Pouches I Use
The great thing about Hollister is that if one product doesn’t suit your needs there is
always something else that will. I have been using the CeraPlusTM flat flange and midi bag
since I got my ileostomy, along with the CeraPlusTM ring and the AdaptTM powder. But
recently I have had to change over to a convex flange as my stoma has decided to play
hide and seek. This is where the bowel is really active and moves around a lot and the
stoma goes with it. So mine will point in all directions and sometimes will almost flatten
out. But with the convex flange, it encourages my stoma to stay put and to always be
protruding. It was such an easy fix.
“My skin loves Hollister
products, especially the
CeraPlus barrier.”
TM
Getting a stoma for whatever reason
can be a very scary and traumatic
time, especially depending on your
circumstances. But it doesn’t have to be
extremely difficult. We have tremendous
people in our community to help us get
through the stages of growing used to
the changes in our bodies. Hollister are
definitely one of them. I am so thankful to
medical science, my surgeon, family and
Hollister for supporting me all the way.
Prior to use, be sure to read the Instructions for Use for
information regarding Intended Use, Contraindications,
Warnings, Precautions, and Instructions.
The Hollister Logo. CeraPlus and “Healthy skin. Positive
outcomes.” are trademarks of Hollister Incorporated.
© 2020 Hollister Incorporated. AUH235. February 2020. *Remois is a technology of Alcare Co., Ltd.Stoma
Skin
Soul
Feeling comfortable
in your own skin
Nils, Crohn’s Rebel
Dansac TRE seal is more than just a seal
With three levels of protection, the Dansac TRE seal has been
designed to help keep healthy skin naturally healthy.
• Formulated to provide a secure, flexible seal to protect the skin from
stoma fluid, while maintaining the pH balance of naturally healthy skin
• Designed to help make everyday life comfortable and deliver the
confidence and reassurance you deserve
• Available in 3 sizes to cover a range of stomas
Really, it’s just about feeling comfortable in your own skin!
Prior to use, be sure to read the Instructions for Use for information regarding
Intended Use, Contraindications, Warnings, Precautions, and Instructions.
For more information and to order a sample, please call
Customer Care on 1800 880 851 or visit www.dansac.com.au
24 AUTUMN 2020
The Dansac logo, NovaLife, and TRE are trademarks of Dansac A/S.
©2020 Dansac A/S. DAN033. February 2020.NEWS
WHAT PRODUCTS ARE AVAILABLE
ON THE STOMA APPLIANCE SCHEME?
This is a question that is raised in remover sprays and two remover
our various member events and was wipes, but not together in one
a highlight of our Member Survey month. You may only receive 100%
feedback in 2019. Many members of the allowance for like products.
request a full list of the products In most instances, a base plate is
available. While there is a full a base plate; a bag is a bag and
schedule of products available from seals are seals. Even though they
the Department of Health website, may serve different purposes
we don’t recommend using it for a (convex, flat, closed or drainable)
number of reasons. the monthly allowance is still only
https://www1.health.gov.au/ 100% of any combination.
internet/main/publishing.nsf/Content/ 3. The same is true of Support
health-stoma-schedule-index.htm Garments – the annual allowance
The list of products from the November is 6 briefs/boxers or 3 support
2019 schedule was just over 3,700 items. belts, or a combination of both
While the list may be of some use to you, up to 100% of the allowance (for
please note we recommend it is used example 2 belts and 2 briefs is the
with caution, due to: maximum annual allowance).
1. Long list – it contains 3718 different 4. All allowances are in units. If
items, and although there are the allowance is 30 and one box is
Groups, sub-Groups of like items 30, that is the maximum monthly
and descriptions, how to make an allowance. If a box contains 10, you
informed decision for you cannot be may be able to select a multiple
made without clinical consultation. of items, as long as the total
allowance is still 100% or less.
2. How to read allowances (by
group and sub-group). Although 5. We will not split cartons to allow for
each item has a monthly or annual combinations of items.
allowance, products within Groups 6. Restrictions – some items have
and across sub-groups cancel restrictions attached to them.
each other out. The Department These are designated by the letter
of Health refers to this “for which “R” and a number (R1, R2, etc.). The
the products serve the same explanation for these is given on
purpose”. For instance, there are the top of page 1.
listed monthly allowances of two continued Page 27
AUTUMN 2020 25Did you know?
Didyou
Did youknow?
know?
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10 people k
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Australian Stoma Appliance Scheme Entitlement
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Support
Support Pants Support Belts
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1800 819 274
AU 1800 274 info@omnigon.com.au
AU 1800819
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info@omnigon.com.au
www.omnigon.com.au
www.omnigon.com.au
Call 1800 819 274 for yo
www.omnigon.com.auNEWS
continued from Page 25 orders@ostomynsw.org.au to request
7. Two-piece appliances – not all a consultation. Our Stoma Nurse is
bags and base plates fit each other, currently available on the second
there are combinations for the Tuesday of each month, and we can
attachment of each item within also call her at other times as needed.
brands and within types of products. The Group 9 SAS Schedule
Our advice is quite simple – for best classification broadly covers
results, consult with your Stomal accessories used by patients with a
Therapy Nurse or clinical professional. stoma. Specifically, this classification
The staff and volunteers at Ostomy includes; adhesive barriers, belts,
NSW are not trained professionals clamps and clips, cleansers and
and cannot offer advice. If you need solvents, convexity inserts, creams and
advice, contact our Stoma Nurse ointments, deodorants, support belts
service (Janet Forsyth) by calling our and garments, night drainage, powders
office on (02) 9542 1300 or email to and pastes, protective films, and seals.
MAKE DONATIONS WITH
1. Scan this barcode at the
machine
3. Begin returning your
cans/plastics or glass
bottles.
4. Select
PAYOUT
2. The screen will acknowledge
“Welcome Stephen”.
Stephen is the Manager
at Ostomy NSW Limited.
AUTUMN 2020 272020 REGIONAL
Time: 2:00-3:30pm – Afternoon Tea
Address: 63 Derby Street, Penrith
(University of Sydney Medical
School)
Access: The building is opposite
Nepean Hospital’s Emergency
Department. Enter via the side
Bankstown area path to the Clinical School’s
Dates: Wednesdays
Outpatient waiting room.
6th May, 5th August,
Please wait until 2:00pm when
4th November
you will be directed
Time: 10:00-12:00 – Morning Tea
to the meeting room.
Address: Revesby Workers Club
2B Brett Street, Parking: Either on the street or in
Revesby NSW 2212 the multi-storey car park on
Ph 02 9772 2100 Somerset Street, Kingswood
Access: Close to public transport and (free for pensioners for the first
lots of free parking 3 hours)
About: A stoma support group About: Family and friends are most
hosted by Bankstown Hospital welcome. Any enquiries please
STNs for you and your family - contact Naomi Houston on
everyone welcome. 4734 1245
RSVP: Please RSVP for catering
purposes to your Bankstown Shoalhaven
Hospital STN or Clare Jacobs
on 0400 921 901 or Support Group
aucldo@coloplast.com Dates: Wednesday 29th April
for further information. Nowra Community
Health Centre
St George area Wednesday 24 June
Dates: Tuesdays Ulladulla Civic Centre
17 March, 21 April, 19 May
Wednesday 26 August
(3rd Tuesday of every month)
Nowra Community
Time: 10:00-12:00 – Morning Tea
Health Centre
Address: Ramsgate RSL Club
Ramsgate Road and Wednesday 25 November
Chuter Avenue, Nowra Community
Sans Souci NSW 2219 Health Centre,
Access: Close to public transport and (Christmas meeting)
free parking Wednesday 9 December
About: Everyone welcome – please Ulladulla Civic Centre,
RSVP for catering purposes to (Christmas meeting)
your STN or Clare Jacobs on
0400 921 901. Time: 2:00pm
Address: Nowra Community
Nepean Education Health Centre,
Stoma Support Group 5 - 7 Lawrence Avenue Nowra
Dates: Fridays 1st May, 17th July, About: The STN is Brenda Christiansen
25th September and Ph. 02 44246300
27th November brenda.christiansen@health.nsw.gov.au
28 AUTUMN 2020INFORMATION MEETINGS
SOUTH WEST SYDNEY Address: Education Room,
Figtree Private Hospital,
STOMA support group 1 Suttor Place, Figtree
Dates: Thursdays 23rd April, 18th Contact: Helen Richards CNC STN
June, 20th August, 8th Wollongong Private Hospital
October, 17th December Ph: 42861109
Time: 1:00pm to 3:00pm Julia Kittscha CNC STN
Address: Camden Hospital, Wollongong Hospital
Heritage Auditorium Ph: 0414421021
61 Menangle Road, Camden office: 42551594
Contact: Erin or Lu on (02) 8738 4308
Goulburn Community Liverpool area
Stoma Service support group - NEW!!
Dates: Wednesdays 20th May, Dates: Thursdays 26th September,
19th August, 18th November 28th November
Time: 9:00am to 3:00pm Time: 1:00pm to 3:00pm
Address: Goulburn Workers Club, Address: Cabra Vale Diggers Club,
1 McKell Place, Goulburn, 1 Bartley Street,
(02) 4821 3355 Canley Vale 2166
About: The STN is Kelly Taylor RN STN Contact: Erin or Lu on (02) 8738 4308
m. 0402 250 475
kelly@communitystomaservice.com
Kelly will provide individual Bowral Stoma
consultations by appointment. Support Group
Dates: Fridays 13th March,
Canberra ACT 26th June, 18th September,
Support Group 11th December
Dates: Tuesdays 10th March, Time: 1:00pm to 2:30pm
14th April, 12th May Address: Bowral Bowling Club,
Time: 10:00am to 12:00pm 40 Shepherd St, Bowral.
Address: Hellenic Club – Woden, Contact: Lu Wang & Erin Wagner
Matilda St Phillip, ACT, Stomal Therapists, Liverpool
(02)6281 0899 Hospital—
Contact: Your Stomal Therapy Nurse or (02) 87384308 or
Clare Jacobs on 0400 921 901 Clare Jacobs 0400 921 901
or aucldo@coloplast.com for aucldo@coloplast.com.
further Information. Everyone Everyone is welcome!!
is welcome ... Please RSVP for Please RSVP 1 week prior.
catering purposes.
Illawarra Ostomy BEAT Bladder Cancer
Dates: Last Tuesday of every month
Information Group Time: 7pm to 8:30pm
Dates: Wednesdays 15th April, Address: Macquarie University Hospital
10th June, 12th August, 3 Technology Place, Macquarie
14th October, 16th December University.
(Xmas luncheon. Venue to be Contact: Adam Lynch, President
advised) BEAT Bladder Cancer
Time: 10:00am to 12:00pm 0421 626 016
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Parastomal Hernias
and in our journal. At the Annual
General Meeting in October 2019 we
had a very informative presentation
from Lee Gavegan, Clinical Nurse
Consultant Stomal Therapy at
Westmead Hospital. We will be
inviting Lee to attend future meetings
and we hope you will have the
opportunity to attend one and hear
Lee talk in person. Below we outline
some of the key information that Lee
discussed.
It is thought that a hernia
A potential risk after stoma surgery is will develop in 25-50%
development of a parastomal hernia.
Parastomal means “around the stoma”
of ostomates at some
so a parastomal hernia is where time after surgery,
some part of the abdominal contents, so it’s important to know
usually the intestine, pokes through
the opening in the abdominal muscles about the sort of activities
at the site of surgery and usually that can give rise to,
appears as a lump.
or worsen, a hernia.
This is a topic of great relevance and
importance to ostomates. It can be These include any condition that
challenging to manage a hernia. You increases the pressure of the
may need different appliances and abdominal cavity such as:
you may feel you can’t do your usual
n being over-weight and/or having
activities or be relaxed about your
poor nutrition
appearance.
n heavy lifting or heavy exercise,
At ONL we try to regularly talk n straining during a bowel movement
about hernias in support meetings or urination,
AUTUMN 2020 31You can also read
