YEAR IN REVIEW 2020 - Peter MacCallum Cancer Centre

Page created by Brandon Sandoval
 
CONTINUE READING
YEAR IN REVIEW 2020 - Peter MacCallum Cancer Centre
in touch
News from the Australian Cancer Survivorship Centre                                                                                                          January 2021

                                             YEAR IN REVIEW 2020

At the 3rd Victorian Cancer Survivorship Conference. From left: Prof Deb Mayer, Helana Kelly, Kyleigh Smith, Anton Enus, Prof Jon Emery, Prof Michael Jefford, Michelle Barrett.

Message from the Director
                                                            The Australian Cancer Survivorship                          2020 was a challenging year for many.
                                                            Centre (ACSC) aims to improve                               COVID-19 continues to affect many
                                                            outcomes for people affected by                             aspects of our lives, including the way
                                                            cancer. We work with clinical providers                     we deliver and receive healthcare. We
                                                            (medical, nursing and allied health)                        thank our colleagues across all sectors of
                                                            at Peter MacCallum Cancer Centre                            healthcare and the community for your
                                                            (Peter Mac) and throughout Victoria,                        ongoing work to support cancer survivors
                                                            as well as survivors and a range of                         and their families. We look forward to
                                                            organisations, to enable improved care                      continuing to work with you in 2021.
                                                            for survivors, their families and carers.                   We invite you to read our ‘Year in review’,
                                                                                                                        which highlights our many achievements
                                                            We are very grateful for ongoing funding
                                                                                                                        in 2020, including celebrating our 10th
                                                            from Peter Mac and the Victorian
                                                                                                                        birthday and co-hosting the 3rd Victorian
                                                            Government to support our work.
                                                                                                                        Cancer Survivorship Conference.
                                                            The ACSC has a statewide role in
                                                                                                                        To learn more about the ACSC or to
                                                            the development of education and
                                                                                                                        explore opportunities to collaborate,
                                                            resources for both survivors and health
                                                                                                                        visit our website petermac.org/
                                                            professionals. We provide advice
                                                                                                                        cancersurvivorship, email contactacsc@
                                                            regarding models of care, and while
                                                                                                                        petermac.org or phone +61 3 8559 6220.
                                                            our focus is not primarily on research,
                                                            we strongly support and collaborate                         Professor Michael Jefford
                                                            in research relevant to survivorship.

     Please consider the environment before printing me.                                                                                                                 Page 1
YEAR IN REVIEW 2020 - Peter MacCallum Cancer Centre
in touch
News from the Australian Cancer Survivorship Centre                                                                                 January 2021

   10-year birthday
   The ACSC celebrated 10 years of
   service in 2020! Since 2010, the ACSC
   has been providing information
   and support to survivors and carers,
   education and training for health
   professionals, and cancer survivorship
   leadership and guidance. We are
   immensely proud of our achievements
   to date, and grateful for your
   support and input into our work.

                                       ACHIEVEMENTS IN 2020
On the following pages, we summarise our 2020 achievements under six headings that reflect our refreshed strategic plan.

1. Provide information and support for cancer survivors and carers
Throughout 2020, we continued to                          Resources for culturally and                  Resources for young people
develop and provide information and
support for cancer survivors and carers.
                                                          linguistically diverse groups                 The ACSC proudly launched the
                                                          The ACSC partnered with the Western           ‘Adolescents and young adults’ page,
A principal means of delivering                                                                         providing resources and information
                                                          and Central Melbourne Integrated
information for survivors is the ACSC                                                                   for young survivors. The information
                                                          Cancer Service (WCMICS) to develop new
website petermac.org/cancersurvivorship,                                                                was endorsed by the Victorian and
                                                          resources for culturally and linguistically
which attracted many readers in 2020.                                                                   Tasmanian Youth Cancer Action Board.
                                                          diverse groups. This included translating
‘Breast cancer: follow-up of survivors of
                                                          the written resource ‘How to prepare for
breast cancer‘ was the most frequently                                                                  Webinars
                                                          check-ups’ into six languages (traditional
downloaded resource, with more
                                                          Chinese, simple Chinese, Greek, Italian,      In November, we presented the Cancer
than 170 downloads. We also added
                                                          Arabic, Vietnamese) and developing            Wellness Program (previously known
information to the website about
                                                          an audio-recording ‘On the road to            as Wellness and Life after Cancer) – an
‘Self-management‘, promoting the
                                                          recovery’ in six languages (Arabic,           initiative of Cancer Council Victoria.
value of taking control of one’s own
                                                          Italian, Greek, Vietnamese, Tagalog,          Typically provided as a full-day, face-
health by acquiring information and
                                                          Hindi). A promotional video was also          to-face event, the 90-minute webinar
skills that help survivors cope with
                                                          created to support health professionals       was attended by 38 cancer survivors
cancer treatment and follow-up.
                                                          to effectively deliver cancer survivorship    among a total of 51 attendees. Videos on
                                                          information to people from culturally         key topics are available to view here.
Common Survivorship Issues
                                                          and linguistically diverse backgrounds.
Directory                                                                                               We also proudly contributed to several
                                                          We thank WCMICS for their funding             consumer-focused webinars, including
This directory petermac.org/survdirect is                 and support of this important project.        those convened by the Australia and
a central hub for commonly experienced                    To access these resources, please             New Zealand Sarcoma Association
cancer survivorship issues, offering                      visit petermac.org/languages                  and Melanoma Patients Australia.
information and tools to support cancer
survivors. In 2020 the directory was
expanded to include three new topics,
bringing the total number of topics to
13. The directory was accessed 6526
times, with cancer-related fatigue
being the most widely accessed issue.

    Please consider the environment before printing me.                                                                                     Page 2
YEAR IN REVIEW 2020 - Peter MacCallum Cancer Centre
in touch
News from the Australian Cancer Survivorship Centre                                                                                                         January 2021

2. Provide education and training for health professionals

The ACSC continued to provide learning
opportunities and develop resources for
health professionals throughout 2020.

Cancer Survivorship course –
eviQ
We re-launched our revamped, free
online education for health professionals:
‘Cancer survivorship’. Hosted on eviQ
Education (a Cancer Institute NSW site),
this six-module introductory course
is relevant for all health professionals
interested or working in cancer
survivorship. The course includes the
most up-to-date evidence, explores the
health needs of cancer survivors, and
presents tools, guidelines, frameworks                    Panelists at the allied health survivorship webinar. From top left: Helen Gilby, Dr Fiona Lynch, Dr Nicole Kiss,
                                                          Prof Ray Chan, Andrew Murnane, Denise Beovich, Helana Kelly, Lauren Atkins.
and strategies to provide optimal
cancer survivorship care. Each module                     Delivering Innovative Cancer                                Association, the Victorian Comprehensive
can be completed individually.                                                                                        Cancer Centre (VCCC) and COSA to
                                                          Survivorship Care
Please visit eviQ Education today and                                                                                 deliver a survivorship-focused webinar
provide your feedback so we can continue                  In December, 54 people attended the                         for primary care health professionals,
to improve this important resource.                       ‘Delivering innovative cancer survivorship                  with 117 people in attendance, a further
                                                          care’ webinar. This free, virtual course                    186 have watched the recording,
                                                          was open to health professionals and                        which you can access here.
 Module 1
                                                          included key survivorship issues including
 Survivorship fundamentals                                                                                            We were also pleased to be panellists
                                                          the common experiences of cancer
 Cancer Survivorship                                                                                                  at two Melbourne Metropolitan
                                                          survivors, promotion of wellness and
                                                                                                                      Primary Health Network webinars
                                                          self-management, and motivational
 Module 2                                                                                                             on implementing Optimal Care
                                                          interviewing techniques. Typically run
 Models of survivorship care                                                                                          Pathways and a panellist at the
                                                          face to face, this modified event still
 Cancer Survivorship                                                                                                  Murray Primary Health Network
                                                          received excellent feedback, such as:
                                                                                                                      webinar exploring the same topic.
                                                          ‘Thank you so much for this wonderful
 Module 3                                                 session, it is very beneficial for our daily
 A multidisciplinary approach                             nursing practice! Much appreciated!‘
 Cancer Survivorship
                                                          Webinars
 Module 4                                                 In August, the ACSC partnered with
 Survivorship care plans                                  Cancer Council Victoria and the Clinical
 Cancer Survivorship                                      Oncology Society of Australia (COSA)
                                                          to present a free, allied health cancer
 Module 5                                                 survivorship webinar on ‘The important
 Self-management
 Cancer Survivorship
                                                          role allied health plays in the care of
                                                          cancer patients post-treatment – an
                                                                                                                           Peter Mac award
                                                          interactive case review’. Three hundred
 Module 6                                                 and twenty-two health professionals                              The ACSC received a 2020 Peter
 Wellbeing                                                watched the webinar live, and close                              Mac Award in the category
                                                          to 200 have subsequently watched the                             ‘World-class cancer education’.
 Cancer Survivorship
                                                          recording, which you can access here.                            Throughout 2020, the ACSC
                                                          We also partnered with the Royal                                 team delivered over one dozen
                                                          Australian College of General                                    high-quality education initiatives,
                                                          Practitioners, Cancer Council Victoria, the                      providing education to more
                                                          Australian Primary Health Care Nurses                            than 1000 health professionals.

    Please consider the environment before printing me.                                                                                                                 Page 3
YEAR IN REVIEW 2020 - Peter MacCallum Cancer Centre
in touch
News from the Australian Cancer Survivorship Centre                                                                                January 2021

3. Support improved models of survivorship care

Electronic medical record and                             Following R1, six criteria were removed,     Online survivorship care plan
                                                          six were added, and 18 criteria were
survivorship care                                         revised based on free-text comments.
                                                                                                       generator
Peter Mac, Melbourne Health and the                       Following R2, 30 quality criteria were       mycareplan.org.au is an online
Royal Women’s hospitals all moved                         retained (the framework). These included     survivorship care plan generator that
to the Epic electronic medical record                     presence of a policy for the provision       was launched in 2019. 2020 saw 1722
(EMR) system in August 2020. The ACSC                     of survivorship care, having processes       users, with 358 care plans created.
worked closely with clinical services and                 for the assessment of emotional,             Successful funding from the Victorian
the EMR team to develop templates to                      psychological and physical effects and       Government will allow for expansion
support development and delivery of                       provision of services to manage issues,      of mycareplan.org.au as part of the
survivorship care plans. This will support                a process for stratification to different    ‘Embed and spread’ project in 2021.
continuity of care for cancer survivors and               models of care, and collecting data on
primary care providers post-treatment.                    patient-reported outcomes, including         Resources
                                                          quality of life, and survival rates.
                                                                                                       There is an agreed need to enhance
Quality framework for cancer                              This work is outlined in the Victorian       the model of post-treatment care
survivorship care in Victoria                             Cancer Plan 2020–24, and the ACSC            for cancer survivors. To enable more
Funded by the Victorian Government,                       will continue the work in 2021.              people to learn about models of
we undertook an environmental scan                                                                     survivorship care, in 2020 we:
and literature review to develop a                        Improving models of care                     • published ‘Models of survivorship
Quality Cancer Survivorship Framework                     throughout Victoria                            care’ on our website
as part of the broader project titled                                                                  • developed ‘Recommendations
                                                          The Victorian Government-funded
‘How do we define and measure                                                                            for implementing and delivering
                                                          project, ‘Embed and spread optimal
optimal care for cancer survivors?’                                                                      shared survivorship care‘ in both
                                                          cancer survivorship across Victoria’,
These informed an online modified                                                                        full and summary formats
                                                          aims to increase commitment to and
reactive Delphi study conducted over
                                                          awareness of cancer survivorship care.       • created a rapid learning
two rounds. Participants were Australian
                                                          In 2020, the ACSC commenced Project            video (3 minutes) to explain
and international, and included
                                                          1, which will involve virtual educational      different models of care
consumers, multidisciplinary healthcare
                                                          roadshows to 15 Victorian cancer services,   • developed three short videos (3
providers, researchers, policymakers,
                                                          following a survey of sites’ current           minutes) on nurse-led follow-
and quality and accreditation staff.
                                                          survivorship services. Project 2 (guided       up care. The videos will be
Statements describing quality criteria for                by the results of Project 1) will expand       available in early 2021.
the Round 1 (R1) survey were presented                    mycareplan.org.au (currently available for
in three domains: policy, process and                     survivors of early-stage breast, bowel and
outcomes, participants were asked                         prostate cancers) to three further tumour
to rate the importance of each of                         types. Stay tuned for more in 2021!
68 criteria on a five-point scale, and
could make comments and suggest
additions. Quantitative data were
analysed according to pre-determined
scoring thresholds and results used to
develop the Round 2 (R2) survey. In
R2, participants ranked their 10 most
important items within each domain.

    Please consider the environment before printing me.                                                                                       Page 4
YEAR IN REVIEW 2020 - Peter MacCallum Cancer Centre
in touch
News from the Australian Cancer Survivorship Centre                                                                                 January 2021

4. Conduct and support survivorship research

The 3rd Victorian Cancer                                  Victorian Cancer Survivorship               ASCO Quality Care Symposium
Survivorship conference                                   Research Forum
                                                                                                      The ACSC was pleased to present on
The 3rd Victorian Cancer Survivorship                     Hosted by the ACSC, the 4th Victorian       ‘Defining and measuring quality cancer
Conference was held in Melbourne                          Cancer Survivorship Research Forum was      survivorship care: an environmental scan’;
just before COVID-19 restrictions.                        open to anyone interested or involved       the presentation can be accessed here.
Co-hosted by the ACSC and the                             in cancer survivorship research. Held
VCCC, we welcomed almost 200                              via webinar in November, the forum          COSA Annual Scientific Meeting
local and international delegates.                        featured Prof Ray Chan who spoke about      COSA’s 47th Annual Scientific Meeting
                                                          building successful research partnerships   focused on three themes: quality and
The conference theme was ‘A 2020
                                                          through the Queensland Collaborative        safety, implementation science and
Vision – building on learnings, partnering
                                                          for Cancer Survivorship. PhD candidate      cardio-oncology. The meeting was
for success’. Keynote speakers included
                                                          Imogen Ramsey (University of South          virtual for the first time and attracted
Anton Enus, SBS nightly news anchor
                                                          Australia) discussed her work developing    a multidisciplinary group. ACSC’s
and ambassador for Bowel Cancer
                                                          a core patient-reported outcome set for     Karolina Lisy presented on the project
Australia, who shared meaningful
                                                          survivorship. Dr Maria Ftanou spoke about   ‘How do we define and measure
insights into his lived experience as a
                                                          the study ‘Feasibility and acceptability    optimal care for cancer survivors?’
bowel cancer survivor. International
                                                          of Fear-less: a stepped-care program to
guests Professor Deborah Mayer (US)
                                                          manage fear of cancer recurrence in         Global Academic Programs (GAP)
presented on ‘Defining and delivering
                                                          people with metastatic melanoma’.           conference
quality survivorship care’ and ‘Promoting
healthy behaviours in survivors’.                                                                     The theme for the GAP 2020 conference
Professor Adam Glaser (UK) presented
                                                          Conference presentations
                                                                                                      was ‘New frontiers: leading inspired
virtually on ‘Patient-reported outcomes                   We continued to contribute to research,     cancer care’. Co-hosted by Peter Mac
in survivors, also considering partners                   presenting at several conferences.          the conference was fully virtual and
and carers’ and ‘Progress beyond the UK                                                               connected members from across
National Cancer Survivorship Initiative’.                 The 3rd Victorian Cancer Survivorship       MD Anderson’s 52 sister institution
Professor Afaf Girgis reported on                         Conference                                  network. The conference explored how
‘Trajectories of functioning in survivors                 Convened in March 2020, presentations       the integration of new technologies
and partners/caregivers’ and ‘Routine                     included Prof Jefford on ‘Evaluation        is changing cancer care, while also
implementation of PROs in clinical care’.                 of the second phase of the Victorian        highlighting the importance of keeping
Winners of the conference                                 Cancer Survivorship Program’, ‘SCORE:       patients central in thinking and practice.
awards included:                                          a randomised controlled trial examining     Prof Jefford and consumer advocate Meg
                                                          shared care (oncology/general practice)     Rynderman contributed to a webinar
• Best student presentation                                                                           on survivorship care and Helana Kelly
                                                          for colorectal survivors’ and (with
  – Dr Victoria Garwood                                                                               presented on the evaluation of the ACSC.
                                                          Helana Kelly, Manager ACSC) ‘Review
• Best oral presentation                                  and evaluation of the Australian Cancer
  – Nathan Harrison                                       Survivorship Centre’. There were further
• Best poster presentation                                presentations from ACSC staff, including
  – Paula Howell                                          Dr Karolina Lisy and Nicole Kinnane.

    Please consider the environment before printing me.                                                                                      Page 5
YEAR IN REVIEW 2020 - Peter MacCallum Cancer Centre
in touch
News from the Australian Cancer Survivorship Centre                                                                                         January 2021

Student research                                          2020 publications
The ACSC continued to work with and                       The ACSC continued to contribute to research publications.
support students during 2020. Lena
Ly, a biomedicine honours student,                        Publications                                    Other survivorship papers we were
completed work on the statewide                                                                           pleased to contribute to include:
                                                          The following 2020 publications
quality framework for survivorship                        were ACSC-led or in partnership                 Eakin EG, Reeves MM, Goode AD, Winkler
care in Victoria. Olivia Haeusler, an                     with others at Peter Mac:                       EAH, Vardy JL, Boyle F, Haas MR, Hiller
applied science (professional) student,                                                                   JE, Mishra GD, Jefford M, Koczwara
commenced work on a pilot project                         Garwood V, Lisy K, Jefford M. Survivorship      B, Saunders CM, Chapman K, Hing L,
                                                          in colorectal cancer: a cohort study of         Boltong AG, Lane K, Baldwin P, Millar L,
relating to volunteers and cancer                         the patterns and documented content             McKiernan S, Demark-Wahnefried W,
survivors at the Parkville precinct, which                of follow-up visits. J Clin Med 2020 Aug        Courneya KS, Job J, Reid N, Robson E,
will be completed by the ACSC in 2021.                    24;9(9):E2725. doi: 10.3390/jcm9092725.         Moretto N, Gordon L, Hayes SC. Translating
                                                                                                          research into practice: outcomes from the
                                                          Jefford M, Koczwara B, Emery J,
University Cancer Case                                    Thornton-Benko E, Vardy J. The
                                                                                                          Healthy Living after Cancer Partnership
                                                                                                          Project. BMC Cancer 2020;20(1):963.
Competition                                               important role of general practice
                                                                                                          doi: 10.1186/s12885-020-07454-4.
                                                          in the care of cancer survivors. Aust
The ACSC and the VCCC collaborated with                   J Gen Pract 2020;49(5):288–92.                  Howell D, Mayer DK, Fielding R, Eicher
the Australian Cancer and Health Sciences                                                                 M, Verdonck-de Leeuw IM, Johansen C,
                                                          Lisy K, Kent J, Dumbrell J, Kelly H, Piper
Competition to support the University                                                                     Soto-Perez-de-Celis E, Foster C, Chan R,
                                                          A, Jefford M. Sharing cancer survivorship
Cancer Case Competition which, in 2020,                                                                   Alfano CM, Hudson SV, Jefford M, Lam
                                                          care between oncology and primary care
encouraged undergraduate students to                                                                      WWT, Loerzel V, Pravettoni G, Rammant E,
                                                          providers: a qualitative study of health care
                                                                                                          Schapira L, Stein KD, Kocswara B; Global
consider solutions to cancer survivorship                 professionals’ experiences. J Clin Med 2020
                                                                                                          Partners for Self-Management in Cancer.
issues. The competition received 72                       Sep 16;9(9):E2991. doi: 10.3390/jcm9092991.
                                                                                                          Management of cancer and health after
registered teams (total 260 students),                    Lisy K, Kent J, Piper A, Jefford M.             the clinic visit: a call to action for self-
where 66 teams put forward submissions                    Facilitators and barriers to shared primary     management in cancer care. J Natl Cancer
(compared to 44 received in 2019). The                    and specialist cancer care: a systematic        Inst 2020 Jun 11. Online ahead of print.
winning group, ‘Climbing out of cancer’,                  review. Support Care Cancer 2020 Aug
                                                                                                          Mollica MA, Mayer DK, Oeffinger KC, Kim
are undertaking a summer internship                       17. doi: 10.1007/s00520-020-05624-5.
                                                                                                          Y, Buckenmaier SS, Sivaram S, Muha C,
with the VCCC and the ACSC and will                       Lisy K, Lai-Kwon J, Ward A, Sandhu              Taib NA, Andritsch E, Asuzu CC, Bochis
present to the Cancer Survivorship                        S, Kasparian NA, Winstanley J, Boyle            OV, Diaz S, Trill MD, Garcia PJ, Grassi L,
Advisory Committee in early 2021. The                     F, Gyorki D, Lacey K, Bishop J, Jefford         Uchitomi Y, Shaikh AJ, Jefford M, Lee
runner-up group, ‘Transfer of trust,                      M. Patient-reported outcomes in                 HJ, Johansen C, Luyirika E, Maher EJ,
                                                          melanoma survivors at 1, 3 and 5 years          Mallillin MMB, Maniragaba T, Mehnert-
survivorship care program’, presented                                                                     Theuerkauf A, Pramesh CS, Siesling S,
                                                          post-diagnosis: a population-based
to the committee in November 2020.                        cross-sectional study. Qual Life Res            Spira O, Sussman J, Tang L, Hai NV,
                                                          2020 Mar 5. Online ahead of print.              Yalcin S, Jacobsen PB. Follow-up care
                                                                                                          for breast and colorectal cancer across
                                                          Lynch FA, Katona L, Jefford M, Smith AB,        the globe: survey findings from 27
                                                          Sham J, Dhillon HM, Ellen S, Phipps-Nelson      countries. JCO Global Oncol 6:1394–1411.
                                                          J, Lai-Kwon J, Milne D, Russell L, Dax V,
                                                          Diggens J, Kent H, Button-Sloan A, Elliott
                                                                                                          Book chapter
                                                          J, Shackleton M, Burridge H, Ftanou M.
                                                          Feasibility and acceptability of fear-less:     Lisy K, Hulbert-Williams N, Ussher JM,
                                                          a stepped-care program to manage fear           Alpert A, Kamen C & Jefford M. Lesbian,
                                                          of cancer recurrence in people with             gay, bisexual, and transgender issues.
                                                          metastatic melanoma. J Clin Med 2020 Sep        In: M Watson & D Kissane (eds), Sexual
                                                          14;9(9):E2969. doi: 10.3390/jcm9092969.         health, fertility, and relationships in cancer
                                                                                                          care, Oxford University Press, 2020:1–10.
                                                          Skandarajah AR, Lisy K, Ward A, Bishop
                                                          J, Lacey K, Mann B, Jefford M. Patient-         For more information on survivorship
                                                          reported outcomes in survivors of               research, including current and
                                                          breast cancer one, three and five years
                                                                                                          completed projects, opportunities
                                                          post-diagnosis: a cancer-registry based
                                                          feasibility study. Qual Life Res 2020 Sep       for students and publications,
                                                          30. doi: 10.1007/s11136-020-02652-w.            visit the Survivorship and Living
                                                                                                          Well after Cancer page.

    Please consider the environment before printing me.                                                                                                Page 6
YEAR IN REVIEW 2020 - Peter MacCallum Cancer Centre
in touch
News from the Australian Cancer Survivorship Centre                                                                                                                                      January 2021

   5. Provide leadership around cancer survivorship

   Victorian Survivorship                                 In July, the NGO Survivorship Advocacy                                                           contributions to service delivery,
                                                          Alliance Working Party prepared a                                                                international literature, policy and
   Community of Practice                                  letter to the Federal Minister for Health,                                                       program development. He is also the
   The Victorian Survivorship Community                   strongly supporting the retention of                                                             Chair of COSA’s Cancer Survivorship
   of Practice brings together health                     telehealth item numbers through                                                                  Group and the Chair of the Survivorship
   professionals with an interest in cancer               and beyond the COVID-19 period. A                                                                Special Interest Group with the
   survivorship and the implementation                    positive response was received from                                                              International Psycho-Oncology Society.
   of new models of care, providing an                    the Hon Greg Hunt MP acknowledging                                                               Dr Karolina Lisy is an executive member
   opportunity to discuss key aspects of                  the position of the Alliance.                                                                    of COSA’s Cancer Survivorship Group.
   cancer survivorship. With the July event
                                                          The Community Support Organisations’
   cancelled due to COVID-19 restrictions,
                                                          Cancer Survivorship Care Consensus
                                                                                                                                                           Partnering with cancer
   the October webinar agenda was                                                                                                                          survivors
                                                          Statement was updated in December
   full and attracted 80 attendees.
                                                          2020 with the inclusion of 12 additional                                                         The ACSC website includes a number
   Presenters included Ms Karen Botting
                                                          signatories, bringing the total number                                                           of survivorship stories from consumers
   (Department of Health and Human
                                                          to 31. The ACSC looks forward to                                                                 coordinated by ACSC consumer
   Services), Prof Janette Vardy (Sydney
                                                          continuing these partnerships in 2021. If                                                        advocate, Meg Rynderman. Meg
   Cancer Survivorship Centre) and Prof
                                                          your community support organisation                                                              wrote her own survivor story 10 years
   Bogda Koczwara (Flinders Health
                                                          would like to know more about NGO                                                                ago and in 2020 published ‘10 years
   and Medical Research Institute).
                                                          forums and the Alliance, please                                                                  on – my story retold’. Videos of Meg
   The Online Collaborative Workspace,                    email contactacsc@petermac.org.                                                                  and her husband, John, talking about
   which is open to interested health                                                                                                                      their experience of cancer survivorship
   professionals, in 2020 consisted                                                                                                                        in brief videos, are available here.
   of 458 members. This online                                 COMMUNITY SUPPORT
   space is a forum to share ideas,                            ORGANISATIONS’                                                                              Meg also told Malcolm
                                                                                                                                                           Chandler’s story ‘We didn’t have
   events, project updates and more                            Cancer                                                                                      slip slop slap back then’.
   relating to cancer survivorship.                            Survivorship Care
   For further information or to join                          Consensus                                                                                   We encourage you to read these
   the Community of Practice or the                            Statement                                                                                   survivorship stories and more
   Online Collaborative Workspace,                             DECEMBER 2020                                                                               by visiting the ACSC website.
   email contactacsc@petermac.org.
                                                                  PURPOSE

   Non-government                                         Committee membership
                                                                  To articulate the vital role of community support
                                                                  organisations in the provision of survivorship care to
                                                                  Australians of all ages who have been diagnosed with

   organisation collaboration                             The ACSC continues to provide
                                                                  cancer.

                                                                 AUDIENCE
                                                          leadership in cancer survivorship
                                                                  •   primary care providers

   Non-government organisations (NGOs)                            •
                                                                  •
                                                                  •
                                                                      hospital-based providers

                                                          on state, national and international
                                                                      community support organisation providers and patient organisations
                                                                      funders

   have an important role in supporting                           •
                                                                  •
                                                                  •
                                                                      policy makers (State and Federal Government)

                                                          committees. Examples of some
                                                                      researchers
                                                                      cancer survivors and those affected by cancer

   cancer survivors. The ACSC remains                     (but notINTENDED
                                                                     all) of
                                                                           USE the advisory
   committed to working with NGOs to                      committee work we do are below:
                                                                  To communicate the role of community support organisations in providing
                                                                  survivorship care in order to: promote better understanding amongst audience
                                                                  groups, to consider how community providers can be best incorporated as part of the

   achieve optimal care and outcomes                              continuum of care, to improve integrated referral pathways, to support advocacy and
                                                                  collaboration within the sector (including collaborative funding opportunities) and to
                                                                  improve understanding across the health sector more broadly.

   for cancer survivors. The ‘Cancer                      Prof Michael Jefford is Chair-Elect
   survivorship in the NGO sector’ forum                  2020–21 (to be Chair 2021–22) of the
   was held in March, with 16 NGOs                        American Society of Clinical Oncology
   in attendance. The forum included                      (ASCO) Cancer Survivorship Committee.
   presentations on the top six advocacy                  This appointment – the first person
   issues pertaining to cancer survivorship               from outside the United States to chair
   for NGOs, created opportunities for                    the committee – recognises Professor
   collaboration and facilitated discussion               Jefford’s international standing in
   of the published consensus statement.                  cancer survivorship and his significant

    Please consider the environment before printing me.                                                                                                                                          Page 7
in touch
News from the Australian Cancer Survivorship Centre                                                                        January 2021

6. D
    eliver a robust, collaborative and
   sustainable program                                                                             Planning ahead
                                                                                                   In 2021 and beyond,
                                                                                                   our plans include:
                                                                                                   • launching the ACSC
                                                                                                     Strategic Plan 2020–25
                                                                                                   • delivering the project ‘Embed
                                                                                                     and spread optimal cancer
                                                                                                     survivorship across Victoria’
                                                                                                   • continuing to develop
                                                                                                     and publish survivorship
                                                                                                     resources for consumers
                                                                                                     and health professionals
                                                                                                     on the ACSC website
                                                                                                   • continuing to work with the
                                                                                                     Parkville electronic medical
                                                                                                     record team to incorporate
                                                                                                     survivorship resources
                                                                                                   • presenting at the Flinders–
                                                                                                     COSA meeting Cancer
                                                                                                     Survivorship Conference Life
                                                                                                     after Cancer - Redefined,
The team in 2020                                                                                     Reimagined and Rebuilt,
We thank everyone who has worked with us this year!                                                  18–19 March 2021, Adelaide
                                                                                                   • working with Peter Mac
Our website                                               Social media                               and Parkville colleagues
                                                                                                     to improve the models of
During 2020, the ACSC website was                         In February 2020, the ACSC launched
                                                                                                     post-treatment care
accessed 26,047 times with 20,390 unique                  our social media presence:
page views! People visiting our website                                                            • presenting and
                                                                     Twitter (@ACSC_PeterMac):
spent an average of 1.28 minutes on                                                                  publishing our work
                                                                     The ACSC had more than
the homepage. The most frequently                                    200,000 Twitter impressions   • planning for the 4th Victorian
viewed pages were the ACSC homepage                       (number of times users saw ACSC’s          Cancer Survivorship Conference
and the ‘Survivors and carers’ page.                      tweets). Since the inception of our        to be held in 2022
The ACSC is proud to provide                              Twitter handle in March, we have more    • delivering a volunteer-led
resources for survivors, carers                           than 380 followers and 240 tweets.         survivorship pilot project
and health professionals. There                                                                      with Parkville Head and
                                                                    LinkedIn (Australian Cancer
were over 4000 downloaded PDF                                                                        Neck Cancer Services and
                                                                    Survivorship Centre):
resources throughout 2020!                                                                           Cancer Council Victoria.
                                                                    Follow the ACSC on
In 2020 we developed four newsletters                     social media for event updates,
and a Year in Review summary                              new resources and research!
to add to our publications.

  Australian Cancer Survivorship Centre
  Locked Bag 1, A’Beckett Street
  Melbourne VIC 8006
  Email: contactacsc@petermac.org
  petermac.org/cancersurvivorship

    Please consider the environment before printing me.                                                                              Page 8
You can also read