IMAP Statement on Abortion Self-Care - IPPF

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IMAP Statement on Abortion Self-Care - IPPF
June 2021

IMAP Statement
on Abortion Self-Care

Introduction                                                                   care, away from a medicalized and provider-
This statement has been prepared by the                                        led approach, within a people-centred model
International Medical Advisory Panel (IMAP) and                                which empowers individuals and is supported
was approved in May 2021.                                                      by community collectives and social networks,
                                                                               however still backed-up by the healthcare system
This statement supports IPPF’s commitment to                                   whenever needed or required. This statement
improving access to abortion care for all and                                  also serves as an advocacy tool to create an
to creating a supportive social, policy, and legal                             enabling environment for abortion self-care.
environment for abortion by offering guidance
and information on abortion self-care. This
is an evidence-based approach that enables                                     Understanding abortion self-care
women, girls, and all people who have the                                      Broadly speaking, self-care encompasses“the
capacity to become pregnant1 to realize their                                  ability of individuals, families and communities
sexual and reproductive rights, prevent mortality                              to promote health, prevent disease, maintain
and morbidity associated with unsafe abortion,                                 health, and to cope with illness and disability
and overcome coercive legal restrictions and                                   with or without the support of a healthcare
inadequate health systems, while simultaneously                                provider”.i Self-care is not a new concept, nor
challenging harmful social norms and patriarchal                               does it apply exclusively to abortion. Health
structures.                                                                    workers and health experts have been promoting
                                                                               and encouraging this approach for decades, and
Guided by the existing evidence and                                            even more so as technology increasingly supports
practices, this statement provides practical                                   more straightforward access to information,
recommendations for IPPF Member Associations                                   enabling individuals to make informed decisions
and other sexual and reproductive health                                       about their health and take control over
stakeholders on how to manage abortion                                         implementing specific health tasks.

1
    This document is inclusive of women and girls and all people who can become pregnant, including intersex people, transgender men and boys, and
people with other gender identities that may have the reproductive capacity to become pregnant and have abortions. For the purposes of this document,
references to “women and girls” refer to all people who have the capacity to become pregnant.
                                                                                                                                                     1
IMAP Statement on abortion self-care

  In the field of abortion, there is not a single                                     non-discrimination, information, and the right
  way of defining self-care, yet, it is essential to                                  to enjoy the benefit of scientific progress.iii
  acknowledge that many stakeholders associate                                    ƒ   People-centred: Providing options relevant to
  the concept primarily to self-administration of                                     the individual’s needs, preferences, and lived
  medical abortion. With the increasing access to                                     experiences supports people’s self-efficacy to
  highly sensitive pregnancy tests and availability                                   control their lives and decisions and tackle
  of simple, safe, highly-effective abortion                                          abortion stigma and the silencing that comes
  pills (misoprostol alone or mifepristone and                                        with it.
  misoprostol combined), more and more women                                      ƒ   Gender transformative: Every woman and
  and girls have the option of safely and effectively                                 girl has the right to abortion, in a manner
  ending a pregnancy with or without the                                              that respects their rights, autonomy, dignity,
  involvement of a health provider.ii                                                 and needs, taking their lived experiences
                                                                                      and circumstances into account, placing
                                                                                      the individual at the centre, enhancing
                                                                                      their decision-making and control over their
IPPF understands abortion                                                             lives, and challenging gender norms, roles,
self-care as the right of women and                                                   and stereotypes that stigmatize women’s
girls to lead, in part or entirely, their                                             reproductive autonomy.iv
abortion process, with or without                                                 ƒ   Inclusiveness: All individuals who may need
                                                                                      an abortion must have access to care that
support from health providers2
                                                                                      considers their unique needs, irrespective of
                                                                                      visible or invisible differences.
                                                                                  ƒ   Equity in health: All efforts should be made
                                                                                      to address avoidable and unjust differences
  This usually includes the self-administration of                                    in exposure to health risk factors, health
  medical abortion, but could also mean being in                                      outcomes and their social and economic
  charge of other aspects of the abortion process,                                    consequences, healthcare access, and capacity
  such as the post-abortion care or the decision of                                   to finance care.v
  engaging (or not) other stakeholders throughout                                 ƒ   Quality: Care delivered should be in line with
  the process (i.e., abortion doulas;3 peers;                                         the available evidence and the needs, values,
  pharmacists).                                                                       and preferences of the clients, free of stigma
                                                                                      and with compassion and empathy.
  Abortion self-care is underpinned by the
  following principles:                                                           Abortion self-care places women and girls firmly
                                                                                  at the centre of the abortion process, as the
  ƒ Rights-based: Bodily integrity and autonomy                                   key decision makers in control of their bodies.
    is a fundamental human right, central to                                      However, multiple stakeholders can also play a
    sexual rights and gender and reproductive                                     role in enabling and facilitating this approach,
    justice. People’s right to make autonomous                                    by acting on three components of support for
    decisions about their own bodies and                                          abortion self-care: a. Delivery of accurate and
    reproductive functions, is at the core of their                               accessible information; b. Access to quality
    fundamental rights to life, health, equality and                              and affordable medication; and c. Provision of
                                                                                  supportive care:vi

  2
   Individuals who face spontaneous abortions, incomplete abortion, and intrauterine foetal demise may also decide to lead – when considered safe and
  based on the specificities of the case – parts of the abortion process.
  3
   Individuals trained to provide emotional, physical, and informational support, free of stigma, during and after an abortion procedure.
                                                                                                                                                        2
IMAP Statement on abortion self-care

                                                     ƒ Women and girls have access to quality
                                                       medical abortion pills, either misoprostol
                                                       alone or a combipack of mifepristone and
                                                       misoprostol.
                                                     ƒ Women and girls have the conditions to
                                                       implement the abortion with the desired level
                                                       of privacy.

                                                         The World Health Organization
                                                         recommends that up to 12 weeks
                                                         gestation, individuals can self-
                                                         administer mifepristone and
                                                         misoprostol medication without
                                                         the direct supervision of a health
                                                         provider.viii

                                                     An important condition for safety of self-
                                                     induced abortion is the ability to self-determine
Abortion self-care: safe, effective, wanted!         gestational age. Evidence has shown that
Emerging research suggests that abortion outside     women, in different contexts, geographies,
the medical setting is an overall safe, effective,   socio-economic, and educational levels, are
and wanted way to end a pregnancy.                   reasonably good at estimating gestational age
                                                     based on their last menstrual period (LMP),
Safety                                               without the need for a physical examination or
The safest environment for self-managed              an ultrasound.ix Some women in specific personal
abortion is one where:                               or medical conditions may have challenges
                                                     estimating gestational age, in which case they
ƒ Women and girls’ health literacy is supported.     may benefit from clinic or laboratory support.
  That is, their capacity to obtain, process,
  and understand evidence-based health                Recommended resources: for more information on
  information, explore their options, ask critical    the evidence supporting self-administered medical abortion and
  questions about their choices, and actively         protocols, see the following WHO guidelines:
  participate in decisions and tasks concerning
  their care.                                            •   Health worker roles in providing safe abortion care
ƒ Medical care is accessible when chosen and                 and post-abortion contraception https://www.who.
  needed, with referral mechanisms in place for              int/reproductivehealth/publications/unsafe_abortion/
  women to access in-clinic care, including in               abortion-task-shifting/en/
  case of complications or for complementary             •   Medical Management of Abortion https://www.who.int/
  services.vii                                               reproductivehealth/publications/medical-management-
                                                             abortion/en/

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IMAP Statement on abortion self-care

Effectiveness                                        information on how to safely self-manage
The statement is aimed at service providers,         an abortion — are deeply appreciated
advocates, programme staff, managers and             by women who self-administer medical
volunteers in IPPF Member Associations and           abortion and may provide the technical
the secretariat, and other SRHR and women’s          information and emotional support that can
organizations.                                       ensure safe, complete abortions with few
                                                     or no complications.xv Similarly, research has
A recent systematic scoping review of peer           found that community-based distribution of
reviewed research found that studies reporting       misoprostol – which enables abortion self-care
on self-managed medication abortion reported         – can safely and effectively support abortion
high-levels of effectiveness.x                       care.xvi

The effectiveness of specific self-care abortion
interventions has also been documented by
                                                     Abortion hotlines and websites
recent studies:
                                                     have been shown to be highly
ƒ Most women and girls who self-manage their         effective in facilitating self-
  abortions facilitated through pharmacies           managed abortions, as most
  report high effectiveness without surgical         women do not present any
  interventions and are willing to use this
                                                     complications nor require surgical
  service again if need be. The challenge with
  this model is with regard to the quality of        intervention after taking the
  the information provided by pharmacists,           abortion pills. These information
  especially related to timing and dosing of the     hubs have proved to have a positive
  medication (usually, misoprostol). Therefore,      impact on access to safe abortion
  more work needs to be done in terms of
                                                     for women, both in legal as well as
  equipping pharmacists and drug sellers with
  the correct information.xi xii                     in legally restricted contexts.xvii
ƒ A study conducted in Uruguay showed that
  services provided under a model known as
  “the harm reduction model” – in which            Often, a wanted alternative
  providers offer evidence and rights-based        Evidence suggests that in some settings as much
  information and care before and after an         as 70% or 80% of abortions are self-managed.xviii
  abortion, to the extent allowed by the           In legally or socially restrictive settings, or for
  law, and women and girls self-manage the         those living in humanitarian settings, abortion
  procedure itself, in other words, taking the     self-care may not always be the preferred option,
  abortion pills – contributed to a reduction      but the only available option.
  in maternal mortality.xiii A study conducted
  at the Buguruni Health Centre in Tanzania –      A robust body of qualitative studies show that
  which adapted the harm reduction model to        abortion self-care is often a wanted alternative
  the local context – showed that these type       for some women; because it is affordable, it
  of services are feasible and acceptable, and     implies reduced transportation needs, ease of
  could provide an opportunity to reduce unsafe    scheduling, earlier intervention in the pregnancy,
  abortion.xiv                                     privacy, reduced stigma, sense of control,
ƒ Research also indicates that accompaniment       comfort, and easier access for people with
  groups – networks of activists/volunteers/       restricted mobility (e.g. from refugees to people
  peers which provide people with step-by-step     with disabilities).xix xx xxi xxii

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IMAP Statement on abortion self-care

What abortion self-care is not                          Recommendations for Member
ƒ Abortion self-care is not an approach that            Associations and other organizations on
  removes the duty of care away from the                how to support abortion self-care
  formal health system. The formal health
  system must facilitate access to information,         1. Transform policy and legislation to create an
  services, commodities, and referrals, as              enabling environment for abortion self-care as
  needed and wanted, within the national legal          part of a supportive health system for abortion
  and policy framework.                                 care.
ƒ Abortion self-care is not an approach driven          ƒ Advocate with governments to remove
  by the aim of reducing costs for the health               abortion from the penal code and end criminal
  system. While it is true that studies on self-            penalties for women who self-manage their
  care interventions highlight their potential              abortion process.
  to save resources both for users and the              ƒ Advocate to ensure that national regulations
  healthcare system,xxiii abortion self-care should         and guidelines explicitly integrate self-
  be strongly guided by a people-centred                    managed abortion as a legitimate and
  approach and existing evidence on its safety              permissible pathway to abortion care.
  and effectiveness.                                    ƒ Work with governments to ensure the
ƒ Abortion self-care is not an approach that                availability and accessibility of quality medical
  undermines or eliminates advocacy efforts                 abortion products with the inclusion of
  to expand legal access to abortion. The                   mifepristone and misoprostol in policy and
  decriminalization of abortion is still essential to       service guidance documents, lists of essential
  ensure that all individuals can realize the right         medicines, and procurement catalogues.
  to a safe and dignified abortion, on their own        ƒ Advocate for medical abortion products to be
  terms and informed by the values and needs                free or subsidized for poor and marginalized
  most important to them, and to guarantee                  populations.
  that health workers can perform their duty of         ƒ Advocate for the withdrawal of unnecessary
  care without fear of prosecution.                         regulations on the provision of medical
ƒ Abortion self-care is not an approach limited             abortion products, and advocate for over-the-
  to legally restricted settings or humanitarian            counter sale of medical abortion drugs.
  settings. However, in such settings, it can           ƒ Work with governments to expand access
  play a significant role in increasing access,             to generic formulations of medical abortion
  reducing mortality and morbidity associated               products and promote public-sector availability
  to unsafe procedures, and transforming                    and competitive pricing in the private
  negative abortion narratives and stigma.                  marketplace, including innovations in retail-
  Even in contexts with legal, quality, and                 market options, such as bundling pregnancy
  comprehensive services widely available, some             tests and medical abortion products.xxii
  women and girls may prefer or need abortion           ƒ Advocate for eradicating censorship of
  self-care. A concrete example is in the context           online evidence-based abortion information
  of the COVID-19 pandemic, as women and                    to improve individuals’ ability to make safe
  girls have seen their mobility restricted,                choices in any place and any context.
  affecting their capacity to access facility-based     ƒ Advocate for the implementation of service
  abortion care.                                            delivery strategies that eliminate access
                                                            barriers for women and girls who decide
                                                            to involve health providers in the abortion
                                                            process. Self-care can be complemented with,

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IMAP Statement on abortion self-care

  for example, task sharing to mid-level health       ƒ Engage students of health-related professions
  workers or with telemedicine guided clinical or       in dialogues around self-care. This contributes
  emotional support, supervision, or counselling.       to long-term change, gradual transformation
                                                        of the provider-client relationship, and de-
2. Improve knowledge and attitudes around               medicalization of issues that, while health-
abortion self-care and catalyse sociocultural           related, have the potential to be managed
change by creating positive narratives and social       outside the health system.
movements to remove stigma.                           ƒ Educate the medical community about
ƒ Develop public campaigns to increase health           the safety and effectiveness of abortion
    literacy regarding abortion care and to inform      self-care, in order to reduce unnecessary
    individuals about their right to manage their       clinical concern, overmedicalization and
    care, based on the available evidence and           overtreatment of clients, and stigmatization
    within the restrictions of their legal context.     or criminalization of women seeking abortion
    Information should be made available in local       care.
    languages and in a format that supports           ƒ Support community engagement initiatives
    the needs/information-seeking practices of          that could help to build trust in the systems/
    overlooked populations, such as women with          structures that enable and facilitate abortion
    disabilities, refugees, indigenous women, and       self-care, i.e. work with community leaders
    sex workers, among others.                          and local media to ensure they are supportive
ƒ Develop positive messaging and narratives             of locally-led accompaniment groups.
    on abortion self-care, including response to      ƒ Participate in forums that aim to catalyse
    concerns or opposition to abortion self-care        sustainable social change for women and
    from a range of actors. This could include          normalize and facilitate abortion self-care.
    developing factsheets to address common
    myths and misconceptions, and using               3. Implement person-centred, on-demand models
    evidence and rights-based arguments to            of care that support and enable an individual
    counter opposition.                               throughout an abortion self-care experience.
ƒ Include content on agency, abortion self-           ƒ Through collaboration with legal experts,
    care, abortion stigma as part of evidence-            assess your legal framework to understand
    based comprehensive sexuality education               how the regulatory framework supports or
    programmes and outreach to young people.              restricts abortion self-care initiatives. Any
ƒ Implement participatory processes to                    restrictions should be understood in order to
    gather the stories of individuals who have            create risk mitigation strategies while, at the
    experienced abortion self-care, as well as of         same time, supporting women and girls in
    those who have played a role in enabling and          their abortion process.
    facilitating abortion self-care. Disseminate      ƒ Map existing interventions that enable or
    these stories in relevant spaces.                     limit abortion self-care in your geographical
ƒ Engage partner organizations, including                 areas of operation. Avoid duplication of
    feminist groups, professional bodies of               efforts by partnering with other like-minded
    health providers, and nursing and medical             stakeholders.
    institutions, to create a diverse network of      ƒ Review your organization’s existing
    champions for abortion self-care.                     strengths, initiatives, and models of care
ƒ Generate safe spaces for dialogue between               and consider how they can be adapted
    health workers and groups leading the                 to integrate components of support for
    conversation on and implementation of                 abortion self-care. For example, a strong
    abortion self-care, to discuss challenges and         network of community health workers could
    opportunities for collaboration.                      be leveraged to create an accompaniment

                                                                                                            6
IMAP Statement on abortion self-care

  network for abortion self-care. An existing          address other sexual and reproductive health
  hotline model or telemedicine service could          needs before, during, or after their abortion.
  be adapted to include a dedicated team             ƒ Collect data on the safety, effectiveness, and
  providing information and support for women          acceptability of self-care interventions to
  undertaking abortion self-care.                      improve programming and support advocacy
ƒ Based on the outcomes of mapping and                 efforts. This can include operational research
  assessment work, develop interventions to            on how to improve women’s experience of
  provide on-demand support for individuals            self-managed abortion, how to overcome
  who choose abortion self-care through                barriers and challenges to facilitating
  innovative approaches, considering the three         abortion self-care, and the contribution
  main components of support for self-care:            of abortion self-care to reducing abortion
  • Delivery of accurate and accessible                stigma, increasing self-efficacy, and catalysing
     information on abortion and, particularly,        sociocultural change.
     on medical abortion (dosage, regimen,
     contraindications, side effects, and
     signs of complications). Strategies may
                                                       Special consideration should be
     include hotlines, peer provision, websites,
     or referral to other reliable sources of          made when supporting abortion
     information and support.                          self-care to vulnerable groups,
  • Access to quality medical abortion pills.          including very young adolescents;
     Strategies may include digital prescriptions,     women with disabilities; sex
     partnership with pharmacists, and sending
                                                       workers; women subject to gender-
     pills by post or dispensed by community
     health workers.                                   based violence; transgender or
  • Providing supportive care during the               trans men; and women subject to
     self-care process. Strategies may include         human trafficking.
     adaptation of clinical protocols to ensure
     readiness to meet the needs of a woman at
     any point in her abortion process; provision
     of on-demand abortion counselling when          4. Recommendations on abortion self-care during
     requested; and setting up referral networks     the COVID-19 pandemic and humanitarian crises.
     in case of doubts or for treatment of           ƒ Ensure that supply chains that support
     complications, post-abortion care, or other        the distribution of abortion pills remain
     relevant services, as needed.                      operational.
ƒ Strengthen the capacity of your organization       ƒ Build alliances with humanitarian actors for
  to undertake abortion self-care programming.          the delivery of medical abortion supplies
  For example, update institutional policies and        and contraceptives, as well as accurate and
  guidelines on abortion to include self-care,          comprehensive information on the use of
  conduct values clarification exercises for staff      abortion pills.
  and volunteers at all levels to build support      ƒ Accelerate the development of digital
  and commitment for abortion self-care, and            initiatives focused on providing evidence-
  provide training for health providers on how          based information on abortion and
  to provide person-centred care for a woman            abortion-related services, to ensure women´s
  self-managing an abortion.                            reproductive choices are not undermined as a
ƒ Clinical, psychosocial, and protection services       result of circumstances that limit their mobility.
  must be available for vulnerable groups to

                                                                                                          7
IMAP Statement on abortion self-care

 Recommended resources                                              Mbizvo (Chair), Janet Meyers, and Professor
    •   Her in charge - Medical abortion and women’s lives - A      Hextan Yuen Sheung Ngan for their valuable and
        call for action https://www.ippf.org/resource/her-charge-   timely guidance and reviews offered during the
        medical-abortion-and-womens-lives-call-action               development process.
    •   IPPF’s Medical Abortion Commodities Database http://
        medab.org/                                                  Who we are
    •   Self-care interventions communications toolkit https://     The International Planned Parenthood Federation
        www.who.int/reproductivehealth/self-care-interventions/     (IPPF) is a global service provider and a leading
        WHO-Self-Care-SRHR-Comms_Kit.pdf                            advocate of sexual and reproductive health and
    •   WHO consolidated guideline on self-care interventions       rights for all. We are a worldwide movement
        for health: sexual and reproductive health and rights       of national organizations working with and for
        https://www.who.int/reproductivehealth/publications/        communities and individuals
        self-care-interventions/en/
    •   Evidence-based information websites: www.                   IPPF
        womenonweb.org, www.womenhelp.org, www.                     4 Newhams Row
        safe2choose.org.                                            London SE1 3UZ
                                                                    United Kingdom

IPPF, as a global service provider and leading                      tel: +44 20 7939 8200
advocate of sexual and reproductive health care,                    fax: +44 20 7939 8300
pledges to uphold its commitment to providing                       email: info@ippf.org
gender‑sensitive and rights‑based comprehensive                     www.ippf.org
abortion care to all, and to working in partnership
with others to ensure that the conditions and                       UK Registered Charity No. 229476
structures are in place to help women access safe
abortion in the way that works best for their lives.                Published June 2021

Acknowledgements
We would like to express our appreciation to
Marcela Rueda Gomez and Josephine Mugishagwe
from IWORDS Global and Rebecca Wilkins for
drafting this statement, and to Dr France Anne
Donnay, Professor Kristina Gemzell Danielsson,
Dr Raffaela Schiavon, Professor Oladapo Alabi
Ladipo, Professor Michael Mbizvo, and Professor
Hextan Yuen Sheung Ngan for providing technical
input and guidance as the lead reviewers. We are
also grateful to Seri Wendoh, Karthik Srinivasan,
Manuelle Hurwitz, IPPF Programme Directors and
other IPPF Member Association and Secretariat
colleagues for their input and review of this
document. Finally, we gratefully acknowledge
the support from IPPF’s International Medical
Advisory Panel (IMAP): Dr Ian Askew, Anneka
Knutsson, Dr France Anne Donnay, Professor
Kristina Gemzell Danielsson, Dr Raffaela Schiavon,
Professor Oladapo Alabi Ladipo, Professor Michael

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IMAP Statement on abortion self-care

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