Celebrating end of cancer treatment and looking forward to brighter times - A week in the - Rainbow Trust Children's Charity

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Celebrating end of cancer treatment and looking forward to brighter times - A week in the - Rainbow Trust Children's Charity
FAMILIES
FIRST
SPRING/SUMMER 2021

Celebrating
end of cancer
treatment and
looking forward
to brighter
times

A week in the
life of a Family
Support Worker

Remembering
positive, happy
memories
Celebrating end of cancer treatment and looking forward to brighter times - A week in the - Rainbow Trust Children's Charity
Dear                                                                           Contents
    Supporter,                                                                     From the CEO                  2

                                                                                   Our Impact – A year like
    A year on from the start of the                                                no other                      3
    COVID-19 pandemic, Rainbow               Zillah, drawn by
    Trust Family Support Workers           Kerindeep, Aged 11                      What parents and
    are helping parents and carers of
                                                                                   children say                  3
    seriously ill children to navigate
    challenges anew.                       there, safely, for families who know    Lauren shares her experience
                                           they can count on Rainbow Trust.
    In this edition of Families First,
                                                                                   of bereavement               4
    you will learn more about how          We are proud that, in November,
                                                                                   Celebrating end of cancer
    having the trusted constant of a       when we asked families to rate our
    Rainbow Trust Family Support           overall service, 97% of parents/        treatment and looking forward
    Worker, providing support either in    carers who responded rated it           to brighter times           6
    person or remotely, makes a huge       as good or excellent. Thank you
    difference to families’ lives.         for your continued support of           Your support really matters   8
                                           Rainbow Trust; you are helping us
    So many challenges faced by            to reach families so much in need.      A week in the life of a
    families living with serious                                                   Family Support Worker         9
    childhood illness are tough enough
    to deal with without a global                                                  Remembering positive,
    health pandemic. At the end of                                                 happy memories                10
    2020, our Pandemic Pressures
    report reinforced how COVID-19         Zillah Bingley, CEO                     Fundraising heroes            11
    had caused a vast number of new
    emotional and practical pressures                                              How you can help
    on families already facing a high                                              seriously ill children        12
    degree of stress and anxiety about
    the health of their child. Earlier
    this year, we asked families we
    support to tell us more about
    their situations compared to the
                                                   Since July last year we have started supporting 243
    first lockdown, and the results
                                                   new families, which is an average of one new family
    show that their outlook has not
                                                   each day. When serious illness affects a child, family life
    improved.
                                                   is turned upside down. Rainbow Trust pairs each family
                                                   with a dedicated expert Family Support Worker to help
    Many families are facing a steep
                                                   them face and make the most of each new day.
    uphill struggle as they try to
    balance worries about their child’s
                                                   Despite the restrictions brought about by the
    medical care, their own mental
                                                   pandemic, Family Support Workers continue providing
    health, their financial security and
                                                   practical and emotional support to families caring for
    their continued isolation. We will
                                                   a seriously ill child in whatever way is possible. This
    continue to urge Government and
                                                   includes virtual support sessions for children, emotional
    decision makers to address the
                                                   support for parents by telephone and video calls, and
    long-standing gap in funding for
                                                   the delivery of essential medicines and groceries to
    vital support to benefit families at
                                                   families’ doorsteps where necessary.
    a time of great anxiety, when they
    need it more than ever.

    As the end of the third national               STAY IN TOUCH
    lockdown nears, we look hopefully
                                                   Call us: 01372 363438
    to the rest of 2021. Our new Care
                                                   Email us: supportercare@rainbowtrust.org.uk
    policies and procedures are a
                                                   Visit us: rainbowtrust.org.uk
    stable basis from which we will
    increase face-to-face support.                 You can check our Privacy Policy at
    Through weekly testing, personal               rainbowtrust.org.uk/cookieandprivacypolicy
    protective equipment, social                   Follow us:       facebook.com/RainbowTrust
    distancing, increased cleaning                 			              twitter.com/rainbowtrustcc
    and sanitising of buildings and                			              instagram.com/rainbowtrustcc
    equipment as well as vaccinations,
                                                   Head Office address: Cassini Court, Randalls Way,
    we can continue to adapt and be
                                                   Leatherhead, Surrey KT22 7TW
                                                   Registered Charity No. 1070532.

2                                                                                                    FAMILIES FIRST
Celebrating end of cancer treatment and looking forward to brighter times - A week in the - Rainbow Trust Children's Charity
OUR IMPACT
2019/2020                                                                    We asked children we support and
                                                                         children who have fundraised for us to
A year like no other                                                    help bring our impact report to life with
                                                                         their drawings, doodles and paintings.

Our latest impact report shows how our                     Highlights in numbers
service has improved multiple aspects
of children’s and families’ lives across                    Hours of           Hours of           Hours of
the country and celebrates the generous                                        hospital           parental           350

                                                                                                                               rs
                                                            transport

                                                                                                                            ee
                                                                               support
                                                            1,794                                 support                       nt
contributions of all our wonderful                                             5,202              3,662                  vo
                                                                                                                           lu

supporters and volunteers.
                                                                               Hours of
                                                            £4.3m              support            Hours            Hours of
                                                            raised             for the
                                                                               sick child
                                                                                                  of home
                                                                                                  support
                                                                                                                   support for
                                                                                                                   siblings
                                                                               4,668              8,055            3,965

                                                            592 new families supported              35 in The Sunday Times Top 100 Best
                                                                                                    Not-For-Profit Organisations To Work For

                                                                                            You can download a full copy here
                                                                                            rainbowtrust.org.uk/our-impact

WHAT PARENTS                                                  WHAT THE
AND CARERS SAY                                                CHILDREN SAY
In February, we carried out a survey of                       Separately, in our children’s audit, when
families we support. The results gave clear                   we asked some of the older children
indication of the vast pressures families                     we support about the impact of social
with a seriously ill child are under, as                      distancing and lockdown, 77% of those
they continue to face stress and anxiety                      who answered said it made things
over the health of their child during the                     harder for them.
pandemic.
                                                              We also asked some of the younger
71% of the families had a child who was still clinically      children what they would wish for if
extremely vulnerable
                                                              they had a magic wand.
 6% of respondents said that their family situation
5                                                                  If I had a magic wand I would…
was worse or much worse compared to the first
lockdown                                                           … make Covid go away so I can see my
                                                                     Family Support Worker in person
Just over half said that their mental health was
either worse or much worse compared to the first                   … turn into Minnie Mouse
lockdown
                                                                   … make the whole world out of chocolate cake
Medical treatment has been affected for over
50% of families including postponed tests and                 27% of children who answered would make a wish
reviews, some therapies suspended and problems                to get rid of coronavirus and the lockdown
accessing medication                                          27% of children who answered would make a wish
Additional financial strain is being felt by 40%              focused on getting better or their siblings getting
of families due to job losses, income reduction               better
and being furloughed.
                                                              You can read more about it at rainbowtrust.org.uk

RAINBOW TRUST CHILDREN’S CHARITY                                                                                                           3
Celebrating end of cancer treatment and looking forward to brighter times - A week in the - Rainbow Trust Children's Charity
Lauren shares her experience of
    bereavement and of the support
    Rainbow Trust offered at such a
    traumatic time

    A DEVASTATING
    DIAGNOSIS
    My partner, Richard, and I              It was the first of four operations      Cole remained in intensive care
    were told our baby had a                in which surgeons tried to               for three months but his health
                                            reconstruct the heart and insert         improved little by little. Sian would
    heart problem at our 20-                a stent to help blood flow to the        sing, read books, play with toys,
    week scan. The sonographer              lungs. During the procedure,             play with musical instruments
    told me that the left side              something didn’t go according            and sensory toys with Cole, to
    of his heart looked smaller             to plan and they had to put Cole         keep him entertained and help his
    than the right and I feared             on life support. They told us to         development.
                                            prepare for the worst.
    the worst. I was very scared.
                                                                                     Then, Cole was moved on to
                                            At the fourth attempt they               a ward. He needed another
    They referred us to a specialist
                                            managed to fit a stent in Cole’s         operation to widen the stent in
    at the Newcastle Royal Victoria
                                            aorta, finally giving him a chance       his heart and in time he would
    Infirmary. We had a call the
                                            of survival.                             also need a heart transplant. At
    same day to book an immediate
                                                                                     six months old, Cole went on the
    appointment and scans confirmed
                                            Over the next few days he                waiting list and, two months later,
    the sonographer’s concerns.
                                            improved and, when he was                in early March last year, he had a
    The consultant said that Cole’s
                                            14 days old, doctors gradually           heart transplant. This filled us with
    heart hadn’t formed properly,
                                            weaned him off life support. He          hope for him.
    showing me pictures of how a
                                            was still very unstable, and we
    normal heart works and what was
                                            were filled with worry. All of this      Just before the first national
    wrong with Cole’s.
                                            was an emotional rollercoaster. I        lockdown we were told Cole could
                                            was in a bad place.                      have no visitors other than me
    I was devastated, I felt numb. He
                                                                                     and Richard for three months due
    explained that Cole had hypoplastic
    left heart syndrome, which is where     Invaluable help in the                   to COVID-19, but we had to self-
                                            hospital                                 isolate for three days, waiting for
    the left ventricle of the heart does
                                                                                     COVID-19 test results, as Esme had
    not develop properly.
                                            A hospital social worker referred        a temperature.
    He said that it is a life-threatening   us to Rainbow Trust and when Cole
    condition and that Cole would           was 17 days old Family Support
    need surgery immediately after          Worker Sian started supporting
    birth or he would die. He also          us. Sian would come to the ward,
    explained that some parents             help with Cole’s personal care
    choose to terminate the pregnancy       needs and look after him.
    or not to have surgery but I knew I
    couldn’t do that. I knew I wanted to    We also have a daughter, Esme,
    give Cole every chance.                 who was three years old at the
                                            time, and we needed to be with
    Cole was born weighing 7lbs 7oz.        her too. Neither Richard nor I
    When he was just three days old,        drive, and the hospital is a 70 mile
    they attempted a procedure that         round trip from our home, so we
    tries to create a new circulatory       couldn’t be with Cole all the time.
    system.                                 Sian being there helped ease the
                                            worry and constant concern about
                                            Cole and she would usually send
                                            photos and update us on how Cole
                                            was doing.

                                                       Cole, smiling to the camera

4                                                                                                       FAMILIES FIRST
Celebrating end of cancer treatment and looking forward to brighter times - A week in the - Rainbow Trust Children's Charity
This was worrying because, due to       Sian also helped source a £300
COVID-19 restrictions, Sian couldn’t    fund to help with funeral costs.
visit the hospital. No one else could   She sent us a special card, as she
be there.                               couldn’t attend the funeral due to               Family Support Worker Sabrina
                                        lockdown. We were touched that
At the end of March, Cole very          each Family Support Worker in the
sadly went into renal failure and       team lit a candle in their own home.
died. We were there with him. It                                                Sabrina regularly texted me for
was the most painful experience.        It was lovely to see that Cole was      emotional support and we had
                                        being remembered in this way and        long conversations because we
Family Support Workers                  that we were in their hearts at such    couldn’t have sessions face to face
help ease the pain                      a horribly sad time.                    due to the ongoing restrictions. I
                                                                                really benefitted from being able to
To begin with Sian helped support       In May Family Support Worker            talk things through by text.
us in our grief by visiting us on       Sabrina started to offer
our doorstep delivering memory          bereavement support. Sabrina did        Family Support Workers Sian
boxes and activities for Esme.          doorstep visits to deliver activities   and Sabrina have been a light
This support continued as she           and referred us for a holiday to        at the darkest of times. They’ve
would check in and talk to me           charity Ruddi’s Retreat as well.        supported me and my family when
via text message.                                                               we faced the worst.

                                                                                Hypoplastic left heart syndrome
                                                                                is a rare form of congenital heart
                                                                                disease. As the baby grows
                                                                                during pregnancy the left side
                                                                                of the heart does not develop
                                                                                properly and is too small.

                                                                                Around 250 babies
                                                                                are diagnosed with
                                                                                hypoplastic left heart
                                                                                syndrome in the UK
                                                                                every year.
                                                                                Grief and bereavement are difficult
                                                                                to deal with. It is only thanks
                                                                                to your support and donations
                                                                                that we can give families expert,
                                                                                practical and emotional support for
                                                                                as long as they need it.

                                                           Richard, Esme,       rainbowtrust.org.uk/donate-
                                                           Lauren and Cole      magazine

RAINBOW TRUST CHILDREN’S CHARITY                                                                                         5
Celebrating end of cancer treatment and looking forward to brighter times - A week in the - Rainbow Trust Children's Charity
CELEBRATING END OF CANCER
    TREATMENT AND LOOKING
    FORWARD TO BRIGHTER TIMES
    Family Support Worker Wendy supports Phoebe
    and Rory’s family while they face childhood cancer
    Phoebe’s mum, Katie, first           Phoebe has a seven-year-old            Phoebe had a stage two Wilms’
    discovered that Phoebe was           brother, Rory, and Matt and Katie      tumour (cancer found in the
                                         were worried about how he would        kidney) and had an MRI scan to
    not well in February 2020            cope, how they would explain that      check if the tumour had shrunk.
    when Phoebe was two and              Phoebe was ill and that they had       As it had reduced significantly, on
    a half years old.                    to be away from him for a whole        24 March, just after last year’s first
                                         week.                                  national lockdown started, Phoebe
    She had been sick in the night and                                          went back to hospital to have her
    was just not herself when Katie      Katie and Matt were in hospital        kidney removed.
    found a big lump on the right side   with Phoebe initially for seven
    of Phoebe’s tummy. Katie and Matt,   days. She had MRI scans, CT scans,     Due to lockdown only one parent
    Phoebe’s dad, took her to Bristol    blood tests, a Hickman line fitted     could be there, and they juggled
    Children’s Hospital where staff      and her first dose of chemotherapy     this between them. One week after
    were unsure about the cause, so      to shrink the tumour in that first     the operation Phoebe was back
    they did a scan.                     week. They went back home              on chemotherapy for 27 weeks,
                                         for two days, and then back to         a double dose at hospital and a
    After the scan she was rushed for    hospital for the next dose of          single dose at home, administered
    an ultrasound and, at that point,    chemotherapy, which would              by a nurse.
    Katie and Matt knew something        continue weekly.
    wasn’t right.

    They were very worried and
    concerned that Phoebe’s condition
    was clearly very serious.

    They were both very emotional and
    had lots of unanswered questions.
    The surgeon arrived and told them
    that Phoebe had a tumour. They
    were left feeling scared, hurt and
    angry. One of the nurses helped to
    comfort them. Katie
    felt as though she had
    completely shut down
    and held Phoebe in her
    arms, not knowing what
    to do.

                                                 A fun morning at Portishead - Phoebe and Rory had a great time running
                  Phoebe in hospital          around at the beach with Wendy while their parents had time for themselves

6                                                                                                   FAMILIES FIRST
Celebrating end of cancer treatment and looking forward to brighter times - A week in the - Rainbow Trust Children's Charity
activities for Halloween with both
                                                                               Rory and Phoebe, taking Rory to
                                                                               the cinema in half-term and also
                                                                               introducing him to another sibling
                                                                               she supports.

                                                                               Throughout the changing
                                                                               Government guidance, Wendy has
                                                                               adapted the way she supports the
                                                                               whole family. They have enjoyed
                                                                               going out for walks, scavenger
                                                                               hunts, singing, doing quizzes,
                                                                               doorstep delivery of Christmas
                                                                               gifts, virtual calls including reading
                                                                               stories and anything else the
                                                                               family may need.

                                                                               Katie says, “We embraced Wendy’s
                                                                               support; there is no need to
                                                                               be alone. You may have initial
                                                                               concerns that you may not connect
                                                                               but once you do you feel like the
                                                                               weight has been lifted. Life without
                                                                               Wendy would have been so much
                                                                               harder.”

                                                                                  About 70 children
                               Phoebe’s end of cancer treatment party
                                                                                  in the UK develop
The uncertainty that all of this
brought to Katie and Matt was           Katie and Matt have a very                a Wilms’ tumour
devastating. Katie was not coping       supportive wider family, but they         each year affecting
                                        found Phoebe’s illness had an
well with her own mental health,
                                        effect on many relationships and          mainly children
confused about how to feel and
process everything.                     friendships. Katie lost touch with        under the age
                                        a very close friend because they
                                        couldn’t deal with Phoebe’s illness.
                                                                                  of five.
They were drained and                   This has also had a detrimental
exhausted.                              effect on Katie’s emotional
                                                                                  One third of the families we
                                                                                  support are caring for a child
                                        wellbeing, so Wendy has been
A CLIC Sargent team at the                                                        with cancer. Year on year cancer
                                        giving her emotional support.
hospital referred them to Rainbow                                                 remains the most common
                                        Katie says, “Wendy always has
Trust for sibling support and Family                                              reason for referral to our service
                                        time to listen and, although
Support Worker Wendy started                                                      and despite the improvements
                                        she supports the whole family,
supporting Rory in April 2020.                                                    in treatment and prognosis, the
                                        somehow she manages to
Katie and Matt were concerned                                                     impact on all family members is
                                        support us all individually.”
that everything going on with                                                     devastating.
Phoebe would affect him and that        Phoebe finished her treatment
he wouldn’t open up. But Katie          in October and rang the bell              Help families and sponsor a
told us “Wendy’s presence and           at Bristol Children’s Hospital            Family Support Worker like
personality has had a huge impact       to celebrate, a joyful moment             Wendy today.
on both kids. Rory is very quiet, but   for Phoebe’s family and                   Your sponsorship will enable
Wendy brings him out of his shell.      hospital staff.                           families who have a child with a
The energy Wendy has with them                                                    life-threatening illness to make
is effortless and some days we          Wendy has continued                       the most of time together as the
can hang back and enjoy watching        supporting the family                     crisis continues.
them have fun with Wendy.”              with some face-to-face
                                        visits in late October, art               rainbowtrust.org.uk/
                                                                                  sponsor-us

RAINBOW TRUST CHILDREN’S CHARITY                                                                                        7
Celebrating end of cancer treatment and looking forward to brighter times - A week in the - Rainbow Trust Children's Charity
YOUR SUPPORT                                                              Marrveen, seven,
                                                                           after a virtual
                                                                           pancake session

    REALLY MATTERS
                                                                           with Family Support
                                                                           Worker Sarah. His
                                                                           brother, Raynnav,
                                                                           two, has a serious
    Your support helps change lives                                        condition that affects
                                                                           his development.
    A snapshot of the children and families
    you have helped us support during the
    challenging past months.

                                    Family Support Worker
                                  Sabrina received an amazing
                                  welcome from Jessica, who
                                  has Batten disease, when
                                  delivering activities to her
                                  house; Jessica drew this
                                  picture and asked her mum to   Family Support
                                  send it to Sabrina.          Worker Wendy started
                                                               supporting Joshua’s family.
                                                               Joshua, three, has acute
                                                               lymphoblastic leukaemia.
                                                               He loves playing with his
                                                               dinosaurs virtually with
      Family Support Worker                                    Wendy and is really good at
                                                                                                      Family Support Workers
    Mandy is currently supporting                              naming them all.
                                                                                                    Sean and Rachel received
    baby Elodie-Arayah who was
                                                                                                    this lovely picture from Mia
    born at 33 weeks. Mum and
                                                                                                    and Maisie which said ‘stay
    Dad were struggling to get
                                                                                                    positive’ with a colourful
    to the hospital so Mandy has
                                                                                                    rainbow.
    been helping with transport.
                                       Jonas came home from
                                    Great Ormond Street Hospital
                                    in November and this was the
                                    first time he had been out of                                      Family Support Worker
                                    hospital since birth. Family                                    Mandy spent some time
                                    Support Worker Ema has                                          with Penelope and her sister
                                    supported his brother, Jacob,                                   Tallulah, who has complex
                                    with play sessions since June.                                  needs. Penelope was showing
                                                                                                    off her shoes and playing with
                                                                                                    her dolls.

                                                                     This season we want to support more
                                                                     families living with childhood illness
      Family Support Worker                                          Unable to socialise during the different restriction levels
    Charlotte went exploring           Family Support Worker         as the pandemic progresses we are helping families get
    with Gene when restrictions     Jaimie took Lily, eight, out
                                                                     through. Playing, arts and crafts, virtual reading, quizzes
    allowed. He is 11, has          on a socially-distanced bike
    glomerulocystic disease,        ride. Her outdoor exercise is
                                                                     and conversations give the children a break and enable
    kidney disease, renal anaemia   restricted to her garden as      us to look after their mental health and wellbeing,
    and hyperkalaemia.              her three-year-old brother,      helping their confidence, self-esteem and independence
                                    Charlie, suffers from a heart    at a time when they need it most.
                                    condition.                       Thank you for all your support.

8                                                                                                             FAMILIES FIRST
Celebrating end of cancer treatment and looking forward to brighter times - A week in the - Rainbow Trust Children's Charity
A WEEK IN THE
LIFE OF A FAMILY
SUPPORT WORKER
Abi is a Rainbow Trust Family Support Worker
in Essex and shares a typical week with us

By Abi Smith                           and has even had the courage            children. It is a very busy homelife
                                       to ask for help and accesses            for Sarah and she just doesn’t
Every day I check my emails first
                                       counselling now.                        have time to look at where she
thing in the morning. I send figures
                                                                               can get help to apply for a grant
and information to Anne, our           After that I caught up with more
                                                                               or fill in applications. With Sarah’s
Director of Care, at the end of the    families on the phone. I had a
                                                                               permission I applied on their behalf
day so we can monitor how the          video call with two siblings which
                                                                               and another local charity has now
nature of our support and service      was chaotic and fun. We chatted,
                                                                               given them a laptop.
is changing due to the pandemic.       played games, read stories to each
                                       other and they enjoyed showing          As agreed with Mum on Monday
MONDAY:                                me some of their schoolwork.            I picked up Matthew from school.
                                                                               We talked about school, his sister
I picked up Annie and her three-       WEDNESDAY:                              Jane’s funeral tomorrow and
year-old daughter, Daisy, and                                                  questions he had.
drove them to hospital for a 9am       On Wednesdays, we start the day
appointment; they have to stay         with a team meeting by video. It’s      FRIDAY:
overnight. Annie can get very          always so lovely to be able to see
anxious about these appointments;      everyone, share successes and any       Today it was eight-year-old
they can be quite traumatic for        worries or difficulties we may          Jane’s funeral. Due to the current
Daisy. Annie’s anxiety has been        have had.                               government guidelines Jane’s
heightened even more by the                                                    family was restricted on the
pandemic. She said that having         In the afternoon I had a weekly
                                                                               number of people attending the
Rainbow Trust’s help to get to         video call with nine-year-old Bella,
                                                                               funeral and was unable to receive
Daisy’s appointments takes so          who has a brain tumour. Bella
                                                                               the comfort they need from family
much of the stress and anxiety         hasn’t been out of the house much
                                                                               and friends. Rainbow Trust Family
away and it really helps her to have   since the first lockdown and she
                                                                               Support Workers are frontline
me to talk to.                         can get frustrated and bored.
                                                                               workers and, because of this, I was
                                       Mum finds it hard thinking of new
Then I drove home to catch up                                                  specially allowed into the family
                                       things to do all the time to keep
over the phone with two families                                               home, following government
                                       Bella stimulated and occupied and
with daughters who have recently                                               guidelines and wearing PPE, to
                                       Bella can be quite demanding at
died to see how they are, how                                                  support the family. I took care
                                       times. The video calls allow Mum
their other children are coping                                                of the youngest 15-month-old
                                       to have a bit of time to do chores,
and about applying for a grant on                                              sibling whilst the family went to
                                       make calls, spend time with Bella’s
their behalf to help with funeral                                              Jane’s funeral. Mum is relieved that
                                       sister or just to have a quiet cup of
costs. One mum expressed concern                                               support won’t stop now that Jane
                                       coffee.
for her five-year-old, Matthew. I                                              has died. I will continue to support
will pick him up from school on                                                the family until they feel they no
                                       THURSDAY:                               longer need me.
Thursday to talk to him about
worries he may have.                                                           Once at home, I updated my case
                                       This morning I joined a Child
                                       Protection meeting regarding a          notes and caught up with emails
TUESDAY:                                                                       before running myself a big bubble
                                       family I support. Safeguarding is
                                       a big part of our job and we work       bath!
Daisy’s mum texted me last night
                                       closely with social workers, schools
to ask me to pick them up early
                                       and other professionals that may
this morning. The procedure didn’t
                                       be involved with the family.
go well, and the medical team had
to postpone it. On the journey         I then had a phone call with Sarah,
home Annie was very tearful; we        a single parent with four children      You can help to make every
talked through her feelings and        at home. Her youngest, Tommy, is        precious moment count for families
discussed coping strategies. She       five and has cancer. Tommy relies       with a seriously or terminally
said that before Rainbow Trust         on his tablet for his many lengthy      ill child by sponsoring a Family
came along she very rarely talked      hospital appointments but this          Support Worker like Abi today.
to anyone about how she feels but      and a smart phone were the
with my encouragement she now          only devices they had at home           rainbowtrust.org.uk/
talks with some friends and family     to do schoolwork on for all four        sponsor-us

RAINBOW TRUST CHILDREN’S CHARITY                                                                                       9
Celebrating end of cancer treatment and looking forward to brighter times - A week in the - Rainbow Trust Children's Charity
REMEMBERING
     POSITIVE, HAPPY
     MEMORIES
     I feel immensely lucky to have a job that I love

     By Rachel Bruen, Family Support Worker,
     North West Care team

     For any child, a younger               with an overwhelming sense of loss      one support to help her process
     sister dying from cancer               and sadness.                            her feelings and emotions, whilst
     would be devastating. For                                                      reminding her she is a child and it is
                                            The whole family was grieving           ok to still have fun.
     Beatrice, coming to terms              intensely, and I was there to
     with the death of her four-            provide bereavement support to          I consider myself immensely lucky
     year-old sister, Rosie, and            them. Despite being unable to visit     to work at Rainbow Trust as I
     then living in lockdown, the           in person during the first lockdown,    have a job that I love. I feel it is
     grief and bewilderment were            and having to isolate during the        a complete honour that families,
     unbearable.                            second, I was still able to talk to     like Beatrice’s, allow me to
                                            Beatrice on Zoom calls to help her      help them through such an
     Her parents, Ray and Annette, had      understand her feelings, deal with      incredibly difficult time. If I am
     already organised support from me      her worries, giving her an outlet       able to make things slightly
     to help her cope when Rosie was        and remembering happy, positive         easier and support them
     ill. I have helped the family with     memories of Rosie.                      as they navigate childhood
     incredibly difficult conversations                                             illness and grief, then it is my
     with Beatrice, explaining that Rosie   It has been such a difficult time for   pleasure to do so.
     was not going to get better.           Beatrice and her family, and I have
                                            seen the difference it has made         Images are from BBC Children in
     Before lockdown I spent time with      to her to have consistent one-to-       Need: Life in Lockdown
     Beatrice, taking her out and giving

                                                                                       “
     her time and space for her own
     feelings and helping her with her
     constant worrying. I gave her a
                                                                                           We couldn’t get
     ‘worry monster’ teddy which has a                                                  through it without
     zip mouth into which she can put her                                               Rachel and Rainbow
     worry notes and the monster ‘eats’
     them overnight.                                                                    Trust. We know
                                                                                        Beatrice is going to         “
     When Rosie died, without the
     sanctuary of school or the welcome                                                 be ok and that is
     distraction of friends and after                                                   thanks to Rachel.
     school activities, and becoming
     the only child in the house again,                                                 Annette, Beatrice’s
     understandably, Beatrice struggled                                                 mum

                                            “  I made a coloured
                                            salt jar of memories
                                            with Rachel and a                               In November 2020,
                                                                                            Rainbow Trust featured
                                            ‘feelings volcano’                              in Life in Lockdown, a
                                            where I put my                                  powerful, uplifting and
                                                                                            touching film which aired
                                            thoughts inside. I feel                         on BBC One featuring a
                                            lonely sometimes                                number of BBC Children
                                            when Rachel is not                  “           in Need funded projects.
                                                                                            It showed how brilliantly
                                            here. Seeing Rachel                             resilient children and young
                                            makes me feel better.                           people, like eight-year-old
                                                                                            Beatrice (pictured), can be
                                            Beatrice                                        in the face of a global crisis.

10                                                                                                      FAMILIES FIRST
FUNDRAISING
HEROES Thank you!

    Anna, a paediatric nurse,       Elizabeth, eight, signed          Kennedys Law UK employees took part in four challenges
  raised over £1,000 with         up to ride 100 miles to raise     during the pandemic - the Virtual Hairy Haggis Relay, 10K Steps
  a sponsored skydive in          money for Rainbow Trust,          for Justice, Make Up Your Grown-Up and the Virtual London
  November. Anna has seen the     whilst her younger brother        Marathon, taking their total amount raised to £148,500.
  devastating effect COVID-19     Edward, who at the time had
  has on people and wanted        just learned to ride without                                        Tomos and Menna
  to do something positive to     stabilisers, decided to ride 50                                  completed our ‘One Step
  help others.                    miles.                                                           at a Time’ virtual 5K raising
                                                                                                   £101.

                                                K2 Corporate
                                             Mobility virtually
                                             climbed the K2
                                             mountain. They
                                             split themselves
                                             into teams to see
                                             who can raise
                                             the most money
                                             possible.

    Family Support Worker Angie swam
  the width of the Channel (22 miles)
  raising over £1,300. She was joined
  in the pool on her final day, socially                                                             Thank you to everyone
  distanced, by Caroline and Joanna -                                                              who completed the Virtual
  mums of two families she supports.                                                               London Marathon to
                                                                                                   raise money in October.
                                                                                                   And a very special thank
                                                                                                   you to Fred, who ran his
                                                                                                   28th consecutive London
                                                                                                   Marathon for Rainbow Trust
                                                                                                   in his bear costume.

  280,000 STEPS
  IN FEBRUARY
  Over 1,000 people took part in our Facebook
  fundraising challenge.
  Sign up to take part in our next Facebook fundraising
  challenge by visiting our Facebook page!

                                                                                                                                      11
HOW YOU                                                                                                 Join our Lottery for your
                                                                                                                 chance to win £25,000

         CAN HELP                                               And you can also...
                                                                                                                 every week

                                                                                                                  Rainbow
                                                                                                                            usstt’s
                                                                                                                          Tru

         SERIOUSLY                                                Set up a PlayStation or
                                                                  Xbox gaming challenge

         ILL CHILDREN                                             Ask for donations to
                                                                  Rainbow Trust instead
         Feeling inspired?                                        of birthday presents
         You can also help us fundraise
         Cancelled and postponed live and mass                    Climb the
         participation fundraising events continue                equivalent of
         to have a severe impact on our income
         but there are so many ways you can                       Mount Everest in
         still help.                                              12 weeks to earn an
         30 miles. 30 days. Will you lace                         Everest-themed medal                                                            JUST £1
         up your trainers this April for seriously                                                                                                TO PLAY
         ill children? Join our Run 30 Challenge                  Walk or run 10K
         to receive your free neck buff.                          steps every day
         facebook.com/groups/run30inapril                         for a month
                                                                                                                 We’ve teamed up with
         Great North Run, Sunday 12                               Create your own                                Unity Lottery and for just
         September 2021, Newcastle                                                                               £1 a week you could win
                                                                  fundraising event
         Registration fee £20,                                                                                   £25,000 while helping to
         sponsorship target £300                                                                                 raise vital funds to support
         We will cheer you while you soak up                              Simply visit                           seriously ill children and their
         the great atmosphere during the 13.1                             rainbowtrust.org.uk/                   families.
         mile course.                                                     events, chose your
                                                                          challenge and set up a                 Just go to rainbowtrust.org.
         London Marathon, Sunday                                          fundraising page.                      uk/get-involved/lottery or
         3 October 2021, London                                                                                  call 01372 220083 and we
         Registration fee £150,                                                                                  will send you a form.
         sponsorship target £2000
         Join Team Rainbow Trust to run the
         streets of London in this iconic event.
                                                                      TIME TO DO                                  WIN
         We ensure all our runners have a
         memorable marathon experience and
                                                                      SOMETHING                                           £25,000
         you will be supported all the way to
         the finish line, and beyond!
                                                                      AMAZING!
                                                                                                                                                            
         YES! I would like to help life-threatened children and their families today
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