PARKINSON NEWS EMPOWERING PARKINSON IN ACTION BOOTCAMP 2018 - Parkinson Society Singapore
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JAN-MAR 2018 MCI(P) 081/04/2015
PARKINSON
NEWS
EMPOWERING PARKINSON IN ACTION BOOTCAMP 2018
The inaugural “Empowering Parkinson in Action” was a
weekend bootcamp held at the Bishan Community Centre
for People with Parkinson (PwP) and their caregivers. 61
PwP and their caregivers put their mental and physical
endurance to the test in two productive days, learning
all about Parkinson from the experts through interactive
lectures, forums and skill-based sessions. Caregivers attended separate sessions to learn more
about how to provide better care for their loved ones,
From doctors to medical social workers, the various and swap caregiving experiences with each other.
professionals covered an extensive range of in-depth
topics about life with Parkinson such as Intimacy & PSS would like to thank all the different parties who
Relationships with Parkinson and palliative care. made this bootcamp a resounding success - the various
medical and care professionals from the National
Highlighting the importance of exercise, workout sessions Neuroscience Institute, Tan Tock Seng Hospital,
conducted by physiotherapists and sports instructors Singapore General Hospital, Khoo Teck Puat Hospital,
interspersed the lectures. There was even a live cooking Changi General Hospital and Sengkang General Hospital;
demonstration by a professional chef and a dietician volunteers as well as the participants who demonstrated
who prepared a simple yet nutritious dish which the the tenacity to immerse themselves in learning and
participants could prepare at home! intense physical activities during the event.
PREVENTING DETERIORATION STARTS WITH
THE CHOICE OF DOING REGULAR EXERCISE
It has been quite a long time since I last wrote for the We all know Parkinson is unfortunately a degenerative
newsletter. I hope all our Parkinson warriors and family condition which causes deterioration of many things
members are keeping well. Recently, a daughter of my overtime, in particular, movement and speech. However,
ex-patient with Parkinson shared with me that her dad’s we can choose to accept early intervention such as
condition was deteriorating. The lovely uncle I saw a physiotherapy (PT), occupational therapy (OT) and speech
few years ago showed improvement in his speech at therapy (ST), and even actively pick up relevant exercises
one stage but his mobility got worse and he began to if our doctors do not see an immediate need for active
deteriorate overall. Such scenarios are commonplace therapy interventions. The conscious decision to actively
to PwP, their families and their therapists. As therapists, manage Parkinson early will help to build strength and
we often struggle to get patients to commit to a faithful muscle reserves to slow down deterioration.
exercise routine.
During the study visit, we also saw the Speech Therapists,
In contrast, I recall my study trip four years ago to Physiotherapists and Occupational Therapists combining
two Centres of Excellence for Parkinson – Struthers the Lee Silverman Voice Technique (LSVT) LOUD and
Parkinson’s Center, and Parkinson’s Disease (PD) LSVT BIG to enable PwP to practise both their speech and
and Movement Disorder Center at the University of movement exercises simultaneously. The LSVT Loud speech
Florida. At these centres, I saw the strong desire for programme has been proven to improve the speech of PwP
knowledge to manage Parkinson early from PwP, and in terms of loudness and clarity of speech, and the LSVT
their determination to follow-through with therapy and BIG was found to help PwP increase amplitude of limb and
exercises. That determination to manage Parkinson body movement that generally improves speed and balance.
early made a difference to the outcomes and quality of Having tried these techniques with patients and seen the
life – many of them were still driving independently for success, I hope to leave you with a few sets of the LSVT
two hours to the centre for exercises, and several elderly LOUD and BIG exercises, and hope that you can make
patients more than double my age could stretch better the choice of doing regular exercise to improve or prevent
than me and my fellow therapists! deterioration starting today.
EXERCISE 1:
FLOOR TO CEILING
Starting position – Sit at the edge
of the chair with BIG POSTURE.
1. Reach OUT BIG.
2. Reach DOWN BIG.
3. Reach UP BIG.
4. Reach BACK BIG.
5. COUNT TO 10 LOUDLY! KEEP
YOUR POSTURE BIG!
6. End BIG with hands on thighs.
7. Repeat 10 times.
EXERCISE 2:
SIDE TO SIDE
Starting position – Sit at the edge
of a chair with BIG POSTURE.
Place one hand on the chair next
to you. Start with your arm out to
the side with a BIG HAND.
1. Reach ACROSS your body with a BIG
REACH and BIG PUSH with your leg.
Maintain your BIG POSTURE.
2. SING UP SCALE DO-RE-MI-FA-SO-
LA-TI-DO LOUD AND KEEP YOUR
POSTURE BIG!
3. End BIG with your hand on your thigh.
4. Repeat 5 times to each side.
EXERCISE 3:
FORWARD STEP AND REACH
Starting position - Sit at the edge
of the chair with BIG POSTURE.
1. STEP FORWARD with one foot and
LAND BIG. Open your arms and
hands BIG and say HELLO LOUDLY!
2. Return the same foot back to starting
position with a BIG STOMP and a BIG
SLAP of your hands on your thighs.
SAY BYE LOUDLY.
3. Repeat 5 times with each foot.
You may also find the youtube video on How to do LSVT BIG exercises (https://youtu.be/fpTqcWs2NUY) useful. I hope that
these exercises are beneficial and may we continue in our journey towards fighting PD successfully.
Yours truly,
Betty
Ms Betty Wong previously worked in the public healthcare institution as a Senior Speech Therapist.
(Volunteer
Currently, she works on healthcare policies at MOH, and volunteers at PSS and a nursing home. Speech Therapist)
PLEASE NOTE THAT THE COPYRIGHT OF THESE PICTURES AND EXERCISES BELONG TO LSVT GLOBAL INC. THESE ARE PROVIDED HERE ONLY AS A GUIDE TO BENEFIT PWP. PLEASE DO THESE
EXERCISES WITH A CAREGIVER BESIDE YOU. IF YOU HAVE AN OLD INJURY OR HIGHLY STIFF LIMBS, PLEASE CONSULT YOUR DOCTOR/THERAPISTS BEFORE COMMENCING THESE EXERCISES.
LIFE IN BALANCE – CAREGIVERS’ WORKSHOP
EMOTIONAL FREEDOM HOW TO MANAGE
TECHNIQUE THE FREEZING OF GAIT
Emotional Freedom Technique or EFT is a healing Freezing of gait (FOG) is defined as a brief, episodic
technique that is easy to learn and produces profound absence or marked reduction of forward progression
effects for our participants such as relief from stress, pain of the feet despite the intention to walk. It is one of the
and distress. EFT uses elements of Cognitive Therapy and most debilitating motor symptoms in PwP as it may lead
Exposure Therapy, and combines them with acupressure, to falls. This workshop aims to teach participants about
in the form of fingertip tapping on meridian points. strategies to assist PwP when they experience this.
5 May 2018 (Saturday)
9.30 AM to 12.00 PM
16 June 2018
Fee: $20 (PSS Member) / $100 (Non-PSS Member)
(Saturday)
This programme is conducted at the Parkinson Centre 9.00 AM to 12.00 PM
by Dr Tan Siok Bee. To register, please call the Centre at
6353 5338 or email info@parkinson.org.sg.
Fee: $20 (PSS Member) / $30 (Non-PSS Member)
This programme is conducted at the Parkinson Centre
and is strictly for caregivers only. To register, please call
the Centre at 6353 5338 or email info@parkinson.org.sg.
MOVE TO BEAT
PARKINSON 2018
TO ENQUIRE
please call the Centre at 6353 5338
or email info@parkinson.org.sg
CENTRE Besides serving the local Parkinson community, PSS aims to
EVENTS foster a sense of belonging amongst the Parkinson community
through social events and gatherings.
CHINESE NEW YEAR REUNION 2018
PSS welcomed the Year of the Dog with our annual
Chinese New Year Reunion!
The Chinese New Year event at the Parkinson Centre
brought PwPs and caregivers together for a morning of
fun activities culminating in a traditional reunion lunch
for the family they found in the Parkinson community.
Amongst fellow PwPs, our beneficiaries found a shared
sense of camaraderie and belonging, which fulfils their
emotional and social needs.
This year, 91 people with Parkinson, their caregivers and
volunteers came together to celebrate the Chinese New
Year with a full morning of nonstop activities.
From the lohei yusheng to a competitive game session
with the students from Pioneer Junior College and lucky
draw for all the participants, the morning air was filled
with the lively sounds of laughter and Chinese New Year
festivities. We were pleased to see smiles all around
during the CNY Reunion in 2018 and would like to thank
everyone from the staff to the volunteers who made this
event possible.
THE FATHER THEATRE PLAY
The National Neuroscience Institute invited 22 PSS members
and volunteers to join in their fundraising evening featuring the
theatre play, The Father.
Staged by local theatre company Pangdemonium, The Father
explores the poignant tale of dementia, told from the perspective
of a 70-year-old man’s deteriorating mind.
According to the Alzheimer’s Association, it is estimated that
50 to 80 percent of those with Parkinson eventually experience
Parkinson-related dementia. Symptoms can include forgetfulness,
slow thought processes and difficulty in concentrating. Some
people find it increasingly difficult to make decisions, plan
activities and solve problems. This can affect everyday activities E
such as dressing themselves or cleaning (Parkinsons’ UK, 2018). ON
M IT
Please consult your doctor, if you suspect you or your loved ones
AD
have these symptoms.
PSS BOARD PARKINSON SUPPORT
PRESIDENT
GROUP CALENDAR 2018
Ms Julie Lau
Changi General Singapore General Tan Tock Seng
VICE PRESIDENT Hospital (CGH) Hospital (SGH) Hospital (TTSH)
Mr Marcus Lam
Moving with PD: Advanced Parkinson’s
SECRETARY Reviewing Movement
Dancing as Therapy for People
Management: Deep Brain
with Parkinson’s Disease
A/Prof Louis Tan Strategies Stimulation
2 April 2018
26 April 2018 12 April 2018
11am – 1pm
TREASURER 2.30pm – 4.30pm 2.30pm – 4.30pm
Physiotherapist
Ms Christine Kang Physiotherapist Dr. Nicolas Kon Kam King
ASSISTANT TREASURER
What Am I In For?
Mr Hung Kwang Hou Understanding Your Diagnosis
Coping with 帕金森与舞謟 (华语)
Parkinson’s Disease
and Treatment Regime 5月10日
COMMITTEE MEMBERS 7 May 2018 下午2时30 分至 4时30分
31 May 2018
A/Prof Au Wing Lok 11am – 1pm
2.30pm – 4.30pm Ms Tay Ming Min
Dr Tan Siok Bee Doctor
Medical Social Workers 高级职能治疗师
Ms Neo Lay Tin
Ms Theresa Goh
Cognitive Strategies Parkinson’s & Dance
Mr Melvyn Chiang A Conversation on Speech
for Enhancing Occupational
and Swallowing 14 June 2018
Dr Dawn Tan Performance
2.30pm – 4.30pm
21 June 2018
Dr Tay Kay Yaw 2.30pm – 4.30pm
4 June 2018
Ms Tay Ming Min
Ms Li Wei 11am – 1pm
Sr Occupational Therapist
Speech Therapist
Dr Tan Hooi Hwa Occupational Therapist
Dr Tan Boon Wan
Ms Susan Wong Sessions conducted by CGH will be Sessions conducted by SGH will be Sessions conducted by TTSH will be
held at Seminar Room 34/35, Level held at the Learning Space (Block 6, held at the National Neuro-science
3 Inte-grated Building (opposite Level 1). For enquiries, please contact Outpatient Clinic (Level 1). For
EDITORIAL TEAM Medical Social Services). For Nurse Usanee at 9295 3331 or email enquiries, please call 6357 7138 or
enquiries, please call Medical Social neurocare@sgh.com.sg website http://www.nni.com.sg.
Ms Eileen Wee Services at 6426 8600 or 6426 8601.
Ms Neo Lay Tin
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Information correct at the time of printing
Please make cheque payable to ‘Parkinson Society Singapore’.
PARKINSON SOCIETY SINGAPORE (PSS)
UEN S96SS0203J
Blk 191 Bishan Street 13 #01-415 Singapore 570191
Tel: 6353 5338 I Email: info@parkinson.org.sg
www.parkinson.org.sg
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