2021 REMEMBERING OUR LOVED ONES - National MPS Society

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2021 REMEMBERING OUR LOVED ONES - National MPS Society
Angels Among Us
   REMEMBERING OUR LOVED ONES

            2021
2021 REMEMBERING OUR LOVED ONES - National MPS Society
Our Angels
Andre Jamal Andrews..........................1             Kimberly Fowler....................................6         Cameron David Mollett.......................12
Ciara Bennett.........................................1    Violet Fox...............................................6   Lucas Montgomery.............................12
Hunter Bennett......................................1      Bryan Getchell.......................................6       Rachel Dawn Moxley...........................12
Tommy Bennett.....................................1        Clara Marie Gibson...............................7           Joseph Daniel Muonio........................13
Mark J. Bernbaum.................................1         Ara Gulledge..........................................7      Zachariah Paul Benjamin Muonio......13
Noah Lachlan Bevan.............................2           Maggie Hackett.....................................7         Hunter J. Propst..................................13
Nathan Ridge Bivens.............................2          Keegan Hackett.....................................7         Mia Pruett............................................13
Isaiah Ethan Brown...............................2         Adam Tyler Hardy.................................7           Casey Retherford................................13
Alexandria (Alex) Browne.....................2             Frederic (Ricky) Hodgkins....................8               Diana S. Rodriguez..............................14
Russell Browne......................................3      Spencer Holland....................................8         Richard Rotelli.....................................14
Hollis Burks...........................................3   Jaylen Dionte Hunt................................8          Nathan Jesus Ruiz..............................14
Jacob Hunter Burt.................................3        Taylor Danielle Jones............................9           Michael J. Schwab..............................15
Joshua Kenneth Burt............................3           Allison Rose Kirch.................................9         Christopher Sickles.............................15
Autumn Cooper.....................................4        Kraig Klenke..........................................9      Ethan Smyth Renton...........................15
Serrina Cooper......................................4      Joe Langford.........................................9       Michael J. Sochacki Jr........................15
Camden Crockett..................................4         Maggie Langford...................................9          Zachary Stockin..................................16
Matthew Crockett.................................4         Christopher Lesta................................10          Clinton Jared Szemanski....................16
JoAnna Marie Dimbat...........................4            Kyle Joe Manning...............................10            Zachary Harris Szemanski.................16
Lindsey Whitleigh Efird.........................5          Austin Marine......................................10        Bryar Roy Toll......................................16
Maci Grace Eickman.............................5           Ryan Taylor Mask................................10           Matthew Richard Wain........................17
Megan Ellis............................................5   Rocky Maulucci IV...............................11           Stacy Lynn Wain..................................17
Alexandria Fernandez...........................5           Matthew McHugh...............................11
Katie Foshay..........................................6    Dan Miller.............................................11
2021 REMEMBERING OUR LOVED ONES - National MPS Society
ANDRE JAMAL ANDREWS                                          HUNTER BENNETT (MPS IIIA)
                   (ML II)                                                      3/25/1998–1/7/2015
                   1/23/1994–5/5/2020                                           Submitted by his parents,
                   Submitted by his parents,                                    John and Alicia Bennett
                   Jane and William Andrews                                   Hunter was our second born child
                                                                              and let me tell you, he was as firey
                                                                              as his red hair. Everybody thought
                                                                              he was a tough little boy, which he
                                                            was, but he had the most gentle soul.
                   CIARA BENNETT (MPS IIIA)
                   5/7/1996–9/13/2020
                                                                                TOMMY BENNETT (MPS IIIA)
                   Submitted by her parents,
                                                                                9/18/1999–11/25/2003
                   John and Alicia Bennett
                                                                                Submitted by his parents,
                     Ciara was our first born. She made                         John and Alicia Bennett
                     her entrance into this world on her                       Tommy was a last born child who
                     own terms and she left this world on                      arrived very fast and never stopped
                     her own terms. We are so incredibly                       going. Right after his diagnosis, he
proud of her—she was so loving, courageous, and she                            received three stem cell transplants
lived her life to the fullest.                              at Duke, which is where he passed away. Tommy loved
                                                            to help others and he loved to doodle and play with
                                                            his trains.

                                                            MARK J. BERNBAUM (MPS I)
                                                            2/14/1992–5/8/2002
                                                            Submitted by his parents, Joel and LeeAnn Bernbaum

                                                            1
NOAH LACHLAN BEVAN                                        ISAIAH ETHAN BROWN
                   (MPS IIIA)                                                (MPS IIIA)
                   4/24/2004–10/16/2019                                      12/14/2001–1/16/2021
                   Submitted by his parents,                                 Submitted by his grandmother,
                   Craig and Julie Bevan                                     Geraldine N. Stephens
                    Our beautiful Noah B( )                                   Isaiah was preceded in death by his
                    We love and miss you every day.                           brother Christian Coy Brown who
                    My tears continue to fall on a daily                      suffered with the same diagnosis.
basis because I miss you so much. You were my life.        Isaiah was a loving and sweet young man. Everyone
I pray we will be together again.♥                         who met him and cared him loved him dearly. He was
                                                           always loving and never complained. We will miss him
We miss you more than any words can express, Noah B.       so much. Fly high, our sweet one!
Even though we are apart, we will always be together,
forever. You were so brave, and so strong, you don’t
have to fight anymore. Sanfilippo has gone from you                          ALEXANDRIA (ALEX) BROWNE
forever. Run and play and do all those things you used                       (MPS IIIA)
to do when you could. Your time here with us was so                          12/12/2000–10/22/2016
short but we know you aren’t suffering anymore. We                           Submitted by her mother and step-father,
                                                                             Sharon and Kevin Davis
hope one day we are together again. How beautiful
that day will be. We love you forever, our shining                          Oh how I miss your sweet spirit and
star...Our precious angel.                                                  every beautiful part of you! Not
                                                                            a day goes by that I don’t think
                                                           about you and your big bro, Russ Man! Miss you sooo
                   NATHAN RIDGE BIVENS                     much! Love you, my beautiful Butterfly! Fly Free, My
                   (MPS II)                                Superfly!
                   10/19/1995–1/23/2013
                   Submitted by his parents,
                   Keith and Rebecca Bivens
                   Nathan was our precious son, and
                   life is no longer the same without
                   his contagious smile and laughter.
                                                           2
RUSSELL BROWNE (MPS IIIA)                      JACOB HUNTER BURT (MPS II)
                   5/18/1999–10/6/2016                            11/11/2000–11/24/2020
                   Submitted by his mother and step-father,       Submitted by his mother, Jennifer Wolf
                   Sharon and Kevin Davis                         You know that place between sleep
                   My sweet Superman Russell—How                  and awake, that place where you
                   I miss you soooo much! Not a day               still remember dreaming? That’s
                   goes by that I don’t think about               where I’ll always love you. That’s
                   you and your sweet Butterfly Sis               where I’ll be waiting.
Alex! Love you, my Rockstar Superman Boy! Can’t wait
to see you sweet babies soon!                                     JOSHUA KENNETH BURT
                                                                  (MPS II)
                                                                  11/26/1998–9/26/2010
                                                                  Submitted by his mother, Jennifer Wolf
                   HOLLIS BURKS (MPS I)
                   9/12/2019–5/5/2020                             Today, if a smile comes to you,
                   Submitted by his mother, Sheena Greenlee       a happy smile that perhaps you
                   Hollis was the sweetest, happiest              can’t explain...it’s because at that
                   boy. He was loved by so many and               moment I am thinking of you and
                   always made you smile when he                  smiling, too!
                   would flash his big beautiful smile!
                   He fought hard for 8 months until
he just couldn’t anymore. He has a twin sister who is
unaffected by the disease. He lives through her every
day! 491 days is how many days he was on this earth.
He suffers no more and is pain free!

                                                              3
AUTUMN COOPER (MPS I)                                            CAMDEN CROCKETT (MPS II)
                   2/5/2006–2/6/2014                                                10/30/2005–10/30/2005
                   Submitted by her mother, Catherine Cooper                        Submitted by his family, Billi, Jeremy,
                     It is hard to believe that this year                           Mason, Braden, and Jesse
                     makes 7 years that you’ve been                                 Our littlest angel, the brief moments
                     gone. You would be 15 years old                                we shared together we will never
                     this year. Not a day goes by that I                            forget. We love you more than life
                     don’t wonder what you’d be doing                               itself always.
if you were still here. I know you are with your sister
and healthy and at peace, but you and your sister left                              MATTHEW CROCKETT
a gaping hole in my heart. Until we are together again                              (MPS II)
                                                                                    9/18/2003–3/10/2007
my sweet angel. Love, mom.                                                          Submitted by his family, Billi, Jeremy,
                                                                                    Mason, Braden, and Jesse
                   SERRINA COOPER (MPS I)                                           Big smile, bright blue eyes, greatest
                   5/25/2000–2/25/2014                                              gift, love you more than life itself
                   Submitted by her mother, Catherine Cooper
                                                                                    always.
                   It’s so hard to believe it has been
                   7 years since you’ve been gone.
                   You would be 21 this year. The day          JOANNA MARIE DIMBAT (MPS IIIB)
                   you died, life forever changed. I’ve        10/28/1982–2/13/2021
                   struggled with all the things I’ve          Submitted by her mother, Ellen Dimbat
missed out on. On days when I’m really sad, I talk to
you out loud. I know you are in Heaven with your sister
and healthy and at peace. Until we are together again
my sweet angel...mom loves you.

                                                               4
LINDSEY WHITLEIGH EFIRD                                   MEGAN ELLIS (MPS IIIC)
                   (MPS IIIA)                                                8/31/1989–12/10/2013
                   5/17/1998–6/1/2019                                        Submitted by her mother, Melanie Ellis
                   Submitted by her mother and sister,                       Megan loved life and she loved
                   Karen Kiker and Hannah Efird
                                                                             people. She had many friends,
                                                                             family, and people who loved her as
                                                                             well. She touched many lives during
                                                           her 24 years on Earth and we will miss her until the
                                                           day we see her again in Heaven.
                   MACI GRACE EICKMAN
                   (MPS I)
                   10/1/2015–4/29/2018
                   Submitted by her parents and brother,                     ALEXANDRIA FERNANDEZ
                   Josh, Elizabeth, and Jack                                 (MPS VI)
                    Maci was a spit fire, who absolutely                     4/13/2003–5/5/2020
                                                                             Submitted by her mother,
                    was obsessed with Ernie from Sesame                      Christine M. Romero
                    Street. Maci fought so hard in her                       My little gladiator. You have
2½ years of life, and was an inspiration to all who                          survived the wars you never thought
knew her. She taught us so much about love, empathy,                         of battling. May you continue to
and never giving up. Maci now has been gone longer                           rest in peace.
than she was alive, however her spirit and memories
will carry us on for the rest of our lives. We are so
grateful to have had 2½ years with her. We love and
miss you so much!!!

                                                           5
KATIE FOSHAY (MPS I)                                                               VIOLET FOX (ML II)
6/13/1976–6/29/1984                                                                8/21/2015–12/25/2019
Submitted by her parents, Maria and Steve Foshay                                   Submitted by her parents and sister,
                                                                                   Daniel, Bree, and Scarlet Fox
                                                                                   Violet, we love you and miss you
                     KIMBERLY FOWLER (MPS IIIA)                                    dearly. Everything we do is in your
                     12/30/1987–8/17/2014                                          honor and memory.
                     Submitted by her parents, Betsy and Steve
                     Fowler and her uncle and aunt, Jeff and
                     Barb Harrell
                   Our sweet Kimberly is simply                                    BRYAN GETCHELL (MPS II)
                                                                                   7/25/1986–9/3/2006
                   impossible to forget. Whenever we                               Submitted by his mother,
                   are missing you we remember how                                 Carolynne Seiffert
fortunate we were to have you in our lives. We wouldn’t                            You were the best part of my life.
trade those moments for the world. Your happy smile                                I miss you so much and wish I could
and contagious laugh warmed every heart. Though we                                 have a redo. I hope you’re running
held you in our arms for a short while, we’ll hold you                             happily in Heaven with Grammie
in our hearts forever. “If every thought we have of              and Grampie. I love you my son.
you becomes a star above, you’ll dance in the Angels
garden lit with everlasting love.” You are missed sweet
Kimberly.

                                                                 6
CLARA MARIE GIBSON                                           KEEGAN HACKETT (MPS IIIA)
                   (MPS IIIA)                                                   12/4/1994–2/6/2007
                   8/27/2001–9/20/2020                                          Submitted by his mother, Cheryl Hackett
                   Submitted by her mother, brother, and                        You are missed every day. My little
                   grandparents, Jenifer, Ethan, Mama and
                   Papa Saylor
                                                                                snuggle buddy. Wish we could have
                    Clara Marie, you are missed so                              one more of your big wet kisses or
                    much. Sis, you touched so many lives                        body slams. Always loved.
and left us with so many memories. Memories of your
                                                                                MAGGIE HACKETT (MPS IIIA)
smile, your special laugh, your big hugs, always holding                        8/3/1991–3/15/2002
our hands, trips to the ocean, swimming, watching                               Submitted by her mother, Cheryl Hackett
Dora, Sponge Bob, Spirit, and Lion King, and spending                           We miss you, Maggie. We miss
time with your family. Keep watching over us big girl.                          everything—your hugs, your smiles,
We love you!                                                                    your giggles, and your love!

                   ARA GULLEDGE (MPS I)
                   6/14/2016–7/2/2018
                                                            ADAM TYLER HARDY (MPS I)
                   Submitted by her parents,
                                                            3/19/1988–3/30/2003
                   Joshua Gulledge and Bethany Hampton
                                                            Submitted by his parents, Rodney and Donna Hardy
                   Ara was a beautiful baby girl
                   who brought a smile to everyone
                   she met. She was outgoing, lively,
                   and overall a very happy baby.
As her parents, we are happy for all the memories
we were able to make with this wonderful little girl.
She brought such joy into our lives as well as her
grandparents’ lives.

                                                            7
FREDERIC (RICKY) HODGKINS                                           SPENCER HOLLAND
                    (MPS IIIA)                                                          (MPS I)
                    2/13/1979–7/10/2020                                                 12/19/1989–1/26/2008
                    Submitted by his parents and sister,                                Submitted by his parents and
                    Anita, Robb, and Robyn Hodgkins                                     sisters, Steve, Amy, Maddie, and
                    “Each child is sent                                                 Laynie Holland
                    Into this world                                                   Our brother was our
                    By God                                 constant protector, our never-ending teaser, and our
With a unique message to deliver,                          very best friend!
A new song to sing,                                        He filled our lives with fun and so much laughter.
A personal act of love to bestow.”                         When Spencer was 8, our mom and dad asked him if
Ricky, God lent you to us for 41 years. Some days          he wanted to be one of the first patients to be in the
were good, many others difficult. You never chose to       enzyme replacement therapy clinical trial. He said,
do things the easy way. But your smile, hugs, and          “Yes, if it will help my sisters.” He is our hero. He loved
laughter made it all worth the journey. We are still       us so much!
learning to appreciate all you taught us. You will         We miss Spencer—we miss his love, we miss our Bubby!!
forever live on in our hearts as our beloved “Energizer
Bunny,” always loved, never forgotten. “See you later
alligator; after a while crocodile.”                       JAYLEN DIONTE HUNT (MPS IIIA)
                                                           5/7/1997–6/12/2011
With all our love,                                         Submitted by his mother, Anna Marie Hunt
Dad, Mom and Robyn                                         Jaylen will always be My Blessing…I love and miss him
                                                           so much. MY SON, MY HERO, MY BABY

                                                           8
TAYLOR DANIELLE JONES                                       KRAIG KLENKE (MPS II)
                    (MPS IIIB)                                                  12/3/1991–10/26/2010
                    10/9/1999–11/28/2020                                        Submitted by his parents, sister, and
                    Submitted by her mother, Lisa Compton                       brother-in-law, Brian and Kris Klenke and
                                                                                Chelsey and Matt Robertson
                  Taylor was the light of my life, my
                  purpose. She was deeply loved by                              K – Kindhearted
                  many. Taylor had a great sense of                             R – Redhead
                  humor and could make you laugh                                A – Animated
on your worst day. Losing her has left a giant void,                            I – Impressive
but knowing she’s at peace and pain free helps ease the                         G – God’s gift
sadness. Sending my love to her in Heaven every day.          Heaven and earth may separate us today, but nothing
                                                              will change the fact that you are our son and brother!
                    ALLISON ROSE KIRCH                        We love you and miss you, Kraiggy!
                    (MPS IIIA)
                    7/29/1995–10/18/2012
                    Submitted by her parents and sister,                        JOE LANGFORD (MPS IIIB)
                    Larry, Susan, and Helen Kirch                               2/13/1995–4/26/2008
                  Angel of God My Guardian Dear,                                Submitted by his mother, Noni Langford
                  To whom God’s love commits me
                  here, Ever this day be at my side,
To love and guard, To rule and guide ~ Amen
                                                                                MAGGIE LANGFORD (MPS IIIB)
We love you, little Allison, and miss you every single day!                     8/29/1996–11/1/2008
                                                                                Submitted by her mother, Noni Langford

                                                              9
CHRISTOPHER LESTA (MPS II)                                    AUSTIN MARINE (ML II/III)
                    8/26/2002–12/9/2007                                           2/5/1998–11/1/2019
                    Submitted by his parents,                                     Submitted by his parents and sisters,
                    Charles and Kendra Lesta                                      Jimmy, Renea, Courtney, and Logan
                    The moment that you left us, our                              Marine
                    hearts split in two. One side filled                           Austin’s sweet presence could light up
                    with memories, the other side died                             any room, and his contagious laugh
                    with you. Remembering you is easy,                             used to fill the air with a never-
we do it every day, but missing you is a heartache that       ending feeling of warmth and happiness. Despite his
never goes away. We hold you tightly within our hearts        condition, he always saw the positive in every situation.
and there you will remain. You see life has gone on           He was always concerned about how others were doing
without you, but will never be the same…Smell the sea         and if everyone was well. We continue to live for
and feel the sky, Christopher…let your soul and spirit fly!   Austin, for his memory is so alive through repeating
                                                              his silly go-to phrases, listening to his favorite songs,
                                                              and watching his favorite sporting events. We love you,
KYLE JOE MANNING (MPS I)                                      Austin, and we always will. To know you was to love
7/7/1985–6/19/1997                                            you, and you make missing you so easy. Until we meet
Submitted by his parents, Don and Carol Manning               again, our buddy.

                                                                                  RYAN TAYLOR MASK
                                                                                  (MPS IIIA)
                                                                                  8/10/1990–1/12/2008
                                                                                  Submitted by his mother, Dorothy Mask
                                                                                  Miss you every day. ♥ Thank you
                                                                                  for helping me become the person
                                                                                  I am. Until we hug again…13 years
                                                                                  closer…Mommy loves you

                                                              10
ROCKY MAULUCCI IV (ML II)                  the memories you left us with are worth so much more
                   11/24/2014–2/28/2016                       to smile about than our sadness without you. We love
                   Submitted by his mother, Alexis Maulucci   you Matthew to the moon and back and all the stars
                   You are my heart, my purpose, my           in between. Never forgotten from your mam (Emma,
                   strength, my hero, my ALL, and             cause you never called me “mam”), stepdad Frank,
                   my forever son, Rocky. You live            and brother Darnell.
                   life through myself and your two
                   brothers every single day. You hang
the moon, my precious baby, and I love you dearly                               DAN MILLER (MPS II)
with every part of my soul. You are Our Forever Angel!                          9/24/1996–1/16/2016
                                                                                Submitted by his parents and sister,
                                                                                Amy Lynn, Ray, and Haley Miller

                   MATTHEW McHUGH (MPS II)
                                                                                   This January marked 5 years. Five
                   2/15/2005–9/27/2019                                             years of not holding you or seeing
                   Submitted by his mother, Emma McHugh                            your handsome face. We never
                     Matthew McHugh forever 14.                                    dreamed we would survive. We
                     Matthew loved hats, Lighting             wouldn’t have if it wasn’t for you. Not a day goes by
                     McQueen, Liverpool, chicken balls        that we don’t think of you. Not a day goes by that we
                     and curry sauce and sausages; he         don’t wish you were still here. The strength you lived
                     was funny, impulsive, and very           life with, you passed on to us so that we could go on.
easy going; he loved mischeif and pranks. Matthew             We live our lives to honor you. We love and miss you
just loved everything about and everyone in his life.         and can’t wait to see you again in a perfect and whole
Matthew, my son, my sidekick, my teacher, my                  body. Oh what a day that will be. But until then, we
inspiration. We miss you more and more each day. The          love you to Heaven and back.
more we miss you, the more our love grows for you.
You will live forever in our hearts, we will speak about
you often and with happiness. You taught us all to get
through life with a smile on our faces no matter how
hard things were. It’s hard to smile without you, but

                                                              11
CAMERON DAVID MOLLETT                                      RACHEL DAWN MOXLEY
                   (MPS II)                                                   (MPS IIIB)
                   12/15/2000–3/11/2020                                       9/6/1981–10/18/2000
                   Submitted by his parents,                                  Submitted by her family,
                   Brian and Julie Mollett                                    Rita, Mike, Robyn, and Derek
                    Cameron was an inspiration to                               Rachel loved singing and dancing.
                    all that knew him. In his short                             She especially loved musicals and
                    time here on Earth, he had such                             Disney movies. She was a petite and
a profound impact on our lives. He will always be          beautiful young woman who liked to dress up and
remembered for his unforgettable smile, and he always      go to events. While MPS robbed her of many of her
gave the best kisses. In our hearts forever, our “Angel    abilities, it did not take away her feisty spirit, which
Here On Earth.”                                            remained until the very end. We miss her every day,
                                                           and look forward to seeing her again in the next life,
                                                           where we are sure she is singing with the other angels in
                   LUCAS MONTGOMERY                        the Heavenly Chorus. We love you, Rachel!
                   (MPS IIIB)
                   7/31/1997–7/24/2018
                   Submitted by his parents,
                   Stacey and Lew Montgomery
                    Lucas brought awareness to his
                    syndrome, always smiling and
                    inspiring others to be courageous,
positive, and strong, and to fight for what they believe
in. He had a tremendous amount of love for his family
and made sure his family felt as strong as he was.
He taught to Be Unbelievable and not to let perceived
limitations keep us back from trying our hardest to
achieve our hopes and desires. Love hard.

                                                           12
JOSEPH DANIEL MUONIO                                       HUNTER J. PROPST (MPS IIIA)
                   (ML II)                                                    2/25/2002–10/7/2017
                   8/29/1984–4/14/1989                                        Submitted by his mother, Darci Bible
                   Submitted by his parents, Michael and                     Hunter was the light of our lives and
                   Anita Muonio, and siblings
                                                                             showed us and everyone he met the
                   Joe was a happy little guy who loved                      true meaning of unconditional love.
                   to tease us, sing songs, and play                         He always greeted you with a smile
                   “going fishing” with Pa. He would                         and a hug—or sometimes a smack,
jabber and talk with Mom between rooms. Even after         but you always knew he loved you. We miss him every day.
he went blind, he found ways to play with all his toys,
and could recognize us all by the way we walked. He
had the most infectious chuckle.                                              MIA PRUETT (MPS IIIC)
                                                                              5/21/1993–3/24/2013
                   ZACHARIAH PAUL BENJAMIN                                    Submitted by her mother,
                                                                              Dr. Kimberly Pruett
                   MUONIO (ML II)
                   1/11/1994–2/10/1999                                        Mia lived and loved hard. She
                   Submitted by his parents, Michael and                      touched the lives of so many people
                   Anita Muonio, and siblings
                                                                              and we are better for it.
                   Zach was our family’s baby. He
                   ruled supreme from his livingroom
                   floor. Zach liked to talk and jabber
with all of us and would swing his pacifier to bonk us                        CASEY RETHERFORD
with great accuracy. Zach had the ability to scootch                          (MPS II)
over next to you when you were feeling down and sad                           5/8/1983–10/3/2001
and make all of the yuck disappear. He teased us and                          Submitted by his parents,
                                                                              Tim and Cheryl Retherford
loved us and made us smile.
                                                                              We miss you Casey ♥

                                                           13
DIANA S. RODRIGUEZ (MPS IIIA)                              it—he was such a strong boy and he was a fighter.
5/5/1990–8/4/2009                                          He lived every day so happy, playing with cousins, his
Submitted by her mother, Isabelle Rodriguez                cars, and throwing a ball around. Nathan loved so
                                                           many things like the yellow school bus, pizza was his
                                                           favorite food, he loved humming songs like “Baby” by
                     RICHARD ROTELLI                       Justin Bieber and “What Makes You Beautiful” by One
                     (MPS IIIA)                            Direction. And he loved just spending time with family.
                     10/6/1985–5/2/2011
                     Submitted by his mother,              On March 28, 2020, Nathan gained his wings, and
                     Rosemary Rotelli                      fought all the way until the end. It was a sad day,
                                                           and my family and I knew things would never be the
                                                           same without my amazing boy who was so sweet and
                                                           loved everyone and had an amazing life. Nathan Jesus
                                                           Ruiz, son, I miss you so much. I miss your contagious
                     NATHAN JESUS RUIZ                     laugh and your amazing smile that lit up a room
                     (MPS IIIA)
                     4/1/2006–3/28/2020                    and holding your hand, but I know you’re here in our
                     Submitted by his mother, Erica Ruiz   hearts forever. You go where I go, you watch over our
                    My son Nathan Jesus was an             family, you are our sweet angel now. I know you’re
                    amazing boy. Since the day he was      happy and free and that makes me happy. Nathan
                    born he brought my family so much      Jesus, I know I will hold you again in Heaven but right
joy. He gave us a reason to be so happy with his sweet     now I will hold you in my heart. You left us with so
smile and his contagious laugh; he could make a bad        many memories. You will never be forgotten Nathan
day go away just with a smile and the love he gave. I      Jesus Ruiz. We love you! Love, Mom, Dad, sister Nevaeh,
was so blessed to be his mom, he meant the world to        and your entire family.
me. After Nathan’s 5th birthday, he was diagnosed
with MPS III and it broke my heart knowing what my
son was going to go through. Nathan never showed

                                                           14
MICHAEL J. SCHWAB (MPS II)                                    ETHAN SMYTH RENTON
                  6/9/1981–5/1/2012                                             (MPS II)
                  Submitted by his parents,                                     5/18/2002–9/23/2020
                  Bonnie and Michael F. Schwab                                  Submitted by his parents and brothers,
                  He was such a brave young man.                                Geraldine, David, Jack, and Daniel Renton
                  He never let his illness get him down.                      Ethan was the eldest of the Renton
                                                                              boys, showing us love and laughter
                                                                              all through his life. Ethan was a
                                                           whirlwind of energy, fun, mischief, and ‘Blove.’ We
                  CHRISTOPHER SICKLES                      miss him more than words could ever describe. We are
                  (MPS IIIA)                               better people because of our Ethan.
                  7/15/2002–12/25/2020
                  Submitted by his mother, Linda Biggs
                   I will always love you C J to the        MICHAEL J. SOCHACKI JR. (MPS II)
                   moon and back. You are my hero          7/5/1969–4/27/1986
                   and always will be. You showed me       Submitted by his parents, Michael J. and Angela M. Sochacki

                   how to be strong every day. I thank
you for letting me be your momma. I love you and
miss you so much every day. I say good night to you
every night and talk to you. You had the sweetest smile
and a laugh that was contagious. Until we meet again.

                                                           15
ZACHARY STOCKIN (MPS II)                                        ZACHARY HARRIS
                  7/29/1996–11/21/2015                                            SZEMANSKI (MPS IIIA)
                  Submitted by his family, David Stockin,                         11/26/1987–9/9/2004
                  Alissa Taylor, Kristin Stockin, and                             Submitted by his mother, Tracy Szemanski
                  Courtney Stockin
                                                                                  Zachary is in my thoughts every day
                   Zachary brought joy and light to                               and my only consolation is that he
                   this world. His memory and smile                               is no longer suffering. I hold onto
                   will never be forgotten. He helped                             the many happy memories but
pave the way for medical treatment options for his           cannot forget the heartache the disease caused as well.
nephew that he never had the chance to meet. Zach            He too, like his brother Clint, is missed.
man, Charlie will grow up hearing all about our deep
love for you. We miss you every day.
                                                              BRYAR ROY TOLL (MPS I)
                                                             12/4/1991–5/3/1997
                  CLINTON JARED SZEMANSKI                    Submitted by his mother, Gerry Toll
                  (MPS IIIA)
                  1/18/1985–3/3/1989
                  Submitted by his mother, Tracy Szemanski
                  Clint had such a brief time in our
                  world. He lit up our world for such a
                  short time, he is missed. I continue
                  to carry him in my broken heart
and think of him every day.

                                                             16
MATTHEW RICHARD WAIN                                        STACY LYNN WAIN (MPS I)
                   (MPS I)                                                     10/4/1987–5/19/2014
                   4/26/1986–3/2/1990                                          Submitted by her parents and brother,
                   Submitted by his parents and brother,                       Terry, Nancy, and Teddy Wain
                   Terry, Nancy, and Teddy Wain                                    Stacy was a vibrant young lady. She
                     Matthew was only 3½ when he                                   was a friend to everyone. She loved
                     went to Heaven. He was a loving,                              her cats! Stacy attended college,
                     beautiful baby. He loved his baby                             had her own apartment, and truly
sister Stacy and loved whistling!! He enjoyed eating        lived life to its fullest. She loved Keith Urban and met
m&m candy and would ask for milk in Spanish, he             him four times! She loved music and playing piano. Her
learned from his Grandma! His belly laughs were so          spunky humorous spirit lit up a room. Her memory lives
wonderful to hear! He loved animals, and he loved to        on with Stacy’s Sparkles. She is missed every day, but
draw. Matthew adored his Mommy and Daddy, but               we know she’s in Heaven singing and finally in a pain-
Gramps was the person who spoiled him so much. If           free place. Love you forever our sweet Stacy.
Grandpa was in the room, Matthew would be in his
arms. His laughter, his loving smile is missed every day.
It’s hard to conceive it’s been 30 years since he went
to be with the Lord. Love and missed by everyone who
knew and loved him. We know he’s in good company
with his sister Stacy and his Grandpa Wain and
Grandma Garcia and Uncle Rick. You will always be
with us…in our hearts forever.

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