PROGRAM AND SERVICES REPORT 2020/2021 - ECZEMA SOCIETY OF CANADA OUR MISSION IN ACTION - The ...
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ECZEMA SOCIETY OF CANADA
PROGRAM AND SERVICES
REPORT 2020/2021
OUR MISSION IN ACTION
A MESSAGE FROM THE
EXECUTIVE DIRECTOR
In January 2020 ESC had a laser sharp focus on our vision for the year
ahead. Our strategic goals included education and support for patients
and caregivers, plans to advocate for our community and meet with
decision makers from coast-to-coast, and build on our medical education
programming to improve patient care. We were excited for our expanded
cross-country Life with Eczema in-person event series, which were re-
imagined for 2020 so those touched by eczema could unite, learn, and
share together.
Then the world was turned upside down by COVID-19. Canada united
to stop the spread and our lives were put on pause.
ESC however remained constant; we continued to offer our services,
shifted our in-person events to a digital platform, and were here to serve
our community. The burden of eczema did not pause and neither did ESC.
This year has taught us that while circumstances and delivery of services
may change, the need for support, education and awareness is constant.
We are always here to help.
Sincerely,
Amanda Cresswell-Melville
Executive Director
Eczema Society of Canada
2 ECZEMA SOCIETY OF CANADA
MISSION
Eczema Society of Canada (ESC) is dedicated to meeting
the needs of those suffering with eczema through support,
education, raising awareness, advocating for patients, and ongoing
research activities. As well, we have a strong commitment
to the continuing support of the medical community.
SUPPORT
EDUCATION
AWARENESS
ADVOCACY
RESEARCH
Thank you for your children’s book.
My child read it and said “It’s good
to know other kids have eczema too,
because no one in my class does, and the
book made me feel like it was okay.”
They related to the book in a way
I’ve never seen before.
BY THE NUMBERS
Provide one-on-one A team of more than Millions of print
support to thousands 30 + medical 26 multilingual resources distributed to
of eczema sufferers contributors from volunteers from patients across Canada
annually across Canada across the country
NEWS
Hosted 67 in-person More than
and web-based 45,000 20,000 + 12,000,000 + impressions
patient events ESC subscribers social media followers of our recent media
campaign
Continuing Medical
Education provided to 3 Canadian Dermatology 1 Goal: Improving
20,000 + health care 9 research grants Association Public the lives of Canadians
providers awarded Education Awards suffering with eczema
PROGRAMS AND SERVICES REPORT 2020/2021 5
PROGRAMS & SERVICES
SUPPORT PATIENT EDUCATION
• One-on-one telephone and e-mail support • Distribution of educational materials to
to eczema sufferers and caregivers eczema sufferers and health care providers
• Support volunteers from across the • Distribution of electronic newsletters with
country offer e-mail and telephone support eczema research articles, updates on treatment
in five languages advancements, Ask the Expert column, and
patient stories
• Grant funding for Camp Liberté to
support campers with atopic dermatitis • Seal of Acceptance program
• Psychological support resources for children • Expanded virtual webinar series featuring
and adults leading dermatology, paediatric, and mental
health experts
• Eczema Care Network helps patients and
family physicians find eczema care providers • Developed and launched The Atopic Dermatitis
across Canada Patient Journey a comprehensive report on the
shared patient experience
• Webinars and resources on mental
health impact and strategies for patients
and caregivers
• Caregiver support resources
6 ECZEMA SOCIETY OF CANADAHEALTH CARE CONTINUING
PROVIDER EDUCATION MEDICAL EDUCATION
• Development and dissemination of guiding • Education of 20,000 + health care providers
document: Atopic Dermatitis: A Practical Guide with online certified and/or accredited
to Management, 4th Edition Continuing Medical Education (CME)
programs, including:
• Creation and distribution of resource chart:
Topical Treatments for Atopic Dermatitis ° New atopic dermatitis online CME program
for primary care physicians, nurses, and
• Development of www.guidelines.eczemahelp.ca
nurse practitioners
an online resource developed specifically for
health care providers as a way to easily share ° New atopic dermatitis online CME program
educational resources with patients for pharmacists
• Provide support and eczema education • In-person atopic dermatitis CME programs across
programs to community health care providers Canada (live training paused in March 2020)
in remote areas of Canada
• Development and distribution of Exploring
Eczema a special edition newsletter for health
care providers in Canada
• Support of eczema education
to medical students
PROGRAMS AND SERVICES REPORT 2020/2021 7PATIENT RESOURCES
AVAILABLE
• Managing Eczema Guide • Ask the Doctor about... Series:
• Hand Eczema Guide ° Topical Calcineurin Inhibitors
• Eczema Skin Care Made Simple Infographic ° Topical Corticosteroids
• Educational video series featuring ° Phototherapy
dermatologists from across Canada
• Guide to Choosing Moisturizers and Cleansers
Our FREE printed and downloadable
• Rub It In! Skin Care Chart eczema resource materials are tailored
to patients and health care professionals.
• Eczema School and Daycare Guide
Visit eczemahelp.ca to order.
• Sometimes I Am Itchy Children’s Book
• I Have Eczema Cards
HEALTH CARE PROVIDER
• Children’s Colouring Book
RESOURCES AVAILABLE
• Caring for the Eczema Caregiver
• Guiding document Atopic Dermatitis:
Support Resource
A Practical Guide to Management, 4th Edition
• Managing the Burden of Eczema
• Resource chart Topical Treatments for
Support Resource
Atopic Dermatitis
• Atopic dermatitis guidelines published
in Canadian Pharmacists Journal
8 ECZEMA SOCIETY OF CANADATHE ATOPIC DERMATITIS
PATIENT JOURNEY
ESC is proud to share its report The Atopic
Dermatitis Patient Journey. Based on patient and
caregiver interviews, surveys, and focus groups, the
Journey is a comprehensive look at the AD patient
journey in Canada.
The Journey maps the shared path of patients living
with atopic dermatitis (eczema) from symptom
onset, to diagnosis, to treatment. It aims to shine
a light on the issues and barriers to care faced by
patients and their family members.
With improvements in treatment plans, access to
specialist care, and intervention before a patient
reaches the point of crisis, we can make strides in ESC
improving patient care and reducing suffering.
To read the full report, visit eczemahelp.ca/journey.
PROGRAMS AND SERVICES REPORT 2020/2021 9ECZEMA AWARENESS & ADVOCACY
WE RAISE AWARENESS AMONG:
ECZEMA SUFFERERS PHYSICIANS & HEALTH GOVERNMENT &
CARE PROVIDERS KEY STAKEHOLDERS
• Quarterly and special topic
electronic newsletters • Exhibitions and presentations • Raising awareness about the
• Direct mail campaigns at key conferences impact of eczema on patients
• Guidelines, recommendation and caregivers
• Patient events
documents, written action • Advocating for patients
• Website eczemahelp.ca
plans, and treatment chart for better access to care
• Ongoing media campaigns resources and therapies
• Social media • Direct mail campaigns • Meeting with decision-
• Continuing Medical makers across the country
Education programs to discuss patient needs
and gaps in care
• Hosting virtual Eczema Action
Days with stakeholders and
decision makers
RECENT MEDIA
• Allergic Living Magazine • Charles Adler Show • Flare Magazine • The Montreal Gazette
• Audio News Release • Chatelaine Magazine • Globe and Mail • The Province
• Best Health Magazine • Chatelaine Online • Global News • Today’s Parent
• Calgary Herald • Chronicle of • Global News Story • Star Phoenix, Saskatoon
• Calgary Metro Skin & Allergy (Canada Wide)
• Vancouver Sun
• Canadian Living • Dermatology Nurses • My Skin Magazine
• Canadian Skin Magazine Newsletter • National Post • Video News Release
• CBC News • Edmonton’s Child Magazine • Ottawa Citizen • Windsor Star
• CBC Radio • Edmonton Journal • Pharmacy Practice • Yahoo! Video News Article
• CDA Awareness Campaign • Edmonton Metro Magazine • Yahoo! Health
10 ECZEMA SOCIETY OF CANADARESEARCH
ESC’s competitive Research Grant Program has
awarded more than $200,000 to researchers
across Canada. The program supports programs
aimed at improving quality of life and better
understanding this complex condition.
To learn more about the ESC Research Grant
Program and how to apply, visit eczemahelp.ca.
facebook.com/EczemaSocietyofCanada
twitter.com/@EczemaSocietyCA
I have learned more about
eczema in this webinar than I
@eczemasocietyofcanada
have going to my GP for 2.5 yrs.
SERIOUSLY LIFE-CHANGING.
youtube.com/eczemahelp
Thank you again.
PROGRAMS AND SERVICES REPORT 2020/2021Thank you so much for
everything you do. I found
your educational resources
to be very informative and
I look forward to applying
all of your tips to help
with my eczema.SEAL OF ACCEPTANCE
PROGRAM
Our Seal of Acceptance (SOA) products are • Products that have earned the ESC Seal
intended for use by people with eczema. These of Acceptance may use the Seal on products
products must meet specific criteria, undergo and in marketing materials
rigorous clinical testing, and scientific review
• The SOA review process includes rigorous
to earn the Seal of Acceptance.
dermatological review of product formulations
Products identified as ‘accepted’ by the Eczema and testing data
Society of Canada and that carry our Seal are
If you would like more information on earning
free of ingredients known to be irritating for
the Seal of Acceptance for your products, contact
sensitive skin and have undergone dermatologist
Executive Director Amanda Cresswell-Melville
formulation review.
for more information.
E-mail: director@eczemahelp.ca
Phone: 1-855-ECZEMA-1
PROGRAMS AND SERVICES REPORT 2020/2021 13ESC EXPENDITURES
92% Charitable Programming
8% Administration
*Based on 2019 ESC Financial Year End
To view our Financial Reports visit cra-arc.gc.ca.
Charity Registration # 872216098RR001
ESC is able to fulfill our mission through the generous support of
our corporate sponsors, our volunteers, and our private citizen donors.
DONATIONS
Eczema Society of Canada relies on corporate Donations are accepted by cheque and secure
grants and private citizen donations to put its credit card donations can be made online via
mission into action. All donations $20 and Canada Helps at eczemahelp.ca/donate/.
greater are eligible for an official tax receipt,
and 100% of all private citizen donations fund
ESC’s Research Grant Program.
14 ECZEMA SOCIETY OF CANADADONORS AND SPONSORS
ESC sincerely thanks our donors, granting organizations,
and our corporate sponsors for their educational grants,
all of which helps ESC to fulfill our mission.
PLATINUM
($100,000 +)
Johnson & Johnson Inc.
Sanofi Canada GOLD
Pfizer Canada ($50,000–$99,999)
Unilever Canada
SILVER
($25,000–$49,999) BRONZE
Bausch Health Canada ($10,000–$24,999)
Galderma Canada
AbbVie Canada
Procter and Gamble Canada
Beiersdorf Canada
NAOS Canada Inc.
GlaxoSmithKline Canada
LEO Pharma Inc.
Paladin Labs Inc. L’Oreal Canada Inc.
Pierre Fabre Blistex Inc.
Gorilla Glue Company
Henkel Canada
WellSpring Consumer
Health Care
PROGRAMS AND SERVICES REPORT 2020/2021 15BOARD OF DIRECTORS
Our Board of Directors exemplify ESC’s continued commitment
to improving the lives of eczema sufferers. They bring expertise,
vision, and governance oversight to our organization.
DR. RACHEL ASINIWASIS
MD, FRCPC (Dermatology)
Regina, Saskatchewan
DR. JAMES BERGMAN
MD, FRCPC (Allergy, Dermatology, Paediatrics)
Vancouver, British Columbia
AMANDA CRESSWELL-MELVILLE
Honours BA, BEd
Executive Director
Toronto, Ontario
DR. SIMON NIGEN
MD, FRCPC (Dermatology)
Montréal, Quebec
MIKE LANIGAN
MBA
Toronto, Ontario
16 ECZEMA SOCIETY OF CANADAESC TEAM
ESC consists of dedicated individuals who are all
personally impacted by eczema. We are committed to providing
support for eczema patients and their families, and are here to help.
AMANDA CRESSWELL-MELVILLE
Executive Director
director@eczemahelp.ca
JENNIFER AVES
Support Services and Office Manager
info@eczemahelp.ca
FOR COMMUNICATIONS, CONTACT:
communications@eczemahelp.ca
FOR FRENCH SUPPORT SERVICES, CONTACT:
aide@eczemahelp.ca
PROGRAMS AND SERVICES REPORT 2020/2021 17MEDICAL CONTRIBUTORS
With the help of dedicated physicians and professionals,
we are able to deliver evidence based, up-to-date disease
and treatment information to Canadians living with eczema.
DR. YUKA ASAI DR. PHILIP DOIRON DR. PETER GREEN
MD, MSc, PhD, FRCPC MD, FRCPC (Dermatology) MD, FRCPC (Dermatology)
(Dermatology) Toronto, Ontario Halifax, Nova Scotia
Kingston, Ontario
DR. AARON DRUCKER DR. CHRISTINA HAN
DR. RACHEL ASINIWASIS MD, FRCPC (Dermatology) MD, FRCPC (Dermatology)
MD, FRCPC (Dermatology) Toronto, Ontario Vancouver, British Columbia
Regina, Saskatchewan
DR. MELINDA DR. CAROLYN JACK
DR. KIRK BARBER GOODERHAM MD, PhD, FRCPC (Dermatology)
MD, FRCPC (Dermatology) MD, FRCPC (Dermatology) Montreal, Quebec
Calgary, Alberta Peterborough, Ontario
DR. MARISSA JOSEPH
DR. JAMES BERGMAN MARIE-ÈVE FORTIER MD, FRCPC (Dermatology,
MD, FRCPC RN (Dermatology) Paediatrics)
(Allergy, Dermatology, Paediatrics) Quebec, Quebec Toronto, Ontario
Vancouver, British Columbia
DR. MARTIN GILBERT DR. SUNIL KALIA
DR. GILLIAN DE GANNES MD, FRCPC (Dermatology) MD, FRCPC
MD, FRCPC (Dermatology) Quebec, Quebec (Dermatology)
Vancouver, British Columbia Vancouver, British Columbia
18 ECZEMA SOCIETY OF CANADADR. JOSEPH LAM DR. SIMON NIGEN DR. NEIL SHEAR
MD, FRCPC (Paediatrics) MD, FRCPC (Dermatology) MD, FRCPC (Dermatology,
Vancouver, British Columbia Montréal, Quebec Internal Medicine, Pharmacology)
Toronto, Ontario
DR. IAN LANDELLS DR. VIMAL H. PRAJAPATI
MD, FRCPC (Dermatology) MD, FRCPC, FAAD MELISSA SWEET
St. John’s, Newfoundland (Dermatology) BSc, MEd (Behavioural Therapist)
Calgary, Alberta Newmarket, Ontario
JANICE LEBLANC
BFA, BEd, DTATI, RP, RCAT DR. MICHELE RAMIEN DR. MIRIAM WEINSTEIN
Sharon, Ontario MD, FRCPC (Dermatology) BScN, MD, FRCPC
Calgary, Alberta (Dermatology, Paediatrics)
Toronto, Ontario
DR. HERMENIO LIMA
MD, PhD , FRCPC DR. JAGGI RAO
(Allergy, Dermatology) MD, FRCPC (Dermatology) DR. MARNI WISEMAN
Hamilton, Ontario Edmonton, Alberta MD, FRCPC (Dermatology)
Winnipeg, Manitoba
DR. CHARLES LYNDE DR. WINGFIELD
MD, FRCPC (Dermatology) REHMUS DR. IAN TIN YUE WONG
Markham, Ontario MD, MPH, FAAD (Dermatology) MD, BSc (Pharm), RPh
Vancouver, British Columbia Vancouver, British Columbia
DR. DANIELLE
MARCOUX DR. SHAWN REYNOLDS
MD, FRCPC (Dermatology) PhD, R Psych (Psychologist)
Montréal, Quebec Edmonton, Alberta
PROGRAMS AND SERVICES REPORT 2020/2021 19ECZEMA SOCIETY OF CANADA
1-855-ECZEMA-1
info@eczemahelp.ca
eczemahelp.ca
Copyright © Eczema Society of Canada / Société canadienne de l’eczéma 2021. All rights reserved.You can also read
