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VOL. 52 | APRIL 2020
THE TRANSMITTER
_________________________________________________________________________________________________________________
The Newsletter for HeadWay Victoria's Parkinson's Centre
Parkinson's Awareness Month
Headway - Victoria
Please join us in raising
funds to help those Parkinson's Centre is your
living with Parkinson's local HUB for our Parkinson's
on Vancouver Island community. We were
established in 1982 and feel
privileged to be part of this
community providing
support, care and knowledge
to over 1000 people.
OVERVIEW For more information about
A message from the Executive Director Headway, the services we
A message from the Parkinson's Client and Family Care Manager provide, or Parkinson's please
Financial Planning with RDSP by Mike Reilly, B.Sc., CHS
Power at your Fingertips
contact Madelaine Ross at
Townhall Q&A parkinsons@vepc.bc.ca or call
In the Community 250-475-6677
Parkinson's Awareness Month
In Memoriam
PAGE 2 VOLUME 52
Dear HeadWay Family,
I hope you are keeping well during these strange and unsettling times. We
A Message
are all in this together and we will get through this together.
Even though we had to close our doors at the office on Oak Bay Avenue
from our during the Covid-19 Pandemic, Madelaine, Kayla and I continue to work
remotely to be here for you, our values clients and donors.
Executive We have been focusing on outreach and checking in with clients to make
sure people feel supported. It's never been more important to pick up the
phone and check in with a friend or neighbour as it is now. Thanks to those
Director of you who have offered and are volunteering to contact clients and
caregivers.
MIRA LAURENCE Perhaps some of you have been keeping in touch with friends and fgamily
Covid-19 Update through the use of technology. The HeadWay staff has been meeting using
ZOOM on our computers, it's refreshing to see the ladies faces while we
physically distance. We are looking at using technology to set up support
group meetings in the near future. We are going to make it easy for those
who wish to participate. Watch for more on that coming soon.
I would like to share a feel good story with you. Covid-19 has caused the
cancellation of many things in the world, including the 28th Annual
HeadWay Charity Golf Classic which was scheduled for June 4, 2020 . As
most of you know, that is our biggest fundraiser of the year and vital to our
organization. For almost 3 decades our friends at Peninsula Co-op have
been the Presenting Sponsor of the event with a generous amount of
money, this year was no different. Rather than ask for the money to be
returned due to the cancellation fo the tournament, Peninsula Co-op has
insisted we keep the $15,000 as a donation for us to continue our work.
AMAZING! A sincere thank you to Peninsula Co-op and their continued
generosity.
Lindsay Gaudette, Marketing and Community Relations Manager had this
to say, "In these uncertain times, it's important that those who can support
continue to do so. Peninsula Co-op is and always has been committed to
giving back and now is no exception."
We will be reaching out to other sponsors and golf tournament supporters
to see if they want to follow Peninsula Co-op's lead and help us at this time.
We will also be doing an online auction where donors will have an opportunity to win great prizes including the grand prize of a
trip for 2 anywhere WestJet flies. More information will come in an e-blast in May.
If you are able to support us financially at this time, we certainly appreciate it. No gift is too small. In the meantime, we will
continue to work and keep our "virtual doors" and phone lines open to you all.
Please reach out to one another, reach out to us and most of all - stay safe.
See you soon,
Mira
PAGE 3 VOLUME 52
The current public health precautions in place to reduce risks for Covid-19
have impacted everyone. People are meeting the challenge by staying home
while reaching out.
A Message
Over the past weeks HeadWay staff have been working out of
the office and we appreciate your patience as we work out the technical
from our
issues of connecting remotely. Somehow it is not quite the same as chatting
over a cup of coffee and we miss you. Don’t be surprised if you hear from
us over the coming weeks. Staff and volunteers are reaching out with
Parkinson's
support calls in the absence of support groups and in-person contacts. We
are just checking in to see how you are. So far people have been coping well
despite the challenges of social distancing. People are using videos to help
Client and
maintain their exercises, catching up with family on the phone or video
chatting on Skype, Zoom and FaceTime. Some people are supporting other Family Care
Manger
people in their support group, or volunteering to touch base on the phone
and at least one care partner is thoughtfully sewing masks.
Finding ways to stay busy and connected while staying home can also be an
effective way to help reduce the anxiety resulting from living in times of MADELAINE ROSS
uncertainty.
Finn and I would like to thank you for supporting yourselves and each other
and let you know that we are just an email away.
Resources -
If you think you have symptoms use the self assessment tool below.
Health Link BC - dial 811 to access the BC Nurse line if you have specific
health questions.
There are additional Parkinson’s Disease related information at
Parkinson’s Society BC
https://www.parkinson.bc.ca/covidresources
The Ministry for Seniors Health BC has launched a services to support
people over 65 living at home BC211 you can call or connect on the website
at http://www.bc211.ca
If you need any of the services listed to stay safe at home:
- Grocery shopping and delivery
- Meal preparation and delivery
- Prescription pickup and delivery
- Phone and/or virtual friendly visits
For more information on COVID- 19
BC Centre for Disease Control
BC COVID-19 Self-Assessment Tool
Canada's COVID-19 Economic Response Plan
COVID-19 Hotline: Call 1-888-COVID19
for non-medical information.
HealthLink BC: Call 8-1-1 to talk to a nurse for guidance and advice.
Public Health Agency of Canada
PAGE 4 VOLUME 52
Financial Planning
With RDSP by Mike Reilly, B.Sc., CHS
Headway asked Mike Reilly to Anyone can contribute to
talk about financial planning an RDSP with the written
with RDSPs. Here is what he consent of the account
has to say to our Parkinson's holder.
community: The total lifetime
contribution for each
Registered Disability beneficiary is $200,000, with
Savings Plans no annual contribution
Building financial Security for limits.
Canadians with disabilities
Contributions can be
Many families worry how loved matched based on family
ones with disabilities will be net income, with up to
cared for in future years. $3,500 a year in Canada
Thanks to the RDSP and Disability Savings Grants
generous federal grants and (CDSG) and up to $1,000 a
bonds, it's now easier for year in Canada Disability
people with disabilities to save Savings Bonds (CDSB).
for their long-term financial The money you contribute
security. In addition to your grows tax free.
own contributions, the Savings and withdrawals do
Canadian government can help not affect federal and
provincial income-tested
you save by adding up to
benefits.
$4,500 each year to the
Carry forward on CDSG and
amount you contribute. The
CDSB is available back 10
sooner you start saving, the
years or to date of
earlier you can start building
"A big part of financial long-term financial security.
diagnosis.
freedom is having your Who qualifies for an RDSP? You
Since RDSP was launched in
2008, carry forward can go
qualify to be an RDSP
heart and mind free beneficiary if you are a
back to then. The maximum
grant some one can receive in
recipient of the Disability Tax
from worry about the Credit, a resident of Canada,
a year is $10,500 and the
maximum bond is $11,000.
less than age 60 and have a
what-ifs of life." valid Social Insurance Number.
Many people are concerned
- Suze Orman Why are RDSP's a good way to
that they won't benefit from an
RDSP if they have low (or no)
save? RDSP's area good way to
income. However, because of
save because:
the CDSB, it is possible to have
Continued...
PAGE 5 VOLUME 52
Continued...
funds deposited even without products, including segregated
any contributions by the fund policies, are offered
subscriber. Here's an example through Freedom 55 Financial,
As sure as the spring of how your money can grow: and Mike Reilly offerds mutual
funds through Quadrus
will follow the Jack, whose family net income is
less than $26,364 a year, opens
Investment Services Ltd.
winter, prosperity and an RDSP at age 19 and
contributes $1,500 a year until
The information provided is
based on current laws,
economic growth will he is age 49. He invests the regulations and other rules
money in a balanced mutual applicable to Canadian
follow recession. fund that returns 5.5% annually. residents. It is accuarate to the
Even though his annual nest of our knowledge as of the
- Bo Bennett contributions only total $46,500 date of publication. Rules and
($.1.500 x 31 years), when those their interpretation may change,
contributions are combined affecting the accuracy of the
with CDSG and CDSB, by age 50 information. the information
Jack will have accumulated provided is general in nature,
$398,891. and should not be relied upon
as a substitute for advice in any
You must begin withdrawing specific situation. For specific
funds from your RDSP by the situations, advice should be
end of the year you turn 60. You obtained from the appropriate
may withdraw funds earlier but legal, accounting, tax or other
be sure to note that once you professional advisors.
I believe that make a withdrawal of any
amount, you must repay $3 Mike Reilly, B.Sc., CHS
through knowledge worth of federal grants and
bonds pain into the
Financial Security Advisor and
Investment Representative
and discipline, RDSP in the previous 10 years
for every $1 withdrawn.
Freedom 55 Financial &
Quadrus Investment Services
financial peace is Withdrawals consist of non-
taxable contributions, taxable
Ltd.
2830 Aldwynd Rd, Victoria BC
possible for all of us. government monies and taxable
growth.
V9B 2X1
t: 250-516-5758
- Dave Ramsey Contact a licensed professional
www.mikereilly.ca
financial advisor to see if you
qualify and how an RDSP may
benefit your future. Mortgage
referrals and insurance
PAGE 6
VOLUME 52
raised above the heart - which in turn puts
your back and spine into the correct resting
position.
Relieving stress on the lower back reduces or
Power at Your Fingertips eliminates disc compression. Along with
improving lung capacity and circulation,
For people with mobility issues, the thought of individuals living with respiratory issues such
getting up and out of a chair can be daunting. as COPD can benefit from sleeping with the
Power lift chairs are an affordable and beneficial slightly raised backrest.
way to help your loved ones maintain their
independence, while quite literally giving them a lift. Whether you love to read, knit or nap,
entertaining friends, watching TV and gaming
Lift chairs gently help you get to a standing position with the family will be that much more
or gradually descend to a comfortable sitting enjoyable in your comfortable power lift chair
position of your choice. The added feature of a from Dodd's Furniture and Mattress.
powerful electric motor located in its base, is
connected to hand controls which allow users to Sincerely,
manage the speed and angle of the lifting
mechanism. They also have the look and feel of
regular recliners, thus blend in to your existing Gordy Dodd
decor quite nicely. 715 Finalayson Street, Victoria
4900 Wellington Road, Nanaimo
While you may wish to surprise someone, it's best 852 - 12th Avenue, Campbell River
to bring them in-store for a test drive. Dodd's www.doddsfurniture.com
Furniture & Mattress has a variety of styles with a
wide range of fabrics, colours and features to
choose from. Based on ones individual mobility,
things to consider include: The number of positions
the chair offers, specialty features such as heat and
or/massage, and how and where the chair will fit in
the home.
A critical consideration is the weight and height of
the individual. While most power lift chairs can
support over 300 pounds, a person's height is of
equal importance. Height determines the distance
the chair needs to lift of the ground, to facilitate and
safe and pain-free exit.
You may also want to check out one of Dodd's Zero
Gravity Chairs. Developed by NASA, zero gravity is
one of the best ways to relieve back and neck pain.
When reclined, the legs are
PAGE 7 VOLUME 52
Q&A
From the Townhall Meeting held on
March 2, 2020
Q #1 - I would like to see all three organizations merge
(HeadWay, PWP, and PSBC. This would reduce confusion
for donors trying to determine where to best donate
funds.
A- Regardless of how the organizations are structured, we
want to have close relationships between the
organizations so that clients ultimately benefit. This is
very important, and we believe that all three
organizations agree on this goal.
Q #2 - Why did PWP choose not to be a part of these merger
discussions (between PSBC and HeadWay)?
A- To clarify, both PWP and PSBC presented proposals to HeadWay, and after much deliberation, the
board felt that HeadWay's services are more closely aligned with PSBC. Working more closely with
PWP is something we feel can be looked at further down the road.
Q #3 - Won't there be a duplication of services between PWP and HeadWay? PWP is planning to expand
their services to include information sessions, and support groups for example?
A- We felt that the alignment of HeadWay's services with PSBC made sense, and given the financial
stability of PSBC, would ensure the longevity of service delivery in the community.
Q #4 - Will HeadWay still remain a physical presence in Victoria?
A- We can indeed confirm that a physical location will be maintained, but it's too early to say where it
will be located. We recognize that the current location is not ideal for accessibility reasons.
Q #5 - Is there a comittment to continue with current services?
A- Yes, current services will remain supported as-is, and the expectation is that services will expand in
the future. After some time, the HeadWay brand will be retired to eliminate confusion between
organizations, but it's too early to say when that will occur.
Q #6 - Will PSBC retain a board member (or members) from Victoria?
A- When recruiting board members, PSBC seeks skills and knowledge that will help to achieve the
organization's strategic plan; it's not based on geographical location.
Continued...
PAGE 8 VOLUME 52
Continued...
Q #7 - Will there be a loss of HeadWay staff?
A- The Executive Director role is considered interim; and the
support staff role is to be determined. It is the intent of both
organizations to be open and transparent in communication
moving forward.
Q #8 - Do you know the timeline for this potential merger?
A- While it is too soon to say as PSBC is currently doing their due
diligence, it is our intention to honour our existing community
comittments, e.g. partnerships with businesses.
Q #9 - Do we expect to improve services?
A- Yes, PSBC's strategy is always to increase impact and reach,
and as such, is always doing assessments.
Are you making the most out of your grocery shopping?
Most grocery stores are now dedicating the
first two opening hours to senior and/or disabled people for a low
stress shopping environment and to also ensure that the products you
need will likely still be in stock. If you are able, please try to do
your shopping within these times. It is a good idea to call your store
of choice before heading out as hours, store closures and availability
of items is changing every day.
PAGE 9 VOLUME 52
In the Community
Ballet Victoria
Thanks to the generous support of the Victoria Foundation, a new
community dance program will be offered at Ballet Victoria (date to
be announced). BV Dance with Parkinson's Program © Dancing
introduces new possibilities for individuals with Parkinson's PD.
Dance for PD® improves strength, flexibility, fluidity of movement,
stamina and balance. Dancing with music also enhances gait fluidity
and balance, as well as reduces the risk of falls. The social aspect of
dancing stimulates conversation and thinking. It brings about a
sense of community and belonging. Our facility offers a wheelchair
accesible studio and portable ballet barres, which allow individuals with varying levels of mobility to attend.
Additional seating is available for caregivers and volunteers to partake. The Program Classes start with warm-
up exercises on a seated position. Depending on individual choice or ability, one dances standing or sitting.
Volunteers and caregiver participation is encouraged. The experience - social interaction, expression and fun -
is uplifting and inspiring for everyone involved. When the energency orders are lifted, classes will be on
Tuesdays at Ballet Victoria, ground floor studio at 12:15PM to 1:30PM, 643 Broughton Street. Parking: A
passenger drop-off spot is available at the front door. For special parking needs, please call 250-380-6063.
Accessibility: A wheelchair ramp and accessible washrooms are available. Attire: Please wear comfortable
clothing and socks or bare feet. Refreshments: Water and cookies are provided. Price: By donation. Please
contact the BC office to register: 250-380-6063.
Alf Todd's Ride
Alf Todd is an expert on Parkinson's disease. His journey with
Parkinson's began when he was diagnosed back in 2007. He will be
the first one to say that living with Parkinson's isn't easy but a
supportive wife, his children, staying positive, having goals and
helping others keep him going. He also loves to cycle. In 2012 he
cycles from Victoira to San Francisco, a , kilometer trip for
Parkinson's. Over the past decade, Alf has completed a number of
fundraising rides to Parkinson's research and HeadWay. This
summer he expects to be on the road again with plans for a 1 day
200k ride from Victoria to Sproat Lake with a goal to double his
2019 fundraising ride. One of his other goals was ro design a cycle that doesn't require balance. He and
his partner Jeff have done just that with the Parky Peddlar (pictured here) which is now available by order.
PAGE 10 VOLUME 52
Education and Support
Groups
The absence of educational sessions and support groups has been
on our minds here at HeadWay and we hope to come up with a
solution during these unprecedented times. Currently we are
testing out a way to do virtual support groups. Stay tunes and
watch out for the next e-blast with more information on that!
Thank you!
Thank you to the staff at Elements Casino for selecting HeadWay as
your charity of choice in February. Your donation helps support
services to people throughout their journey living with Parkinson's
Disease.
Staying Active
Victoria and surrounding area residents are so fortunate to have
many outdoor spaces to go for walks, see the sights and soak up
the sun. Taking a break from being inside for a short walk is very
beneficial for mood and exercise. Just be sure to practice safe and
proper social distancing. Feel free to take pictures of the beautiful
scenery and email them to help@vepc.bc.ca for a chance to have
them featured in our bi-weekly e-blasts. The picture on the right of
the peacocks is credit to our own Madelaine Ross while she
ventured to Beacon Hill Park.PAGE 11 VOLUME 52
Parkinson's Awareness
Month
Coming Together for a Cause
During the month of April, all around the world communities come
together to bring awareness to Parkinson's Disease. How? You may ask...
One of the biggest ways you can show support is to take to your social
media using hashtags such as #parkinsons, #parkinsonsawareness,
#worldparkinsonsday. Doing this adds internet traffic to these pages which
results in people learning about Parkinson's Disease and even choosing to
donate to organizations like HeadWay and research centres.
Our friends at Country Grocer are offering Masterpiece boxes of
chocolates and Island Grown bouquets with $2 from each benefiting
HeadWay and our Parkinson's community for the entire month of April,
2020. We appreciate Country Grocer's continued support in helping us
with our fundraising efforts.
HeadWay strives to bring awareness throughout the year, not just the
month and we will continue to do so. You are all on our minds and in our
hearts.
Did you know that we are
Peninsula Co-op Members?
Peninsula Co-op is proud to support local community
projects and organizations. Anyone can use the following
number at the pump or in stores to help raise money for
HeadWay!
Member Number: 0086105
Member: HEADWAY - VEPC"What we once have enjoyed we
can never lose. All that we love
deeply becomes part of us"
- Helen Keller
PARKINSON'S
COMMUNITY
IN MEMORIAM
Mary Nemes
Jean Eves
William Romain
Joe Slater
Gerald Feltham
REMEMBERING PADDI WOOD
Don Jackson
Paddi Wood touched many lives in the Parkinson's Dave Cutler
community during her journey with Parkinson's
Disease.
Paddi Wood
Paddi was passionate about exercise and
connecting with others. She stayed active at the
Parkinson's Wellness Project and was generous in
sharing her experience with Parkinson's. In 2017,
Paddi became the face of a provincial movement to
provide access to duodopa therapy, a life-altering
treatment for advancing symptoms of Parkinson's.
Paddi and her amazing family were always "May you touch Dragonflies and stars,
supporting local non-profit fundraising activities.
whether it be the Parkinson's Society of BC Super Dance with fairies,
Walk, community conferences, or HeadWay events
and support groups, you could always count on the And talk to the moon"
Wood's to be there.
- Unknown
Paddi lived life tenaciously with a sense of humour
and a commitment to improving lives of people
living with Parkinson's.
It is with great sadness that we offer our deepest
condolences to her husband Brian, daughters Kate
and Jen, and other family members on thier loss.Our newsletter and education meetings provide a range of
information which does not necessarily reflect the views of our
agency. Please use your discrection and consult your physician.
Canadian Mail Publications Agreement #40050532
Return Undeliverable Canadian Addresses to:
Victoria Parkinson's Centre Society
202 - 1640 Oak Bay Avenue, Victoria BC V8R 1B2
For more infortmation on how to
make a donation, please contact us
by phone: 250-475-6677
or email: help@vepc.bc.ca
Victoria Parkinson's Centre
www.headwayvictoria.comYou can also read
