LAM Action Fundraising Pack - LAM ACTION Supporting women with Lymphangioleiomyomatosis
←
→
Page content transcription
If your browser does not render page correctly, please read the page content below
LAM Action
Fundraising Pack
LAM ACTION
Supporting women with
Lymphangioleiomyomatosis
LAM Action Fundraising Pack 2019 1
LAM ACTION
Supporting women with
Lymphangioleiomyomatosis
Contents
About LAM and LAM Action 03
A Personal Story 05
Fundraising
Practical Issues 06
Tips for Maximising Funds Raised 07
Press Coverage 07
Fundraising Case Study 08
Top Fundraising Ideas 09
Fundraising Ideas for the Workplace 10
Where Does Your Fundraising Money Go? 11
Contact Details 12
LAM Action Merchandise for Supporters 12
Withdrawal Through Injury or Illness 13
One Final Tip 13
Forms
LAM Action Gift Aid Form 14
LAM Action Sponsorship Form 15
LAM Action Fundraising Pack 2019 2
LAM ACTION
Supporting women with
Lymphangioleiomyomatosis
About LAM and LAM Action
We need funds to combat LAM through a combination of research and support to those with the disease and their
families. This note gives more information on how the sponsorship monies raised by you will help
WHAT IS LAM (lymphangioleiomyomatosis)?
LAM is a rare disease that occurs almost exclusively Airways
blocked
Lung Collapsed
in women – around 7 women in every million – and is Healthy lung
tissue
Airways
cysts
by cysts lung Pleural
covering
usually diagnosed during childbearing years.
LAM predominantly affects the lungs, where it causes
excessive growth of smooth muscle cells which
progressively destroy lung tissue and erode lung
function. LAM is a progressive disease, but the rate Pneumothorax: Air leaks
from lungs into
surrounding pleural space
at which it progresses varies considerably. Although
research is ongoing, currently there is no cure for LAM Normal Lungs Lungs With LAM
and little effective treatment. For some women lung
transplantation is their only means of survival.
As it is so rare, women who are newly diagnosed are unlikely to know anything about LAM or have met anyone
else with the disease.
WHAT HAPPENS TO WOMEN WITH LAM?
Most women with LAM experience breathlessness, particularly on exertion, which eventually impacts their
ability to perform normal, day-to-day tasks. Over time, many women require supplemental oxygen. Other
symptoms of LAM may include a collapsed lung, chest pain, cough or fatigue. Women often go undiagnosed
for years, and are frequently misdiagnosed with asthma, bronchitis or emphysema. Many women with LAM
also have benign kidney tumours called angiomyolipomas. Since LAM occurs almost exclusively in women and
generally occurs before the menopause it is thought to be influenced by female hormones such as oestrogen
which may accelerate the disease.
WHAT TREATMENT IS AVAILABLE?
There has been significant progress in understanding LAM in recent years, but there is still no cure for LAM.
However there is now evidence to show that one drug (sirolimus or rapamycin) can slow the rate of decline
in lung function and reduce the size of the kidney tumours. Rapamycin commonly causes side effects, needs
careful monitoring and is not appropriate for all women. At present rapamycin is mainly prescribed for women
with more severe LAM and those with milky (chylous) fluid around the lung.
LAM ACTION
As the UK registered charity focussed on LAM, LAM Action plays a crucial role in helping to ease the sense
of isolation experienced by women with LAM. We also ensure that accurate information about LAM is readily
available; provide ongoing support to women with LAM and their families; foster strong links with the medical
profession and other LAM organisations around the world; and raise funds for research.
SOME KEY ACHIEVEMENTS
LAM Action -
• hosts a private email support group known as LAMLine
• provides fact sheets for women diagnosed with LAM and doctors looking after them
• produces a regular newsletter – LAMpost
• maintains a website – www.lamaction.org
• holds an annual meeting for its members
• facilitates regional support groups of women with LAM
• helps fund scientific research conducted at Nottingham University
• maintains strong links with other LAM groups around the world
• enjoys the support of our patron, the actress Juliet Stevenson
LAM Action Fundraising Pack 2019 3
LAM ACTION
Supporting women with
Lymphangioleiomyomatosis
Medically -
• LAM Action has always been supported by the respiratory group at Nottingham University
• European Respiratory Society guidelines for clinical care of women with LAM were created several years ago
• In 2011, the National Centre for LAM was established in Nottingham to provide clinical care for women with
LAM and coordinate scientific research into the disease. Although independent from LAM Action, those with
LAM are clear beneficiaries of the centre and feedback from those who attend the centre has been very
positive.
As a result of trials in the UK and USA of the drug rapamycin for the lung and renal manifestations of LAM,
rapamycin was approved as a treatment for those with moderate to severe LAM in 2011.
FINANCE
In a typical year LAM Action’s revenue approximates £58-75,000. Most of our revenue comes from donations
and fundraising initiatives from women with LAM and their supporters through large events such as the London
Marathon and Ride London, and through many smaller, individual fundraising events.
WHY DO WE NEED TO RAISE MONEY?
There are three good reasons:
1. to pursue basic research to find the cause of LAM
The current focus of research funded by LAM Action is on understanding how LAM cells interact with other
cells, and the mechanisms by which their interactions lead to lung destruction.
2. to carry out research to see which treatment is best, and follow through with treatment trials
A few years ago, in Nottingham, LAM Action jointly funded (with the British Lung Foundation) only the second
randomised clinical trial of a possible treatment. Progress in our understanding of the science behind LAM
means there are many ideas for further drug treatment trials and biomarker studies. However, these trials and
studies need funding and need those with LAM to participate; both present challenges in a rare disease such
as LAM.
3. to provide continued and better support for women with LAM
HOW WILL THE MONEY BE SPENT?
• LAM Action continue to fund one part time researcher at Nottingham and have previously part-funded a PhD
student, as well as part-funded an important trial and contributing to the cost of laboratory consumables. The
charity has also recently approved bridging funding for a post-doctorate researcher who will be between
grants later in 2018.
• Whilst the majority of our revenue goes toward research, we do have some overhead costs, such as the
salary of a part-time coordinator, professional fees and costs associated with our annual meeting.
We greatly appreciate all efforts to support LAM Action and research into this rare and distressing disease.
Cheques, payable to LAM Action, should be sent to:
LAM Action
Nottingham Voluntary Action Centre
7 Mansfield Road
Nottingham NG1 3FB
Donations also can be made online via the Virgin Money Giving website:
http://uk.virginmoneygiving.com/charity-web/charity/finalCharityHomepage.action?charityId=1005960
or the JustGiving website:
www.justgiving.com/lamaction/donate
LAM Action Fundraising Pack 2019 4
LAM ACTION
Supporting women with
Lymphangioleiomyomatosis
LAM - a Personal Story
I’m delighted to hear that you will be raising funds for LAM Action – thank you very much indeed! I thought you
might find it interesting to hear my own experience with LAM, to give you a better idea of what and whom you’re
doing it for.
I was diagnosed with LAM in 1991, when I was 27. In the early years, it did not affect me and I remained very fit
and active, but as time went on my condition worsened and I became increasingly breathless. This had a huge
impact on the lives of me and my husband. One by one, we had to give up our favourite activities – travelling,
tennis, golf, going out for dinner. By autumn 2003, I was on oxygen 24 hours a day and everything was an effort
– talking, eating, dressing, sleeping. Even simple things like walking from the front door to the car or making a
cup of tea were extremely difficult because of my lack of breath. I’m naturally an energetic and sociable person,
but was unable to be either. Not only was it frustrating to be so restricted, I was deteriorating so rapidly that it
was very frightening.
However, in February 2004, I had a single lung transplant. Thanks to the donor, their family and the wonderful
team at the Freeman Hospital in Newcastle, my life since then has been absolutely transformed.
The months immediately after the operation were quite tough, but I was amazed how immediately I felt the
benefit. Leaving hospital was very emotional – I felt like a new woman! It really was a miracle; three weeks after
the operation, I was able to walk outside for an hour. Since then, I’ve slowly got fitter and stronger, and now I can
literally walk for miles. I’ve been working hard at my fitness and stamina, and am now able to walk quite long
distances. In August 2004, I was able to go on my first proper holiday for years with my family. I have two young
nephews, and it was wonderful to be able to keep up with them for the first time - I was even able to go canoeing
with the older one! Then in the autumn, seven months after my transplant, I returned to work part-time. More
recently, I’ve been golfing and skiing again and I’ve even been learning to rollerblade. Everyone around me is
amazed and delighted with my transformation – it’s incredible!
However, I’m acutely aware that I’ve been very lucky. LAM is a horrible disease, and the efforts of LAM Action
in supporting affected patients and doing research into the disease are very worthwhile. I’m thus hugely
appreciative of your support for the charity.
Gill Hollis
Gill Hollis pictured far left with Professor Simon Johnson of the National Centre for LAM Clinical Care (back row, left) and
Professor Paul Corris of the Freeman Hospital Newcastle (back row right), along with some of the LAM Patients who have received
lung transplants.
LAM Action Fundraising Pack 2019 5
LAM ACTION
Supporting women with
Lymphangioleiomyomatosis
Fundraising
Obviously, in addition to enjoying the experience
of participating in your chosen event, we hope that
you’ll be able to raise as much sponsorship money
for LAM Action as possible! You will see better
results if you plan your fundraising efforts and start
sooner rather than later. To help you do this, we’ve
put together some guidelines and tips.
PRACTICAL ISSUES
There are two main ways of collecting sponsorship
money – either via online donations (credit and debit
cards) or sponsorship forms (cash or cheques).
1. ONLINE DONATIONS
The advantages of online giving & your own fund-raising webpage
Online giving is hugely popular, and it is now very simple to set up your own dedicated fund-raising webpage
(details below). This method of fundraising has many advantages for the donor, the charity and you–
• It helps you reach a far wider audience – it is simple to email people the link to your webpage.
• Administration is much easier for both you and us – the donations are collected automatically and,
assuming the donor ticks the relevant box and is a tax payer, Gift Aid is also automatically added back to
the sums raised.
• People seem to be more willing to donate larger sums via their credit card than they would pledge on a
sponsorship form!
How to set up your own fund-raising webpage
LAM Action has accounts with Virgin Money Giving and JustGiving, and it is simple to set up your own fund-
raising webpage. We receive slightly more from donations made via Virgin Money Giving than JustGiving, but
we are happy for you to use whichever site you prefer.
Virgin Money Giving have simple click through instructions to set up your page.
Go to http://uk.virginmoneygiving.com/giving/ and click on ‘Start Fundraising’ and you’ll be up and running
in no time.
If you access the JustGiving website through the LAM Action link, it will populate the form with the LAM Action
charity details.
• Go to www.justgiving.com/lamaction
• This takes you to the general LAM Action page on JustGiving, and gives you two options in the top right corner
– “donate” or “fundraise for us”. Click on the orange “fundraise for us” button and follow the instructions to
set up your page
2. SPONSORSHIP FORMS
Alternatively, you can get sponsorship through the traditional “sponsorship form”. Enclosed at the back of this
pack is a sponsorship form. This can be photocopied, but we can send you additional copies on request.
If possible, it would be preferable if all the sponsorship donations made by cash or cheque could be paid
directly to you in the first instance. You would then write a single cheque or set up a bank transfer to LAM
Action after the event. The reason for this preference is that, from an administrative point of view, it is much
easier for LAM Action to cash and account for a single cheque, than deal with lots of small cheques.
LAM Action’s bank details are:
Payee: LAM Action / Bank Name: CAF Bank / Sort code: 40-52-40 / Account number: 00030584
REMEMBER GIFT AID!
Gift Aid is extremely valuable to us. Gift Aid is a simple scheme that enables charities to reclaim the basic
rate of tax on donations received from UK taxpayers – currently 25p for each £1 given. Thus, if we can reclaim
this money, it can augment the total amount you raise quite substantially! However, in order for us to do this, you
must ensure that your sponsors do the following –
LAM Action Fundraising Pack 2019 6
LAM ACTION
Supporting women with
Lymphangioleiomyomatosis
• If donating online through your webpage, tick the relevant Gift Aid box
• If donating through the sponsorship form, with cash or cheques then sponsors need to give their full
name and address, including postcode, the date of their donation (the date is needed so the Inland
Revenue know which tax year applies), and tick the Gift Aid column on the sponsorship form. If any of
this information is missing on sponsorship forms then we can’t claim the tax back! You then need to send
us the sponsorship forms and the cheques for the total of the sponsorship you have raised offline.
Online sponsorship via Virgin Money Giving and JustGiving is the simplest way for supporters to sponsor you
and the tax reclaim is then done automatically but if you are using a sponsorship form LAM Action can only
claim the tax back on taxpayers’ sponsorship if we have their NAME and full HOME address, the DATE when the
donation was made and the Gift Aid box is ticked.
Please note that sponsors who tick the Gift Aid column must pay an amount of income tax and/or capital gains
tax at least equal to the tax that the charity reclaims on the donation in any one tax year. Thus, donations from
non-wage-earners and others on low income may not be eligible for Gift Aid. However, if your sponsors are
tax-payers, then do encourage them to tick the Gift Aid column on the sponsorship form or the box when
donating online!
Lastly, if any of your sponsors pay tax at the higher rate, they can claim the difference between the higher rate of
tax 40% and/or 45% and the basic rate of tax 20% on the total ‘gross’ value of their donation to LAM Action. For
example, on sponsorship of £100 LAM Action can reclaim an extra £25 for the charity and your sponsor can reclaim
£25 (if he/she pays tax at 40%) or £31.25 (if your sponsor pays tax at 45%). As a result, a £100 sponsorship worth
£125 to LAM Action only actually need cost your higher tax rate sponsor £75 or £68.75. LAM Action also participates
in the new Inland Revenue scheme ‘Giving through the Self-Assessment Return’ which enables sponsors who are
higher tax payers to choose to nominate LAM Action to receive their tax repayments as a donation. The code for
LAM Action is HAT79QG and further details can be found at www.hmrc.gov.uk/index.htm.
TIPS FOR MAXIMISING FUNDS RAISED
• Learn as much as possible about LAM Action. The pages in the section above should give you sufficient
background information, but additional information is on the LAM Action website (www.lamaction.org)
• Set up your own fund-raising webpage. “How to” details are above.
• Use every outlet possible to publicise your plans. For example, consider –
- Sending an email to all the contacts in your address book both to friends and to work colleagues and
contacts, with a link to your Virgin Money Giving or JustGiving webpage.
- Using noticeboards at work, your gym and other places to post details of your plans, together with
copies of the sponsorship form and/or links to your Virgin Money Giving or JustGiving webpage.
- Putting a note in your Christmas cards, again with a link to your Virgin Money Giving or JustGiving webpage.
- Getting press coverage to increase publicity about your plans. LAM Action works with a public relations
agency who can help you in this; details follow below.
Please return all sponsorship monies, sponsorship forms and Gift Aid forms to LAM Action (see
Contact Details)
PRESS COVERAGE
LAM Action works with a public relations consultancy, Empica Ltd., who are helping to raise awareness of both
LAM and the work of LAM Action. Press coverage – particularly in local papers – can help you gain exposure,
and thus directly or indirectly increase your sponsorship funds. Whilst they cannot help directly with fund-
raising, the team at Empica can help advise you how to get the press interested in your story, and give contact
details for your local press.
LAM Action’s main contact at Empica is –
Judith Skorupski
Tel: 020 8983 0775
Email: judith@empica.com
By way of example, a number of people have run the London Marathon for LAM Action over the years, and many
of the most successful runners – at least in terms of fund-raising – got a considerable amount of press coverage
with the help of Empica. Such press coverage was a major contributor to their fund-raising (and also helped
raise awareness of LAM at the same time).
Thus, we encourage everyone participating in events to consider how PR might help in your fund-raising efforts,
and to contact Judith!
LAM Action Fundraising Pack 2019 7
LAM ACTION
Supporting women with
Lymphangioleiomyomatosis
Case Study
Follow the example of Darren Whitney. Darren’s friend Sarah Wood was diagnosed with LAM in 2010 and
after he heard the news Darren decided to run in the 2011 London Marathon, raising over £4,000! His strategy
was as follows –
• He set up a page on JustGiving. “The JustGiving site was fantastic; really easy to set up and so much easier
than collecting money.”
• Darren and his partner Laura emailed everyone they knew, as did Sarah and her husband John, emailing
all their work colleagues, friends and family, with a link to the JustGiving site.
• They gave sponsorship forms to parents and other friends – to cover people who didn’t have email.
• They designed a poster which they displayed at all their workplaces, and asked friends to do the same.
• Their local paper, the Watford Observer, did a front page article on them around the time of the
marathon. A copy of the press cutting on Darren and Sarah is attached below.
Looking at the article about Darren Whitney there are several points which you should bear in mind when
seeking press coverage for your own efforts:
1. This is just one article but obviously the more mentions you can get in local press, radio etc ….the better.
Similarly, the earlier you start your campaign the better.
2. Once you get Press interested always keep reminding people to include a mention of “How people can
help”. Ask journalists in particular to mention the LAM Action website address. There are details there on
how to donate and links to Virgin Money Giving and JustGiving, as well as more information about LAM
itself.
3. A good photo alongside any article is very powerful indeed. The photo with Darren’s article is an excellent
example – cleverly linking all the threads – the runner, LAM patient, family, oxygen dependency. The
headline is also designed to gain the reader’s attention and to make them want to read more about the story.
LAM Action Fundraising Pack 2019 8
LAM ACTION
Supporting women with
Lymphangioleiomyomatosis
Top Fundraising Ideas
• Bag packing/collection at local supermarket. Rope in a few friends. You will need to get permission from
the supermarket manager, and book in a day for you to come in. You will need to contact them as soon as
possible as they book up in advance.
• Quiz night at local pub. If your local pub already holds a quiz night, ask if the proceeds can be donated to
LAM Action. You will need to advertise this on posters beforehand, so that people will dip in to their pockets
more readily on the night! If your pub doesn’t already hold a quiz, speak to the landlord about your idea. If
you choose a mid-week night the quiz should bring in more business for the pub, so ask the landlord if he
will throw in a basic buffet for free and/or donate a percentage of the bar takings.
• Do jobs for your neighbours. If you are good at gardening or decorating or washing cars you can offer
these services to your neighbours in return for a donation or set fee per hour.
• Charity Ball/Dinner/Disco/Themed Party. Everybody loves the chance to dress up a bit and let their
hair down, especially when it’s for a good cause - a black tie ball, a dinner dance, a 70s or 80s disco night
or a fancy dress party would all be popular, while wine tastings or gourmet nights would all be in the best
possible taste!
• Auction of Promises/Raffles. Ask your local businesses if they could donate some prizes to be auctioned
or raffled, i.e. day at a Spa, dinner for two at a restaurant. Write to sporting personalities and professional
clubs to ask for autographed kit or photos that can be put under the hammer.
• Bring and Buy Sale / Car Boot Sale / Cake Sale / Craft Fair. Got lots of unwanted stuff in the loft or garage
you’ve been meaning to shift for ages? Why not sell it at a Bring & Buy Sale or Car Boot and donate the profits.
Good at making cakes or handicrafts? Arrange a Cake Sale or Craft Fair at your local hall, charge a small
entrance fee to cover the hall costs and then everything you sell is for the charity.
• Bucket collection. Grab some buckets and take some friends along to your local music venue or football
club to collect before and after a concert or match. You can also collect outside your local library or public
places. You will just need to ask permission before you do so and check with your local council whether they
have any restrictions.
• Musical/Comedy Evening. Gather some talented musicians /singers or comedians for an evening’s
entertainment in the local hall. Sell tickets for the event and charge for drinks and snacks in the interval.
• eBay charity sale. Find some things to sell on eBay or Gumtree and put a charity banner beside it so that
people know they are donating to a good cause.
• Race Night. Organise an event and show a film of a horse race with eight to ten numbered horses. Guests bet on
the horse they think will win. Films come sealed so nobody knows the outcome in advance. You run the betting
desk and take a percentage of the profits. There are several companies on the internet who provide the films.
Other ideas include:
• Coffee Morning/Afternoon Tea for your friends and neighbours, ask them for donations
• 3 Peaks Challenge/Ridgeway National Trail/Hadrian’s Wall Path/London to Brighton sponsored walks
• Ask local businesses/organisations to choose LAM Action as their charity of the year
• Donations from talks at groups
• Collection tins placed at your local shops
• Ladies Night with makeup/fashion stalls etc.
• Lottery Bonus Ball Scheme – get 59 members, £1 per ball weekly, bonus ball wins £40, £19 to LAM Action,
over a year that’s almost £1,000 raised.
• Corporate Sports Day – challenge other companies to tug of war/egg&spoon/sack race etc. £50 for a team of 10
• Non uniform days in schools, pupils donate a pound
• Donations instead of birthday or wedding presents
• Head shaving
• Recycling ink cartridges
• Garage/front garden sales of unwanted items
• Sponsor a brick in a new building
• Christmas Carol service
• Guess the amount of sweets in a jar
• Bottle/chocolate tombola – get local shops to donate bottles or short dated confectionery
LAM Action Fundraising Pack 2019 9
LAM ACTION
Supporting women with
Lymphangioleiomyomatosis
Fundraising Ideas for the Workplace
Not a bad place to try some fund raising ideas, you even have a captive audience to work with!
• Have a dress down day at work: could be themed e.g. school uniform, pyjamas, or bad taste - bad hair, bad
tie, the worst shirt. Charge £2 per person with a bottle of champagne for the best or worst outfit.
• Director service: Sponsor the directors to dress as waiters and waitresses and serve lunch to staff members.
• Cycle or walk to work and put the money you would otherwise spend on transport towards your fund - and
reduce pollution at the same time!
• Sponsored lunch run: Offer to pop out and buy lunch for your busy colleagues. At 20p a go, five lunches a
day will raise over £20 in a month.
• In those workplaces where there is a staff canteen, ask people to bring sandwiches and give the money
saved as a donation.
• A cake sale at work every Friday - make a regular thing of it so the people plan ahead.
• The cake divide: Bake or buy your cake, divide it into eight slices and sell them at 50p a shot. In six months
you’ll have raised over £100 and won the undying love of your workmates.
• Guess the weight of the cake/number of sweets in the jar competition.
• Office tuck shop: Buy bargain packs of chocolate bars, crisps and sweets, then set up a stall at work and sell
them to your colleagues. Charge them a bit more than the usual retail price. This has been known to raise
about £50 per month in an office of 120 particularly peckish people!
• Weekend meat and wine draw for joints of meat and bottles of wine to be won every Friday - perfect for the
weekend! Towards the end of the week, sell raffle tickets for 20p each or £1 for a strip of five. Meat and wine are
popular, but you could include chocolate and flowers too. The first ticket drawn gets the most expensive prize,
second gets the second priciest, etc. In a big office, different departments can run the draw on a rota basis.
• Jars of money: If you work for a large organisation, place a glass jar for coins/small change in each department
and give a prize at the end of the collecting period to the department that has donated the most.
• Pocket Money: Ask everybody to donate an hour’s pay or request that they come into work with only a pound
coin in their pocket, this money to be given to LAM Action.
• Party Pounds: Persuade the organisers of the office Christmas Party to add a pound to the cost of each ticket
and donate the extra money raised.
• Desk Sale: We’ve had car boot and garage sales, so why not stock your desk with stuff you don’t want anymore?
• Night In! Persuade colleagues who frequent pubs and clubs not to go out on one Friday or Saturday night and
to donate the money they save.
• Sponsored stairs: Do you work in a high-rise building? If the answer is yes, get your colleagues to sponsor
you to use the stairs instead of the lift for a set period.
• Swear box: Perhaps 20p for each offence. Alternatively make your colleagues cough up every time their
mobiles ring in the office.
• Sweepstake: Organise a Premiership, Wimbledon or Grand National sweepstake at work - betting on
individual matches, players or riders.
• ‘Charity of the Year’: If your company has one of these and the staff have a say in the selection process,
nominate LAM Action and persuade your colleagues to do the same.
• E-mail contacts: Contact everyone in your address book and explain what you are doing and that if everyone
gives a small amount you will reach your target.
LAM Action Fundraising Pack 2019 10
LAM ACTION
Supporting women with
LymphangioleiomyomatosisWhere Does Your Fundaising Money Go?
Most of the money that you raise for LAM Action goes
toward research involving LAM. Research in a laboratory
is an expensive business, with high costs driven by the
requirement for specialised equipment and reagents.
Below is an outline of the direct costs involved in bench
research, and the example of costs associated with a single
experiment.
Personnel
The main costs associated with research are personnel
costs.
Each project requires at least one experienced researcher
known as a postdoctoral research fellow, or ‘postdoc’. The
Personnel
postdoc will design and perform experiments, analyse costs
data, and prepare publications and presentations. (per
PhD students also perform research, under supervision, annum)
Postdoctoral
as they complete the work for their thesis. Research Fellow PhD Student
£35,000 £14,000
Materials
The materials used in our research – which we call consumables – are expensive. We need single-use sterile
plastics for tissue culture, specialised medium to grow our cells, drugs and antibodies which cost hundreds of
pounds for a fraction of a millilitre. We even have to buy extra pure water for our experiments!
Research grants normally include at least £13,000 per annum for consumables.
Equipment
Even the simplest biological research equipment tends to cost hundreds or thousands of pounds. Something as
basic as a centrifuge can cost £2000, and you cannot do any molecular biology without one. A single microscope
objective lens can cost £700.
Just keeping some of our larger pieces of equipment involves running costs of thousands of pounds a year in
service contracts.
How much does this experiment cost?
This is a very simple experiment where we
investigate the expression of some proteins in
our cells to help us decide what type of cells
they are. We use specific antibodies to detect the
proteins.
Cell Culture Materials
This includes special medium to grow the cells,
and sterile plastic ware (flasks and dishes): £50
for one experiment.
Antibodies
We need 6 of these, costing around £200 each:
£1200 (though this will be enough antibody for
several experiments!)
Personnel Costs
To perform the experiment, image the cells and
analyse the data: around £100.
General Lab Consumables
Things like pipette tips and buffer solutions that
we use in all of our experiments: about £50 for
one experiment.
Total cost = around £1,400
LAM Action Fundraising Pack 2019 11
LAM ACTION
Supporting women with
LymphangioleiomyomatosisContact Details
LAM Action
Website – www.lamaction.org
Please send all sponsorship monies, Sponsorship forms & Gift Aid forms to –
Jill Pateman
LAM Action
Nottingham Voluntary Action Centre
7 Mansfield Road
Nottingham NG1 3FB
Other LAM Action contacts
David Mercer
Tel: 01306 731466
Email: david.mercer@office.lamaction.org
Julie Mullins
Tel: 01306 731365
Email: julie.mullins99@btinternet.com
Empica (PR)
Judith Skorupski
Tel: 020 8983 0775
Email: judith@empica.com
LAM Action Merchandise for Supporters
Friends and family of those raising money for LAM Action in a charity event often ask us if there are LAM Action
Tshirts or sweatshirts available that they can wear on the day of the event to show their support. We have a wide
range of good quality merchandise available through our online shop hosted by Cafe Press. Please see the link
for more details: http://lamaction.org/about-lam-action/online-shopping/
If you would prefer to have your own Tshirts or other items of merchandise printed locally to you, we can supply
you with a high quality logo or complete design on request.
LAM Action Fundraising Pack 2019 12
LAM ACTION
Supporting women with
LymphangioleiomyomatosisWithdrawal Through Injury or Illness
Whilst we obviously very much hope you will not need to withdraw from the charity event in which you are
planning to take part, there may be circumstances beyond your control which leave you no choice. However our
charity places are not free. LAM Action has to pay for them in advance. The current cost for the London Marathon
is nearly £300 per place. Please give us as much advance notice as possible if you are likely to withdraw. Early
notice of withdrawals means we have more time to try to find and enter a replacement prior to the organisers’
deadline for replacement entries.
If you find during training that you are nursing a long-standing injury or have an illness which you feel might not
clear up and is interfering with your training, please advise David Mercer (david.mercer@office.lamaction.org)
so he can agree a course of action with you.
One Final Tip
…from others.
For the event itself, we recommend that you print, write or stick your first name in big letters on the front of your
shirt so that it is easily readable from 20 yards away.
As a LAM Action participant in the London Marathon, or Ride London you will be provided with a running vest
or cycle shirt with your name on it and a text giving number – so spectators can donate as they watch you run
past and cheer you on when they see your name. If you are taking part in another event or have created your
own challenge please let LAM Action know and we would hope to provide kit with the LAM Action logo on it to
help raise awareness.
GOOD LUCK & THANK YOU!
LAM Action Fundraising Pack 2019 13
LAM ACTION
Supporting women with
LymphangioleiomyomatosisGift Aid Declaration
Please treat as Gift Aid donations all qualifying gifts of money made
today in the past 4 years in the future
Please tick all boxes you wish to apply.
I confirm I have paid, or will pay, an amount of Income Tax and/or Capital Gains Tax for each tax year
(6 April to 5 April) that is at least equal to the amount of tax all the charities or Community Amateur
Sports Clubs I donate to will reclaim on my gifts for that tax year. I understand that other taxes such
as VAT and Council Tax do not qualify. I understand the charity will reclaim the tax, currently 25p in
every £1, on all donations that I give.
Donor’s details
Title ............................. First Name or Initial(s) ..................................................................
Surname .............................................................................................................................................
Full Home Address ........................................................................................................................
........................................................................................................................
........................................................................................................................
Postcode .............................................................................................................................................
Signature .......................................................................................... Date ..................................
Please notify LAM Action if you:
Want to cancel this declaration
Change your name or home address
No longer pay sufficient tax on your income and/or capital gains.
If you pay Income Tax at the higher or additional rate and want to receive the additional tax relief due to
you, you must include all your Gift Aid donations on your Self Assessment tax return or ask HM Revenue
and Customs to adjust your tax code.
Please return this form to:
LAM Action, Nottingham Voluntary Action Centre,
7 Mansfield Road, Nottingham NG1 3FB LAM ACTION
Registered Charity no.1167610 (England & Wales) LAM ACTION
Supporting women with
LAM Action Fundraising Pack 2019 14
Lymphangioleiomyomatosis
Thank you for your support Supporting women with
LymphangioleiomyomatosisEvent: ......................................................................................................................
Date: ..................................................................................................................... LAM ACTION
Supporting women with
Lymphangioleiomyomatosis
Name of participant: ........................................................................................
Home address: ......................................................................................................................................................................
Taking part for LAM Action, Registered Charity no.1167610 (England & Wales)
PLEASE SPONSOR GENEROUSLY: LAM Action is a charity which raises money for LAM. LAM (or to give it its full name lymphangioleiomyomatosis) is a rare disease which
only affects women. The condition mainly affects the lungs which are progressively destroyed over a number of years. This leads to increasing breathlessness, lung collapse
and can be fatal. Currently there is no cure for LAM and little in the way of treatment.
If I have ticked the box headed ‘Gift Aid? ü’, I confirm that I am a UK Income or Capital Gains taxpayer. I have read this statement and want the charity or Community Amateur
Sports Club (CASC) named above to reclaim tax on the donation detailed below, given on the date shown. I understand that I must pay an amount of Income Tax and/or Capital
Gains Tax in the tax year at least equal to the amount of tax that all the charities and CASCs I donate to, will reclaim on my gifts for that tax year. I understand that other taxes
such as VAT and Council Tax do not qualify. I understand the charity will reclaim 25p of tax on every £1 that I have given.
Date Received
Full Name Home Address Amount Amount Gift Aid? (day/month/year)
(BLOCK CAPS) (essential for Gift Aid) Postcode Pledged Given (Please tick) (essential for Gift Aid)
__ /__ / ___
__ /__ / ___
__ /__ / ___
__ /__ / ___
__ /__ / ___
__ /__ / ___
__ /__ / ___
__ /__ / ___
__ /__ / ___
TOTAL DONATIONS RECEIVED
Sponsors should please make cheques payable to the participant. Once all money is collected, participants should send a cheque
LAMforACTION the total made payable to
LAM Action Fundraising Pack 2019 15
LAM Action and copies of completed sponsorship forms to: LAM Action, Nottingham Voluntary Action Centre, 7 Mansfield Road, Nottingham
Supporting women with NG1 3FB
LymphangioleiomyomatosisYou can also read
