CORPORATE PARTNERSHIP PROGRAM 2019 - www.ebresearch.org - EB Research ...
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CORPORATE PARTNERSHIP PROGRAM 2019 www.ebresearch.org 1
OUR MISSION
Founded by a group of dedicated parents along with
Jill and Ed Vedder (Pearl Jam), EB Research Partnership
(EBRP) is the largest 501(c)(3) nonprofit dedicated to
funding research aimed at treating and ultimately
curing Epidermolysis Bullosa (EB), a group of
devastating and life-threatening skin disorders that
affect children from birth.
EBRP utilizes an innovative business model of venture
philanthropy. When making a grant to a research
project we retain the added upside of generating an
additional revenue stream if the therapy or product is
commercially successful, and use the return on
investment to fund additional EB research.
Treatments and a cure for EB are within reach.
Though we have made significant progress, we need much greater resources in our pursuit of a cure.
Partner with us in our mission to further life-saving research for EB.
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Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc.
STATISTICS
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Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc.
$25 MILLION 3 YEAR CAMPAIGN: VENTURE INTO CURES
Data $4M Collaboration $1M Results $20M
Accumulate the largest EB Unite the often disparate The heart of all that we do lies in the
dataset imaginable to academic, medical, and patient clinic, where the hard work
leverage the power of big communities by providing a established in data, research, and
data to aggregate, centralize, platform in which we can all work medicine, combine to deliver results
analyze, and decode the together to work more efficiently in the form of treatments and cures
clinical, genomic, and patient and rapidly via our Research to patients via our funding of a
data underlying the disease Consortium of 21 hospitals, diverse portfolio of approaches
via Clinical, Bio, and Registry Scientific Advisory Board, and spanning all subtypes of the disease,
Datasets. Community Council. all under our venture philanthropy
model.
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Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc.
Nationwide Events Portfolio
Pursuit for Patterson 11/2019 Change for Charley
Washington 3/9/2019
Illinois
Plunge for
Elodie 3/2/2019
Massachusetts
All in for a Cure
5/1/2019
EBelieve New York
10/2019
California ACTion for
Jackson
11/7/2019
New York
Believe in Brady
4/7/2019
Texas
www.ebresearch.org
Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc. 5
SPONSORSHIP OPPORTUNITIES
2019
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Leadership
Sponsors
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2019 Leadership Sponsorships
Champion $100,000 Defender $50,000
• Title Sponsor for ACTion for Jackson, our Annual Benefit in NYC • Gold Sponsor for ACTion for Jackson, our Annual Benefit in NYC
• Title Sponsor for All in for a Cure, our Casino Night in NYC • Title Sponsor for All in for a Cure, our Casino Night in NYC
• Title Sponsor for 1 of the 3 Community Events: • Platinum Sponsor for 1 of the 3 Community Events
Change for Charley, Plunge for Elodie, and Believe in Brady Change for Charley, Plunge for Elodie, and Believe in Brady
• Gold Sponsor for Community Council, our EB Community Education Program • Silver Sponsor for Community Council, our EB Community Education
• Recognized as a Partner on our website homepage for 2019 & recognition in social Program
media posts • Recognition in social media posts
• Silver Sponsor for the Scientific Advisory Board Program Advocate $25,000
Guardian $75,000 • Silver Sponsor for ACTion for Jackson, our Annual Benefit in NYC
• Platinum Sponsor for ACTion for Jackson, our Annual Benefit in NYC • Full Table Sponsor for All in for a Cure, our Casino Night in NYC
• Title Sponsor for All in for a Cure, our Casino Night in NYC • Gold Sponsor for 1 of the 3 Community Events
• Title Sponsor for 1 of the 3 Community Events • Bronze Sponsor for Community Council, our EB Community
Change for Charley, Plunge for Elodie, and Believe in Brady Education Program
• Gold Sponsor for Community Council, our EB Community Education Program
• Recognized as a Partner on our website for 2019 & recognition in social media posts
• Bronze Sponsor for the Scientific Advisory Board Program
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Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc.
Scientific
Advisory
Board
&
Community
Council
9
EBRP Scientific Advisory Board (SAB) Program:
EBRP’s SAB is an independent body of esteemed scientists and medical professionals responsible for evaluating the grants submitted to EBRP for funding. This is a key
program for EBRP and helps make our innovative research support possible. The Scientific Advisory Board applies its collective scientific expertise to advise on the
dissemination of grant funding for research initiatives likely to treat, heal and cure EB. Members of the SAB include doctors and Ph.D’s from Cincinnati Children’s Hospital,
Northwestern University, Emory University and the Melinda & Bill Gates Foundation.
Gold Sponsor $40,000
• Listing on website and all collateral as Gold Sponsor
Silver Sponsor $20,000
• Listing on website and all collateral as Silver Sponsor
Bronze Sponsor $10,000
• Listing on website and all collateral as Bronze Sponsor
Community Council:
The EB Research Partnership Community Council helps to drive research efforts by educating the EB community with reliable and current information from trusted
specialists in the field. The Community Council is open to all members of the EB community (individuals with EB families, advocates, doctors, etc.). We host online live and
recorded discussions with experts and EB researchers on topics related to EB throughout the year. Past sessions were about current research, advocacy, genetics, and
emotional distress. We engage the community to address their questions. These discussions are recorded and made available to the public via our website and social
media.
Gold Sponsor $10,000
• Corporate logo prominently displayed on the website, communications, social media, collateral, and at the beginning of each presentation
• 5 complimentary tickets to at ACTion for Jackson, our annual gala in NYC and your logo displayed at the event
Silver Sponsor $5,000
• Corporate logo displayed on the website, communications, social media, and at the beginning of each presentation
• 2 complimentary tickets and Benefactor listing at ACTion for Jackson, our annual gala in NYC
Bronze Sponsor $2,500
• Name displayed on the website, communications, social media and collateral 10
Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc.ACTion
for
Jackson
November 7
NYC
11ACTion for Jackson in NYC on November 7:
Our annual gala, attended by more than 600 friends, partners and EB families, has raised over $1 million for each of the past four
years. 2019 marks the 10th anniversary of ACTion for Jackson. Join us for this special celebration at the Mandarin Oriental New
York, a glamorous mid-town location which provides tremendous visibility for our sponsors.
Title Sponsor $50,000 Gold Sponsor $20,000
• Large corporate logo displayed prominently over the stage and in all • Corporate logo displayed in all marketing materials and at the event
marketing materials (including the Save the Date and Invitation) and at • Listing on all pre and post event outreach, correspondence and
the event communications as a Gold Sponsor
• Recognition during the Live Program • 10 complimentary tickets to the event
• Listing on all pre and post event outreach, correspondence and • Sponsor 2 individuals with EB and their families to attend the event
communications as the Title Sponsor
Silver Sponsor $15,000
• Exclusive recognition at the bar and cocktail areas
• Corporate logo in all marketing materials and at the event
• 20 complimentary tickets to the event
• Listing on all pre and post event outreach, correspondence and
• Sponsor 4 individuals with EB and their families to attend the event communications as a Silver Sponsor
Platinum Sponsor $30,000 • 6 complimentary tickets to the event
• Large corporate logo displayed in all marketing materials and at the • Sponsor an individual with EB and his/her family to attend the event
event
Bronze Sponsor $7,500
• Listing on all pre and post event outreach, correspondence and
• Corporate logo in all marketing materials and at the event
communications as the Platinum Sponsor
• Listing on all pre and post event outreach, correspondence and
• 15 complimentary tickets to the event
communications as a Bronze Sponsor
• Sponsor 3 individuals with EB and their families to attend the event
• 3 complimentary tickets to the event
• Sponsor an individual with EB and his/her family to attend the event
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Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc.All in for a
Cure
May 1
NYC
13All in for a Cure Casino Night in NYC on May 1:
Join us for an exciting and exclusive night of poker, casino games, cocktails, food and fun at a private club in NYC to help fund a
cure for EB. The top three players will win prizes hand-selected by the event co-chairs. 2018’s event raised more than $150,000.
Every year since 2015 the event has completely sold out. New for 2019: more casino games beyond just poker!
Poker Full Table Sponsor $5,000
Title Sponsor $20,000
• Large corporate logo displayed in all marketing materials and at the event
• Named sponsorship of the event, featured on invitation,
website and video screen • Listing on all pre and post event outreach, correspondence and communications as a
Full Table Sponsor
• Opportunity to make a live announcement at
tournament by the title sponsoring company or individual • 1 Poker Table (10 seats)
• Logo displayed on the playing cards used in the Poker Half Table Sponsor $2,500
tournament • Corporate logo displayed in all marketing materials and at the event
• 2 Casino Tables (20 seats) and 10 casino tickets • Listing on all pre and post event outreach, correspondence and communications as a
• 5 individual rebuys Half Table Sponsor
Bar Sponsor $12,500 • 5 Poker Seats
• Exclusively featured at the bar/s and logo on cocktail Casino Game Table Sponsor $5,000
napkins • Corporate logo displayed in all marketing materials and at the event
• Prominent logo placement on the event website and • Listing on all pre and post event outreach, correspondence and communications
video screen as a Casino Game Table Sponsor
• Announcement of company support during the program • 10 casino tickets
made by the event co-chairs
Chip Sponsor $1,500
• 2 Casino tables (20 seats) and 10 casino tickets
• Name displayed in all marketing materials and at the event
• 5 individual rebuys
• Listing on all pre and post event outreach, correspondence and communications
as a Chip Sponsor
• 2 Poker Table seats 14
Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc.Change
for
Charley
March 9
Chicago, IL
15Change for Charley in Chicago on March 9
Change for Charley is an inspiring event featuring an exclusive auction, food and cocktails, and live entertainment. In 2019 it will be
held at the glamorous Artifact Events. The evening is emceed by ESPN's Scott Van Pelt and has featured acts from Kat V and DJ
White Shadow. In 2017 the event raised nearly $320,000 for EB Research Partnership in its inaugural year. Change for Charley is
hosted by Brooke and Michael Kauf in honor of their 6 year old daughter who lives with EB.
Title Sponsor $20,000 Gold Sponsor $7,500
• Private meet and greet with Scott Van Pelt at the event • Corporate logo in all marketing materials at the event
• Recognition during the Live Program • Listing on pre/post event outreach and communications as Gold Sponsor
• Large corporate logo in all marketing materials at the event • 6 complimentary tickets to the event
• Listing on pre/post event outreach and communications as
Title Sponsor Silver Sponsor $5,000
• Exclusive recognition at the bar areas • Corporate logo in all marketing materials at the event
• 12 complimentary tickets to the event • Listing on pre/post event outreach and communications as Silver
Sponsor
Platinum Sponsor $12,500 • 4 complimentary tickets to the event
• Large corporate logo in all marketing materials at the event Bronze Sponsor $2,500
• Listing on pre/post event outreach and communications as • Corporate logo in all marketing materials at the event
Platinum Sponsor • Listing on pre/post event outreach and communications as Bronze
• 8 complimentary tickets to the event Sponsor
• 2 complimentary tickets to the event
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Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc.Plunge for
Elodie
March 2
Boston, MA
17Plunge for Elodie in Wellesley, MA on March 2
Plunge for Elodie was started in 2018 by childhood friends who wanted to do something for their friend’s daughter Elodie. They
decided to be "freezin’ for a reason" and host a plunge into the frigid waters of their hometown of Wellesley, MA. The inaugural
event raised $150,000 and received millions of media impressions from the Boston Globe, People Magazine, as well as inspiring
the actress Jessica Biel to take a virtual plunge. Plungers can join in MA or start their own satellite or virtual plunge.
Title Sponsor $10,000
Gold Sponsor $2,500
• Large welcome banner at the Plunge site: “The Plunge for Elodie,
Brought to you by X” • Listing on the website and in all pre-event marketing materials
• Listing on the website and in all pre-event marketing materials • Recognition during the live speaking program
• Recognition on social media • Signage at the post Plunge breakfast event
• Signage at the post Plunge breakfast event • Swag bag opportunity
• Recognition during the live speaking program
• Logo on event merchandising and attire Silver Sponsor $1,000
• Swag bag opportunity • Listing on the website and in all pre-event and event marketing
Platinum Sponsor $5,000 materials/signage
• Listing on the website and in all pre-event marketing materials • Recognition during the live speaking program
• Recognition during the live speaking program
• Recognition on social media
• Signage at the post Plunge breakfast event
• Logo on event merchandising
• Swag bag opportunity
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Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc.Believe in
Brady
April 7
Houston, TX
19Believe in Brady in Houston on April 7
Believe in Brady features a fun afternoon for the entire family with food, drinks, music and a silent auction in Houston’s Levy Park.
Brady is a 2 year old boy with EB from Houston who loves arts and crafts, his dog Clementine, and playing with his big brother Leo.
He is fierce and funny. Brady’s community organized Believe in Brady, now in it’s third year, as a way to unite around raising funds
and awareness for EB. Believe in Brady and raised more than $100,000 in 2018.
Platinum Sponsor $12,500 Silver Sponsor $5,000
• Large Corporate logo in all marketing materials at the event • Corporate logo in all marketing materials at the event
• Listing on pre/post event outreach and communications as • Listing on pre/post event outreach and communications as
Platinum Sponsor Silver Sponsor
• Exclusive recognition at the bar areas • 6 complimentary tickets to the event
• 10 complimentary tickets to the event
Bronze Sponsor $2,500
Gold Sponsor $7,500 • Corporate logo in all marketing materials at the event
• Corporate logo in all marketing materials at the event • Listing on pre/post event outreach and communications as
• Listing on pre/post event outreach and communications as Bronze Sponsor
Gold Sponsor • 4 complimentary tickets to the event
• 8 complimentary tickets to the event
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Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc.Sponsorship Form
Company Name: ________________________________________________________________________
Contact Name: ________________________________________________________________________
Address: ________________________________________________________________
City: ____________________________ State: ___________ Zip: _________________
Phone: ______________________ Email: _____________________________________
Sponsorship Level: ________________________________________________________
Please email your corporate logo in jpg or png forms and the Sponsorship Form to mhund@ebresearch.org
EB Research Partnership is a 501 (c)(3) charity. Our EIN # is 27-2417202. A portion of your sponsorship will be tax-
deductible.
Please make checks payable to “EB Research Partnership.” If you prefer to make a wire transfer, please call EB
Research Partnership’s office at 646-844-0902 or email mhund@ebresearch.org.
Address: EB Research Partnership
132 East 43rd Street, Suite 432
New York, NY 10017 21
Proprietary and Confidential. Neither this document nor its contents may be duplicated or distributed, in whole or in part, without written permission from EB Research Partnership, Inc.With your help,
we will cure EB.
Partner with us to make
our vision a reality.
Contact:
Michael Hund
Executive Director
mhund@ebresearch.org
(212) 554-1413
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