PATHWAYS TO ADULTHOOD PART-1 - The future is not something we enter. The future is something we create.
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PATHWAYS TO
ADULTHOOD PART-1
The future is not something we enter.
The future is something we create.
May 11, 2021
Texas Parent to Parent
Pathways To Adulthood Team
Goal for the PTA Series
The Pathways To Adulthood Series is
designed to provide participants with a
comprehensive overview of strategies,
resources and things to consider
as you begin to create a good life
with and for your child after graduation.
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.
Texas Parent to Parent
presents
PATHWAYS TO ADULTHOOD
Learn new ideas and information
about transition
We can help you getting started on
planning for your youth's adulthood.
Join our Three-Part Pathways to
Adulthood series via Zoom!
M a n a g i n g E m o t i o n s - T h e U p s a n d D o w n s of U n c e r t a i n
Times
Tuesday L o o k i n g A h e a d - W h y H a v i n g a P l a n is Impor tant
M a y 11, 2021 C r e a t i n g a Vision - M ovi ng F r o m Fea r to a n A c ti on
1:30 - 3 : 0 0 p m Oriented Plan
https://us02web.zoom.us/meeting/registe
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T r a n s it io n P l a n n i n g - P r e p a r i n g for A d u l t h o o d
Part Two
Lif e L o n g L e a r n i n g - P o s t - S e c o n d a r y E d u c a t i o n
E m p l o y m e n t F ir s t - M a k i n g a C o n t r i b u t i o n T h r o u g h W o r k Tuesday
A P l a c e to Ca ll H o m e M a y 18, 2021
https://us02web.zoom.us/me eting/regist e
1:30 - 3 : 0 0 p m
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SSI/SSDI
Part Three L o n g T e r m Services a n d Supports (LTSS)
Thursday T r a n s f e r of R i g h t s - G u a r d i a n s h i p a n d A l t e r n a ti v e s
M a y 2 0 , 2021 Medical Transition
1:30 - 3 : 0 0 p m
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Pathways To Adulthood
Part One:
▪ Managing Emotions - the ups and downs of
uncertain times
▪ Looking Ahead - why having a plan is important
▪ Creating a Vision - moving from fear to an action
oriented plan
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.
TxP2P - Transition Team Pathways To Adulthood Team Thank You To Our Partners… ▪ Cynda Green ▪ Cindi Paschall ▪ Dora Saavedra-Bilingual ▪ Adriana Valadez _______________________________________________________________ Contact Information: Email: cynda.green@txp2p.org Phone: 737-484-9045 TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.
Managing Emotions
Fear will try to keep you from
taking that first step.
Don’t give in to fear, DO IT afraid.
~ Joyce Meyer
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.
Managing Emotions
Common Emotional Obstacles…
__________________ ▪ denial
BIG ▪ discouragement – lack of confidence
journeys ▪ fear of the unknown
begin with ▪ feeling overwhelmed or burned-out
small steps.
______________ ▪ lack of resources and/or options
▪ limited exposure of possibilities
▪ time to think about transition later
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.
Facing Transition
Rosemary Alexander, PhD
Rosemary Alexander • Rosalba Colleros • Gail Dalrymple
Amy Litzinger • Linda Litzinger • Caroline Nelson • Susan Prior
Facing Transition Video
What does it take to move forward?
▪ change in family dynamics
▪ new opportunities
▪ school request
▪ youth request
“The best way to get started is to take the first
step with dream empowered optimism.”
~Debasish Mridha
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.
A Look Ahead
It’s better to look ahead and
prepare, than to look
back and regret.
~ Jackie Joyner Kersee ~
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.What Do We Know About The Future?
it is coming and will be
Even though here before you know it
the future
seems far
away it is it is yours to create –
actually dream big
beginning
NOW!
it happens as a result of
what you do TODAY!
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Why Create a Vision?
Your vision determines Without a vision you may Your vision gives you
your needs instead of end up somewhere direction – it’s the
having your needs else – somewhere you don’t compelling reason why you
determine your vision. want to be. make the decisions you make.
divert
a crisis
Start Now!
It’s never too early & it’s never too late!
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.What’s In Your Toolbox?
▪ assistive technology (AT)
“Today is a new ▪ community resources
▪ continued learning opportunities
day that has been
▪ guardianship or alternatives
handed to you for
▪ knowledge of options
shaping. You have ▪ natural supports
the tools, now get ▪ person-centered planning
out there and ▪ publications
create a ▪ school transition services
masterpiece.” ▪ self-determination
~ Steve Maraboli, The Power of One ▪ Texas Parent to Parent – PTA
▪ web-based resources
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.What’s In Your Toolbox?
Community Resources Natural Supports
▪ Government Funded Programs Natural Supports refer to the
support and assistance that
▪ Information Sources
naturally flows from the associations
▪ Long-Term Services and Supports and relationships developed in
▪ Non-Profit Organizations natural environments such as school,
▪ Parent Groups family, work and community.
▪ People With Disabilities
Natural supports can be
▪ Professionals a “who” or a “what.”
▪ Social Media
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.What’s In Your Toolbox?
Publications Self-Determination
▪ Books, Guides Self-determination means
A Good Life – for you and your taking control and
loved one with a disability
responsibility for one's life.
Fostering Self-Determination
Among Children and Youth with It is about being in charge,
Disabilities—Ideas from PARENTS
for PARENTS but is not necessarily the
▪ Newsletters same thing as self-sufficiency
or independence.
▪ Research
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Independence is not measured
by the number of tasks we can
do without assistance, but by
the quality of life we can
lead with assistance.
~ American’s with Disabilities Act of 1990
What Are You Working For?What’s In Your Toolbox?
Knowledge of Options: Where will my child…
Live? individualized housing, shared residence, family home, state funded
residential options, privately funded communities, Housing Choice Voucher,
cooperative housing, co-housing, family consortium
Learn? general education mainstream, special education classroom, CTE,
courses, CBVI, homebound, college, trade-school, auditing classes, non-credit
courses, community interest-based classes, community college
Work? sheltered or integrated employment, apprenticeship, self-employment
or entrepreneurship, supported employment, customized employment,
volunteerism
Spend Leisure Time? day-hab, community activities and classes, specialized
programs, non-specialized programs, special interest groups, faith events
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.What’s In Your Toolbox?
What relationships - social capital - will my child have? family,
friends, natural, paid, intimate, co-workers, acquaintances
Is a guardianship needed or will an alternative option work?
guardianship, supported decision making agreement, representative
payee, power of attorney, dual power of attorney and many others…
Can independence be increased through assistive technology at
home or school, in the community or at work?
What about long-term services & supports? Is your child on the
“interest lists?” Do you know who to contact? Different programs
available? What about service options, eligibility requirements,
service rates of pay and wait time?
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Person-Centered Planning
“Person-Centered Planning can move
you (and your child) from the paralysis of
fear to an action-oriented plan with hopes
and dreams for the future.”
~ Texas Project First
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Person-Centered Planning - PCP
Person Centered Planning is an ongoing
discovery process used to create an action
oriented plan that honors a person’s own
vision for their life now and in the future
(with input from their circle of support)
and accounts for those things that are
important to and important for them.
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.“When Person Centered Thinking is fully embraced,
we abandon the idea that a person has to
function at an arbitrary standard of ‘normal’ in
order to make choices about their own life.
We begin to look beyond predictable ways of
choice-making and being in control, and in doing
so, begin to realize the achievable goal of
providing all people with an authentic
opportunity to create a self-directed life.”
~ H/T to Norman KuncWhat Do You Believe?
Strongly Disagree Strongly Agree
1. I believe my child can communicate
2. I believe my child can learn
3. I believe my child can contribute to society
4. I believe my child can live a self-determined life
5. I believe my child can live independently
6. I believe my child can work
7. I believe my child can actively participate in the community
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.“Your belief determines
your action and your action
determines your results, but
first you have to believe.”
~ Mark Victor Hansen
Be a BIG believer!Person Centered Planning - PCP
▪ Person Directed – the person’s desired future is the framework
5 Guiding of all planning, and in defining tolerable risks
Principles
_____________________
▪ Person-Centered – the person and their circle of support, are
the primary authorities on the person’s life direction
“There is
only one ▪ Outcome-Based – the plan helps to identify personal goals
success… based on the person’s SPIN
to be able
▪ Information, Support & Accommodations – the discovery
to spend
your live process identifies supports and services needed to achieve
life in your desired goals and includes a plan that directs the provision of
own way.” these supports and services
Christopher Morley
▪ Ongoing Process – seeks feedback on a regular basis and
will change as needed
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Person-Centered Planning - PCP
System-Centered toward
Person-Centered
▪ plan a life time of programs ▪ create a desirable lifestyle
▪ offer a limited number of usually ▪ community is seen as a rich
segregated programs resource of possibility
▪ relationships are unequal; people ▪ relationships are reciprocal, give
do things ‘for’ others and take
▪ risk is acknowledged as a natural
▪ risk is removed in order to keep
part of life
people safe
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.A Good Life
Service Life Good Paid Life Community Life
│ ‘Important to’ recognized
│ Focus on connecting, building
│
‘Important to’ present
relationships & natural supports
│ │ │
‘important for’ ‘to’ & ‘for’ ‘to’ & ‘for’
addressed present present
no organized closest people active circle
effort to are paid & of support
address family
‘important to’ included in
few real community life
connections
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Person-Centered Planning - PCP
IMPORTANT TO IMPORTANT FOR
happy, fulfilled, content, satisfied & comforted health, safety and valued member of the community
▪ relationships – people to be with Health:
▪ prevention
▪ things to do and places to go
▪ treatment
▪ rituals and routines ▪ wellness
▪ status and control Safety:
▪ environment
▪ things to have ▪ physical and emotional well
▪ rhythm or pace of life being
▪ free from fear
In this video Michael Smull facilitates the discovery of “important to” and “important for” and how to balance the two.
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Person-Centered Planning - PCP
Explores What’s Working − Not Working
provides a
picture of how
things are
right now
analyzes an
issue or
situation across
multiple
perspectives
helps identify
what else we
need learn
or know
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Person-Centered Planning - PCP
Is a Promise to…
▪ “listen” to all forms of communication
▪ focus on actions, when words and actions are in conflict
▪ focus on SPIN - Strengths, Preferences, Interests and Needs
▪ “peel the onion”
▪ think outside the box
▪ act on what a person tells us
▪ be honest – time, uncertainty, conflict
Watch this video to see person-centered planning in action.
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Person-Centered Planning - PCP
confidence
dreams
excitement
exploration
opportunity
purpose
self-discovery
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Person-Centered Planning - PCP
Benefits Person-Centered Approaches
DREAMWORKS
▪ group process ▪
Charlene Comstock-Galagan
▪ fosters dignity and respect ▪ Essential Life Style Planning
The Learning Community
▪ empowering ▪ Vision Building
Kids Together
▪ changes the conversation ▪ MAPS - Making Actions Plans
Forest & Pearpoint
▪ creates social connectedness ▪ PATH - Planning Alternative Tomorrows with Hope -
Forest, O’Brien & Pearpoint
▪ builds on strengths, gifts,
▪ Personal Futures Planning
talents, skills and contributions Beth Mount
In this video, Michael Smull explains what is meant by person-centered approaches, thinking and planning.
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Getting Started
Nothing in life is to be feared,
it is only to be understood.
Now is the time to understand
more, so that we may fear less.
- Marie CurieFirst Steps
Dream - Talk • your child
• immediate and extended family
With • others who know and care about your child
• strengths, preferences, interests and needs
Identify • goals now and in the future
• relationships
Encourage • ADL’s
• safety protocols/what to do in an emergency
Independence • self-determination – S.C.A.R.F.
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.First Steps
Gather • possibilities and options
• programs and the eligibility requirements
Information • types of supports (natural, paid, AT, etc.)
Consider • access life
• increase independence and build self-confidence
Technology • monitor health & safety
Put Your • interest lists (aka the waiting lists)
Child On • Housing Choice Voucher waiting list
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Questions to Consider…
▪ What are my child's strengths/needs?
▪ How does my child communicate wants, needs, desires and dreams?
▪ What choices does my child make currently?
▪ What responsibilities does my child have at home?
▪ Does my child experience natural consequences?
▪ What does my child like/dislike? Interests/hobbies?
▪ What does my child like to do in their spare time?
▪ What experiences has my child been exposed to?
▪ How does my child respond to failure?
▪ In what ways is my child active in community?
▪ What relationships does my child have currently?
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Create and Share Your Vision
What do you want Create your vision, consider all aspects of life
for your child now live - learn – work - leisure - relationships
and in the future?
Share your vision…
▪ relevant family and friends
What is the
▪ ARD/IEP team members
dream? ▪ service providers
▪ medical community
What is the
nightmare? Create a One-Page Profile
A one-page profile is a summary of what’s important to a person
What does your and how to best support them.
child want?
One-Page Profile templates and samples
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.A few things that are What you need to know
important to me… to support me…
✓ coffee. Coffee. COFFEE! ✓ help me when I ask for
✓ living MY life help - $, time, cooking,
seizures, safety
✓ having a job
✓ ask me if I need to step
✓ an ACTIVE social life
down the hall if I cry
✓ the way I look – hair, makeup,
✓ call or text me if you are
clothes going to be late
✓ exercise - going to the gym ✓ talk slowly – allow time for
✓ my family & friends processing
✓ my cell phone ✓ I learn new things faster if
What we love you show me
✓ music & dancing
about Leigh!
✓ lazy days
✓ funny ✓ waking up at my own pace
✓ kind and caring ✓ don’t rush me
✓ fashionista ✓ you understand what I said
✓ loves life
✓ confident and A few things important for me…
✓ seizure meds
outgoing
✓ sleep
✓ speaks up for herself
✓ avoid strobe lights or other flashing lights
✓ persistent
✓ VNS MagnetSupport the Vision
Small steps ▪ hold onto the vision, make it a way of life, a part of every
over time lead decision
to BIG
▪ become aware of and utilize the natural opportunities that
results – some
move toward achievement of the vision
once thought
unattainable.
▪ become aware of and avoid those things that lead away
from the vision
▪ anticipate challenges in the accomplishment of the vision
▪ take a step daily toward making the vision a dream come
true
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Additional Vision Building Resources
RESOURCE RESOURCE DESCRIPTION
FACT Oregon Sample Person-Centered Plans Provides sample Person-Centered Plans. Viewing these sample
plans can help you create your own plan for your child.
PACER Center: Person-Center Planning Provides information and answers who, what, when and why
questions about Person-Centered Planning
Parent Companion Website Provides information about Person-Centered planning and
Person-Centered Planning: A New Model for Planning Services how it can make a difference for your child.
Person-Centered Planning: Texas Health and Human Services (HHS) provides information
Services for You, Guided by You on Person-Centered Planning for individuals who
receive Medicaid Waiver program services.
Texas Project First: Person Centered Planning Provides information about Person-Centered planning and
additional resources.
The relationship map records who is in a person’s life - family,
The Relationship Map
friends, paid support, unpaid support or work colleagues.
Video: Thinking About the Future When You’re An ESC-Region 13 video with Rosemary Alexander
Concerned About the Present
UMKC Institute for Human Development Provides tools for families/individuals to develop a
Charting The Life Course™ vision for a good life
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Pathways to Adulthood 3-Part Series
Part – 2 Part – 3
▪ Transition Planning: ▪ SSI/SSDI
Preparing for Adulthood
▪ Long Term Services and Supports
▪ Lifelong Learning: (LTSS)
Post-Secondary Education
▪ Transfer of Rights - Guardianship
▪ Employment First: Making a and Alternatives
Contribution Through Work
▪ Medical Transition
▪ A Place to Call Home
Personal Networks
Click here to watch the TxP2P Video: The Personal Network.
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Parent to Parent Transition
Center of Central Texas
The goal of
Parent Transition Center assistance includes…
our TxP2P
Transition ▪ a 1-2 hour consultation with parents of teens and adults
Center of
with disabilities, either in person or via Zoom
Central Texas ▪ working through a transition inventory and helping the
is to assist family to establish next steps and longer-range goals
families to
develop high
▪ a resource bank to access during the 1-1 session and
afterward
quality lives
for their youth ▪ transition peer mentors and information on important
and adults with transition topics
disabilities
▪ opportunities for a family to work on their youth’s future:
after they join a Transition Action Group, start a personal network,
graduate from become a transition mentor, or become a network
public school. facilitator.
For more information, click here.
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.Texas Parent to Parent
presents
PATHWAYS TO ADULTHOOD
Learn new ideas and
information about transition
We can help you getting started
on planning for your youth's
adulthood.
Join our Three-Part Pathways to
Adulthood series via Zoom!
Part Two
Tuesday
M a y 18, 2021
1:30 - 3 : 0 0 p m https://us02web.zoom.us/meeting/registe
r/tZEldu-
sqDIqGdK5inu2PdeKsxbtBPxvKTXV
T r a n s i t i o n P l a n n i n g - P r e p a r i n g for A d u l t h o o d
Life L o n g Lea rning - P ost - Secondary Educa tion
E m p l o y m e n t First - Ma ki ng a Contribution T h r o u g h
Work
A P l a ce to Call H o m eWe are here to help!
Texas Parent to Parent – Pathways to Adulthood Team
Cynda Green
cynda.green@txp2p.org
737-484-9045
“With the
support of Dora Saavedra-Bilingual
another dora.saavedra@txp2p.org
parent we
begin to Adriana Valadez
feel we adriana.valdez@txp2p.org
will survive
because we
know Learn more about the TxP2P Transition Resources
another Pathways to Adulthood Transition
parent Texas Network Connections
who has.” Transition Inventory
TxP2P… improving the lives of children and adults with disabilities, chronic and mental health conditions and other health care needs.You can also read
