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SUMMER, 2017
Asthma & Allergy Bulletin
Asthma and Allergy Foundation of America • New England Chapter
ALLERGY MANAGEMENT
Food Allergy and Anaphylaxis Management in Massachusetts Schools
by Michael Pistiner, MD, MMSc School Food Allergy and the care of a child with a food
Anaphylaxis Management allergy must effectively read
This article originally published labels, prevent cross contact,
on AllergyHome.org. Adapted by Effective food allergy use efficient cleaning, and
Michael Pistiner for use by AAFA management is needed at all communicate clearly. They must
New England. times and all circumstances. also be prepared for allergic
Prevention and emergency emergencies. Anyone responsible
preparedness are the pillars for a child with food allergies
of food allergy management. must be able to recognize a
Small amounts of a food that severe allergic reaction, have
someone is allergic to can epinephrine (treatment of choice
cause anaphylaxis (a severe, life for anaphylaxis) available, know
threatening, allergic reaction). when and how to use it, and
To prevent exposure to food know to immediately contact
allergens anyone responsible for (continued on page 3)
RESEARCH UPDATE
Landmark Study: Environmental Impact on Asthma
by Lisa Bartnikas, MD disease of the lungs, affecting cockroach, cat, dog, dust mite,
more than 7.0 million children mouse and rat. Mouse, rat and
Children spend a majority of in the US and resulting in more cockroach allergen is detected
their time in schools, yet little than 14 million missed school when there is an infestation
is known about how school days per year. It is characterized by these pests. Cat and dog
environmental allergen exposure by repeated episodes of allergen is detected in homes of
affects asthma symptoms. In wheezing, shortness of breath, pet owners and in schools when
a recent study, researchers chest tightness and nighttime people with pets at home bring
attempted to understand how coughing. Although there is no the allergen into the schools
environmental allergens found cure for asthma, once way that on their clothing. Dust mites
in schools affected children’s symptoms can be controlled is are microscopic bugs that are
asthma. by avoiding potential triggers. commonly found in upholstered
Environmental allergens furniture, carpets, bedding and
Asthma is a common, chronic commonly found indoors include (continued on page 4)
A Message from our NEW
Executive Director
Dear Friends & Supporters,
2017 AAFA New England
BOARD OF DIRECTORS I am pleased to be here at the New England Chapter of Asthma & Allergy
Foundation of America serving those in New England that suffer from
Jan Hanson, MA, President asthma and allergies. I am committed to helping people enjoy a “Life
Suzanne Ginouves, Vice President without Limits”!
Judi McAuliffe, RN, Clerk
Lyndsay King, CPA, Treasurer 2017 is a year of change and progress for AAFA New England – not only
Paul Antico am I the new Executive Director, we have a new President of the Board
of Directors, Jan Hanson, as well as, a new Treasurer, Lyndsay King. A
Lisa Bartnikas, MD
Medical Advisory Board was recently created consisting of Dr. Jennifer
Rachel Kurlantzick, Esq.
LeBovidge, Dr. Lisa Bartnikas, Dr. Michael Pistiner and Dr. Susan Rudders.
Jennifer LeBovidge, PhD
We look forward to working with them on new programming that will get
Robert Stoker
information and support out to our membership all across New England.
Elizabeth TePas, MD
Mark Uzzell AAFA NE has spent many years at the forefront of education, advocacy,
support and awareness for those in the New England area with asthma and
MEDICAL ADVISORY COMMITTEE allergies and we will continue to move forward with that mission.
Jennifer LeBovidge, PhD, Chair
My education as a lawyer and my previous experience as a Capitol Hill
Lisa Bartnikas, MD
staffer and lobbyist gives me a tremendous amount of strategic capabilities
Michael Pistiner, MD
and coalition building expertise that will assist our community. I have
Susan A. Rudders, MD
spent several years in fundraising and relationship development which will
help AAFA NE as we move into a new era of strategic partnerships and
HONORARY DIRECTORS generating sustainable revenue sources.
Irving Bailit, MD
Bette Barbadoro I am extremely grateful to all of you for your support – without you we could
not provide our services and programs. Our deepest gratitude goes to The
George Behrakis
Thoracic Foundation for their grant that makes this newsletter possible. In
Cynthia Daley
addition, thank you to our 2017 Corporate Partners – MSIC and Perfectly
Joseph Ferney
Free - we look forward to a productive year. We are looking forward
Hon. Gordon Martin, Jr.
creating partnerships and working with the entire New England community
Frank J. Twarog, MD PhD to advance our mission.
FOUNDING PRESIDENT
Albert L. Sheffer, MD Thank you!
(1929-2015)
Karen Lynch Calton
Executive Director
EXECUTIVE DIRECTOR
Karen Lynch Calton
2
ALLERGY MANAGEMENT (continued from page 1)
emergency services. Prevention and bullying. Educated and Food Allergy in Massachusetts’
and preparedness are always aware school communities can Schools: MA Guidelines for the
needed and the school setting help create supportive and management of Food Allergies in
is no exception. Effective food safe environments for students School
allergy management needs with food allergy. Awareness
sound policy and well trained and and understanding can help MA has lead the country in
knowledgeable administration, create communities of support food allergy management in US
school nurses, school staff, and and inclusion and prevent schools. It was first state in its to
school community. divisiveness. Policies and implement the use of food allergy
procedures must be implemented guidelines and also the first to
School-wide Food Allergy to not only manage a child’s establish mandated reporting of
Education is an Enormous and direct care but also include food epinephrine administrations in
Important Responsibility allergy education and awareness its schools. Here in MA we are
for all staff, parents, students and blessed with many schools having
others in the school community. full time school nurses and the
In the past, parents shouldered
the responsibility to teach those MA DPH School Health Service
responsible for the care of their Staff Food Allergy Training Unit. Used together, since the
child with food allergies. Families guidelines creation, there has not
have also been expected to School staff food allergy and been a food allergy related death
educate the other parents and anaphylaxis education is not in a MA school. The guidelines
their child’s classmates. Having only necessary in creating were updated in 2016 and
parents of individual students communities of support but continue to stand out as strong
teach staff, as well as other critically important from a and practical guidance document
parents and students, can be a practical and emergency that can be used as by schools
huge responsibility and challenge perspective. Staff can extend to help create and implement
. Social dynamics can sabotage the reach of a school nurse and sound policies. Managing
even the best educational effort. all play a role in their “team” Life Threatening Allergies in
Also, some families of children when it comes to preventing Schools, apply to public, private
and children with food allergies accidental exposure and dealing and charter schools as well as
may feel uncomfortable. Some with allergic emergencies. elementary, middle and high
children unfortunately have been They are also key players in schools. The 2016 update not
singled out and the subject of food allergy management for only includes an updated and
teasing or bullying by others. individual students. In MA select refreshed version of the MA
staff are trained to administer Guidelines but also, like the CDC
epinephrine when the school Voluntary Guidelines(Federal
Educated Schools Help Keep
nurse is unavailable. Current Guidelines based on the original
Children With Food Allergies
regulation though, do not allow MA Guidelines), include targeted
Safe and Happy
for unlicensed staff to administer education of students and
epinephrine to a student or staff parents in addition to staff and
The school culture and attitudes administration. These guidelines
member with allergies not known
of parents, teachers, and other serve as an excellent foundation
to the school. Staff education
children set the tones in our for schools to implement school
and understanding are key to
schools. Misperceptions and policies and efficiently take
establishing safe and supportive
negative attitudes about food on the responsibility of school
school communities.
allergies can lead to teasing (continued on page 5)
3
RESEARCH UPDATE (continued from page 1)
stuffed animals. People who This study is unique found in different levels in their
are allergic to these things can because it is the first schools.
experience symptoms including to comprehensively
sneezing, runny nose, cough, This fascinating study provides
evaluate asthma
and itchy, red or watery eyes. further insight into the effects
symptoms resulting from
People with asthma who have of environmental allergen
environmental allergen
these allergies can experience exposure on asthma in children.
exposure in schools.
worsening of their asthma. This study looked specifically at
allergen exposure in the school
Previous studies have shown followed by cat in 94.8%, dog in setting, where large numbers of
that asthma complications are 82.6% and dust mite in 46.5%. children spend the majority of
higher in minorities and low- Rat and cockroach were rarely their days, and demonstrated
income groups in inner-city found in schools. Levels of that the school environment is an
neighborhoods. Other studies mouse allergen found in schools important contributor to asthma
have shown that exposure were significantly higher than symptoms in children. In the
to particular environmental levels found in students’ homes. future, finding ways to decrease
allergens in inner-city homes is levels of mouse allergen in
associated with worse asthma The key finding in this study schools could have a large and
outcomes, and interventions was that children with asthma positive impact on the many
to reduce home exposure exposed to higher levels of schoolchildren with asthma.
to these allergens improves mouse allergen in schools had References:
asthma outcomes. This study more days of asthma symptoms 1.Sheehan WJ, Permaul P, Petty CR, Coull
is unique because it is the first and worse lung function. BA, Baxi SN, Gaffin JM, Lai PS, Gold DR,
to comprehensively evaluate Interestingly, this finding was Phipatanakul W. Association Between
asthma symptoms resulting from true regardless of whether the Allergen Exposure in Inner-City Schools
environmental allergen exposure children had mouse allergy. and Asthma Morbidity Among Students.
in schools. None of the other indoor JAMA Pediatr. 2017;171(1):31-8. doi:
allergens were associated 10.1001/jamapediatrics.2016.2543.
Allergen levels were measured with worse asthma outcomes. PubMed PMID: 27893060; PMCID:
in dust samples collected from The authors acknowledged PMC5349325.
classrooms from inner-city that their findings may not be 2.https://www.cdc.gov/asthma/
public elementary schools in the generalizable to other cities, asthmadata.htm
northeastern US. 351 students which may have allergens
ages 4-13 years with asthma Lisa M. Bartnikas, MD is an Allergist/Immunologist at
from 38 elementary schools were Boston Children’s Hospital and Instructor in Pediatrics
followed for 1 year during this at Harvard Medical School. She treats children in the
Allergy/Immunology Clinic, as well as in the Food
5-year study. Allergy Program and Interstitial Lung Disease Program
at Boston Children’s Hospital. She has research
In this study, mouse allergen interests in evaluation and management of food
was the most prevalent allergen, allergies.
detected in 99.5% of schools,
4
ALLERGY MANAGEMENT (continued from page 3)
community education. Parents allergies, in addition to requiring
and schools no longer need to staff training to implement Please help support SB
recreate the wheel to manage a policies. SB228 also addresses 228 by contacting your
student’s food allergies. availability of stock epinephrine Massachusetts legislators
and necessary training so that and requesting that they co-
if a full time school nurse is not sponsor the bill.
Senate Bill 228, An Act to
Establish Food Allergy Plans immediately available, even a
first time anaphylactic reaction Please see Schools.AllergyHome.
can be treated with epinephrine. org for free Food Allergy and
Senate Bill 228: An Act to
If passed, these regulations Anaphylaxis Educational
Establish Food Allergy Plans,
will build on the already Material that is consistent with
was filed January 2017. It was
comprehensive MA guidelines the MA and CDC Guidelines and
proposed and drafted by Dr.
by making policy, education, and designed to educate entire school
Christine Olsen of FASI(Food
stock epinephrine availability communities.
Allergy Science Initiative) and
necessary instead of voluntary.
Senator Cynthia Creem, with
input by local experts in food Michael Pistiner, MD, MMSc is a Boston based
allergy and school health. SB pediatric allergist and Director of Food
228 is a solid piece of legislation Allergy Advocacy, Education and Prevention
that will help MA continue to for MassGeneral Hospital for Children’s, Food
Allergy Center. He is a voluntary consultant for
lead our nation when it comes
the Massachusetts Department of Public Health
to managing students with life School Service Unit and the father of a child with
threatening allergies. SB 228 food allergy. He serves as a medical adviser for
is currently under review and the Asthma & Allergy Foundation of America,
requires that all MA schools New England Chapter. Dr. Pistiner is the author
of Everyday Cool with Food Allergies, a co-author
create a policy, that addresses
of Living Confidently with Food Allergy, and co-
prevention and emergency founder and content creator of AllergyHome.org.
preparedness for managing food
Upcoming Events presented by AAFA New England
Presentation by Michael Pistiner, MD, MMSc on food allergy management in
Massachusetts schools.
This event will be scheduled at Newton-Wellesley Hospital in early September. Details to follow on AAFA New
England website.
Coming this fall to our website: New webinar feature where presentations can be
viewed.
Kyle Dine Family Concerts - October dates and locations to be announced on our website.
Visit www.asthmaandallergies.org for more information.
5
The wonderfully entertaining Tufts Beelzebubs left the crowd with smiles
on their faces and music in their hearts! A wonderful night was had by all
as we supported the programs and services that help people with asthma
and allergies live full and healthy lives.
The Tufts University Beelzebubs seranade Blair Stone, Miss Granite State,
Photos by Carla Uzzell
whose “Appetite for Awareness” platform directly benefits AAFA New England.
6
AAFA New England thanks our many sponsors and donors!
Breath of Spring 2017 Sponsors
Corporate Partner
Massachusetts Credit Union Share Insurance Corporation (MSIC)
Benefactor Gold Patron
Genentech / Novartis New England Society of Allergy
Silver Patron
Asthma & Allergy Affiliates (Salem, Danvers & No. Andover, MA), Boston Children’s Hospital - Division of Immunology,
Michele and Bill Carrick - Executive Home Detox, Massachusetts General Hospital Food Allergy Center, Mylan,
Northeast Asthma, Allergy & Immunology (Leominster, Sudbury, Newton & Medford, MA), Debbie and John Saryan,
Shire, Sunbutter, Teva Respiratory
Supporter
Allergy & Asthma Center of MA (Chestnut Hill, MA),Baystate Financial / Mark Uzzell, Boston Children’s Hospital
Asthma Programs, Brigham & Women’s Hospital - Asthma Research Center and Severe Asthma Program, Jennifer and
Jason LeBovidge, Lincoln Diagnostics, Margaret and Robert Stoker
Friend
Allergy & Asthma Associates South (Duxbury & Buzzard’s Bay, MA), Allergy & Asthma Care (Taunton, MA)
Allergy & Asthma Treatment Specialists (Framingham, MA), Educating For Food Allergies, LLC, Suzanne Ginouves,
Michele Gottlieb, MD, Rachel Kurlantzick & Jeremy Hershfield, Massachusetts School Nurse Organization, Carol and
Robert Riley, Judith Saryan, Arlene Saryan & Christian Alexander, South Shore Allergy & Asthma Specialists (South
Weymouth, MA)
Contributor
Allergic Living Magazine, Jane T.N. Fogg, Marvin Grossman, Benjamin Krikorian, MBA, CFP, Johanna & Jeffrey
Longnecker, Judi McAuliffe, Patricia Pires, Sharon Schumack, The Strategy Group,
Frank J. Twarog, MD, PhD
Delicious desserts were donated by:
7
IN HER OWN VOICE
Why I Have an “Appetite for Food Allergy Awareness”
By Blair Stone, Miss Granite not only close to my heart, but AAFA New England signs and
State that was something relevant matching teal decorations and
that people could relate to. they kindly donated 15% of
The Miss Granite State Despite the fact that I have their proceeds that I helped
crown stands for four things: no allergies of my own, my generate that evening to the
scholarship, success, style and interest in the field has been AAFA New England Chapter.
service. A huge part of what instilled in me since I was a It was a great feeling to know
the Miss America Program is little girl. My father is very that an event I planned and
about is most definitely the passionate about his work and hosted was able to help an
service that the contestants it has inspired me to develop organization that helps those
provide to their community, that suffer from allergies and
in turn making their region a asthma in my community.
better and brighter place. It
is extremely important that Until I pass on my title in
people who are not a part of January 2018, I hope to
the pageant community know continue hosting events and
how much service plays a role keep spreading awareness
in the Miss America Program. about my platform to everyone
I come in contact with. You
Some of my earliest memories will see me on August 6th at
are being so excited to see the “Nut Free” Red Sox game
my daddy, the “alligator,” (his at Fenway Park at the AAFA
beloved nickname since I New England table with my
couldn’t say allergist), when a platform based on helping crown and sash for my next
he came home from a busy people with life-threatening attempt at letting the public
day at work. His laugh was food allergies called, “Appetite know about the importance of
contagious every time I called for Awareness.” allergy awareness! To purchase
him an alligator and he always tickets to this Red Sox game
reminded me how important Not only have I done a vast and get a chance to meet me,
his work was and that he amount of research in order learn about allergies and enjoy
helped people every day. As I to find ways to help those a peanut free baseball game,
got older, I watched the allergy that have food allergies, I email www.peanutallergy@
field expand through my have conducted fundraisers redsox.com.
father’s profession and heard that help raise money and
more and more stories about awareness of the AAFA New
people I did and did not know England Chapter. My most
suffer from life-threatening recent fundraiser took place
food allergies. at Not Your Average Joe’s in
Nashua, New Hampshire. Not
When I decided to start Your Average Joe’s let me
competing in pageants, I knew set up a generous portion
I needed a platform that was, of their dining room with
8
THANK YOU TO OUR CORPORATE PARTNERS
AAFA New England is grateful for the ASTHMA & ALLERGY BULLETIN
support of our Corporate Partners for Published three times a year by the
Asthma and Allergy Foundation of
2017. Their generous support allows us America
New England Chapter
to provide valuable resources to help our 781-444-7778
e-mail: aafane@aafane.org
members live life fully with asthma and
Karen Lynch Calton
allergies. Executive Director
Published with a grant from
The Thoracic Foundation
The Asthma and Allergy Foundation
of America, New England Chapter, is
dedicated to helping people with asthma
and allergic diseases, and those who care
for them, through education, support
for research and an array of services.
Information contained in this newsletter should
not be used as a substitute for responsible
professional care to diagnose and treat
specific symptoms and illness. Any reference
to available products and procedures should
not be construed as an endorsement. AAFA
New England, including all parties to or
associated with this newsletter, will not be held
responsible for any action taken by readers as
a result of the newsletter. ©2017. All rights
reserved. Material may not be reproduced
without permission of the publisher.
Brookline Boy Birthday Gift - PAWTUCKET RED SOX
Donation for AAFA New England PROUDLY PRESENT
PEANUT ALLERGY FRIENDLY
In April, AAFA New England use his. Donations like this not NIGHT
received a donation in Honor only warm our hearts but help
of Will Eddy a 6-year-old from MONDAY, AUGUST 21ST 7:05 PM
Brookline who invited guests
NO PEANUT PRODUCTS WILL BE SOLD
to his birthday party and asked INSIDE THE PARK ON THIS NIGHT
them to, instead of bringing
him presents, donate to a For more information contact:
charity of their choice. One Jon Basler 401- 721-5172
jbasler@pawsox.com
of his friends contributed $50
to AAFA New England to help
support people who need to
use inhalers since his father has AAFA New England serve its
asthma and he has seen him members and the community.
9
Important Information for You
SUMMER STOCK-UP: AUTO-INJECTOR SAVINGS PROGRAMS
Summer is here but school is just around the corner. for commercially insured patients without coverage for
Make sure to stock up on your auto-injectors. Take EpiPen® Auto-Injector). For full terms and conditions, visit
advantage of these savings programs to help lighten http://www.epipen.com/copay
the financial burden.
Auvi-Q
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provide up you with $25 in savings per auto-injector two- program for AUVI-Q. $0 out of pocket for all commercially
pack. *Eligibility restrictions apply. This offer is not valid insured patients, including those with high-deductible
for patients covered by Medicare, Medicaid or any other plans, who acquire AUVI-Q through the direct delivery
federal or state funded healthcare program or where service.
prohibited by law. Mylan Specialty L.P. reserves the right Direct delivery service ships AUVI-Q directly to your
to amend or end this program at any time without notice. home, and can ensure the best expiration dating for
Visit www.my-generic-epinephrine-auto-injector.com AUVI-Q. There is also support for patients who can’t
afford their medication and who do not have commercial
EpiPen by Mylan or government insurance. For more information visit:
Are you eligible to get your EpiPen® Auto Injectors for https://www.auvi-q.com/affordability/
free with the My EpiPen Savings Card®? With this savings
offer, you could be eligible for up to $300 savings per Epinephrine injection, USP auto-injector
EpiPen 2-Pak® carton. This offer can be used for a total of A generic device sold under the name Epinephrine
six (6) EpiPen 2-Pak® cartons now through December 31, injection, USP Auto-Injector which is authorized generic
2017. Print your My EpiPen Savings Card® and bring it to epinephrine auto-injector device for Adrenaclick. Process
the pharmacy, and keep bringing it every time you refill the offer along with the patient’s valid prescription.
your prescription. Read the Terms and Conditions, and fill Commercially-insured and cash-paying patients may
out the form to see if you are eligible. Certain eligibility receive up to $50 off their out-of-pocket cost for each
restrictions apply. Not valid for patients enrolled in federal epinephrine auto-injector two-pack. For more details visit
or state healthcare programs, such as Medicare, Medicaid, http://epinephrineautoinject.com/
and TriCare, and not valid for uninsured patients (except
BECOME A MEMBER OR RENEW YOUR MAKE A DONATION TO AAFA NEW ENGLAND
MEMBERSHIP!
Membership in AAFA New England helps you and Donations are gratefully accepted via check
others with asthma and allergies to enjoy fuller made payable to:
lives.
AAFA New England or credit card on our
r Individual $25 r Professional $100
website www.asthmaandallergies.org
r Renewal r New Member
r Patron $500
r Benefactor $250
MEMBERSHIP INCLUDES
r Sustaining $50
►Newsletters mailed to you
(Multiple copies to Professional members)
Honor your friends and relatives
►Personalized resources and by making a donation to
information AAFA New England. Please include the name of
►Notice of educational programs the person being honored or memorialized, and
and special events who you want us to notify of your donation. All
donations are tax-deductible.
Dues can be paid via check made payable to:
AAFA New England or credit card on our
Please remember to ask your company for a
website www.asthmaandallergies.org matching contribution to AAFA New England.
10Around AAFA New England
World Asthma Day May 2, 2017
Executive Director of AAFA NE, Karen
Calton, attended World Asthma Day
at Boston Children’s Hospital where
she distributed educational material,
played the “Asthma Challenge Game”
with passers-by and spoke with many
patients and families about asthma
and how AAFA NE is helping to raise
awareness, educate patients and
families and support those suffering
from this disease.
If you want to help raise Miss Granite State,
money for AAFA NE, Blair Stone at the
please contact Karen Fundraiser at Not
Calton, Karen@aafane.org Your Average Joe’s
Getting involved is the earlier this year.
best way to help others!
Food Allergy Awareness Week 2017
grader, Catherine Dupuis, threatening food allergies.
who has life-threatening Catherine shared, “It was
food allergies. To help truly inspiring to see the
raise awareness, Catherine entire school light up
came up with the idea of with teal bow ties. Each
making teal bow ties for morning our principal
her school community to shared important facts
wear on “Bow Tie Friday.” about food allergies with
When friends heard about the other students, this
her idea, many of whom was a great way to reach
have, or are affected everyone. I chose this
by food allergies, they project because I wanted
jumped in to help with the to raise awareness for those
project. The result – over living with life threatening
Food Allergy Awareness 900 duct tape bow ties food allergies, like
Week 2017 was celebrated were made and delivered myself.” Congratulations,
in a special way at the to the school, and were Catherine, for helping to
Florence Sawyer School worn by both students and raise awareness about
in Bolton, MA, thanks to staff to show their support food allergies in such a
the initiative of fourth of those living with life- creative way!
11NON-PROFIT
ORGANIZATION
U.S. POSTAGE
PAID
BOSTON, MA
PERMIT NO. 58109
109 HIGHLAND AVE.
NEEDHAM, MA 02494
Tel: 781-444-7778
E-mail: aafane@aafane.org
www.asthmaandallergies.org
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INSIDE THIS ISSUE...
Allergy Management in
Massachusetts Schools by Michael
Pistiner, MD, MMSc
Meet our new Executive Director,
Karen Lynch Calton
Breath of Spring 2017
Upcoming Events:
Kyle Dine Family Concerts- Oct. 2017
Save the Date!
Nut Free Red Sox
Keep up with the news and
share your thoughts.
“LIKE” US ON FACEBOOK Game
www.facebook.com/
AAFANewEngland August 6, 2017
FOLLOW US ON TWITTER
@AAFANE
www.asthmaandallergies.org
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