Sports and PKU A Balancing Act - Presented by: Abby Hall, RD CD Department of Medical Molecular Genetics at Riley Hospital for Children Personal ...

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Sports and PKU A Balancing Act - Presented by: Abby Hall, RD CD Department of Medical Molecular Genetics at Riley Hospital for Children Personal ...
Sports and PKU
             A Balancing Act
     Presented by: Abby Hall, RD CD
Department of Medical Molecular Genetics
      at Riley Hospital for Children

 Personal Experience by: Brady and Curt
Sports and PKU A Balancing Act - Presented by: Abby Hall, RD CD Department of Medical Molecular Genetics at Riley Hospital for Children Personal ...
Disclosure Statement
  I have no relevant financial or nonfinancial
relationship(s) within the products or services
described, reviewed, evaluated or compared in
               this presentation.

Content appropriate for presentation at NPKUA
                  meeting.
Sports and PKU A Balancing Act - Presented by: Abby Hall, RD CD Department of Medical Molecular Genetics at Riley Hospital for Children Personal ...
Overview
O Importance of nutrition in sports
O Who this affects?
O Macronutrient needs: Calories, CHO, Protein
O Fluids
O Pre and Post workout
O Vitamin and Minerals
O How this looks with PKU
O Personal experience
Sports and PKU A Balancing Act - Presented by: Abby Hall, RD CD Department of Medical Molecular Genetics at Riley Hospital for Children Personal ...
Importance of Nutrition
          in Sports

O Nutrition plays a huge role in sports
  performance.
O Well nourished athlete performs optimally,
  has decreased risk for injury, and focuses
  better.
O Important to know what to do and WHY?

                           Bonci, MPH, RD, CSSD, LDN, Leslie. "Sports Nutrition for Young Athletes."
                           Pediatric Annals 39.5 (2010): 300-06. Print.
Sports and PKU A Balancing Act - Presented by: Abby Hall, RD CD Department of Medical Molecular Genetics at Riley Hospital for Children Personal ...
Who This Affects?
 O Any and all children, adolescents and teens
   participating in athletic programs.
 O Depending on competition level, skill levels of
   participants, length of season, etc. this will
   affect the nutrition required
 O Studies show that 7.6 million athletes
   participated in organized high school sports in
   2010. Largest group to date with 44 million
   children and youth also participating in athletic
   programs.
 O Nutrition should play a role in each of these
   participants diet regimen.
                               ADA Nutrition Care Manual. Chicago: American Dietetic Association (ADA),
                               2005. Child Athletes. Web. 8 June 2016Sports Nutrition
Sports and PKU A Balancing Act - Presented by: Abby Hall, RD CD Department of Medical Molecular Genetics at Riley Hospital for Children Personal ...
Macronutrient Needs: Calories
O What are calories: fuel for the body
O Body burns calories at rest and
  calories during exercise
O Weight is based on total calories in
  vs. total calories out each day.
          Maintain:    calories in = calories out
          Weight Gain: calories in > calories out
          Weight Loss: calories in < calories out
Sports and PKU A Balancing Act - Presented by: Abby Hall, RD CD Department of Medical Molecular Genetics at Riley Hospital for Children Personal ...
Macronutrient Needs: Calories
        O Estimated Energy Requirements (EER)

Sex          Age Range                                          EER in kcal/day (weight in kg)

Males

             3-8 yo           88.5 - (61.9 x age [y] )+ PA x (26.7 x weight [kg] + 903 x Ht [m]) + 20

             9-18 yo          88.5 - (61.9 x age [y]) + PA x (26.7 x weight [kg] + 903 x Ht [m]) +25

Female

             3-8 yo           135.3 - (30.8 x age [y]) + PA x (10.0 x weight [kg]) + (934 x height [m]) + 20

             9-18 yo          135.3 - (30.8 x age [y]) + PA x (10.0 x weight [kg]) + (934 x height [m]) + 25
        *Note: 1 lb = 2.2kg

                                                McAuley, PharmD., David. "Institute of Medicine - Estimated Energy Requirement (EER). Dieting and
                                                Nutrition Tool. Energy Requirements Included in MyPyramid." Institute of Medicine - Estimated Energy
                                                Requirement (EER). Dieting and Nutrition Tool. Energy Requirements Included in MyPyramid. Institute
                                                of Medicine, 16 Mar. 2016. Web. 08 June 2016.
Sports and PKU A Balancing Act - Presented by: Abby Hall, RD CD Department of Medical Molecular Genetics at Riley Hospital for Children Personal ...
Macronutrient Needs: Calories
  O EER x Activity level = Total caloric needs/day
Age Range    Activity Level

Boys ages                        Activity Level based on:
3-18 yo                          Sedentary PAL is rare in children
             Sedentary: 1.0      Low Active PAL = Less than 1 hour/day of physical activity
                                 Active PAL = Approximately 1 hour/day of physical activity
             Low Active: 1.13
                                 Very Active PAL = More than 1 hour/day of physical activity
             Active: 1.26
             Very Active: 1.42

Girls ages
3-18 yo
             Sedentary: 1.0
             Low Active: 1.16
             Active: 1.31
             Very Active: 1.56             McAuley, PharmD., David. "Metabolic Equivalents - METS, Energy
                                           Expenditure Various Activities, PAL." Metabolic Equivalents - METS,
                                           Energy Expenditure Various Activities, PAL. Clinicians Ultimate Reference,
                                           16 Mar. 2016. Web. 08 June 2016.
Macronutrient Needs: CHO
O Main source of fuel during sports performance.
O Energy released 3 times faster than from protein or fat.
O Carbohydrates are broken down to glucose in the body
  to be either used immediately as energy or stored at
  glycogen.
O During short burst of activity (sprints, sports with
  intermittent aerobic activity like basketball, soccer,
  volleyball, tennis, etc) the body converts glycogen to
  glucose in the muscles for energy.
O During endurance sports (long distant running, cycling,
  long distant swimming) the body begins to convert fat
  for energy to spare the glycogen needed for quick
  energy.

                                 ADA Nutrition Care Manual. Chicago: American Dietetic Association (ADA),
                                 2005. Child Athletes. Web. 8 June 2016Sports Nutrition
Macronutrient Needs: CHO
 O Carbohydrates should make up 55-60% of
   total daily intake.
 O Estimate per activity level on how much
   recommended

Intensity of Activity                  Carbohydrate (g/kg/day)

None/light training (2-3 x week)              3-5 g/kg/day

Moderate/heavy training (3-5 x week)          5-8 g/kg/day

Pre-event (24-48 hrs)                         8-9 g/kg/day

Post-event (within 2-4 hrs)            0.8-1 g/kg/hour for 4 hours after glycogen-depleting exercise

 *Note: 1 lb = 2.2kg                                         ADA Nutrition Care Manual. Chicago: American Dietetic Association (ADA),
                                                             2005. Child Athletes. Web. 8 June 2016Sports Nutrition
Macronutrient Needs: Protein
O Vital to muscle and bone health, especially
  in athletes.
O Recommended intake different for all
  depending on size and what they are
  looking to get out of training.
O Increasing muscle size or losing weight:
  need increased protein

                               Bonci, MPH, RD, CSSD, LDN, Leslie. "Sports Nutrition for Young Athletes."
                               Pediatric Annals 39.5 (2010): 300-06. Print.
Macronutrient Needs: Protein
 O Average adolescent/teenager needs about
   0.9-1.0g/kg body weight of protein per day.
 O Total protein should make up 12-15% of
   total daily intake.

                            Training level                      Protein (g/kg/day)

                 Training                                               1.0-1.5

                 Endruance                                              1.2-1.4

                 Calorie resticting athletes                               1.7

                  *Note: 1 lb = 2.2kg

                                         ADA Nutrition Care Manual. Chicago: American Dietetic Association (ADA),
                                         2005. Child Athletes. Web. 8 June 2016Sports Nutrition
Macronutrient Needs: Protein
 O Research shows that additional amino acid
   supplementation will not increase
   strength/endurance, reduce fat or increase
   size of muscles
 O Fluids are very important when increasing
   total protein over the basic needs of 0.9-
   1.0g/kg to prevent damage to kidney and
   liver and to prevent dehydration.

                           ADA Nutrition Care Manual. Chicago: American Dietetic Association (ADA),
                           2005. Child Athletes. Web. 8 June 2016Sports Nutrition
Fluid Needs
  O Extremely important and overlooked
      in many training programs.
  O Purpose to cool the body.
  O Prepubertal children should be monitored more
      closely as they are at higher risk for dehydration.
  O Hydration needed for optimal performance
Age/Sex                   Daily Fluid Needs O Goal to have pale yellow
Boys
     4-6 yo. boys & girls  5 cups (1.2 L)
                                             urine throughout the day.
          9-13 yo.    8 cups (1.8 L)
         14-18 yo.   11 cups (2.6 L)
Girls                                  ADA Nutrition Care Manual. Chicago: American Dietetic Association (ADA),
          9-13 yo.   7 cups (1.6 L)    2005. Child Athletes. Web. 8 June 2016Sports Nutrition
                                       Bonci, MPH, RD, CSSD, LDN, Leslie. "Sports Nutrition for Young Athletes."
         14-18 yo.   8 cups (1.8 L)    Pediatric Annals 39.5 (2010): 300-06. Print.
Fluid Needs
        O Most accurate way to replace fluids is to weigh pre and
          post workout
        O 1-2% decrease in total body weight in fluids can
          decrease endurance.
               O Replace every pound of body weight lost with 16-24 oz
                     fluids.
        O Accurate replacement fluids is most crucial in hot and
              humid environments.

ADA Nutrition Care Manual. Chicago: American Dietetic Association (ADA),
2005. Child Athletes. Web. 8 June 2016Sports Nutrition
Fluid Needs
     O Water is all that is needed for exercise up to 60 minutes
     O Fluids with sodium and electrolytes (sports drinks) are
       recommended when sweating for longer than 60
       minutes or in very hot and humid weather.
     O Sugary (soda, juice)     Timing                   Rehydration Amounts

       and caffeinated drinks 1 to 2 hours before event  12-22 oz of cool water

       are not recommended 10 to 15 min. before event    10-20 oz of cool water

       as they increase         During physical activity
                                                         4-6 oz cool water
                                Every 15-20 min.
       dehydration.
                                                                                                     2-3 cups (16-24 oz) cool fluids
                                                                           After physical activity
                                                                                                     for every pound of weight lost
ADA Nutrition Care Manual. Chicago: American Dietetic Association (ADA),
2005. Child Athletes. Web. 8 June 2016Sports Nutrition
Pre and Post Workout

O The body is performing from glycogen stores 24-
  48 hours prior to event, making CHO important
  before and event and to ensure athlete is not
  hungry.
O Post exercise the body is most receptive to
  storing glycogen in the first 2 hours. Fueling the
  body with moderate CHO snack or beverage right
  after exercise and then eating a well balanced
  moderate CHO meal 2 hours after is the best
  way to replenish your stores.
                              ADA Nutrition Care Manual. Chicago: American Dietetic Association (ADA),
                              2005. Child Athletes. Web. 8 June 2016Sports Nutrition
Vitamins and Minerals
O Most PKU formula is adequate in
  vitamins and minerals
  O Have your Dietitian check to make sure!
  O May need to be on Multi Vitamin depending
    on how much medical food you take and
    which one
               Age        Calcium/day (mg)
               1-3 yo.          500
O Calcium      4-8 yo.          800
               9-18 yo.        1300
               19-50 yo        1000
What does this look like?
     PKU Case Study
O 12 yo male
O Weight: 41.2kg
O Height: 151.6cm
O Sport: cross country & is in season
  currently
O Phe Tolerance: 400mg Phe (8 g protein)
O Metabolic Food: Lophlex LQ – 3 x day (60g
  Protein, 360kcal, 12.5 oz fluid)
What does this look like?
         PKU Case Study
O Normal routine the day of a cross country meet:
  O Eats a good dinner, usually low protein pasta and
      1 Lophlex LQ
  O   Has breakfast in am with 1 Lophlex LQ
  O   Lunch at school – hot lunch + 1 Lophlex LQ
  O   May drink water from fountain in between class
      periods.
  O   Meet right after school – no time
      for snack!
  O   Dinner + 1 Lophlex LQ
What does this look like?
     PKU Case Study
O Does his diet look adequate?

O What is missing/insufficient in?

O How can we make this diet better?
What does this look like?
        PKU Case Study
O Calories:
  O 88.5 - (61.9 x 12 [y]) + 1.42 x (26.7 x 41.6[kg] +
    903 x 1.516 [m]) +25 = 2,892kcal/day
  O 1.42 = very active activity level
O CHO: 5-8g/day during season
  O 208-333g CHO/day = 832-1332 kcal/d
     O Pre-event (24-48 hr prior):
        O 333-374g CHO = 1332-1500 kcal CHO
     O Post-event (1-2 hour after):
        O 33-42g CHO = 132-168 kcal CHO
What does this look like?
      PKU Case Study
O Protein: 1.2-1.4g/kg/day = 50-58g
  O Phe tolerance = 400mg (8g)
  O 50g – 8g (PHE) = 42g needed in metabolic food
  O 2 Lophlex LQ = 40g protein, 240kcal, 8.3oz
  O 2 Cambrooke Restore = 20g protein, 340kcal, 33oz
     O TOTAL: 60g protein, 580kcal, 42oz fulids
                       vs.
              60g protein, 360kcal, 12.5oz fluids
What does this look like?
         PKU Case Study
O Fluids: 8 cups (1.8 L)
  O 12-22oz during day of/before event
  O 10-20oz 60-30 min before event
  O 4-6oz q 15 minutes during event
  O 16-24oz after event
  O TOTAL NEEDS: 46-74oz
O New formula of Lophlex LQ and Restore
  almost meets fluid needs for day!
What does this look like?
          PKU Case Study
O What day looks like NOW!
  O Eats a good dinner, usually low protein pasta and 1 Lophlex LQ
  O Has breakfast in am with 1 Lophlex LQ + 4-6oz water
      O PLUS: 500 mg Calcium supplement + Complete MV
   O Lunch at school – hot lunch + 1 Lophlex LQ
   O Has water bottle during school to drink 10-20oz water throughout
     day
   O Drinks 1 Restore 60-30 minutes before meet
   O Drinks 1 Restore + within 2 hours after meet
   O Normal dinner with 8-10oz water
   O On days without meets, may go back to 3 Loplex LQ
     O Taken breakfast, lunch, after school/practice + Calcium
Personal Experience
Open Discussion
Summary
O Nutrition plays a huge role in sports
  performance.
O CHO are the main source of fuel during
  sports performance.
O Protein (medical foods) are essential to build
  muscle.
O Fluids are THE most important factor in
  exercise and performance.
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