Submission to the UN Analytical Study on Violence against Women With Disabilities - DECEMBER 2011
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w w w. w wda.or g.au Women With Disabilities Australia (WWDA) Submission to the UN Analytical Study on Violence against Women With Disabilities DECEMBER 2011
publishing information S u b m i ssion to the Preparation Phase of the U N A n alytical Study on Violence against Wo m e n and G irls with Disabilities ( A /H R C/RES/17/11) By Carolyn Fro h m a d e r fo r Wo m e n W i t h D i s a b i l i t i e s A u s t r a l i a (WWDA) © Women W i t h D i s a b i l i t i e s A u s t r a l i a ( W W DA ) D e ce m b e r 2 0 1 1 T his work i s co p y r i g h t . A p a r t f ro m a n y u s e a s p e r m i t t e d u n d e r the Copyri g h t A c t 1 9 6 8, n o p a r t m a y b e re p ro d u ce d w i t h o u t written pe r m i s s i o n f ro m Wo m e n W i t h D i s a b i l i t i e s A u s t r a l i a (WWDA). A l l p o s s i b l e c a re h a s b e e n t a ke n i n t h e p re p a r at i o n of the inform at i o n co n t a i n e d i n t h i s d o c u m e n t . W W DA d i s c l a i m s any liabilit y fo r t h e a cc u r a c y a n d s u f f i c i e n c y of t h e i nfo r m at i o n and under n o c i rc u m s t a n ce s s h a l l b e l i a b l e i n n e g l i g e n ce o r otherwise i n o r a r i s i n g o u t of t h e p re p ar at i o n o r s u p p l y of a n y of the inform at i o n afo re s a i d . contact details Women W i t h D i s a b i l i t i e s A u s t r a l i a ( W W DA ) PO Box 60 5, Ro s n y P a r k 7 0 1 8 TA S M A NI A , AU STR ALIA Ph: +61 3 6 24 4 8 2 8 8 Fa x : + 6 1 3 6 24 4 8 25 5 Email: ww d a @ w w d a . o rg . a u Web: www.w w d a . o rg . a u WWDA on Fa ce b o o k : http://www. f a ce b o o k . co m / p a g e s / Wo m e n - W i t h - D i s a b i l i t i e s - Australia-W W DA / 2 0 2 0 8 1 3 9 3 1 5 3 8 9 4 Winner, Nat i o n a l Hu m a n R i g h t s Aw a rd 2 0 0 1 Winner, Nat i o n a l V i o l e n ce P re v e n t i o n Aw a rd 1 9 9 9 Winner, Ta s m a n i a n Wo m e n ’ s S afe t y Aw a rd 2 0 0 8 Certificate of M e r i t , A u s t r a l i a n C r i m e & V i o l e n ce P re v e n t i o n Awards 20 0 8 Nominee, Fre n c h Re p u b l i c ’ s H u m a n R i g h t s P r i ze 2 0 0 3 Nominee, U N M i l l e n n i u m Pe a ce P r i ze fo r Wo m e n 2 0 0 0
contents I n t ro d u c t ion 4 D at a a n d statistics 6 Le g i s l at i on and policies 14 P re v e n t i o n and protection 23 Pro s e c u t i on and punishment 33 Re co v e r y, rehabilitation and social reintegration 40 A p p e n d i x 1: Projects on violence against women w i t h d i s a bilities 1990-2010 42 A p p e n d i x 2: Definitions of ‘family violence’ in legislation 48 Endnotes 67 Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011 3
INTRODUCTION 1. Women With Disabilities Australia (WWDA)1 is the peak non-government organisation (NGO) for women with all types of disabilities in Australia. WWDA is run by women with disabilities, for women with disabilities, and represents more than 2 million disabled women in Australia. WWDA’s work is grounded in a rights based framework which links gender and disability issues to a full range of civil, political, economic, social and cultural rights. Promoting the rights of women with disabilities to freedom from violence, exploitation and abuse and to freedom from torture or cruel, inhuman or degrading treatment are key policy priorities of WWDA.2 2. Australia is a country that prides itself on ideals which include a fair go for everyone, freedom and dignity of the individual, equality of men and women, equality of opportunity, freedom from discrimination, and the right of its citizens to participate fully in the economic, political and social life of the nation.3 However, these entitlements remain a distant goal for women with disabilities. In Australia today, women with disabilities are not given a ‘fair go’, they are denied the most fundamental rights and freedoms, they are not treated with dignity and respect, they remain profoundly more disadvantaged than their male counterparts; are systematically denied opportunity in every aspect of society; experience multiple forms of discrimination, and widespread, serious violation of their human rights. They remain largely ignored in national policies and laws, and their issues and needs are often overlooked within broader government programs and services. Negative stereotypes from both a gender and disability perspective further compound the exclusion of women with disabilities from support services, social and economic opportunities and participation in civic and community life. The deep-rooted exclusion experienced by women with disabilities in Australia continues unabated due in part to the dearth of information available on its extent or impact, and the apathy of successive Governments in acknowledging the need for such information.4
3. Violence against women with disabilities remains a key the physical and psychological recovery and social factor that undermines the ability of disabled women reintegration of victims. to participate as full and equal citizens in Australian society. Violence against women with disabilities is 5. The obligation to respect, protect and fulfil women an intersectional category dealing with both gender- with disabilities’ right to freedom from violence, based and disability-based violence. The confluence exploitation and abuse and to freedom from torture of these two factors results in an extremely high and other cruel, inhuman or degrading treatment or risk of violence against women with disabilities.5 punishment, clearly requires Australian Governments 6 In Australia, women with disabilities experience to do much more than merely abstain from taking high levels of domestic/family violence and sexual measures which might have a negative impact on assault, and have high levels of unmet needs in women with disabilities. The obligation in the case terms of access to domestic violence, sexual assault of women and girls with disabilities is to take positive and related community support services. It is now action to reduce structural disadvantages and to give widely acknowledged that compared to non-disabled appropriate preferential treatment to women with women, women with disabilities are at greater risk disabilities in order to ensure that they enjoy all human of severe forms of intimate partner violence; they rights. This invariably means that additional resources experience violence at significantly higher rates, more will need to be made available for this purpose and frequently, for longer, in more ways, and by more that a wide range of specially tailored measures will be perpetrators; they have considerably fewer pathways required.12 to safety, and are less likely to report experiences 6. This Submission from Women With Disabilities of violence - yet programs and services for this Australia (WWDA) to the preparation phase of the UN group either do not exist or are extremely limited. In Analytical Study on Violence Against Women and Australia, responses to violence against women with Girls with Disabilities, aims to provide an overview disabilities have traditionally been characterised by of the legislation, regulatory frameworks, policy, limited recognition by governments and the service administrative procedures, services and support sector of the nature and extent of the problem; available within Australia to prevent and address inadequate research; incomplete or partial response violence against women and girls with disabilities. structures, and scarce resources to support advocacy WWDA acknowledges that, due to time and resource in the area.7 8 9 constraints, this Paper does not provide a complete 4. The duty of Governments to respect, protect, fulfil and detailed analysis of all mechanisms and programs and promote human rights with regard to violence across Australia’s eight States and Territories. However, against women includes the responsibility to prevent, the information provided in this Paper does clearly investigate and prosecute all forms of, and protect all demonstrate that there have been, and remain, women from such violence and to hold perpetrators significant systemic failures in legislation, regulatory accountable.10 The responsibility of the Australian frameworks, policy, administrative procedures, Government to address violence against women availability and accessibility of services and support, and girls with disabilities is explicitly delineated in a to prevent and address the epidemic that is violence number of the human rights treaties it has ratified, against women and girls with disabilities. Underlying particularly the Convention on the Rights of Persons these systemic failures is an entrenched culture with Disabilities (CRPD).11 Article 16 of the CRPD throughout all levels of Australian society that (Freedom from exploitation, violence and abuse) devalues, stereotypes and discriminates against requires states to ensure that people with disabilities women and girls with disabilities, and invariably are not subject to any form of exploitation, violence perpetuates and legitimises not only the multiple or abuse; requires states to protect women, children forms of violence perpetrated against them, but also and older people with disabilities from gender and age the failure of governments to recognise and take aggravated exploitation, violence and abuse; requires action on the issue. states to institute measures to ensure the detection, investigation and prosecution of exploitation, abuse and neglect of people with disabilities and to promote Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011 5
DATA AND STATISTICS Have studies/research been conducted on the prevalence, nature, causes and impact of violence against women and girls with disabilities in different settings (family/home, work-place, medical institutions, schools, etc.?). What forms of disability and violence do they cover? 7. To date, there have been no national studies or research conducted to establish the prevalence, extent, nature, causes and impact of on violence against women and girls with disabilities in different settings. There is no data collection in Australia on violence against women with disabilities. 8. For more than a decade, WWDA has called on successive Australian Governments to commission and resource nationwide research to ascertain the prevalence, extent, nature, causes and impact of violence against women with disabilities.13 14 15The need for such research has been widely documented across a range of sectors for a number of years. 16 17 18 19 The critical need for Governments to accelerate their efforts in research and data collection in relation to violence against women with disabilities has also recently been re-iterated by the United Nations Human Rights Council.20 9. The Australian Government concedes that violence against women with disabilities in Australia is ‘widespread’.21 As recently as 24 October 2011, the Federal Minister for the Status of Women, Kate Ellis acknowledged that women with disabilities, particularly intellectual disabilities, are extraordinarily vulnerable to violence and abuse. She stated: “We don’t know the full extent, but we do know (women with disabilities) are massively over-represented in the statistics of women in Australia who are subjected to violence. We know that women with disabilities, particularly intellectual disabilities, can be
extraordinarily vulnerable and we also know further qualitative studies to expand on the Survey there are issues around reporting and around results, including information about women with knowing where to turn for assistance and disabilities. In response, the Government declined how to avoid those sorts of relationships.” 22 to act on this recommendation, suggesting that a sample size of 12,000 women ‘may still be too small 10. The most immediate and apparent finding in to gain accurate prevalence estimates of women with researching and analysing violence against women a disability who have also experienced violence’.32 A with disabilities in Australia, is the limited information further reason given related to survey methodology: available on any aspect of the issue. The neglect in ‘as women are most at risk of experiencing violence research of women with disabilities generally has from someone known to them, we are aware of been highlighted by the United Nations Committee the sensitivities involved in surveying women with on the Elimination of All forms of Discrimination disabilities about their experience(s) of violence in the Against Women (CEDAW), in both its 2006 and presence of a carer, who in some circumstances may 2010 assessments of the Australian Government’s be the perpetrator of violence’ (Flanagan 2004).33 implementation of the Convention.23 24 In its 2010 Concluding Comments, the CEDAW Committee 13. The next national Personal Safety Survey is due made very strong recommendations regarding the to be conducted in 2012, although this is yet need for urgent action by Australian governments in to be confirmed. The potential 2012 PSS would relation to women with disabilities, including the need build the evidence base on the nature, extent and to: characteristics of women’s and men’s experiences of violence in Australia. Although the next PSS will • Undertake a comprehensive assessment of the contain a disability module, the Australian Bureau of situation of women with disabilities in Australia; Statistics (ABS) has acknowledged that ‘it is likely that • Address the abuse and violence experienced by estimates for people with disabilities will be under- women with disabilities living in institutions or estimated’.34 Limitations of the 2012 PSS in relation supported accommodation; to capturing data on violence against women with disabilities include: • Adopt urgent measures to ensure that women with disabilities are better represented in decision- • the PSS is conducted via personal interview in making and leadership positions; the respondent’s home, with a small number of interviews occurring by telephone. Eliciting good • Enact national legislation prohibiting forced data about experiences of violence depends sterilisation of women and girls with disabilities. on the respondent clearly understanding the questions being asked, their ability to respond 11. The main indicators available to date about violence and the interview being able to occur in private. against women in Australia, come from the 1996 People with disabilities who do not meet these Australian Bureau of Statistics (ABS) Women’s Safety criteria will be ‘un-selected’ from the PSS. Survey25 which gathered information about women’s experiences of violence, and the 2005 ABS Personal • the PSS will not include residents of special Safety Survey (PSS),26 which collected information dwellings (eg: boarding houses, institutions). about both women’s and men’s experiences of violence. Both the ABS Surveys (1996, 2005) have 14. A potential source of some statistical data on violence been criticised for their limitations in providing a against women with disabilities may be available sufficiently comprehensive picture of violence against through the National Disability Abuse and Neglect women.27 28 29 Hotline35 (the ‘Hotline’). The Hotline is an Australia- wide telephone hotline for reporting abuse and 12. In 2004, WWDA, along with several other national neglect of people with disabilities, is fully funded disability organisations, wrote to the [then] Australian by the Australian Government,36 and operated on Government strongly advocating the need for the behalf of the Government by a national peak disability 2005 PSS to include data collection on violence organisation. Its primary target group are people with against women with disabilities, 30 31 and calling for disabilities who use Commonwealth, State or Territory Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011 7
DATA AND STATISTICS provided or funded disability services. Notifications of 17. In 1996, the New South Wales (NSW) Government abuse and neglect are referred to relevant complaint funded a small research project to investigate access bodies for their resolution. Statistical and other data for women with disabilities to existing sexual assault from the Hotline is provided to the Government, services. Interviews with women with disabilities, however, none of this data or information is available carers and organisations identified key issues such to the public. WWDA understands that the data as lack of understanding by service providers of the is disaggregated by gender, however it is unclear intersections between gender, disability and abuse; how the Australian Government uses the data it the discriminatory culture within services; lack of collects. There is no legislative base for the Hotline information for women with disabilities about abuse; and it therefore has no statutory functions, powers and lack of access to services. Recommendations and immunities.37 It has no investigative powers, no centred on empowerment, access to quality services power to compel any other agency to investigate a and advocacy.41 There is no information available complaint, and no power to formally review complaint on whether or how these recommendations were investigation processes and outcomes. The Hotline implemented. does not have any systemic investigation, inquiry or review powers, and is unable to initiate action at its 18. In May 2008, the Australian Government established own motion.38 There is a clear lack of transparency the National Council to Reduce Violence against relating to outcomes of notifications; there are a Women and their Children (the Council). The number of service types which are excluded from Council’s main role was to develop a national plan its mandate (such as licenced boarding houses), to reduce the incidence and the impact of violence and definitions which set the scope of its work fail against women and their children. In March 2009, to incorporate a domestic context.39 Although the the Council released Time for Action: The National Hotline offers potential as a mechanism in detecting, Council’s Plan for Australia to Reduce Violence reporting and responding to violence against women against Women and their Children, 2009–2021,42 with disabilities, in its current form it is severely limited. which contained the Council’s recommendations for a National Plan to Reduce Violence against Women to be developed and agreed by the Council of Australian Governments (COAG) and to be released in 2010. Government Research Initiatives 19. Time for Action identified six key outcome areas43, 15. There have been minimal research studies initiated by proposed strategies and actions in each area and Australian Governments on violence against women identified 20 high-priority actions that required an with disabilities. urgent response. One of these ‘high-priority actions’ 16. In 1990, the Australian Government established included developing a national response to ‘audit crisis a National Committee on Violence Against accommodation services for their accessibility for all Women (NCVAW) to ‘initiate research, coordinate women’.44 However, to date, there is no evidence that community education and act as a forum for this has occurred, and it appears that it is no longer national consideration of legal, policy and program considered a priority by the Government. This is issues’.40 The NCVAW commissioned a small project despite many years of WWDA and other stakeholders to examine the effectiveness of service delivery to urging the Australian Government to commission women with disabilities who experience violence, a national audit of crisis accommodation services representing an acknowledgment by the Australian (including women’s refuges) to determine their levels Government that violence against women with of accessibility and safety for women with disabilities. disabilities was an issue. The study looked at access 20. The urgent need for improvement in data collection to police, legal and support services and used a was also identified in Time for Action. A key strategy qualitative framework to interview women with included ‘build[ing] the evidence base’, noting that: disabilities, service providers, relevant government agencies and non-government organisations. The data relating to violence against women NCVAW was wound up in 1993, with none of the and their children in Australia is poor. Data study’s recommendations being implemented. on services sought by, and provided to, . 8 Women With Disabilities AUSTRALIA
DATA AND STATISTICS victims is not readily available, and the way and their Children 2010-2022,48 which consists of four in which information is reported is generally three-year Action Plans. The First Action Plan (2010– inconsistent and does not allow for a 2013) includes two key ‘immediate national initiatives’ comprehensive understanding of violence specifically focused on women with disabilities. They against women.45 are to: 21. Time for Action also found that where data exists, • Investigate and promote ways to improve access there are many limitations, including for example: and responses to services for women with disabilities. • Under-reporting, particularly given sample populations of large surveys often do not reach • Support better service delivery for children, the most vulnerable groups of women; Indigenous women and women with disabilities through the development of new evidence based • There is an over-reliance on data not supported approaches where existing policy and service by in-depth, detailed research that would provide responses have proved to be inadequate.49 a better understanding of the relevance of different social, physical, cultural, geographical and economic contexts.46 Australian Research 22. In November 2009, the Australian Government released the findings of the National Community 24. The limited and fragmented work undertaken by Attitudes towards Violence against Women Survey Governments to date, is supplemented by a small 2009.47 For the first time in this survey series, a limited number of research studies into violence against number of questions on violence against women with women with disabilities in Australia. disabilities were included. Some key findings from the 25. Examples of the work undertaken include an survey about women with disabilities included: examination of the experiences of women while • community awareness of violence against women inpatients in a psychiatric hospital. This 1997 NSW with disabilities was very poor; study uncovered the occurrence of sexual abuse and made evident the failure of the system to respond to • few respondents recognised the greater that abuse.50 51 In another NSW study, identification vulnerability of women with disabilities to of the barriers facing women with an intellectual violence; disability when making a statement about sexual assault to police was undertaken by interviewing • only 9% of respondents agreed that ‘women sexual assault workers and police officers. While the with intellectual disabilities are more likely to study found that women with intellectual disabilities experience violence than other women’. 69% of face significant barriers in successfully making respondents disagreed with the statement; statements to police following a sexual assault, the • 16% agreed that ‘women with physical disabilities omission of the views of the women themselves was are more likely to experience domestic violence a significant limitation of the study.52 than other women’, but 58% disagreed; 26. The Sexual Offences Project for Women with • 76% of respondents agreed that ‘few people know Disabilities, conducted in Victoria in 2003, aimed to how often women with disabilities experience examine the issues and problems victim/survivors rape or sexual assault’; with cognitive impairment experience when reporting sexual assault and proceeding with prosecution in • 42% of female respondents and 35% of male Victoria. Unfortunately, ‘due to ethical concerns and respondents agreed that ‘women with disabilities resource constraints, as well as the varying abilities who report rape or sexual assault are less likely to of victim/survivors to share their experiences’, it was be believed than other women’. decided that victim/survivors would not be directly interviewed. The Project instead invited those people 23. In February 2011, the Australian Government released who work with victim/survivors to ‘give case studies the National Plan to Reduce Violence against Women Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011 9
DATA AND STATISTICS that illustrate important issues and experiences when administrative procedures, accessibility of services and reporting and/or seeking access to justice’.53 support.’ The study found that women with disabilities have limited knowledge of rights and options to be 27. Similarly localised, Cockram’s work documenting the free from this form of abuse, and that they experience nature and extent of family and domestic violence ‘significant barriers’ in accessing domestic violence against women with disabilities in Western Australia support services. in 2003, sought to ascertain whether the needs of women with disabilities were being adequately 32. The lack of research on the issue of violence against addressed by relevant services. The accounts of women with disabilities has been identified by women with disabilities who have histories of family several writers as a major concern for some time.60 and domestic violence coupled with information from The small number of Australian research studies on service agencies, highlighted discrimination against violence against women with disabilities that have such women by service providers across a range of occurred over the past twenty years, have tended sectors.54 to be one-off, short term, small scale, and localised to a particular State/Territory or region. Generally 28. A Victorian study undertaken in 2006 analysed 850 speaking, the majority of projects have focused rapes reported to Victoria Police over three years, on women with intellectual disabilities. The lack of from 2000 to 2003.55 In 92.5% of cases, the victims independent evaluation appears to be a common were female. More than a quarter of victims (26.5%) theme, as does the lack of translation of findings into were identified as having a disability and, of this group, practice. Appendix 1 to this document provides a brief 15.6% had a psychiatric disability and 5.9% had an description of all known Australian projects on the intellectual disability. The cases in the study involving issue of violence against women with disabilities for victims with a disability were among those least likely the period 1990 – 2010. to result in charges being laid against the offender and twice as likely to be determined as false. 29. A recent Project undertaken by the Victorian Office Positive Initiatives of the Public Advocate (OPA)56 examined violence against OPA clients with cognitive impairments.57 33. In recent times it does appear that the issue of Women comprised 76% of the study. The study found violence against women with disabilities is slowly that women of all ages with a range of cognitive gaining more attention, particularly at the national impairments are subjected to physical, sexual, policy level. In many respects, this is directly psychological, emotional and impairment-related attributable to the sustained advocacy work of WWDA violence, financial abuse and neglect. The study also and its allies. found that, when acts of violence are not responded 34. In early 2011, as part of the National Plan to Reduce to appropriately, further violence is likely to be Violence against Women and their Children 2010- perpetrated against the person and it is less likely that 2022, the Australian Government announced funding the person will report it. of up to three million dollars over three years for 30. Figures from the Victorian OPA also show that in the Community Action Grants to ‘support community past five years, police have examined more than 1000 action to reduce violence against women through cases of alleged abuse involving people with severe projects which prevent domestic and family violence disabilities living in state residential care or private and encourage respectful relationships.’61 The homes - including 282 allegations of assault, 320 of Government announced that ‘priority will be given to rape, and six alleged abductions or kidnapping.58 projects that provide support to specific communities of older women, women with disabilities, culturally 31. A recent study in NSW examined the experience and linguistically diverse communities and gay and of domestic violence and women with disabilities lesbian communities.’ At the time of writing, several living in licensed boarding houses.59 The study found of the seventeen successful projects are still to be that domestic violence is a daily lived experience of publicly announced, although two of those which the women, and this situation exists largely due to have been announced, will focus on violence against ‘failures in legislative frameworks, policy guidelines, women with disabilities.62 10 Women With Disabilities AUSTRALIA
DATA AND STATISTICS 35. WWDA also understands that, as part of the Australian 38. In Australia, Governments attempt to respond to Government’s immediate response to the National violence against women through the legal and Plan, the Government will commission a national judicial systems on the one hand and through service reform project on ‘Improving Service Delivery to systems, which provide protection, support, treatment Women with Disability’. This national reform project and education, on the other hand.68 Women with is intended to provide an evidence base for future disabilities are not only marginalised and ignored reform of the service system to better respond to in many of these responses, but paradoxically, the needs of women with disabilities. At the time experience violence within and by the very systems of writing, this national reform project is in the and settings which should be affording them, care, preliminary planning stage and no firm details are yet sanctuary and protection.69 70 available. 39. The Supported Accommodation Assistance Program 36. Other positive developments at the national level (SAAP) (replaced in January 2009 by the National include, for example: Affordable Housing Agreement) was the Australian Government’s main homeless program and, as • Representation of women with disabilities on such, funded services including women’s refuges, the Australian Government’s national advisory shelters, and crisis services. The systematic exclusion structure to develop the National Plan to Reduce of disabled women from such services has been Violence against Women and their Children 2010- documented for more than two decades.71 In 2004, 2022; the New South Wales Ombudsman undertook an • Prioritising women with disabilities in the first inquiry72 into New South Wales SAAP agencies to Action Plan (2010–2013), including through two determine the extent of, and reasons for, exclusion ‘immediate national initiatives’; from SAAP. Overall, the inquiry found that ‘the level and nature of exclusions in SAAP are extensive. In • Representation of women with disabilities on the some cases, exclusions appear to be unreasonable Australian Bureau of Statistics Personal Safety and possibly in contravention of SAAP and anti- Survey 2012 Advisory Group; discrimination legislation, and SAAP standards and guidelines’. Disabled people, including people with • Representation of women with disabilities on physical impairments, intellectual impairments, the Advisory Board of the 24 hour national acquired brain injuries, along with people with mental counselling service 1800 RESPECT.63 illnesses, were one of the most significant groups affected by exclusion from SAAP. The inquiry found Please provide the available data on the number that a significant proportion of exclusions were based of women and girls with disabilities who have on ‘global’ policies of turning away all individuals accessed services and programmes to prevent belonging to a particular population group or sharing and address violence in the past year? Is this similar characteristics with a group. Reasons given by service providers for exclusions included limited information disaggregated by disability, as well staffing levels, incompatibility with other clients/ as by sex, age, socio-economic and ethnic residents, industrial legislative issues for staff, lack of backgrounds? physical access to buildings and lack of staff expertise and skills.73 37. Most services in Australia do not routinely collect 40. It is well documented that domestic and family disaggregated data on disability and violence, violence is one of the major factors in homelessness.74 including our national data collection, hospitals, 75 And it is clear that women with disabilities are courts, and police. Little is known about the help- over-represented in the factors that contribute to seeking experiences of women with disabilities homelessness.76 Despite this, women with disabilities experiencing (or at risk of experiencing) violence.64 remain excluded from all levels of the National 65 66 The lack of inclusive services and programs for Affordable Housing Agreement – the primary women with disabilities experiencing or at risk of policy and program response designed to address experiencing violence is well documented.67 homelessness in Australia. Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011 11
DATA AND STATISTICS 41. On 1st July 2011, the Australian Government 44. However, although some data is available (through operationalised the new National Minimum Data Set the SDAC) on the number of households in which for Specialist Homelessness Services (SHSNMDS). some people with disabilities reside, this data is not The SHSNMDS aims to provide quality information disaggregated by gender. Special tabulations of data about people who are either homeless or at risk of from the SDAC are available on request, however this homelessness and who are seeking services from is as a charged service. This means that any specific specialist homelessness agencies77 (including women’s tabulations seeking disaggregated data by gender, refuges, shelters, and crisis services). Many specialist would need to be purchased at a financial cost to homelessness services also deliver prevention and those seeking the data. early intervention programs.78 However, the new SHS NMDS does not include an indicator for disability. Please provide any statistics, information Clearly, the importance of the SHS NMDS in capturing or studies on disability/ies resulting from data on women with disabilities ought to be a critical mechanism in promoting their access to specialist violence against women and girls? homelessness services, including women’s refuges. It is unlikely that access and responses to such 45. There is very little information in Australia on women services will improve whilst disabled women remain with disabilities who have acquired their disability as invisible and ignored in such significant national policy a result of violence, despite the fact that violence can initiatives as the SHS NMDS. cause acute and chronic injuries that may lead directly to disability as well as leading indirectly to disabilities Please provide available data on the number of through distress and adverse lifestyle or coping households in which persons with disabilities strategies:82 reside. How many of these are women-headed “When I was 16 years old, my boyfriend households? bashed me almost to death. He beat me so badly I suffered a severe brain injury and was 42. There are two million women with disabilities living in a coma for four months. That evening in Australia, making up 20.1% of the population of when he bashed me he repeatedly stomped Australian women, but apart from that, gender and on and kicked my head. While lying in my disability data is scarce. For more than a decade now, hospital bed my family and nursing staff WWDA has found that one of the greatest difficulties could see the imprint of his shoe in my very in determining and substantiating the needs and swollen face.”83 human rights violations of women with disabilities 46. Cockram’s 2003 study in Western Australia found in Australia is the acute lack of available gender and that 38% of abused women with disabilities serviced disability specific data, research and information - at all by that State’s violence and/or disability services in levels of Government and for any issue. a two year period, had acquired their disability as a 43. The Australian Bureau of Statistics (ABS) conducts direct result of the abuse.84 This is corroborated by a number of surveys that provide data on disability US studies which suggest that of the population of at the population level. The most comprehensive women with disabilities, in approximately 40% of is the (national) Survey of Disability, Ageing and instances their disabilities are a result of violence Carers (SDAC),79 which collects information about a perpetrated against them by either their partners or wide range of impairments, activity limitations and caregivers.85 participation restrictions, and their effects on the 47. An Australian Senate Inquiry in 2003 into ‘Children everyday lives of people with disability, older people In Institutional Care’ highlighted the many hundreds and their carers. Less detailed but conceptually similar of children in institutional care who acquired their disability data are available in other data sources, disabilities as a result of the violence perpetrated including the Census of Population and Housing80 and against them while in ‘care’. The Inquiry received the General Social Survey (GSS).81 evidence of ‘general physical, psychological and dental health problems through to severe mental 12 Women With Disabilities AUSTRALIA
DATA AND STATISTICS health issues of depression and post-traumatic stress more likely to suffer family violence94 and sustain disorder’,86 along with reports from many care leavers serious injury requiring hospitalisation, and 10 times that they acquired their disabilities as a result of being more likely to die due to family violence, than non- assaulted in the institutions. According to the Inquiry’s Indigenous women.95 Report, ‘the outcome of serious abuse, assaults and deprivation suffered by many care leavers has had a 51. Research undertaken as part of the National Plan to complex, serious and negative impact on their lives’.87 Reduce Violence against Women and their Children 2010-2022 looked at the economic cost of domestic 48. A 2009 report by the Family Law Council88 highlights violence in Australia.96 It found that in 2009-10, it was data that victims of family violence receive more estimated that violence against women and their psychiatric treatment and have an increased incidence children cost the Australian economy an estimated of attempted suicide and alcohol abuse than the $13.6 billion, and that, without appropriate action to general population.89 address violence against women and their children, an estimated three-quarters of a million Australian 49. Similarly, a 2004 study in Victoria,90 which measured women will experience and report violence in the the burden of disease caused by intimate partner period of 2021-22, costing the Australian economy violence found that intimate partner violence: an estimated $15.6 billion. In relation to women with • has wide-ranging and persistent effects on disabilities, it found that: women’s physical and mental health; without appropriate action the estimated • contributes nine per cent (9%) to the total disease cost to the Australian economy of violence burden in Victorian women aged 15–44 and 3 per perpetrated against women with disabilities cent in all Victorian women; in 2021-22 will be $3.9 billion, representing 25% of the total cost of the total cost of • is the leading contributor to death, disability and violence in 2021-22.97 illness in Victorian women aged 15–44, being responsible for more of the disease burden than 52. There have been a number of media reports over the many well-known risk factors such as high blood years of women who have sustained horrific injuries pressure, smoking and obesity. and permanent disabilities as a result of violence perpetrated against them. For example, in 2003, a 31 In relation to women with disabilities, the study found year old man raped and assaulted a colleague after that: a work function in Victoria. After raping his victim in the stairwell of a building, the man walked out of the women with disabilities are under- building, looked up and down the street, and then represented in existing prevalence studies. returned to repeatedly stomp on her head. The 30 These women may be particularly vulnerable year old woman was admitted to hospital with facial to violence or its health impacts, primarily fractures, a partly amputated right ear, brain damage because they are less likely to have the social and serious vaginal and anal injuries. The offender was supports and economic resources required subsequently sentenced to serve a minimum of 12 to protect themselves from or to leave a years in prison.98 99 violent relationship. Low participation in existing studies by these women also worked against comparing the burden experienced by them in this particular study.91 50. It is widely acknowledged that Indigenous Australians have rates of ill-health and disability substantially higher than other Australians.92 Australian Bureau of Statistics data shows that nationally, 50% of Indigenous Australians aged 15 years and over have a disability or long-term health condition. Over half are female (51%).93 Indigenous women are 35 times Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011 13
LEGISLATION AND POLICIES Is there a legal framework addressing violence against women and girls with disability in different contexts (within the family, at the community and in the workplace, and in Sate and non-State institutions such as medical, education and other service providing institutions)? 53. In Australia, there is no uniform definition or understanding of what constitutes violence against women.100 Legislation designed to protect individuals from family and domestic violence is the responsibility of the States and Territories. Generally, violence against women is understood in the context of ‘domestic’, ‘spousal’ or ‘family’ violence. The legal definition of domestic violence for example, varies across jurisdictions because of differences in legislation.101 Appendix Two provides definitions of ‘family/domestic violence’ in relevant Commonwealth/State/Territory legislation.102 54. Most of the Australian legislation designed to protect individuals from family and domestic violence defines what constitutes a ‘domestic relationship’ and some of these definitions are more inclusive than others, including for example, gay, lesbian and transgender relationships, siblings, children, non-partner family members, and so on. Some also include ‘informal care relationships’ which apply to domestic support and personal care relationships provided without fee or reward, and which are not under an employment relationship between the persons; and/or not on behalf of another person or an organisation.103 55. Despite the many and varied definitions within the various Australian laws of what constitutes domestic violence, family violence, domestic relationships, significant persons, relevant persons and so on, most of the current laws do not contain definitions which specifically encompass the range of domestic/ family settings in which women with disabilities may live (such as group homes, institutions), nor do they contain definitions which capture and encompass
the various forms of violence as experienced by • facilitating decision making for people with women with disabilities. Because these experiences disabilities who lack the capacity to make certain may not fit either traditional, or contemporary decisions themselves; definitions, violence against women with disabilities often goes unidentified.104 It is nominally possible for • appointing guardians and financial managers, and women with disabilities who experience violence consents to medical and dental treatment; to take measures such as apprehended or personal • investigating claims of exploitation, abuse or violence orders. In practice however, for women with neglect; intellectual disabilities who live in group homes for example, recognition of the specific support needs of • consenting to a “special medical procedure”, such women is limited and their access to effective such as ‘a procedure intended or likely to cause protection, rather than promoted by legislation, is infertility’. dependent on mediation and intervention by others 58. Most States and Territories of Australia also have such as staff or carers, who may also be perpetrators. an independent body (such as the Victorian OPA), 56. The Disability Discrimination Act 1992 (Cth) (DDA) which acts on behalf of, and advocates for, people represents a rights-based approach to establishing with a decision-making disability. The roles and the legal right for disabled people to be free from responsibilities differ from State to State, however, discrimination and to participate in the community in they include promoting the rights of people with the same way as non-disabled people.105 Compliance disabilities and protecting them from exploitation with the DDA is driven mainly by a system of individual and abuse. This can include investigating the complaints, through which people with disabilities circumstances of a person who is believed to have enforce their rights. Many women with disabilities decision-making incapacity and is at risk in some face significant barriers or disincentives to using the way.111 However, Public Advocates have recently complaints process, including for example: lack of spoken out about their lack of investigative powers awareness of the DDA; the complexity and potential and also the failure of current laws in protecting formality of the process; the fear of victimisation; the people with disabilities from violence and abuse.112 onus on the complainant to prove their complaint; the 113 For example, under current Guardianship Laws unequal financial and legal resources of complainants in Victoria, the Public Advocate has only the power and respondents; the financial and non-financial costs to examine alleged mistreatment involving people involved; and, the lack of support and assistance who are formally placed under her guardianship or in preparing for, and going through the process.106 who are being considered for guardianship. This is 107 108 The DDA has not been used in relation to done through an order by the Victorian Civil and violence against women with disabilities, as it is Administrative Tribunal (VCAT).114 But many people essentially designed to prohibit discrimination against being abused may not be subject to a guardianship people with disabilities in the areas of employment, order, meaning that large numbers of the state’s most education, the provision of goods, services and vulnerable people are at risk. 115 According to Colleen facilities, and access to premises. Pearce, the Public Advocate in Victoria: 57. Australian Guardianship law is the key regulatory ‘’There’s a widespread expectation that mechanism for protecting the health and human the Public Advocate is going to be able to rights of young persons, adults with disabilities and investigate situations of abuse involving the elderly, and yet it remains understudied and a person with a disability, and that is not misunderstood as a body of knowledge.109 Australia necessarily the case. We think there are large has eight different guardianship regimes, which vary numbers of people [at risk], but it’s really widely in their forms of regulation. Guardianship hard to quantify and that’s partly because legislation is enacted through State and Territory abuse against people with a disability is based Guardianship Tribunals/Boards.110 The roles of really hidden. It occurs in a government-run Guardianship Tribunals/Boards vary but can include for institution or in people’s private homes.’’116 example: Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011 15
LEGISLATION AND POLICIES Are practices such as 1) forced psychiatric tribunals; and that these procedures are actively sought (by parents and carers) in other jurisdictions intervention, 2) forced institutionalization, both within Australia and in other countries. 3) solitary confinement and restraint in Current domestic law does not prevent children institutions, 4) forced drug and electroshock with disabilities from being taken out of Australia to another country to have the sterilisation procedure treatment, 5) forced abortion 6) forced performed.120 sterilization and 7) harmful practices, 61. In late June 2011, WWDA submitted a formal prohibited by law? communication to the United Nations regarding the ongoing practice of forced sterilisation in Australia121. WWDA’s Submission was sent simultaneously to Forced Sterilisation four of the United Nations Special Rapporteurs,122 59. In Australia, the legal position on sterilisation varies requesting intervention to urge the Australian from jurisdiction to jurisdiction.117 From 2003 to 2007, Government to comply with the recommendations of in an attempt to ‘minimise the risk of unauthorised the Committee on the Elimination of Discrimination sterilisations occurring’,118 the Australian Government against Women (July 2010),123 the Committee on the began to address non-therapeutic sterilisation of Rights of the Child (October 2005),124 and the Human children [girls] by drafting national, uniform legislation Rights Council (January 2011)125 to act immediately (ref). However, the goal of this legislation was not to to develop national legislation prohibiting the non- prohibit forced sterilisation of girls with disabilities, therapeutic sterilisation of girls and adult women with but instead to regulate who could authorise non- disabilities in the absence of their fully informed and therapeutic sterilisations of minors with ‘decision- free consent. WWDA’s Submission further requested making disabilities’. The draft legislation was strongly assistance from the Special Rapporteurs to ensure opposed by disability and human rights organisations that the Australian government implement a range on the grounds that it did not clearly prohibit of strategies to enable women with disabilities to sterilisation in all non-therapeutic circumstances, it realise their right to health, their right to freedom only applied to children with intellectual disabilities, from violence, their rights to reproductive freedom and it applied a broad test for the judicial authorisation and to found a family, and their right to freedom from of sterilisation. Critically, the primary emphasis of the torture or cruel, inhuman or degrading treatment or draft legislation was not on the prohibition of this punishment. human rights abuse but on the elaboration of the 62. In late 2011, WWDA collaborated on the development circumstances and principles under which it could of an international Briefing Paper on Sterilization of occur – which were essentially permissive rather than Women and Girls with Disabilities.126 This briefing protective. paper has been jointly prepared by WWDA, Human 60. The Australian Government discontinued this work in Rights Watch (HRW), the Open Society Foundations, 2007 because it believed that sterilisation of girls with and the International Disability Alliance (IDA) as part of disabilities had declined and that existing guardianship the Global Campaign to Stop Torture in Health Care.127 and court mechanisms for authorising sterilisation The paper gives a background to the issue of forced procedures worked adequately.119 This was incorrect, sterilisation, outlines various international human and, to date, existing State and Territory legislation rights standards that prohibit forced sterilisation, and federal court mechanisms have been ineffective and offers several recommendations for improving in eliminating non-therapeutic, forced sterilisations laws, policies, and professional guidelines governing of young girls with disabilities. Anecdotal reports and sterilisation practices. health insurance statistics provide evidence that non- 63. Anecdotal evidence indicates that applications for therapeutic sterilisation of girls with disabilities has non-therapeutic sterilisations of women and girls occurred in greater numbers than officially reported; with disabilities in Australia may be on the increase that it occurs without authorisation by courts and rather than in decline. For example, recent reports 16 Women With Disabilities AUSTRALIA
LEGISLATION AND POLICIES to WWDA suggest that gynaecologists are applying managing menstruation is a medical matter. Dowse to Guardianship Boards for authorisation to perform & Frohmader (2001) reported that in Australia, there hysterectomies on disabled girls as soon as they reach have been no long-term studies into the health effects the age of 18 years. It appears that the applications are of long-term hormonal suppression of menstruation being sought solely for the purpose of ‘prevention of on young women although risk factors such as future pregnancy’.128 dysfunction of the ovaries and the cardiovascular system have been identified.132 Forced Contraception/Menstrual Suppression Deprivation of liberty and restrictive practices 64. The management of menstruation in women with disabilities should be no different to that provided for 67. Women and girls with disabilities in Australia continue any other woman. However, in the case of women to be subjected to multiple forms and varying and girls with intellectual disabilities, there appears degrees of ‘deprivation of liberty’ and are subjected to be an assumption that menstruation is a problem to unregulated or under-regulated restrictive that should be overcome by menstrual suppression interventions.133 134 This is particularly the case for or elimination of the cycle.129 Forced contraception women and girls with intellectual and/or cognitive through the use of menstrual suppressant drugs (such disabilities, developmental disabilities and those with as Depo-Provera) is a widespread, current practice psychosocial disabilities. A restrictive intervention in Australia, particularly in group homes and other has been defined as ‘any intervention that is used forms of institutional care. It has been justified as a to restrict the rights or freedom of movement of a way of reducing the ‘burden’ on carers who have to person with a disability’,135 and can include practices ‘deal with’ managing menstruation of disabled women such as chemical restraint,136 mechanical restraint,137 and girls. It is however, a means of denying basic physical restraint,138 social restraint,139 seclusion140. reproductive rights and is a form of sexual violence.130 Such practices are often imposed as a means of coercion, discipline, convenience, or retaliation by 65. In 1992, the Victorian Intellectual Disability staff, family members or others providing support.141 Review Panel submitted a report to the Minister These practices are not limited to institutions such for Community Services on the use of menstrual as group homes, but also occur in educational suppressants in Victorian institutions. A major settings (such as schools), hospitals, residential aged finding of the Panel was that there had been blanket care facilities and other types of institutions (such administration of drugs causing menstrual suppression as hostels, boarding houses, psychiatric/mental to women in institutions who did not require this health community care facilities, prisons, supported medication for contraceptive purposes and for whom residential facilities). the medication was prescribed without their consent. The purpose of administering the medication was 68. Australian studies of restrictive practices and people for the ease of management of the menstrual cycle with disabilities are limited and publicly available data of the women, that is, for the convenience of the from government agencies is not easily sourced.142 staff caring for them. The Panel found that the drugs However, in Victoria the public record reports that Depo-Provera and Noresthisterone were being used during 2005/06, on average, 28% of residents with in Victoria without routine gynaecological screening intellectual disabilities in accommodation services (Law Reform Commission of Western Australia 1994). were subject to restraint and/or seclusion and 23% of clients with intellectual disabilities in respite services 66. A 1994 Australian study by Carlson & Wilson,131 were subject to restraint and/or seclusion.143 The examined menstrual management issues for women Australian Psychological Society144 asserts that at least with intellectual disabilities. The study found that a quarter of all people with an intellectual disability frequent access to medical advice and an apparent will be subject at some time to some form of restraint, lack of access to advice about educational and and has called on the Australian Governments to environmental management approaches and to take urgent action to end restrictive practices in the practical support, may be reinforcing a perception that disability sector: Submission to the UN Analytical Study on Violence against Women With Disabilities DEC2011 17
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