An open Letter to STN's from an ileostomy patient Are you having fun? My ostomy pregnancy - IN THIS ISSUE

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An open Letter to STN's from an ileostomy patient Are you having fun? My ostomy pregnancy - IN THIS ISSUE
Volume 30     Print Post Approved
                            Number 2      PP 100008088
                            August 2021   ISSN 1329-959X

IN THIS ISSUE:

An open Letter to STN’s
from an ileostomy patient
Are you having fun?
My ostomy pregnancy
An open Letter to STN's from an ileostomy patient Are you having fun? My ostomy pregnancy - IN THIS ISSUE
My ostomy pregnancy                                                                        By Kate Murray
                                                                                                                                    uneventful and my stoma reverted to its
                                                                                                                                    normal size when I returned to my
                                                                                                                                    pre-pregnancy weight just a few weeks
                                                                                                                                                                                  he will learn to understand that his
                                                                                                                                                                                  mummy is unique and that having a
                                                                                                                                                                                  stoma has been life-changing, but not in
                                                                                                                                    after Alex’s birth. Like any new mum,         any way life-limiting.
                                                                                                                                    I still had to navigate through the              For any woman contemplating
                                                                                                                                    sleepless nights and exhaustion, the          pregnancy with a stoma, I would
                                                                                        two life-saving surgeries to successfully
                                                                                                                                    rollercoaster of postpartum hormones          recommend firstly seeking advice from
                                                                                        treat an ischemic bowel.
                                                                                                                                    and the difficulties of breastfeeding a       a medical team including your stomal
                                                                                        I left hospital two weeks later with a
                                                                                                                                    baby that had trouble latching, but if you    therapy nurse. Secondly, the power of
                                                                                        re-fashioned stoma and a 20cm wound
                                                                                                                                    were to ask me today, I wouldn’t              social media is an undeniable force in
                                                                                        right down the middle of my abdomen
      Kate and Alex, and                                                                                                            change a thing.                               today’s society allowing us to connect
                                                                                        which needed daily dressing changes.
      opposite a recent
                                                                                        I was incredibly lucky to have a very           Alexander will always be incredibly       with other ostomates around the world.
      picture of Alex just                                                                                                          special, a gift to this world and a           What I found most useful was being
      before starting                                                                   skilled medical team who fought so
      kindergarten                                                                      hard to keep both me and the baby           survivor. Today, he is a highly active,       able to connect with ostomy support
      preschool.                                                                        alive and to this day, I am unable to       healthy and happy three-year-old. He          groups through platforms such as
                                                                                        explain how I survived such a life-         has and continues to meet all of his          Facebook where I was able to find other
                                                                                        threatening health crisis.                  milestones despite my fears that there        women to engage with for support.
                                                                                                                                    may have been some developmental                 Finally, pregnancy can be a daunting
                                                                                           I spent much of my third trimester
                                                                                                                                    delays because of the heavy doses of          experience, but an incredibly rewarding
                                                                                        trying to comprehend what had
                                                                                                                                    anaesthetic drugs and narcotic pain           one at the same time. Living with a
                                                                                        happened to me and it would take
                                                                                                                                    killers that were pumped into my body         stoma does not mean you can’t enjoy a
                                                                                        several more months to regain my
                                                                                                                                    during my pregnancy.                          happy and healthy pregnancy and
                                                                                        strength physically, mentally and
                                                                                        emotionally. I was monitored and                 He is already discovering that I am a    whilst my journey was a little more
                                                                                        scanned weekly by my wonderful              little bit different and often looks at his   complicated, for me, having a child is
                                                                                        obstetrician and given strict orders to     stomach wondering why it doesn’t look         the ultimate proof and reassurance of
                                                                                        stop work and rest as much as I could       the same as mine. I never hide my             normality and is a reminder that
                                                                                        to allow my body to heal itself. I also     ileostomy from him and as he grows up,        anything is possible.    •
                                                                                        needed a lot of support mentally and
                                                                                        once a week I would sit down with a
                                                                                        psychologist who helped me process
                                                                                        my feelings. Even though I am naturally
                                                                                        petite, it took weeks for me to develop
                                                                                        the typical ‘pregnancy belly’ mostly
                                                                                        because of the trauma my body had
                                                                                        been through. From that perspective,
                                                                                        I was lucky because my stoma only
                                                                                                                                                                                                         Minimise adhesive
W      hen I made the decision to
       undergo stoma surgery in 2010,
                                           with an ostomy including a sit-down
                                           with my gynaecologist who after some
                                                                                        expanded by a few millimetres, and as a
                                                                                        result, I had no leaks and was able to
                                                                                        continue using the same appliances by
                                                                                                                                                                                                         skin trauma
after suffering through years of painful   routine testing advised I should be able     cutting the openings a little wider.
                                                                                                                                                                                                         REMOVE wipes helps to reduce risk of irritation
surgical procedures, I had no idea         to conceive naturally. With that said,           Whilst most women with an ostomy                                                                             and skin stripping.
where it would lead me and how my life     both my husband and I were a bit             can have a normal birth and delivery,
would change, but nine years on I am       shocked and surprised when we fell           I opted for a scheduled caesarean                                                                                Order code: 403100 (Box/50 wipes).
proud of how far I have come and what      pregnant within a couple of months of        section primarily for my safety and the
                                                                                                                                                                                                         SAS code: 3542K
I have achieved.                           trying.                                      safety of my child. My obstetrician was
    Because of my decision I am happy          My first trimester was relatively easy   ecstatic when I made it beyond 28
and healthy, I am now a qualified RN       – I had no morning sickness, I was able      weeks, then 32, 34 and finally 36 weeks
helping others in the same situation and   to continue working normally and my          gestation, convinced that at any time
more recently have had the opportunity     energy levels remained unchanged, so         I would go into premature labour given
to share my story across several           much so that I was able to continue          all the complications I had endured.
different settings including national      training at my local F45 studio gym.         Luckily for us, I was able to deliver on
conferences, education days and            I was also barely showing, so it was         my preferred date, two weeks prior to
support groups. Perhaps my greatest        easy to hide, but there were also no         my due date at 37 weeks and five
                                                                                                                                                                                                                                                                                                Contains
achievement, however, was becoming a                                                    days. Against incredible odds, on
                                           major changes to my stoma or the need
                                                                                        11 December 2017, we welcomed a                                                                                                                                                                         Aloe
mum to my beautiful little boy,            to make any changes to my current                                                                                                                                                                                                                    to soothe
Alexander, something that may never        appliances.                                  healthy little boy, Alexander Benjamin                                                                                                                                                                     skin
have been possible without my stoma.                                                    Murray born at 9.37am and weighing in
                                              Unfortunately, my second trimester
                                                                                        at 2.6kg.
                                                                                                                                                                                                         For more information, visit
   So, what is it really like being        was not as straight forward. At 16                                                                                                                            smith-nephew.com/anz or call 13 13 60.
pregnant with an ostomy? The most          weeks, I suffered a complication – an           It was such an incredible relief to be
important thing to remember is that        intestinal obstruction likely caused by an   able to finally hold our little boy, the                                                                         Smith & Nephew Pty Ltd (Australia) www.smith-nephew.com/australia. Smith & Nephew Ltd
                                                                                                                                                                                                         (New Zealand) www.smith-nephew.com/new-zealand. ◊Trademark of Smith+Nephew. All
having a stoma may not necessarily be      expanding uterus and often associated        culmination of an epic journey that                                                                              trademarks acknowledged. 29080-anz V1 02/21. For detailed product information, including

a contraindication of pregnancy. I had     with increased maternal and foetal           almost cost both of us our lives.                                                                                indications for use, contraindications, precautions and warnings, please consult the product’s
                                                                                                                                                                                                         applicable Instructions for Use (IFU) prior to use.
done a lot of research into pregnancy      mortality. I was gravely ill and needed      The recovery from the c-section was

2 |    Ostomy Australia August 2021                                                                                                                                                                                                                 Ostomy Australia August 2021                    | 3
An open Letter to STN's from an ileostomy patient Are you having fun? My ostomy pregnancy - IN THIS ISSUE
ostomates. This structure has a huge       lead to the reduction of services and
                                                                                                                                                                                                     President’s                              advantage for ostomates as the             support to ostomates and a loss of the
                                                                                                                                                                                                     message                                  distribution and related support is
                                                                                                                                                                                                                                              wholly focused on supporting
                                                                                                                                                                                                                                                                                         good working relationship between
                                                                                                                                                                                                                                                                                         associations and ostomates.
                                                                                                                                                                                                                                              ostomates and not in maximising               The future is uncertain while the
            Create a secure seal                                                                                                                                                                                                              profits. Having contact with all           potential for a tender process
                                                                                                                                                                                                                                              ostomates makes the ability to provide     proceeding hangs over us. However, we
                                                                                                                                                                                                                                              information and support possible. Our      need to soldier on and keep providing
            to help prevent leakage                                                                                                                                                                                                           stoma associations also use donated
                                                                                                                                                                                                                                              funds and hundreds of volunteers to
                                                                                                                                                                                                                                                                                         the best support we can.
                                                                                                                                                                                                                                                                                            Because many of the stoma
                                                                                                                                                                                                                                              extend the support they can offer to       associations are moving toward online
                                                                                                                                                                                                                                              ostomates and most importantly, they
            with an Adapt CeraRing™                                                                                                                                                                                                           deal with ostomates with care and
                                                                                                                                                                                                                                                                                         ordering and membership renewal etc,
                                                                                                                                                                                                                                                                                         ostomates will be accessing the
                                                                                                                                                                                                                                              compassion.                                associations websites more and this
                                                                                                                                                                                                                                                  Our system of distribution of          gives a great opportunity to provide
                                                                                                                                                                                                                                              products and support is one of the best    support and education through those
                                                                                                                                                                                                                                              in the world currently. As other           websites.
                                                                                                                                                                                                                                              countries, who predominately separate         There is also room in the future for
                                                                                                                                                                                                                                              the stoma support associations from        possible further cooperation between
                                                                                                                                                                                                                                              the distribution of products, are          associations in the development of

            Adapt CeraRings are infused with                                                                                                                                                                                                  experiencing great difficulty in
                                                                                                                                                                                                                                              contacting all ostomates to provide
                                                                                                                                                                                                                                                                                         educational material for the
                                                                                                                                                                                                                                                                                         association’s websites to maximise the
                                                                                                                                                                                                                                              support and information they need.
            ceramides to help protect the skin                                                                                                                                                                                                This difficulty in communication means
                                                                                                                                                                                                                                                                                         support and information available to
                                                                                                                                                                                                                                                                                         ostomates. As we all know, many of the
                                                                                                                                                                                                                                              many ostomates miss out on vital           ostomate community are frail and
                                                                                                                                                                                                                                              information necessary to manage            vulnerable and cannot access the
            Code               Product Description                                                                                                                                                   By Allen Nash                            their stomas.                              internet so we will always need to have
                                                                                                                                                                                                                                                 The Australian stoma associations       a multimedia approach to information
                               Adapt CeraRing Flat Rings

                                                                                                                                                                                                     T   he most significant matter that      have a track record of providing support   provision and support.
            8805               Standard thickness – 4.5mm                                                                                             Choosing the                                       occurred in the last quarter that    and information to their member               As the new President of ACSA, I look
            8815               Slim thickness – 2.3mm                                                                                                 right Adapt                                    affects all ostomates and Stoma          ostomates. The quality of the support      forward to working through the changes
                                                                                                                                                                                                     Associations is the Federal Health       provided has been evidenced by             that we face with the other members of
                               Adapt CeraRing – Round Convex Rings                                                                                    CeraRing will
                                                                                                                                                                                                     Department Expression of Interest that   feedback surveys undertaken by many        the ACSA committee and to keep
            89520              20 mm – can be stretched to 25 mm                                                                                      depend on                                      was put out to canvas proposals for      associations.                              working with Government to ensure the
            89530              30 mm – can be stretched to 35 mm                                                                                      your stoma                                     running the Stoma Appliance Scheme.         There is a real danger now if the       Stoma Appliance Scheme works well
            89540              40 mm – can be stretched to 45 mm                                                                                      size and the                                      Currently the Scheme is run by        Health Department proceeds to tender       for all ostomates.    •
                               Adapt CeraRing – Oval Convex Rings                                                                                     surrounding skin.                              voluntary organisations across the       for the Stoma Appliance Scheme that it
                                                                                                                                                                                                     country that are managed by              may be privatised. This will invariably
            89601              22 x 38 mm
            89602              30 x 48 mm
            89603              38 x 56 mm

                                                                                                                                                            Monthly Issue:

            Call Customer Care to determine which size is                                                                                                  3 Boxes
            best for you and order a sample.                                                                                                                  (10 per box)
            1800 880 851
            www.hollister.com.au

            Prior to use, be sure to read the instructions for use for information regarding Intended Use, Contraindications, Warnings, Precautions, and Instructions for Use. The Hollister logo,
            Adapt, CeraPlus and “Healthy skin. Positive outcomes.” are trademarks of Hollister Incorporated. Not all products are CE marked. © 2021 Hollister Incorporated. AUH277. May 2021

                                                                                                                                                                  Ostomy Care
                                                                                                                                           Healthy skin. Positive outcomes.
4 |   Ostomy Australia August 2021                                                                                                                                                                                                                                                             Ostomy Australia August 2021   | 5
An open Letter to STN's from an ileostomy patient Are you having fun? My ostomy pregnancy - IN THIS ISSUE
Editor: Rebecca Herbener

                                                                          IN THIS ISSUE
                                                                                             My ostomy pregnancy, By Kate Murray                                                                                         2
Foundation Editor: Barbara Callcott

Correspondence/Contributions to:
                                                                                             President’s message, By Allen Nash                                                                                          5     Make the discussion about your stoma easier
Email:      journal@australianstoma.com.au
                                                                                             Your say, Letters to the editor                                                                                             9
                                                                                                                                                                                                                               With our free stoma bunny
Post to: The editor, Ostomy Australia                                                        To my fellow ostomates, By The Gutless Wonder                                                                             12
            PO Box 267 Gosnells WA 6990
These contact details apply only to matters                                                  Celebrating Volunteer Week at OAM, By Lindy McDonald                                                                      13
directly associated with Ostomy Australia.
                                                                                             An open letter to STN’s from an ileostomy patient, By Viv Parry                                                           14
Email or Word documents are preferred,
please include pictures if possible.                                                         Nutrition for Ostomates - Are you having fun? By Margaret Allan                                                           16
Published by:
                                                                                             Tips and tricks for colostomy, ileostomy and urostomy, By Tyrrell, STN 20
Australian Council of Stoma Associations Inc.
Website: www.australianstoma.com.au                                                          Stomal Therapy Nurse - Diversion Proctitis, By Monica Stankiewicz                                                         22
Email: feedback@australianstoma.com.au
                                                                                             What’s on? Discover new services and events at your local association 22
Patron:
His Excellency General the Honourable                                                        Zac’s fight for his best life, By Ginny Deane                                                                             24
David Hurley AC DSC (Retd) Governor-General
                                                                                             Recruitment for ACTA Administration Officer                                                                               26
of the Commonwealth of Australia

Executive Members:                                                                           YOU Inc continues to support members wellbeing, By Bonnie Crowe                                                           28
Allen Nash – President
                                                                                             National Directory of Ostomy Associations                                                                                 30
5/7-29 Bridge Rd, Stanmore NSW 2048
Email: acsapres@australianstoma.com.au                                                       Living with two stomas, By Maureen O’Donnell                                                                              32
David Munro – Vice-president
                                                                                             National Directory of Ostomy Support Groups                                                                               34
                                                                                                                                                                                                                                                                                                                                                                                                                                             Limited
PO Box 370, Chermside South, QLD 4032
Email: acsavp@australianstoma.com.au                                                         Directory of Stoma Appliance Scheme Product Suppliers                                                                     35
                                                                                                                                                                                                                                                                                                                                                                                                                                              offer
                                                                                                                                                                                                                                                                                                                                                                                                                                                   (T & C’s apply)
Ian Samuel OAM – Treasurer
Unit 8, 50 Grant Street Malvern East Victoria, 3145
Email: acsatreas@australianstoma.com.au
                                                                                             Index to Advertisers:

David Swift — Secretary                                                                      Ainscorp                                                                                                      23, 25, 31
PO Box 182, Chermside South, QLD 4032
Email: acsasec@australianstoma.com.au                                                        Coloplast                                                                                                       7, 21, 26
Printing and Graphic design by:                                                              ConvaTec                                                                                                            10-11         Talking about your stoma can be difficult for
Graphic Print Group
Graphic House, 10–14 Kingston Avenue,                                                        Dansac                                                                                                                8, 27       loved ones to understand
Richmond, SA 5033                                                                                                                                                                                                              When young children find out one of their closest family
                                                                                             Hollister                                                                                                             4, 29
Phone: (08) 8443 8011
                                                                                                                                                                                                                               members has a stoma or they experience a family member
                                                                                             Omnigon                                                                                                 18-19, 28, 33
Cover photo by: Kseniya Resphoto                                                                                                                                                                                               getting a stoma, it can be a difficult thing to understand.
Source: Shutterstock                                                                                                                                                                                                           Perhaps they have witnessed their sibling, mother, father,
                                                                                             Smith+Nephew                                                                                                                3
Advertising enquiries to: The Editor                                                                                                                                                                                           grandfather or grandmother having been ill for a long period
                                                                                             Sutherland Medical                                                                                                    5, 17
Advertising & copy deadlines:                                                                                                                                                                                                  of time, or perhaps the stoma surgery has been performed in
Issue            Deadline                                                                    3M                                                                                                                        12      an emergency. In all cases, with the sweet rabbit, which has
April            1st February                                                                                                                                                                                                  itself a stoma, makes the difficult discussion about your
                                                                                             The ACSA Journal Ostomy Australia was established in 1992 through the inaugural
August           1st June                                                                    sponsorship of ConvaTec Australia. The journal is published three times per year and is                                           stoma that bit easier.
December 1st October                                                                         available free to every member of an Australian Ostomy Association.

                                                                                                                                                                                                                                    Offer available to the first 50 Ostomates
Editorial: Contributions are welcome but authors must include their names and addresses. Full
names may be published unless you request otherwise. Contributions should be sent as Word or PDF
                                                                                                                Publication of an advertisement in Ostomy Australia does not constitute an endorsement of any
                                                                                                                products mentioned therein by the journal, ACSA, any stoma association, or any government department                to register online*
documents. Contributions may be edited in accordance with standard editorial practice. By submitting an         connected with the Stoma Appliance Scheme.
article, including photographs or writing a letter to us, you are taken to have consented to its publication                                                                                                                                 coloplast.to/AU-Bunny
                                                                                                                Readers are strongly advised to obtain appropriate professional advice before using any products advertised.
in both online and physical forms unless otherwise requested. We preserve past records of all previous
journals, including any reader-submitted copy (which may include the use of digital or cloud-based              Privacy: The Australian Council of Stoma Associations Inc. has no control over the use of personal
storage securely hosted in Australia or overseas) in accordance with our Privacy Policy which may be            particulars that ostomates provide to companies in response to advertisements contained in Ostomy
viewed at http://www.australianstoma.com.au                                                                     Australia. Unless the advertiser states otherwise, a company may use your name and address to contact
While due care is taken to ensure the accuracy of published material, the Australian Council of Stoma           you about its products or services.
Associations (ACSA) accepts no responsibility for any information contained in contributions and specifically   If readers do not wish to be contacted further, they are advised to tell the company this. Most                * Terms and Conditions
                                                                                                                                                                                                                               Conditions of entry: Open to all Australian residents aged 18+ only who sign up to the Coloplast Care program. Entrants must be an ostomate at the time of contact, not currently using SenSura Mio, and sample one or more of the
disclaims liability for contributors’ claims or opinions. Readers are strongly advised to seek appropriate      companies have said they will comply with such requests. This advice should be taken into account              Coloplast SenSura Mio range. If you are not currently using SenSura Mio, register to receive your FREE stoma bunny when you sample SenSura Mio and sign-up to Coloplast Care. Entries Permitted: Maximum of one prize permitted.
advice before acting on any medical, pharmaceutical or health-related information in this publication.          when responding to company promotions.
An electronic copy of this journal is available at www.australianstoma.com.au                                   Complaints: Consumers who are concerned about the way in which stoma appliances are advertised
Advertising: Advertisements are published in the form submitted by advertisers. The publisher does              are entitled to lodge a complaint with the Therapeutic Goods Administration. Such complaints should be
not check the veracity of claims made in advertisements and accepts no responsibility for their content.        addressed to the TGA Complaints Resolution Panel, PO Box 764, North Sydney, NSW 2059.
                                                                                                                                                                                                                               Coloplast Pty Ltd, PO Box 240, Mount Waverley, VIC 3149 Australia
                                                                                                                                                                                                                               www.coloplast.com.au The Coloplast logo is a registered trademark of Coloplast A/S. ©2021-06 OST756. All rights reserved Coloplast A/S

6 |      Ostomy Australia August 2021                                                                                                                                                                                                                                                                                                                                                                              Ostomy Australia August 2021                      | 7
An open Letter to STN's from an ileostomy patient Are you having fun? My ostomy pregnancy - IN THIS ISSUE
Your say
                                                                                                                                                                                                                Hospital staff suggested I contact the customer service
                                                                                                                                                                                                             team of the company supplying my usual stoma items.
                                                                                                                                                                                                             Following some careful discussion, I was sent some high
                                                                                                                                                                                                             output bags to trial.

                                                                                                                                        Letters to the editor                                                   Marvellous.
                                                                                                                   Stoma                                                                                         They must have been at least double the normal capacity;
                                                                                                                                                                                                             a little bit awkward to wear but saved the overflow problem
                                                                                                                   Skin
                                                                                                                                                                                                             until a return to normalcy.
                                                                                                                   Soul                 Dear Editor,
                                                                                                                                                                                                               It seems worthwhile to contact the company direct for
                                                                                                                                        There is a lot of talk about leakages, and I certainly had a few     suggestions and advice.
                                                                                                                                        when my bag was new (September 2019). It was obvious the
                                                                                                                                                                                                             Isobel Davie
                                                                                                                                        wafer wasn’t sticking as well as it could and I came up with the
                                                                                                                                        idea of using a grain bag to heat it up.
                                                                                                                                           After 40 seconds in the microwave, the grain bag sits on the
                                                                                                                                        colostomy bag while the old bag is removed and other                 Dear Editor,
                                                                                                                                        preparations are made.                                               In response to Elizabeth Kay (April 2021 journal)
                                                                                                                                           I can honestly say I have had no leaks since using this           Hello Elizabeth,
                                                                                                                                        system.                                                                 I love Vanilla Blush products. They have several swimsuits.
                                                                                                                                        Rosemary Vanderlaan, NSW                                             They are a Glasgow company so keep in mind the delivery times
                                                                                                                                                                                                             are slightly longer than local companies.
                                                                                                                                                                                                               Their website – vblush.com – opens a world of underwear,
                                                                                                   Helping you                          Dear Editor,                                                         swimsuit and hernia support options that are all beautiful and
                                                                                                                                        In reply to David Paterson, QLD                                      comfortable.
                                                                                              feel comfortable                          Hello David, your question was how to contain the enormous           Kirsty Evans
                                                                                                                                        rush to get to the toilet safely while prepping for a
                                                                                              in your own skin                          colonoscopy.
                                                                                                                                            I had that problem too and solved it easily. At the time I was                                    Dear Editor,
                                                                                                              Nils, Crohn’s Rebel       irrigating. To irrigate you wear a long cone shaped plastic                                               My name is Meagan Davey,
                                                                                                                                        sleeve, which reaches easily from where I sit, and dangles into                                       I was diagnosed with Crohn’s
                                                                                                                                        the toilet. This sleeve is clipped onto the wafer you are
                                                                                                                                                                                                                                              disease in 2007 and have been
                                                                                                                                        wearing that would normally have your bag attached to it.
                                                                                                                                                                                                                                              living with an ileostomy since
                                                                                                                                            If I wanted to make beds or put out a load of washing,                                            2011. I had complications after
                                                                                                                                        it was just a matter of folding up the end and clipping it closed
                                                                                                                                                                                                                                              a proctocolectomy in 2013. I live
                                                                                                                                        (I’m sure the clips come with it).
                                                                                                                                                                                                                                              with a chronic pelvic abscess
                                                                                                                                           It was an obvious move for me, when doing a preparation,                                           and just a few weeks ago had
                                                                                                                                        to wear a sleeve.                                                                                     fistula surgery. This year I must
                                                                                                                                          I am sure your supplier could make one available for you,                                           have another major surgery to
                                                                                                                                        and if not, they will give you the phone number of the supplier                                       drain my pelvic abscess.
  When it comes to your skin, there’s                                                                                                   and you could ask them for a sample.
                                                                                                                                                                                                                                                 It has been and continues
                                                                                                                                          It works well.
  no such thing as too much protection                                                                                                                                                                                                        to be a messy journey.
                                                                                                                                        In reply to Carl Bouwens, SA                                                                              I wanted to give back
  Dansac TRE seals are designed to:                                                                                                     I hope Thor has settled in and is happy doing his job.                                                to the Crohn’s and stoma
  • Provide a secure and flexible seal to help protect the                                                                                  I have written in previously about ‘what did I name my new                                        communities in some way
                                                                                                                                        friend?’. Long-time readers may remember.                                                             and as a result, I have recently
    skin from stoma output and to be easy to remove                                                                                                                                                                                           published my first book called
                                                                                                                                          I call mine the Baby. Why? To me it is obvious. I fed her,
  • Help absorb excess moisture without losing internal or                                                                              burped her, changed her, walked the floor with her, at times                                          The Crohn’s Diaries: A Book of
                                                                                              Available in 3 sizes: 18mm, 30mm & 40mm
    external strength to help maintain skin‘s natural balance                                                                           could have spanked her, and at other time, loved her.                                                 Resilience which I consider to
                                                                                                                                          I do hope my little bit of experience does help someone.                                            be a trouble-shooting manual
  • Help maintain the pH balance of naturally healthy skin                                                                                                                                                                                    on living with Crohn’s and its
                                                                                                                                        Marion Chisholm, NSW
                                                                                                                                                                                                                                              associated issues. It is my
  For more information about Dansac TRE seal and to order a free sample                                                                                                                                                                       hope that my story can help
  please call Customer Care on 1800 880 851 or visit www.dansac.com.au                                                                                                                                                                        others facing the challenge of
                                                                                                                                        Dear Editor,                                                                                          living with Crohn’s disease.
  For useful educational resources visit www.dansac.com.au/livingwithastoma                                                             In response to the letter from David Paterson (volume 29                                                  This book has all the
                                                                                                                                        number 3)                                                            tips and tricks that I’ve learned about stoma and skin
                                                                                                                                          Although not the same situation, I, too, found myself              management as well as sharing my story and other advice
                                                                                                                                        needing help after significant surgery. My output from               related to having a chronic illness.
  Prior to use, be sure to read the Instructions for Use for information regarding
  Intended Use, Contraindications, Warnings, Precautions, and Instructions.
                                                                                                                                        pre-existing ileostomy had increased and consistency varied
  The Dansac logo and TRE are trademarks of Dansac A/S. All other trademarks and copyrights
                                                                                                                                        considerably hour by hour.                                                                                             Continued page 12
  are the property of their respective owners. ©2021 Dansac A/S. DAN050. May 2021.

8 |   Ostomy Australia August 2021                                                                                                                                                                                                         Ostomy Australia August 2021       | 9
An open Letter to STN's from an ileostomy patient Are you having fun? My ostomy pregnancy - IN THIS ISSUE
Tips for taking better care of peristomal skin
       NEW
                                                                                                                                                  Do                                                                                 Don’t
                                                                                                                                   • Change your pouch routinely.                                                    • Use soap or other solutions to wash skin.
                                                                                                                                   • Gently remove the base plate from top                                           • Over complicate your pouch changing
                                                                                                                                     to bottom – people find an adhesive                                               routine.
                                                                                                                                     remover helps.
                                                                                                                                                                                                                     • Wait for your pouch to leak before
                                                                                                                                   • Clean the skin around the stoma with a                                            changing it.
                                                                                                                                     wipe soaked in warm water.
                                                                                                                                                                                                                     • Pull your pouch off too quickly.
                                                                                                                                   • Dry your skin thoroughly before applying
                                                                                                                                                                                                                     • Ignore any changes in the skin around
                                                                                                                                     your next pouch.
                                                                                                                                                                                                                       your stoma.
                                                                                                                                   • Inspect your skin every time you change
                                                                                                                                     your base plate.
                                                                                                                                                                                                                     Are you experiencing peristomal skin
                                                                                                                                   • Apply a skin barrier spray/wipe if required.
                                                                                                                                                                                                                     problems now?
 Soft convexity...                                                                                                                 • Check the hole cut in your base plate is
                                                                                                                                     the right size for your stoma.
                                                                                                                                                                                                                     Don’t try to manage skin problems on
                                                                                                                                                                                                                     your own. Seek help from your Stomal
 confidence to do                                                                                                                  • Apply the base plate securely around your                                       Therapy Nurse or contact ConvaTec
                                                                                                                                                                                                                     Customer Care on 1800 335 276 or
                                                                                                                                     stoma ensuring there are no gaps or folds
 the things you love                                                                                                                 in the base plate.                                                              email connection.au@convatec.com

 Introducing                                                                                                                       THE RIGHT ACCESSORIES
                                                                                                                                   CAN MAKE ALL THE DIFFERENCE

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                                   well to the body and be comfortable to wear.                                                    or added security to your
                                                                                                                                   ostomy system, you can
                                   Flexible Convexity: conforms to the body and helps improve the pouch
                                   seal by minimising leaks
                                                                                                                                   feel more comfortable
                                                                                                                                   with the right combination
                                   Easy-View Window: for accurate positioning and observation
                                                                                                                                   of accessories.
                                   Filter: designed to help minimise odours and ballooning
                                   Safe Seal Clipless Closure: designed to make emptying and cleaning easy*

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 Freecall 1800 335 276 or email connection.au@convatec.com                                                                         Freecall 1800 335 276 or email connection.au@convatec.com
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 www.yourconvatec.com.au         ® /TM indicates trademarks of ConvaTec Inc. © 2021 ConvaTec Inc. AP-031428-MRL-AU May 2021 O604   www.yourconvatec.com.au         ® /TM indicates trademarks of ConvaTec Inc. © 2021 ConvaTec Inc. AP-031428-MRL-AU May 2021 O604
10 |   Ostomy Australia August 2021                                                                                                                                                                                                                 Ostomy Australia August 2021   | 11
An open Letter to STN's from an ileostomy patient Are you having fun? My ostomy pregnancy - IN THIS ISSUE
To my fellow                                                               Celebrating Volunteer Week at OAM
 Continued from page 9

     In 2018, I walked the El Camino de Santiago with
 fellow ostomate and Crohn’s advocate Melissa Lord and                    ostomates                                                                  By Lindy McDonald
 I’ve interviewed her in a section of my book where we
 talk about the importance of goal setting and looking                    By The Gutless Wonder
 after yourself to live your best life.
                                                                          How very important it is for me
    My book is available at most online major book
                                                                          To enjoy this great camaraderie
 retailers including Amazon, Fishpond, Barnes & Noble                     With Ostomates both young and old.
 and Dymocks.                                                             To face the challenges, we must be brave and bold.
 Meagan Davey                                                             Humour is our most powerful weapon
                                                                          To live our lives without depression.
                                                                          Hearing so many stories that made me laugh
 Disclaimer: Ostomy AUSTRALIA does not endorse                            Reduced my misery and confusion by half.
 the contents of readers’ letters nor do we vouch for                     Col, Uri ad Ili are some stoma names we use
 the accuracy of any claims made in those letters.                        But often more imaginative ones we choose.
 Readers should not rely on any such claims in the                        Many are clever, often an amusing one,
 absence of medical advice and should consult their                       And some of us just refer to it as a tummy bum!
 treating doctors prior to embarking on any course of                     So continue to look on the bright side of life,
 treatment.                                                               We can all achieve great things in spite of the strife.

                                                                                                                                                     O
 Write to us: send your letters to                                        Forget all those problems that always abound,                                   ur volunteers are more than
 the Editor PO BOX 267, Gosnells WA 6990                                  Remember – a smile a day makes the world go round!                              volunteers.
 or email: journal@australianstoma.com.au
                                                                                                                                                        They come ’to work’ with a smile, a
                                                                                                                                                     willingness to help and a desire to get
                                                                                                                                                     the job done.
                                                                                                                                                       They want to give something back.
                                                                                                                                                       They want to make a difference to
                                                                                                                                                     people around them.

                                                                                                                                                     WHY THEY VOLUNTEER
                                                                                                                                                                                                      According to our volunteers, the
                                                                                                                                                     To build on existing friendships or make
                                                                                                                                                                                                   rewards of volunteering at OAM are
                                                                                                                                                     new friends. Maybe with someone that

Not all barrier                                                                                                                                                                                    many and they encourage others to put
                                                                                          Get more confidence and more peace of
                                                                                          mind so you can get on with life. Caring                   has just started volunteering with us, it’s
                                                                                                                                                                                                   their hand up to volunteer in their
                                                                                          for an ostomy can be a challenge – but it                  to give them confidence or to join in and

films are created
                                                                                                                                                                                                   communities.
                                                                                          doesn’t mean you have to miss out on life.                 be part of our great team. Often, it’s to
                                                                                          3M™ Cavilon™ No Sting Barrier Film helps                   help other ostomates, to ’pay forward’        WHY WE CELEBRATE

equal.
                                                                                          protect the tender skin around your stoma,                 the benefit they received from our            VOLUNTEER WEEK
                                                                                          for improved comfort and pouch adhesion.
                                                                                                                                                     association, the Ostomy Association of        We love having an opportunity to give
                                                                                          Available on the Australian Stoma Appliance
                                                                                                                                                     Melbourne (OAM).                              back to our volunteers and to
                                                                                          Scheme in a convenient pump spray bottle.
                                                                                                                                                                                                   acknowledge their achievements as
                                                                                          Choose Cavilon No Sting Barrier Film.                                                                    they are an integral part of our success.
                                                                                                                                                                                                   Their dedication and hard work are
                                                                                            3M Code:                 3346                                                                          reflected in the excellent feedback we
                                                                                                                                                                                                   receive about them and our association.
                                                                                            SAS Code:                3544M
                                                                                                                                                                                                      One word simply sums up our
                                                                                            Volume:                  28 mL                                                                         volunteers – Amazing
                                                                                            Allowance:               1/month                                                                         From all at OAM - we sincerely thank
                                                                                                                                                                                                   you and look forward to seeing you
                                                                                                                                                                                                   every week and especially during
                                                                                                                                                                                                   Volunteer Week when we can share our
                                                                                                                                                                                                   appreciation of you all.                      Trustworthy
                                           Try it for yourself and                                                                                                                                   As we say at OAM:                           Energetic
                                       experience the difference, visit
                                                                                                                                                                                                                                                 Enthusiastic
                                       3M.com.au/ostomy                                   * Please note that samples will be the 1 mL size.                                                          Very good cooks
                                                                                          Always read the instructions for use.                                                                                                                  Reliable
                                         to request a free sample.                        Do not use on infected areas of skin.                                                                      Offer their time
                                                                                                                                                                                                                                                 Simply sensational
                                                                                          If symptoms persist, talk to your health professional.
                                                                                                                                                                                                     Love a laugh
                                                                                          3M Australia Pty Limited   3M and Cavilon are trademarks                                                                                               Volunteers are not paid — not
                                                                                                                                                                                                     Understanding
3M.com.au/ostomy
                                                                                          ABN 90 000 100 096
                                                                                          Phone 1300 363 878
                                                                                                                     of 3M Company. © 3M 2019
                                                                                                                     All rights reserved
                                                                                                                                                                                                                                               because they are worthless, but
                                                                                                                                                                                                     Necessary                                 because they are priceless.    •

 12 |   Ostomy Australia August 2021                                                                                                                                                                                                               Ostomy Australia August 2021   | 13
An open Letter to STN's from an ileostomy patient Are you having fun? My ostomy pregnancy - IN THIS ISSUE
critical but to point out the patient’s
An open letter to STN’s                                                                                                                       perspective in a constructive way;
                                                                                                                                                                                           the products explained, however for
                                                                                                                                                                                           many post-op ostomates the ostomy
                                                                                                                                                                                                                                             Understanding ostomates have no
                                                                                                                                                                                                                                         lived experience prior to their surgery I

from an ileostomy patient
                                                                                                                                              potentially creating opportunities for       situation seems quite surreal and the         wonder at what stage in the hospital
                                                                                                                                              STN’s to rethink ways of assisting their     medication made it hard to concentrate        stay/ post op situation new ostomates
                                                                                               By Vivian Parry                                ostomy patients.                             especially after a major operation.           could receive purposeful, encouraging
                                                                                                                                                                                              I came to understand how hard Ward         advice to assist their transition out of
                                                                                                                                              MEDICATION FOR PAIN RELIEF                                                                 the hospital space back to the reality of
                                                                                                                                                                                           nurses as well as STN’s work, literally
                                                                                                                                              My surgeon advised me on the morning         running from room to room to keep up          being home. (I was not advised of a
                                                major flare up and subsequently found            and don’t want to bother my friends
                                                                                                                                              after my procedure, I must maintain my                                                     possible community STN home visit to
                                                myself receiving Infusions. The first            with washing.                                                                             with the demands of their nursing roles.
                                                                                                                                              pain medication schedule without fail.                                                     check on my progress).
                                                infusion was deemed after three                     Other than on the internet I have                                                      I wondered how the hospital system
                                                                                                                                              He explained if this routine was not                                                           My hope in writing this letter to you is
                                                sessions to be unsuitable. The second            never seen a stoma or the appliances;                                                     could reorganise and prioritise duties
                                                                                                                                              strictly adhered to my pain would                                                          that you have gained fresh insight into
                                                type of infusion created serious side            will I be able to change my own pouch                                                     more efficiently for both the staff and
                                                                                                                                              increase with little chance to return to                                                   some of the important issues this
                                                effects ... where to from here, I                before I leave hospital?                                                                  patient’s benefit.
                                                                                                                                              my current relatively pain free situation.                                                 ileostomy patient needed you to know.
                                                wondered. It was not long before I was             How long will it take for my stoma to                                                       At the post-op meeting I appreciated
                                                ordered to have another scope. The                                                               I became distressed when my pain                                                        A bit of a reminder how incredibly
                                                                                                 decrease to its normal size?                                                              the STN asking me, from my patient’s
                                                result was life altering for me. It seemed                                                    medication arrived significantly late or                                                   difficult it is for your patients to be brave
                                                                                                                                                                                           perspective, if there was anything within
                                                                                                   What if I need to revise the               occasionally forgotten. I started setting                                                  through the ostomy process.
                                                I had an area of ’grave concern’ and I                                                                                                     her area of responsibility I felt could
                                                                                                 appliances, who will I contact?              the alarm on my phone to make sure
                                                needed to see a gastroenterologist                                                                                                         have been done differently or improved           I strongly believe you and your
                                                                                                    Blockages. I am 90% vegetarian            the medication arrived within a
                                                surgeon to discuss my options. This                                                                                                        upon? I replied ‘You could show more          nursing colleagues can work through
                                                                                                 who will give me guidance on diet, and       reasonable timeframe; a responsibility I
                                                outcome was my worst nightmare                                                                                                             empathy and understanding’. She told          this information to bring about positive
                                                                                                 will that be during my hospital stay?        never thought a patient would have to
                                                realised.                                                                                                                                  me she thought she was doing exactly          awareness and change.
                                                                                                    Will I be given advice about skin care,   deal with.
                                                   Being used to medical appointments                                                                                                      that. I offered ‘if you could have taken         Ostomy patients do understand their
                                                I could not believe how fearful I became         how to deal with gas and odour? Will I       FIRST APPLIANCE CHANGE                       five minutes, just once, to sit beside me     STN, and the Ward nurses have many
                                                on the day of my consultation with the           receive advice on how to lie in bed,                                                      and ask if there was anything I needed        patients to care for. We in turn have
                                                                                                 dress, have a shower or bath?                When it came to attempting my first
                                                surgeon. I lost my favourite scarf on the                                                     appliance change (48 hours after the         to know or was concerned about, I             only one STN to guide us through this

D
                                                way into the building and didn’t even               Will there be home visits, or do I call                                                would have felt that connection’. Her         physically and emotionally challenging
    ear Stomal Therapy Nurses,                                                                                                                operation) I was not in great shape
                                                notice until I reached for it hours later        a community nursing service?                                                              reply, ’I don’t have time’.                   time in our lives.
          My name is Viv, and I would like                                                                                                    physically or mentally. The STN seemed
                                                and it was gone.                                    What I didn’t write down but did          to think a bit of bullying was a form of        I left the hospital and arrived home to      Given support, empathy and
to share my ostomy lived experience
                                                   The surgeon confirmed my                      reveal to the STN was my fear and            ’tough love‘ and she was short of time.      discover I couldn’t remember the              understanding of our situation we would
with you. I am hopeful my personal
                                                specialist’s opinion; my luck had run            dread of the procedure and my serious        I would have appreciated her                 information I received at my initial          do our best to work with you to gain the
experience will inspire, inform and
                                                out, a pancolectomy resulting in an              concerns about how my life would be          understanding my medical and                 consult weeks ago; essential advice on        most favourable outcome, for both our
challenge you to address the issues I
                                                ileostomy was my fate.                           into the future. I concluded with ’I don’t   emotional condition. Seeing my stoma         how I should sleep appropriately, keep        sakes.
have raised.
                                                                                                 want an ileostomy. I have tried every        for the first time, swollen and angry        my pouch dry in the shower and
     In February 2019 I arrived at my              I held off as long as I could to make                                                                                                                                                    Thank you for taking the time to read
                                                                                                 possible treatment over the years to         looking with the accompanying drains,        manage to avoid leaks.
stomal therapy appointment, the first           my pre-operative Stomal Therapy Nurse                                                                                                                                                    my letter it has been a privilege to share
                                                                                                 avoid this outcome!’                         catheter, and drip on board, still shaky
step on my ileostomy journey; one that          (STN) appointment, I needed to go                                                                                                              I felt lost and alone with my swollen     my thoughts and ileostomy lived
had taken twenty-five years to arrive at                                                            ’No one wants this operation‘, was        on my feet, a kind-hearted approach          body complete with add on appliance; I        experience with you. A huge Thank You
                                                through all the emotions that came
this day. An ulcerative colitis (UC)                                                             the STN’s only comment. Reflecting on        would have been invaluable.                  felt socially unacceptable and                from all your ostomy patients, we are
                                                rushing to the surface: grief, anger, fear
sufferer from the age of 35 my                                                                   that statement two years on, I believe          I did appreciate being signed up to                                                     ever grateful you have chosen caring for
                                                and self-pity. I had lost the UC battle                                                                                                    embarrassed to draw attention to my
                                                                                                 patients deserve a more considered
gastroenterologist warned ’You are              and the price to be paid was, in my
                                                                                                 response. Her words were all I had to
                                                                                                                                              the Colostomy Association and having         situation. Not the best homecoming.           us as your career.     •
walking down a well-worn path of UC             mind, a devastating loss of quality of life.
sufferers before you; an ostomy is                                                               support me through the procedure.
                                                The internet confirmed my worst fears
waiting for you, it’s just a matter of time!’   and added new ones, appliances,                    ’No one wants this operation‘… How
Not being one to step away from a               leaks, restricted diet, blockages,               was I supposed to process that?                 Helpful tips for ostomates
battle I pledged to myself there and            dressing to camouflage the appliance,               I believe this was a lost opportunity
then I would never have the operation.          antisocial noises... on and on it went.          to provide positive support. Public
If it meant a restricted diet, annual                                                            hospitals provide counsellors. Private
                                                                                                                                                 I would also like to share                eight for about $5 and each cap last         excessive rubbing would cause a skin
                                                   It all seemed so bad I decided to                                                             some valuable tips with my                for weeks). I cover the rolled-up pouch      irritation. By accident one appliance
scopes and serious medication then ‘so                                                           patients can gain referrals to trained
                                                make the recommended pre- admission                                                              fellow ostomates                          bringing the elastic up to the top, twist    order replaced my wipes with a spray
be it!’ I was not going to have the                                                              counsellors. The question is ’How does
                                                appointment with the STN to find out                                                             Diary: I have found keeping a diary       and re-cover the area about three            adhesive remover… Best mistake
operation.                                                                                       the STN detect which patients need
                                                the true facts of the situation for myself.                                                      noting the days I need to change          times until it fits securely. If any water   ever! One spray around the appliance
    My bowel and I survived my first                                                             counselling?’
                                                   To make the most of my appointment                                                            my appliance, very helpful. It is not     does seep under the cap, it stays            edges and the pouch lifts off cleanly in
specialist who eventually retired. I chose                                                          Never having sought any kind of              the ’early’ changeover that causes        below the rolled-up area. After my           one go with no residue left to remove.
                                                time I decided to write down my major
my next specialist with care stating at                                                          therapeutic counselling in the past I           problems; it’s the ’late‘ changeover      shower I carefully remove the cap and        I then use the adhesive remover wipe
                                                concerns. I wanted to make sure I put
our first meeting that losing my large                                                           regret not being offered counselling on         that can lead to day or night-time        dry the surrounding skin. Happily, the       to clean around the whole area. After
bowel was literally ‘off the operating          forward all my queries because I knew
                                                                                                 this occasion. I feel my recovery would         leaks because the adhesive no longer      pouch stays dry.                             a wash down with warm water I allow
table!’ He assured me medical                   in my case, having relevant information
                                                                                                 have been easier if, right at the start, I      adheres to your skin. In each month I     Product: From my first solo home             my skin to air dry. The other products
attitudes had changed together with             would help me through the ileostomy
                                                                                                 could have expressed my fears to                write K for keep and CH for change on     appliance change I had problems              I like are the Aloe seals used to create
advanced treatments; he felt sure we            procedure. Looking back over my
                                                                                                 someone trained to respond in a more            each day of the month as a reminder.      with left over adhesive residue on           an added buffer against leakage and
had a good chance of keeping my UC              notes as I write this letter, I am a bit
                                                                                                 valuable, effective and beneficial way.         Shower: Before I shower, I empty the      my skin. I knew it was important to          the flange extenders. The extenders
in remission.                                   surprised how relevant for a ‘stoma
                                                                                                                                                 pouch, roll it up towards my naval and    have a clean and dry area to attach          assist the shower process by creating
                                                novice’ my questions were:                       REFLECTIONS ON MY                                                                                                                      a larger adhesive area and they are a
   My annual scopes continued and                                                                                                                secure each end with an elastic hair      the new appliance to. The adhesive
over the ensuing years low level                  After my op: will I be in acute care or        IN-HOSPITAL STAY                                                                          removal wipes didn’t always do the           great line of defence and a visible early
                                                                                                                                                 tie. Using a soft disposable shower
dysplasia floated in and out of pathology       back in my room? Will I have a catheter?         The following points are reflections on         cap (discount chemists sell packs of      job effectively and I was concerned          warning signal against leaks.
results. About three years ago I had a             What shall I pack? I live on my own           my in-hospital stay. My aim is not to be

14 |   Ostomy Australia August 2021                                                                                                                                                                                                           Ostomy Australia August 2021       | 15
An open Letter to STN's from an ileostomy patient Are you having fun? My ostomy pregnancy - IN THIS ISSUE
Are you having fun?                                                                              Nutrition for Ostomates
By Margaret Allan

Margaret Allan advises both                      FUN IS INDIVIDUAL

                                                                                                                                                 WORK,
ostomates and the public on diet                 The type of fun you have after stomal
and health-related matters. She                  surgery may be different to what you did
is the director of the consultancy               for enjoyment before you had surgery,
Nutrition For Ostomates. To contact              but the concept is still the same – doing
her or read more nutrition articles

                                                                                                                                                 REST,
                                                 something that makes you laugh, feel
supporting the health of ostomates,
                                                 lighter, lifts your heart and brings joy into
go to www.nutritionforostomates.
                                                 your life. It is often said that laughter is
com.au
                                                 the best medicine, and you can                                                                                                                                                              A Worldwide

                                                                                                                                                   WORK
                                                 certainly cope better when you can
                                                                                                                                                                                                                                             brand now in
T
                                                                                                                                                 PLAY
      hat might seem like a silly question.      laugh. Fun helps you focus on the
      You might be thinking “I’m an
ostomate – how can I have fun?”
                                                 present and enjoy the moment rather
                                                 than dwelling on the past or fearing the                                                                ,                                                                                     Australia

                                                                                                                                                   REST,
However, the two don’t necessarily have          future. Fun can provide some mental
to be mutually exclusive. As an                  rest and a brief reprieve from the daily
ostomate it is important to still find joy in    concerns or challenges. Fun helps you
                                                                                                 • Going for a stroll in a pleasant                                                                                 A Worldwide
life, even if it is just in the little things.   forget what is going on in your life and
                                                                                                   environment, such as a park, the                                                                                 brand
                                                                                                                                                                                                                       sizing now   inpurchase

                                                                                                                                                        PLAY
   Stomal surgery can be a very big              allows you to just indulge in a pleasant          bush or the beach                           Contact your stomal nurse or refer to our size guides to ensure correct        prior to
deal. It can momentarily take the light          activity.                                                                                                                                                             Australia
                                                                                                 • Visiting your favourite place
out of life. And there may be major                  What one person experiences as fun
                                                                                                 • Going on a picnic (at a venue with
adjustments to make afterwards. It can           may not be the same for others, and so
seem as if you are being thrown a                the concept of fun is very individual.
                                                                                                   toilet facilities of course) or sharing a
                                                                                                   lovely meal with friends
                                                                                                                                                  WE’RE HERE TO                           You are eligible to claim up to 6 Breathable pants or 3
                                                                                                                                                                                          Shield belts, or mix and match with a combination of both.
                                                                                                                                                  SUPPORT       YOU (1 Shield belt = 2 Breathable pants)
massive curve ball and are being                 You may need to adjust or moderate                                                                   Contact your stomal nurse or refer to our size guides to ensure correct sizing prior to purchase
challenged in a very profound way.               your fun-filled endeavours for a little         • Floating away in a bed of delicious
You can feel overwhelmed and insecure                                                              daydreams…
                                                 while after stomal surgery in order not
about so many things, such as how to             to stress or strain your body whilst it is
                                                                                                                                                              YourWE’RE   HERE canTO
                                                                                                 THERE ARE MANY AND VARIED                                                                            You are eligible to claim up to 6 Breathable pants or 3
cope with the new circumstances, what            still recovering, but even then, you can        WAYS TO HAVE FUN. THE GOAL                                       Stomal Nurse     help find
                                                                                                                                                                                        Shieldthe most
                                                                                                                                                                                               belts,     suitable
                                                                                                                                                                                                      or mix         garment
                                                                                                                                                                                                             and match          for you. of both.
                                                                                                                                                                                                                       with a combination
your life is going to be like from now on
and what the future holds. There can be
                                                 still indulge in enjoyable pursuits. And
                                                 whilst your body is healing you could
                                                                                                 FOR YOU IS TO WORK OUT WHAT                                       SUPPORT YOU                        (1 Shield belt = 2 Breathable pants)
                                                                                                 REPRESENTS FUN FOR YOU NOW,
a lot of uncertainty.                            also spend the time daydreaming of              AS THE PERSON YOU ARE TODAY,

                                                                                                                                                            6 6 33 33
   But these feelings don’t have to be           what you WILL do when your body                                                                                              Your Stomal Nurse can help find the most suitable garment for you.
                                                                                                 AND THEN ENGAGE IN THAT
permanent. You can learn to cope, you            is ready.                                       ACTIVITY AS OFTEN AND FOR AS
can make the adjustments, and you can                                                            LONG AS POSSIBLE.
find your way through the maze of                SO, ASK YOURSELF: WHAT
                                                                                                 Aim to lighten your mood as much as
uncertainty towards a new way of life            REPRESENTS FUN FOR YOU?
                                                                                                 you can. When you’ve had some fun,
that is still full of meaning and purpose.       FUN CAN BE SIMPLE
                                                                                                 check in with yourself – how does it
And this process can be made easier              Fun does not need to be taxing or               feel? Do you feel happier, lighter, more
by having some fun!                              expensive. It doesn’t need to be a              liberated? Do you feel that you can
                                                 large-scale endeavour that requires a lot       cope with your challenges a little more
                                                 of time, energy or money. Fun can be            easily? If so, make fun a priority in your
                                                 free, and even if it only lasts five minutes    life and schedule some more light-
                                                 can have a beneficial impact on your            hearted, joyful activities into your diary
                                                 wellbeing. It can involve really simple         to keep up the momentum. After all,                Breathable Range                               Shield Belt                               Support Girdles
                                                 activities such as:                             practice makes perfect!                                          Breathable Range
                                                                                                                                                         Moderate Support                                  Shield Belt
                                                                                                                                                                                                     Firm Support                             Support  Girdles
                                                                                                                                                                                                                                                Firm Support
                                                 • Sitting in a sunny spot reading a                                                                                     Moderate Support                       Firm Support                     Firm Support
                                                                                                   I recently heard a blessing that
                                                   book or a magazine                            contained the phrases:                                                  Contact your association
                                                                                                                                                                                   Contact          today today
                                                                                                                                                                                           your association for your  allowance
                                                                                                                                                                                                                 for your allowance
                                                 • Having a coffee and a good chat with            ‘May you be at peace, may you be
                                                   a loved one                                   well, may you find loving kindness.’
                                                 • Chilling out watching a funny movie              I would add ‘May you also have fun!’                1300 6641300
                                                                                                                                                                 027 664 027
                                                                                                                                                                Mon - Fri 9am to 5pm,
                                                                                                                                                                                                             For more information visit
                                                                                                                                                                                                  For more information visit
                                                                                                                                                                                                             sutherlandmedical.com.au
                                                 • Singing along to your favourite music           Wishing you good health and                                            5pm, Public Holiday sutherlandmedical.com.au
                                                                                                                                                        Mon - Fri 9am toexcluding
                                                 • Sharing a joke with a like-minded             happy days,                                            excluding Public Holiday
                                                   friend                                           Margaret     •
                                                                                                                                                                  Sutherland Medical, Unit 2, 195 Chesterville Road, Moorabbin VIC 3189

                                                                                                                                                  Sutherland Medical, Unit 2, 195 Chesterville Road, Moorabbin VIC 3189
16 |   Ostomy Australia August 2021
An open Letter to STN's from an ileostomy patient Are you having fun? My ostomy pregnancy - IN THIS ISSUE
Prevention is better than cure!

                                                                                                                                                                                                                                          6
                                                                                                                                                                                                                                          6
                                                                                                                                                            Your allowance is                      Don’t worry if

                                                                                                                                                                                                                                                                 33
                                                                                                                                                            6 support pants or                     you’ve used up your
                                                                                                                                                                                                                                                         OR
                                                                                                                                                            3 belts or a combination               allowance, you can
                                                                                                                                                            per calendar year                      buy more directly
                                                                                                                                                            (1 support belt = 2 support pants)     from Omnigon.
                                                                                                                                                                                                                                      SUPPORT PANTS                  BELTS

Up to 50% of                                                                                                                                                        RATING 3.
                                                                                                                                w?
                                                                                                                   Did you kno
ostomates may develop                                                                                             A hole in Su
                                                                                                                               pport
                                                                                                                                 not
                                                                                                                                                                    MODERATE
                                                                                                                   Garments is
                                                                                                                                                                          After surgery
                   1
a parastomal hernia
                                                                                                                                                                                                          Men’s Support Pants                  Diamond Plus Boxers
                                                                                                                                ed by
                                                                                                                  recommend 2,3                                    Wear during light exercise
                                                                                                                      clinicians
                                                                                                                                                                       Prevent or support
But with the right                                                                                                                                                        a small bulge                                           2x
                                                                                                                                                                                                                                colours
                                                                                                                                                                                                                                                                         2x
                                                                                                                                                                                                                                                                       colours

prevention strategies
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                                                                                                                                                                                                          Diamond Plus Briefs                     Diamond Plus
in the better 50%                                                                                                                                                                                                                               Support Waistband

Reduce your risk of developing
                                                                                                                                                                  RATING 4.
a hernia by wearing a support                                                                                                                                   INTERMEDIATE
garment and following the
                                                                                                                                                                   Wear during daily activities
practical advice provided                                                                                                                                        (housework, shopping, golfing)

in the Omnigon Support                                                                                                                                         Support a more developed hernia

Garments Guide.                                                                                                                                                                                             Support Briefs                              IsoFlex
                                                                                                                                                                                                               for Her                                Support Belt

       Contact
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      receive a
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                                                                                                                                                                        FIRM                                                                                             2x
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                                                                                                                                                               Wear during active work or sports

1: Colorectal Disease ª 2018 The Association of Coloproctology of Great Britain and Ireland. 20 (Suppl. 2), 5–19. 2: Thompson JM. A summary on parastomal      Support a more developed hernia               Total Control                              KoolKnit
hernias, February 2009. 3: Thompson MJ. Parastomal hernia: incidence, prevention and treatment strategies, British Journal of Nursing, 2008 (STOMA
                                                                                                                                                                                                             Support Belt                             Support Belt
CARE SUPPLEMENT); 17 (2), 16-20

18 |   Ostomy Australia August 2021
Tips and tricks for colostomy,
ileostomy and urostomy By Tyrrell, STN – NSW
                                                                                                                                                    FREE
H      aving a stoma is a life changing
       process. Yes, it is challenging, yes, it
is hard to deal with, but with the help of a
                                                  • Measure your stoma regularly. After
                                                    surgery do it weekly for six weeks, then
                                                    monthly for three months, then every
                                                                                                   better digestion and reduces risks of
                                                                                                   blockages.                                      samples
                                                                                                 • Do not eat hard vegetables e.g.,
Stomal Therapy Nurse (STN) as an                    three to six months to check for               carrots, celery, corn, or tough meat,
ostomate you will, over time, become                change.                                        pineapple, mango and coconut. These
confident in self caring for your stoma and       • Eat a well-balanced diet, some fibre,          foods can cause a blockage.
be able to resume your previous lifestyle.          vegetables, fruit, protein and the odd         Reintroduce foods slowly and maintain
    Everyone deserves the opportunity to            drink. Drink pear juice if constipated.        a balanced diet of carbohydrates,
embrace life to the fullest. In my 40 years       • Put small rolled up toilet tissue (size of     vegetables, fruit and protein.
of nursing, I have witnessed people who             a marble) into pouch to allow stools to      • Seek help from your STN if you are
have had a stoma turn their life into               drop more easily down to bottom.               experiencing leakage, skin problems,
whatever they wanted it to be. They have          • Warm up your base plate or pouch               pouch fitting issues, pain or bleeding
been able to resume their work life and             before fitting especially in the colder        from your stoma.
exercise including swimming, golf, cricket,         winter months e.g., put it inside your
rugby, surf, ski (snow and water) and               shirt against your warm body or use          UROSTOMY
skydive. Many have continued with                   a hairdryer on a warm setting for            • Check your stoma size regularly
gardening and household chores.                     30 seconds.                                    - monthly for the first three months
Women have still been able to give birth.         • If stools are dry or pancaking put olive       then six monthly to check for changes.
    What I am about to share with you is            oil/lubricant deodorant on the inside of     • Cut base plate or one piece pouch as
the knowledge I have gained over 30                 the pouch. This will help stools slide         close as possible to your stoma size
years of working as a STN. I have to thank          down.                                          (1 mm).
my patients and my fellow STNs who have           • Drink 6-8 large glasses of water daily,      • Using a seal can help wear time and
shared their ’tips and tricks’ to better            plus tea and coffee if you desire.             reduce urine leakage problems.
manage stomas, peristomal skin problems           • Use warm water only to clean skin            • Wash your peristomal skin with warm
and appliance management.                           around the stoma (we call that the             water only.                                 Maintaining and protecting healthy skin is as easy as 1, 2, 3 with the
    When I first started working as a STN           peristomal skin).                            • Dry the peristomal skin well with a soft
we did not have the wonderful pouches,
accessories and skin technology that
                                                  • If the pouch filter gets wet, change the
                                                    pouch.
                                                                                                   lint cloth, Chux or hair dryer on a
                                                                                                   cool-warm setting.                          Brava® Healthy Skin Set
we are blessed to have at our fingertips          • Change the pouch when its 1/3 or             • Use rolled up gauze on top of the
today. We certainly have come a                     1/2 full.                                      stoma to collect urine while drying your
long way.                                                                                          skin.
                                                  • Do not lift heavy objects – a hernia may
    I have learnt many general tips and             develop.                                     • Warm up your base plate or pouch
tricks over this time as well as specific tips                                                     before application.
                                                  • Contact a STN if you have leakage,
for colostomy, ileostomy and urostomy.              skin problems, pouch fitting issues,         • Change your pouch early in the
• Overall keep everything simple when                                                              morning before you start drinking
                                                    pain or bleeding from your stoma.
    caring for your stoma.                                                                         fluids.
• After selecting the appliance that you          ILEOSTOMY                                      • If you use a night bag, connect the
    like, stay with it.                                                                            tubing to the bottom bed sheet, PJs
                                                  • Measure your stoma every week for the
                                                                                                   or person.
• Order your products in a timely                   first six to eight weeks so you can cut
    manner. Do not over order but also do                                                        • Drink 6-8 large glasses of water per                                   Remove                                                                Cleanse                                          Protect
                                                    your base plate or one-piece pouch to
    not leave it to the last minute.                                                               day (unless your doctor says
                                                    the right size (a hole 1-2 mm bigger
                                                                                                   otherwise).
• Have adequate number of stoma                     than your stoma is ideal).
    supplies on hand – one month backup                                                          • Change your pouch daily or base plate       It is essential to protect your skin from the everyday wear and tear associated with bag changes and using ostomy
                                                  • Wash your skin with warm water only.
                                                                                                   every 3-4 days, or if leakage occurs.
    is a good idea.                               • Dry your skin with a soft low lint towel,                                                  products. The right products can help prevent many peristomal skin issues. The Brava range of supporting products
                                                                                                 • Wash your hands thoroughly before
• Cut your base plate or pouch to the               Chux or dry with a hair dryer on a                                                         deals with the most common of these.
                                                                                                   stoma care to prevent bacteria entering
    size of your stoma.                             warm-cool setting.
                                                                                                   your stoma and developing an
• Wash your skin with warm water and              • Warm up your base plate or pouch               infection. A urinary tract infection will   Developed to meet your skins needs, this 3-step care routine gives your skin and stoma exactly what it needs to be
    dry your skin well before applying your         before fitting especially in the colder        see your urine cloudy, smelly and you       happy and healthy, while allowing you to have worry free bag changes. The set includes Brava® Adhesive Remover
    pouch or base plate.                            winter months e.g., put it inside your         will have a reduction in your urine         Wipes, Brava® Skin Cleanser Wipes and Brava® Skin Barrier Wipes.
• Empty your pouch when its 1/3 or                  shirt against your warm body.                  output. Seek a review with the GP
    1/2 full.                                     • Change your base plate or pouch in             if issues.
• If you have a problem or question                 the morning before eating. This will         • Seek help from a STN if you have skin
    contact your STN before the problem             reduce your output volume making for           problems, pouch issues or bleeding              Request your free samples today
    becomes a big issue.                            a better change.                               from your stoma.
                                                  • Keep up your fluids. 6-8 glasses of
                                                                                                                                                          1800 531 823
                                                                                                 • Have a yearly review with a STN.
COLOSTOMY                                           water daily plus other fluids e.g., tea,
• Cut a one-piece pouch and/or base                 coffee and juices.                           Source: https://omnigonconnect.com.
  plate just a little bigger than the stoma       • Chew your food well and eat small            au/advice/tips-tricks-colostomy-
  (1-2 mm).                                         meals to being with. This assists with       ileostomy-urostomy/       •
                                                                                                                                               Coloplast Pty Ltd, PO Box 240, Mount Waverley, VIC 3149 Australia
                                                                                                                                               www.coloplast.com.au The Coloplast logo is a registered trademark of Coloplast A/S. ©2021-05 OST762. All rights reserved Coloplast A/S

20 |   Ostomy Australia August 2021                                                                                                                                                                                                                                                     Ostomy Australia August 2021   | 21
Diversion Proctitis

                                                                                                                                         THE NATURAL
By Monica Stankiewicz, Stomal Therapy Nurse

D    iversion proctitis is also known as diversion colitis as it
     can affect a part of the rectum or colon after stoma
formation. Symptoms include abdominal or rectal pain,
                                                                          Avoid soaps to
                                                                       cleanse the area as this
                                                                       may increase rectal skin

                                                                                                                                         CHOICE FOR
bleeding, excessive mucus or ongoing sensation of needing              pH and encourage skin
to pass a bowel motion or can even loosen motions from                 breakdown. Warm water
the stoma.                                                             to wash the area is
    It is reported that the cause of diversion proctitis is due to a   enough.
lack of short chain fatty acids (a biproduct of fermented dietary         A panty liner or
fibre) which are absent when the bowel is starved due to the           incontinence pad is often

                                                                                                                                         PREVENTING
diversion in the faecal pathway. This changes the way certain          used to prevent under-pant soiling.
cells (enterocytes) absorb and metabolise. This leads to poor             Copious amounts of rectal stump mucus is a concern and
functioning, smaller, abnormal cells in the bowel /rectum              should be assessed by a medical specialist (general
mucosa (the cells that line our body cavities, such as mouth,          practitioner / colorectal surgeon / gastroenterologist). It may
intestines, rectum etc). This is known as ‘mucosal atrophy’.           warrant further investigation.
The risk of infection is due to increased bacterial load due to

                                                                                                                                         LEAKS.
changes in the normal cells function and a decrease in normal          TREATMENT
healthy bowel bacteria.                                                It is very important to engage a gastroenterologist to assist
                                                                       with navigating a diagnosis, investigations and providing
WHO IS AFFECTED?
                                                                       information on the best treatment for you, whether its medical
Although suspected to be uncommon (as true incidence of the            or surgical.
disease is unknown), it can occur in any patient with an
                                                                          There is some research conducted about the effectiveness
ileostomy or colostomy, occurring in the remaining bowel or
                                                                       of short chain fatty acid enemas to improve diversion proctitis
rectal stump.
                                                                       or diversion colitis, however outcomes from the studies are
    Diversion proctitis is reported mostly in those who have           varied. Medication management tends to be mainstay
inflammatory bowel conditions such as Crohn’s disease or               treatment ranging from oral anti-inflammatory/
ulcerative colitis but does not exclude other disease processes        immunomodulating medication to biologic treatment. Referral
such as bowel cancer or diverticular disease.                          to a colorectal surgeon may be necessary if surgical
                                                                       intervention is required.
PROTECTION OF SKIN INTEGRITY
Incontinent mucus from the rectum is not uncommon. It is very          Monica is a Wound Management, Stomal Therapy and
important to protect the surrounding rectal skin due to                Dermatology Nurse Practitioner* for Community and
increased mucus or bloody discharge from the rectum.                   Oral Health, Metro North, Queensland Health and can see
Barrier wipes, barrier creams or barrier sprays can be effective       ostomates with any skin or general concerns, through a
in preventing skin loss.                                               referral from a GP. •                                                                                                                                        Confidence® Natural has a superior wafer*
                                                                                                                                                                                                                                    that adheres more securely for longer.

                                                                                                                                                                                                                                       Greater adhesion* and absorption to help
   what’s on?                                                                                                                                                                                                                          prevent leakage
                                                                                                                                                                                                                                       Unique, five-sided Flexifit® wafer bends
   Discover new services and events                                    Celebrate World Ostomy Day                                                                                                                                      and flexes with your body
   at your local association                                           To all members, their families and carers of Ostomy                                                                                                             Infused with Aloe extracts for softer skin
                                                                       Associations Australia wide.
   Mackay (QLD) Ostomy Support Group
                                                                       Saturday 2 October has been internationally declared as
   AWARENESS DAY
                                                                       World Ostomy Day.                                                                                                                                            CONFIDENCE® NATURAL
   Following a very successful gathering in 2019, the Mackay                                                                                                                                                                        The natural choice for preventing problems
                                                                       We wish to raise and promote awareness for people
   (QLD) Ostomy Support Group will be holding its biennial
                                                                       with stomas and will be holding a free zoom event that will
   Awareness Day on Friday 1 October 2021.
                                                                       involve information and fun events on the day. We hope
   Entertainer Luke Escombe will again be in attendance along          to enlist support from Stoma Nurses, Ostomy Supply
   with a Motivational Speaker, Gastroenterologist, Stomal             Companies and Guest Speakers.
   Therapy Nurse, Product Suppliers and other guest speakers.          Save the date and keep an eye on your Associations’                                                                                                          For free samples call Toll Free
   For Queensland Ostomates, further details regarding this            websites for more information at it evolves with information,
   FREE event will be on a flyer with your order.                      timings, the program and where to RSVP if you wish
                                                                                                                                                                                                                                    1300 784 737 (NZ 0800 100 146)
   For further information phone Sandy on 0418 150 507.                to register.                                                                                                                                                 or visit www.ainscorp.com.au
                                                                                                                                          ®Registered trade marks of Salts Healthcare Ltd. ©Salts Healthcare Ltd 2021. Products and trade marks of Salts Healthcare Ltd are protected by UK and foreign patents,
                                                                                                                                          registered designs and trade marks. For further details, please visit www.salts.co.uk *Compared to our previous Salts hydrocolloid wafer.

22 |   Ostomy Australia August 2021                                                                                                                                                                                                                               Ostomy Australia August 2021                     | 23
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