Event Programme & Live Auction - DEBRA 40TH ANNIVERSARY CELEBRITY CHEFS DINNER THE SAVOY, LONDON 8 JUNE 2018
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for people whose
skin doesn’t work
we do
DEBRA 40TH ANNIVERSARY
CELEBRITY CHEFS DINNER
THE SAVOY, LONDON · 8 JUNE 2018
Event Programme & Live Auction
WELCOME
Thank you also to our generous sponsors
who have donated a wonderful array of
prizes for tonight’s auctions. Further thanks
must go to DEBRA Trustee David Wilkinson
and his committee of volunteers for all their
PROGRAMME hard work and contributions in organising
FOR THE EVENING this Celebrity Chefs Dinner.
Thank you to everyone attending this
evening, I hope you have a wonderful time.
6.45pm
Champagne reception in The River Room
Ben Merrett - DEBRA CEO
7.35pm
Welcome from DEBRA CEO Ben Merrett
“We don’t have a cure for EB and the
7.45pm
hardest part of my job is losing children
Heads and tails sponsored by Chapel Down
to this awful disease who spend most
Dinner is served in The Ballroom
of their life fighting to survive. Without
9.15pm DEBRA, most of our vital research wouldn’t
Santé du Chefs exist and we most certainly wouldn’t be
Thank you so much for joining us tonight where we are today in terms of clinical
for our DEBRA 40th Anniversary Celebrity management.
9.20pm
Chefs Dinner. It is wonderful to be
Words from our speakers Myra Ali and Georgia Brown
celebrating DEBRA’s 40 years at The Savoy DEBRA also part funds part of our nursing
9.40pm London in the presence of our fantastic service, which allows us to carry out
Dessert is served followed by petits fours and coffee chefs who have learnt their craft with Anton our essential outreach. We often receive
Edelmann, Maître Chef des Cuisines at The queries from around the world on how
9.50pm Savoy for over 20 years. to manage EB from countries without
Live Auction conducted by Edward Rising a DEBRA and it makes me realise how
The money raised from this evening will lucky we are to have the NHS and DEBRA
10.45pm support the funding of our specialist EB working together in partnership.”
Dancing and music from Jam Hot nursing service at Great Ormond Street
Hospital. Specialist nurses are crucial to Katie - EB Nurse
12.30am EB sufferers and their families, and DEBRA
Carriages provides vital funding to this service at the
children’s hospital.
DEBRA is hugely grateful for the fantastic
support provided to us by Anton Edelmann
and for the kindness of Mark Hix, Giorgio
Locatelli, Jeff Galvin, William Curley and
Holger Jackisch, in creating, with Anton,
an exciting menu for all our guests this
evening.
A message from DEBRA Patron, Her Royal Highness The
Countess of Wessex GCVO
“
The issues for those living with EB are compelling and emotive and
this is what has drawn us all towards supporting such a worthwhile
cause. I feel that my life has been enriched by the experiences I
have had since becoming Patron of DEBRA, mainly through the
patients I have met at a variety of functions.
I never knew how much the human body could withstand in terms
of suffering until I understood more about how people with EB
live with their condition. Yet through all the pain, the scars, the
trauma, the endless process of skincare, the drugs, the emotional
burden, the staring, the exhaustion of it all, I have never met a
more positive and determined bunch of people. Regardless of
their age or condition they have made it their mission to live life to
the full. Their attitude is incredible and uplifting and they provide a
salutary lesson to us all in how to take what we have and make it
meaningful.
”
© 2013 The Royal Household Bagshot Park/Image by Millie Pilkington
only to be reproduced with permission
WHAT IS EB?
Imagine the worst sore you ever had… What DEBRA Does Support for DEBRA makes a real
the sore is spread all over your body – on difference to people suffering from EB
your skin, in your mouth, throat, eyes – and DEBRA is the national charity that supports
never healing. That’s what Epidermolysis individuals and families affected by EB. Thanks to our supporters, in 2017 we were
Bullosa (EB) can feel like. able to:
• We fund world class research to find
Imagine not being able to cuddle your own effective treatments and, ultimately, a • Invest over £1.2 million in enhancing
child… you fear ripping their skin at the cure for this devastating condition. EB care, improving the quality of life
slightest touch causing extreme agony and for people suffering from EB and their
pain as new blisters continuously form. • We deliver an enhanced healthcare families.
That’s EB. service to people with EB in partnership
with the NHS. • Help over 1,850 people suffering from EB
At its worst, EB kills. Even in the mildest and their families receive support.
forms, EB causes unstoppable itching and • We improve quality of life for people
pain. EB affects over 5,000 people in the with EB and their families by providing • Fund up to 25% of the salary of each
UK alone – although thousands still remain practical and emotional support. EB nurse, enabling them to undertake
misdiagnosed or unidentified. additional activities including teaching
other healthcare professionals about EB.
There is no cure in sight and current
treatments are poor. • Award 188 support grants, relieving
physical and psychological distress for
people impacted by EB and their families.
• Commit over £1.4 million to research,
including projects focused on pain relief
and wound healing as well as new trials
for EB cancer treatment.
With your continued support, we could
accomplish even more
“EB is a horrible condition that doesn’t
only affect the person who has it, but also
their close family and friends, and everyone
around them. Support from DEBRA has
been amazing. I don’t know where I would
be if DEBRA wasn’t there,”
Tayiba - DEBRA member whose son
Ayaan (10) suffers from EB.
Celebrating 40 years!
2002
Birmingham Children’s Hospital and Solihull Hospital
are established as centres of excellence in EB
1978 First EB clinical trial begins (gene therapy)
DEBRA is founded by
Phyllis Hilton whose
daughter Debra had EB.
The charity was the
world’s first EB patient
1987 - 1989 1992
support group DEBRA funds multiple EB First EB genes
specialists – physio, dietician, are discovered
children’s nurse & adult nurse
– appointed at NHS hospitals
2017
1999 Rare Diseases Centre Opens
DEBRA appoints first at St Thomas’ Hospital with
social support worker support of DEBRA funding
1990
Great Ormond Street
Hospital (GOSH) & Guy’s and
St Thomas’ Hospital (GSTT)
are established as centres of
excellence in EB
1981
First DEBRA-funded 2012
research project NHS agrees to fund all core
EB nursing activities
MENU THE CHEFS
Starter - Mark Hix Renowned for having been The Savoy Hotel’s
Sugar pit ox cheek and split green pea salad Maître Chef des Cuisines for 21 years, many
of today’s top chefs have spent time working
Intermediate Course - Giorgio Locatelli under Anton Edelmann’s watchful eye. His style
Calamarata with samphire, monkfish, chilli and lemon of cuisine is modern European with a strong
French influence.
Main Course - Jeff Galvin
Breast of guinea fowl with broad beans, fresh morels Following his record time at The Savoy, he
and herb gnocchi moved to Director’s Table, the fine dining
division of Sodexho. He then opened his own
Dessert - William Curley
restaurant, Anton’s, and also part owned
Chocolate praline mille-feuille with orange yoghurt ice-cream
London hotspot The Brompton Bar and Grill.
and orange compote
Anton’s most recent ventures include i-chef,
Petits Fours - Holger Jackisch
an online networking community for hospitality
A selection of petits fours and coffee
professionals and suppliers, and Sage Food
Vegetarian Options Design and Development, a consultancy
Baked plum tomato tart with English goats cheese and olive service which allows others to tap into
tapenade • Burrata tortellini with shaved truffle, wilted spinach Anton Edelmann’s many years of hospitality
and pecorino nage • Roasted vegetable Wellington with green experience. Anton Edelmann
asparagus, peas and broad beans Co-Founder of i-Chef.biz and Owner of
Sage Food Design & Development Ltd
Mark is known for his original take on British
gastronomy. After 17 years as Chef Director at
Caprice Holdings, he opened his first restaurant
in 2008 - the distinguished HIX Oyster & Chop
House in Smithfield, followed by HIX Soho and
the chicken and steak concept restaurants
‘Tramshed’ and Hixter Bankside.
In 2015, Mark opened his first standalone
Mark’s Bar at The Old Vic, with a cocktail list full
of historical curiosities. In February 2016, Mark
partnered with Damien Hirst to open Pharmacy
2 at Newport Street Gallery in Vauxhall.
Mark is frequently lauded as one of London’s
most eminent restaurateurs with an unrivalled
knowledge of ingredients with provenance.
He is the author of a number of cookbooks on
British cuisine. Most recently Mark received an
MBE for services to hospitality, appointed within Mark Hix
the New Year’s Honours 2017 list. Celebrated chef, restaurateur
and food writer
THE CHEFS THE CHEFS
Growing up in Northern Italy, Giorgio first got William aims to source only the world’s finest
his taste for the kitchen whilst helping out at his ingredients, refusing to compromise on the
grandfather’s Michelin-starred restaurant. quality, using only the freshest natural produce,
in partnership exclusively with world renowned
He took a role at The Savoy in 1986, later Tuscan chocolate producer, Amedei. He
moving to Paris. By the time he was awarded is intensely passionate about his craft and
his first Michelin star in 1999, he had picked up encouraging and mentoring young talent.
a host of accolades for his cooking. Spighetta
and Spiga – his next two restaurants - followed, His career began with an apprenticeship at
before he and his wife Plaxy launched Locanda Gleneagles Hotel. His ambitions then took him
Locatelli, which earned them a Michelin star. to The Savoy Hotel, where he became the
youngest Chef Patissier in its history.
With a string of TV shows, including ‘Rome
Unpacked’ in 2018, international consulting and He opened his business over thirteen years
a collection of critically acclaimed cookbooks, ago, achieving numerous accolades including
he is considered by many as one of the best four times winner of ‘Britain’s Best Chocolatier
Italian chefs in the UK. by The Academy of Chocolate’. In 2012,
William became a member of Relais Dessert
In 2016, he was awarded the Commendatore International, and has also achieved the Master
Giorgio Locatelli OMRI by Italian Ambassador Terracciano for
services to Italian gastronomy, the equivalent of
of Culinary Arts by the Royal Academy of
Culinary Arts which is the highest accolade
William Curley
TV presenter and founder of Michelin- Award winning patissier and chocolatier
a British knighthood. awarded to chefs in the UK.
starred Locanda Locatelli
Inspired by his older brother Chris, Jeff started German born, Holger re-joined The Savoy as
his career at the same local restaurant. After Executive Chef in March 2015. Commencing his
catering college, Jeff joined The Savoy as a first stint here in 1999 as Executive Sous Chef,
Commis under the direction of Anton Edelmann. he returned to lead the culinary team, now with
In 1994 he was appointed at Chez Nico at 90 over a decade’s experience garnered in Europe,
Park Lane as Sous Chef and was part of the Africa, Middle East and Russia.
kitchen brigade that achieved the elusive third
Michelin star. A man who believes cuisine speaks its best
through fresh ingredients, Holger wears a heavy
His experience led to his appointment at Marco belt of experience, gathering insight from an
Pierre White’s three Michelin-starred Oak Room, extensive list of countries.
as Head Chef under the direction of Robert
Reid, and in 2000 Marco appointed him as As executive chef, it serves Holger well to
Executive Chef at L’Escargot. realise that the hospitality industry revolves
around guests travelling, often visiting the same
Jeff teamed up with his brother Chris in 2005 hotels but each time with a new lustre, for
to open their first solo venture, the eponymous travel changes minds and palates. For Holger
Galvin Bistrot de Luxe, to much critical acclaim. to have worked across so many unique and
In 2013 Jeff achieved the prestigious Master highly appealing food destinations, it provides
Jeff Galvin of Culinary Arts (MCA). Held every four years, The Savoy with a reignited sense of the world’s Holger Jackisch
Owner of Michelin-starred the MCA is the UK hospitality industry’s most flavours. and for Londoners especially; to fall in Executive Chef at The Savoy
Galvin Restaurants in London prestigious award. love with it all over again.
LIVE AUCTION
Auctioneer Edward Rising
Profuse thanks to all the generous contributors to today’s auction.
Lot 1: Dinner for 12 people in The Wine Built in the 17th Century by Lord Francis Lot 2: A private day of baking for four
Cellar at The Stafford Godolphin and used as an air raid shelter guests with The Baking Chambers
during WWII, these fascinating cellars Mirco Bakery, including lunch and
Nestled in the heart of historic St James’s, house over 8,000 bottles of the world’s an overnight stay at the Bake House,
The Stafford London is the epitome of finest wines. Oare, Malborough
traditional British luxury, steeped in history
and character. Enjoy a sumptuous dinner Valid until 8 June 2019. Subject to The ‘Introductory Course to Artisan Bread
for 12 in the stunning surroundings of the availability. Making’ will give you the confidence to
380-year-old Wine Cellars at The Stafford. bake at home with consistent results.
Kindly donated by The Stafford Hotel In this workshop, you’ll cover, mixing,
Dine from an exclusive three-course www.thestaffordlondon.com kneading and shaping a variety of different
menu created by Culinary Director, Ben types of doughs, including Provencal flat
Tish, paired perfectly with the finest wines bread or ‘Fougasse’, two country-style
selected from The Stafford Cellar by Master loaves made with a starter dough and
Sommelier, Gino Nardella. The Stafford’s rosemary and sea salt Focaccia.
vaulted Wine Cellar provides the perfect
backdrop for any event. The day will run between 10am and 3pm
at The Baking Chambers Micro Bakery in
Oare, Malborough, Wiltshire.
Lunch is included as well as overnight
accommodation in the Bake House, a
luxury boutique country retreat, in the
village of Oare.
Valid until 7 June 2019, subject to
availability.
Kindly donated by
The Baking Chambers
www.thebakingchambers.com
LIVE AUCTION
Lot 3: Seven night stay for two people Lot 4: Princess Diana’s Eulogy from Arms blocked in real gold and the eulogy
on an All-Inclusive basis at Constance Earl Spencer is printed on ivory paper. The previously
Moofushi, Maldives unseen photograph of the late Princess
From 1991, Diana Princess of Wales was Diana and Lord Spencer as children is in
Escape to the Maldives’ South Ari Atoll the Royal Patron of DEBRA. For one of the front of this limited edition.
and the relaxed luxury of Constance Diana’s favoured charities, Lord Spencer
Moofushi. With chic Villas, an overwater has kindly donated to DEBRA a special Each limited copy is numbered and
spa, an impressive house-reef and 32 dive limited edition of his sister’s eulogy to personally signed by Lord Spencer.
sites within 30 minutes - not to mention auction at this special DEBRA 40th
an impressive Premium all–inclusive as Anniversary event. Kindly donated by Earl Spencer
standard; whether you are looking to simply
relax or explore the underwater delights of 20 years after the tragedy of Princess
the Maldives, Constance Moofushi is the Diana’s death, Lord Spencer has produced
place to be! 100 uniquely limited edition copies of his
eulogy at his sister’s funeral. The binding
From ecological thatch roofing to crystal is 100% goatskin leather in Kaduna Claret
clear water, all villas are built and decorated (rich burgundy colour) all bound by hand, in
with wondrous tones of nature with a hint Oundle, Northamptonshire.
of Constance chic. Feast on fresh seafood
and treat your palate to the finest wines in The front features the Spencer Coat of
the sand floored restaurant.
Valid until 9 June 2019, non-transferable
and subject to availability (excluding peak
seasons: Christmas, New Year & Easter
period) and will be confirmed 6 weeks
prior to arrival. The prize excludes: drinks
and meals not included as part of the All-
Inclusive, personal expenses related to the
stay, international and domestic flights, and
transfers.
Kindly donated by Constance
Hotels and Resorts
www.constancehotels.com
LIVE AUCTION
Lot 5: Exclusive tour of Coolmore the and currently features leading sire Galileo. boasts fine local ingredients including wild
world’s leading stud farm, including salmon, Bannow Bay oysters and Wexford
lunch and overnight stay at Marlfield Enjoy a full tour of the farm and visit the mussels.
House for four iconic gallery. See the world’s leading
sire Galileo up close, as well as exciting Coolmore tour for four valid until 7 June
Coolmore Stud, based in County Tipperary, young stallions like Australia, Camelot, 2019, date to be agreed with Coolmore
Ireland, is generally acknowledged to be Caravaggio, Churchill, Gleneagles and Stud. Marlfield House overnight stay for
the world’s biggest, and best, thoroughbred Zoffany. Your tour will be followed by lunch four valid until 7 June 2019, breakfast
racehorse breeding operation. in the boardroom. included, subject to availability, terms and
conditions apply.
Owned by John Magnier and situated in After your tour, enjoy an overnight stay
the heart of the Golden Vale on over 7,000 for four in The Duck Lodge two bedroom Kindly donated by Coolmore
prime acres of Ireland’s finest limestone land, suite at the luxurious Marlfield House, Stud and Marlfield House
Coolmore provides the perfect environment with Champagne afternoon tea on arrival. www.coolmore.com
for breeding and raising thoroughbreds. Relax in 40 acres of manicured gardens, www.marlfieldhouse.com
encompassing a large kitchen garden,
This is a unique opportunity for four people woodland walks, lake and lawns.
to visit Coolmore and to meet some true
equine stars. Coolmore was home to Spend your evening dining in the Duck or
champion sires Sadler’s Wells and Danehill, Conservatory restaurants where the menuLIVE AUCTION
Lot 6: AMAN two night stay at the Moorish heritage is reflected throughout Lot 7: Lincoln Seligman Painting
fabulous Amenjena, Marrakech for two the pisé-walled resort, including the 40
people guest pavilions that radiate from an ancient A unique opportunity to own this fabulous
bassin, echoing the style of a sultan’s piece of art by world famous painter and
Enjoy a two night stay including daily palace. sculptor, Lincoln Seligman. ‘Tying the
breakfast at the luxurious Amenjena. Turban’ is 28x20”, plus 3.5” frame (dark
Valid until 8 June 2019, excludes all peak stained oak and silver leaf). This is one
Surrounded by palm and olive trees, set holiday periods and subject to availability. of his Turban studies resulting from his
between the coast and the Atlas Mountains, frequent travels around India.
at Amanjena opportunities to explore are Kindly donated by AMAN
abound. Embark on a high-altitude trek www.aman.com Lincoln is best known for his large scale
or Saharan adventure, or visit the coastal works of art for modern buildings around
Moroccan city of Essaouira – its medina is a the world. They are usually free standing
UNESCO World Heritage Site. sculptures in bronze, steel or glass, or
floating structures to hang in atrium
Amanjena is also a golfer’s paradise: spaces.
set beside the Amelkis Gold Club’s
championship course, the Royal and Al He has undertaken many large mural
Maaden courses are minutes away. commissions, and has regular gallery
exhibitions of his paintings in London and
New York, including a one man show of
his India paintings at the Royal Academy,
Burlington Gardens.
Until 13 June 2018 it is possible to visit his
latest exhibition at Osborne Studio Gallery,
Motcomb Street, SW1.
Kindly supplied by Lincoln Seligman
www.lincolnseligman.co.uk
www.osg.uk.comLIVE AUCTION
Lot 8: One week work experience at intermingled so that they create a single Lot 9: Learn how to write a book with
Adam & Eve DBB Advertising Agency family of skills to benefit their clients. novelist, Alex Hourston
This is a fantastic opportunity for a creative With clients including YouTube, John IN MY HOUSE, published by Faber and
young person to gain a valuable insight into Lewis, Andriod, Google, H&M and Unilever, Faber was Alex Hourston’s first novel,
the advertsing sector with a week’s work this really is a brilliant opportunity to which was shortlisted for the Lucy
experience at an award winning advertising experience a creative workplace and learn Cavendish Fiction Prize 2013, and was a
agency. from an award winning team. Guardian Book of the Year 2015. Alex’s
second novel LOVE AFTER LOVE was
Adam & Eve DBB have recently won The start date can be mutually decided published in March 2018.
Campaign Agency of the Year for the fourth but must be before 7 June 2019. Travel
consecutive year, as well as numerous expenses paid up to £100. Alex is offering a unique mentoring
other awards. They describe themselves as opportunity to an aspiring novelist. Enjoy
having a simple mission: to work with our Kindly donated by Adam & Eve DBB 16 hours of Alex’s time split between
client partners to make brilliant work that www.adamandeveddb.com face-to-face meetings (either in person in
works. Brighton or by Skype) and the chance for
Alex to read your work, offer feedback on
They are defined by having a highly the writing, as well as give some insider’s
interactive, open way of working and advice!
collaborative culture. They all sit together,
Your time with Alex can be spread out, for Photo credit: David Levenson/Getty Images
example if you meet Alex once a month,
and write 10k words a month, that’s a
whole book done. Or work to a more
compressed timescale, which may be good
for any aspring authors who have already
made a start!
The start date and timescale can be
mutually decided but must be started by 8
September 2018.
Kindly donated by Alex Hourston
Twitter: @alex_hourstonLIVE AUCTION
for people whose
skin doesn’t work
Lot 10: Live Painting by Ben Mosley Tonight Ben is painting a unique piece of we do
(Expressionist and Action Painter) art for our Live Auction.
Ben Mosley is one of Britain’s premiere Kindly supplied by Ben Mosley
live painters. He has been commissioned www.benmosleyart.com
by some of the biggest organisations
within sport, including Wembley Stadium,
Manchester United, McDonalds, The
London Olympics, The Emirates and Dubai
Creek Golf clubs.
He is rapidly becoming a recognised
international artist, with his work being
highly collectable. Ben has raised in excess
of £500,000 for various charities and
the record sale for one of his paintings is
£27,500! DEBRA WINE CHALLENGE AT
NORTON ROSE FULBRIGHT LLP
TUESDAY 9 OCTOBER 2018 • 18:30
A challenge for all wine lovers!
Andrew Brown – our leading wine expert will educate and challenge you
Blind tasting – test your knowledge whilst sampling an intriguing selection of wines
Drinks reception – on a Terrace with stunning views of Tower Bridge
Three course dinner – kindly provided by Norton Rose Fulbright LLP
Perfect environment for entertaining friends and clients
£600 PER TEAM OF FIVE
Norton Rose Fulbright LLP, 3 More London Riverside, London, SE1 2AQ
Book now at www.debra.org.uk/winechallenge or contact the
Events Team events@debra.org.uk or 01344 771961
www.debra.org.uk #FightEBTHANK YOU
A big thank you to all our auction donors • Lucknam Park Hotel & Spa
and to everyone who has contributed to
• Marfield House
making this a great evening and for all your
invaluable support for DEBRA. A particular • Mark Hix
thank you to:
• Michael Gray
• ACE Group
• Niall Rochford
• Adam&EveDDB
• Nigel Wray
• Alex Hourston
• Saracens
• AMAN
• Steve Rider
• Anton Edelmann
• Stratstone of Mayfair
• Badrutt’s Palace Hotel
• The 77 Group
• Ben Mosley
• The Baking Chambers
• Chapel Down
• The Corinthia Hotel London
• Congham Hall Hotel and Spa
• The Four Seasons Hotel, Park Lane
• Constance Hotels & Resorts
• The Goring
• Coolmore Stud
• The Grand Hyatt Hong Kong
• David Wilkinson
• The Hyatt Regency London
• Deer Park Country House Hotel
• The Jumeriah Carlton Tower
• Dr Paul Gallop
• The Lanesborough
• Earl Spencer
• The Savoy
• E.J. Churchill Shooting Ground
•The Stafford London
• Edward Rising
• William Curley
• FR Events
Finally on behalf of DEBRA, thank you to
• Giorgio Locatelli
everyone attending this evening and for
• Holger Jackisch your generosity in tonight’s appeal and
auction.
• Jeff Galvin
• Jonathan Raggett DEBRA Events Team
• Lincoln Seligman
A registered charity in England and Wales (1084958) and Scotland (SC039654). Company limited by
guarantee registered in England and Wales (4118259).
Tel: 01344 771961 · Email: debra@debra.org.uk · Website: debra.org.ukYou can also read
