News - Be The Voice - Carers Victoria
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news
2019 Edition 1
Be The Social Media Carer
Voice Savvy Gateway
Advocating for carer rights Ways to engage online What to expect
CEO’s Update
What’s
inside
2 CEO's Update
Message
from Scott
3 eet Luke Donnellan
M Welcome to the first
— Minister for Carers edition of Carers News
5 Caring Fairly for 2019.
campaign
I
n my last Carers News message,
6 Changing Places
we were eagerly awaiting the
campaign outcome of the Victorian State
election. Thank you to everyone
8 Carer stories: who contributed to our Victorian State
Supermum carers election #CarersCountToo campaign
by contacting their local Member of
10 Carer Gateway Parliament to voice what carers need.
Service Provider The re-election of the Andrews Labor
Government is a welcome outcome for
to ask for help as it’s important to
12 Federal Election the State’s 736,000 carers. It heralds
a dedicated Minister for Carers, Luke remember you don’t have to walk the
Voting caring journey alone. Carers Victoria
Donnellan, who we introduce in a
special interview on page three. There exists to improve the lives of carers
13 The Power of — please call 1800 242 636 to find
is also a new Parliamentary Secretary
Journaling for Carers, Ms Lizzie Blandthorn and out what supports are available.
a promise of more than $50 million in On a final note, if you are caring for a
14 Be The Voice funding to increase respite care hours person with dementia I invite you to
For Carers and support services for carers. Stay join Carers Victoria at the Dementia
tuned for further updates as Carers and Caring Families Conference on
15 Social Media Savvy Victoria continues to work with the 25 June. This special event is free and
Andrews Government to implement open to all Victorian carers. On the day
16 10 Ways to its key election promises and the you’ll find resources, hear from leading
Ask For Help Victorian carer strategy 2018–22. industry providers and experts and
As this message goes to print meet other carers who are walking in
17 Carer News there’s a Federal election on the your shoes all in the one place. Come
horizon. To coincide, this Carers and listen, learn and laugh at this not
18 Take a Break News edition is aptly themed ‘Be to be missed one off occasion. Further
the Voice’ and focuses on advocacy details of the Conference see page 17.
19 Education Workshops and empowerment. See page 12 for Kind regards,
guidance on voting and which rules
may apply to the person you care for.
This edition also highlights many
other ways to voice yourself and feel
empowered. Topics covered include
the power of journaling and social Scott Walker
media. There are also tips on how Chief Executive Officer, Carers Victoria
2 Carers News 2019 Edition 1
Meet Luke Donnellan — Minister for Carers
Meet Luke Donnellan
— Minister for Carers
With the re-election of the Labor
Government and significant
election promises to deliver,
Premier Daniel Andrews has
for the first time appointed a
dedicated Minister for Carers. In
this special interview, meet Luke
Donnellan — Minister for Carers.
Has giving or receiving care affected you or
your family and friends?
Personally, it has touched me during my time as a part-time
carer for a friend of mine who was suffering from Parkinson’s
disease. I experienced firsthand how difficult it is to care for
someone you care about and watch them struggle, but also
how difficult it can be to juggle caring with other parts of
your life.
The reality is caring is something that is likely to touch all of
us at some stage of our lives — either through giving care or
receiving care from a family member, friend or professional.
Across Victoria, almost 737,000 carers give their time and
effort to look after a family member or friend who needs
them. More than 71,000 of these are young people. Carers
vary enormously in age and they might be caring for a parent,
child, partner, sibling or a close friend. So the provision of
care is something that affects almost all of us.
As the very first Minister for Carers, why
has the Victorian Government chosen to
highlight carers in this way?
This is the first time that carers has its own dedicated
government portfolio, and I’m very proud to be the
Minister for Disability, Ageing and Carers. Carers make an
incredible contribution to our community, providing a $15
billion benefit to the economy every year, so the Victorian
Government firmly believes they deserve a hand.
Above // Minister for Disability, Ageing and Carers Luke Donnellan.
2019 Edition 1 Carers News 3
Meet Luke Donnellan — Minister for Carers
Creating this dedicated role in transport, and better identification You hold very important
government is just one way we are of and help for young carers, we
but often stressful
seeking to better recognise carers particularly want to ensure they are
and the important role they play, supported in school, study and at work. portfolios. What are your
as well as making sure they get the We’ve also invested an additional top 3 self-care tips?
support they need. It also gives us $1.2 million in extra respite, school Many of us live very busy and hectic
more opportunity to simply say thank- holiday programs and more support for lives and while technology has made
you to all those who make sacrifices carers of people with mental illness. many parts of our lives easier, it also
to enhance someone else’s life. means we can struggle to switch off.
We’re also pleased to support Carers
What do you identify as Victoria in providing new information Having a smartphone means we’re
for carers on the new combined constantly contactable and checking
the biggest challenges emails, texts and social media.
Carers Victoria and Everything Carers
for carers? website (launch May), resources to Considering this, I think it’s really
As your readers know, the care role help carers identify benefits and important that we take time to fully
can be hugely rewarding, but also concessions, and with the carer switch off, spend time doing things
challenging. Being a carer can affect awareness campaign with GPs. we love and reflect on our lives.
people in different ways. It can be tough While everyone is different, the
financially, and often means missing
Australian Government
three ways I look after my mental
out on ordinary things you would funded carer support and physical health are:
usually do. Carers are less likely to be services are changing
Spending time with family — I love
involved in activities outside the home, significantly in 2019. How relaxing with the family and enjoy
finding the time for a run or a movie
will you ensure Victorian watching my boys play cricket on the
with a friend can be hard. Reducing weekend. I find it very relaxing to
the mental, physical and financial carers continue to get wander down to Edinburgh Gardens,
stress for carers is a priority for me. the support they need in sit under a tree and (hopefully)
see my boys make a few runs.
their caring role?
What are the key actions of
There is a lot happening this year, and Gardening — I spend a lot of
the Victorian government to time in the garden tending to my
not just with these changes. We are also
address those challenges? tomatoes and while I have had
transitioning to the National Disability mixed success with the quality
Carers make a significant contribution Insurance Scheme and providing of the produce, I find time in the
to Victoria and carers are of all ages. support for the Commonwealth Royal garden extremely therapeutic.
We’ve put together a suite of programs Commissions into Aged Care Quality
to make sure carers get the practical Exercise — while we all have long,
and Safety, and the Victorian Royal
tough days that make it seem
help they need. These are packaged up Commission into Mental Health.
tempting to just sit on the couch
in the Victorian carer strategy 2018– when we get home, exercise can
Nonetheless, respecting carers is
2022, which was released last year. play a big role in our mental health.
a priority for the Andrews Labor
I go for a run every day and I often
I’m looking forward to engaging Government. In 2018, we committed
find this is the only time I completely
with carers and carer organisations an additional $49.5 million over four switch off and clear my head.
like Carers Vic at our first annual years to better support carers with
forum that’s planned for later this an extra 100,000 hours of respite What personal message
year. It will be a great chance for the annually and $4 million over four years
would you like to send to
Parliamentary Secretary for Carers in grants to grass-roots carer support
Lizzie Blandthorn and I to hear groups statewide. The money will Victoria’s 736,000 carers?
firsthand how these programs are also fund a year-round 50 per cent The work you do is invaluable — for
tracking, and what else we can do. concession on public transport, and thousands of Victorians caring for
free travel across the state during a loved one, it’s a 24/7 job. It’s time
There are five priority action areas
Victorian Carers Week in October, for us to make sure you get the
that we’re focused on; as well as
for Victorian Carer Card holders. time out and practical support you
providing greater access to support
groups, financial advice services and need. I look forward to working
with you to make that happen.
4 Carers News 2019 Edition 1
Caring Fairly — A voice for rights, recognition and reform
Caring Fairly
— A united voice for rights, recognition and reform
A
national coalition called
Caring Fairly is campaigning
for fairer government
policies to reduce the
economic disadvantages faced by
Australia’s 2.7 million unpaid carers.
Established by Mind Australia, the
coalition was launched in August
2018 at Parliament House in
Canberra and comprises of over 25
Non-Government Organisations,
peak bodies and community
organisations from across Australia.
Carers Australia and its State
associations have joined the plight
to better recognise and support
unpaid carers over the course of the
three-year campaign, particularly
leading up to the Federal election.
The Caring Fairly coalition invested in
leading edge research and consultation
with carers, policy experts and
academics to develop innovative, Above // Australia’s 240,000 mental health carers are a key focus of the Caring Fairly campaign.
evidence-based policies across eight
This policy platform was presented By taking action together, we can
key domains. These policies aim to
to key federal ministers and policy improve the situation of carers at
improve economic security for carers
advisors within government and home, in the workplace and society.
and reduce barriers to workforce
opposition and forms the basis of
participation, bridge gaps in support
Caring Fairly’s federal election
services and ensure young carers are
identified and supported. A special
campaign to deliver fairer outcomes
for unpaid carers in every Australian
Stay informed
focus was Australia’s 240,000 mental
electorate. To join the cause, download @caringfairly
health carers providing support to
the Caring Fairly campaign toolkit
people living with mental illness, with
from caringfairly.org.au for tips
research showing young mental health facebook.com/
and templates on how to advocate
carers are severely disadvantaged in caringfairlycampaign/
for change in your electorate and
relation to education and employment.
social media you can share. The
Their school attendance is significantly @caringfairly
website also features links to
lower compared to other students
download the full policy platform.
aged five to 14 years old.
2019 Edition 1 Carers News 5
Changing Places — A campaign for accessible public toilets
Changing Places —A
campaign for accessible public toilets
Above // A Changing Places facility is available to visitors at Victoria’s Melbourne Zoo. Above // Changing Places facility at Parks
Library in Port Adelaide, South Australia.
C
hanging Places advocates severe disability and their carers to to be built in certain types of public
for public toilets with full participate in their local community buildings. This includes large shopping
sized change tables and and access public attractions. Victoria centres, sporting centres with an
hoists in major public leads the way with 34 permanent occupancy of over 35,000 spectators,
spaces across Australia to meet the toilets situated across metropolitan larger public pools, museums, art
needs of people with complex and and regional locations, including galleries, theatres and airports. Events
profound disabilities and their carers. the Melbourne Cricket Ground, and festivals are becoming accessible
There are currently 78 accredited Melbourne Zoo and Melbourne Arena. too with six ‘Marveloos’ (a portable
Changing Places facilities located South Australia opened its type of Changing Places toilet)
across the country and, with many first Changing Places facility in available across the country for hire.
State governments investing in the January 2019 at Parks Library in
To find your nearest Changing
program, this number will rapidly rise. Angle Park in Port Adelaide, with
Places toilet or Marveloo visit
more sites planned for Adelaide, Port
Australia’s campaign is based on the https://changingplaces.org.au.
Lincoln, Whyalla, Victor Harbor and
successful implementation of the
Mount Gambier. Tasmania currently
Changing Places concept in the UK
has no accredited Changing Places
where there are more than 1,250
facilities but plans to join the campaign
accredited facilities. A Changing
soon. However, there are several
Places facility differs to a regular
accessible adult change toilets similar
accessible toilet by its features
to a Changing Places facility — visit
and size. It offers a motorised
toiletmap.gov.au/Find/tas for details.
height adjustable adult change
table, a tracking hoist system and Local governments and public and
room for two people either side private entities are also committed to
of a peninsula toilet: all in a safe, including Changing Places facilities
clean and spacious environment. in their future developments. From 1
May 2019, the National Construction Above // Six ‘Marveloos’ are available for
Changing Places will support more
Code will require a new class of toilet hire to improve accessibility at festivals and
than 1.2 million Australians with a events around Australia.
based on the Changing Places design
6 Carers News 2019 Edition 1
Changing Places — A campaign for accessible public toilets
Transforming Families Lives
— A carer's experience of Changing Places
Victorian mother and carer Paula Groves shares how the Changing Places
campaign has positively changed her family’s life.
"I’m a mum of three children and Toby For example, on a recent trip to out of a rashie and bathers is hard
is my 13-year-old young man who has Sydney I made a list of all the places at the best of times but throw in the
cerebral palsy. Toby has his challenges with Changing Places toilets or adult added complication of a child using a
and one of them is incontinence. I am change facilities and those locations wheelchair and it can quite often mean
regularly faced with the challenge were on the top of our visit list. a trip to the beach is ‘all too hard’. For
of being able to toilet/change Toby us knowing that the portable Changing
Being able to use a Changing Places
with dignity, as going to the toilet is Places toilet was at the event meant
toilet means we can plan a day trip or
a basic human right not a privilege. we headed down to the beach and
longer, knowing that when and if we
Toby got to experience surfing just
There have been times — too many need the facilities they are there for us.
like any other kid — and he loved it!
unfortunately — where we have The fact that Changing Places toilets
had to change Toby on the floor of are popping up all over the place As Toby grows up and wants to head
a disabled toilet as the baby change makes me so happy, as being able to off with to do things with his mates, we
table doesn’t cut it for a teenager, or plan trips to the footy, a concert or a know that with Changing Places toilets
in the back of the car and on occasion trip to the zoo is made more appealing appearing around Victoria and the
we have even had to cut our day out as I don’t have to worry about ‘what rest of Australia, Toby’s toileting is one
short to head home to toilet/change, if’ Toby needs to go to the toilet. less thing we need to worry about."
which is upsetting for everyone.
A real highlight for us as a family
As a mum of a child with additional was when we attended the Disabled
needs I do my homework before we Surfing Event at Point Leo on Victoria’s
Stay updated
even head out the door, it makes the Mornington Peninsula and we were Register at changingplaces.
trip easier and more pleasant for lucky enough to be able to use the org.au/join-our-mailing-list/
all. I look up facilities online before portable Changing Places toilet (a for updates on news, events
heading off, to see what is around or Marveloo). When I say lucky I truly and local campaigns.
in the vicinity of where we are going. mean it because changing a child
Above // Toby (centre) at the Disabled Surfing Event at Point Leo in Victoria. Above // Paula with her family.
2019 Edition 1 Carers News 7
Carer stories — Supermum Carers
Living
in times
of
hope
Caring can be a tough role for anyone, but Zahra
does it every day with lots of patience, an open
mind and a smile on her face.
Z
ahra Mohamed was born old Mubarak is supportive. A beautiful like she had people on her side who
in Somalia and moved to example is that he will go and get his were trying to support her and her
Tasmania in 2009 after sister a tissue every time she sneezes. daughter. Due to Carers Tasmania
living in the mainland staff following-up, Mumtaz’s NDIS
Zahra also works part-time and tries
of Australia for nine years. She plan began in December 2017.
to juggle this around her parenting
is mum to five children ranging
and caring responsibilities. Zahra is Supports were put in place through
in age from three to 14 years.
(and needs to be) very organised and the NDIS plan which were of great
Zahra’s 10-year-old daughter Mumtaz realises that routines are the only benefit to Mumtaz. These also
needs a lot of extra support in her daily way to keep everything on track. reduced some of the physical and
life as she has significant disability emotional stress for Zahra. Mumtaz
She contacted Carers Tasmania
and health concerns. Mumtaz’s received an appropriate wheelchair.
and registered Mumtaz for the
actual diagnosis has changed several A support worker will come into the
Better Start program for children
times throughout the course of her home seven days a week to assist
with a disability in 2013. This
young life which has been quite with getting ready before school and
funding was quite helpful to access
stressful, upsetting and confusing provide support in the afternoons or
services such as physiotherapy and
for Zahra. Mumtaz was originally on the weekend. Mumtaz also attends
occupational and speech therapies.
diagnosed with Cerebral Palsy but hydrotherapy and loves it. Zahra
she has received several different In July 2017, Zahra was experiencing says there is a support co-ordinator
variations of diagnosis. Despite this, great difficulty navigating the for Mumtaz’s NDIS plan and their
Zahra faces each day as it comes National Disability Insurance assistance is greatly appreciated.
with a positive and open outlook. Scheme (NDIS). She really needed Without a co-ordinator, Zahra feels
a suitable and safe wheelchair to that life would be quite overwhelming.
Life at home is very busy with Zahra
transport Mumtaz in her car. Due
supporting all her children with Zahra’s message to all carers is:
to not having appropriate support,
love and care, as well as meeting
Zahra was having to carry Mumtaz
Mumtaz’s additional needs. “Keep positive, keep asking
from house to car and then car to
Mumtaz’s siblings all support her in school. Having to carry her daughter for help and although some
their own ways. The eldest children, to and from the car negatively things might take a long
14-year-old Muna and 13-year-old impacted Zahra’s physical health. time, things have potential to
Mohamed, help as much as they can
Carers Tasmania helped Zahra follow change for the better if you
and five-year-old Mulki is great at
communicating with Mumtaz and is
up the NDIS application and plan for hang in there”.
what could be requested for Mumtaz
often incredibly helpful in assisting — Zahra
in her NDIS plan. Finally, Zahra felt
her communication. Even three-year
8 Carers News 2019 Edition 1
Carer stories — Supermum Carers
A Delicate
Balance
When Melbourne mum Adriana Paz enters work
each morning, she mentally prepares for a busy
day ahead as a legal secretary. Like most working
mothers, her daily to-do list is a balance between
work tasks and mum duties. But Adriana’s list
reveals an added layer of complexity — she is a
carer for two of her four daughters.
A
driana has never identified coming for my family. 2017 was a very By being open with people about what
with being a carer. “I do what difficult year” reflects Adriana. she’s going through, Adriana hopes
any mother would do in my they’ll understand the plight of carers.
Isabella’s most severe episodes
situation,” she says. This
leave her paralysed for up to 24
includes coordinating appointments “You’re not looking for
hours during, which Adriana must do
for Isabella and Natalie (aged 11
and eight respectively) so their
everything — right down to scratching sympathy from people but
specialists can see them at school,
her daughter’s nose. The aftermath asking they don’t judge you.
regularly calling Natalie to soothe
is also challenging as Isabella tends We want recognition that
to withdraw in fear of triggering
her separation anxiety or spending we’re not just parents and for
another episode. If there’s one steady
nights in hospital with Isabella during
constant for Adriana it’s the support
our situation to be treated
a paralysis episode. “It’s not until you
of her partner Jason, who is stepdad with respect when we try to
make enquiries on behalf of your child
to Isabella and Natalie and father to mingle with society”.
that the label ‘carer’ is placed on you.”
their daughters Emily and Claudia. “I
— Adriana
Adriana’s caring journey began during don’t know what I’d do without him. It
one of the darkest periods in her life. doesn’t matter how hard the situation
While visiting her 11-week premature gets he’s always upbeat,” she says. The couple want to establish carer
baby Emily in the neonatal intensive events where working mums caring
Jason’s role as stay-at-home dad for a child with disability can gather.
care unit, she received a call advising
has helped Adriana transition back With varying experiences in getting
Isabella was experiencing paralysis.
to work. “Would I rather be at her daughters approved under the
A year later, a neurologist provided
home supporting my family? Yes. National Disability Insurance Scheme,
an answer for the sporadic episodes
But this job pays the bills,” she says. Adriana has plenty of advice to share
— Isabella has a rare neuromuscular
After work Adriana often finds with others. “Take notes of names,
condition called Hypokalemic Periodic
herself on the floor comforting ask for recorded message receipts —
Paralysis and Conversion Disorder.
Natalie during a tantrum or dealing document everything!” she cautions.
Two months later Natalie was diagnosed with her dislike of many foods. “I
with autism, Attention Deficit can’t remember the last time we
Hyperactivity Disorder/Oppositional had a meal in peace,” she says. To connect with Adriana
Defiant Disorder, moderate speech
The unpredictability surrounding email adrip_1979@
impairment and obstructive sleep
apnoea. “The difficulties just kept
their circumstances makes it hard yahoo.com.au
to plan social outings or getaways.
2019 Edition 1 Carers News 9
Carer Gateway Service Provider
Carer Gateway
Service Provider:
— what to expect from September 2019
What does this mean
for carers?
In implementing these reforms, the
Commonwealth wants to focus on
preventing carer strain and loss of
wellbeing arising from your caring role.
The Government also recognises the
financial impact of caring and wants to
place greater emphasis on remaining
in or returning to employment where
possible. It is expected that the CGSP
will understand carer needs and be
able to provide the right supports to
achieve these outcomes at a local level.
What carer services
are continuing?
If you are using carer services now,
you can keep using those services.
You can continue to access existing
carer services funded by the
Department of Social Services through
In each state and territory, one or your usual service providers until the
What is the ICSS and new Carer Gateway service providers
more Carer Gateway service providers
Carer Gateway? (CGSPs) will be established under commence in September 2019.
As reported in the last Carers News, the ICSS. For example, in South Current carer services will remain
the Integrated Carer Support Service Australia and Victoria there will be in place until November 2019 to
(ICSS) is a Commonwealth reform two CGSPs (Adelaide and regional support you while you move to the new
of services for family and friend SA, and Melbourne and regional Carer Gateway service providers.
carers. Under the new arrangements, Victoria), whilst in Tasmania there
will be a single service provider. Under the new arrangements important
funding for existing services, such
carer services will remain, including:
as funding for Carers associations,
and the Commonwealth Respite and
What will the Carer Gateway Information and advice — supporting
Carelink Centres (CRCCs) are being service provider (CGSP) do? carers to understand available
merged into a single Carer Gateway. services and ‘navigate the maze’.
The CGSP will be responsible for
From September 2019, the Carer ensuring family and friend carers are Peer support — access to peer
Gateway will commence rolling-out supported in their caring roles, no support groups with carers going
matter the location within the service through the same situation.
a network of providers delivering
local and targeted services for area. They will either work directly Counselling — up to six sessions
carers across Australia. or work with other organisations with a skilled, professional and
to provide services locally. qualified counsellor.
10 Carers News 2019 Edition 1Carer Gateway Service Provider
Peer support groups will change Online Community Forum — where A key tool in this planning process
slightly. Under the Carer Gateway you can be part of a supportive will be the Carer StarTM. This
service provider, a staff member community with other carers. international approach enables a
will facilitate the group meeting and Self-Guided Coaching — where conversation between you and the
support the group to be self-sustaining you can work through interactive carer support officer across seven
over a period of up to 12-months. coaching at your own pace. dimensions to zero-in on your key
challenges and work with you to
What’s changing? Skills Courses — where you can study
provide supports to address them.
online courses and learn new skills to
Carer Directed Support packages will be help you in your caring role.
available under the new service model.
How will I access the
These services will be available via Carer Gateway?
The concept of the Carer
carergateway.gov.au from July 2019. The Carer Gateway is changing to make
Directed Support package is that it
works similarly to the Carer Directed From July 2020 you will have access it easier for you to get the help you need.
Respite Care (CDRC) packages to face-to-face coaching. You will be From September 2019 you can call just
currently offered. able to select from a suite of topics one number to find the help you need.
and receive one-on-one coaching Calling 1800 422 737 will enable you
The packages will be delivered either as
from a carer support officer. The to speak with your local Carer Gateway
a one-off practical support or a range of
topics will likely relate to the areas service provider. You can request a
practical supports provided over a 12
that are causing you most concern. call-back on carergateway.gov.au.
month period. The value of the packages
will range from $1,500 up to a maximum What if I prefer to access Your Carer Gateway service provider
amount of $3,000, depending on the services online? will talk you through what you need
needs and individual circumstances and help you find services and support
of each carer receiving support. All of the ICSS supports will be available
in your area.
online through the National Carer
Practical one-off supports will take the Gateway. From July this year, carers
form of a tangible item that directly
contributes to supporting the carer in
will be able to access counselling, peer How do I keep
support, education resources and,
their caring role or supporting the carer from July 2020, individual coaching. up-to-date about
to access education or employment.
How will the CGSP all the changes?
The provision of ongoing practical
supports will involve a Carer Support identify my needs? Visit your State Carer
Worker engaging with a carer and From September 2019 you will be Association’s website to subscribe
actively planning on a quarterly basis offered assistance with identifying to their e-news and social
what those supports might look like. appropriate support needs, help to media. As we know more news,
Where a carer is able to, they are access those supports and advice on we will share it through these
encouraged to actively manage the future support planning through the channels. If you have a question,
supports themselves. Practical supports Carer Gateway service providers. send it using the email for your
may include services such as respite State or call 1800 242 636.
and assistance with transport. The Carer Support Planning process
involves a carer support officer South Australia,
What’s new? engaging in a conversation with you ICCSenquiries@carers-sa.asn.au
to understand your needs
From July 2019 carers will have access Tasmania,
(similar to what happens now),
to these new Carer Gateway services: CGSP@carerstasmania.org
measuring your wellbeing,
Phone Counselling — where you co-creating an action plan to address Victoria,
can get one-on-one support with a
your needs and arranging the services reception@carersvictoria.org.au
professional counsellor over the phone
identified in the action plan.
if you feel stressed or overwhelmed.
2019 Edition 1 Carers News 11Federal Election Voting
Federal election
voting
— Advice for carers
All eligible Australian citizens aged 18 and over are required by law to enrol
and vote at a federal election.
T
here are few exemptions to vote or sign a declaration envelope and specific features. People unable
under Australian law on behalf of the voter. to vote without assistance can select
from your obligation to their carer, relative or friend as a
vote. Most people with a Voting accessibility helper. The designated helper can
disability can vote but may require After the federal election is enter the polling booth with the voter
additional support. If you support announced, Australian households will to help them complete and deposit
a person with profound disability receive an official guide in the post. the ballot paper. Polling staff are also
or advanced dementia who is not Accessible versions (including braille, trained to assist, and a scrutineer is
able to understand the nature and audio and large print) will be available allowed to observe the ballot paper
significance of voting, you can apply from the AEC website or by contacting being completed.
to remove their name from the an AEC office.
electoral roll by completing a form Failure to vote
on the Australian Electoral Voters living with disability, mobility
If a person you care for is unable to
Commission (AEC) website restrictions or illness may be eligible to
vote, advise a polling official on the
aec.gov.au. The person must be vote early in person or by post. You can
day. Eligible voters who fail to vote will
assessed to be of ‘unsound mind’ by apply for a postal vote online or at an
receive a letter from the AEC and must
a registered medical professional. AEC office. As a carer you may assist
respond with a valid and sufficient
the voter to complete their ballot
You can check your enrolment status, reason for not voting or pay a $20
papers and envelope according to their
enrol for the first time or re-enrol on penalty. An AEC officer will decide
instruction, but the voter must sign or
the AEC website. A person previously each case individually in accordance
make their mark on the envelope.
removed from the electoral roll on with the legislation.
medical grounds must submit a new The AEC provides a telephone
enrolment application with medical voting service for voters with visual
certificate signed by a registered impairment to cast their vote from
medical practitioner. home. Mobile polling is also carried More information
out across Australia in hospitals
A voter unable to write or sign their and nursing homes to assist people For information visit
name due to a physical disability can otherwise unable to access a
get someone else to complete and sign
aec.gov.au/Voting/
polling place.
an enrolment form on their behalf. people-with-
However, there is no proxy voting in If you and the person you support will disability.htm
federal elections in Australia. Holders visit a polling place on election day,
of power of attorney are not permitted plan ahead by checking its accessibility
12 Carers News 2019 Edition 1The Power of Journaling
The Power of Journaling
Carer Anne
Phelfey uses her
journaling time
to write poetry.
Here's her poem
'Carer Fatigue':
If caring becomes a chilling chore
That’s a sorry state you
cannot ignore
J
ournaling is the practice Take stock; step back and realise
Tips to get started
of noting down thoughts, You have actually won the
feelings or events related to Forget about perfect grammar or
spelling and focus on accessing greatest prize.
your life. There are no rules
thoughts and emotions. This time you have is precious and
on how, when or what to journal.
The key is to take a moment to find Smart small. Write a few sentences rare offering joy beyond compare.
some quiet time and reflect. or bullet points each day to build That special kiss goodnight elicits
the habit. a smile
The health benefits of journaling are
plentiful. Noting down emotions and Be honest and let the words flow It makes you go that extra mile
freely. Nobody will read what you
experiences can be therapeutic and Cuddles and laughter, each
write unless you allow them.
encourage healing, change, growth moment you share are a fleeting
and self-awareness. This may be If journaling about a negative blessing that becomes more rare.
particularly useful when trying to emotion or topic, end by reflecting
You only deprive yourself of
cope with grief or resolve complex on something positive.
happiness and love
problems. Research shows journaling
helps to manage mental health Writing inspiration And a spirit of peace that just fits
and boosts cognitive functioning Journal about aspects in your day or like a glove
and immunity. It’s also proven to life which you are grateful for. Suddenly, like waking, you come
counteract stress and decrease to know
Write down your feelings about
symptoms of asthma, arthritis an event or person as a way of This time with your loved one may
and other health conditions. processing them. suddenly go.
Journaling is one of the cheapest Reflect on your goals and what you
ways to practice self-care and stress need to do each day to achieve them.
management. All that’s required
Pen a declaration of your core values
is a pen and paper; however, you
and how you intend to live your life.
can use a smartphone or laptop
instead. Journaling is most beneficial Google search ‘journaling prompts’
when done consistently, so find a for more ideas. Write a list of
routine which works best for you. options and fold them into a jar
Some people journal in the evening to try a new one each day.
to recap their day while others
By committing 10 – 15 minutes a
prefer first thing in the morning
day to journal you may improve
before their schedule takes over.
your general wellbeing and ability
to make better life choices.
2019 Edition 1 Carers News 13Policy update — Be The Voice For Carers
Australian Electoral Commission
electorate.aec.gov.au
Victorian Electoral Commission
tec.vic.gov.au
Tasmanian Electoral Commission
tec.tas.gov.au
Electoral Commission
South Australia
ecsa.sa.gov.au
Be The Voice For Carers Be polite and courteous but firm.
Don’t be afraid to say you disagree
with their views and offer reasons
Policy and research staff at Carers Australia and the for why your points should be
network of State and Territory Carer Associations considered. It’s also a good idea
to build rapport by identifying
work closely together on issues and policies of anything you have in common or
significance to carers. offering encouragement if they’ve
T
previously addressed any concerns.
his includes conducting
Advocating for your rights Keep correspondence to a maximum
extensive consultation
The best way to initiate reform and of two pages and remember to
with carers to ensure their
recognition is by contacting a Member thank the politician for their time
opinions and priorities
of Parliament (MP) via phone, email, and mention you look forward to
are considered when government
post or requesting to meet person. their reply. Be mindful it may take
policy and service delivery is planned
Find your Federal MP on the Australian several weeks for a response. If you
and evaluated. Other priorities for
Electoral Commission website and haven’t received one by then, you
policy and research staff are to:
State MP on your relevant State can phone their office for an update.
Analyse and comment on
Electoral Commission website (details
government policies affecting
in box above). It may feel daunting
Preparing a submission to
carers and their families.
to initiate contact but remember it’s government enquiries
Represent the diverse needs their job to represent the concerns The Federal Government recently
of carers. of citizens within their electorate. initiated a Royal Commission into
Lobby for improvement through If writing a letter, start by introducing Aged Care Quality and Safety,
submissions and representations calling on interested members of the
yourself and your reasons for
to Ministers. public to make a submission. Making
making contact. Then expand on
Promote development and delivery these reasons by including personal a submission to a government
of quality, flexible and carer- examples to help the politician enquiry involves the same approach
inclusive services. connect with your concerns. Where as writing to an MP, but always read
possible, obtain permission from the Terms of Reference first. This
Participate in research with carers
the person you care for if including will guide your response and is
and the people they care for.
personal information about them. available on the Commission’s
Current issues of focus include the website. To make a submission
Royal Commission into Aged Care Also suggest what actions the politician visit: agedcare.royalcommission.
Quality and Safety, The Productivity can take to resolve your concerns. This gov.au/submissions.
Commission Inquiry into Mental may be funding initiatives, contacting
Health and the National Disability government departments or raising
Insurance Scheme implementation. issues within their political party.
14 Carers News 2019 Edition 1Social Media Savvy
Social Media Savvy
Facebook
Facebook enables you to follow
organisations, interact with other
carers, find local events and
share your thoughts, personal
stories and photos with others.
You will need to create a Facebook
profile to actively engage with
pages of interest via likes,
comments and shares and connect
with others through friend
requests or Facebook groups.
Ideas for Facebook
Follow Carers Australia and your
Whether you have dabbled in social media or are State Carers Association for news
and events.
looking to get started, here’s how you can utilise the Join peer support group pages or
most popular platforms to support your caring role. create one for your own network.
YouTube Twitter Pinterest
YouTube is a video streaming site Twitter is a self-expression tool favoured Pinterest is a platform for sharing
which enables everyone to share by politicians, journalists, academics, and categorising images and
their own videos and watch footage organisations and the general public. information found online (think of
uploaded by others. Content varies Users can keep up-to-date with it as a corkboard to ‘pin’ images).
from fun and light-hearted videos breaking news, traffic, weather and You can use your email address or
to informational tutorials, how- find events or view ‘Trending Topics’ Facebook account to sign up.
to-demonstrations and Q&A’s. discussed locally or globally.
Ideas for Pinterest
Create an account and search for To join, select a username of 15
videos based on topic, organisation characters or less (also known as a Enter the word ‘carer’ in the search
or subject matter. Subscribe to an ‘handle’). Find subjects, individuals or bar and ‘pin’ tips and techniques for
individual or organisation’s channel organisations to follow and share, or future reference.
to receive notifications every comment on their content. Remember to Create a board of your own images
time they share a new video. post your thoughts too and use relevant to share with others.
hashtags to make them visible to others.
Ideas for YouTube
Carers Australia has over 100
Ideas for Twitter
Follow politicians, councils,
Tip: Visit your State Carers
videos available and Carers Victoria
offers tips on self-care for all carers. government departments, Association website and
newspapers and TV stations. the Carers Australia
Carer Gateway has animations
Add your voice to campaigns website to see how you can
on a host of topics and videos of
such as Every Australian connect with them.
carer stories. Counts and #raisetherate
(for Newstart Allowance).
2019 Edition 1 Carers News 1510
10 Ways to Ask For Help
Ways to
Ask For Help
Asking for help can be difficult but is an
important step toward managing your wellbeing
and stress levels.
1 Attend carer events 5 Join a support group 9 Enrol in a course
Check to see what carer events your By connecting with others who truly Knowledge is empowering. Your local
local council, Carers Association, understand the impacts of caring, you Carer Association offers many free
Neighbourhood House or Respite can receive advice and learn from workshops, as well as webinars which
Centre have scheduled. These are a others’ experiences. With so many can be joined from the comfort of
great way to discover what services and general and specific carer support your own home. Future Learn:
supports are available and gain advice groups available and different ways to futurelearn.com offers a diverse
from experts and other carers. participate (in person, phone, online selection of free online courses from
etc), you’re bound to find one which leading education providers around
2 Talk to a friend meets your needs. the world.
As the old saying goes, ‘a problem
shared is a problem halved’. Most 6 Write to your local 10 Get legal support
people will be happy to help if Member of Parliament The Disability Ombudsman, Office
they are told how they can assist. (MP) of the Public Advocate and Legal
Gathermycrew.org is a free online Aid services are all avenues to seek
Contact your local MP to advise what
rostering tool which lets you assistance or advice about your rights.
supports are lacking in your electorate
coordinate assistance from family and The OPA and Legal Aid also have free
and how carers can be better supported.
friends using an online calendar and publications which may help you to
Extend an offer to meet in person to
task list. work out certain problems.
discuss your recommendations.
3 Call your Carers 7 Start a conversation
Association
online
They are friendly professionals who
A Google or Facebook search will
Self-care
can offer advice and provide access to a
range of services and resources including
reveal many online forums where Remember self-care
people gather to chat and lend support. is essential for good
education workshops, counselling and
Most forums can be joined or read
referrals to support groups.
anonymously and you may find there’s
physical and emotional
health. Allow yourself
4 Seek counselling already advice relevant to your concern.
to be vulnerable by
A counsellor is a qualified professional 8 Consider respite acknowledging when you
who can listen objectively and help with
Respite comes in different forms. It can are stressed and need
developing effective coping strategies
for troubling emotions or problems.
vary from asking loved ones to give you emotional, physical or
a few hours break, to enquiring with
Lifeline (13 11 14) offers free and financial support.
your local Carer Association about
confidential telephone counselling on a
what paid supports exist and whether
24/7 basis Australia-wide.
there are subsidies to fund them.
16 Carers News 2019 Edition 1Carer News
Dementia
and Caring Families Conference
— 25 June 2019
A
high portion of referrals across Victoria. Carers Victoria
and enquiries received and guest speakers from Dementia
by Carers Victoria are
from carers supporting a
Australia, Palliative Care Victoria
and other organisations will offer LaunchMe
person diagnosed with dementia. expert advice and coping strategies
An estimated 425,000 Australians to help manage the condition more — Kickstarting
are currently living with the illness. effectively. Participants can also Young Carers
Dementia is the leading cause of death explore a range of information stalls
among Australian women and the delivered by leading service providers. dreams
D
single greatest cause of disability in o you know a young
Most importantly, the event is
Australians aged 65 years or older. carer aged 16 – 25
an opportunity to connect with
In light of these staggering figures, other carers and build a network seeking support with
Carers Victoria is hosting a FREE of peer support. Come and join their life goals? Carers
special event for carers supporting what shall be a rewarding and Victoria, in partnership with Good
people with dementia. The conference inspiring day for all. Registrations Shepherd Microfinance, has a
will be held at William Angliss are essential. For more information program called LaunchMe which
Conference Centre (555 Latrobe or to reserve your spot, call Carers aims to support young carers in
Street, Melbourne) from 9.30am Victoria on 1800 242 636 or email realising their full potential.
to 3.30pm and is open to carers events@carersvictoria.org.au. LaunchMe is free and delivered
State-wide. Participants attend an
initial workshop to discuss their
goals, meet other young carers and
Reconciliation
receive expert advice on personal
finances and wellbeing. This is
followed by nine months of regular
face-to-face or online support to
Action Plan
develop micro-enterprise skills
and generate an income from a
hobby or learn skills in preparation
for entering the workforce.
LaunchMe has recently helped
C
a young carer launch her own
arers Victoria is proud approach to working in partnership with
dressmaking business which gives
to support the national Aboriginal and Torres Strait Islander
her the flexibility to work from
reconciliation movement by people and communities. We would like
home while caring for a parent.
developing and implementing these individuals accessing our services,
a Reconciliation Action Plan (RAP). or working with us, to feel safe knowing New openings are available in May
This strategic document will embed their culture is valued. Although there 2019. Young carers can register
practical actions which contribute are Carers Victoria staff who have their interest at launchme.org.
to reconciliation both internally and already built relationships with local au/youngcarers and Program
in the communities in which they Aboriginal people and organisations, buddy Shelley Karpathakis will
operate. Carers Victoria aims to take a the organisation is thrilled to be taking a be in contact with details.
coordinated, holistic and action-based coordinated approach to reconciliation.
2019 Edition 1 Carers News 17Take a Break
Take a
Break Recipe —
MUSHROOM AND
Sudoku CHEESE SOUFFLE
This delicious recipe originates from the “Rooster
Cookbook” first published by the Country Women’s
Association in 1956 and revised in 2016. A flavoursome
choice for the cooler weather months ahead.
Ingredients
2 tablespoons butter
2 tablespoons plain flour
¼ teaspoon salt
Pinch cayenne pepper
4 eggs
½ cup sliced mushrooms, sautéed gently in
additional butter
2 tablespoons grated cheese
¾ cup milk
Instructions
1. Preheat oven to 180 degrees.
2. Grease a 20cm souffle dish. Tie a string of
baking paper around the outside of the dish,
ensuring it stands at least 10cm above the rim.
Sudoku Answers:
3. Separate eggs. Beat egg whites until stiff.
4. Melt butter, remove from heat and stir in salt,
flour and cayenne pepper. Add milk, return to a
gentle heat and stir until mixture thickens. Add
mushrooms, egg yolks and cheese. Mix well.
5. Gently fold in the egg whites.
6. Gently pour the mixture into the prepared
dish and bake for 30 minutes.
7. Serve immediately with a crisp green salad
and crusty bread.
Source: www.sudokuoftheday.com
Reprinted with permission from Marie Vassallo, Country Women’s
Association. For more tasty recipes, visit www.cwaa.org.au.
18 Carers News 2019 Edition 1Education Workshops
Education Workshops
Calendar 2019
All workshops are held at Carers Victoria, Level 1, 37 Albert Street Footscray.
WORKSHOP DATE(S) TIME
FREE Carers online workshops* (Events #6051 and #6052) Session 1, 30 April 10am – 12pm
This two-part workshop is suitable for carers who have basic computer skills and will Session 2, 7 May
build confidence in using the internet safely. Session two supports carers to set up a
myGov account and link to government services such as Centrelink, Medicare etc.
FREE NDIS Mental Health program (Event #6053) Session 1, 7 May 10am –.1pm
This three-part series is for carers of a person with a mental health condition or Session 2, 14 May
disability and those preparing to transition to the NDIS or access it for the first time. Session 3, 21 May
Topics covered include carers role and rights, plan management options, choosing
supports and making a complaint.
FREE Over-caring costs the carer (Event #6057) 7 June 10am –.12pm
Avoid falling into the trap of ‘over-caring.’ This workshop explores what this concept
means for both you and the person you care for and is an opportunity to reflect on
your caring style.
Carer Support Group Facilitator Training (Event #6031) 13 June 10am – 3pm
A comprehensive workshop suitable for new facilitators or current facilitators or those
wishing to start a Carer Support Group. Learn how to start, grow and facilitate a Carer
Support Group. Participants receive session notes and a certificate of attendance.
FEES: Carers $50 Workers $100
FREE Strong boundaries, strong carers (Event #6058) 14 June 10am – 12pm
Learn practical strategies to protect your sense of self and wellbeing by deciding
what behaviour you can and can’t accept from others in your life.
FREE Aged Care info session (Event #6085) 10 July 10am – 12pm
The aged care system is complex and can be confusing. This information session
covers the Government website, My Aged Care, screening and assessment
processes, services at home and residential care.
NDIS information session (Event #6065) 16 July 10am – 12pm
This information session is designed for people caring for a person with a disability
and want to know more about the NDIS. Topics covered include eligibility and the
role of carers and includes a Q&A.
FREE Aged Care program (Event #6062) Session 1, 17 July 10am – 1pm
This two-part program is for families and carer and covers topics including eligibility Session 2, 24 July
for services including the Aged Care Assessment, types of services and who provides
them and the costs. Session two explores residential care including eligibility, how to
apply and costs.
*Carers Victoria provides iPads for participants to use in the workshop.
To register your attendance please call Carers Victoria on 1800 242 636 or book online
at www.carersvictoria.org.au/events/educationworkshops.
2019 Edition 1 Carers News 19The magazine of Carers Victoria 2019
Edition 1 of 3
Editor // Lana Dogan.
Graphic Design // Blick Creative.
Contributors // Dylan Jansz, Anne Muldowney and
Cerise Canon-Smith (Carers Victoria), David Brennan
(Carers Tasmania), Tania Starr (Carers SA) and Bernie Ezeokoli
(Department of Health and Human Services).
© Carers Association Victoria 2019
This work is copyright. Apart from any use as permitted under the
Copyright Act 1968, all rights are reserved. Requests and enquiries
concerning reproduction and rights should be addressed to
Publications, Carers Victoria, PO Box 2204, Footscray, Victoria, 3011.
The views expressed in this work are not necessarily those of Carers
Victoria. Carers Victoria has made every effort to ensure the quality
and accuracy of information at the time of publishing. Carers Victoria
cannot guarantee and assumes no legal liability or responsibility for
the accuracy or completeness of the information. This work is not
intended to be a substitute for independent professional advice. To
the full extent permitted by law, Carers Victoria does not accept any
liability for any claim, injury, loss, or damage suffered or incurred by
use of or reliance on the information, however it arises.
Carers Victoria
Level 1, 37 Albert Street (PO Box 2204)
Footscray, VIC 3011
Phone // (03) 9396 9500
Carer Advisory Line // 1800 242 636
Fax // 9396 9555
TTY // 9396 9587
(textphone for the hearing impaired)
ebulletin@carersvictoria.org.au
www.carersvictoria.org.au
Carers Victoria is supported by the Australian
Government, Department of Social Services.
Visit www.dss.gov.au for more information.
Carers Victoria acknowledges the support
of the Victorian Government.
ARBN 143 579 257 Inc No. A0026274M
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