TULIP TALKS - Parkinson's New Zealand

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TULIP TALKS - Parkinson's New Zealand
TULIP TALKS      THE QUARTERLY NEWSLETTER FOR
                      THE PNZCT NORTHERN REGION

                                       ISSUE 2        |   JUNE 2021

Parkinson's Red Tulip Walks
Raise Funds and Awareness
in April
Promoting health, wellbeing, and exercise
with a strengthened sense of community
and family.

Ron Wallbank is a WW2 veteran who served in the
NZ Navy on the famed Achilles warship. On his
return to New Zealand after the war ended, he was
granted a rehab dairy farm east of Te Puke where
he stayed for most of his life, with his wife Mary.
After raising their four children, they sold their farm
                                                           Ron and his daughter walking Mount Maunganui in April this year.
and retired to Mount Maunganui.
                                                          Ron has always been fit and attributes his wellbeing
His wife was diagnosed with Parkinson’s and Ron           to a Naval Officer who forbade him from smoking
involved himself in exercise classes and fundraising      and a host of other theories. He’s quick-witted and
events such as the 24-hour sponsor circuit walks in       a very jovial character. Ron walked around Mount
Queen Elizabeth Park. He continued helping                Maunganui using a tramping stick and as the
Parkinson’s New Zealand where ever he could,              above photo depicts, he was happy doing it. Not a
even after Mary passed away. He was awarded a             bad feat for a man who will turn 99 in July!
Life Membership at PNZCT for his tireless service.
                                                          Ron's walk raised over $2000 for his local region.
Recently, his daughter was also diagnosed with
                                                          Following other Red Tulip Walks around the
Parkinson’s and he continues to help her in any
                                                          country, it is hoped that there will be more walking
way possible. His son-in-law, Alan Birley, was
                                                          events in the year ahead.
discussing the up-and-coming Red Tulip Walk's - a
new initiative introduced this year by PNZCT. When
                                                          Red Tulip Walks can be hosted by individuals,
Ron overheard a friend saying “they wished they
                                                          families, and businesses, or social groups to raise
could participate but had another engagement
                                                          funds and awareness for Parkinson's New Zealand.
that day”, Ron offered to walk for him but laughed
and then said, "but you will have to pay me first!”.
                                                          If you wish to have your own Red Tulip Walk then
                                                          please get in touch. We'd love to hear from you.
And thus, it took off like that, only a week out from
                                                           Email Karen Schade, Community Engagement
the event date. Ron is a local identity in the area,
                                                          Advisor for the Northern Region -
so he gained sponsors with ease. Friends and
family also got it out there.                             karen.schade@parkinsons.org.nz
TULIP TALKS - Parkinson's New Zealand
TULIP TALKS – NORTHERN REGION                                                 ISSUE 2 – JUNE 2021

Parkinson's New Zealand Charity Golf Tournament
The annual golf tournament in Auckland on 8th April 2021 was a fantastic success and
enjoyed by all.

Held at Pupuke Golf Course on Auckland's North Shore, the Parkinson's New Zealand Charity Golf
tournament raised just over $22,000 for PNZCT services in the Auckland region. The tournament
went ahead despite a date change due to the March COVID-19 lockdown in Auckland.

Thanks to Diane Nicholson and Sandie Jennins for their help on the organising committee. The team
at Pupuke Golf Club went above and beyond to make the day a great success. Jacqui and the team
from Catalyst Group kept the BBQ and refreshments cart circulating and the evening was enjoyed
by all. Thank you to Summerset and Catalyst who supported the event as our premium partners.

Red Tulip Appeal Raises Much Needed Funds
The Tulip is the international symbol for Parkinson's Awareness
and the red tulip is the official symbol of our charity.
This April, across New Zealand, volunteers were out and about collecting for Parkinson's services in
their communities. We thank all of the wonderful volunteers who gave their time to represent our
organisation at malls and street corners, shaking buckets and selling Tulip Bulbs for the cause.

Red Tulip Walks Take Off Around the Country
Thank you to all the groups who hosted a Red Tulip Walk in April.
Walks can be held at any time during the year, in a park, at a beach, at a school, or indoors on a
treadmill. The options are endless! To arrange your own Red Tulip Walk, please get in touch with
Karen Schade on karen.schade@parkinsons.org.nz or 021 302 580 to chat over ideas.
TULIP TALKS - Parkinson's New Zealand
TULIP TALKS – NORTHERN REGION                                                        ISSUE 2 – JUNE 2021

Special Tulip Cream Tea recognises World Parkinson's Day
We extend our sincere thanks to Jocelyn Grantham, Johanna Quirk, and Petra Bagust, as well
as their families, for hosting a stunning Tulip Cream Tea on Sunday 18th April. Over 70 people
attended the event that raised $2,200. Funds raised will be put toward Parkinson's New
Zealand services in the Auckland region.

Held at the Wintergarden Tea Rooms in Auckland, guests enjoyed entertainment by members of the Brass
Band from King's College, as well as a delicious high tea.

Launched last Spring, Tulip Cream Tea events are becoming very popular. Events are hosted throughout
Spring, with a few people choosing to host "special" events at other times throughout the year. Tulip
Cream Teas are an opportunity to celebrate birthdays or special anniversaries while doing something
beneficial for Parkinson's New Zealand's cause by raising vital funds.

The 2021 Tulip Cream Tea campaign will be launched at a High Tea event at the Pupuke Golf Club Lounge
on Thursday, 23rd September 2021, and tickets will go on sale in July. Or, if you would like to host your own
Tulip Cream Tea, please email tuliptea@parkinsons.org.nz
TULIP TALKS - Parkinson's New Zealand
TULIP TALKS – NORTHERN REGION                                                                ISSUE 2 – JUNE 2021

                                                                UPBEAT 2021
                                                                Rotorua | July 30 & 31, 2021

                                                                This year's UPBEAT conference for people with early-
                                                                onset Parkinson's will take place in the geyser city of
                                                                Rotorua.

                                                                Anyone with early-onset Parkinson's and under the
                                                                age of 65 is invited to attend, along with their carers,
                                                                partner, or support persons.

                                                                The event will run over two days and you'll be joined
                                                                by some of New Zealand’s top neurologists,
                                                                researchers and performance coaches to explore
                                                                how to live your best life ever with Parkinson’s,
                                                                during this interactive weekend.

Andrew Bell, CEO, and Robyn Cotton at the Auckland Launch       Tickets available on iTicket.co.nz

Mary and Me Book Launch                                         Volunteer Awards
Robyn Cotton is visiting the regions from                       Calling for nominations
May to July talking about her new book.
                                                                Each June, Parkinson's New Zealand recognises
On World Parkinson's Day, we were privileged to                 regional volunteers who have made a contribution to
host a special book launch in Auckland of "Mary                 Parkinson's NZ over the past year. Please message
and Me", by the North Shore-based author,                       your local Action Group contact by 15th June 2021 with
Robyn Cotton.                                                   your nomination. Contacts are on the backpage of this
                                                                newsletter.
Robyn, who is the author of "A Skylark Flies", lives
with Parkinson's and was a previous trustee of
the PNZCT Board. Her new book follows two
                                                                Tulip Bulbs Sell out in Days
women with Parkinson's across different
                                                                This year we sold out of bulbs in most areas in
timelines - Mary, who lives with Parkinson's in                 just a few days!
the early-19th century, and Rose, diagnosed in
                                                                Thank you to Action Group members and other
the 21st century.
                                                                volunteers who collectively sold a whopping 2,070
                                                                packets of Tulip Bulbs across Waikato, Auckland and
Robyn visited Whangarei on 5th May and will
                                                                Northland this year. We will order more next year to
head to the Waikato on 22nd May to speak at                     meet the increasing appetite for our lovely Tulip Bulbs.
their Celebrating Creativity event. Following that,
Robyn intends to tour most of the North Island
speaking at various PNZCT social events.
Proceeds from the sale of the book are
                                                                Wellness Weekend
earmarked for Parkinson's-related projects.                     The planned wellness weekend at Bethells Beach in
                                                                Auckland on 25-27 July is now full.
To secure your copy of "Mary and Me" for $25.00
or arrange a talk you can contact Robyn on                      Seeking Action Group Members
021 890 362 or rmcotton.hatherop@gmail.com.
                                                                We are recruiting for new representatives in the
                                                                regions for our active Action Groups.

                                                                If you have five hours a month to give and would like
                                                                to make a tangible difference to people with
                                                                Parkinson's in your local area, then please get in touch
                                                                with your local Action Group contact as listed on the
                                                                back page.

                                                                We need new members in Waikato and throughout
A full house at Pupuke Golf Club for the April book launch of   Auckland to join our vibrant Action Groups of
"Mary and Me" on World Parkinson's Day                          volunteers.
TULIP TALKS - Parkinson's New Zealand
TULIP TALKS – NORTHERN REGION                                                           ISSUE 2 – JUNE 2021

Social Activities                                                              Kauri Museum Trip
                                                                               Matakohe
North Shore                                                                    Friday, 18th June
                                                                               10:30 am
Living Positively with                                                         The Whangarei, Dargaville, and
Parkinson's Social Event                                                       Waipu groups have arranged a
                                                                               day trip for PwP and their families.
                                        Volunteers are the life-blood of our
Sunday, 20th June 2021                  organisation.
                                                                               Museum entry is $15. Lunch at the
3:00 pm to 5:00 pm                                                             Gumdiggers Cafe will follow.
Pupuke Golf Club                       Auckland-wide                           Inquiries to Michael Dragicevich -
                                                                               021 929 542
Dr. Victor Birger Dieriks, PhD         Volunteer Tea                           michael.88.md@gmail.com
Parkinson's and COVID-19.

Living Positively with                 Parkinson's New Zealand will
                                       host a morning tea to thank             Celebrating Creativity
Parkinson's Walk
                                       volunteers who have                     Waikato
                                       contributed to activities in the        Unfortunately, this event has been
Sunday, 18th July 2021                 past 18 months. This includes
11:00 am to 2:00 pm                                                            canceled due to low numbers.
                                       Action Group volunteers,
Orewa Estuary Walk                     general fundraisers and Red
                                       Tulip Appeal volunteers. Guests         Mid-Winter
Living Positively with                 will be treated to scones with
Parkinson's Social Event               jam and cream, ham and
                                                                               Christmas Lunch
                                       cheese croissants as well as tea        Waikato
Sunday, 15 August 2021                 and coffee. There will be a guest
3:00 pm to 5:00 pm                     speaker, awards and raffles.            Thursday 17th June 2021
Pupuke Golf Club                                                               Glenview Club
Mark McMillan                          Thursday, 24th June 2021                211 Peacockes Road,
DBS - A Personal Journey               The Wintergarden Cafe,                  Fitzroy, Hamilton
                                       Auckland Domain                         12:00 pm - 2:00 pm
Please contact Wendy Horgan            10:30 am - 12:00 pm                     $20.00 per head
about any North Shore events
                                       RSVP no later than June 17th.           Join your Waikato Action Group for
ud1family99@gmail.com
                                       karen.schade@parkinsons.org.nz          some mid-winter cheer. Please
027 433 6078
                                                                               purchase tickets online, via
                                       Northland                               iTicket.co.nz.
South Auckland                         Life Membership awarded
Walking & Coffee Group for                                                     It is far more easier for us to manage
those recently diagnosed               Members of the Northland                ticketing this way. We will close off
                                       Action Group gathered to                the sale of tickets on Monday 14th
20th June, 18th July                   present Marilyn Edwards with            June as the caterers require final
1:00 pm                                her Life Membership certificate         numbers on that day.
Conifer Bakery Cafe, 68a Walter        in May. Marilyn has been a
Strevens Drive, Conifer Grove.         volunteer for many years and            The lunch will be a fun social
                                       we extend our sincere                   gathering with raffles and some spot
Contact Nikki Weir regarding
                                       gratitude to her for years of           prizes so please join us, the more the
this group - 027 457 2882
                                       service.                                merrier. Prize for best "in theme".
ogilvieb1912@gmail.com
                                                                               Enquiries can be made to Mike
                                                                               McKay directly. His contact details
                                                                               are on the back page of this
                                                                               newsletter.

 Nikki Weir hosts the walking group.   Marilyn (centre) with members of the
                                       Northland Action Group
TULIP TALKS - Parkinson's New Zealand
TULIP TALKS – NORTHERN REGION                                                                         ISSUE 2 – JUNE 2021

                                                                                         Northern Area Contacts
                                                                                               Local Action Group
                                                                                                    Karen Schade
                                                                                           Community Engagement Advisor
                                                                                           karen.schade@parkinsons.org.nz

                                                                                            Jo van Kan - Akl Central & West
                                                                                                  jovk90@gmail.com

                                                                                              Nikki Weir - Akl South & East
                                                                                                ogilvieb1912@gmail.com
                                                                                       Wendy Horton - Akl Northshore & Rodney
Dr Victor Dieriks, B.Eng., MSc, MBE, MCE, PhD is our guest speaker                            ud1family99@gmail.com
                                                                                            Michael Dragicevich - Northland
Parkinson's and COVID-19 - Special Event                                                      michael.88.md@gmail.com

Living Positively with Parkinson's Social Event                                                  Mike McKay- Waikato
                                                                                                mjmckay21@gmail.com
Sunday, 20th June 2021 | 3:00 pm to 5:00 pm
Pupuke Golf Club, Campbells Bay                                                                Parkinson's Nurses
Guest Speaker - Dr. Victor Birger Dieriks, PhD                                           Margaret McNab – Central Auckland
                                                                                         margaret.mcnab@parkinsons.org.nz

Dr. Victor Dieriks is a primary researcher in the Faculty of Medical and                  Yvonne Glassborow – East Auckland
                                                                                        yvonne.glassborow@parkinsons.org.nz
Health Sciences and is a part of Brain Research New Zealand and the
                                                                                             Debbie Pincott – North Shore
Centre for Brain Research. He was recently awarded a prestigious                           debbie.pincott@parkinsons.org.nz
Health Research Council Sir Charles Hercus fellowship. Dr. Dieriks
                                                                                             Rachel Turner – West Auckland
focuses on the early effects of Parkinsonism conditions.                                    rachel.turner@parkinsons.org.nz
                                                                                             Glenys Best – South Auckland
Dr. Dieriks is actively researching Parkinson’s and alpha-synuclein,                         glenys.best@parkinsons.org.nz
and recently wrote a popular press article about Parkinson’s and
                                                                                               Janine Mair - Waikato South
COVID-19. Entry to the event is by Koha.                                                     janine.mair@parkinsons.org.nz
                                                                                          Vicki Donderwinkel - Waikato North
RSVPs are essential to Wendy Horgan                                                     vicki.donderwinkell@parkinsons.org.nz
ud1family99@gmail.com
                                                                                               Liz Cook - Far North District
0274 336 078                                                                               elizabeth.cook@parkinsons.org.nz
                                                                                       Vicki Sadgrove - South of Far North District
Meet your Parkinson's New Zealand                                                          vicki.sadgrove@parkinsons.org.nz

Community Engagement Advisor
Karen Schade is PNZCT's Community Engagement Advisor for the Northern
                                                                                        Parkinson's New Zealand
Region, working with the Waikato, Auckland, and Northland Parkinson's
                                                                                             PO Box 11 067, Manners Street,
Action Groups and in those communities to facilitate fundraising and                                Wellington 6142
awareness activities for PNZCT. Karen lives just north of Auckland with her                     Phone: 0800 473 4636
husband John, and three rescue dogs. She Whakapapa's to Ngāti Kahu in                        Email: info@parkinsons.org.nz
Whangaroa, Northland and Ngāti Māhanga in Whatawhata, Waikato. She has                       Web: www.parkinsons.org.nz
been with PNZCT since 2018. In 2019, Karen developed the Tulip Cream Tea                      Follow us on social media:
campaign and is regularly seen at events and social activities in the region.
 You can contact Karen directly with inquiries on social or fundraising
activities: karen.schade@parkinsons.org.nz or 021 302 580.

                                                                                                Thanks to our
                                                                                               recent sponsors

                                                                                                                   REHABILITATION
                                                                                                                       TRUST

Karen (above left) accepting a donation from Summerset Villages and (right) during a
yoga holiday to India just prior to the March 2020 COVID-19 lockdown.
TULIP TALKS - Parkinson's New Zealand TULIP TALKS - Parkinson's New Zealand TULIP TALKS - Parkinson's New Zealand TULIP TALKS - Parkinson's New Zealand
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