Involvement Report 2020-2021: Adapting to change in challenging times - RNIB

Page created by Javier Simpson
 
CONTINUE READING
Involvement Report 2020-2021: Adapting to change in challenging times - RNIB
Involvement
Report 2020–2021:
Adapting to change in challenging times
Involvement Report 2020-2021: Adapting to change in challenging times - RNIB
Contents

     3    Finding promise and renewed purpose
          at the most challenging time

     5    How Lived Experience drove RNIB’s
          response to the pandemic

     7    Technology breaks more and
          more barriers down

     10   Connect Voices moves to the next stage

     12   Informing our campaigning as the
          world changes

     13   Supporting the Statutory Inquiry with a review
          of RNIB’s constitution

     15   Making the most of local lived experience

     17   Bringing the sector together to understand
          the lives of blind and partially sighted
          people better

     19   RNIB’s new National Involvement strategy

     21   During a time of reflection, customers share
          their thoughts on the RNIB

     23   Summary: Ellie Southwood, RNIB Chairperson,
          2017 to 2020.

2
Involvement Report 2020-2021: Adapting to change in challenging times - RNIB
Finding promise and renewed purpose
at the most challenging time
Author: Mandy Owens, National              with involvement of blind and partially
Involvement Team                           sighted people an obvious priority.
                                           Our strategic aims were reviewed, and
It has been said so often it feels like    current business goals redefined.
cliché, but you cannot reflect on
2020 without saying that it was an         The lived experience of blind and
unprecedented year. People with sight      partially sighted people has continued
loss have faced unique challenges –        to impact on RNIB’s work. Taking on
with so many aspects of their lives        the challenges we set ourselves last
under threat. While everyone has           year, we have involved more RNIB
faced disruption, people with sight        customers in projects from concept
loss have found everyday tasks like        to completion. We have laid the
shopping, getting outdoors, socialising,   foundations for better collaboration
accessing information and attending        with customers through staff training,
appointments become increasingly           guidance and telling real stories that
difficult and, for some, almost            demonstrate the value of input from
impossible to achieve. Hard fought         people with sight loss.
independences have been challenged
and people have been at increased          We are already looking to the
risk of isolation.                         future, with a new lived experience
                                           framework which allows us to
RNIB, as an organisation, had to face      demonstrate and monitor how blind
new challenges too. To help the people     and sighted people contribute to our
who needed us the most, short term         work. We will be conducting surveys
priorities had to change as we worked      to help evaluate how well we are
on solutions to get people access to       incorporating lived experience and
food, medicines and other essentials       the impact it has.
in lockdown. At the same time, we
faced cuts in face to face services and    But, to make this work, we need
volunteering, a drop in our traditional    your help. Whether you’re a staff
fundraising activities and the pandemic    member or one of our customers,
forced a sudden move to remote or          your support is valued. We need staff
homeworking for most staff.                to continue to involve more blind
                                           and partially sighted people in pieces
But there has been positive change         of work, and if you are a valued
too. As demand for essential services      customer, we’d like you to share your
– through RNIB’s Helpline – told us        experiences by joining our Connect
our support was needed more than           Voices network.
ever, the importance of listening to
our customers was re-emphasised,
                                                                                     3
Involvement Report 2020-2021: Adapting to change in challenging times - RNIB
David, Head of Innovation and
    Customer Voice, said:                             One final point: you’ll
                                                      notice this is a report with
                       “There has                     a difference, we wanted to
                       been a growing        include audio links and further
                       recognition at the    reading where appropriate so look
                       most senior levels    out for the pink boxes throughout
                       that authentic        the report.
                       lived experience is
                       critical everywhere
                       in the charity.
                       There is an
    understanding that it is not enough
    to have people with lived experience
    sitting only on our trustee board.
    There is a genuine and growing
    appetite for people with little or no
    sight to play a part in all that we
    think decide and do and the value
    that lived experience can add to our
    work. We have made commitments
    to take a ‘whole organisation’
    approach to developing this area of
    what RNIB is becoming, making it
    part of our organisational DNA.”

     Thanks for reading. We couldn’t do this without your support.
     If you have any feedback regarding this report or you wish to join the
     Connect Voices network, please contact RNIB’s National Involvement
     Team at Involvement@rnib.org.uk quoting ‘Annual report’.

4
Involvement Report 2020-2021: Adapting to change in challenging times - RNIB
How Lived Experience drove RNIB’s
response to the pandemic
Coronavirus has had a huge impact on the lives of everyone in the UK, but blind
and partially sighted people faced their own unique set of challenges. It became
clear from the calls received by our Helpline and our groups on social media that
the pandemic was having a devasting effect on people’s lives.

To hear direct from those affected, we
                                              Developing a new relationship
started a programme of research in
                                              with DEFRA to make priority
‘real time’ during the first lockdown,
                                              home delivery slots available
gathering insights from over 400 blind
                                              for blind and partially sighted
and partially sighted people through
                                              people who needed them.
surveys, well-being calls and facilitated
discussion groups with our customers.
Using Microsoft teams allowed us
to reach people through any device,            orking with the UK Government,
                                              W
whether it be laptop, landline, tablet,       the wider public sector and sight
or mobile phone. Looking into ways            loss organisations to ensure blind
customers who are not online can get          and partially sighted people get
involved was noted in last year’s report,     access to the right information
so it was important to us to make these       in the right formats.
choices available.
                                              Helping the Department of
           Have a listen to what              Health and Social Care (DHSC) to
           some of those involved in          create guidelines on how people
           the discussion groups felt         with sight loss can be supported
           about the experience               by others outside their home. It
           rnib.in/1-Lockdown-                made clear that sighted guiding is
           Sessions                           permitted if people take the right
                                              steps to reduce risk.
Our regional Community Connection
teams also gathered information as
part of their thousands of well-being
                                               orking with blind and partially
                                              W
calls. Consequently, RNIB has better
                                              sighted members of our
understood the challenges people have
                                              community to develop guidance
been facing and was able to provide
                                              on the use of face coverings.
solutions, as well as much needed help
and support, including;

                                                                                    5
Involvement Report 2020-2021: Adapting to change in challenging times - RNIB
This research will inform our work
    over the next year, giving us a clear    Read the full report
    indication of what people want, need,    including all findings,
    or have a right to, in order that they   responses and
    are treated equally to that of sighted   recommendations here:
    people, as well as feeling safe and      Final report –
    supported, now and in the future.        rnib.in/LWSL-Lockdown

6
Involvement Report 2020-2021: Adapting to change in challenging times - RNIB
Technology breaks more and
more barriers down
This year we have used technology to         Surveys like this are a great way to get
break down more barriers as the initial      a snapshot of responses from a large
lockdown gave us an opportunity to           group of people at once; they are quick
rethink how we engage people. We             and easy for people to take part in, no
had to rely on remote methods, but we        matter their location.
were able to work with people easier
and quicker than before.                                        Liz from the team
                                                                says:
Previously, we might have been unable                            “The insight into
to work face to face with people as often                        people’s feelings
as we’d liked, due to a lack of available                        and experiences
resources, or budget constraints. Equally,                       increased our
people may have found meeting us                                 monitoring of
a challenge, whether this be due to                              the situation around
travel, mobility, or simply not having       access to eye care appointments. It was
the time. Here are two examples of           shared with colleagues in Policy and
how technology has helped us:                Campaigns team and the Sight Loss
                                             Advice Service to support their work.
Key insights into eye care
                                             Big thanks to the Involvement team
in the pandemic
                                             and the Connect Voices network
Our Marketing Business Partners              for their help.”
worked with our Connect Voices
network through an online survey
exploring access to eye care
appointments during 2020.                             The survey’s results also
                                                      helped produce new Eye
Staff wanted to evaluate the
                                                      Health material on our
effectiveness of recent marketing
                                                      website here:
communications, as well as gaining
                                              rnib.org.uk/advice/eye-health
additional insight into how people
were feeling about attending eye
care appointments. Results from the
survey helped the team decide what
communications worked well and
should be repeated, what barriers are
still in place and how RNIB might be
able to help people in future.

                                                                                        7
Use the Navilens Go
    App to scan this code

8
Pioneering technology makes                 telling us which accessibility features
our Kellogg’s partnership break             they preferred and how they found
new ground                                  being able to independently access
In October 2020, to mark World Sight        this kind of information.
Day, RNIB worked with Kellogg’s,
Co‑op and NaviLens to trial accessible      We had an overwhelming response to
packaging of the Coco Pops breakfast        the survey, which clearly demonstrated
cereal in more than 50 food stores          the need for greater access to
across the UK. As one blind and partially   information on packaging.
sighted shopper told us, information on
                                            Chris Silcock, Kellogg’s Managing
food packaging is often inaccessible.
                                            Director, explained:
 “I tried to use the camera on
                                            “Over two million people in the UK
  my smartphone (to zoom in)                 live with sight loss and are unable to
  but I wasn’t very successful               simply read the information on our
  so had to ask someone                      cereal boxes. That’s why we partnered
  else. If no one was available              with RNIB to trial special boxes of
                                             Coco Pops with NaviLens technology
  I would just have to guess
                                             – a first for food packaging. If the
  the cooking instructions”                  trial is a success, we would hope that
                                             it could appear on more of our cereal
                                             boxes for visually impaired shoppers
Research from RNIB revealed that nine        to access in future.”
in 10 blind and partially sighted people
felt that information on food packaging
                                            Since working with Kellogg’s, RNIB
was difficult, or impossible to read, so
                                            have been actively collaborating with
the trial used NaviLens’ technology
                                            major brands from across the world
(rnib.in/NaviLens) which allows a
                                            to better understand the landscape
smartphone to detect and playback
                                            and represent the demand for greater
labelling and allergen information to
                                            access to information on packaging.
shoppers, enabling blind and partially
sighted people to find out more about
the product both instore and at home.

We wanted to hear the views of blind                 Have you experienced the
and partially sighted people and so                  accessible packaging from
the opportunity to get involved was                  Kellogg’s? Search for the
shared through the Connect Voices            ‘NaviLens Go’ app, download to
network and other social media               your smartphone and scan the
channels. Nearly 100 participants took       photo on the previous page.
part, each receiving the packaging
through the post to test. Participants
were then sent a survey to complete,
                                                                                      9
Connect Voices moves to the next stage
     Listening to the voices of blind and        “I have been more involved
     partially sighted people – and what          in Connect Voices during the
     they have to say – is central to RNIB’s
     work and underpins our ambition to be        pandemic especially during the
     experts in the lived experience of sight     first lockdown where I had to
     loss. Connect Voices is the route for        shield and now in this second
     people to take to help us achieve this.      lockdown too. It has massively
     Founded two years ago, it gives              helped my wellbeing, I have
     opportunities for people to have their       something to aim for, look
     say and contribute to our work in real       forward to, and some structure.”
     time, both online and off. Our online        Connect Voices member
     network made a move to Facebook in
     July 2020, increasing membership to
     602 blind and partially sighted people
     (as of 1 April 2021).
                                                 Positively, a survey to our members
     In last years report we prioritised         in 2020 showed that

                                                 75%
     communication and integration of
     Connect Voices. Given the limitations
     of our current database, the move
     to Facebook has given those already
     familiar with social media a much           felt that being part of Connect
     simpler joining process.                    Voices also supported their
                                                 mental health.
     Offline, we’ve increased the publicity
     of Connect Voices on RNIB’s Connect        As one Connect Voices member told us:
     Radio with the introduction of a new
     fortnightly slot. This regular round up     “It has helped me to look outside
     of opportunities provides people who
     aren’t online the chance to take part.       of my home and to be able
                                                  to help has assisted with my
                                                  mental wellbeing. I’m usually
                                                  out volunteering for RNIB so
                                                  this helps me keep motivated
                                                  and feel of worth as I do like to
                                                  assist others like me who have a
                                                  visual impairment.”

10
Connect Voices shared

 175
 internal opportunities
 last year

Connect Voices has become well
established in the organisation as the
route staff can take to source blind and
partially sighted people to support their
work, with 175 internal opportunities
posted to the group last year (April
2020 – March 2021).

In late 2020, Connect Voices added
a new research element, called the
Connect Voices Tracker survey, that
ensures we hear from people more
often and allows us to respond swiftly
to emerging needs.

Each version of the quarterly survey
features a range of topics to help RNIB
understand how people are feeling and
measure our impact to create the right
changes at the right time. We hope to
reach at least 400 people each quarter,
through Connect Voices and our
offline channels to ensure we get the
most representative views as possible.
Ultimately, findings will directly shape
RNIB’s priorities and future focus.

           Hear a summary of our
           findings from October –
           December 2020 here
           rnib.in/2-Tracker-
           Survey-Q3

                                            11
Informing our campaigning as the
     world changes
     In 2020 everything changed                 Lindsay, Campaigns Manager added;
     dramatically for blind and partially
     sighted people and we continue to feel     “This approach was invaluable as
     the impact of those changes.                it made certain that our work was
                                                 informed by the right people,
     It’s crucial RNIB, as an advocate for       whilst also helping to build
     people with sight loss, ensure our          volunteers understanding of RNIB,
     campaign work is targeted where it          our processes and how and why
     is most needed. With this in mind,          certain decisions are made. It was
     we decided to undertake a review our        a thoroughly enjoyable session”
     campaign priorities for 2021, working
     with our campaign volunteers to get
     an authentic understanding of the          Lived experience provides us with the
     day to day challenges people were          evidence we need to share with both
     experiencing. Doing so helped us           central and local government, helping
     to prioritise our campaigns for the        us to make a real case for change on
     year ahead. This is one area we have       a range of issues. Everyone knows and
     improved in line with our goal last        understands their own experience,
     year of: working towards a culture         our role in campaigns is to draw that
     of involving people from the very          out and turn it into a collective voice.
     beginning.                                 Next, we will meet with various staff
                                                teams to hear their thoughts and
     Ten volunteers joined our virtual          collectively, the feedback will define
     discussion group in which we               our future campaigns.
     considered key issues such as transport,
     technology, eye health, education and
     employment, prioritising them in order
                                                                Steve, one of our key
     of importance.
                                                                campaigners in this
     The discussion proved to be a lively                       discussion, had the
     exchange, with volunteers sometimes                        following thoughts
     differing in opinion and raising                           rnib.in/3-VolSteve-
     compelling arguments in terms of                           comments
     how we prioritised future work. It also
     allowed us time to talk more candidly
     about where campaigners felt RNIB
     would have most impact and the
     additional knowledge and skills needed
     to campaign effectively.

12
Supporting the Statutory Inquiry with
a review of RNIB’s constitution
In February 2020, RNIB’s Board of       In April and May 2020, RNIB consulted
Trustees established a group of more    with the members on amendments to
than 30 blind and partially sighted     its constitution. Meetings were held
people, known as Constitutional         remotely with Ellie, our then Chair of
Members, to consult on changes          Trustees, and Matt, our CEO joining
to our organisational structure         each group. The Board reviewed the
and constitution (i.e. our Royal        outcomes and agreed the amendments
Charter and Bye-laws).                  proposed by the members.

The Charity Commission for England      The Constitutional members work
and Wales’ Statutory Inquiry into       had concluded at this point. However,
RNIB concluded with a report            feedback from the members also
(rnib.in/safeguard-report) that made    made a clear and compelling
a number of recommendations,            statement that the proposed changes
including the need for us to make       to the charity’s constitution should be
some changes to our governance.         seen as part of wider organisational
                                        improvements, bringing the voice
The Constitutional Members were         of people with lived experience of
a deliberately diverse group of         sight loss into all levels of the RNIB’s
people, including those from regional   work. Trustees agreed, and the second
and country networks, members           phase of work started, looking more
of Connect Voices, long-standing        closely at three key themes:
volunteers and members from our
Board Committees. We also included          rustees’ relationship with sight
                                           T
people from the world of business          loss, covering education as well
and the public sector, some of whom        as understanding of sight loss
had worked with RNIB previously and        and ongoing engagement and
some who hadn’t, to bring a different      communication.
perspective to discussions.
                                            eviewing RNIB’s Involvement
                                           R
                                           strategy and associated structures.
          Audio Hear members
          talking about the
          importance of bringing           raining and development
                                          T
          lived experience                to support blind and partially
 into RNIB’s work                         sighted people to better
 rnib.in/4-Constitutional-Members         contribute to RNIB’s work, or
                                          that of any other organisation,
                                          including at board level.

                                                                                   13
In August to October 2020, staff        Dan, Head of Organisational
     representatives and the National        Effectiveness, considers the
     Involvement team facilitated nine       contribution from blind and partially
     online discussion groups and liaised    sighted people:
     with members via email and phone
     to develop an action plan to realise                        “I’ve seen two really
     these themes.                                               tangible shifts this
                                                                 last year,
     Involving people outside of the                             involvement of
     organisation can be a daunting                              people through the
     prospect, but this example of a                             Constitutional
     successful collaboration on highly                          Members process,
     sensitive and sometimes complex                             and listening in
     matters has proved that we can                              real-time to how
     overcome any perceived barriers.        people were being affected during the
                                             first lockdown. These have materially
                                             sharpened our focus – particularly on
     Encouragingly, most of the original
                                             emotional wellbeing and access to
     constitutional members continue to
                                             information, both of which have ripple
     remain engaged with us in some way,
                                             effects across all other areas if they are
     either through this work, as members
                                             not addressed. This helps us
     of our Involvement Advisory group or
                                             substantially in setting achievable
     the Connect Voices network. Through
                                             targets that have meaningful impact
     these channels they continue to share
                                             for people, which is something that
     their lived experience and work with
                                             RNIB has struggled with previously”
     us to embed the changes they have
     helped to shape.

                  Mark, Constitutional
                  Member reflects on his
                  experiences and how his
                  opinion of the RNIB has
                  changed: rnib.in/8-
                  Marks-opinion-of-RNIB

14
Making the most of local lived experience
2020 saw us breathe new life into           One visually impaired voter told us:
our local customer groups, the
Network Committees.                          “When voting in the 2019 General
                                              Election, I had to ask staff
Renamed Local Action groups, or
Advisory groups, lead volunteers              members at the polling station
continue to work with the Community           to reposition the Tactile Voting
Connection teams to look at ways              Device twice before I could cast
of reaching more blind and partially          my vote. Even then, I left the
sighted people, while ensuring the work
                                              polling station not sure if I’d cast
itself represents the diverse cultures
and demographic of the UK.                    the vote I wanted.”

In turn, the community connection
teams utilise the knowledge and lived       Ongoing work with blind and partially
experience at grassroots level to further   sighted people can only improve the
develop services and support needed         accessibility and confidentiality of
in their region. Our work in devolved       voting for thousands of people with
nations is a great example of what we       sight loss in Scotland.
can achieve.
                                            James, County Director, added:
In Scotland, the group has been
integral to the work RNIB has done on                          “I would like to
Accessibility of Voting. Our volunteers                        thank the
co-produced our response to the                                tremendous
Electoral Commission’s consultation;                           contribution made
took part in Scottish Government focus                         by our volunteers
groups and have taken part in trials of                        who work with us to
new accessible voting methods led by                           ensure that
RNIB Scotland – in partnership with                            accessible
the Scottish Government, Electoral                             information is made
Commission and the Forth Valley             available in the devolved Scottish
Sensory Centre.                             Social Security system. Improvements
                                            were also made to the accessibility of
                                            the transport system. RNIB Scotland
                                            would not be the social change
                                            innovator that it is without our work
                                            with the blind and partially
                                            sighted community.”

                                                                                     15
In Wales, campaigners and the Action       Ansley Workman, RNIB Cymru County
     and Advisory group have been central       Director, added:
     to raising the profile of the RNIB Cymru
     manifesto “A Wales without barriers                           “There is no doubt
     for people with sight loss” which is a                       that the direct voice
     crucial opportunity to influence the                         and experience of
     next Welsh Parliament in the elections                       blind and partially
     taking place in May 2021.                                    sighted people
                                                                  is making
                Campaigner and Advisory                           a difference.
                group member, Tafsila                             We have seen many
                Khan, is the face of our                          politicians have
                manifesto and her               ‘lightbulb’ moments when talking to
      powerful video highlights the             blind and partially sighted people
      barriers she faces in the built           about the everyday barriers they face.
      environment. RNIB Cymru’s                 We wait to see how the next Welsh
      manifesto calls for the 2021 Senedd       Parliament ensures that we have a
      elections – RNIB – See differently.       Wales without barriers for people
      https://bit.ly/3uQfAB8                    with sight loss”

     Our blind and partially sighted            The local Action and Advisory
     volunteers have been central to            Groups are a work in progress and
     focus groups commissioned by Welsh         will continue to be developed in
     Government to outline the barriers         conjunction with blind and partially
     that they face in accessing voting         sighted people in 2021.
     and we are working closely with the
     Welsh Government and Electoral
     Commission in Wales.

16
Bringing the sector together to
understand the lives of blind and partially
sighted people better
In 2020, national charities, RNIB,          Across the charities, we held
Guide Dogs and Thomas Pocklington           conversations with nearly 800 blind
Trust have come together to launch a        and partially sighted people,
major research study, uncovering the        discussing a wide range of topics
realities of life for blind and partially   including their sight condition, wider
sighted people in the UK today.             health and wellbeing, employment
                                            and benefits, use of technology and
This exciting and important piece           their social life.
of research will help us get a better
understanding of the experiences of         We explored what improvements
blind and partially people, in turn         people think are needed to increase
helping us to offer the right kind of       their independence and better their
support and make a more positive            quality of life. We also held in-depth
difference to people’s lives.               interviews with customers; grouped
                                            by demographic; to find out exactly
RNIB has done this kind of research in      how they felt about the topics that
the past, although these reports are        were important to them.
now somewhat outdated.

What is new is that the sector has
come together to work collaboratively
on a new piece of work which is
much bigger in scale than we have
ever seen before, creating a shared
understanding and giving us the
evidence to determine which
organisation is best placed to tackle
specific issues.

It’s also the first time we have
explicitly addressed the complexities
of emotional wellbeing and self-
identity at different stages of sight
loss, as well as that of friends, family,
and carers.

                                                                                     17
Our participants recognised the value      Hilary, Head of Research and Insight
     of speaking to a wide range of people
     and appreciate the opportunity to take                        “This ground-
     part and have their voices heard:                              breaking piece of
                                                                    research has only
      “Any research that we want to                                been made possible
                                                                    by the participation
       provide answers must be good
                                                                    of hundreds of blind
       and take a broad view not just                               and partially people
       one person’s view, like me. I                                who have given up
       have strong view on certain                                  their time to take
       things and some other people             part. I would personally like to say a
                                                heartfelt thanks to everyone who has
       might not see things in the
                                                been involved and given their views.”
       same way, because maybe the
       area they live in could be better
       or worse than mine’
       Male participant aged 72.

     The full programme of research is very
     nearly complete, and we are currently
     collating and evaluating the findings.
     We have also put in place a customer
     group for the research, to guide the
     decisions we make; ensuring that past
     our initial conversations, blind and
     partially sighted people will remain key
     to this work.

     The findings will be shared cross the
     charity sector and provide us with a
     much-needed benchmark to work from.
     Doing so will allow us to better support
     people with what matters to them, and
     design services, products and campaigns
     which better reflect their needs.

18
RNIB’s new National Involvement strategy
Following the Constitutional Members’       Sue, National Involvement
consultation, we worked with existing       Manager said::
participants to create a new look
Involvement strategy for 2021.                                   “During the
                                                                 discussions the
This strategy encapsulates exactly how                           customers were
we will work together with blind and                             very open and
partially sighted people over the next                           honest about what
year and turns our value of having                               had worked well
‘blind and partially sighted people are                          and what could
at our heart, influencing everything                             be improved. That
we do’ into a reality; so it’s crucial we                        was sometimes
involve people in its creation.             uncomfortable to hear – no one likes
                                            to hear when things haven’t gone
The previous strategy made a great          well, but it was important to get
start, laying the foundations and           the full picture so we could move
putting systems in place that made          towards finding solutions. One of the
it easier for staff to source and work      main issues the customers raised was
with people and for people to get           the lack of quality information and
involved. Throughout 2019 and 2020,         communication, particularly from
we created our ‘Connect Voices’             Trustees and Senior leaders. This point
network of customers, developed an          also came up in another piece of work,
interactive training programme to           so it confirmed there were issues that
upskill staff and instilled the voice       we needed to address.”
of blind and partially sighted people
in our recruitment process, ensuring
people are able to input into decision
making on who we employ.                             Constitutional Member
                                                     Andrea, who took part in
Working together over three months,
                                                     this work, gives her
the Involvement manager and seven
                                             thoughts here: rnib.in/6-Andrea-
people from the original Constitutional
                                             The-Involvment-Strategy
members consultation reviewed the
previous strategy and developed a
more relevant and current strategy
for the future.

                                                                                      19
When we spend time talking to             We now have a bigger and better
     people so openly, it serves as a timely   strategy to take us into 2021.
     reminder that we tend to use certain      The aims of the strategy are:
     language that isn’t well understood
     outside of RNIB. The group highlighted        e will use simple language to
                                                  W
     that words we use regularly do not           describe how we work with blind
     translate well to the public. We are         and partially sighted people,
     going to move away from jargon and           removing terminology that
     talk more about ‘working with blind          is confusing.
     and partially sighted people’ as this
     has a clearer meaning for everyone
     and better articulates what we want to        e will develop a way of measuring
                                                  W
     say and do.                                  the value lived experience brings to
                                                  RNIB’s work.
     Another interesting conversation
     looked at how we measure the
     contributions from people through             e will review and improve how
                                                  W
     their lived experience and the value         we communicate about the lived
     this has. It is a difficult thing to be      experience of sight loss to internal
     able to measure and it was interesting       and external audiences.
     to hear customers talk about how
     they felt their contribution should
                                                   e will simplify our structures for
                                                  W
     be recognised.
                                                  working with blind and partially
     We’ve started to look at how we              sighted people to allow for
     measure lived experience in RNIB             creativity and flexibility in how
     and the value this brings. We will           we do this
     start by gathering feedback through
     questionnaires and having simple          There is no doubt that the insight
     conversations with people who have        gained from people has been
     supported us. This will provide us        significant in creating the vision we
     with a benchmark as to what good          have today and with the continued
     involvement looks like and the value      support from blind and partially
     this has not only to the work, but to     sighted people, we’re confident
     customers, staff and the organisation     we will achieve these aims.
     as a whole.

                  Recorded especially for this report, RNIB’s Development Director,
                  Keith, talks about his hopes for the RNIB and the importance
                  of working together with blind and partially sighted people.
                  rnib.in/7-Keiths-Thoughts

20
During a time of reflection, customers
share their thoughts on the RNIB

“Before Connect Voices I felt     “I have been involved with
 that the RNIB were quite sight     the RNIB for many years but
 orientated and only aiding         my love for volunteering for
 the elderly. I can see that        the organisation has most
 they are changing, and they        definitely grown over the
 are coming around to new           last 9 months during the
 technologies and the ways in       Coronavirus pandemic and
 which we can change things         also my appreciation for the
 for the good of each other.        organisation and its impact
 I have really enjoyed being a      and role in our community.
 member of Connect Voices           I have seen the RNIB make huge
 during lockdown. It’s got me       strides during the pandemic
 involved a lot more than other     and I have been amazed at
 things have done before. I like    how I have felt that my opinion
 the fact that you post about       has been valued by a large
 campaigns and get people           organisation. I have a renewed
 to contribute as sources of        love and appreciation for
 information. Thank you so          the organisation and look
 much for involving me with         forward to many more years
 Connect Voices.”                   volunteering with the RNIB.”
 Alex, Connect Voices member.      Vivienne, Long-Standing Volunteer

                                                                       21
“When I started at the RNIB        “I’ve been a volunteer for
      it was as a volunteer lead in       RNIB since around 2012
      the South of England. I learned     and more recently I have
      to set up and facilitate group      started to see an increase
      sessions, and arrange a venue,      in things people can get
      which I had done a few days         involved with. I have become
      before lockdown. Then of course     a Connect lead, which means
      lockdown happened, and we           I get to work with staff
      started phone groups instead.       and volunteers, which has
      This was a massive learning         increased my confidence. I’m
      curve as I’d never done             part of the Communications
      anything like that before. This     Advisory panel and help
      year though, the virtual way        put together the regular
      of connecting has bought            Volunteer update. We are
      me great friends all over the       able to discuss what and
      country. I had never volunteered    how communications are
      anywhere before, and now,           sent out and if anything is
      because the RNIB taught me          incorrect, which has been
      that my life skills and lived       a big problem in the past. I
      experience were valuable, I lead    believe that the panel are
      the phone group, I am governor      really helping to get this right.
      of our Local Health authority       Overall, I feel that, we’re really
      and have been involved with         being listened to which is a
      RNIBs Constitutional Members        great feeling and it is lovely to
      consultation. Thank you RNIB.”      be able to make a difference.”
     Karen, South West Action             Amanda, Long standing Volunteer.
     Group Member

22
Summary: Ellie Southwood,
RNIB Chairperson, 2017 to 2020.

It’s been another important year           give so generously to our recruitment
for RNIB’s commitment to involving         processes. The insight of our customers
blind and partially sighted people         is a valuable asset; and one which will
in all we do. Regularly involving          continue to help us recruit RNIB staff
people from across the UK is critical      in future.
for our credibility and for ensuring
we’re representative of a range of         Over my 10 years as an RNIB Trustee,
experiences. We’re continuing to reach     I’ve seen huge shifts in how we involve
out further to increase the diversity      people in our work. It’s not always easy
of people involved with us and we are      for large, well-established organisations
particularly keen to see the experiences   like ours to open themselves up and
of blind and partially sighted people      find inclusive and meaningful ways for
from BAME communities reflected            people to shape and inform our work.
more prominently in our work.              I’m proud of the progress we’ve made
                                           and look forward to this becoming
I’m delighted that blind and partially     an established hallmark of how RNIB
sighted people were involved in            serves blind and partially sighted
recruiting my successor Anna as            people in future.
Chair. This feedback was invaluable in
influencing our decision – I’m really      Ellie Southwood
grateful for the time that volunteers
                                                                                       23
Follow us online:

                          facebook.com/rnibuk

                          twitter.com/RNIB

                          youtube.com/user/rnibuk

                  rnib.org.uk

           © RNIB registered charity in England and Wales (226227), Scotland (SC039316),
RE210404

           Isle of Man (1226). Also operating in Northern Ireland.
You can also read