CanadianCELIAC - IS KISSING OK? GROWING UP CELIAC

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CanadianCELIAC - IS KISSING OK? GROWING UP CELIAC
CanadianCELIAC

    IS KISSING OK?
                     Plus
              GROWING UP
                  CELIAC
                     p. 12

               VALENTINES
                  RECIPES
                     p. 36
CanadianCELIAC - IS KISSING OK? GROWING UP CELIAC
CCA board of directors
                                                                                                                                                A magazine for Canadians with celiac disease
                                                                                                                                                and gluten sensitivity

Executive                                                          Directors

                                                                                                                                               WINTER 2020
Treena Duncan, President                                           Meredith Birchall-Spencer
Janet Bolton, Vice President                                       Tamara Close
David Congram, Secretary                                           Jessica Danford
Andrew Kotys, Treasurer                                            Selena DeVries

Contact us
Canadian Celiac Association
                                                                                                                                               “Life is like a box of chocolates, you never know
1450 Meyerside Dr., Suite 503
Mississauga, ON. Canada L5T 2N5                                                                                                                what you’re going to get.” – Forest Gump.
Phone: 905.507.6208 or 800.363.7296
Fax: 905.507.4673 | Email: info@celiac.ca
www.celiac.ca                                                                                                                                  Managing life with celiac disease and gluten sensitivity can sometimes feel like
                                                                                                                                               Forest Gump’s quote. Inside this edition, we try to dispel some of the myths or

Canadian CELIAC                                                                                                                                bring facts forward from kissing, gluten in makeup and school supplies while
                                                                                                                                               offering tips on how to manage your disease after diagnosis to help take out some
A MAGAZINE FOR CANADIANS WITH                                                                                                                  of the mystery. Our Growing Up Celiac ongoing features shows how kids in sports
CELIAC DISEASE AND GLUTEN SENSITIVITY                                                                                                          and at a Calgary camp are empowering themselves.
Editorial Board
Melissa Secord
Kim Shiffman                                                                                                                                   FOLLOWING UP AFTER DIAGNOSIS. Page 7
Janet Dalziel
Jessica Danford
RonniLyn Pustil
Gayle Grin
                                                                                                                                               HE SHOOTS, HE SCORES. Page 13
Graphic design by
www.gaylegrin.design
                                                                                                                                               BABY BITES. Page 16
Contributors
Janet Dalziel
Dr. Justine Dowd
                                                                   Dr. Mohsin Rashid
                                                                   Cheryl Richmond
                                                                                                                                               PUCKER UP: KISSING AND
Dr. Donald Duerksen
Dr. Dominica Gidrewicz
                                                                   Léa Saad
                                                                   Melissa Secord
                                                                                                                                               COSMETICS. Page 23
RonniLyn Pustil                                                    Dr. Jocelyn Silvester

COVER PHOTO BY LÉA SAAD
                                                                                                                                               THE FLOURS THAT BE: BAKING
Copyright © 2020 by the Canadian Celiac Association
Publication Agreement#40787580                                                                                                                 FOR SUCCESS. Page 32
Canadian Celiac is published for the Canadian Celiac Association, L’Association Canadienne de la maladie coelique. Reproduction of this
magazine in whole or in part is prohibited without the express written consent of the publisher.
Disclaimer: The contents of Canadian Celiac are provided in good faith for information purposes only, and using the most current information
available subject to amendment, and should not be used as a substitute for the advice of a qualified medical professional. The Professional
Advisory Council of the Canadian Celiac Association (CCA) has not reviewed the contents of Canadian Celiac. Use of the information is at
your own risk. The CCA does not endorse any product referenced in this publication. To the fullest extent permitted by law, the CCA, its
local chapters and all persons involved in the compiling of this publication disclaim any responsibility for, and make no representations or
warranties regarding the information provided. In no event will CCA, its Chapters or those persons involved in compiling this publication be
liable for any damages of any kind resulting from the use of the information.                                                                                                VOLUME 4 | ISSUE 1                                          2
                                                                                                                                                                                                                   Canadian CELIAC | 3
2 | Canadian CELIAC
CanadianCELIAC - IS KISSING OK? GROWING UP CELIAC
From the editor’s desk                                                                                            CCA board nominations
                                    When we hit a milestone like a new decade, we often look back and
                                    stake stock or regroup and cast our eyes ahead. What’s on our horizon?        CALL FOR NOMINATIONS –
                                    As a community, a lot has changed: more gluten-free products on the
                                    shelves, more people aware of celiac disease and gluten sensitivity, more
                                                                                                                  CCA BOARD OF DIRECTORS
                                    gluten-free options at restaurants and now more than ever we are on the
                                    horizon of a potential drug therapies and breakthroughs. We still have        The Canadian Celiac Association (CCA) is seeking nominations for its national board of directors for the
                                    much to do, though. People are still getting ill from cross-contact, ‘may     July 1, 2020 to June 30, 2022 term.
                                    contain’ statements are on way too many labels and Ontario still hasn’t
                                    joined the rest of the country on diagnosis coverage.                         Nominations Close: March 6, 2020

                                       For the CCA national volunteer board, the year 2020 means drafting a       Who are we? Since 1972, the Canadian Celiac Association (CCA), a national not-for-profit charity, has been the
                                       new vision for the organization and strategic plans to address the chal-   national voice for people who are adversely affected by gluten, and is dedicated to improving diagnosis and
                                       lenges you and they as individuals who also have the disease or a rela-    quality of life. In addition to a small national office located in Mississauga, Ontario, CCA is backed by support
tive, still face. The plan, which you’ll see in the coming months, arrives as the organization moves this year    groups and chapters across Canada serving members locally.
away from traditional membership—a challenge for many non-profits, not just CCA — to serving the broader
gluten-free community at large. It will allow all of us to come together to advocate for better precautionary     Our Vision: The Gluten Solution – Find, Treat, Cure.
labelling, review tax policy and blood testing coverage, support research and Canadian trials, offer more
education and create more awareness.                                                                              Our Values: Science based, integrity and compassion

This edition of Canadian Celiac showcases just some of the broad-scale work that has and is being accom-          Is this role for me?
plished thanks to the incredible support received from individual like you. Take for instance the update on       • Are you passionate about helping people impacted by celiac disease, dermatitis herpetiformis or non-celi
the ‘Doggie Bag’ study which was supported by a CCA JA Campbell grant, and the guidance on cosmet-                  ac gluten sensitivity?
ics and gluten free from our hard-working Professional Advisory Council members, who source the latest            • Do you want to be involved in making decisions that could help improve their lives?
research to help empower your decision-making. Working together, we can bring together people like Dr.            • Do you want to grow your professional and personal skills and network in board governance, strategic
Mohsin Rashid, a Halifax gastroenterologist and long-time volunteer, to provide reviews for all of us on the        thinking, problem solving, financial oversight and issues management?
latest advice on how to manage celiac disease after diagnosis.
                                                                                                                  We need you to be ready to:
CCA is seeing people like Léa Saad and Drew Flemming. Léa is a young woman who was diagnosed in high              • Read and review all meeting materials in advance.
school, who turned to the community for support and now gives back sharing her story on navigating dating         • Participate on bi-monthly board meeting calls which average two hours in length and attend up to three
and a social life in this column and on her very own blog. Drew is a young hockey player who’s growing up           weekend in-person meetings per year, one of which is CCA’s Annual General Meeting.
celiac but not letting it stand in the way of his dreams.                                                         • Actively participate in all strategic and financial discussions and issues impacting CCA
                                                                                                                  • Evaluate the role and performance of the Executive Director
CCA is you, and when you support CCA, you are making an investment in yourself and paying it forward to           • Respect final decisions of the board and adhere to board confidentiality and privacy
change the landscape, make improvements and help others who share a similar journey. In the short three           • Participate on one board standing committee: Executive, Governance, or Finance/Audit which may involve
years that I have been with you, I have seen an incredible growth and energy and I can’t wait to see what           another one to two hours per month
you do over the next 10 years.
                                                                                                                  Are you the candidate for us?
Respectfully yours,                                                                                               • Candidates should have at least five years of work experience.
                                                                                                                  • Volunteer experience especially in the not for profit sector or previous board service is an asset.
                                                                                                                  • Preference will be given to individuals who have a background in the following area: fundraising/grant
                                                                                                                    writing, agri-food or food production.
                                                                                                                  • Some knowledge of celiac disease, gluten sensitivity or dermatitis herpetiformis is an asset but not required.
Melissa Secord
Executive Director                                                                                                Interested? Visit https://www.celiac.ca/get-involved/nominations/
                                                                                                                  Applicants need to submit the Board Nomination form, along with a cover note and resume
                                                                                                                  by March 6, 2020.
4 | Canadian CELIAC                                                                                                                                                                                              Canadian CELIAC | 5
CanadianCELIAC - IS KISSING OK? GROWING UP CELIAC
Managing your celiac

   It’s crunch time!    Switch to a tastier, healthier
                                                                                                           FOLLOWING UP
                                                                                                           You’ve been diagnosed with celiac and you’re on a GF diet.
                                                                                                           Do you need to continue seeing a gastroenterologist?

                           alternative to bread.

                                                                                  PHOTO FROM BING IMAGES
                                                          LÉA SAAD
                                                                                                           Celiac disease (CD) is a chronic autoimmune disorder in which ingestion of gluten (a protein present in
                                                                                                           wheat, rye and barley) causes damage to the lining of the small intestine in genetically susceptible individ-
                                                                                                           uals. It is a common disorder affecting about 1% of the population. The treatment of CD is a strict life-long
                                                                                                           gluten-free diet. Follow-up of patients with CD is important. The recommendation regarding follow-up can
                                                                                                           vary depending on the clinical condition of the patient and the resources available locally.

                                                                                                           BY DR. MOHSIN RASHID                  endoscopic small intestinal biop-      should also include an assess-
               Made with                  High in fibre              Vegetarian
                                                                                                                                                 sies performed by a gastroenter-       ment by a dietitian. After that, pa-
               wholegrain oats                                                                             Q How often do I go back to my        ologist. It is recommended that        tients are usually seen yearly. For
                                                                                                           gastroenterologist? Do I ever         patients goes back to see their        adults, if you’re doing well, your
                                                                                                           need to?                              gastroenterologist in follow up        gastroenterologist may determine
                                                                                                           A In the majority of cases, the       three to four months after start-
                                                                                                           diagnosis of CD is confirmed with     ing the gluten-free diet. This visit   Continued on next page
Discover the range at
WWW.NAIRNS-OATCAKES.COM/WORLDWIDE-EXPORT/NAIRNS-CANADA                                                                                                                                                    Canadian CELIAC | 7
CanadianCELIAC - IS KISSING OK? GROWING UP CELIAC
CD can negatively impact growth and development.
                                                                               Therefore, follow up of toddlers ... is more frequent ...

                 oats
                                                                       Continued from page 7                  mal initially. These general guide-     in gluten-free diet is essential. The
                                                                                                              lines apply to patients of all ages.    first year or so after diagnosis can
                                                                       that follow-up can be provided by                                              be challenging, as one gets used
                                                                       your family physician. Pediatric pa-   What is tested depends on the           to the diet.
                                                                       tients, on the other hand, are fol-    clinical condition of the patient.

              sweet oats.
                                                                       lowed by their gastroenterologists     The years of symptoms before            Q Do things change if I have
                                                                       generally on a yearly basis. Young     diagnosis may not have any              another autoimmune disease or
                                                                       children are seen more often.          significant impact. What’s import-      chronic condition?
                                                                                                              ant is how severely a patient was       A Celiac disease is an autoim-
                                                                       Q Can my family doctor manage          affected at diagnosis.                  mune disorder and patients are
                                                                       my disease?                                                                    at risk of developing a second (or
                                                                       A This depends on the family           Q How does the ongoing man-             third) autoimmune disorder. The
                                                                       doctor’s experience and knowl-         agement of celiac disease differ        most common of this is thyroid
                                                                       edge of CD. For patients who are       at different ages and stages            disease, for which patients are
           Bring home a tastier, healthier snack.                      stable, a family physician should
                                                                       be able to provide effective on-
                                                                                                              of life?
                                                                                                              A The gluten-free diet is effective
                                                                                                                                                      monitored. A strict gluten-free diet
                                                                                                                                                      is helpful but does not take away
                                                                       going care. (The website of the        for all ages. One thing that distin-    the risk of developing other auto-
                                                                       Canadian Celiac Association has        guishes children is their growth,       immune disorders completely.
                                                                       some excellent resources for phy-      as CD can negatively impact
                                                                       sicians on this issue.)                growth and development. There-          To summarize: Regular follow-up
                                                                                                              fore, follow up of toddlers and         of patients with celiac disease is
                                                                       Q Are there any ongoing medi-          young children is more frequent         important. The annual follow-up
                                                                       cal tests I should be having?          and should be provided by a             should consist of a detailed his-
                                                                       A The celiac serology (TTG an-         pediatric gastroenterologist. For       tory, review of gluten-free diet
                                                                       tibody blood test), which is ab-       adults, the overall principles of       adherence, complete physical
                                                                       normal at diagnosis, is generally      management/follow-up remain             examination including growth mea-
                                                                       repeated about a year or so after      similar, irrespective of age.           surements (weight, height, body
                                                                       being on a gluten-free diet. The                                               mass index), and checking the TTG
                                                                       test will eventually become nega-      Q What about people who are             antibody and thyroid function. u
                                                                       tive, although it may take longer in   newly diagnosed? What should
                                                                       some patients depending on how         they expect as far as follow up?        Written by Dr. Mohsin Rashid MD, MEd,
                                                                       abnormal it was at the beginning.      A A strict gluten-free diet is highly   AGAF, FRCP(C), Education Committee,
                                                                       Other ongoing tests for nutritional    effective in resolving symptoms         Canadian Celiac Association; Profes-
                                                                       assessment (iron, vitamin D, etc.)     and healing the intestine. Coun-        sor of Pediatrics (Gastroenterology &
                                                                       are repeated if they were abnor-       selling by a dietitian with expertise   Nutrition), Dalhousie University.

                                                                                                     Nairn’s know a thing or two about oats. We’ve been baking with them since
                                                                                                    1896 and they are the main ingredient in everything we make. Whilst our
                                                                                                    product range has changed a lot since our humble beginnings, our commitment
                                                                                                   to making simple, natural and wholesome products that taste great is as import-
              Made with                  Source of       Gluten free                              ant now as it was back then.
              wholegrain oats            fibre
                                                                                                  Oats have become something of a superfood in recent times. Nairn’s diverse oat-
                                                                                                  based range now includes oatcakes, sweet biscuits, crackers and flatbreads and
Discover the range at                                                            Baked            we are continually launching new products to meet consumers needs for tasty and
                                                                              in Scotland.        nutritious healthy snacks.
WWW.NAIRNS-OATCAKES.COM/WORLDWIDE-EXPORT/NAIRNS-CANADA
CanadianCELIAC - IS KISSING OK? GROWING UP CELIAC
May we help you?

    Gluten free superfood                                                             PRECAUTIONARY
                                                                                      LABELLING GUIDANCE
      made super simple
    Bursting with vitamins and nutrients wholegrain oats (like the ones we use in
                                                                                      Watch for an announcement on label reading including may contains from CCA in a few weeks. After consul-
                                                                                      tations with Health Canada and extensive research from a team of dietitians from across Canada, a guidance
                                                                                      document has been developed.

                                                                                      CCA conducted a consumer survey last May and confirmed the confusion of product labels with precaution-
   our flatbreads) always make for a great snack. This recipe is so simple to make,   ary statements.
                    you may never go back to sandwiches again…
                                                                                      CCA has been working with Health Canada and other allied stakeholders to improve food ingredient labels
                                                                                      and to require manufacturers to stop over-labelling where there is no risk to the gluten-free consumer and
Roasted Squash & Carrot Spread                                                        provide more verification of when statements are used.

Ingredients                                                                           Webinar Recording Available: Request to receive a recording of CCA Professional Advisory Council mem-
                                                                                      ber and registered dietitian, Shelley Case’s webinar on Navigating Labels by clicking here.
1kg butternut squash, cubed
4 carrots, chopped
1 large red onion, quartered
3 garlic cloves                                                                       STAKE YOUR CLAIM!
                                                                                      CELIAC AND MEDICAL CLAIMS
1 tsp oregano
Olive oil
Salt & pepper
Your favorite
Nairn’s Flatbreads                                                                    CCA has developed in conjunction with Revenue Canada tax volunteer, Lynda Marie Neilson, a series of
                                                                                      tools and resources to help individuals who wish to claim for the incremental cost of gluten-free products. A
                                                                                      webinar recording, handouts and sample spreadsheet are available by request using this link: https://www.
                                                                                      celiac.ca/news-events/events/

                                                                                      UPCOMING EVENTS
Instructions
Preheat your oven to 390°F.
Add the squash, chopped carrots,
red onion, garlic, oregano into a large                                               GF 101: Navigating the gluten-free diet webinars
baking tray and drizzle with olive oil                                                Join CCA Registered Dietitian Gauri Bawa for our one-hour FREE webinar on how to navigate the gluten-free
and sprinkle a large pinch of salt and                                                diet. Perfect for individuals or caregivers of people who are newly diagnosed.
pepper. Place in the oven for 35-40                                                   Date: Wednesday, February 19
minutes until it browns. Put all the                                                  Time: 9 – 10 pm Eastern
ingredients in a blender and pulse                                                    Click here to register
until desired consistency. Top your
Nairn’s Flatbreads and enjoy!                                                         CCA National Conference
                                                                                      Date: June 5-7, 2020
                                                                                      Doubletree Hilton Hotel, Regina
                                                                                      See pagee 42-43
Discover the range at
WWW.NAIRNS-OATCAKES.COM/WORLDWIDE-EXPORT/NAIRNS-CANADA                                                                                                                           Canadian CELIAC | 11
CanadianCELIAC - IS KISSING OK? GROWING UP CELIAC
N                           17                                                                                                e,      ial

                            Growing up CELIAC
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                            HE SHOOTS, HE SCORES!                                                                                                               Drew Flemming won’t let anything stand in the way of
                                                                                                                                                                his ambitious hockey dreams — not even celiac disease

                                   BY RONNILYN PUSTIL

                                   At age five, when many kids
                                   haven’t learned how to ice skate
                                   yet, Drew Flemming was al-
                                   ready playing hockey in a house
                                   league. Two years ago, as an
                                   eight-year-old in the AA division,
                                   he scored more than 60 goals, by
                                   far the highest on his team. To-
                                   day, he plays for the Windsor Jr.
                                   Spitfires AAA Zone—the highest
                                   level of hockey for someone his
                                   age—and is the third-highest goal     ey because of it. He just kind of                            kind of like a whole team thing,”                figure something out. “One time                  anymore when I go on the ice, so
                                   scorer on his team.                   fought through it.”                                          Lindsay says. Because they’re                    the team went a restaurant that                  I can focus more on hockey and
                                                                                                                                      together so often—as frequent-                   couldn’t accommodate Drew, but                   skills.” His mom agrees: “Since
                                   “Drew is very competitive and         Finally, in May 2017, the Flem-                              ly as six times a week, thanks                   there was a Boston Pizza next                    going gluten free, Drew is stron-
                                   very determined,” says his mom,       mings got an answer to all of                                to practices, games and travel                   door, so we ordered him pasta                    ger, both in his body and mentally
                                   Lindsay. “He wants to win and         Drew’s mysterious symptoms                                   time—“we’re kind of like a big                   from there and brought it into the               at school. He’s a very athletic boy
                                   goes out and tries his best. He’s     when he was diagnosed with                                   family.” Food plays a big part in                restaurant and they were fine with               and just knowing that he’s thriv-
                                   always drawing plays on his           celiac disease. He also had very                             their hockey lives, whether they’re              it. This way he still feels part of the          ing and growing with celiac is our
                                   hockey white board and is always      low levels of iron, a symptom that                           celebrating someone’s birthday or                team and not left out.”                          main goal.”
                                   playing road hockey or shooting       often accompanies a celiac diag-                             eating out on the road. “The other
                                   pucks in the driveway. He watch-      nosis and explains the darkness                              parents have been so awesome in                  Still, Drew sometimes struggles                  Drew has another goal in mind.
                                   es hockey on TV and checks all        around his eyes.                                             accommodating Drew,” says Lind-                  with having to be gluten free: “It               Though he’s a huge Leafs fan, he
                                   the scores and stats on his TSN                                                                    say. “They’ll pick up gluten-free                sucks,” he admits. “I want to be                 would love to meet his role model,
                                   app every morning before school.      The diagnosis offered clarity, but                           pizza for him for birthday parties.              able to eat what everyone else                   Montreal Canadiens player Max
                                   He just loves the game.”              also represented a challenge. “It                            They’re all aware and ask ques-                  does and it’s not fair. When I go to             Domi. Drew has read Domi’s mem-
                                                                         was a big learning curve when he                             tions about how to prepare food                  my friends’ houses, I worry about                oir No Days Off, which chronicles
                                   Drew loves hockey so much             was first diagnosed,” Lindsay says.                          and avoid cross-contamination.”                  the food that they have, or I bring              his life as a kid with type 1 diabetes
                                   that, even when he started com-       “The Canadian Celiac Association                                                                              my own snacks. Sometimes I get                   and his journey to the NHL. They
                                   plaining of stomach aches at age      Facebook page was so helpful.                                Being on the road can be tricky.                 mad that I have it, even though my               have a lot in common: They both
                                   seven, he kept on playing. Around     And a friend whose daughter has                              When they have to travel for                     mom and dad try to make it easier                come from the same hometown of
                                   this time, he was also experienc-     celiac disease was also a good                               a tournament, the Flemmings                      for me.”                                         Belle River, they both play compet-
                                   ing loose stools and headaches,       source of information.”                                      bring their own gluten-free food                                                                  itive hockey and they both have
PHOTOS BY RACHEL MITCHELL

                                   and was throwing up in the mid-                                                                    for breakfast and snacks and                     But despite his young age, he’s                  celiac disease. And neither seems
                                   dle of the night. His parents no-     T EA M P L AY ER S                                           have their go-to places where                    well aware how much being                        to be letting their illness get in the
                                   ticed he was getting dark around                                                                   they know Drew can eat safe-                     gluten free has helped him. “Now                 way of the game. u
                                   his eyes.“He was really sluggish,     When it came time to let Drew’s                              ly. When the team goes out for                   that I’m on a gluten-free diet, I
                                   too,” Lindsay recalls. “But I don’t   teammates and their families                                 dinner, Drew’s parents check the                 feel better and have more ener-                  For top dining out tips
                                   think he ever missed any hock-        know about his diagnosis, “it was                            menu ahead of time and try to                    gy,” he says. “I don’t have cramps               https://youtu.be/ec27yP5zkXY

                                                                                                                                                                                                                                                             Canadian CELIAC | 13
CanadianCELIAC - IS KISSING OK? GROWING UP CELIAC
Growing up CELIAC

CAMP CONNECTIONS                                                                                              Rod McDaniel Celiac Kid’s Camp is the perfect
                                                                                                              summer escape for kids who must eat gluten free

BY THE CALGARY                        “The camp is extremely popu-
CHAPTER, CANADIAN                     lar; always selling out and many
CELIAC ASSOCIATION                    children returning year after year,”
                                      says Calgary Chapter president
                                      Jim Calverley. “This is a true
As kids get older and you’re
                                      success story for the children,
planning their summer, the idea
                                      the community and the Calgary
of sleep-away camp may come
                                      Chapter.”
up. Sleepover camp offers many
benefits to kids—it increases their
                                      Camp Horizon has committed to
confidence and independence,
                                      a safe environment by complet-
and offers new experiences and
                                      ing the GFFP certification prior to
connections with other kids. But
                                      each camp. The chef ensures that
unfortunately for kids with celi-
                                      meals and snacks are gluten free,
ac disease, many camps cannot
                                      and other special diet needs are
accommodate a child’s strict
                                      met. There is also a registered
gluten-free diet.
                                      nurse on site.
Since 1995, the Calgary Chapter
                                      The program is unique in that
of the CCA has partnered with
                                      everyone has a choice of the
camp in Southern Alberta to
                                      activities in which they want to
provide a gluten-free camping ex-
                                      participate. The day begins when
perience for children with celiac
                                      the campers emerge from the
disease.
                                      bunk houses they share with
                                      other girls or boys of similar age
From the original two-day day
                                      and proceed to the grand dining
camp with 12 campers to our
                                      cabin for 8:30 breakfast. Morning
current five-day overnight event,
                                      activities begin at 10, and there
it has evolved and grown into an
                                      are numerous choices including
annual camp for children from
                                      swimming, biking, high ropes,
ages 7 to 17. Over the years,
                                      archery, giant swing, ball games,
both awareness and attendance
                                      arts and crafts and more. Offsite
has grown, and today, kids come
                                      activities include whitewater raft-
from all over Alberta, and many
                                      ing, wilderness survival, overnight
return each year. This August,
                                      outdoor campouts and day hikes.
the camp—which is held in
                                      After lunch, there is a rest period
partnership with Easter Seals at
                                      followed by more great activities
Camp Horizon, wonderful moun-
                                      until dinner at 5:30. The evening
tainous location in the heart of
                                      usually involves team games like
Kananaskis Country—anticipates
more than 80 kids will attend.        Continued on next page                 PHOTOS BY CALGARY CHAPTER, CCA

14 | Canadian CELIAC
CanadianCELIAC - IS KISSING OK? GROWING UP CELIAC
I make friends every year that understand the struggles of having celiac disease. It is also so great to go to a camp where
        I don’t have to worry about food ... It is such an amazing thing not to be the odd one out for once.

Continued from page 14                ute to helpus keep the cost of the
                                      camp as low as possible.
capture the flag, kart races, and
treasure hunts. At dusk campers       Kids who attend typically have
gather for a campfire and s’mores     high praise for the camp. “This
before heading to their bunks.        was my seventh year coming to
                                      celiac camp,” said Sydney, age
The last night of camp is espe-       15, in a note to the camp written
cially memorable. This is when        last summer. “I make new friends
the campers and counsellors           every year that understand the
get their glitz on and celebrate      struggles of having celiac dis-
with a special farewell banquet       ease. These friends have shared
and dance.                            experiences with me at camp that
                                      we will never forget. It is also
Registration fees are subsidized      so great to go to a camp where
through the generosity of some of     I don’t have to worry about food
our chapter members and fundrais-     and where being gluten free is
ing events like the Scotiabank mar-   normal. It is such an amazing
athon. Also, many donors, sponsors    thing not to be the odd one out
and the Edmonton Chapter contrib-     for once.” u

16 | Canadian CELIAC
CanadianCELIAC - IS KISSING OK? GROWING UP CELIAC
When to intoduce gluten to babies?

BABY BITES                                                                                                                            that we offer whole grain glu-
                                                                                                                                      ten-containing foods or fermented
                                                                                                                                      gluten products (like sourdough),
                                                                                                                                      along with an anti-inflammatory
                                                                                                                                                                               Do not put your
                                                                                                                                                                                                     your health care provider about
                                                                                                                                                                                                     the best approach for your family.

                                                                                                                                                                                                     My primary area of research is
                                                                                                                                      diet (think whole foods based diet           child on          coping with celiac disease, so
What’s the best way to introduce gluten to a baby                                                                                     rich in vegetables, fruit, protein,                            please don’t let gluten introduc-
                                                                                                                                                                              a gluten-free diet
who’s at risk of developing celiac disease?                                                                                           healthy fats, iron and low in pro-
                                                                                                                                      cessed foods and sugar). Overall,
                                                                                                                                                                                                     tion be a cause of stress! I do
                                                                                                                                                                                                     not get caught up in measur-
                                                                                                                                      we aim to offer a small amount of       before testing for     ing food and if we are out and
                                                                             no differences in development of
                                                                             celiac disease between early and
                                                                                                                                      gluten to my young boys at two to
                                                                                                                                      three meals per week, which on
                                                                                                                                                                               celiac disease or     my sons have something with
                                                                                                                                                                                                     a larger amount of gluten or
                                                                             late gluten introduction.                                average equals out to about two          consulting with       processed foods, I take a deep
                                                                                                                                      grams or less per day.                                         breath and make a mental note
                                                                             Researchers have also been ex-                                                                  your pediatrician,      to offer less gluten over the fol-
                                                                             ploring how the amount of gluten                         Most importantly: Do not put your                              lowing week or two. We are all
                                                                             in an infant’s diet may impact                           child on a gluten-free diet be-        as this can result in   doing the best that we can do.
                                                                             development of celiac disease. In                        fore testing for celiac disease or                             Aiming to offer a whole foods-
                                                                             2019, results from a prospective,                        consulting with your pediatrician,      false negative test    based diet in your home will
                                                                             large-scale study revealed that a                        as this can result in false negative                           allow you to be more relaxed
                                                                             higher level of gluten consump-                          test results. Make sure to watch              results          when dining out and you have
                                                                             tion over the first five years of life                   for symptoms of celiac disease                                 less control over the food your
                                                                             was an independent risk factor                           and ensure that you speak with                                 child consumes. u
                                                                             for celiac disease. Genetically at-
                                                                             risk children who consumed only
                                                                             two grams per day or less over
                                                                             the first five years of life had the
                                                                             lowest rates of celiac disease au-
                                                                             toimmunity and celiac disease. Ac-
BY JUSTINE DOWD, PHD                  high risk infants (i.e., those with    cording to Andrea Hardy of Ignite
POSTDOCTORAL FELLOW,                  a first degree relative diagnosed      Nutrition, two grams is equivalent
UNIVERSITY OF CALGARY                 with celiac disease). While find-      to about half a cup of whole wheat
                                      ings from several studies suggest      pasta, half an English muffin or
As a diagnosed celiac and mom         that breastfeeding may offer some      half a cup of wheat-based cereal.
of two young boys, I have been        protective effects for infants at      Generally speaking, one serving
eagerly following the research on     high risk of celiac disease, results   of a wheat-based food is equiva-
how feeding practices influence       of a systematic review indicate        lent to two to four grams of gluten.
the development of celiac disease     that breastfeeding does not offer
among infants at high risk of the     any protective effects against the     So what do these recommenda-
disease.                              development of celiac disease.         tions actually look like in everyday
                                      Results of other studies suggest       life with a baby?
Over the past 20 years, research-     that timing of gluten introduction
ers have been examining the           (i.e., before or after four to six     Through discussions with our pe-
                                      months of age) may affect the          diatrician, we decided to introduce
                                                                                                                      PIXABAY PHOTO

effects of breastfeeding, timing of
gluten introduction and quantity of   development of celiac disease,         a small amount of gluten at five to
gluten introduced, on the risk of     however, authors of a systematic       six months of age. When we offer
developing celiac disease among       review concluded that there were       gluten, we do our best to ensure

16 | Canadian CELIAC
Fibre tip sheet

SPOTLIGHT ON
                                                                                                                                                               FIBRE RICH GLUTEN-FREE FOODS

                                                                                                                                                               GRAINS

DIETARY FIBRE
                                                                                                                                                               Food                                                     Fibre (grams)
                                                                                                                                                               1 cup of Almond Flour .................................................... 11
                                                                                                                                                               1 cup of Corn Bran .......................................................... 60
                                                                                                                                                               1 cup Soy Flour .................................................................8
                                                                                                                                                               1 cup of Quinoa ................................................................5
How regular are you? It’s not something you would ask someone at a dinner party but it’s an important                                                          1 cup of Steel-Cut Oats .................................................. 6
question to ask yourself. Canadians in general often don’t get enough fibre in their daily diets. For some-                                                    1 cup of Brown Rice (long grain) ..................................3
one required to be on a gluten-free diet, getting enough fibre in the diet can be more of a challenge.
Fibre, a type of carbohydrate, is part of all plant foods that the body cannot digest or absorb. It is some-
times called roughage or bulk.                                                                                                                                 FRUIT
                                                                                                                                                               Food                                                     Fibre (grams)
                                                                                                                                                               1 cup of Raspberries or Blackberries ......................... 8
TWO TYPES OF FIBRE                   HOW MUCH FIBRE DO ADULTS NEED?
                                                                                                                                                               1 medium Pear ..................................................................6
                                                                                                                                                               1 medium Apple ...............................................................4
                                     Age                                                        Aim for an intake of grams/day
Insoluble-promotes regularity and                                                                                                                              1 medium Banana ............................................................3
                                     Men 19-50 ...................................................................................................... 38
a healthy digestive system           Men 51 and older ......................................................................................... 30
E.g., wheat bran, whole grains       Women 19-50 ............................................................................................... 25
                                     Women 51 and older ................................................................................... 21                 V E G E TA B L E S
Soluble-helps lower blood cho-       Breastfeeding Women 19 and older......................................................... 29
                                                                                                                                                               Food                                              Fibre (grams)
                                     Pregnant Women 19 and older ................................................................. 28
lesterol and control blood sugar                                                                                                                               1 cup of Acorn Squash ................................................... 9
levels, slows digestion and ab-                                                                                                                                1 medium Baked Potato with skin ............................... 4
                                                                                                                                                               1 cup cooked Broccoli ....................................................5
sorption of foods                                                                                                                                              1 cup cooked Spinach ....................................................4
                                     HOW MUCH FIBRE DOES MY CHILDREN NEED?
E.g., oranges, oats, psyllium
                                     Age                                                            Aim for an intake of grams/day
GLUTEN-FREE DIET AND FIBRE           Boys and Girls 1-3 ......................................................................................... 19
                                     Boys and Girls 4-8 ........................................................................................ 25            LEGUMES
                                     Boys 9-13 .........................................................................................................31     Food                                                        Fibre (grams)
Gluten-free diets can often be
                                     Girls 9-13 ......................................................................................................... 26   1 cup of Navy Beans .......................................................19
low in dietary fibre because many    Boys 14-18 ....................................................................................................... 38     1 cup of Black Beans ...................................................... 15
whole grains contain gluten.         Girls 14-18 ........................................................................................................26    1 cup of Lentils ..................................................................16
                                     *There is no upper limit for fibre intake                                                                                 1 cup of Chickpeas             13

                                     Remember to: Read labels for gluten-free products and try to                                                              NUTS AND SEEDS
                                     choose foods with more than 4g of fibre per serving. Contact your
                                                                                                                                                               Food                                         Fibre (grams)
                                     physician or dietitian for further information.
                                                                                                                                                               1 tablespoon of Chia Seeds ..........................................3.7
                                                                                                                                                               ¼ cup of Almonds (whole with skins) .........................3.8
                                     Additional tips: Increase fibre intake gradually.
                                                                                                                                                               1 tablespoon of Sesame Seeds ................................... 1
                                     Starting with a small amount can help prevent abdominal cramps and
                                     gas. Drink more fluids each day as you increase fibre.
18 | Canadian CELIAC                                                                                                                                                                                                                                   Canadian CELIAC | 19
My celiac journey DATING AND REL ATIONSHIPS

             MY CELIAC STORY                                                                                                 If you’re dating
                                                   How young                       bring this up?” I’d wonder. “Will
                                                                                                                          someone who isn’t                     I also made sure to educate my
                                                                                   they find it weird that I’m asking                                           boyfriend on the condition. If
                                                  professional                     them to brush their teeth after             celiac, likely                   you’re dating someone who isn’t
                                                                                   having a beer?” So many anxious                                              celiac, likely they will be con-
                                                     Léa Saad                      thoughts ran through my head,                they will be                    suming products that may not
                                                                                   and I was afraid my condition                                                be gluten free. The best way my
                                             navigates life with                   would steer people away or that              consuming                       boyfriend and I have navigated
                                                                                   they would think I was crazy for                                             this is by carrying a travel size
                                                 celiac disease                    making these odd requests.             products that may                     toothbrush. If Nick decides to
                                                                                                                                                                have a beer, or eat a gluten-con-
                                                    BY LÉA SAAD
                                                                                   Eventually, like everyone facing a     not be gluten free.                   taining dish, he washes his hands
                                                                                   celiac diagnosis, I had to get out                                           and brushes his teeth afterwards.
                                                                                   of my own head and face it—and           The best way my                     We find this helps with preventing
                                           I was 16, in my junior year of high     I’ve learned a lot along the way.                                            potential risk of cross contamina-
                                           school, when the stomach aches          I’m often asked how I navigate           boyfriend and I                     tion. Even though the risk is very
                                           started. “It’s mild stomach pain,       social situations.                                                           minimal, it allows us to both enjoy
                                           sure it’ll go away,” I remember                                                   have navigated                     the things we love.
                                           thinking. I was wrong. I struggled      To that I’d say: It might be hard
                                           with stomach aches for three            in the beginning because friends       this is by carrying                   My last tip would be to empow-
                                           years and had countless doctor          and family may not understand                                                er yourself. Take charge of your
                                           visits before finally getting my        the extent of your condition, but            a travel size                   health. When I was first diag-
                                           celiac disease diagnosis in the         just keep advocating for yourself                                            nosed, I started my blog, www.
                                           summer of 2014.                         and help them understand. Print              toothbrush                      theceleaccorner.com and I started
                                                                                   off information sheets from the                                              sharing my gluten-free lifestyle. I
                                           Today, six years later, I am a young    Canadian Celiac Association’s         When navigating social situa-          share product finds, restaurants,
                                           professional living in Toronto trying   website and share it with them.       tions, your best bet is to educate     and recipes. I also share them on
                                           to navigate her 20’s living with        Educate them on foods you can         yourself! Spend some time doing        my Instagram page. Sharing my
                                           celiac disease.                         or can’t have. I would also sug-      some research on where you can         journey on Instagram has em-
                                                                                   gest connecting with others who       eat, what you can eat, experi-         powered me in so many ways. It
                                           Living with an autoimmune condi-        also live with celiac disease to      ment in the kitchen, and share         has connected me with so many
                                           tion definitely has its challenges,     avoid feeling alone. I have done      this information with others!          fellow celiacs. This has led me
                                           especially one like CD where your       so by joining the CCA’s Facebook                                             to believe that I was meant to
                                           immune response is triggered by a       group. This is a great place to       I put together a list of restaurants   share my story in order to help
                                           ubiquitous ingredient. Post diag-       seek support from others who are      I could safely eat at. Whenever        others. So do not be afraid to
                                           nosis, I definitely worried about       living with the same condition as     my friends or boyfriend want           share yours—you never know
                                           going out with friends. I would         you, and to connect with peo-         to go out, I always make sure          who’s life you may be impacting.
                                           think to myself, “Will they under-      ple who understand what you’re        to recommend a restaurant off          Need some extra support on your
PHOTO BY LÉA SAAD

                                           stand cross-contamination? Will         going through. I found this crucial   my list. If I’m going to a friend’s    journey? You can find me at @
                                           they be ok with me bringing my          in my journey since I am the only     house, I always bring a dish or        leasaad on Instagram or email me
                                           own dish?” I also worried about         one diagnosed in my circle of fam-    dessert to share and nobody            at leasaad@theceleaccorner to
                                           dating. “How and when should I          ily and friends.                      ever complains.                        connect. u

                    20 | Canadian CELIAC                                                                                                                                        Canadian CELIAC | 21
Ask the expert KISSING AND MAKEUP

SEALED WITH A KISS                                                                                                                    THE MAKE-UP
                                                                                                                                                                                                                     ucts are not available in Canada,
                                                                                                                                                                                                                     some were from large companies
                                                                                                                                                                                                                     that also supply products in Cana-

                                                                                                                                      OF MAKEUP
                                                                                                                                                                                                                     da. In dental tablets, mouthwashes
                                                                                                                                                                                                                     and lip-balms, the gluten level was
Can you get ‘glutened’ by smooching                                       minutes then waiting 30 minutes,                                                                                                           within limits not expected to cause
                                                                          or waiting 60 minutes. All partic-                                                                                                         problems in CD (ranging from
someone who just ate gluten?                                              ipants had undetectable peanut                                                                                                             undetectable to 12.2 ppm). Thus
                                                                          after eating a peanut-free meal                                                                                                            94% of the products tested can be
An expert weighs in                                                       (up to five hours after eating                              Some personal care products may                                                considered gluten-free and safe
                                                                          the peanut butter sandwich).
                                                                                                                                      contain a bit of gluten. Here’s why                                            to use by celiac patient. However,
                                                                                                                                                                                                                     four products (three toothpastes
BY D R. JOCELYN SILVESTER                                                 These studies suggest that pea-                             experts say it’s no cause for concern                                          and one lipstick) showed a gluten
                                                                          nut allergen is present in small                                                                                                           level over > 20 ppm (maximum 35
Q I have celiac disease, but my                                           amounts for a limited time after                                                                                                           ppm in one toothpaste brand).
partner doesn’t. Is it safe for me                                        eating a food containing peanuts.                           BY THE CCA PROFESSIONAL                 products to cause the intestinal
to kiss him after he’s consumed                                           Case reports of allergic reactions                          ADVISORY COUNCIL                        damage?                                A smaller US study from 2012
food with gluten?                                                         after kissing identify the                                                                                                                 tested four lip products and two
                                                                          sensitivity of the patient and                                                                      A small handful of studies have        body/face lotions. In this study, the
A Patients ask this question a lot.                                                                                                   Gluten in personal care products,
                                                                          “passionate” kissing as risk                                                                        looked at the gluten content in        products were specifically chosen
To accurately answer it, doctors                                                                                                      toiletries and cosmetics is a com-
                                                                          factors.                                                                                            these personal care products. A        for testing as they contained at
would need to know how much                                                                                                           mon concern among patients with
gluten is in saliva after eating                                                                                                      celiac disease and other gluten-re-     2019 study out of Italy tested 66      least one ingredient derived from
                                                                          How can we extrapolate these                                                                        oral hygiene products and cos-         gluten or oats (as they are contam-
gluten. Unfortunately, this is one    conducted a study to see how                                                                    lated disorders. As these products
                                                                          results to celiac disease? Fortu-                                                                   metics, even though none of the        inated with gluten). There was no
of many practical questions which     long peanut can be detected                                                                     are applied around or sometimes
                                                                          nately, people with celiac                                                                          ingredients in these products came     quantifiable gluten found in any of
has not been well-studied. How-       in saliva. Adults and adolescents                                                               inside the mouth, there is a con-
                                                                          disease don’t get anaphylactic                                                                      from wheat, barley or rye. The re-     these six products.
ever, while specific data on gluten   (without peanut allergy and on                                                                  cern for gluten ingestion. A small
                                                                          reactions to gluten. Also, al-                                                                      searchers studied 36 toothpastes,
is not available, we can learn from   a peanut-free diet for the study)                                                               amount of these products may be
                                                                          though the amount of gluten                                                                         two dental tablets, five mouthwash-
the experiences of people with se-    ate two tablespoons of peanut                                                                   accidentally swallowed, especially                                             Overall, the evidence suggests that
                                                                          transferred through kissing may                                                                     es, 10 lip balms, and 13 lipsticks,
vere (anaphylactic) food allergies.   butter in a sandwich and                                                                        lipsticks, lip balms and toothpastes.                                          it would be rare for enough gluten
                                                                          vary, it is unlikely to be a signifi-                                                               all selected due to their popularity
                                      collected serial saliva samples.                                                                Gluten absorption through the skin                                             to be absorbed into the intestine
                                                                          cant amount. Parts per million is                                                                   in Italian stores and pharmacies.
Local symptoms (for example,          After five minutes, a peanut                                                                    has not been proven to be toxic for                                            following exposure from cosmetics,
                                                                          a concentration, so there is more                                                                   Though many of these exact prod-
hives and mouth swelling) after       allergen was detectable in saliva                                                               patients with celiac disease (CD)                                              shampoo, other toiletries and skin
                                                                          gluten in a 3 oz (90 g)
kissing somebody who has eaten        from 30 out of 36 (83%) partic-                                                                 as it cannot cross from the skin                                               care products. The vast majority of
                                                                          slice of cake with 5 ppm gluten
a food they are allergic to was       ipants. The amount of peanut                                                                    blood vessels into the intestines. It                                          products have a negligible amount
                                                                          than a teaspoon (5 mL) of saliva
spontaneously reported by 5%          allergen ranged from 0.07 to                                                                    is possible that some gluten may                                               of gluten and given the small
                                                                          with 50 ppm gluten. Therefore, it
of respondents to one survey          35 ppm (parts per million). The                                                                 be ingested if the person does not                                             amounts (if any) normally ingest-
                                                                          is safe to say that it’s very unlike-
and 12% of respondents to anoth-      researchers also tested how to                                                                  wash their hands after touching                                                ed, gluten contamination in oral
                                                                          ly that kissing results in signifi-
er survey that asked the question     clean the allergen from                                                                         products prior to eating. In order                                             hygiene and cosmetic products is
                                                                          cant gluten exposure for most
directly. These individuals re-       the mouth.                                                                                      for gluten to cause damage in                                                  unlikely an issue for patients with
                                                                          individuals. u
ported symptoms within minutes                                                                                                        people with CD, sufficient amounts                                             celiac disease. A further advance
of kissing an individual who had      Many different methods were         Thanks to this issue’s expert,                              of gluten must be swallowed and                                                has been the decision by many
eaten the food minutes to a few       found to substantially reduce                                                                   pass into the small intestine where                                            manufacturers to indicate that their
                                                                                                                   FREEPNGING PHOTO

                                                                          Dr. Jocelyn Silvester, Attending
hours earlier.                        the amount of peanut allergen       Physician, Division of Gastroenterolo-                      it causes damage.                                                              products, such as toothpaste and
                                      present, including brushing teeth   gy, Hepatology and Nutrition,                                                                                                              mouth rinses, are gluten free, pro-
Researchers at the Mount Sinai        only, brushing teeth and rinsing,   Instructor of Pediatrics, Harvard                           The question is: Can enough glu-                                               viding additional reassurance for
School of Medicine in New York        rinsing only, chewing gum for 30    Medical School.                                             ten be absorbed from any of these                                              patients with celiac disease. u

22 | Canadian CELIAC                                                                                                                                                                                                                 Canadian CELIAC | 23
The Gluten- Free Certification Program features bakery

     Known for its
   delicious breads,
    Little Northern
       Bakehouse
   is certified 100%
      gluten free.
                                                                                                                                                                                                               PHOTO BY LITTLE NORTHERN BAKEHOUSE

BREAD WINNER
                                                                                                                         Chia Hot Dog Buns                     of the program, Little Northern         allergy-friendly foods products.
                                                                                                                         z Artisan Pizza Crusts: Original      Bakehouse products are regular-         Some of our latest innovations
                                                                                                                         Artisan, Thin Artisan                 ly tested at the bakery by a third      have been exceptionally well-re-
                                                                                                                         z Bagels: Plain, Everything, Cinna-   party to make sure the product is       ceived. For our new line of ba-
                                                                                                                         mon Raisin, Blueberry                 fully gluten free.                      gels, we crafted a gluten-free
                                                                                                                                                                                                       bagel that proudly lives up to our
Q When did Little Northern Bake-        everyone can really enjoy.                Our most popular products are the      Q What’s unique about your            Q Where can customers find              commitment to giving you baked
house get its start?                                                              Seeds & Grains classic loaf and        products?                             Little Northern Bakehouse prod-         goods that aren’t just good for
A Little Northern Bakehouse was         While the founders do not have            Whole Grain Wide Slide loaf for        A They taste like the real thing.     ucts?                                   gluten free, they’re good, peri-
created in 2015 to offer great tast-    celiac, their priority is to provide      their added nutrition and fibre pro-   Everything is gluten free, non-       A Little Northern Bakehouse             od. We are also excited for our
ing bread and bakery products ev-       healthy and honest eating choic-          vided by a delicious array of whole    GMO and made with plant-based         products are found at national          new artisan-style pizza crusts
eryone can enjoy, especially those      es, that are still delicious, for every   grains and seeds. The Whole Grain      ingredients to create truly deli-     grocery stores, Costco, health-         that deliver a delicious choice of
with food sensitivities. At our core,   person to enjoy.                          Wide Slice is especially popular for   cious and soft baked goods.           food stores, and local natural          subtle, doughy original, or crisp,
we’re a bakery before we’re a                                                     sandwich-making.                                                             co-ops throughout Canada and            thin-crust.
gluten-free bakery—a bakery who         Q What products do you offer,                                                    Q Why did you become certified?       the U.S. Find them in the freezer
believes in sharing the joy of ex-      and what’s your most popular              For the complete Little Northern       Why the Gluten Free Certifica-        section of many stores.                 Gluten-free and wheat-sensitive
ceptionally delicious baked goods       item?                                     Bakehouse portfolio:                   tion Program?                                                                 diets are becoming increasingly
with everyone. That dedication          A Little Northern Bakehouse               z Classic Loaves: Seeds & Grains,      A It is very important to Little      To find the store closest to you, use   common, with more food sensi-
extends to all aspects of how we        offers a variety of delicious,            Cinnamon & Raisin, Millet & Chia       Northern Bakehouse to provide         the store finder on our website.        tivities and allergies than ever
make our products so we only use        gluten-free and allergy-friend-           z Wide Slide Loaves: Whole Grain       products our consumers can enjoy                                              before. We hope to continue filling
non-GMO and plant-based ingre-          ly breads and bakery products             Wide Slide, White Wide Slice           and feel safe eating and serving      Q Where do you see as the fu-           any food voids people have with
dients without any eggs or dairy.       including classic loaves, wide slice      z Sprouted Loaves: Sprouted 7          to friends and family. The on-pack    ture of gluten-free products?           delicious products everyone can
In addition, Little Northern Bake-      loaves, sprouted loaves, original         Grain, Sprouted Honey Oat              GFCP seals give our consumers         A Little Northern Bakehouse             enjoy.
house products are free of the top      buns, artisan pizza crusts, and           z Original Buns: Millet & Chia         the confidence and peace of mind      hopes to continue innovating and
nine allergens, making it a product     bagels.                                   Buns, Classic Dinner Rolls, Millet &   our products are safe. As part        offering consumers delicious,           littlenorthernbakehouse.com

24 | Canadian CELIAC                                                                                                                                                                                                     Canadian CELIAC | 25
The GFFP certifies bistro

A FINE TREAT
                                                                            eastern European influence with
                                                                            the tastes of Poland, Germany,
                                                                            Hungary, and Austria.

                                                                            You’ll find dishes such as Pero-
Offering traditional central and eastern                                    gies (varieties include traditional
                                                                            cheese and potato, cabbage and
European menu items, Continental Treat                                      wild mushroom, and spinach and
                                                                            gruyere cheese), Mom’s famous
Fine Bistro is also fully gluten free
                                                                                                                                       GERMAN PICKLED
                                                                            Dill Pickle Soup, Pork and Chicken
                                                                            Schnitzel, and many more. Restau-
                                                                            rant staff are known for making
Located in Edmonton, Continen-
tal Treat Fine Bistro is certified
GF-Dedicated by the Gluten-Free
                                      Continental Treat Fine Bistro has
                                      become a premier choice for
                                      anniversaries, birthdays, romantic
                                                                            every visitor feel welcome, and
                                                                            every occasion a special one.                              VEGETABLE BEEF SOUP
Food Program. It specializes in       dinners, small weddings, and busi-    You may be wondering why Con-
traditional Germanic and Eastern      ness dinners.                         tinental Treat Fine Bistro offers a                        This recipe has been handed        cloves of fresh garlic (minced)      cloth, make a ball the size of a
European dishes, but with a mod-                                            fully gluten-free kitchen. Say the                         down for generations!              season with salt and pepper. Add     golf ball of pickling spice and tie
ern touch.                            Visitors enjoy warm European bis-     owners: “After discovering that                                                               ¾ of a cup of quinoa or similar GF   closed. Add fresh dill and vine-
                                      tro charm with classical jazz music   some of our staff were gluten                              To Make the Stock                  grain. Simmer for 3-4 hours.         gar and parsley. Add vegetable
A family affair, three genera-        playing in the background.            sensitive, we tweaked some of                              z In a large stock pot combine     z Scoop out all vegetables and       bullion only to taste. Simmer 2-3
tions of the Borówka family work                                            our recipes to be gluten-free, and                         water, 6 large beef soup bones     discard.                             hours.
together to bring their romantic,     Executive Chef Elizabeth Pal-         decided, why not go 100%? The                              and 4 beef shanks. You can also                                         z After an hour remove soup
turn-of-the-century dining vision     mowski and her team are con-          rest was history.”                                         use 6 beef short ribs instead      To Make the Soup                     bones and shanks or ribs and
                                                                                                                  PHOTOS CONTRIBUTED

to life. Proud to serve since 1982,   stantly working to innovate the                                                                  z Heat but do not boil. Skim       z Now prepare new onions, car-       remove meat. Add meat to the
owners Ryszard and Helena             menu while keeping the distinc-                                                                  off froth and let simmer for       rots, green beans, cabbage, and      soup.
Borówka, their son Sylvester, and     tive, traditional flavour of our      Continental Treat Fine Bistro is                           4 hours.                           celery in bite sized pieces. Add 1   z In the last 30 minutes, remove
grandsons Matthew and Michal          most popular European dishes.         located at 10560 82 Avenue NW in                           z Add large cut onions, carrots,   can of whole tomatoes and 1 can      dill and pickling spice and add
oversee the restaurant.               The menu reflects a central and       Edmonton.                                                  celery, leeks, 5 bay leaves, 8     of diced tomatoes. Using cheese      fresh peas.
26 | Canadian CELIAC                                                                                                                                                                                                           Canadian CELIAC | 27
Research GLUTEN FREE?

                                                   UNINTENTIONAL
                                                   INGESTION
                                                   You work hard to ensure your diet is 100% gluten free. But is it?

                                                   BY DR. DONALD D UERKSEN                                                     centration of gluten detected in
                                                                                                                               food varied considerably between
                                                   The University of Manitoba Celiac                                           four ppm to as high as > 200 ppm
                                                   Study group recently collaborat-                                            (the mean was 12 ppm). Gluten
                                                   ed with researchers from Boston                                             was detected in the urine of eight
                                                   and Spain to determine whether                                              participants (6% of samples) and in
                                                   individuals with celiac disease on                                          the stool in five participants (11% of
                                                   a gluten-free diet are exposed to                                           samples).
                                                   small amounts of gluten.
                                                                                                                               This real-world study demon-
                                                   To do so, researchers tapped 18                                             strates that gluten exposure may
                                                   adults with celiac disease and                                              occur in individuals who are on
                                                   on a gluten-free diet for two                                               a gluten-free diet and not inten-
                                                   years who were already a part                                               tionally ingesting gluten. In many
                                                   of the University of Manitoba                                               cases, a small amount of gluten
                                                   Celiac Disease Inception cohort.                                            was detected, so the clinical
                                                   These adults were enrolled in the                                           significance is unclear. Further

                              SHUTTERSTOCK PHOTO
                                                   “Determination of Gluten Grams                                              research is needed to determine
                                                   Ingested and Excreted By Adults                                             possible sources, the relationship
                                                   eating Gluten free” (DOGGIE                                                 to symptoms and mucosal recov-
                                                   BAG) study.                                                                 ery, and optimal management
                                                                                                                               approaches.
                                                   Over 10 days, participants saved     No intentional gluten exposures
                                                   a quarter of all of their food, as   occurred during this time. This        Dr. Donald Duerksen is Associate
                                                   well as stool and urine samples,     study found that 12 out of 18 par-     Professor of Medicine, University of
                                                   which were frozen, then analyzed     ticipants had detectable gluten in     Manitoba; Chair, CCA Professional
                                                   for gluten immunogenic peptides.     their food, stool or urine. The con-   Advisory Council

                                                   NEW STUDY – NOW RECRUITING!

                                                   Youth & young adults with celiac disease. If you are between the ages of 12-25 and have been diagnosed
                                                   with celiac disease you are eligible to participate in this online study. This study is conducted through the
                                                   School of Health and Exercise Sciences at The University of British Columbia Okanagan campus by Dr. Mary
Dedicated to   Way of Life!                        Jung and Dr. Justine Dowd. Please email skylar.l.schmidtke@ubc.ca for more information.
                                                                                                                                                Canadian CELIAC | 29
Research GLUTEN EXPOSURE IN SCHOOLS

SAFE SCHOOL SUPPLIES                                                                                                                        z
                                                                                                                                                  Due to gluten found in pastes, clays and other kids’ craft items,
                                                                                                                                                  keeping kids safe at school goes beyond lunch and snacks.

BY D R. JOCELYN SILVESTER                                                                                                                                                         z Gluten-containing dry pasta          surfaces, it may be challenging to
                                                                                                                                                                                  appears to pose a low risk unless      ensure that these occur consis-
Further research from Children’s National in Washington D.C. and                                                                                                                  there is oral exposure.                tently. As well, it is important to
Boston Children’s Hospital is providing more data regarding the risk of                                                                                                           z Gluten-containing wet pasta (e.g.    consider the developmental stage
gluten exposure in schools. The recently released paper, “A Quantita-                                                                                                             sensory tables) tends to adhere        of the individual child and how this
tive Assessment of Gluten Cross-contact in the School Environment for                                                                                                             to hands and other surfaces            might affect their exposure risk.
Children With Celiac Disease” published ahead of print in the Journal                                                                                                             and poses a much higher risk of        For example, some children suck
of Pediatric Gastroenterology and Nutrition helps to answer common                                                                                                                environmental contamination and        their thumb or put their hands or
questions about how to keep children who require gluten-free diets                                                                                                                gluten exposure than dry pasta         other objects (including Play-doh)
(GFD) safe at school.                                                                                                                                                                                                    in their mouth.
                                                                                                                                                                                  Gluten-containing flour, powders
The authors tested four scenarios where it was thought that gluten                                                                                                                and pastes:                            z Surfaces should be cleaned ad-
transfer could be high enough to lead to cross-contact resulting in a                                                                                                                                                    equately before a child with celiac
                                                                                                                                                                                  z Children with CD (and others
gluten-free food having a gluten concentration greater than 20 ppm.                                                                                                                                                      disease works in an environment
                                                                                                                                                                                  who follow a GFD) should only
This threshold was chosen because food containing less than 20 ppm                                                                                                                                                       where wheat flour or wet gluten
                                                                                                                                                                                  work with gluten-free flours, pow-
(less than 0.002 percent gluten) is considered to be “gluten-free” by                                                                                                                                                    containing materials have been
                                                                                                                                                                                  ders and pastes (such as paper
the U.S. Food and Drug Administration and products containing less                                                                                                                                                       used.
                                                                                                                                                                                  mâché)
than 20 ppm gluten can be labelled “gluten-free” in the United States,                                                                                                                                                   z Adequate supervision when glu-
                                                                                                                                                                                  z In classroom environments,
Canada and the European Union.                                                                                                                                                                                           ten containing materials are being
                                                                                                                                                                                  there is a risk if gluten flours are
                                                                                                                                                                                  used. This risk is related to aero-    used in the classroom setting is
THE SCENARIOS TESTED WERE:            a gluten concentration >20 ppm.         detectable for 11/30 participants.                            Play-doh brand modelling clay is                                             essential.
                                                                                                                                                                                  solization of flour, spread of flour
                                      The child who did not have any          Gluten transfer from the surface                              wheat-based and contains signifi-
                                                                                                                                                                                  dust, residual flour when surfaces     z Hand washing is important.
Playing with modelling clay: Play-    transfer did not like the feel of the   occurred more than 70% of the                                 cant amounts of gluten. It should
                                                                                                                                                                                  are not cleaned adequately, and        z Food should never be eaten if
doh contained over 32,000 ppm         pasta and had minimal contact.          time, even after surfaces were                                not be eaten or played with by
                                                                                                                                                                                  unanticipated contact (e.g., spills,   there is visible contamination on
gluten, which is nearly as much       Playing with dry pasta did not pro-     washed.                                                       children who may eat the Play-
                                                                                                                                                                                  food fights).                          hands, surfaces or the food itself.
as in wheat bread. Even when          duce detectable gluten-transfer                                                                       doh, put their hands in their mouth
                                                                                                                                                                                  z Use of gluten-containing liquids
children did not wash their hands,                                            This is the first study to examine                            or engage in other behaviors that
                                                                                                                                                                                  (e.g., pancake mix) or wet pastes      Clear communication with day-
there were no cases of gluten         Paper mâché – All 10 children           common educational activities                                 put them at risk of ingestion.
                                                                                                                                                                                  is a risk for gluten contamina-        care or school regarding celiac
transfer from hands to a slice of     who used paper mâché had a              and it provides useful data to                                z In situations when gluten-free
                                                                                                                                                                                  tion because it can be difficult to    disease, including the need for a
gluten-free bread resulting in a      significant amount of residue and       help guide assessment of risk of                              modelling clay is not available and
                                                                                                                                                                                  remove all traces of gluten from       gluten-free diet and maintenance
gluten concentration >20 ppm.         transferred high amounts of glu-        cross-contact and to advise our                               children are not at risk of inges-
                                                                                                                                                                                  hands and work surfaces.               of a safe environment, is crucial.
In two cases, bread wiped on the      ten to gluten-free bread.               patients with celiac disease (CD).                            tion, play in a supervised setting
                                                                                                                                                                                                                         In addition to these conversations,
table surface with visible contami-                                                                                                         with scrupulous cleaning of hands
                                                                                                                                                                                  It is important to recognize that      a formal 504 Plan or Individual
nation had gluten levels >20 ppm.     Baking project: Thirty children         HERE’S WHAT THEY RECOM-                                       and surfaces to remove all visible
                                                                                                                                                                                  handwashing and environmental          Health Plan (IHP) may be helpful
                                      rolled gluten-containing dough          MEND BASED ON THE RE-                                         contamination is likely safe.
                                                                                                                                                                                  decontamination practices are          for the student with celiac disease.
                                                                                                                   PHOTO FROM BING IMAGES

Sensory tables with dry and wet       and cut-out cookies on a surface        SEARCH:                                                                                             highly variable, particularly among
pasta: After children played with     dusted with gluten-containing                                                                         Pasta:
                                                                                                                                                                                  children and in busy classroom         Reprinted with permission from
wet pasta in sensory tables, 9/10     flour. After washing hands with         Modelling Clay:                                               z Children with CD (and others
                                                                                                                                                                                  environments. While thorough           Boston Children’s Hospital
children had visible contamination    water, soap and water or wet            z Children with CD (and others                                who follow a GFD) should use
                                                                                                                                                                                  cleaning procedures are effective      https://www.ncbi.nlm.nih.gov/
on their hands that transferred       wipes, gluten transfer from hands       who follow a GFD) should use                                  gluten-free pasta for art and other
                                                                                                                                                                                  for removing gluten from most          pubmed/31868785
to gluten-free bread resulting in     to a slice of gluten-free bread was     gluten-free modelling clays.                                  classroom projects

30 | Canadian CELIAC                                                                                                                                                                                                                     Canadian CELIAC | 31
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