Event Guide - Questions? Contact - Turner Syndrome Foundation
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Event Guide
Turner
Syndrome
Foundation,
Inc.
Guide
to
Hosting
Events
1
Copyright
2018
Turner
Syndrome
Foundation
Questions?
Contact
info@tsfusa.org
3…..About the Program
4…..Event Listing
Step 1: Lead Your Group
5…..Reasons to Lead Team TSF for Turner Syndrome
Reasons to start a team
6…..How to Recruit
Instructions for Turner Syndrome
Other ways for Team TSF Leaders to get involved
7…..How to Lead Your Team
8…..Sample Team TSF Event Structure
9…..How to Make Your Event Successful
10…..Form Listing
Step 2: Publicize and Recruit
11.....Promote Team TSF with one-time event
Step 3: Raise Awareness
12…..Awareness Chair
13…..Talking Points bout Turner Syndrome and the Foundation
14…..Turner Syndrome Fact Sheet
15…..Turner Syndrome Trivia Q&A
Step 4: Fundraise
16…..How to Collect Donations
Smaller Fundraising Events
Step 5: Sponsorship
17…..Securing Sponsors
18…..Case for Support
19…..Letter Writing Campaign
Step 6: Planning
20…..About the Event
Registration
Handling “Day-of” Registration
21…..Sample Event Planning Timeline
22…..Sample Budget
23…..Day-of Volunteer Duties
24…..Possible Special Events
2
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Turner
Syndrome
Foundation
Questions?
Contact
info@tsfusa.org
About the Program
Turner Syndrome Foundation (TSF) is providing an opportunity for individuals,
families, students, schools & universities, physicians & hospitals, communities &
corporations and other social or civic organizations to raise awareness of this female
specific disorder in effort to decrease the age of diagnosis and improve health
practices and research initiatives.
TSF offers creative opportunities to fundraise and increase awareness of Turner
Syndrome, become involved in Turner Syndrome advocacy, gain leadership
experience with hosting an event, and to build a community with friends. Team TSF
provides all the materials needed to host a successful event with simple program
guides and resources for everything from how to organize an event, to how to
recruit participants and volunteers and publicize the event.
YOU can make a difference!
More Information about TSF:
Since 2009, the Turner Syndrome Foundation has been the driving force advocating
for Turner Syndrome, a life threatening genetic disease that affects roughly 80,000
women and young girls in the United States alone. The Foundation’s mission in
establishing Team TSF is to assure the development of means to increase
professional knowledge and new science that will improve the quality of life for girls
born with Turner Syndrome.
About the Guide:
This guide will give you all the tools you need to plan your event! It includes
fundraising plans and raising awareness ideas plus all the necessary forms for the
event. There are general templates and explains sponsorship, things that you need
for a successful event. Any more questions, don’t hesitate to contact
info@tsfusa.org. Thank you for your efforts!
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Questions?
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info@tsfusa.org
Event Listing:
The Turner Syndrome Foundation is an official charity in many different states throughout the
country!
You can form your own team in these races!
Here is a list of marathons we have been a part of:
• Rock ‘n’ Roll Arizona
• Rock ‘n’ Roll Nashville,
• Rock ‘n’ Roll San Antonio
• Rock ‘n’ Roll New York
• Novo Nordisk New Jersey Marathon
Please keep in mind that you are able to participate in other marathons!
There are two options for our runners and teams. You can register with the race and
fundraise for TSF separately or we can become an official charity with the race and you and
your team can register through us!
If you want to form your own event, look at our Talent Management Handbook so that you
may become familiar with it and fill out a special event form.
Otherwise, this guide will help you through leading a team for the TSF!
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Questions?
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Step 1: Lead Your Group
Reasons to Lead for Turner Syndrome
Join a National Movement
• The TSF has been raising awareness in cities across the country. You can join us on
this journey in a city near you!
Gain perspective
• Realize there is a community of support surrounding you and watch a community of
support grow.
Meet Core Values
• Increase awareness of Turner Syndrome in girls.
• Increase knowledge of screenings, treatments and interventions for a lifetime of good
health.
• Increase volunteer opportunities for people of all abilities and interest.
• Increase financial support for education, awareness, and research initiatives.
Reasons to Start a Team
Become a Community Leader
• Develop and utilize leadership skills.
• Gain valuable experience in marketing, fundraising, volunteer development,
event planning and community outreach.
Make a difference
• Grow a community of support within your region.
Make connections
• Meet other families affected by Turner Syndrome to grow a caring community of
support.
• Collaborate with social, civic, and corporate partners to raise vital funds for Turner
Syndrome.
• Create new opportunities by expanding a critical network of support.
Start a Legacy
• Ensure that your movement will continue to support Team TSF in future years.
• Your valuable leadership experience will be a role model for others.
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How to Recruit
Ways to Recruit Public Support:
• Place flyers in common areas
• Enlist the help of others in your network (church, civic, community, businesses)
• Hold informational meetings
• Contact area schools & hospitals
• Ask radio stations and websites to announce your club/event
• Identify a list of people to be interviewed for articles
• Incentivize volunteers by increasing their skill set
• Help individuals to meet community service hours
Where to Start Looking
• Family and Friends
• Social or Civic Groups: Country Clubs, Girl Scouts, Junior Women’s League, etc.
• Students - Opportunities for those interested in career development & experience
• Volunteer organizations - Individuals already active in service may be more willing to
join your cause.
• Medical and Nursing students interested in medical fields may be drawn to the
scientific and care aspects of Turner Syndrome.
• Healthcare Centers may have individuals with connection to and understanding of
Turner Syndrome
Other Ways for Leaders to Get Involved
TSF Leaders have an opportunity to get involved with the Turner Syndrome Foundation in
other ways such as being a part of the National Council of State Leaders for your state or
serve on a working committee. Please ask about these other volunteer opportunities.
Here are some other ways you can stay involved with the Foundation:
• Become familiar with our website.
• Provide professional photo and biography for our website presence.
• Read the monthly eNewsletter
• Connect social media pages: Facebook, LinkedIn, Twitter, Instagram
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Questions?
Contact
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How to Lead Your Team
Push them to meet their goals.
• Assign your committee tasks.
Make sure each member understands his or her task and feels
comfortable asking questions. (See sample structure on following page)
• Ask for regular reports on progress.
At meetings, require committee chairs to give an update on progress.
• If any volunteers are struggling to meet their goal, help them develop a new strategy.
Talk one-on-one with your volunteers and give them advice on whom to
contact, how to approach participants or donors, and any other tips.
Show that you value your committee’s time.
• Only hold group meetings when necessary.
• Run meetings and write e-mails efficiently.
Be brief with your own announcements and comments. Schedule a set time interval for
regular meetings. Be mindful of others’ times and be sensitive in email
communications.
Involve each of your committee persons.
• Encourage each volunteer to participate in meetings and group discussion.
Have each volunteer give a report or update on recent progress and next
steps rather than updating the group for them. Focus your attention on
members who have not had a chance to participate rather than those who
have been speaking regularly.
• Ask your committee to fill out evaluations throughout the year and after large events.
Use anonymous surveys to solicit their suggestions.
Recognize a job well done.
• Take the time to thank your committee for all their hard work, and make it a point to
highlight when your members do a good job.
• Organize a wrap-party for your team to celebrate their accomplishments.
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Sample TSF Event Structure
Position Role
• Serves as a liaison to the Turner Syndrome Foundation
Leader • Main contact regarding general question/concerns pertaining
to events and activities
• Oversees activities
Event Chair • Coordinates fundraisers and events.
• Assists all of the officers with day-to-day operations
• Collects registration fees and financial transactions for
Treasurer the organization
• Establishes accounting records and a budget
• Assists with member/volunteer reimbursement
Program Chair • Runs awareness program
• Runs advocacy program
• Creates promotional flyers and banners, works with
Publicity Chair
social media outlets to promote programs and events
• Gathers information to support the volunteer enrollment
Volunteer and orientation.
Coordinator
• Provides information and roles for volunteers
• Records and keeps member data, including
contact information and attendance records
Secretary
• Keeps minutes at meetings and records
relevant event information
• Coordinate and participate in all program and events
• Recruit participants
Team (all) • Publicize event
• Seek sponsors
• Work collaboratively to ensure success
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Questions?
Contact
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How to Make Your Event Successful
Select a date and time that is best for your event.
Set your date as early as possible. Take into consideration the weather, holidays,
and other potential conflicts.
Consider weather conditions and plan a date or secure an indoor location if
you are having an outdoor event.
Select a location that is attractive and central to your attendees.
Select a location that is convenient and as accessible as possible
Create an Event Timeline
Work with a TSF Coordinator to establish a timeline to shepherd a successful event.
Secure your event location and any permits at least one month in advance.
Per the talent management handbook guidelines, you are responsible to follow
regulations for the use of your venue.
Recruit participants.
Ask as many people as you can, including your friends and family, colleagues,
and community members you may know. Ask your committee do the same.
Stay enthusiastic and supportive of your group.
Your attitude is contagious.
Encourage all participants to:
Recruit others to participate in the tournament. Ask for sponsor
donations face-to-face. Ask their family and friends to help them collect
donations. Bring their donations with them on event day.
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Form Listing
Find the approved forms at the end of this guide for use and organizing a TSF
Event:
List forms included and page numbers
Event flyer template
Event Registration forms
Event Volunteer waiver
Event Evaluation form
Social media template
Activity report
Sponsor letter template
Sponsor commitment form
Fundraising summary form
Donation form
Name and likeness
Publicity request
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Step 2: Publicize and Recruit
Promote TSF with a One-Time Event(s)
Hosting a TSF event provides an opportunity to hold a one-time event(s) to raise
awareness and financial support. This onetime event can help promote the upcoming
TSF event and build excitement and participation. To host a onetime event, we
highly recommend becoming familiar with these guidelines and then begin recruiting
an event committee to help you get started.
Hosting a onetime TSF event enables the leader to assemble a group of people and
sponsors to support your efforts in organizing a successful team event. Creating
opportunities to grow a group of supporters will help you to achieve a higher level
of success.
To start a onetime event, review this guide and begin to recruit volunteers
Spread the Word
Use promotional materials, advertisements and social media to spread
the word about an upcoming event.
• Distribute flyers
• Create FB group events
• Submit newspaper article and ads
• Tweet
• Volunteer match
• Circulate promotional videos
• Distribute Flyers
Contact Support Groups
Reach out to individual groups that may be interested in supporting the Turner Syndrome
Foundation’s cause.
• Community service organizations
• Pre-med/EMT/nursing student groups
• Sororities/fraternities
• Special event organizers [i.e. county fairs, welfare programs]
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Step 3: Raise Awareness
Awareness Chair
While fundraising is a key goal, raising awareness of Turner Syndrome is just as
important. Here are some ways you can increase awareness of Turner Syndrome on
your own:
1. Post fliers and table at public events — order materials on our website
2. Distribute fact sheets with information about how to get involved. See page
14 of this guide for a sample fact sheet.
3. Wear Team TSF logo items – order from our website
4. Ice Breaker for Group Meeting
See page 15 in this guide for sample questions and answers.
5. Host a speaker with a connection to Turner Syndrome [a patient, a relative
or a friend]. Ask the person to speak at the opening ceremony of your TSF event.
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Talking Points about Turner Syndrome and the Foundation
• What is Turner Syndrome? In non-clinical basic terms, Turner Syndrome is an
endocrine disorder. Girls will need hormones to grow, estrogen therapy to feminize at
puberty and throughout much of their lifetime, and the majority of women will be
infertile. Some girls are born with clinical features or congenital defects. There is a
host of co-morbidities affecting organs including the heart, kidneys, and bladder and will
affect thyroid function, blood pressure, diabetes, bone health and so much more.
• What is the average age of diagnosis? The average age of diagnosis is 151/2,
arriving too late for life-altering treatments, early interventions and most importantly
health screenings for a potentially fatal heart defect.
• What does the Turner Syndrome Foundation do? The Turner Syndrome
Foundation has assumed a leadership role in the United States to advance
communications through the facilitation of education program, advocacy, outreach, and
supporting research initiatives.
• Are there any cognitive affects in Turner Syndrome? Yes, there is a psycho-social affect
and virtually all girls have what is sometimes referred to as a nonverbal learning disability. They
will present with a set of strengths and weaknesses to some varying degree. Fortunately, most
girls will have average to above average intelligence and many will depend upon supportive
services in an academic environment.
ü The Foundation is one of the most effective and efficient organizations of
its kind. It has received a Gold Level rating from GuideStar, the largest
independent charity evaluator in the United States, and a five-star rating
from Great Nonprofits.
ü The Foundation receives no federal funding and depends on the
generosity of individual donors and corporations to support our
lifesaving mission.
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Turner Syndrome Fact Sheet
What Is Turner Syndrome?
Symptoms
• Short Stature, 4’8”
• Delayed puberty
• Ear infections/ hearing loss
• High arched palate
• Wide, short neck
• Upturned fingernails
• Diabetes
Statistics
• About 800 new cases of TS are diagnosed each year
• 1 in 2,000 girls will live with TS
• Only 1-3% of babies survive birth
• While height is only part of the story, without treatment final height will be 4’8” on
average.
• Turner Syndrome is a life-threatening genetic disease that affects approximately
85,000 children and adults in the United States.
Leadership
Identified in the late 1930s, the syndrome remains commonly unknown by many. The TSF ‘s
commitment to collaborate with medical societies, universities, researchers, and teachers
across the country to create a network of stakeholders. The foundation leadership as a board
of trustees and a well regarded medical advisory board. Awareness events across the US are
organized largely by a volunteer base to fulfill its mission.
National focus
The TSF impacts communities across the US through the website, conferences, exhibits,
newsletter, and outreach.
-‐ Information resources online at our website or by telephone (1-800)594-4585
-‐ Patient education workshops for patients and care givers
-‐ Continuing education opportunities for medical and educational professionals
-‐ Team TSF awareness campaign builds community of awareness and support
-‐ National Council of state leaders delivers programmatic services to all region
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Turner Syndrome Trivia Q&A
1. A person gets Turner Syndrome from
A. Country of origin C. It is inherited
B. Alcohol/Smoking/Drugs D. It’s random mutation of genes
2. Approximately how many females carry the TS gene in the US?
A. 100,000 C. 400,000
B. 80,000 D. 3 million
4. TS occurs at:
A. time of conception C. adolescence
B. toddler years D. birth
5. What body functions does TS affect?
A. endocrine system C. development
B. growth D. all of the above
6. Which of these is not a symptom of TS?
A. Frequent ear infections C. hormone deficiency
B. Frequent lung infections D. Type II diabetes
7. About how many new cases of Turner Syndrome are diagnosed each year?
A. 800 C. 10,000
B. 3,000 D. 350
8. What is the Turner Syndrome Foundation?
A. The primary sponsor of TS awareness C. A foundation that provides funding
Through impactful program initiatives for medicine.
B. A pharmaceutical company specializing D. An organization that supports higher
in medicine for patients education
9. What can you do to help?
A. Participate in Team TSF C. Help raise awareness
B. Make a donation D. All of the above
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Step 4: Fundraise
How to Collect Donations
There are several ways you can collect donations. Here are our recommendations:
1. Online Fundraising Direct your donors to
https://turnersyndromefoundation.org/turner_syndrome/ and ask them to include
your organization name, location and event as their “Donation Message.”
Remind your donors that they can print out a receipt of their donation that
can be used for tax deductions.
2. Check
Ask your donors to make checks payable to the Turner Syndrome Foundation.
3. Cash
Before sending in your donation, convert all cash to check or money order
to protect against loss in the mail.
When you have collected all donations, please complete the Team TSF
Fundraising Summary Form on page 20 of this guide and mail the form
and total amount contributed to:
Turner Syndrome Foundation
PO Box 726 Holmdel, NJ 07733
Smaller Fundraising Events
Smaller events can be used to promote the upcoming event, raise
awareness, increase participants, and fundraise. Smaller events are ideal
for participants to meet their fundraising goal and to increase publicity
efforts.
Some ideas include:
• Bake sake
• Chocolate and rose sale
• Benefit concert or party
• Late-night food sale
• Car wash
• Raffles
*For
more
ideas
visit
https://turnersyndromefoundation.org/volunteer-‐3/volunteerfundraise/
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Questions?
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info@tsfusa.org
Step 5: Sponsorship
Securing Sponsors
The Turner Syndrome Foundation is providing a Sponsorship deck
Ask local businesses to donate a larger amount in return for
publicity in conjunction with your event
• The highest level of sponsor is the title sponsor.
• The next highest level is a presenting sponsor.
• Several lower sponsors can be event sponsors.
Approach local businesses in person
• Prepare an “elevator speech” about Turner Syndrome and your organization’s
support of the cause.
• Discuss what benefits the business would gain from the sponsorship.
• Ask for a specific amount of money.
• Thank whomever you speak with for their time.
• Promptly deliver signed forms accepting the donation for tax purposes.
Ask businesses for “in kind” donations of food, supplies, and services for
your event. These donations can be in place of or in addition to a monetary
donation.
When meeting with potential sponsors, be prepared with an idea of
what commitment level you want them to make. Ask them what they
are looking for I n a community collaboration; do not just hand over a printed
sponsorship package. Learn about the interests of the prospective sponsor, and
then tailor the sponsorship proposal to meet those needs. Pay attention to
what your potential sponsor tells you about what he or she likes with regard
to community involvement—some value signage or name recognition, while
others appreciate employee involvement.
When determining what level to pitch to a sponsor, listen to your
leader and discuss suggesting a higher level. No business leader will
be offended about an “ask” that is too high—and your discussion can begin
at an elevated point.
Do not present multiple sponsorship opportunities at one time to a sponsor.
In doing this, the prospect might choose a lower level sponsorship. Instead, if
your prospect rejects your first ask, and then try again with a lower level
sponsorship
(Case for Support supplied on this page)
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Letter Writing Campaigns
If you mail a letter, be sure to include a self-addressed envelope.
Personalize
a
fundraising
letter
(see
template
on
page
30)
and
send
it
to
everyone
you
know
including
area
business
contacts.
Don't
forget
to
include
the
following:
• How
much
you
intend
to
raise
• Information
about
TSF
and
its
mission
• A
specific
monetary
request
from
the
individual
Who to Ask
Groups to Approach
Ø Friends
Ø Family
Ø Colleagues, Employer
Ø Neighbors, Community Members
Ø Social, Civic, Volunteer Groups
Ø Local businesses
Remember to thank all donors when you receive their contribution.
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Step 6: Planning
About the Event:
As the event committee, you will publicize the event and recruit your friends, groups
and other individuals to raise critical funds for the Foundation as well as care and
education programs. The committee will do their own fundraising as well through
sponsorships and smaller fundraising events, and planning and running the event itself.
Registration:
Try to recruit 10-20 Turner Syndrome volunteers for a successful event. Give
each volunteer a registration packet that can be found on at:
Volunteers can earn prizes for higher levels of fundraising, include your creative
ideas!
Handling Day-of Registration
Some may decide on the day of your event to come and participate. Don’t turn them
away... Be prepared to accommodate one or two extra participants. To allow for
day-of registration and encourage others to sign up beforehand, make your day-of
registration fee $15 or $20 instead of $10.
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Sample Event Planning Timeline
6 months before the event
Secure committee
Set date and reserve site
Recruit volunteers
Find sponsors
4 months before event
Secure materials
Promote event via Facebook, posters/flyers, advertisements, newsletters
2 months before event
Confirm sponsors and amount of food and beverages
Order t-shirts, bracelets and medals
Set deadline for Turner Syndrome Foundation fundraising
1– 2 weeks before event
Confirm volunteers
Confirm food/beverage
Confirm participants
Confirm site and equipment
Collect Turner Syndrome Foundation entry fees
Send a final reminder to your on Facebook and through e-mails
Within one week after event
Thank sponsors
Thank Turner Syndrome Foundations
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Sample Budget
Event Price # of Total
Income
Registration (per Turner Syndrome
Foundation of 10-15)
Donations (over the required $200 per
Turner Syndrome Foundation)
In
kind
donations
Sponsors
Title
Presenting
Event
Expenses
Food/Beverages
T-shirts
Advertisement
Printing
Signage
Try to get t-shirts and food donated
Registration
Total
Income: $
Total
Costs: $
Net
Income: $4,045
Treasurer
Name
______________________________________________
Contact
Information
___________________________________________________________________________
Submit
Date
_________________________________________
Approve
Date
______________________________________
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Day–of Volunteer Duties
Number of
Volunteer Title Position Duties and Notes
Volunteers
Set Up 10 • Set up day of the event
• Greet attendees
Greeters 10 • Show participants where to go
• Pass out programs
• Collect any last-minute registration fees
Registration 3-5 • Guest sign in
• Solicit donations
• Work with the Foundation to find someone with TS
Speaker 1-2
or a relative/friend to speak at the opening
ceremony
• Handle payment and serving
Refreshments 2-4 • Ask customers if they would like to give a few extra
dollars
• Work the booth
Side events 2-3 • Collect payment
• Ask participants if they would like to give a few extra
dollars
• Provide entertainment to make every event
memorable.
Entertainer 1 • Ask for an in-kind donation.
1 per Team TSF • Serve as main contact for the Turner Syndrome
Leader Foundation
• In charge of reaching the fundraising goal
• Complete registration for the Turner Syndrome
Foundation
Many as • Clean up any and all areas used for the event
Clean up
possible • Leave it better than you found it.
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Possible Special Events
Create
special
events
before
Team
TSF
Event
for
building
community
purposes!
Be
creative,
follow
your
passion,
and
tell
everyone
you
know
that
you
need
support!
• Treats and Sweets for Turner Syndrome bake sale
• Awareness reception & wine / cheese tasting
• Raffle Auction
• Restaurant Night
• Letter Writing Campaign
• Meet and Greet before event
• Game Night
• Sports Tournaments (karate, hockey, soccer, etc.)
• Pancake Breakfast
• Spaghetti Dinner
• Popcorn and Movie Night
• Children’s play group gathering
• Mothers’ Club gathering
• Food sales (candy, pizza, doughnuts, etc)
Seasonal
• Birthday or Special Event Donation Collection
• Yard / Garage Sale
• Golf Outing
• Marathon and Letter Campaign
• Car Wash
• Family Swim Night at local pool
• Block Party / Carnival
• Concert or Caroling
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Team
(Name/Organization)
[Event Name] to benefit the
Turner Syndrome Foundation
[Date] [Time]
[Location]
[Registration Fee]
Join with your friends and compete while
supporting an important cause!
To sign up, contact
[committee member]
at [email and/or
phone #]
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Event Evaluation Worksheet
Group:
College:
Event:
Date held:
Amount raised:
Cost of event:
Total donation:
What about your event worked well? (Recruitment, publicity, day-of, etc.)
What would you like to improve about your event?
Advice for next year’s committee:
Please send a copy to:
Turner Syndrome Foundation
Attn: Team TSF Leadership
PO Box 726
Holmdel, NJ 07733
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Sample Facebook Event Page
Please join us for a [event] to benefit the Turner Syndrome Foundation on [date] at
[time] at [location]. [Event details].
Get some friends together and benefit the Turner Syndrome Foundation. Come to
have fun and support an important cause.
To sign up, please contact [committee member] at [email or phone #]
For more information, please contact [event chair] at [email].
To learn more about Turner Syndrome visit
www.TurnerSyndromeFoundation.org
Thanks and we hope to hear from you soon!
Sample E-blast
Dear ,
Want to have fun, and support an important cause?
([Organization] presents [Event] a benefit to support Turner Syndrome
Join us for a [Event name] to benefit the Turner Syndrome Foundation on [date]
at [time] at [location].
[Event Details]
So get some friends together to support Turner Syndrome Foundation!
To sign up, contact [committee member] at [email or phone]
For more information, contact [event chair] at [email or phone]
To learn more about Turner Syndrome visit
www.TurnerSyndromeFoundation.org
Thanks! Hope to hear from you soon!
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ACTIVITY
REPORT
Form
Submitted
by:
__________________________________________
Date:
______________________________
Email:
__________________________________________
Cell#
(___)
_____-‐_________
Program
Area:
___
Advocacy
____
Awareness
____
Education
____
Research____
Objective:
________________________________________________________________________________________
Action:
___Telephone
___
Email
___In
person
___Event
___
Letter
___
Event
Name:
_________________________________________________________________________________________
Location:
________________________________________________________________________________________
Date:
_________________________________________________________________________________________
Contact
name:
_____________________________________________________________________________
Company:
_________________________________________________________________________________
Street:
___________________________________________________________________________________
City:
________________________________
State:
______
Zip:
_______________
Co
____
Tele:
(___)
_____-‐_________Email__________________________
Assistant:
_______________________________
Tele:
(___)
_____-‐_________Email:_____________________
Comment:
_________________________________________________________________________________________
Additional
Contacts:
Contact
name:
_____________________________________________________________________________
Company:
________________________________________________________________________________
Street:
___________________________________________________________________________________
City:
_____________________________
State:
______
Zip:
_______________
Co
_____
Tele_______________________________
Email__________________________
Assistant:
__________________________________
Tele:
(___)
_____-‐_________Email:
_________________
Comment:_________________________________________________________________________________
27
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2014
Turner
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Questions?
Contact
info@tsfusa.org
Contact
name:
____________________________________________________________________________
Company:
________________________________________________________________________________
Street:
___________________________________________________________________________________
City:
_____________________________
State:
______
Zip:
_______________
Co
_____
Tele:
(___)
_____-‐_________Email__________________________
Assistant:
__________________________
Tele:
(___)
_____-‐_________Email:
_________________________
Comment:
_________________________________________________________________________________________
Contact
name:
_____________________________________________________________________________
Company:
________________________________________________________________________________
Street:
___________________________________________________________________________________
City:
_____________________________
State:
______
Zip:
_______________
Co
_____
Tele:
(___)
_____-‐_________Email__________________________
Assistant:
__________________________
Tele:
(___)
_____-‐_________
Email
_________________________
Comment:
_________________________________________________________________________________________
Contact
name:
_____________________________________________________________________________
Company:
_________________________________________________________________________________
Street:
___________________________________________________________________________________
City:
_____________________________
State:
______
Zip:
_______________
Co
____
Tele:
(___)
_____-‐_________
Email__________________________
Assistant:
_______________________
Tele:
(___)
_____-‐_________
Email:
____________________________
Comment:
_________________________________________________________________________________________
Outcome:
_________________________________________________________________________________________
_________________________________________________________________________________________
Follow
up:
_________________________________________________________________________________________
_________________________________________________________________________________________
Next
steps:
_________________________________________________________________________________________
28
Copyright
2014
Turner
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Questions?
Contact
info@tsfusa.org
Sponsor Letter Template____________________________________
Today's
Date
Sponsor
Name
Address
City,
State,
Zip
Dear
(Sponsor
Name):
On
(event
date)
I
will
be
participating
in
the
(name
of
the
event)
to
benefit
the
Turner
Syndrome
Foundation
(TSF).
I
am
(walking
/
running
/
jogging)
to
raise
awareness
of
Turner
Syndrome.
I
am
a
member
of
(Company/Family
team
name)
and
my
personal
fundraising
goal
is
$________.
I
am
asking
everyone
I
can
to
support
this
worthwhile
cause.
Please
consider
making
a
donation
in
my
name
at
www.TurnerSyndromeFoundation.org
or
sending
a
donation
by
mail
by
check
payable
to
the
Turner
Syndrome
Foundation,
P.
O.
Box
726,
Holmdel,
NJ
07733.
[If
you
have
been
personally
touched
by
Turner
Syndrome,
include
your
personal
story,
to
the
extent
that
you
are
comfortable
here.]
TSF
is
dedicated
to
funding
research
and
educational
programs
for
the
patient
community,
health
professionals,
physicians
and
the
public.
Together,
our
support
for
TSF
will
reduce
suffering
and
the
loss
of
life
as
well
improves
quality
care
outcomes.
With
a
baby
being
born
with
Turner
every
eight
minutes,
the
importance
of
TSF's
mission
has
never
been
greater,
nor
our
work
more
urgent.
Please
give
a
donation
that
leaves
you
feeling
a
part
of
this
great
event
and
that
has
you
stretch
beyond
your
usual
contribution.
I
know
it
will
make
a
difference
for
you
and
for
many
others.
Thank
you
for
your
time
and
consideration.
If
you
have
any
questions
about
Team
TSF,
please
do
not
hesitate
to
contact
me
at
(Your
phone
number
and/or
email).
Sincerely,
(Your
Name)
29
Copyright
2014
Turner
Syndrome
Foundation
Questions?
Contact
info@tsfusa.org
Sample Sponsor Commitment Form
SPONSORSHIP COMMITMENT
Name of Organization or Donor (As it should appear in all materials):
_________________________________________________________________________
Address___________________________________________________________________
___City_________________________________________________ State____
Zip_________
Phone (____) ___________ Email ___________________________________________
SPONSORSHIP LEVELS
Title Sponsor: $1,000 (Limited to one sponsor)
• Event naming rights
• Opportunity to distribute promotional items with company logo to game participants
• Audio and visual recognition at event
• Opportunity for one Turner Syndrome Foundation to participate in the tournament
• Company logo on all t-shirts
• Recognition on event website and all event promotional materials and banner
Presenting Sponsor: $500
• Audio and visual recognition at event
• Opportunity to distribute promotional items with company logo to game participants
• Company logo on all t-shirts
• Recognition on event website, promotional materials and banner
Event Sponsor: $250
• Audio and visual recognition at event
• Company logo on all t-shirts
• Recognition on event website, promotional materials and banner
We wish to be a Team TSF sponsor at $ level.
We are unable to sponsor this year but please accept our donation of $ .
Enclosed is my check for $
Signature of Contact Person
Please make all checks payable to Turner Syndrome Foundation and mail to:
[Name] [Street]
[City, State ZIP]
30
Copyright
2014
Turner
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Foundation
Questions?
Contact
info@tsfusa.org
Fundraising Summary Form
Event Chair or Leader
Phone Email
Host or Business
Address
City ST ZIP
Date of Event Number of Participants
Total Number of Volunteers
Please return this completed form as soon after your event as possible.
Sponsors or donors who write checks to support your event should make them
payable to the Turner Syndrome Foundation.
Remember to convert any cash received into a cashier’s check or money order that is
made payable to the Turner Syndrome Foundation. Never send cash in the mail.
If any checks have been made out to you, one of your participants or your
organization, they should be endorsed and converted along with the cash. (Cashier’s
checks or money orders can be purchased at a bank or post office.)
Mail this form and total amount contributed to:
Turner Syndrome Foundation
PO Box 726 Holmdel, NJ 07733
31
Copyright
2014
Turner
Syndrome
Foundation
Questions?
Contact
info@tsfusa.org
MAIL OR FAX DONATION FORM
THIS PRINTABLE FORM IS AVAILABLE FOR SPONSORS WANTING TO DONATE
OFFLINE. FILL IN YOUR NAME IN THE BLANK SPACE PROVIDED TO MAKE SURE
THAT YOUR SPONSOR'S DONATION IS APPLIED TO YOUR ONLINE FUNDRAISING
PAGE.
SUPPORT ME AS I PARTICIPATE IN THE Team TSF Awareness Movement
My contribution is sponsoring __________________________________________________________.
(Individual or Team TSF Name)
Event City: ________________________________________________________________________
Sponsor Message: ____________________________________________________________
Donation Amount $__________
Make Checks Payable to Turner Syndrome Foundation, Inc.
(Please do not staple or tape checks to this form)
Cash ___ Check # __________ Visa ___ Master Card ___ AmExp ___ Discover ___
Credit Card # ________________________________________________
Expiration Date: _______/_______/_______ CVV#_____________
Signature ___________________________________________ Date:________/______/______
Sponsor Name: ______________________________________________________________________
Address ____________________________________________________________________________
City ____________________________________________ State __________ Zip _________________
Home phone _( )_________-____________Work Phone (________)__________- _________
E-mail _______________________________________@_____________________________________
Corporate Matching Gift:________________________________________________________________
Double your gift! Provide name and address of matching corporate donor.
Mail this form and your check (please do not send cash) to:
Turner Syndrome Foundation, Inc.
PO Box 726, Holmdel, NJ 07733
Send credit card donations by Fax to:
TSF Fax #: 800-594-3862
Basic inquiries: Telephone 800-594-4585 or Email info@tsfusa.org
Due to the high volume of donations received both in the mail and on the day of the event, please allow
2-3 weeks from the date that the donation is received to post to your account.
Thank you for your kind and generous support!
Turner Syndrome Foundation, Inc. is a 501(c) (3) nonprofit organization EIN 27-1409942
32
Copyright
2014
Turner
Syndrome
Foundation
Questions?
Contact
info@tsfusa.org
PO Box 726, Holmdel, NJ 07733
N AM E & LIK EN ESS RELEASE
In connection with the production of video content for the Turner Syndrome Foundation Inc, the undersigned
hereby agrees that you may film, videotape, photograph me and record my voice. You shall be the exclusive
owner of the results and proceeds thereof with the right to use and to edit my name, likeness and voice in any
and all media, including without limitation, theatrical, print television, radio, and video cassettes, in and in
connection with the exhibition theatrically, on television or otherwise, of any motion picture, videotape, or other
form in which the same may be incorporated and in the advertising, sale, publicity and promotion of any such
motion picture, videotape, or product associated therewith. I hereby release and discharge you, your
successors, subsidiaries, assigns, agents, affiliates, licensees and advertising agencies from any and all
claims, demands, or causes of action which I may at any time have in connection with the use and license of
the rights granted herein. I warrant and represent that I have read the foregoing and fully understand the
meaning and effect thereof and, intending to be legally bound, I have signed this release this ______day of
__________________, 20____.
I am over 18 years of age: Yes____ No_____
Name (PRINT)_________________________________________________________________
Address ______________________________________________________________________
Email ________________________________________________________________________
Signature _____________________________________________________________________
If the person signing is under the 18 years of age, consent is given by parent or legal guardian as follows:
I hereby certify that I am the parent or legal guardian of _________________________________ named
above, and for value received, sufficiency of which is hereby acknowledged, I give my consent without
reservation to the foregoing on behalf of him or her.
Name (PRINT) _______________________________
Signature____________________________ (parent or guardian)
33
Copyright
2014
Turner
Syndrome
Foundation
Questions?
Contact
info@tsfusa.org
Turner
Syndrome
Foundation
Publicity
Request
Form
TODAY’S
DATE:
_____________________________
DEADLINE:_______________________________
Name
:___________________________________
Program:
___________________________________
Contact
Tele#:__________________________________
Email
address:
__________________________
Type
of
Publicity:
____
press
release
___feature
article
____social
media
___
website
____
calendar
item
____
radio
___television
____
graphic
ad
____
pictures
Provide
information
here:
Contact
name(s):
______________________________________________________________________
Contact
cell:______________________
home:_____________________
office:
___________________
email
home:
____________________________email
work:____________________________________
Name
of
subject:_______________________________________________________________________
Objective
for
publicity
:__________________________________________________________________
Other
contacts:
________________________________________________________________________
Where:
______________________________________________________________________________
When:
______________________________________________________________________________
Other
details/instructions:
____________________________________________________________________________________
____________________________________________________________________________________
Do
you
have
any
pictures?
_____
yes
_____
no
Do
you
have
a
photo
release?
_____
yes
____
no
Approved
by:
_________________________________
Dated:
________________________
34
Copyright
2014
Turner
Syndrome
Foundation
Questions?
Contact
info@tsfusa.org
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