Submission to the UN Analytical Study on Violence against Women With Disabilities - DECEMBER 2011

 
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Women With Disabilities Australia (WWDA)

Submission to the UN
Analytical Study on
Violence against Women
With Disabilities

DECEMBER 2011
publishing information
S u b m i ssion to the Preparation Phase of the
U N A n alytical Study on Violence against
Wo m e n and G irls with Disabilities
( A /H R C/RES/17/11)

By Carolyn Fro h m a d e r fo r Wo m e n W i t h D i s a b i l i t i e s A u s t r a l i a
(WWDA)

© Women W i t h D i s a b i l i t i e s A u s t r a l i a ( W W DA ) D e ce m b e r 2 0 1 1

T his work i s co p y r i g h t . A p a r t f ro m a n y u s e a s p e r m i t t e d u n d e r
the Copyri g h t A c t 1 9 6 8, n o p a r t m a y b e re p ro d u ce d w i t h o u t
written pe r m i s s i o n f ro m Wo m e n W i t h D i s a b i l i t i e s A u s t r a l i a
(WWDA). A l l p o s s i b l e c a re h a s b e e n t a ke n i n t h e p re p a r at i o n of
the inform at i o n co n t a i n e d i n t h i s d o c u m e n t . W W DA d i s c l a i m s
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otherwise i n o r a r i s i n g o u t of t h e p re p ar at i o n o r s u p p l y of a n y of
the inform at i o n afo re s a i d .

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Australia-W W DA / 2 0 2 0 8 1 3 9 3 1 5 3 8 9 4

Winner, Nat i o n a l Hu m a n R i g h t s Aw a rd 2 0 0 1
Winner, Nat i o n a l V i o l e n ce P re v e n t i o n Aw a rd 1 9 9 9
Winner, Ta s m a n i a n Wo m e n ’ s S afe t y Aw a rd 2 0 0 8
Certificate of M e r i t , A u s t r a l i a n C r i m e & V i o l e n ce P re v e n t i o n
Awards 20 0 8
Nominee, Fre n c h Re p u b l i c ’ s H u m a n R i g h t s P r i ze 2 0 0 3
Nominee, U N M i l l e n n i u m Pe a ce P r i ze fo r Wo m e n 2 0 0 0
contents
                       I n t ro d u c t ion                                                 4

                       D at a a n d statistics                                              6

                       Le g i s l at i on and policies                                      14

                       P re v e n t i o n and protection                                    23

                       Pro s e c u t i on and punishment                                    33

                       Re co v e r y, rehabilitation and social reintegration               40

                       A p p e n d i x 1: Projects on violence against women
                       w i t h d i s a bilities 1990-2010                                   42

                       A p p e n d i x 2: Definitions of ‘family violence’ in legislation   48

                       Endnotes                                                             67

  Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011      3
INTRODUCTION
          1.   Women With Disabilities Australia (WWDA)1 is the peak
               non-government organisation (NGO) for women with
               all types of disabilities in Australia. WWDA is run by
               women with disabilities, for women with disabilities,
               and represents more than 2 million disabled women in
               Australia. WWDA’s work is grounded in a rights based
               framework which links gender and disability issues
               to a full range of civil, political, economic, social and
               cultural rights. Promoting the rights of women with
               disabilities to freedom from violence, exploitation and
               abuse and to freedom from torture or cruel, inhuman
               or degrading treatment are key policy priorities of
               WWDA.2

          2.   Australia is a country that prides itself on ideals which
               include a fair go for everyone, freedom and dignity of
               the individual, equality of men and women, equality
               of opportunity, freedom from discrimination, and the
               right of its citizens to participate fully in the economic,
               political and social life of the nation.3 However, these
               entitlements remain a distant goal for women with
               disabilities. In Australia today, women with disabilities
               are not given a ‘fair go’, they are denied the most
               fundamental rights and freedoms, they are not treated
               with dignity and respect, they remain profoundly
               more disadvantaged than their male counterparts; are
               systematically denied opportunity in every aspect of
               society; experience multiple forms of discrimination,
               and widespread, serious violation of their human
               rights. They remain largely ignored in national policies
               and laws, and their issues and needs are often
               overlooked within broader government programs and
               services. Negative stereotypes from both a gender and
               disability perspective further compound the exclusion
               of women with disabilities from support services,
               social and economic opportunities and participation in
               civic and community life. The deep-rooted exclusion
               experienced by women with disabilities in Australia
               continues unabated due in part to the dearth of
               information available on its extent or impact, and the
               apathy of successive Governments in acknowledging
               the need for such information.4
3.   Violence against women with disabilities remains a key           the physical and psychological recovery and social
     factor that undermines the ability of disabled women             reintegration of victims.
     to participate as full and equal citizens in Australian
     society. Violence against women with disabilities is        5.   The obligation to respect, protect and fulfil women
     an intersectional category dealing with both gender-             with disabilities’ right to freedom from violence,
     based and disability-based violence. The confluence              exploitation and abuse and to freedom from torture
     of these two factors results in an extremely high                and other cruel, inhuman or degrading treatment or
     risk of violence against women with disabilities.5               punishment, clearly requires Australian Governments
     6
       In Australia, women with disabilities experience               to do much more than merely abstain from taking
     high levels of domestic/family violence and sexual               measures which might have a negative impact on
     assault, and have high levels of unmet needs in                  women with disabilities. The obligation in the case
     terms of access to domestic violence, sexual assault             of women and girls with disabilities is to take positive
     and related community support services. It is now                action to reduce structural disadvantages and to give
     widely acknowledged that compared to non-disabled                appropriate preferential treatment to women with
     women, women with disabilities are at greater risk               disabilities in order to ensure that they enjoy all human
     of severe forms of intimate partner violence; they               rights. This invariably means that additional resources
     experience violence at significantly higher rates, more          will need to be made available for this purpose and
     frequently, for longer, in more ways, and by more                that a wide range of specially tailored measures will be
     perpetrators; they have considerably fewer pathways              required.12
     to safety, and are less likely to report experiences        6.   This Submission from Women With Disabilities
     of violence - yet programs and services for this                 Australia (WWDA) to the preparation phase of the UN
     group either do not exist or are extremely limited. In           Analytical Study on Violence Against Women and
     Australia, responses to violence against women with              Girls with Disabilities, aims to provide an overview
     disabilities have traditionally been characterised by            of the legislation, regulatory frameworks, policy,
     limited recognition by governments and the service               administrative procedures, services and support
     sector of the nature and extent of the problem;                  available within Australia to prevent and address
     inadequate research; incomplete or partial response              violence against women and girls with disabilities.
     structures, and scarce resources to support advocacy             WWDA acknowledges that, due to time and resource
     in the area.7 8 9                                                constraints, this Paper does not provide a complete
4.   The duty of Governments to respect, protect, fulfil              and detailed analysis of all mechanisms and programs
     and promote human rights with regard to violence                 across Australia’s eight States and Territories. However,
     against women includes the responsibility to prevent,            the information provided in this Paper does clearly
     investigate and prosecute all forms of, and protect all          demonstrate that there have been, and remain,
     women from such violence and to hold perpetrators                significant systemic failures in legislation, regulatory
     accountable.10 The responsibility of the Australian              frameworks, policy, administrative procedures,
     Government to address violence against women                     availability and accessibility of services and support,
     and girls with disabilities is explicitly delineated in a        to prevent and address the epidemic that is violence
     number of the human rights treaties it has ratified,             against women and girls with disabilities. Underlying
     particularly the Convention on the Rights of Persons             these systemic failures is an entrenched culture
     with Disabilities (CRPD).11 Article 16 of the CRPD               throughout all levels of Australian society that
     (Freedom from exploitation, violence and abuse)                  devalues, stereotypes and discriminates against
     requires states to ensure that people with disabilities          women and girls with disabilities, and invariably
     are not subject to any form of exploitation, violence            perpetuates and legitimises not only the multiple
     or abuse; requires states to protect women, children             forms of violence perpetrated against them, but also
     and older people with disabilities from gender and age           the failure of governments to recognise and take
     aggravated exploitation, violence and abuse; requires            action on the issue.
     states to institute measures to ensure the detection,
     investigation and prosecution of exploitation, abuse
     and neglect of people with disabilities and to promote

               Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011                     5
DATA AND STATISTICS
            Have studies/research been conducted on
            the prevalence, nature, causes and impact
            of violence against women and girls with
            disabilities in different settings (family/home,
            work-place, medical institutions, schools,
            etc.?). What forms of disability and violence
            do they cover?
               7.   To date, there have been no national studies or
                    research conducted to establish the prevalence,
                    extent, nature, causes and impact of on violence
                    against women and girls with disabilities in different
                    settings. There is no data collection in Australia on
                    violence against women with disabilities.

               8.   For more than a decade, WWDA has called on
                    successive Australian Governments to commission
                    and resource nationwide research to ascertain the
                    prevalence, extent, nature, causes and impact of
                    violence against women with disabilities.13 14 15The
                    need for such research has been widely documented
                    across a range of sectors for a number of years. 16 17
                    18 19
                          The critical need for Governments to accelerate
                    their efforts in research and data collection in relation
                    to violence against women with disabilities has also
                    recently been re-iterated by the United Nations
                    Human Rights Council.20

               9.   The Australian Government concedes that violence
                    against women with disabilities in Australia is
                    ‘widespread’.21 As recently as 24 October 2011, the
                    Federal Minister for the Status of Women, Kate
                    Ellis acknowledged that women with disabilities,
                    particularly intellectual disabilities, are extraordinarily
                    vulnerable to violence and abuse. She stated:

                             “We don’t know the full extent, but we do
                             know (women with disabilities) are massively
                             over-represented in the statistics of women
                             in Australia who are subjected to violence.
                             We know that women with disabilities,
                             particularly intellectual disabilities, can be
extraordinarily vulnerable and we also know             further qualitative studies to expand on the Survey
             there are issues around reporting and around            results, including information about women with
             knowing where to turn for assistance and                disabilities. In response, the Government declined
             how to avoid those sorts of relationships.” 22          to act on this recommendation, suggesting that a
                                                                     sample size of 12,000 women ‘may still be too small
10. The most immediate and apparent finding in                       to gain accurate prevalence estimates of women with
    researching and analysing violence against women                 a disability who have also experienced violence’.32 A
    with disabilities in Australia, is the limited information       further reason given related to survey methodology:
    available on any aspect of the issue. The neglect in             ‘as women are most at risk of experiencing violence
    research of women with disabilities generally has                from someone known to them, we are aware of
    been highlighted by the United Nations Committee                 the sensitivities involved in surveying women with
    on the Elimination of All forms of Discrimination                disabilities about their experience(s) of violence in the
    Against Women (CEDAW), in both its 2006 and                      presence of a carer, who in some circumstances may
    2010 assessments of the Australian Government’s                  be the perpetrator of violence’ (Flanagan 2004).33
    implementation of the Convention.23 24 In its 2010
    Concluding Comments, the CEDAW Committee                     13. The next national Personal Safety Survey is due
    made very strong recommendations regarding the                   to be conducted in 2012, although this is yet
    need for urgent action by Australian governments in              to be confirmed. The potential 2012 PSS would
    relation to women with disabilities, including the need          build the evidence base on the nature, extent and
    to:                                                              characteristics of women’s and men’s experiences
                                                                     of violence in Australia. Although the next PSS will
    •   Undertake a comprehensive assessment of the                  contain a disability module, the Australian Bureau of
        situation of women with disabilities in Australia;           Statistics (ABS) has acknowledged that ‘it is likely that
    •   Address the abuse and violence experienced by                estimates for people with disabilities will be under-
        women with disabilities living in institutions or            estimated’.34 Limitations of the 2012 PSS in relation
        supported accommodation;                                     to capturing data on violence against women with
                                                                     disabilities include:
    •   Adopt urgent measures to ensure that women
        with disabilities are better represented in decision-        •    the PSS is conducted via personal interview in
        making and leadership positions;                                  the respondent’s home, with a small number of
                                                                          interviews occurring by telephone. Eliciting good
    •   Enact national legislation prohibiting forced                     data about experiences of violence depends
        sterilisation of women and girls with disabilities.               on the respondent clearly understanding the
                                                                          questions being asked, their ability to respond
11. The main indicators available to date about violence                  and the interview being able to occur in private.
    against women in Australia, come from the 1996                        People with disabilities who do not meet these
    Australian Bureau of Statistics (ABS) Women’s Safety                  criteria will be ‘un-selected’ from the PSS.
    Survey25 which gathered information about women’s
    experiences of violence, and the 2005 ABS Personal               •    the PSS will not include residents of special
    Safety Survey (PSS),26 which collected information                    dwellings (eg: boarding houses, institutions).
    about both women’s and men’s experiences of
    violence. Both the ABS Surveys (1996, 2005) have             14. A potential source of some statistical data on violence
    been criticised for their limitations in providing a             against women with disabilities may be available
    sufficiently comprehensive picture of violence against           through the National Disability Abuse and Neglect
    women.27 28 29                                                   Hotline35 (the ‘Hotline’). The Hotline is an Australia-
                                                                     wide telephone hotline for reporting abuse and
12. In 2004, WWDA, along with several other national                 neglect of people with disabilities, is fully funded
    disability organisations, wrote to the [then] Australian         by the Australian Government,36 and operated on
    Government strongly advocating the need for the                  behalf of the Government by a national peak disability
    2005 PSS to include data collection on violence                  organisation. Its primary target group are people with
    against women with disabilities, 30 31 and calling for           disabilities who use Commonwealth, State or Territory

               Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011                         7
DATA AND STATISTICS

        provided or funded disability services. Notifications of         17. In 1996, the New South Wales (NSW) Government
        abuse and neglect are referred to relevant complaint                 funded a small research project to investigate access
        bodies for their resolution. Statistical and other data              for women with disabilities to existing sexual assault
        from the Hotline is provided to the Government,                      services. Interviews with women with disabilities,
        however, none of this data or information is available               carers and organisations identified key issues such
        to the public. WWDA understands that the data                        as lack of understanding by service providers of the
        is disaggregated by gender, however it is unclear                    intersections between gender, disability and abuse;
        how the Australian Government uses the data it                       the discriminatory culture within services; lack of
        collects. There is no legislative base for the Hotline               information for women with disabilities about abuse;
        and it therefore has no statutory functions, powers                  and lack of access to services. Recommendations
        and immunities.37 It has no investigative powers, no                 centred on empowerment, access to quality services
        power to compel any other agency to investigate a                    and advocacy.41 There is no information available
        complaint, and no power to formally review complaint                 on whether or how these recommendations were
        investigation processes and outcomes. The Hotline                    implemented.
        does not have any systemic investigation, inquiry or
        review powers, and is unable to initiate action at its           18. In May 2008, the Australian Government established
        own motion.38 There is a clear lack of transparency                  the National Council to Reduce Violence against
        relating to outcomes of notifications; there are a                   Women and their Children (the Council). The
        number of service types which are excluded from                      Council’s main role was to develop a national plan
        its mandate (such as licenced boarding houses),                      to reduce the incidence and the impact of violence
        and definitions which set the scope of its work fail                 against women and their children. In March 2009,
        to incorporate a domestic context.39 Although the                    the Council released Time for Action: The National
        Hotline offers potential as a mechanism in detecting,                Council’s Plan for Australia to Reduce Violence
        reporting and responding to violence against women                   against Women and their Children, 2009–2021,42
        with disabilities, in its current form it is severely limited.       which contained the Council’s recommendations for
                                                                             a National Plan to Reduce Violence against Women to
                                                                             be developed and agreed by the Council of Australian
                                                                             Governments (COAG) and to be released in 2010.
Government Research Initiatives
                                                                         19. Time for Action identified six key outcome areas43,
    15. There have been minimal research studies initiated by                proposed strategies and actions in each area and
        Australian Governments on violence against women                     identified 20 high-priority actions that required an
        with disabilities.                                                   urgent response. One of these ‘high-priority actions’
    16. In 1990, the Australian Government established                       included developing a national response to ‘audit crisis
        a National Committee on Violence Against                             accommodation services for their accessibility for all
        Women (NCVAW) to ‘initiate research, coordinate                      women’.44 However, to date, there is no evidence that
        community education and act as a forum for                           this has occurred, and it appears that it is no longer
        national consideration of legal, policy and program                  considered a priority by the Government. This is
        issues’.40 The NCVAW commissioned a small project                    despite many years of WWDA and other stakeholders
        to examine the effectiveness of service delivery to                  urging the Australian Government to commission
        women with disabilities who experience violence,                     a national audit of crisis accommodation services
        representing an acknowledgment by the Australian                     (including women’s refuges) to determine their levels
        Government that violence against women with                          of accessibility and safety for women with disabilities.
        disabilities was an issue. The study looked at access            20. The urgent need for improvement in data collection
        to police, legal and support services and used a                     was also identified in Time for Action. A key strategy
        qualitative framework to interview women with                        included ‘build[ing] the evidence base’, noting that:
        disabilities, service providers, relevant government
        agencies and non-government organisations. The                                data relating to violence against women
        NCVAW was wound up in 1993, with none of the                                  and their children in Australia is poor. Data
        study’s recommendations being implemented.                                    on services sought by, and provided to,
.

8     Women With Disabilities AUSTRALIA
DATA AND STATISTICS

             victims is not readily available, and the way               and their Children 2010-2022,48 which consists of four
             in which information is reported is generally               three-year Action Plans. The First Action Plan (2010–
             inconsistent and does not allow for a                       2013) includes two key ‘immediate national initiatives’
             comprehensive understanding of violence                     specifically focused on women with disabilities. They
             against women.45                                            are to:

21. Time for Action also found that where data exists,                   •   Investigate and promote ways to improve access
    there are many limitations, including for example:                       and responses to services for women with
                                                                             disabilities.
    •    Under-reporting, particularly given sample
         populations of large surveys often do not reach                 •   Support better service delivery for children,
         the most vulnerable groups of women;                                Indigenous women and women with disabilities
                                                                             through the development of new evidence based
    •    There is an over-reliance on data not supported                     approaches where existing policy and service
         by in-depth, detailed research that would provide                   responses have proved to be inadequate.49
         a better understanding of the relevance of
         different social, physical, cultural, geographical
         and economic contexts.46
                                                                  Australian Research
22. In November 2009, the Australian Government
    released the findings of the National Community                  24. The limited and fragmented work undertaken by
    Attitudes towards Violence against Women Survey                      Governments to date, is supplemented by a small
    2009.47 For the first time in this survey series, a limited          number of research studies into violence against
    number of questions on violence against women with                   women with disabilities in Australia.
    disabilities were included. Some key findings from the           25. Examples of the work undertaken include an
    survey about women with disabilities included:                       examination of the experiences of women while
    •    community awareness of violence against women                   inpatients in a psychiatric hospital. This 1997 NSW
         with disabilities was very poor;                                study uncovered the occurrence of sexual abuse and
                                                                         made evident the failure of the system to respond to
    •    few respondents recognised the greater                          that abuse.50 51 In another NSW study, identification
         vulnerability of women with disabilities to                     of the barriers facing women with an intellectual
         violence;                                                       disability when making a statement about sexual
                                                                         assault to police was undertaken by interviewing
    •    only 9% of respondents agreed that ‘women                       sexual assault workers and police officers. While the
         with intellectual disabilities are more likely to               study found that women with intellectual disabilities
         experience violence than other women’. 69% of                   face significant barriers in successfully making
         respondents disagreed with the statement;                       statements to police following a sexual assault, the
    •    16% agreed that ‘women with physical disabilities               omission of the views of the women themselves was
         are more likely to experience domestic violence                 a significant limitation of the study.52
         than other women’, but 58% disagreed;                       26. The Sexual Offences Project for Women with
    •    76% of respondents agreed that ‘few people know                 Disabilities, conducted in Victoria in 2003, aimed to
         how often women with disabilities experience                    examine the issues and problems victim/survivors
         rape or sexual assault’;                                        with cognitive impairment experience when reporting
                                                                         sexual assault and proceeding with prosecution in
    •    42% of female respondents and 35% of male                       Victoria. Unfortunately, ‘due to ethical concerns and
         respondents agreed that ‘women with disabilities                resource constraints, as well as the varying abilities
         who report rape or sexual assault are less likely to            of victim/survivors to share their experiences’, it was
         be believed than other women’.                                  decided that victim/survivors would not be directly
                                                                         interviewed. The Project instead invited those people
23. In February 2011, the Australian Government released
                                                                         who work with victim/survivors to ‘give case studies
    the National Plan to Reduce Violence against Women

               Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011                         9
DATA AND STATISTICS

         that illustrate important issues and experiences when                 administrative procedures, accessibility of services and
         reporting and/or seeking access to justice’.53                        support.’ The study found that women with disabilities
                                                                               have limited knowledge of rights and options to be
     27. Similarly localised, Cockram’s work documenting the                   free from this form of abuse, and that they experience
         nature and extent of family and domestic violence                     ‘significant barriers’ in accessing domestic violence
         against women with disabilities in Western Australia                  support services.
         in 2003, sought to ascertain whether the needs
         of women with disabilities were being adequately                 32. The lack of research on the issue of violence against
         addressed by relevant services. The accounts of                      women with disabilities has been identified by
         women with disabilities who have histories of family                 several writers as a major concern for some time.60
         and domestic violence coupled with information from                  The small number of Australian research studies on
         service agencies, highlighted discrimination against                 violence against women with disabilities that have
         such women by service providers across a range of                    occurred over the past twenty years, have tended
         sectors.54                                                           to be one-off, short term, small scale, and localised
                                                                              to a particular State/Territory or region. Generally
     28. A Victorian study undertaken in 2006 analysed 850                    speaking, the majority of projects have focused
         rapes reported to Victoria Police over three years,                  on women with intellectual disabilities. The lack of
         from 2000 to 2003.55 In 92.5% of cases, the victims                  independent evaluation appears to be a common
         were female. More than a quarter of victims (26.5%)                  theme, as does the lack of translation of findings into
         were identified as having a disability and, of this group,           practice. Appendix 1 to this document provides a brief
         15.6% had a psychiatric disability and 5.9% had an                   description of all known Australian projects on the
         intellectual disability. The cases in the study involving            issue of violence against women with disabilities for
         victims with a disability were among those least likely              the period 1990 – 2010.
         to result in charges being laid against the offender and
         twice as likely to be determined as false.

     29. A recent Project undertaken by the Victorian Office          Positive Initiatives
         of the Public Advocate (OPA)56 examined violence
         against OPA clients with cognitive impairments.57                33. In recent times it does appear that the issue of
         Women comprised 76% of the study. The study found                    violence against women with disabilities is slowly
         that women of all ages with a range of cognitive                     gaining more attention, particularly at the national
         impairments are subjected to physical, sexual,                       policy level. In many respects, this is directly
         psychological, emotional and impairment-related                      attributable to the sustained advocacy work of WWDA
         violence, financial abuse and neglect. The study also                and its allies.
         found that, when acts of violence are not responded              34. In early 2011, as part of the National Plan to Reduce
         to appropriately, further violence is likely to be                   Violence against Women and their Children 2010-
         perpetrated against the person and it is less likely that            2022, the Australian Government announced funding
         the person will report it.                                           of up to three million dollars over three years for
     30. Figures from the Victorian OPA also show that in the                 Community Action Grants to ‘support community
         past five years, police have examined more than 1000                 action to reduce violence against women through
         cases of alleged abuse involving people with severe                  projects which prevent domestic and family violence
         disabilities living in state residential care or private             and encourage respectful relationships.’61 The
         homes - including 282 allegations of assault, 320 of                 Government announced that ‘priority will be given to
         rape, and six alleged abductions or kidnapping.58                    projects that provide support to specific communities
                                                                              of older women, women with disabilities, culturally
     31. A recent study in NSW examined the experience                        and linguistically diverse communities and gay and
         of domestic violence and women with disabilities                     lesbian communities.’ At the time of writing, several
         living in licensed boarding houses.59 The study found                of the seventeen successful projects are still to be
         that domestic violence is a daily lived experience of                publicly announced, although two of those which
         the women, and this situation exists largely due to                  have been announced, will focus on violence against
         ‘failures in legislative frameworks, policy guidelines,              women with disabilities.62

10     Women With Disabilities AUSTRALIA
DATA AND STATISTICS

   35. WWDA also understands that, as part of the Australian    38. In Australia, Governments attempt to respond to
       Government’s immediate response to the National              violence against women through the legal and
       Plan, the Government will commission a national              judicial systems on the one hand and through service
       reform project on ‘Improving Service Delivery to             systems, which provide protection, support, treatment
       Women with Disability’. This national reform project         and education, on the other hand.68 Women with
       is intended to provide an evidence base for future           disabilities are not only marginalised and ignored
       reform of the service system to better respond to            in many of these responses, but paradoxically,
       the needs of women with disabilities. At the time            experience violence within and by the very systems
       of writing, this national reform project is in the           and settings which should be affording them, care,
       preliminary planning stage and no firm details are yet       sanctuary and protection.69 70
       available.
                                                                39. The Supported Accommodation Assistance Program
   36. Other positive developments at the national level            (SAAP) (replaced in January 2009 by the National
       include, for example:                                        Affordable Housing Agreement) was the Australian
                                                                    Government’s main homeless program and, as
       •   Representation of women with disabilities on             such, funded services including women’s refuges,
           the Australian Government’s national advisory            shelters, and crisis services. The systematic exclusion
           structure to develop the National Plan to Reduce         of disabled women from such services has been
           Violence against Women and their Children 2010-          documented for more than two decades.71 In 2004,
           2022;                                                    the New South Wales Ombudsman undertook an
       •   Prioritising women with disabilities in the first        inquiry72 into New South Wales SAAP agencies to
           Action Plan (2010–2013), including through two           determine the extent of, and reasons for, exclusion
           ‘immediate national initiatives’;                        from SAAP. Overall, the inquiry found that ‘the level
                                                                    and nature of exclusions in SAAP are extensive. In
       •   Representation of women with disabilities on the         some cases, exclusions appear to be unreasonable
           Australian Bureau of Statistics Personal Safety          and possibly in contravention of SAAP and anti-
           Survey 2012 Advisory Group;                              discrimination legislation, and SAAP standards and
                                                                    guidelines’. Disabled people, including people with
       •   Representation of women with disabilities on
                                                                    physical impairments, intellectual impairments,
           the Advisory Board of the 24 hour national
                                                                    acquired brain injuries, along with people with mental
           counselling service 1800 RESPECT.63
                                                                    illnesses, were one of the most significant groups
                                                                    affected by exclusion from SAAP. The inquiry found
Please provide the available data on the number
                                                                    that a significant proportion of exclusions were based
of women and girls with disabilities who have                       on ‘global’ policies of turning away all individuals
accessed services and programmes to prevent                         belonging to a particular population group or sharing
and address violence in the past year? Is this                      similar characteristics with a group. Reasons given
                                                                    by service providers for exclusions included limited
information disaggregated by disability, as well
                                                                    staffing levels, incompatibility with other clients/
as by sex, age, socio-economic and ethnic                           residents, industrial legislative issues for staff, lack of
backgrounds?                                                        physical access to buildings and lack of staff expertise
                                                                    and skills.73

   37. Most services in Australia do not routinely collect      40. It is well documented that domestic and family
       disaggregated data on disability and violence,               violence is one of the major factors in homelessness.74
       including our national data collection, hospitals,           75
                                                                       And it is clear that women with disabilities are
       courts, and police. Little is known about the help-          over-represented in the factors that contribute to
       seeking experiences of women with disabilities               homelessness.76 Despite this, women with disabilities
       experiencing (or at risk of experiencing) violence.64        remain excluded from all levels of the National
       65 66
             The lack of inclusive services and programs for        Affordable Housing Agreement – the primary
       women with disabilities experiencing or at risk of           policy and program response designed to address
       experiencing violence is well documented.67                  homelessness in Australia.

                 Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011                    11
DATA AND STATISTICS

     41. On 1st July 2011, the Australian Government                      44. However, although some data is available (through
         operationalised the new National Minimum Data Set                    the SDAC) on the number of households in which
         for Specialist Homelessness Services (SHSNMDS).                      some people with disabilities reside, this data is not
         The SHSNMDS aims to provide quality information                      disaggregated by gender. Special tabulations of data
         about people who are either homeless or at risk of                   from the SDAC are available on request, however this
         homelessness and who are seeking services from                       is as a charged service. This means that any specific
         specialist homelessness agencies77 (including women’s                tabulations seeking disaggregated data by gender,
         refuges, shelters, and crisis services). Many specialist             would need to be purchased at a financial cost to
         homelessness services also deliver prevention and                    those seeking the data.
         early intervention programs.78 However, the new SHS
         NMDS does not include an indicator for disability.            Please provide any statistics, information
         Clearly, the importance of the SHS NMDS in capturing
                                                                       or studies on disability/ies resulting from
         data on women with disabilities ought to be a critical
         mechanism in promoting their access to specialist             violence against women and girls?
         homelessness services, including women’s refuges.
         It is unlikely that access and responses to such                 45. There is very little information in Australia on women
         services will improve whilst disabled women remain                   with disabilities who have acquired their disability as
         invisible and ignored in such significant national policy            a result of violence, despite the fact that violence can
         initiatives as the SHS NMDS.                                         cause acute and chronic injuries that may lead directly
                                                                              to disability as well as leading indirectly to disabilities
Please provide available data on the number of                                through distress and adverse lifestyle or coping
households in which persons with disabilities                                 strategies:82

reside. How many of these are women-headed                                             “When I was 16 years old, my boyfriend
households?                                                                            bashed me almost to death. He beat me so
                                                                                       badly I suffered a severe brain injury and was
     42. There are two million women with disabilities living                          in a coma for four months. That evening
         in Australia, making up 20.1% of the population of                            when he bashed me he repeatedly stomped
         Australian women, but apart from that, gender and                             on and kicked my head. While lying in my
         disability data is scarce. For more than a decade now,                        hospital bed my family and nursing staff
         WWDA has found that one of the greatest difficulties                          could see the imprint of his shoe in my very
         in determining and substantiating the needs and                               swollen face.”83
         human rights violations of women with disabilities
                                                                          46. Cockram’s 2003 study in Western Australia found
         in Australia is the acute lack of available gender and
                                                                              that 38% of abused women with disabilities serviced
         disability specific data, research and information - at all
                                                                              by that State’s violence and/or disability services in
         levels of Government and for any issue.
                                                                              a two year period, had acquired their disability as a
     43. The Australian Bureau of Statistics (ABS) conducts                   direct result of the abuse.84 This is corroborated by
         a number of surveys that provide data on disability                  US studies which suggest that of the population of
         at the population level. The most comprehensive                      women with disabilities, in approximately 40% of
         is the (national) Survey of Disability, Ageing and                   instances their disabilities are a result of violence
         Carers (SDAC),79 which collects information about a                  perpetrated against them by either their partners or
         wide range of impairments, activity limitations and                  caregivers.85
         participation restrictions, and their effects on the
                                                                          47. An Australian Senate Inquiry in 2003 into ‘Children
         everyday lives of people with disability, older people
                                                                              In Institutional Care’ highlighted the many hundreds
         and their carers. Less detailed but conceptually similar
                                                                              of children in institutional care who acquired their
         disability data are available in other data sources,
                                                                              disabilities as a result of the violence perpetrated
         including the Census of Population and Housing80 and
                                                                              against them while in ‘care’. The Inquiry received
         the General Social Survey (GSS).81
                                                                              evidence of ‘general physical, psychological and
                                                                              dental health problems through to severe mental

12     Women With Disabilities AUSTRALIA
DATA AND STATISTICS

    health issues of depression and post-traumatic stress            more likely to suffer family violence94 and sustain
    disorder’,86 along with reports from many care leavers           serious injury requiring hospitalisation, and 10 times
    that they acquired their disabilities as a result of being       more likely to die due to family violence, than non-
    assaulted in the institutions. According to the Inquiry’s        Indigenous women.95
    Report, ‘the outcome of serious abuse, assaults and
    deprivation suffered by many care leavers has had a          51. Research undertaken as part of the National Plan to
    complex, serious and negative impact on their lives’.87          Reduce Violence against Women and their Children
                                                                     2010-2022 looked at the economic cost of domestic
48. A 2009 report by the Family Law Council88 highlights             violence in Australia.96 It found that in 2009-10, it was
    data that victims of family violence receive more                estimated that violence against women and their
    psychiatric treatment and have an increased incidence            children cost the Australian economy an estimated
    of attempted suicide and alcohol abuse than the                  $13.6 billion, and that, without appropriate action to
    general population.89                                            address violence against women and their children,
                                                                     an estimated three-quarters of a million Australian
49. Similarly, a 2004 study in Victoria,90 which measured            women will experience and report violence in the
    the burden of disease caused by intimate partner                 period of 2021-22, costing the Australian economy
    violence found that intimate partner violence:                   an estimated $15.6 billion. In relation to women with
    •   has wide-ranging and persistent effects on                   disabilities, it found that:
        women’s physical and mental health;                                   without appropriate action the estimated
    •   contributes nine per cent (9%) to the total disease                   cost to the Australian economy of violence
        burden in Victorian women aged 15–44 and 3 per                        perpetrated against women with disabilities
        cent in all Victorian women;                                          in 2021-22 will be $3.9 billion, representing
                                                                              25% of the total cost of the total cost of
    •   is the leading contributor to death, disability and                   violence in 2021-22.97
        illness in Victorian women aged 15–44, being
        responsible for more of the disease burden than          52. There have been a number of media reports over the
        many well-known risk factors such as high blood              years of women who have sustained horrific injuries
        pressure, smoking and obesity.                               and permanent disabilities as a result of violence
                                                                     perpetrated against them. For example, in 2003, a 31
    In relation to women with disabilities, the study found          year old man raped and assaulted a colleague after
    that:                                                            a work function in Victoria. After raping his victim in
                                                                     the stairwell of a building, the man walked out of the
             women with disabilities are under-
                                                                     building, looked up and down the street, and then
             represented in existing prevalence studies.
                                                                     returned to repeatedly stomp on her head. The 30
             These women may be particularly vulnerable
                                                                     year old woman was admitted to hospital with facial
             to violence or its health impacts, primarily
                                                                     fractures, a partly amputated right ear, brain damage
             because they are less likely to have the social
                                                                     and serious vaginal and anal injuries. The offender was
             supports and economic resources required
                                                                     subsequently sentenced to serve a minimum of 12
             to protect themselves from or to leave a
                                                                     years in prison.98 99
             violent relationship. Low participation in
             existing studies by these women also worked
             against comparing the burden experienced
             by them in this particular study.91

50. It is widely acknowledged that Indigenous Australians
    have rates of ill-health and disability substantially
    higher than other Australians.92 Australian Bureau
    of Statistics data shows that nationally, 50% of
    Indigenous Australians aged 15 years and over have
    a disability or long-term health condition. Over half
    are female (51%).93 Indigenous women are 35 times

              Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011                       13
LEGISLATION
AND POLICIES
           Is there a legal framework addressing violence
           against women and girls with disability in
           different contexts (within the family, at the
           community and in the workplace, and in Sate
           and non-State institutions such as medical,
           education and other service providing
           institutions)?

               53. In Australia, there is no uniform definition or
                   understanding of what constitutes violence
                   against women.100 Legislation designed to protect
                   individuals from family and domestic violence
                   is the responsibility of the States and Territories.
                   Generally, violence against women is understood
                   in the context of ‘domestic’, ‘spousal’ or ‘family’
                   violence. The legal definition of domestic violence
                   for example, varies across jurisdictions because of
                   differences in legislation.101 Appendix Two provides
                   definitions of ‘family/domestic violence’ in relevant
                   Commonwealth/State/Territory legislation.102

               54. Most of the Australian legislation designed to protect
                   individuals from family and domestic violence defines
                   what constitutes a ‘domestic relationship’ and some
                   of these definitions are more inclusive than others,
                   including for example, gay, lesbian and transgender
                   relationships, siblings, children, non-partner family
                   members, and so on. Some also include ‘informal
                   care relationships’ which apply to domestic support
                   and personal care relationships provided without fee
                   or reward, and which are not under an employment
                   relationship between the persons; and/or not on
                   behalf of another person or an organisation.103

               55. Despite the many and varied definitions within the
                   various Australian laws of what constitutes domestic
                   violence, family violence, domestic relationships,
                   significant persons, relevant persons and so on,
                   most of the current laws do not contain definitions
                   which specifically encompass the range of domestic/
                   family settings in which women with disabilities may
                   live (such as group homes, institutions), nor do they
                   contain definitions which capture and encompass
the various forms of violence as experienced by                •   facilitating decision making for people with
    women with disabilities. Because these experiences                 disabilities who lack the capacity to make certain
    may not fit either traditional, or contemporary                    decisions themselves;
    definitions, violence against women with disabilities
    often goes unidentified.104 It is nominally possible for       •   appointing guardians and financial managers, and
    women with disabilities who experience violence                    consents to medical and dental treatment;
    to take measures such as apprehended or personal               •   investigating claims of exploitation, abuse or
    violence orders. In practice however, for women with               neglect;
    intellectual disabilities who live in group homes for
    example, recognition of the specific support needs of          •   consenting to a “special medical procedure”,
    such women is limited and their access to effective                such as ‘a procedure intended or likely to cause
    protection, rather than promoted by legislation, is                infertility’.
    dependent on mediation and intervention by others
                                                               58. Most States and Territories of Australia also have
    such as staff or carers, who may also be perpetrators.
                                                                   an independent body (such as the Victorian OPA),
56. The Disability Discrimination Act 1992 (Cth) (DDA)             which acts on behalf of, and advocates for, people
    represents a rights-based approach to establishing             with a decision-making disability. The roles and
    the legal right for disabled people to be free from            responsibilities differ from State to State, however,
    discrimination and to participate in the community in          they include promoting the rights of people with
    the same way as non-disabled people.105 Compliance             disabilities and protecting them from exploitation
    with the DDA is driven mainly by a system of individual        and abuse. This can include investigating the
    complaints, through which people with disabilities             circumstances of a person who is believed to have
    enforce their rights. Many women with disabilities             decision-making incapacity and is at risk in some
    face significant barriers or disincentives to using the        way.111 However, Public Advocates have recently
    complaints process, including for example: lack of             spoken out about their lack of investigative powers
    awareness of the DDA; the complexity and potential             and also the failure of current laws in protecting
    formality of the process; the fear of victimisation; the       people with disabilities from violence and abuse.112
    onus on the complainant to prove their complaint; the          113
                                                                       For example, under current Guardianship Laws
    unequal financial and legal resources of complainants          in Victoria, the Public Advocate has only the power
    and respondents; the financial and non-financial costs         to examine alleged mistreatment involving people
    involved; and, the lack of support and assistance              who are formally placed under her guardianship or
    in preparing for, and going through the process.106            who are being considered for guardianship. This is
    107 108
            The DDA has not been used in relation to               done through an order by the Victorian Civil and
    violence against women with disabilities, as it is             Administrative Tribunal (VCAT).114 But many people
    essentially designed to prohibit discrimination against        being abused may not be subject to a guardianship
    people with disabilities in the areas of employment,           order, meaning that large numbers of the state’s most
    education, the provision of goods, services and                vulnerable people are at risk. 115 According to Colleen
    facilities, and access to premises.                            Pearce, the Public Advocate in Victoria:

57. Australian Guardianship law is the key regulatory                      ‘’There’s a widespread expectation that
    mechanism for protecting the health and human                          the Public Advocate is going to be able to
    rights of young persons, adults with disabilities and                  investigate situations of abuse involving
    the elderly, and yet it remains understudied and                       a person with a disability, and that is not
    misunderstood as a body of knowledge.109 Australia                     necessarily the case. We think there are large
    has eight different guardianship regimes, which vary                   numbers of people [at risk], but it’s really
    widely in their forms of regulation. Guardianship                      hard to quantify and that’s partly because
    legislation is enacted through State and Territory                     abuse against people with a disability is
    based Guardianship Tribunals/Boards.110 The roles of                   really hidden. It occurs in a government-run
    Guardianship Tribunals/Boards vary but can include for                 institution or in people’s private homes.’’116
    example:

              Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011                   15
LEGISLATION AND POLICIES

Are practices such as 1) forced psychiatric                               tribunals; and that these procedures are actively
                                                                          sought (by parents and carers) in other jurisdictions
intervention, 2) forced institutionalization,                             both within Australia and in other countries.
3) solitary confinement and restraint in                                  Current domestic law does not prevent children
institutions, 4) forced drug and electroshock                             with disabilities from being taken out of Australia to
                                                                          another country to have the sterilisation procedure
treatment, 5) forced abortion 6) forced                                   performed.120
sterilization and 7) harmful practices,
                                                                      61. In late June 2011, WWDA submitted a formal
prohibited by law?                                                        communication to the United Nations regarding the
                                                                          ongoing practice of forced sterilisation in Australia121.
                                                                          WWDA’s Submission was sent simultaneously to
Forced Sterilisation
                                                                          four of the United Nations Special Rapporteurs,122
     59. In Australia, the legal position on sterilisation varies         requesting intervention to urge the Australian
         from jurisdiction to jurisdiction.117 From 2003 to 2007,         Government to comply with the recommendations of
         in an attempt to ‘minimise the risk of unauthorised              the Committee on the Elimination of Discrimination
         sterilisations occurring’,118 the Australian Government          against Women (July 2010),123 the Committee on the
         began to address non-therapeutic sterilisation of                Rights of the Child (October 2005),124 and the Human
         children [girls] by drafting national, uniform legislation       Rights Council (January 2011)125 to act immediately
         (ref). However, the goal of this legislation was not to          to develop national legislation prohibiting the non-
         prohibit forced sterilisation of girls with disabilities,        therapeutic sterilisation of girls and adult women with
         but instead to regulate who could authorise non-                 disabilities in the absence of their fully informed and
         therapeutic sterilisations of minors with ‘decision-             free consent. WWDA’s Submission further requested
         making disabilities’. The draft legislation was strongly         assistance from the Special Rapporteurs to ensure
         opposed by disability and human rights organisations             that the Australian government implement a range
         on the grounds that it did not clearly prohibit                  of strategies to enable women with disabilities to
         sterilisation in all non-therapeutic circumstances, it           realise their right to health, their right to freedom
         only applied to children with intellectual disabilities,         from violence, their rights to reproductive freedom
         and it applied a broad test for the judicial authorisation       and to found a family, and their right to freedom from
         of sterilisation. Critically, the primary emphasis of the        torture or cruel, inhuman or degrading treatment or
         draft legislation was not on the prohibition of this             punishment.
         human rights abuse but on the elaboration of the
                                                                      62. In late 2011, WWDA collaborated on the development
         circumstances and principles under which it could
                                                                          of an international Briefing Paper on Sterilization of
         occur – which were essentially permissive rather than
                                                                          Women and Girls with Disabilities.126 This briefing
         protective.
                                                                          paper has been jointly prepared by WWDA, Human
     60. The Australian Government discontinued this work in              Rights Watch (HRW), the Open Society Foundations,
         2007 because it believed that sterilisation of girls with        and the International Disability Alliance (IDA) as part of
         disabilities had declined and that existing guardianship         the Global Campaign to Stop Torture in Health Care.127
         and court mechanisms for authorising sterilisation               The paper gives a background to the issue of forced
         procedures worked adequately.119 This was incorrect,             sterilisation, outlines various international human
         and, to date, existing State and Territory legislation           rights standards that prohibit forced sterilisation,
         and federal court mechanisms have been ineffective               and offers several recommendations for improving
         in eliminating non-therapeutic, forced sterilisations            laws, policies, and professional guidelines governing
         of young girls with disabilities. Anecdotal reports and          sterilisation practices.
         health insurance statistics provide evidence that non-
                                                                      63. Anecdotal evidence indicates that applications for
         therapeutic sterilisation of girls with disabilities has
                                                                          non-therapeutic sterilisations of women and girls
         occurred in greater numbers than officially reported;
                                                                          with disabilities in Australia may be on the increase
         that it occurs without authorisation by courts and
                                                                          rather than in decline. For example, recent reports

16     Women With Disabilities AUSTRALIA
LEGISLATION AND POLICIES

       to WWDA suggest that gynaecologists are applying                    managing menstruation is a medical matter. Dowse
       to Guardianship Boards for authorisation to perform                 & Frohmader (2001) reported that in Australia, there
       hysterectomies on disabled girls as soon as they reach              have been no long-term studies into the health effects
       the age of 18 years. It appears that the applications are           of long-term hormonal suppression of menstruation
       being sought solely for the purpose of ‘prevention of               on young women although risk factors such as
       future pregnancy’.128                                               dysfunction of the ovaries and the cardiovascular
                                                                           system have been identified.132

Forced Contraception/Menstrual Suppression
                                                                   Deprivation of liberty and restrictive practices
   64. The management of menstruation in women with
       disabilities should be no different to that provided for        67. Women and girls with disabilities in Australia continue
       any other woman. However, in the case of women                      to be subjected to multiple forms and varying
       and girls with intellectual disabilities, there appears             degrees of ‘deprivation of liberty’ and are subjected
       to be an assumption that menstruation is a problem                  to unregulated or under-regulated restrictive
       that should be overcome by menstrual suppression                    interventions.133 134 This is particularly the case for
       or elimination of the cycle.129 Forced contraception                women and girls with intellectual and/or cognitive
       through the use of menstrual suppressant drugs (such                disabilities, developmental disabilities and those with
       as Depo-Provera) is a widespread, current practice                  psychosocial disabilities. A restrictive intervention
       in Australia, particularly in group homes and other                 has been defined as ‘any intervention that is used
       forms of institutional care. It has been justified as a             to restrict the rights or freedom of movement of a
       way of reducing the ‘burden’ on carers who have to                  person with a disability’,135 and can include practices
       ‘deal with’ managing menstruation of disabled women                 such as chemical restraint,136 mechanical restraint,137
       and girls. It is however, a means of denying basic                  physical restraint,138 social restraint,139 seclusion140.
       reproductive rights and is a form of sexual violence.130            Such practices are often imposed as a means of
                                                                           coercion, discipline, convenience, or retaliation by
   65. In 1992, the Victorian Intellectual Disability                      staff, family members or others providing support.141
       Review Panel submitted a report to the Minister                     These practices are not limited to institutions such
       for Community Services on the use of menstrual                      as group homes, but also occur in educational
       suppressants in Victorian institutions. A major                     settings (such as schools), hospitals, residential aged
       finding of the Panel was that there had been blanket                care facilities and other types of institutions (such
       administration of drugs causing menstrual suppression               as hostels, boarding houses, psychiatric/mental
       to women in institutions who did not require this                   health community care facilities, prisons, supported
       medication for contraceptive purposes and for whom                  residential facilities).
       the medication was prescribed without their consent.
       The purpose of administering the medication was                 68. Australian studies of restrictive practices and people
       for the ease of management of the menstrual cycle                   with disabilities are limited and publicly available data
       of the women, that is, for the convenience of the                   from government agencies is not easily sourced.142
       staff caring for them. The Panel found that the drugs               However, in Victoria the public record reports that
       Depo-Provera and Noresthisterone were being used                    during 2005/06, on average, 28% of residents with
       in Victoria without routine gynaecological screening                intellectual disabilities in accommodation services
       (Law Reform Commission of Western Australia 1994).                  were subject to restraint and/or seclusion and 23% of
                                                                           clients with intellectual disabilities in respite services
   66. A 1994 Australian study by Carlson & Wilson,131                     were subject to restraint and/or seclusion.143 The
       examined menstrual management issues for women                      Australian Psychological Society144 asserts that at least
       with intellectual disabilities. The study found that                a quarter of all people with an intellectual disability
       frequent access to medical advice and an apparent                   will be subject at some time to some form of restraint,
       lack of access to advice about educational and                      and has called on the Australian Governments to
       environmental management approaches and to                          take urgent action to end restrictive practices in the
       practical support, may be reinforcing a perception that             disability sector:

                 Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011                         17
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