NEWSLINK 17 - AUGUST 2018 - Spire
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AUGUST 2018
NEWSLINK
Spire is a service division of AQA Victoria
Let Me Paint The Scene 17
Wheelchair Abroad – Vanuatu Assistance in transitioning to the NDIS Getting Active Outdoors
TRAVEL 9 NDIS 12 LEISURE 18
AQA Victoria Ltd
ABN 90 006 691 185
// CONTENTS
Address INFORMATION
440 Heidelberg Road
Fairfield Victoria 3078 4 AQA will soon be moving premises
T 03 9489 0777 14 Painting by Warrnambool mouth artist Simon Rigg is used on
T 1800 999 128 international card range
F 03 9482 4371 16 Wheelchair Rugby in Echuca
E admin@aqavic.org.au
W aqavic.org.au 16 Women with Disabilities Victoria (WDV)
Postal Address SPIRE EVENTS
PO Box 219
Fairfield Victoria 3078 6 Upcoming Events
Board of Directors 7 SCI Community Network Groups Round-up
Chairperson
Colin Daws PEER SUPPORT
Treasurer 8 From Peer Support to Peer Mentoring to Peer Coaching
Greg Schinck
Company Secretary LEISURE & TRAVEL
David Schreuder 9 Wheelchair Abroad – Vanuatu
Director 17 Let Me Paint The Scene
Michelle O’Sullivan
18 Getting Active Outdoors
Director
Joshua Fisher
HEALTH & WELLBEING
Director
Dave Jacka 10 Reviewing Autonomic Dysreflexia
Director
Alexia Archbold
NDIS
Director 12 Assistance in transitioning to the NDIS
Maryann Jamieson 13 Navigating the NDIS: Improved Health and Wellbeing
RESEARCH
15 Identifying the priorities of inclusion and mainstream capacity
Spire NewsLink is the official newsletter
building for people with spinal cord damage or post-polio
of AQA Victoria Limited (AQA), and is
// REGULAR FEATURES
published bimonthly.
Spire NewsLink seeks to publish material
of interest to people experiencing issues
in life arising from a spinal cord injury or
other physical disability, their family and
social networks, clinicians, professionals
ADVERTISEMENTS
and other organisations with an interest in 4 Freedom Motors Australia
this community.
Spire NewsLink welcomes content for
5 Wheelability
publication. Content will be published at 5 Inspired Travel Managers
the discretion of the Editor who retains the
right to edit all submissions as they see fit.
5 Coloplast
Information in Spire NewsLink is
15 Wheelies Van Rentals Cairns
furnished solely as a guide to the existence
and availability of goods or services. JOKES PAGE
Any opinions expressed in Spire NewsLink
are not necessarily those of AQA or the
18 Various Jokes
Editor. Original material in NewsLink can
only be reproduced with permission from CLASSIFIEDS
the editor. Donations towards production
costs are greatly appreciated.
19 Various items for sale and items for free
Copyright © Spire. All rights reserved.
Volume 32: Number 04 / August 2018
2 .org.au August 2018
FROM THE CEO \
WE’RE ON THE MOVE!
You may remember back after so that later this year AQA
in 2000 when AQA made the will be on the move!
move from the building we Our plan is to rent the current
once occupied in Station St to building at 440 Heidelberg Rd
our current office here at 440 so over the next few weeks we
Heidelberg Rd. will be working with Miles Real
Since that time we have Estate to find a tenant for these
continued to grow to the point premises. You may come across
where almost every square online advertising or if you
inch of our current office space are passing the office you will
is fully utilised. In order to see some ‘For Lease’ signage
progress our plans to grow outside the building. Peter Trethewey
and diversify our services, to We look forward to keeping Chief Executive Officer
create spaces to train staff you updated as this project Spire, AQA Victoria Ltd, Qualcare
and volunteers, and to make progresses and to welcoming petertrethewey@aqavic.org.au
facilities available for our you to the building once we are
community to gather, it’s time to up and running.
make our next move.
We are also pleased to We are proud to see his
Having looked around the announce that AQA’s Nazim connection and positive
market for the last 18 months, Erdem was announced as the influence with the spinal cord
we recently secured a long winner in the Emerging Leader injury community recognised in
term lease on a building just category at the Victorian this Award.
up the road at 416 Heidelberg Disability Awards. Naz has
Road, Fairfield. We are now in been at the forefront of leading
the process of fitting out the change in AQA’s peer-support
building to suit our operations services over the last 20 years.
and to create the spaces we are
HIGHLIGHTS
Welcome to the August 2018 On pages 10–11, we share worker for Bill, who’s an avid footy
issue of NewsLink. an insightful article posted on lover living with Cerebral Palsy.
Our SCI Community Networks facebook by ‘The Rollin’ RNs’
The inaugural Active Outdoors
continue to power along with lots Patty and Roberta (both are
Day Program was held in June at
happening. Please turn to page 7 nurses living with SCIs) about
the Mt Evelyn Recreation Camp.
for a recap and more. living with Autonomic Dysreflexia.
Please turn to page 18 to read
Spire is extending from general There are various ways AQA can about this great new progtram
peer support and peer mentoring assist as you transition to the initiative.
to peer coaching. To read more NDIS or prepare for your plan
Finally, below are this year’s
about this initiative, please turn review - workshops, pre-planning
contribution deadlines for the
to page 8. assistance, support coordination
upcoming editions of NewsLink:
and more. Please turn to page 12
Spire team member, Josh, to see how we can help.
recently returned from a family October 1st October 2018
wedding to Vanuatu. You can read In ‘Let Me Paint The Scene’ on December 1st December 2018
about his adventure on page 9. pager 17, Wayne Bradshaw shares
his unique story of being a support
August 2018 .org.au 3
INFORMATION
AQA will soon be moving premises
Many of you will remember back in 2000 our
move from the building we once occupied in
Station Street, Fairfield to our current office here
at 440 Heidelberg Road, Fairfield.
Since that time, we have continued to grow to
the point where almost every square inch of our
current office space is fully utilised. In order to
progress our plans to grow and diversify our
services, to create spaces to train staff and
volunteers, and to make facilities available for our
community to meet, the time has now come to
make our next move.
We recently secured a long-term lease on a see a ‘For Lease’ sign outside the building. We’re
building only a few doors up the road at 416 not disappearing, we’re just relocationg to a new
Heidelberg Road, Fairfield. We are now in the business premises a few metres up the road.
process of fitting out the building to suit our
We look forward to keeping you up-to-date as
operations and to create the spaces we’re after,
this project progresses and to welcome you to
and so later this year AQA will be on the move!
the building once we are up and running.
If you happen to come across online advertising
or if you are passing the current office, you will
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August 2018 .org.au 5
SPIRE EVENTS
Upcoming Events Date Time Location
What’s Out There day (WOT) 15th August 2018 11am – 4pm Royal Talbot Rehabilitation Unit
1 Yarra Boulevard, Kew
Ballarat Regional Network 16th August 2018 11am – 3pm TBA
Women with SCI Network 18rd August 2018 2pm – 4pm SPAN Community House
Yoga and meditation session 64 Clyde Street, Thornbury
Geelong Regional Network 20th August 2018 11am – 3pm Deakin University Waterfront
Deakin University research project 1 Gheringhap St, Geelong
Mornington Regional Network 27th August 2018 11am – 3pm TBA
Spinal Cord Injury Network of 30th August 2018 4pm - 6pm Lonely Planet Offices
Professionals (SCIP) 551 Swanston St, Carlton
Shepparton Regional Network 5th September 2018 11:30am – 3pm TBA
Deakin University research project
Bendigo Regional Network 12th September 2018 11am – 3pm TBA
Geelong Regional Network 17th September 2018 11am – 3pm TBA
Mornington Regional Network 17th September 2018 11am – 3pm TBA
Ballarat Regional Network 20th September 2018 11am – 3pm TBA
Shepparton Regional Network 3rd October 2018 11:30am – 3pm TBA
Women with SCI Network 6rd October 2018 2pm – 4pm SPAN Community House
Womens defence class 64 Clyde Street, Thornbury
Bendigo Regional Network 10th October 2018 11am – 3pm TBA
Geelong Regional Network 15th October 2018 11am – 3pm TBA
Mornington Regional Network 15th October 2018 11am – 3pm TBA
Ballarat Regional Network 18th October 2018 11am – 3pm TBA
Shepparton Regional Network 7th November 2018 11:30am – 3pm TBA
Bendigo Regional Network 14th November 2018 11:30am – 3pm TBA
Ballarat Regional Network 15th November 2018 11am – 3pm TBA
Spinal Cord Injury Network of 15th November 2018 4pm – 6pm Lonely Planet Offices
Professionals (SCIP) 551 Swanston St, Carlton
Geelong Regional Network 19th November 2018 11am – 3pm TBA
Mornington Regional Network 19th November 2018 11am – 3pm TBA
Women with SCI Network 1st December 2018 TBC TBA
Christmas Gathering
What’s Out There day (WOT) 12th December 2018 11am – 4pm Royal Talbot Rehabilitation Unit
1 Yarra Boulevard, Kew
Geelong Regional Network 17th December 2018 11am – 3pm TBA
Mornington Regional Network 17th December 2018 11am – 3pm TBA
6 .org.au August 2018
SPIRE EVENTS
SCI Community Network Groups Round-up
At Spire, we believe that people sharing their own experience memorabilia.
of life with a spinal cord injury (SCI), or similar complex Our two other Community
physical disability, can bring enormous benefit to themselves Networks are also progressing
and others. In partnership with local SCI communities, greatly!
we are progressively establishing community networks Spinal Cord Injury Network
which seek to help people connect in order to develop and of Professionals (SCIP) have
share their skills and knowledge, take part in social events, had a name change! They are
now going by Professionals
workshops and enhance their participation in the community.
with Spinal Injury Network.
They’re meeting again on
Survey results are in, and the complex issues of income
August 30. They will focus on
there has been lots of interest investments and superannuation.
progressing outcomes from
for a new Network to start up in Although these topics can be
the planning meetings that
the Gippsland area. The location a little complicated, the guest
took place in the first half of
for the first Gippsland Network speaker explained it as simply as
the year; continuing to help
meeting will be Warragul in the possible, with the group learning
others with spinal injuries (as
next couple of months, so keep some practical tips and tricks on
well as each other) in all stages
an eye out for the date and how to get the best investments
of employment, developing its
details. for their own individual needs.
membership, and advertising
The Mornington group is still The Geelong group have the group.
in its infancy but is growing fast been busy checking out the
Meanwhile, the Women with
with six members attending last local areas! They recently
SCI network group is starting
meeting. The group discussed toured the beautiful and very
to flourish and is meeting
NDIS, travel, modifications, accessible Geelong Library.
every two months. In June
lifestyles, and the services Impressed by its modern
they hosted a guest speaker on
offered by Spire. It was a services and technology, most
Sexuality and Sexual Health.
great opportunity to share of the members also took the
For their next meeting on
experiences and learn from opportunity to renew their
August 18, they will participate
each other. library membership! They also
in a yoga and meditation
visited the Geelong Art Gallery
The Shepparton group session, tailored for all levels
which is located next door,
thoroughly enjoyed their July of ability. Looking forward, on
taking their time to view its large
meeting where accessible October 6 they will undertake
collection. The Geelong group is
travel was the topic of a practical and informative self-
really enjoying getting out and
discussion. Guest speaker, defence class!
about in their own local area
Bill from TravAbility, shared and learning more about the There’s always a lot happening
his vast insider knowledge on accessible community services in with our Community Networks,
traveling with a disability within the region. and if you would like to get
Australia and overseas; clear involved, please contact us on 03
The Ballarat group have also
communication and organisation 9489 077 or info@spire.org.au.
been out exploring! Escaping
are key to a smooth traveling
the cooler weather, the group For up-to-date information
experience.
visited the Aviation Museum on any of the SCI Community
The Bendigo group welcomed and were fascinated to learn its Network Groups, please visit
a guest speaker from Jackman history, with the museum having www.spire.org.au/community/
Flett and Associates, a local a unique collection of modern community-networks.
financial advisor, who shared his and wartime aircraft, engines,
knowledge with the group on radios, cameras and aviation
August 2018 .org.au 7
PEER SUPPORT
From Peer Support to Peer Mentoring to Peer
Coaching
Peer support is a powerful tool. Building on this, Spire is healthy lifestyles.
extending from general peer support and peer mentoring to Employment Coaches will focus
peer coaching. This will allow us to continue to connect people specifically on supporting others
in the SCI community with someone that has faced similar with SCI in all aspects of their
challenges and worked through them to successful outcomes. career development or study
goals – to encourage people
with SCI to develop their full
Peer support is a powerful emotional rollercoaster, practical
professional potential and to
tool. People who have lived- tips and tricks, and sharing more
find, retain and advance their
experience of spinal cord injury personal challenges and issues
employment status. They will be
(SCI) possess knowledge and such as bladder and bowel
open to supporting people who
experience that is incredibly issues, family, relationships and
may be beginning their career,
valuable in helping others in sexuality, parenting, equipment
looking to re-enter the workforce
similar circumstances. and modifications, travel etc.
post-injury, employed full or
Since 1987 Spire has been Until now we have been part time, unemployed or going
providing SCI peer support. It is providing general peer support through a work/career transition.
an effective way of addressing and peer mentoring, supporting
Both peer coaching services
the stresses and challenges that all aspects of a person’s life but
will be delivered by trained
people living with SCI may face, as we progress our vision and
coaches with significant lived-
and provides a wide range of approach, based on feedback
experience of life post-SCI with
benefits to someones’ health, from our volunteers and
particular success and experience
wellbeing and quality of life. We community, a new space has
in their area of coaching (i.e.
believe one persons’ experience emerged for peer coaches. Still
health & wellbeing outcomes or
of SCI and everything that coming from the valued lived-
employment/career outcomes).
comes with the resulting change experience perspective, the
The services will be delivered
to their life can be tremendously coaches’ aim will be to support
principally via telephone, but other
valuable when shared with and guide people around specific
methods may also be available –
another person going through areas of life – to set personal
Skype, face-to-face, email.
the same, or similar experience. goals and work systematically
to resource oneself to achieve This natural extension from
Casual peer support can often
them. To start, we will be general peer support and peer
turn into an ongoing peer
developing coaches around the mentoring to peer coaching will
mentoring relationship where
areas of Health and Employment. allow us to continue to connect
often people with a newly
people in the SCI community with
acquired injury connect with, and Peer Health Coaches will assist
someone that has faced similar
are resourced by, someone else people to frame expectations,
challenges and worked through
with lived-experience as they make informed decisions and to
them to successful outcomes with
navigate their transition from take ownership of and achieve
whom you can build a comfortable
rehab to life in the community. their overall health and wellbeing
and trusted relationship, and often
At Spire we have 70+ peer goals. It is not a prescriptive
ongoing friendship.
support volunteers, coordinated health intervention but will utilise
by a small group of paid peer community lived-experience We are continuing to develop
support workers. The volunteers and knowledge, supported by this space, so look forward to
all undertake intensive peer up-to-date clinical information what is to come! Please contact
mentor training, and along to cover elements, including us at info@spire.org.au if you
with their own experience, can but not limited to; bladder and interested in becoming a coach
provide support and guidance bowel health, skin and wound or would like to receive support
around a range of areas; the management, mental health and in these areas.
8 .org.au August 2018
TRAVEL
Wheelchair Abroad – Vanuatu
Spire team member, Josh, recently returned from a family I was then taken to service desk
wedding to Vanuatu and he shares his adventure with us. and filled out the relevant forms,
with the much needed help from
the resort manager who was
I recently ventured overseas contraption for the next few
waiting for me.
for a family wedding to hours was simply unworkable.
Vanuatu, where you could say, And to the staff’s credit, they I eventually arrived at the
I encountered some logistical were very accommodating by resort after 15 hours in transit,
hurdles. I’ll start from the putting me in the business including the bumpy drive in
beginning... lounge to pass the next few the dark through torrential
hours. rain. By now, as you would all
I had a 7am flight to Vanuatu
appreciate, I was exhausted and
with a connecting flight through Eventually I board the plane
ready to turn in for the night.
to Sydney, with an expected and arrive in Vanuatu, where
But not in this story!
layover of just under 2 hours. I’m pumped and eager to get to
Being the intelligent readers the resort so I can relax with a As I approached Villa 14,
you all are, you may have cheeky vino. Of course to do so, pushing in my rickety wheelchair
come to the assumption that I’ll need my trusty wheelchair. supplied by the Vanuatu Airport
this layover blew out. It was in the pouring rain and sinking
As I am sitting patiently in the
now an 8 hour stopover! This sand, I hear cries of laughter get
aisle chair at baggage claim
happens from time to time so louder with each metre gained.
awaiting my luggage, I ask the
it’s no biggie, however, when I staff member who was ushering As I enter the villa, it feels like
asked for my wheelchair back me “My wheelchair will come I’m entering a Roman Bathhouse
(I was ushered over from the here, yes?” She smiles and with way too much nudity for
plane to the departing gate in replies with “YES” (I think she my liking. Great, my roommate
an aisle chair), the support staff was humouring me, though we decided to hold another bucks
responded with “I’m sorry sir, we must keep in mind that English party for the groom.
can’t retrieve it”. Then to make is not her first language). Thankfully I received my
matters worse, they provided a
Several minutes pass, the wheelchair the next evening,
substitute wheelchair that was
luggage items slowly dwindle and overall a very enjoyable
far from operational for myself.
away and in which case I have wedding and weekend was had.
I expressed my concern that
collected my bag but not my The main narrative of this story
getting around in this subpar
wheelchair. I am trying to portray is that
As you could imagine numerous things may not go as planned in
discussions have taken place travel, but that’s all part of the
in this time, but the more adventure.
amusing exchange was near I can attest from all my
the end of this escapade. I was travels over the past 10 years
approached timidly by an airport to numerous countries in a
staff member, as I sat there wheelchair, this is the first
marooned by three Vanuatu occasion where my wheelchair
airport staff, instructing me that has been left behind.
my wheelchair was left in Sydney.
Then in the action of retreat, the So be rest assured, this
airport staff member asked “you incident will not stop my future
okay?”. I politely let the airport endeavours of travel!
staff member know I will not be
Josh having the time of his life okay and I need my wheelchair
in the Qantas business lounge to get around the island.
August 2018 .org.au 9
HEALTH & WELLBEING
Reviewing Autonomic Dysreflexia
Autonomic Dysreflexia (AD), also referred to as Autonomic easy access for me to put it
Hyperreflexia, is a potentially life-threatening condition, on and know my usual BP
numbers, so any increase from
which affects individuals with spinal cord injury (SCI) at
my baseline is a reason for
or above T6. Patty and Roberta, both nurses living with alarm.
SCIs and also known as ‘The Rollin’ RNs’, have posted an
As always, sharing my story to
insightful article about living with AD on their Facebook explain further...several years
page. To follow them on Facebook please visit ago I went to my orthopedic
www.facebook.com/rollinrn. physician with continued
complaint of shoulder pain.
Today the Rollin’ RNs below the level of the spinal Severe shoulder arthritis
are tackling AUTONOMIC cord injury. Let me repeat was the diagnosis that was
DYSREFLEXIA and if you that…an irritant that affects irritated by our auto accident
already know about it, then the body BELOW the level which caused my SCI. The
it’s time for a review! It’s one of injury. Think about that... physician wrote a prescription
of those focuses that should below the level of injury, which for Ibuprofen (Advil or Motrin)
always be in the forefront of means the injury is NOT felt 500 mg tablets, 2 tabs twice a
any spinal cord injury topics but due to paralysis. It occurs in day for inflammation and pain.
I haven’t seen an article lately, a SCI individual that is a T6 As you may know, one tablet
so here is mine. When I taught or above. Meaning if your of Ibuprofen is 200mg. Upon
nursing students, I preferred to loved one is a paraplegic of questioning my physician about
train from experience and this thoracic level 6 or above and the dosage, he assured me that
article is no different. that includes all quadriplegics, I would be fine and put me on
going up towards the head, he/ that dose for several months.
Autonomic hyperreflexia is
she may experience AD. Stop One day as my family and I
a sudden nervous system
again…occurs in individuals went on a day trip, I started
response to pain or other things
Thoracic level 6 or above. So if breaking out into a sweat. I
that irritate the body. It can
your loved one is injured below only perspire (glistening is the
happen to people with a spinal T6, they may not experience adjective for us women) on
cord injury at or above the AD but a T6 or above, will. It one half of my face, I don’t
thoracic six levels. Autonomic CAN be and WILL be a medical know why. Being a Thoracic
hyperreflexia is a medical emergency if the culprit causing 3-4 complete (spinal cord
emergency. It causes a rise in the irritation is not located completely severed) paraplegic,
the blood pressure so high that and corrected. Usually once I am above that magical
it can cause death if not taken the culprit of the irritation is T6 level, remember earlier
care of right away (2016). corrected the AD reverses. definition. It was hot, but early
Other Names for This Condition Immediate relief is felt and BP spring, and I was unable to
Are: suddenly decreases. During cool down. My face was flushed
•• Autonomic Dysreflexia an event of AD, the BP (blood and I was sweating with a
pressure) will increase to slight headache. My husband
•• Hyperreflexia
dangerous levels if the offender was trying to find the culprit
The Rollin’ RN breaks this or what is causing the pain of the AD but nothing was
definition down for others for is not located and corrected found. Being the nurse I am, I
full understanding... Autonomic quickly. That’s why it’s best to thought maybe I was getting ill,
Dysreflexia or AD as you will have a BP machine of some definitely not AD because THAT
hear it referred to is a sudden sorts in the home for use. I would never happen to me,
or prolonged response to an have a wrist BP machine which without me finding the culprit
irritant that affects the body is fairly accurate and allows quickly. I had experienced AD
■■ continued on next page
10 .org.au August 2018HEALTH & WELLBEING
■■ continued from previous page
before but was able to quickly game can quickly become a assisted me to bed and began
locate and remedy the problem. very complex game of cat and the search as to the reason
Now Is A Great Place to mouse. for my severe symptoms.
Review the Symptoms: Nothing found. Staying in the
My husband and our sons
What Are the Common bed, I attempted to relax. No
had a few errands to run, so
Signs? such luck……remember the
they went out for a while. I
“increased anxiety” symptom.
•• Sudden severe rise in blood was invited to join them but I
pressure declined stating I wasn’t feeling Vomiting then started. The food
•• Pounding headache well. I told them I would be I had eaten earlier didn’t want
fine, go ahead and have fun. to go down, hence the nausea
•• A change in heart rate
Approximately 30 minutes after and vomiting. My husband
•• Flushed skin or shivering their departure, I started to feel thought, “Let’s get your bowel
above the level of injury extremely poor. Monitoring my care down and see if that aids
•• Anxious feeling BP repeatedly but it continued to relieve the symptoms.” My
•• Sweating above or below the to rise. Calling my family to bowel care revealed dark black
level of injury return home and upon their stools, remember earlier article
•• Blurred vision return I asked my husband to on stool colors? Black, dark
assist me into bed. stools may be a gastrointestinal
•• Stuffy nose
bleed.
•• Pale skin or goose bumps What Do I Need to Do
below the level of injury When I Suspect Autonomic You all guessed it, a call to
Dysreflexia? (2016) 911, an ambulance ride to
Actually, at this point I Emergency Department,
rolled to my computer for •• Sit up and raise your head
series of labs tests and x-rays
the complete checklist (I •• Empty your bladder revealed my Autonomic
had never experienced •• Remove tight clothing, Dysreflexia was due to
full blown AD before). leg bag straps and shoes. bleeding stomach ulcers as a
While reading of the Undress from your feet up result of increased Ibuprofen
symptoms, I was mentally and check your skin for consumption. This was an
adding a check next to anything that could irritate or emergent situation and one, I,
each symptom I was cause pain as the nurse, was taking lightly.
experiencing: •• If you have a catheter, look My bad...I knew it, but I was in
•• Pounding Headache for kinks or a full drainage denial.
•• Flushed Skin bag Several days hospitalized, a
•• Anxious Feeling •• Change the catheter couple of units of blood, and
•• Increased Heart rate •• If you do not have a catheter, The Rollin’ RN had returned
•• Stuffy Nose gently catheterize yourself home. Hence, when AD
•• Check the rectum for stool symptoms persist get medical
•• Increased Blood Pressure
help. As you see, this can be
•• Sweating Above the Level of The only agenda at this point very serious; AUTONOMIC
Injury is quickly locate the culprit DYSREFLEXIA is a condition
I knew I was beginning to get causing the problems. Trust everyone needs to be familiar
into trouble now but I didn’t me, at this point, I was with. It can certainly lead to
know why. My bladder was quickly removing my own stroke, seizures, or even death.
empty, bowel care negative, clothes, remember the anxiety,
sweating, flushed skin……you
It’s all good so keep on rolling.
tight clothing negative, and
zero appetite. The AD guessing only want relief and to feel Patty, RNC, BSN and Roberta,
better……NOW!!!! My husband RN The Rollin’ RNs
August 2018 .org.au 11NDIS
Assistance in transitioning to the NDIS
There are various ways AQA can assist as you transition to get in your first plan. This is
the NDIS or prepare for your plan review - workshops, pre- meant to help you build your
capacity to implement your plan
planning assistance, support coordination and more!
and achieve your goals. We are
registered to provide this under
How we can help your individual situation and
the NDIS and we use a lived
With our ever growing personal priorities.
experience approach to help
knowledge of the NDIS Troubleshooting you start and implement your
and people’s experiences in plan, find and connect with
transitioning into the scheme, Drawing from the 1,200
appropriate services and help
we have developed targeted individuals living with SCI with
you with preparing for your
supports to help our community whom we are networked, as
plan review as it comes due.
get the most out of the NDIS well as relevant organisations
and avoid common pitfalls in and professionals, we will help Even if you don’t have this
navigating the system. We offer you troubleshoot any NDIS included in your current plan,
a lived-experience based suite concerns or queries where we’ll explore ways of providing
of supports and services. possible. you with this service.
NDIS Workshops Peer Support
We provide free monthly NDIS We’ll connect you with others
workshops targeted specifically who have gone through the
to people with SCI and similar process before. Talking to
complex physical disabilities. someone with lived experience
These sessions provide an of SCI (or similar physical
overview of the NDIS and are complex disability) who has
suitable for: navigated part or all of the
NDIS planning process can
•• People entering the NDIS
be invaluable in helping you
and their family/friends who
navigate the NDIS.
support them.
•• People approaching plan NDIS Support Coordination
renewals NDIS Support coordination is
•• People going for plan a funded support that you can
reviews.
The sessions are casual and
interactive and tailored to meet
the needs of the participants
with plenty of time for individual
questions and answers.
Pre-planning assistance
We can help you prepare for
your planning meeting by
working with you to identify
goals and develop a participant
statement which would ensure
you have the appropriate
types and amounts of funding
allocated which are relevant to
12 .org.au August 2018NDIS
Navigating the NDIS: Improved Health and
Wellbeing
In a series of blog articles, AQA aims to demystify the NDIS Both are planning on including
and show you how best to navigate the system. exercise physiology in their next
NDIS plans.
Under Improved Health and funding to achieve their health “It is important to understand
Wellbeing, the NDIS price guide and wellbeing goals. your plan, with the help
funds the services of dieticians of either your Local Area
The Support Coordinator
and exercise physiologists. Coordinator (LAC) or your
suggested to Tony that he
Either could be instrumental in Support Coordinator,” says
and James get together and
achieving your goals. To get the Fiona Scoullar, NDIS Service
attend group sessions with an
most from your NDIS funding, Development officer with AQA.
exercise physiologist. Group
it is important to understand “It’s also worthwhile speaking
sessions were billed at $48.54
what is available. to your peers and other NDIS
per person. Tony could afford
Tim was funded under almost three times as many participants. They may have
Improved Health and Wellbeing group sessions as one-on-one good advice, be in a similar
to engage an exercise sessions. situations, or have experience
physiologist. The 2017–2018 that they can share with you.”
With the help of his Support
price guide allowed an exercise If you have any questions or
Coordinator, Tony contacted an
physiologist to bill at $145.63 issues you would like to cover,
exercise physiologist. Together,
an hour. Tim (names changed) please contact AQA at ndis@
they devised a plan that
was funded for $2,912.60, aqavic.org.au or 03 9489 0777.
provided one-on-one sessions
enough for 20 hours over 12
and group sessions. Tony is AQA is registered with the
months.
very happy with the outcome, NDIS to provide a range of
Tim would have liked more and has achieved his health services including Support
time than that with the exercise and wellbeing goals. His friend Coordination, Peer Support,
physiologist, but he settled James is also pleased with and Personal Care Services.
for the 20 hours. With this the result. As well, they have We also provide Pre-Planning
constraint, he struggled to enjoyed catching up with each and Troubleshooting as a free
achieve his goals – as the other at their group sessions. service to our community.
report from the physiologist
noted. At this point, Tim
was disappointed in his
achievements.
Tony received the same budget
under Improved Health and
Wellbeing. At his first meeting
with his Support Coordinator,
Tony said he was not happy
with the sum allocated for
an exercise physiologist, and
would like to know whether he
had other options. During the
discussion, Tony also said he
had a friend, James, who was
in a similar position. Both were
worried that they had too little
August 2018 .org.au 13INFORMATION
Painting by Warrnambool mouth artist Simon
Rigg is used on international card range
Warrnambool-based mouth artist Simon Rigg will have ambitions while still maintaining
his painting ‘The Twelve Apostles’ showcased on a set of financial independence by
selectively selling their artworks.
international greeting cards.
The MFPA was established in
A painting of ‘the twelve in rehabilitation at the Austin Australia in 1971 and currently
apostles’ by Warrnambool artist Hospital in Melbourne. has seven members around the
Simon Rigg, who paints by country.
He joined the world-wide Mouth
holding the brush in his mouth, and Foot Painting Artists in To become a student member
has been used to illustrate a card 1990. They are a group of artists an artist must qualify by painting
that will be sold in the worldwide with a disability who gain their using a brush held in either
mid-year range by the Mouth income through the sale of their mouth or foot, having lost
and Foot Painting Artists. products illustrated with their the use of their hands through
paintings. Although this started an illness or accident. Student
Simon said that the location, on
with Christmas cards, today it members receive scholarships for
the world-famous Great Ocean
includes a wide list of products art supplies and tuition. Once an
Road at Port Campbell with
comprising of special occasion artist becomes a full member or
the rugged cliffs, brought back
cards, jigsaws, tea sets, address associate they are guaranteed
memories of the past when he
books, calendars, Christmas a salary for life, even if they are
was a child and had visited the
serviettes and place mats, gift unable to continue painting.
area regularly to swim, snorkel
and just enjoy the beach. tags and wrapping paper. For further information on the
There are several new products Mouth and Foot Painting Artists
“Today I understand that the contact MFPA on 02 9698 3933
relentless pounding of the surf in the range this year including
an attractive set of a bone china or visit www.mfpa.com.au.
has reduced them to eight, but
coffee mugs, greeting and gift Released for MFPA by Dennis
in the time I am referring to I am
tags and wrapping paper. Rutzou Public Relations (www.
sure there were twelve.
Founded in 1956 by a group of drpr.com.au)
“It is an area I have always like
European artists, the MFPA is For further information please
to paint with the blue of the surf,
a self-help organisation which call Dennis Rutzou on 0411 510
the white caps of the surf and
gives people with disabilities the 888.
the deep yellow to brown of the
opportunity to fulfil their creative
cliffs. It is a great scene to paint
and also for a card in the mid-
year range which will be bought
by international purchasers.
“I hope they like it and get as
much pleasure from the scene
as I have had in painting it and
reviving my memories,” Simon
said.
Simon has been a quadriplegic
since 1982 when he fell ten
feet to the ground while he was
repairing the roof of the shed
at the back of his property. He
learned to paint while he was
14 .org.au August 2018Research: Identifying the priorities of inclusion and mainstream capacity
building for people with spinal cord damage or post-polio
•• Do you have a spinal cord injury, post-polio 3. By participating in a group discussion at a
or transverse myelitis? local peer group meeting (Spinal Life, AQA,
•• OR are you a family member or carer of PNV). These dates will be advertised through
someone with a spinal cord injury, post-polio your local groups - contact your convener or
or transverse myelitis? the researchers below. (Please note: Group
•• Are you aged 18 or over? discussions at peer group meetings are for
people with spinal damage or post polio.
This research project is conducted by Deakin Family members and carers can participate
University and is interested in finding ways to through individual interview or the survey).
overcome barriers to inclusion in mainstream
services, that is, any non-disability specific Please contact Professor Erin Wilson or Dr
service (such as employment, health, Robert Campain if you are interested in the
transport, education, recreation, ageing etc.). project and would like to know more:
Associate Professor Erin Wilson:
There are three ways you can take part:
T 03 9244 6158
1. By completing an online survey https:// E erin.wilson@deakin.edu.au.
deakinsurveys.au1.qualtrics.com/jfe/form/
SV_8H3E47QeRJZ6EYZ. Dr Robert Campain
T 03 9246 8510
2. By answering the same questions in an
E r.campain@deakin.edu.au.
interview – phone or face-to-face.
August 2018 .org.au 15INFORMATION
Wheelchair Rugby in Echuca
Living in country Victoria is for personal training (as I of people consisted of disabled
wonderful - beautiful scenery, couldn’t attend regular training and able-bodied friends and
great communities, historic sessions at Royal Talbot). My family, local organisations and
buildings and peaceful towns. partner, Jocelyn, discovered even the local newspaper. We
However, as it also happens, a distant acquaintance of currently hold our event once a
not everything is just up the her hairdressers’ who was a month, with new faces turning
road. Case in point - certain quadriplegic and keen to help up each time, and even some
competitive disabled sports. out, as were a few friends coming up from the Big Smoke!
With most competitions being (even a couple from Spire), Our monthly meetup event
held in Melbourne, it is a which led to the need for more is free and fun, and open to
gruelling task to make a round chairs. I contacted Jason at people of all abilities.
trip of over 300 kilometres for Disability Sport & Recreation
(DSR), who was glad to help If you’re interested in
a game, and the reason why
and lent a couple of chairs for participating, please contact
many residing in the country
people to use. Jocelyn spread Christian Brackley on 0402 322
wouldn’t even consider the
the word on Facebook, and 851 or mustangmumdoona@
prospect.
before soon, all of Echuca knew gmail.com.
Well, grab your gloves and about it; and with SPIRE and We also have a Facebook
gear, because wheelchair rugby DSR circulating it among their page called the Murray River
is here! community, we were set and Razorbacks Wheelchair Rugby
It started about eight months ready to go! Association. Check it out to
ago, in the little country town The first event of the Murray keep updated with what’s
of Echuca, when I started River Razorbacks was a happening.
looking for a good court smashing success! The turnout
Women with Disabilities Victoria (WDV)
Women with Disabilities Victoria (WDV) has an audio description option for people with
developed a new information resource for women vision impairment. The video guide has extra
with disabilities about violence prevention and information, discussion questions and is available
response, “Our Right to Safety and Respect. A in Plain English and Easy English formats.
video resource and video guide, developed by, The video and video guide were made for women
and for, women with disabilities about violence, with disabilities. The video can be:
abuse, safety and respect”. •• watched alone or with a friend or support
The resource aims to provide women with person
disabilities information about how to identify •• used by community groups and organisations
violence and abuse and how to get help to •• useful for self-advocates, friends and
feel safe. The resource was made for and with advocates, family, support workers and other
women with disabilities. people who work with women with disabilities.
In the 20-minute video, women with disabilities To view the video resource online or download a
speak about their experiences of violence and copy of the video guide, go to the WDV website
abuse. They talk about how they found ways www.wdv.org.au/our-work/our-work-with-
to speak up and be heard and get support to organisations/safeguards/ or you can contact
live free from violence and abuse. The video WDV on 03 9286 7800 for a hard copy of the
includes captions, Auslan interpreting and guidelines and video resource.
16 .org.au August 2018LEISURE
Let Me Paint The Scene
Wayne, an avid footy lover living with T4 spinal cord injury, his beloved Blues get flogged!
shares his story of being a support worker for Bill, also a I find it quite amusing when
he tries to let the umpires
footy lover, who has lived with Cerebral Palsy since birth.
have a piece of his mind - he
is all huff and no puff! Bill lives
Let me paint the scene… own; he goes to the Carlton
in Croydon, about a twenty
Me, a footy loving T-4 complete day-games alone, and I take
minute push from Croydon
paraplegic of 20 years; Bill, him to the night or twilight
station. I drive up to meet him
Cerebral Palsy since birth. games.
at his shared accommodation,
Ten years ago, the boss at AQA We have had our fair share and off we go. Over the years
Qualcare who knew I loved of challenges that we have you see some of the same
the footy, asked if I wanted to overcome together. One night, people, and every now and
take a guy to the football on a Bill had a puncture in his then someone will ask if we are
voluntary basis. I said I’d take it scooter tyre on our way to related because we are always
on if it was a paid gig, but was Etihad Stadium, so I rang RACV together, and I say yes, we are
told that Bill didn’t have any and they met us at a Hungry brothers, and I sleep in the top
funding. A month or so went by Jacks nearby and fixed the bunk! Billy just smiles.
when Qualcare came back and puncture then and there. There
I believe early on in our
told me that a legacy group had have been countless times
relationship, Bill must have
agreed to pay for 6 hours per when the trains have been
told his brother Paul (who is
month of recreational funding down and we have had to catch
a very well-off professional
for Bill - I couldn’t back down buses instead.
person) that a paraplegic in a
now, so I acquired a part time One incident that I remember wheelchair was going to be his
job to take Bill to the footy. vividly is when Bill fell out support worker, so Paul made
It sounds like a dream job, but of his scooter, cracking his an effort to meet me, because
believe me we have had a few head hard on the footpath when you think about it - how
dramas over the years. Then outside Richmond Station. An could a man, in a wheelchair,
again, being in a chair myself, ambulance had to be called to look after another man, who
you build resilience and just take Bill to the Alfred hospital. users a scooter?! Now Paul and
deal with the dramas as they I arranged for his scooter to Bill’s sister have total trust in
unfold. Bill is quite smart and be put in storage, and took his me.
gets along pretty well on his personal belongings back to
The highlight of being a support
his house, telling the people
worker has undoubtedly been
who look after him there about
going to last years’ Grand
what had happened. When I
Final (2017). I asked Bill, if
think back on the time I was
Richmond (the team I support)
first asked to take on the role,
made the Grand Final would
I feel happy and proud that I
he want to go? He said yes,
decided to help Bill enjoy doing
because he is an AFL gold
something he loves, and how
member, and I knew we would
we have faced and overcome
get tickets. Well they did, and
so many challenges together.
come Grand Final day, we were
Over the years we have seen front and centre at the G. We
Carlton go from a power to got to watch Dusty Martin and
a rebuilding Football Club - my beloved Tigers take out the
something that upsets Bill. He Flag - one of the best days of
gets a little upset every time my life!
August 2018 .org.au 17LEISURE
Getting Active Outdoors
The cold and rain did not stop 25 people enjoying the from our guest speaker and
fun and activity in June when YMCA Victoria Camping in mentor Dave Jacka. Dave led
a group discussion and spoke
partnership with Disabilty Sport and Recreation Victoria, about some of his adventure
kicked off the inaugural Active Outdoors Day Program at experiences. Dave was the first
the Mt Evelyn Recreation Camp. person with quadriplegia to fly
solo around Australia and he has
This new program initiative, outdoors to trial the different also paddled the entire length
funded by Department of equipment. The Volunteer of the Murray River, these days
Health and Human Services, Sherpas from Parks Victoria Dave enjoys exploring on his
is intended to provide an were busy guiding people handcycle.
opportunity for people with around the camp property in Over the next 12 months,
disabilities to develop their skills the Trail-rider, while others used YMCA together with community
and confidence to be more the various equipment available partners, aim to facilitate more
active in a range of outdoor on the camp grounds, through Active Outdoor Day programs
environments. mud, puddles, and over grass, at different locations across
gravel and tan bark. Melbourne. These days will
Joining us on the day were
Vanessa and Hannah from Unfortunately the weather was extend to camping weekends at
Parks Victoria along with three not very kind to us on the day, residential camps and camping
volunteer Sherpas, Tim from however that didn’t stop full within some of Victoria’s
the Royal Talbot Rehabilitation participation in the program National Parks.
Hospital, Paul from GMS despite the rain and cold. With The next free Active Outdoor
rehabilitation, Mark from the camp fire burning, cups Day will be held on the 28th of
Adaptive Concepts Australia, of homemade soup and with September at Mount Eliza.
Tony from Alter technology, warm clothes and rain coats,
and Magic Mobility also had everyone made the most of For further information, please
equipment there for trial use. the opportunity to get active contact:
Bill from Travability attended outdoors and embrace their Jason Ellery
the program taking some spirit of adventure. M 0401 946 199
great photos. These suppliers After lunch, the group headed E jason.ellery@ymca.org.au
kindly donated their time indoors to warm up and hear
and equipment to provide
an opportunity for program
participants to trial equipment
in various outdoor terrains at Mt
Evelyn Recreation Camp.
Specialised equipment available
to trial included the Parks
Victoria Trail-rider, various
handcycles, wheelchair power
assist attachments, Batec,
Freewheel attachment, off-road
wheels, along with two different
off-road power chairs.
The program commenced with
group introductions, followed
by a presentation from Parks
Victoria. The group then braved
the cold and rain and headed Off-road power chair and power assisted off-road handcycle
18 .org.au August 2018CLASSIFIEDS
FOR SALE FOR SALE
Quickie Manual Wheelchair with Xtender Wheels 2004 Chrysler Grand Voyager Accessible Van
Purchased it in the USA in 2011; One touch operation to propel the 2 position wheelchair access; lock down point; electric side doors;
wheelchair without effort. back airbags for self levelling; toe bar; 6 stack DVD player; serviced
Price: $2,000 since new; great car to drive; 165,000 kms.
Phone: 0410 413 166 (Sue) (08/18#a) Price: $8,000 negotiable
Email: dougmallen@hotmail.com (Doug) (06/18#a)
Electric Wheelchair & Van hoist
Pride Quantum 6000Z Electric Wheelchair & Pride Silverstar 2010 Ford Falcon - 1Tonner
Backpacker Plus Electric Wheelchair ONLY Lift Purchased in 2010; Auto with Fully Enclosed Lockable Canopy; Reh to 28th July 2018;
very little use; fitted with a right hand side Q-Logic Controller; Has a 350 Tieman lift & tie downs to suit electric wheelchair; Rear Airbag
Tru-Balance Power Positioning system for power lift, tilt and recline; Suspension; Recardo Leather seats; Mag Wheels; Reversing
New batteries will be included; original cost $14,500. Camera; Low Kms; Fits In Under Cover Carparks; RWC; Port
Remcte control unit that comes out of the van and lowers to the Welshpool Victoria
ground; Easily fitted by auto electrician Original cost $4,500. Price: $18,000 or Best Offer
Price: $7,000 (Chair) & $2,000 (Lift) Phone: 0431 675 666 (Gail) (05/18#a
Phone: 0410 413 166 (Sue) (08/18#a)
2003 Toyota Noah Van Wagon
Quickie Manual Wheelchair 2 Lite
5door; Auto 4sp 2.0i (Wheelchair) X Disabled Rear Access (Sloper);
Frame Width 19”, Seat depth 15”, Frame length regular. 24” Located in Melbourne VIC. Owned for 3 years and only selling since
Lite spoke wheel. Backrest tension adjust Ballistic. Cost $4500. I have modified another car to drive for myself instead of being
Includes Roho Cushion 48xm x 41cm. 10 x 9 cells. Brand new - just a passenger. Very compact and easy to drive and park. Rego
never used. Reduced for quick sale. until June 2018. 129,537 kms; Rear Access (Sloper) Vehicle; Auto
Price: $1,500 Transmission; 5 Seats + Wheelchair; Rear Air Suspension; Climate
Phone: 0419 342 015 (Judi) (09/17#a) Control; 4 Cylinder 1AZ. Too many features to list here.
Price: $18,900
Top End Crossfire T6 Custom Alloy Wheelchair
Phone: 0402 676 983 (Steven) (09/17#a)
Year 2007 low kilometres - only used at work; 19” x 16”; Quick
release Spinergy 24” black spoked wheels; ROHO cushion to match Logitech GT Racing Wheel & Tri Pin
chair dimensions; Location - Shepparton.
PS3 / PS2 / PC; Excellent working condition; Comes with quick
Price: $1,200 plus freight release Tri pin for quads to use.
Phone: 0428 292 421 (Geoff) (09/17#a) Price: $200
TiLite 2GX Folding Manual Wheelchair Phone: 0416 556 183 (Gab) (06/18#a)
Titanium frame; Seat 17” x 18” Adjustable Hi/Low Bed
Price: $3,500
King Single with Extra Length, Fitted Roho Air Mattress, Polished
Email: jsheard@optusnet.com.au (John) (03/17#a) Wooden Bed Head and Footer. Fully Electric: feet, head and whole
bed raises up and down and angles.
Smart Drive r
Price: $400 ono
Motorised wheel for manual wheelchair; Excellent used condition; Phone: 0478 027 296 (Dennis) (05/18#a)
Wheel, battery, corded controls, plus charger; Great for hills or to
save your shoulders on those long pushes. (I live in Launceston, Jomor - Electric Single Bed
TAS. will post at buyer’s expense)
Price: $4,000 Adjustable height, min/max height 250mm - 720mm.
Phone: 0438 352 138 (Ben) (06/17#a) Bed head and knee section all in perfect condition, Mattress
included. Removable head and foot panels, Mattress size 900mm
Hand Cycle Exercise Machine x 2030mm. Pupps compliant, High density foam. Near new - Cost
$2,900 - reduced for quick sale.
Brand New; Still in box.
Price: $900
Price: $900
Phone: 0419 342 015 (Judi) (09/17#a)
Phone: 0402 204 992 (Colin) (10/16#a)
Roho Cushionr
Roho Cushionr
Large size, Original box; 62(cm) x 56(cm) x 11(cm); 24.5’ x 22’ x
4 cushions sizes; 2 x 9x9 cells and 2 x 9x10 cells. 4.25’; Includes Repair Kit; 1 x Black Cover; 1 x Blue Waterproof
Price: $100 Each Cover; Also have a Gel Cushion; All in Good Condition.
Phone: 0402 204 992 (Colin) (10/16#a) Price: $450 ono
Phone: 0403 021 822 (Judy) (11/17#a)
August 2018 .org.au 19CLASSIFIEDS
FOR SALE ITEMS FOR FREE
Van Hoist / Lifting Machine FREE – Enviro Rubber Shower Insert
Van Hoist / Lifting Machine for wheelchair. Good condition. 900mm x 900mm; Needs to be picked up from Sunshine West
Price: $500 Phone: 0423 124 013 (Scot) (07/18#a)
Phone: 0403 375 824 (David) (11/17#a)
FREE - Mobility Scooter – Invacare Comet - 4 Wheel
Alternating Air Mattress ARJOHUNTLEIGH Auto Logic 110 Onyx Blue; Modified Seat; Suit Larger Person; Minor Cosmetic
Recently fully sterilised, wash, serviced and inspected by Damage
Arjohuntleigh; Only used it twice; New approximately $7000; Phone: 0403 021 822 (Judy) (12/17#a)
Reduced to $2500 or best offer; 1 x Auto Logic ArjoHuntleigh
Air Pump - Model 630009AU; 1 x Auto Logic 110 Air Mattress; FREE - Layleh Lifter - Ceiling Hoist
Height12cm Length203cm Width86cm
Price: $650 ono Max: 130Kgs - It is an old one. I have been told that the brushes
need to be replaced, I have also been told an electrician or
Phone: 0403 072 102 (Bruno) (11/17#a)
someone like that would be able to do it.
Phone: 9509 0363 (Con) (02/18#a)
WANTED TO HIRE
Motor Home More classifieds
Fully Wheelchair Accessible Motor Home required if anyone For a full list of classifieds and items for free,
interested in hiring their idle motor home; Mobile Home for
Paraplegic wanting to take some Long Service Leave (1 - 2 weeks); please visit www.spire.org.au/community/
To suit full time wheelchair user and partner.. classifieds or contact us on 03 9489 0777 or
Phone: 0412 829 042 (Kim) (07/18#a) info@spire.org.au.
Qualcare is a division of AQA Victoria Limited and
is an industry recognised provider of high quality
personal care services. For over 20 years Qualcare
Did you know AQA is registered has delivered personal care and support throughout
not only to provide standard needs the state of Victoria to people with a disability,
assistance with self-care activities and injury or illness in their homes and communities.
community participation but also high T 03 9482 0777
E qualcare@aqavic.org.au
intensity?
W www.qualcare.org.au
SUPPORTING SERVICES TO PEOPLE WITH SPINAL CORD INJURY
Making a donation… (Donations of $2 or more are tax deductible)
With community support Spire continues to make a difference in the lives of people with a spinal cord injury
and their family that support them.
Spire uses the value of people with lived experience of SCI to provide peer-facilitated and peer-informed
services & supports to others living with SCI to help them deal with the issues of life.
We invite you to consider making a donation to help maintain and grow Spire’s resources and services.
Whatever sum you donate will assist us to provide services to people with Spinal Cord Injury.
Online: www.spire.org.au/support-us/donate
By Phone: 03 9489 0777, please have your credit card available (Mastercard, Visa, American Express).
By Mail Please call us and we will post you a Donation Form.
20 .org.au August 2018You can also read
