Danni's Diary - Derian News Fundraising Kits - Derian House
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Danni’s
Diary
2020/21 Edition
Derian Fundraising Leo’s
News Kits Lockdown
See how we’re expanding our How will you use yours? COVID meant Leo couldn’t
service for babies facing an walk his mum down the
Page 20
uncertain future aisle… so he did this!
Page 12 Page 4
Dear friends,
Welcome to our annual
Danni’s Diary newsletter.
We will give you a glimpse of life at your local
children’s hospice, and show you what your
generous donations have paid for.
It’s fair to say that 2020 hasn’t been what any
of us expected.
We started the year on a high with the news that
we had been rated Outstanding at our CQC
inspection. The paint was only just dry on our
million-pound refurbishment of the building, and we were
still glowing with pride after being being voted the national JustGiving Awards’ Charity
of the Year.
Then in March COVID struck and the world changed.
One thing that didn’t change, however, was the care we offered to our children and
their families. That never faltered for a second.
Despite our events cancelled and the income from our shops grinding to a halt, we
remained open to our families when they needed us most. We helped them through
some of the toughest and most isolating times they have experienced. We not only
pulled together as a team to change the way we offer services (check out page 7 to find
out how we got our grandparents on Zoom!) but we’ve also worked really hard to add
new services, to help out our local NHS, and to attract new families from further afield.
The ways we raise money has had to change. But crisis has brought innovation, with
some creative fundraising escapades that have given us a lift and proved that our
supporters are always there when we need them most. So thank you to everyone who
continues to support us despite things being uncertain
for all of us right now.
No matter what happens as we continue to find a
‘new normal’, we will remain committed to
being the leading light in children’s palliative
and end-of-life care in the UK and will
always strive to ensure that the life of every
child in the North West matters.
David Robinson
Chief Executive, Derian House Children’s Hospice
2
Contents Get Social
14 Our kids are marvellous
15 Family feedback Facebook
@DerianHouse
LinkedIn
derian-house-children’s-hospice
16 Instagram
@DerianHouseChildrensHospice
Thank you!
How you raised funds this year.
4 18 Latest news from our shops
Twitter
@DerianHouse
Leo in lockdown 19 Christmas: light it up
Keep In Touch
Read all about Leo’s “aisle to isle” for Derian
challenge for Derian.
20 Sponsor a nurse
6 We are outstanding!
Derian House
7 How we coped during Children’s Hospice
COVID Chancery Road
Chorley
8 Million pound refurb PR7 1DH
10 Volunteer for us Fundraising Tel:
01257 271 271
Hospice Tel:
01257 233 300
Email:
21 info@derianhouse.co.uk
11 Website:
Care in numbers www.derianhouse.co.uk
Derian on holiday What a year of care looks ilke at the
Read all about Bobby’s holiday hospice.
12 Breaking news 22 Play our lottery
23 How can you donate? 3
’ s ow n
e o
L ock d
L
COVID stopped Leo from walking
his mum down the aisle… so he
walked the British Isles for
Derian instead!
Inspirational teenager Leo Cliffe made
the most of his lockdown, raising a
whopping £6,400 for Derian House by
walking the length of the British Isles on
a treadmill in his garage.
The 19-year-old from Coppull was
disappointed after the pandemic meant
he couldn’t walk mum Vicky down the
aisle when her wedding to stepdad Scott
in April was cancelled. But undeterred,
the plucky teen decided to walk the
length of the British Isles instead to raise
money for the charity which helps him.
“I really enjoyed raising money for
Derian because the hospice holds a
special place in my heart,” said Leo, who
took to his treadmill every day and –
with the help of his friends – clocked up
more than 1,000 miles. Leo has health
problems caused by a rare congenital
disorder called Williams Syndrome,
which affects one in every 20,000
4 people in the UK.
Although his condition has given Leo It was even Leo’s idea for his mum to
some extraordinary gifts – he is friendly, propose during a dream holiday to
funny and has a flair for music - it has Florida during which Vicky got down on
also led to heart and kidney failure, and one knee on the last day to ask Scott to
Leo has had more than 50 operations marry her.
since birth. Thankfully, hope came in the form of
Leo comes to Derian House for respite pioneering surgery and in March, 2017,
stays in The Lodge, where young adults Leo travelled to Great Ormond Street
can enjoy their independence in a Hospital in London for a double kidney
supported environment. autotransplant (which involves moving
the kidneys to a different part of the
body). The operation was a success, and
although more health problems
followed, including heart failure which
resulted in open heart bypass surgery,
the trio stuck together through thick
and thin.
I really enjoyed raising
money for Derian because
the hospice holds a special
place in my heart
“Scott has been our rock,” said Vicky.
“He took us both on knowing what the
future held and supported me through
my darkest days of Leo being on life
support. Although Leo’s condition
remains life-limiting, he is here, and
there’s nothing more I want in the
world than to have him at my side while
The wedding day would have been made I marry my soul-mate.”
all the more poignant for the fact that in The wedding will now take place in
2015, Vicky was told her son - 15 at the April, 2021.
time - was unlikely to make it to his next
birthday. It was around then that Scott, You can still donate to
an old school friend, got back in touch Leo’s fundraiser here:
and love blossomed. He supported Vicky www.justgiving.com/fundraising/leo-cliffe
during the darkest days of Leo’s health
complications. 5
Charity Of
The Year
Celebration was the order of the day
when Derian House was named the
national JustGiving Awards’ Charity of
the Year!
The star-studded event, held in the
autumn, saw Derian pitted against
charities from across the country for
the prestigious title. But the loyalty of
supporters shone through and the
This year we received the news we
hospice came out on top in the public
have all been waiting for...
vote.
We are OUTSTANDING! David Robinson, Chief Executive of
Following a three-day inspection, the Care
Derian House, said: “We were over the
Quality Commission (CQC) awarded Derian
moon to receive this wonderful award
House an Outstanding rating, with
and it’s testament to the hard work of
inspectors praising the charity for “putting
all of our staff and volunteers.
children, young people and their families’
“Being named Charity of the Year has
needs at the heart of all services.”
helped put Derian on the map, allowed
Judith Connor, CQC Head of Hospital
us to gain national exposure and in turn
Inspection, said: “We found that people
we have reached even more families
and their families were at the centre of
and donors.”
everything the service did.”
6
COVID
Silver surfers!
Heroes
Our grandparents bereavement support
group used lockdown to brush up on
their I.T. skills by taking the sessions
online! The friends enjoyed a Zoom
session despite most of them never
When the Coronavirus struck, life changed having used the platform before. The
for everyone. But for families looking after a power of technology!
vulnerable child, the isolation and 24/7
responsibility of care for a sick child made a
tough situation even harder. Have you heard the one...
At Derian, we changed the way we offered
services to help families out during the
most difficult times many have ever had.
107 Bereavement support sessions
over phone and video call
Counselling phone calls 246
It would take more than a global
pandemic to hold back our super
266 Nights of respite care at
the hospice
siblings. The gang missed each other
when their monthly club was cancelled,
Calls from our family 313 so instead formed an online comedy
support team club and told each other jokes during
lockdown.
432 Calls and video calls to
our super siblings
l i ngs
Online wellbeing
286
sessions
i b
SComedy Club 7
Our million
pound makeover...
T op class facilities including a sensory room, messy play zone and cinema have
been unveiled as part of a £1.4million makeover at Derian House Children’s Hospice.
In 2018 we began a huge project to make the hospice “fit for the future” so we could
continue to care for children with increasingly complex conditions for many years to
come.
Walls were knocked down and the hospice was remodelled into a lighter, brighter and
more flexible space, with the very latest technology added. The work has transformed
the building into a state-of-the-art facility which puts it at the pinnacle of children’s
palliative care in the UK and will improve the respite and end-of-life care received by
more than 400 children from the region.
Children’s Bedrooms Sensory Room PlayZone
What’s new?
• PlayZone (sponsored by AO Smile) with a
large sensory room with ball pit and a
messy play area for arts and crafts.
• £100,000 cinema room which allows
families to relax and watch the latest
releases together.
• Accessible kitchen (donated by Red Sea Pedestrians) allows
the young adults to bake or fix themselves a snack.
• Cutting-edge technology has been added to rooms to give the youngsters greater
independence - including special sensors on doors for wheelchair users and
8 smart speakers in all bedrooms.
6.00pm
This ticket admits
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“Back in January Riziah battled sepsis and following
on from our stay in hospital we had a period of
isolation at home.
The cinema was the first place Riziah visited.
Knowing that she could enjoy herself whilst in a
clean environment when her little immune system
was so low gave me so much confidence to venture
out of the house. Riziah just loves the fact that she
can dance away to the songs, sit on the biggest
beanbags and eat popcorn from the biggest tub you FILM BUFF: Riziah tucks into popcorn
can find.”
Naomi, Riziah’s mum.
Hydrotherapy Pool Smile Park Music Room
Check out our online tour www.derianhouse.co.uk
9
VOLUNTEERS
13,979
Hours of volunteering
saved us
£115,000
in wages!
183
Regular
volunteers
WE NEED
YOU!
Volunteers are the lifeblood of Derian House,
we simply couldn’t operate without them.
Our 183 volunteers do everything from
answering phones to running our charity
shops – and we always need more help.
Jill’s quarter century of help
Jill Pullin, 78, has volunteered at Derian for 25 years
doing every job you can think of – from manning
reception to starting a popular tea and cake trolley
round.
Her sewing skills are in high demand and over the
years she’s shortened more curtains and made more
giant T-shirts for teddy bears than she could care to
remember.
“I always say with volunteering, you get so much more
out of it than you put in. I’ve made so many friends and
had such laughs. I wouldn’t change it for the world.”
10 Interested in volunteering for Derian House Children’s Hospice?
Contact Fran Lees on volunteer@derianhouse.co.uk or call 01257 233 300with
Making happy memories
on liday
Your donations help us to send 92 families on a at Ribby Hall Village
free week’s holiday to our lodges at Ribby Hall
Holiday Village every year.
e
so much. Th
“Thank you d h as
nning an
lodge is stu more.
g w e n eeded and ital
everythin onth hosp
in
ly rough m
After a real e e d e d . It has
what we n
it was just end some
been am azing to sp family.”
it y ti m e together as a
qual
g Leo “After a bad year with operations
much for lettin
“Thank you so ily ha ve it was a welcome rest. Thank you
and all our fam e for a lovely holiday, we have really
liday. We mad
an amazing ho or ie s. ” enjoyed ourselves.”
mem
lots of lovely
Bobby’s Holiday
Bobby has a life-limiting heart condition and spends
much of his time indoors to prevent him from coming
into contact with potentially deadly viruses.
For Bobby and his mum Emma, a
holiday at Ribby Hall was a
chance to have fun in a safe
environment.
“We don’t know how long we’ve
got with Bobby and something
like this was a massive deal for
us. It was a chance to have a
good time and forget about
reality for a little while.”
Emma, Bobby’s mum. 1120
News
Derian News
The latest news from Derian House Children’s Hospice
Brea 20
k
New ing
s
Helping our very youngest lives
Families of sick babies facing an
uncertain future are getting
more help than ever, thanks to
your donations.
Derian’s perinatal service was
launched in 2018 and has gone
from strength to strength, with
31 referrals so far this year
(to Sept 2020).
Families have always had the
option to stay at the hospice for
end-of-life care.
But work is also now being done
with pregnant mothers to ensure
that when their baby arrives they can enjoy the time they have together, having
already considered the difficult decisions they may have to face.
Family splash sessions, playgroup and baby massage are just some ways we can help
them make precious memories together.
The service expanded with a new member of staff in summer
2020 – with lead Katie now having a helping hand in the
form of perinatal nurse Kathryn.
The new resource has allowed us to offer hospice at home
services, with respite visits, wellbeing activities and play
all being taken into families’ own homes.
Links are now in place with hospitals in Manchester, Bolton,
Preston, Burnley, Liverpool, Lancaster and Wigan, meaning
the provision is accessible across the North West.
Putting Derian on the map
Derian House is bringing smiles to children and young adults from further
across the North West.
The charity is taking more referrals from the Greater Manchester area –
with families who previously accessed Grace’s Place Children’s Hospice in
Bury offered a helping hand. And a new outreach post planned for South
Cumbria will also help families to the north of Derian’s patch
12 access services.Community rallies after break-in
Generous supporters pulled together to raise more
than £10,000 after thieves targeted Derian’s Chorley
charity shop.
Staff and volunteers were left devastated when
heartless raiders smashed through the roof to gain
entry to the story – causing £1,000 of damage –
during lockdown in April.
But after an appeal for witnesses on social media went
viral and was picked up by the media, a silver lining
emerged.
£1,000
The charity was inundated with offers of help and donations of damage
began flooding in. Dozens of kind-hearted trades people offered caused
to lend a hand – with roofer Lee Schofield fixing the damage for
free.
Local businesses and community groups also rallied. One
parent whose daughter comes to Derian House even raised £10,000
£2,200 in just a few days. raised by
The £10,000 total not only paid for new security measures
across the hospice’s whole network of charity shops in supporters
Leyland, Horwich and Adlington, but will also was enough to
cover the wages of two hospice nurses every day for a month.
Tributes to Derian founder
Tributes were made to Ian Haydock,
the co-founder of Derian House
Children’s Hospice, who passed away in
April, aged 69. The Chorley grandad died
from pneumonia in Royal Preston
Hospital after suffering heart and diabetes
complications.
Ian came up with the idea to found a
children’s hospice after losing his brother Derek
to Duchenne Muscular Dystrophy (DMD) in 1969,
aged 19.
David Robinson with
Ian Haydock
He started a fundraising campaign with his family in
1991, raising the initial £25,000, before turning to local
businesswoman Margaret Vinten, who helped make his dream
become a reality. In 1993 Derian House Children’s Hospice welcomed its first child
through the doors. The name Derian is a combination of the names of Derek and Ian.
David Robinson, Chief Executive of Derian House, said:
I hope Ian's family take some comfort in the fact that his legacy will live
on in the name of our hospice and in the good work we do to help
children and young people from across the North West. 13Our kids are marvellous!
Our children and young people are at the heart of everything we do here at Derian
House. so let’s look at what they’ve been up to...
Life’s a beach Hallie drew a kiss Boccia heroes
Siblings David and Zena The little superstar Team Derian came
were among the first to managed to hold a pen and runners-up in the boccia
road-test brand new draw kisses on her tournament held at Bolton
beach-friendly wheelchairs Christmas card. It was a big Arena. Comeback kings
available to hire for free moment for Hallie who flew Adam, Connor and Paul
thanks to Fleetwood Beach to Poland just weeks earlier were pipped to the post but
Wheelchairs. for pioneering brain surgery returned with their silver
to stop her seizures. trophies held high.
Ella’s flowers Alex & Shuna’s walk Hunter-Wray’s first day
Look at the pretty plants Ella When our Pets as Therapy How smart did Hunter-Wray
and her mum potted at dog Shuna came to visit, look on his first day at
home during lockdown. Alex couldn’t stop beaming nursery? Watching our
Go Ella! when he took her for a walk. children reach milestones
in their lives is just
14 wonderful.
Thank you for bringing William
Family
to the wedding and then taking
him back to the hospice for his
respite. People don’t realise
how amazing you are. We were
Feedback able to have a lovely wedding day
knowing William was being looked
after by your amazing team.
To all the staff at
Derian House. Thank you
or looking after Ibrahim
and supporting us as a
Everything from
staff to the equipment
that helps us means I wouldn’t
want to be anywhere else.
I love coming in, the staff are
Thank you for caring for
and loving Eddie and us
all from the moment we
stepped through the door.
Your kindness is
family. We really overwhelming and
fantastic and polite,
appreciate it.
we will never forget it.
I love it.
It’s clear that for all
of you this isn't just a job,
it’s truly a vocation.
We have been lucky to Thank you Derian House
have had you in our lives for a wonderful afternoon.
and I hope on your bad It was fun! You gave us all a
days you will remember lot of much needed smiles.
the difference you make
to families in the worst
of circumstances.
The stuff that goes on behind
The most perfect place for
those doors is heart-warming.
peace and support at such a
What an amazing place full of
difficult time when losing a
amazing people! We are very
son and grandson.
grateful to be a part of
Staff are amazing.
the Derian family.
15
Thank
With just a fraction of the £4.8 million we need to run
our services every year coming from the government,
you
we simply couldn’t do what we do without your
generosity. Thank you for the sponsored walks, the bake
sales, the head shaves and the bucket collections.
You are all AWESOME!
HOW
Your money Helps us
Raised
£5,318
Nik McEwan and Lea Turner Send five families on a free week’s
walked 220 miles from London to Chorley holiday to lodges at Ribby Hall Holiday Village
Raised
£640
Five-year-old Ava Massey read 101 Music therapy sessions for six children
books in one day and young people
Raised
£4,798
Farmer Gemma Crompton made a huge One-to-one nursing care for a child for
“Derian’s Rainbow” out of hay bales one whole month.Raised
£2,675
Neil Hailwood hosted a Play your Cards A month of fun activities and days out
Right (in isolation) during lockdown for five children and their siblings
Raised
£528
Rachel Holden climbed Mount Everest… Art supplies to create cherished
on her stairs (3,871 flights!) hand and footprints for 50 children
Raised
£600
Three-year-old Emma Jolly walked 30 Four hospice nurses for
miles in a week a day
ERIAN
DANCE4D
put us in a spin!
Remember the ice bucket challenge?
We launched our very own viral challenge over
lockdown with DANCE4DERIAN, encouraging
people to show us their best dance moves to
Dolly Parton’s 9 to 5. More than half a million
people got involved – liking, sharing, dancing and
donating. Dance schools, friends, families and
staff took part. 17Happy Shoppers
Preston shoppers are in for a treat when
Derian’s newest store opens its doors this
winter.
The shop will be the first city-centre
location for the charity’s retail network
and looks set to cause a stir on the high
street with its good quality furniture and
designer goods.
In a prime location on Fishergate, the new
store is the latest in a move to transform
Derian’s retail arm from old school charity
shops into a slick new operation.
New-look stores in Chorley and Leyland
have recently opened with light, bright T-SHIRTS
Now available
décor and a focus on high-end product
lines. The changes have paid off with
profits doubling in a year. Online and in store
Online shopping has also had a boost Chorley | Leyland | Horwich
with a revamped eBay store, Derian’s own
Depop for vintage clothing, a Discogs
k you
k You N Than
store for music and a brand new online an
ur
Th
store on the charity’s website.
ses
Visit www.derianhouse.co.uk
£9.99
18What’s on
Deck The Halls Christmas light displays to rival the Griswolds’
will be illuminating Lancashire – and all to raise
money for Derian House!
We are asking people to go the extra mile when
decorating their homes, workplaces, schools or
clubs to help us raise funds to care for more
than 400 children and young people with
life-limiting conditions from across the region.
A map of the best displays will be made to
allow people to travel round on a tour of the
Derian lights!
By turning on your lights for Derian you can
bring together the community to share in the
magic of Christmas whilst raising money for a
great cause.
If you’re feeling festive and would like to join
in the fun, email
chelsea.crossey@derianhouse.co.uk or call
01257 271 271.
Support Us
Th i s C h r i s tmas ABC
is for
advent donations is for
is for
Carol service
bauble decorating
Christmas is usually the highlight of our events calendar but sadly this
year we have been forced to cancel our events due to the
coronavirus pandemic.
We know many of our loyal supporters think of our children
here at Derian House during the festive season, so we’re
asking you to support us this Christmas in any way you
can. Whether it’s buying your cards from our online
store, holding a bake sale, or even just making a
donation.
Keep your eyes peeled on our social media to see
BAC
what
K
we’re up to at Christmas. 19£150
Could sponsor
a nurse for a day
Sponsoring a nurse for just £150 could provide a child and their
family with one day of care and support.
Can you help?
Visit www.derianhouse.co.uk/sponsoranurse
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kit
Support and raise funds for your local children’s hospice with our new Fundraising Kit.
Life changing ideas start here...
Get yours now! Email: fundraising@derianhouse.co.uk or call 01257 271 271What does my money pay for?
Last year we cared for 394 babies, children and young people. Your kind donations paid
for…
36 124
One-to-One counselling Nights of care and support
sessions for siblings in our Sunflower Rooms
(where children lay at rest
53 before their funeral)
Music sessions
bringing smiles through
460
songs Hours spent supporting
205 parents and 7
1,405
grandparents with
counselling sessions and
Nights of respite bereavement support groups
fun overnight stays for our
children and young people,
giving families a
130
much-needed rest Hours of ‘Schools Out’
Fun weekly clubs during
school holidays
114
Siblings looked after
with care, support and fun
582
Derian at Home visits
clubs provided by our
caring for a child in their own
sibling support team
home
58
Hours of splashy fun
in our hydrotherapy pool
21WIN BIG
CHANGE LIVES
How would you spend £25,000?
Weekly Prize Draw
For just £1 a week you can become eligible
to win one of our fantastic cash prizes by
matching 3, 4, 5 or all 6 digits of the
winning number in the correct sequence.
Match 6 numbers
1st
£25,000
Match 5 numbers
2nd
£1,000
Match 4 numbers
3rd
£25
5
Match 3 numbers
5
4th
5 prize entries
Play Today 6
6
Visit
3
www.derianhouse.co.uk/lottery
3
or ring the Fundraising Team
on 01257 271 271 7
7
8
22
Registered with The Gambling Commission
under The Gambling Act 2005
Licence no: 19-00361-SSLOTTHow to donate to Derian
Online By Phone Bank Transfer
Visit: Give us a call: We accept bank transfers
www.derianhouse.co.uk/donate-now 01257 271 271 Yorkshire Bank
05-06-74
71823944
By Cheque In Person
Send a cheque to: Visit us:
Derian House Children’s Hospice We are open Mon-Fri
Chancery Road From 9am - 4pm
Chorley, PR7 1DH but please give us
a call first.
By Text
Text Derian 5 Click the unique Texts cost £5
to 70085 to link to add gift aid plus your standard
donate £5 to your donation network rate.
GIFT AID
Make your donation go further by signing up to Gift Aid
+ =
5
£100 £25 £12
Your donation Gift Aid The donation we receive
to us at no extra cost to you!Can you help us?
In 2021 we need to raise
£4.8 million
to keep the doors open at Derian House and support
families who desperately need our care.
Registered Charity No. 1005165
For further information, or to get in touch
Main Hospice: 01257 233 300 Fundraising Team: 01257 271 271
Email: fundraising@derianhouse.co.uk Website: www.derianhouse.co.uk
Address: Derian House Children’s Hospice, Chancery Road, Chorley, PR7 1DHYou can also read
