Event Guide - Questions? Contact - Turner Syndrome Foundation

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Event Guide - Questions? Contact - Turner Syndrome Foundation
 	
  	
  	
  
	
  
                                  Event Guide
	
  
                                        Turner	
  Syndrome	
  Foundation,	
  Inc.	
  

                                              Guide	
  to	
  Hosting	
  Events	
  

                       	
  	
  

                                                                                        1	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Event Guide - Questions? Contact - Turner Syndrome Foundation
 	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  
                                                                          3…..About the Program
                                                                          4…..Event Listing
	
  
          Step 1: Lead Your Group
                 5…..Reasons to Lead Team TSF for Turner Syndrome
                       Reasons to start a team
                 6…..How to Recruit
                       Instructions for Turner Syndrome
                       Other ways for Team TSF Leaders to get involved
                 7…..How to Lead Your Team
                 8…..Sample Team TSF Event Structure
                 9…..How to Make Your Event Successful
                 10…..Form Listing
	
  
          Step 2: Publicize and Recruit
                 11.....Promote Team TSF with one-time event
          Step 3: Raise Awareness
                 12…..Awareness Chair
                 13…..Talking Points bout Turner Syndrome and the Foundation
                 14…..Turner Syndrome Fact Sheet
                 15…..Turner Syndrome Trivia Q&A

       Step 4: Fundraise
               16…..How to Collect Donations
                     Smaller Fundraising Events
       Step 5: Sponsorship
              17…..Securing Sponsors
              18…..Case for Support
              19…..Letter Writing Campaign
       Step 6: Planning
               20…..About the Event
                     Registration
                     Handling “Day-of” Registration
               21…..Sample Event Planning Timeline
               22…..Sample Budget
               23…..Day-of Volunteer Duties
               24…..Possible Special Events

                                                                                                                                                                   2	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Event Guide - Questions? Contact - Turner Syndrome Foundation
About the Program	
  
	
  
       Turner Syndrome Foundation (TSF) is providing an opportunity for individuals,
       families, students, schools & universities, physicians & hospitals, communities &
       corporations and other social or civic organizations to raise awareness of this female
       specific disorder in effort to decrease the age of diagnosis and improve health
       practices and research initiatives.
	
  
       TSF offers creative opportunities to fundraise and increase awareness of Turner
       Syndrome, become involved in Turner Syndrome advocacy, gain leadership
       experience with hosting an event, and to build a community with friends. Team TSF
       provides all the materials needed to host a successful event with simple program
       guides and resources for everything from how to organize an event, to how to
       recruit participants and volunteers and publicize the event.
	
  
       YOU can make a difference!
	
  
       More Information about TSF:
       Since 2009, the Turner Syndrome Foundation has been the driving force advocating
       for Turner Syndrome, a life threatening genetic disease that affects roughly 80,000
       women and young girls in the United States alone. The Foundation’s mission in
       establishing Team TSF is to assure the development of means to increase
       professional knowledge and new science that will improve the quality of life for girls
       born with Turner Syndrome.

       About the Guide:
       This guide will give you all the tools you need to plan your event! It includes
       fundraising plans and raising awareness ideas plus all the necessary forms for the
       event. There are general templates and explains sponsorship, things that you need
       for a successful event. Any more questions, don’t hesitate to contact
       info@tsfusa.org. Thank you for your efforts!
	
  
                                                                                                3	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Event Guide - Questions? Contact - Turner Syndrome Foundation
Event Listing:
The Turner Syndrome Foundation is an official charity in many different states throughout the
country!

You can form your own team in these races!

Here is a list of marathons we have been a part of:

    •    Rock ‘n’ Roll Arizona
    •    Rock ‘n’ Roll Nashville,
    •    Rock ‘n’ Roll San Antonio
    •    Rock ‘n’ Roll New York
    •    Novo Nordisk New Jersey Marathon

Please keep in mind that you are able to participate in other marathons!

There are two options for our runners and teams. You can register with the race and
fundraise for TSF separately or we can become an official charity with the race and you and
your team can register through us!

If you want to form your own event, look at our Talent Management Handbook so that you
may become familiar with it and fill out a special event form.

Otherwise, this guide will help you through leading a team for the TSF!

                                                                                                4	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Step 1: Lead Your Group
       Reasons to Lead for Turner Syndrome
       Join a National Movement
           • The TSF has been raising awareness in cities across the country. You can join us on
               this journey in a city near you!

       Gain perspective
          • Realize there is a community of support surrounding you and watch a community of
              support grow.

       Meet Core Values
        • Increase awareness of Turner Syndrome in girls.
        • Increase knowledge of screenings, treatments and interventions for a lifetime of good
            health.
        • Increase volunteer opportunities for people of all abilities and interest.
        • Increase financial support for education, awareness, and research initiatives.
	
  
       Reasons to Start a Team
       Become a Community Leader
         • Develop and utilize leadership skills.
         • Gain valuable experience in marketing, fundraising, volunteer development,
            event planning and community outreach.

       Make a difference
          • Grow a community of support within your region. 	
  

       Make connections
          • Meet other families affected by Turner Syndrome to grow a caring community of
             support.
          • Collaborate with social, civic, and corporate partners to raise vital funds for Turner
             Syndrome.
          • Create new opportunities by expanding a critical network of support.

Start a Legacy
    • Ensure that your movement will continue to support Team TSF in future years.
    • Your valuable leadership experience will be a role model for others.

                                                                                                     5	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
How to Recruit
 Ways to Recruit Public Support:
  • Place flyers in common areas
  • Enlist the help of others in your network (church, civic, community, businesses)
  • Hold informational meetings
  • Contact area schools & hospitals
  • Ask radio stations and websites to announce your club/event
  • Identify a list of people to be interviewed for articles
  • Incentivize volunteers by increasing their skill set
  • Help individuals to meet community service hours

 Where to Start Looking
  • Family and Friends
  • Social or Civic Groups: Country Clubs, Girl Scouts, Junior Women’s League, etc.
  • Students - Opportunities for those interested in career development & experience
  • Volunteer organizations - Individuals already active in service may be more willing to
    join your cause.
  • Medical and Nursing students interested in medical fields may be drawn to the
    scientific and care aspects of Turner Syndrome.
  • Healthcare Centers may have individuals with connection to and understanding of
    Turner Syndrome

Other Ways for Leaders to Get Involved
 TSF Leaders have an opportunity to get involved with the Turner Syndrome Foundation in
 other ways such as being a part of the National Council of State Leaders for your state or
 serve on a working committee. Please ask about these other volunteer opportunities.
 Here are some other ways you can stay involved with the Foundation:
     • Become familiar with our website.
     • Provide professional photo and biography for our website presence.
     • Read the monthly eNewsletter
     • Connect social media pages: Facebook, LinkedIn, Twitter, Instagram

                                                                                              6	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
How to Lead Your Team	
  
	
  
       Push them to meet their goals.
         • Assign your committee tasks.
             Make sure each member understands his or her task and feels
             comfortable asking questions. (See sample structure on following page)
         • Ask for regular reports on progress.
             At meetings, require committee chairs to give an update on progress.
         • If any volunteers are struggling to meet their goal, help them develop a new strategy.
             Talk one-on-one with your volunteers and give them advice on whom to
             contact, how to approach participants or donors, and any other tips.
	
  
       Show that you value your committee’s time.
         • Only hold group meetings when necessary.
         • Run meetings and write e-mails efficiently.
            Be brief with your own announcements and comments. Schedule a set time interval for
            regular meetings. Be mindful of others’ times and be sensitive in email
            communications.
	
  
       Involve each of your committee persons.
         • Encourage each volunteer to participate in meetings and group discussion.
             Have each volunteer give a report or update on recent progress and next
             steps rather than updating the group for them. Focus your attention on
             members who have not had a chance to participate rather than those who
             have been speaking regularly.
         • Ask your committee to fill out evaluations throughout the year and after large events.
             Use anonymous surveys to solicit their suggestions.

       Recognize a job well done.
         • Take the time to thank your committee for all their hard work, and make it a point to
           highlight when your members do a good job.
         • Organize a wrap-party for your team to celebrate their accomplishments.

                                                                                                    7	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Sample TSF Event Structure
	
  
       	
                           	
  

              Position                     Role
       	
                           	
  
       	
                                    •    Serves as a liaison to the Turner Syndrome Foundation
       	
  
              Leader                         •    Main contact regarding general question/concerns pertaining
                                                  to events and activities
                                             •    Oversees activities
       	
                           	
  
       	
  
              Event Chair                    •     Coordinates fundraisers and events.
                                             •     Assists all of the officers with day-to-day operations
       	
                           	
  
       	
                                    •     Collects registration fees and financial transactions for
       	
  
              Treasurer                            the organization
                                             •     Establishes accounting records and a budget
                                             •     Assists with member/volunteer reimbursement
       	
                           	
  
       	
  
              Program Chair                  •     Runs awareness program
                                             •     Runs advocacy program
                                    	
  
                                             •     Creates promotional flyers and banners, works with
              Publicity Chair
                                                   social media outlets to promote programs and events
                                    	
  
                                             •     Gathers information to support the volunteer enrollment
              Volunteer                            and orientation.
              Coordinator
                                             •     Provides information and roles for volunteers
       	
                           	
  
       	
  
                                             •     Records and keeps member data, including
       	
  
                                                   contact information and attendance records
              Secretary
                                             •     Keeps minutes at meetings and records
                                                   relevant event information

       	
                           	
  
       	
                                    •     Coordinate and participate in all program and events
       	
  
       	
                                    •     Recruit participants
              Team (all)                     •     Publicize event
                                             •     Seek sponsors
                                             •     Work collaboratively to ensure success

                                                                                                               8	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
How to Make Your Event Successful	
  
	
  
       Select a date and time that is best for your event.
          Set your date as early as possible. Take into consideration the weather, holidays,
          and other potential conflicts.
	
  
           Consider weather conditions and plan a date or secure an indoor location if
           you are having an outdoor event.
	
  
       Select a location that is attractive and central to your attendees.
        Select a location that is convenient and as accessible as possible

       Create an Event Timeline
         Work with a TSF Coordinator to establish a timeline to shepherd a successful event.
	
  
       Secure your event location and any permits at least one month in advance.
          Per the talent management handbook guidelines, you are responsible to follow
          regulations for the use of your venue.
	
  
       Recruit participants.
          Ask as many people as you can, including your friends and family, colleagues,
          and community members you may know. Ask your committee do the same.
	
  
       Stay enthusiastic and supportive of your group.
          Your attitude is contagious.
	
  
       Encourage all participants to:
          Recruit others to participate in the tournament. Ask for sponsor
          donations face-to-face. Ask their family and friends to help them collect
          donations. Bring their donations with them on event day.
	
  
                                                                                               9	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
 

  Form Listing

  Find the approved forms at the end of this guide for use and organizing a TSF
  Event:
List forms included and page numbers
Event flyer template
Event Registration forms
Event Volunteer waiver
Event Evaluation form
Social media template
Activity report
Sponsor letter template
Sponsor commitment form
Fundraising summary form
Donation form
Name and likeness
Publicity request

                                                                             10	
  
       Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
       Questions?	
  Contact	
  info@tsfusa.org	
  
 

       Step 2: Publicize and Recruit
       Promote TSF with a One-Time Event(s)
	
  
       Hosting a TSF event provides an opportunity to hold a one-time event(s) to raise
       awareness and financial support. This onetime event can help promote the upcoming
       TSF event and build excitement and participation. To host a onetime event, we
       highly recommend becoming familiar with these guidelines and then begin recruiting
       an event committee to help you get started.
	
  
       Hosting a onetime TSF event enables the leader to assemble a group of people and
       sponsors to support your efforts in organizing a successful team event. Creating
       opportunities to grow a group of supporters will help you to achieve a higher level
       of success.
	
  
To start a onetime event, review this guide and begin to recruit volunteers	
  

       Spread the Word
       Use promotional materials, advertisements and social media to spread
       the word about an upcoming event.
	
  
              •   Distribute flyers
              •   Create FB group events
              •   Submit newspaper article and ads
              •   Tweet
              •   Volunteer match
              •   Circulate promotional videos
              •   Distribute Flyers
	
  
       Contact Support Groups
       Reach out to individual groups that may be interested in supporting the Turner Syndrome
       Foundation’s cause.
	
  
              •   Community service organizations
              •   Pre-med/EMT/nursing student groups
              •   Sororities/fraternities
              •   Special event organizers [i.e. county fairs, welfare programs]

                                                                                                 11	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
    Step 3: Raise Awareness
	
  
       Awareness Chair
       While fundraising is a key goal, raising awareness of Turner Syndrome is just as
       important. Here are some ways you can increase awareness of Turner Syndrome on
       your own:
	
  
       1. Post fliers and table at public events — order materials on our website
	
  
       2. Distribute fact sheets with information about how to get involved. See page
       14 of this guide for a sample fact sheet.
	
  
       3. Wear Team TSF logo items – order from our website
	
  
       4. Ice Breaker for Group Meeting
              See page 15 in this guide for sample questions and answers.
	
  
       5. Host a speaker with a connection to Turner Syndrome [a patient, a relative
       or a friend]. Ask the person to speak at the opening ceremony of your TSF event.
	
  
                                                                                          12	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
 
	
  
       Talking Points about Turner Syndrome and the Foundation
        •   What is Turner Syndrome? In non-clinical basic terms, Turner Syndrome is an
            endocrine disorder. Girls will need hormones to grow, estrogen therapy to feminize at
            puberty and throughout much of their lifetime, and the majority of women will be
            infertile. Some girls are born with clinical features or congenital defects. There is a
            host of co-morbidities affecting organs including the heart, kidneys, and bladder and will
            affect thyroid function, blood pressure, diabetes, bone health and so much more.

        •   What is the average age of diagnosis? The average age of diagnosis is 151/2,
            arriving too late for life-altering treatments, early interventions and most importantly
            health screenings for a potentially fatal heart defect.

        •   What does the Turner Syndrome Foundation do? The Turner Syndrome
            Foundation has assumed a leadership role in the United States to advance
            communications through the facilitation of education program, advocacy, outreach, and
            supporting research initiatives.

        •   Are there any cognitive affects in Turner Syndrome? Yes, there is a psycho-social affect
            and virtually all girls have what is sometimes referred to as a nonverbal learning disability. They
            will present with a set of strengths and weaknesses to some varying degree. Fortunately, most
            girls will have average to above average intelligence and many will depend upon supportive
            services in an academic environment.

                ü The Foundation is one of the most effective and efficient organizations of
                   its kind. It has received a Gold Level rating from GuideStar, the largest
                   independent charity evaluator in the United States, and a five-star rating
                   from Great Nonprofits.

                ü The Foundation receives no federal funding and depends on the
                   generosity of individual donors and corporations to support our
                   lifesaving mission.

                                                                                                             13	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
 

       Turner Syndrome Fact Sheet
	
  
       What Is Turner Syndrome?
	
  
       Symptoms
         • Short Stature, 4’8”
         • Delayed puberty
         • Ear infections/ hearing loss
         • High arched palate
         • Wide, short neck
         • Upturned fingernails
         • Diabetes
       Statistics
         • About 800 new cases of TS are diagnosed each year
         • 1 in 2,000 girls will live with TS
         • Only 1-3% of babies survive birth
         • While height is only part of the story, without treatment final height will be 4’8” on
             average.
         • Turner Syndrome is a life-threatening genetic disease that affects approximately
             85,000 children and adults in the United States.

Leadership
Identified in the late 1930s, the syndrome remains commonly unknown by many. The TSF ‘s
commitment to collaborate with medical societies, universities, researchers, and teachers
across the country to create a network of stakeholders. The foundation leadership as a board
of trustees and a well regarded medical advisory board. Awareness events across the US are
organized largely by a volunteer base to fulfill its mission.
National focus
The TSF impacts communities across the US through the website, conferences, exhibits,
newsletter, and outreach.
    -­‐ Information resources online at our website or by telephone (1-800)594-4585
    -­‐ Patient education workshops for patients and care givers
    -­‐ Continuing education opportunities for medical and educational professionals
    -­‐ Team TSF awareness campaign builds community of awareness and support
    -­‐ National Council of state leaders delivers programmatic services to all region

                                                                                                    14	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
 
       Turner Syndrome Trivia Q&A
	
  
       1. A person gets Turner Syndrome from
       A. Country of origin                                 C. It is inherited
       B. Alcohol/Smoking/Drugs                             D. It’s random mutation of genes
	
  
       2. Approximately how many females carry the TS gene in the US?
       A. 100,000                                C. 400,000
       B. 80,000                                 D. 3 million
	
  
       4. TS occurs at:
       A. time of conception                                C. adolescence
       B. toddler years                                     D. birth
	
  
       5. What body functions does TS affect?
       A. endocrine system                                  C. development
       B. growth                                            D. all of the above
	
  
       6. Which of these is not a symptom of TS?
       A. Frequent ear infections                           C. hormone deficiency
       B. Frequent lung infections                          D. Type II diabetes
	
  
       7. About how many new cases of Turner Syndrome are diagnosed each year?
       A. 800                                   C. 10,000
       B. 3,000                                 D. 350
	
  
       8. What is the Turner Syndrome Foundation?
       A. The primary sponsor of TS awareness          C. A foundation that provides funding
       Through impactful program initiatives    for medicine.
       B. A pharmaceutical company specializing       D. An organization that supports higher
        in medicine for patients                        education
       9. What can you do to help?
       A. Participate in Team TSF                      C. Help raise awareness
       B. Make a donation                              D. All of the above
	
  
                                                                                                15	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
 

       Step 4: Fundraise
       How to Collect Donations
       There are several ways you can collect donations. Here are our recommendations:
	
  
       1. Online Fundraising Direct your donors to
             https://turnersyndromefoundation.org/turner_syndrome/ and ask them to include
            your organization name, location and event as their “Donation Message.”
            Remind your donors that they can print out a receipt of their donation that
            can be used for tax deductions.
       2. Check
             Ask your donors to make checks payable to the Turner Syndrome Foundation.
       3. Cash
             Before sending in your donation, convert all cash to check or money order
             to protect against loss in the mail.
	
  
       When you have collected all donations, please complete the Team TSF
       Fundraising Summary Form on page 20 of this guide and mail the form
       and total amount contributed to:
             Turner Syndrome Foundation
             PO Box 726 Holmdel, NJ 07733
	
  
       Smaller Fundraising Events
       Smaller events can be used to promote the upcoming event, raise
       awareness, increase participants, and fundraise. Smaller events are ideal
       for participants to meet their fundraising goal and to increase publicity
       efforts.
	
  
       Some ideas include:
             • Bake sake
             • Chocolate and rose sale
             • Benefit concert or party
             • Late-night food sale
             • Car wash
             • Raffles
*For	
  more	
  ideas	
  visit	
  https://turnersyndromefoundation.org/volunteer-­‐3/volunteerfundraise/	
  
	
  
                                                                                                               16	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
 
Step 5: Sponsorship	
  
       Securing Sponsors
	
  
The Turner Syndrome Foundation is providing a Sponsorship deck
     Ask local businesses to donate a larger amount in return for
     publicity in conjunction with your event
            • The highest level of sponsor is the title sponsor.
            • The next highest level is a presenting sponsor.
            • Several lower sponsors can be event sponsors.
	
  
     Approach local businesses in person
            • Prepare an “elevator speech” about Turner Syndrome and your organization’s
                support of the cause.
            • Discuss what benefits the business would gain from the sponsorship.
            • Ask for a specific amount of money.
            • Thank whomever you speak with for their time.
            • Promptly deliver signed forms accepting the donation for tax purposes.
	
  
       Ask businesses for “in kind” donations of food, supplies, and services for
          your event. These donations can be in place of or in addition to a monetary
          donation.
	
  
       When meeting with potential sponsors, be prepared with an idea of
         what commitment level you want them to make. Ask them what they
         are looking for I n a community collaboration; do not just hand over a printed
         sponsorship package. Learn about the interests of the prospective sponsor, and
         then tailor the sponsorship proposal to meet those needs. Pay attention to
         what your potential sponsor tells you about what he or she likes with regard
         to community involvement—some value signage or name recognition, while
         others appreciate employee involvement.
	
  
       When determining what level to pitch to a sponsor, listen to your
         leader and discuss suggesting a higher level. No business leader will
         be offended about an “ask” that is too high—and your discussion can begin
         at an elevated point.
	
  
 Do not present multiple sponsorship opportunities at one time to a sponsor.
    In doing this, the prospect might choose a lower level sponsorship. Instead, if
    your prospect rejects your first ask, and then try again with a lower level
    sponsorship
(Case for Support supplied on this page)

                                                                                           17	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Letter Writing Campaigns	
  
If you mail a letter, be sure to include a self-addressed envelope.
Personalize	
  a	
  fundraising	
  letter	
  (see	
  template	
  on	
  page	
  30)	
  and	
  send	
  it	
  to	
  everyone	
  you	
  know	
  including	
  area	
  
business	
  contacts.	
  	
  
Don't	
  forget	
  to	
  include	
  the	
  following:	
  
           • How	
  much	
  you	
  intend	
  to	
  raise	
  	
  
           • Information	
  about	
  TSF	
  and	
  its	
  mission	
  	
  
           • A	
  specific	
  monetary	
  request	
  from	
  the	
  individual	
  	
  
	
  
            Who to Ask
     	
  
               Groups to Approach
                   Ø    Friends
                   Ø    Family
                   Ø    Colleagues, Employer
                   Ø    Neighbors, Community Members
                   Ø    Social, Civic, Volunteer Groups
                   Ø    Local businesses
     	
  
            Remember to thank all donors when you receive their contribution.

                                                                                                                                                           18	
  
     Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
     Questions?	
  Contact	
  info@tsfusa.org	
  
 

	
  	
  	
     Step 6: Planning
	
  
          About the Event:
	
  
          As the event committee, you will publicize the event and recruit your friends, groups
          and other individuals to raise critical funds for the Foundation as well as care and
          education programs. The committee will do their own fundraising as well through
          sponsorships and smaller fundraising events, and planning and running the event itself.
	
  
          Registration:
          Try to recruit 10-20 Turner Syndrome volunteers for a successful event. Give
          each volunteer a registration packet that can be found on at:
	
  
          Volunteers can earn prizes for higher levels of fundraising, include your creative
          ideas!

          Handling Day-of Registration
	
  
          Some may decide on the day of your event to come and participate. Don’t turn them
          away... Be prepared to accommodate one or two extra participants. To allow for
          day-of registration and encourage others to sign up beforehand, make your day-of
          registration fee $15 or $20 instead of $10.
	
                                     	
  

                                                                                                    19	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Sample Event Planning Timeline
	
  
       6 months before the event
          Secure committee
          Set date and reserve site
          Recruit volunteers
          Find sponsors
	
  
       4 months before event
          Secure materials
          Promote event via Facebook, posters/flyers, advertisements, newsletters
	
  
       2 months before event
          Confirm sponsors and amount of food and beverages
          Order t-shirts, bracelets and medals
          Set deadline for Turner Syndrome Foundation fundraising
	
  
       1– 2 weeks before event
          Confirm volunteers
          Confirm food/beverage
          Confirm participants
          Confirm site and equipment
          Collect Turner Syndrome Foundation entry fees
          Send a final reminder to your on Facebook and through e-mails
	
  
       Within one week after event
          Thank sponsors
          Thank Turner Syndrome Foundations
	
                                   	
  

                                                                                    20	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
 
              Sample Budget
	
  
              Event                                                                           Price          # of             Total
       	
                                                                              	
             	
               	
  
                               Income                                                  	
             	
               	
  
               Registration (per Turner Syndrome
               Foundation of 10-15)
       	
                                                                              	
             	
               	
  
          Donations (over the required $200 per                                        	
             	
               	
  
       Turner Syndrome Foundation)

       	
  	
  	
  	
  	
  	
  In	
  kind	
  donations	
                               	
             	
               	
  
       	
                                                                              	
             	
  
       	
                                                                              	
             	
               	
  
                                                         Sponsors                      	
             	
               	
  
                                Title
                                Presenting
                                Event
       	
                                                                              	
             	
  
       	
                                                                              	
             	
               	
  
                                                     Expenses                          	
             	
               	
  
                                Food/Beverages
                                T-shirts
                                Advertisement
                                Printing                                               	
             	
  
                                Signage                                                	
             	
  
                                                Try to get t-shirts and food donated   	
             	
               	
  

                	
  Registration	
                                                     	
             	
               	
  
       	
                                                                              	
             	
               	
  
       	
                                                                              	
             	
               	
  
       	
                                                                              	
             	
               	
  
       	
                                                                              	
                    Total
                                                                                                             Income:                  $
       	
                                                                              	
                    Total
                                                                                                             Costs:                   $
       	
                                                                              	
                    Net
                                                                                                             Income:                  $4,045
	
  
Treasurer	
  Name	
  ______________________________________________	
  
	
  
Contact	
  Information	
  ___________________________________________________________________________	
  
Submit	
  Date	
  _________________________________________	
  
Approve	
  Date	
  ______________________________________

                                                                                                                                               21	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Day–of Volunteer Duties
	
  
       	
                       	
                      	
  
       	
                                               	
  
                                       Number of
              Volunteer Title                                  Position Duties and Notes
                                       Volunteers
       	
                       	
                      	
  
              Set Up                   10                        •    Set up day of the event

       	
                       	
                      	
  
       	
                       	
                               •    Greet attendees
              Greeters                 10                        •    Show participants where to go
                                                                 •    Pass out programs
       	
                       	
                      	
  
       	
                       	
                               •    Collect any last-minute registration fees
              Registration             3-5                       •    Guest sign in
                                                                 •    Solicit donations
       	
                       	
                      	
  
       	
                       	
  
                                                                 •    Work with the Foundation to find someone with TS
              Speaker                  1-2
                                                                      or a relative/friend to speak at the opening
                                                                      ceremony
       	
                       	
  
       	
                       	
                               •    Handle payment and serving
              Refreshments             2-4                       •    Ask customers if they would like to give a few extra
                                                                      dollars
       	
                       	
  
                                                                 •    Work the booth
       	
                       	
  
              Side events              2-3                       •    Collect payment
                                                                 •    Ask participants if they would like to give a few extra
                                                                      dollars
       	
                       	
                               •    Provide entertainment to make every event
       	
                       	
                                    memorable.
              Entertainer              1                         •    Ask for an in-kind donation.
       	
                       	
                      	
  
       	
                              1 per Team TSF             •   Serve as main contact for the Turner Syndrome
              Leader                                                  Foundation
                                                                  •   In charge of reaching the fundraising goal
                                                                  •   Complete registration for the Turner Syndrome
                                	
                      	
  
       	
                                                             Foundation
                                       Many as                    •   Clean up any and all areas used for the event
              Clean up
                                       possible                   •   Leave it better than you found it.
	
  
                                                                                                                          22	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Possible Special Events
	
  
       Create	
  special	
  events	
  before	
  Team	
  TSF	
  Event	
  for	
  building	
  community	
  purposes!	
  	
  
       Be	
  creative,	
  follow	
  your	
  passion,	
  and	
  tell	
  everyone	
  you	
  know	
  that	
  you	
  need	
  support!	
  
       	
  	
  
               •    Treats and Sweets for Turner Syndrome bake sale
               •    Awareness reception & wine / cheese tasting
               •    Raffle Auction
               •    Restaurant Night
               •    Letter Writing Campaign
               •    Meet and Greet before event
               •    Game Night
               •    Sports Tournaments (karate, hockey, soccer, etc.)
               •    Pancake Breakfast
               •    Spaghetti Dinner
               •    Popcorn and Movie Night
               •    Children’s play group gathering
               •    Mothers’ Club gathering
               •    Food sales (candy, pizza, doughnuts, etc)

Seasonal

           •       Birthday or Special Event Donation Collection
           •       Yard / Garage Sale
           •       Golf Outing
           •       Marathon and Letter Campaign
           •       Car Wash
           •       Family Swim Night at local pool
           •       Block Party / Carnival
           •       Concert or Caroling

                                                                                                                                        23	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Team
          (Name/Organization)

           [Event Name] to benefit the
          Turner Syndrome Foundation
	
  
[Date] [Time]
[Location]
[Registration Fee]
	
  
       Join with your friends and compete while
       supporting an important cause!
	
  
       To sign up, contact
       [committee member]
       at [email and/or
       phone #]
                                                            24	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Event Evaluation Worksheet
	
  
       Group:
	
  
       College:
	
  
       Event:
	
  
       Date held:
	
  
       Amount raised:
	
  
       Cost of event:
	
  
       Total donation:
	
  
       What about your event worked well? (Recruitment, publicity, day-of, etc.)
	
  
       What would you like to improve about your event?
	
  
       Advice for next year’s committee:
	
  
       Please send a copy to:
	
  
       Turner Syndrome Foundation
       Attn: Team TSF Leadership
       PO Box 726
       Holmdel, NJ 07733
                                                                                   25	
  
Copyright	
  2018	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Sample Facebook Event Page
	
  
       Please join us for a [event] to benefit the Turner Syndrome Foundation on [date] at
       [time] at [location]. [Event details].
	
  
       Get some friends together and benefit the Turner Syndrome Foundation. Come to
       have fun and support an important cause.
	
  
       To sign up, please contact [committee member] at [email or phone #]
       For more information, please contact [event chair] at [email].
       To learn more about Turner Syndrome visit
       www.TurnerSyndromeFoundation.org
	
  
       Thanks and we hope to hear from you soon!

       Sample E-blast

       Dear              ,

       Want to have fun, and support an important cause?
	
  
       ([Organization] presents [Event] a benefit to support Turner Syndrome
	
  
       Join us for a [Event name] to benefit the Turner Syndrome Foundation on [date]
       at [time] at [location].
	
  
       [Event Details]
	
  
       So get some friends together to support Turner Syndrome Foundation!
	
  
       To sign up, contact [committee member] at [email or phone]
       For more information, contact [event chair] at [email or phone]
       To learn more about Turner Syndrome visit
       www.TurnerSyndromeFoundation.org
	
  
       Thanks! Hope to hear from you soon!

                                                                                             26	
  
Copyright	
  2014	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
ACTIVITY	
  REPORT	
  Form	
  

Submitted	
  by:	
  __________________________________________	
  Date:	
  ______________________________	
  

Email:	
  __________________________________________	
  Cell#	
  (___)	
  _____-­‐_________	
  

Program	
  Area:	
  ___	
  Advocacy	
  ____	
  Awareness	
  ____	
  Education	
  ____	
  Research____	
  

Objective:	
  
________________________________________________________________________________________	
  

Action:	
  	
  ___Telephone	
  ___	
  Email	
  ___In	
  person	
  ___Event	
  ___	
  Letter	
  ___	
  

Event	
  Name:	
  
_________________________________________________________________________________________	
  

Location:	
  
________________________________________________________________________________________	
  

Date:	
  
_________________________________________________________________________________________	
  

Contact	
  name:	
  _____________________________________________________________________________	
  

Company:	
  _________________________________________________________________________________	
  

Street:	
  ___________________________________________________________________________________	
  

City:	
  ________________________________	
  State:	
  ______	
  Zip:	
  _______________	
  

Co	
  ____	
  Tele:	
  (___)	
  _____-­‐_________Email__________________________	
  

Assistant:	
  _______________________________	
  Tele:	
  (___)	
  _____-­‐_________Email:_____________________	
  

Comment:	
  
_________________________________________________________________________________________	
  

Additional	
  Contacts:	
  

Contact	
  name:	
  _____________________________________________________________________________	
  

Company:	
  ________________________________________________________________________________	
  

Street:	
  ___________________________________________________________________________________	
  	
  

City:	
  _____________________________	
  State:	
  ______	
  Zip:	
  _______________	
  

Co	
  _____	
  Tele_______________________________	
  Email__________________________	
  

Assistant:	
  __________________________________	
  Tele:	
  (___)	
  _____-­‐_________Email:	
  _________________	
  

Comment:_________________________________________________________________________________	
  

                                                                                                                    27	
  
        Copyright	
  2014	
  Turner	
  Syndrome	
  Foundation	
  
        Questions?	
  Contact	
  info@tsfusa.org	
  
Contact	
  name:	
  ____________________________________________________________________________	
  

Company:	
  ________________________________________________________________________________	
  

Street:	
  ___________________________________________________________________________________	
  
City:	
  _____________________________	
  State:	
  ______	
  Zip:	
  _______________	
  

Co	
  _____	
  Tele:	
  (___)	
  _____-­‐_________Email__________________________	
  

Assistant:	
  __________________________	
  Tele:	
  (___)	
  _____-­‐_________Email:	
  _________________________	
  

Comment:	
  
_________________________________________________________________________________________	
  

Contact	
  name:	
  _____________________________________________________________________________	
  

Company:	
  ________________________________________________________________________________	
  

Street:	
  ___________________________________________________________________________________	
  
City:	
  _____________________________	
  State:	
  ______	
  Zip:	
  _______________	
  

Co	
  _____	
  Tele:	
  (___)	
  _____-­‐_________Email__________________________	
  

Assistant:	
  __________________________	
  Tele:	
  (___)	
  _____-­‐_________	
  Email	
  _________________________	
  

Comment:	
  
_________________________________________________________________________________________	
  

Contact	
  name:	
  _____________________________________________________________________________	
  

Company:	
  _________________________________________________________________________________	
  

Street:	
  ___________________________________________________________________________________	
  
City:	
  _____________________________	
  State:	
  ______	
  Zip:	
  _______________	
  

Co	
  ____	
  Tele:	
  (___)	
  _____-­‐_________	
  Email__________________________	
  

Assistant:	
  _______________________	
  Tele:	
  (___)	
  _____-­‐_________	
  Email:	
  ____________________________	
  

Comment:	
  
_________________________________________________________________________________________	
  

Outcome:	
  
_________________________________________________________________________________________
_________________________________________________________________________________________	
  

Follow	
  up:	
  
_________________________________________________________________________________________
_________________________________________________________________________________________	
  

Next	
  steps:	
  
_________________________________________________________________________________________	
  
                                                                                        28	
  
         Copyright	
  2014	
  Turner	
  Syndrome	
  Foundation	
  
         Questions?	
  Contact	
  info@tsfusa.org	
  
Sponsor Letter Template____________________________________	
  
 Today's	
  Date	
  

 Sponsor	
  Name	
  

 Address	
  

 City,	
  State,	
  Zip	
  	
     	
         	
           	
           	
           	
           	
          	
           	
           	
           	
  

 Dear	
  (Sponsor	
  Name):	
  

 On	
  (event	
  date)	
  I	
  will	
  be	
  participating	
  in	
  the	
  (name	
  of	
  the	
  event)	
  to	
  benefit	
  the	
  Turner	
  Syndrome	
  Foundation	
  
 (TSF).	
  

 I	
  am	
  (walking	
  /	
  running	
  /	
  jogging)	
  to	
  raise	
  awareness	
  of	
  Turner	
  Syndrome.	
  I	
  am	
  a	
  member	
  of	
  (Company/Family	
  
 team	
  name)	
  and	
  my	
  personal	
  fundraising	
  goal	
  is	
  $________.	
  I	
  am	
  asking	
  everyone	
  I	
  can	
  to	
  support	
  this	
  
 worthwhile	
  cause.	
  Please	
  consider	
  making	
  a	
  donation	
  in	
  my	
  name	
  at	
  www.TurnerSyndromeFoundation.org	
  or	
  
 sending	
  a	
  donation	
  by	
  mail	
  by	
  check	
  payable	
  to	
  the	
  Turner	
  Syndrome	
  Foundation,	
  P.	
  O.	
  Box	
  726,	
  Holmdel,	
  NJ	
  
 07733.	
  [If	
  you	
  have	
  been	
  personally	
  touched	
  by	
  Turner	
  Syndrome,	
  include	
  your	
  personal	
  story,	
  to	
  the	
  extent	
  
 that	
  you	
  are	
  comfortable	
  here.]	
  

 TSF	
  is	
  dedicated	
  to	
  funding	
  research	
  and	
  educational	
  programs	
  for	
  the	
  patient	
  community,	
  health	
  
 professionals,	
  physicians	
  and	
  the	
  public.	
  Together,	
  our	
  support	
  for	
  TSF	
  will	
  reduce	
  suffering	
  and	
  the	
  loss	
  of	
  life	
  
 as	
  well	
  improves	
  quality	
  care	
  outcomes.	
  With	
  a	
  baby	
  being	
  born	
  with	
  Turner	
  every	
  eight	
  minutes,	
  the	
  
 importance	
  of	
  TSF's	
  mission	
  has	
  never	
  been	
  greater,	
  nor	
  our	
  work	
  more	
  urgent.	
  

 Please	
  give	
  a	
  donation	
  that	
  leaves	
  you	
  feeling	
  a	
  part	
  of	
  this	
  great	
  event	
  and	
  that	
  has	
  you	
  stretch	
  beyond	
  your	
  
 usual	
  contribution.	
  I	
  know	
  it	
  will	
  make	
  a	
  difference	
  for	
  you	
  and	
  for	
  many	
  others.	
  

 Thank	
  you	
  for	
  your	
  time	
  and	
  consideration.	
  If	
  you	
  have	
  any	
  questions	
  about	
  Team	
  TSF,	
  please	
  do	
  not	
  hesitate	
  
 to	
  contact	
  me	
  at	
  (Your	
  phone	
  number	
  and/or	
  email).	
  

 Sincerely,	
  

 (Your	
  Name)

                                                                                                                                                                          29	
  
        Copyright	
  2014	
  Turner	
  Syndrome	
  Foundation	
  
        Questions?	
  Contact	
  info@tsfusa.org	
  
Sample Sponsor Commitment Form
	
  
SPONSORSHIP COMMITMENT
	
  
Name of Organization or Donor (As it should appear in all materials):
_________________________________________________________________________
	
  
Address___________________________________________________________________
___City_________________________________________________                                               State____
Zip_________
Phone (____) ___________ Email ___________________________________________
SPONSORSHIP LEVELS
        Title Sponsor: $1,000 (Limited to one sponsor)
  • Event naming rights
  • Opportunity to distribute promotional items with company logo to game participants
  • Audio and visual recognition at event
  • Opportunity for one Turner Syndrome Foundation to participate in the tournament
  • Company logo on all t-shirts
  • Recognition on event website and all event promotional materials and banner
	
  
                  Presenting Sponsor: $500
       •      Audio and visual recognition at event
       •      Opportunity to distribute promotional items with company logo to game participants
       •      Company logo on all t-shirts
       •      Recognition on event website, promotional materials and banner
	
  
                  Event Sponsor: $250
       •      Audio and visual recognition at event
       •      Company logo on all t-shirts
       •      Recognition on event website, promotional materials and banner
	
  
We wish to be a Team TSF sponsor at $                                level.
	
  
We are unable to sponsor this year but please accept our donation of $                             .

Enclosed is my check for $
Signature of Contact Person
	
  
                           Please make all checks payable to Turner Syndrome Foundation and mail to:
       	
  
                                            [Name] [Street]
                                            [City, State ZIP]

                                                                                                              30	
  
       Copyright	
  2014	
  Turner	
  Syndrome	
  Foundation	
  
       Questions?	
  Contact	
  info@tsfusa.org	
  
Fundraising Summary Form
	
  
       Event Chair or Leader
	
  
       Phone                                                Email
	
  
       Host or Business
	
  
       Address
	
  
       City                                                     ST      ZIP
	
  
       Date of Event                                   Number of Participants
	
  
       Total Number of Volunteers

Please return this completed form as soon after your event as possible.	
  
	
  
       Sponsors or donors who write checks to support your event should make them
       payable to the Turner Syndrome Foundation.
	
  
       Remember to convert any cash received into a cashier’s check or money order that is
       made payable to the Turner Syndrome Foundation. Never send cash in the mail.
       If any checks have been made out to you, one of your participants or your
       organization, they should be endorsed and converted along with the cash. (Cashier’s
       checks or money orders can be purchased at a bank or post office.)

       Mail this form and total amount contributed to:

               Turner Syndrome Foundation
               PO Box 726 Holmdel, NJ 07733

                                                                                             31	
  
Copyright	
  2014	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
MAIL OR FAX DONATION FORM

                         THIS PRINTABLE FORM IS AVAILABLE FOR SPONSORS WANTING TO DONATE

                         OFFLINE.   FILL IN YOUR NAME IN THE BLANK SPACE PROVIDED TO MAKE SURE
                         THAT YOUR SPONSOR'S DONATION IS APPLIED TO YOUR ONLINE FUNDRAISING
                         PAGE.
SUPPORT ME AS I PARTICIPATE IN THE Team TSF Awareness Movement
My contribution is sponsoring __________________________________________________________.
                      	
  
                                            (Individual or Team TSF Name)

Event City: ________________________________________________________________________

Sponsor Message: ____________________________________________________________
Donation Amount $__________

         Make Checks Payable to Turner Syndrome Foundation, Inc.
         (Please do not staple or tape checks to this form)

Cash ___ Check # __________ Visa ___ Master Card ___ AmExp ___ Discover ___
Credit Card # ________________________________________________
Expiration Date: _______/_______/_______ CVV#_____________
Signature ___________________________________________ Date:________/______/______

Sponsor Name: ______________________________________________________________________
Address ____________________________________________________________________________
City ____________________________________________ State __________ Zip _________________
Home phone _(       )_________-____________Work Phone (________)__________-    _________

E-mail _______________________________________@_____________________________________

Corporate Matching Gift:________________________________________________________________

                                    Double your gift! Provide name and address of matching corporate donor.

                        Mail this form and your check (please do not send cash) to:

                                        Turner Syndrome Foundation, Inc.
                                         PO Box 726, Holmdel, NJ 07733

                                    Send credit card donations by Fax to:
                                           TSF Fax #: 800-594-3862
                      Basic inquiries: Telephone 800-594-4585 or Email info@tsfusa.org

       Due to the high volume of donations received both in the mail and on the day of the event, please allow
                    2-3 weeks from the date that the donation is received to post to your account.

                        Thank you for your kind and generous support!

              Turner Syndrome Foundation, Inc. is a 501(c) (3) nonprofit organization EIN 27-1409942

                                                                                                                 32	
  
Copyright	
  2014	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
PO Box 726, Holmdel, NJ 07733

 N AM E & LIK EN ESS RELEASE

In connection with the production of video content for the Turner Syndrome Foundation Inc, the undersigned
hereby agrees that you may film, videotape, photograph me and record my voice. You shall be the exclusive
owner of the results and proceeds thereof with the right to use and to edit my name, likeness and voice in any
and all media, including without limitation, theatrical, print television, radio, and video cassettes, in and in
connection with the exhibition theatrically, on television or otherwise, of any motion picture, videotape, or other
form in which the same may be incorporated and in the advertising, sale, publicity and promotion of any such
motion picture, videotape, or product associated therewith. I hereby release and discharge you, your
successors, subsidiaries, assigns, agents, affiliates, licensees and advertising agencies from any and all
claims, demands, or causes of action which I may at any time have in connection with the use and license of
the rights granted herein. I warrant and represent that I have read the foregoing and fully understand the
meaning and effect thereof and, intending to be legally bound, I have signed this release this ______day of
__________________, 20____.

I am over 18 years of age: Yes____ No_____

Name (PRINT)_________________________________________________________________

Address ______________________________________________________________________

Email ________________________________________________________________________

Signature _____________________________________________________________________

If the person signing is under the 18 years of age, consent is given by parent or legal guardian as follows:

I hereby certify that I am the parent or legal guardian of _________________________________ named
above, and for value received, sufficiency of which is hereby acknowledged, I give my consent without
reservation to the foregoing on behalf of him or her.

Name (PRINT) _______________________________

Signature____________________________ (parent or guardian)
                                                                                                                      33	
  
Copyright	
  2014	
  Turner	
  Syndrome	
  Foundation	
  
Questions?	
  Contact	
  info@tsfusa.org	
  
Turner	
  Syndrome	
  Foundation	
  
                                                                         Publicity	
  Request	
  Form	
  

	
  	
  	
  TODAY’S	
  DATE:	
  	
  _____________________________	
  DEADLINE:_______________________________	
  	
  
	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  
Name	
  :___________________________________	
  	
  Program:	
  ___________________________________	
  
	
  
Contact	
  Tele#:__________________________________	
  Email	
  address:	
  __________________________	
  
	
  
Type	
  of	
  Publicity:	
  	
  
	
  
____	
  press	
  release	
  	
  	
  	
  	
  ___feature	
  article	
  	
  	
  ____social	
  media	
  	
  	
  	
  ___	
  website	
  	
  ____	
  calendar	
  item	
  
____	
  radio	
  	
  	
  ___television	
  	
  	
  ____	
  graphic	
  ad	
  	
  ____	
  pictures	
  	
  	
  	
  
	
  
Provide	
  information	
  here:	
  
	
  
Contact	
  name(s):	
  ______________________________________________________________________	
  
	
  
Contact	
  	
  cell:______________________	
  home:_____________________	
  office:	
  ___________________	
  
	
  
email	
  home:	
  ____________________________email	
  work:____________________________________	
  
	
  
Name	
  of	
  subject:_______________________________________________________________________	
  
	
  
Objective	
  for	
  publicity	
  :__________________________________________________________________	
  
	
  
Other	
  contacts:	
  ________________________________________________________________________	
  
	
  
Where:	
  ______________________________________________________________________________	
  
	
  
When:	
  ______________________________________________________________________________	
  
	
  
Other	
  details/instructions:	
  
____________________________________________________________________________________	
  
	
  
____________________________________________________________________________________	
  
	
  
Do	
  you	
  have	
  any	
  pictures?	
  	
  	
  	
  _____	
  yes	
  	
  	
  _____	
  no	
  	
  	
  Do	
  you	
  have	
  a	
  photo	
  release?	
  _____	
  yes	
  	
  	
  ____	
  no	
  
Approved	
  by:	
  _________________________________	
  	
  	
  	
  Dated:	
  	
  ________________________	
  	
  
	
  
                                                                                                                                                                                            34	
  
    Copyright	
  2014	
  Turner	
  Syndrome	
  Foundation	
  
    Questions?	
  Contact	
  info@tsfusa.org	
  
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