2021 DD 101 - The Arc of Washington State

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2021 DD 101 - The Arc of Washington State
2021
                   DD 101

                      Zooming in on Developmental Disabilities

  A Guide for legislators and staff about the
Development Disabilities Administration’s (DDA)
  supports and services for people with DD.

 Prepared by The Arc of Washington State ~ 1.888.754.8798 ~ www.arcwa.org
2021 DD 101 - The Arc of Washington State
2020 Statistics
  Developmental Disabilities Administration:

Basic Infor mation About Ser vices and Suppor ts
  for People with Developmental Disabilities
   For the 2021 Legislative Session

     •   Grassroots Advocacy, Community Values

     •   DDA Biennial Base Funding

     •   DDA Clients and State Budget Allotment

     •   DDA 2019-21 Budget Request

     •   DD Services—How they are funded & where they are found

     •   DDA HCBS Funded Waiver Capacity

     •   DDA Children and Adults by Residence Type

     •   Supported Living: Providing Services During COVID-19

     •   COVID-19 By Cases and County

     •   DDA Clients on Paid & No Paid Caseloads (By County)

     •   DDA Employment/Day Services (By County)

     •   History and Use of Residential Habilitation Centers (RHC)

     •   DDA HCBS Waivers, Community First Choice & RHC Costs

     •   Hospital Length of Stay/Barrier to Discharge

     •   You Know Me! - Your Constituents Speak Up!
2021 DD 101 - The Arc of Washington State
Developmental Disabilities:

                                                        Grassroots Advocacy

                                                           Community Values

Developmental Disabilities (DD) advocacy represents the statewide effort of individuals
with developmental disabilities, family members, service providers and concerned
disability organizations.
        We are joining together to promote quality community-based services
                   for all people with developmental disabilities.
Times have changed from the days when children and adults with significant disabilities
were segregated, moved into institutions, denied education as well as opportunities to
work and participate in our communities.
Who has an Intellectual/Developmental Disability?

How Many People have an Intellectual/Developmental Disability?
Approximately 1.58% of the general population is estimated to have an Intellectual and/or
Developmental Disability (I/DD). In Washington State, this means that about 120,000
children and adults may have this diagnosis.
       The current caseload of the Developmental Disabilities Administration (DDA)
        is approximately 49,300.
       Currently, more than 14,000 of those are still waiting for services because
        of lack of funding.
The majority of people with developmental disabilities now live with their families or in
their own homes, with support to be as independent as possible. As a result of these
changing values, and with the support of state and federal government funding and
policies:
                       Children with DD participate in school,
                  Adults with DD become employed and pay taxes,
                        and our diverse communities benefit!
Unlike the old days of defining people by what is wrong with them, community advocacy is
based on the fundamental belief that having a disability is a normal part of life.
                     These are not the opinions of a few groups;
              they are the values of a state and nation moving forward.

              2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
2021 DD 101 - The Arc of Washington State
Developmental Disabilities Administration (DDA)
                           Biennial Base Funding
             Budget Allotment for FY 2021—$3.75 Billion (100%)
      $1.80 Billion General Funds State (48%) and $1.95 Billion Federal/Other (52%)

                                                                             In-Home Services include:
                                                                             •   Community First Choice
                                                                             •   Individual & Family Services
                                                                             •   Employment/Day

                                                                       Note: General Fund-State (GF-S) dollars
                                                                             are in millions
               Category              GF-S      2020       2020
                                                                  1
                                               FTEs     Clients
                                                                       •     General Funds State: $1.8 Billion
                                                                             (48.1%)
Central Office—Program Support       $5.5      22.7        —
                                                                       •     Federal/Other Funds: $1.9 Billion
Field Services                      $110.7    882.4        —                 (51.9%)
                                                                       1
Residential Habilitation Centers                                           Total unduplicated count of clients
(RHC) 3                             $226.0    2,455.6     630              receiving a paid service from DDA
                                                                       2
Community Residential               $687.3      —        4,586             State Operated Living Alternatives
                                                                           (SOLA) and Community Crisis
State Operated            2          $64.6    727.3       246              Stabilization Services (CCSS)
Community Residential
                                                                       3
                                                                           584 long-term stays, approx. 89
In-Home Services and Supports       $552.8      —       21,668             planned or emergent respite
                                                                           (short-term)
Other Community and Professional    $134.5      —          —
Services 4                                                             4
                                                                           Funds support clients in community
                                                                           residential or in-home settings with
Consolidated Maintenance & Ops       $24.9    193.1        —               respite and therapies
Totals:                            $1,806.3   4,281.0   27,130

         120,000 people estimated in Washington State with a developmental disability
         49,282 clients enrolled with the Developmental Disabilities Administration (2019—48,422)
         35,233 of those clients receive at least one paid service from DDA (2019—34,935)
         14,049 of those clients receive No Paid Services from DDA (2019—13,487)

                       Source: Developmental Disabilities Administration (DDA) - October 2020
                      2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
2021 DD 101 - The Arc of Washington State
Developmental Disabilities Administration (DDA)
            Clients and State Budget Allotment

Number of DDA Clients and Percentage in Residence Type

    Budget Allocation and Percentage in Residence Type

                                                                  (State Dollars in Millions)

     Source: Developmental Disabilities Administration (DDA) - October 2020
    2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
2021 DD 101 - The Arc of Washington State
Developmental Disabilities Services
                        How They Are Funded & Where They Are Found

Community Based DD Services:
  • Case management/Intake (provided by the state)
  • Early Intervention Services for children age birth-3 (state contracts through counties)
  • Home & Community Based Services (HCBS) Waivers (Services are based on habilitation and support to build and
    maintain abilities that lead to greater independence in the community):
      ~ Basic Plus Waiver
      ~ Core Waiver
      ~ Community Protection Waiver
      ~ Children’s Intensive In-home Behavior Supports (CIIBS) Waiver
      ~ Individual & Family Services
  • Employment/Day (waiver service contracted by the state through the counties)
  • Community First Choice program (In-home care services to assist with activities of daily living, such as bathing
    and dressing). MPC transitioned to the Community First Choice program, which provides the state with an
    additional 6% in matching federal funds.
  • Supported Living/Staffed Residential Services/State Operated Living Alternative (SOLA) - (the community-based
    alternative to institutional care, provided as a Core waiver service)

Residential Habilitation Centers (RHC):
  • Fircrest—Intermediate Care Facility (ICF) and Nursing Facility (NF)
  • Rainier—Intermediate Care Facility (ICF)
  • Yakima Valley—Nursing Facility (NF)
  • Lakeland Village—Intermediate Care Facility (ICF) and Nursing Facility (NF)

                                       FEDERAL MATCH
Nearly all DD service dollars are matched with federal Medicaid funding. Under Title XIX,
Medicaid is used to match state funding for HCBS waiver services.
Federal Medical Assistance Percentages (FMAP) are the percentage rates used to determine the
matching funds rate allocated annually to certain programs.
The FMAP for FY 2021 is 50.00% state and 50.00% federal with the exception of the Community First Choice program
which receives an additional 6% federal match.

                         Data from Developmental Disabilities Administration (DDA) 2020
                   2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
2021 DD 101 - The Arc of Washington State
Developmental Disabilities Administration (DDA)
         Home & Community Based Services (HCBS) Funded Waiver Capacity

     In the 1980s, the Federal government allowed states to apply for Federal Medicaid funds to pay for
home and community based services, referred to as Home and Community Based Services Waiver Program.
What a person is “waiving” is the right to an Intermediate Care Facility (ICF/DD), receiving their services
in a community setting instead of the more expensive institutional setting.
                 Total Waiver Capacity:                         If you qualify for ICF care, placement in one of
                          2015: 13,338                          our state’s Residential Habilitation Centers is an
                          2016: 15,586                          entitlement, but there is no entitlement to
                          2017: 19,064                          services in the community, as those depend on
                          2018: 20,027                          funding from the Legislature. There are “request
                          2019: 20,391                          lists” for waivers.
        12,000

        10,000

         8,000

         6,000

         4,000

         2,000

             0
                      Basic +               Core                C.P.               CIIBS                IFS
        2015           7846                4582                 418                  95                 397
        2016          8,037                4,572                415                  99                2,463
        2017          8,376                4,553                411                  94                5,630
        2018          8,857                4,570                407                  71                6,122
        2019          9,092                4,591                407                  83                6,218
        2020          10,545               4,871                430                  89                6,649

                                                 Key Waiver Elements
                 Meets ICF/MR level of care guidelines, but is at high risk of out-of-home placement or loss of current
Basic Plus       living situation. Includes: Basic Waiver service coverage, skilled nursing, additional employment/day
                 funding.

                 Meets ICF/MR level of care guidelines. Requires residential habilitation services or lives at home, but
Core             is at immediate risk of out-of-home placement. Includes all Basic Plus waiver services, in addition to
                 supportive living services (up to 24 hour supervision and support).

Community        Meets ICF/MR level of care and requires 24 hour, on-site, staff supervision to ensure safety of others;
Protection       requires therapies and/or other habilitation services; meets the criteria for “community protection.”

                 The Children’s Intensive In-home Behavior Supports waiver meets ICF/MR level of care and provides
CIIBS            in-home positive behavior supports from qualified from PhD or MA level therapists with intense case
                 management and collaboration with family, school & other service providers.

                 The Individual and Family Services waiver meets ICF/DD level of care and provides respite, behavioral
IFS              health stabilization services, environmental adaptations, therapies, nurse delegation, sexual deviancy
                 evaluations, specialized medical equipment and supplies, and staff/family consultation and training.

                         Source: Developmental Disabilities Administration (DDA) - July 2020
                      2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
2021 DD 101 - The Arc of Washington State
Developmental Disabilities Administration (DDA)
                                    Children and Adults by Residence Type

  People with Developmental Disabilities—Where Do They Live?
                                                       Summary
                49,282 individuals are enrolled as clients of DDA.
                35,439 clients (71.9%) live with and receive care and support from a parent or relative.
                14,049 clients (28.5%) do not receive any paid services administered by DDA.

                                                       Region 1            Region 2             Region 3
                   Setting                           Adult   Child     Adult      Child      Adult      Child
                                                                                                                  Total

Adult Family Home                                     369      0         797        0         584           0     1,750
Adult Residential Care (ARC)                          63       0         14         0          29           0      106
Alternative Living                                    94       0          6         1          1            0      102
Assisted Living Facility (non-ARC)                    26       0         13         0          16           0      55
Community ICF/IID                                      0       0          1         0          11           0      12
Companion Home                                        16       0         20         0          35           0      71
DCYF Foster Home, Licensed Staffed
Residential, or Group Care                            34      181        25        351         32           359    982

DDA Group Home                                        15       0         153        0          82           0      250
DDA VPS Foster Home, Licensed Staffed
Residential, or Group Care                            17      33         11         19         5            11     96

Enhanced Services Facility                             2       0          0         0          1            0       3
Homeless                                              30       3         40         20         21           3      117
Jail/Correctional Facility (City or County) *         10       0         17         0          21           1      49
Medical Hospital                                       2       0         10         1          3            1      17
Nursing Facility                                      74       0         96         0          87           0      257
Other/Unknown                                         187     22         204        42        181           34     670
Out-of-state Facility                                  1       1          7         6          3            6      24
Own Home                                             1,177    38        1,592       69       1,488          51    4,415
Parents Home                                         3,191   4,379      4,958     10,018     4,167      6,922     33,636
Psychiatric Hospital                                  13       0         11         6          16           3      49
Relatives Home                                        436     165        444       166        427           165   1,803
Residential Habilitation Center (RHC)                 217      0         192        0         148           0      557
State Operated Living Alternative—Adult               61       0         60         0          74           0      195
State Operated Living Alternative—Child                3       0          0         0          0            0       3
Supported Living                                     1,118     0        1,573       0        1,372          0     4,063
Adult living with parent, unknown Region                                                                            1
Total:                                               7,156   4,822     10,244     10,699     8,804      7,556     49,282
Percentage:                                          14.5%   9.8%      20.8%      21.7%      17.9%     15.3%      100%
 * Denotes infants whose mothers are incarcerated.

                         Source: Developmental Disabilities Administration (DDA) - October 2020
                        2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
Supported Living:
                                   Providing Services During COVID-19
Serving people with intellectual and developmental disabilities in their home community is a long-standing top
priority for Washington state. Supported Living providers, also known as Community Residential Services, are the
primary provider of these services in our state. Over 21 million service hours are delivered each year for
approximately 4,600 clients.

                                 The health and safety of our clients and
                                         staff is our top priority
Supported Living providers have continued to serve our clients during the COVID-19 pandemic. Supporting our
clients, who have challenging behaviors with the added stress of the pandemic, is extremely difficult now. Our staff
must try to keep our clients from being scared, angry, upset, or reactive in the face of potential infection. Social
distancing and isolation (when required) is challenging for anyone, but particularly with clients wanting to engage
with friends, family members, and housemates but not understanding why they can’t.

  Supported Living is facing unprecedented costs as a result of COVID-19
          2020 COVID-19 Related Expenditures                              Average cost per agency*                      Per client average*
 PPE and Disinfection & Cleaning Supplies                                             $29,308                                     $494
 Other equipment & modifications                                                      $29,686                                     $500
 Hazard pay for staff                                                                $529,531                                    $8,920
 Other personnel and COVID-19 expenses                                               $109,310                                    $1,841
 Total COVID-19 Expenses                                                             $697,835                                   $11,755
* Based on survey of all Supported Living providers with response data representing 40% of clients served

COVID-19 cases are greatly impacting Supported Living providers, but these protective
   measures are keeping positivity rates lower than other long-term care settings
                                                                      Client COVID-19           Client COVID-19           Staff COVID-19
                                                                       positive cases              positivity %            Positive cases
            Residential Habilitation Centers (RHCs)                            72                      13.0%                     1297
            Community Residential settings                                    2181                      6.2%                      583

                   Any cuts to Supported Living funding would be
                      devastating to the clients that we serve.
CRSA: Legislative Chairs— Scott Livengood (206) 284-9130, livengood@alphasls.org and Randy Hauck (509) 966-1998, rhauck@community-living.org, and Lobbyist—
Melissa Johnson (360) 280-6429, melissa@bogardjohnson.com

             Visit us online at www.CRSA-WA.org and on Facebook

                           2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
Developmental Disabilities Administration (DDA)
                               COVID-19 by Cases and County
   Reported Confirmed Client and Staff COVID-19 by Cases and County
                                              COVID-19           COVID-19      COVID-19        COVID-19
   Provider Type              County        Positive Clients     Positive       Client        Staff Deaths
                                                                   Staff        Deaths
Companion Home                Kitsap                -                1             -               -
Companion Home               Stevens                1                1             -               -

Group Homes/Group              King                15               20                             -
Training Homes
                                                                                   1

Group Homes/Group           Snohomish               1                1             -               -
Training Homes

Licensed Staffed              Benton                1                5             -               -
Residential
Licensed Staffed
Residential                    King                 1               11             -               -

Licensed Staffed            Snohomish               -                1             -               -
Residential
Licensed Staffed             Spokane                1                5             -               -
Residential
Supported Living              Asotin                6                8             -               -
Supported Living              Benton                5               24             -               -
Supported Living              Chelan                3                6             1               1
Supported Living               Clark                2                6             -               -
Supported Living              Cowlitz               -                3             -               -
Supported Living             Douglas                3                9             -               -
Supported Living             Franklin               -                5             -               -
Supported Living           Grays Harbor             -                3             -               -
Supported Living               King                118              232           13               2
Supported Living              Kitsap                5                4             -               -
Supported Living              Kittitas              -                5             -               -
Supported Living              Pierce               22               52             3               -
Supported Living              Skagit                1                2             -               -
Supported Living            Snohomish               8               21             1               -
Supported Living             Spokane               38               84             -               -
Supported Living             Thurston               6               15             1               -
Supported Living            Walla Walla             4               11             -               -
Supported Living             Whitman                -                1             -               -
Supported Living              Yakima               17               47             1               1
GRAND TOTAL                                        258              583           21               4
                   Source: Developmental Disabilities Administration (DDA) - November 2020
                   2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
Developmental Disabilities Administration (DDA)
               Clients on Paid & No Paid Caseloads (By County)

                                                                        Change From Last Year
                                                     Percentage of clients on paid services caseload increased
                                                      to new category from last year
                                                     Percentage of clients on paid services caseload decreased
                                                      to new category from last year
                                                    — Percentage of clients on paid services caseload remained
                                                      in same category from last year
  COUNTY       PAID     NO PAID       COUNTY           PAID     NO PAID       COUNTY         PAID     NO PAID
Adams —         50         37      Grays Harbor       308         94       Pierce          4,567      2,260
Asotin         124        35      Island —            309        142       San Juan           25        16
Benton        1,144      399      Jefferson          121         34       Skagit             508      151
Chelan         343       118      King              9,207      3,878      Skamania           40        17
Clallam —       364       127      Kitsap            1,261       416       Snohomish       3,825      1,277
Clark         2,144      976      Kittitas           153         54       Spokane         3,147      1,008
Columbia       23         10      Klickitat           68         43       Stevens            203       74
Cowlitz —       689       417      Lewis              377        192       Thurston —       1,245       271
Douglas—        125        64      Lincoln             34         10       Wahkiakum          13        7
Ferry          15         13      Mason              212         88       Walla Walla —       327       99
Franklin       573       201      Okanogan           128         59       Whatcom         1,230       291
Garfield        2         6       Pacific             62         22       Whitman            141       38
Grant          329       170                           42         19       Yakima          1,707       827
                                   Pend Oreille 

                   Source: Developmental Disabilities Administration (DDA) - July 2020
                2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
Developmental Disabilities Administration (DDA)
                            Employment/Day Services by County

                Group Supported Individual Community                       Notes:
   County                                                       Total
                  Employment Employment Inclusion                          • • Centers Medicare & Medicaid Services
Adams                 1                 6            2           9             (CMS) rules require services to be provided
Asotin               16                11            6           33            in an integrated and supportive setting. In
Benton               44                86           48          178            order to fully comply with federal rules
Chelan               11                63           47          118            requiring integrated settings, DDA stopped
Clallam               0                95           36          131            enrolling clients into PVE services in 2015.
Clark                 0               440           82          522        • • Community Inclusion amounts include
Columbia              0                 3            5           8             clients on Pre-Admission Screening and
Cowlitz               0               105           51          156            Resident Review (PASRR) program.
Douglas               3                16           14           33        Of those who are assessed as high acuity:
Ferry                 0                 3            3           6               55% are earning at least minimum
Franklin             16                22            9           47                wage or are self employed
Garfield              0                 1            0           1               40% are job seeking or do not have
Grant                12                39           27           78                wages, and
Grays Harbor          0                83            8           91              5% are earning less than minimum
                                                                                   wage.
Island                0                77            9           86
Jefferson             4                22            9           35
King                 19              2,206         299         2,524
Kitsap                0               292           35          327                     Client Numbers by Acuity
Kittitas              2                36           32           70
Klickitat             0                 1            0           1
Lewis                 0                55           37           92
Lincoln               0                 8            4           12          Acuity Min. Wage Job        Sub-
                                                                                      or Self Seeking/ Minimum Totals
Mason                 0                66            9           75          Level Employed No Wage Wage
Okanogan              0                18            8           26
Pacific               0                21            0           21
Pend Oreille          0                 6            1           7
Pierce               63               723          129          915                       1,375        990        123
                                                                            High                                         2,488
                                                                                            or          or         or
San Juan              0                 7            0           7          Acuity                                       100%
                                                                                         55.27%      39.79%      4.94%
Skagit                7               164           41          212
Skamania              0                13            0           13
Snohomish             0               844          131          975                       3,444        820        192
Spokane              46               518          258          822         Medium                                       4,456
                                                                                            or          or         or
                                                                            Acuity                                       100%
Stevens               0                50           15           65                      77.29%      18.40%      4.31%
Thurston              0               420           55          475
Wahkiakum             0                 3            0           3
Walla Walla           9                49           44          102                        693          67          6
                                                                            Low                                           766
Whatcom              42               315           31          388                         or          or         or
                                                                            Acuity                                       100%
                                                                                         90.47%       8.75%      0.78%
Whitman              19                23            2           44
Yakima               47                88          118          253
Grand Totals:        358             6,998        1,605        8,961
                                                    Average Number Average Number Average
                                                             Average
                                                    of Support  Hours Number
                                                                         of Hours Average
                                                                                  Worked Number
                                                                                              Client Average
                           Service                           of Support
                                                    per Client per        Hours   of  Hours
                                                                         per Client per      Worked
                                                                                              Wages per Client
                                          Service               per Client per       per Client per  Wages per
                                                    Week                 Week                 Week
                            I/E = Individual
                                                                    Week                 Week           Week
                            Employment
                                    I/E = Individual
                                                    2.5                  10.0                 $138.00
                                    Employment                       2.5                 10.0        $138.00
                            GSE = Group Supported
                            Employment               2.2
                                    GSE = Group Supported
                                                                     8.5                $75.50
                                    Employment                    2.2                8.5       $75.50
                            CI = Community
                            Inclusion
                                    CI = Community
                                                     2.75            N/A                N/A
                                    Inclusion                     2.75               N/A             N/A
                      Source: Developmental Disabilities Administration (DDA) - July 2020
                   2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
Developmental Disabilities Administration (DDA)
                                      History and Use of Residential Habilitation Centers (RHC)
                                                                           History of Declining Number of Residents living in RHCs

 4,500
 4,000
            4,145

 3,500
                       3,688

 3,000
 2,500
                                  2,731

                                             2,647

 2,000                                                  2,354

                                                                   2,137
 1,500

                                                                              1,899

                                                                                         1,849

                                                                                                    1,840

                                                                                                               1,696

                                                                                                                          1,498
 1,000

                                                                                                                                     1,346

                                                                                                                                                1,281

                                                                                                                                                           1,222

                                                                                                                                                                      1,126

                                                                                                                                                                                 1,065

                                                                                                                                                                                            1,018

                                                                                                                                                                                                       989

                                                                                                                                                                                                                988
   500

                                                                                                                                                                                                                         931

                                                                                                                                                                                                                                  896

                                                                                                                                                                                                                                           808

                                                                                                                                                                                                                                                    753

                                                                                                                                                                                                                                                             697

                                                                                                                                                                                                                                                                      663

                                                                                                                                                                                                                                                                               623

                                                                                                                                                                                                                                                                                        584
     0
           66         71         73         75         77         79         82         84         86         90         92         94         96         98         00         02         04         06       08       10       12       14       16       17       18       19       20
         19         19         19         19         19         19         19         19         19         19         19         19         19         19         20         20         20         20       20       20       20       20       20       20       20       20       20

What is the historical use for the RHCs?
 • Lakeland Village in Medical Lake has been in existence the longest, opening in 1915 and by 1938
         had a population of 1,650 residents.
 •       Rainier then opened its doors in October of 1939 and by year’s end had 172 residents. At its
         peak, in the late 1950’s, Rainier had about 1,900 residents.
 •       Fircrest was created in 1950 and moved in 220 people. By the early 1960’s, Fircrest had about
         1,000 residents.
 •       Yakima Valley School was established in 1958 to serve the needs of children and was later
         converted into a nursing facility, it has .
 •       In 1967 Interlake was established at Medical Lake to specifically address the needs of the
         medically fragile population. It was subsequently closed in 1994 and all residents moved to other
         RHCs or the community.
 •       In 1972, Francis Haddon Morgan Children’s Center was opened with a capacity of 48 children and
         specializing in autism. It closed in December 2011 and the fifty-two individuals who lived at the
         center have moved to community-based residences or other DDA institutions.
 •       Interlake closed in 1998, all people who were moved from Interlake were able to go to the place
         they desired, whether it was the community or another RHC.
From 1970 on, the institutional population steadily declined from over 4,000 people to 697. Several factors
contributed to this decline. The most important change is the realization that with intervention, people
with developmental disabilities grow and develop and are capable of achieving major developmental mile-
stones. Community resources have been developed, schools are required to include children with disabilities
and medical information and practices have improved dramatically. All these factors help parents keep
family members home and help them gain access to alternative services near their family homes.

Centers for Medicare and Medicaid (CMS) - 2018 EMPHASIS on Community
In Washington, there are four RHCs, offering skilled nursing facility services, Intermediate Care Facilities
(ICF), or both. Rainier in Buckley, Fircrest in Shoreline and Lakeland Village in Medical Lake are the three
RHCs that provide ICF.

Over the years, the RHC program, residents, and stakeholders, such as residents’ family members and
guardians have generally considered that the ICF/IID is the client’s home – a facility focused on keeping
them healthy and safe.

However, in recent years, CMS has re-emphasized the “intermediate” aspect of institutional care. That
is, it is the responsibility of the RHC not to house and protect people, but rather to be actively
preparing them for leaving the RHC and integrating into the community. This emphasis by federal
regulators is changing the culture and practices in the three ICFs. The staff has been trained and are now
being held accountable for engaging the residents in aggressive and continuous active treatment.

                                             2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
Developmental Disabilities Administration (DDA)
                               HCBS Waivers, Community First Choice & RHCs Costs
                                                                   RHC Clients/Budget Comparison

        2020 Average Daily Cost Per Client and Client Count by Residential Setting
  Foster Home/Group Care***                       $250
                                                                   $731                                         Foster Home/Group Care***           $16
Licensed Staffed Residential***
                                                                                                              Licensed Staffed Residential***       $78
                Assisted Liv ing          $81
                                                                                                                             Assisted Liv ing           100
           Adult Family Home                $130
                                                                                                                         Adult Family Home                                          1,543
             Companion Home                       $250
                                                                                                                           Companion Home           71
             DDA Group Home                               $457
                                                                                                                           DDA Group Home                239
              Supported Liv ing                            $516
                                                                                                                            Supported Liv ing                                                                              3,913
               SOLA 3 South**                                             $852
                                                                                                                            SOLA 3 South**          20
               SOLA 3 North**                                               $891
                                                                                                                             SOLA 3 North**         50
               SOLA 2 South**                                        $754
                                                                                                                            SOLA 2 South**          55
               SOLA 2 North**                                                     $1,008
                                                                                                                             SOLA 2 North**         4
               SOLA 1 South**                                     $712
                                                                                                                            SOLA 1 South**          29
             SOLA 1 North 2**                                                         $1,081                               SOLA 1 North 2**         5
               SOLA 1 North**                                     $694                                                       SOLA 1 North**         23
                        Yakima*                                           $855                                                      Yakima*         68
                      Lakeland*                                                    $1,027                                          Lakeland*            182
                         Rainier*                                                 $1,009                                             Rainier*           182
                        Fircrest*                                          $884                                                     Fircrest*            215
                                                                                                                                                0             500   1,000   1,500       2,000   2,500   3,000   3,500     4,000    4,500
                                    $0     $200    $400    $600   $800 $1,000 $1,200

         Residential Habilitation Centers (RHC)                   State Operated Living Alternatives (SOLA)
                                                                                                                       Residential Habilitation Centers (RHC)                          State Operated Living Alternatives (SOLA)

         Adult Community Residential                              Children's Community Residential                     Adult Community Residential                                     Children's Community Residential

* Average daily cost for adult settings is based on clients
     whose range of support needs is similar based on their last CARE assessment. Federal matching rate is approxi-
     mately 50% for 2019 for all settings. Only costs expended by Developmental Disabilities Administration (DDA) are
     calculated here and do not include capital costs associated with maintenance and upkeep of facilities.
** State Operated Living Alternatives (SOLA) are in the midst of major expansion as clients are being rapidly moved
     from Residential Habilitation Centers (RHC) and State Hospital settings to this program. New regions were
     formed to capture the rapid expansion. FY19 produced two new SOLA sub-regions, 2 North and 3 South. The
     1 North SOLA is the current children’s SOLA.
*** These residential options are for children and deliver Voluntary Placement Services (VPS). The provider type can
     by Licensed Staffed Residential, Child Foster Home or Group Care Facility.
Note: For those who live at Home, cost varies widely based on which waiver services the individual receives.
Developmental Disabilities Administration (DDA)
                           Hospital Length of Stay/Discharge Barriers
              Length of Stay (LOS)/Discharge Barriers            Increasingly, people with developmental disabilities are
  LOS                         Discharge Barrier                  being taken to hospitals with non-medical needs
                                                                 (behavior challenges, etc.), then left with no one
                            August 2019                          taking them back home. The reasons vary and are
193 days   Not behaviorally stable                               described in this chart.
17 days    Active referrals submitted, no provider identified               Length of Stay (LOS)/Discharge Barriers
18 days    Active referrals submitted, no provider identified       LOS                      Discharge Barrier
44 days    Active referrals submitted, no provider identified                            January 2020

86 days    Active referrals submitted, no provider identified—   346 days   Not behaviorally stable
           family unable to support
                                                                 71 days    Not behaviorally stable—provider needs time to
93 days    Active referrals submitted, no provider identified               find housing and staff
                         September 2019                          22 days    Active referrals submitted, no provider identified
223 days                   Not behaviorally stable
                                                                 22 days    Not behaviorally stable
47 days    Active referrals submitted, no provider identified
                                                                 17 days    Active referrals submitted, no provider identified
48 days    Active referrals submitted, no provider identified
                                                                 16 days    Not behaviorally stable
74 days    Active referrals submitted, no provider identified
                                                                 16 days    Active referrals submitted, no provider identified,
116 days   Active referrals submitted, no provider identified—              family unable to support, not behaviorally stable
           family unable to support
7 days     Not behaviorally stable                               32 days    Provider needs time to find housing and staff

13 days    Active referrals submitted, no provider identified    22 days    Active referrals submitted, no provider identified
                           October 2019                                                 February 2020
254 days   Not behaviorally stable                               375 days   Not behaviorally stable
78 days    Active referrals submitted, no provider identified               Not behaviorally stable—provider needs time to
                                                                 100 days   find housing and staff
79 days    Active referrals submitted, no provider identified
105 days   Active referrals submitted, no provider identified    61 days    Provider needs time to find housing and staff
38 days    Not behaviorally stable                               51 days    Not behaviorally stable

2 days     Not behaviorally stable—provider needs time to find   51 days    Active referrals submitted, no provider identified
           housing and staff
                                                                 46 days    Active referrals submitted, no provider identified
3 days     Not behaviorally stable
                                                                 45 days    Active referrals submitted, no provider identified,
                          November 2019                                     family unable to support, not behaviorally stable
284 days   Not behaviorally stable                               45 days    Not behaviorally stable
108 days   Active referrals submitted, no provider identified
                                                                 23 days    Provider needs time to find housing and staff
109 days   Active referrals submitted, no provider identified
                                                                 18 days    Active referrals submitted, no provider identified
135 days   Active referrals submitted, no provider identified
                                                                 5 days     Provider needs time to find housing and staff
68 days    Not behaviorally stable
           Not behaviorally stable—Provider needs time to find                           March 2020
32 days    housing and staff                                     82 days    Active referrals submitted, no provider identified
10 days    Active referrals submitted, no provider identified
                                                                 10 days    Active referrals submitted, no provider identified
9 days     Not behaviorally stable—Provider needs time to find
           housing and staff                                     5 days     Provider needs time to find housing and staff
                          December 2019                          1 day      Cleared for Dx/still hospitalized
315 days   Not behaviorally stable                                                        April 2020
63 days    Not behaviorally stable—Provider needs time to find   112 days   Active referrals submitted, no provider identified
           housing and staff
41 days    Active referrals submitted, no provider identified                              May 2020
           Not behaviorally stable—Provider needs time to find   142 days   Active referrals submitted, no provider identified
40 days    housing and staff
                                                                 2 days     Not behaviorally stable, services offered—Client/
1 day      Provider needs time to find housing and staff                    Legal Rep. refusal

Read the entire report: https://arcwa.org/content/uploads/sites/35/2020/11/SHB1394-Hospital-Tracking-Report.pdf
                      2021 DD 101 ~ The Arc of Washington State ~ 888.754.8798 ~ www.arcwa.org
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