Charity Golf Tournament - Street Appeal p4 Golf Tournament p5 Parkinson's Conference P7 - Multiple Sclerosis & Parkinson's Canterbury
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Charity Golf December
Tournament
2018
Street Appeal p4
Golf Tournament p5
Parkinson’s Conference P7
Phone: (03) 366 2857
www.ms-pd.org.nz
Multiple Sclerosis
& Parkinson’s
Canterbury (Inc)
President's Message
Unit 3, 49 Sir William
Pickering Drive, Burnside The Society is moving along well thanks next few years.
to Robin Furley and the excellent team This is always an
PO Box 20567, she manages. Our Annual Street Appeal important focus
Christchurch 8543 was extremely well organised and again and we try to
Phone: (03) 366 2857 improved on the previous year’s total, so ensure that our
Fax: (03) 379 7286 a special thank you to Lynne Trowbridge service delivery
and Deb Parker. However, fundraisers aligns with the
www.ms-pd.org.nz alone cannot bring in all the dollars and big picture goals
we rely heavily on our members, who we have set for
turn out in force every year, as well as ourselves. Our objectives are financial
schools and service clubs. These groups sustainability, service development and
Patron expand the numbers on the street and
increase our ability to cover as many
relationship development.
Hon. Ruth Dyson The committee has been involved in
MP Port Hills sites as possible. A sincere thank you to
much more than simply attending the
all who helped.
regular monthly meetings. With the
President At the time of writing we are looking guidance of committee member Lindsay
Malcolm Rickerby forward to our Charity Golf Day at Daniel, they reviewed and updated the
president@ms-pd.org.nz Clearwater. We have very good team ‘Rules’ under which we operate as an
numbers representing some outstanding incorporated society. We held a Special
Vice President Christchurch businesses. We have General Meeting where the new rules
were adopted. The next project has been
Dawn Baker attracted very generous sponsors, in
particular, our major sponsor Isaac a guiding document for the smooth
Treasurer Construction Ltd. The company has met
the cost of hiring the course, entered a
running of the committee – Governance
Purpose, Principles, Policies and Procedures,
Ann Morrison
team and supplied several auction items also known as G4P.
and prizes. The money raised from the
Committee event will help to meet the expense of
Best wishes to all for a happy and safe
festive season.
Lindsay Daniel, Glenn operating our gym, which costs about
Sparrow, Ingrid Robertson, $70,000 to run annually. Warmest regards
Rachel Bladon, Tessa Kain,
Eamon Reyn, Sharon Blair
and David Rowe
The committee and staff have been
working on our new Strategic Plan which Malcolm Rickerby
sets the organisational direction for the president@ms-pd.org.nz
Our Team
(03) 366 2857
Robin Furley, ext 2
manager@ms-pd.org.nz
Annette MacFadyen, ext 6
support@ms-pd.org.nz
Judy McKeown, RN, ext 3
DONATIONS
We have recently communicated with not knowing that our Canterbury
msnurse@ms-pd.org.nz our Parkinson’s members to clarify about society is independent from
‘donor letters’ sent to you by Parkinson’s Parkinson’s NZ, and as such, does not
Anna Fraser, RN, ext 4 receive any of these donated funds.
New Zealand. We completely respect any
pnurse@ms-pd.org.nz Once you have made a donation to
decisions about which organisations you
Lynne Trowbridge, ext 8 choose to support with donations. another organisation, we cannot ask
fundraiser@ms-pd.org.nz them for those funds. If you don’t wish
Parkinson’s NZ sends out several to receive ongoing ‘donor letters’ from
Deb Parker, ext 9
letters each year requesting funds for Parkinson’s NZ, we suggest that you
frassistant@ms-pd.org.nz
their organisation which has a national contact them directly and advise them
Nicola Morrison, ext 7 office based in Wellington. Currently to remove your contact details from
office@ms-pd.org.nz we have an informal affiliation with their database. 0800 473 4636 or
Lesley Williams ext 9 Parkinson’s NZ. We do not send you info@parkinsons.org.nz
social@ms-pd.org.nz ‘donor letters’.
All funds raised by our team at MS and
Kim Veenings, ext 1 We know from feedback that some Parkinson’s Canterbury support our local
local members made donations to the organisation and we warmly thank you for
most recent Parkinson’s NZ campaign, your help with time, energy and money.
Cover photo: Charity golf tournament
2
Manager's Message
and wanted to reconnect. This was a
wonderful opportunity for us all, and we
appreciated the effort people made to
come and visit us.
Over the last few months we have run
Living Well With Parkinson’s, Living Well With
MS, and Minimise Fatigue, Maximise Life. Pat Lyons has resigned from
These courses consistently receive positive early November, which means we
feedback, so if you have not participated don’t currently have a qualified
in one and would like to, or want to find physiotherapist in our team.
out more, please make contact.
However we do have some
The movie Mamma Mia was a fun event excellent group exercise leaders
in July, where we pretty much filled a who are helping as follows:-
movie theatre. I, for one, had catchy Rocio Guerra from Chile is
Abba music ringing in my ears for many supervising Open Gym sessions
days. Thanks to everyone who got on Mondays and Wednesdays.
Kia ora tatou. Isn’t it amazing how quickly on board with this fundraiser to help
Carmyn Barnes, a registered
we can adapt to a ‘new normal’? We are provide the nurses with tablets. These biokineticist from South Africa
now quite at home here at Sir William are now up and running thanks to some is leading the Thursday MS
Pickering Drive to the extent that the very generous donors. Your wonderful exercise group.
café staff not only know us by name support really will transform work for
Pieta Aitken, currently
but they also know our preferred hot the nurses by dramatically reducing
working towards a Return To
drink. Our sharing arrangement with paper work. Our heartfelt thanks for
Practice Programme under
Dementia Canterbury is working well and your support. the Physiotherapy Board of
we appreciate having colleagues on site. NZ, is supervising and leading
In the last few weeks we have been
We are fortunate that our other upstairs some Open Gym sessions and
invoicing people who have not paid
neighbours, Mitchellcorp, are launching a exercise groups.
their membership subscriptions. We
fundraising initiative which will benefit us
know that sometimes things can be Tara Martin from On The Go
– more details in our March newsletter. Physio will be doing member
overlooked, so this is a reasonable way
As we expected, once we had settled in of reminding members, and checking in assessments as needed over the
our year has been full steam ahead with to see whether people want to continue next few weeks.
new, different, or changed services. their memberships. We believe that our YOGA
sub is excellent value for the range of
We held a Parkinson’s Information Day Yoga sessions on Tuesdays, 1.30
professional services we provide.
in June, with Lesley Livingstone from NZ – 2.30 are now held at St Martins
Brain Research Institute presenting on Before we know it we will be looking at Community Centre, 122 Wilsons
the Parkinson’s research in which many 2019. I hope we all manage to avoid end Rd, St Martins.
of you are involved. There was a lot of of year crazy busy stresses, and instead The Thursday session 1.30 –
interest in Lesley’s session, with a very focus on a smooth gentle winding down 2.30 continues at 49 Sir William
full seminar room. to summer relaxation. Pickering Drive as usual.
Our Open Day later in June attracted a Tim Webster, an exercise
stream of visitors, many of whom had Robin Furley professional, is providing a new
not been involved with us for some time manager@ms-pd.org.nz exercise group as advertised on
page 9.
Tim is trained in PD Warrior and
Counterpunch.
We are hosting an ‘Open day members Christmas
cheer’ function on Tuesday 11 December, 12.30
– 4.30pm. This will be a ‘rolling’ afternoon tea. The
Christmas Cake raffle will be drawn at 3pm.
Phone: (03) 366 2857
www.ms-pd.org.nz
3
From the Fundraising Office
We are pleased to report that I admired the mother for introducing
our 2018 Street Appeal was her young daughter to volunteering at
such a young age and for volunteering
another record breaker with with her, because she set a good
over $65,000 raised to date. example for her daughter to look up
THANK YOU TO ALL of you who to. Overall, I thought this was an
contributed to this successful outcome extremely worthwhile activity which
really challenged me both physically
STUDENT VOLUNTEERS REFLECT ON and mentally.
OUR STREET APPEAL
Bella and I volunteered to help
collect donations for Multiple Sclerosis
and Parkinson’s Canterbury 2018
Street Appeal.
I was surprised that some people who
did not have cash actually came up to
us and apologised. Also, the number
of people donating was higher than I
actually expected. Compared to past
experience when I volunteered in a TABLETS
similar role overseas, I realised how
In our last newsletter we appealed for
warm and generous the people in New A woofing big thank donations to assist with the purchase of
Zealand were. During our shift, there
tablets for Judy and Anna, our nurses.
were numerous people who came up to you from Mungo What an amazing response we received.
us, thanking us for volunteering. This was
heart-warming, as we felt that our efforts
to our incredible Our grateful thanks to those who came
forward with very generous donations,
were appreciated, and it encouraged us supporters and a covering the cost of the tablets and
to continue our shift enthusiastically.
Merry Christmas to all. some training for the nurses. Judy and
Anna are already noticing the benefits
When our shift ended, a mother and
daughter came to replace us. of using the tablets.
Golf Tournament Team Sponsors
4 VISION: All people in Canterbury with Multiple Sclerosis 
GOLF DAY JUDGED A BIG SUCCESS
Despite a change in the weather, the Photos can be ordered from John by
rain stayed away and the mood at phoning 3595850.
the Society’s Clearwater Golf Day was
Twenty teams of four players entered.
cheerful, fun and enthusiastic. Feedback
The winners were the Isaac Construction
was unfailingly very positive so on that
II team of Gary Wood, Adrian Kilian,
basis alone, the event has been judged Antonio Chadinha and Kim Masina.
a real success. Runners-up were THC, comprising Al
At time of going to print, the final count Killick, Ken Harris, Mike Sharp and Kerry
had not been made but it is estimated Chuck. Sam Kumbaroff from team The
around $15,000 has been raised Bealey and Victoria Moore from team
towards the cost of operating the gym. Saunders Robinson Brown won closest
to the pin awards.
Lynne Trowbridge, the Society’s Funds
Development Manager said she was The event attracted extensive
delighted with the result, “but it isn’t all sponsorship, with Isaac Construction Ltd
about the money”. the main sponsors, covering the cost of
hiring the course, entering two teams Winning team, Isaac II, left to right
“The golfers all seemed to have a great and providing items for both the auction Gary Wood, Adrian Kilian and Antonio
time, which as well as raising money, was and the raffle. Other sponsors and Chadinha (absent Kim Masina).
a major aim for us ... we really wanted teams are listed by logo on this page.
people to have a good experience.”
More than $600 was raised by PGA golf
The fundraising team of Lynne and Deb professional Oscar Cadenhead offering Lynne says the Society will definitely
Parker were well supported by golf events to tee off for teams to improve their run the event again next year. “When
organiser Mike Godinet plus a number of score and the raffle of several items was we mentioned to the teams that we
volunteers. Photographer for the day was well supported as was a short auction of might have it next year they were very
Society member John Nichols. donated goods at the end of the evening. enthusiastic about taking part again.”
Golf Tournament Sponsors
MOUNTAIN MASTER E – BIKES NEW ZEALAND
Website www.gotebikes.co.nz e-mail: mfttrading@scorch.co
………………………………………………ph: 021 400 424……………………………………………
NUTRIENT
RESCUE
Phone: (03) 366 2857
www.ms-pd.org.nz
and Parkinson’s have the opportunity to reach their full potential. 5
Nurses’ Corner
FROM JUDY MCKEOWN MS NURSE and neurologists presented a case
Recently I was lucky enough to attend to PHARMAC. “PHARMAC has made
the Brisbane MS Nurses Australasia the decision to limit eligibility for the
conference. I have been attending drug to people with RRMS and not,
these conferences since I started 6 at this stage, for those with PPMS.”
years ago and I very well remember Roche, neurologists and MSNZ are
the first conference when I had only resubmitting evidence to PHARMAC for
been here a month. There were MS their reconsideration for those with
nurses from Australia getting up on PPMS. The cost is $60,000 per person
the podium presenting their research per year. Judy and Anna
or case studies or anything MS nurses
may learn from. I sat in the audience
of 120 nurses thinking “I will never ever
Self management groups
know as much as these people about Peer support groups. We send email
What are the groups? reminders – all are welcome, and there
MS”. I realized I needed to make a
commitment to myself and my clients to Living Well With MS (6 weeks) Each is no need to book in. The only criteria is
educate myself fully about this extremely week covers a different topic with time that you or your significant other has MS.
complex neurological disorder. I also for group interaction and discussion. Christchurch
realized that working in this role is Numbers are always limited to keep
a long term commitment because it groups small. Topics include What is MS? South Library and Service Centre board
takes time to build relationships with What is a relapse? Symptom check list, room, 66 Colombo St
my clients, their families and health Employment, Fatigue, Diet and Exercise,
6 – 7pm
providers. Now 6 years later there is The Mental Battle (mood\depression\
always something new, I am still learning anxiety), Planning for the Future. If you Every 6 weeks
and I enjoy sharing this learning with are interested, let Judy know so you can
NB: In 2019 this group will be held at
our members. be registered for the next group. We
our centre.
suggest that you come along with your
Since that time, I have myself been up partner or a significant person. This will Ashburton
on the podium presenting my topics of help them with increased knowledge and
interest. Our Canterbury Neuro Nurses Terrace View Retirement Village (evening)
understanding of this significant long
group won the poster award 3 years term neurological disorder. MS doesn’t Alternates with
ago about sexuality and MS. only affect the person with the diagnosis
Columbus Café (afternoon)
I am fortunate that some of the but also other people close to you.
drug companies fund my conference Every 6 weeks
Six months after Living Well With MS
attendance. To have this generous finishes, we follow up by bringing people Rangiora
support for conference registration, together again for a 2-hour session. This
flights, and accommodation means John Knox Church hall
is an opportunity to discuss changes
that I am able to network regularly people have made in relation to Living 10.30 – midday
with my colleagues. Well With MS and it’s a good time for
Tuesdays
NZ MS Nurses have been meeting people to re-establish group connections.
annually to share professionally for Every 6 weeks
Minimize Fatigue, Maximize Life (6
the past 3 years. We sometimes have weeks) helps to manage MS fatigue. Under 40s
a guest speaker and these days are We run this 2 weeks after LWMS
a good time to find out about what’s finishes. Places are limited so please New group being planned to start early
happening in other regions. ensure you register with Judy or our 2019.
In November I will be going to an Physiotherapists. Contact Judy if you are interested.
education day about treatment and “Judy thank you so much, your passion for The groups often have a theme as a
management of MS with Ocrelizumab the MS community is amazing you’re an focus – from 2018 – Mindful breathing
- a new drug on the horizon which is inspiration to me and you have provided techniques; Taking charge of your health;
promising news for people with RRMS. this group with hope. Thank you for What is resilience and how do we use it;
Ocrelizumab is the latest Disease that.” This member’s comment sums Share your hobby; What are the needs of
Modifying Therapy (DMT) being up feedback received from those who partners?; Why exercise is important; Helen
considered for use in NZ. It has attend the self-management groups. Skene – discussion re MS questions.
been approved by Medsafe. MSNZ
6 MISSION: Providing professional support and services to 
Parkinson’s
Conference
WRITTEN BY BELINDA BUTTERFIELD worsened by being unwell with some because they are badly affected by
RN, FIELD OFFICER AND COMMUNITY other illness, as anyone with PD and a worry or panicky feelings, or because of
NURSE EDUCATOR MS & bad cold knows. Fatigue may also be increasing avoidance of situations that
PARKINSON’S SOCIETY WEST COAST simply the result of poor sleep, which might give rise to anxiety. Depression
At the recent Parkinson’s Conference is a common problem in PD as the and anxiety can occur together or
in July 2018, the biggest take home illness progresses. It may also result as separately in PD.
message was that exercise is as a symptom of the changes within the
brain “fatigue of neuropsychiatric origin”. LOW SELF-ESTEEM
important as medication in the
management of Parkinson’s. People with Although this is poorly understood, it Somewhat separate from being unwell
Parkinson’s NEED TO BE ACTIVE. There occurs in a number of neurological with depression or anxiety, Parkinson’s
are many symptoms of Parkinson’s conditions and seems to be separate symptoms may lead to the development
that can make this difficult to achieve. from the other factors discussed. of low self-esteem. One can feel useless,
Parkinson’s frequently leads to reduced worthless or ugly, and withdraw from
activity. The direct effects upon PAIN living as actively as previously. Our
the areas of the brain that control Pain can lead to reduced activity. sense of self-worth is tied up with our
movement cause rigidity and slowing, Parkinson’s can give rise to pains in mood but low self-worth can lead to
but reduced activity is more complex the legs and feet directly because of reduced activity without growing into a
than that. Here we will review other its effects on parts of the brain that full depression. Sometimes people with
common but less well known factors deal with pain messages. The muscles PD might temporarily ‘shut down’ more
that can reduce our ability to be active and joints may painfully stiffen up from dramatically, as part of adjusting to some
if we have Parkinson’s. immobility, especially overnight or in the new situation or threat. We all cope with
morning. Parkinson’s and osteoarthritis severe challenges differently and it is
of the hips or knees is a particularly important to be sensitive to this and not
Causes of reduced activity difficult combination for some people. react hastily or with blame. Sometimes
people just need time to regroup.
in Parkinson’s Severe Parkinson’s immobility can mean
that skin becomes sore in pressure
This list is not meant to be a litany areas. However, it is always prudent to
of disasters – many people with discuss the presence of pain with one’s The Power of Dance.
Parkinson’s do not have any of the own doctor.
problems listed below. However, it is
better to know what is occurring if you DEPRESSION
develop problems with reduced activity, Depression may occur in Parkinson’s
or when this happens in someone you not only because of the stress of
care for. having thecondition but because of
the changes that occur in the brain
FATIGUE from the illness. When people are
Parkinson’s can be exhausting! It can depressed, they frequently become
be a struggle mentally and physically less active through loss of their sense
to make bodies do what is required of of enjoyment, an inability to see the
them because of rigidity, tremor and point in starting anything with loss of
slowed or clumsy movements. It can be motivation, and because depression
difficult for people with PD and others can sometimes slow thoughts and
to accept that it may be necessary to movement down directly by the way
have more realistic goals for each day. it affects the brain. This “psychomotor
By ignoring fatigue related to trying retardation” is an increasingly common
to do too much, it is possible to get symptom in depression as people age.
stuck in a “boom or bust” cycle and
end up achieving less than what could ANXIETY
be attained with better pacing. Fatigue Anxiety is another potential problem
is more complex than simply getting in PD that can prevent people from
physically tired by doing too much. It is engaging in their usual activities, either
Phone: (03) 366 2857
www.ms-pd.org.nz
people with Multiple Sclerosis and Parkinson’s in Canterbury. 7
COGNITIVE IMPAIRMENT to diagnosing this problem is that the
Parkinson’s raises the risk of changes in affected person is not at all bothered Why should reduced activity
memory and thinking power, “cognitive by their reduced activity – they are not be a concern?
tired, sad, guilty or regretful about it,
impairment”. If this worsens into a they are neither happy nor sad about Everyone knows the saying “Use it or
dementia, people can become less active the fact that they sit around a lot. What lose it!” This is very true for people
because it is more difficult to plan and seems to be occurring is that the ability with PD, not only in terms of the
think through activities outside the home of the person to respond to internally nerves and muscles, but probably in
or out of a normal routine. People can generated cues to produce behaviour terms of how our brains work as well,
become less active and more reliant is impaired. What is preserved, often to as brain cells and circuits struggle to
on others to engage with various tasks the consternation of carers, is the ability adjust to the changes caused by the
that need to be done each day. In this to respond to externally generated disease. If a reduced ability to engage
case, the spirit and body may be willing cues. For example, when a person with in a certain activity is prolonged, the
but the brain has trouble providing the PD and apathy is asked by a person in window of opportunity to rehabilitate
computing power to enable things to authority e.g. the Specialist, to get up and recover function may close. This,
engage. If a delirium occurs (a temporary and walk down the corridor, they will by itself, is a sufficient reason to pay
acute state of confusion, usually caused walk down the corridor! Apathy can be close attention to reduced activity in
by some other condition such as an a neuropsychiatric symptom of PD just Parkinson’s. Reduced ability to be active
infection), some people will become quite as fatigue can. increases disability and dependence
inactive for most of every day until they upon others, it increases carer stress,
are well again. OVERMEDICATION it lowers the person with PD’s sense of
Overmedication can be a problem, self esteem,and can lower the threshold
APATHY for depression because there is less
especially when sedative drugs are being
Apathy is a reduction in motivation used, even more so when alcohol is also sense of mastery and less experience of
related to not caring enough about part of the mix. Sometimes reducing or pleasurable things in each day.
things, either because we can’t feel stopping medicines is warranted, even
strongly enough about something to Knowing the contributing factors is
when they have been previously useful.
act, or because we don’t think that important because it can provide the
It is important to discuss this with the
it is important enough. Scientists necessary clues for planning a response.
doctor prescribing them rather than
are beginning to understand the It is also important because carers
experimenting on your own.
brain circuits involved in linking our might fall into the trap of assuming
instincts, feelings and thoughts to the WORSENING MOTOR SYMPTOMS that people with Parkinson’s are being
“motivational engine” that generates lazy or somehow deliberately choosing
Finally, sometimes reduced activity does to “give up” or “be difficult” when this
the spark to produce behaviour of all all come down to worsening motor
kinds. It appears that the areas of the is absolutely not the case. If carers
symptoms – the spirit and mind are understand what is going on more fully
brain affected by PD critically affect willing and able but it is the body that
this circuit and can lead to significant it can help them to cope.
is weak. We suggest you discuss these
apathy, quite separate from the causes symptoms with your doctor or PD Nurse Apathy is a particular problem because,
listed above. In fact, one of the clues who is treating your Parkinson’s. by its very nature, the person who
AMPLITUDE is a fun exercise class that focuses on the key areas
for Parkinson’s, including BIG movements, BIG voice, intensity,
AMPLITUDE
complexity, balance, coordination and repetition. Tim Webster is
trained in PD Warrior and boxing for Parkinson’s and he brings
elements of both to the AMPLITUDE programme. There are two
levels of AMPLITUDE:
LEVEL 1 is for PD people who want a moderate level of exercise,
and it takes place from 9.30am – 10.15am on Wednesdays.
LEVEL 2 is for PD people who want to work a little harder, and it
think BIG takes place from 10.30am – 11.15am on Wednesdays.
move Venue: MS & Parkinson’s Canterbury, 49 William Pickering Drive
BIGGER Cost: $8 per session
Contact Tim to reserve your place: tim@exerciseasmedicinenz.com
starts WEDNESDAY NOV 28TH or call 021 0228 2551
8 OUR VALUES : COMMUNITY
is becoming increasingly apathetic is
unconcerned, unlike any of the other
causes of reduced behaviour listed LIVING WELL WITH PARKINSON’S UPBEAT
above. It is not always the right thing
to do to interfere and try to enforce
PARKINSONS 2019 UNDER 60 GROUP 2019
“treatment”, but sometimes carers need This is a Self-Management course Upbeat was first established in
to intervene because if the problem run over 6 weeks, aimed at giving 2000 by Parkinson’s New Zealand
continues it will lead to the person information and tools to help you to provide a forum for people
losing so much function that dearly-held and your family live better with with early-onset Parkinson’s and
wishes are threatened, such as the wish Parkinson’s. Spouses/Partners or their whānau and friends to
to remain independent at home. support workers are encouraged communicate with other people
to attend. and to share ideas, experiences
and have some fun! In 2018 the
What can help? It is ideal for people who are newly
diagnosed, or those wanting to
Upbeat group enjoyed Ten Pin
Bowling followed by a meal out at
The management of reduced activity learn more about self-management
“Hello Vietnam”.
is challenging, in part because there of Parkinson’s. Self-management
are so many things that can cause this involves setting goals and being In 2019 Anna has booked
problem. Several factors may be acting actively involved in your healthcare. Petanque.
simultaneously so it may be hard to see
This course has been run by the Venue: Papanui Club
smaller contributing factors because
society for over 7 years, with very Date: Tuesday 19 March
they are drowned out by the noise from
positive feedback from participants.
some main factor. Time: 5.30pm -7.30pm
2019 Dates: Wednesday 6th March
Also, the clinicians involved may be less RSVP: Anna Fraser (pnurse@
until Wednesday 10th April
experienced with one or other of the ms-pd.org.nz). Lemonade and
above factors and either not notice their Time: 10am until Midday nibbles supplied by the society.
presence or feel unconfident about
Please register your interest with Please pencil in Upbeat dinner
advising on treatment. People with PD
Anna Fraser (pnurse@ms-pd.org.nz). TBC for Tuesday 22nd October
and their supporters need to share their
2019. Ideas for Restaurants are
observations with health professionals
very welcome.
so they can understand more fully what
is going on and accurately gauge any
response to various treatments.
routine and structure, even to the point
Management often aims to preserve of a timetable for each day. It is easy Summary
or regain function rather than to to see how this can help if the problem Reduced activity is a common problem
eradicate the problem entirely. Medical is related to the psychological and in Parkinson’s, but it is much more
treatment may help, including adjusting cognitive factors outlined above. When complex than simply not being able to
dopaminergic treatments such as depression, self esteem and anxiety are get our body to move as well as it used
Madopar or Sinemet, trialling an key factors, planning enough activities to. By understanding the many causes
antidepressant or an anti-anxiety drug, that it is clear in advance are achievable more deeply, people with Parkinson’s
using a pain-killer or a Cholinesterase and that will be enjoyable is critical. No- can help themselves, with the support
Inhibitor (cognitive enhancing medicine) one ever died wishing they’d had less of carers and health professionals, to
may help, or perhaps stopping some harmless fun, or wishing they’d taken maintain their abilities and place in the
offending agent. on a greater number of impossible world despite the effects of this illness.
challenges. When apathy is a key
Drugs are not the whole answer If you are finding it difficult to get some
feature, having a written plan reinforced
however. The key strategy is planning activity into your daily lives, please
by carers to help people to ‘get up and
activity. This is more than the contact Anna for advice and support to
go’ is helpful: the more external cues
hopefully familiar idea of organising get you exercising, it is one of the best
to do things, the better. For example,
activity around medication timing and things you can do for your Parkinson’s!
an alarm clock or phone call to mark
scheduled rest periods. It is also about
the time to do something, step-by-step
thinking carefully about whether goals References:- Dr Matthew Croucher, Older
instructions to carry a person through a
for the day are realistic. Don’t bite Person’s Psychiatrist, CDHB.
task, or working on something together
off more than can comfortably be
so that you are both doing the same
chewed – aim to do what you can, not
thing side by side.
what you ‘should’. Also, people with
Parkinson’s frequently do well with
Phone: (03) 366 2857
www.ms-pd.org.nz
Service INTEGRITY 9
SEASONAL,
various times of the year, depending on
what produce is available.
“We’re coming into the fun season
SUMPTUOUS,
now ... soon there’ll be an abundance
of tomatoes and fruit and we’ll be
producing seasonal products as well as
SUSTAINABLE
the four main products we have year-
round.” Products include Chilli Lime and
Ginger Sauce, Pomegranate Molasses
Dressing, Tomato and Ginger Jam and
Moroccan Apricot Chutney.
With a lengthy background in hospitality
in New Zealand and overseas, Nicky It’s a team effort with husband Aki and
Jenkins had to take a major step back mum Sally. On the day we visit, Sally has
from that competitive world following been out foraging elderflower and Nicky
her diagnosis with Parkinson’s already has a large pot on the stove with Nicky and Aki
a sugar syrup ready for infusion with the
But, quite obviously being an innovator,
cuttings to make a delicious cordial.
Nicky has found a way to continue her
connection with food by starting Kakariki She also loves working with other the products are well-liked and we would
(green in Te Reo) Kitchen. suppliers. Aki works at The Laboratory, like to sell more, but mainly online. I find
brewers of Twisted Ankle beer. Nicky the markets quite exhausting and we are
Their motto is “Seasonal, Sumptuous
uses it in her Dark Beer Chutney not aiming to produce enough to supply
and Sustainable”.
(which just cries out for teaming up supermarkets.”
After diagnosis five years ago, Nicky says in a ploughman’s platter). They also
it became apparent that she was no “We’re not trying to make millions ... but
make “bark” from the spent grain left
longer able to work quickly enough in we’d like to get the word out there.”
over from the brewing process. The
the fast-paced, pressured environment bark provides a great platform for their
of a restaurant kitchen. selection of chutneys. She has also been Kakariki Kitchen offers a range
experimenting with Peckham’s Cider of gift packs that are perfect
“I was looking for something that would
from the Upper Moutere Valley, Nelson, for Christmas presents and
fit me, and the post-earthquake rebuild
using it to produce Kakariki Kitchen’s will donate 10% to MS and
of our house was a perfect opportunity
Spiced Cider Jelly. Parkinson’s Canterbury for every
to look at doing something from home.”
She was granted a home kitchen license “I’m very fussy about quality, love to use pack sold. To view and order go
from the Selwyn District Council, and whatever is in season and like to use to www.kakarikikitchen.co.nz
now her kitchen is a hive of activity at good, solid recipes with a twist. We know
THANK YOU TO OUR SUPPORTERS
E B Milton Trust, William Toomey Charitable Trust, Jones Foundation, PAC Fund and MU Welfare Trust Board
Harvey Weir
Charitable Trust
102018
DECEMBER/JANUARY NEW LIBRARY BOOKS
CLOSING DATES Stop Parkin’ and Start Livin’ – by John
C. Coleman ND (donated by Phyllis
We will be closed during the Briggs)
Christmas Holidays as follows:
Live Now – Die Later: Starkhealth –
Notices
Last day: Thursday 20 December by Dr Patterson Stark (donated by
Reopen: Monday 7 January Phyllis Briggs)
If you need medical assistance Multiple Sclerosis: Answers at Your
during this time, please contact your Fingertips, 2nd Edition (donated by
GP or one of the after hours clinics. Malcolm Rickerby)
2019 PSP/MSA SUPPORT The last dates for Gym and Exercise
Classes are as follows:
Beyond the Gate – by Graeme Reid
GROUP Does my bum look big with this stick?
– by Shona Daubé
Date/Time
Please diary Tuesday 12 February, Group for Last Class
14 May, 13 August and 12
Friday
November, 49 Sir William Pickering Open Gym
14 December
Drive from 6-7pm. The group will
again be free and Frances Young, Parkinson’s Thursday
CHRISTMAS CAKE RAFFLE
the Wellbeing Therapist and Exercise Group 13 December Due to unforeseen circumstances
Counsellor will be the co-ordinator Thursday the wonderful member who
for these sessions. Anna and Yoga normally makes the delicious cakes
14 December
Frances appreciate your attendance. for our raffle is unable to do so.
Thursday
Nordic Walking Someone else has volunteered to
14 December
step in for this year.
MS Thursday Thursday
SMART ALTERNATIVE TO Group 13 December The raffle will consist of 6 small
Christmas cakes.
TRACK PANTS MS Friday Group
Friday
14 December
Barbara Greasley Tuesday
hated going Power of Dance
11 December
out with her
husband in track All groups will resume the week of
pants and spent 14 January, 2019
ages tracking Except
down a smart
alternative. Yoga
Eventually she – resumes Tuesday 5 February
found what she Power of Dance
wanted. They – resumes Tuesday 29 January Demand for tickets is always high so
are made from
Nordic Walking don’t delay, get yours today.
Tencel and cost
approximately $80. Barbara is – resumes Friday 25 January Ticket price: $2 each, 3 for $5 or
more than happy to take orders 6 for $10
and talk to anyone about them.
Pick up your tickets from the
You can contact Barbara on office, or if you are unable to
03 3083937. SPOUSES MORNING TEA come in, contact Annette and
she will assist you. If you can sell
Venue: Salt on the Pier, Pier tickets on our behalf that would
Terminus, New Brighton be most appreciated.
ASHBURTON PARKINSON’S Date: Tuesday 18 December Phone 03 366 2857 ext 6 or email:
MORNING TEA Time: 10.30am support @ms-pd.org.nz
Gaynor Morris has kindly offered Closes: 12pm Monday 10 December,
Venue: Hotel Ashburton to co-ordinate Spouses Morning Drawn 3pm Tuesday 11 December
Date: Thursday 6 December Teas for 2019 and both Gaynor at the Christmas function.
Time: 10.30am – 12pm. and Anna Fraser look forward to
seeing spouses at this wonderful,
Anna and Lesley look forward to social event.
seeing members there. Phone: (03) 366 2857
www.ms-pd.org.nz
11The golf event’s only ladies team, representing Saunders Robinson Brown, with PGA golf pro Oscar
Cadenhead, from left Pam Bowden, Anita Bateman, Oscar, Victoria Moore and Marie Saunders.
IN SUPPORT OF OUR STREET APPEAL
Cashmere High Students. Sarah Lattimore collecting in Culverden.
Cathedral Grammar Choir performed at South City.
Multiple Sclerosis
& Parkinson’s Canterbury (Inc)
Unit 3, 49 Sir William Pickering Drive
PO Box 20-567 Christchurch 8543
Phone: (03) 366 2857
Fax: (03) 379 7286
www.ms-pd.org.nzYou can also read
