NEWSNOTES - SPRING BRASS RING EPIC CONFERENCE - CHILDREN'S DIABETES FOUNDATION - SUMMER 2019 - Children's Diabetes Foundation
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NEWSNOTES CHILDREN’S DIABETES FOUNDATION — SUMMER 2019 SPRING BRASS RING PAGE 3 EPIC CONFERENCE PAGE 14 Photo: © Jensen Sutta Photography
NEWSNOTES Children’s Diabetes Foundation
FEATURES Board Members
EXECUTIVE BOARD: SCIENTIFIC ADVISORY BOARD:
3 SPRING BRASS RING Mrs. Barbara Davis, Chairman Richard S. Abrams, M.D.
Dana Davis, Executive Director Director, Colorado Preventive
Medicine, Rose Medical Center;
7 PHARMACY TIPS Richard S. Abrams, M.D.
Stephen Daniels, M.D., Ph.D.
Clinical Professor of Medicine UCD
Chairman of Pediatrics Mark Atkinson, Ph.D.
The Children’s Hospital, Denver Professor of Pathology & Pediatrics,
8 ASK STUDY FINDINGS Mrs. Nancy Davis Rickel
Director, University of Florida
Diabetes Institute
Steven Farber, Esq. Ezio Bonifacio, Ph.D.
Daniel Feiten, M.D. Professor for Preclinical Approaches
12 KING SOOPERS COMMUNITY Mr. Shane Hendryson to Stem Cell Therapy,
Center for Regenerative Therapies,
REWARDS PROGRAM Mrs. Arlene Hirschfeld
Mrs. Deidre Hunter
Dresden, Germany
Robert Eckel, MD
Mr. Shawn Hunter Professor of Medicine, Physiology and
13 UPCOMING EVENTS Mr. Steve Lucas Biophysics, University of Colorado
School of Medicine
Mrs. Tracy van Orman
Matthias Hebrok, Ph.D.
Mr. Cameron van Orman Professor in Residence and Director,
14 EPIC DIABETES CONFERENCE Mr. Ken Rickel Diabetes Center, University of
California, San Francisco
John J. Reilly, Jr., M.D.
Vice Chancellor for Health Affairs Steven Kahn, MB, Ch.B.
& Dean, School of Medicine, Professor of Medicine, Director of the
20 BDC ADULT CLINIC RESEARCH University of Colorado Denver Diabetes Research Center, University
of Washington
STUDIES Mrs. Stacy Mendelson Robinson
Marian Rewers, M.D., Ph.D.
Rudolph Leibel, MD
Professor of Pediatrics and Medicine,
Ex-Officio Member
Co-Director, Naomi Berrie Diabetes
Center, Columbia University
Alvin Powers, MD
Professor of Medicine, Molecular
Physiology/Biophysics,
Division Director, Vanderbilt University
William Tamborlane, MD
Professor of Pediatrics, Yale University
School of Medicine
NewsNotes is published quarterly by the
Children’s Diabetes Foundation. If you would
like to submit an article or a letter to
NewsNotes, send information to
Mattie@ChildrensDiabetesFoundation.org.
Zachary Reece, Graphic Designer
Photo: © www.JensenSutta.com
Mattie Peck & Dana Davis, Editors
Facebook.com/ @CDFdiabetes @CDFdiabetes
ChildrensDiabetesFoundation
CDFcares@ChildrensDiabetesFoundation.org
303-863-1200 • 4380 S. Syracuse St., Ste. 430 Denver, CO 80237
2
THE SPRING BRASS RING
SPRING BRASS RING
LUNCHEON & FASHION SHOW RAISED
$348,000 FOR TYPE 1 DIABETES
Ben Higgins of ABC’s “The Bachelor,” New York fashion touched with this disease. Thank you for giving us hope.”
designer Rebecca Minkoff, and Uchenna Nwosu of the
NFL’s Los Angeles Chargers lent their talents at the 41st Higgins then introduced Alex Hess, who has been living
annual Spring Brass Ring Luncheon & Fashion Show held with diabetes for 8 years. Alex said a prayer before lunch,
by The Guild of the Children’s Diabetes Foundation (CDF) praying for every child living with type 1 diabetes and
on April 4th. The even bigger stars of the event were the 34 hoping to someday celebrate the end of this disease.
type 1 heroes who walked the runway and the donors who
generously gave $348,000 toward helping families in need Every year, the highlight of this event is seeing some of
and finding a cure for type 1 diabetes. the heroes fighting diabetes. This year, 34 kids walked the
runway to a standing ovation with a thunderous applause.
Ben Higgins, best known for his role on season 20 of Each hero on stage has been a wonderful advocate for this
“The Bachelor” who now uses his platforms to support disease and has been involved with the Children’s Diabetes
causes he cares about, emceed the program. To remind Foundation for many years. It’s unbelievable to see the
attendees of the extreme need for helping those with type bravery, strength, and courage these kids have.
1 diabetes, Higgins said, “It’s difficult. It’s upsetting. It can
be life threatening. And it never goes away. Kids with type That emotional moment was followed by energy and
1 diabetes are dealing with more physical, emotional, and enthusiasm as auctioneer Halie Behr kicked off a live
social stress than we can imagine and yet, they continue to auction, which raised $57,000. Items included a family
be brave and fight this disease.” reunion at The Overlook in Grand Lake near Rocky
Mountain National Park, passes to the 2019 U.S. Open
Cheryl Lebsock, President of The Guild of the Children’s Golf Championship, a 2019 Hyundai Accent, and a Jet
Diabetes Foundation, shared her father’s dark battle with Linx private jet trip for six people. Uchenna Nwosu, whose
type 1, which included an early death at age 62. When her mother lives with type 1 diabetes, joined the auctioneer on
son was diagnosed at age 4, it was a different story as his stage to encourage bids for the last item, which included two
doctor assured the family, “We have a team of people who tickets to an L.A. Chargers game, autographed cleats with
are going to help you give him a normal life.” Cheryl went the CDF logo, and a meet and greet with Nwosu. The silent
on to say, “Every dollar raised today helps not only extend auction, held prior to the program, raised $38,500 for The
the life of a child with type 1 diabetes, but also helps to Guild. Jewels for Hope also held a table at the event, where
dramatically improve the lives of every child and family they raised over $16,000 from donated pre-loved jewelry.
Photo: © Broxton Art Photo: © www.JensenSutta.com
Photo: © www.JensenSutta.com Photo: © Broxton Art 3
A paddle raiser followed the live auction giving
SPRING BRASS RING guests the opportunity to donate directly to CDF.
At each donation level, Behr explained specific
opportunities that could be funded, such as
producing beta-like, insulin-producing cells,
providing an insulin pump, providing an artificial
pancreas, hours of research, and continuous
glucose monitor supplies.
The event closed with the much-anticipated
Photo: © www.JensenSutta.com runway fashion show presented by world-
renowned designer, Rebecca Minkoff, who is
dedicated to bringing women together to enact
positive change. Her playful and subtly edgy
handbags, accessories, footwear, and apparel
delighted the guests as the models showcased the
ready-to-wear looks on the runway.
In total, the $348,000 raised at the event will
benefit the Children’s Diabetes Foundation to
fund research and care at the Barbara Davis
Center, promote diabetes awareness and
education, assist families in need, provide
scholarships, and sponsor social activities for
children affected by diabetes.
Photo: © www.JensenSutta.com
This year’s event was a huge success between
funds raised and the supportive, excited energy
in the room. Many thanks go to this year’s event
co-chairs: Steven & Shelley Lucas and Neil & Barb
Oberfeld.
Photo: © www.JensenSutta.com
Title sponsor for the 41st annual Spring Brass
Photo: © Broxton Art
Ring was Marketo, an Adobe Company.
Benefactor sponsor was Mike and Patty Starzer.
Premier sponsors were The Crazy Merchant, Inc.
and Greenberg Traurig, LLP. The Official Media
Photo: Sponsor was Colorado Expression Magazine.
© www.JensenSutta.com
For up-to-date details about 2020’s Spring Brass
Ring Luncheon & Fashion Show, follow the
Children’s Diabetes Foundation on social media.
Photo: © www.JensenSutta.com
Photo: Photo:
© Broxton Art © Broxton Art
Photo:
© www.JensenSutta.com Photo: © www.JensenSutta.com
4
SPRING BRASS RING
Photo: © Broxton Art Photo: © Broxton Art
Photo: © Broxton Art Photo: © Broxton Art
4.
Photo: © Jordan Lebsock
Photo: © Broxton Art
Photo:
Photo: © Broxton Art Photo: © Broxton Art © www.JensenSutta.com Photo: © www.JensenSutta.com
Photo: © www.JensenSutta.com Photo: © www.JensenSutta.com
5
BABARA DAVIS CENTER FREE POPULATION SCREENING
FOR T1D AND CELIAC DISEASE
WHY ASK? RECOGNIZE THESE SYMPTOMS?
• 92% of children diagnosed with type 1 diabetes (T1D)
have no relatives with T1D TYPE 1 DIABETES CELIAC DISEASE
• Many people are unaware of diabetic symptoms or of • Increased thirst • Stomach aches, being gassy
the difference between type 1 and type 2 diabetes. • Increased urination or bloated
• 40% of those newly diagnosed are very sick due to • Weight loss • Chronic diarrhea,
diabetic ketoacidosis (DKA), that can be fatal or lead to • Low energy vomiting, constipation
poorer long term outcomes. • Poor growth
• ASK screening, early diabetes education and monitoring
can prevent DKA
Incidence per 100,000
• Screening for and early diagnosis of celiac disease can
improve growth and bone health
• The incidence of T1D and celiac disease are increasing
ASK GOALS
1. Screen 50,000 Colorado children ages 1-17 to make a
case for universal screening of T1D and celiac.
2. Find early signs of diabetes or celiac in children –
before they get very sick.
3. Offer close monitoring, education, and early treatment,
when needed.
4. Offer participation in studies of new interventions that
might help stop or slow progression of disease.
5. Increase public awareness of T1D and celiac disease.
ASK RESULTS
1. As of May 20, 2019 ASK has screened 18,186 children;
of those, only 4.5% had a relative with T1D.
2. Of the children screened, 1.0% were at high risk for
developing T1D and 2.6% were at high risk for having
or developing celiac disease.
3. Twelve children developed diabetes after testing
positive; only 2 developed DKA.
4. Pre-symptomatic T1D and celiac autoimmunity are 2-3
time more frequent in non-Hispanic white children Photo: © www.JensenSutta.com
than in Hispanics.
For more information, please go to:
5. The screening is cost-effective and well-accepted by
parents and providers. www.ASKhealth.org
or call our ASK hotline at:
303.724.1275
6
PHARMACY
BABARA DAVIS CENTER
TIPS & TRICKS
NEW PRESCRIPTIONS
• Prescriptions can be written as a 30 day or 90 day supply
• If your insurance prefers 90 day supplies, they may make
you use their mail order
• Barbara Davis Center policy is to only approve
prescriptions for a 6 month period
• We send prescriptions electronically, verbally, or give you
hard copies (electronic is preferred)
• We will attempt to choose your prescriptions based on
what your insurance prefers
Refill and Renewal of Prescriptions:
• The best way for you to get refills is to have your
pharmacy contact us directly
• Refills can take up to 72 business hours to obtain
• If we have not seen you in the last 6 months your refill
request will be denied
• Refills are only good for 6 months from your last office
visit
• You must wait at least 30/90 days between refills or
insurance will not cover it
PRIOR AUTHORIZATION:
• Prior Authorizations can take up to 5 business days for a
response back
• Insurance companies have the right to make you try their
preferred product first
• We do not do prior authorizations for products that have
a preferred equivalent available
• If you need a prior authorization, please have your
pharmacy fax us the information first
• A prior authorization will not bring the cost of your
medication to your lowest copay
OTHER:
• Always be sure to provide us with your most updated
insurance and pharmacy information
• Plan ahead, do not wait until the last minute for anything
pharmacy related
• Going on vacation or need an emergency refill? Plan
ahead
• Call your pharmacy insurance for an override
• If you need price assistance, research the drug company’s
website for discount cards
• Call your insurance and verify your coverage, as well as
your deductible and copays
• If for any reason your family loses insurance coverage, do
not hesitate to call the BDC so we can help you problem
solve your insurance issues and get you and the diabetes
care supplies you need.
Contact Information/Questions:
Bobby Owen 303-724-6793 or
Robert.Owen@ucdenver.edu
Photo: © www.JensenSutta.com
Jaimie Wolfelt 303-724-2537 or
Jaimie.Wolfelt@ucdenver.edu 7
BABARA DAVIS CENTER UCHENNA NWOSU
OF LOS ANGELES CHARGERS VISITS THE BARBARA DAVIS CENTER
It’s not every day that kids get to play football with
an NFL star, but this April was a special experience
for our type 1 heroes. On April 3rd, Uchenna Nwosu,
linebacker for the Los Angeles Chargers, came to the
Barbara Davis Center to meet, run drills, and play
football with 26 Barbara Davis Center patients.
“My mom, Amarachi, is affected by diabetes,” Nwosu
explained. He says that when his mom told him the
news last year, he wasn’t sure how to handle it. “I was
very sad and confused and didn’t know too much about
[the disease]. I didn’t know if she was going to be okay
or what was wrong.”
Nwosu says his mom means everything to him and is
now doing well. Because of her battle with diabetes,
it was an easy decision to offer his support to kids
with diabetes and the Children’s Diabetes Foundation.
Diabetes has impacted many people in Nwosu’s family
and he hopes to educate and raise awareness for
diabetes.
Born and raised in Carson, California, Nwosu attended
the University of Southern California where he played
football and earned a degree in political science. He
was drafted in 2018 by the Los Angeles Chargers and
just finished his rookie year. As passionate off the field
as he is on the field, Nwosu’s support for causes and
volunteerism includes consistently volunteering at the
Boys and Girls Club of Carson, and he has recently
began coaching their flag football team.
This will absolutely be an event to remember for every
kid on the field. The Children’s Diabetes Foundation is
thankful to partner with Uchenna Nwosu on awareness
initiatives and appreciate the big smiles, epic catches,
and lasting memories he has given to our heroes!
Congratulations to For the 2019-2020 school
year, 22 recipients have
the 11 Charlotte Tucker been chosen for the
Scholarship recipients scholarship. Check back in
for our 2019 Fall edition
who are graduating of NewsNotes to meet our
this May recipients!
8
DIA DEL NINO
DIABETES NEWS
A CULTURAL AND EDUCATIONAL CELEBRATION
The Children’s Diabetes Foundation held an educational
booth at Dia del Nino (Day of the Child) at the Denver
Museum of Nature & Science on April 28th. Dia del
Nino is an annual celebration throughout Mexico
and many countries and cultures around the world. It
celebrates children, pays homage to their importance in
society, and endorses their well-being.
Over 12,000 people flooded the museum for this free
day with extra educational and cultural games and
activities. The CDF booth educated people about
diabetes and through games, taught them that diabetes
is not contagious, can be diagnosed at any age, is not
caused by diet or lack of exercise, and can not be cured.
After learning these facts, kids went over to our art board
to add their “fingerprint for a fingerstick” to show their
support of those with type 1 diabetes.
The Día del Niño event at the Denver Museum of Nature
& Science is co-created in partnership with the Mexican
Cultural Center. The Children’s Diabetes Foundation is
proud to partner with the Mexican Cultural Center on
this initiative.
9
DIABETES NEWS MEET MADISYN
WHEN ALL I
SHOULD BE
THINKING ABOUT
IS COLLEGE
By Madisyn Reiakvam
Being diagnosed with an incurable, life-
threatening disease could never happen at the
right time, but it felt like my diagnosis came
at the worst time possible. Senior year is
the bridge to the unknown. It’s the last year
before everyone's lives take a drastic leap of
faith toward a future that’s intimidatingly
hidden. Amongst the anxiety of trying
to apply to college and deciding
where to spend the next four years
of your life, I had to overcome
this newfound diagnosis as
well.
SPOILER ALERT:
I MADE IT, I GREW
FROM IT, AND IT
WILL NEVER HOLD
ME BACK.
March 13, 2017 March 30, 2017
I am incredibly stressed. Maybe that’s why I’m always so I’ve always had 20/20 vision and now suddenly I have to
tired? I have never been a napping type of person, but now get glasses. That’s okay, my whole family needs glasses so
that’s all I want to do. I guess this is what happens senior that makes sense. I'll get used to them.
year. I feel like I have been sleeping so much lately, but I
never felt rested. Is that just senioritis? Probably. I finally got my acceptance letters. I’m so excited! It’s time
to figure out where to spend the next 4 years of my life.
March 21, 2017
Ugh, I hope that I'm not getting sick, that would be the I have 7 exams to study for. If I don’t pass these tests, I
worst! I have so much to do. We're in the middle of soccer won't get the credit I have been working for all year. How
season, I have exams to study for, work, and scholarship am I supposed to do all this? I'm only 18. Time to work
essays to write. I can NOT be getting sick. hard.
10April 4, 2017 endocrinologist. Please just tell me what is wrong. Please just
DIABETES NEWS
Okay, something has to be wrong. How in the world can I tell me that this is all just a mistake and I'll be better soon. I
not make it through a single class period without having have to have another bag of saline? Why are you asking me all
to go to the bathroom? I’ve been noticing this more and these questions? I just want some answers.
more for months. I don’t understand. And why am I always
so insanely thirsty? No matter how much I drink, I still The doctor said “we’ve never seen these blood sugars before in
feel dehydrated. Oh, that makes sense, I have to go to the someone without diabetes.” …oh…
bathroom so much because I am drinking so much water.
I’m in the middle of soccer season, so drinking water is Is my mom okay? Why do I feel so scared?
healthy. Okay, this is okay. I just wish I weren’t so thirsty all
the time… It’s going to be okay. My family looks so worried. How do I
make sure they know it’s okay? Maybe the more I say it the
April 10, 2017 more we will all believe it.
It’s review day in microeconomics and I got 100% on that
test. This class has been a breeze, but now it’s actually kind Why can’t you give me insulin to fix this? Do I just bring these
of hard. Maybe it’s because I haven’t done it in a while. numbers down with water? What do you mean don’t eat carbs
None of my notes make sense though. Okay okay, relax you until I can get into a doctor? The next available appointment
got this. Just take this step by step. Why can't I remember is in two days. What is going on? You’re just going to send me
what 12 multiplied by 4 is? Math has always been my best home?
subject.
April 16, 2017
April 12, 2017 Happy Easter to me…
I know we’ve had soccer practice for a few hours every day,
but how could I have possibly lost 18 pounds? April 17, 2017
My mom got us an emergency appointment with my General
April 14, 2017 Practitioner. Time for some real answers. He has diabetes.
This can’t be happening. The pieces are starting to fall He’ll know the truth.
together, but there's no way this could be happening to
me. I’ve learned about the signs of diabetes, but it has to be He said he is almost sure I have diabetes, but he can’t diagnose
something else. I don’t want this. I’m so scared. me. He gave us the number for the Barbara Davis Center and
they’re ready to see us today.
April 15, 2017
I drove to my friend's house who has type 1 diabetes to The Barbara Davis Center doesn't look as terrifying as I
check my blood sugar. It was supposed to calm my mind so thought it would, but then again I never thought I would be
I can realize I don’t have diabetes. I am over thinking it. here.
That number can’t be right. Something is wrong with her I don't want to know... I have to know…
meter. She said it's supposed to be under 170. What does
497 mean? I have type 1 diabetes.
Continued on next page...
Why do her parents look so concerned? They’re talking to
me like I have diabetes.
I can't have diabetes.
I drove home, telling my parents about everything that
happened. My dad went to the store and bought me a meter
for myself and said to check in an hour. This meter will be
right. This meter will tell me everything is okay.
576…
Do I have to go to the hospital? I don’t want to.
I’m at the hospital. They will figure this out. I’ll finally get
my answers. They set an IV for saline. They said it’s just
procedure. I’ve been in this hospital bed for what feels like
forever.
No, I don't have diabetes. No, I don't have an
11The very first thing my doctors tried to help me understand is
DIABETES NEWS that, although this does change my life, it does not end it. I will
still be able to do everything I used to do. It is a hard thing to
grasp initially, especially between all the books they give you and
the hours of classes to learn about your “new life.”
If there is anything I would want to tell myself back then, I would
say that everything will be okay and that type 1 diabetes will not
hold me back. Push through the hard times, cry, be angry, accept
it, but always know that it will be okay. Type 1 diabetes does not
define you, and it never will.
I have always said that everything in life happens for a reason
and my first instinct was to make sure this disease would never
hold me back in my life. The day of my diagnosis, I played in my
high school soccer game. A few weeks and an immense amount
of studying later, I caught up in my classes, passed all of my AP
Exams, spoke at my graduation, and earned my high school
diploma. A few months later, I finished the hardest hike I’d ever
done on the longest, steepest, and most beautiful mountain.
Four months after my diagnosis, I drove out to Iowa to begin
my college journey. Type 1 may have changed my life, but I have
become stronger and wiser because of it. I am proud of what I
have overcome and how much I have grown. Today I not only
celebrate my story, vitality, and life; but the strength, love, and
support of my family and friends as well.
12UPCOMING EVENTS
JULY 8 NOVEMBER
Tied to a Cure Denver Golf Tournament Diabetes Awareness Month
Pinehurst Country Club Join the Children’s Diabetes Foundation in turning the
A day on the green with family, friends, clients, and world blue in support of those with diabetes
colleagues – all for a good cause
NOVEMBER 14
JULY 11-14 World Diabetes Day
ATDC Keystone Conference A day to honor everyone living with diabetes around the
Keystone Conference Center world
A 4-day conference for healthcare providers caring for
patients with type 1 and type 2 diabetes
NOVEMBER 21
Kendra Scott Gives Back Party
JULY 28 Kendra Scott in Park Meadows Mall
Don’t Sugar Coat It 5K Run/Walk Get the perfect gift for a loved one or treat yourself
Redstone Park in Highlands Ranch to stunning Kendra Scott jewelry with 20% of your
A fun, inspiring 5K run/walk to raise funds for type 1 purchase benefiting CDF
diabetes research and patient care
DECEMBER 3
AUGUST 3 Colorado Gives Day
Run for the Ring 5K & Kids Fun Run A one-day online fundraiser for nonprofits in Colorado
Barbara Davis Center for Diabetes
The Guild of CDF’s 5K (a BolderBOULDER qualifying
DECEMBER 21
race), kids fun run, and kids zone. An event that’s fun for
Diamonds for Diabetes
the whole family!
Mid-November to December 31st at Thollot’s Jewelers
Pick an ornament from the tree for $25 (to be donated to
OCTOBER 19 CDF) to win a precious gem or piece of jewelry
The Carousel Ball
Hyatt Regency Denver at Colorado Convention Center
JUNE 19-26, 2020
An elegant gala featuring a performance by Reba McEntire
1 Sweet Cruise
and honoring Lisa & Tom Corley and Richard Abrams,
An Alaskan cruise specifically for type 1 families –
M.D.
the perfect combination of diabetes camp and family
vacation!
OCTOBER 24-25
Tied to a Cure Las Vegas
Golf Flyaway
Shadow Creek Golf Course SUPPORT GROUPS
There are support groups going on all year! If you
and Aria Hotel in
want to get together with others affected by type 1
Las Vegas, NV
diabetes, you can sign up for CDF Support Groups
Private chartered flight, one of Vegas’s top golf courses, and
in the Denver, Colorado Springs, Fort Collins,
modern hotel rooms – all for a good cause
Cheyenne, Sterling, or Central Rockies areas. Sign up at
ChildrensDiabetesFoundation.org/support-groups
OCTOBER 27
Boo Bash
Colorado School of Mines CHECK OUT OUR WEBSITE OR FOLLOW US ON SOCIAL
A spooky party for kids with type 1 diabetes and their MEDIA TO GET EVENT UPDATES AT ANY TIME!
families WWW.CHILDRENSDIABETESFOUNDATION.ORG
13MAY 11, 2019
IN DENVER, CO,
EDUCATING THOSE
WITH TYPE 1 AND
TYPE 2 DIABETES
With so many facets for diabetes care, it’s impossible to learn everything you need to know
in quarterly appointments, even after many years of living with the disease. The Children’s
Diabetes Foundation and the Barbara Davis Center (BDC) partnered together to create the
EPIC Diabetes Conference to give patients, families, caregivers, and healthcare providers
an in-depth look on improving their diabetes care in an open, supportive environment.
Attendees learn through workshops, panels, Q&As, a keynote presentation, and more with
the nation’s top diabetes specialists.
This year’s conference took place in downtown Denver on May 11th. Over 350 people
attended and learned about topics such as advanced nutrition and exercise, men and
women’s health, diabetes in school, technology, complications, camps, social stigmas,
adolescence, and more.
Dr. Desmond Schatz, former President of the American Diabetes Association, joined as
the keynote speaker to discuss a cure for diabetes – the challenges, hold ups, what looks
promising, innovative techniques, and more.
This year’s conference featured 3 tracks: advanced, adult, and pediatric. Each workshop
included a brief presentation followed by 45 minutes for attendees to ask experts their
questions about improving their individual care.
Patient panelists Kirra, Daisy (Kirra’s mom), Alice, and Nick (Alice’s dad) opened up
about social stigmas and diabetes camps during a patient panel with moderator Gregory
Forlenza, MD and patient providers Paul Wadwa, MD and Lisa Meyers, MSW, CDE.
Thank you to our lead sponsor Dexcom and the conference exhibitors who greatly
contributed to the event!
This conference was a collaboration between the Children’s Diabetes Foundation and
the Barbara Davis Center. Thank you to the EPIC Committee: Sarit Polsky, MD, Gregory
Forlenza, MD, Dana Davis, Ben Deardorff, Amanda Garrett Miller, Mattie Peck, and
Regina Reece.
14“I liked how the information was very tailored
to our needs as (people with diabetes), and
SAVE THE DATE
how it allowed time for us to ask questions. The
presenters were so down to earth and welcoming,
it almost felt like we were having a conversation
amongst friends.”
“The conference always gives me life to
continue going forward, it energizes me to keep
taking care of me! You learn so much from the
workshops!!”
“My favorite part was knowing that there are APRIL 25, 2020
other people who are dealing with the same issue
and there are people working to help make things SHERATON DENVER
easier.” DOWNTOWN HOTEL
“This was the first year my husband and
I attended the conference. We were very
impressed! We walked away with new
information. Thank you!”
The 2020 EPIC Diabetes
“2019 surpassed my expectations! I loved it! I
Conference will be held on
met some older women with type 1 and we are
April 25th, 2020 at the Sheraton
going to get together!”
Denver Downtown Hotel. To stay
connected and receive
“This is the first year we have attended and it
conference updates, visit
was amazing! I gained a lot of knowledge and
www.EPICconferences.org,
will definitely attend next year. Thank you!”
the EPIC Diabetes Conference
“Each speaker had very engaging information, Facebook page, and Children’s
did not talk "above our heads" and presented Diabetes Foundation’s
their info so very well.” social media pages.
1516
DON’T A CONTINUING
MEDICAL
EDUCATION
SUGAR
CONFERENCE
FOR DIABETES
HEALTHCARE
COAT IT!
PROVIDERS
5K Run/Walk
July 28, 2019
Redstone Park in Highlands Ranch
After living with type 1 diabetes for
several years, Nick Salas and his family
decided they wanted a platform to raise July 11-14, 2019
funds and awareness for the disease. Rates Increase June 17, 2019
That’s why Nick started the “Don’t Sugar
Coat It 5K” three years ago and at this The Children's Diabetes Foundation is proud to partner with the
year’s event, funds will partially benefit Barbara Davis Center for the ATDC Conference in Keystone, CO
the Children’s Diabetes Foundation for for healthcare providers caring for patients with diabetes. This
patient care and research. Vendors, a year's conference will be held from July 11- 14 and will emphasize
raffle, food, and drinks will be available. the challenges in day-to-day management of diabetes and
Join us in Highlands Ranch this summer practical ways to overcome those hurdles, specifically using new
for this fun, family-oriented 5K run/ technologies.
walk!
Program details and registration: www.ATDCconference.com
8:30 AM Registration begins
9 AM 5K run/walk begins Questions? Contact Lisa Steele at
Lisa@ChildrensDiabetesFoundation.org or 303-628-5108
Register at:
raceroster.com/events/2019/23205/dont-sugar-coat-it-2019-5k
Follow Don’t Sugar Coat It on Facebook for event updates!
17FOUNDATION NEWS VOLLEY 4 CHARITY
The Children’s Diabetes Foundation was the beneficiary of the Volley 4 Charity Annual Volleyball Tournament at The Island
(Denver, CO) and Oasis Volleyball (Broomfield, CO) on February 15th and 16th. The event included 6 tournaments over 2
days with a silent auction and raised over $20,000 for CDF. Thank you to the participants and the Volley 4 Charity team!
1819
BABARA DAVIS CENTER ADULT CLINIC RESEARCH
“Scientific research is one of the most exciting and rewarding of occupations”
-Fredrick Sanger, Noble Prize winner for discovering insulin sequencing
This is what we believe at the Barbara Davis Center for Diabetes (BDC), which is one of the most renowned diabetes
clinical and research institutions in the world. The team at the BDC work toward this change. The team works constantly at
understanding type 1 diabetes and its associations better, at improving the treatment options for type 1 diabetes, and in turn
helping to improve the quality of life for people diagnosed with type 1 diabetes. All this is only possible through a medium:
Research. The following are some of the ongoing research offered to adults with type 1 diabetes at the Barbara Davis Center
for Diabetes Adult Clinic.
In addition to the studies listed below, there are a number of studies about newer medications, newer insulin, and newer
technologies being done at the BDC. If you are interested in research studies at the BDC, please contact Prakriti Joshee at
303-724-9925 or email Prakriti.Joshee@ucdenver.edu.
INSULIN INTERCHANGEABILITY STUDY
(WIRB #20183044)
This is a clinical research study being conducted
to compare an investigational insulin with an
already approved insulin in patients with Type
1 Diabetes Mellitus. The study is open to Type 1
Diabetes Mellitus patients under a multiple-daily
insulin regimen with a rapid acting insulin, in
addition to basal insulin, for at least 3 months prior
to starting the study. The duration of the study is
approximately 16 weeks.
IRB approved at the Protocol level Apr16, 2019
#24245962.0
Insulin is an antigen and most patients taking
insulin develop antibodies against insulin to some
degree. However, these antibodies do not interfere
with insulin action and are clinically not relevant.
With the availability of generic (aka: biosimilar or
follow-on biologics) insulins, what happens if you
are being switched back and forth between generic
insulin and branded insulin? Would that result in
greater production of anti-insulin antibodies? Would
that change insulin action? This study is being
done to answer these questions. We are looking
for adults (over 18 years) with type 1 diabetes and
on insulin glargine (Lantus or Basaglar) and Insulin
Novolog for at least 3 months and HbA1c less than
10% for this study.
Photo: © Kent Meireis
20BABARA DAVIS CENTER
Photo: © www.JensenSutta.com
FAST-ACTING GENERIC INSULIN STUDY BONE HEALTH IN TYPE 1 DIABETES
(WIRB #20182018) (COMIRB #18-1397)
If you are an adult between ages 18 and 65 This research study is investigating the effects of
living with type 1 diabetes you may be eligible type 1 diabetes on postmenopausal women’s
to take part in the GAZELE clinical research bone structure, mechanical quality and strength.
trial. This trial will look at an investigational There are one to two visits (depending on an
fast-acting insulin to see if it works as effectively optional procedure). Main procedures involved
as an existing fast-acting insulin already being are: blood draw, urine sample collection,
used to treat diabetes. Bone density scan, CT scans, and bone biopsy
(optional).
IRB approved at the Protocol level Oct 11,
2018 IRB approved 22-Feb-2019
#22927001.0
Insulin cost is a major barrier for many patients Hip fracture risk is six-times greater in
to manage their diabetes. Therefore, the FDA postmenopausal females with type 1 diabetes
is encouraging more companies to develop compared to postmenopausal females without
generic insulin. More generic insulin on the diabetes. A bone density scan (DXA) is
market may result in more competition and generally recommended in postmenopausal
lower prices. In this study, we are comparing a females to screen for osteoporosis (low bone
generic insulin by Mylan GmbH with branded density). However, bone density does not
insulin by Novo Nordisk. We are looking for estimate the fracture risk well in people with
adults (over 18 years) with type 1 diabetes type 1 diabetes. Therefore, in this study, we
and on insulin Lantus and Insulin Humalog or are doing a specific type of CT scan on the hip
Novolog for at least 3 months and HbA1c less and evaluating three-dimensional bone structure
than 10% for this study. and bone strength by simulated computerized
models. Also, we will be looking at bone
collagen quality (collagen is an elastic structure
that helps bone to be flexible) in a subgroup of
patients.
Post-menopausal women with type 1 diabetes
for more than 10 years and currently not
on any osteoporosis medications (such as
Fosamax) are eligible for this study.
21The Carousel Ball
October 19, 2019
Denver, CO
An evening to benefit the Children’s Diabetes Foundation
and the Barbara Davis Center for Diabetes
Featured Performer: Reba McEntire
High Hopes Tribute Award Honorees: Lisa & Tom Corley
Founders Award: Richard Abrams, M.D.
Event Chair: Dana Davis
Honorary Event Chair: Barbara Davis
Tickets available at www.ChildrensDiabetesFoundation.org
Thank you to our sponsors!
Underwriting Sponsor: Dexcom Official Media Sponsor: 5280 Magazine
Major Sponsors: Dexcom, Tina & Rick J. Caruso, CBS4, Colorado Homes & Lifestyles
22The 2019 event will mark the
33rd annual Carousel Ball.
Guests enjoy cocktails, silent and
live auctions, dinner, exciting
entertainment, and musical
performances. All proceeds from
the event benefit the Children’s
Diabetes Foundation, the
fundraising arm of the Barbara
Davis Center focused on patient
support, awareness, and research.
Children’s Diabetes Advisory
Board Members and
Guild Presidents
Lisa & Tom Corley will be ADVISORY BOARD: THE GUILD PRESIDENTS:
Sir Michael Caine Founding President, Amy Davis
presented with the High Hopes Mr. and Mrs. Robert A. Daly Mrs. Gina Abou-Jaoude
The Honorable Diana DeGette, Mrs. Christy Alberts
Tribute Award at The Carousel U.S. House of Representatives, Colorado
Mr. Neil Diamond
Mrs. Jamie Angelich
Mrs. Karen Aylsworth
Ball in honor of their 20 years Mr. Placido Domingo
Mr. John Elway
Mrs. Linda Broughton
Mrs. Tangy Buchanan
of service and support of the Mr. David Foster
Mr. Kenny G
Mrs. Joy Burns
Dr. Bonita Carson
Children’s Diabetes Foundation Mr. David Geffen
Mr. Magic Johnson
Mrs. Nancy Cowee
Mrs. Dalyla Creaghe
and for their unending support of Mr. Quincy Jones
Ms. Sherry Lansing
Mrs. Margy Epke
Mrs. Chris Foster
the Colorado community. Mr. Jay Leno
Mr. Paul Marciano
Mrs. Helenn Franzgrote
Mrs. Sally Frerichs
Mr. Mo Ostin Mrs. Debbie Gradishar
Sir Sidney Poitier Mrs. Helen Hanks
Mr. Lionel Richie
Richard Abrams, Mrs. Adrienne Ruston Fitzgibbons
Mrs. Marty Jensen
Mrs. Gail Johnson
Mr. George Schlatter
M.D. will be Ms. Maria Shriver
Mrs. Sharon Kamen
Mrs. Janet Knisely
Mr. Steven Spielberg and
presented with the Ms. Kate Capshaw
Mrs. Cheryl Lebsock
Mrs. Shelley Lucas
Ms. Brenda Richie
Founders Award Ms. Barbera Thornhill
Mrs. Suzy Love
Mrs. Judy McNeil
Miss Joan van Ark
in honor of the Mr. Gary L. Wilson
Mrs. Sally Newcomb
Mrs. Barb Oberfeld
Mr. Stevie Wonder
instrumental role Mrs. Gretchen Pope
Mrs. Carol Roger
he has played in Mrs. Kay Stewart
Mrs. Diane Sweat
advancing diabetes care over the Mrs. Loretta Tucker
Mrs. Jane Weingarten
past four decades.
23Nonprofit Org.
U.S. POSTAGE
PAID
Denver, CO
Permit No. 1752
Children’s Diabetes Foundation
4380 South Syracuse Street
Suite 430
Denver, CO 80237
Change Service Requested
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