Rise to the challenge - of fighting MND Your events 2019 guide - MND Association
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Your events 2019 guide
Rise to the
challenge of fighting MND
Ex-footballer Len Johnrose,
living with MND, who took
part in the London City
Swim in 2018.
Welcome
Welcome
Dear Supporter,
Welcome to the 2019 Fundraising Events diary! Over the next few pages you
can find out more about the many ways that you can take action to support the
MND Association. Whether you like the challenge of a sporting event, or prefer
to do your own thing in your own time, you can find out more about how you
can get involved.
2019 marks 40 years of the MND Association. We’re so grateful for everything
you have helped us to fund so far, but there’s still so much more to do to bring
us closer to a world free from MND. And we need your continued support to
help us do this.
So, do take a look and see how you can get involved. Hopefully you’ll be
spurred on by those who have shared their experiences of taking part in events
for us.
You will also find stories of inspirational individuals living with MND who are
fundraising and taking part in events in order to fightback against this disease.
Whatever you choose to do and however much you raise, you are all utterly
inspiring to us, and you help us to keep going in the fight against MND
Thank you,
Your fundraising team
“Thanks for all your Contents
support through the
4 Running events 26 bakeit!
challenge, we’ve
been really impressed 11 Cycling events 28 Silence Speaks
with the support and 14 Trekking events 30 Walk to d’feet MND
correspondence 20 Fun runs 32 Fundraise your way
from you on behalf of 21 Virtual races 37 #TeamMND
the MND Association, 23 Adventure challenges 38 What next?
so THANK YOU!”
24 Swimming events
Matt Garget
2 3
Run
Running events
We have pre-purchased places in the following events so that
we can guarantee you a place.
The Vitality Big Half The Brighton Marathon Royal Parks Half Marathon,
10 March 2019 14 April 2019 London
Registration fee: £25 Registration fee: £35 13 October 2019
Minimum sponsorship: £350 Minimum Sponsorship: £450 Registration fee: £30
Check with us now for last minute availability, Join this beautiful coastal marathon for great Sponsorship: £395
or if you have your own place let us know! crowd support and be part of the second See London’s most beautiful green spaces.
www.mndassociation.org/bighalf largest marathon in the UK!
www.mndassociation.org/royalparks
www.mndassociation.org/brighton
The London Landmarks Great South Run, Portsmouth
Half Marathon London Marathon
20 October 2019
24 March 2019 2019 is sold out, but enquire now for 2020
Registration fee: £20
places! If you have your own place in the
Registration fee: £30 Sponsorship: £195
ballot for 2019, then please do let us know.
Minimum sponsorship: £350 A flat and fast coastal route, great for beginners
www.mndassociation.org/VLM
Sold out event but if you have your own and those looking to set a personal best alike.
place let us know! Newham 10km, London www.mndassociation.org/gsr
www.mndassociation.org/LLHM Our events team will be present at all of
July 2018
the above events to give you our personal
Registration fee £30
thanks, and well-deserved refreshments at
Minimum sponsorship: £195 the finish line!
An opportunity to cross the finish line in the
Queen Elizabeth Olympic stadium.
“Thank you and your
www.mndassociation.org/newham
team for the fabulous
The Great North Run welcome yesterday
08 September 2019 when I arrived at the
Registration fee: £35 (early bird entry of £20 MND hospitality tent...
until 31st March 2019)
it made me feel
Minimum sponsorship: £425
10 foot tall!”
Be quick to secure your place in the world’s
biggest half marathon! Lesley Ridley
www.mndassociation.org/gnr We love to be there to
share the moment with
There’s no better feeling than the sense of you where possible!
accomplishment after your challenge!
4 5
Take inspiration from Dean and his friends
others who have been certainly stood out
there and done it! from the crowds
in Brighton!
My
#TeamMND Fighting back
experience against MND
In April this year, Faron Scott will be passionately fundraising for the MND Dean Halkes was just 35 when he was But 2018 was a huge year for Dean, with him
taking on his third Brighton Marathon, Association ever since, in his memory. diagnosed with MND – a real shock taking part in both the Brighton Marathon
having raised over £2,000 for the for someone who had always been so and the Great North Run. He was pushed
“I would really recommend this event to
Association to date! active both at home and in his work as a around the courses by his friends, some of
anyone. Not only is it a well organised event
structural engineer. whom he’s known for over 25 years. Their
Faron tells us more about why he got that spans the whole weekend, there is a
unwavering support of their best friend and
involved in this fantastic event: “It was 9 real festival atmosphere with the whole city At the time he was happily married, but as he
getting all their friends and family involved
months on from my brother Darren’s MND coming together to get behind all of the struggled to come to terms with his diagnosis
in fundraising for both Dean and the MND
diagnosis in Autumn 2015 and the disease 12,500 runners. Over 150,000 spectators his world fell apart. He said: “I worked as a
Association has been incredible.
was really starting to take control of him. He line more or less the entire route, providing contractor, so if I didn’t work, I didn’t get
was no longer able to walk unaided and his a huge helping of support with lots of paid. I had to give up work a year after I was Dean added: “Taking part in these events is
speech was starting to become affected. cheering, music, bands and even the city’s diagnosed and my marriage ended. It was amazing. I would thoroughly recommend
radio station’s support. the worst time of my life. I found myself in a others with MND getting involved in
Looking for the next challenge hole; everything was going wrong.” doing fundraising events. It’s a great way
“#TeamMND are an awesome group of
“After successfully completing a handful of having fun, raising a lot of money and it
people. Meeting everyone near the start
of 10k’s and a half marathon, I decided in the morning for a chat and photos “Taking part in these gets me away from the TV! MND changes
all the time and getting out in front of
to take on the challenge of a marathon. helped keep things calm. We were likely events is amazing. I would people as things change can make you self-
Having missed the ballot for London by just facing the most epic challenge of the year
a few weeks, I looked to the second largest thoroughly recommend conscious, so there is an element of bravery
(and for some, their life). Meeting them all
Marathon in the UK – Brighton. again afterwards in the charity village for others with MND getting in getting yourself out there, but if you get
the right orthotics to support you at an
“Sadly, Darren passed away in March recuperation (and tea, Mars bars and a leg involved in doing event and have a bit of champagne, you
2017, aged 47, just a few weeks before my massage!) was truly amazing and made it a fundraising events.” can get through anything!”
first Brighton Marathon and I have been weekend I will never forget.”
Dean Halkes
6 7
Run
Run anywhere!
You can secure your own place on any running event local to you
– visit our website www.mndassociation.org/otherrunning to
find out what’s going on in your area.
Once you’ve secured a place, just let us know so that we can welcome
you to #TeamMND and provide you with a running vest and everything
you need to raise some funds! Here’s some suggestions for other
Alex always runs with a
huge smile on her face running events that you can purchase your own place in.
no matter what!
My Edinburgh Marathon Festival Northampton Half Marathon
#TeamMND 25-26 May 2019
Registration: Dependent on distance, visit
29 September 2019
Registration: £29
experience website for details.
Sponsorship: Raise what you can!
Sponsorship: Raise what you can!
The MND Association’s home town half
With distances including Junior 1.5k, 2k, 5k marathon has a fantastic atmosphere with the
10k and half and full marathons, you’ll be able #TeamMND cheer squad there to cheer on our
to find something to do. runners. This great route will really make you
41 year old Alex Wilson has been on an
www.mndassociation.org/edinburgh feel at the heart of #TeamMND!
epic running journey since she signed up
for her first 10k in 2016. www.mndassociation.org/northamptonhalf
Bournemouth Marathon Festival
The mum of two, who used to ‘hate running
with a passion’, has lost almost four stone 7-8 October 2019
since she started couch to 10k training and Registration: Dependent on distance, visit
has completed numerous half marathons, website for details.
marathons and even ultra-marathons. Sponsorship: Raise what you can!
Care worker Alex was inspired to fundraise As with Edinburgh there’s a whole range of
after supporting a lady living with MND in a distances that the family can get involved in.
care home. www.mndassociation.org/bournemouth
Alex said: “My lady knew I had joined a
weight loss club and I just couldn’t get “Her death really impacted on me as it’s
my 3.5 half stone certificate. She was very such a cruel disease and she didn’t ever
interested as her daughter was a weight complain. She was just the most amazing
loss consultant. Every week I saw her after person.”
weigh in, her first question would be, have
Alex has so far taken part in the London
you done it yet? I finally got it three months
Marathon and the Great North Run among
after she passed away and I quietly said
many other events and has raised a massive
to myself, this is for you as I got presented
£5,319 so far.
with my certificate. Support from your family on the day can get
Thank you Alex!
you through the toughest challenge.
8 9
Cycle
UK cycle rides
Nightrider Cycle Challenge London to Brighton Cycle
London 8-9 June 2019 Challenge
Glasgow 22-23 June 2019 15 September 2019
Bristol 6-7 July 2019 Registration fee: Early bird £40 until end of
Liverpool 13-14 July 2019 January, £45 after.
Registration fee: £35 before 31 March, £45 Sponsorship: £175
Fighting back thereafter.
Minimum Sponsorship: £175
Join 4,000 cyclists on this popular 54-mile
route from capital to coast.
against MND
With 50km and 100km routes to choose www.mndassociation.org/L2B
from in each city, this event is suitable for all
abilities. Why not set yourself an even bigger
challenge and take on all four cities?
www.mndassociation.org/nightrider
Cath Muir has had a busy time recently “However, that didn’t happen so I threw
and is showing no signs of slowing down! myself into doing challenges. Jumping Prudential
In 2018 alone, the 58-year-old who is out of a plane, loop the loop in a glider, RideLondon-Surrey 100
living with MND, took on the Nightrider organising a yearly dance to raise funds,
Cycle Challenge, the Great North Run and coast to coast on a tandem, 42 miles of the 4 August 2019
organised her own Walk to d’feet. London Nightrider and having asked last Registration fee: £35
year after my son’s partner ran the Great Sponsorship: £550
Cath, her family and friends have raised
North Run for the MND Association if I Follow the famous route of the 2012 Olympic
thousands of pounds for the MND
could do it pushed in a wheelchair, that’s road race to complete this challenge.
Association.
when it was decided I would do it.” She
Sign up at www.mndassociation.org/
was pushed around the iconic course in her
Dealing with the diagnosis ridelondon
wheelchair by her sons Dave and James
She said, “In the year prior to getting the and met at the finish line by her new baby
MND diagnosis I had a very good idea what grand-daughter Izzy. “I’m not a cyclist, so doing
it was. We looked for every possibility that
it might not be MND but knew we were a 54-mile cycle was a
grasping at straws. I had always wanted to “I decided I would do challenge, but taking part
do the Great North Run but never quite got the Great North Run with a team of colleagues
around to it. I said if I am not diagnosed being pushed in my really helped as we all
with MND I will get fit and do the next
Great North Run. wheelchair.” supported each other to
Cath Muir get to the finish line.”
Cycling is increasing in popularity and we have
Teresa Deacon, London to Brighton participant a great range of events to choose from.
10 11
Cycle
Alison covered 300 miles
International
in 3 days on this amazing
adventure!
cycle rides
London to Paris Tour de Paris to Geneva Cycle
France Cycle 28 July – 2 August 2019
24- 28 July 2019 Registration fee: £149
Registration fee: £139 Minimum sponsorship: £2,000
My Minimum Sponsorship: £1,600
Self-funded option: £800
Self funded option: £1,000
Already done Cycle London to Paris and
#TeamMND Connect two of the world’s most chic capital
cities as you embark on the charity bike ride
looking for the next challenge?
This fantastic, yet tough ride, sees you leave
experience
challenge of a lifetime, pedalling your way Paris after watching the Tour de France finale
out of London and through beautiful English and spend 4 days in the saddle, riding across
villages. Soon you will be in rural France the stunning French countryside, through
where you’ll pass historical landmarks and medieval towns and crossing through the
famous battlefields from World War I, cycling famous vineyard regions of Burgundy and
Alison Jones joined us on our Cycle gruelling hills. But, eventually, we arrived until you reach Paris where you’ll celebrate Champagne. You’ll then pass through the
London to Paris challenge in summer 2018 on the outskirts of Paris and followed the your success at the city’s most famous charming Roman Spa town of Lons-le-Saunier,
to mark a milestone birthday. River Seine to the Bois de Boulogne, where landmark, the Eiffel Tower. which marks the start of the epic finish to this
we gathered for the final stretch. It felt like You will get the chance to ride the last few challenge – to conquer the Juras Mountains!
She said: “As I was approaching my 70th miles of the Tour de France through Paris,
a victory ride; three miles ridden slowly in Without a doubt, the feeling of tackling the
birthday, I decided that it was appropriate then on the following day get to see all the hairpin bends of Col de la Faucille (1,232m)
convoy, with support vehicles at the front
to undertake a significant challenge to final stage action LIVE from the world famous will never be forgotten. The downhill from
and rear. It was amazing to ride around the
celebrate being fortunate enough to enjoy Champs-Elysees. this Tour de France Col straight into Geneva is
Arc du Triomphe and up to the Eiffel Tower.
good health - something which I know from sure to be breath-taking!
We had done it! It was possible. Elation www.mndassociation.org/L2P
experience is not to be taken for granted.
wiped out fatigue. www.mndassociation.org/p2g
“As I had expected, this challenge took me
“After the celebration, there was just the
well beyond my comfort zone. I truly valued
final few miles through the centre of Paris “It was a unique
the support of other riders and the crew as
my challenge was enhanced by burst inner
to the hotel. I felt carefree; the cycling experience cycling past the
was easy. My biggest challenge ever was Arc de Triomphe in blazing
tubes and a tyre, extreme heat and some
finished. I may have been slower than many
but completion had been my only goal, and sunshine and then spying
“You don’t have to be raising money for the MND Association. the Eiffel Tower as we
a super fit cyclist, just “Would I recommend the challenge to headed down to the Seine.
determined and dogged.” others? Without a doubt. You don’t have to People were cheering us
be a super fit cyclist, just determined and on as we passed!”
Alison Jones dogged. Nor do you have to be young, just
fit enough. Age is in your head.” Andrew Barritt
12 13
Trek
All generations got
UK Treks
involved in the climax
of this family challenge!
You can explore some of the most scenic parts of the UK by taking
on the challenge of one of these organised trekking events.
The Three Peaks challenge Thames Path Challenge
Dates: All year round 7-8 September 2019
Registration fee: £99 Registration fee: from £40, dependent
Minimum Sponsorship £600 on distance.
The Three Peaks Challenge is the ultimate Sponsorship: from £245, dependent
UK trek challenge. The three peaks are the on distance.
highest in Scotland, England and Wales and This stunning challenge is increasing in
your challenge is to climb them one after the popularity year on year, and we can see why.
other in 24 hours. It’s incredibly flexible – choose your distance
www.mndassociation.org/3peaks of 25km, 50km or 100km and then choose
whether to walk, jog or run.
Trekfest For full details of costs and to register, visit
www.mndassociation.org/thamespath
Brecon Beacons 6 July 2019
Peak District 31 August 2019 The South Coast Challenge
My #TeamMND experience
Registration fee: from £55, dependent on
25-26 August 2019
distance.
Registration fee: from £40, dependent on
Sponsorship amount: from £180 dependent
distance.
on distance
Sponsorship: from £245, dependent on The Singh family were recently battling We believe my brother is in a peaceful
This challenge enables you to trek through
distance. stormy conditions for #TeamMND on the place now.”
some of our most beautiful terrain in either
the Brecon Beacons or the Peak District. You As with the Thames Path this event is flexible three peaks.
for you to adapt to suit your ability. So join us The team raised a wonderful £1,189 in
choose your location and distance - either a Jasbir and his intrepid team took on the memory of Baldev, to help others facing life
25km or 50km walk. on this, or one of the other locations such as
the Cotswolds, Wye Valley and Isle of Wight. Three Peaks Challenge but were forced to with motor neurone disease.
www.mndassociation.org/trekfest abandon it at the last mountain. However,
For full details on the locations and
they were determined to go back and finish
cost of these challenges please visit
and here they are celebrating at the top of
“It has been an
www.mndassociation.org/actionseries
Ben Nevis. emotional roller coaster
They returned with an even bigger team for the whole family but
including a couple of six-year old’s. The we have come out the
team completed the challenge for Jasbir’s other end.”
brother, Baldev Singh, who died of MND
in July. Jasbir explained, “It has been an Jasbir Thumber
Don’t forget to take your
MND Association banner emotional roller coaster for the whole
on your challenge for a family but we have come out the other end.
photo opportunity!
14 15
Phil was pushed in
Fighting back
the event by some
volunteers from the RUN
MND Facebook group.
against MND
Having been diagnosed with MND in June “I have seen and benefited from the
2016, I felt I needed a new challenge to fantastic work the Association does. I
raise funds and awareness for the MND absolutely trust the MND Association to
Association and to achieve something make the best use of the funds raised, to
worthwhile, even in my state of health. support vital research, provide care for
people with MND and support them to live
“Signing up to the Great South Run and
as full a life as possible.
being pushed 10 miles around the streets
of Portsmouth may not sound as impressive “I have seen the differences made thanks
as running a marathon, trekking across to the support of my local branch and
the Sahara or climbing Everest but given the Association Visitors. They make a real
all the help and support of my friends and difference to our lives. I also received help
family, it will be quite enough. That will be towards the cost of ramps to enable me to
my Everest. go in and out of my house.
“I have been working in the charity
sector for the last 15 years and I have not
seen an organisation which offers such
a comprehensive and valuable range of
services and information, from the helpline
to research, to care centres, grants and
local support.”
“I have seen and
benefited from the
fantastic work the
Association does.
I absolutely trust them
to make the best use
of the funds raised.”
Phil Rossall
Phil has raised an incredible £10,000
for the Association so far.
16 17
Trek
International Treks
Why not consider taking part in one of the following international trekking
challenges? From the classics to the slightly more unusual, we’ll be here to
help you hit that target and achieve your dream.
Kilimanjaro Trek Mount Toubkal, Morocco
Various dates throughout 2019 Various dates throughout 2019
and 2020 and 2020
Registration fee: £449 Registration fee: £150
My Sponsorship: £4,100
The now iconic Kilimanjaro trek is as popular
Sponsorship: £1,540
Trekking for three days, you will experience
#TeamMND
as ever, so make 2019 the year you conquer stunning scenery, breath-taking views across
the world’s highest freestanding mountain. North Africa and the warmth and friendliness
of locals during our short charity challenge.
experience
Capturing an www.mndassociation.org/kili
amazing moment This challenge event is perfect for those who
on top of the world! Trek the Inca trail to want to achieve something spectacular whilst
Machu Picchu only taking five days away from home.
www.mndassociation.org/toubkal
Various dates throughout 2019
Brothers Peter and Andre Van Wyk “The opportunity to share an experience and 2020
planned to trek Mount Kilimanjaro of a lifetime with an amazing person was Registration fee: £349
together, but after Peter was diagnosed lost forever. The very least I could do now Sponsorship: £3,400
with MND, Andre and friends took on the would be to complete the experience he’d
The Inca Trail is rated amongst the ten best
challenge for him. once dreamed of – to go there, to feel it, to trekking trails in the world due to its striking
breathe it – to bring it back to him. beauty, ancient Inca ruins and diverse
Peter’s loved ones, who coined themselves
Team SmashMND for the challenge, raised “Team SmashMND reached the summit ecological zones.
over £12,000. Andre said: “A couple of years of Mount Kilimanjaro, Uhuru Peak, which www.mndassociation.org/inca
ago Peter sat in my lounge and asked ‘Will stands at 5,895 meters. Andre said: “My trek
you trek Mt. Kilimanjaro with me?’. Just one was insignificant compared to the upward
year later he sat in the same chair dropping battle Peter, Antoinette and Tallulah have
the Motor Neurone Disease bomb.” to take on every day. It is with grit and
determination that they have to go one
step at a time. Antoinette and Tallulah are
“My trek was insignificant Peter’s ‘porters’, taking on the selfless task
compared to the upward of getting him to his ‘Uhuru Peak’. All we
can do is be thankful that we play a humble
battle Peter, Antoinette part in his team, to support him on his
and Taullulah have to journey. We conquered it for you, my …or individuals
take on every day.” brave brother.” where you
These events are will meet like-
Andre Van Wyk perfect for groups… minded people.
18 19Virtual races
Fun Runs Virtual Races
Now these are running events with a twist that are great for getting a group Virtual Races have continued to capture the imagination of #TeamMND, with supporters
of you together for with no pressure of having to raise a certain amount. signing up to walk, run, cycle and swim. They have all chosen the distance they want to
complete, including running a half marathon on a treadmill, walking 10,000 steps per day for a
month or swimming the length of the English Channel in a public pool over a period of weeks.
Gung-Ho! Dog Jog
Various dates and locations Various dates and locations One of those who has challenged himself
Registration fee: dependent on location. Registration fee: dependent on location. is 26-year-old Sam Anderson, who wants
Minimum sponsorship: Raise what you can! Sponsorship: Raise what you can! to run at least one mile per day with the
target of reaching 1,000 miles by the end
A fun filled 5km obstacle course filled with Dog Jog is a brilliant chance for you and you
of the year.
inflatables to overcome! four-legged friend to get fit this summer.
www.mndassociation.org/gungho www.mndassociation.org/dog-jog Sam is raising funds in honour of his mum’s
best friend Vicky, who is living with MND.
Big Fun Runs 5km – suitable for Colour run™ - suitable for all ages! He started his challenge on New Year’s Day
all ages! Various dates and locations after not having run for five years.
Various dates and locations Registration fee: £25, under 5’s free. Sam told us: “Vicky loves the fact I am doing “There have been days
Registration fee: dependent on location. Sponsorship: Raise what you can! this. It gives her something to think about. where I haven’t wanted
Sponsorship: Raise what you can! Known as the happiest 5km on the planet! This is something positive for her. She is to get up and go out and
Join thousands of others as you get doused in constantly texting me asking how I am
These are the true essence of a family fun run.
coloured powder whilst following the route, doing. She always says well done and keep run. Thinking about Vicky
Set in scenic parks throughout the UK, you
can bring the whole family along to take part. culminating in a colour party at the finish line. going. It makes it all worthwhile.” gets me out running.”
www.mndassociation.org/bigfunrun www.mndassociation.org/colour Sam Anderson
My #TeamMND Virtual race ideas
experience Celebrate your birthday by
committing to do the number
Ifza’s Dad was diagnosed with motor of park runs in a year that
neurone disease 13 years ago and this correlate with your age!
year she is taking on the Dog Jog for
I lag behind he waits for me. The MND Cycle the equivalent of London
#TeamMND in his honour.
Association does some brilliant work for a to Brighton without leaving
“My four legged friend is called Toby and very important cause - the severity of this the gym!
he’s a miniature poodle. He loves running, illness needs to be addressed and tackled.
mainly in circles around a sock, but running As fun as running with my furry best friend Set out to swim the channel in
none-the-less. Training for this run has is, my intention is to use the run as a means your local swimming pool over a
given us the opportunity to bond and of publicising the illness, raising awareness certain number of days or weeks!
spend time together. He motivates me of the charity and ultimately money to Register now at
because he can run so far and fast but when support them in their efforts.” www.mndassociation.org/virt
20 21Adventure
Fighting back Adventure challenges
Alex adapted
to his changing
needs by using a
against MND
recumbent bike.
A few challenges chosen to appeal to the adrenaline junky in you.
Zipworld velocity – suitable for Tough Mudder
children over the age of 7 Various dates and locations
Various dates Registration: Varies by location
Penryhn Quarry, North Wales Sponsorship: Raise what you can!
Registration fee: £60 Tough Mudder is a 10-12 mile mud and
Sponsorship: Raise what you can! obstacle course designed to drag you out of
your comfort zone by testing your physical
Experience the thrill of the longest and fastest
strength, stamina, and mental grit.
zipline in Europe! You’ll reach speeds of up to
100mph and feel like you’re flying! www.mndassociation.org/toughmudder
www.mndassociation.org/zipworld
40-year-old father of two, Alex Gibson, is “Adaptation is key to any deteriorating Wing-walking
living with MND and took on an epic cycling progressive disorder like this! In the process Various dates
challenge last year. He said: “After my I managed to persuade a team of friends Registration fee: £50
diagnosis, I wanted to take on a challenge to come and join me. The challenge was Sponsorship: £1,000
to both try and increase awareness of packed with entertainment with missing
Experience the thrill of a wing-walking ride
the disorder and to raise vital funds for a cyclists, people almost being blown over
from this private aerodrome in the heart of
worthy charity. cliffs with strong winds, not to mention
Essex!
races for ferry crossings for most of the
“I came across the Hebridean Way Cycle, You will take off for a 10 minute experience
team and potential cancellations of ferries
which involved covering 185 miles across which will include speeds of up to 130mph.
due to adverse weather conditions.
10 islands. I decided to undertake this www.mndassociation.org/wingwalking
challenge using a recumbent tricycle.
Overwhelming support
Having always been heavily involved in
athletics, it was a matter of adapting to the “However the real joy was the beautiful
inability to run which made the recumbent scenery and the occasional sightings
tricycle the preferred method of transport. of dolphins, golden eagles and puffins,
along with the hospitality and generosity
of the locals. “ Alex and his friends
“I wanted to take on a
raised a staggering £30,000 for the MND
challenge to both try and Association. “The generosity that people
increase awareness of the have shown throughout the fundraising is
disorder and raise vital overwhelming and a big thanks goes out
from the bottom of my heart.” Preparing to take off Tough mudders are
funds for a worthy charity.” for their wing-walking challenging but ultimately
challenge! great fun team events.
Alex Gibson
22 23Swim
The London City Swim “It was a very uplifting
evening. How fantastic to see
Date: 20 September 2019
so much awareness being
Registration: £25
raised by many people who
Minimum Sponsorship £400
will not have known about
The London City Swim is a 500m open
MND previously.”
water swim event, taking place in the heart David Setters
of London’s City. The water is clean, and in
September the temperature is a balmy 19
degrees.
Now entering its third year, this event
is suitable for all, whether a committed
swimmer looking to get a personal best, or
you just want to dip your toe in the water
for your first experience of open water
swimming.
We’re also proud to say that this event
is truly inclusive, and people living with Challenge completed!
MND can take part for free and be fully Now it’s time to celebrate!
supported in a way that they feel most
comfortable.
So please come and join us - everyone David Setters, who is living with MND, was
taking part in this event will receive a free among the 325 swimmers who took part
swimming cap, bathrobe, and food and last year.
drink at the after swim party, all kindly
donated by the sponsors. He said: “It was a very uplifting evening.
How fantastic to see so much awareness
You can register to take part in this event being raised by many people who will not
by visiting www.mndassociation.org/LCS have known about MND previously but, at
the same time, experience the positivity of
others living with MND who came along
with their carers and families to participate.
The support – whether it was vocal,
getting me into and out of my wetsuit, the
sponsorship, or getting me into the water,
around the circuit and back out again safely,
was absolutely amazing. Well done to all
the organisers and roll on next year!”
100’s of keen city
swimmers raring to go! David was able to take
part in the event with the
support of flotation aids.
24 25Our events
It’s as popular as ever!
Britain has the baking bug and whether where baking is the star of the show!
you’re an accomplished baker or just Whether you bake cakes, bread, biscuits,
giving it a go, everyone can get involved pies or pastries, our colourful materials will
in our national event bakeit! Choose YOUR show off your delicious bakes to their best,
bakeit! day and join in the fun. let everyone know you’re supporting our
charity and jazz up your table. The more
Our passion for sharing tempting treats is
you bake … the more money you’ll take!
as strong as ever and there’s no better way
to use your creative talents than baking, This year you’ve been using our cupcake
bringing people together and supporting toppers and decorated some fantastic
the same cause. results, some of which are featured here.
bakeit! is designed for cake sales, coffee Once registered you’ll receive your brilliant
mornings, afternoon teas and any event pack with everything you need to get
started. Order banners, napkins, balloons
and lots more to make sure your bakeit! is a
huge success.
Happy baking!
For more information and to
register for your pack, visit
www.mndassociation.org/bakeit
“Using the cupcake
toppers made decoration
easy and I was pleased
with the result. Needless Ricki Hale and friend
to say, they sold like Children attending a cookery course at The Kids’
Wendy held a bakeit!
in memory of his Uncle
hot cakes!” Kitchen made gorgeous Valentine cakes, supervised
Bob. The afternoon tea
by owner Nicole Freeman, who lost her father to
and cake sale raised an
Anita Solan, branch volunteer MND and continues to support our charity.
amazing £590.
26 27Our events
£550 SShhhh!! Lose your
could fund a tablet device
with communication voice to help
software giving the ability to
communicate with loved ones. others be heard
Imagine an hour ... a day ... a week without This year we’re seriously impressed that
speech. Thousands of people living with so many of you have made even more
MND will have difficulty speaking. We tend commitment to Silence Speaks by staying
to take our voice for granted, but some silent for 24 hours and raising even more to
don’t have this luxury. Take part in Silence help us provide communication aids.
Speaks and stand in solidarity to show
This can be a great event to get creative
them your support and experience for a
about all alternatives to speech both
short while the challenges they face.
old fashioned or on the cutting edge
You can take on Silence Speaks at any time of technology and is great fun for all
of the year! Choose a date, decide how to the family.
communicate instead and for how long,
and invite others to join you.
It’s the easiest fundraiser to organise, More than a
costs nothing and everyone can get
involved.
sponsored
The longer and more public your silence, silence
the more fun you’ll have and the more
donations you’ll receive. Do it at work, f ind ways to communicate instead
school, in the pub, café or library. – mime, sign, type or voice app
nominate someone chatty –
they’ll find it hard to refuse
fine those who break their silence
or donate for golden tickets
organise a silent quiz, auction,
disco or games night
ask your school to take part – we
have a teacher and youth leader
pack just for you. Parents can get
involved too, by doing the school
run in silence!
All the family can get
involved in Silence Speaks.
28 29Our events
Top Fundraising Tip
Get together after your walk…hold a
picnic, barbeque or tea party or boost
your funds with a raffle or balloon
release with messages for loved ones!
Walk to d’feet MND is our national some fantastic publicity or bring your
branded event to support sponsored and hobby group together for a walk.
awareness raising walks, treks or climbs
Get together after your walk… hold a Make sure you layer up
taking place anywhere in the country, for all conditions!
picnic, BBQ or cake sale and boost your
at any time of year, involving a team
funds with a raffle, tombola and games for
of walkers.
the children.
Walking is one of the most popular
Many of our local branches and groups
fundraising activities and we’d love YOU
hold annual walks… search our website
to lace up those trainers or walking boots
walk finder to join a walk in your location.
and take to the parks and peaks. It’s a fun
and sociable way to get family, friends, Organise a series of walks like the
colleagues and the local community hugely successful monthly Letchworth
together and achieve one shared goal. Walks to d’feet MND! Using your local
designated walk ways, invite previous and
Getting started… choose an attractive
new supporters to join you each month
or interesting location, nominate a team
gaining more and more support as the year
leader, decide on a suitable date and let us
progresses. We’ll support you from start to
know. We’ll send your Walk to d’feet MND
finish and beyond!!
support pack, provide Walk to d’feet MND
t-shirts and help you from start to finish! Happy walking!
Choose a country park or a few miles of our
For more information and to register
beautiful coastline, trek the hills and valleys
for your team leader pack, visit www.
around our scenic countryside or climb the
mndassociation.org/walk-to-dfeet
Yorkshire Peaks for a bigger challenge.
Theme your walk… choose a team name
and theme … have fun dressing in our
charity colours, wacky wigs or fancy dress.
Organising a community dog walk to get When fundraisers wear their
t-shirts it has the added
bonus of raising awareness.
30 31Fundraise your way
Fundraise your way
We love it when supporters organise their own fundraising and we’re
here to help. Whether you’re aiming big or want to do something
smaller, we guarantee it will be a rewarding experience.
Going solo At work or with
Give something up in return for colleagues
sponsorship; alcohol, chocolate,
your mobile phone or try going Sweepstake: Take a gamble on
vegan the latest sporting event, TV
show or hot topic
Sponsored head shave or wax
Dress down, dress up or fancy
Celebrate your birthday, wedding dress day
or anniversary by asking for
donations instead of gifts Big breakfast for hungry
colleagues
Try an adrenaline experience, like
a bungee jump or abseil Golf day
Olive Martin celebrated her Workplace fundraising is often welcomed by
90th birthday with us. Tuck shop offices and helps build staff morale.
With friends, Fun for kids
family and in the Treasure hunt
community Sponsored swim
Gaming marathon
Quiz or race night
Supermarket bag pack
Family fun day
Make and sell crafts
Concert, show or theatre
production
Themed night: choose your Isabelle and Olivia Hargreaves hid MND
Association coloured rocks in their area.
favourite decade, country or movie
Craft sale
Caroline and her team did a sponsored Register to receive your free fundraising pack at
head shave together! www.mndassociation.org/fundraiseyourway
32 33Fundraise your way
Rob was delighted Planning an activity
to be able to do to tie in with a public
something he loved event is a great way
to fundraise for us. to increase its appeal.
My #TeamMND Rob was diagnosed with MND when he
was just 24 years old. A keen gamer, he
Amy wanted to do something to show her
support for her brother in law Mark who
experience wanted to use his skills to raise funds for
the Association.
had been diagnosed with MND.
Mark and their family had already done
Rob first noticed something was wrong lots of fundraising so she knew she had
when he experienced problems with to think outside the box for a different
Bethan Taylor Lloyd was inspired to take Bethan said “Pete was very popular, a his hand, although he wasn’t officially idea. When the 2018 royal wedding was
on her second marathon after her friend lovely, active man who enjoyed chatting diagnosed with MND until ten months later. announced, she knew it would be the
lost her dad, Peter, to MND. to people. He could talk the hind leg off Rob said “This cruel disease has affected perfect fundraising opportunity.
a donkey, until MND took away his voice. me in so many ways. I’ve been a gamer
As well as asking friends and family for Originally, she planned to gather a few
MND just robs you of the person, it is most of my life, now I have to play using a
sponsorship, she used her networks to friends to watch the event in their wedding
such a cruel illness. The MND Association specialised controller. It took a bit of getting
raise extra funds. The legal firm she worked dresses and provide some refreshments in
were brilliant in their support of Pete and used too at first, but I’m getting to grips
for donated generously and her friend return for donations. However before she
his family, which is why I wanted to give with it.”
organised a village coffee morning. knew it she was organising a huge ‘Royal
something back.”
Bethan also works part time in the pub Rob played for over 12 hours, livestreaming Picnic and Family Fun Day’ which included
where Peter was formerly landlord, so she the games so others could watch and stalls, games, entertainment and barbeque
got the pub regulars involved by holding a donate. He received a huge amount of for 800 people!
quiz night too. support from friends, family and the
Amy and the team had a brilliant day and
gaming community; his online donation
raised over £2,000 for the fight against
page raised over £400.
MND. Now they’re waiting for the next royal
Before you start fundraising Fundraising for an MND
x2 check if your employer operates
a Matched Giving scheme. Some
£ Association Branch, Group,
Tribute Fund or Fightback
About the challenge Rob said “I can’t jump
out of a plane, or run a marathon. So I did a
wedding to do it all again!
will match pound for pound or Fund? Just let us know when marathon in a different way. I’m so grateful Completing a challenge or holding a
give a contribution to support you register and we’ll ensure to everyone for their support.” fundraising event? Why stop at one! You
your fundraising. the money you raise is allocated could set yourself a series of challenges
as you wish. over a period of time or to achieve a
fundraising target.
34 35#TeamMND
The support you’ll receive
So why should you sign
from other #TeamMND
members will be amazing.
up to be a part of
#TeamMND?
Firstly, because we care. We want you to So when you join #TeamMND, you
have the best experience possible. You’re will receive:
doing something amazing, and we think
A personal contact to help and support
you deserve that.
you on your fundraising journey.
They can give you ideas, answer your
questions and ensure everything runs
“Every dealing that I have as smoothly as possible.
had with the Association
A comprehensive fundraising pack
has been fantastic; containing everything you need to
get started.
everyone is so kind,
helpful and thankful for
A free t-shirt or running vest.
what you’re doing.”
Free fundraising materials to help
your events look fantastic, like
Mathew Robson balloons, banners, collection tins
and plenty more.
Free training plans, if applicable,
put together by a qualified personal
trainer.
Where possible, our thanks in person
at your event by a representative of
the team.
£100
Receive your thank you from us and
tell everyone about it. Certificates are
also available.
funds laboratory equipment
for two days’ vital research
into finding the causes
of MND.
36 37What next?
So what should you do next?
1.
Register online
You’ll be contacted by one of our friendly team to
help you with every step of your fundraising journey.
2.
Receive your fundraising pack in the post
or choose to download it instead.
This contains all sorts of helpful information including:
Our Guide to Fundraising, which will help you
smash your fundraising target.
Our fundraising materials order form, where
you can order all sorts of fun bits and pieces
to make your fundraising look fantastic.
Posters and leaflets to help you communicate
what you’re doing and why.
3.
Fundraise online
Set up your online fundraising page at www.justgiving.com
and tell everyone all about what you’re doing.
4. Get stuck in
Hold or take part in your fundraising activity – check out our
Guide to Fundraising for inspiration for what you can do.
“Losing my mum to
MND 10 years ago
5. was heartbreaking but
Collect sponsorship
Collect in all the money raised and send on to us. by fundraising in her
memory, I am helping
to find a cure for this
6.
Receive a big thank you cruel disease.”
Receive your thank you from us and tell everyone about it.
Certificates are also available. Vicky Paeschel
38 39We couldn’t do what we
do without your support.
We would like to say thank you to all of our inspirational fundraisers
who have supported us so far – you really have made a difference.
We look forward to welcoming you to #TeamMND in 2019!
To find out how you can help visit:
www.mndassociation.org
We hope that you’re feeling inspired to
do something amazing. Don’t hesitate
to contact us to chat through your
fundraising ideas!
facebook.com/mndassociation If you are affected by MND and need
any information or support, please
@mndassoc contact our Helpline:
Instagram @mndassoc
Motor Neurone Disease Association
PO Box 246
Northampton NN1 2PR
Tel: 01604 611860
Email: fundraising@mndassociation.org
www.mndassociation.org
Registered Charity No. 294354You can also read
