Child Life Services - American Academy of Pediatrics

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POLICY STATEMENT              Organizational Principles to Guide and Define the Child Health
                                                         Care System and/or Improve the Health of all Children

                           Child Life Services
                           Barbara Romito, MA, CCLS,a Jennifer Jewell, MD, FAAP,b Meredith Jackson, MD, FAAP,b AAP COMMITTEE ON HOSPITAL CARE;
                           ASSOCIATION OF CHILD LIFE PROFESSIONALS

Child life programs are an important component of pediatric hospital-based               abstract
care; they address the psychosocial concerns that accompany hospitalization
and other health care experiences. Child life specialists focus on the optimal           a
                                                                                          Child Life Program, The Bristol-Myers Squibb Children’s Hospital at
development and well-being of infants, children, adolescents, and young adults           Robert Wood Johnson University Hospital, New Brunswick, New Jersey;
                                                                                         and bThe Barbara Bush Children’s Hospital at Maine Medical Center,
while promoting coping skills and minimizing the adverse effects of                      Portland, Maine
hospitalization, health care encounters, and/or other potentially stressful
                                                                                         Ms Romito provided the benchmarking data and the majority of the
experiences. In collaboration with the entire health care team and family, child         writing; Dr Jewell designed the outline for the policy, noted and
life specialists provide interventions that include therapeutic play, expressive         updated information that was irrelevant since the last revision,
                                                                                         provided assistance with the writing, and presented the content to the
modalities, and psychological preparation to facilitate coping and                       Committee on Hospital Care; Dr Jackson provided technical assistance,
                                                                                         draft review, and content expertise for the portions related to medical
normalization at times and under circumstances that might otherwise prove                education; and all authors approved the final manuscript as
overwhelming for the child. Play and developmentally appropriate                         submitted.

communication are used to (1) promote optimal development, (2) educate                   Policy statements from the American Academy of Pediatrics benefit
                                                                                         from expertise and resources of liaisons and internal (AAP) and
children and families about health conditions, (3) prepare children and                  external reviewers. However, policy statements from the American
partner with families for medical events or procedures, (4) plan and rehearse            Academy of Pediatrics may not reflect the views of the liaisons or the
                                                                                         organizations or government agencies that they represent.
useful coping and pain-management strategies with patients and families, (5)
                                                                                         The guidance in this statement does not indicate an exclusive course
help children work through feelings about past or impending experiences, and             of treatment or serve as a standard of medical care. Variations, taking
(6) partner with families to establish therapeutic relationships between                 into account individual circumstances, may be appropriate.

patients, siblings, and caregivers. Child life specialists collaborate with the          All policy statements from the American Academy of Pediatrics
                                                                                         automatically expire 5 years after publication unless reaffirmed,
entire interdisciplinary team to promote coping and enhance the overall                  revised, or retired at or before that time.
health care experience for patients and families.
                                                                                         DOI: https://doi.org/10.1542/peds.2020-040261

                                                                                         Address correspondence to Barbara Romito, MA, CCLS.
                                                                                         E-mail: Barbara.Romito@rwjbh.org

CHILD LIFE INTERVENTIONS: PSYCHOLOGICAL PREPARATION                                      PEDIATRICS (ISSN Numbers: Print, 0031-4005; Online, 1098-4275).

                                                                                         This document is copyrighted and is property of the American
Preparing children for hospitalization, clinic visits, surgeries, and                    Academy of Pediatrics and its Board of Directors. All authors have filed
diagnostic and/or therapeutic procedures is essential during a child’s                   conflict of interest statements with the American Academy of
                                                                                         Pediatrics. Any conflicts have been resolved through a process
hospitalization and an important element of a child life program. It is                  approved by the Board of Directors. The American Academy of
estimated that 50% to 75% of children develop significant fear and                        Pediatrics has neither solicited nor accepted any commercial
                                                                                         involvement in the development of the content of this publication.
anxiety before surgery; recognized risk factors include age, temperament,
baseline anxiety, past medical encounters, and caregiver anxiety.1                       FINANCIAL DISCLOSURE: The authors have indicated they have no
                                                                                         financial relationships relevant to this article to disclose.
Children’s anxiety in the perioperative environment is associated with
impaired postoperative behavioral and clinical recovery, including
increased analgesic requirements and delayed discharge from the                            To cite: Romito B, Jewell J, Jackson M, AAP COMMITTEE ON
recovery room.2,3 Preparation can reduce anxiety and distress before                       HOSPITAL CARE; ASSOCIATION OF CHILD LIFE PROFESSIONALS.
                                                                                           Child Life Services. Pediatrics. 2021;147(1):e2020040261
surgery and/or during mask induction and may also decrease emergence

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PEDIATRICS Volume 147, number 1, January 2021:e2020040261                               FROM THE AMERICAN               ACADEMY OF PEDIATRICS
delirium after surgery.4–7 More than         stay, a clearer understanding of                Child life specialists can effectively
50 years of research and experience          procedures, and a more positive                 provide developmentally appropriate
supports 3 key elements of the               physical recovery as well as                    nonpharmacologic pain management
preparation process: (1) the provision       posthospital adjustment for children            and provide coaching and support to
of developmentally appropriate               enrolled.16 Patients spent less time on         patients and caregivers before,
information, (2) the encouragement           narcotics, the length of stay was               during, and after medical
of questions and emotional                   slightly reduced, and caregivers were           procedures.40,41 They can also
expression, and (3) the formation of         more satisfied. In other studies,                provide valuable education and
a trusting relationship with a health        researchers have found that child life          training to nurses, physicians,
care professional.3 A recent                 interventions play a major role in              students, and other personnel,
systematic review of preparation             calming children’s fears and result in          supporting health care team member
effectiveness evidence concluded that        higher parent satisfaction ratings of           competencies in the provision of
children who were psychologically            the entire care experience.8,17,18              developmentally appropriate,
prepared for surgery experienced                                                             psychosocially sound care.42,43
fewer negative symptoms than did                                                             Multifaceted institution-wide
children who did not receive formal          CHILD LIFE INTERVENTIONS:                       protocols, such as the Ouchless Place
preparation.3 Findings included              PAIN-MANAGEMENT AND COPING                      and other similar programs,
a decrease in posttraumatic stress,          STRATEGIES                                      incorporate the standard use of both
lower levels of fear and anxiety,            When combined with preparation and              pharmacologic and
increased cooperative behaviors, and         appropriate pharmacologic                       nonpharmacologic techniques,
better long-term coping and                  interventions, nonpharmacologic                 preparation of the patient and family,
adjustment to future medical                 pain- and distress-management                   environmental considerations, and
challenges. Research also                    strategies have proven successful in            training of all health care team
demonstrates that preparation and            terms of patient and family                     members.44,45
coping facilitation interventions            experience, staff experience, and cost-         Research has demonstrated that
decrease the need for sedation in            effectiveness.17,19,20 Strategies such          children are less fearful and
procedures such as MRI and                   as swaddling, oral sucrose, vibratory           distressed when positioned for
radiotherapy, resulting in lower risks       stimulation, breathing techniques,              medical procedures in a sitting
for the child and cost savings in            relaxation, and guided imagery have             position rather than supine.46 Child
personnel, anesthesia, and                   been shown to decrease behavioral               life specialists are often involved in
throughput-related expenses.8–12             distress and pain experience in                 facilitating the use of “comfort holds,”
Preparation techniques, materials,           children during invasive medical                techniques for positioning children in
and language must be adapted to the          procedures.21–25                                a parent or caregiver’s lap or other
developmental level, personality, and                                                        comforting position. In addition to
                                             Distraction strategies have been                reducing the child’s distress and
unique experiences of each child and
                                             highly effective in reducing reported           gaining cooperation, these techniques
family. Learning is enhanced with
                                             and observed pain and distress in               generally require fewer staff to be
hands-on methods versus exclusively
                                             children in inpatient, emergency                present in the room, facilitate safe
verbal explanations. Photographs,
                                             department (ED), and clinic                     and effective accomplishment of the
diagrams, tours of surgical or
                                             settings.26–32 The emergence of                 medical procedure, decrease parent
treatment areas, actual and pretend
                                             virtual reality, Internet technology,           anxiety, and increase parent
medical equipment, and various
                                             and electronic and digital devices has          satisfaction.47,48 With a goal to
models (dolls, puppets) are used to
                                             been found to be an effective means             severely limit the use of papoose
reinforce learning and actively engage
                                             of distraction in reducing pain.7,33–38
the child.1,13 Caregivers should be                                                          boards and eliminate the practice of
                                             Child life specialists may also                 multiple staff members holding
included in the preparation process
                                             develop comfort kits for use in                 a child down, these techniques
because this can decrease parental
                                             treatment areas to include age-                 provide a viable and more humane
anxiety and allow them to provide
                                             appropriate distraction items, such             alternative in most cases.
essential family-centered
                                             as bubbles, pop-up and sound books,
support.14,15
                                             light-up toys, and other visual or
An experimental evaluation of one            auditory tools.39 Distraction                   CHILD LIFE INTERVENTIONS: THE
child life program model revealed            techniques have also been shown to              THERAPEUTIC VALUE OF PLAY
that child life interventions resulted       be successful in lowering a parent’s            Therapeutic play during health care
in less emotional distress, better           fear and distress during an invasive            experiences is essential and a major
overall coping during the hospital           procedure.27                                    component of a child life program and

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2                                                                                                FROM THE AMERICAN ACADEMY OF PEDIATRICS
of the child life professional’s role.          reason video games are so popular                is easily transmitted to the patient.64
Play is crucial to a child’s social,            with this age group56). Patients in this         Child life specialists help facilitate the
emotional, and cognitive                        age group also benefit from activities            family’s adjustment to the child’s
development and is even more                    that allow them to maintain                      illness and health care experience by
critical during adversity or stress             relationships with peers and establish           providing psychosocial support and
points in a child’s life.49 In addition to      new connections through, for                     coping strategies for caregivers. They
its developmentally supportive                  example, online networking and the               can help family members understand
benefits and as a normalizing activity           availability of teen-aged activity               their child’s response to treatment
for children and youth of all ages, play        rooms in the hospital setting.57                 and support caregiving roles by
is particularly valuable for children                                                            promoting parent-child play sessions
                                                Auxiliary programs, such as animal-
who are anxious or struggling to cope                                                            and sharing strategies for comforting
                                                assisted therapy, infant massage
with stressful circumstances of                                                                  or coaching their children during
                                                instruction, therapeutic clowning,
hospitalization, illness, or grief.50 Erik                                                       medical procedures. In addition, child
                                                performing arts, and artist-in-
Erikson51 writes, “To play out is the                                                            life specialists play a pivotal role in
                                                residence programs, often used in
most natural auto-therapeutic                                                                    encouraging and facilitating family
                                                conjunction with child life services and
measure childhood affords. Whatever                                                              involvement in the patient’s care as
                                                incorporated into child life
other roles play may have in the                                                                 well as promoting communication
                                                departments, provide additional
child’s development…the child uses it                                                            between family members, providers,
                                                outlets for patients of all ages and
to make up for defeats, sufferings, and                                                          and the interdisciplinary team.
                                                their families.58–60 Live, interactive
frustrations.” Play in the health care
                                                programming using closed-circuit
setting is adapted to address unique                                                             Siblings of pediatric patients present
                                                television systems and studios can be
needs on the basis of developmental                                                              with their own unique anxieties and
                                                a particularly effective way to engage
level, self-directed interests, medical                                                          psychosocial needs, not often
                                                patients restricted to their rooms for
condition and physical abilities,                                                                assessed or addressed. Siblings, much
                                                infection-control or medical reasons.
psychosocial vulnerabilities, and                                                                like children of adult patients, can be
                                                Other interactive technology, such as
setting (eg, bedside, playroom, clinic).                                                         helped to comprehend a family
                                                video conferencing, can help patients
Play as a therapeutic modality,                                                                  member’s illness via therapeutic play
                                                engage with people outside the
including health care play or “medical                                                           and educational interventions or by
                                                hospital, including their peers, the
play,” has been found to reduce                                                                  offering support during hospital
                                                community, and their schools. The
children’s emotional distress and help                                                           visits, including diagnoses, critical
                                                ability to connect with a child’s school,
them cope with medical                                                                           care, and end-of-life situations.65,66
                                                community, and home helps normalize
experiences.52 Research has revealed                                                             Although sibling support is essential
                                                the experience by minimizing
that physiologic responses, such as                                                              in all areas, a critical care
                                                disruption of usual routines.
palm sweating, excessive body                                                                    hospitalization in the neonatal or
                                                Expressive therapies, such as those
movement, tachycardia, and                                                                       pediatric ICU presents additional
                                                provided by distinctly certified play
hypertension, can be reduced with                                                                stressors for the entire family, and
                                                therapists, music therapists, and art
therapeutic play interventions.53                                                                child life interventions are often
                                                therapists, can be offered to
                                                                                                 focused on the siblings’ psychosocial
Play can be adapted to address the              complement child life programs and to
                                                                                                 needs. Sibling support may include
developmental and psychosocial needs            provide support for particularly
                                                                                                 preparing the sibling(s) for an initial
of patients in every pediatric age              vulnerable patients.26,61,62
                                                                                                 visit and providing ongoing emotional
group. For example, infants and
                                                                                                 support throughout the patient’s
toddlers benefit from exploratory and            CHILD LIFE INTERVENTIONS:                        hospital stay. Child life specialists are
sensorimotor play, and preschoolers             PARTNERING WITH FAMILIES TO                      often involved in providing
enjoy fantasy play and creative art             PROVIDE SUPPORT                                  bereavement support to patients as
activities.54 Opportunities for parents
                                                The presence and participation of and            well as siblings and other family
to engage in play activities with their
                                                partnership with family members is               members. Grief support and legacy
young children are beneficial to both
                                                a fundamental component of patient-              activities, such as hand molds or
the patient and family, alleviating some
                                                and family-centered care and has                 memory boxes for siblings and family
feelings of helplessness that can be
                                                a significant positive effect on                  members, are often provided at the
common in caregivers and assisting in
                                                a child’s adjustment to the health care          end of life for both pediatric and adult
the child’s adjustment to the hospital.55
                                                experience.63 When parents or other              patients throughout the hospital. In
School-aged children and adolescents            family members are highly anxious                conjunction with the interdisciplinary
seek play that contributes to feelings          about the child’s illness or diagnostic          team, child life specialists are critical
of mastery and achievement (one                 and treatment regimens, such anxiety             in helping all family members

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PEDIATRICS Volume 147, number 1, January 2021                                                                                             3
understand how to support children             using the shift length as the                          The remaining 3 areas, inpatient acute
in age-appropriate ways during end-            denominator, additional nonpatient                     care, outpatient ambulatory clinics,
of-life events.                                care responsibilities are accounted for                and critical care units, all have similar
                                               in the productivity calculation,                       productivity, with approximately 1
                                               including such things as meetings,                     patient encounter per hour, or 8 in an
RECENT BENCHMARKING DATA                       committee work, student and staff                      8-hour shift.
In 2016, the Association of Child Life         education, and donor events.67
                                                                                                      The productivity data allow
Professionals (ACLP) constructed the
                                               Figure 1 identifies the total number of                 participating hospitals to clearly
Child Life Professional Data Center
                                               individual patient and family                          identify how their program compares
(CLPDC), an online database to house
                                               encounters an individual child life                    to the national average or similar
comprehensive child life program data
                                               specialist provides in an 8-hour shift                 hospitals on the basis of median
and metrics, including staffing models,
                                               in each of the 6 service areas. In                     scores. The data also serve as a tool to
staffing ratios, budget allocation data,
                                                                                                      support appropriate staffing during
and hospital descriptors.67 Using              radiology, the median productivity is
                                               0.74 patient encounters per hour, or                   hospital program growth by offering
a systematic and evidence-based
                                               approximately 6 encounters in an 8-                    a benchmark to adjust staffing
approach to measure the impact of
                                               hour day. Of all 6 areas of service,                   depending on changes in patient
psychosocial services provided to
                                               radiology encounters trend the longest                 volumes.
pediatric patients and families, this
database has synthesized information           because radiologic procedures often                    Although these ratios establish
from more than 160 child life                  require significant preparation and                     national benchmarking and staffing
programs. In addition, the ACLP                support during the procedures, which                   trends, other factors should influence
established a productivity metric              may be lengthy. Child life specialists in              staffing allocations. Child life services
measuring the number of patient and            presurgery and the ED have the                         should be available to meet identified
family encounters a child life specialist      highest median productivity, with an                   patient and family needs 7 days per
provides in a specified setting within          average of 1.2 patient encounters                      week. Staffing plans should be
the hospital during a shift. Currently,        every hour, roughly 10 patients seen                   sufficient to meet fluctuations in
more than 50 programs have                     per 8-hour shift in each of these areas.               anticipated and unanticipated staff
participated in the productivity data                                                                 absences, seasonal swings in the
collection. The productivity metric is                                                                patient census, and nonclinical
a numerical indicator of the number of                                         Radiology              community activities (such as school
patient and family encounters that can                                         Presurgery             programming, outreach events, and
be expected during the child life                                                                     increased visits and in-kind donations
specialist’s shift. This measure of                                            ED                     during the holiday season). Child
productivity is collected for 6 distinct                                       Inpaent               variables (such as age, temperament,
areas of service: (1) inpatient acute                                                                 coping style, and cognitive abilities),
care units, (2) critical care, (3)
                                                                               Outpaent              family variables (such as caregiver
radiology, (4) presurgery, (5)                                                 Crical care           anxiety, presence, and involvement)
outpatient ambulatory care, and (6)                                                                   and diagnosis and treatment variables
the ED. These 6 distinct areas are                                                                    (acute versus chronic, repeat
being used to collect and segment data
                                               10                                                     admissions, number of invasive
because the type and length of child            8                                                     procedures) are known to affect
life intervention can depend on which                                                                 psychosocial vulnerability and, thus,
medical service is being provided. A            6                                                     influence the child’s particular child
patient encounter is defined as a child                                                                life needs.68 A combination of
life specialist–provided interaction            4                                                     psychosocial risk assessment, medical
with a patient, sibling, or caregiver,                                                                and/or treatment variables (eg, the
and this serves as the numerator of             2                                                     proportion of patients on isolation
the productivity metric. The                                                                          precautions and the volume of patient
denominator is the length of the child          0                                                     and family teaching needs), and the
life specialist’s shift (eg, 8 hours). The       Paent Encounters per 8-Hour                         time requirements associated with
final metric given is the measure of                          Shi                                     particular interventions directly affect
patient and family encounters per                                                                     operational staff-to-patient ratios in
hour. These metrics account for                FIGURE 1                                               both inpatient and outpatient settings
                                               Average patient/family encounters per 8-hour
nondirect patient care activities and          shift for child life specialists in various hospital   and could necessitate a lower ratio of
direct patient care interventions. By          settings.                                              patients to child life specialist.69,70

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4                                                                                                  FROM THE AMERICAN ACADEMY OF PEDIATRICS
In addition to establishing                     a CCLS; and passing a standardized               The scope of child life programs has
a benchmarking standard for child               certification examination.71 Ongoing              developed beyond pediatric inpatient
life specialist and patient encounters,         and future requirements for the CCLS             acute care settings to include
the CLPDC houses multifaceted                   credential are determined by the Child           outpatient and other areas in which
information, such as types of                   Life Certification Commission of                  child life expertise can be effectively
organizations in which child life               the ACLP.                                        applied to support children and
specialists work, staffing, program                                                               families in stressful situations. Child
funding, reporting structure, services          In some settings, child life services are        life specialists provide services to
provided, and special services. The             augmented by child life assistants (or           presurgery and surgical centers,
CLPDC should be used as a resource              activity coordinators, child life                radiology and imaging departments,
for programs and hospitals in                   technicians, etc). Child life assistants         dialysis centers, ambulatory clinics,
evaluation and continuous                       are typically required to have core              NICUs, urgent care centers,
performance improvement of child                college coursework, such as an                   psychiatric units, hospice programs,
life programming.                               associate degree in child development,           camps for children with chronic
                                                and experience with children in group            illness, rehabilitation settings, and
                                                settings. They generally focus on the            some outpatient dental and physician
CHILD LIFE STAFFING AND ROLES                   normalization of the health care                 offices.76 Because the majority of
                                                experience, providing play activities,           children with medical complexities
Child life specialists are part of an           coordinating special events
interdisciplinary, patient- and family-                                                          are being treated on an outpatient
                                                (community visitors, holiday                     basis, child life services are
centered model of care, collaborating           celebrations, etc), and maintaining the
with the family, physicians, advanced                                                            increasingly common outside the
                                                playroom environment. Both child life            hospital.77 Increasingly, CCLSs are
practice providers, nurses, social              specialists and assistants actively
workers, and other members of the                                                                also part of interdisciplinary health
                                                participate in the orientation, training,        care teams, including palliative care,
health care team to develop                     and supervision of volunteers, thereby
a comprehensive plan of care. Child                                                              behavioral health, trauma, and child
                                                contributing to volunteer effectiveness,         protective services. In cases of
life contributions to this plan are             satisfaction, and retention. This
based on the patient’s and family’s                                                              hospitalized or ill adults, child life
                                                collaboration enables the child life             specialists may be consulted to work
psychosocial needs, cultural heritage,          specialist to conduct an assessment
and responses to the health care                                                                 with children of adult patients,
                                                and delegate as appropriate, allowing            particularly in end-of-life, trauma,
experience. Child life specialists can          patients with varying degrees of
participate in the care plan by, for                                                             and critical care situations.
                                                psychosocial vulnerability and activity
example, teaching a child coping                levels to be supported by the team               Child life programs continue to evolve
strategies for adjusting to a life-             member whose skills and knowledge                and adapt to meet the changing health
changing injury, promoting coping               are most closely aligned with patient            care needs of patients and families.
with examinations for alleged abuse,            and family needs. Although volunteers            Children with special health care
assisting families in talking to their          are a valuable supplement, they can              needs now represent 18.8% of all
children about death, facilitating              never be considered an adequate                  children, up from 12.8% in 2001.78
nonpharmacologic pain-management                replacement for CCLSs.                           Specifically, the increase in patients
techniques, preparing and educating
                                                                                                 with a diagnosis of autism spectrum
children about their medical care in
                                                                                                 disorder presents opportunities for
age-appropriate ways, and                       EVOLUTION OF CHILD LIFE SERVICES                 child life specialization in supporting
communicating the child’s
                                                The provision of child life services is          this population in medical
developmental and individual needs
                                                a quality benchmark of an integrated             settings.36,79,80 In addition, the
and perspective to others. These
                                                patient- and family-centered health              number of children with mental health
interventions are most effective when
                                                care system, a recommended                       and developmental disabilities
delivered in collaboration with the
                                                component of medical education, and              conditions is increasing, either alone
entire health care team.
                                                an indicator of excellence in pediatric          or comorbid with a physical health
The credentials of a certified child life        care.72–74 There are more than 430               condition.81,82 Hospitals are also
specialist (CCLS) currently include the         child life programs in operation in              admitting children with more complex
minimum of a bachelor’s degree in               North America75; most are located in             medical conditions, with rates
child life, child development, or               freestanding children’s hospitals,               doubling between 1991 and 2005, and
a closely related field; the successful          children’s hospitals within hospitals,           may need greater individualization of
completion of a 600-hour child life             community hospitals with pediatric               care from the CCLS.83,84 The numbers
internship under the supervision of             units, and EDs.                                  of children with disabilities and

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PEDIATRICS Volume 147, number 1, January 2021                                                                                          5
medical complexities are increasing,          Although evidence supports the value            from the hospital to the home setting
likely because of the increases in            of child life services, financial                less disruptive. Child life specialists
technology that ensures the survival of       pressures in many health care                   also provide services outside
patients with previously lethal               settings have threatened the growth             hospital-based settings, including
conditions.85 Given the increasing            and sustainability of child life                private practice, community agencies,
survival rate of patients with cystic         services. In addition to contributions          and hospice care, and are becoming
fibrosis, cardiac conditions, spina            to the patient experience, the                  increasingly involved in providing
bifida, short gut, cancer, and other           literature has also demonstrated                support to children and families
chronic illnesses, more teenagers and         financial benefits of child life                  during catastrophic events.
young adults face the challenging             interventions, including reduced
transition to adult health care.86            sedation-related costs, and increased           For hospitals or other health care
Acknowledging team goals to                   compliance during procedures,                   settings considering the initiation or
normalize the transition process and          resulting in procedure                          expansion of child life services, the
address patient and family anxieties or       completion.8–12 A child life program            ACLP offers a consultation service to
questions, child life specialists can         improves quality and decreases costs            support existing program review and
assist in this transition by providing        and, therefore, should be included in           development, new program startup,
education and helping patients to             the value-added equation and                    interdisciplinary education, and
communicate their needs, fears, hopes,        discussion of health care cost,                 written practice guidelines.94 In
and expectations.87–89                        including with payers.                          community hospital settings with few
                                                                                              pediatric beds and minimal pediatric
In recent years, patient experience                                                           outpatient or ED visits, the provision
and/or patient satisfaction has               ADDITIONAL CONSIDERATIONS                       of full-time child life services may not
become a key quality and                      Child life services contribute to an            be financially feasible. In such cases,
performance indicator. Although the           organization’s efforts to meet the              part-time or consultative services of
definition of patient experience               standards set forth by The Joint                a CCLS may be obtained to assist in
continues to be explored and honed            Commission and other accreditation              the ongoing education of staff,
by health care leaders, there is              agencies, including effective                   students, and volunteers as well as to
common agreement that when                    communication, patient- and family-             advise on a psychosocially sound,
evaluating health care quality, patient       centered care, age-specific                      developmentally appropriate patient-
satisfaction is an important metric           competencies, and cultural                      and family-centered approach to care.
that translates to health care ratings        competence.92 Child life specialists’           The advancement of telemedicine
and payment.90 Family-centered care           psychosocial and developmental                  also presents an opportunity for child
is a core principle for child life            expertise and their keen awareness of           life specialists to intervene when they
specialists; the recent emergence of          the benefits of patient- and family-             cannot be on-site. Advocating for
the patient experience as a key               centered care provide a useful                  child life services as an essential part
quality indicator has resulted in child       perspective at a systems level. Child           of the interdisciplinary team is
life specialists often taking the lead in     life input is often incorporated into           a responsibility of health care
family-centered care and patient              hospital committees, such as ethics,            organizations to ensure it is
experience initiatives. Research              family-centered care, patient                   a standard of pediatric care and
studies have demonstrated the                 experience, safety, environmental               should occur on local and national
positive impact of child life                 design, bereavement, and strategic              levels as well as in regulatory and
intervention on patient and parent            planning. Child life expertise has              accrediting organizations.
perception and evaluation of the              applications beyond conventional
hospital experience, which is                 hospital care. Interventions can help
increasingly important for incentive-         children transition back to their               CONCLUSIONS
based reimbursement, accreditation,           homes, schools, communities, and                Child life services are associated with
marketing, and public reporting of            medical homes.11,93 Child life                  improved quality, outcomes, and
outcomes.8,17,34,67,91 Health care            specialists often collaborate with              patient and family experiences as well
professionals and organizations               local school districts to arrange               as decrease costs in pediatric care.
acknowledge the significant impact             hospital or homebound education,                There is evidence that child life
child life specialists have on the            and hospital-based teachers may be              services help to contain costs by
patient experience as well as the role        incorporated into child life program            reducing the length of stay,
child life plays in helping the concept       administration. These interventions             decreasing the need for sedation and
of patient experience continue to             help provide continued normalization            analgesics, and increasing patient
evolve and grow.80                            and help make the transition to and             satisfaction ratings. Patient

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6                                                                                                 FROM THE AMERICAN ACADEMY OF PEDIATRICS
experience data and interdisciplinary                4. Child life services staffing must be                AAP COMMITTEE ON HOSPITAL CARE,
team member feedback further                            individualized to address the                      2018–2019
confirm the positive effects of child                    needs of specific inpatient and                     Jennifer Jewell, MD, FAAP, Chairperson
life programs on children, families,                    outpatient areas. The ratio of child               Kimberly Ernst, MD, MSMI, FAAP
and staff. It remains essential for                     life specialist to patient should be               Vanessa Hill, MD, FAAP
                                                                                                           Benson Hsu, MD, FAAP – Section on
child life services to adapt and grow                   adjusted to account for the
                                                                                                           Critical Care
with the changing health care                           patient’s medical, psychosocial,                   Vinh Lam, MD, FAAP
delivery system in support of the                       and developmental complexity and                   Melissa Mauro-Small, MD, FAAP – Section on
highest possible quality of care for                    vulnerability as well as family                    Hospital Medicine
children and their families.                            needs and preferences. Child life                  Charles Vinocur, MD, FAAP
                                                        services need to continuously
RECOMMENDATIONS                                         evolve to meet the changing needs                  FORMER COMMITTEE ON HOSPITAL CARE
                                                        in pediatric health care, including                MEMBER, 2017–2018
1. Child life collaboration with the
                                                        the significant increases in                        Daniel A. Rauch, MD, FAAP
   entire interdisciplinary team is
                                                        children with disabilities and
   essential to meeting the overall
                                                        medical complexity.
   health care needs of children and                                                                       LIAISONS
   families.                                         5. Child life services optimize
                                                                                                           Karen Castleberry – Family Representative
                                                        pediatric health care and,                         Nancy Hanson – Children’s Hospital
2. Child life services are part of an
                                                        therefore, should be included in                   Association
   integrated patient- and family-
                                                        the hospital operating budget; they                Kristin Hittle Gigli, PhD, RN, CPNP-AC, CCRN
   centered model of care and can be                                                                       – National Association of Pediatric Nurse
                                                        cannot solely rely on contingency
   used as a quality measure in the                                                                        Practitioners
                                                        or philanthropic funding.
   delivery of health care services for                                                                    Michael S. Leonard, MD, MS, FAAP –
   children and families.                            6. Legislative advocacy of child life                 Representative to The Joint Commission
                                                        services by pediatricians and other                Barbara Romito, MA, CCLS – Association of
3. Child life services, provided directly                                                                  Child Life Professionals
                                                        stakeholders is recommended at
   by CCLSs, are recommended in
                                                        the state and federal levels.
   pediatric inpatient units, EDs,
                                                     7. Additional research is needed to                   STAFF
   chronic care centers, and other
   diagnostic and treatment areas to                    further identify the impact of child               S. Niccole Alexander, MPP

   the extent appropriate for the                       life services on patient care
   population served. In hospitals                      outcomes, including patient
   with a small number of inpatient or                  experience, cost-effectiveness, and                  ABBREVIATIONS
   outpatient pediatric visits, ongoing                 quality and safety measures.
                                                                                                             ACLP: Association of Child Life
   consultation with a CCLS is needed                                                                              Professionals
   to educate health care team                                                                               CCLS: certified child life specialist
   members and support                               LEAD AUTHORS                                            CLPDC: Child Life Professional
   developmentally appropriate                       Barbara Romito, MA, CCLS                                        Data Center
   patient- and family-centered                      Jennifer Jewell, MD, FAAP                               ED: emergency department
   practice.                                         Meredith Jackson, MD, FAAP

FUNDING: No external funding.
POTENTIAL CONFLICT OF INTEREST: The authors have indicated they have no potential conflicts of interest to disclose.

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10                                                                                                     FROM THE AMERICAN ACADEMY OF PEDIATRICS
Child Life Services
 Barbara Romito, Jennifer Jewell, Meredith Jackson and AAP COMMITTEE ON
   HOSPITAL CARE; ASSOCIATION OF CHILD LIFE PROFESSIONALS
                             Pediatrics 2021;147;
 DOI: 10.1542/peds.2020-040261 originally published online December 28, 2020;

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Child Life Services
Barbara Romito, Jennifer Jewell, Meredith Jackson and AAP COMMITTEE ON
  HOSPITAL CARE; ASSOCIATION OF CHILD LIFE PROFESSIONALS
                            Pediatrics 2021;147;
DOI: 10.1542/peds.2020-040261 originally published online December 28, 2020;

The online version of this article, along with updated information and services, is
                        located on the World Wide Web at:
        http://pediatrics.aappublications.org/content/147/1/e2020040261

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