BREAKING BAD NEWS: GUIDELINES TOWARDS BEST PRACTICE - "TRUTH LIKE MEDICINE, CAN BE INTELLIGENTLY USED, RESPECTING ITS POTENTIAL TO HELP AND TO HARM"

 
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BREAKING BAD NEWS:
             GUIDELINES
       TOWARDS BEST PRACTICE

    “TRUTH LIKE MEDICINE, CAN BE
     INTELLIGENTLY USED, RESPECTING ITS
     POTENTIAL TO HELP AND TO HARM”

Approved by Clinical Guidelines Steering Group – May 2003
To be reviewed by Leads – May 2006
Why use this guide?
The purpose of this guide is to support all healthcare professionals involved in the
process of Breaking Bad News and to improve practice. It contains a simple model for
Breaking Bad News and a framework for auditing current practice.

Why it is important
Breaking Bad News is essential to maintain trusting relationships. Honesty allows
open discussion regarding future management, reduces uncertainty, prevents
inappropriate hope and facilitates appropriate adjustment.

Who is the guide for?
The guide has been designed to enable relevant healthcare professionals to
communicate effectively and compassionately when delivering bad news.

The model is transferable to all settings and can be used by all professionals across the
Trust.

It is also hoped that the guide will support managers, enabling them to empower staff
to increase their skills and therefore improve practice.

WHEN TO USE THESE GUIDELINES

   • To assist you in your practice of Breaking Bad News

   • To audit current practice

   • To assist you with reflection on your current practice

   • To generate ideas for improving your practice and encourage further education

   • To promote and support discussion between managers and clinical staff to
     improve practice
10 STEPS TO BREAKING BAD NEWS
1.        Preparation

          Know all the facts before the meeting. Find out who the patient wants present,
          and ensure privacy and chairs to sit on.

2.        What does the patient know?

          Ask for a narrative of events from the patient (eg “How did it all start?”)

3.        Is more information wanted?                                                            Prepare the Ground

          Test the waters, but be aware that it can be very frightening to ask for more information
          (eg “Would you like me to explain a bit more?”)

4.        Give a warning shot

          eg “I’m afraid it looks rather serious” – then allow a pause for the patient
          to respond.

5.        Allow denial

          Denial is a defence mechanism and a way of coping. Allow the patient to
          control the amount of information they receive.

6.        Explain (if requested)

          Increase the patient’s information to match the professional’s to the appropriate level. Details of
          this information may not be remembered, the way you offer the information will.

7.        Listen to concerns

          Ask “What are your main concerns at the moment?” and then allow space for
          expression of feelings.

8.        Encourage ventilation of feelings

          This is the KEY phase in terms of patient satisfaction with
          the interview, because it conveys empathy.

9.        Summary and plan

          Summarise concerns, plan treatment, foster appropriate
          hope.

10. Offer availability

          Most patients need further explanation (the details will not have been
          remembered) and support (adjustment takes weeks or months) and may
          benefit greatly from a family meeting.

     KEY RULES - Peter Kaye 1996

     1.     Ask questions first. What is known? What is wanted? Should relatives be involved?
     2.     Elicit concerns and encourage ventilation of feelings.
Appendix 1
              AUDIT TOOL

Section 1   Communication process

Section 2   The people involved

Section 3   The environment
The Communication Process                                          Appendix 2
Factors to       Stage 1                                   Stage 2                            Stage 3
consider         Inappropriate practice                    Basic practice                     Best practice
Positioning      Physical barriers created by distance,    Where physical barriers            The professional breaking
                 height etc.                               exist, steps are taken to          the bad news positions
                 eg giving patient bad news from the       reduce the effect of these.        themselves at same level as
                 foot of the bed.                                                             person receiving the news.
Non-verbals      Eye contact is avoided. ‘Closed’          Limited or intense eye             Appropriate use is made of
                 defensive body language is used.          contact; body language or          eye contact, voice tone, body
                 No helpful non-verbals offered.           tone of voice is perceived as      language and touch.
                                                           aggressive or lacking in
                                                           confidence/credibility, rather
                                                           than knowledgeable and
                                                           caring.
Assessment       There is no assessment of what the        A partial assessment is made       An assessment is made of
                 patient understands and no                of the patient’s                   the patient’s understanding
                 assessment of what the patient wants      understanding, needs and           of situation, of what they
                 to know and the timing of this.           preferences regarding timing       want to know and the
                                                           of information given.              preferred timing of
                                                                                              information.
Ownership of     Information is withheld from person       Information is given to            Information given to person
information      to whom it relates, eg due to pressure    another person before patient      it relates to. Consistent
                 from relatives OR news given to           OR one or more parties get         information given to all.
                 other people is inconsistent in detail.   different messages OR              All treatment/care options
                                                           options regarding future           discussed.
                                                           treatment/care are missed.
Style/Manner     Disrespectful manner, inappropriate       Caring, respectful style.          The professional breaking
                 and insensitive remarks used.             Unclear and inappropriate          the bad news is gentle,
                 Medical jargon used.                      language.                          respectful and uses clear
                 Style patronising.                                                           language. Style is
                                                                                              appropriate to patient’s age
                                                                                              and understanding.
Timing of        News is withheld from the person to       News is withheld from              News is communicated to
information      whom it relates.                          person to whom it relates,         the person to whom it relates
                                                           until it is too late to tell the   at the earliest appropriate
                                                           patient, eg telling a patient      opportunity.
                                                           they have cancer when they
                                                           are about to die.
Supporting       No relevant information given.            Verbal information only is         Verbal information is given
information                                                given and/or standard              supported by written
given                                                      information only.                  information that is tailored
                                                                                              to the individual’s needs.
                                                                                              Information is given
                                                                                              regarding relevant
                                                                                              professionals and supportive
                                                                                              teams.
Understanding/   News broken quickly. Patient’s            News broken appropriately.         Patient’s understanding is
follow-up        understanding not checked.                No opportunity for                 checked and clarified if
                 No follow-up offered.                     clarification or follow-up         needed. Opportunity given
                                                           appointment. Patient’s             for questions. Follow-up
                                                           understanding is scant.            and support offered.
Communication    Either no communication with GP or        GP and/or Primary Health           GP and/or Primary Health
                 events have superseded it.                Care Team informed.                Care Team informed
                 No written record of consultation.        Information given regarding        promptly (within 2 working
                                                           facts. Partial or inconsistent     days). Given full and clear
                                                           information is recorded.           information regarding
                                                                                              patient’s diagnosis,
                                                                                              prognosis, understanding
                                                                                              and treatment plan. Written
                                                                                              record is full, accurate and
                                                                                              includes words and phrases
                                                                                              used with the patient.
Appendix 3

                                            The People Involved

Factors to          Stage 1                                    Stage 2                         Stage 3
consider            Inappropriate practice                     Basic practice                  Best practice
Relatives/friends   Relatives/friends present whom             The patient is given no         The patient receiving the
present             patient does not want present.             opportunity to have a           bad news is given the
                    Presence of inappropriate people,          relative/friend present.        opportunity to bring along
                    eg maintenance staff.                                                      another person of their
                                                                                               choice.
Continuity of       There is a different professional          Well briefed team members       A named professional, who
people involved     involved on each occasion.                 (who have been present          is the same person on each
                    Poorly briefed team members are            previously) are involved        patient visit, is responsible
                    involved with follow-up.                   with follow-up.                 for follow-up.
Responsibility      No clear responsibility for breaking       There is clear responsibility   The Consultant is seen as
for breaking bad    bad news exists, resulting in              for who will break the bad      lead person, but does not
news (within        confusion.                                 news. Communication             necessarily have to be
hospital)                                                      with Primary Health Care        person who delivers the
                                                               Team poor.                      bad news. There is clear
                                                                                               consensus regarding what
                                                                                               patient will be told. When
                                                                                               Primary Health Care Team
                                                                                               is involved, responsibility
                                                                                               is clear.
Training            Professionals are assumed to possess       Minimal training but no         Professionals have
                    skills which are, in fact, non-existent.   supervised practice.            undergone specific training
                                                                                               and have had adequate
                                                                                               practice, supervised by an
                                                                                               expert.
Person giving       The professional giving the bad            The professional giving the     The professional giving the
the bad news        news is not known to the patient.          bad news is not known to        bad news is known to the
                    No introduction made. There is             the patient, but somebody       patient OR new
                    nobody available whom the patient          who is known is either          professional makes
                    knows.                                     present or available.           appropriate introduction.
                                                                                               Professional has knowledge
                                                                                               and skills to break bad
                                                                                               news and to answer
                                                                                               questions.

                                              The Environment

Factors to          Stage 1                                    Stage 2                         Stage 3
consider            Inappropriate practice                     Basic practice                  Best practice
Environment         No designated area available.              Area available – but this       Designated non-clinical
                    Inappropriate public setting used.         has dual use, eg Ward           area available.
                                                               office. Number of
                                                               uninvolved people likely to
                                                               be present.
Privacy             No privacy given. News given in a          Privacy is compromised by       No disturbances.
                    public setting eg hospital corridor.       environment eg curtains         Soundproof room available
                                                               used in busy, noisy ward.       with appropriate door sign.
                                                               Interruptions by other staff    Time allowed for patient
                                                               eg office.                      and relatives to use private
                                                                                               area.
Appendix 4
Suggested Reading

Breaking Bad News
Peter Kaye, 1996, EPL Publications

How to Break Bad News
Rob Buckman, 1992, Papermac

Talking to Cancer Patients
Faulkner A & Maguire P, 1994, Oxford Medical Publications

Education

Breaking Bad News Training         Calderdale & Huddersfield NHS Trust

Telephone:     Bev Foden        Huddersfield Royal Infirmary            01484 347142
               Margaret Hipwood Calderdale Royal Hospital               01422 224756

For further discussion regarding use of guidelines and audit contact:

  Huddersfield Palliative Care Team
  Calderdale & Huddersfield NHS Trust
  Huddersfield Royal Infirmary
  Tel: 01484 342965

References

Kaye, P      Breaking Bad News (1996) EPL Publications

Breaking Bad News Guidelines
Lincoln & Louth NHS Trust
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