Still left behind: Pathways to inclusive education for girls with disabilities - June 2017

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Still left behind: Pathways to inclusive education for girls with disabilities - June 2017
Still left behind:
Pathways to inclusive education
for girls with disabilities
June 2017
Still left behind: Pathways to inclusive education for girls with disabilities - June 2017
Acknowledgements
This report was prepared by a Leonard Cheshire Disability team led by Ola Abu Al-Ghaib (Deputy
Director), Karen Andrae (Consultant) and Rachel Gondwe (Learning Impact and Quality Manager).
The team is grateful to the UN Girls’ Education Initiative (UNGEI) for their support and guidance,
in particular Nora Fyles (Head of the UNGEI Secretariat) and Paula Pönkänen (Intern).

Photography credits
Hamish Roberts, Planet Caravan, Arjun Kohli/Arete Stories/GCE UK
Still left behind: Pathways to inclusive education for girls with disabilities - June 2017
Still left behind:
Pathways to inclusive education
for girls with disabilities

Executive summary
Girls with disabilities are among the world’s      out, more than boys, and often due to gender-
most marginalised groups of society, resulting     related challenges. There needs to be more
from social norms and cultural bias around         in-depth analysis of the interaction between
gender and disability. Those agencies              gender and disability, and more attention to
committed to gender equity in education            power relations on which gender roles are
overlook the specific situation of and added       based. Child protection issues are recognised
barriers faced by girls and women with             and addressed but need more rigorous
disabilities, and those who are committed          monitoring of how policies are developed
to disability inclusion and equity fail to apply   and implemented.
a gender perspective. As a result, girls
with disabilities have limited educational         Inclusive teaching methods are shifting to
opportunities.                                     more child- and learner-centred approaches
                                                   and classroom adaptations. However, girls
The aim of this research was to provide a          with intellectual and profound disabilities
synthesis of the understanding of barriers         continue to be marginalised due to a lack
to education for girls with disabilities and       of policy clarity on how to provide education
bring together evidence of effective or            for children with more severe disabilities, and
promising programme approaches that                the gaps in resources and teacher capacities
address these barriers.                            to support these children. There needs to
                                                   be more in-depth impairment-specific and
Despite growing commitment to gender and           gendered analysis, with documentation and
disability inclusive education by governments,     sharing of applied and effective inclusive
donors and (inter)national development             education practices.
organisations, there is still very little in the
way of documentation and robust evidence           Collaboration among non-state actors is
on research and programmes that address            important in reviewing and submitting
the intersectional marginalisation of girls        recommendations on adaptations to legislation
with disabilities in education.                    and policies. It is especially critical to review
                                                   policies on inclusive education with a gender
The majority of the inclusive education            lens and align policies on inclusive education
programmes on which documentation was              and girls’ education. The intersection between
available were implemented by disability-          gender and disability and the gendered
focused organisations. This may account for        nature of marginalisation for children with
the greater emphasis on disability inclusion,      disabilities needs to be analysed in depth
with gender as a secondary factor to exclusion.    to help formulate and monitor policies
While there has been evidence of greater           and programmes.
numbers of girls with disabilities enrolled
and retained in school, there is also consistent
reference to girls with disabilities dropping

                                                                                                     3
Still left behind: Pathways to inclusive education for girls with disabilities - June 2017
The key findings and recommendations from the report are:

•	The development of gender- and                  •	Governments should develop national
   disability-sensitive indicators will provide       education policies to protect children from
   a more consistent picture of educational           abuse, neglect, violence and exploitation
   inclusion and allow for comparison across          both within and outside the school setting.
   programmes.
                                                   •	The integration of research and
•	The application of an equity-focused gender        documentation of good practice on
   and disability lens to budgeting and resource      education interventions for girls with
   allocation will support (hidden) costs that        disabilities into education plans and
   disproportionately affect girls                    robust processes to monitor the impact of
   with disabilities.                                 interventions on girls with disabilities will
                                                      help build a much needed evidence base.
•	Greater efforts to embed gender equality
   principles in teacher training on inclusive     •	Greater collaboration between mainstream
   education will promote more positive               and disability-specific organisations and
   attitudes towards girls with disabilities.         Disabled People’s organisations (DPOs) is
                                                      indispensable in order to bring all relevant
•	Donors and other development partners              expertise together towards greater impact.
   that invest in education programmes should
   ensure programmes are both disability
   inclusive and gender sensitive.

4
Still left behind: Pathways to inclusive education for girls with disabilities - June 2017
Contents
Introduction: the context                                            6

Section I: Background                                                8

Section II: Barriers to education for girls with disabilities        11

Section III: International frameworks and policies/position papers   21

Section IV: Programmes and practices addressing barriers             28
to education for girls with disabilities

Section V: Conclusions                                               39

Section VI: Recommendations                                          44

Bibliography                                                         48
Annex 1: Organisations contacted                                     50
Annex 2: Guidelines and toolkits                                     51
Endnotes		                                                           52

                                                                          5
Still left behind: Pathways to inclusive education for girls with disabilities - June 2017
6
Still left behind: Pathways to inclusive education for girls with disabilities - June 2017
Introduction: the context
Girls with disabilities are among the world’s most marginalised groups
of society, resulting from social norms and cultural bias around both
gender and disability. Yet their needs, and the double discrimination they
face, have largely been neglected and overlooked in education dialogue
and practice. This greatly limits their educational opportunities.1 Those
committed to gender equity overlook the specific situation of and added
problems faced by girls and women with disabilities, and those who
are committed to disability inclusion and equity fail to apply a gender
perspective.2 Both disability and gender are significant factors for exclusion
and are often treated separately.

Sustainable Development Goal (SDG) 4 focuses on ensuring inclusive and
quality education for all and promoting lifelong learning. Gender equality
has been recognised as crucial for achieving the right to education for
all. It is also a critical element of a broader perspective on equity and
inclusion where gender inequality is heightened through additional factors
of exclusion, for example in situations of conflict, in rural areas, among
the poorest households and for children with disabilities and members
of ethnic minorities.3

This report explores the challenges faced by girls with disabilities in
relation to education, and what can be done to address them. Section
I explains the purpose and methodology of the desk research, and
clarifies the most important terminology. Section II starts from the
gender perspective and explores the additional layer of barriers added
by disability for girls. Section III gives a brief overview of relevant
international frameworks that relate to gender and disability in education.
It also looks at policies by government development departments, civil
society networks and organisations that seek to address gender and
disability in submissions to duty bearers, or in organisational strategies.
Section IV describes selected programmes or projects that have
addressed or are addressing the education of girls with disabilities,
analysing their effectiveness and highlighting gaps and challenges in
tackling barriers. Section V provides conclusions and recommendations
based on the findings.

                                                                                 7
Still left behind: Pathways to inclusive education for girls with disabilities - June 2017
I Background

8
Still left behind: Pathways to inclusive education for girls with disabilities - June 2017
A. Purpose of the progress review
This progress review aims to contribute to and bring disability into discussions around SDG 4 by:
•	providing a synthesis of the understanding of the additional barriers that girls with disabilities
   face in education
•	highlighting effective or promising approaches and programmes addressing these barriers,
   including policies and legislation
•	pointing to gaps in evidence
•	providing recommendations on a way forward

B. Methodology
The research was broad in scope, aiming to           interventions that were implemented since
provide a global perspective. An Internet            the enactment of the UN Convention on the
search of relevant grey and academic literature      Rights of Persons with Disabilities (CRPD)
on gender-responsive inclusive education was         in 2008. In the absence of, or in addition to
carried out. A search of websites of (inter)         available documents that could be shared,
national non-governmental organisations,             a number of interviews with relevant staff
donors, and research institutions on the             were held to clarify details and/or elaborate
subject of gender-responsive inclusive               verbally on education interventions aimed
education was conducted. In addition, requests       at girls with disabilities.
for information on gender-responsive inclusive
education interventions were submitted to            Academic articles were included when they
platforms such as the Pelican Initiative and         explicitly explored or referred to interventions
the Gender and Development Network UK.               for girls with disabilities. Grey literature
Subsequent referral to contact persons was           consists of case studies, summary brochures of
followed up via email and phone with requests        studies, and mid-line and end-line evaluations.
for sharing of studies, evaluations, progress        Information on organisations’ websites may be
reports, and other relevant documents of             mentioned but is not considered evidence.

                                                                                                        9
Still left behind: Pathways to inclusive education for girls with disabilities - June 2017
C. Clarification of terminology
Disability is defined by the CRPD as ‘an            Special education is when children with
evolving concept and that disability results        disabilities are educated separately from their
from the interaction between persons with           non-disabled peers, usually in special schools
impairments and attitudinal and environmental       or institutions.
barriers that hinders their full and effective
participation in society on an equal basis          Integrated education is when children with
with others.’ This definition is based on the       disabilities are educated in mainstream schools
social model of disability, which highlights        but either separately from other children in
the importance of interaction and the fact          special classes or alongside non-disabled peers
that society is the main contributory factor        in mainstream classes that have not been
in disabling persons. This contrasts to the         adapted and/or modified to meet their needs.
medical model of disability where the focus is
on an individual’s impairment.                      Inclusive education refers not only to
                                                    disability but also to the concept that
Gender refers to the social attributes and          education systems must include and serve all
opportunities, roles and responsibilities           children effectively with the commitment to
associated with being male and female, and          leave no one behind. All factors of exclusion
the relationships between women and men             must be tackled by ‘addressing and responding
and girls and boys. Gender determines what          to the diversity of needs of all learners through
is expected, allowed and valued in a woman          inclusive practices in learning, cultures and
or a man in a given context.4 However, these        communities and reducing exclusion within and
concepts are learned and can change over            from education.’ 7 Inclusive education covers
time and vary within and between cultures.          a variety of hard-to-reach and marginalised
                                                    children e.g. street children, working children,
Gender sensitivity refers to the ability to         children from ethnic, religious and linguistic
recognise the impact of gender roles and            minorities, nomadic and displaced children
expectations. A gender-sensitive programme          and those living in informal settings. This
takes these roles, norms and relationships          means that a variety of targeted interventions
into account.                                       with attention to each child’s specific context
                                                    is necessary to ensure that the education
Gender-responsive policy and programming            system is inclusive, ideally providing
goes beyond the identification of gender            choices for parents and children to find the
issues and working with the specific needs          educational environment most suited to each
under a ‘do no harm’ principle. Instead, it helps   child’s needs.
address and overcome historical bias, actively
seeks to reduce harmful effects of unequal
gender roles and norms, and works towards
gender equality.5, 6

10
II Barriers
to education
for girls with
disabilities

                 11
The World Report on Disability (WHO, World Bank, 2011)
estimates that between 93 million and 150 million children
up to the age of 14 are living with disabilities.
They are less likely to enrol in education, and       education for girls with disabilities, especially
have lower rates of attendance and completion,        compared to boys with disabilities, and girls
making disability one of the most prominent           without disabilities, reflects this. This makes
factors in educational marginalisation. This          it difficult to clearly identify the intersectional
needs to be seen not only in the context of           bias of gender and disability.12, 13
access but also with regards to the quality of
education in an enabling environment that is          Barriers to girls’ education and gender
conducive to learning.8                               parity in education are deeply entrenched
                                                      in social norms and reflected in institutional
Adding a gender dimension, the analysis of            constraints and inadequate legislation and
51 countries included in the World Bank/              policies. Schools tend to mirror patriarchal
WHO report shows that ‘50.6% of males with            structures and reinforce traditional gender
disabilities have completed primary school,           roles and stereotypes. This perpetuates
compared with 61.3% of males without                  gender inequalities in each generation
disabilities. Females with disabilities report        of school-going children.14
41.7% primary school completion compared
to 52.9% of females without disabilities, a           •	Inadequate legal frameworks and lack
difference of 8.9% between males and females             of policy enforcement mean that girls are
with disabilities.’ 9                                    often not registered at birth. They are
                                                         therefore not eligible for school enrolment or
Comprehensive research conducted by Harilyn              examinations.15
Rousso for UNESCO found that the literacy rate        •	Families often resist sending their daughters
for adults with disabilities is 3%. For women            to school for fear of their safety and
with disabilities the literacy rate is even lower,       protection from sexual violence, or because
at 1%.10 However, overall there is a dearth of           they don’t see the value of education for girls
education statistics on women and girls with             who are meant to marry and focus on care
disabilities.                                            for home and families.16
                                                      •	Other social norms around traditional
It is recognised that whilst the education               division of labour expect girls to take on
of girls and women is of significant and far-            unpaid care (e.g. for siblings) and domestic
reaching benefit for women, their families and           work.
communities, barriers to education for girls in       •	School-related gender-based violence
developing countries remain. Interventions on            is a major reason for children dropping
girls’ education have often concentrated on              out of school, with girls experiencing
enrolment and attendance, and less on their              predominantly sexual violence, and boys
meaningful participation and empowerment.11              more often physical violence from teachers,
                                                         staff and peers. School-related gender based
Both disability and gender are significant               violence can occur during travel to and from
factors for exclusion, yet the focus of attention        school and at school (empty classrooms,
(and this is reflected in the available literature)      toilets, playgrounds).17
has mostly been on either one or the other.           •	The lack of appropriate sanitation, especially
Internationally, little attention has been paid to       in the context of menstruation, accounts for
exploring and addressing gender issues among             girls dropping out or regularly interrupting
children with disabilities in education sector           their education.
plans. The lack of research and literature on

12
•	The consequences of sexual violence and                Enrolment
   harmful practices such as early marriage and           Cultural bias and rigid gender roles are the most
   Female Genital Mutilation/Cutting (FGM/C)              frequently mentioned barriers to education for
   coupled with an inflexible curriculum prevent          girls with disabilities. It is often assumed that
   girls from returning to education, especially          girls with disabilities will not marry. This can
   when they are pregnant or have small children.         contribute to further devaluation of a family in
•	Teachers’ expectations are often gendered              societies where girls are clearly of lesser value.
   and reinforce gender stereotypes and                   As a result, girls with disabilities are often hidden
   patriarchal structures. Curriculum material and        to avoid the associated shame and ostracism.22
   learning and teaching processes reflect male-          A study in rural Iran, where farming is the
   centred perspectives and power hierarchies.18          primary activity, emphasises the intersection
•	Learning outcome differences (numeracy,                between gender, disability and rurality where
   literacy) between girls and boys are dependent         educational opportunities are limited to begin
   on location, poverty/wealth level, type and            with, and traditional patriarchal gender beliefs
   severity of disability, and ethnicity. Disparities     further reduce educational chances for girls
   are often reinforced by gender stereotyping.           with disabilities. Education is seen as having
•	In some countries girls’ education is                  the purpose of getting a job. As girls in general,
   deliberately targeted, e.g. in Afghanistan,            and girls with disabilities in particular, are not
   Nigeria, and Pakistan. This results in girls being     expected to work, there is no perceived need
   physically harmed or removed from school for           for education. Their role will be entirely focused
   their safety.19, 20 In regions of conflict and where   on unpaid care and domestic work while being
   people are displaced and separated from their          financially dependent on fathers and brothers.23
   homes and families, girls are at even higher
   risk of losing out on an education.                    Economics are therefore connected to gender
                                                          roles. In impoverished families, resources have
It is well accepted that gender interacts with            to be carefully managed. The value of education
other factors based on, for example, age,                 (and subsequent investment) is most often
ethnicity, location (rural/urban), and disability.        reserved for boys as they are expected to return
All of the above barriers apply to girls with             the investment at some point by supporting the
disabilities. However, the disability bias adds           family. Boys with disabilities may still be expected
another layer of obstacles and risks, thereby             to marry and become breadwinners, and are
intensifying their exclusion. Furthermore,                therefore more likely to be sent to school than
the community of girls with disabilities is               girls with disabilities (and sometimes girls without
not a homogenous group. Different types of                disabilities).24
impairments carry different levels of stigma
and diverse needs, which require a variety of             A study in the Middle East found that with
accommodations and modifications.                         more resources available at family level, and
                                                          precisely because they are not expected to marry
Research findings from Education for All (EFA)            and fulfil the traditional roles of mothers and
in 2003 into the educational opportunities and            wives, girls with disabilities are given greater
outcomes for girls with disabilities come to              freedom and have therefore greater access to
the conclusion that little is known about how             education and vocational training. Because of the
girls with disabilities have fared. What can be           perceived lack of traditional value, there is no fear
extrapolated from the research points to rather           for her safety as it is assumed that the disability
disappointing results.21 Unfortunately, it seems          renders her invisible or undesirable.25 However,
that almost 15 years on, there is still scarce            there is not enough global research on how and
research into girls with disabilities in education,       in which contexts wealth influences the freedom
and many barriers remain in place.                        of girls with disabilities to establish if the study is
                                                          an isolated finding or representative of access to
                                                          education for girls with disabilities from middle
                                                          and upper class families.

                                                                                                              13
In (post-) conflict areas, girls with disabilities    Distance and transport
often do not access education. In Northern            In rural areas, schools are more likely to be
Uganda, for example, women with physical              at a considerable distance from home, which
disabilities said that during the conflict they       would either require boarding, long walks or
were never sent to school by their parents. This      costly transport. Overprotection of girls with
was because of long distances from rural homes        disabilities often means that they are kept at
to schools without transport, inaccessible WASH       home because parents want to keep them
facilities, and the constant threat of violence.      close by.
Adolescent girls with disabilities who have
remained in camps for internally displaced            In some countries, such as Tanzania and
people – because they have been separated             Uganda, girls with Albinism are at high risk
from families and have no means or further            of violence based on the myth that a body
connections to return to their homes – are often      part from a person with Albinism can bring
forced to choose a relationship with a man            good fortune. Residential settings are often not
for protection and financial support, thereby         trusted because of the high risk of abuse; or
forfeiting opportunities to get an education.26       there may not be enough affordable boarding
                                                      facilities that are available and accessible for
A study on education and disability in countries      girls with disabilities.
affected by conflict found that in Darfur, non-
formal education structures and child-friendly        Even transport to schools close to home may
spaces such as children’s clubs function both         be necessary for a girl with limited mobility
to protect and educate children through play,         or a visual impairment. Gender bias in access
learning and socialisation. In some cases clubs       to rehabilitation and assistive devices such as
also provided extra food and information e.g.         wheelchairs, prosthetic and orthotic devices,
vaccination campaigns. Girls were more often          means that women and girls with disabilities
enrolled than boys because the latter were            are referred and fitted out less often than
expected to help with agricultural chores and         men and boys. Girls are dependent on family
minding cattle. However, few children with            members to carry them, or provide escort for
disabilities were reported to attend, most often      safety and cultural reasons, which is prohibitive
because of parents’ lack of understanding,            in regard to time investment and costs,
shame over disability, ill health of children, lack   especially when parents are poor, and need
of transport etc. These clubs were seen as a first    to pursue livelihoods.
step to school, and UNICEF and other INGOs
were involved in lobbying the government of           Research from Latin America found that boys
Sudan to formalise the clubs into official pre-       with disabilities are more likely to ask for help
school education structures. At the time of the       from friends e.g. being lifted into buses, or
study’s publication (2011) it was of particular       use more dangerous forms of transport such
concern that no efforts were being made to            as adapted motorcycles. Girls with disabilities
make these clubs inclusive so that children           are seen as fragile and dependent and unable
with disabilities would not miss out on pre-          to rely on peers, or find creative solutions to
school opportunities in preparation for               problems of transport and support. This results
formal education.27                                   in girls being kept safe but isolated.28

14
Inaccessible infrastructure, toilet facilities      In addition, the myth (in many African
and assistance                                      countries) that having sex with a girl with a
The absence of accessible school buildings          disability who is a virgin will cure AIDS puts
and classrooms is a barrier for all children with   them at an especially high risk of HIV infection,
disabilities. Lack of accessible and/or separate    pregnancy and other consequences of sexual
toilets and washing facilities place a particular   assault and rape – particularly in situations of
burden on girls with disabilities who may need      conflict and displacement. Research conducted
assistance with toileting, and menstruation         in the USA found that girls with disabilities
management. A girl’s need for help with             had higher rates of adolescent parenting than
such personal tasks is of concern especially        non-disabled girls, and that sexual abuse
in societies where modesty is emphasised.           was often the cause for the pregnancy.33
Lack of provisions that may help girls with         Girls with disabilities are also at risk of being
(and without) disabilities to manage                trafficked or sold into prostitution because their
their periods in a safe way may reinforce           impairments are assumed to limit their chances
stereotypical and negative attitudes about          of escape.34
girls’ inability to function as students.29
                                                    A recent global study on school-related
Violence and harmful practices                      gender-based violence found that, especially
Whilst sexual violence is a potential risk for      in sub-Saharan Africa, violence against girls by
all girls, and to some degree boys, girls with      (older) male peers and teachers is common,
disabilities experience violence at much higher     with sexual abuse by male teachers more
rates, and at more severe and chronic levels        often in regions that experience conflict and
than their non-disabled peers within the            in refugee settings. Children with disabilities,
family, institutions, and the community. Girls      those from ethnic minorities and orphans
with disabilities are perceived as helpless,        are at higher risk. School-related violence
asexual and powerless and are therefore at          is often referred to in the context of, for
particularly high risk, especially in residential   example, bullying, and gang violence, without
school settings.30 Girls with disabilities lack     attributing violence to gender.35 Similarly, there
general education and sexual health education.      is increased recognition that students with
They may not recognise risks or know how to         disabilities face disability harassment. There
respond to sexual harassment or violence.           is little attention to the combined sexual and
Girls with intellectual and hearing disabilities    disability harassment that girls and young
are the most at-risk groups of girls to             women with disabilities face. However, pilot
experience sexual violence. Girls with              studies from the USA suggest that girls with
disabilities are less likely to report abuse,       disabilities face higher rates of abuse than boys
and if they do they are often considered not        who are disabled or girls without disabilities.36
credible, especially if they have a sensory,        When violence is reported to management,
intellectual, or psycho-social impairment.          institutional status and reputation take
The disability and gender bias exhibited by         precedence over the rights of girls with (and
authorities, e.g. police and community leaders,     without) disabilities.37
does not afford the girls enough importance
to take complaints of sexual violence and
other forms of abuse seriously.31, 32

                                                                                                   15
Early marriage                                         Assistive devices, rehabilitation and special
Early marriage is both a cultural expectation          education services
linked to gender roles, and a potential coping         Girls with disabilities have less access to
strategy for economic survival. Many poor              assistive technology and rehabilitation, and
families will try to marry their daughters with        are less likely to receive additional educational
disabilities as soon as possible to transfer the       support than boys.42 In industrialised countries,
burden of care and be assured that someone             where school personnel identify ‘special
will take care of their daughter. This puts these      educational needs’, boys tend to be on
girls at higher risk of ending up in abusive           teachers’ radar with behavioural issues and
relationships and prevents them from accessing         are subsequently identified with perceived
education.38                                           learning difficulties. Girls often don’t act out
                                                       at school due to cultural pressures. A study
Lack of positive representation and role models        from Great Britain noted that particularly girls
Educational materials used by students with            with emotional disabilities had limited access
disabilities show either a stereotypical or            to education services. Girls with disabilities
under-representation of women and girls with           in the USA often only received services after
disabilities. The lack of role models, i.e. women      they showed behaviours typical for boys who
(and men) with disabilities, in educational            were already receiving special education and/
material, in the media, and as educators and           or presented with more significant levels of
mentors, underline their invisibility. Positive        disability than boys.43, 44 Special education
role models are needed to shift attitudes and          schools are most often located in urban areas
encourage girls with disabilities (and their           and are less accessible to rural children with
families) to pursue education.39                       disabilities, specifically to girls with disabilities.
                                                       In India, eight out of ten schools for blind
Teacher training and attitudes                         students in New Delhi are boys-only schools,
Girls with disabilities can remain invisible           even though there is a much higher rate of
in a competitive classroom climate when                blindness among girls than boys.45
teachers have low expectations of children with
disabilities in general, and girls with disabilities   Vocational training and careers advice
in particular. Even in special educational schools,    Vocational training and careers advice
teachers may be more trained in teaching life          for adolescent girls with disabilities are
skills and vocational skills to children with          often gender stereotyped, guiding them
disabilities (for example embroidery for girls         towards lower paying jobs with fewer career
or carpentry for boys) and don’t focus enough          advancements, or are discouraging them to
on academic achievements.40 Teachers often             continue education beyond the most basic
don’t have the skills to adapt their lessons           levels. The lack of adequate and more diverse
and material to specific impairments and               vocational training contributes to the higher
different levels of severity of disability. In         unemployment rate among young girls with
developing countries, the move to universal            disabilities after they have left school.46
free primary education has meant that the
number of enrolled children in classes has not
been matched by teaching staff. In classrooms
where the teacher- children ratio can be 1:100,
and education assistants or other support are
not usually available, there is little time and
opportunity for teachers to support children
with disabilities. Girls with disabilities are most
likely to be overlooked. Experiences of bullying,
being outnumbered by male peers and being
discouraged to succeed all contribute to low
self-esteem and a high drop-out rate.41

16
Costing
A 2016 report #Costing Equity – the Case for        The report states that child-friendly inclusive
Disability-Responsive Education Financing,          education contributes to gender empowerment
coordinated by IDDC and Light for the World,        and that gender-responsive budgeting has
calls for substantial additional investment in      been crucial in understanding the impact of
systemic reform to achieve inclusive education.     budgets on girls and boys. However, there is
This would mean governments taking into             no further emphasis on making budgets both
consideration the higher costs associated           disability- and gender-responsive.
with the additional needs of some learners.
However, investments in teacher training            Barriers to education have multiple and
and child-friendly, safer, and accessible           complex layers, all of which are interrelated in,
infrastructures would benefit all children.         at times, complex ways. These include social
Adapted learning materials such as Braille,         norms, attitudes and value systems, political
large print, audio and easy-read books, along       will, institutional capacities and resources,
with improved and accessible Information and        technical knowledge and skills, and attitudes.
Communication Technology, are often not             The table on pages 18-20 summarises the
available in developing countries. This would       barriers to education faced by girls with and
significantly increase educational opportunities    without disabilities. The first column shows the
and achievements of children and young people       shared obstacles that girls with and without
with various impairments. Assistive devices are     disabilities both encounter. The second column
often not affordable for families of children       describes the additional barriers for girls with
with disabilities, especially when they have        disabilities. The last column encapsulates the
to be regularly adjusted for growth. Inclusive      root causes of the barriers.
budgeting with an equity-focused gender and
disability lens is essential to ensure that funds
are available and appropriately allocated.47

                                                                                                   17
Shared barriers
                                     Additional
              for girls with
Issue
              and without        +   barriers for girls    Root causes
                                     with disabilities
              disabilities
Enrolment,    Boys prioritised   +   Priority of non-      Social norms/attitudes that girls with
completion    when resources         disabled siblings,    disabilities have less value, based on
including     are scarce.            and boys with         both gender and disability; resource-
costs                                disabilities          poor families make choices based on
              Early marriage,        over girls with       perceived return on investment and
              harmful                disabilities.         gender roles.
              practices;
              unpaid care            Hidden away due       Misconceptions and stigma attached
              and domestic           to shame or fear      to disability isolate families and girls
              work over              for safety; forced    with disabilities; low status of girls
              value of               marriages.            with disabilities and male dominance
              education.                                   don’t afford girls with disabilities
                                     Refusal of schools    decision-making power.
                                     to enrol.
                                                           Attitudes and stigma extend to the
                                                           school authority and confirm the bias
                                                           at institutional level.
Distance of   Safety concerns    +   No accessible         Resource gap both at family and
schools and   during travel          transport –           at institutional level – government
transport     to and from            depending             subsidies often don’t cover real costs;
              school related         on availability       transport infrastructures are not
              to safety of           of parents to         designed with disability in mind.
              transport and          provide transport;
              protection             diminished access     Lack of political will and resources to
              from abuse,            to mobility aids.     provide adequate school places for
              especially                                   girls with disabilities.
              sexual violence.       Fewer secondary
                                     schools for girls     Gender inequality and power
                                     with disabilities     imbalances between men and
                                     or accessible         women put girls at high risk of
                                     boarding schools,     sexual violence. This is exacerbated
                                     especially in         by the even lower status of girls with
                                     remote areas.         disabilities, and the frequent lack of
                                                           consequences for perpetrators.
                                     Higher risk of
                                     sexual violence in    Institutional gaps in providing
                                     residential special   protection and redress are based on
                                     schools and higher    a combination of lack of capacity in
                                     risk of sexual        understanding disability and negative
                                     violence during       attitudes towards girls (and women)
                                     school journeys.      with disabilities.

18
Shared barriers
                                    Additional
              for girls with
Issue
              and without       +   barriers for girls     Root causes
                                    with disabilities
              disabilities
Teaching/     Girls             +   Poor learning          Social gender norms that place
learning      overlooked in         outcomes result        higher value on boys and lower
methods and   classrooms,           in girls pushed        expectations on girls reflected in
material      gender                to repeat classes      male perspective in pedagogy and
              stereotypes           beyond age-            curricula.
              reinforced            appropriateness.
              through                                    Social norms on gender appropriate
              curriculum and        Limited availability behaviour in interaction with peers
              male-centred          of reasonable        and teachers, and on perceived
              pedagogy.             accommodations       suitable professions for women,
                                    or learning          reflected in unequal resource
              Girls not             materials.           allocation and limited diversity in
              included in                                professional offers for girls in higher
              classroom             No encouragement education.
              discussions           to transition
              and pushed            because of           Teachers not motivated/not trained
              into non-             perceived lack of    to adapt teaching material and
              professional          labour productivity, pedagogy, or don’t believe in
              courses,              pushed into low-     inclusive education. This is based on
              limited               skill vocational     poor incentives by government and/
              transition to         training.            or limited resources, and attitudes
              secondary                                  that children have to adapt to the
              education or          Limited referral for school and fit into the education
              vocational            assistive devices    system.
              training and to       and rehabilitation.
              work.                                      Misconceptions over capacity of
                                    Lack of health/      girls with disabilities (including their
                                    sexual education     ability to learn), compounded by
                                    and increased risk social norms that attribute low-paid
                                    of HIV infection     jobs to women, especially women
                                    and pregnancy.       with disabilities.

                                                           Resource gaps at government service
                                                           level compounded by attitudes
                                                           that prioritise boys over girls in
                                                           the provision of services. Negative
                                                           attitudes and misconceptions
                                                           that girls with disabilities are
                                                           asexual, should not have sex and
                                                           are not capable of taking care
                                                           of children compounded by
                                                           lack of understanding of how to
                                                           communicate health and reproductive
                                                           information to girls with intellectual
                                                           or hearing disabilities.

                                                                                                19
Shared barriers
                                      Additional
               for girls with
Issue
               and without        +   barriers for girls   Root causes
                                      with disabilities
               disabilities
Inflexible     Competing          +   Health-related       Social norms that prioritise the
structures     demands with           interruptions        reproductive role of girls over
               household              without              education reflected in lack of
               work/care.             opportunities        supportive policies.
                                      given to catch up.
               Girls who are                               Institutional capacity and political will
               pregnant or            No resources         to understand and accurately cost
               have small             (budget plans)       and allocate the resources needed to
               children are           provided to          support special needs.
               not allowed to         support special
               return.                needs.
Poor quality   Modesty            +   Health issues        Institutional capacity and prioritisation
environment,   related issues         around lack          based on lack of understanding
including      for sanitation,        of accessible        of accessibility needs, and lack of
WASH           including              WASH facilities,     understanding or giving equal weight
facilities     menstruation           especially during    to gender-sensitive infrastructures.
               management.            menstruation;
                                      inaccessible         Capacity gaps in supporting girls with
               Overcrowded            buildings/           disabilities according to impairment
               classes favour         classrooms (incl.    and gender specific needs; negative
               more vocal and         light, sound).       attitudes based on disability bias
               assertive boys.                             (incapable of learning) and gender
                                      Girls with           bias (no value).
               Girls called           disabilities
               out of class for       ignored; higher      Social gender norms that emphasis
               cleaning, or           risk of abuse by     reproductive roles for girls.
               fetching water.        teachers, peers,
                                      volunteers.

20
III International
frameworks &
policies/position
papers

                    21
Governments and international agencies have recognised the importance of developing
frameworks and policies to respond to the barriers experienced by girls with disabilities in
accessing education. The following table gives an overview of international frameworks
and initiatives that provide pathways towards education for girls with disabilities, with key
statements related to inclusion.

Table A: International frameworks and initiatives
supporting inclusive education and girls’ education

                                                       Consideration of gender
Framework          Article(s) on education
                                                       and disability
UN Convention Art 10 refers to the elimination of      The original treaty text does not
on the         discrimination against women, and to    refer to or mention girls and women
Elimination of ensuring equal rights and opportunities with disabilities. However General
Discrimination with men in the field of education      Recommendation No 18 by the
Against        throughout the entire education cycle.  Committee on the Elimination of
Women                                                  Discrimination Against Women calls
(CEDAW) 1981                                           for measures to ensure girls and
                                                       women with disabilities have equal
                                                       access to education and employment
                                                       among other services.48

UN Convention      Art 23 refers to the rights of mentally       Within the definition of children
on the Rights      or physically disabled children to access     with disabilities, the gender-neutral
of the Child       (among other services) education in           lens provides no perspectives on the
(CRC)              order to achieve the fullest possible         specific situations of girls (and boys)
1989               social integration and individual             with disabilities.
                   development.

                   Art 28 recognises the right to education
                   for all children on the basis of equal
                   opportunity.
Salamanca          The framework encourages                      In this framework, special
Framework for      governments to stop segregating               educational needs are not just
Action 1994        educational provision for children with       related to children with disabilities.
                   special educational needs (including          The framework makes it clear that
                   children with disabilities) and to ensure     a range of vulnerabilities, such as
                   schools ‘...accommodate all children          poverty, ethnicity or language, could
                   regardless of their physical, intellectual,   affect any child’s ability to learn.
                   social, emotional, linguistic or other        Inclusive education is therefore
                   condition.’                                   conceived as a way to ensure
                                                                 that the needs of all children are
                                                                 being properly accommodated.
                                                                 The framework calls for education
                                                                 to become child-focused and to
                                                                 acknowledge the heterogeneity of
                                                                 children, even within their ‘assigned’
                                                                 vulnerable groups, e.g. gender,
                                                                 disability, ethnicity.49
22
Consideration of gender
Framework         Article(s) on education
                                                                  and disability
Education         Goal 1: Expanding and improving                 Throughout the framework, the
for All           comprehensive early childhood care              emphasis lies on gender-sensitive/
(EFA): Dakar      and education, especially for the most          responsive measures to ensure
Framework         vulnerable and disadvantaged children.          quality education for all with
for Action 2000                                                   a focus on primary education,
                  Goal 2: Ensuring that by 2015 all               including out-of-school and the
                  children, particularly girls, in difficult      most disadvantaged/vulnerable
                  circumstances and those belonging to            children. There is no direct mention
                  ethnic minorities, have access to and           of disability in the framework, only
                  complete free and compulsory primary            reference to special needs in the
                  education of good quality.                      context of the first two goals.

                The 2001 EFA Flagship on the Right to
                Education for Persons with Disabilities
                states that ‘the goal of Dakar will only
                be achieved when all nations recognise
                that the universal right to education
                extends to individuals with disabilities,
                and when all nations act upon their
                obligation to establish or reform public
                education systems that are accessible to,
                and meet the needs of, individuals with
                disabilities.’50
UN Convention Art 6 recognises the multiple                       The general principles explicitly
on the Rights   discriminations that girls and women with         refer to gender equality. This applies
of Persons with disabilities face and calls for measures          to all articles of the CRPD and
Disabilities    to ensure full and equal enjoyment of             therefore provides a framework
(CRPD) 2006     all rights, and the full development and          with a consistently gender-sensitive
                empowerment of women.                             approach to disability inclusion.

                  Art 9 sets out obligations to identify
                  and eliminate barriers to accessibility,
                  including education systems, so that
                  persons with disabilities can live
                  independently and participate fully.

                  Art 24 calls for measures to ensure an
                  inclusive education system at all levels
                  directed to:
                  •	The full development of human
                     potential and sense of dignity and self-
                     worth.
                  •	The development of their personality,
                     talents and creativity, as well as their
                     mental and physical abilities to their
                     fullest potential.
                  •	Enabling persons with disabilities to
                     participate effectively in a free society.

                                                                                                       23
Consideration of gender
Framework         Article(s) on education
                                                                and disability
Sustainable       Goal 4: Ensure inclusive and quality          SDG4 reflects a strong commitment
Development       education for all and promote lifelong        to education that goes beyond
Goals (SDGs)      learning.                                     academic basics and skills but also
2015                                                            looks at cultural diversity and values
                  Two targets specifically mention disability   associated with global citizenship.
                  and gender together:                          This concept draws attention to the
                                                                need to tackle social inequalities in
                  Target 4.5: By 2030, eliminate gender         and through education by aligning
                  disparities in education and ensure equal     school education with other
                  access to all levels of education and         policy areas (early childhood care,
                  vocational training for the vulnerable,       vocational training, adult learning,
                  including persons with disabilities,          etc), economic measures (e.g.
                  indigenous peoples and children in            scholarships, cash transfer schemes)
                  vulnerable situations.                        and recognising particular needs
                                                                and situations of children due to
                  Target 4.8: Build and upgrade education       gender parities, disability, ethnicity
                  facilities that are child, disability and     and other at-risk groups.51 All of
                  gender sensitive and provide safe, non-       these aspects and the emphasis
                  violent, inclusive and effective learning     of learning along life cycles are
                  environments for all.                         reflected in the targets.

A recent systematic literature review of             The other is the EFA approach, in which
education systems in low and middle income           inclusive education was not part of the original
countries makes the point that the Salamanca         agenda but rather emerged from debates
Framework for Action, and Education for All          within the special education sector. The study
(EFA) developed two education agendas from           argues that despite the many benefits that EFA
different starting points and with a lack of         brought, there has been a slow uptake on the
alignment.                                           inclusion of children with disabilities, alongside
                                                     the promotion of a broad concept of inclusive
One is the conceptualisation of inclusive            education for children from a wide range of
education emerging from Salamanca, on:               circumstances. This has led to an inconsistent
                                                     implementation of educational provisions for
1. How to move away from assumptions that            children with disabilities, with a gap in quality
the needs of children with disabilities were         assurance and/or monitoring over academic
entirely impairment-based and that children          outcomes.52
needed to be placed into special education
based largely on medical reasoning; and              The different interpretations of special
2. How to transform mainstream education             needs and inclusive education are reflected
systems so that they become aware of the             by an overall lack of clarity in literature
learning needs of all children. This should          and programme documentation, which is
help to establish education systems that are         particularly absent of clear references to girls
barrier-free.                                        with disabilities. The SDGs, therefore, with clear
                                                     mentions of disability and gender in targets
                                                     and with specific indicators, represent a real
                                                     opportunity to move towards programmatic
                                                     approaches in which gender and disability
                                                     inclusion are evidenced.

24
Policies and position papers                         Equality and Inclusiveness in Teaching and
                                                     Learning Materials in 2015 gives practical advice
on gender and disability in                          on representation, illustration, language and
                                                     roles to promote gender equality and inclusion
education                                            of various marginalised groups such as children
                                                     with disabilities. Resulting projects that are
Based on government ratification of and
                                                     available on the website as examples still seem
commitment to international frameworks,
                                                     to focus on either disability or gender. This
a number of policies and position papers have
                                                     raises the question to what extent guides are
been developed to adhere to the principles
                                                     taken on board and are seen as binding in the
of inclusion.
                                                     development of projects.
I) Multilateral/bilateral agencies/donors
                                                     The UK Department for International
A review in 2010 of recent policies of major
                                                     Development’s (DFID) revised Disability
multilateral and bilateral agencies regarding
                                                     Framework (2015) commits to addressing
disability inclusion indicates that disability has
                                                     gender and disability disparities, especially
become a part of international cooperation and
                                                     in the context of gender-based violence, and
development aid. International cooperation
                                                     more work in the fields of education and
policies have often linked disability to the
                                                     livelihoods. Guidance notes that accompany
Millennium Development Goals (MDGs) (which
                                                     the grant application processes include
preceded the SDGs) – even though the MDGs
                                                     definitions of marginalised population, what
did not mention disability. The interest in
                                                     is meant by gender and how to measure
disability seems to have a strong focus on the
                                                     disability. On a practical level, it means, for
link between disability and poverty, and more
                                                     example, all new schools built with DFID
specifically, the link between disability and
                                                     funding have to be fully accessible - although
poor education, low employment rate, loss
                                                     on its own physical accessibility is insufficient,
of income and Disability-Adjusted Life Years
                                                     and should be but one of many interventions
(DALY). However, out of the 31 agencies and
                                                     to address the educational needs of boys and
organisations reviewed, only the Council of
                                                     girls with disabilities. Since July 2016 a new
Europe, AusAid, Austrian Development Agency
                                                     funding initiative within DFID’s Girls’ Education
(ADA), and NORAD specifically referred to the
                                                     Challenge, Leave No Girl Behind, calls for
interaction of gender and disability in either
                                                     organisations to deliver quality education
their priorities or guiding principles.53 AusAid’s
                                                     interventions for highly marginalised girls
2015-2020 Development for All Strategy
                                                     including girls with disabilities. These should
continues to include the gender and disability
                                                     improve literacy, numerical and life skills and
intersectionality in its guiding principles.
                                                     tackle harmful social and gender norms that
                                                     contribute to girls being out of school.
Following the signing of the CRPD by the USA
in 2009, USAID published a guide on how to
                                                     The Committee on Women’s Rights and Gender
integrate disability in gender assessments,
                                                     Equality at the European Parliament in 2013
recognising additional issues based on
                                                     presented a report on women with disabilities
disability that impact on the equitable access
                                                     with the motion for a resolution. This included
to development programmes.54 The USA
                                                     stressing the importance of adopting a
government’s Let Girls Learn initiative, launched
                                                     gender-sensitive approach to disability in
in 2015, recognises compounding barriers
                                                     the post-2015 agenda and addressing the
for hard-to-reach girls including those with
                                                     intersectional discrimination of women
disabilities. In its Global Strategy to Empower
                                                     and girls with disabilities in all spheres of
Adolescent Girls (2016) USAID states its
                                                     life including education, vocational training
intention to focus on extending interventions
                                                     and employment.55
and programmes to these girls. The publication
of USAID’s Guide for Strengthening Gender

                                                                                                     25
II) UN agencies                                     At the NGO level, there is a mixed picture of
The East Asia Pacific UN Girls’ Education           explicitly linking gender and disability related
Initiative released an e-publication reviewing      barriers to education in policy briefs and
issues around education for girls with              position papers:
disabilities. This found that in the majority of    •	ActionAid published a model national
reviewed countries in the EAP region special           policy for the prevention, management
education schools are more widely in use.              and elimination of violence against girls at
However, even where there are efforts to               school. This included a section dedicated
include children with disabilities in mainstream       to girls with special needs, including girls
schools, there is rarely a gender perspective          with disabilities, outlining responsibilities of
applied. Traditional teaching methods of               schools and governments to prevent violence
whole-class and rote learning and/or lack              and assist survivors.60
of allocated resources to support specific          •	Plan International conducted research on
academic and social needs of boys and girls            the inclusion of children with disabilities in
with disabilities pose major obstacles to quality      child protection. This confirmed high levels
inclusive education.56                                 of violence experienced by boys and girls
                                                       with disabilities and made recommendations
UNGEI, together with UNAIDS and EFA Flagship           to organisations and government, and for
on the Right to Education for Persons with             research.
Disabilities, piloted and published a manual        •	CBM presented a submission to the expert
on tools for education sector planning in 2010.        committee on CEDAW on Art 10. This
This manual aims to support governments,               highlighted the specific barriers of girls
development partners and other stakeholders            with disabilities. It called on state parties
to address equity and inclusion in education           to CEDAW to consider Art 24 and Art 9
sector planning.57                                     of the CRPD when implementing and
                                                       monitoring Art 10, and to include disability
III) NGOs and networks                                 disaggregated data when reporting on the
In preparation for the Oslo Summit on                  implementation of Art 10.
Education in Development in 2015, an
international expert group (consisting of           In their policy papers, a number of
specialists from DFID, World Bank, UNICEF,          international development organisations
Global Partnership for Education and INGOs)         refer to issues around education for children
prepared a paper on mainstreaming disability        with disabilities without adding a gender
in education. They provided recommendations         perspective. For example, a call for Education
to address the specific situation of girls          For All initiatives to consider and monitor the
with disabilities with regard to costs, data        implementation of various CRPD articles left
collection and analysis, sensitisation and          out reference to Art 6. This therefore failed
safe school routes.58                               to acknowledge girls with disabilities as a
                                                    particularly marginalised group of children.
The Girls’ Education Working Group of the           Others, despite naming gender as an important
Gender and Development Network (GADN) UK            principle in their strategy, don’t go much
published a paper in response to the UN’s High      beyond a quantitative dimension of gender
Level Panel report on the post-2015 agenda.         inclusion in projects. Other mainstream
They suggested post-2015 gender-sensitive and       organisations that specifically address
responsive education goals, explicitly including    marginalised and most vulnerable girls don’t
children with disabilities.59                       seem to include disability in important issues
                                                    around girls’ education, despite the very
                                                    distinct barriers that girls with and without
                                                    disabilities share and additional barriers that
                                                    girls with disabilities face.

26
Considering these examples, it is clear that
there are efforts to pay greater attention to
girls with disabilities in education. However,
there is little evidence of the uptake of
guidelines, position papers, and toolkits
that would translate into implementation of
interventions targeting girls with disabilities.
In the next section we look at the few
organisations that have implemented practical
initiatives using the above frameworks and
policies to support girls with disabilities
into education.

                                                   27
IV Programmes
and practices
addressing
barriers to
education
for girls with
disabilities

28
The findings show that not                         to share documents, or projects are ongoing
                                                   and documents were not yet available) this
much has changed since the                         section provides an overview of the input of
                                                   programmes to: achieve access to schools;
2003 research with regards                         provide child-centred, inclusive and gender-
to the quantity of available                       sensitive teaching and learning; and to
                                                   contribute to the protection of girls with
research and evidence on the                       disabilities from violence and harmful practices
effective inclusion of girls with                  that affect retention and learning outcomes.

disabilities in education.                         Some projects were designed to explicitly
                                                   include or focus entirely on girls with
This is in spite of the introduction of the CRPD   disabilities. Others were designed for children
and the post-2015 discussions on disability and    with disabilities with a limited gender lens,
gender inclusive education. This is not to say     i.e. certain aspects of the project addressed
that programmes do not exist. However, there       the situation of girls with disabilities but did
is little documentation and robust evidence,       not systematically analyse and respond to the
especially in terms of educational outcomes        specific intersectional barriers for girls with
comparing disabled and non-disabled peers.         disabilities. Published research on interventions
                                                   that tackle specific barriers was also included
This chapter describes selected project            when it directly related to girls with disabilities
interventions addressing barriers to education     or distinguished between experiences of boy
for girls with disabilities.61 The selection was   and girls with disabilities.
based on records and/or oral accounts of
interventions explicitly aimed at girls with       Projects that did not distinguish between girls
disabilities. Given the incomplete availability    and boys with disabilities in their records were
of records (because there was no permission        not included.

Description of interventions addressing barriers to education
Identification and enrolment                       identified children with disabilities, including
All reviewed interventions employed extensive      some who were kept hidden at home. The
sensitisation campaigns involving families of      success of identifying and enrolling children
children with disabilities, communities, school    (including girls with disabilities) through this
staff and local government officials. These        approach was attributed to the assumption that
campaigns raised awareness of the rights of        children do not have the gendered perspective
all children to education, including girls with    that girls should not go to school. Allowing them
disabilities, and made the case for inclusive      to take the lead on identification with support of
education in mainstream local schools to address   programme staff helped persuade parents of girls
social justice and equality.                       with disabilities to enrol them.63

Plan International in Sierra Leone and Leonard     Sightsavers’ project on youth employment for
Cheshire Disability in Bangladesh used radio       young people with disabilities in Uganda made
advertising, billboards and promotional videos     a radio appeal to adolescent and young women
depicting girls with disabilities, which helped    with disabilities to enrol for vocational training.
raise awareness around their rights and their      Recognising their disadvantaged educational
ability to be at school and learn.62               situation, a point quota system was applied to
                                                   enable them to pass the enrolment criteria in
AbleChild Africa employed a child-to-child (CtC)   Vocational Training Institutes.64
approach in which primary school children

                                                                                                     29
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