2019 SPRING FASHION SOIRÉE MODEL FAMILY INFORMATION AND EVENT DETAILS - Runway to Hope
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THE MISSION: Runway to Hope’s mission is to support families primarily in Central Florida fighting Pediatric Cancer while seeking a cure. THE VISION: Through relationships with children’s hospitals, Runway to Hope fosters collaborative efforts among corporations, local businesses, and philanthropists to not only raise funds and awareness, but also bring new programs and initiatives to the pediatric cancer community, while providing direct support and aid primarily to Central Florida children and their families impacted by pediatric cancer. DIRECT FINANCIAL SUPPORT: Through the Runway to Hope Family Assistance Program, direct aid is provided to families who are in desperate need of financial support. Runway to Hope covers expenses such as gas and groceries, water, electricity, mortgage and rent, car payments, and sadly, at times, funeral and end-of-life expenses. RECOGNITION: Runway to Hope has received recognition from the Central Florida’s Association of Fundraising Professionals on National Philanthropy Day in the following categories: Orlando Magic Youth Foundation Creating Change Honoree (2017), Excellence in Fundraising by a Non-Profit Organization (2014), and “Outstanding Philanthropists” honoring Runway’s co-founders Mark and Josie NeJame (2014). Runway to Hope’s Spring Fashion Soiree has been named “Best Charity Event” a combined total of fourteen times in its eight year existence by the Orlando Business Journal, Orlando Magazine, and Orlando Style in addition to being featured in People Magazine and Marie Claire. Runway to Hope was featured on CNN’s segment Champions for Change in June 2017 as Don Lemon’s charity.
RUNWAY TO HOPE’S 9TH ANNUAL
SPRING FASHION SOIRÉE
The Runway to Hope Spring Fashion Soiree is the organization’s signature fundraising event
of the year! The highlight of the evening is an inspiring
and heartwarming fashion show featuring more than 175
incredible and brave children, all of whom are currently
battling or have overcome their pediatric cancer.
Modeling much more than clothing, these inspiring
children walk the runway hand-in-hand with one of our
national and local celebrity escorts. The models who take
the stage are all between the ages of 2 and 18. It is an
incredible experience to watch these kids show off their
strength and unwavering spirits as they strut and smile
down the runway! The Runway to Hope Spring Fashion
Soiree is a celebration of these children and their
incomparable courage. The annual Spring Fashion Soiree is also a true testament to the
support and passion the Central Florida community has shown towards this inspiring cause.
Since Runway to Hope’s inception in 2010, the Soiree has soared in attendance as well as the
amount of dollars raised. In May 2018, the event hosted approximately 2,300 guests and an
outstanding amount of $1.2 million was pledged during this single, spectacular evening! As one
of the most highly anticipated evenings of the year, the Runway to Hope Spring Fashion
Soiree takes place at the luxurious Rosen Shingle Creek
Resort, one of our most valued corporate sponsors.
WHEN & WHERE:
May 18, 2019
Rosen Shingle Creek
9939 Universal Boulevard
Orlando, FL 32819OUR HOSPITAL PROMISE The funds raised by Runway to Hope’s Spring Fashion Soiree benefit the pediatric oncology programs at our local children’s hospitals as well as Runway to Hope’s Family Assistance Program. FLORIDA HOSPITAL FOR CHILDREN: Runway to Hope’s initial $1 million pledge funded the Pediatric Palliative Care Program at Florida Hospital for Children. This program provides physical, emotional, and spiritual support to children and their families who are suffering from a pediatric cancer diagnosis. In 2017, Runway to Hope completed their $1 million pledge and started a new promise to the hospital of $500,000. This new pledge will fund a portion of the pediatric oncology floor renovation which was completed in December of 2017. The new floor grew to include 12 large patient rooms, a family lounge, and a play room. This renovation of the hospital wing has already provided much needed comfort and top of line equipment to serve the families living and battling pediatric cancer in this unit. In 2018, an additional $10,000 was pledged toward the pediatric oncology division of CAR T-cell immunotherapy that will be offered by Florida Hospital in 2019. Florida Hospital will be one of the first pediatric hospitals in Central Florida at which patients will be able to receive the CD19- CAR T-cell product, and this breakthrough treatment will assist our common goal to advance cures for our patients. They are working to develop cell-based immunotherapies to improve outcomes for children with cancer who currently cannot be cured. NEMOURS CHILDREN’S HOSPITAL: At Nemours Children’s Hospital, Runway to Hope’s initial $1 million pledge funded the Community Children’s Oncology Program, which is a database that improves access to leading-edge therapies, research, and resources for pediatric cancer patients throughout Northern and Central Florida. Additionally, funding supported the Pediatric Interventional Radiology Program, which serves cancer patients directly by utilizing rare and advanced imaging technologies for localized treatment. Runway to Hope completed their $1 million pledge in 2018 and started a new promise to the hospital of $500,000. In 2019, funding will continue to support the Pediatric Interventional Radiology Program by purchasing new equipment and training for Microwave Ablation technology used in treating sof t tissue tumors. This technology will reduce the children’s side effects and offer the opportunity to have potentially life-saving care. A brand new Survivorship Program is also being funded, which will give physicians access to a database containing information on how patients reacted to their treatments so doctors can better treat all of the children diagnosed with pediatric cancer. ARNOLD PALMER HOSPITAL FOR CHILDREN: Runway to Hope’s contribution supported Central Florida’s first ever comprehensive Pediatric Neuro- Oncology Program, which is comprised of a team that provides the full range of medical and emotional support specific to pediatric brain tumor patients during and af ter their treatment. Runway to Hope has completed their $1 million pledge to Arnold Palmer Hospital for Children.
FAMILY ASSISTANCE PROGRAM
In addition to the combined hospital pledge to
the children’s hospitals, Runway to Hope provides
desperately needed direct financial assistance to children
and their families affected by childhood cancer. When
a child is diagnosed with cancer, the entire family is put
to the test and faces incomprehensible, life-altering
situations. Families of childhood cancer patients often
experience a dramatic decrease in income when caring
for their sick child. Often times one parent has to quit
work to become a full time caregiver for their child. Their entire schedule is often quickly devoted to being bedside in
a hospital setting or dedicating all of their time and resources to their child’s care. Added to this is the additional stress
and inability to afford the bills and expenses related to medical treatment, which can be very overwhelming.
The financial gifts made to Runway to Hope assist with many necessities including: transportation to and from the
child’s life-saving treatments, mortgage and rent payments, car payments and repairs, as well as frequent requests to
maintain the essentials in a home such as electricity and water. Tragically, end of life and funeral costs are sometimes a
reality for these families who have been both emotionally and financially devastated. The needs are endless and solely
funded by philanthropy. Childhood cancer is not a battle these families can or should fight alone.
Runway to Hope’s Family Assistance Program continues its mission
to provide direct financial aid and assistance to families in need who
are being treated at all three of Central Florida’s children’s hospitals.
Moreover, funds from the Family Assistance Program are utilized
to provide the children and their families a spectacular night at
our annual Spring Fashion Soiree. Our beautiful warriors and their
families are treated to a night and experience of a lifetime. With
most families struggling financially as they care for their child with
cancer, there are usually far too few funds, energy, or time to break
away from the daily tasks and struggles. Runway to Hope helps to
change all of that. Providing a new outfit to each model, picked out
by the child and one of our wonderful volunteers, at the Boys and
Girls Bash held weeks before, the night is one for them to dress up along with their families and shine. In addition to
their new outfits, the meals, drinks, and special needs that may be required are all paid for by Runway to Hope’s Family
Assistance Program. Countless children and their families have told us how the night was truly the best of their lives,
as the experience was truly an unforgettable one for them. At least one third of the attendees at the annual gala are
actually the children and their families. After all, it’s all about them!YOU’RE INVITED!
LET’S FORGET ABOUT ALL OF THE HOSPITALS, CLINICS,
MEDICATIONS, & TREATMENTS!
LET’S TAKE THE TIME TO HAVE SOME FUN, MAKE NEW
FRIENDS, & SHOW EVERYONE YOUR SPARKLE & SHINE!
LET’S SHOW THE WORLD YOU’RE A FIGHTER WHO WILL TAKE
YOUR WALK OF FAME DOWN THE RUNWAY!
LET’S HOLD HANDS.
LET’S WALK TOGETHER.
LET’S END CHILDHOOD CANCER.
JOIN US FOR THE 9TH ANNUAL RUNWAY TO HOPE SPRING
FASHION SOIREE!
MAY 18TH, 2019 | ROSEN SHINGLE CREEK RESORTRUNWAY TO HOPE MODEL INFORMATION
The highlight of our signature event of the year is a very special fashion show
consisting of over 175 models who are battling or currently in remission from
their pediatric cancer diagnosis!
In order to participate as a model at the 2019 Runway to Hope Spring
Fashion Soiree, your child must meet the following requirements and submit
all proper documentation:
1. Your child has been diagnosed with a type of pediatric cancer.
2. Your child is between the ages of 2-18.
3. Your child is currently in active treatment OR has been in remission for no
longer than 4 years.
If your child meets the above requirements, please go to www.runwaytohope.
org to submit your model application. Your application must be submitted in its
entirety and you will receive an email confirming the reciept of forms as well as
your child’s approval to participate. If your child has been in remission for longer
than 4 years, they may be eligible to join our HOPE Program!
If you have any questions, please call the Runway to Hope Office at
407-802-1544 and ask for Peggy or Bobbi.
You may also email: peggy@runwaytohope.org | bobbi@runwaytohope.orgBLOOMINGDALE’S BASH WEEKEND
Before making their debut on our runway, our models will have the unique opportunity
to share a day of absolute indulgence at Runway to Hope’s Bloomingdale’s Bash
Weekend. This event was created to give our models impacted by pediatric cancer
a much needed break from hospitals, doctors, treatments, medicines, and other
challenges they endure every day! This day creates a moment where cancer does not
have to take center stage in their lives. Our Runway to Hope models will have the
opportunity to choose a brand new outfit for their walk of fame on the runway in May
as well as meet new friends, make awesome memories, and receive the full red carpet
treatment with vendors of all sorts!
MARCH 9TH & 10TH, 2019
BLOOMINGDALE’S ORLANDO
THE MALL AT MILLENIA
4152 CONROY ROAD, ORLANDO, FL 32839
Please visit www.runwaytohope.org to submit your model application forms as well as to
RSVP for your Bash Date preference. Participating models will attend on either
March 9th or 10th at Bloomingdale’s Orlando.
The deadline to submit your application is March 4th, 2019OUR HOPE PROGRAM
Runway to Hope is very passionate about celebrating the success of your
child’s milestones. It is not an easy feat to overcome this terrible disease
and we would like to invite your child to celebrate their turning point and
join us in giving back to those who are still in active treatment. With your
child’s accomplishment, we invite you to join our HOPE Program.
To be a part of the 2019 HOPE Program your child must meet the
following requirements:
1.Your child must be a previous Runway to Hope Model Participant.
2. Your child has been diagnosed with a type of pediatric cancer.
3. Your child is between the ages of 5-18.
4. Your child has completed 5 years or more of remission from their
pediatric cancer.
Being a part of the HOPE Program includes:
1. Being a Volunteer Buddy at the Bloomingdale’s Bashes to help our
models choose their clothing for the runway on either March 9th and/or
March 10th. Being a Volunteer Buddy includes escorting the model around
Bloomingdale’s to choose their clothing for the runway, enjoy the activities
with them, and spend time with the model to inspire HOPE!
2. Your child will receive one (1) complementary ticket for the 2019 Spring
Fashion Soire. Additionally, two (2) complementary tickets will be available
for the child’s guests.
3. Your child will be allowed to have their hair and make-up done before
the Spring Fashion Soiree upstairs with the models and then escorted
downstairs to sit with their parents in the ballroom during the show. If your
child would like to stay backstage, that can be arranged ahead of time.
They will not be allowed to bounce back and forth.
4. If your child has not received a Runway to Hope Survivorship Medal,
there will be a small ceremony upstairs on the night of the Spring Fashion
Soiree to present the medal to them.
5. Your child will be called back during the show in the ballrooom to
prepare to escort their model down the runway.
*Please note HOPE program participants will not receive an outfit from Bloomingdale’s or
Runway to Hope for the Spring Fashion Soiree.CENTRAL FLORIDA TESTIMONIALS
“This event showcases youngsters who so bravely
fight this dreaded disease, who can at least for
a moment put their struggle aside and enjoy a
celebratory atmosphere.”
— Harris Rosen, President and COO, Rosen
Hotels & Resorts
“When our son was
hospitalized for several
weeks, some parents at
Florida Hospital told us about Runway to Hope and all of
the fabulous work they do for pediatric cancer patients
and their families. They provide financial assistance,
which is a tremendous help, as well as highlight the
children in their amazing gala. As Grayson walked the
runway with Don Lemon, the smiles on their faces were
priceless. Runway to Hope highlights how special these
children are and brings a much needed awareness to childhood cancer. Our family
will forever be grateful. ” —Michelle Zrelak, Mother of Grayson Zrelak
“Runway To Hope is truly inspirational in
their dedication and compassion for ending
childhood cancer. Having the opportunity to
meet these extraordinary young people and
their families has been incredibly rewarding
and a blessing to me. I hope to be involved in
their fight for a cure for many years to come.”
— Howie Dorough, Backstreet Boy MemberI met Rudy at Runway to Hope one
night – but she made an impact
that still moves me today. As much
as anything, Rudy taught me about
grace. She knew she didn’t have long,
but she was determined to let her light
shine as long as possible. Special kids
like that deserve all the help - and love - we can give them.
— Scott Maxwell, Orlando Seintinel Columnist
“I was so moved to learn the story
of Runway to Hope and their fight
against pediatric cancer. This incredible
organization has offered not only support,
but also much needed hope for the many
families fighting the disease.” — Frank
Santos, CFO Rosen Hotels & Resorts
“It was an amazing experience to be able to
walk on stage with two young children that
had just recovered from major illnesses. I
could see in their faces the excitement &
thrill of being part of something special.
This was their chance to shine and to be
recognized as famous stars. To me, they
are much more than stars and celebrities.
They are truly deserving of our admiration!”
Dr. Andre Hebra, Chief Medical Officer,
Nemours Children’s HospitalLETS HOLD HANDS.
LETS WALK TOGETHER.
LETS END CHILDHOOD CANCER.
Runway to Hope
189 South Orange Avenue, Suite 1800
Orlando, FL 32801
407.802.1544 | www.runwaytohope.org
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