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NATIONAL NEWSLETTER SUMMER 2020 Reflections Ngā whakaaroaro Inside this issue 6 There’s nothing 10 Report reveals 18 Celebrating wrong with me! gloomy outlook 3rd December
New beginnings
You can make Tēnā koutou katoa.
WELCOME TO THE Summer 2020 edition of
a difference in one
Reflections Ngā whakaaroaro.
As we enter a new year and a new decade it
is fitting that we acknowledge and welcome
child’s life
the new members of the CCS Disability
Action National Board. At our national Annual
General Meeting in early December 2019, we
officially welcomed:
We have children and young people who need a safe, • Wendy Coutts, appointed to the board for
stable and nurturing home away from home. business and financial expertise.
• Joy Gunn, regionally elected board member
If you’re interested in welcoming a child into your family, for the Lower South. Dairne Kirton.
either on a short or long term basis, give us a call to find out more • Sally Thomas, regionally elected board Ngā mihi maioha. Thank you in appreciation.
about Shared Care or Foster Care with CCS Disability Action. member for the Upper South.
The AGM was also a chance to acknowledge
• Sarah Verran, regionally elected board some of the many people who have
member for Waikato/Bay of Plenty. contributed to our organisation. Our Chief
Nau mai haere mai, welcome. Executive David Matthews was awarded Life
and Honorary Membership of the national
The AGM also heralded a changing of the organisation. This was in recognition of his
guard for our organisation. Our Patron Dame long-standing and valuable contributions to
Tariana Turia indicated that she would like the mauri (life force) of CCS Disability Action
to step down from her role in order to spend through 20 years of positive leadership,
more time with her whānau and mokopuna. advocacy and his connections with the wider
I would like to take this opportunity to national and international disability sector.
acknowledge Dame Turia’s wholehearted Katerina Daniels was also recognised for
commitment to creating an Aotearoa where all valuable contributions to the mauri of CCS
people are supported to thrive. Disability Action with Honorary Membership of
I am delighted and humbled that Paul Curry the national organisation.
has accepted our invitation to become CCS I hope you had a fantastic festive season with
Disability Action’s new patron. Paul is a highly whānau and friends and we look forward to
respected advocate for disabled people. He what looks like a productive year ahead.
is a former manager of Disability Support
Services, Chief Executive of the Families He waka eke noa, we’re all in this together.
Put yourself in the picture. Contact us today. Commission, Director of Imagine Better Dairne Kirton
and has served – and continues to serve National Board President
National – in advisory and governance roles in the
(04) 384 5677 or 0800 227 200 disability, not-for-profit and public sectors. As
@ info@ccsDisabilityAction.org.nz a wheelchair user Paul has direct experience
CCS Disability Action’s latest
of the barriers many disabled people face and
www.facebook.com/ccsDisabilityAction a clear vision for an accessible and inclusive Strategic Priorities are available
www.twitter.com/ccsDisabilityA society. We are thrilled to welcome Paul to on the ‘About us’ page at
www.ccsDisabilityAction.org.nz the CCS Disability Action whānau and look www.ccsDisabilityAction.org.nz
forward to all that he will bring.
2 CCS DISABILITY ACTION INCLUDING ALL PEOPLE 3
The new year –
a time to reflect
David Matthews – Chief Executive – CCS Disability Action
B
y the time you read this, many of
you will have enjoyed a well-earned
break with whānau and friends. Some
of you will have over-indulged either with
food, celebrations or spending and perhaps
be now wishing you had been a little more
circumspect! Perhaps next year.
But there will be many individuals and whānau
for whom this time of year adds further stress
and pressure on an already stressful life.
This situation for disabled people and
their families was highlighted with the
publication of our State of wellbeing and
equality for disabled people, their families,
and whānau report in late 2019. This work
brought together sets of data which either
were unpublished or published in a siloed
way. What we did was bring this information
together and tell the story.
The report reveals unacceptably high levels
of inequality, in virtually all key measures of
wellbeing. It also uncovers evidence that
this situation is worsening. It clearly shows
that current government policy and support David Matthews.
compared to non-disabled people in the significant increase in the disability allowance.
is failing disabled New Zealanders and
more likely to be below all three poverty same age range. The report shows that We would also like to see the Government
their whānau.
thresholds than households that only had disabled people under 65 are 2.5 times following the recommendations of the Welfare
Some of the key findings are: non-disabled children. more likely to experience material hardship Expert Advisory Group. The Ministries of Health
and 1.6 times more likely to say their and Social Development need to come up with
• Disabled children and their carers are • Disabled adults in New Zealand face housing was unaffordable. a comprehensive system that meets people’s
significantly more likely to live in poverty in concerning levels of discrimination and real disability related-costs. Something to
New Zealand. Households with disabled material hardship, significantly effecting I wish I could say that I was surprised by the hope for, for next Christmas, perhaps.
children are between 1.4 and 1.6 times their reported wellbeing. For example, report findings. I’m afraid to say that I was not.
So, what do we need to do? CCS Disability
Action has regularly led the call for radical
change to level the playing field for disabled
CCS Disability Action has regularly led the call for radical change to children, adults and their families.
level the playing field for disabled children, adults and their families.
Simply playing around with the system is not
enough. Specifically, we would like to see a
4 CCS DISABILITY ACTION INCLUDING ALL PEOPLE 5
There’s nothing wrong with me! Shall we dance?
Debbie Ward – National Disability Leadership Coordinator – CCS Disability Action SINCE ITS INCEPTION, Karanga Maha
(Many Voices) has provided a space where
AS A PERSON who uses a wheelchair it’s whānau hauā (disabled Māori) can reflect and
a question I hear on an almost daily basis, share their experiences with each other.
“What’s wrong with you?”. The assumptions
behind that question speak to the attitudinal On 16th November 2019, the fifth annual
barriers I, and other disabled people in New Karanga Maha ball was held in Waitangi, Bay
Zealand really should not have to face. of Islands and provided further opportunity for
connection and celebration. Over 150 whānau
The 3rd December marks the annual United attended this year’s ball with attendees Shanan Kohi.
Nations International Day of Persons with coming from as far North as Kaitaia and as far
Disabilities and for me, as a disabled woman, South as Hamilton. encouraged not to attend their annual school
it’s an important opportunity to support the ball while at school because of their disability.
voices of other disabled people in Aotearoa The theme of this year’s ball was ‘Karanga Creating an inclusive formal occasion where
to be heard. Maha, Ki Te Ao’ which references our need disabled and non-disabled people could
Debbie Ward. to have a global consciousness and consider come, have a great time and feel valued, was
Why? Because for many years I couldn’t how other communities can be included. an opportunity to turn the tide on these poorly
access what I needed to live my life. I International Day of Persons with
considered attitudes.
believed that this was because I was the Disabilities gives us an opportunity to Shanan Kohi, a founding member of the
problem. I accepted that I should live with challenge old-fashioned thinking. We can Northern region’s Karanga Maha Steering The Karanga Maha ball is an annual fixture
being overlooked, that I didn’t belong in begin conversations about inclusion and Group, was MC. He talked about the and we look forward to more whānau joining
everyday society and that I should give up on participation. It gives us an opportunity to experiences of many whānau haua who were us in 2020!
any dreams I had of having a job, living in my celebrate uniqueness and diversity.
own home, getting married and travelling. It also gives us an opportunity to acknowledge
My experience is no different to many
disabled people.
that being different does not mean being less
or being inherently wrong. Let’s think about
The great work of the Lion Foundation
Later in life, I met others who challenged what it would take to create a world where
disabled people are not seen as requiring THE LION FOUNDATION has been The team at CCS Disability Action would
my thinking. They taught me that I had the
fixing, neither are we inspiring or curiosities. fundraising for communities since 1985 like to extend their sincere thanks to the
right to live where I choose, be employed,
Imagine seeing disabled people as simply to help New Zealanders achieve great Lion Foundation for their continued and
to access shops and to use public transport.
people and living in a world where our things. Since that time, the Foundation has highly valued support which makes a huge
They taught me that the barriers I faced had
contributions were just as valued as everyone provided over $920 million in grants to difference to disabled people and their
nothing to do with my impairment and had
else’s. International Day of Persons with support community projects throughout families across New Zealand.
everything to do with the environment and
Disabilities is a chance for us all to ask the New Zealand.
attitudes of the society I live in. They taught
right questions – and maybe learn to see the
me that disability can be a badge worn In the last financial year, the Lion Foundation
world in a new way.
with pride. approved over 2,750 grants and distributed
Now, I want to live in a world where I am more than $38 million to community
not perceived as being special, needy or organisations. Since 2013, the Foundation
a problem. I would like to live a life where has made approximately $365,900 available
I am not treated or talked to differently just in grant funding to CCS Disability Action’s
because I live my life sitting down. national and regional offices.
Disabled people have much to offer. We “It’s been a privilege to support CCS
should be able to participate as valued You can find out how CCS Disability Disability Action’s work and the Lion
members of society. The barriers that disable Foundation acknowledges the staff and
Action branches celebrated
people can be eliminated. As individuals volunteers of CCS Disability Action for
we can change attitudes. When we work
International Day of Persons with continually demonstrating the benefits of
together, New Zealand can become a more Disabilities on page 18. this funding,” says Lion Foundation CEO
accepting and inclusive place. Tony Goldfinch.
6 CCS DISABILITY ACTION INCLUDING ALL PEOPLE 7
“Smell the sea and
The family is looking forward to a future
where they can live the life of their choosing.
When asked what the future holds for them,
the pair light up with possibilities. “We are
feel the sky, Let your
organising schooling for Ana-Carolina and
working on getting our entire care team in
place”. Ana-Carolina currently communicates
by blinking her eyes and is learning to use
soul and spirit fly.”
Picture Pragmatically Organised Dynamic
Display as well as eye gaze technology. She
can also move her fingers slightly and is
learning to use a switch to further extend her
Van Morrison
opportunities for communication.
Since leaving the hospital, Ana-Carolina’s
personality has begun to emerge even more.
“She loves to shop for clothing and doesn’t
really care for stuffed animals,” says Mum.
S
ix-year-old Ana-Carolina stares silently support workers continue to take shifts caring “She is very inquisitive and now she smells
out toward the blue horizon; calm and for their daughter. and hears things that are interesting within a
contemplative. The monitor on the normal household environment. Her favourite
ventilator that she uses to breathe shows her The move into Hendry house was exciting
and demanding. The pair had to ensure the activities are going out for walks, shopping,
heart rate slowing as the view helps her relax. frequenting the beach and enjoying
house was ready and right for Ana-Carolina.
This is the first time Ana-Carolina has ever The space needed to be safe and it was our new community.”
seen the ocean after spending almost her important that Ana-Carolina understood what Eventually they hope to get their own home
entire life in Starship’s intensive care unit – a was happening. They say coming here is so again so they can free up Hendry House for
unit where her parents attended to her needs much easier than life in the hospital. another family who needs the support.
around the clock and at times only slept every
other day. Liz Stenning, Service Manager Early Supports For now, as Ana-Carolina sits staring at the
for CCS Disability Action Auckland joined ocean’s vast horizon line, her father is content
In this unit that made up Ana-Carolina’s world, the team supporting the family and has been just to watch her, overwhelmed with emotion,
there were three other beds where severely instrumental in coordinating the move into imagining all the wonderful things he is now
ill children came and went and sometimes Hendry House. Local businesses stepped in free to show his little girl.
tragically died – a unit where she and her to donate and renovate, with new electrical
parents lived daily with the distress and pain wiring, heating, flooring, curtains and a Photos, from top to bottom: Ana-Carolina and
of other families. Since moving into Hendry new kitchen. Elena out and about. Ana-Carolina and Peter
House, owned by CCS Disability Action, the learning. Ana-Carolina and Peter at the beach.
family remark on how free they feel and how The family have been overwhelmed with the
easy it has been to fall into a routine that works generosity from the community. As Elane sits
for them. “Being able to make this space as at the table going through the list of people
homely as possible compared to the artificial who have supported them she becomes A big thank you!
environment we came from and the sheer tearful with gratitude. “I am so very thankful, The family would also like to thank the following Auckland-based businesses:
privacy we now have has been extraordinary,” this is a very complex situation and without
says Mum, Elane de Moraes Lobo. the support of Liz and the team at CCS • Aalto Property Care • Hibiscus Tiling
Disability Action, including Early Intervention • Bella Kitchens • J.A. Russell
As Ana-Carolina requires 24/7 care, her Teacher Sarah Kerrisk and Speech-Language • Carpet Court • Laser Electrical
parents are still looking for more staff to help Therapist Linda Barton, and all the people • Container Co • Laser Plumbing
provide fulltime nursing. In the meantime, that helped to get this house ready, we
both Elane and Peter, along with a team of wouldn’t be here.”
• Curtain Studio • Northgate Baptist Church
• DVS Ventilation Systems • Tile Studio
• Harrisons Carpet • Toyota NZ
• HBC Self Storage • Wild Weta Pest Control
The family have been overwhelmed with the generosity of the community.
• Hibiscus Matters • Yummy Yoga group
8 CCS DISABILITY ACTION INCLUDING ALL PEOPLE 9
THE FINDINGS: Disabled children and
their carers
The data shows us that poverty
Disabled children and their carers are is getting worse for disabled
significantly more likely to live in poverty in children and their whānau. It’s
New Zealand. Households with disabled time for urgent action,
children are between 1.4 and 1.6 times more
likely to be below all three poverty thresholds
than households that only had non-disabled
children. Specifically, the report shows: • 1.9 times more likely to rate the wellbeing
of their family as a 6 or below (on a scale
• Households with disabled children were where 10 is the highest).
1.5 times more likely to earn under $40,000
a year, compared to households that only • Almost twice as likely to report being
had non-disabled children. discriminated against.
“Successive governments have been content
• 63% of carers of disabled children say
they do not have enough money or only to tweak disability policy and look, fruitlessly,
for ways to reform that do not require
just enough money.
substantial investment. It should be clear
• Poverty appears to be getting worse from this data that substantial investment
for disabled children and their families is needed. The inequalities are too large to
and whānau. In 2018, disabled students address through slow change and minor
New report reveals receiving the Ongoing Resourcing Scheme
(ORS) were 1.5 times more likely to be at
decile four and below schools, compared to
increases in spending.”
Mr Matthews is calling for radical and urgent
changes to address these entrenched issues.
a gloomy picture
all students. This is up from 1.4 in 2009.
“We need new ideas, big ideas, and big
• The statistics on disabled students receiving changes. We need a new Accessibility Law.
ORS at special schools were even worse.
We need a doubling or tripling of disability
They were 1.9 times more likely to be at
for disabled New
allowances. We need the Government to
decile four and below schools, compared to follow the recommendations of the Welfare
all students. This is up from 1.7 in 2009. Expert Advisory Group and get the Ministries
of Health and Social Development to sit down
Zealanders
THE FINDINGS: Disabled adults under 65 and come up with a comprehensive system
that meets people’s real disability related-
Disabled adults in New Zealand face
costs. Let’s not forget all the people and the
concerning levels of discrimination and
children who sit behind these numbers, who
material hardship, significantly effecting
just want a fair go. In order to make a real
their reported wellbeing. Compared to non-
difference, it’s time to stop the tinkering and
C
CS Disability Action published the worse for disabled children and their disabled people in the same age range the
create real change, says David Mathews.”
State of wellbeing and equality whānau. It’s time for urgent action,” says report shows that disabled people under
for disabled people, their families, CCS Disability Action Chief Executive 65 are:
and whānau report at a launch event at David Matthews. Photo from left to right: Report author and National
the Sudima Hotel in Christchurch on 4th • 2.5 times more likely to experience Policy Coordinator Sam Murray, CCS Disability
December 2019. The report uses Statistics The report reveals a gloomy picture, showing material hardship. Action National President Dairne Kirton and CCS
New Zealand and Ministry of Education data, unacceptably high levels of inequality, in Disability Action Chief Executive David Matthews.
virtually all key measures of wellbeing.
• 1.6 times more likely to say their housing
not previously released, to provide a detailed was very unaffordable.
picture of the lives of disabled people and It also uncovers evidence that this situation
their families in New Zealand. is worsening. • 2 times as likely to report being You can read the full report
discriminated against. on the news section of the
“I think New Zealanders will be shocked Mr Matthews also said that the data clearly
to learn how bad things have become for shows current government policy and support • 2.2 times more likely to rate their life CCS Disability Action website
disabled children, adults and their families. is failing disabled New Zealanders and satisfaction as a 6 or below (on a scale www.ccsDisabilityAction.org.nz.
The data shows us that poverty is getting their whānau. where 10 is the highest).
10 CCS DISABILITY ACTION INCLUDING ALL PEOPLE 11
Taking control
HENK DIJKSTRA IS a three time Para
Olympic champion but until recently, was
unable to control who came into his two-
bedroom, accessible home in Dunedin, or
even what time he went to bed. At 58, Henk
switched to CCS Disability Action’s ‘Choice
in Community Living’ as soon as it became
available in his city.
The service gives him the flexibility and
control that he’s been wanting for much of
his adult life.
It’s the ability he now has to make important
choices which were previously off limits,
that has made the biggest difference to how
My journey – by Elinor Niha Henk feels about his life. Things like; being
involved in interviewing and choosing his
own Support Workers, what time he goes
I WOULDN’T KNOW what my life would be Taha Tinana (physical health), Taha Wairua to bed, who comes into his home and when
like if I didn’t have Cerebral Palsy. (spiritual health), Taha Whānau (family they do so. “I have greater independence and
health) and Taha Hinegaro (psychological empowerment,” he explains.
A limited lifespan was mentioned to my loved health) – all are equally important to me. And
ones, but I am still here. My family believed in Paul Arnott, CCS Disability Action
even though I got side-tracked in parts of Coordinator, describes Henk as “warm, direct
me to prove the doctors wrong through blood,
my journey, I’d always be honest, check my and intelligent.” The pair make an excellent
sweat, tears, love and determination.
mirrors and carry on. Which headed me in team working to ensure Henk’s support works
Having been through the hard yards of the right direction to my first job at Northland the way he wants it to. Henk Dijkstra.
daily exercise, rongoa (Māori medicine) and Disability Resource Centre as Personal
appointments, I now understand sometimes Assistant to the CEO. “Like all of us, Henk just wants a good life. It’s the sport of Boccia where Henk really
you gotta be cruel to be kind. His choices deserve to be respected, so it’s shines. “I started playing Boccia in 1995 and
Since then I’ve gained employment in important for me that he’s always consulted I have represented New Zealand in three
Memories would be wearing those ugly gators different roles with CCS Disability Action, on what works best for him,” he explains. Paralympics; Atlanta in 1996, Athens in 2004
and callipers. At Hora Hora Primary School, Tiaho Trust, Auckland University, Northland
Henk has control of an individualised budget and Beijing in 2008,” he says.
thanks to my mother making a bit of a noise, Polytechnic as well as the NZ Fire Service.
they built ramps for me to access and attend Then I also joined the board of DPA and he uses this for support in his home and Henk appreciates the opportunity Boccia
classes. I’m happy those ramps are still there Northland, Whangarei District Council to get out an about regularly. has given him to see the world and now,
today helping other kids access classrooms. Disability Advisory Group, Whangarei He’s a familiar face at Moana Pool and is a with his day-to-day life firmly in hand, he’s
Then attending Tikipunga high school and Accessible Housing Trust and CCS Disability regular gym goer. To balance things out Henk looking forward to combining travel with
Sinclair Centre. Action Local Advisory Committee. some family time.
has some other, less active, pursuits too. “My
I conquered my driving licence and now I I have also created my own business hobbies also include watching sports and “For my next trip, I would like to visit my
have my Full, which gave me the opportunity ‘CreateAbilities’, which was named after movies, camping, eating out and enjoying a younger brother who lives on the Gold Coast.”
to experience independence. a beautiful wahine and her daughter who home cooked meal,” says Henk.
helped me to become who I am today.
My ‘human motor’ has had its physical
challenges. My steering wheel has sent me
down roads with dead ends but when I get I started playing Boccia in 1995 and I have represented
juiced up with gas (energy) everything seems
Elinor Niha is Local Advisory Chair New Zealand in three Paralympics; Atlanta in 1996, Athens
to be fine, even though not all roads in life are
accessible. My vehicle seems to be held up of CCS Disability Action Whangarei. in 2004 and Beijing in 2008.
by my tyres (te wharetapawha).
12 CCS DISABILITY ACTION INCLUDING ALL PEOPLE 13
Coming home Enjoying the fruits of his labour
SUE AND HARRY Calder and their three The couple decided to move back to New ANDREAS LUCCIANA HAS found his
children Aaron (26), Jessica (24) and Lockie Zealand, largely to help care for Harry’s dad niche. The 19-year-old Gisborne native
(18) could never be accused of living a dull who has Alzheimer’s. has a learning disability that effects how he
life. The couple, who now call Timaru home, processes information. After finishing high
Ironically, it was the transition back to ‘normal’
have spent the last 20-odd years living school, he felt unsure how he would go about
life that saw Aaron’s quality of life deteriorate.
and working in Papua New Guinea, Tonga, getting a job.
He had gone from being well-liked, to being
American Samoa and Vanuatu.
anonymous. “When we first arrived here, That changed when he was introduced to
While it sounds like an adventure, it didn’t he would say hello to everyone he walked CCS Disability Action Community Support
come without challenges, mostly due to past. But people didn’t say hello back and Coordinator Rachel Lodewyk. She worked
concerns about whether Aaron, who has he eventually retreated inwards. It was really closely with Andreas to get a good feel for
autism, was getting enough support. “It was difficult to see him become so unhappy,” his strengths and interests. And then she
an enriching experience. Aaron was happy, explains Sue. connected him with Thompson’s Horticulture.
but we did often wonder if we had done the
CCS Disability Action have been strong Andreas has now been employed – focussing
best thing for him as there was never any advocates for Aaron. This included working to
‘formal’ support,” explains Sue. on thinning kiwifruit to date – since October
secure him a benefit, supporting him through 2019. It’s demanding physical work that
Overseas, Aaron stood out from the crowd the needs assessment process and when requires considerable attention to detail and
in a good way. “He was always really well his support with another provider wasn’t Andreas loves every minute of it. He’s also
accepted. People would take the time to say working, securing an Individualised Funding extremely good at it.
hello to him. It made him feel really connected package. It is a relationship that’s seen “the
to the people around us,” explains Sue. old Aaron” return. “It feels great to have a job. The team at
Thompson’s are really good to me. My boss
Service Coordinator Gerry Pienaar has John is calm and patient and taught me
been working with Aaron for over a year, exactly what I need to do, so I feel confident
originally as a Community Support Worker.
about what’s needed. I work hard to do a
Aaron primarily communicates using a few Andreas Lucciana at work.
good job. I really appreciate being part of the
words and body language. Despite the
team,” he says.
communication challenges, the two quickly into work and be there if we needed support
built a wonderful rapport, helped by a shared It’s been a big win, win for the business who to keep things running smoothly. For us it was
love of rugby and music. values Andreas’ work ethic. “Andreas is an easy decision,” says Sonia.
really reliable and he’s very focussed on the
“We have a lot of fun together,” says Gerry. For Rachel, this attitude to assessing potential
“Aaron is a Crusaders supporter and I’m a tasks that make up his role. We are glad to
have him on board,” says Sonia McAllister, employees on their strengths and merits is
Hurricane’s supporter, so we often have good a welcome one – especially when so many
jokes about that,” he says. Thompson’s Horticulture HR and
Compliance Manager. disabled people find securing employment
As well as securing more funding for Aaron, a considerable challenge. “Thompson’s
the Timaru team have created a weekly “Andreas can deliver exactly what we need Horticulture were really open and supportive
routine that allows him to socialise and in the role, and Rachel explained that CCS from the moment I approached them which
connect more with other people. He goes to Disability Action would help with the transition was amazing.”
swimming, he has weekly art classes and has
become an active participant in an arts and
drama group run for disabled people.
The support has made a massive difference. It feels great to have a job. The team at Thompson’s are really
“The impact CCS Disability Action have had good to me. My boss John is calm and patient and taught
on Aaron’s life and our family life is huge. It me exactly what I need to do, so I feel confident about what’s
is just so good to see our boy back to his old needed. I work hard to do a good job. I really appreciate
self again.”
being part of the team,
Gerry Pienaar with Aaron Calder, a relationship
that’s seen “the old Aaron” return.
14 CCS DISABILITY ACTION INCLUDING ALL PEOPLE 15
Shout Outs Janine Hoete-Thornton – General Manager Central
WITH SO MANY stars in the Central region
its always a challenge to identify ‘the one’ to
Tina Syme – General Manager Northern celebrate in Reflections. However, it is with
much pleasure that this time round we give a
VICTORIA DRUGOVA JOINED the Northern big shout out to Mel Rehu.
region team as Regional Accountant in
September and hit the ground running! Mel joined our CCS Disability Action
Manawatu/Horowhenua team in August 2017
In a short few months she has embraced as a Support Worker. We were excited to
the complexities of the role, including welcome Mel onto the team as she offered so
better practice, transparent reporting and much experience.
generally making a positive difference to the
finance area. As we reflect two years on, we are thankful,
for not only the amazing support that Mel has
A huge thank you to Victoria for bringing provided to many people in the community, Mel Rehu.
your energy, competence and insights to but also as the on-call administrator for
our organisation. others and is incredibly reliable and resilient.
the branch. Mel embraces any challenge
Mel’s unassuming personality makes her
that comes her way with good nature,
popular with everyone, as does her friendly
determination and a smile.
‘can do’ approach to life. Mel’s commitment
Mel exemplifies the characteristics of a to supporting people to live their best life is
strong team member. She is always willing to palpable and contagious. Thank you, Mel. We
Victoria Drugova. pick up extra work, communicates well with really appreciate all that you bring.
Colene Herbert – General Manager Midland Melissa Smith – General Manager Southern
THE MIDLAND REGION are fortunate to THERE ARE PEOPLE throughout this
have many hard working and passionate organisation that not only live the values of
Support Workers but today we would like to reciprocity but also support those around
acknowledge Winnie Hopa for all the amazing them to do the same. Carmen Curtis,
mahi she does. Executive Assistant for the Southern region
does just this and more every day.
Winnie has made an incredible, positive
difference for the people she supports. She Carmen has worked for CCS Disability
shows a consistent drive to do whatever is Action since the end of 2014 and has always
needed to ensure the whānau we support delivered more than her role would require.
can be who they want to be and do what At the end of 2016 our region grew to cover
they want to do. She’s resilient, passionate, a larger geographic area and Carmen
has an effervescent personality and a “can became the glue and the heart that created
do attitude”. Winnie does not take no for opportunities for our region to grow together.
an answer!
Carmen has used her skills, knowledge and
Tēnā rawa atu koe, Winnie for all that abilities not only for the South Island but also
you bring. across the country whenever she has been
asked or able. Carmen continues to use her
thoughtfulness and reasoned approach to
ensure that people have the information and
support that they need to do their jobs well.
Thank you, Carmen for all that your bring to
Winnie Hopa. our organisation each day. Carmen Curtis.
16 CCS DISABILITY ACTION INCLUDING ALL PEOPLE 17
What’s happening in our branches Northern region:
IDPD brings big smiles to
little faces in Auckland
Celebrating 3rd December, International Day of Persons
with Disabilities AUCKLAND CELEBRATED IDPD on the 7th
of December with a family fun day, held at the
Royal Oak branch. The event was organised
National: by their disabled staff group – the Disability
Action Advisors.
Famous Kiwis rise to #UD
Around 120 people came through the doors.
Step-Free Challenge “Our event aimed to show people that as
LIFEMARK ASKED KIWIS to go ‘step disabled adults, we lead great lives,” explains
free’ from 3rd December in a social media Acting Regional Disability Leadership
challenge that aimed to raise awareness Coordinator, Kylie Elsbury-Dawson.
of the need for universal design in the “The highlight of the afternoon was watching
built environment. The #UDStepFree usually shy and reserved kids bounce on
challenge invited people to upload a video the bouncy castle set up in the middle of our
of themselves going somewhere without the meeting room! It was a lot of fun.”
barrier created by stairs and steps and upload Disability Rights Commissioner Paula
their videos to social media with the hashtag Tesoriero says accessible and universal
#UDStepFree. design can make the difference to whether The Auckland IDPD event had a bouncy
someone can access their community. castle, pony rides and bubbles to keep
Disability Rights Commissioner Paula little ones entertained.
Tesoriero was one of many familiar faces
taking part. “I want to draw attention to
Go to www.lifemark.co.nz/udstepfree-
everyone’s right to participate and have a
sense of belonging in their community,” challenge/ to view the videos.
she says. Midland region:
Whānaungātanga, coming
together on IDPD.
Northern region: CCS DISABILITY ACTION Tairawhiti was
one of 18 Gisborne-based agencies who
Mini market a major success collaborated to celebrate 3rd December. The
Warehouse played host to a bouncy castle,
WHANGAREI MARKED IDPD at a ‘Mini obstacle course, free sausage sizzle and
Market’ organised by Tiaho Trust. Disabled pony rides.
people sold art, craft and homemade products
outside the Riverbank Centre while attendees “To see so many people coming together to
enjoyed music and entertainment. CCS celebrate IDPD just showed how supportive
Disability Action had an information stall and and inclusive our community can be,” explains
hosted a free sausage sizzle. Community Support Coordinator, Rayleen
Wright. “There were conversations about
inclusion, accessibility and about how we can
work to strengthen disabled leadership within
our community. It was a huge success.”
Top: Attendees enjoyed outdoor
games and activities at the Top: Markis (14) with Service Manager, Katie Mackey.
Whangarei event.
Below: The team captured the day with an
Below: Pou Ārahi Robert Nathan artwork formed by fingerprints of some of those
on BBQ duty. who attended.
18 CCS DISABILITY ACTION INCLUDING ALL PEOPLE 19Midland region: Central region:
Tauranga ‘Celebrates Us’ New Plymouth locals hit
SINGERS, DANCERS AND a Kapa Haka the ice
group wowed a huge audience at Tauranga’s
WHILE THE SUN was shining outside,
‘Celebrate us’ concert. The event was held at
the North Taranaki team hit the ice to
the waterfront on 30 November, directly after
acknowledge 3rd December. The team
the Trustpower Christmas Parade partnered with Sport Taranaki and Conductive
The family-friendly event was attended Education to deliver an event at East End
by thousands of people who enjoyed the Skating Rink, who generously donated the
performances, food, market stalls and use of their facilities for the day. Around 60
activities. people enjoyed ice-skating, boccia, trialled Krystal Roper enjoys the arts and crafts
hand cycles and three-wheeler bicycles inside activities at the New Plymouth event.
“It was wonderful to see people loving the the rink as well as wheelchair basketball.
entertainment our local artists provided. A huge thank you to all the sponsors and
Disabled people were involved in every supporters who made the day possible!
aspect of the event including planning,
organising, performing, providing information
and MC’ing. It was a fantastic way to
celebrate the International Day of Persons
with Disabilities,” said Service Manager, Central region: A big thank you to New World Masterton
Paula Young. who donated a $50 grocery voucher, Mitre
Masterton team in 10 Mega Masterton for free use of the BBQ
sizzling form trailer and Solway Butchery for providing the
The event was fun for all the very popular sausages.
family with balloon animals, face MASTERTON PROVIDED A free community
BBQ, complete with fruit kebabs and
painting and an appearance from
giveaways to celebrate IDPD.
Santa Claus himself.
A whopping two hundred sausages were
given out to hungry passers-by, a feat made
Left: The Grinch (otherwise known as Regional
possible through the efforts of staff members
Administration Manager, Cheryl Mercer), Cindy Lou
and others joined the Trustpower Christmas parade Jo Dean and Jo Scott along with volunteer
to promote the Celebrate Us concert. Gary and Support Workers Faye, Kirsten,
Michelle and Tash.
Midland region:
Fun by the lake for Hamilton
CCS DISABILITY ACTION’S Hamilton team
partnered with support provider Community
Living to deliver a fun-filled afternoon’s
activities by the Hamilton City Lake. The
event was held on the 5th December and over
100 people enjoyed a free BBQ, lawn games
and live music provided by local musician
Keanu Hopa Solomon. “That was the icing
on the cake of a great day,” said Access and Community Support Coordinator Joanna Governance members Vanessa Maxwell
Regional Disability Leadership Coordinator, Hamilton’s International Day of Persons Scott (left) and governance member Matt Wills (left) and Christine Cameron (right) provided
Maurice Flynn. with Disabilities celebration. provide a helping hand. conversation and good cheer.
20 CCS DISABILITY ACTION INCLUDING ALL PEOPLE 21Central region: Southern region:
Hawera celebrates local Art for the sake of
talent awareness
THE HAWERA OFFICE was buzzing with DUNEDIN HELD A five-day art exhibition in
budding and seasoned artists at their ‘Festival the centre of the city to celebrate the IDPD
of the Arts’ themed IDPD celebration. – building on a similar format in 2018. The
exhibition was launched on 3rd December
Attendees were treated to displays from
with an opening night event attended by
disabled artists and were able to work on
exhibitors, their families and invited guests.
actual arts and crafts. Guests were treated to
musical performances from a local student. The exhibition displayed 87 pieces of art,
sculpture, digital art, film, costume and
A big thank you to Local Advisory and
garments, all designed by the disabled
Executive Committee members Neil Walker,
community of Otago – some of which went
Delwyn Kensley, Lind Howson, Tony Milich
on to sell. Local cartoonist Brent Harpur also
and Ralph Gibson for their attendance and
spent two days in the gallery creating portraits
support of the event. The event was also well
for guests and the general public.
supported with a range of donations from
Hawera businesses.
Hawera’s International Day of Persons
with Disabilities celebration.
Some of the artworks on display during the
Dunedin-based exhibition.
Central region:
Weather doesn’t chill
interest in Access
Beach Mats
CCS DISABILITY ACTION’S Wellington
branch got in behind the beach access mat
Open Day to celebrate IDPD. The event
was organised by the Hutt City Council, with
support from CCS Disability Action.
Many people braved very windy conditions to
attend the unveiling of the mats that open up
beach access to wheelchair users and others
with additional access needs. The roll-out mat
is portable and provides a cool and stable
Southern region:
surface for users. Students sing to mark Top left: Former Regional Representative
to the CCS Disability Action National
The beach access mats will be in place 3rd December Board, Hari Priya-Day (left) with Life
until March 2020. They will then be rolled Member Pat Turnbull (right).
up during the cooler months and be made THE INVERCARGILL TEAM celebrated 3rd
December with music, afternoon tea and a Top right: Andrew Moore (left) and James
available to hire for community events Dearden (right) enjoy the celebrations.
and activities. performance of waiata and kapahaka by local
Genieve McLaunchlan (left), Wellington’s Deputy school students. The event was enjoyed by
Mayor braved chilly conditions for the beach access local governance members, members and
mat launch. people supported by the branch.
22 CCS DISABILITY ACTION INCLUDING ALL PEOPLE 23Get in touch
Whakapā mai
IF YOU’RE INTERESTED in more information or would like to get in touch we would love
to hear from you.
0800 227 2255
Info@ccsDisabilityAction.org.nz
Level 3 Orbit Systems House, 94 Dixon St, Wellington 6011
PO Box 6349, Wellington 6141
www.facebook.com/ccsDisabilityAction
www.twitter.com/ccsDisabilityA
www.ccsDisabilityAction.org.nzYou can also read
