Project Balloon Final Meeting - March 21, 2017 IDEO + Three Lakes Partners - IPF Catalyst Challenge
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Project Balloon Final Meeting March 21, 2017 IDEO + Three Lakes Partners
OBJEC T IVE FOR P ROJEC T B AL LO ON Understand the lives and challenges of those with IPF, their caregivers, and families to discover key opportunities that can create meaningful improvement. IDEO + T HREE L AKES PART NERS 2
P ROJEC T P L AN
1 - - 2 3 4 5 6 7 8 9 10
DIS C OVERY & INSP IR AT ION DE SIGN E XP LOR AT ION REFINEMEN T & C OMMUNICAT ION
Kick-off / Research: Research: Concept Refinement & Brief
Pause + Recruiting Synthesis Concept Design Prototyping User Looks
Planning Pittsburgh Bay Area Preparation
••• ••• ••• •••
IDEO + T HREE L AKES PART NERS 3IDEO’S P RO CESS
Immersed in IPF Identified Opportunities Patient Feedback Captured Stories
We spent time with patients, Based on what we learned in the We brought our conceptual We synthesized the most
families, experts with different field, we identified opportunities provocations to the PF Warriors important needs to share with
perspectives, socioeconomic that would improve patients and in Dallas to get their feedback on potential partners so they have
statuses, geographies, and stages families quality of life, as well as whether we were in the right greater empathy and
of the disease the greater system of care for IPF direction and to understand understanding of how IPF
criteria for success for whomever impacts quality of life
would move these ideas forward
IDEO + T HREE L AKES PART NERS 4OBJEC T IVES FOR TODAY
1 2
Conceptual Communication
Provocations Materials + Assets
Present the vision for a future patient Share a collection of assets that tell the
experience with new conceptual human story of IPF and the viral charge of
products and services. what we can do about it.
IDEO + T HREE L AKES PART NERS 5T HE HUMAN SIDE OF IP F VISION FOR THE FU T URE TAKING ACTION Let’s breath life into IPF. In order to do something about it, we must first understand and empathize with the realities of this disease. Many patients and clinicians liken the sensation to breathing through a coffee stirrer. Together, we can make this invisible disease visible. IDEO + T HREE L AKES PART NERS 7
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION The Human Side of IPF IDEO + T HREE L AKES PART NERS 8
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION IP F IS AN UNKNOWN DISE A SE What is Idiopathic Pulmonary Fibrosis? IPF is an irreversible, unpredictable and incurable disease. And it’s relatively unknown. It starts with scarring of the lungs that prohibits them from properly moving oxygen into the bloodstream. IDEO + T HREE L AKES PART NERS 9
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
IP F IS AN UNKNOWN DISE A SE T HE S TAT IS T ICS
What is Idiopathic
People in the US living with IPF every year, approx.
100,000
Pulmonary Fibrosis? People who die from IPF every year, approx.
40,000
Median length of survival after IPF diagnosis
IPF is an irreversible, unpredictable and
3.8 Years
incurable disease. And it’s relatively
Approximate percentage who die unexpectedly
unknown. It starts with scarring of the 80% in a hospital setting, which can be a painful,
costly, and emotional end-of-life experience
lungs that prohibits them from properly
moving oxygen into the bloodstream. The trend in all these numbers is
Rising
IDEO + T HREE L AKES PART NERS 10T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
IP F IS AN UNKNOWN DISE A SE
The patient’s
IP F IS AN UNKNOWN DISE A SE T HE S TAT IS T ICS
What is Idiopathic
People in the US living with IPF every year, approx.
experience 100,000
Pulmonary Fibrosis? People who die from IPF every year, approx.
40,000
Confusing the diagnosis Comparing it to lung cancer Struggling to explain
Median length of survival after IPF diagnosis
When they first hear “Idiopathic Since it’s more familiar, they tend to Without public awareness, patients
Pulmonary Fibrosis,” usually at
IPF is an irreversible, unpredictable and
diagnosis, patients and their families
compare IPF to cancer, unsure if this is
better or worse.
3.8 Years
wrestle with understanding and
explaining the realities of this disease
incurable disease. And it’s relatively
have no context or grounding to know
how to react.
to friends, family, employers, and the
general public. Approximate percentage who die unexpectedly
unknown. It starts with scarring of the 80% in a hospital setting, which can be a painful,
costly, and emotional end-of-life experience
lungs that prohibits them from properly
moving oxygen into the bloodstream. The trend in all these numbers is
Rising
IDEO + T HREE L AKES PART NERS 12T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION IP F IS AN INVISIBL E DISE A SE How does it feel to live with IPF? The clinical description of Idiopathic Pulmonary Fibrosis does not begin to explain how the patients experience this disease. IDEO + T HREE L AKES PART NERS 13
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
IP F IS AN INVISIBL E DISE A SE T HE MO MEN TS PAT IEN TS FEEL IP F
How does it feel
• General shortness of breath
with daily activities
to live with IPF?
• Nagging cough making it
difficult to carry on
conversations
• Seeing themselves wearing a
cannula for the first time
• Carrying heavy oxygen tank
The clinical description of Idiopathic • Having to re-train breathing
after lung transplant
Pulmonary Fibrosis does not begin to
explain how the patients experience
this disease.
IDEO + T HREE L AKES PART NERS 14T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
IP F IS AN INVISIBL E DISE A SE
The patient’s
IP F IS AN INVISIBL E DISE A SE T HE MO MEN TS PAT IEN TS “FEEL” IP F:
Howexperience
does it feel
• General shortness of breath
with daily activities
to live with IPF?
• Nagging cough making it
difficult to carry on
conversations
• Seeing themselves wearing a
Misjudging the reality Grieving for breathing Breathing through a coffee stirrer
cannula for the first time
Until someone is on oxygen, their Patients have described IPF in many For IPF patients, breathing is like
families and the public tend to ways, but all share the anxiety of • Carrying
inhaling heavy
through a coffee oxygen
stirrer, with tank
The clinical description of Idiopathic
misjudge the severity of IPF. Most running out of oxygen. A Respiratory this constant need to try to catch their
Pulmonary Fibrosis does not begin to
patients complain that their loved ones Therapist described patients’ physical breath. For someone without IPF, it’s
assume they “feel fine” just because experience with IPF as continuously comparable to running up a flight of
explain how the patients experiences
they “look fine”. “grieving for their breathing.” stairs.
this disease.
IDEO + T HREE L AKES PART NERS 16T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION IP F IS AN UNP REDIC TABL E DISE A SE How does it impact everyday life? IPF does not just impact the lungs — it affects the patient and their family physically, cognitively, emotionally, and financially. IDEO + T HREE L AKES PART NERS 17
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
IP F IS AN UNP REDIC TABL E DISE A SE HOW E VERYDAY L IFE CHANGES
How does it impact
• More time needed to get ready
• Prioritizing exercise and a
everyday life?
healthy diet
• Minimizing or adjusting
household chores
• Avoiding going outside in
extreme weather
• Avoiding crowded public places
IPF does not just impact the lungs — to protect immune system
it affects the patient and their family • Extensive planning and
physically, cognitively, emotionally, coordination for travel with
oxygen
and financially.
IDEO + T HREE L AKES PART NERS 18T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
IP F IS AN UNP REDIC TABL E DISE A SE
The patient’s
IP F IS AN UNP REDIC TABL E DISE A SE WHAT HA S TO CHANGE FOR E VERYDAY L IFE:
Howexperience
does it impact
• More time to get ready
• Prioritizing exercise
everyday life? • Maintaining a healthy lifestyle and
diet
• Minimizing or adjusting household
Adjusting to a new speed Keeping active Taking chores
it day by day
As the disease progresses, patients first Many experts believe staying active can Because many patients have a hard
notice everything takes longer than positively affect someone’s mental • Extensivethe
time understanding planning
progress and
of
IPF does not just impact the lungs —
before. Most initially attribute this to state when living with this terminal coordination
their disease, patients andfor travel
families dealwith oxygen
it affects the patient and their family
age, but many patients sooner or later illness, while also being key for a lung emotionally with this unpredictability
realize they need workarounds to transplant. As the disease progresses, a by appreciating each day as a small
physically, cognitively, emotionally,
accomplish normal everyday tasks. patient’s standard for “staying active” victory.
and financially. changes as their oxygen needs
increase.
IDEO + T HREE L AKES PART NERS 20T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION IP F IS A T ERRIBL E DISE A SE What motivates and brings hope to those with IPF? IPF can challenge someone’s sense of self worth, but these patients are determined to live a life greater than their disease. IDEO + T HREE L AKES PART NERS 21
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
IP F IS A T ERRIBL E DISE A SE
The patient’s
IP F IS A T ERRIBL E DISE A SE WHAT HA S TO CHANGE FOR E VERYDAY L IFE:
What motivates and
• More time to get ready
experience • Prioritizing exercise
brings hope to those • Maintaining a healthy lifestyle and
diet
with IPF?
• Minimizing or adjusting household
Walking with faith Maintaining the normal chores
Supporting fellow patients
IPF patients have been described as Losing control over their lives and Many patients and family caregivers
resilient and persevering. Even though actions is frustrating. Patients and • Extensive
are inspired by helpingplanning and
one another.
they’ve been given this terrible family try to maintain a sense of coordination
They come to realize theirfor travel with
experience oxygen
IPF does not just impact the lungs —
diagnosis with a confusing and
difficult-to-grasp prognosis, these
normalcy — finding solutions that
allow them to continue enjoying their
was not for nothing, and might bring
hope to the next person.
it affects the patient and their family
patients are determined to live each hobbies and everyday life.
and every day, moved by their faith and
physically, cognitively, emotionally,
the people around them.
and financially.
IDEO + T HREE L AKES PART NERS 23T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
IP F PAT IEN T J OURNE Y
exam for makes prepares for
routine or referral to local testing with local joins clinical starts transplant adjustments to transplant
unrelated issue pulmonologist pulmonologist trials process home + daily life (relocates) lung transplant
? ?
! 3 8 15
+/-
IPF lt lt lt
nagging PCP treats for infection local pulmonologist self-refers to waits for the specialist does specialist gives / provided with starts medication(s) tries to starts oxygen starts pulmonary feels manages + minimizes travel short of breath ends up in ICU moves into
cough (trial & error cycle) refers to ILD specialty center appointment tests + rules confirms IPF options for the understand IPF + therapy rehab exacerbation increases O2 + outings all the time hospice care
specialty center everything out diagnosis next step what this means (exacerbation)
“Now let’s talk...”
isolation +
“At least it is not cancer!” caregiver burden
not prepared for
“It is nothing, just getting old...” poor service +
the late stage of
limited access to limited options
IPF
the right care no option can with O2
cure IPF vendors
“Rehab makes me feel better.”
losing
independence
and pride
“We’ll go slower, we’ll make it work.” “Nobody told us he was going to die.”
misconceptions &
wrong misled of
information transplant
eligibility anxiety of the
family does not unknown, fear
get it of running out
no awareness
of IPF to
fathom reality
misdiagnosed & of diagnosis
“This is not a cure. Just slows IPF.” not ready to plan “You’re eligible and then you’re not.” clunky O2 devices
unhelpful “You’re going to die in 5 years.” for end-of-life
prevent from
treatments staying active
“O2 doesn’t go beyond 15lt.”
IDEO + T HREE L AKES PART NERS 24T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
exam for
routine or referral to local testing with local joins clinical s
unrelated issue pulmonologist pulmonologist trials
? ?
SE ARCHING FOR AN ANSWER
Prior to diagnosis,
! IPF individuals can be stuck in3lt
this on-going loop of
doctors and tests, often for
several years, trying to find
something definitive.
nagging PCP treats for infection local pulmonologist self-refers to waits for the specialist does specialist gives / provided with starts medication(s) tries to starts oxygen s
cough (trial & error cycle) refers to ILD specialty center appointment tests + rules confirms IPF options for the understand IPF + therapy
specialty center everything out diagnosis next step what this means
“At least it is not cancer!”
“It is nothing, just getting old...”
limited access to
the right care no option can
cure IPF
“Re
losing
independence
and pride
misconceptions &
wrong
information
family does not
get it
no awareness
of IPF to
fathom reality
misdiagnosed &
unhelpful “You’re going to die in 5 years.”
of diagnosis
“This is not a cure. Just slows IPF.” not ready to plan
for end-of-life
treatments
IDEO + T HREE L AKES PART NERS 25T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
exam for
routine or referral to local testing with local joins clinical s
unrelated issue pulmonologist pulmonologist trials
? ?
Searching for SE ARCHING FOR AN ANSWER
!
an Answer IPF
Prior to diagnosis,
individuals can be stuck in3lt
this on-going loop of
doctors and tests, often for
several years, trying to find
something definitive.
nagging PCP treats for infection local pulmonologist self-refers to waits for the specialist does specialist gives / provided with starts medication(s) tries to starts oxygen s
cough (trial & error cycle) refers to ILD specialty center appointment tests + rules confirms IPF options for the understand IPF + therapy
specialty center everything out diagnosis next step what this means
“At least it is not cancer!”
“It is nothing, just getting old...”
limited access to
the right care no option can
cure IPF
“Re
losing
independence
and pride
misconceptions &
wrong
information
family does not
get it
no awareness
of IPF to
fathom reality
misdiagnosed &
unhelpful “You’re going to die in 5 years.”
of diagnosis
“This is not a cure. Just slows IPF.” not ready to plan
for end-of-life
treatments
IDEO + T HREE L AKES PART NERS 26T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
exam for
routine or referral to local testing with local joins clinical s
unrelated issue pulmonologist pulmonologist trials
? ?
SE ARCHING FOR AN ANSWER
Prior to diagnosis,
! IPF individuals can be stuck in3lt
this on-going loop of
doctors and tests, often for
several years, trying to find
something definitive.
nagging PCP treats for infection local pulmonologist self-refers to waits for the specialist does specialist gives / provided with starts medication(s) tries to starts oxygen s
cough (trial & error cycle) refers to ILD specialty center appointment tests + rules confirms IPF options for the understand IPF + therapy
specialty center everything out diagnosis next step what this means
“At least it is not cancer!”
“It is nothing, just getting old...”
limited access to
the right care no option can
cure IPF
“Re
losing
independence
and pride
misconceptions &
wrong
information
family does not
get it
no awareness
of IPF to
fathom reality
misdiagnosed &
unhelpful “You’re going to die in 5 years.”
of diagnosis
“This is not a cure. Just slows IPF.” not ready to plan
for end-of-life
treatments
IDEO + T HREE L AKES PART NERS 26T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
makes prepares for
joins clinical starts transplant adjustments to transplant
trials process home + daily life (relocates) lung transplan
UNDERS TANDING & AC CEP T ING
After a confirmed diagnosis,
3 8 15lt try to
+/-
IPF lt lt patients and families
make sense of this new,
unheard of disease. Many
have to get to the point of
acceptance before moving
does
les
specialist gives /
confirms IPF
provided with
options for the
starts medication(s) tries to
understand IPF +
starts oxygen
therapy
starts pulmonary
rehab
feels
exacerbation
manages +
increases O2
forward. minimizes travel
+ outings
short of breath
all the time
ends up in ICU moves into
hospice care
out diagnosis next step what this means (exacerbation)
“Now let’s talk...”
isolation +
“At least it is not cancer!” caregiver burden
not prepared for
poor service +
the late stage of
limited options
IPF
no option can with O2
cure IPF vendors
“Rehab makes me feel better.”
losing
independence
and pride
“We’ll go slower, we’ll make it work.” “Nobody told us he was go
misled of
transplant
eligibility anxiety of the
family does not unknown, fear
get it of running out
no awareness
of IPF to
fathom reality
of diagnosis
“This is not a cure. Just slows IPF.” not ready to plan “You’re eligible and then you’re not.” clunky O2 devices
prevent from
for end-of-life
staying active
“O2 doesn’t go beyond 15lt.”
IDEO + T HREE L AKES PART NERS 27T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
makes prepares for
joins clinical starts transplant adjustments to transplant
trials process home + daily life (relocates) lung transplan
Understanding UNDERS TANDING & AC CEP T ING
IPF
and Accepting
3 lt 8 lt
+/-
After a confirmed diagnosis,
15lt try to
patients and families
make sense of this new,
unheard of disease. Many
have to get to the point of
acceptance before moving
does
les
specialist gives /
confirms IPF
provided with
options for the
starts medication(s) tries to
understand IPF +
starts oxygen
therapy
starts pulmonary
rehab
feels
exacerbation
manages +
increases O2
forward. minimizes travel
+ outings
short of breath
all the time
ends up in ICU moves into
hospice care
out diagnosis next step what this means (exacerbation)
“Now let’s talk...”
isolation +
“At least it is not cancer!” caregiver burden
not prepared for
poor service +
the late stage of
limited options
IPF
no option can with O2
cure IPF vendors
“Rehab makes me feel better.”
losing
independence
and pride
“We’ll go slower, we’ll make it work.” “Nobody told us he was go
misled of
transplant
eligibility anxiety of the
family does not unknown, fear
get it of running out
no awareness
of IPF to
fathom reality
of diagnosis
“This is not a cure. Just slows IPF.” not ready to plan “You’re eligible and then you’re not.” clunky O2 devices
prevent from
for end-of-life
staying active
“O2 doesn’t go beyond 15lt.”
IDEO + T HREE L AKES PART NERS 28T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
makes prepares for
joins clinical starts transplant adjustments to transplant
trials process home + daily life (relocates) lung transplan
UNDERS TANDING & AC CEP T ING
After a confirmed diagnosis,
3 8 15lt try to
+/-
IPF lt lt patients and families
make sense of this new,
unheard of disease. Many
have to get to the point of
acceptance before moving
does
les
specialist gives /
confirms IPF
provided with
options for the
starts medication(s) tries to
understand IPF +
starts oxygen
therapy
starts pulmonary
rehab
feels
exacerbation
manages +
increases O2
forward. minimizes travel
+ outings
short of breath
all the time
ends up in ICU moves into
hospice care
out diagnosis next step what this means (exacerbation)
“Now let’s talk...”
isolation +
“At least it is not cancer!” caregiver burden
not prepared for
poor service +
the late stage of
limited options
IPF
no option can with O2
cure IPF vendors
“Rehab makes me feel better.”
losing
independence
and pride
“We’ll go slower, we’ll make it work.” “Nobody told us he was go
misled of
transplant
eligibility anxiety of the
family does not unknown, fear
get it of running out
no awareness
of IPF to
fathom reality
of diagnosis
“This is not a cure. Just slows IPF.” not ready to plan “You’re eligible and then you’re not.” clunky O2 devices
prevent from
for end-of-life
staying active
“O2 doesn’t go beyond 15lt.”
IDEO + T HREE L AKES PART NERS 28T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
makes prepares for
starts transplant adjustments to transplant
process home + daily life (relocates) lung transplant
ADAP T ING TO A NE W NORMAL
Now that they’re dependent
3 8 15
+/-
lt lt lt on oxygen therapy, patients
are trying to figure out how
to continue living with these
new physical constraints and
emotional struggles.
starts oxygen starts pulmonary feels manages + minimizes travel short of breath ends up in ICU moves into
+ therapy rehab exacerbation increases O2 + outings all the time hospice care
(exacerbation)
“Now let’s talk...”
isolation +
caregiver burden
not prepared for
poor service +
the late stage of
limited options
IPF
with O2
vendors
“Rehab makes me feel better.”
losing
independence
and pride
“We’ll go slower, we’ll make it work.” “Nobody told us he was going to die.”
misled of
transplant
eligibility anxiety of the
family does not unknown, fear
get it of running out
not ready to plan “You’re eligible and then you’re not.” clunky O2 devices
prevent from
for end-of-life
staying active
“O2 doesn’t go beyond 15lt.”
IDEO + T HREE L AKES PART NERS 29T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
makes prepares for
starts transplant adjustments to transplant
process home + daily life (relocates) lung transplant
Adapting to a ADAP T ING TO A NE W NORMAL
3 lt
New8Normal lt
+/-
15 lt
Now that they’re dependent
on oxygen therapy, patients
are trying to figure out how
to continue living with these
new physical constraints and
emotional struggles.
starts oxygen starts pulmonary feels manages + minimizes travel short of breath ends up in ICU moves into
+ therapy rehab exacerbation increases O2 + outings all the time hospice care
(exacerbation)
“Now let’s talk...”
isolation +
caregiver burden
not prepared for
poor service +
the late stage of
limited options
IPF
with O2
vendors
“Rehab makes me feel better.”
losing
independence
and pride
“We’ll go slower, we’ll make it work.” “Nobody told us he was going to die.”
misled of
transplant
eligibility anxiety of the
family does not unknown, fear
get it of running out
not ready to plan “You’re eligible and then you’re not.” clunky O2 devices
prevent from
for end-of-life
staying active
“O2 doesn’t go beyond 15lt.”
IDEO + T HREE L AKES PART NERS 30T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
makes prepares for
starts transplant adjustments to transplant
process home + daily life (relocates) lung transplant
ADAP T ING TO A NE W NORMAL
Now that they’re dependent
3 8 15
+/-
lt lt lt on oxygen therapy, patients
are trying to figure out how
to continue living with these
new physical constraints and
emotional struggles.
starts oxygen starts pulmonary feels manages + minimizes travel short of breath ends up in ICU moves into
+ therapy rehab exacerbation increases O2 + outings all the time hospice care
(exacerbation)
“Now let’s talk...”
isolation +
caregiver burden
not prepared for
poor service +
the late stage of
limited options
IPF
with O2
vendors
“Rehab makes me feel better.”
losing
independence
and pride
“We’ll go slower, we’ll make it work.” “Nobody told us he was going to die.”
misled of
transplant
eligibility anxiety of the
family does not unknown, fear
get it of running out
not ready to plan “You’re eligible and then you’re not.” clunky O2 devices
prevent from
for end-of-life
staying active
“O2 doesn’t go beyond 15lt.”
IDEO + T HREE L AKES PART NERS 30T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
prepares for
transplant
(relocates) lung transplant
L E AVING A L EG ACY
Patients think about how
15 lt they want to be
remembered by friends and
family and face the realities
of end-of-life planning.
minimizes travel short of breath ends up in ICU moves into
+ outings all the time hospice care
(exacerbation)
“Now let’s talk...”
isolation +
caregiver burden
not prepared for
the late stage of
IPF
e’ll make it work.” “Nobody told us he was going to die.”
anxiety of the
unknown, fear
of running out
clunky O2 devices
prevent from
staying active
“O2 doesn’t go beyond 15lt.”
IDEO + T HREE L AKES PART NERS 31T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
prepares for
transplant
(relocates) lung transplant
Leaving a L E AVING A L EG ACY
15 lt
Legacy Patients think about how
they want to be
remembered by friends and
family and face the realities
of end-of-life planning.
minimizes travel short of breath ends up in ICU moves into
+ outings all the time hospice care
(exacerbation)
“Now let’s talk...”
isolation +
caregiver burden
not prepared for
the late stage of
IPF
e’ll make it work.” “Nobody told us he was going to die.”
anxiety of the
unknown, fear
of running out
clunky O2 devices
prevent from
staying active
“O2 doesn’t go beyond 15lt.”
IDEO + T HREE L AKES PART NERS 32T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
prepares for
transplant
(relocates) lung transplant
L E AVING A L EG ACY
Patients think about how
15 lt they want to be
remembered by friends and
family and face the realities
of end-of-life planning.
minimizes travel short of breath ends up in ICU moves into
+ outings all the time hospice care
(exacerbation)
“Now let’s talk...”
isolation +
caregiver burden
not prepared for
the late stage of
IPF
e’ll make it work.” “Nobody told us he was going to die.”
anxiety of the
unknown, fear
of running out
clunky O2 devices
prevent from
staying active
“O2 doesn’t go beyond 15lt.”
IDEO + T HREE L AKES PART NERS 32T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION Vision for the future IDEO + T HREE L AKES PART NERS 33
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION How much better could the future be? We know what the current experience is like living with IPF. But if there were more patient- centered products and services for this population, we could change that story. IDEO + T HREE L AKES PART NERS 34
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION Taking Action IDEO + T HREE L AKES PART NERS 36
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION WHY NOW Moving from invisible disease to visible opportunities IDEO + T HREE L AKES PART NERS 37
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION WHY NOW Moving from invisible disease to visible opportunities Clinicians are desperate for innovative patient solutions. IDEO + T HREE L AKES PART NERS 37
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
WHY NOW
Moving from invisible
disease to visible
opportunities
Clinicians are desperate for The industry is recognizing
innovative patient solutions. the opportunities in
addressing IPF.
IDEO + T HREE L AKES PART NERS 37T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
WHY NOW
Moving from invisible
disease to visible
opportunities
Clinicians are desperate for The industry is recognizing Patients are creating their
innovative patient solutions. the opportunities in own networks of support.
addressing IPF.
IDEO + T HREE L AKES PART NERS 37T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION WHY NOW Patients expect more from out-of-pocket dollars. IDEO + T HREE L AKES PART NERS 38
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION WHY NOW As consumers, patients want products that fit into their lifestyle. IDEO + T HREE L AKES PART NERS 39
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
Local Clinicians
HIRED
S TAKEHOL DER M AP PRIMARY CARE
PHYSICIAN Caregivers
This shows the common
CHILDREN
LOCAL
PULMONOLOGIST
players that influence the SPOUSE
INTERNET
COMMUNITIES
Communities
IPF patient’s experience.
There’s an opportunity to IPF
PATIENT
ACADEMIC SPECIALIZED
MEDICAL CENTER PULMONOLOGIST
SUPPORT
create a tighter, more
GROUPS FOUNDATIONS
RESPIRATORY
THERAPIST
supportive, network of Specialized
Medical Care
care around the patient. TRANSPLANT NURSE Policy
Vendors
GOVERNMENT
INSURANCE
OXYGEN
DELIVERY
PHARMACY +/-
SOCIAL WORKER PHARMACEUTICALS
CLINICAL RESEARCH OXYGEN
CUSTOMER SUPPORT
IDEO + T HREE L AKES PART NERS 41T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
WHERE TO TAKE AC T ION
E ARLY DE T EC T ION EDU CAT ION DATA + OX YGEN L AT E S TAGE SUP P ORT
How might we detect How might we How might we How might we make
IPF earlier and create educate and ready generate insights on quality of life better
a smoother path to patients for the IPF by collecting real- in the advanced
care? unknown? time data through stages of IPF?
oxygen therapy?
IDEO + T HREE L AKES PART NERS 43T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
HOW MIGH T WE
detect IPF earlier
and create a smoother
path to care?
Next
IDEO + T HREE L AKES PART NERS E ARLY DE T EC T ION EDU CAT ION45T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
WHY I T M AT T ERS WHO WIL L BENEFI T:
Patients could better advocate for themselves by
After a confirmed diagnosis, patients knowing their options and what to expect
scramble to grasp the seriousness while Caregivers could have more tools to be a better caregiver,
families try to adjust and physicians strive delivered to them compassionately, reducing the guilt they
may feel along the way
to set clear expectations. This situational
Clinicians could be more efficient with their limited patient
spiral prevents constructive planning and time, able to focus on the complex questions
preparation for all involved. Payers could benefit from lower medical costs,
as patients can better manage their condition, exacerbation
events, potentially minimizing ICU visits, and better planning
for end of life
Previous Next
IDEO
E ARLY+ TDE
HREE
T ECLTAKES
ION PART NERS EDU CAT ION DATA + OX YGEN59T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION HOW MIGH T WE generate insights on IPF by collecting real-time data through oxygen therapy? Previous Next IDEO + T HREE EDU CAT ION L AKES PART NERS DATA + OX YGEN L AT E S TAGE S UP P ORT61
T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
WHY I T M AT T ERS WHO WIL L BENEFI T:
Patients could be more informed on when it’s time to get care
Today’s standard practice involves clinical visits / or a new prescription for oxygen therapy
testing every 3-6 months along with prescribed Caregivers could feel more informed on how the patient is
oxygen. Because the disease progresses doing over time and have a better idea when to get them
additional help
unpredictably, understanding the time between +/-
Oxygen Industry could adopt new technologies, creating
visits and how oxygen supports the patient beyond additional value for their devices and usage
the clinic could unlock new information for IPF. A Clinicians could set ever-improving practice standards based
on newly-collected data
smarter oxygen therapy system, collecting real- Pulmonary Rehab could see an increase in referrals, especially
time data, could allow Clinicians to provide more if Payers see more value in reimbursing as an IPF therapy
responsive care to their patients. Payers could gain more understanding of oxygen therapy and
pulmonary rehab benefits for IPF patients, identifying needs for
coverage
Clinical Research could potentially identify new correlations or
pattern creating expertise on IPF
Previous Next
IDEO + T HREE
EDU CAT ION L AKES PART NERS DATA + OX YGEN L AT E S TAGE S UP P ORT70T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
HOW MIGH T WE
make quality of life
better in the advanced
stages of IPF?
Previous
IDEO
DATA++T HREE L AKES PART NERS
OX YGEN L AT E S TAGE SUP PORT 73T HE HUMAN SIDE OF IP F VISION FOR T HE F U T URE TAKING AC T ION
WHY I T M AT T ERS WHO WIL L BENEFI T:
Patients could be more empowered to live out their final years
While the disease progression is unpredictable, at home with devices that support them through their final days
everyone with IPF experiences eventual Caregivers could feel more prepared for what’s to come,
exacerbations, leading to higher oxygen needs, knowing the onus is not just on them during this difficult stage
decline in physical abilities, and an increase in Speciality Centers could see a rise in patients taking advantage
of palliative care, minimizing the high percentage of patients
anxiety. With more advanced oxygen products and ending up in ICU
more human services, these families can be
+/-
Oxygen Industry could see an increase in demand to support
patients’ for longer term care
supported with a more comfortable and Payers could benefit from patients who are more active
meaningful experience in the late stage of IPF. throughout their care, potentially minimizing the costs of
mental healthcare and reducing ICU and end-of-life care costs
Previous
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DATA++T HREE L AKES PART NERS
OX YGEN L AT E S TAGE SUP PORT 80IDEO + T HREE L AKES PART NERS 85
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