DANE GRABS HIS AMERICA'S CUP MOMENT - PAGE 3 BART CAN CHOOSE THE BEST OF BOTH WORLDS - PAGE 5 STRATFORD AERO CLUB SALUTES MISSING MAN' - PAGE 7 ...
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DANE GRABS HIS AMERICA’S CUP MOMENT – PAGE 3
BART CAN CHOOSE THE BEST OF BOTH WORLDS – PAGE 5
March 2019
STRATFORD AERO CLUB SALUTES MISSING MAN’ – PAGE 7
CALLING AN 0800 NUMBER IS NOT THE ANSWER – PAGE 10
Personally speaking
At the start of each year we hold the IHC Annual Appeal to ask
members of the public for financial help to allow us to keep
supporting people with intellectual disabilities.
This year’s appeal coincides with our 70th birthday. A huge amount has
been achieved on behalf of people with intellectual disabilities over that
time, particularly in enabling people to move out of institutions and into the
community. But it is disappointing that so long after families first started their
campaign for change in 1949, people with intellectual disabilities and their
families still struggle to get a fair deal in many other respects.
We believe everyone should have the opportunity to achieve their goals and live good lives
in their communities and that everyone has the right to make as many choices as possible
in their own lives.
There are many people who need 24/7 support. We are ensuring our core residential and
vocational services are the best they can be and that they will be here for another 70 years
and beyond.
Government funding is not enough to ensure everyone in New Zealand has a good life.
Our charitable and community programmes are as essential today as they were 70 years
ago. Many of the challenges are new – many are the same as they have always been.
Some people need a lot of support and some need only a little – either way IHC is here for
them and for their families – but we can’t do it alone.
Donations to IHC make an enormous difference to people right throughout the country.
The money raised through the Annual Appeal is spent on IHC services that are not funded
by the Government, including:
• A new Family-Whānau Liaison team to connect families with the support they need
• Advocacy on behalf of individuals or wider groups struggling to get a fair deal
• IHC’s library – the largest intellectual disability library in the country providing free
information to anyone in New Zealand
• A volunteering programme that encourages long-term one-to-one friendships and
provides short-term programmes where a person with an intellectual disability can
learn a specific skill
• The Take a break with us programme that is providing a new kind of respite and is
helping boost our membership.
If you give to IHC as part of the Annual Appeal, or through any of our fundraising
programmes, please accept my personal thank you.
Ralph Jones
IHC Group Chief Executive
2 Community Moves | March 2019
March 2019
Dane grabs his America’s CONTENTS
Cup moment Page 3 Dane grabs his
America’s Cup
moment
Ann Corlett, pictured with her brother Joe,
would come every day to Atawhai Nursery Page 4 Where there’s a will,
if she could. She has a favourite work there’s a job
space in the potting shed.
Page 5 Bart can choose the
best of both worlds
Page 6 Year of music therapy
provides data for
study
Page 7 Stratford Aero Club
salutes ‘missing man’
Page 9 Te Rito Gardens plans
its next move
Page 10 Calling an 0800
number is not the
answer
Page 12 Roll out the mats –
Sailability Wellington volunteer Darrell Smith (left) and Dane Muir were two of many being photographed it’s the last Sunday
with the America’s Cup at the opening of the new Titahi Bay Boating Club jetty. in July
Page 13 Keen bowler retires
For Dane Muir, possibly the best Darrell, a double amputee, enjoy a
after long innings
thing about sailing is being in regular joke when they meet. Every
week Dane will ask Darrell where Page 14 Take a break gives
a boat with his friend Darrell 400 families a
his legs are.
Smith – or better still, getting his breather
photograph taken with Darrell “I might just say they are in the car,
or they are having a rest at home,” Page 15 Chalyce puts out a
and the America’s Cup. call to families
Darrell says. Darrell has been
Dane was in the official party, sailing since he was a boy, but has
along with Sports Minister Grant become progressively disabled with
Robertson, when the Sailability a condition that eventually meant CHECK US
Wellington Trust recently opened the removal of both legs. OUT ON
its new all-tide jetty on Porirua
Harbour. The America’s Cup made Darrell says Dane does know the FACEBOOK
a special guest appearance at the real story, but the leg jokes help
KEEP UP WITH WHAT IHC
Titahi Bay Boating Club, loaned to break the ice each week. “That IS DOING – FOLLOW OUR
for the event by the Royal Yacht does give us a bit of a connection.” CAMPAIGNS AND BE THE FIRST
TO READ OUR STORIES AND SEE
Squadron in Auckland. Darrell has been volunteering with OUR VIDEOS.
Dane, who is an IDEA Services Sailability Wellington for eight years.
WE’LL KEEP YOU POSTED WITH
Service User in Porirua, sails Dane has been sailing for six years NEWS, VIEWS AND BOOK
most Thursdays with Sailability and he is on deck every week if REVIEWS FROM THE IHC LIBRARY.
Wellington. The organisation the weather is good and the tide is
WE’D LOVE TO HEAR FROM YOU.
offers people with disabilities right. “He is a lovely guy; he knows
us all,” Darrell says. “Every time SO JOIN THE CONVERSATION.
the opportunity to sail. Sailability
he gets in the boat he asks about FACEBOOK.COM/IHCNEWZEALAND
Wellington Trust Chief Executive
Don Manning says if Darrell isn’t my boy and my daughter and my
free to sail when Dane arrives, he grandson.”
COVER IMAGE:
waits until he is. Don Manning says almost 190 Sailability Wellington volunteer
And, while Dane is learning how to people sail with Sailability Darrell Smith and Dane Muir take a
moment with the America’s Cup at
handle the boat, he is also building the opening of the new all-tide jetty
lasting friendships. Dane and ...continued on page 13 at the Titahi Bay Boating Club. See
story this page.
MarchMarch
2019 2019
| Community Moves
| Community 3 3
Moves
Where there’s a will, there’s a job
The Hibiscus Coast
Community House at Orewa
was Becca Gibbs’ happy
place, until a fellow volunteer
wasn’t happy about her being
there and Becca lost her job.
The place where she had been
welcomed and hugged each
week had closed ranks, says her
mother, Bridgit Gibbs.
Becca, 26, had volunteered at the
op shop on Thursdays for about
a year. “The manager knew that
Becca needed to be told what to
do.”
Becca had recently started
going in on a Monday as well,
but a fellow volunteer objected
to working with her. “She said
that she couldn’t cope with this
girl and her disability and she
shouldn’t be working there.”
Bridgit says Becca was offered
the opportunity to move to
another day, but that was the day
Becca attended the IDEA Services
Kingswood Vocational Centre and
in any case she no longer felt the
op shop was a place where Becca Becca Gibbs now has a new job, volunteering at the Orewa Red Cross Shop.
should be working.
speech is difficult to understand. IHC Director of Advocacy Trish
Becca has not had paid work And she loved her days at the op Grant says the incident at the
since she left school at age 21. shop. Hibiscus Coast Community House
She attended the Adults in Motion violated Becca’s right to be
life skills programme and has “She’s cheerful. She’s happy. She
included in her community. It was
volunteered at a local café and enjoys being around people. She
also a missed opportunity for the
a special school, but attempts to can follow instructions as long as
shop’s management to learn and
find work are often blocked. “You there are not a whole lot of them
develop more inclusive attitudes.
know what they throw in our faces in one go. She loves helping.
People with intellectual disabilities
– health and safety,” Bridgit says. She is very good at sorting
things if someone shows her could turn out to be “fantastic
She says young people with what to do,” Bridgit says. employees” with the right support.
intellectual disabilities might be
News of Becca’s plight Since then the Hibiscus Coast
well supported while they are at
galvanised the community and Community House has been in
pre-school and school. “That is all
brought several offers of help. touch with Trish to discuss how
lovely. But what do they do with
One offer from the Orewa Red they could better support people
the rest of their lives?”
Cross Shop was just right, and with intellectual disabilities. Trish
Becca has an intellectual even closer to home than her old says it was a positive discussion
disability, with dyspraxia and job. Becca started as a volunteer and all credit to them for wanting
developmental delay, and her in early February. to improve their practices.
4 Community Moves | March 2019
Bart Uy explores ‘Bart’s World’ at Auckland University of Technology, guided by game creator Isaac Pattison.
Bart can choose the best of both worlds
From the starting area of Bart was looking for a friend up stones and throw them into
new virtual reality game through the IHC’s volunteer a pond in the nature zone. Isaac
‛Bart’s World’ you have a friendship programme and Isaac also included a tree in the game,
was looking to volunteer. They live which exists for real in Albert Park
choice of two doors. If you
at opposite ends of Auckland, but in central Auckland, where they
teleport through one door this doesn’t stop them hanging often sit and talk.
you find yourself on a high, out together.
grassy hill, where a path Isaac showcased the game at
At first Isaac hesitated about AUT at the end of the year and
leads down to a waterfall
signing on as a volunteer because invited Bart and his parents to
and trees. Enter through the he thought he wouldn’t be able come and experience it. “He liked
other door and you are in a to spend enough time with it a lot,” Isaac says. “He didn’t want
games arcade with gaming Bart during the final year of his to stop.”
machines and prizes. degree. But Bart has provided
the inspiration for his course- Bart was quick to see the
Bart’s World was created for Bart work project. “I was making a fun advantages of the virtual reality
Uy by his friend Isaac Pattison. It playground area for Bart to enjoy bowling. He said it was better than
was Isaac’s final-year project for the things that he likes. It ended the real thing as he could have as
his Bachelor of Design degree at up becoming more about giving many turns as he liked at bowling
Auckland University of Technology him a cool games space,” Isaac without paying. Isaac has now
(AUT) last year. And, as the says. “Everything except the water purchased his own VR goggles
name of the game suggests, it is hand made. I programmed it and hand controls, so he can take
is based on how Bart likes to and designed it all. I took a long the game to play at Bart’s house.
spend his time. Bart finished at time planning it all.”
Unitec last year with certificates in
employment skills and community Isaac says the game has two main
skills, and is volunteering at a aspects. The nature area is for
Mt Roskill supermarket while he exploration and the games area is
looks for a job. about interacting.
Bart and Isaac have known each In Bart’s World, Bart can play ten-
other for less than a year and pin bowling, basketball and Skee- Bart and Isaac have become friends through
share a love of gaming. Ball in the games arcade or pick IHC’s volunteer friendship programme.
March 2019 | Community Moves 5
Year of music therapy provides data for study
A team of evaluators,
including ASD experts, is
assessing the impact of a
year’s worth of music therapy
for Kiwi children diagnosed
with autism.
The Victoria University of
Wellington project is being led by
Dr Daphne Rickson from the New
Zealand School of Music: Te Kōkī.
Her goal is to provide evidence
about the benefits of music
therapy so that more children can
take advantage of it.
From January to December 2018,
music therapists in Wellington,
Christchurch and Auckland
provided weekly music therapy
sessions for 10 school-aged
children at school, at home or in
studios. The therapists, who were
asked to follow their usual music
therapy practice and to work
directly with the families, have
now completed case studies on Daphne Rickson, pictured with Ronnie, 3, has a team of evaluators looking at reports from
music therapists.
each child, and these are being
evaluated in the second stage of
imitation, initiation, turn-taking aides because of their heavy
the project. and emotional expression. But workloads.
Daphne, Senior Lecturer in Music it has been hard to convince
All the evaluators will
Therapy at Victoria University, funders because music therapists
be answering the same
designed her study using a use an improvisational style
questions and, from the 100
narrative assessment method that that responds to the child in the
total evaluations, statistical
she hopes will convince policy moment. Each situation is unique,
data will be provided for the
makers and others that music so controlled trials are difficult.
effectiveness of music therapy
therapy is worth funding. The IHC The progress of each child generally. The evaluators will
Foundation is investing $100,000 participating in Daphne’s study also write a short summary of
in the two-year project. will be assessed by 10 evaluators, the case, which will help with
five who know the child and understanding how and why
Daphne says this method of some approaches will work for
assessment is used already in five experts in ASD who don’t.
The evaluators who know the some children and not others.
many schools to report to parents The university’s Information
and others in the community child will generally include a
Technology Services department
about the way children are parent or family member and
has created a purpose-built
performing. may also include a teacher,
online platform for collecting and
speech and language therapist,
engaging with the data.
She says there is a need for or psychologist. Daphne says
evidence in New Zealand grandparents feature highly From April, Daphne will start
and overseas on how music in this group because of the analysing the data, which
therapy can influence a child’s prevalence of shared care, but it includes written reports and
development of communication had proved difficult to recruit the videos, to determine the impact
skills, including attention, children’s teachers and teacher of the therapy.
6 Community Moves | March 2019
Stratford Aero Club salutes ‘missing man’
Mourners first heard the Aerodrome six months ago and that causes muscle weakness and
it became a regular Sunday tightness in the limbs.
rumble of aircraft in the
outing. “Towards the end the only
distance and then saw five Greg, Kenneth and Christine lived
place he wanted to go was the
in a purpose-built IDEA Services
aircraft flying in formation to aerodrome,” Roni says. “Greg knew
house in Stratford, with Greg later
everything there was to know about
pay tribute to Stratford man moving to a smaller flat that he
aeroplanes.”
Greg Tolland. shared with a flatmate. Christine
Nick Furmage, President of the and Kenneth both died some
Greg’s burial was put on hold Stratford Aero Club Sport Flyers, years ago and Greg had become
while family and friends watched says Greg had always been increasingly frail and relied on a
the flypast by the Stratford Aero interested in aviation and would wheelchair to get around.
Club’s Sport Flyers. The pilots have liked to have been a pilot, but
Roni phoned Nick once mourners
flew in a ‘missing man formation’ his disability prevented that. were on their way to the cemetery
and tipped their wings as a mark and soon heard the planes. “We
Greg’s mother June Tolland
of respect. The aerial salute is caught sight of them and everybody
joined them on a couple of visits.
performed typically in memory was covered in goose bumps,” Roni
“Sometimes there was a lot of flying
of a fallen pilot, where one of says. But no-one was expecting five
and sometimes there wasn’t,” June
the planes pulls up and flies planes. “Nick thought he was going
says. Greg had his 56th birthday
away, leaving an empty space to be doing it on his own.” But club
just days before he died on 23
in the formation. The last plane members had called him wanting to
December.
released a stream of smoke. be part of the tribute.
Roni says Greg’s last visit to the
Greg was a newcomer to the club aerodrome, planned for early June says Greg’s enthusiasm
but planes were his passion, and December, had to be abandoned for aircraft came from his father
the club made him an honorary because he wasn’t well enough. Jim, who served in the Royal
member and presented him with New Zealand Air Force in
a club cap and T-shirt. IHC has supported Greg since 1994 communications. Greg loved
and also his sister Christine and motorbikes and fishing, as well as
Greg’s support worker Roni brother Kenneth. All three siblings planes. “He was very determined.
Lamont had the bright idea were born with congenital spastic He always said he was going to
of taking him to the Stratford tetraplegia, a rare genetic condition walk again; he never let that go.”
Greg Tolland enjoyed regular visits to the Stratford Aerodrome. (Inset) Greg was presented with the club cap and T-shirt.
March 2019 | Community Moves 7
Mike Scaife of RM Software (left) and Te Rito Gardens Coordinator Steve Wilson in front of the solar panels that have been installed at the existing site.
Te Rito Gardens plans its ne
A community garden that converted shipping containers a chance to build an even more
supports people unable until a permanent building can sustainable enterprise. They are
be erected, and to set up a hoping that earthworks on the site
to get paid employment is
large covered area that will be will be completed this month and
starting again – from the used for plant propagation and they will be in their new location by
ground up. workshop facilities. The gardens September 2019.
will be powered off-grid by a solar-
Te Rito Gardens has been operating powered system. The mains power at the Porirua
for nearly 10 years from the grounds Hospital site has already been
of the old Porirua Hospital and has In 2017, the IHC Foundation disconnected so Mike Scaife of RM
so far supported more than 240 contributed $20,000 towards the Software volunteered to install the
people – many with intellectual installation of the solar panels off-grid power system at the current
disabilities – to gain practical and and battery bank to run the site so that they can continue to
life skills. But Te Rito is on notice to propagation house and irrigation provide services until the shift. This
move to make way for a housing pumps. In December 2018 it is a small, temporary solution to
development. It has been offered made a further grant of $16,800 provide immediate low-storage AC
a new location with a long-term towards constructing fencing and power to the existing site.
lease, but this is a bare site and windbreaks and a 50,000-litre water
the volunteers must now build storage tank. Stage two will involve fitting the
the infrastructure needed to get remaining batteries, along with
their organics cooperative up and As hard as it is to uproot themselves associated electronics and control
running again. and their plants, the Te Rito systems.
volunteers see many opportunities
Te Rito Gardens Coordinator at their new flat and sunny site The solar-powered system, being
Steve Wilson and his team of 24 bordering Mitchell Stream in Raiha paid for by the IHC Foundation, will
volunteers plan to work out of two Street, Kenepuru, where they have power the irrigation pumps, control
8 Community Moves | March 2019
Jacob has a job among friends
Jacob Keswell has a job he loves, and works among people
who have become his friends and mentors.
At Te Rito Gardens Jacob, 23, people, to feel more confident in
gives everything a go and is yourself. I have somewhere to go.
succeeding as part of a I know what I am going to be
supportive team. doing, the people who are going
to be there.”
“There is always something
different to do every day – lawns, Te Rito Gardens is a social
weeding, composting, potting up,” enterprise cooperative that shares
he says. the proceeds of sales monthly
based on the hours worked by the
Jacob has dyspraxia, which
stakeholders. “We are volunteers,
affects his coordination and
but we get a small payment,”
concentration. “I can get confused
Jacob says. Jacob is one of the
quite easily. My brain will tell me
to do one thing and my hands will stakeholders and works four days
tell me to do another.” a week. In winter they work from
9am until 3pm. Summer hours are
He left Mana College in 2014 shorter from 9am until 12.30pm.
without enough credits for
NCEA, but with an introduction Jacob’s mother, Michelle Williams,
to horticulture at Te Rito thanks says he enjoys getting his hands
to the college’s Gateway in the dirt. “I just want him to be
Programme. He has been happy and to be doing something
volunteering there ever since he productive. He is picking up skills.
He is learning. It has made him
next move
left school. “Every year a new
challenge comes along,” he says. more confident.”
“My confidence has gone up. I am The volunteers also connect with
not as nervous. At school I didn’t the wider community through
really talk to anyone. Up there planting schemes and clearing
systems, lighting, fridge for seed
storage, and a small office with you get to talk to people, to know people’s properties.
tea-making facilities. These will be
run from a 24/48-volt bank of lead
carbon battery cells and charged
by solar panels mounted above
the propagation structures. A small
petrol-powered generator will be
on hand for extended periods of
insufficient sunshine.
Te Rito’s main business is to supply
local eco-sourced native plants,
particularly for planting along
riverbanks and in wetlands. It grows
many thousands of plants from seed
or by propagation. It sells these to
local councils and environmental
groups. It is also involved with
the Enviroschools programme,
supplying plants to 10 local schools.
Until recently Te Rito has been
growing organic vegetables for sale,
and this part of the operation will be Jacob Keswell and the Te Rito team recently helped Porirua City Council and some local
resumed after the shift. volunteers to plant along the railway lines at Plimmerton.
March 2019 | Community Moves 9
Calling an 0800 number is not the answer
The new IHC Family-Whānau Liaison team is helping isolated and stressed families to find the
services in their communities that can help them.
So far the liaison team numbers are obvious. “Families are being happens after that.
three – Jim Callaghan in referred to an agency only to find
Everyone else goes,” he says.
Northland, Suzanne Downes out they are on a two-year waiting
“When these kids leave school
in Manawatū/Horowhenua and list. If we know this in advance
there is nothing out there.”
Sheridan Myall in Christchurch. we can avoid referring people to
They will soon be joined by a agencies with waiting lists,” she Jim says there is not much trust
fourth member in North Otago. says. in government agencies and
health services. “A lot of families
Their job is to be the ‘go-to’ “We have found that people who
that I have are nervous about
people for families who need are entitled to benefits are not
approaching organisations like
advice about what services and getting them. Some families don’t
WINZ. Going to WINZ is not the
agencies can do to support them. know what they are entitled to
easiest thing to do; you have to
They are a friendly face on the and others need support to apply.
make an appointment online.”
often faceless bureaucracy. There are all sorts of barriers and
often a strong sense of frustration He says people find it too hard.
Janine Stewart, IHC General
by the time we are contacted. “They live rurally, so actually just
Manager of Programmes, says
Our goal is to help them to get travelling can be a problem. If
for a long time families have
access to the services they need.” you get an unfriendly place like
struggled to get information
a WINZ (Work and Income) office
and access to services in their The liaison staff are being funded
at the other end – that can be a
communities, and to understand as part of a two-year pilot study
problem for you.”
what help they are entitled to. by the IHC Foundation. How
For many families the task of they work will be shaped by the But, Jim says, Work and Income
caring for a disabled child or needs of the families in the areas has health and disability advisors
family member is overwhelming they serve. Already the regional who are very helpful and he is
and there is little energy left for differences are emerging. working with them to ease the
the red tape. path for families.
Jim Callaghan
“You need a face – someone who Above all, the Family-Whānau
Jim Callaghan is based in
is part of their community and Liaison team is there to listen to
Whangārei and he doesn’t have
who understands their community. families “because nobody else
to look far to find families who
Calling an 0800 number in seems to want to”, Jim says.
are struggling on their own to
Wellington doesn’t work,” Janine
care for children with intellectual “What we do is tease out the
says. “Communities throughout
disabilities, and who are also things that are available to them
New Zealand are struggling to
struggling financially. that they may or may not know
support people with disabilities
about – things like the disability
and mental health issues. And “I haven’t met anyone with a
allowance, or clubs that are open
when people are in crisis they family member with an intellectual
to them. I do see the role as a
need a person – we want to help.” disability who is not struggling in
privilege. I am invited into these
some way.”
Janine acknowledges that the families’ homes and I am invited
team is small and will be thinly There are organisations that can into their lives to share things
stretched. But their role is critical. help, but services are fragmented with them that are quite personal.
“There is a lot of carer burn-out and families often don’t know People don’t have to jump over
out there,” she says. about them. “There is not a lot of hoops to see us.
coordination of stuff and a lot of
IHC National Manager Volunteering “One of the most important parts
isolation,” Jim says.
Sue Kobar, who manages the of this role is relationships – the
team, says the referrals are During the school years things are community relationships. You can’t
coming in thick and fast from often easier for families. “In a lot do without them. Lots of people
schools, other disability providers of rural communities people with in the sector are very kind.
and community organisations. a disability are known and they They are happy to share what
And some of the problem areas are connected anyway. It’s what they know.”
10 Community Moves | March 2019The new IHC Family-Whānau Liaison team – Suzanne Downes (Manawatū-Horowhenua), Jim Callaghan (Northland) and Sheridan Myall (Christchurch).
Suzanne Downes little in the way of after-school care She says issues like foetal
or holiday programmes. “Social alcohol syndrome are becoming
Suzanne Downes knows a lot
isolation is a big one. Some of more apparent, along with
about what families in Manawatū
these families have no-one.” undiagnosed intellectual
and Horowhenua need. Before
disabilities. “People, for a variety
she took on the liaison role, she The difference between
of reasons, require services
spent two years doing research Suzanne’s team and the Ministry
but haven’t got a diagnosis of
for IHC asking local families about of Health ‘connectors’, who are
intellectual disability.”
the kinds of pressure they were employed under the EGL trial, is
facing and what would ease the that the IHC team is not funded Without a diagnosis, these
pressure points. to take on cases. It is the initial families will not receive funding
point of contact for families and will for support services. Others
She has also worked on the
find them the best people to help. receive carer support hours but
Enabling Good Lives (EGL)
struggle to know how to use
provider group. Manawatū is the Sheridan Myall
these effectively or to find respite
first region to trial the new EGL
In Christchurch, Sheridan Myall has services. Sheridan says she has
disability support system. She is
been spending a lot of time with introduced families looking for
also working with researchers on
families and schools talking about after-school activities to Special
a new project, funded by the IHC
the experiences of young people Olympics and to Riding for the
Foundation, that is collaborating
with disabilities and meeting Disabled.
with families, councils and iwi to
their Special Education Needs
co-design solutions to meet their “One of the things that has
Coordinators. She covers 145
local needs. become apparent to me is that
schools across the city and most
there are some very sad stories
“My focus is very much now on of her referrals have come from
out there of people with limited
community development, not schools on behalf of families.
resources.” Sheridan says people
so much working with individual
Sheridan says some of the families in a low socio-economic bracket
cases.”
she encounters have limited are finding it harder and struggle
Suzanne is now based in Levin at means and are not able to access to look outside the square.
a new community hub where she basic services. Others have means
Oamaru – North Otago
can easily connect families with a but need support to access more
whole range of community service than basic services. She says she The team will soon be joined by
providers. She says lack of respite is learning what’s available for a new member in Oamaru. This
for families in Manawatū and these families and developing position is to be fully funded by
Horowhenua is a huge issue with relationships with providers. the North Otago IHC Association.
March 2019 | Community Moves 11Roll out the mats – it’s the last Sunday in July
Among friends in downtown Dannevirke are (from left) Miriam Telford, Support Worker Noella Hewitt, Catherine Pratt, Phillip Poulton,
Support Worker Linda Owen, Chelsea Victor-Gordon, Garry Small and ‘Fire Officer’ Jo Brown.
In Dannevirke, the last “You have got to be very, lounge suites, iPads, garden
Sunday in July is set very proud of the Dannevirke improvements and a lawn mower.
aside for the Dannevirke community,” John says. “A lot goes The vocational base in High Street
into it,” he says. “A lot goes on had a shade sail installed last year
Combined Indoor Bowling
behind the scenes.” and the latest tournament will pay
Clubs’ annual fundraiser for concrete paving underneath.
for IHC. It’s been a circle The money raised comes from
on the calendar for nearly cash sponsorship, the sales of Majorie Bloor, who has been on the
50 years. raffle tickets, and entry fees from Dannevirke IHC committee for the
the players who come from across past 52 years, says her daughter
Since 1971, when the tournament the lower North Island, from Napier, Jennifer was a keen bowler, but
started, $61,938 has been raised. Marton, Feilding, Palmerston has recently been struggling with
Over time the number of indoor North, Pahiatua and Wairarapa. osteoarthritis. “When it started off
bowling clubs in Dannevirke has They play for the afternoon in it used to be a day tournament
dwindled from six to the two teams of four and there are four and we used to provide lunch.
remaining clubs – Sports Centre games of 40 minutes each. People We would cook sausages and
and Rua Roa – but the support with intellectual disabilities are mince. It was a happy occasion.”
in the town for local people with encouraged to join a team. John
says the teams aren’t looking to Committee Chair Jose Small
intellectual disabilities has not says these days the committee
faded. win, but simply to enjoy the day.
members help IDEA Services staff
John Johnson, past President Each year three raffles are held – with an afternoon tea. Jose says
meat, groceries and vegetables. there is huge support for people
of the club, has been organising
The only costs deducted from the with intellectual disabilities in
the tournament for 17 years and
tally are for two $20 gift vouchers Dannevirke. “We are a very small
he says the town regularly raises
for the women organising the and tight community.”
more than $2000 each time. And
raffles.
on the occasions when it hasn’t John is now looking ahead to the
quite reached the $2000 mark, There are three residential homes 50th anniversary tournament in
the club has chipped in the extra. in Dannevirke – and service users 2021. “I would like to see it reach
Each player gets a prize and compete each year. All the houses 50 years. I would like to see 20
all the prizes are sponsored by and residents have benefited mats in the hall and get 40 teams.
Dannevirke businesses. from the tournament, with new I hope to make it a special one.”
12 Community Moves | March 2019...continued from page 3
Keen bowler retires Wellington in various locations
around the Wellington coast,
after long innings
supported by 70 volunteers, and
there are 90 on the waiting list.
The IHC Foundation has
supported Sailability Wellington
since 2015. The Foundation’s
It was his leg that was the
most recent grant, in October
problem. Christchurch last year, was $15,000 towards
veteran indoor bowler the expansion of the sailing
Allan Gardiner gave up his programme and to increase
favourite sport when he participation of sailors from
realised he couldn’t rely on Porirua, Kāpiti and Horowhenua.
his right leg any longer. The Titahi Bay Boating Club’s
existing jetty was strengthened
Allan, 86, has been bowling with
to support the new jetty, which
a Special Olympics team for years
now extends into the harbour by
and has medals and ribbons from
five metres, linked by a walkway
many successful tournaments.
and ramp. This gives Sailability
He retired only reluctantly late
Wellington a further 50 square
last year as New Zealand’s oldest
metres of rigging space to set up
Special Olympics athlete.
masts and sails, and new floating
“We played against the other pontoons will provide all-tide
people then I decided to give it sailing.
up because if I get off the walker, Sailability Wellington will operate
then I will fall over on my right and maintain the floating
leg,” Allan says. pontoons, but has gifted the new
Allan has been married to Karen jetty to the people of Porirua,
for 18 years and they shared a
Allan Gardiner has reluctantly retired as under the guardianship of the
New Zealand’s oldest Special Olympics Titahi Bay Boating Club. The jetty
love of bowling, but Karen has athlete.
recently retired too. is named the Duncan Renouf Jetty
“If he meets someone new, he in memory of Dane’s friend, who
Allan now has more time for will sing them a song, and he has was another keen sailor. Dane
some of his other favourite a very lovely voice as well.” helped to unveil the jetty in his
pursuits – singing, playing the honour. Duncan, who had Down
bongo drums and model trains. Allan enjoys singing the old- syndrome, sailed solo for the
time songs – and he has four first time shortly before he died
Service Manager Amber Tuhua particular favourites: Show Me in January 2017. Dane points to
says Allan is a very good singer. the Way to go Home, Pearly a photograph of Duncan in pride
Shells, I Don’t Know Why I Love of place at the Porirua vocational
You and Rainbow on the River. base Te Wa Huri Huri (the Turning
Senior Support Worker Leslie Point), where the two men spent a
Clarke says he enjoys fortnightly lot of time together.
sessions with a music therapist. Lynne Renouf, Duncan’s mother
and IHC New Zealand Life
Then there’s his model train set
Member, says he loved sailing
that has pride of place in the
and wouldn’t miss Thursdays for
lounge of the IDEA Services
anything. “He was absolutely
Burwood home he shares with
enthusiastic. He was very keen to
Karen and four house mates.
A large table supports the track go out on his own,” she says. “He
for two trains. was a leader of the pack – out of
the van and organising the vests
Allan wears his Special Olympics bowling Allan was born in Christchurch as – in his element really. He turned
jacket one more time. one of six children. out to have pretty good skills.”
March 2019 | Community Moves 13Take a break gives 400 families
a breather
Anakin Kingi and his Dad Thomas and Mum Chante had a summer break in Hawkes Bay last year.
More than 400 families Auckland and Rotorua are popular but the programme has been
have been able to take a destinations and many hotels like refined and we now only offer
to roll out the red carpet and make breaks. From 1 October last year,
break from the demands of Take a break guests feel welcome. it was decided that only members
being carers, thanks to the of IHC could apply for the break.
Millennium Managing Director
IHC ‘Take a break with us’ Since the new member rule came
BK Chiu says: “We appreciate the
programme. opportunity to help support these
in, more than 40 families have
registered.
The programme, which started families with the small gesture of
in mid-2017, is partly funded by these mini-breaks, recognising
‘Take a break with us’
the Zena Elsie Orr Memorial Trust their selflessness and quiet since 2017:
and supported by Millennium & dedication to their families.” • 117 gift packages
Copthorne Hotels New Zealand, Many families choose to stay in ($250 Prezzy cards)*
the IHC Foundation and IHC their home towns because they • 125 pamper packages
donors. want to be close to their children or (hair or beauty vouchers)*
family members if they choose not
Millennium has sponsored the • 401 short breaks (487 actual
to take them, or it’s simply easier if
programme since September 2017 room nights used – some
they don’t have to travel far.
and provides accommodation families need more than one
throughout New Zealand. Twenty- In selecting hotels, ‘Take a break room)
one hotels now support the with us’ organisers try to limit the
• One-third of referrals came
programme, with Millennium travelling time to no more than
from other providers,
agreeing to provide more than 50 two or three hours. We use holiday
organisations or other families
room nights for 2019. homes for larger families. – the rest were self-referrals.
Emily Fraser, Millennium Digital At the start we also offered gift (*No longer available)
Marketing Coordinator, says cards and pamper packages,
14 Community Moves | March 2019IHC NEW ZEALAND
Chalyce puts out a call to families INCORPORATED
ihc.org.nz
IHC BOARD
Neil Taylor, Chair
Jason Hollingworth
Ralph Jones, Chief Executive
Dr Lynne Lane
Michael Quigg
Barbara Rocco ONZM
Rob Steele
Pauline Winter
IHC MEMBER COUNCIL
Barbara Rocco, Chair, ONZM
Janet Derbyshire
David Howorth
Dr Diane Mara MNZM
Pip O’Connell
Kay Pearce
Robyn Stark
Danny Tauroa
PATRONS
Sir Roderick & Gillian, Lady Deane
Manawatū Association Secretary Chalyce Attwell is working to make life better for her sister Tarryn.
NZ LIFE MEMBERS
The Manawatū IHC Association be provided for other parents. The Dr Terry Caseley
has been relaunched by a group plan is that they would provide five Sir Roderick Deane KNZM
stretchers and seek sponsorship for Jan Dowland
of families determined to tackle a further five, which would be stored John Hanning
some of the most difficult issues at the hospital. “They fold up nice John Holdsworth ONZM
facing people with intellectual and small. That is why we thought Shelley Payne
stretchers not la-z-boys,” Chalyce says. Lynne Renouf
disabilties in the region.
Barbara Rocco ONZM
The Association, which re-emerged in The group is also keen to tackle the Tony Shaw
October after a nine-year recess, held a issue of employment for local people Neil Taylor
‘meet and greet’ in February to hear from with disabilities by investigating Donald Thompson
families about what help they needed how to fund and set up a business Charlie Waigth
or social enterprise. “We are open Maureen Wood
and to boost membership.
to suggestions and ideas. We have
One of the Association’s first projects is got nothing set in concrete, but we IHC NATIONAL OFFICE
to get better sleepover arrangements at know from what we have heard in the Level 15, 57 Willis Street,
Palmerston North Hospital for parents Wellington 6011
community that employment is a big PO Box 4155, Wellington 6140
who want to stay overnight with their priority.” Ph 04 472 2247, Fax 04 472 0429
disabled children. This is an issue
close to Association Secretary Chalyce So far it’s a small committee of six EDITOR
Attwell’s heart. Her sister Tarryn recently members. Four of the members have Gina Rogers
spent three weeks in the hospital and a child with an intellectual disability or Ph 04 495 2771
Email gina.rogers@ihc.org.nz
there was nowhere for their Mum to autism, another supports a sibling and
sleep. She could borrow a la-z-boy chair one member used to be an education COPYRIGHT
from a patient day room, but that could support worker. Community Moves is published
only be used from 11pm and had to be by IHC New Zealand Incorporated.
While all are IHC members, few of The content of Community Moves
returned by 6am. She opted instead to
the families use IHC services. But is copyright. No part of this
take in her own camp stretcher. Tarryn, publication may be reproduced or
Chalyce says all the members believe
18, has Down syndrome and she mainly transmitted in any form or by any
in people being able to fully access means without the prior written
communicates through sign language,
their communities. “We are all in this permission of the publisher.
using her Mum as interpreter.
new way of thinking around inclusive ISSN 1171-8587
The Association is now in talks with the practice, choice and having the same
hospital to see whether stretchers can rights as everyone else.”
March 2019 | Community Moves 15You can also read
