WINTER 2019 January February March - Community Programs and Services - Alzheimer's Association
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Community Programs and Services
WINTER 2019
January • February • March
contents
Core Services................................................................4
General Information..................................................5
Education Descriptions...........................................6
Hispanic/Latino Programs....................................8
Special Programs and Events..............................9
Chemung County....................................................18
Livingston County...................................................20
Monroe County........................................................21
Ontario County.........................................................30
Orleans County.........................................................32
Schuyler County.......................................................33
Seneca County..........................................................34
Steuben County........................................................35
Wayne County...........................................................37
Yates County...............................................................38
Get easy online access to a comprehensive listing
of alzheimer’s and dementia resources,
community programs and services:
Programs and Events Medical Services
Housing Options Community Services
Care at Home Dementia Diagnosis Services
Start your search today at: www.alz.org
This edition's cover commemorates Bob Pettibone of Elmira who
participated in many of our programs with his wife Jeannette and who
passed away in November 2018.
2 24/7 Helpline 800-272-3900
The Generosity of These Major Funders
Allows Us to Continue Providing
Our Programs and Services
New York State Department of Health
Alzheimer’s Community Assistance Program
Caregiver Support Initiative
Underserved Caregiver Initiative
New York State Office for the Aging &
Monroe County Office for the Aging
New York Elder Caregiver Support Program (under Title III,
Part E of the Older Americans Act)
Community Services for the Elderly
New York State Office for People with
Developmental Disabilities
Assistive Supports Dementia Support Program
National Institutes of Health & University of Rochester
Mindfulness Based Stress Reduction for Caregivers Project
Health Resources and Services Administration &
University of Rochester
Geriatrics Workforce Enhancement Program
Ames Amzalak Memorial Trust
Centers Health Care
Daisy Marquis Jones Foundation
Davenport Hatch Foundation
Konar Family Foundation
Ann Lib Kozel Family Foundation
Cornell Weinstein Family Foundation
Fred & Floy Willmott Foundation
alz.org/rochesterny 3
our core services Founded in 1981, the Rochester and Finger Lakes Region Chapter serves individuals and families affected by Alzheimer’s disease and other forms of dementia in ten counties: Chemung, Livingston, Monroe, Ontario, Orleans, Schuyler, Seneca, Steuben, Wayne and Yates. Translation services can be requested for all programs and services. 24-Hour Helpline: The Alzheimer’s Information and Referral: Individuals Association 24/7 helpline provides and caregivers can contact us for reliable information and support to informational literature as well as people with memory loss, as well as important referrals to a variety of caregivers, health care professionals, community resources such as elder and the public. Our knowledgeable law attorneys, geriatric care managers, staff can help you understand home care agencies, and senior living dementia and Alzheimer’s disease facilities. and their treatment options; offer Respite Services: Respite care general information about aging; and provides caregivers a temporary teach skills in providing quality care break from caregiving, while the and making legal/financial decisions. person with Alzheimer’s disease The Helpline offers a translation continues to receive care in a safe service that features more than 200 and supportive environment. Using languages and dialects. respite services can support and Care Consultations: Our strengthen your ability to be a professional staff is dedicated to caregiver. helping you and your family navigate Social Activities: A person living your journey with Alzheimer’s with Alzheimer’s disease doesn’t disease. During a care consultation, have to give up the activities he we can help assess your needs and or she loves. We offer several free discuss care planning, home safety opportunities each month to gather and other concerns. with others who live with Alzheimer’s Community Education: Learn disease and their loved ones. more about Alzheimer’s disease Support Groups: Alzheimer’s through our free community Association support groups offer education courses in English caregivers or persons who live with and Spanish. These classes Alzheimer’s disease the opportunity are designed to address topics to meet with others at a regularly such as understanding the scheduled meeting in a safe, basics of dementia and effective confidential environment. Trained communication. Private, in-home volunteer facilitators are paired with sessions are also available professional staff to lead all groups. upon request. 4 24/7 Helpline 800-272-3900
general information
• Pre-registration is required for all education sessions, social
activities, conferences, some specialty support groups and
expert presentations. Sessions may be cancelled if there are
not enough people registered within 1 week of the program.
• All programs and services are free for people living with
Alzheimer’s and their family caregivers.
• Translation services may be available. One week’s notice is
required.
Class Descriptions
Community education and awareness classes are free for caregivers and
those who are interested in information about Alzheimer’s disease and
other dementias.
Healthy Living for Your Brain and Body
Join us to learn about research in the areas of diet and nutrition, exercise,
cognitive activity and social engagement, and use hands-on tools to help
you incorporate these recommendations into a plan for healthy aging.
Audience: All
Know the 10 Signs: Early Detection Matters
If you or someone you know is experiencing memory loss or behavioral
changes, it’s time to learn the facts. Early detection of Alzheimer’s disease
gives you a chance to begin drug therapy, enroll in clinical studies and plan
for the future. Audience: All
alz.org/rochesterny 5
education descriptions Understanding Alzheimer’s and Dementia Alzheimer’s disease is not a normal part of aging. If you or someone you know is affected by Alzheimer’s disease or dementia, it’s time to learn the facts. This program provides information on detection, causes and risk factors, stages of the disease, treatment, and much more. Audience: All Dementia Conversations: Driving, Doctor Visits, Legal & Financial Planning Conversations with family members who are showing signs of dementia can be challenging and uncomfortable. The fear or lack of awareness that may accompany these conversations can result in delays that have serious consequences for the entire family. This workshop will offer tips on how to have honest and caring conversations with family members about going to the doctor, when to stop driving, and making legal and financial plans. Audience: Caregivers Effective Communication Strategies Communication is more than just talking and listening – it’s also about sending and receiving messages through attitude, tone of voice, facial expressions and body language. As people with Alzheimer’s disease and other dementias progress in their journey and the ability to use words is lost, families need new ways to connect. Join us to explore how communication takes place when someone has Alzheimer’s, learn to decode the verbal and behavioral messages delivered by someone with dementia, and identify strategies to help you connect and communicate at each stage of the disease. Audience: Caregivers Understanding and Responding to Dementia-Related Behavior Behavior is a powerful form of communication and is one of the primary ways for people with dementia to communicate their needs and feelings as the ability to use language is lost. However, some behaviors can present real challenges for caregivers to manage. Join us to learn to decode behavioral messages, identify common behavior triggers, and acquire strategies to help intervene with some of the most common behavioral challenges of Alzheimer’s disease. Audience: Caregivers 6 24/7 Helpline 800-272-3900
Health Conference Highlights the Underrepresentation of Hispanics/ Latinos in Dementia Research Recently, the Alzheimer’s Association Rochester & Finger Lakes Region Chapter held its Seventh Annual Hispanic/ Latino Conference in Spanish. More than 80 participants from the Greater Rochester area attended the event at Monroe Community Hospital. Older Hispanics/Latinos are about one and one-half times more likely than older whites to have Alzheimer’s or another dementia. Medicare payments for Hispanics/Latinos with Alzheimer’s and other dementias are 7 percent higher than those for their white counterparts. Health conditions such as diabetes are suspected risk factors for Alzheimer’s and other dementias among all groups. However, diabetes is more prevalent in the Hispanic community (2017 Alzheimer’s Disease Facts and Figures, Alzheimer’s Association). Hector M. González, Ph.D., the keynote speaker at the conference and Associate Professor of Neurosciences at the University of California, San Diego, shared the latest research findings on Alzheimer’s and other dementias in the Hispanic/Latino communities. Dr. González is the Principal Investigator of the Study of Latinos—Investigation of Neurocognitive Aging (SOL-INCA). “Hispanics are underrepresented in Alzheimer’s research. We need to encourage our community members to take part in clinical trials,” said Dr. González. His keynote presentation also emphasized the importance of healthy lifestyles for maintaining brain health. The Alzheimer’s Association offers a range of programs and services in Spanish. If you are a member of the Hispanic/Latino community and have questions or need help, please call 1-800-272-3900 to learn more about our programs available in Spanish for families affected by Alzheimer’s or another dementia. alz.org/rochesterny 7
educación comunitaria
Clases en español
Todas las clases son en Español gratuitas, pero se necesita
que se inscriban, para registrarse por favor llamar al
1-800-272-3900.
La investigación científica
sobre el Alzheimer ya está
dando resultados sobre el
impacto de la enfermedad
entre los hispanos/latinos.
Según el informe Hechos y
Estadísticas sobre la Enfermedad
de Alzheimer 2010 de la
Alzheimer’s Association, el riesgo
de desarrollar el Alzheimer en
los hispanos es 1,5 veces mayor que en los norteamericanos blancos
no hispanos.
• Hay una tasa mayor de hispanos/latinos que blancos no hispanos en
los Estados Unidos que padecen del Alzheimer.
• Los hispanos/latinos enfrentan mayor riesgo de desarrollar la
enfermedad de Alzheimer y otros tipos de demencia porque están
viviendo a una edad más prolongada (como toda la población de los
Estados Unidos) pero a la vez tienen índices más altos de problemas
cardiovasculares.
• Los factores de riesgo de la enfermedad vascular (mayormente la
diabetes, la presión alta y el colesterol alto) también pueden ser
factores de riesgo para el desarrollo del Alzheimer y la demencia
causada por los derrames cerebrales.
• Los hispanos son el grupo étnico más creciente en los Estados
Unidos. Durante la primera mitad del siglo 21 el número de ancianos
hispanos que sufren del Alzheimer u otro tipo de demencia puede
incrementarse hasta seis veces, de menos de 200.000 personas
afectadas actualmente hasta 1,3 millones para el año 2050.
• Para el año 2050, la expectativa de vida de los latinos sobrepasará la
de todos los otros grupos étnicos en los Estados Unidos, llegando a
los 87 años de edad.
8 24/7 Helpline 800-272-3900
special programs and events
Conferencia para cuidadores
Martes, 5 de Marzo del 2019 4:00 pm–7:00 pm
Monroe Community Hospital
Sala de conferencia Chandelier, 435 East Henrietta Rd, Rochester
Únase a nosotros para una noche de
trabajo adonde conocerá los servicios y
programas de educación de la comunidad;
obtenga un conocimiento más completo
de la enfermedad de Alzheimer y
demencias, y aprenda estrategias para
comunicarse con su ser querido. Además,
conozca los recursos disponibles en su
área para ayudar a las familias a manejar la enfermedad.
Se necesita hacer la inscripción con anticipación llamando al
1-800-272-3900.
Se dispondrá de comida.
Chemung County Caregiver Conference
Dementia Conversations
Saturday, April 27, 2019
Big Flats Community Center - 476 Maple St., Big Flats
Come learn tips on how to have
honest and caring conversations
with family members about:
• Driving
• Doctor Visits
• Legal & Financial Planning
Pre-registration required.
Anyone who pre-registers before
April 11 will be entered into a raffle to win a basket of caregiver
resources and Alzheimer's Association merchandise.
Audience: Family care partners
alz.org/rochesterny 9
special programs and events
Ann Lib Kozel
Counseling Program
Our counselors are dedicated to
helping you and your family
navigate your journey with
Alzheimer’s disease and other
dementias.
To schedule an appointment or for more information, contact:
Orleans County Residents 585-760-5400
All Other County Residents 1-800-272-3900
This service is supported by funding from
The New York State Department of Health and
The Ann Lib and Bernard Kozel Family Foundation
PERSONALIZED EDUCATION SESSIONS
The Alzheimer’s Association will tailor a personal, in-home education
session to meet the needs of your family, friends, neighbors and loved
ones. Anyone in your support network is encouraged to participate via
telephone, virtually and in person. To learn more about the available
options or to schedule a session, call 1-800-272-3900.
Residents of Orleans County please call 585-760-5400.
VIRTUAL SUPPORT GROUP
1st Tuesday of the Month..............................................................................6:00–7:00 p.m.
For Younger-Onset Caregivers
Connect with others through your phone or computer.
Call 716-626-0600 to register for the Virtual Support Group.
10 24/7 Helpline 800-272-3900special programs and events
Go Purple! Informational Breakfast
Saturday, January 19, 2019, 9:30–11:00 a.m.
Saturday, March 9, 2019, 9:30–11:00 a.m.
Monroe Community Hospital (Auditorium A)
435 E. Henrietta Rd., Rochester, NY Pre-register by
January 4, 2019
Please register for this community breakfast to learn to be entered
how your faith community can impact awareness of into a raffle to
Alzheimer’s disease and other dementias. win a Go Purple!
Registration required. Call 1-800-272-3900 gift basket.
for more information or to register.
Audience: Members of faith communities
CARE CONSULTATION
Our professional staff is dedicated to helping you and your family
navigate your journey with Alzheimer’s disease. During a care
consultation, we can help assess your needs and discuss care planning,
education, home safety and provide case management services.
Make an appointment for an in-person meeting with an
Alzheimer’s Association Care Coordinator and/or a Lifespan Care
Manager. Locations are available in all ten counties.
Walk-ins are welcome.
alz.org/rochesterny 11special programs and events
SAVE
the
DATE
Meeting of the Minds is an annual conference
bringing together experts in the field of
dementia.
Wednesday, May 1, 2019
Temple B’rith Kodesh
2131 Elmwood Avenue
Rochester
This conference is designed for individuals living
with dementia, family caregivers, health care
professionals and the general public.
12 24/7 Helpline 800-272-3900special programs and events
Life with Lewy Body Disease:
Educational Workshop and Support Group
Wednesdays: January 9, 16, 23, 30
Educational Workshop 1:00–2:00 p.m. Support Group 2:00–3:00 p.m.
Unity Rehab and Neurology
2655 Ridgeway Ave., Ste. 120, Rochester, 1st Floor Meeting Room
Presenters: Weekly Topics:
Marla B. Bruns, MD • What is Lewy Body Dementia?
Krista Damann, PhD, ABPP-CN • Coping with Cognitive Symptoms
David J. Gill, MD and Motor Dysfunctions
Tanya Grace, PsyD • Sleeping Disorders and
Cherie Zicari, FNP Responding to Behaviors
• How Do I Take Care of Myself?
Light snacks provided. Audience: Caregivers, family and
friends of individuals living with
Limited space available. Lewy Body disease
Pre-registration is required
by calling 1-800-272-3900.
alz.org/rochesterny 13City of Rochester Recognizes Dr. Lemuel
and Gloria Rogers African-American Health
Symposium
Earlier this year, the Alzheimer’s
Association Rochester & Finger
Lakes Region Chapter held
its Seventh Annual African-
American Health Symposium.
Named after former members
of the Mount Olivet Baptist
Church Dr. Lemuel and Gloria
Rogers, the symposium brought
together more than 120 participants from the Greater Rochester area.
Sandra Simon, Affirmative Action and Diversity/Inclusion Officer at the City
of Rochester, presented a Proclamation by Mayor Lovely Warren recognizing
the Dr. Lemuel and Gloria Rogers African-American Health Symposium’s
contribution to the community.
Dr. Rogers was one of the first African-American doctors to build and own a
medical building in Rochester. Over the course of his 30 years of practice, he
delivered more than 5,000 babies in Rochester’s Highland and Saint Mary’s
hospitals.
The organizers of the 2018 symposium also honored the life of late Judge
Roy King, the first African-American to work at the City of Rochester’s Law
Department. Judge King was a member of the Alzheimer’s Association's
African-American Council.
Mount Olivet Baptist Church has been a partner of the Alzheimer’s Association
since the founding of its Alzheimer’s Ministry in 2004. In addition to hosting the
health symposium annually, members and volunteers of the Alzheimer’s Ministry
provide community education and outreach to other faith communities.
While older blacks/African Americans are two times more likely than older
whites to have Alzheimer’s and other dementias, they are less likely than
whites to have a diagnosis of the condition (2017 Alzheimer’s Disease Facts
and Figures, Alzheimer’s Association). Health conditions such as high blood
pressure and diabetes are suspected risk factors for Alzheimer’s and other
dementias among all groups. But, high blood pressure and diabetes are more
prevalent among African Americans.
Krista Damann, Ph.D., keynote speaker If you are interested in
of the symposium and Neuropsychologist attending our African-American
at Rochester Regional Health’s Memory Health Symposium on
Center, discussed the risks and prevention Thursday, March 7, 2019, call
measures of Alzheimer’s among the 1-800-272-3900 to register.
black/African-American community.
See details on page 15.
14 24/7 Helpline 800-272-3900special programs and events
8th Annual Dr. Lemuel and Gloria Rogers
African American Health Symposium
Thursday, March 7, 2019, 5:00–8:00 p.m.
Mt. Olivet Baptist Church, 141 Adams St., Rochester, NY
Join us for an evening of fellowship to learn about health
diseases and conditions that affect the African American
community and gain insight about how to address these
disparities.
Dinner will be provided.
Pre-registration required by calling 1-800-272-3900.
Anyone who pre-registers before February 22 will be
entered into a raffle to win a basket of caregiver resources
and Alzheimer's Association merchandise.
Audience: General Public
alz.org/rochesterny 15special programs and events
Respite Scholarship Program
Provides a temporary break from caregiving
and enhances the quality of life for the person
with Alzheimer's disease or dementia while
they receive care in a safe and supportive
environment.
The Respite Scholarship Program has been
redesigned for 2019. Call 1-800-272-3900 to
request information about the changes to the
application process and eligibility requirements.
Alzheimer’s Association
Advocacy Day
Albany, NY | March 5, 2019
Join us as we advocate on behalf of all
impacted by Alzheimer’s disease and dementia.
You will have the opportunity to speak directly
with the men and women who shape New
York State policy and appeal for their support
in our fight to end Alzheimer’s.
We will provide the transportation, lunch and training. We need you to
provide a passionate voice for our cause.
To learn more, email nysadvocacy@alz.org.
16 24/7 Helpline 800-272-3900special programs and events
Early-Stage Orientation Series Offers an
Introduction to Living with Alzheimer’s Disease
Learn more about your
dementia diagnosis and
find the answers you and
your loved ones need. This
program is designed for you
and a loved one to attend
together. Meet others affected
by dementia and connect to
resources available through the
Alzheimer’s Association and community partners.
Audience: Persons living in the early stages of Alzheimer’s or other
dementia and their care partner
Each week the group explores a new topic including:
• The Basics of Dementia • Disclosure, Relationships
• Living with the Diagnosis • Stigma, Advocacy
• Future Planning • Tools for Maintaining
• Medications and Research • Independence
Pre-registration is required. Call 1-800-272-3900 to register
and find out more about day or evening sessions in your county.
CAREGIVER WELLNESS
Zumba Classes
Wednesdays: January 9 - February 27
10:30–11:30 a.m.
Lifespan Wolk Café at Sibley Square
25 Franklin St., Rochester, NY 14604
Register by calling Ellen Apetz at 585-232-3617.
alz.org/rochesterny 17chemung county
SUPPORT GROUPS
CAREGIVER:
Horseheads.............................1st Thursday of the Month...............2:00–3:00 p.m.
Appleridge Senior Living, 168 Miller St., Horseheads
Horseheads............................. 3rd Thursday of the Month.............12:15–1:15 p.m.
Courtyards at Bethany Village, 3005 Walkins Rd., Horseheads
SOCIAL ACTIVITIES
Chemung County Historical Society
415 E Water St., Elmira
Two Truths and a Lie
Tuesday, January 22, 1:30–3:00 p.m.
Victorian's Secret
Monday, February 25, 1:30–3:00 p.m.
Superhumans!
Monday, March 18, 1:30–3:00 p.m.
Audience: Individuals living with dementia
and their care partners
COMMUNITY EDUCATION
Steele Memorial Library...............................101 E Church St., Elmira
Understanding Alzheimer's
and Dementia ...................................................................Tue, Jan 8........................6:00–7:00 p.m.
Effective Communication Strategies..............Tue, Feb 12....................6:00–7:00 p.m.
Understanding and Responding to
Dementia-Related Behavior..............................Tue, Mar 12...................6:00–7:00 p.m.
Follow us @AlzRochesterNY
18 24/7 Helpline 800-272-3900chemung county
CAREGIVER CONFERENCE
SAVE
the
DATE
Dementia Conversations
Saturday, April 27, 2019
Big Flats Community Center - 476 Maple St., Big Flats
Learn how to have honest and caring conversations with
family members about:
• Driving • Doctor Visits • Legal & Financial Planning
Pre-registration required by calling 1-800-272-3900.
Anyone who pre-registers before April 11 will be entered into
a raffle to win a basket of caregiver resources and Alzheimer's
Association merchandise.
Audience: Family care partners
alz.org/rochesterny 19livingston county
SUPPORT GROUPS
CAREGIVER:
Dansville..............................................1st Monday of the Month......... 6:30–8:00 p.m.
Dansville Public Library, 200 Main St., Dansville
Lima...........................................................2nd Monday of the Month....... 2:00–3:00 p.m.
Lima Library, 1872 Genesee St., Lima
Geneseo...............................................4th Monday of the Month........ 1:00–2:00 p.m.
Geneseo United Methodist Church, 4520 Genesee St., Geneseo
SOCIAL ACTIVITIES
Goodwill of the Finger Lakes......................2nd Monday of the month
4119 Lakeville Rd., Geneseo 1:00–2:00 p.m.
• January 14: Welcome in the New Year with fun games to be shared.
• February 11: Create a craft to celebrate Valentine's Day.
• March 11: Let's welcome our winged friends with freshly painted bird
houses.
Audience: Individuals living with dementia and their care partners
Abbey of the Genesee...................................................Tuesday, February 19
3258 River Rd., Piffard....... 11:15 a.m.–12:30 p.m.
Learn about Trappist Monks of The Abbey of Genesee. Listen to a talk
on monastic life and explore the Abbey’s store of bread and more. We
will conclude our visit by observing mid-day prayers.
Audience: Individuals living with dementia and their care partners
COMMUNITY EDUCATION
NOYES Conference Center.......... 111 Clara Barton St., Dansville
Understanding Alzheimer's and
Dementia.................................................................................Tue, Jan 22....................6:00–7:00 p.m.
Effective Communication Strategies..............Tue, Feb 26....................6:00–7:00 p.m.
Understanding and Responding
to Dementia Related Behavior........................Tue, Mar 26...................6:00–7:00 p.m.
Lima Library............................................................ 1872 Genesee St., Lima
Dementia Conversations............................................Thu, Jan 10 .................3:00–4:00 p.m.
Understanding Alzheimer's
and Dementia.....................................................................Thu, Feb 14...................3:00–4:00 p.m.
Effective Communication Strategies..............Thu, Mar 14..................3:00–4:00 p.m.
20 24/7 Helpline 800-272-3900monroe county
SUPPORT GROUPS
CAREGIVER:
Brockport..........................2nd Thursday of the Month....................7:00–8:30 p.m.
Brockport Free Methodist Church – 6787 4th Section Rd., Brockport
EXPERT
Fairport. PRESENTATIONS
...............................1st Tuesday of the Month....................12:30–2:00 p.m.
Church of the Assumption – 20 East Ave., Fairport
* Will meet on January 8.
Greece...................................3rd Wednesday of the Month.............6:30–7:30 p.m.
Crimson Ridge Gardens – 1 Treeline Dr., Rochester
Pittsford.............................2nd Wednesday of the Month............1:00–2:00 p.m.
Highlands at Pittsford – 500 Hahnemann Trl., Pittsford
Irondequoit.....................2nd Tuesday of the Month......................6:00–7:00 p.m.
Irondequoit Public Library – 1290 Titus Ave., Rochester
Greece...................................2nd Thursday of the Month....................1:30–2:30 p.m.
Legacy at Park Crescent – 1000 Providence Cir., Greece
Churchville......................2nd Tuesday of the Month..............11:00–12:00 p.m.
Legacy at Parklands – 2000 Park Creek Ln., Churchville
Penfield................................3rd Wednesday of the Month.....11:00–12:00 p.m.
Legacy at Willow Pond – 40 Willow Pond Wy., Penfield
Rochester..........................1st Thursday of the Month......................1:00–2:00 p.m.
Monroe Community Hospital – 435 East Henrietta Rd., Rochester
Rochester..........................2nd Tuesday of the Month......................1:00–2:00 p.m.
Monroe Community Hospital – 435 East Henrietta Rd., Rochester
Rochester..........................3rd Tuesday of the Month........................6:00–7:30 p.m.
Monroe Community Hospital – 435 East Henrietta Rd., Rochester
Follow us @AlzRochesterNY
alz.org/rochesterny 21monroe county
SUPPORT GROUPS
CAREGIVER:
Gates.......................................3rd Tuesday of the Month........................5:30–7:00 p.m.
Seabury Woods, 110 Dalaker Dr., Rochester
Rochester..........................4th Monday of the Month................11:00–12:00 p.m.
St. Bernard’s Complex, Building 5, 2260 Lake Ave., Rochester
Webster..............................3rd Wednesday of the Month.............3:30–4:30 p.m.
Webster Presbyterian Church, 550 Webster Rd., Webster
SPECIALTY:
Alzheimer's early-stage support groups, conducted by trained facilitators,
are a safe place for people living with dementia to:
• Develop a support system.
• Exchange practical information on challenges and possible solutions.
• Talk through issues and ways of coping.
• Share feelings, needs, and concerns.
• Learn about community resources.
For early stage support group locations and details, contact us at
1-800-272-3900.
Rochester..........................3rd Tuesday of the Month........................5:30–6:30 p.m.
Out Alliance, 100 College Ave., Rochester
* LGBTQ+ and Allies caregiver support group.
Henrietta............................4th Wednesday of the Month.............6:30–8:00 p.m.
Pieters Family Life Center, 1025 Commons Way, Rochester
* For individuals caring for a loved one with younger-onset dementia.
Rochester..........................1st Wednesday of the Month..............1:00–2:00 p.m.
Unity Rehab and Neurology at Ridgeway, 2655 Ridgeway Ave.,
Suite 420, Rochester
* For caregivers of individuals living with Lewy Body disease.
Follow us @AlzRochesterNY
22 24/7 Helpline 800-272-3900monroe county
Support Group
Offers Strength
to Husband Caring
for Wife with
Younger-Onset
Alzheimer’s
Brian Norton’s wife Amy was diagnosed with younger-onset Alzheimer’s
in early 2013, at the age of 43. For the next five years, Brian provided care
for his wife.
Every day, he would go to work, come back to have lunch with Amy, and
then go back to work. “I would make lunch and we would eat together. But, I
could see that Amy felt lonely and needed more help,” Brian said. Eventually,
he hired professional caregivers to stay with Amy during the day.
“Paying for caregivers became expensive very quickly. It is financially stressful
to live with Alzheimer’s,” Brian added.
Amy’s abilities in daily living were diminishing every day. “We had to tell her
how to eat and then we had to feed her. On the weekends and at night, it
was just me and the kids. On Sundays, my mom or sister would drop in so I
could go grocery shopping,” Brian said.
Shortly after Amy’s diagnosis, Brian joined a younger-onset caregiver
support group. “For five years, I attended the support group once a month.
Being able to speak with other caregivers and advocate for people who live
with Alzheimer’s gave me the strength I needed at home,” Brian said.
Amy passed away on March 20, 2018, If you are caring for your
at the age of 48. “After she passed, I loved one, consider joining
realized I had been under more stress a support group. We are
than I wanted to admit. I hadn't slept also looking for volunteers
much for years.” As he is grieving to facilitate support groups
the loss of his wife, Brian continues
for caregivers in the ten
to attend an Alzheimer's Association
support group. “I believe support
counties we serve.
groups are very beneficial. They break For more information, call
the isolation of caregivers,” Brian 1-800-272-3900.
shared.
alz.org/rochesterny 23monroe county
SOCIAL ACTIVITIES
RPO Open Rehearsals....................................................January 31, March 7
Eastman Theatre, 26 Gibbs St., Rochester 9:30 a.m.–12:00 p.m.
As a special community program generously
sponsored by The Konar Family Foundation. Enjoy
the open rehearsals by the Rochester Philharmonic
Orchestra. Please arrive 20 minutes before the
start of the program. No late admittance.
Music, Mindfulness, and Motion.........................Tuesdays & Thursdays
January 8-February 14; March 5-April 11
Jewish Community Center 1:00–2:00 p.m.
1200 Edgewood Ave., Rochester
With generous support from the Konar Family
Foundation, this program provides individuals in
the early- to middle-stage of dementia and their
caregivers an opportunity to exercise with others
in a safe and nurturing environment. Under the
supervision of certified personal trainers, Music,
Mindfulness, and Motion meets twice a week
for six weeks at the Jewish Community Center. A brief, private, and
confidential assessment will be conducted before and after the six-
week program. Pre-registration and initial assessment are required
before the beginning session. To register or schedule your
assessment, please call 585-461-2000 ext. 831.
Meet Me at the MAG.........................................................February 5, March 5
Memorial Art Gallery *Group will not meet in January*
500 University Ave., Rochester 2:00–3:30 p.m.
Join us for a free private tour and a chance to
spend time with others in the beauty of the
Memorial Art Gallery in Rochester. Meet Me
at the MAG includes a concert on the Baroque
Italian organ and a guided tour of the Gallery’s
special exhibitions and permanent collection.
The afternoon concludes with a small reception. Come as often as you
like and explore something new each month.
24 24/7 Helpline 800-272-3900monroe county
SOCIAL ACTIVITIES
Art with Heart............................................... January 7, February 4, March 4
Pieters Family Life Center 11:00 a.m–12:30 p.m.
1025 Commons Way, Rochester
Reminisce and explore your artistic side with this
art-making program. Learn techniques from painting
to print-making at these sessions where no art
experience is necessary.
Melodies & Memories................... January 23, February 27, March 27
Pieters Family Life Center 11:00 a.m–12:30 p.m.
1025 Commons Way, Rochester
Melodies and Memories promotes health and wellness
through a variety of musical experiences. Attendees
will have the opportunity to play instruments, sing,
and be involved in a group discussion in a welcoming
and supportive environment. Join a licensed creative arts therapist for
these monthly sessions. No musical background is required.
Caring for someone with
Alzheimer’s
isn’t easy.
Reaching
us is.
If you care for someone with Alzheimer’s disease, memory loss or
dementia, you are not alone. We’re here day or night —
whenever you need us — offering reliable information and support.
Free 24/7 Helpline: 800.272.3900
Alzheimer’s and Dementia Caregiver Center: alz.org/care
alz.org/rochesterny 25monroe county
CONNECTIONS
Please meet at location 15 minutes prior to program start time.
Susan B. Anthony House
Tuesday, January 8................................................................................. 1:00–2:00 p.m.
17 Madison St., Rochester
Learn about the life of this American hero and the role her home played in the
women’s suffrage movement.
Paint Your Own Pottery at Color Me Mine
Monday, January 28............................................................................. 1:00–3:00 p.m.
3349 Monroe Ave., Pittsford
You and your loved one will create your own work of art to take home and enjoy.
Butterfly Talk at the Strong Museum
Wednesday, February 13................................................................... 1:00–2:00 p.m.
1 Manhattan Square Dr., Rochester
Escape the cold February weather and step into a tropical wonderland. This
indoor butterfly garden at the Strong Museum is New York’s only year-round,
indoor butterfly garden.
Paint Your Own Pottery at Color Me Mine
Tuesday, February 26........................................................................... 1:00–3:00 p.m.
3349 Monroe Ave., Pittsford
You and your loved one will create your own work of art to take home and enjoy.
Rochester City Ballet
Tuesday, March 12..............................................................................12:00–1:00 p.m.
1326 University Ave., Rochester
For 30 years, the Rochester City Ballet has provided the community with world
class performances. The Alzheimer’s Association invites you and your loved one
to see a private, behind the scenes rehearsal.
The Bird House
Thursday, March 21.............................................................................. 1:00–2:30 p.m.
3035 Monroe Ave., Rochester
Learn together at this fun class at The Bird House.
26 24/7 Helpline 800-272-3900monroe county
COMMUNITY EDUCATION
Chili Library ..................................................... 3333 Chili Ave., Rochester
Understanding Alzheimer's and
Dementia.................................................................................Wed, Jan 16.................6:00-7:00 p.m.
Effective Communication Strategies.............Wed, Feb 20.................6:00-7:00 p.m.
Understanding and Responding to
Dementia Related Behavior...............................Wed, Mar 20.................6:00-7:00 p.m.
Perinton Community Center............. 1350 Turk Hill Rd., Fairport
Understanding Alzheimer's and
Dementia.................................................................................Wed, Jan 9.....................1:00-2:00 p.m.
Dementia Conversations............................................Wed, Feb 13.................1:00-2:00 p.m.
Effective Communication Strategies.............Wed, Mar 13.................1:00-2:00 p.m.
Seymour Library................................................161 East Ave., Brockport
Dementia Conversations............................................Thur, Jan 24..................2:00-3:00 p.m.
Effective Communication Strategies.............Thu, Feb 28...................2:00-3:00 p.m.
Understanding Alzheimer's and
Dementia.................................................................................Thu, Mar 28...................2:00-3:00 p.m.
Webster Public Library.................................. 980 Ridge Rd., Webster
Dementia Conversations............................................Thu, Jan 3........................6:00-7:00 p.m.
Understanding Alzheimer's and
Dementia.................................................................................Thu, Feb 7.......................6:00-7:00 p.m.
Understanding and Responding to
Dementia Related Behavior...............................Thu, Mar 7.......................6:00-7:00 p.m.
Visit Community Resource Finder to locate
dementia and aging-related resources, programs
and services in your area.
Start your customized search today at alz.org/CRF.
alz.org/rochesterny 27monroe county
Conferencia para cuidadores
Martes, 5 de Marzo del 2019
4:00 pm–7:00 pm
Monroe Community Hospital
Sala de conferencia Chandelier
435 East Henrietta Rd, Rochester
Únase a nosotros para una noche de trabajo adonde conocerá
los servicios y programas de educación de la comunidad; obtenga
un conocimiento más completo de la enfermedad de Alzheimer
y demencias, y aprenda estrategias para comunicarse con su ser
querido. Además, conozca los recursos disponibles en su área para
ayudar a las familias a manejar la enfermedad.
Se necesita hacer la inscripción con anticipación llamando al
1-800-272-3900.
Se dispondrá de comida.
28 24/7 Helpline 800-272-3900monroe county
8th Annual Dr. Lemuel and Gloria Rogers
African American Health Symposium
Thursday, March 7, 2019, 5:00–8:00 p.m.
Mt. Olivet Baptist Church, 141 Adams St., Rochester, NY
Join us for an evening of fellowship to learn about health
diseases and conditions that affect the African American
community and gain insight about how to address these
disparities.
Dinner will be provided.
Pre-registration required by calling 1-800-272-3900.
Anyone who pre-registers before February 22 will be
entered into a raffle to win a basket of caregiver resources
and Alzheimer's Association merchandise.
Audience: General Public
alz.org/rochesterny 29ontario county
SUPPORT GROUPS
CAREGIVER:
Canandaigua............... 1st Thursday of the Month.............................1:00–2:30 p.m.
United Church Presbyterian, 11 Gibson St., Canandaigua
Geneva............................... 1st Wednesday of the Month......................1:30–2:30 p.m.
Geneva Presbyterian Church, 24 Park Pl., Geneva
Canandaigua............... 2nd Wednesday of the Month....................4:00–5:00 p.m.
Quail Summit, 5102 Parrish St Ext., Canandaigua
Victor................................... 2nd Thursday of the Month.......11:00 a.m.–12:00 p.m.
Legacy at Fairways, 681 High St., Victor
SOCIAL ACTIVITIES
Building Bird Feeders....................................................Thursday, January 24
Cornell Coop. Extension 1:00–2:30 p.m.
480 N Main St., Canandaigua
Not all birds go south for the winter. Master gardeners will teach you
how to create a beautiful and useful winter bird feeder.
Fuzzy Bunny Craft Lab............................................Wednesday, January 30
6 Honeoye Commons, Route 20A, Honeoye 1:00–2:30 p.m.
Stimulate your senses by creating a beautiful valentine themed craft
with soft fiber, lovely colors and intriguing scents.
Everson's Pure Maple Syrup......................................... Tuesday, March 19
3121 Bunker Hill Rd., Clifton Springs 1:00–2:30 p.m.
Tour this family owned farm, sample maple syrup, and leave with a small
taste of syrup.
Follow us @AlzRochesterNY
30 24/7 Helpline 800-272-3900ontario county
COMMUNITY EDUCATION
Victor Farmington Library................................ 15 W. Main St., Victor
Effective Communication Strategies..............Thu, Jan 17...................6:00–7:00 p.m.
Understanding Alzheimer's and
Dementia.................................................................................Thu, Mar 21..................6:00–7:00 p.m.
Wood Public Library.............................134 N. Main St., Canandaigua
Understanding and Responding to
Dementia Related Behavior................................Tue, Jan 22....................6:00–7:00 p.m.
Effective Communication Strategies..............Tue, Feb 26....................6:00–7:00 p.m.
Dementia Conversations............................................Tue, Mar 26...................6:00–7:00 p.m.
Geneva Community Center......................... 160 Carter Rd., Geneva
Dementia Conversations............................................Mon, Jan 28..................1:00-2:00 p.m.
Understanding and Responding to
Dementia Related Behavior................................Mon, Feb 11.................1:00-2:00 p.m.
Effective Communication Strategies..............Mon, Mar 18.................1:00-2:00 p.m.
Visit Community Resource Finder to locate
dementia and aging-related resources, programs
and services in your area.
Start your customized search today at alz.org/CRF.
alz.org/rochesterny 31orleans county
SUPPORT GROUP
CAREGIVER:
Kendall..................................3rd Thursday of the Month.....................1:00–2:00 p.m.
Concordia Lutheran Church, 1769 Kendall Rd., Kendall
Lyndonville......................1st Tuesday of the Month......11:00 a.m.–12:00 p.m.
Yates Community Library - 15 N Main St., Lyndonville
SOCIAL ACTIVITIES
A Visit to Della's Chocolates....................................... Tuesday, February 5
Della's Chocolates - 512 Main St., Medina 1:00–2:00 p.m.
Learn how this family owned business makes their delicious treats.
COMMUNITY EDUCATION
Hoag Library.....................................................134 South Main St., Albion
Dementia Conversations............................................Wed, Jan 23................ 6:00–7:00 p.m.
Understanding Alzheimer's and
Dementia.................................................................................Wed, Feb 27............... 6:00–7:00 p.m.
Effective Communication Strategies..............Wed, Mar 27............... 6:00–7:00 p.m.
Lee-Whedon Memorial Library................. 620 West Ave., Medina
Understanding Alzheimer's and
Dementia.................................................................................Wed, Jan 16................ 6:00–7:00 p.m.
Effective Communication Strategies..............Wed, Feb 13...............6:00–7:00 p.m.
Understanding and Responding to
Dementia Related Behaviors.............................Wed, Mar 13............... 6:00–7:00 p.m.
Yates Community Library........................ 15 N Main St., Lyndonville
Understanding and Responding to
Dementia Related Behaviors.............................Tue, Feb 5................... 12:30–1:30 p.m.
Orleans County YMCA.................................306 Pearl St., #2, Medina
Understanding Alzheimer's
and Dementia.....................................................................Wed, Jan 9.................... 3:00–4:00 p.m.
*Care consultant will be available for free, private, meeting after program.
32 24/7 Helpline 800-272-3900schuyler county
SUPPORT GROUP
CAREGIVER:
Montour Falls............................2nd Friday of the Month....... 10:00–11:00 a.m.
Schuyler County Human Services Building, Conference Room #115,
323 Owego St., Montour Falls
SOCIAL ACTIVITIES
Brickyard Tavern....................................................................... Friday, January 11
Schuyler County Historical Society 1:30–3:00 p.m.
108 N Catherine St., Montour Falls
Tour the old Brickyard Tavern, built in 1828, the oldest brick building in
the county.
COMMUNITY EDUCATION
Watkins Glen Public Library...... 610 S Decatur St., Watkins Glen
Understanding Alzheimer’s and
Dementia.................................................................................Mon, Jan 28.................2:00–3:00 p.m.
Effective Communication Strategies..............Mon, Feb 25................2:00–3:00 p.m.
Understanding and Responding
to Dementia Related Behavior........................Mon, Mar 25................2:00–3:00 p.m.
Caring for someone
with Alzheimer’s isn’t easy.
Reaching us is.
Visit alz.org®
alz.org/rochesterny 33seneca county
SUPPORT GROUP
CAREGIVER:
Lodi.........................................................1st Tuesday of the Month............3:30–4:30 p.m.
Lodi Library, 8484 S. Main St., Lodi
* This group will not meet in January.
SOCIAL ACTIVITIES
Sauders Country Store...................................................... Friday, January 18
2146 River Rd., Seneca Falls 1:00–2:30 p.m..
Come experience this unique store offering a variety of products from
fruits to furniture.
Seneca Museum of Waterways & Industry.............Friday, March 1
89 Fall St., Seneca Falls 1:00–2:00 p.m..
Hear tales of the importance of the Seneca River and Cayuga-Seneca
canal.
COMMUNITY EDUCATION
Seneca Falls Public Library...................47 Cayuga St., Seneca Falls
Understanding Alzheimer’s
and Dementia.....................................................................Thu, Jan 17...................3:00–4:00 p.m.
Effective Communication Strategies..............Thu, Feb 21...................3:00–4:00 p.m.
Understanding and Responding to
Dementia Related Behavior................................Thu, Mar 21..................3:00–4:00 p.m.
Follow us @AlzRochesterNY
34 24/7 Helpline 800-272-3900steuben county
SUPPORT GROUP
Hornell..................................2nd Thursday of the Month....................1:30–3:00 p.m.
Hornell Senior Center - 20 Broadway Mall, Hornell
Corning................................3rd Tuesday of the month.........................3:00–4:30 p.m.
Corning Senior Center - 1 Park Ln., Corning
* This group is co-facilitated by the Steuben County OFA
Hornell..................................3rd Thursday of the month.................12:30–1:30 p.m.
Hornell Public Library - 64 Genesee St., Hornell
Wayland...............................4th Tuesday of the Month.........................2:00–3:00 p.m.
Wayland Free Library - 101 W Naples St., Wayland
SOCIAL ACTIVITIES
Meet Me at the Museum...........Mondays, January 14 and March 11
The Rockwell Museum, 111 Cedar St., Corning 1:30–3:00 p.m.
Join us for an exclusive tour and a chance to spend
time with others in the beauty of the Rockwell
Museum.
Meet Me at the Museum.............................................Monday, February 11
Corning Museum of Glass 1:30–3:00 p.m.
1 Museum Way, Corning
Join us for an exclusive tour and a chance to spend time
with others in the beauty of the Corning Museum of Glass.
Empty Bowls Painting........................................... Wednesday, February 27
171 Cedar Arts Center 1:30–3:00 p.m.
171 Cedar St., Corning
Learn about how ceramics are made, painted, and decorated.
Music and Memories at Marich Music.....................Monday, March 4
62 E. Market St., Corning 1:30–2:30 p.m.
Enjoy some great tunes, played on the ukulele, banjo, and guitar.
Sing-a-along fun for everyone.
alz.org/rochesterny 35steuben county
COMMUNITY EDUCATION
Dormann Library................................................... 101 W Morris St., Bath
Understanding Alzheimer's and
Dementia.................................................................................Wed, Jan 9.................9:00–10:00 a.m.
Effective Communications Strategies...........Wed, Feb 13............9:00–10:00 a.m.
Understanding and Responding to
Dementia Related Behaviors.............................Wed, Mar 13............9:00–10:00 a.m.
Cohocton Library.................................................8 Maple Ave., Cohocton
Dementia Conversations............................................Wed, Jan 2.....................2:00–3:00 p.m.
Understanding Alzheimer's and
Dementia.................................................................................Wed, Feb 6....................2:00–3:00 p.m.
Effective Communications Strategies...........Wed, Mar 6....................2:00–3:00 p.m.
Southeast Steuben County Library..... 300 Nasser Civic Center
Plaza #101, Corning
Understanding Alzheimer's and
Dementia.................................................................................Tue, Jan 15....................6:00–7:00 p.m.
Effective Communications Strategies...........Tue, Feb 19....................6:00–7:00 p.m.
Understanding and Responding to
Dementia Related Behavior................................Tue, Mar 19....................6:00-7:00 p.m.
36 24/7 Helpline 800-272-3900wayne county
SUPPORT GROUP
CAREGIVER:
Lyons.......................................2nd Tuesday of the Month.......................6:00–7:00 p.m.
Wayne County Nursing Home, 1529 Nye Rd., Lyons
Williamson.......................3rd Wednesday of the Month..............4:00–5:00 p.m.
Williamson Public LIbrary, 6380 Route 21, Suite 1, Williamson
SOCIAL ACTIVITIES
Museum of Wayne County History..................Tuesday, February 12
21 Butternut St., Lyons 1:00–2:30 p.m.
Tour three floors of exhibition space and view historic memorabilia. In
addition, tour the former Wayne County jail and Sheriff's residence
which was in use until 1960.
Howe House Museum.................................................Thursday, February 21
66 Main St., Phelps 1:00–2:30 p.m.
Come experience the permanent, and rotating exhibits, of unique
household and farm equipment.
Shadow Hill Maple Syrup..........................................................Friday, March 8
7285 Lakeside Rd., Ontario 1:00–2:30 p.m.
Bring your taste buds to this offering of a variety of maple syrups and
learn the process of producing maple syrup.
COMMUNITY EDUCATION
Williamson Public Library.................................6380 Route 21, Ste. 1,
Williamson
Dementia Conversations............................................Tue, Jan 15................... 6:00–7:00 p.m.
Understanding Alzheimer’s and
Dementia.................................................................................Tue, Feb 19................... 6:00–7:00 p.m.
Effective Communication Strategies..............Tue, Mar 19.................. 6:00–7:00 p.m.
Follow us @AlzRochesterNY
alz.org/rochesterny 37yates county
SUPPORT GROUPS
CAREGIVER:
Penn Yan.............................2nd Thursday of the Month....................2:00–3:00 p.m.
Yates County Office for the Aging, 417 Liberty St., Penn Yan
Dundee.................................4th Wednesday of the Month..............2:00–3:00 p.m.
Dundee Library, 32 Water St., Dundee
SOCIAL ACTIVITIES
Art Center of Yates County..........................................Thursday, January 31
127 Main St., Penn Yan 1:00–2:30 p.m.
Hands on artisty with Fairport artist, Tom
Chaffer. Each participant will create their own
unique work of art to take home and enjoy.
COMMUNITY EDUCATION
Penn Yan Public Library.................................. 214 Main St., Penn Yan
Understanding and Responding to
Dementia Related Behavior................................Tue, Jan 8........................6:00–7:00 p.m.
Understanding Alzheimer’s and
Dementia.................................................................................Tue, Feb 12....................6:00–7:00 p.m.
Dementia Conversations............................................Tue, Mar 12...................6:00–7:00 p.m.
Follow us @AlzRochesterNY
38 24/7 Helpline 800-272-3900When you enter Monroe Community Hospital off of East Henrietta Road, veer
to the left and proceed past stop to the large lot on your left marked LOT 3.
Visitor parking is available immediately to the right. Enter the Main/Faith building
entrance. There is a large sitting area directly across from the receptionist, and
an Alzheimer’s Association staff member will meet you there.
All visitors must sign in upon arrival and wear a visitor's badge.
Entrance for
Alzheimer’s Association
alz.org/rochesterny 39Permit No. 843
Non Profit Org
Rochester, NY
US Postage
Paid
ELECTRONIC SERVICE REQUESTED
Rochester & Finger Lakes Region
Alzheimer’s Association
435 East Henrietta Rd.
Rochester, NY 14620
The Alzheimer’s Association Rochester & Finger Lakes Region
Serving individuals who live with Alzheimer’s or another
dementia and their families in these counties:
Chemung • Livingston • Monroe • Ontario • Orleans
Schuyler • Seneca • Steuben • Wayne • Yates
Main Office Southern Tier Office
435 East Henrietta Rd. 3005 Watkins Rd.
Rochester, NY 14620 Horseheads, NY 14845
24/7 Helpline 1-800-272-3900
alz.org/rochesterny
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