QUALITY ACCOUNT 2017-2018 - Peter MacCallum Cancer Centre

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QUALITY ACCOUNT
2017–2018
OUR VISION                      OUR VALUES
To provide the best in cancer   Our work is guided everyday by
                                our values of excellence, innovation
care, accelerating discovery,
                                and compassion.
translating to cures.
                                We strive for excellence, ensuring
                                that clinical practice is evidence-
                                based and patient-centred
                                and is provided by qualified
                                and experienced staff who are
                                accountable and appropriately
                                credentialed.
                                We strive to ensure that innovation
                                is fostered by supporting research
                                and a learning culture.
                                We adhere to the strongest ethical
                                standards to ensure a culture of
                                openness, mutual respect and trust.
                                Compassion is at our core.
ABOUT US

160,000+            300,000                                                   600

specialist clinic      cancer                                   research articles published
 appointments        treatments                                   in prestigious journals

  $80M                 225                                                      41

   research         active clinical                                         research
    budget              trials                                            laboratories

 $380M                 600                                                       5

    hospital          research                                             sites across
    budget           employees                                                Victoria

                                      World’s Best Cancer Care Quality Account 2017-18        3.
WELCOME FROM
     OUR INTERIM
     CHIEF EXECUTIVE.
        I’m very pleased to present you with      as we fine tune the ways we deliver
        the Peter Mac Quality Account for         care, enhance our systems and
        2017-2018.                                processes, and implement new
                                                  technology. On page seven we
        We produce this document each
                                                  profile Graham Comber, a telehealth
        year as a report to our community,
                                                  patient who has been able to travel
        proudly demonstrating the quality of
                                                  around Australia with his wife
        our care and the ways we improve
                                                  Jenny, checking in via his iPad for
        our service in response to your
                                                  appointments. And on page eight,
        feedback.
                                                  we report on the Virtual Reality
        Peter Mac is one of the world’s           technology we use to help kids deal
        leading cancer research, education        with radiotherapy.
        and treatment centres and is
                                                  Understanding that cancer doesn’t
        Australia’s only public hospital solely
                                                  discriminate, we work with
        dedicated to treating people affected
                                                  individuals and communities who
        by cancer.
                                                  may be particularly vulnerable.
        But not only is clinical excellence       Further in this document, we
        our objective, the way we deliver our     outline our focus on LGBTI people,
        services through a culture of deep        describe our staff training around
        personal care and connection puts         family violence and announce the
        the physical, emotional and social        formalisation of a very important
        needs of patients front and centre.       relationship with Victoria’s peak
                                                  body for the health and wellbeing
        In this document, we cover some of        of Aboriginals, VACCHO (Victorian
        the ways we do this. As an example,       Aboriginal Community Controlled
        the accessibility audit we conducted      Health Organisation).
        with visitors, staff and patients
        who have physical and/or sensory          Because we are always exploring
        disabilities has introduced physical      models of care that accommodate
        accessibility aids to help people get     patient preferences, we have
        around the hospital more easily. And,     introduced a nurse-led survivorship
        a recent survey of palliative care        breast cancer clinic to help guide
        inpatients and outpatients will now       patients after their treatment with
        help us improve their engagement in       us has finished, and have recently
        very personal ways.                       started a program where selected
                                                  patients are able to give themselves
        We don’t rest on our laurels. We drive    subcutaneous immunoglobulin
        continuous quality improvement,           at home.

1.
We want our patients to be able
to participate in their care and
treatment as they choose. We are
always trying to help improve health
literacy for patients, carers and the
community, so they come to rely on
us as a reputable and trusted source
of information. As examples, new
information hubs in our treatment
wards 2C and 2D are helping us to
connect with patients and empower
them with the information they need
about their cancer.
Each one of these initiatives has
been researched, planned and
carefully considered to not only
improve what we do but how we
do it.
I hope you enjoy reading this
Quality Account.

Nicole Tweddle
Interim Chief Executive

     World’s Best Cancer Care Quality Account 2017-18   2.
BREAST CANCER
     SURVIVORSHIP
     PLANS.
       As breast cancer becomes more common and survival rates
       improve, more and more people with the disease are living
       longer after apparently successful cancer treatment. Most are
       perfectly well, but many face various physical and psychological
       consequences of the disease and its treatment.
       Improving cancer outcomes is            Patients who have had early stage
       fantastic news for the entire           breast cancer or the condition known
       population. Our role and obligation     as DCIS (an acronym for ductal
       to the community and our patients is    carcinoma in situ which is a pre-
       to provide care for our breast cancer   cancerous condition) and are 6-12
       patients after they complete their      months post diagnosis following
       intensive hospital-based treatments.    completion of active treatment are
                                               offered Survivorship Care Planning.
       A breast cancer clinic for survivors,
       being led by our magnificent breast
       care nurses, is now offering patients
       specific Survivorship Care Planning,
       designed to identify and address any
       unmet needs, and also develop a
       long-term care plan.

3.
PLANNING FOR THE FUTURE
In preparation for an extended            and then led the grant application
consultation with a breast care           that allowed a version of the
nurse, each patient completes a           program to be offered to Peter Mac
suite of questionnaires. During           patients.
the consultation, the patient’s
                                          He explains that the program works
pathology and treatment is reviewed,
                                          simply and effectively.
the results of the questionnaires
are discussed and a summary is
generated that includes a health          “Most people who have had
and wellbeing plan with a follow-up
schedule.                                 breast cancer recover extremely
Women are then encouraged to              well, but many are left with
have an extended consultation with        the effects of the disease and
their General Practitioner (GP) to
review the Survivorship Care Plan         treatment,” Bruce says.
and incorporate it into their on-going
care. General Practitioners have a
                                          “Patients have a range of things they
vital role to play in breast cancer
                                          may want to discuss – menopause,
survivorship, and therefore follow-up
                                          sexual health, mental health,
care that is shared between hospital
                                          the physical effects of having
and GP is ideal.
                                          gone through cancer and fear of
Professor Bruce Mann is Director          recurrence.”
of the Breast Tumour Stream at
                                          “Having the opportunity for a
Peter Mac, as well as at The Royal
                                          prolonged consultation with a breast
Melbourne and Royal Women’s
                                          care nurse at the end of treatment
Hospitals.
                                          means that we can be sure we are
“The involvement of GPs in shared         not overlooking any major issues,
care follow-up demonstrates a             and helps our patients move on with
genuine partnership between Peter         their lives.”
Mac and our specialists and primary
carers. These complementary
strengths and skills work together
in the best interests of our patients,”
explains Bruce.
He has led similar projects at these
hospitals, which have embedded a
robust Survivorship Care Planning,

                                               World’s Best Cancer Care Quality Account 2017-18   4.
PETER MAC CELEBRATES
      FIRST VICTORIAN SAME
      SEX MARRIAGE.
            In a moving and bittersweet ceremony, Peter Mac patient Cas and
            her partner of 17 years, Heather, married at our Wellbeing Centre
            in December 2017.
            At 53 years old, Cas had breast cancer   Along the way, Cas had a double
            that had metastasised in her brain.      mastectomy, her ovaries removed,
                                                     radiation treatment and chemotherapy.
            The terminal diagnosis was handed
                                                     For a time, she thought she had at
            down only days before Australia had
                                                     least bought herself a few extra years.
            voted ‘yes’ for same sex marriage. Cas
            and Heather were engaged as soon as      “Cas tried everything to eliminate
            Parliament made it official.             ‘the intruder’ from her body,” Heather
                                                     says. “She questioned and accepted
            Although a one-month notice period
                                                     every treatment and strived for
            is typically required for couples
                                                     a successful outcome with every
            to marry in Australia, leniency is
                                                     breath she could until we got the final
            given for couples in extraordinary
                                                     heartbreaking news.”
            circumstances.
            As Heather says, theirs were the most
            extraordinary of circumstances.

     “Peter Mac created a
     beautiful memory which will
     be cherished forever.”

5.
CAS AND HEATHER ALWAYS WANTED TO MARRY
Long before her diagnosis of             Cas passed away eleven days later,
terminal illness, Cas and Heather        in Peter Mac, where she had been
always thought they would legally        admitted for further treatment and
marry if they could.                     where she felt comfortable to move
                                         on from this life.
Because of Cas’ treatment schedule,
Heather says that they were relieved     “Cas was everything to me and to
that the Peter Mac team supported        have the chance to call her my wife
their wishes.                            is a feeling I find difficult to explain,
                                         except to say it is an honour to
And on their wedding day, Heather
                                         carry on Cas’ legacy as her wife,”
says she experienced the most
                                         says Heather.
beautiful feeling she’d ever known.
“The room was full of pure love,”
she says. “By this time, Cas knew
her time was limited and had said
she actually felt that her vibrational
energy had changed, it was such an
emotional experience.”
This incredibly moving expression
of Peter Mac’s holistic approach
to cancer care and the love the
couple shared culminated in the
moment as the Registrar of Births,
Deaths and Marriages presented
the newlyweds with the first official
marriage certificate for a same sex
couple in Victoria.

                                               World’s Best Cancer Care Quality Account 2017-18   6.
HOW TELEHEALTH HAS MADE
     MY TRAVEL PLANS COME TRUE
     WHILE LIVING WITH CANCER.
             Hi. I’m Graham, a cancer patient          More to make light of the bad news
             under Professor Simon Harrison at         than being serious, I told Simon
             Peter Mac.                                of our travel plans and asked,
                                                       “Don’t suppose Peter Mac does
             I would like to tell all how Peter
                                                       e-consultations?”. To my delight he
             Mac’s wonderful telehealth facility
                                                       said a resounding “Yes!”, provided we
             and their equally amazing oncology
                                                       could plan for blood tests at roughly
             staff have made carrying on a
                                                       weekly intervals.
             normal life with cancer not just
             possible, but almost painless.
                                                       After a few seconds thought, we
             In December 2011, I was diagnosed
             with Multiple Myeloma. However,
                                                       were introduced to Peter Mac’s
             after a stem cell transplant and          wonderful telehealth facility.
             an initial recovery period from
             the procedure, my situation was           Having finalised the initial medication
             thankfully put on the back burner.        introduction and planned for the
             This allowed my wife Jenny and            trip with our friends, my oncologist
             myself to lead a fairly active            consultant Simon and his team
             retirement in between three to four       armed us with a heap of weekly and
             monthly check-ups, including our          monthly blood test requests. They
             wish to travel around Australia.          booked us in with telehealth for our
                                                       first e-consultancy on the road from
             Things were looking up early in
                                                       wherever we would be in four weeks.
             2018 and so planning for the trip of
             a lifetime was well under way when,       I can attest that the service is
             on a regular check-up at Peter Mac,       extremely easy to use for anybody
             Professor Simon Harrison gave me          who can browse the internet and
             the news that I had now contracted        be contacted by phone or email.
             a secondary cancer, which could           Appointments are usually with your
             likely be treated with drugs but, for a   personal Peter Mac consultant so
             few months, would require frequent        that your continuity and confidence
             blood tests and consultations.            in care is maintained.
                                                       Since that time Peter Mac telehealth
                                                       has allowed us, with almost zero
     Peter Mac’s telehealth services                   planning and inconvenience, to travel
     make it possible for their                        extensively from our home town
     wonderful medical staff to                        near Melbourne, to South Australia
     maintain a very personalised                      and up through the red centre to
                                                       Darwin, then down the west coast to
     and effective continuation                        Perth and beyond. We have visited
     of your cancer monitoring,                        many beautiful and iconic points that
     diagnosis and treatment.                          Australia has to discover in between.

7.
TELEHEALTH
UPDATE.

   As part of our commitment to            Telehealth is great for many types
   providing the best care as close        of appointments such as a review
   to home as possible, Peter Mac          before chemo, routine follow up,
   introduced telehealth consultations     getting results or planning the next
   in 2017 for all patients where          steps in treatment. All patients need
   clinically appropriate.                 is a device with internet, camera and
                                           audio functions.
   Through telehealth, patients can
   have an appointment with their Peter    Find more information at
   Mac specialist by video from their      petermac.org/telehealth.
   home, with their local GP, from their
   local health service or, like Graham,
   on the road!
   Our telehealth consultations
   expanded last year and Peter
   Mac conducted 411 telehealth
   appointments.

  “Our son, Connor had radiation at Peter Mac and experienced the
  wonderful team dedicated to making every part of the radiation
  ‘experience’ as seamless as possible,” says Liz, founder and CEO
  of the Robert Connor Dawes Foundation. “We are grateful we
  can fund the VR goggles in hopes of helping prepare children
  and reduce stress relating to their radiation treatment.”

                                                World’s Best Cancer Care Quality Account 2017-18   8.
VIRTUAL REALITY HELPS
     KIDS BETTER PREPARE
     FOR RADIOTHERAPY.
        Peter Mac treats all children from        “It is hoped that by experiencing this
        the Royal Children’s Hospital who         in VR – in a supportive environment
        require Radiation Therapy as part         and well before they arrive for
        of their cancer treatment. These          treatment – that more children can
        patients range from babies through        have this treatment without the need
        to young adults.                          for sedation.”
        “Radiotherapy can be a challenging        Participating patients receive a set of
        experience even for our adult             VR goggles loaded with a purpose-
        patients as they must lay very still      created VR video. Young patients
        on a large machine, usually with a        watch this in the comfort and safety
        mask or other cover to prevent body       of their own home.
        movement,” says Nigel Anderson,
                                                  They get a treatment-like experience
        Principal Research Radiation
                                                  where they can look around the
        Therapist at Peter Mac.
                                                  radiotherapy machine, see how it
        “Many children require general            works and learn what to expect.
        anaesthesia for each treatment
                                                  Early patient and family feedback
        session, to ensure they lay still
                                                  indicates reduced anxiety, and
        and we can accurately target
                                                  improved understanding of the
        their tumour.”
                                                  radiotherapy process for not only
        Our young patients are using              patients and families but broader
        Virtual Reality, or VR, goggles to        support networks. Some children
        experience what radiotherapy is           have taken their VR googles to
        like before they come to Peter Mac        school to give their classmates a
        for treatment, as part of a ground-       better understanding of what they’re
        breaking trial funded by the Robert       going through!
        Connor Dawes Foundation.
        The trial, also involving the Murdoch
        Children’s Research Institute, is
        understood to be the first to use VR in
        this setting and it is already showing
        positive results in reducing anxiety.

9.
TREATING
THEMSELVES
AT HOME.
  Most Peter Mac patients are seen as outpatients in our
  clinics. Some of them travel great distances and they may be
  inconvenienced by the time away from work and the expense.
  But, when it’s possible, we like to give our patients options to
  be treated where and when they want, ideally in the comfort of
  their own home.
  Our Subcutaneous Immunoglobulin        There is no cost to the patient for
  (SCIg) home management program         consumables such as delivery
  is a terrific example. In March        pumps, syringes or needles.
  2018, we trained our first patient
                                         The clinical benefits are hard to
  to give themselves subcutaneous
                                         ignore. Multiple studies have shown
  immunoglobulin at home.
                                         that home-based SCIg improves
  Immunoglobulin replacement             important aspects of health-related
  therapy is the standard of             quality of life, including improvement
  care for patients with acquired        in the perception of general health
  hypogammaglobulinaemia                 and wellbeing compared to full
  secondary to haematological            intravenous immunoglobulin.
  malignancies chronic lymphocytic
                                         Treatment satisfaction improves with
  leukaemia, multiple myeloma,
                                         SCIg use. Patients tell us that they
  non-Hodgkin lymphoma and
                                         appreciate the independence, the
  other relevant malignancies,
                                         convenience and less interference
  and post haemopoietic stem cell
                                         with their social, education and work
  transplantation.
                                         activities.
  There are many benefits to receiving
                                         The service has recently allowed
  immunoglobulins subcutaneously.
                                         one patient to travel overseas for
  The process is ideally suited for
                                         12 weeks with SCIg – something he
  patients with IV access difficulties
                                         was unable to do while on monthly
  and can be used for patients with
                                         intravenous immunoglobulin therapy.
  previous systemic reactions to
  intravenous immunoglobulin, known      So far, 25 patients are self-
  as IVIg.                               administering immunoglobulin
                                         therapy in their own homes. More
  PATIENT TRAINING                       patients are now being identified and
  To help patients feel confident and    offered the home therapy program,
  comfortable, they are given as many    which means they will not need to
  training and education sessions as     travel to Peter Mac every month for
  they require by a dedicated SCIg       their immunoglobulin replacement
  Nurse Consultant.                      therapy.

                                               World’s Best Cancer Care Quality Account 2017-18   10.
IMPROVING CARE FOR
      ABORIGINAL PATIENTS.

         Peter Mac is committed                  The MoU reflects our commitment
         to closing the gap in life              to working with our Aboriginal and
                                                 Torres Strait Islander communities
         expectancy between                      to improve cancer outcomes and
         Aboriginal and non-Aboriginal           experience of care at Peter Mac.
         people, and providing health
                                                 Some of the other activities we are
         services and information                planning include:
         in a culturally appropriate,            • Development of a culturally
         welcoming environment.                     appropriate resource that
         Our Aboriginal Health Strategic            describes cancer care at
         Framework has been designed                Peter Mac and the services
         to promote better cancer health            available for our Aboriginal and
         outcomes for Aboriginal patients. It       Torres Strait Islander people
         includes establishing collaborations       accessing care, including use
         with key stakeholders to explore           of our possum skin cloak
         ways we can improve appropriate         • Working with VACCHO to provide
         access to care.                            Aboriginal Cultural Awareness
                                                    training for Peter Mac staff
         We were very proud to sign a            • The establishment of an
         Memorandum of Understanding                Aboriginal and Torres Strait
         (MoU) with Victorian Aboriginal            Islander Advisory Group that
         Controlled Community Health                will guide us as we ensure
         Organisation, known as VACCHO,             a culturally safe service.
         this year. This partnership is
         very important to us and we are
         privileged to partner with Victoria’s
         peak Aboriginal health body.

11.
WRAPPED UP
IN CULTURE.

   Traditional cultural practices to     Aboriginal patients to request during
   support spiritual wellbeing are       their time at Peter Mac.
   vital in improving cancer outcomes
                                         As culture is connected to wellbeing,
   for Aboriginal and Torres Strait
                                         the cloak – the first of its kind in a
   Islander people.
                                         Victorian health service – means
   In a joint initiative of the Breast   that Aboriginal people are able to be
   Cancer Network Australia, VACCHO      physically wrapped in culture when
   and Peter Mac, a beautiful possum     they use the cloak during their time
   skin cloak was handmade by 16         in treatment.
   Aboriginal women who are cancer
   survivors over three days in our
   Wellbeing Centre. It is proudly
   displayed and is available for

                                               World’s Best Cancer Care Quality Account 2017-18   12.
A SAFE AND WELCOMING
      ENVIRONMENT FOR
      LGBTI PEOPLE.
         With a deep commitment to               Peter Mac is committed to
         inclusion and diversity, Peter Mac      providing a safe, compassionate
         works hard to promote accessibility     and supportive environment for
         for all Victorians including the        all employees and patients and so
         economically or geographically          will continue to explore respectful
         disadvantaged, Aboriginal and Torres    responses to support the health
         Strait Islanders (ATSI), people with    and wellbeing of LGBTI people and
         disability, and those from Culturally   communities.
         And Linguistically Diverse (CALD) and
         Lesbian, Gay, Bisexual, Transgender
         and Intersex (LBGTI) backgrounds.
         With our LGBTI community, we do
         this in a range of ways.
         • We are currently developing an
            LGBTI Action Plan with input from
            Lesbian and Gay Health Victoria.
         • We are also undertaking
            research to better understand
            how cancer affects LGBTI
            people and their experience.
         • We continue to progress new
            approaches to support our
            LGBTI patients and our staff.
         • And, in recognition and
            celebration of the International
            Day Against Homophobia,
            Biphobia, Intersexism and
            Transphobia Day, Peter Mac held
            our inaugural event in May 2018.
            We plan to do the same in 2019.

13.
Food brings people together
People from culturally diverse backgrounds represent
a large proportion of cancer diagnoses in Victoria.
They may have difficulty navigating unfamiliar
services, require additional support, or face
discrimination.
Peter Mac received a grant from the Health Issues
Centre in 2017 to increase the engagement of
culturally diverse consumers in the Peter Mac
Prevention and Wellbeing Program.
Consumers from Chinese, Vietnamese, Italian, Greek
and Arabic backgrounds were engaged as co-leads on
the project to develop and deliver culturally relevant
activities to improve their wellbeing.
Activities included traditional cooking sessions, art/
craft, cultural dance and music performances.

                                  World’s Best Cancer Care Quality Account 2017-18   14.
ESCALATING
      URGENT CARE.

         If a patient, their carer or a          We promote PEER in our inpatient
         family member believes that             and outpatient areas, in the
                                                 form of written and electronic
         the patient is feeling less well,       communication, and also do this
         PEER (Patient Emergency                 in five different languages. Peter
         Escalation Response) is our             Mac patients and carers are given
         care system that connects               a brochure, which explains how a
         them directly and urgently              patient or their carer can alert our
                                                 employees if they feel something has
         with a senior nurse.                    worsened.
         While we have efficient clinical
                                                 Monitoring of PEER occurs through
         measures to detect clinical
                                                 the bedside audit tool and is reported
         deterioration, our patients and
                                                 through divisional meetings,
         families are encouraged to
                                                 with oversight at the Executive
         communicate with care teams, as
                                                 Quality Committee and Acute Care
         they know the patient best.
                                                 Committee.
         As an example, a PEER was recently
                                                 The PEER is an additional way that
         called by a patient’s relative about
                                                 we can connect with patients and
         a patient while staying at our
                                                 their families, and gives them the
         accommodation, which is within the
                                                 ability to take quick action if they
         hospital. Following an initial PEER
                                                 need assistance.
         review in the accommodation, we
         were able to hear the concerns. After
         an assessment, the patient was
         admitted into hospital.

15.
ENCOURAGING PEOPLE TO
PARTICIPATE IN THEIR OWN
HEALTHCARE.
   At Peter Mac, we encourage              First, the Cancer Information Hub,
   our patients to be involved in          located at Clinic 2D, has been
                                           redesigned into an inviting cancer
   their care by helping them to           information space. It is furnished and
   understand what is happening            stocked with key cancer resources
   to them and to be as well               for patients and others. The hub
   informed as they choose. We             includes sections for patients looking
   regularly ask our patients              for information tailored to ATSI, CALD
                                           and LGBTI needs.
   ‘What is important to you and
   how can we help?’                       Second, to ensure clinic 2C patients
                                           have access to information and
   A recent survey of our patients was     resources, we positioned a large
   undertaken within our Specialist        display unit in close proximity to
   Clinics to explore the importance       the waiting area. All written
   and accessibility of written            information on the display unit is
   information and resources for           rotated in accordance to the clinics
   effective healthcare engagement. Of     that are running.
   the patients surveyed, 94 per cent
   said it’s important to have relevant,
   written cancer information available
   at or near the appointment place.
   From this feedback, we decided to
   undertake two key activities to help
   make information more accessible
   and understandable.

                                                World’s Best Cancer Care Quality Account 2017-18   16.
PARKVILLE
      INTEGRATED PALLIATIVE
      CARE SERVICE.
              Mary was a 74 year old widow, cared        These measures were regularly
              for by her two adult children and          recorded in Mary’s medical chart, to
              supported by her five grandchildren.       allow her treating team to be aware
                                                         of how things were progressing
              She had been treated for three years
                                                         while managing Mary’s needs in real
              for breast cancer, but was becoming
                                                         time. In addition, these measures
              more unwell as her disease became
                                                         were recorded and analysed as part
              more advanced. The team looking
                                                         of a system of recording quality
              after her recognised a range of
                                                         outcomes for patients receiving
              ‘triggers’ that led to an early referral
                                                         palliative care across Australia, to
              to the palliative care team.
                                                         allow our clinicians to measure
              A series of staff education                the quality of care we provide in
              forums teaches our staff about             comparison to services across
              what to look for. The aim is               Australia.
              that we identify patients who
                                                         It was agreed that Mary wanted to
              could benefit from palliative
                                                         be cared for at home as her illness
              care involvement, particularly
                                                         reached its final stages. Hospital
              those with advancing disease.
                                                         equipment was arranged to be
              The palliative care team, consisting       loaned from the hospital to assist her
              of doctors, nurses, allied health and      care at home. She was then seen in
              pastoral care workers, met Mary. At        hospital by our Rapid Review home
              her request, a prompt meeting with         care palliative care team, who were
              her and her family was organised.          able to see Mary at home the same
              Mary was supported to make key             day as her discharge, to ensure
              decisions about her future care, with      she had a safe and comfortable
              a focus on her understanding of her        transition to home-based care.
              illness, and her wishes for treatment
              and the goals she wanted to achieve.

      A thorough palliative care review was undertaken, and Mary
      was asked to describe the symptoms she was experiencing
      such as pain, nausea and anxiety, to guide specific treatments,
      and respond to both her needs and those of her family.

17.
Mary was able to stay at home with       outreach program via community
the support of her family and the        providers all over Victoria.
palliative care team right up until
                                         In a recent audit that compared the
the end. Whilst every death is sad,
                                         characteristics of 100 inpatients
the team was proud that they were
                                         and 100 outpatients referred to
able to provide premium personal
                                         the service, it was identified that
care to Mary, in the way and place
                                         patients were more likely to have
that she wanted.
                                         their family members present when
Palliative care improves the quality     they were seen in the outpatient
of life of patients and their families   services compared with those
facing problems associated with life-    patients who were assessed in the
threatening illness.                     inpatient setting.
We aim to prevent and relieve            What this means is that a better
suffering by carefully treating pain     discussion about end of life and
and other problems – physical,           dying tends to happen when families
psychosocial and spiritual.              and carers are involved.
The Parkville Integrated Palliative      The results of the audit are now
Care Service is a partnership between    being assessed to determine how
Peter Mac, The Royal Melbourne           we can refine the service so that
Hospital and The Royal Women’s           palliative care continues to provide
Hospital that provides support for end   a better quality of life, engagement
of life care and planning.               and living.
It does this through consultations
with inpatients, through ten
outpatient clinics per week and an

                                              World’s Best Cancer Care Quality Account 2017-18   18.
OUR PEOPLE
         MATTER.
                    A positive workplace culture               staff are required to undertake it
                    has benefits for our staff and             within three months of starting their
                                                               employment. Since January 2018,
                    our patients.                              more than 300 staff members have
                    Our culture of support and dignity,        attended the course.
                    compassion and care isn’t just
                    extended to our patients – it’s the        2017 PEOPLE MATTER
                    way we treat each other as staff           STAFF SURVEY
                    members as well.
                                                               The People Matter Survey is a
                    At Peter Mac, we have a suite of           public sector employee opinion
                    professional development and               survey run by the Victorian Public
                    training programs, and in-house            Sector Commission. The survey
                    policies designed to foster a              gives people the opportunity to
                    collegiate professional working            express their views on how public
                    environment which translates, in           sector values and employment
                    turn, to improved service and care         principles are demonstrated within
                    for our patients.                          their organisation by colleagues,
                                                               managers and senior leaders.
                    In October 2017 we reviewed and
                                                               The survey also measures the
                    refreshed staff training to include
                                                               level of staff engagement and job
                    a section taken from the Royal
                                                               satisfaction.
                    Australasian College of Surgeons
                    “Operating with Respect” e-learning        In the past year, 88 per cent of
                    course. This particular training           our staff agreed that they would
                    highlights the importance of building      “recommend a friend or relative to
                    a respectful, collaborative culture. All   be treated as a patient here.”

People Matter Survey 2018 – Patient Safety Questions

 Question                                                                                              2018

 Patient care errors are handled appropriately in my work area                                         69%

 This health service does a good job of training new and existing staff                                56%

 I am encouraged by my colleagues to report any patient safety concerns I may have                     78%

 Trainees in my discipline are adequately supervised                                                   67%

 My suggestions about patient safety would be acted upon if I expressed them to my manager             74%

 Management is driving us to be a safety-centred organisation                                          76%

 I would recommend a friend or relative to be treated as a patient here                                88%

 The average agreement with the above questions that measure patient safety                            72%

19.
ASSESSING OUR PERFORMANCE AGAINST
                     NATIONAL STANDARDS
                     Peter Mac is assessed against the       Peter Mac’s overall SAB rate is
                     National Safety and Quality Health      marginally above the state target
                     Service Standards to ensure we are      of 1/10,000 occupied bed days,
                     continually improving the way we        at 1.4/10,000 overall. The result
                     work and the standard of care we        has been derived from ten cases
                     provide to patients, families and the   identified over the reporting period
                     community.                              and we will continue to monitor this.
                                                             The reported rate is within control
                     Peter Mac went through a
                                                             limits based on comparably-sized
                     comprehensive accreditation review
                                                             healthcare facilities.
                     in October 2017 and was found to be
                     fully compliant with all requirements   A multimodal approach to prevention
                     in the national standards.              of SAB is applied across Peter Mac.
                                                             Specific elements include:
                     Peter Mac is working with its staff
                     and leadership team to ensure the        1. Case review
                     new eight standards are met. These       2. Precautions and isolation
                     new standards came into effect in        3. CVC-associated bloodstream
                     January 2018.                               infection monitoring and risk
                                                                 reduction
                                                              4. Enhanced hand hygiene
                                                                 compliance
                                                              5. Aseptic technique
                                                              6. Environmental cleaning

Quality and Safety Data 2017-2018

                                                                   2017-18 Target                     2017-18 Result
 Adverse and sentinel events
 Number of sentinel events                                         Nil                                Achieved
 Mortality - number of deaths in low mortality                     Nil                                -
 Diagnosis-Related Group
 Infection control
 Rate of patients with SAB occupied bed day                        < 1/10,000                         1.4/10,000
 Healthcare worker immunisation
 Percentage of healthcare workers immunised for influenza          82.5%                              92.4%

                                                                  World’s Best Cancer Care Quality Account 2017-18     20.
HOW DO WE RATE?
      The Victorian Healthcare Experience Survey (VHES) allows a wide range of
      people to provide feedback on their experiences and features specialised
      questions.
      In 2017-18, our VHES scores were very positive and, in key areas, were over
      the sector benchmarks. Respondents gave us the following scores:
      Overall Experience of Care at Peter MacCallum Cancer Centre
      Overall, how would you rate the          In your opinion, how clean was the
      care you received while in hospital?     hospital room or ward that you
      96% Positive                             were in?
      Statewide Benchmark 91%                  80% Positive
                                               Statewide Benchmark 74%
      Did you have confidence and trust
      in the nurses treating you?              How would you rate how well
      85% Positive                             the doctors and nurses worked
      Statewide Benchmark 82%                  together?
                                               93% Positive
      How often did the doctors, nurses
                                               Statewide Benchmark 83%
      and other healthcare professionals
      caring for you explain things in a       If you had any worries or fears
      way you could understand?                about your condition or treatment,
      95% Positive                             did a health professional discuss
      Statewide Benchmark 91%                  them with you?
                                               71% Positive
      If you needed assistance, were you
                                               Statewide Benchmark 58%
      able to get a member of staff to
      help you within a reasonable time?       Do you think the hospital staff
      91% Positive                             did everything they could to help
      Statewide Benchmark 89%                  manage your pain?
                                               91% Positive
      Before you left hospital, did the
                                               Statewide benchmark 81%
      doctors and nurses give you
      sufficient information about             Overall discharge experience
      managing your health and care at         Overall Transition Index
      home?                                    77% Positive
      76% Positive                             Statewide benchmark 74%
      Statewide Benchmark 69%

21.
FEEDBACK.

  At Peter Mac, we provide patients,       WE ACCEPT COMPLAINTS
  their families and carers, and our
  community with the opportunity to be
                                           AND FEEDBACK IN THE
  involved in making decisions about       FOLLOWING WAYS:
  our services. One of the ways we         Call our Consumer Liaison Office
  do this is by encouraging feedback       on (03) 8559 7517.
  and listening to comments, positive      Email patient.liaison@petermac.org
  or negative, to help us improve our
  service.                                 ‘Your Voice’ feedback brochures are
                                           available in seven different languages
  The feedback system is integrated into
  the work of the whole organisation.                In person
  This means that feedback is used                   Health Complaints
  to identify gaps in the quality of the             Commissioner:
  service, investigation of feedback                 https://hcc.vic.gov.au
  is collaborative and information is
                                                      Online
  shared among management teams,
                                                      Facebook, Twitter, Instagram,
  administrators and patients.
                                                      LinkedIn, www.petermac.org
                                                      Mail
                                                      Consumer Liaison Office,
                                                      Locked Bag 1 A’Beckett St,
                                                      Melbourne, VIC 8006

   OTHER ORGANISATIONS, INCLUDING GOVERNMENT

                                                                      More than
      450                 402                 93
                                                                                80%

   Compliments          Complaints          Enquiries/              complaints
                                           suggestions            resolved within
                                                                      30 days

                                              World’s Best Cancer Care Quality Account 2017-18   22.
ADMIN SERVICES
      REALIGNED TO
      PATIENT NEED.
         Our administrative resources           The new patient navigator team
         were reorganised in 2017-18            is now the first point of contact
         to ensure alignment of our             for all patient queries. The patient
         administrative workforce within        navigators are playing an integral
         a new operational structure. We        role in coordinating and scheduling
         embedded administrative staff          patient care in conjunction with the
         within the clinical teams with         multidisciplinary team required by
         whom they work, known as ‘tumour       each patient’s particular cancer or
         stream-based administration’, to       disease type.
         improve appointment coordination
         and system navigation support for
         patients.
         The new structure ensures that
         clinical staff are appropriately
         supported knowing that they
         provide a patient experience that is
         coordinated, safe, personalised and
         consistent.

         Caring for Carers
         Caring for a person with cancer can be difficult, stressful
         and isolating.
         Recent discussions with patients and community
         members highlighted the need for increased support for
         carers at Peter Mac.
         In response, our Wellbeing Centre has introduced
         a one-hour session known as Carers Circle on a
         twice-weekly basis. Carers Circle offers a dedicated
         sanctuary for carers to informally meet and chat about
         carer-specific issues.
         A staff member is present at these sessions to provide
         carer-specific information and referrals as required.

23.
INTERPRETERS FOR
PATIENTS – SUPPORT
IN ANY LANGUAGE.
    Peter Mac provides a range              The most frequently utilised five
    of information, resources and           languages are Chinese (Mandarin
                                            and Cantonese), Greek, Vietnamese,
    programs for patients from              Italian and Arabic. These services
    culturally and linguistically           have also experienced the most
    diverse backgrounds, their              growth. Vietnamese interpreting
    families and carers.                    grew by 66 per cent.

    We provide information that             In the past year, we extended our
    addresses the physical, emotional       interpreter service to incorporate
    and social impacts a cancer             video conferencing and live
    diagnosis can bring in more than 10     captioning. We introduced an SMS
    languages.                              reminder service in 29 different
                                            languages.
    Interpreters and resources cover
    topics such as Questions to Ask
    your Doctor, Advance Care Planning,
                                            Our skilled interpreters are
    Coming to Peter Mac, our Patient        available for appointments in most
    Charter and also include a range of
    wellbeing/preventative materials.
                                            languages at no cost to patients.
    The Peter Mac Portal is an online       Our practical work in the community
    space provided in a range of            is also important. The objective of
    languages where patients find           the Cancer Survivorship in CALD
    information to support them during      Communities project is to develop
    their stay at Peter Mac.                new, culturally appropriate resources
    Our catalogue of cancer information     that meet the unmet informational
    includes resources developed by our     needs of cancer survivors from
    experts and reviewed by our patient     culturally and linguistically diverse
    representatives. Specially selected     backgrounds. This project is working
    titles from trusted organisations and   with survivors from Vietnamese,
    agencies are displayed.                 Italian and Arabic-speaking
                                            backgrounds to develop relevant
    Our interpreter service is very         information resources in their
    popular and increased by 46 per cent    language.
    more uses last year.
                                            The Supporting Underserved Cancer
    Interpreters were provided across 71    Survivors project aims to deliver the
    different language groups for 12,296    resource On the Road to Recovery
    interactions, both face-to-face and     in Arabic, Traditional Chinese,
    via the phone, across all sites.        Simplified Chinese, Greek, Italian
                                            and Vietnamese.

                                                 World’s Best Cancer Care Quality Account 2017-18   24.
TOP 10 INTERPRETER
                                    LANGUAGES 2017-2018

            26.60%                           13.51%                         12.53%

         Mandarin/Cantonese                     Greek                        Vietnamese
      Occasions of Services: 3271     Occasions of Services: 1661     Occasions of Services: 1541

            10.43%                            7.98%                          4.71%

                Italian                         Arabic                         Turkish
      Occasions of Services: 1282      Occasions of Services: 981     Occasions of Services: 579

             3.01%                            2.83%                          2.12%

              Spanish                          Russian                        Serbian
      Occasions of Services: 370       Occasions of Services: 348     Occasions of Services: 261

             1.94%
                                             86%
              Croatian                      TOTAL
      Occasions of Services: 239      Occasions of Services: 10,533

25.
ACCESSIBILITY
AUDIT SHOWS
THE WAY.
   Peter Mac is committed to                • A volunteer concierge service
   supporting all patients, visitors, and     is now at the front reception
   staff with a physical and/or sensory       desk from 6:30am to 3:00pm
   disability to access relevant areas        to assist patients as required
   and move safely around the hospital.       upon entering Peter Mac
   Last year, we engaged an                 • Permanent signage for
   independent consultant to conduct          Pharmacy, Pharmacy
   an audit of the hospital to review         Collections and Allied Health
   access to the building. The audit        • Installation of an accessible toilet
   was completed in partnership with          pan, handrails and push button
   a group of patients and staff living       release/occupied indicator to
   with a disability. During 2018, the        the ground floor public toilets
   following actions were implemented:      • We installed a bollard near the
                                              entrance to the pharmacy side
                                              to ensure patients climb the
                                              stairs using installed railing.

                                                 World’s Best Cancer Care Quality Account 2017-18   26.
WHAT IS AN
      ADVANCE CARE
      DIRECTIVE?
        If you were very sick and               An Advance Care Directive is the
        could not talk, how would               legal form that outlines an Advance
                                                Care Plan. In it, patients write either
        your doctor know what                   or both:
        treatments you want or do                • An instructional directive with
        not want? Does your family                 legally binding instructions
        know what you want? Who                    about future medical treatment
        will make medical decisions                that they consent to or refuse;
        for you?                                 • A values directive which
                                                   documents the patient’s values
        At Peter Mac everyone has the right        and preferences for medical
        to make their own medical treatment        treatment decision maker to
        decisions and to make a plan for           consider when making decisions
        future health care if they lose their      for patients when they are
        decision-making capacity.                  unable to do so for themselves.
        This process is known as Advance        Patients at Peter Mac are asked if
        Care Planning (ACP).                    they hold an Advance Care Directive
        Designed to capture peoples’ values     about their medical treatment and
        and wishes, ACP enables patients        if they have appointed a Medical
        to continue to influence treatment      Treatment Decision Maker. If one
        decisions, even when they can           exists, our team documents this
        no longer actively participate in       and creates a system alert for our
        decision making.                        doctors and nurses. Information
                                                packs and advance care plan
        ACP means to think, plan and write      documents are available in the wards
        down your wishes for your future        and on our website at https://www.
        healthcare. Sharing your values,        petermac.org/services/treatment/
        wishes and choices with your loved      advance-care-planning.
        ones and your doctors helps them to
        respect your choices.                   To improve the number and quality
                                                of conversations around Advance
        Advance care planning can also          Care Directives, we have established
        mean choosing someone who would         a working group. This working group
        make medical decisions for you if       will coordinate ongoing education to
        you were too unwell to make them        our medical and nursing employees
        yourself. This person is called a       about the new requirements
        Medical Treatment Decision Maker.       under the Medical Treatment and
        We used to call this person the         Decision Making Act. Our priority is
        Medical Power of Attorney.              identifying our ward patients aged
                                                over 75 years who do not have an
                                                Advance Care Plan and supporting
                                                them to develop one.

27.
REINFORCING OUR
RESPONSE TO
FAMILY VIOLENCE.
   Family violence is a major              managers, team leaders and
   problem in the community                supervisors on how to support our
                                           staff and volunteers. The program
   that affects not only our               is compulsory for all staff who have
   patients and their carers, but          people reporting to them and began
   our staff and volunteers as             rolling out in August. Next year, we
   well. Evidence shows that               will focus on extending the outreach
   early intervention can help to          to patients, families and carers.
   prevent serious harm.                   Initiatives for staff and volunteers
                                           experiencing family violence so
   Recognising this fact, the
                                           far include family violence leave,
   Strengthening Hospital
                                           workplace safety planning, flexible
   Responses to Family Violence
                                           working arrangements and eight
   project was developed by the
                                           Family Violence Contact Officers
   Royal Women’s Hospital and
                                           have been specially trained.
   Bendigo Health to support those
   experiencing family violence.           In 2019, we will begin to train
                                           frontline staff so that they can
   Peter Mac is one of 88 hospitals
                                           support patients and carers. Peter
   now implementing this work across
                                           Mac is committed to doing whatever
   Victoria in a staged approach, the
                                           we can to help members of the
   first of which will be to support our
                                           community who are experiencing
   staff and volunteers so that they are
                                           family violence.
   appropriately skilled and assisted
   to support those experiencing
   family violence.
   A Family Violence Workforce
   Support training package has been
   developed to train our leaders,

                                                 World’s Best Cancer Care Quality Account 2017-18   28.
WE HOPE THAT
      YOU ENJOY
      READING
      THIS REPORT.
      Your feedback helps us improve the way
      we communicate with you and share
      information about our services. Please,
      don’t hesitate to contact us to let us know
      what you think of this document, or what
      sort of information you would like us to
      share with you.

      By telling us your thoughts, you will
      help to make this report, our other
      communications and our services
      best meet your needs. Please send
      your comments to us at
      petermacconnect@petermac.org

29.
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