NEWS MAGAZINE SUMMER ISSUE 2019 - INSIDE Walk to End Alzheimer's Caregiver Corner The Longest Day Volunteer with Us Action in Advocacy ...
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NEWS MAGAZINE
SUMMER ISSUE 2019
Rhode Island Chapter
INSIDE
Walk to End Alzheimer's
Caregiver Corner
The Longest Day
Volunteer with Us
Action in Advocacy
Events alz.org/ri
FROM THE DESK OF...
Donna McGowan, Executive Director
Walk enables our mission. The Alzheimer's Association has a very clear mandate: to end
Alzheimer's. It's a monumental goal that each and every chapter across the country is determined
to accomplish, including your Rhode Island Chapter. That end requires perseverance, dedication
and focus, much like the effort shown by our caregivers, volunteers, supporters, sponsors,
advocates, staff and board members. Paramount, though, is making sure the funding is in place
to ensure the other facets of our mission continue: to provide and enhance care and support for
all affected and to reduce the risk of dementia through the promotion of brain health. Our
annual Walk to End Alzheimer's is the most important fundraising event we organize to ensure our mission has strong
footing in Rhode Island and in research settings all over the world.
Your role in that effort is greatly appreciated and vitally important. You can register your team today either online at
alz.org/ri/walk or by calling 1.800.272.3900. You can also re-start a previous team the same way. It costs nothing to sign-
up, but the rewards of taking part are priceless. Your efforts ensure that we can reach out to a family overwhelmed by a
new diagnosis of dementia. We can offer them private care consultations, help them find resources, and offer support and
guidance at every step as they face Alzheimer's. Your fundraising dollars also allow us to provide online resources and
training for caregivers with limited time, means and access. Our Chapter offers social programs for those with early and
younger onset, along with support groups for them and their care partners. We train facilitators who organize community-
based group respite programs, which offer care partners some important "me" time. Those critical dollars also support our
24/7 Helpline phone service, which offers professional care consultations every hour of every day. And that money allows
us to continue to provide free educational programs across the entire state of Rhode Island.
This Chapter will continue to do the things that are so critically needed: staff our 24/7 care consultation helpline; train
facilitators to run support groups throughout the state, including one in Spanish; provide onsite training and resources to
local companies looking to help their employees navigate the challenges of dementia care; conduct face-to-face expert
Care Consultations. And we WILL serve more people than ever. My personal pledge is to reach harder into communities
that need us most. Our walks combined raise in excess of $500,000 presently. It sounds like a great deal of money, and it
is when you consider where we were. But it's not nearly enough. Not when you look at the statistics: Over 23,000 Rhode
Islanders and more than 5.8 million Americans are living with Alzheimer's or other dementia. While Alzheimer's disease is
the 6th leading cause of death in the U.S., it is now the 5th leading cause of death in Rhode Island and the only one in the
top 10 that cannot be prevented, slowed, or cured. This year alone, dementia care will cost the nation $290 BILLION. We
will NOT stop fighting for more: more funding for research...more funding to provide and enhance care and support for all
affected...and more funding to reduce the risk of dementia through the promotion of brain health. We fight to preserve
the memory of those we've lost to this disease, to preserve the future of those who will be diagnosed, and to secure a
future without Alzheimer's. I hope to see you at our Walks: Saturday, September 14, 2019, Misquamicut State Beach,
Westerly, RI, Sunday, September 15, 2019, Fort Adams State Park, Newport, RI, Sunday, October 6, 2019, Roger Williams
Park, Providence, RI and NEW this year, Sunday, September 22, 2019, Fred Benson Town Beach, Block Island, RI. We are
excited to have Block Island on-board with the Walk to End Alzheimer's! We are in this fight together and by combining
our forces together we WILL live in a world without Alzheimer's! I look forward to greeting you at the walks. Thank you for
all that you do!
Sincerely,
Donna M. McGowan
Executive Director
24/7 Helpline
OUR TEAM Call us day or night
1.800.272.3900
BOARD OF DIRECTORS TTY: 1.866.403.3073
DIRECTORS
STAFF
Jacqueline Waldon, CPA
President Donna McGowan
jwaldon@blumshapiro.com Executive Director
dmcgowan@alz.org
Thomas J. Enright, Esq.
Vice President Kate Spinella
enrightlawoffice.com Director of Development
kaspinella@alz.org
Macrina G. Hjerpe, Esq.
Secretary Eric Creamer
mhjerpe@crfllp.com Director of Public Policy and Media
Relations
Erica Olobri, CPA, MPA ercreamer@alz.org
Treasurer
erica.olobri@marcumllp.com Annie Murphy, MA
Program Manager
Lori Daiello, Pharm. D, SCM mmurphy@alz.org
Rhode Island Hospital
ldaiello@lifespan.org Bella Garcia
Special Events Coordinator
Laura Stanton, MD agarcia@alz.org
The Miriam Hospital
laurastanton98@gmail.com Jennifer Atkinson
Administrative and Communications
Associate
jratkinson@alz.org
EVERY DOLLAR COUNTS
Join the fight for Alzheimer's first survivor in Rhode Island this September and October.
At the Alzheimer's Association Walk to End Alzheimer's®, people carry flowers
representing their connection to Alzheimer's - a disease that currently has no cure. But
what if one day there was a flower for Alzheimer's first survivor? What if there were
millions of them? Help make that beautiful day happen by joining us for the world's
largest fundraiser to fight the disease.
SATURDAY
Where does the money go?
September 14, 2019
We provide care and support for all those facing Alzheimer's across Rhode Island
Misquamicut State Beach utilizing donated funds to offer:
Westerly, RI A free, nationwide, 24/7 Helpline 800.272.3900 staffed by specialists who provide
support, offer information and lists of resources near you
Support groups for care partners and those diagnosed with dementia to provide a
local network of help and on-line connections through ALZconnected.org, a free
SUNDAY message board service that builds relationship across the country.
September 15, 2019 We advocate for the needs and rights of people impacted by Alzheimer's. The
Fort Adams State Park Association is the leading voice for Alzheimer's advocacy in the world, advancing public
policy that improves the lives of those living with dementia and their care partners.
Newport, RI
We educate and raise awareness to grow understanding about the disease. To
increase knowledge and support those facing dementia, your fundraising provides:
SUNDAY Free educational workshops and programs about the 10 warning signs of
September 22, 2019 Alzheimer's, living with the disease, caregiving at every stage, and healthy lifestyle
choices
Fred Benson Town Beach A website - alz.org - that includes hundreds of pages of information in a variety of
languages
Block Island, RI
We drive research toward treatment, prevention, and ultimately, a cure. As the world's
largest nonprofit funder of Alzheimer's research, the Association invests your
fundraising resources in innovative projects that hold the most potential to alter the
SUNDAY trajectory of the disease.
October 6, 2019
Our team can also help build and motivate your Walk team, with suggestions for
Roger Williams Park fundraisers, marketing materials to share with friends, family and co-workers. Visit
alz.org/ri/walk or call 800.272.3900 to get walking!
Providence, RI
Your support of the Walk to End Alzheimer's through registration for local Walks and
your fundraising put us one step closer to a world without Alzheimer's. We can start or
Register today at renew your Walk team in a matter of minutes.
alz.org/ri/walk Contact Bella Garcia at agarcia@alz.org with any questions
UPCOMING WALK EVENTS
A heartfelt thank you to all the wonderful facilities, nursing homes, assisted living communities,
small businesses, and individuals who host fundraisers for the Walk to End Alzheimer's®.
Morning Kayak Paddle in Beautiful Wickford Harbor
When: Sunday, August 25th, 9:00 am
Where: Wickford Harbor, 9 Philips St, Waterside Wickford, RI
Join the Alzheimer's Association for a stunning morning paddle at Wickford harbor
to support the Walk to End Alzheimer's. The Kayak Center of RI will provide all
equipment needed. Space is limited so be sure to reserve your kayak early. Both
single seated and double seated kayaks are available and participants are
welcomed to bring their own. Paddle boards are also welcome. Cost is $35 per
person which includes equipment, snacks, and beverages. Contact Annie Murphy
at mmurphy@alz.org to sign up or to get more information.
Chapel Hill Senior Living 8th Annual Car Show
When: Saturday, September 28, 10:00 am
Where: 10 Old Diamond Hill Road, Cumberland, RI
Awards for cars along with door prizes and trivia with DJ Car Guy
Call Laura Cardoso at 401-333-3393 or call the Car Guy at 401-575-6933
For more info on local walk events visit alz.org/ri/walk
JOIN THE FIGHT FOR ALZHEIMER'S
FIRST SURVIVOR
The Alzheimer's Association Walk to End Alzheimer's is the world's largest
event to raise awareness and funds for Alzheimer's care, support and
TOP TEAMS 2018 research. At the Walk, people carry flowers representing their connection
PROVIDENCE to Alzheimer's - a disease that currently has no cure. But what if one day
STEPS OF HOPE there was a flower for Alzheimer's first survivor? What if there were
$19,786.00 millions of them? Help make that beautiful day happen by joining us for the
world's largest fundraiser to fight the disease. Register today at
NEWPORT alz.org/ri/walk or 800.272.3900
MCCARTHY BRAINWAVES
$17,026.00
Walk to End Alzheimer's | Westerly, RI | Misquamicut State Beach
WESTERLY Saturday, September 14, 8:30 am
IN MEMORY OF JEAN DOYLE
$5,822.50
Walk to End Alzheimer's | Newport, RI | Fort Adams State Park
TOP PARTICIPANTS 2018 Sunday, September 15, 8:30 am
PROVIDENCE
KIM MOONEY
$6,145.00 Walk to End Alzheimer's | Block Island, RI | Fred Benson Town Beach
Sunday, September 22, 10:00 am
NEWPORT
GRACE MARTIN
$4,630.00 Walk to End Alzheimer's | Providence, RI | Roger Williams Park
Saturday, October 6, 8:30 am
WESTERLY
ALISON CHALKER
$2,640.00
WALK TO END ALZHEIMER'S
CHAMPIONS CLUB
Alzheimer's disease is relentless. So are we. When you raise $500, $1,000, $2,500 or more for a Walk to
End Alzheimer's®, you gain a place in the Champions Club, Grand Champions Club or the Elite
Champions Club.
Champions Club Members receive an official Walk to End Alzheimer’s T-Shirt, a Champions Club
commemorative medal, a fundraising badge on your personal Walk Web page, and a thank-you certificate!
Those who raise $1,000 or more will join our Grand Champions Club. Benefits include an official Walk to
End Alzheimer's T-shirt, an exclusive Grand Champions Club high-performance T-shirt, a Champions Club
commemorative medal, a Grand Champions Club fundraising badge on your personal Walk Web page, and
a Grand Champions Club thank-you certificate.
Those who raise $2,500 or more will join our exclusive Elite Champions Club. Benefits include a quarter-
zip pullover, an official Walk to End Alzheimer’s T-shirt, an exclusive Elite Champions Club high-
performance T-shirt, an Elite Champions Club commemorative medal, an Elite Grand Champions Club
fundraising badge on your personal Walk Web page, and an Elite Champions Club thank-you certificate.
Check out this year's Walk Incentive Prizes in the fundraising section of our website for ideas on how to
get started toward your goal. Our incentive prizes include a Vitamix blender, Airpods, and more! We offer
online and offline fundraising tools, as well as coaching, advice and tips from our expert staff.
Early Bird Check-In for the Providence and Newport Walks! We encourage all Providence and Newport
team captains and individual walkers to turn your pledges in before the Walk on Early Bird Check-In, the
Wednesday before the walk, to receive your shirts, team captain gift, and skip registration the day of the
Walk. Come by the chapter office at 245 Waterman Street, Suite 306, Providence on the Wednesday
before the Walks between 8:00AM and 7:00PM.
THANKS TO OUR SPONSORS
NATIONAL PRESENTING SPONSOR MEDIA PARTNERS
NATIONAL DIAMOND TEAM RI CHAPTER SPONSOR
NATIONAL PLATINUM TEAM CHAMPIONS CLUB - $2,500
SELECT SPONSORS - $5,000 PROMISE GARDEN - $2,500
REGISTRATION SPONSORS - $2,500 START LINE - $2,500
ROUTE SPONSORS - $1,000
Blum Shapiro
The Washington Trust Company
CORPORATE SPONSORS - $1,500
Heatherwood Rehabilitation and Bruno Painting
Health Care Center Westerly Community Credit Union
Electric Boat The Lighthouse at Lincoln
Care New England Steere House
PACE Benchmark
AARP Apple Rehab
Memory and Aging Program at Butler Hospital St. Elizabeth's Community
Meet The Walk Chairs
Kristen Gencarelli - Westerly - krgencarelli@gmail.com
Kristen is the chair of the volunteer committee for the Westerly Walk. Kristen first became aware
of Alzheimer's when her paternal grandmother was diagnosed with the disease. Kristen's
maternal grandmother also had Alzheimer's disease diagnosed at age 73. She is planning to
have this year's Walk be bigger and better than last year's.
“Last year, we blew our goals out of the water,” she said. “We hoped to get between 100 and
200 participants; we had 372. We also surpassed our $50,000 fundraising goal.”
This year, Kristen is happy that she has a bigger committee to help make the Walk a success.
Join her on September 14 at Misquamicut Beach for the Westerly Walk.
Nicki Trilling - Newport - ntrilling@gmail.com
Nicki became involved with the Alzheimer's Association after attending last year’s Caregiver's
Conference. She met many caregivers doing what she saw her father do years ago for her
mother and what they both had done previously for her grandmother. Both woman suffered
from Alzheimer's disease.
Nicki became involved with the Association because she shares the vision of a world without
Alzheimer's. She is passionate about educating the public, supporting caregivers and those
afflicted with the disease, and advancing Alzheimer's research and funding. Last year Nicki’s
family and friends were very supportive of her fundraising efforts, which was particularly
emotional, after losing yet another close family member to this disease: her mother’s younger
sister.
As this year’s Newport Walk co-chair, Nicki is honored to be working with an amazing group of
dedicated volunteers who are working to build on past successes and make this the most
successful Newport Walk yet!
Christine Gadbois - Newport - cgadbois@carelinkcollaborative.org
Christine has been involved with the the Walk To End Alzheimer's and the Alzheimer's
Association since she participated in her first Walk in Boston eight years ago.
Christine first got involved with the Walk as a healthcare professional; later as a family member
and volunteer. Christine feels that it is critical that everyone steps up to be as engaged as they
can.
"Folks can attend, and there is no pressure to walk, although we do have people walking with
baby carriages and with walkers and wheelchairs." she said. "Certainly we are thrilled when
people donate to our Walk teams on-line."
Join them at the Newport Walk on September 15 at Fort Adams State Park.
ALZ.ORG/RI/WALKMeet The Walk Chairs
Jackie Waldon - Providence - jwaldon@blumshapiro.com
Jackie witnessed first-hand how devastating Alzheimer's Disease is when her Godmother
succumbed to the disease during the 1980s. This experience prompted Jackie to get involved, and
participated in the Providence Walk over 20 years ago. Jackie got involved with the Walk committee
eight years ago, as well as the Alzheimer's Association Advisory Board. Today she is the Board
Chair.
Jackie loves the Providence Walk because Roger Williams Park is so scenic and the festivities at
the Temple of Music are exhilarating.
In addition to registering online to walk, Jackie wants it to be known that there are more ways
people can help out. She encourages people who cannot Walk to either donate or volunteer on a
committee. Join her and the committee on October 6.
Rob LeBlanc - Providence - rdleblanc@yahoo.com
Rob LeBlanc is Vice President in the Wealth Management group at Citizens Bank, where he
manages the Wealth Infrastructure and Support team. He gets to put his management skills to
good use by serving as Team Captain for Citizens Bank, as well as the volunteer planning
committee co-chair, for The Walk to End Alzheimer’s that will take place on Sunday October 6th at
Roger Williams Park.
Rob's dedication to the cause began seven years ago, when his maternal grandmother was
forgetting certain people and wandering outside her home. The diagnosis was dementia. Ultimately,
she was placed in a nursing home. Not long thereafter, Rob’s grandfather was also diagnosed with
dementia and was placed in the same community as his wife.
LeBlanc realized that it is not only the person diagnosed that is impacted but family and friends as
well. He saw the impact his grandmother’s illness had on his immediate family—his mother, her
sisters and his cousins and, of course, himself. Barring a cure tomorrow, he wants to help those
who will be diagnosed next.
Block Island To Host It's Very First Walk
On September 22, the Alzheimer’s Association, RI Chapter will put on Block Island’s first ever Walk
to End Alzheimer’s. The Block Island walk will be held at Fred Benson Town Beach on Sunday,
September 22. Check-in will begin at 10:00 am followed by a ceremony at 11:00 am before the
walk begins at 11:15 am. For more information contact Bella Garcia at either 401-421-0008 or
agarcia@alz.org.
"We are very excited to have our inaugural Walk on Block Island this year." said Kate Spinella,
Director of Development at the Alzheimer's Association, Rhode Island Chapter. "Not only is it a
scenic locale with a beautiful Walk route, we believe that community needs to be recognized in the
fight against Alzheimer's and dementia. They are a dedicated group of local resident volunteers
who want to make a difference, and we honor their commitment to the cause. We hope to have
much success in fundraising and awareness on September 22nd."
ALZ.ORG/RI/WALKLorraine Dennis and Diane Lynch
Lorraine Dennis and Diane Lynch to complete
Newport Walk in their 90s
Lorraine Dennis and Diane Lynch prove that anyone "I watched my husband have Alzheimer's for many
can participate in a Walk to End Alzheimer's. years," said Lynch. "I used to jog all of the time
Residents at Atria Aquidneck Place in Portsmouth, when I was younger, and it is really life saving. So
both Dennis and Lynch walked at last year's Newport I told myself that I could do it. (by going to the
Walk at Fort Adams and both are in their 90's. Walk)."
"Someone asked me if I need a ride back to the start, Both Dennis and Lynch, who walk outside the
and I said no. I am not going to give in," said Dennis. buildings every day, said that they love the
Newport Walk to End Alzheimer's because it is
Dennis, who is 98, has lived in Rhode Island for over well-organized, has plenty of water available and
40 years and is originally from Minnesota. This was takes place in a Rhode Island landmark, Fort
her second year participating at the Walk in Newport. Adams.
"I have seen so many friends with Alzheimer's, and it "Fort Adams is a beautiful spot, and there is a lot
is just a horrible disease," she said. "I had to go (to of history there," said Lynch
the Walk). We are right at the edge of research to
put us over the top to find a cure." They explained that they were the last walkers to
finish. "The ambulance followed us, and we were
Lynch, who is 93 and life-long Rhode Islander, went the last in line," said Dennis. "I felt so bad for them,
to the Newport Walk for the first time in 2018, but but having the ambulance there was a real
she said that she has been to many different walk comfort."
events over the years. She has a personal
connection to the disease.
The Newport Walk to End Alzheimer's is on September 15 at Fort Adams. Register at alz.org/ri/walkRhode Island Businesses and Citizens Raise
Money and Awareness on The Longest Day
On June 21, the Alzheimer’s Association, celebrated The Longest Day. The event is a celebration of the
Summer Solstice, the day with the most light. People participate in an activity, while raising funds and
awareness to help end the darkness of Alzheimer’s disease. Numerous fundraisers for the Longest Day were
put on by businesses and citizens throughout Rhode Island.
The fundraising events included a Pawtucket Red Sox game on June 20th, PVDonuts Purple Donut Day, a
fitness class at Boston Sports Club, a fundraiser at County Cork Irish Pub, a silent auction at Highlands on the
East Side, the Wayland Square Merchants Association Sidewalk Sale, and so many more.
“We’ve always known that there were fundraisers and people trying to make a difference,” said Paul Kettle,
owner of PVDonuts. “We never even thought about using other mediums (i.e. art) as a means of raising
awareness. We decided to use our business—when able to—as a means of contributing to non-profits,
charities and causes that we are passionate about.”
Contact the Alzheimer's Association Rhode Island Chapter
about creating your own special event as part of the Longest
Day in 2020 at Agarcia@alz.org or Kaspinella@alz.orgolder9TH ANNUAL CAREGIVER'S
JOURNEY CONFERENCE
The Alzheimer's Association's 9th Annual publications, including Long-Term Living Magazine,
Caregiver's Conference was an incredible success! Healthcare Provider Magazine, Science Today
Magazine, television talk shows, and much more.
The 2019 all-day free conference for caregivers, named
"Caregiver's Journey" took place at the Crowne In addition to the keynote address, the conference
Plaza Hotel, Warwick on April 25. The conference offered a variety of workshops with topics ranging from
provided over 500 healthcare professionals and "Behaviors: The Good, Bad and How to Support
caregivers with the tools they need to carry on their Creative Interventions," "The Grief Journey of Dementia
journey of supporting someone with dementia. Caregivers," "Dementia 101," “What Matters Most to
You? Advanced Care Planning for End Of Life
With the prevalence of Alzheimer's disease on the rise, Decisions,” “Legal and Financial Planning:
the "Caregiver's Journey" conference is timely. The Consideration When Caring for People with Dementia,”
demands on a person taking care of elderly parents, “Now What? Unique Considerations in Providing
spouses, or friends can result in a great deal of stress. Support for People with Intellectual Disabilities and
Dementia,” ”When It's No Longer Safe to Drive," “A
"This is Rhode Island's best conference hands down for Walk in Their Shoes: Virtual Tour” and more! There
education and resources on dementia care" said Annie was also more than 40 vendors providing resources
Murphy, Program Manager at the Alzheimer's related to Alzheimer's care.
Association, Rhode Island Chapter.
In addition, Lieutenant Governor Dan McKee updated
This year’s conference featured the keynote address the attendees about the State Plan on Alzheimer's
"Dementia: It is not a Person's Name" presented by Disease and Related Disorders.
Joshua Freitas. Dr. Freitas is Vice President of Program
Development at CERTUS Senior Living in Orlando, Save the Date: The 10th Annual Caregiver's
Florida. Formally with Benchmark Senior Living, he is Conference is on April 23rd, 2020 at Crown Plaza in
an award-winning memory care program developer, Warwick. Contact the Rhode Island Chapter office for
researcher, and author. His care and training more information.
philosophies have been featured in prominentFROM THE DESK OF...
Annie Murphy, MA, Program Manager
What Improve Can Teach Us
22 people gathered at the Contemporary Theater in Wakefield, on June 13 to find out
what Alzheimer’s disease and improvisational theatre has in common. This pilot workshop
was a collaboration between the staff at he Contemporary Theater, Home Assistance of RI,
and the Alzheimer’s Association RI Chapter.
The attendees were guided through 1. Agree don’t deny. No is a stop sign. Yes 6. Go with the flow. Accept that you
several exercises and games by feels good to hear. Yes, says I never know what is coming next.
Contemporary Theater’s Director, understand, I hear you, I am listening to Whatever your loved one says, be part
Chris Simpson, to connect with others you.” Start with a yes and see where that of the conversation. If you do ask a
attending the workshop. The exercises takes you. If someone says they dated the question, make sure it is open-ended
Beatles, you accept that as their reality with no preconceived correct answer.
guided them to be fully present, accept
and conduct the conversation accordingly.
the here and now and to completely
7. Share focus. Give and take. Share
commit to what was being asked in the
2. Yes, and. ‘And’ builds on the ‘yes’ and bits of your reality while being curious
moment.
keeps the flow going. Building on what is about theirs. Give them the space to
offered keeps the flow going and opens share at their own pace. Sharing
Attendees found the Improv Pilot to be the doors for connection. experiences is an improv fundamental.
a great experience that expanded their
horizons and approaches to 3. Be specific. Details give you 8. Silence can be powerful. Sit
communication and opening access to somewhere to go during an improv skit. in the silence. Moments of silence can
aspects of being that they don’t For persons living with dementia, it can hold communication and connection.
necessarily connect with often enough. help to have something to connect with. Silences also create space for thinking
Chris worked with them through basic Dementia can make abstract thinking to take place. Often people living with
exercises on stage communication more challenging. Be specific and dementia are outpaced in conversation.
done by theater actors prior to concrete. Sitting in the silence allows thoughts to
performances. be heard. In improv, silence can create
4. Listen Fully. Communication when living moments of laughter or suspense.
This exciting workshop continues with dementia means shifting our
August 15 and 22 at the Contemporary perspective. By listening fully, we can 9. Commit 100%. When on the stage,
Theater in Wakefield. hear all of what is being communicated. your sole focus is the story you’re in. If
Pay attention to tone, word choice, tempo you are going to sit and be with
and body language. All of these are someone, sit and be with them. Even if
Contact the Sabrina Sargent
important whether you’re on the stage or it is only for a moment. Don’t look at
at ssargent@homecareassistance.com
in your living room. your phone or the TV. Be with them
to RSVP, to learn more about this
100%. This is a gift.
workshop or contact the Alzheimer’s
5. Accept the reality given to you. A classic
Association 24/7 helpline for more requirement when acting or watching a 10. Be in the Moment. Be here now.
details by calling 1-800-272-3900. performance is to “suspend your disbelief." Identifying things around you as they
Anything goes in improv. Step into your happen is a common improv exercise
Ten guidelines for using Improv to loved one's world. This is
benefit our daily lives and our crucial. Correcting someone’s reality is a
communication were were detailed: surefire way to end up in an argument.
Start with these 10 exercises rooted in improv. Use them as training wheels until this becomes a way of being. This is
non-prescriptive — there is no one right thing to do in this situation or that. Practice each of these and see how your
interactions change with people living with dementia and beyond.Stand Together Against Alzheimer's
By Benjamin Monaco
The Women's Club of South County
sponsored an essay contest called
"The Spirit of Giving". The contest is
intended to help young people learn the
joys and benefits of charitable giving.
For the contest, middle school students
wrote about a charity they wanted to
support. Twelve year old Benjamin
Monaco chose to write about his
Meme, Fina, who suffers from pictures taken on her phone over and In 2017, Meme was interviewed by
Alzheimer's, and how he supports the over and I was too young to realize what Channel 12. She and Papa talked
Alzheimer's Association's Walk to End was happening. As I got older, it got about the disease and tried to
Alzheimer's. worse. She would ask me the same bring attention to the cause. They
questions, like," what do you want for talked about their struggle with the
If I had the chance to make a difference Christmas?" or "what do you want for disease in hopes that people would
by donating to a non-profit organization your birthday?" even when it wasn't that listen. In hope that people would help
I would choose the Alzheimer’s time of year. Every Sunday we take her raise money by going to the Walk to
Association. They are fighting for “A out to breakfast, followed by drawing and End Alzheimer’s.
world without Alzheimer’s disease.” listening to some of her favorite music.
We try to have a routine to make things Every year the Alzheimer’s
Alzheimer’s is a disease that causes easier for her, but we never know what's Association hosts a "Walk to End
memory loss that disrupts normal going to happen. Sometimes my brother, Alzheimer’s" in Providence. For the
activities, solving problems, misplacing Cooper, and my sister, Morgan, argue. past two years we have gone to the
things and changes in mood. It is Sometimes one of the three of us gets event. It raises money for research to
currently an incurable disease that is into trouble, and she doesn't understand find a cure for the disease. The event
affecting older people. The Alzheimer's what is happening. She thinks we are is very inspiring. During the walk we
Association is trying to raise money for angry at her and she gets upset. carry multi-colored flowers
testing to find a cure for this horrible symbolizing our connection to the
disease that currently 5.8 million people Recently, Meme was taking an disease. They hope to someday have
are living with. experimental infusion. It was helping her a white flower to symbolize someone
a bit, but the company stopped making who had Alzheimer’s and was cured.
The reason I chose the Alzheimer’s the infusions. They said they weren't
Association is because my Meme getting the right results. Now we have to So, if I had the chance to make a
(Grandmother) has Alzheimer’s. It find a new company to make them, but difference by donating to a non-profit
started off slow. She would show me with this disease there are so many organization I would choose the
unknowns; so many 'what ifs'. What if Alzheimer’s Association to stop a
she gets really upset and tries to walk disease that is affecting so many
away and leave? What if she misses people worldwide. As Meme said in
Papa (Grandfather) while we are at the her Channel 12 interview, “I didn’t do
breakfast place and gets upset? What if this to myself,” and I couldn’t have
she loses something important? And on put it better. The Alzheimer's
and on, we never know. I don't want Association will use the funding for
anyone to have to ask themselves more experiments and more trials in
these questions about their family the hopes that some day people
members. But it's still not getting better. won’t have to worry about the 'what
As of 2017, every 66 seconds someone ifs' or the unknowns. Alzheimer’s is a
in the U.S. develops Alzheimer's or horrible disease, but if we all stand
dementia. together we can find a cure.EDUCATION CALENDAR
Get the emotional Know the 10 Signs
Learn the 10 signs of dementia to determine if it's important to speak to your
support you need! doctor and get a diagnosis for yourself or someone you care about.
Support groups are August 19, 1:00pm-2:00pm, Centredale Manor, 2074 Smith St. North
Providence
regularly scheduled, free
gatherings of persons who Person-Centered Dementia Care
are providing care for Receive high quality dementia care training to care for individuals with
persons with Alzheimer's Alzheimer's Disease
disease or a related
August 16 9:00am-4:30pm, West Shore Health Center, 10 West Shore Rd,
disorder. The groups are
Warwick
facilitated by persons
trained by the Alzheimer's Legal and Financial Planning on Alzheimer's Disease
Association and are held A two-part program where you will have a chance to learn about legal and
throughout the state in financial issues to consider, how to put plans in place, and how to access legal
community-based settings. and financial resources near you.
August 22 3:00pm-4:30pm, Pace of RI, 5 Union St, Westerly
For a full listing of support
groups in Rhode Island
please visit:
communityresourcefinder.orgEDUCATION CALENDAR
CONTINUED...
LGBTQ Phone
Support Group Living With Alzheimer's for Middle-Stage Cargivers
Join other LGBTQ A 3-part series where caregivers and professionals discuss helpful strategies
spouses and partners to to provide safe, effective and comfortable care in the middle stage of
Alzheimer's.
support one another
while receiving August 20 6:00-7:30, Phyllis Siperstein Tamarisk Assisted Living, 3 Shalom
information and Drive, Warwick
resources on August 27 6:00-7:30, Phyllis Siperstein Tamarisk Assisted Living, 3 Shalom
Alzheimer's disease and Drive, Warwick
related dementias.
Living With Alzheimer's for Person with Disease
Held the first Monday of The diagnosis of Alzheimer’s disease is life-changing. In this three-part
every month for program, you will hear from others who have been where you are. You’ll learn
parnters and spouses of what you need to know, what you need to plan, and what you can do as you
people living with navigate this chapter of your life.
dementia. For details on
September 11 1:00-2:30, Beachwood Community Center, 44 Beach St, North
timing and call-in Kingstown
information, please September 18 1:00-2:30, Beachwood Community Center, 44 Beach St, North
contact the facilitator, Kingstown
Barb Meehan at September 25 1:00-2:30, Beachwood Community Center, 44 Beach St, North
508.291.0660 or Kingstown
bamscats@gmail.com.ADVOCACY IN ACTION: ALZHEIMER'S ADVOCACY DAY
The State house was immersed in purple Island Office of Healthy Aging; Donna improves access to care and support
May 7 with supporters and advocates McGowan, Executive Director of the services.”
from the Alzheimer’s Association joining Alzheimer’s Association, Rhode Island
legislators at the State House to share Chapter; Marc Archambault of South “Alzheimer’s disease and its impact on
their stories, and push for legislation to be Kingstown, who has been diagnosed society is not only a growing public
passed at the General Assembly to make with the disease; and caregiver health concern, it very well may be the
an impact in helping those in the most Melody Drnach of Jamestown. next biggest public health emergency
need. that we as policymakers need to
“Here in Rhode Island, we are address,” said Rep. Ackerman. “We’ve
The Alzheimer’s Association Advocacy fortunate to have a passionate, already begun crafting legislation that
Day provided opportunities for advocates dedicated and a close-knit community will establish a program in Rhode
to meet face-to-face with their state of Alzheimer’s advocates,” said Island to address the disease.”
elected officials. The program featured Lieutenant Governor Daniel McKee. “I
speeches on legislation to adopt Rhode (am) proud to stand with them to She encouraged everyone throughout
Island’s State Plan to address highlight our new State Plan on the state from hospitals, researchers,
Alzheimer’s disease. Lieutenant Alzheimer’s and other important medical professionals, state agencies,
Governor Daniel McKee spoke as well as legislation aimed at combating this and fellow members of the General
House Majority Leader Joseph devastating disease.” Assembly to act now to address the
Shekarchi, House Rep. Mia Ackerman public health crisis.
and State Senator Cynthia Coyne on “Alzheimer’s disease remains one of
state legislative proposals that include the most critical public health issues in “There are many factors to be
creating a program under the America, and state governments stand considered in the great work ahead of
Department of Health and an advisory on the front line,” said Donna M. us,” Ackerman said. “From early
council to oversee implementation of McGowan, Executive Director of the detection and diagnosis, to building a
programming, requiring training for Alzheimer’s Association, Rhode Island workforce capable of handling the
medical professionals, and establishing Chapter. “State government must unique health care needs of
Alzheimer’s plans in medical facilities. address the challenges the disease Alzheimer’s patients. This is
The bills passed the General Assembly poses and take bold action to confront something that will take a lot of effort
unanimously! this crisis now. Alzheimer’s is a and a lot of time. Now is the time to
growing crisis for our families and the get to work on this.”
Other guest speakers included Rose economy. That’s why we
Jones, the Director of the Rhode are unrelenting advocates for public
policy that advances research andWhy I Advocate For
Changes in
Alzheimer's Laws
March marked the annual Alzheimer’s Impact Movement Advocacy
Forum in Washington, DC where over 1,300 Alzheimer’s Advocate Cailin Frankland delivers RI state roll call
Association staff and volunteer advocates from the United States at April's Advocacy Forum in Washinton
converged on our nation’s capital to meet with members of
Congress to discuss the organization’s Federal initiatives. Included
in the Rhode Island contingent was Brown University Neuroscience absolutely necessary to address Alzheimer's on a
student and Alzheimer’s Association Congressional Team member national level. Not only does advocacy work spread
Cailin Frankland, who was there on behalf of many members of her awareness, inform legislators, and potentially save the
family who have been touched by the disease. Cailin gave the healthcare system a great deal of money through
presentation about the Ocean State during the forum’s state roll call streamlining services, but it provides a compelling,
on legislative successes. compassionate approach to active ally-ship and
engagement.
Why did you begin getting involved with the Alzheimer's
Association and how? Can you say a little about yourself and what you
would want the general audience to know?
As a freshman I joined Brown Alzheimer's Activists, the club I am a member of Brown University's undergraduate
dedicated to dementia awareness and advocacy on campus. My class of 2020, studying neuroscience. My interest in
sophomore year, I contacted the Alzheimer's Association in RI to Alzheimer's advocacy is largely rooted in my childhood
help coordinate the Providence Walk in 2017. Ever since then, I experiences with my grandfather, who lived with early
have been actively serving on the chapter's Advocacy Committee, onset Alzheimer's for almost two decades before
volunteering, donating, attending meetings, and facilitating various passing in 2016. Like his mother, aunt, and grandfather
advocacy efforts on and off campus. before him, Grandad was fortunate to receive our
extended family's financial and emotional support as he
Why did you attend the Advocacy Forum and what do you navigated cognitive decline; as my mother's generation
want to achieve, learn, or participate in? gets older, I am becoming increasingly aware of my
mother's chance of inheriting the disease and my
I attended the Advocacy Forum primarily to learn effective potential role as a caregiver in a few short years. Until
strategies to engage younger generations with the Alzheimer's we can effectively cure or prevent this disease, I want
Association and this cause as a public health crisis that affects us every Alzheimer's patient to receive all the support that
all. Many of us living under the false impression that Alzheimer's my affected family members have enjoyed while still
and related disorders are exclusively diseases of old age since age maintaining dignity. Beyond Alzheimer's specifically, I
remains the greatest risk factor for actually developing Alzheimer's am deeply invested in the intersections among mental
disease. But caregivers, loved ones, and early-onset cases may health and disability justice from a public health
be directly affected by dementia at earlier stages in life. I want to perspective.
learn new methods for motivating young people to take action while
simultaneously providing our aging population in Rhode Island with The Federal actions requested by the Alzheimer’s
solidarity and support. Association included providing additional funding for
Alzheimer’s research and the Alzheimer’s Public Health
Why is advocacy work important as it pertains to Alzheimer's Structure while pushing for increasing provider education
and dementia? for Alzheimer’s care planning through the Improve
HOPE for Alzheimer’s Act and improving access to
Advocacy work is crucial for ending the Alzheimer's epidemic services for individuals with Younger-Onset Alzheimer’s
because this public health issue is inherently political. Given the through the Younger-Onset Alzheimer’s Disease Act.
prevalence, severity, stakes, and costs of this progressive disease, More information can be found at
a clear plan from every legislative level for every jurisdiction is https://alzimpact.org/take_action/act_nowAction in Advocacy
Community Town Halls To Have Conversations On
Alzheimer's Disease and Dementia
Congressman Jim Langevin Eric Creamer, Congressman David Cicilline, Attendees listen to legislators at one of
Rita Murphy, and Cailin Frankland the 2018 community forums
From August through December, needs and concerns around Coffee with Congress
the Alzheimer's Association will be Alzheimer's and dementia. August 19, 10:00 am
hosting regional town hall meetings Warwick Central Library
to receive input from the public and "Personal stories are an effective
Town Hall Conversations
from those impacted by the way to help policymakers understand
September 4, 5:00 pm-7:00 pm,
disease, about what legislators and how their work affects people. That's
John Clarke Retirement Center
state officials can do to support where you come in as an advocate," September 17, 5:30 pm-7:30 pm
them into the future through said Donna McGowan, Executive The Highlands on the East Side
legislation and municipal action. Director of the state Alzheimer's September 18, 5:00-6:30pm
(Dates listed) Association, RI Chapter. Scituate Senior Center
September 24, 5:30 pm-7:30pm
Coffee with Congress will take Local Rhode Islanders and their Highlands on the East Side
place on August 19 at Warwick caregivers affected by the disease September 26, 6:00 pm-7:00 pm
Cranston Senior Center
Library at 10 am. The public will will be able to share their stories with
October 10, 1:00 pm-3:00 pm
have the chance to talk to our legislators and state officials.The
Lincoln Senior Center
congressional delegation about town hall meetings and The Coffee
October 16, 5:00 pm-7:00 pm
with Congress event will give those Rogers Free Library
affected by the disease a chance to October 22,1:00 pm-3:00 pm
be heard. South Kingstown Senior Center
October 29, 5:00-7:00 pm
"When you think about the economic North Providence Union Free Library
impact and statistics of this disease, November 4, 6:30 pm-8:30 pm
our healthcare costs are rather West Warwick Library
November 7, 5:00 pm-7:00 pm
enormous. This is an urgent health
Woonsocket Harris Library
priority to end this disease. It is a
November 19, 6:30 pm-8:30 pm
burden on families and if it goes
Warwick Central Library
Congressman David Cicilline at the
unnoticed it will crush our healthcare December 5, 8:30-10:00 am
2018 Coffee with Congress system," said Congressman Cicilline Evergreen House Health Center
during a previous town hall meeting. December 5, 5:00 pm-7:00 pm
Adams Library
Youc can register for these meetings at communityresourcefinder.org or call our 24/7 helpline at 1-800-272-3900Memories Of The Speakeasy
Silent Auction and Dinner
On May 31, the Alzheimer's Association held the Memories of the
Speakeasy silent auction and dinner at Roger Williams Park Casino to
honor the 23,000 Rhode Islanders who are currently living with
Alzheimer's and their 53,000 caretakers.
Guests enjoyed a lively evening of dinner, dancing, and gambling! The
evening included music by The Drama Kings. Tony Petrarca, Chief
Meteorologist for WPRI-TV, hosted, and guests had the opportunity to
enter a raffle for a 7-night, all inclusive vacation to St. James Club in St.
Lucia!
Since its inception in 2003, the annual auction has raised close to a
half-million dollars to support the Association’s programs, services,
advocacy efforts and research. The annual auction is a powerful
evening that brings us together, shapes our memories and empowers
our community as we imagine a world without Alzheimer’s.
2019 Annual Culinary Challenge Date Announced
Rhode Island chefs from assisted living communities and
nursing homes put their culinary skills to the test last
November at the Alzheimer's Association's annual Culinary
Challenge.
Chef Cynthia Strode of the Villa at St. Antoine went home
with both "Best Display" and "People's Choice" awards.
Meanwhile "Best Taste" went to chef Alex DeAmicis of
Tockwotton on the Waterfront. The judging panel consisted
of Chef Gary Comella of the University Club, Jamie Coelho
of RI Monthly and Chef Frank Terranova of NBC 10's
Sunday Brunch.
This year's Culinary Challenge will once again take place at
Rhodes on the Pawtuxet in Cranston. The event will be held
Chef Alex DeAmicis and staff on Wednesday, November 13th, 2019. There is room for
Chef Cynthia Strode, Development
members from Tockwotton on the more chefs to compete! If you have interest or would like to Director Kate Spinella, and
Waterfront nominate your Community's chef, please contact Bella Executive Director of St. Antoine's
Garcia of the Alzheimer's Association at agarcia@alz.org or Tammy Summiel
by phone, 401-421-0008. Tickets are $35.00 each and can
be purchased at alz.org/ri/events.City of Cranston Teams Up With The
Alzheimer's Association
On June 13, the city of Cranston and the Alzheimer’s Association of Rhode
Island kicked off Alzheimer’s Awareness Month at the Cranston Senior
Enrichment Center. The Cranston Senior Enrichment Center and the Hope
Alzheimer’s Center have partnered with the Alzheimer’s Association of Rhode
Island and have announced the work being done in the city and statewide to
support those impacted by Alzheimer’s disease and to create awareness as well
as education.
Mayor Allan Fung spoke of the work being done by the city government to make
Cranston a better place for citizens suffering from Alzheimer’s and their
caregivers. “I am signing an executive order requesting our department of senior
services to designate a plan to make Cranston a dementia friendly community.”
said Fung. The speech concluded with the sharing of a proclamation that
declared that within the City of Cranston, June was Alzheimer’s awareness
month.
“We are proud to be partnering with the city of Cranston and the Cranston
Senior Services Center to provide educational programming and workshops to
help individuals with the disease and their caregivers to gain more knowledge
and help provide resources for them in their journey,” said Donna M. McGowan
of the Alzheimer's Association. Donna expressed her hope that we can take the
model Cranston has set and roll it out to other cities and towns. “Let the city of
Cranston and the work being done and the staff in the Cranston Senior Services
Center be an example of how cities and towns can work with organizations like
ours to provide programming and awareness.”
Other speakers included Ellen Grezzetti, President and
CEO of the Hope Alzheimer’s Center, and Alzheimer’s
Association volunteer Denise Lefaiver. Ellen Grezzeti
spoke about what the Hope Center has to offer and
how helpful their services can be to those with
Alzheimer’s as well as their caregivers. Denise shared
her own experience as a caregiver to her mother and
how helpful the Senior Center was to them. She then
expressed how helpful resources such as the Hope
Center and the Alzheimer’s Association are to
caregivers such as herself.VOLUNTEER WITH US! Volunteers are needed to provide ongoing support for our mission, facilitate and lead programs, join event and other planning committees. Please visit us at volunteer.alz.org to learn about current volunteer opportunities. Volunteer for the Alzheimer's Association and become a part of an incredible team! Areas of need include Education and other Programs, Special Events, Advocacy, Media and Communications. Ready to join and see how your efforts will make a meaningful impact? Contact Jennifer Atkinson at jratkinson@alz.org or 1-800-272- 3900.
NONPROFIT ORG
Rhode Island Chapter
U.S. POSTAGE PAID
245 Waterman Street, Suite 306 PROVIDENCE, RI
PERMIT NO. 2484
Providence, RI 02906
24/7 Helpline
For more information call
1-800-272-3900 or 1-401-421-0008
or visit www.alz.org/ri
Current Resident Or:
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