Capture A STATE of - AVAC

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CONTINUE READING
Capture A STATE of - AVAC
on the state of health in South Africa
                                                        incorporating the NSP Review
                                                        Edition #4 – December 2017
A STATE of
capture
Why state capture
is a fundamental
health issue in SA
+A worrying Global Aids & TB response + Spotlight on
the eastern cape+ TB realities + Prep in South Africa
Capture A STATE of - AVAC
www.spotlightnsp.co.za

                                        In this issue                                                                                                                                                                                                                                                                                                                            Contents                                                                                                                                                                                      @SpotlightNSP
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                              Spotlight nsp
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             Published jointly by the Treatment
                                           THE STATE OF OUR                                                                                                                                               BROKEN BONES,                                                                                                                                                          GLOBAL HIV & TB RESPONSE                                                                                                                                                                    Action Campaign and SECTION27
                                                                                 FUNDING BY FAITH
                                               RESPONSE                                                                                                                                                    BROKEN STATE                                                                                                                                                          The state of the global HIV and TB response in December 2017. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  2                                                  Editors: Marcus Low & Anso Thom.
                                                                                                                                                                                                                                                                                                                                                                                 STATE CAPTURE                                                                                                                                                                               Journalists: Ufrieda Ho, Ntiski Mpulo.
                                                                                                                                                                                                                                                                                                                                                                                 MARK HEYWOOD, SECTION27                                                                                                                                                                     Photographers: Ntsiki Mpulo, Thom
                                                                                                                                                                                                                                                                                                                                                                                 State capture threatens the right to health. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .  7                           Pierce, Ufrieda Ho, Roger Sedres.
                                                                                                                                                                                                                                                                                                                                                                                 PEPFAR FALLOUT                                                                                                                                                                              Contributors: Mark Heywood,
                                                                                                                                                                                                                                                                                                                                                                                 UFRIEDA HO, SPOTLIGHT                                                                                                                                                                       Ufrieda Ho, Lotti Rutter, Nora Mathe,
                                                                                                                                                                                                                                                                                                                                                                                 Funding by faith . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13   Ngqabutho Nceku Mpofu, Marije
                                                                                                                                                                                                                                                                                                                                                                                 Burden of the generations. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17               Versteeg-Mojanaga, Elin Hem Stenersen,
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             Ntsiki Mpulo, Thuthukile Mbata, Professor
                                                                                                                                                                                                                                                                                                                                                                                 SPOTLIGHT ON MECS FOR HEALTH: FREE STATE                                                                                                                                                    Quarraisha Abdool Karim, Nomnotho
                                                                                                                                                                                                                                                                                                                                                                                 UFRIEDA HO, SPOTLIGHT
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             Ntsele,Vuyokazi Gonyela, Luvo Nelani,
                                                                                                                                                                                                                                                                                                                                                                                 Heading for the rocks?. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 19
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             Zain Rizvi. & Joyrene Kramer.
                                                                                                                                                                                                                                                                                                                                                                                 FREE STATE HEALTH                                                                                                                                                                           Design: Karien van der Westhuizen, the
                                                                                                                                                                                                                                                                                                                                                                                 ANSO THOM, SPOTLIGHT                                                                                                                                                                        earth is round
                                                                                                                                                                                                                                                                                                                                                                                 Broken bones, broken state. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 21
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             Proofreading: Dave Buchanan.
                                        Another World AIDS Day. What        The news tells us that                              The Free State health system                                                                                                                                                                                                                     KWAZULU-NATAL HEALTH
                                        is the state of affairs in 2017?    money for HIV is scarce and                         is broken and people are                                                                                                                                                                                                                         LOTTI RUTTER & NORA MATHE, TREATMENT ACTION CAMPAIGN                                                                                                                                        Cover image: South Africans march on
                                        We ask a group of people who        diminishing. While many                             suffering and dying. In                                                                                                                                                                                                                          Hospital horrors . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 25   parliament in April 2017 to protest state
                                        are at the coal face in different   of these conversations                              this issue we revisit theHO regions and                                                                                                                                                                                                                                                                                                                                                                                                      capture and corruption. Story on page 7.
                                                                                                                                                                         s, W                                                                                                                                                                                                    LIFE ESIDIMENI ARBITRATION
  the state of health in South Africa

                                        guises, for their take on the       happen in boardrooms, the                           ReGenesis scandal                 untrie
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                                                                                                                                                                                                                                                                                                                      E

                                                                                                                                              hig h T B burd                                                                                                                      HIV- PO
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                                                                                                                                                                                                                                                                                                     TB IN
                                                                                                                                                                                                                                                                                                             CIDENC

                                                                                                                                                                                                                                                                                                          RTAINT
                                                                                                                                                                                                                                                                                                                 Y                                                               NGQABUTHO NCEKU MPOFU, SECTION27                                                                                                                                                            Spotlight is produced with the
                                        response or non-response.           communities are the ones                            an2016update
                                                                                                                                       for 30        and turn the                                                                                                                                     UNCE RVAL
  incorporating the NSP Review

                                                                                                                                                                                                                                                                                     BEST E             INTE
                                                                                                                                                                                                                                                                                                                                                                                 143+ and counting? . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 29         support of the South African
  Edition #16 – December 2016

                                                                                                                                                                                                                                                               NCE
                                                                                                                                                                                                                                                      INCIDE
                                                                                                                            f TB in
                                                                                                                                                                                                                                                                                          AT
                                                                                                                                                                                                                                                                                    ESTIM                    8.5–30
                                                                                                                                                                                                                                                                            Y
                                                                                                                                                                                                                                                                   RTAINT

                                        Page 2                              who face the brunt of it. Welogical burdndens.o spotlight on the dire state of
                                                                                                                                                                                                                                                               UNCE RVAL
                                                                                                                                                                                                                                  TA LITY                        INTE                       18                       .8 4
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             Development Fund.
                                                                                                                                                                                                                              OR
                                                                                                                                                                                                                  SITIVE
                                                                                                                                                                                                                           TB M
                                                                                                                                                                                                                                        Y
                                                                                                                                                                                                                                               BEST E
                                                                                                                                                                                                                                                   AT                            56                          0.25 –0
                                                                                                                                                                                                                                                  ESTIM
                                                                                                                                                                                                          HIV- PO                RTAINT                                  66 –1                      0.50
                                                                                                                                                                                                                                                                                                                                                                                 EASTERN CAPE HEALTH
                                                                                                                                                                a
                                                                                                                mio      sa                                                                                                 UNCE RVAL                                                                             9.1–13
                                                                                                          epide     thou
                                                                            visit one in our backyard.                          the orthopaedic services.
                                                                                                                                                                                                   LITY
                                                                                                                                                                                            ORTA                              INTE                       107                      474
                                                                                                     ated mbers in
                                                                                                                                                                                     TB M                      BEST E
                                                                                                                                                                                VE                                                                                        262–                      11                      .9
                                                                                                                                                                                                                                                                                                                  0.85 –1
                                                                                               Estim
                                                                                                                                                                           GATI                       Y             AT                     2
                                                                                                                                                                 HIV- NE                  RTAINT            ESTIM                  3.4 –1                 360
                                                                                                         Nully.                                                                       UNCE RVAL
                                                                                                                                                                                                                      9                                                     74  –100                   1. 3                  9                                                   MARIJE VERSTEEG-MOJANAGA, RURAL HEALTH ADVOCACY PROJECT
                                                                                                     globa
                                                                                                                                                         ON                                                                                    0
                                                                                                                                                                                        INTE                       6.                                                                                               3.3– 9.
                                                                                                                                                      TI

                                                                            Page 13                                                                                                  Page 21
                                                                                                                                                 LA                                                                                         .3
                                                                                                                                         POPU                          BEST E
                                                                                                                                                                                                   9                              0.09 –0                     87                      8
                                                                                                                                                                     ESTIM
                                                                                                                                                                           AT
                                                                                                                                                                                            10 –2                   0.18                                                       35 –7                     6.2
                                                                                                                                                                                                                                                                                                                         9 –15
                                                                                                                                                                           18
                                                                                                                                                                                             43  –9 4                 1. 9
                                                                                                                                                                                                                                     1. 4 –2 .4
                                                                                                                                                                                                                                               .6  6
                                                                                                                                                                                                                                                               54
                                                                                                                                                                                                                                                                                 12 –27                  11
                                                                                                                                                                                                                                                                                                                      6.
                                                                                                                                                                                                                                                                                                                               .4
                                                                                                                                                                                                                                                                                                                                                                                 Priority-setting, social justice and human rights in the Eastern Cape. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 35                                                     EDITORIAL INDEPENDENCE
                                                                                                                                                       29 00
                                                                                                                                                                0
                                                                                                                                                                                                                                     0.29 –0                     19                      030                           2.6 –8
                                                                                                                                                                            66                        .9                                                                                                   5.1
                                                                                                                                                                                              4.9 –5                                                                           766 –1                                            .4 6
                                                                                                                                                                  0                                                    0.45
                                                                                                                                                                                                                                        1.3– 4.
                                                                                                                                                                                                                                                  0
                                                                                                                                                                                                                                                                                                                       0.14 –0                                                   ELIN HEM STENERSEN, VOLUNTEER PHYSIOTHERAPIST, CANZIBE HOSPITAL
                                                                                                        Ango
                                                                                                             la
                                                                                                                                                       163 00
                                                                                                                                                         208 00
                                                                                                                                                                   0
                                                                                                                                                                               5.4
                                                                                                                                                                                               2. 1– 4.4                  2. 5
                                                                                                                                                                                                                                          0.7–3.
                                                                                                                                                                                                                                                   4
                                                                                                                                                                                                                                                                895
                                                                                                                                                                                                                                                                                    12 –28                   0. 28
                                                                                                                                                                                                                                                                                                                           13 –2
                                                                                                                                                                                                                                                                                                                                  9                                                                                                                                                                                                                                          The opinions expressed in Spotlight do
                                                                                                                 desh
                                                                                                                                                                                 3.2
                                                                                                                                                                                                1.5– 4.
                                                                                                                                                                                                          2
                                                                                                                                                                                                                           1.8
                                                                                                                                                                                                                                                                    19
                                                                                                                                                                                                                                                                                   113–
                                                                                                                                                                                                                                                                                          14 8               20                                                                  Fifteen years without a wheelchair – who pays?. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 38
                                                                                                         Bangla
                                                                                                          Brazil
                                                                                                                                                            16  00   0
                                                                                                                                                                                  2.7
                                                                                                                                                                                                   34  –7 0
                                                                                                                                                                                                                             2.1
                                                                                                                                                                                                                                           1. 1–  3. 4
                                                                                                                                                                                                                                                      .0 9
                                                                                                                                                                                                                                                                   130
                                                                                                                                                                                                                                                                                     16 5– 363                 14
                                                                                                                                                                                                                                                                                                                            9. 6 –19

                                                                                                                                                                                                                                                                                                                             56 –1
                                                                                                                                                                                                                                                                                                                                    25
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             not always reflect the views of TAC or
                                                                                                                                                               5 00 0                                                                      0.02–0
                                                                                                                                                                                  50                         8                                                       254                     245                                                                                 NTSIKI MPULO, SECTION27                                                                                                                                                                     SECTION27.
                                           SPOTLIGHT ON THE                           MOMENT OF                                                                                                     1.7– 4.
                                                                                                                                                                                                                  MILLIONS OF
                                                                                                                    dia                                                                                                       0.05                      5                             128–                      87                    8
                                                                                                            Cambo                 Republ
                                                                                                                                           ic                       00 0                                                                       4.0 –1                  182                          0                          21–7
                                                                                                                          rican                            1 40 4                    3.1                                                                                                    –4 57
                                                                                                                                                                                                                                                                                                                                                                                 Two steps forward, three steps back . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 41
                                                                                                                     l Af                                                                            6. 8–  16                     5                                                  44  0                      45                    9
                                                                                                                                                                                                                                8.                        4                         1
                                                                                                             Centra                                               5 00 0                                                                        2.7–5.                                                                           32–7
                                                                                                                                                                                                                                                                      2 79 0                     460
                                             EASTERN CAPE                             TRUTH IN TB                                                                                                                  TB DEATHS
                                                                                                                                                                                     11                        0
                                                                                                                 in a                                                     0                            31–8                      4.0                   –1  9                            660 –1                    53                 3– 17
                                                                                                              Ch                                                       00                                                                            6                                                                            7.
                                                                                                                                                                                                                                                  6.                   1 020                         0
                                                                                                                                                                                                                                                                                                                                                                                 Lifesaving programme under threat . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 43
                                                                                                                                                                  25                   53                        7                                                                            3–25
                                                                                                                                                                                                         16  –3                                                                           10                        12                    .2
                                                                                                               Congo                                                79 00
                                                                                                                                                                           0                                                     12
                                                                                                                                                                                                                                                    6.2–23                  169                     3                              1.4 –3
                                                                                                                       Ko  rea                                               0
                                                                                                                                                                                         26
                                                                                                                                                                                                         32 4 –534                 13                        6                               10 –2                    2.2
                                                                                                                                                                                                                                                                                                                                        –104
                                                                                                                     R                                                                                                                                    –3
                                                                                                                                                                                                                                                                                                                                                                                 Philani Clinic – A timeline of failure. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 44
                                                                                                                 DP                                                      00                                                                          14                                                                             46
                                                                                                                                                                   102                   42 3                   –1 52                                                          16
                                                                                                                                                                                                                                                                                                 2– 20
                                                                                                                           ng  o                                                                           75                       24                          7                             9.                      72                     4
                                                                                                                  DR Co                                                    00 0                                                                        3.3–7.                                                                         13 –2
                                                                                                                                                                   1 324                  110                        5                                                           14
                                                                                                                                                                                                                                                                                               103–
                                                                                                                                                                                                                                                                                                     227
                                                                                                                             ia                                                                               16 –4                    5.2                                                                              18                     0
                                                                                                                    Ethiop                                                      0
                                                                                                                                                                                                                                                       0.60 –1
                                                                                                                                                                                                                                                                 .4                                                                    2.7– 6.
                                                                                                                                                                       261 00                29                         .8                                                       159                   249                    2
                                                                                                                                                                                                                                                                                                                                                                                 PrEP
                                                                                                                            c
                                                                                                                                                                                                              0. 56 –1                   0. 96                                                  14 1–                      4.                   3
                                                                                                                      India                                                      0                                                                                8                                                                      40 –9
                                                                                                                                                                         48 00                  1.1                                                       20 –4                   191
                                                                                                                              ne sia                                                                            1.6 –4
                                                                                                                                                                                                                         .2
                                                                                                                                                                                                                                        33                           6                             8.5–14                  63                2– 12
                                                                                                                       In do                                                2 00  0                                                                        3.5–   6.                                                                      3.
                                                                                                                                                                                                 2.8                                                                                 11                  –579
                                                                                                                        Kenya                                                5 00 0              22
                                                                                                                                                                                                                  13  –3  3
                                                                                                                                                                                                                           5
                                                                                                                                                                                                                                            4. 9
                                                                                                                                                                                                                                                            0.61–1
                                                                                                                                                                                                                                                                      .2
                                                                                                                                                                                                                                                                                     407
                                                                                                                                                                                                                                                                                                   26 6
                                                                                                                                                                                                                                                                                                           741
                                                                                                                                                                                                                                                                                                                              6. 9
                                                                                                                                                                                                                                                                                                                                           2.0 –5
                                                                                                                                                                                                                                                                                                                                                   .5                            THUTHUKILE MBATHA, SECTION27
                                                                                                                                    o                                                                               16 –3                    0.87                                                   335–                        3.6                11
                                                                                                                           Le so th
                                                                                                                                                                             29 00
                                                                                                                                                                                      0                                                                        23  –5  8
                                                                                                                                                                                                                                                                                      518                  –42
                                                                                                                                                                                                                                                                                                                                             2. 5–
                                                                                                                                                                                                                                                                                                                                                                                 The state of PrEP access in SA. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 47
spotlight

                                                                                                                                                                                                  25                   48  –1.1                                                                        28                        6. 0                6
                                                                                                                                                                                                                    0.                       39                          .6                                                                    12–2
                                                                                                                            Liberia                                            53 00
                                                                                                                                                                                       0
                                                                                                                                                                                                                                                               0.98 –3                   35
                                                                                                                                                                                                     0.75                                                                                                     895
                                                                                                                                        bique                                                                         67–1
                                                                                                                                                                                                                              76
                                                                                                                                                                                                                                                2.1                                                    321–                      18
                                                                                                                              M  oz am
                                                                                                                                         ar
                                                                                                                                                                                  2 00   0
                                                                                                                                                                                                    115                  34 –5
                                                                                                                                                                                                                                5
                                                                                                                                                                                                                                                  0.82
                                                                                                                                                                                                                                                                0.45   –1  .3
                                                                                                                                                                                                                                                                                         573
                                                                                                                                                                                                                                                                                                          61–1
                                                                                                                                                                                                                                                                                                                 35                 3.1
                                                                                                                                                                                                                                                                                                                                               2. –4
                                                                                                                                                                                                                                                                                                                                                  0    .5
                                                                                                                                                                                                                                                                                                                                                        55
                                                                                                                                                                                                                                                                                                                                                                                 PROFESSOR QUARRAISHA ABDOOL KARIM, CAPRISA
                                                                                                                                Myanm
                                                                                                                                          ia
                                                                                                                                                                                186 00
                                                                                                                                                                                           0
                                                                                                                                                                                                       44
                                                                                                                                                                                                                          2.4 –5
                                                                                                                                                                                                                                   0
                                                                                                                                                                                                                                                    0.30
                                                                                                                                                                                                                                                                 < 0. 01–2
                                                                                                                                                                                                                                                                             .6
                                                                                                                                                                                                                                                                                            94
                                                                                                                                                                                                                                                                                                            14 –3
                                                                                                                                                                                                                                                                                                                  2
                                                                                                                                                                                                                                                                                                                                  258
                                                                                                                                                                                                                                                                                                                                                176 –3
                                                                                                                                                                                                                                                                                                                                                                                 Age, gender and cycles of transmission                                                                                                                                                      The Treatment Action Campaign (TAC)
                                                                                                                                   am  ib                                                   0                                                                             –2  .7                                                                   6. 16
                                                                                                                                                                                                                                                                                                                                                     1–
                                                                                                                                 N                                                193 00                                                                           0.85                       22
                                                                                                                                   Niger
                                                                                                                                          ia
                                                                                                                                                                                      8 00 0
                                                                                                                                                                                                          3.6
                                                                                                                                                                                                                            22–2
                                                                                                                                                                                                                                   2
                                                                                                                                                                                                                                                     1.7
                                                                                                                                                                                                                                                                        66 –1
                                                                                                                                                                                                                                                                                .5                         30 4 –5
                                                                                                                                                                                                                                                                                                                    95
                                                                                                                                                                                                                                                                                                                                     10
                                                                                                                                                                                                                                                                                                                                                    35 –7
                                                                                                                                                                                                                                                                                                                                                          8                                                                                                                                                                                                                  advocates for increased access to
                                                                                                                                                                                                          22
                                                                                                                                                                                                                              11–12                    1.0
                                                                                                                                                                                                                                                                     0.                      43  8
                                                                                                                                                                                                                                                                                                              70 –1
                                                                                                                                                                                                                                                                                                                    80
                                                                                                                                                                                                                                                                                                                                      54                    .1                   THUTHUKILE MBATHA, SECTION27
                                                                                                                                    Pakist
                                                                                                                                             an
                                                                                                                                                New G
                                                                                                                                                           uinea                     103 00
                                                                                                                                                                                               0
                                                                                                                                                                                                           12                         .2                                67–1
                                                                                                                                                                                                                                                                               42
                                                                                                                                                                                                                                                                                               119
                                                                                                                                                                                                                                                                                                                75 –2
                                                                                                                                                                                                                                                                                                                      75                 4.2
                                                                                                                                                                                                                                                                                                                                                     3.4 –5
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             treatment, care and support services for
                                                                                                                                      Papua                                               4  00 0
                                                                                                                                                                                                                  4
                                                                                                                                                                                                                              2.0 –5                 101                 2. 3–  5.9
                                                                                                                                                                                                                                                                                                16  0                     1                           23 –5
                                                                                                                                                                                                                                                                                                                                                             2
                                                                                                                                                                                                                                                                                                                                                                                 PrEP in higher-education institutions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 49
                                                                                                                                       Ph  ili pp ines
                                                                                                                                                             ration
                                                                                                                                                                                      14
                                                                                                                                                                                           7 00  0
                                                                                                                                                                                                               3.
                                                                                                                                                                                                                                 17–2
                                                                                                                                                                                                                                        9
                                                                                                                                                                                                                                                          3.9
                                                                                                                                                                                                                                                                            12–4
                                                                                                                                                                                                                                                                                   6
                                                                                                                                                                                                                                                                                                  126
                                                                                                                                                                                                                                                                                                                103–
                                                                                                                                                                                                                                                                                                                      15
                                                                                                                                                                                                                                                                                                                         9
                                                                                                                                                                                                                                                                                                                                         36
                                                                                                                                                                                                                                                                                                                                                        15 –3  2                                                                                                                                                                                                             people living with HIV, and campaigns to
                                                                                                                                                                                                               23
                                                                                                                                         Russia
                                                                                                                                                   n Fede
                                                                                                                                                                                           56  00 0
                                                                                                                                                                                                                  8. 6
                                                                                                                                                                                                                                  7.2–10                  27
                                                                                                                                                                                                                                                                            0. 63  –1.1              62
                                                                                                                                                                                                                                                                                                                  40 –8
                                                                                                                                                                                                                                                                                                                           4
                                                                                                                                                                                                                                                                                                                                          23
                                                                                                                                                                                                                                                                                                                                                        755–
                                                                                                                                                                                                                                                                                                                                                               986               NOMNOTHO NTSELE, STUDENT                                                                                                                                                                    reduce new HIV infections. Learn more
                                                                                                                                                     Le  one                                                                        13 –50                   0. 85                    8                             24 –4                 86  6
                                                                                                                                                                                                                                                                                                                                                               –8 76
                                                                                                                                                ra
                                                                                                                                                                                                                                                                                                                                                                                 Why I take PrEP. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 50
                                                                                                                                           Sier                                                     0                                                                         7.9 –1                                                                         0
                                                                                                                                                                                             69 00                                                                                                    34
                                                                                                                                                                                                                                                                                                                       –10 80
                                                                                                                                                                                                                                                                                                                                 0                       66
                                                                                                                                             South
                                                                                                                                                       Africa
                                                                                                                                                                                              56 00
                                                                                                                                                                                                      0
                                                                                                                                                                                                                  28
                                                                                                                                                                                                                    13
                                                                                                                                                                                                                                     8.4 –1
                                                                                                                                                                                                                                             8
                                                                                                                                                                                                                                               3
                                                                                                                                                                                                                                                             12
                                                                                                                                                                                                                                                                               3.0 –6
                                                                                                                                                                                                                                                                                        .1
                                                                                                                                                                                                                                                                                                    9 060
                                                                                                                                                                                                                                                                                                                7 450
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                                                                                                                                                                                                                                                                                                                                   0
                                                                                                                                                                                                                                                                                                                                           76 4
                                                                                                                                                                                                                                                                                                                                                           28 –3
                                                                                                                                                                                                                                                                                                                                                                   3                                                                                                                                                                                                         about the TAC’s work at www.tac.org.za.
                                                                                                                                                   ai la nd                                            0                              2.8–7.                    4.4                    36  9                       2 310                       30
                                                                                                                                                                                                                                                                                                                                                             5. 9 –1 5
                                                                                                                                               Th                                              95 00                  4.8                                                       268–                 2 59 0                   29 4
                                                                                                                                                                                                                                                                                                                                                                                 SPOTLIGHT ON TB
                                                                                                                                                                                                                                                 .7                                                                                              9.9
                                                                                                                                                          nzania                                                                      0.71–1                   317                       372                          255–                                        –42
                                                                                                                                                UR Ta                                            17 00
                                                                                                                                                                                                         0
                                                                                                                                                                                                                        1. 2                         0                            27 2–                  27  4                     5                           26
                                                                                                                                                                                                                                                                                                                               98
                                                                                                                                                          N am                                            0                            99  8–1 27               32  0                       .9                          573–                     34
                                                                                                                                                                                                                                                                                                                                                                  0 –2 11
                                                                                                                                                  Viet                                            16 00                                                                             5.6 –6                766                                                  12
                                                                                                                                                    Zambi
                                                                                                                                                             a
                                                                                                                                                                                                         00 0
                                                                                                                                                                                                                    1 130                351–
                                                                                                                                                                                                                                                 488                 6.2
                                                                                                                                                                                                                                                                                     1.8– 4.
                                                                                                                                                                                                                                                                                              5
                                                                                                                                                                                                                                                                                                            29 0
                                                                                                                                                                                                                                                                                                                         251–
                                                                                                                                                                                                                                                                                                                                 333
                                                                                                                                                                                                                                                                                                                                        0
                                                                                                                                                                                                                                                                                                                                                 163
                                                                                                                                                                                                                                                                                                                                                                  23 –3
                                                                                                                                                                                                                                                                                                                                                                        6        MARCUS LOW, SPOTLIGHT                                                                                                                                                                             @TAC
                                                                                                                                                                                                4 710                   417                      –18                                                                          0 –6 44
                                                                                                                                                                   e                                                                                                                                                                                29                  150
                                                                                                                                                                                                                                                                                                                                                                                 Moment of truth for global TB response. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 52
                                                                                                                                                            ba bw                    ie s                      0                             16                        3. 0                    .4                      3  19                                          1
                                                                                                                                                       Zim                   countr              1 020
                                                                                                                                                                                                          00                                                                           3.9 –6              4 670                  –2 13
                                                                                                                                                                                                                                                                                                                                         0                      915–
                                                                                                                                                                    burden                                                 17
                                                                                                                                                                                                                                              69 –9
                                                                                                                                                                                                                                                       5
                                                                                                                                                                                                                                                                        5.1                                              1 50 0                   1 030
                                                                                                                                                         High TB                                        6  00   0                                                                        25  –4 6                 0                     20 0
                                                                                                                                                                                                     99                                                                                                      1 80                0 –12
                                                                                                                                                                                                                                                                                                                                                                                 Who funds TB research?. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 54
                                                                                                                                                                                                                             82                     –27
                                                                                                                                                                a                                                0                              25                      35                       .3                       8  77
                                                                                                                                                          Afric                                       669 00                                                                              3.0 –7                    0                                                   /2019.
                                                                                                                                                                                                                                                        772                                                  10 40
                                        This province is always on          A high level ministerial                                                                                 We unpack the findings,
                                                                                                                                                                     ericas                                                    26                                                                                                                                 2018
                                                                                                                                                                                                                                                542–                       5.0                   427                                                       d for
                                                                                                                                                           The Am                    ean                916 00
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                                                                                                                                                                                                       1 950
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                                                                                                                                                                                                                                                          23
                                                                                                                                                                                                                                                                          374                           ise.                   evalen
                                                                                                                                                                                                                                                                                                                                       ce su
                                                                                                                                                                                                                                                                                                                                             rvey
                                                                                                                                                                                                                                                                                                                                                                                 1.7 million TB deaths in 2016. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 56
                                        our radar. We reveal that all       meeting took place in Moscow                                                                             the numbers, from the                      103                          44 0                             ot herw                  TB   pr
                                                                                                                                                                                                                                                        –1                                 es                      nal
                                                                                                                                                                                                                                               1 160
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                                                                                                                                                                                sia                     1 89 0                 1 30 0                                signi fic        D           om th
                                                                                                                                                                        East A                                                                               thre e rding to IC results fr

                                        is not well and below the           where the delegates focused
                                                                                                                                                                South-
                                                                                                                                                                 Weste
                                                                                                                                                                         rn Paci
                                                                                                                                                                                 fic
                                                                                                                                                                                     latest WHO TB report. It is
                                                                                                                                                                                                         7 44 0
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                                                                                                                                                                                                                                   unde
                                                                                                                                                                                                                                                   and to
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                                                                                                                                                                                                                                          r 10 0 deat hs acture, pend
                                                                                                                                                                                                                                                                                  ing
                                                                                                                                                                                                                                                                                                                                                                                 AIDS COUNCILS
                                                                                                                                                                                                                   t fig         assi            inte
                                                                                                                                                                   GLOB
                                                                                                                                                                           AL                             ni fican ses are cl India are
                                                                                                                                                                                                                                                                                                                                                                                 VUYOKAZI GONYELA, SECTION27
                                        breathtaking natural beauty         on TB and what needs to be                                                                               a report that reveals that
                                                                                                                                                                                  show
                                                                                                                                                                                                two sig
                                                                                                                                                                                       n to ositive TB or talit y
                                                                                                                                                                             bers ong HIV-p nce and
                                                                                                                                                                                                      m
                                                                                                                                                                                                                 ca            for

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             SECTION27 is a public interest law centre
                                                                                                                                                                    a N um
                                                                                                                                                                               s am TB incide                                                                                                                                                                                    Let’s make AIDS councils work. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 58
                                        there is a story of collapse and    done to turn the tide. Read                                                              b D ea th
                                                                                                                                                                      c Es tim
                                                                                                                                                                               ates
                                                                                                                                                                                     too many people are still
                                                                                                                                                                                    of
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                             that seeks to influence, develop and use
                                        suffering and empty promises.       this report from the frontline.                                                                          dying of TB worldwide, and                                                                                                                                                                  INTELLECTUAL PROPERTY                                                                                                                                                                       the law to protect, promote and advance
                                        Page 32                             Page 52                                                                                                  specifically in South Africa.                                                                                                                                                               LUVO NELANI & ZAIN RIZVI, SECTION27                                                                                                                                                         human rights, particularly the right to
                                                                                                                                                                                                                                                                                                                                                                                 Overdue IP reform process crucial for healthcare in South Africa . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 61                                                   health. Learn more about SECTION27’s
                                                                                                                                                                                     Page 56                                                                                                                                                                                                                                                                                                                                                                                 work at www.section27.org.za.

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                   @SECTION27news
Capture A STATE of - AVAC
GLOBAL HIV & TB RESPONSE
                                                                                                                                                                                                  In 2017, it is very encouraging to see

                      The state of
                                                                                              I am tired – to the point of               A bittersweet trajectory: We are in an
                                                                                              despair – of all the congratulatory        epoch in which the HIV epidemic continues in an          expansion of life-saving antiretrovirals
                                                                                              public raptures about the progress         unremitting manner, eradicating the promise of a         to 21 million individuals worldwide; however,
                                                                                                                                                                                                  in order to get the full impact of this treatment

                      the global
                                                                                              against HIV and AIDS. How could we         better tomorrow from our families and communities.
                                                                                              not have made progress? It’s been          In our country, more than seven million people are       expansion, we also need to ensure that all 21
                                                                                              thirty-six years, for heaven’s sake:       HIV-infected; and it is estimated that there are 1 000   million stay on their treatment and become
                                                                                              we were bound to move forward.             new infections every day. Science continues to push      virally suppressed. Sadly, we are not doing well in

                      HIV and TB                                                              Instead indulging in an orgy of            the boundaries: progress new HIV treatment and           tuberculosis and without a doubt more emphasis is
                                                                                              self-hypnotic success, we should be        care interventions, movements to control paediatric      needed worldwide on improving primary prevention
                                                                                              demanding to know how it’s possible        HIV by reducing maternal-foetal HIV transmission.        of both HIV and tuberculosis. This will require

                      response in                                                             that up to 19 million people still         These have translated into reductions in infant          that we also address structural determinants of
                                                                                              don’t have treatment; that women           and under-five mortality rates, and increased life       universal health: a much harder challenge to meet.
                                                                                              and adolescent girls continue to           expectancy. In the HIV-prevention arena, progress        Professor Linda-Gail Bekker, president of

                      December
                                                                                              bear the brunt of the pandemic’s           in long-acting antiretrovirals for use in pre-           the International AIDS Society & Deputy
                                                                                              assault; that key populations are          exposure prophylaxis may translate into a powerful       Director and CEO of the Desmond Tutu HIV
                                                                                              demonised by fossilised governments,       prevention intervention. As we advance three HIV         Foundation at the University of Cape Town.

                      2017
                                                                                              so that prevention and treatment           vaccine concepts into efficacy studies, we start to
                                                                                              are never available; and that we’re in     think that we may have the kind of tools that have
                                                                                              a staggering funding crisis, the sure      the potential to curb the HIV epidemic globally.
                                                                                              outcome of which is even greater           However, the biggest hurdle to overcome in our
                      On the eve of World AIDS Day 2017,                                      morbidity and mortality. Where is the      fight against HIV is the stigma and discrimination
                                                                                              political and multilateral leadership
                      Spotlight asks a series of activists,                                                                              that HIV-infected people face every day of their
                                                                                              that can decisively and forever turn the   lives. The true test of beating this epidemic will
                      researchers, doctors and powerful                                       tide? We should all be raging against      be whether we as a people have the ability to
                      persons in the HIV and TB worlds what                                   the profusion of fatuous voices.           overcome our prejudices against people living
                                                                                              Stephen Lewis, co-director,                with HIV. While we have at our disposal a series
                      they think.                                                             AIDS-Free World.                           of proven prevention tools to afford us safer            The world has made great strides in
                                                                                                                                         sexual choices, it is evident that science and           tackling HIV/AIDS, but we are in danger of
                                                                                                                                         biomedical interventions alone will not help heal        coming to a standstill. Progress has slowed, for a
                                                HIV and TB continue to be major global public-health issues,                             our communities and families. Structural factors         variety of reasons; but a major roadblock is our
 #4 – December 2017

                                                                                                                                                                                                                                                         #4 – December 2017
                                                   with an estimated 37 million people living with HIV and an estimated 10.4             such as poverty and unemployment, in addition            failure to listen to young people. The largest-ever
                                                     million with TB. The vast majority of people living with HIV and TB are from        to biological factors such as genital inflammation       generation of adolescents in sub-Saharan Africa
                                                     the low and middle-income countries, and the majority of them are public            and viral load, and behavioural factors such as lack     is at risk of HIV – in 2015, nearly 7 500 young
                                                     healthcare users. We can’t afford to lose this battle; political rhetoric without   of condom use and age-disparate relationships,           women aged 15 to 24 years acquired the infection
                                                     action won’t win this battle. The only revolutionary step towards ending            have combined to make our battle against HIV             each week. Stigma, poor education, and services
                                                    HIV and AIDS is to invest more resources in public health care, and have the         all the more challenging. If we are to grow the          that are out of touch. We must understand what
                                                  political commitment and will required to overhaul public healthcare systems.          momentum of our battle strategy against HIV,             young people are going through, and react
                                               Only a functional, well-maintained, well-resourced public healthcare system               then we must not define people by their living
spotlight

                                                                                                                                                                                                                                                        spotlight
                                                                                                                                                                                                  quickly and effectively, if we are to end HIV/AIDS.
                       that will serve the people – irrespective of their class, sexual orientation, financial status and of other       with HIV; but rather, by the lives they fulfil.          Professor Peter Piot, Director of the London
                       discriminatory laws – can take us to where we want to see ourselves with our global response to HIV and TB.       Professor Glenda E. Gray, President                      School of Hygiene & Tropical Medicine and
                       Anele Yawa, General Secretary, Treatment Action Campaign.                                                         of the Medical Research Council.                         former Executive Director of UNAIDS.

  2                                                                                                                                                                                                                                                       3
Capture A STATE of - AVAC
GLOBAL HIV & TB RESPONSE

                                                                                                                                   The political momentum for the fight
                                                                                                                                   against TB is now garnering the same type of global
                      South Africa has the largest HIV                                                                             attention that HIV achieved in 2000, when the UN
                      treatment programme in the world                                                                             General Assembly hosted a Special Session on AIDS,
                      with 4.2-million patients on treatment. This                                                                 the Global Fund was created, and investments shifted
                      has been achieved through a combination                                                                      from the millions to the billions. It’s not before time.
                                                                                                                                                                                                The state of the intertwined,
                      of factors including high levels of activism by                                                                                                                           global HIV and TB response is
                                                                                                                                   Still lagging behind is any serious attention being paid     characterised by two signature themes.
                      civil society formations, political leadership                                                               to the plight of women and girls. In fact, things are
                      from Minister Aaron Motsoaledi, funding from                                                                                                                              In the first instance, we have a global
                                                                                                                                   going into reverse: in January 2017, US President Trump      community unified in strategic intent to
                      national Treasury in the form of a conditional                                                               used his first days in the White House to expand the
                      grant, training of nurses to initiate patients         Thanks to anti-retrovirals, AIDS is                   Global Gag Rule to all $8.8 billion allocated to US global
                                                                                                                                                                                                achieve epidemic(s) control, as encapsulated
                      on first line treatment (NIMART) and support           no longer an inevitably fatal condition, but                                                                       by the UNAIDS 90-90-90 strategy. This
                                                                                                                                   health – including funds dedicated to HIV and TB. This       unified focus needs to be bolstered even
                      from development partners. However with an             a chronic, manageable one; rates of infant
                                                                                                                                   is likely to have a devastating impact on the lives of       further, as the impact of a successful 90-
                      estimated 270 000 new HIV infections in 2016           transmission have been reduced to about
                                                                                                                                   girls and women, especially girls and women impacted         90-90 strategy will be healthy, HIV positive
                      as well as 7.1-million living with HIV and AIDS,       1.5%; and their impact on prevention – directly
                                                                                                                                   by these two diseases. NGOs registered outside the US        persons living long, productive lives, while
                      it is clear that we have much more to do in both       through viral suppression of infected persons,
                                                                                                                                   can no longer provide information or advice about            transmitting the virus at far lower rates.
                      preventing new HIV infections as well as reaching      or through prophylactic use by infected persons
                                                                                                                                   safe abortion, even with their own or other people’s
                      the 90-90-90 targets by 2020. The recently             – is starting to emerge. Though with nearly 20                                                                     The second signature theme relates to
                                                                                                                                   funds, if they want to retain funding flows from the US.
                      launched Global HIV Prevention Coalition’s HIV         million people still to be initiated on treatment                                                                  generalised insecurities globally, and the
                                                                             globally, a million deaths, and 1.8 million new       All of the hard work done so far to address the              emerging dominance of more conservative,
                      Prevention Roadmap proposes a target of no
                                                                             infections still continuing to occur, we can hardly   human rights of girls and women, and to break                inward-looking views among donors. This
                      more than 88 000 new HIV infections by 2020. In
                                                                             claim to have turned the corner or the tide!          through silos, has been endangered. Many HIV                 directly affects the HIV/TB programmes
                      addition, reaching the 90-90-90 targets means
                                                                             We do have sufficient knowledge to achieve            programmes have worked hard to address the needs             that support the poorest and most
                      that we should have 6.2-million patients on
                                                                             epidemic control, however in sub-Saharan              and rights of the women and girls they serve, so             marginalised of communities. Efforts
                      ART by 2020 as well. To meet these targets we
                                                                             Africa, the HIV and TB epidemics are closely          that they can access the full spectrum of sexual and         should be amplified towards lobbying
                      will require that all stakeholders fully commit to
                                                                             intertwined; failure to integrate HIV and TB          reproductive health services alongside their HIV and         wealthy countries to increase donor
                      them, find additional resources as well as work
                                                                             services is resulting in continued high mortality     TB services. Given the heavy reliance of HIV and TB          support to developing countries, while
                      collaboratively. It will also require changes to how
                                                                             rates – as are stigma and discrimination, through     programmes on US funding, catastrophic impacts               developing countries should find greater
                      we provide services to reach the treatment targets
                                                                             creating a barrier to accessing services.             are predicted that will be counted in the lives and          internal resources to support the same.
                      and how we support patients to ensure high levels
                                                                                                                                   well-being of women, girls and their communities.
                      of viral suppression. We also need to more rapidly     Stigma remains a major barrier to access to                                                                        HIV/TB epidemic control requires
                                                                                                                                   Brave politicians – initially from the Netherlands and
 #4 – December 2017

                                                                                                                                                                                                                                                #4 – December 2017
                      decrease new HIV infections by being more              services. We need to partner with infected                                                                         long-term, global, sustainable
                      creative and fully implementing combination            and affected communities much earlier, and            other European countries, and now from Canada,               support by – and for – all.
                      prevention strategies. Our strategies must include     across all stages of developing, evaluating           Afghanistan and a range of African countries –
                                                                                                                                                                                                Dr Tim Tucker is CEO of SEAD Consulting
                      dealing decisively with the TB epidemic as well        and implementing new interventions.                   have mobilised. Around the world, thousands
                                                                                                                                                                                                and specialist Clinical Virologist
                      – preventing new TB infections, finding those                                                                of individuals and organisations are standing
                                                                             Getting to this point has required a lot of
                      that have TB and successfully treating them.                                                                 together under the banner of SheDecides to fight
                                                                             teamwork, political commitment, global
                      We have the political will, the motivation, and                                                              for a ‘new normal’, in which every girl, every woman,        RELATED STORIES:
                                                                             solidarity and innovation – and the next phase
                      the means to reach epidemic control by 2020!                                                                 everywhere decides for herself what to do with her
                                                                             is going to be a lot more challenging. But can                                                                     ++ Pages 10-13 looks at the
spotlight

                                                                                                                                                                                                                                               spotlight
                                                                                                                                   body, her life and her future. And you can join them,
                      Dr Yogan Pillay, Deputy Director General,              we afford to reverse the gains made to date?                                                                          imapct of PEPFAR 2017 on one
                                                                                                                                   by signing the manifesto at www.shedecides.com.
                      South Africa, National Department of Health            Professor Quarraisha Abdool Karim is the Associate                                                                    orphanage in South Africa.
                                                                                                                                   Robin Gorna co-leads SheDecides.
                                                                             Scientific Director of CAPRISA in South Africa.                                                                    ++ Pages 47- 53: Spotlight on TB

  4                                                                                                                                                                                                                                              5
Capture A STATE of - AVAC
STATE CAPTURE

                                                                                                                                State capture threatens
                                                                                                                                the right to health
                                                                                                                                Mark Heywood, SECTION27

                                                                                                                                        “In a sector that is scarce and expensive to begin with, corruption can mean the difference
                                                                                                                                        between life and death.” – Viva Dadwal, Deputy Editor of Globalisation and Health
                                                                                                                                        “Making corruption a research subject and a responsibility of health systems researchers in South Africa
                                                                                                                                        and elsewhere allows us to name the problem, measure it, and develop and test ideas about how to
                                                                                                                                        address it. Such research also allows the global community of health system researchers to contribute
                                                                                                                                        towards improved efficiency, effectiveness and social accountability of health systems.” – L Rispel et al,
                                                                                                                                        ‘Exporting corruption in the South African health sector’, Health Policy and Planning, 2015, 1–11

                                                                                                                                In 2017, a debate raged at the Treatment Action Campaign’s (TAC) National
                                                                                                                                Congress about how to respond to corruption across the country. As the levels of
                                                                                                                                scandal and shock around President Jacob Zuma’s behaviour have risen, TAC’s allies
                                                                                                                                have often called on it to take to the streets and join organisations such as the Save
                                                                                                                                South Africa campaign that are calling for Zuma to step down.
                                                                                                                                However, within TAC, some activists have        health outcomes. That is why “access to           weaves in and out of another. Looked
                                                                                                                                asked: ‘What does health have to do with        health care services” was included as a           at from afar, they compose a picture
                                                                                                                                party politics?’ They argue that TAC should     right for “everyone” in our Constitution.         that promises everyone in our country
                                                                                                                                stick to its mission – the right to health         Today, the Constitution is our supreme         equality, dignity and social justice.
                                                                                                                                – and avoid being caught in a morass of         law. But South Africa’s Constitution                 However, very few of the threads can
                                                                                                                                political mudslinging. There is a level of      started its life as a political agreement         exist independently. The right of access to
                                                                                                                                truth in this argument; however, the very       between parties to mark the dawn of               healthcare services, for example, cannot
                                                                                                                                birth of organisations such as TAC was          democracy. The Constitution is like               be realised in a silo. It is dependent
                                                                                                                                in response to a failing political strategy,    a finely woven tapestry; it has many              in many ways on good governance,
 #4 – December 2017

                                                                                                                                                                                                                                                                                 #4 – December 2017
                                                                                                                                government and healthcare service,              threads and many strands. Each one                accountability, and a government
                                                                                                                                responsible for the deaths of millions of
                                                                                                                                people when they refused to provide
                                                                                                                                adequate treatment for patients with HIV.
                                                                                                                                   Our struggle for the right to health
                                                                                                                                                                                The very birth of organisations such as
                                                                                                                                has always been political, and will always      TAC was in response to a failing political
                                                                                                                                remain political. Everywhere in the world,
                                                                                             Photo: Karien van der Westhuizen

                                                                                                                                the quality of health has everything to do      strategy, government and healthcare
                                                                                                                                with politics. South Africa is no exception.
spotlight

                                                                                                                                                                                                                                                                                spotlight
                      South Africans showed up in their thousands for a day of national
                      action on 7 April 2017 organised by the Save South Africa coalition.                                         Under apartheid, the majority of the         service, responsible for the deaths of millions
                      Pictured here are protesters outside the South African parliament,
                      one sporting a placard showing the face of a horned President
                                                                                                                                population were denied access to quality
                                                                                                                                health services. When apartheid ended
                                                                                                                                                                                of people when they refused to provide
                      Jacob Zuma and that of his friend Atul Gupta, member of the
                      infamous Gupta family, who is strongly linked to state capture.                                           in 1994 there were gross inequalities in        adequate treatment for patients with HIV.
  6                                                                                                                                                                                                                                                                               7
Capture A STATE of - AVAC
STATE CAPTURE                                                                                                                                           However, while we can point to specific instances of corruption in the health system
                      that is diligent in the performance of                    by providing the public with timely,                    and provincial health departments
                                                                                                                                                                                  (as I do below), there has not been enough investigation of the overall levels of
                      public functions. These too are parts of                  accessible and accurate information.”                   now around R190 billion per year,         corruption – or its impact. But it is large. In 2011, for example, SECTION27 and
                      the Constitution. For example, Section                 Section 237 says:                                          the health system also offers rich
                      195 of the Constitution says that:                        “All constitutional obligations must be                 pickings for those intent on theft. In
                                                                                                                                                                                  Corruption Watch commissioned research (Corruption in the South African Health
                        “Public administration must be                          performed diligently and without delay.”                this context, the capture of big health   Sector, Benguela) that concluded that up to R20 billion a year was being lost to
                        governed by the democratic                           What this means is that where                              tenders, ambulances and institutions
                        values and principles enshrined                      government is bad, access to health                        such as hospitals is also common.         corruption in the public and private health sector. It warned that: “If the current
                        in the Constitution, including                       services fails. Without access to healthcare                                                         corruption risk remains and is not appropriately addressed, it will inflate the cost of
                        the following principles:                            services, people’s health will deteriorate.                How corruption
                        a. A high standard of professional ethics               Very few people now deny that we                        manifests itself in the                   health care, limit access to services, and negatively impact on the quality of care.”
                        must be promoted and maintained.                     have a very bad government. In the                         healthcare system
                        b. Efficient, economic and effective                 last two years our country has been in                     Corruption is a serious threat to         More recently, research by Laetitia Rispel             Rispel et al attempt to quantify the               financial years between 2009 and
                        use of resources must be promoted.                   the throes of a crisis caused by what                      the majority of the population            and others recorded that the majority               cost of corruption in health by studying              2013, the total amount of irregular
                        c. Public administration must                        is now known as ‘state capture’. Theft                     who rely on public hospitals and          of people they interviewed “were of the             levels of “irregular expenditure” that                expenditure within provincial health
                        be development-oriented.                             by people such as the Gupta family                         clinics. Not only does it make            opinion that corruption is pervasive,               are recorded in reports of the Auditor                departments was over R24 billion.
                        d. Services must be provided impartially,            has been facilitated by President                          it difficult for them to receive          particularly in the public health sector. For       General. Irregular expenditure is                         This is a huge amount of money!
                        fairly, equitably and without bias.                  Zuma and other Cabinet members.                            proper treatment when they are            example, commenting on corruption in                money that is spent without proper                    It is the equivalent of the annual
                        e. People’s needs must be responded                     Unfortunately, the story of state                       vulnerable and cannot pay a bribe,        the public sector, respondents note that            authorisation and outside of the legal                budget for the HIV conditional grant,
                        to, and the public must be encouraged                capture has been told in a one-sided                       but when funds, medicines and             it is ‘rampant’ (Private Hospital Manager)          framework. It is not automatically                    or twice the amount currently spent
                        to participate in policy-making.                     way. Most of the focus has been on                         equipment are stolen or misused           and has ‘reached uncontrollable levels’             corrupt – but a very large part of it is.             on Emergency Medical Services (which
                        f. Public administration                             institutions such as SARS, Eskom, SAA,                     by officials, it can have devastating     (Provincial Department of Health Director).”        They found, for example, that in four                 we know to be woefully inadequate).
                        must be accountable.                                 PRASA and now the Treasury. But with                       effects on communities at large.
                        g. Transparency must be fostered                     the combined budget of the national                                                                  Total amount assessed by Auditor-general as irregular expenditure, 2009/10-2012/13, by
                                                                                                                                                                                  province. Nominal ZAR ‘000 – with real ZAR ‘000 December 2012 in brackets.

                       Type of corruption Examples                                                                                                                                 Province                          2009/2010                      2010/2011                       2011/2012                    2012/2013
                       Informal payments                        Unofficial payments given to healthcare providers which are more than the                                          Western Cape                        27 168 (30 803)              119 194 (128 719)                74 000 (75 665)              86 700 (83 849)
                                                                official cost of a service, or for services that are supposed to be free
                                                                                                                                                                                   Mpumalanga                               0 (0)                    15 281 (16 502)                285 061 (291 473)            123 100 (119 052)
                       Selling of government posts              A senior official in a position of power demands a payment from
                                                                government agents to secure or keep their positions
                                                                                                                                                                                   Eastern Cape                     1 327 628 (1 505 247)           278 320 (300 562)               436 000 (445 808)            304 000 (294 004)
                       Moonlighting                             Healthcare professionals abusing leave policies or conducting their private practice during work hours
                                                                                                                                                                                   KwaZulu-Natal                      637 725 (723 044)             562 329 (607 267)           2 038 000 (2 083 845)          2 719 200 (2 629 787)
                       Bribes                                   Money or something of value promised or given in exchange for an official action

                       Procurement corruption                   Includes many types of abuse, such as bribes, kickbacks, fraudulent invoicing,                                     Limpopo                                159 (180)                 401 477 (433 560)               625 600 (639 673)            571 200 (552 418)
                                                                collusion among suppliers, failure to audit performance on contracts, etc.
                                                                                                                                                                                   Free State                         273 615 (310 221)             318 543 (343 999)                45 300 (46 319)             143 700 (138 975)
                       Theft or misuse of property              Theft or unlawful use of property such as medicines, equipment or vehicles for personal
                                                                use, for use in a private medical practice, or for resale or renting out
                                                                                                                                                                                   Gauteng                            455 643 (516 602)           2 246 121 (2 425 617)         1 100 000 (1 124 744)          1 524 200 (1 474 081)
                       Fraud                                    Includes false invoicing, ‘ghost’ patients or services (billing for patients who do not actually exist
                                                                or services that were not rendered), and diversion of funds into private bank accounts
                                                                                                                                                                                   Northern Cape                      100 872 (114 367)           1 074 860 (1 160 756)             942 000 (963 190)          1 064 500 (1 029 497)
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                                                                                                                                                                                                                                                                                                                                         #4 – December 2017
                       Embezzlement of funds                    Officials, healthcare providers or other individuals stealing or deliberately
                                                                diverting national funds allocated for healthcare services                                                         North West                         513 759 (582 493)            949 487 (1 025 364)          1 726 000 (1 764 826)            971 300 (939 362)

                       Nepotism                                 Employment opportunities are given to friends and family members
                                                                                                                                                                                   TOTAL                            3 336 569 (3 782 958)         5 965 613 (6 442 347)         7 271 961 (7 435 543)          7 507 900 (7 261 025)
                                                                based on personal connections instead of merit

                       Improper healthcare accreditation        Individuals or groups approve a healthcare professional’s qualifications due to personal                          Base 100 = December 2012. Source: Auditor-Genreal of South Africa, 2014.
                                                                or political connections with the professional or the receipt of a bribe

                       Inappropriate healthcare                 Officials provide unwarranted certification to a healthcare facility, due to personal or                          When such massive amounts are misspent              became president; and in the dying                    table. It unashamedly smirks at us while
                       facility certification                   political connections with the facility operators or the receipt of a bribe                                       and stolen, there is bound to be an impact          days of his rule, the rot within the health           its wickedness creeps into all corners of
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                       Inappropriate healthcare                 Officials provide unwarranted certification to a healthcare training facility, due to personal
                                                                                                                                                                                  on the availability and the quality of              system has become increasingly evident.               the public and private sector, infecting
                       training facility certification          or political connections with the college owners or the receipt of a bribe                                        care in the health system. Much of this             Corruption is no longer the hidden hand               many with the desire to plunder the
                                                                                                                                                                                  corruption was intensified after Zuma               passing brown envelopes under the                     public purse for self-enrichment.
                      Source: Corruption Watch/SECTION27

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                                                                                                                                                                    orruption in the Free State            Conclusion: AIDS activists must be anti-
                                                                                                                                                                   Department of Health                     corruption and social justice activists!

                      Below are some examples of corruption that have been confronted by SECTION27                                                              But Gauteng is not the only provincial      The examples I have given above are                   Unfortunately, it doesn’t seem that the
                                                                                                                                                                health system where thieves rule. For       reasons that AIDS activists must also be              national and provincial health departments
                      and TAC.                                                                                                                                  several years, TAC and SECTION27 have       political and social justice activists.               take corruption seriously, or that it is being
                                                                                                                                                                tried to spotlight corruption in the Free      Politicians are the gatekeepers of the             seriously investigated by bodies such as
                                                                                                                                                                State Department of Health. Dr Benny        resources allocated to and spent on                   the Hawks or the NPA. Their responses
                      a. G
                          auteng Health Department:               It has been nine years. But there is no       of rands. There is also some evidence          Malakoane, who was the MEC for health       healthcare services. When their greed                 are usually reactive to reports by civil
                         a rogue unit                              case.” Looking at the current state of        that they benefited from the patients’         between March 2013 and October 2016,        supersedes the needs of the people,                   society and the media, rather than part
                                                                   affairs and the political puppets in charge   disability grants and life insurance.          had already learnt his thieving ways by     and results in the crippling of our health            of a proactive plan to root out corruption
                      The Gauteng Health Department                of the National Prosecuting Authority,           But Life Esidimeni is not just              the time he became MEC. He is on trial      institutions – and in many instances, leads           in the health sector. Until there is political
                      is possibly one of the most corrupt          it seems unlikely that Hlongwa will be        about a few corrupt individuals. The           for charges of corruption related to his    to the deaths of our most vulnerable –                commitment to really fighting corruption,
                      provincial health departments in the         brought to justice for crippling the GDoH.    Gauteng healthcare system has been             past employment, but every time he is       we must then admit that we are indeed                 civil society will have to fill the gap by
                      country. Its irregular expenditure for           In 2009 Hlongwa was replaced by           corrupted. Instead of being managed            due in court he and his accused seem        a sick society. The president might not               exposing and reporting corruption.
                      the period of 2010/2011 to 2016/2017         disgraced MEC Qedani Mahlangu.                as a system for health care, it is seen        able to engineer a postponement.            have had direct involvement in cases                     On a day-to-day basis this requires
                      was calculated by the Auditor General        Between the two of them they have             by politicians and public servants as a           In 2015 a whistle-blower contacted       such as Life Esidemeni and the crumbling              strengthening of community oversight
                      to be a massive R6.9-billion.                managed to bankrupt the GDoH.                 get-rich-quick scheme. And the most            SECTION27 to tell us that Benny             of the NHLS; but the system of thievery               through participation in hospital
                         The rot appears to have started               As a result the price of corruption       senior officials in government – like          Malakoane had introduced a programme        that festered under his leadership allows             boards and clinic committees. It means
                      about ten years ago, with then-MEC           is being felt in collapsing services;         president Zuma – turn a blind eye to           for unproven stem-cell treatment of         for a Qedani Mahlangu, and makes the                  organisations that monitor health-service
                      for Health Brian Hlongwa. Hlongwa is         community health workers go unpaid            this, because the individuals involved         geriatric patients at two hospitals in      call for his removal all the stronger.                delivery (such as the Stop Stock-outs
                      facing charges of corruption. Due to         because of corruption; babies die or          are usually part of a political faction        Bloemfontein. The programme was                 The fact that access to healthcare                Project) are vital. Re-establishing bodies
                      the capture and collapse of our criminal     are disabled because there are not            whose support they depend upon.                costing the Free State DoH R3 million a     services is a constitutional right does               such as the Budget, Expenditure and
                      justice system, Hlongwa has not yet          enough midwives and nurses; people               One significant casualty of corruption      month, and would run for three years. It    not mean we should think that health is               Monitoring Forum (BEMF) is also essential.
                      faced the consequences of his corrupt        acquire TB and MDR-TB because there           in the GDoH is the National Health             was alleged that Malakoane had a direct     automatically protected. It is contested                 Civil society needs to constantly monitor
                      behaviour. Hlongwa is currently facing       are no systems for infection control. As      Laboratory Services (NHLS). The                relationship with the company that was      by the everyday behaviour of officials                institutions such as SANAC, from where
                      charges of corruption and money              we saw recently, hospitals treat dead         NHLS can be thought of as being the            providing the ‘service’. Fortunately, on    who steal from funds intended to realise              there have been reports of corruption
                      laundering relating to two tenders           bodies like the carcasses of animals.         arteries of the public-health system,          the basis of the information provided by    that right. If we don’t root out corruption           involving civil society leaders. We also need
                      worth R1.4-billion. It is alleged that in        The worst example of the results of       and particularly of the response to            the whistle-blower SECTION27 was able       in the public-health system, the health               to investigate tenders worth hundreds
                      2007, Hlongwa fraudulently rigged two        corruption is the Life Esidimeni disaster,    HIV and TB. It is like the Eskom of            to inform the Director General in the       system will collapse. According to Rispel             of millions of rands, such as that given
                      tenders so that they could be awarded        which caused the death of at least 143        health. Controlling AIDS and TB is             DoH, who quickly investigated and then      and others: “Poor governance and                      to the controversial company Sadmon
                      to 3P Consulting and Boaki Consortium,       mental-health patients. The arbitration       totally dependent on laboratory tests          closed the programme down. Tens of          corruption share a reciprocal relationship            for a health communications strategy
                      and that he received various kickbacks in    currently under way aims to find the          for HIV such as CD4 count and viral            millions of rands were saved from theft.    and negatively impact on the morale                   that is mostly invisible and ineffective.
                      return. 3P was initially paid R120 million   truth. At this point, the real reasons        load, and on technologies such as                                                          of healthcare providers, the majority                    Finally, on a political level it means
                      to establish a project management unit       patients were moved out of Life Esidimeni     GeneExpert. However, the GDoH owes             c. Theft of medicines                       of whom are committed to service                      that TAC should join forces with
                      for the department, but they ended up        and dumped into unregistered ‘NGOs’           over R2.5 billion to the NHLS… but                                                         excellence”. They go on to say that:                  those challenging corruption at the
                      earning R392 million by the time their       where most of them died must still come       says it can’t afford to pay its bill.          As we know, South Africa now has the           “Although legislation seems adequate,              highest level, including that of the
                      contract was cancelled in 2009. Boaki        out. But some of the evidence seems              To make matters worse, people who           biggest anti-retroviral (ARV) programme        initiatives by government to identify and          President and the ruling party.
                      was awarded a tender worth R1.2 billion      to suggest that senior officials such as      work in the NHLS allege that there is          in the world. Billions of rands are spent      ameliorate vulnerabilities to corruption within       If state capture and corruption is not
                      to set up a health information and           Dr Makgabo Manamela, the head of              rampant corruption and mismanagement           on medicines every year. This is also          the health sector need to be further developed.    investigated and punished, South Africa
                      health records system. By the time           mental-health services, may have had          by senior officials. In the latest financial   an area vulnerable to corruption. For          Proactive mechanisms to detect corruption          will end up with a public-health system
                      their contract was cancelled in 2008,        corrupt relationships with some of the        year, the NHLS incurred nearly R1 billion      example, when the issue of major stock-        and the enforcement of negative sanctions          as broken and dysfunctional as that
                      they had been paid R400 million, but         ‘NGOs’ to which they sent patients.           in irregular expenditure. If the NHLS          outs first became a concern in 2013,           against those found guilty of corruption           in other African and Asian countries.
                      no infrastructure had been set up.               These ‘NGOs’ profited from patients       collapses as a result of its burden of         one of the reasons was rampant theft           are important interventions to create              That, surely, is something we must
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                                                                                                                                                                                                                                                                                                                    #4 – December 2017
                         In 2010, the Special Investigating Unit   the GDoH sold them to care for, several       debt and corruption, large parts of the        at provincial medicine depots such as          disincentives for engaging in corrupt activity.”   do everything we can to avoid.
                      (SIU) was given a mandate to investigate     of them making hundreds of thousands          health system will go under with it.           that in Umtata. A report produced by
                      these matters by a Presidential                                                                                                           TAC and MSF at the time noted that at
                      Proclamation. It has been seven years,
                      and still no-one has been brought to
                                                                                                                                                                any one time, the Umtata depot would
                                                                                                                                                                have medicines in stock worth up to
                                                                                                                                                                                                            When [the] greed of politicians supersedes
                      book. Hlongwa is currently serving as        The rot [in the Gauteng Department                                                           R40 million – and noted how much            the needs of the people, and results in the
                      the ANC Chief Whip in the Gauteng                                                                                                         of this was at risk of being stolen. In
                      Legislature, and has continued to operate    of Health] appears to have started                                                           recent years – in part because of TAC       crippling of our health institutions – and
                      with impunity. He recently noted: “I was                                                                                                  and SECTION27’s activism, and the
spotlight

                                                                                                                                                                                                                                                                                                                   spotlight
                      once a minister, an MEC of health from       about ten years ago, with then-MEC                                                           monitoring of the Stop StockOuts Project    in many instances, leads to the deaths
                      2006 to 2009 in Gauteng. There is a cloud
                      hanging over my head. I am supposed
                                                                   for Health Brian Hlongwa. Hlongwa                                                            (SSP) – the management of provincial
                                                                                                                                                                medicine depots has improved,
                                                                                                                                                                                                            of our most vulnerable – we must then
                      to be somebody who is corrupt as well.       is facing charges of corruption.                                                             reducing the risk of corruption.            admit that we are indeed a sick society.
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                                                                                                                                  Funding by faith
                                                                                                                                  Ufrieda Ho, Spotlight

                                                                                                                                  A community caregivers project for rural KwaZulu-Natal AIDS orphans and
                                                                                                                                  vulnerable children hangs in the balance as donor money from the United States
                                                                                                                                  dries up.
                                                                                                                                  Even for a woman of faith, breaking bad          heavily on this source of income.            the small projects around the country
                                                                                                                                  news is never an easy thing to do.                  The project that started in October       especially now have to find their own
                                                                                                                                      When Sister Krystyna Ciarcińska              2015 focuses on supporting children          way to fund their programmes or they’ll
                                                                                                                                  called a meeting for the 30 caregivers           in vulnerable households, many are           have to shut them down,” she says.
                                                                                                                                  of the Koinoina Orphans Project                  AIDS orphans. It’s part of the Catholic         At this point, Pepfar will continue to
                                                                                                                                  in rural Umzimkhulu, KwaZulu-                    Church’s response to HIV/ Aids that was      fund projects in South Africa till September
                                                                                                                                  Natal at the end of winter this year,            officially started in the country in 2000.   next year. In May, the US Embassy in
                                                                                                                                  she did so with a heavy heart.                      Withdrawal of PEPFAR funds                Pretoria announced that Pepfar would
                                                                                                                                      “I was so sad and I didn’t know what            The SACBC has been a beneficiary of       support South Africa’s HIV/AIDS and TB
                                                                                                                                  I was going to say to them,” she says,           the United States’ Pepfar (President’s       programmes till September next year and
                                                                                                                                  remembering that day. In her hand                Emergency Plan for Aids Relief ) funding     would support the National Strategic Plan
                                                                                                                                  was the letter from the South African            since the fund came into being officially    (NSP)’s 2017-2022 programmes for HIV,
                                                                                                                                  Catholics Bishops Conferences (SACBC)            in 2004. The shift in foreign policy under   TB and Sexually Transmitted Infections.
                                                                                                                                  notifying the Lourdes Mission, where Sr          the Trump administration has however,        An additional U$51-million in funding
                                                                                                                                  Krystyna is a consecrated sister of the          sparked concern for critical long-term       was approved to support South Africa’s
                                                                                                                                  Koinonia John the Baptist community,             financial support from Pepfar.               voluntary male medical circumcision
                                                                                                                                  that funding for the two-year-old Koinonia          According to Mrudula Smithson,            programme. Since 2004, Pepfar has
                                                                                                                                  Orphans Project she headed up, would             director of the SACBC AIDS Office, Pepfar    invested over U$5.6-billion in South Africa.
                                                                                                                                  run out by the end of September.                 funding to the SACBC has been reduced           A million realities away from
                                                                                                                                      “Sometimes when we call special              by around half for the next financial        decisions made in boardrooms in
                                                                                                                                  meetings it’s because we have been               year. While Smithson says they don’t         capital cities, Koinonia Orphans Project
                                                                                                                                  given unexpected donations of blankets,          disclose the actual amounts, she says        caregivers must still get on with
                                                                                                                                  mattresses or something, so the caregivers       their projects have been hit badly.          visiting families under their care.
                                                                                                                                  were very excited. But instead I had bad            “We receive three streams of
                                                                                                                                  news to tell them; it was terrible,” she says.   Pepfar funding for our projects that         Giving care
                                                                                                                                      That official funding has dried up and it    all focus on orphaned and vulnerable         With basic training in nutrition, hygiene
                                                                                                                                  has been a blow. But the Lourdes Mission         children – all three have been severely      and counselling, caregivers help make
                                                                                                                                  has fought to continue with the project          affected while our target of the number      sure people adhere to their medicine
                                                                                                                                  even though for the past few months              of children we want to reach has             regimes and have food to eat, often they
                                                                                                                                  paying the R35 000 a month bill it costs to      increased significantly,” she says.          share from their own meagre provisions.
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                                                                                                                                                                                                                                                                                #4 – December 2017
                                                                                                                                  run the project has never been a certainty          Smithson adds that the SACBC Aids         They cook and clean, fix homesteads,
                                                                                                                                      “Prayers and providence,” says the           Office programmes currently reaches 45       and help plant food gardens. They also
                                                                                                                                  irrepressible Sr Krystyna with a smile, at       000 children. “We are very concerned that    help register children for birth
                                                                                                                                  how donations have materialised. Still,
                                                                                                                                  she’s only too aware that the long-term
                                                                                                                                  sustainability of the project is in jeopardy.
                                                                                                                                      The Koinonia Orphans Project has
                                                                                                                                  over the last two years become a vital           A million realities away from decisions made
                                                                                                                                  lifeline for over 900 children registered
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                                                                                                                                                                                   in boardrooms in capital cities, Koinonia
                                                                                                              Photo: Ufrieda Ho

                                                                                                                                  in the project and their families from the
                      Sporting their blue golf shirts are some of the Koinonia Orphans caregivers who have                        13 villages that surround the mission
                                                                                                                                  station. The 30 caregivers who receive
                                                                                                                                                                                   Orphans Project caregivers must still get
                      changed the lives of at least 900 children in 13 villages in Uzimkhulu. From left are
                      Ntombovuyo Langa, Bongekile Dlamini and Gloria Tsezi. In front is Lodiwe Ndzimande.                         a stipend for their service also rely            on with visiting families under their care.
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PEPFAR FALLOUT

                                                                                        certificates and identity documents.             A difficult life                                 own, there are even little girls bearing
                                                                                        They do school monitoring, help with             A few villages away in Riverside, a mother       her name – spelt the Polish way – the
                                                                                        homework and ensure that children                tells of her trials of living with HIV and       mothers and the nun say with a laugh.
                                                                                        have school uniforms, without which              the devastation of some years ago when              It was in 2010 that the arduous
                                                                                        they’re not allowed to attend school.            she found out that one of her children, an       process of rebuilding the Lourdes
                                                                                            Another prong of the Koinonia                11-year-old girl, is also HIV positive. The      Mission and their cathedral first started
                                                                                        Orphans Project has been twice                   child has also suffered from TB, she says.       under invitation by the local bishop
                                                                                        yearly voluntary HIV/AIDS testing                   They have a vegetable garden but              to Father Michal Wojciechowski, who
                                                                                        and counselling days targeted                    sometimes there isn’t enough food                now heads the Koinonia John the
                                                                                        at children but also reaching                    for a square meal – essential for those          Baptist community in Lourdes.
                                                                                        adults who live in communities                   taking ARVs. Riverside was also without             The mission station and cathedral date
                                                                                        surrounding the Lourdes Mission.                 water for nine months this year.                 back to 1895. They were built by Trappist
                                                                                            In their last testing campaign held in          In another village Tryphina Mkalane           monks but had been given over to neglect
                                                                                        August they were able to test 400 people,        is grieving for her daughter who                 and abandon for decades. Brick by brick
                                                                                        working in collaboration with local clinics      died just months ago. It’s added two             the community has worked to rebuild the
                                                                                        that provided the pin-prick test kits.           more grandchildren under her care,               twin-towered cathedral and the living
                      TOP LEFT: The Lourdes Mission has
                      suffered from neglect, abandon                                        “Knowing their status early is               bringing to five the number of young             quarters for the handful of nuns and
                      and fire for over one hundred years.                              important so that they can start                 ones who live in her rondavel.                   brothers who keep the mission alive.
                      Goats graze where the remains of the                              treatment early,” says Gloria Tsezi,                One of the children turns 18 soon.               There’s still a mountain of work to be
                      convent that the Koinonia John the                                one of the Koinonia caregivers                   Mkalane worries she will not find a paying       done, like restoring a burnt out convent
                      Baptist community hold to rebuild.
                                                                                        in the village of Moyeni.                        job. At the same time it will mean she’ll lose   and an adjoining boarding school.
                      ABOVE: The home headed by Christina
                                                                                            Tsezi visit homes where the burdens          a social grant that goes towards paying for         Every day there are new needs that
                      Mtolo (far right), her daughter Gloria
                      Mbhele (far left) and with them                                   facing families is heavy. At the home            groceries, transport and school supplies.        present at the Lourdes Mission’s doors.
                      Gloria’s children Anelisiwe Mbhele,                               of Busisiwe Khambula and her three                  “One of my other daughters is in              The sisters, brothers and Father Michal
                      their friend Thembalethu Tshabalala,                              children, Tsezi looks on as Khambula             Durban. She’s been trying to find a              open their arms to it all: a woman and
                      and Gloria’s other child Senelweko.
                                                                                        cradles in her lap the head of her               job for over a year now. We send her             her children who have gone three
                      They are one of the families that are
                      part of Koinonia Orphans Project.                                 eldest of three children, Olwethu (18).          the grant money so she can pay rent              days without a meal; the shattering
                                                                                        He is severely disabled and often                in Durban,” says Mkalane, speaking               news of a teenage suicide; someone
                      BELOW: When rain sets in in the hills of
                      Umzimkhulu it brings with it cold and                             suffers from uncontrollable fits.                through her caregiver, Lucinda Dlamini.          needing help with homework or just
                      winds that make tough lives even tougher.                             “Sometimes the clinic tells me there            For Sr Krystyna, who grew up in Poland        seeking out comfort and a prayer – and
                      BELOW LEFT: Wall decoration                                       are no medicines for his fits, then I have       and arrived in South Africa from Spain first     of course, the on-going question of
                      inside a rondavel.                                                to go to Rietvlei Hospital. Sometimes I          in 2013 then permanently since April 2014,       how to fund the Koinonia Orphans
                      LEFT: Granny Tryphina Mkalane has lost                            just lie him down flat and wait till the         helping to lighten people’s challenges           Project for the the long-term.
                      her daughter and another is in Durban                             fit is finished – it hurts my heart too          bought on by the collision of multiple              But the cathedral is a beacon of joy
                      looking for work. It means she has to look
                                                                                        much,” Khambula says. Transport to               miseries has become part of her life’s work.     and spiritual light. It’s packed to capacity
                      after five of her seven grandchildren.
                                                                                        get to the hospital costs her R200.                 Every sad story breaks her heart, but         for Mass each Sunday, the mission’s
                                                                                            Tsezi and Khambula also tell                 not her faith. Her childhood fascination         food garden and orchards now thrive
                                                                                        of Khambula’s allegedly abusive                  with Africa has turned into the place            as a symbol of new hope. Funding
                                                                                        relationship with the mostly absent              she now calls home. In return the                is sorely needed here; faith in action
                                                                                        father of her children. Abuse is                 community has embraced her as their              though, grows with abundance.
                                                                                        another load that women in this
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                                                                                                                                                                                                                                          #4 – December 2017
                                                                                        remote district of KZN must carry.
                                                                                            Tsezi says: “He threw away all her
                                                                                        pots and burnt all the children’s                “Sometimes the clinic tells me there are
                                                                                        documents so I had to help get new
                                                                                        identity documents for the children.
                                                                                                                                         no medicines for his fits, then I have
                                                                                            “I come to look after Olwethu and            to go to Rietvlei Hospital. Sometimes I
                                                                                        the two smaller children, Jabulile and
                                                                                        Simthanda, when Busisiwe must go out.            just lie him down flat and wait till the
                                                                                        I give Olwethu soft porridge and milk,
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                                                                                                                                         fit is finished – it hurts my heart too
                                                                   Photos: Ufrieda Ho

                                                                                        it’s the only thing he can eat – he likes it,”
                                                                                        she says, proudly wearing the sky-blue
                                                                                        Koinonia golf shirts that have become
                                                                                                                                         much,” Khambula says. Transport to
                                                                                        the uniform of the projects’ caregivers.         get to the hospital costs her R200.
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PEPFAR FALLOUT

                                                                                                                                                                                Burden of the generations
                                                                                                                                                                                Ufrieda Ho, Spotlight

                                                                                                                                                                                When the rain sweeps in over the hills of Umzimkhulu and the winds follow, the
                                                                                                                                                                                rolling hills turn to mud and muck. Mist and chill wrap around rondavels with little
                                                                                                                                                                                forgiveness.
                                                                                                                                                                                Gogo Alexsia Njilo (95) calls this                 Njilo’s is one of the vulnerable          of studying to become a teacher.
                                                                                                                                                                                remote part of southern KwaZulu-Natal           households under the care of the             She says: “Actually my dream is to
                                                                                                                                                                                home. On a soggy, cold afternoon,               Koinonia Orphans Project, run by             open a crèche, I love children.”
                                                                                                                                                                                the nonagenarian tends a steel teapot           the small community of consecrated              But both dreams have stalled.
                                                                                                                                                                                warmed on burning firewood in the               sisters and brothers from the Catholic          “I’m happy to be a caregiver this
                                                                                                                                                                                centre of her rondavel. In-between she          Church’s Koinonia John the Baptist           year, I think I will be able to look after
                                                                                                                                                                                shoos away chickens pecking on the              community, based at the Lourdes              Gogo and the two boys, even though
                      ABOVE: 95-year old Alexsia Njilo can barely look after herself and says here two teenage grandsons don’t give her much assistance.                        dung-mud floor, also seeking the mercy          Mission in a neighbouring village.           I don’t know if they’ll listen to me,”
                      BELOW: Bertha Mia is co-ordinator of the Koinonia Orphans caregivers, with her is Thembile Dzanibe, one of the youngest                                   of warmth. Njilo lives with two teenage            The 95-year-old’s Koinonia caregiver is   she says, sitting inside Njilo’s hut.
                      caregivers in the project.                                                                                                                                grandsons here that she mumbles                 the newest and youngest in the project:         Gogo’s face does light up to greet
                                                                                                                                                                                are no good and no help to her. They            19-year-old Thembile Dzanibe, who            her young caregiver but she’s also lost
                                                                                                                                                                                come and go as they please, she says.           joined them in the middle of November.       to tiredness and her own thoughts.
                                                                                                                                                                                   “I won’t cook tonight because they              Dzanibe finished her matric in 2016 and      For Bertha Mia, the co-ordinator of
                                                                                                                                                                                will just eat all my food,” she says in Zulu,   had been looking for work ever since.        the Koinonia caregivers, the role that
                                                                                                                                                                                I will drink tea for my dinner, she says.          “Many young people are in the same        Dzanibe has committed to is a big one.
                                                                                                                                                                                   So much adds to Njilo’s hardships:           situation as me. Here in the rural areas        “You need patience to do this
                                                                                                                                                                                maladies of old age; few opportunities          there are no jobs or opportunities,          job; you also need to treat every
                                                                                                                                                                                or hope for young people in this                nobody has work, they just have to           person with dignity. You have to work
                                                                                                                                                                                remote village and little infrastructure        sit at home. I applied for bursaries to      hard and be honest,” says Mia.
                                                                                                                                                                                and resources to make life easier               study but I wasn’t accepted,” she says.         Dzanibe nods as Mia
                                                                                                                                                                                for a family living in poverty in the              Added to this she says there’s a          passes on this advice.
                                                                                                                                                                                Harry Gwala district. The district              growing drug problem and a deep-rooted          Community caregivers take on an
                                                                                                                                                                                has been in the news of late for                crisis of alcohol abuse that often leads     intimate, sometimes almost impossible
                                                                                                                                                                                political killings, cases of corruption         to violence and criminality. Teenage         task. They’re a pillar that props up the most
 #4 – December 2017

                                                                                                                                                                                                                                                                                                                              #4 – December 2017
                                                                                                                                                                                and municipal mismanagement,                    pregnancy is also common and HIV/AIDS        vulnerable in society, yet as in the case
                                                                                                                                                                                also lack of infrastructure and                 continue to ravage the community.            of the Koinonia Orphans Project they’re
                                                                                                                                                                                pressing needs for basic services.                 As a born-free, Dzanibe had hopes         also first to fall when funding dries up.

                                                                                                                                                                                So much adds to Njilo’s hardships: maladies of old age; few
                                                                                                                                                                                opportunities or hope for young people in this remote village
                                                                                                                                                           Photos: Ufrieda Ho
spotlight

                                                                                                                                                                                                                                                                                                                             spotlight
                                                                                                                                                                                and little infrastructure and resources to make life easier for
                                                                                                                                                                                a family living in poverty in the Harry Gwala district.

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