News - Be The Voice - Carers Tasmania
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news
2019 Edition 1
Be The Social Media Carer
Voice Savvy Gateway
Advocating for carer rights Ways to engage online What to expect
CEO’s Update
CEO
What’s Message
inside from the
2 CEO's Update
Welcome to first
3 In the Loop
edition of Carers News
4 Meet Cassy O’Connor for 2019.
— Leader of
I
Tasmanian Greens t’s been an extremely busy few
months since the last edition! We’ve
5 Caring Fairly been working very hard on your
campaign behalf to introduce new initiatives
and ways of working.
Our work as the Peak Body for Tasmania’s
6 Changing Places We recently trialled an online forum carers continues. Since the last edition,
campaign in partnership with Centrelink. Using we have formed a Family Carers Peak
Facebook, we delivered a live presentation Advisory Council that consists of carers
8 Carer stories: on Carer allowances and payments that and carer-focused organisations. The
was very beneficial for carers. We plan Council offers advice on priorities and
Supermum carers
to deliver similar sessions in the future, support to move the workplan forward.
which particularly enable access by carers A part of this initial work has been to
10 Carer Gateway
in more remote parts of Tasmania. make a submission to the Aged Care
Service Provider
We have a new website! Launched in Quality and Safety Royal Commission.
12 Federal Election December, the site is easier to navigate, is In February, we submitted our bid to be
more effective on any device (phone, tablet the Regional Delivery Partner under the
Voting
and computer), and enables greater carer Integrated Carer Support Service. Our bid
input, such as live online chat, and control was evidence-driven and provided very
13 The Power of
(e.g. self-registering for a workshop online). detailed analysis of carers across our state
Journaling and the specific challenges they confront.
To enable more effective services, we
have implemented a completely new We are quietly confident but won’t know
14 Be The Voice the outcome until closer to mid-June. To
database, phone system, and IT platform
For Carers help you appreciate what is involved in
and created a knowledge centre. The
result is that we can more effectively (and the new arrangements, we will be holding
15 Social Media Savvy information forums across the state and
quickly) respond to carers and provide
services from any location in the state. have included a Q&A on pages 10 and 11.
16 10 Ways to
We are also partnering with a range Until next time, take care and please
Ask For Help don’t hesitate to contact us if we can
of like-minded organisations to better
serve remote and rural carers through a support you in your caring role.
17 Are You Ready
Carer Kiosk pilot. The kiosks will enable Regards,
for Winter? a local access point for carers to obtain
information, speak to us via phone, attend
18 Take a Break peer support groups or access confidential
services (such as counselling over Skype).
19 The Power of We are commencing with three sites
Peer Support and will expand to another 10-sites if David Brennan
the kiosks prove to be successful. CEO, Carers Tasmania
2 Carers News 2019 Edition 1
In the Loop
meals, to participate in the study. If you
In the
UTAS Dementia are interested in participating, UTAS
Research Project: want to hear from:
volunteers needed 20 people with dementia.
Loop
20 spousal carers of the persons
T
with dementia.
he Wicking Dementia
Research and Education 20 spousal carers of people with a
Centre is planning a research chronic illness that is not dementia
project to look at whether (e.g. cancer).
gut microbiota influences cognitive
If you want to support this project,
decline and Alzheimer’s disease.
please contact Research Fellow,
UTAS need 60 people living in the Dr Emma Lea — email emma.lea@
community, who prepare their own utas.edu.au or call (03) 6226 4217
Royal
Commission
Young carers at school
T
he Australian
Government
A core focus in the past few months has This would involve working with Department of Social
been student carers. Late last year, I schools to raise awareness of teachers Services (DSS) has
wrote to the Minister for Education to about the impact of caring on students announced there will be a Royal
more effectively identify and support and what type of educational support Commission into Violence,
carers at school. Since then, we have will be effective to enable young carers Abuse, Neglect and Exploitation
met with the Department to progress to juggle caring and school, and directly of People with Disability.
an approach that is now taking shape. with students to encourage them to
The Commission will focus on
This will likely commence with a seek support.
what governments, institutions,
widespread awareness campaign.
and the community should do to
prevent and respond to violence,
abuse, neglect and exploitation of
people with disability.
Family Carers Peak A public consultation occurred
Advisory Council regarding the draft terms of
reference via a survey, and Carers
Tasmania provided information to
The Council has been formed to Dementia Australia members via email.
advise and support Carers Tasmania
Cancer Council DSS has directed the Commission
to undertake its peak activities. There
are four carer representatives on the to have regard for the critical
Holyoake
Council, including representatives role families, carers, advocates,
Council on the Ageing the workforce and others play
from migrant and refugee and LGBTI
communities, and each region. Caring in providing care and support to
South East Aboriginal Corporation
situations include mental illness, people with disability.
disability, ageing, cancer and chronic Migrant Resource Centre
Carers Tasmania will join with
illness. We will engage with carers Working it Out carers, stakeholders, Carers
more extensively on an issue-by-issue Australia and carer associations
basis. The member organisations are: The District Nurses
across the country to ensure the
Palliative Care Tasmania Carers Tasmania carer voice is heard as the Royal
Commission unfolds.
Association for Children The Council and Carers Tasmania
with Disability is currently developing a workplan
based on the Council’s ranked issues.
2019 Edition 1 Carers News 3
Meet Cassy O’Connor — Leader of Tasmanian Greens
Meet Cassy
O’Connor MHA
Leader of Tasmanian Greens
A former journalist and community activist,
Cassy O’Connor MP is a passionate voice
for people with disabilities, children and
marginalised Tasmanians. We sat down with
Cassy to hear her thoughts on carers.
Above // Cassy O’Connor MP, Leader of
Tasmanian Green.
Q. Ms O’Connor, what do you up work and take on extra costs. Carer support while they undertake these
identify as the contribution of family payments are grossly inadequate. vital caring roles.
carers to the Tasmanian community? Carer payments are seen by the current
government as welfare dependence. Q. What is the Greens’ current policy
A. Well, we know it’s enormous but Carers know very well that caring is a for family and friend carers?
it is difficult to adequately describe full-time job.
the contribution of carers, because so A. Under a Greens’ Minister,
much caring work is carried out at the Navigating the maze of officialdom, Tasmania delivered its first
intimate, domestic level, unseen and, including Centrelink, NDIS, My Aged comprehensive plan for supporting
I think, undervalued by government. Care, can cause serious stress and carers and worked hard to raise the
anxiety for carers. profile of carers in our community.
The best way to consider the
contribution of carers is to Access to services for carers and people We will continue to work hard for wider
imagine Tasmania without their they care for is a big issue, particularly recognition of the vital work of carers;
tireless commitment. in rural and regional areas. ensure support is there when carers
need it; advocate for affordable and
Without carers, not only would Q. Given the national economic people-friendly public spaces as well as
people who need love and support replacement value of carers is respite options; and income support.
miss out, there would be huge estimated at $60.3B, what do you
pressure on other public services and see the role of Government to Q. Is there capacity for carers to
the fabric of our community would be support carers? share their ideas for improving the
considerably frayed. caring role with you?
A. All levels of government have
Q. What do you identify as the a role to play in supporting carers. A. Always. Our door is always open.
challenges for Tasmania’s carers? Local government can deliver more
people-friendly spaces for carers and
Q. What personal message do you
A. The exhaustion of a relentless caring their families and friends, and ensure
want to give the family and friend
role, particularly those caring for others carers around the state?
pedestrian friendly infrastructure.
with significant disabilities, mental
health conditions and addiction. Access
The State can make sure it funds A. A huge thank you and a hug. I hope
Carers’ Tasmania, other carer support you know that because of the work
to respite and the ability to take a break organisations and concessions to ease you do, Tasmania is a kinder and more
from the demands of a caring role is the financial burden, while delivering inclusive place. You surely already
another challenge. a comprehensive strategy to support know that, for the people you care for,
Poverty is a huge issue, particularly as carers. The Federal government needs you are a lifesaver.
a caring role can force people to give to ensure carers have access to income
4 Carers News 2019 Edition 1
Caring Fairly — A voice for rights, recognition and reform
Caring Fairly
— A united voice for rights, recognition and reform
A
national coalition called
Caring Fairly is campaigning
for fairer government
policies to reduce the
economic disadvantages faced by
Australia’s 2.7 million unpaid carers.
Established by Mind Australia, the
coalition was launched in August
2018 at Parliament House in
Canberra and comprises of over 25
Non-Government Organisations,
peak bodies and community
organisations from across Australia.
Carers Australia and its State
associations have joined the plight
to better recognise and support
unpaid carers over the course of the
three-year campaign, particularly
leading up to the Federal election.
The Caring Fairly coalition invested in
leading edge research and consultation
with carers, policy experts and
academics to develop innovative, Above // Australia’s 240,000 mental health carers are a key focus of the Caring Fairly campaign.
evidence-based policies across eight
This policy platform was presented By taking action together, we can
key domains. These policies aim to
to key federal ministers and policy improve the situation of carers at
improve economic security for carers
advisors within government and home, in the workplace and society.
and reduce barriers to workforce
opposition and forms the basis of
participation, bridge gaps in support
Caring Fairly’s federal election
services and ensure young carers are
identified and supported. A special
campaign to deliver fairer outcomes
for unpaid carers in every Australian
Stay informed
focus was Australia’s 240,000 mental
electorate. To join the cause, download @caringfairly
health carers providing support to
the Caring Fairly campaign toolkit
people living with mental illness, with
from caringfairly.org.au for tips
research showing young mental health facebook.com/
and templates on how to advocate
carers are severely disadvantaged in caringfairlycampaign/
for change in your electorate and
relation to education and employment.
social media you can share. The
Their school attendance is significantly @caringfairly
website also features links to
lower compared to other students
download the full policy platform.
aged five to 14 years old.
2019 Edition 1 Carers News 5
Changing Places — A campaign for accessible public toilets
Changing Places —A
campaign for accessible public toilets
Above // A Changing Places facility is available to visitors at Victoria’s Melbourne Zoo. Above // Changing Places facility at Parks
Library in Port Adelaide, South Australia.
C
hanging Places advocates severe disability and their carers to to be built in certain types of public
for public toilets with full participate in their local community buildings. This includes large shopping
sized change tables and and access public attractions. Victoria centres, sporting centres with an
hoists in major public leads the way with 34 permanent occupancy of over 35,000 spectators,
spaces across Australia to meet the toilets situated across metropolitan larger public pools, museums, art
needs of people with complex and and regional locations, including galleries, theatres and airports. Events
profound disabilities and their carers. the Melbourne Cricket Ground, and festivals are becoming accessible
There are currently 78 accredited Melbourne Zoo and Melbourne Arena. too with six ‘Marveloos’ (a portable
Changing Places facilities located South Australia opened its type of Changing Places toilet)
across the country and, with many first Changing Places facility in available across the country for hire.
State governments investing in the January 2019 at Parks Library in
To find your nearest Changing
program, this number will rapidly rise. Angle Park in Port Adelaide, with
Places toilet or Marveloo visit
more sites planned for Adelaide, Port
Australia’s campaign is based on the https://changingplaces.org.au.
Lincoln, Whyalla, Victor Harbor and
successful implementation of the
Mount Gambier. Tasmania currently
Changing Places concept in the UK
has no accredited Changing Places
where there are more than 1,250
facilities but plans to join the campaign
accredited facilities. A Changing
soon. However, there are several
Places facility differs to a regular
accessible adult change toilets similar
accessible toilet by its features
to a Changing Places facility — visit
and size. It offers a motorised
toiletmap.gov.au/Find/tas for details.
height adjustable adult change
table, a tracking hoist system and Local governments and public and
room for two people either side private entities are also committed to
of a peninsula toilet: all in a safe, including Changing Places facilities
clean and spacious environment. in their future developments. From 1
May 2019, the National Construction Above // Six ‘Marveloos’ are available for
Changing Places will support more
Code will require a new class of toilet hire to improve accessibility at festivals and
than 1.2 million Australians with a events around Australia.
based on the Changing Places design
6 Carers News 2019 Edition 1
Changing Places — A campaign for accessible public toilets
Transforming Families Lives
— A carer's experience of Changing Places
Victorian mother and carer Paula Groves shares how the Changing Places
campaign has positively changed her family’s life.
"I’m a mum of three children and Toby For example, on a recent trip to out of a rashie and bathers is hard
is my 13-year-old young man who has Sydney I made a list of all the places at the best of times but throw in the
cerebral palsy. Toby has his challenges with Changing Places toilets or adult added complication of a child using a
and one of them is incontinence. I am change facilities and those locations wheelchair and it can quite often mean
regularly faced with the challenge were on the top of our visit list. a trip to the beach is ‘all too hard’. For
of being able to toilet/change Toby us knowing that the portable Changing
Being able to use a Changing Places
with dignity, as going to the toilet is Places toilet was at the event meant
toilet means we can plan a day trip or
a basic human right not a privilege. we headed down to the beach and
longer, knowing that when and if we
Toby got to experience surfing just
There have been times — too many need the facilities they are there for us.
like any other kid — and he loved it!
unfortunately — where we have The fact that Changing Places toilets
had to change Toby on the floor of are popping up all over the place As Toby grows up and wants to head
a disabled toilet as the baby change makes me so happy, as being able to off with to do things with his mates, we
table doesn’t cut it for a teenager, or plan trips to the footy, a concert or a know that with Changing Places toilets
in the back of the car and on occasion trip to the zoo is made more appealing appearing around Victoria and the
we have even had to cut our day out as I don’t have to worry about ‘what rest of Australia, Toby’s toileting is one
short to head home to toilet/change, if’ Toby needs to go to the toilet. less thing we need to worry about."
which is upsetting for everyone.
A real highlight for us as a family
As a mum of a child with additional was when we attended the Disabled
needs I do my homework before we Surfing Event at Point Leo on Victoria’s
Stay updated
even head out the door, it makes the Mornington Peninsula and we were Register at changingplaces.
trip easier and more pleasant for lucky enough to be able to use the org.au/join-our-mailing-list/
all. I look up facilities online before portable Changing Places toilet (a for updates on news, events
heading off, to see what is around or Marveloo). When I say lucky I truly and local campaigns.
in the vicinity of where we are going. mean it because changing a child
Above // Toby (centre) at the Disabled Surfing Event at Point Leo in Victoria. Above // Paula with her family.
2019 Edition 1 Carers News 7
Carer stories — Supermum Carers
Living
in times
of
hope
Caring can be a tough role for anyone, but Zahra
does it every day with lots of patience, an open
mind and a smile on her face.
Z
ahra Mohamed was born old Mubarak is supportive. A beautiful like she had people on her side who
in Somalia and moved to example is that he will go and get his were trying to support her and her
Tasmania in 2009 after sister a tissue every time she sneezes. daughter. Due to Carers Tasmania
living in the mainland staff following-up, Mumtaz’s NDIS
Zahra also works part-time and tries
of Australia for nine years. She plan began in December 2017.
to juggle this around her parenting
is mum to five children ranging
and caring responsibilities. Zahra is Supports were put in place through
in age from three to 14 years.
(and needs to be) very organised and the NDIS plan which were of great
Zahra’s 10-year-old daughter Mumtaz realises that routines are the only benefit to Mumtaz. These also
needs a lot of extra support in her daily way to keep everything on track. reduced some of the physical and
life as she has significant disability emotional stress for Zahra. Mumtaz
She contacted Carers Tasmania
and health concerns. Mumtaz’s received an appropriate wheelchair.
and registered Mumtaz for the
actual diagnosis has changed several A support worker will come into the
Better Start program for children
times throughout the course of her home seven days a week to assist
with a disability in 2013. This
young life which has been quite with getting ready before school and
funding was quite helpful to access
stressful, upsetting and confusing provide support in the afternoons or
services such as physiotherapy and
for Zahra. Mumtaz was originally on the weekend. Mumtaz also attends
occupational and speech therapies.
diagnosed with Cerebral Palsy but hydrotherapy and loves it. Zahra
she has received several different In July 2017, Zahra was experiencing says there is a support co-ordinator
variations of diagnosis. Despite this, great difficulty navigating the for Mumtaz’s NDIS plan and their
Zahra faces each day as it comes National Disability Insurance assistance is greatly appreciated.
with a positive and open outlook. Scheme (NDIS). She really needed Without a co-ordinator, Zahra feels
a suitable and safe wheelchair to that life would be quite overwhelming.
Life at home is very busy with Zahra
transport Mumtaz in her car. Due
supporting all her children with Zahra’s message to all carers is:
to not having appropriate support,
love and care, as well as meeting
Zahra was having to carry Mumtaz
Mumtaz’s additional needs. “Keep positive, keep asking
from house to car and then car to
Mumtaz’s siblings all support her in school. Having to carry her daughter for help and although some
their own ways. The eldest children, to and from the car negatively things might take a long
14-year-old Muna and 13-year-old impacted Zahra’s physical health. time, things have potential to
Mohamed, help as much as they can
Carers Tasmania helped Zahra follow change for the better if you
and five-year-old Mulki is great at
communicating with Mumtaz and is
up the NDIS application and plan for hang in there”.
what could be requested for Mumtaz
often incredibly helpful in assisting — Zahra
in her NDIS plan. Finally, Zahra felt
her communication. Even three-year
8 Carers News 2019 Edition 1
Carer stories — Supermum Carers
A Delicate
Balance
When Melbourne mum Adriana Paz enters work
each morning, she mentally prepares for a busy
day ahead as a legal secretary. Like most working
mothers, her daily to-do list is a balance between
work tasks and mum duties. But Adriana’s list
reveals an added layer of complexity — she is a
carer for two of her four daughters.
A
driana has never identified coming for my family. 2017 was a very By being open with people about what
with being a carer. “I do what difficult year” reflects Adriana. she’s going through, Adriana hopes
any mother would do in my they’ll understand the plight of carers.
Isabella’s most severe episodes
situation,” she says. This
leave her paralysed for up to 24
includes coordinating appointments “You’re not looking for
hours during, which Adriana must do
for Isabella and Natalie (aged 11
and eight respectively) so their
everything — right down to scratching sympathy from people but
specialists can see them at school,
her daughter’s nose. The aftermath asking they don’t judge you.
regularly calling Natalie to soothe
is also challenging as Isabella tends We want recognition that
to withdraw in fear of triggering
her separation anxiety or spending we’re not just parents and for
another episode. If there’s one steady
nights in hospital with Isabella during
constant for Adriana it’s the support
our situation to be treated
a paralysis episode. “It’s not until you
of her partner Jason, who is stepdad with respect when we try to
make enquiries on behalf of your child
to Isabella and Natalie and father to mingle with society”.
that the label ‘carer’ is placed on you.”
their daughters Emily and Claudia. “I
— Adriana
Adriana’s caring journey began during don’t know what I’d do without him. It
one of the darkest periods in her life. doesn’t matter how hard the situation
While visiting her 11-week premature gets he’s always upbeat,” she says. The couple want to establish carer
baby Emily in the neonatal intensive events where working mums caring
Jason’s role as stay-at-home dad for a child with disability can gather.
care unit, she received a call advising
has helped Adriana transition back With varying experiences in getting
Isabella was experiencing paralysis.
to work. “Would I rather be at her daughters approved under the
A year later, a neurologist provided
home supporting my family? Yes. National Disability Insurance Scheme,
an answer for the sporadic episodes
But this job pays the bills,” she says. Adriana has plenty of advice to share
— Isabella has a rare neuromuscular
After work Adriana often finds with others. “Take notes of names,
condition called Hypokalemic Periodic
herself on the floor comforting ask for recorded message receipts —
Paralysis and Conversion Disorder.
Natalie during a tantrum or dealing document everything!” she cautions.
Two months later Natalie was diagnosed with her dislike of many foods. “I
with autism, Attention Deficit can’t remember the last time we
Hyperactivity Disorder/Oppositional had a meal in peace,” she says. To connect with Adriana
Defiant Disorder, moderate speech
The unpredictability surrounding email adrip_1979@
impairment and obstructive sleep
apnoea. “The difficulties just kept
their circumstances makes it hard yahoo.com.au
to plan social outings or getaways.
2019 Edition 1 Carers News 9
Carer Gateway Service Provider
Carer Gateway
Service Provider:
— what to expect from September 2019
What does this mean
for carers?
In implementing these reforms, the
Commonwealth wants to focus on
preventing carer strain and loss of
wellbeing arising from your caring role.
The Government also recognises the
financial impact of caring and wants to
place greater emphasis on remaining
in or returning to employment where
possible. It is expected that the CGSP
will understand carer needs and be
able to provide the right supports to
achieve these outcomes at a local level.
What carer services
are continuing?
If you are using carer services now,
you can keep using those services.
You can continue to access existing
carer services funded by the
Department of Social Services through
In each state and territory, one or your usual service providers until the
What is the ICSS and new Carer Gateway service providers
more Carer Gateway service providers
Carer Gateway? (CGSPs) will be established under commence in September 2019.
As reported in the last Carers News, the ICSS. For example, in South Current carer services will remain
the Integrated Carer Support Service Australia and Victoria there will be in place until November 2019 to
(ICSS) is a Commonwealth reform two CGSPs (Adelaide and regional support you while you move to the new
of services for family and friend SA, and Melbourne and regional Carer Gateway service providers.
carers. Under the new arrangements, Victoria), whilst in Tasmania there
will be a single service provider. Under the new arrangements important
funding for existing services, such
carer services will remain, including:
as funding for Carers associations,
and the Commonwealth Respite and
What will the Carer Gateway Information and advice — supporting
Carelink Centres (CRCCs) are being service provider (CGSP) do? carers to understand available
merged into a single Carer Gateway. services and ‘navigate the maze’.
The CGSP will be responsible for
From September 2019, the Carer ensuring family and friend carers are Peer support — access to peer
Gateway will commence rolling-out supported in their caring roles, no support groups with carers going
matter the location within the service through the same situation.
a network of providers delivering
local and targeted services for area. They will either work directly Counselling — up to six sessions
carers across Australia. or work with other organisations with a skilled, professional and
to provide services locally. qualified counsellor.
10 Carers News 2019 Edition 1Carer Gateway Service Provider
Peer support groups will change Online Community Forum — where A key tool in this planning process
slightly. Under the Carer Gateway you can be part of a supportive will be the Carer StarTM. This
service provider, a staff member community with other carers. international approach enables a
will facilitate the group meeting and Self-Guided Coaching — where conversation between you and the
support the group to be self-sustaining you can work through interactive carer support officer across seven
over a period of up to 12-months. coaching at your own pace. dimensions to zero-in on your key
challenges and work with you to
What’s changing? Skills Courses — where you can study
provide supports to address them.
online courses and learn new skills to
Carer Directed Support packages will be help you in your caring role.
available under the new service model.
How will I access the
These services will be available via Carer Gateway?
The concept of the Carer
carergateway.gov.au from July 2019. The Carer Gateway is changing to make
Directed Support package is that it
works similarly to the Carer Directed From July 2020 you will have access it easier for you to get the help you need.
Respite Care (CDRC) packages to face-to-face coaching. You will be From September 2019 you can call just
currently offered. able to select from a suite of topics one number to find the help you need.
and receive one-on-one coaching Calling 1800 422 737 will enable you
The packages will be delivered either as
from a carer support officer. The to speak with your local Carer Gateway
a one-off practical support or a range of
topics will likely relate to the areas service provider. You can request a
practical supports provided over a 12
that are causing you most concern. call-back on carergateway.gov.au.
month period. The value of the packages
will range from $1,500 up to a maximum What if I prefer to access Your Carer Gateway service provider
amount of $3,000, depending on the services online? will talk you through what you need
needs and individual circumstances and help you find services and support
of each carer receiving support. All of the ICSS supports will be available
in your area.
online through the National Carer
Practical one-off supports will take the Gateway. From July this year, carers
form of a tangible item that directly
contributes to supporting the carer in
will be able to access counselling, peer How do I keep
support, education resources and,
their caring role or supporting the carer from July 2020, individual coaching. up-to-date about
to access education or employment.
How will the CGSP all the changes?
The provision of ongoing practical
supports will involve a Carer Support identify my needs? Visit your State Carer
Worker engaging with a carer and From September 2019 you will be Association’s website to subscribe
actively planning on a quarterly basis offered assistance with identifying to their e-news and social
what those supports might look like. appropriate support needs, help to media. As we know more news,
Where a carer is able to, they are access those supports and advice on we will share it through these
encouraged to actively manage the future support planning through the channels. If you have a question,
supports themselves. Practical supports Carer Gateway service providers. send it using the email for your
may include services such as respite State or call 1800 242 636.
and assistance with transport. The Carer Support Planning process
involves a carer support officer South Australia,
What’s new? engaging in a conversation with you ICCSenquiries@carers-sa.asn.au
to understand your needs
From July 2019 carers will have access Tasmania,
(similar to what happens now),
to these new Carer Gateway services: CGSP@carerstasmania.org
measuring your wellbeing,
Phone Counselling — where you co-creating an action plan to address Victoria,
can get one-on-one support with a
your needs and arranging the services reception@carersvictoria.org.au
professional counsellor over the phone
identified in the action plan.
if you feel stressed or overwhelmed.
2019 Edition 1 Carers News 11Federal Election Voting
Federal election
voting
— Advice for carers
All eligible Australian citizens aged 18 and over are required by law to enrol
and vote at a federal election.
T
here are few exemptions to vote or sign a declaration envelope and specific features. People unable
under Australian law on behalf of the voter. to vote without assistance can select
from your obligation to their carer, relative or friend as a
vote. Most people with a Voting accessibility helper. The designated helper can
disability can vote but may require After the federal election is enter the polling booth with the voter
additional support. If you support announced, Australian households will to help them complete and deposit
a person with profound disability receive an official guide in the post. the ballot paper. Polling staff are also
or advanced dementia who is not Accessible versions (including braille, trained to assist, and a scrutineer is
able to understand the nature and audio and large print) will be available allowed to observe the ballot paper
significance of voting, you can apply from the AEC website or by contacting being completed.
to remove their name from the an AEC office.
electoral roll by completing a form Failure to vote
on the Australian Electoral Voters living with disability, mobility
If a person you care for is unable to
Commission (AEC) website restrictions or illness may be eligible to
vote, advise a polling official on the
aec.gov.au. The person must be vote early in person or by post. You can
day. Eligible voters who fail to vote will
assessed to be of ‘unsound mind’ by apply for a postal vote online or at an
receive a letter from the AEC and must
a registered medical professional. AEC office. As a carer you may assist
respond with a valid and sufficient
the voter to complete their ballot
You can check your enrolment status, reason for not voting or pay a $20
papers and envelope according to their
enrol for the first time or re-enrol on penalty. An AEC officer will decide
instruction, but the voter must sign or
the AEC website. A person previously each case individually in accordance
make their mark on the envelope.
removed from the electoral roll on with the legislation.
medical grounds must submit a new The AEC provides a telephone
enrolment application with medical voting service for voters with visual
certificate signed by a registered impairment to cast their vote from
medical practitioner. home. Mobile polling is also carried More information
out across Australia in hospitals
A voter unable to write or sign their and nursing homes to assist people For information visit
name due to a physical disability can otherwise unable to access a
get someone else to complete and sign
aec.gov.au/Voting/
polling place.
an enrolment form on their behalf. people-with-
However, there is no proxy voting in If you and the person you support will disability.htm
federal elections in Australia. Holders visit a polling place on election day,
of power of attorney are not permitted plan ahead by checking its accessibility
12 Carers News 2019 Edition 1The Power of Journaling
The Power of Journaling
Carer Anne
Phelfey uses her
journaling time
to write poetry.
Here's her poem
'Carer Fatigue':
If caring becomes a chilling chore
That’s a sorry state you
cannot ignore
J
ournaling is the practice Take stock; step back and realise
Tips to get started
of noting down thoughts, You have actually won the
feelings or events related to Forget about perfect grammar or
spelling and focus on accessing greatest prize.
your life. There are no rules
thoughts and emotions. This time you have is precious and
on how, when or what to journal.
The key is to take a moment to find Smart small. Write a few sentences rare offering joy beyond compare.
some quiet time and reflect. or bullet points each day to build That special kiss goodnight elicits
the habit. a smile
The health benefits of journaling are
plentiful. Noting down emotions and Be honest and let the words flow It makes you go that extra mile
freely. Nobody will read what you
experiences can be therapeutic and Cuddles and laughter, each
write unless you allow them.
encourage healing, change, growth moment you share are a fleeting
and self-awareness. This may be If journaling about a negative blessing that becomes more rare.
particularly useful when trying to emotion or topic, end by reflecting
You only deprive yourself of
cope with grief or resolve complex on something positive.
happiness and love
problems. Research shows journaling
helps to manage mental health Writing inspiration And a spirit of peace that just fits
and boosts cognitive functioning Journal about aspects in your day or like a glove
and immunity. It’s also proven to life which you are grateful for. Suddenly, like waking, you come
counteract stress and decrease to know
Write down your feelings about
symptoms of asthma, arthritis an event or person as a way of This time with your loved one may
and other health conditions. processing them. suddenly go.
Journaling is one of the cheapest Reflect on your goals and what you
ways to practice self-care and stress need to do each day to achieve them.
management. All that’s required
Pen a declaration of your core values
is a pen and paper; however, you
and how you intend to live your life.
can use a smartphone or laptop
instead. Journaling is most beneficial Google search ‘journaling prompts’
when done consistently, so find a for more ideas. Write a list of
routine which works best for you. options and fold them into a jar
Some people journal in the evening to try a new one each day.
to recap their day while others
By committing 10 – 15 minutes a
prefer first thing in the morning
day to journal you may improve
before their schedule takes over.
your general wellbeing and ability
to make better life choices.
2019 Edition 1 Carers News 13Policy update — Be The Voice For Carers
Australian Electoral Commission
electorate.aec.gov.au
Victorian Electoral Commission
tec.vic.gov.au
Tasmanian Electoral Commission
tec.tas.gov.au
Electoral Commission
South Australia
ecsa.sa.gov.au
Be The Voice For Carers Be polite and courteous but firm.
Don’t be afraid to say you disagree
with their views and offer reasons
Policy and research staff at Carers Australia and the for why your points should be
network of State and Territory Carer Associations considered. It’s also a good idea
to build rapport by identifying
work closely together on issues and policies of anything you have in common or
significance to carers. offering encouragement if they’ve
T
previously addressed any concerns.
his includes conducting
Advocating for your rights Keep correspondence to a maximum
extensive consultation
The best way to initiate reform and of two pages and remember to
with carers to ensure their
recognition is by contacting a Member thank the politician for their time
opinions and priorities
of Parliament (MP) via phone, email, and mention you look forward to
are considered when government
post or requesting to meet person. their reply. Be mindful it may take
policy and service delivery is planned
Find your Federal MP on the Australian several weeks for a response. If you
and evaluated. Other priorities for
Electoral Commission website and haven’t received one by then, you
policy and research staff are to:
State MP on your relevant State can phone their office for an update.
Analyse and comment on
Electoral Commission website (details
government policies affecting
in box above). It may feel daunting
Preparing a submission to
carers and their families.
to initiate contact but remember it’s government enquiries
Represent the diverse needs their job to represent the concerns The Federal Government recently
of carers. of citizens within their electorate. initiated a Royal Commission into
Lobby for improvement through If writing a letter, start by introducing Aged Care Quality and Safety,
submissions and representations calling on interested members of the
yourself and your reasons for
to Ministers. public to make a submission. Making
making contact. Then expand on
Promote development and delivery these reasons by including personal a submission to a government
of quality, flexible and carer- examples to help the politician enquiry involves the same approach
inclusive services. connect with your concerns. Where as writing to an MP, but always read
possible, obtain permission from the Terms of Reference first. This
Participate in research with carers
the person you care for if including will guide your response and is
and the people they care for.
personal information about them. available on the Commission’s
Current issues of focus include the website. To make a submission
Royal Commission into Aged Care Also suggest what actions the politician visit: agedcare.royalcommission.
Quality and Safety, The Productivity can take to resolve your concerns. This gov.au/submissions.
Commission Inquiry into Mental may be funding initiatives, contacting
Health and the National Disability government departments or raising
Insurance Scheme implementation. issues within their political party.
14 Carers News 2019 Edition 1Social Media Savvy
Social Media Savvy
Facebook
Facebook enables you to follow
organisations, interact with other
carers, find local events and
share your thoughts, personal
stories and photos with others.
You will need to create a Facebook
profile to actively engage with
pages of interest via likes,
comments and shares and connect
with others through friend
requests or Facebook groups.
Ideas for Facebook
Follow Carers Australia and your
Whether you have dabbled in social media or are State Carers Association for news
and events.
looking to get started, here’s how you can utilise the Join peer support group pages or
most popular platforms to support your caring role. create one for your own network.
YouTube Twitter Pinterest
YouTube is a video streaming site Twitter is a self-expression tool favoured Pinterest is a platform for sharing
which enables everyone to share by politicians, journalists, academics, and categorising images and
their own videos and watch footage organisations and the general public. information found online (think of
uploaded by others. Content varies Users can keep up-to-date with it as a corkboard to ‘pin’ images).
from fun and light-hearted videos breaking news, traffic, weather and You can use your email address or
to informational tutorials, how- find events or view ‘Trending Topics’ Facebook account to sign up.
to-demonstrations and Q&A’s. discussed locally or globally.
Ideas for Pinterest
Create an account and search for To join, select a username of 15
videos based on topic, organisation characters or less (also known as a Enter the word ‘carer’ in the search
or subject matter. Subscribe to an ‘handle’). Find subjects, individuals or bar and ‘pin’ tips and techniques for
individual or organisation’s channel organisations to follow and share, or future reference.
to receive notifications every comment on their content. Remember to Create a board of your own images
time they share a new video. post your thoughts too and use relevant to share with others.
hashtags to make them visible to others.
Ideas for YouTube
Carers Australia has over 100
Ideas for Twitter
Follow politicians, councils,
Tip: Visit your State Carers
videos available and Carers Victoria
offers tips on self-care for all carers. government departments, Association website and
newspapers and TV stations. the Carers Australia
Carer Gateway has animations
Add your voice to campaigns website to see how you can
on a host of topics and videos of
such as Every Australian connect with them.
carer stories. Counts and #raisetherate
(for Newstart Allowance).
2019 Edition 1 Carers News 1510
10 Ways to Ask For Help
Ways to
Ask For Help
Asking for help can be difficult but is an
important step toward managing your wellbeing
and stress levels.
1 Attend carer events 5 Join a support group 9 Enrol in a course
Check to see what carer events your By connecting with others who truly Knowledge is empowering. Your local
local council, Carers Association, understand the impacts of caring, you Carer Association offers many free
Neighbourhood House or Respite can receive advice and learn from workshops, as well as webinars which
Centre have scheduled. These are a others’ experiences. With so many can be joined from the comfort of
great way to discover what services and general and specific carer support your own home. Future Learn:
supports are available and gain advice groups available and different ways to futurelearn.com offers a diverse
from experts and other carers. participate (in person, phone, online selection of free online courses from
etc), you’re bound to find one which leading education providers around
2 Talk to a friend meets your needs. the world.
As the old saying goes, ‘a problem
shared is a problem halved’. Most 6 Write to your local 10 Get legal support
people will be happy to help if Member of Parliament The Disability Ombudsman, Office
they are told how they can assist. (MP) of the Public Advocate and Legal
Gathermycrew.org is a free online Aid services are all avenues to seek
Contact your local MP to advise what
rostering tool which lets you assistance or advice about your rights.
supports are lacking in your electorate
coordinate assistance from family and The OPA and Legal Aid also have free
and how carers can be better supported.
friends using an online calendar and publications which may help you to
Extend an offer to meet in person to
task list. work out certain problems.
discuss your recommendations.
3 Call your Carers 7 Start a conversation
Association
online
They are friendly professionals who
A Google or Facebook search will
Self-care
can offer advice and provide access to a
range of services and resources including
reveal many online forums where Remember self-care
people gather to chat and lend support. is essential for good
education workshops, counselling and
Most forums can be joined or read
referrals to support groups.
anonymously and you may find there’s
physical and emotional
health. Allow yourself
4 Seek counselling already advice relevant to your concern.
to be vulnerable by
A counsellor is a qualified professional 8 Consider respite acknowledging when you
who can listen objectively and help with
Respite comes in different forms. It can are stressed and need
developing effective coping strategies
for troubling emotions or problems.
vary from asking loved ones to give you emotional, physical or
a few hours break, to enquiring with
Lifeline (13 11 14) offers free and financial support.
your local Carer Association about
confidential telephone counselling on a
what paid supports exist and whether
24/7 basis Australia-wide.
there are subsidies to fund them.
16 Carers News 2019 Edition 1Are You Ready for Winter?
Are You
Ready
For
Winter?
— Get the jab!
Every year in Australia, 18,000 people Adults and children aged from If you have a fireplace always place
are hospitalised from the flu, with over 6 months of with chronic medical a screen in front of it when in use.
300,000 GP visits and costs the health conditions such as heart, lung,
liver or kidney diseases, asthma, Check electric blankets for damage
system about $85 million. or frayed cords before placing on
diabetes, cancer, impaired immunity
Having a flu vaccine has many benefits: and neuromuscular conditions. the bed.
A greater chance of not contracting Aboriginal and Torres Strait Islander Take care to keep curtains,
the flu. people aged 15 years and over. tablecloths and bedding away from
portable heaters.
No out-of-pocket expenses from A consultation fee may apply. Check
multiple visits to a GP. Keep wet clothing at least 1 metre
flu.tas.gov.au for more information.
from heaters or fireplaces and
Greater sense of health and wellbeing. never leave unattended.
Be winter fire safe!
Less stress and anxiety compared If you use a clothes dryer make
Did you know 30% of fires start in
to having the flu and needing to sure you clean the lint filter each
winter and 47% begin in the kitchen?
maintain your caring role. and every time you use it.
Read through this checklist and make
Vaccines are constantly evolving sure you are not a statistic! Only use one appliance per power
with new virus strains. For example, point and switch off when not in use.
Never ever leave cooking unattended.
in 2017, 90% of flu related deaths “Keep Looking When Cooking”. Always extinguish candles or any
were people over 65 years of age. other open flames before going to bed.
Last year, the federal government Have an adequate number of
suitable smoke alarms installed Always handle candles or any other
introduced two flu vaccines specifically
throughout your home and make open flame with care.
for older Australians. sure that you test them regularly.
A free vaccination is available for: Store matches or lighters in a
Make sure you and all your family secure place not accessible to
All children aged from six months to know two safe ways out of every young children.
under five years. room in your home.
Avoid the use of outdoor heating
All adults aged 65 years and over. Have a written home escape plan in and cooking equipment inside
case of fire and practice it regularly. your home. The use of this type of
Pregnant women at any stage in
equipment indoors could lead to
their pregnancy. If you have a fireplace in your home
the build-up of carbon Monoxide
make sure the chimney is clean, and
which could be fatal.
its properly ventilated.
2019 Edition 1 Carers News 17Take a Break
Take a
Break Recipe —
MUSHROOM AND
Sudoku CHEESE SOUFFLE
This delicious recipe originates from the “Rooster
Cookbook” first published by the Country Women’s
Association in 1956 and revised in 2016. A flavoursome
choice for the cooler weather months ahead.
Ingredients
2 tablespoons butter
2 tablespoons plain flour
¼ teaspoon salt
Pinch cayenne pepper
4 eggs
½ cup sliced mushrooms, sautéed gently in
additional butter
2 tablespoons grated cheese
¾ cup milk
Instructions
1. Preheat oven to 180 degrees.
2. Grease a 20cm souffle dish. Tie a string of
baking paper around the outside of the dish,
ensuring it stands at least 10cm above the rim.
Sudoku Answers:
3. Separate eggs. Beat egg whites until stiff.
4. Melt butter, remove from heat and stir in salt,
flour and cayenne pepper. Add milk, return to a
gentle heat and stir until mixture thickens. Add
mushrooms, egg yolks and cheese. Mix well.
5. Gently fold in the egg whites.
6. Gently pour the mixture into the prepared
dish and bake for 30 minutes.
7. Serve immediately with a crisp green salad
and crusty bread.
Source: www.sudokuoftheday.com
Reprinted with permission from Marie Vassallo, Country Women’s
Association. For more tasty recipes, visit www.cwaa.org.au.
18 Carers News 2019 Edition 1The Power of Peer Support
The power of peer support
The caring role can Benefits 5. A place without judgement of
your experiences.
often leave you There are many benefits of
6. Access to advice from others.
participating in peer support groups.
feeling isolated and 7. Gaining knowledge of supports
1. Meeting with other carers that
disconnected. speak the same language.
you may not realise are available.
8. Chance to help other carers.
2. Learning from other carers who
It can feel like you are the only one that 9. Increase your wellbeing and sense
have been where you are.
can understand what it means to care of being more in control.
for a family member or friend. You may 3. Connecting and supporting
each other. 10. Learning tools and techniques
not have thought about peer support,
that will help you in your
but it might be worth considering. 4. Help communicate what you are
caring role.
going through.
Types of peer support
Name Meeting details
Peer support groups can be structured
or flexible, face-to-face or online,
Northern Tasmania condition-specific or location-based.
Mindfulness Interest Group (Launceston) Fortnightly Monday (1:30–3:30pm) What’s important is that there are
flexible options to fit with the realities
“My Time” Third Tuesday (12:30–2:30pm) of your caring role.
Northern Midlands (Longford) Third Wednesday (10:30–12:00pm) Carers Tasmania has a broad number
St Helens Fourth Tuesday (2:00–4:00pm) of established peer support groups
across the state.
Tamar Valley (Beaconsfield) First Tuesday (1:00pm)
If established groups are not for you,
Tiers Tryers (Deloraine) First Thursday (10:00–11:30am) consider an online option.
North Western Tasmania The national Carer Gateway will be
offering online community forum from
Coastal Connection Retreat Quarterly, varying times July 2019. You will be able to link with
Devonport Tuesdays (1:00pm) carers from around Australia to discuss
challenges, share tips and advice and
The Escape Hatch (Devonport) Second Monday connect at all hours of the day.
Mindfulness Group (Burnie) Quarterly, varying times Another option is a pilot that Carers
The Coffee Club (Queenstown) Quarterly within school terms Tasmania is about to launch — location-
based Facebook carer communities.
Time Out Second Wednesday (10:30–12:00pm) These will be specific Facebook pages
Ulverstone Third Wednesday (1:00–2:30pm) we establish to connect carers within
very localised communities. The
Southern Tasmania advantage will be that you will connect
with those in your own community,
Men’s Caring Friends Third Wednesday (10:30–12.30pm) develop social networks, and perhaps
Thursday Men’s Third Thursday (12:00–2:00pm) offer practical support to each other.
Mindfulness Interest Group (Hobart) First Friday (1:00–3:00pm) We hope to commence groups in
Triabunna, St Helens, Devonport, and
Kingston Fortnightly Tuesday (12:00pm) New Norfolk during the next month.
Mental Health Carers Reference Once a month SG, Quarterly RG, However, we are happy to support a
and Social Group varying times group of carers in any location.
Eastern Shore One Friday a month (1:00pm–3:00pm) If you are interested in working with
us to start a Facebook page, we would
LGBTIQ Rainbow Second Friday, varying times
love to hear from you. Contact us on
Carers of People with Dementia Second Friday (10:00–11:30am) (03) 6144 3729 or email at CGSP@
carerstasmania.org.
Young Carer Reference Group Quarterly, varying times
2019 Edition 1 Carers News 19The magazine of Carers Tasmania
2019 Edition 1
Editor // David Brennan, Lana Dogan
Graphic Design // Blick Creative
Contributors // David Brennan, Lana Dogan
© Carers Association Victoria 2019
© Carers Association Tasmania 2019
This work is copyright. Apart from any use as permitted under
the Copyright Act 1968 all rights are reserved. Requests and
enquiries concerning reproduction and rights should be addressed
to Publications, Carers Victoria, PO Box 2204, Footscray,
Victoria 3011.
This views expressed in this work are not necessarily those of
Carers Victoria or Carers Tasmania, Carers Victoria and Carers
Tasmania have made every effort to ensure the quality and
accuracy of information at the time of publishing. Carers Victoria
and Carers Tasmania cannot guarantee and assumes no legal
liability or responsibility for the accuracy or completeness of
the information. This work is not intended to be a substitute for
independent professional advice. To the full extent permitted by
law, Carers Victoria and Carers Tasmania do not accept any liability
for any claim, injury, loss or damage suffered or incurred by use of
or reliance on the information however it arises.
Carers Tasmania offices
Hobart
64 Burnett Street, North Hobart TAS 7000
Ph: (03) 6231 5507
Fax: (03) 6236 9236
Launceston
Shop 8, 216 Charles Street, Launceston TAS 7250
Ph: (03) 6334 9917
Fax: (03) 6334 9916
Burnie
192 Wilson Street, South Burnie TAS 7320
Ph: (03) 6432 1170
Fax: (03) 6432 1171
Carer Advisory Line: 1800 242 636
Stay Connected
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@carerstasmania
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