Chestnuts - Chestnut Tree House

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Chestnuts - Chestnut Tree House
Chestnuts
Your newsletter from Chestnut Tree House                      Autumn 2021

Here when you need us
With your support, we’ll never stop caring
for local children and their families

ALSO INSIDE...
Making magical moments   |   What you’re helping to achieve    |   Fundraising events to look forward to
Chestnuts - Chestnut Tree House
You’re amazing!
I’m extremely proud to welcome you to your autumn newsletter
and to thank you for standing with us through the COVID-19 crisis
In May, I became the new Chief Executive of Chestnut       As restrictions have started to ease, we’ve been able to
Tree House and learned of your incredible support.         reopen for day visits and short breaks, giving the children
In what has been a truly challenging time for all of us,   and their families some much
you kept reaching out to help others through your          needed ‘me’ time. We couldn’t
generous gifts and virtual fundraising activities – as     have done it without you, and
well as taking part in our Spring Raffle, weekly Lottery   I know your generosity will go
and visiting our online shop.                              on long after the pandemic. I
                                                           really can’t thank you enough.
With your help, and with everyone working together to
manage changes, we’ve been able to continue delivering
                                                           Warmest wishes
outstanding care and support to local children with
life-limiting conditions and their families at the time
when they need it most. They include Vicki and her
                                                           Ben
little daughter Faith, who you can meet on page 3.         Ben Merrett, CEO

                                                           You did it!
                                                           A huge thank you to everyone who
                                                           donated to our summer appeal,
                                                           featuring Jack and his parents, Emma
                                                           and Kevin
                                                           Caring for a child with complex needs is far from
                                                           straightforward, and the pandemic has made it even more
                                                           difficult. With our day services on hold and many families
                                                           shielding to keep their vulnerable youngsters safe it’s been
                                                           harder than ever to take a break, which is why we’re so
                                                           grateful for your outstanding support.
                                                           Together, you’ve raised an incredible £31,543 to help
                                                           us welcome back children like Jack to do all the things
                                                           they love. And you’ve given Emma, Kevin and many more
                                                           devoted parents the chance to relax and recharge their
                                                           batteries, ready to face another day.

                                                           “Jack has been going stir-crazy without Chestnut.
                                                            When they were finally allowed to open their
                                                            doors again, he was ready for his stay, I can tell
                                                            you that!”
                                                            Emma, Jack’s mum

Stay in touch         Email hello@chestnut.org.uk              ChestnutTreeHouse             @ChestnutSussex

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Chestnuts - Chestnut Tree House
Making happy
memories
Thanks to you, we can give two-year-old
Faith and her family the chance to relax,
have fun and escape life’s pressures
 In 2018, Vicki from Haywards Heath attended her 16-week
 baby scan. She was full of excitement and couldn’t wait
 to welcome a new sister for her children Lily and Logan.
 Instead, she received some devastating news. Vicki’s baby
 daughter had an occipital encephalocele, which meant her          “Faith’s vision, hearing and mobility are severely impaired,”
 skull hadn’t fused properly. A specialist hospital confirmed      explains Vicki. “She has to be tube fed and no one dares
 the diagnosis and told Vicki that her little girl was unlikely    talk about her life expectancy, because she’s done
 to survive.                                                       amazingly to even get this far.”
 “They told us she had less than a one per cent chance,”          “ The children love it”
 explains Vicki. “And that even if she lived, she would be
                                                                   In January, Faith celebrated her second birthday, and the
 wheelchair bound and never see, hear or breathe unaided.
                                                                   family chose their favourite photos from every month of
 But they also couldn’t guarantee that.”
                                                                   her life. “At least half of our favourite memories with Faith
“ I wanted to keep going”                                          are because of Chestnut Tree House,” says Vicki.
 Refusing a termination, Vicki was determined to fight             The hospice has been a lifeline for the whole family,
 for her baby. Thankfully, she received support from               enabling them to escape from everyday pressures, attend
 a bereavement midwife, who suggested a referral to                events in their local community and even make new friends.
 Chestnut Tree House. “I contacted Lucy, a Community
                                                                   “Lily met a little girl who is her age, but in a wheelchair and
 Nurse at the hospice, who listened to our story and said
                                                                   who can only communicate through slight eye movement,”
 that they were there to support us whether Faith passed
                                                                   explains Vicki. “She’s made friends with the girl and her
 away at birth or if we needed end-of-life care. We wouldn’t
                                                                   sister, and they sit there having a laugh. It’s great for her
 just have the baby and then have to walk away.”
                                                                   to see that there are other families like ours. It gives her
 Faith was born on Wednesday 16 January 2019, and                  people to talk to who understand and it has given her a
 despite her obvious brain exposure, she was breathing.            more positive outlook.”
 At just 36 hours old, she underwent seven-hours of
 surgery to help correct her brain exposure. Since then,          “ We get to be a family”
 Faith has been cared for by the hospice and continues to          When asked what life would be like without Chestnut Tree
 defy all expectations, but she has very complex needs.            House, Vicki says, “I don’t know. It would take away a big
                                                                   part of Faith’s quality of life. The swimming, the sensory
                                                                   room, everything. We couldn’t do that without them.
                                                                   “If you’re thinking about fundraising for your local children’s
                                                                   hospice, then all I can say is thank you. Because of you, we
                                                                   are not always in hospital surrounded by machines, we are
                                                                   somewhere that feels like home. And that is massive.”

                                                                   Meet Vicki, Faith and the family
                                                                   Vicki and her family have faced enormous
                                                                   challenges and know that Faith’s future is uncertain,
                                                                   which makes their positivity all the more moving.
                                                                   You can meet this lovely family and hear what Vicki
                                                                   has to say at: www.chestnut.org.uk/faiths-story

      Write to Chestnut Tree House, Dover Lane, Poling, Arundel, West Sussex BN18 9PX                Telephone 01903 871820

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Chestnuts - Chestnut Tree House
Back in business
In April, we were delighted to reopen
our shops and warehouse, and welcome
back our wonderful customers
Many of our volunteers have returned and we were
pleased to welcome new members to the team. Together
with our staff, they rang up record sales in the first few
weeks, thanks to your outstanding support.
It’s brilliant to be back, and we’re very grateful for all
your generous donations. We also appreciate your
patience during the times we had to temporarily
suspend donations to ensure safe capacity and the
safety of our staff and volunteers.

                                                               Granny Rosie’s kindness
                                                               Chichester resident Rosie Turner is fondly known as
                                                               Granny Rosie, and over the years she’s adorned our
                                                               Chichester shop windows with her colourful knitted
                                                               characters – attracting lots of customers inside and
                                                               leading to many donations. Now, Granny Rosie features
                                                               in a wonderful new book written by her daughter-in-
                                                               law, the bestselling author Kate Mosse. ‘An Extra Pair
Paul’s pledge                                                  of Hands’ is an inspiring story about caring for those we
                                                               love, and we were thrilled when Granny Rosie and Kate
Arundel post office owner and postmaster Paul Money is a
                                                               popped in to say hello. As always, Granny Rosie had
great supporter of Chestnut Tree House and has generously
                                                               plans for more knitting!
offered to donate towards the running costs of our Arundel
charity shop for the next two years. For the first year Paul   You’ll find more information on all of our shops at
has donated funds towards a new shop laptop.                   www.chestnut.org.uk/shops

                                                               Your Will can help others
                                                               October is Make a Will month, when some local
                                                               solicitors agree to waive their Will-writing fees in
                                                               lieu of a donation to Chestnut Tree House
                                                               During October, you can have a simple single Will written
                                                               for just a £110 donation, or a simple joint Will for £160.
                                                               It costs £116.79 per hour to provide the community
                                                               services that allow children with life-shortening
                                                               conditions receive care in their own homes, so the
                                                               suggested donations will make a real difference.
                                                               To find out which solicitors are taking part and how
                                                               Make a Will Month works, visit www.chestnut.org.uk/
                                                               makeawillmonth or call 01903 871820.

Stay in touch          Email hello@chestnut.org.uk                 ChestnutTreeHouse            @ChestnutSussex

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Chestnuts - Chestnut Tree House
Meet our lead                                                  We need you!
volunteers                                                      Our income plummeted by 70% during the
                                                                COVID-19 crisis and, with less than 9p in every
                                                                pound being funded by the government, we rely
A huge thanks to the dedicated                                  on your support more than ever. Here are just
volunteers who have helped establish                            some of the ways you can help provide crucial
this new and exciting role                                      hospice care for local children, week after week.

                                                                Could you be a winner?
                                                                Play our Chestnut Tree House Lottery from just
                                                                £1 a week and help raise crucial funds to ensure
                                                                our services can continue
                                                                If you’d like the chance to become our next Lottery
                                                                winner and scoop £1,000 or one of 22 other weekly
                                                                cash prizes, join now at www.chestnutlottery.org.uk
                                                                or call the Lottery Team on 01903 871842.

“You’re on mute!” How many of us have heard
                                                                Promoter: St Barnabas Hospices (Sussex) Ltd. Responsible Manager:
that phrase as we’ve battled with technology to                 Becki Jupp. Licensed under the Gambling Act 2005. Registered Charity
stay in touch with family, friends and colleagues?              Number 0256789. www.gamblingcommission.gov.uk Players must be 16
                                                                years old or over and a UK resident.
Thankfully, it hasn’t stopped a group of hospice
volunteers who have spent the last few months helping
to create and define a new ‘Lead Volunteer’ role. With
over 50 years of volunteering experience between
                                                                Make a monthly donation
them, they were perfect for the job and came up with            Your kind donations cover at least 75% of our
lots of good ideas for what promises to be a really             care costs for children across East and West
rewarding role.                                                 Sussex and South-East Hampshire.
                                                                Thanks to supporters like you, we’ve managed to keep
Our Lead Volunteers will manage community events,
                                                                going during the pandemic and continue providing
act as hospice ambassadors and coordinate other
                                                                life-changing care for children and families who really
volunteers. If you’re interested, please contact us at
                                                                need it. But we now need to recoup and plan for
hello@chestnut.org.uk
                                                                further difficult times ahead. By giving a regular gift
                                                                of as little as £5 a month you can really help us, and
  “You get back far more than you give”                         by adding Gift Aid you’ll enable us to claim an extra
   Hospice volunteer                                            25p for every £1 you give. You can make a regular
                                                                gift online at www.chestnut.org.uk/regulargift

     Write to Chestnut Tree House, Dover Lane, Poling, Arundel, West Sussex BN18 9PX                 Telephone 01903 871820

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Chestnuts - Chestnut Tree House
Join us for                                                   Castle Night Trek
                                                              Saturday 14 May 2022

fun filled
                                                              Our long-awaited night-time
                                                              trek around the grounds of

events
                                                              Herstmonceux Castle is sure
                                                              to be spectacular, so grab your headtorch and join us.
                                                              Register your interest on our website today!

Challenge yourself and do something
amazing for Chestnut Tree House. Whatever
your passion, we’ve got something for you!

LA10k
Saturday 5 September
It’s been a while, and we’ve missed those start line

                                                                 Thank you!
butterflies, home stretch highs and running together again
Whether you’re a first-time runner or looking for your PB,
come and join us. You can register until 31 August from
                                                                 We were able to hold a couple of fantastic
just £22.
                                                                 events this summer and we’re really grateful
                                                                 to everyone who took part
    Thrilling skydive         31 October                         It was brilliant to welcome back our team of MTB heads
    Register now for the ultimate                                for Hit the Downs and to ride the trails together,
    scream at Halloween. Take on                                 raising vital funds for Chestnut Tree House. An
    our thrilling 125mph skydive                                 incredible 600 riders took to the hills and raised over
    and get that exhilarating                                    £26,000 – an achievement we can all be proud of.
    feeling while raising
                                                                 Our White Cliffs abseil in Peacehaven on 3 July
    money to provide care
                                                                 was another huge success. Plucky participants took
    to the children
                                                                 on the exhilarating 120-foot descent to support our
    and families we support.
                                                                 work. You’re all heroes in our eyes!
                                                                 Of course, none of our events would be possible
Nurses Steps           February 2022                             without our wonderful volunteers, so thank
                                                                 you all. We couldn’t do it without your support.
Our Chestnut Tree House challenge is back with a bang.
Walk in the footsteps of our fantastic hospice nurses,
by taking either 7,000 or                                         Get involved
10,000 steps a day throughout                                     Visit www.chestnut.org.uk/challenge-events
February. This is a great way                                     to choose your challenge and register today.
to keep fit and support local                                     All registrations come with our COVID Promise,
children needing hospice care.                                    allowing you to sign up with confidence.

Corporate events
Chestnut Tree House Golf Day
Friday 3 September, Slinfold Golf Club – £380 for a team of four
Our annual charity Golf Day is set in the beautiful Sussex countryside, with
an 18-hole golf course spanning 165 acres of mature park and woodland.
Your day starts with registration and refreshments at 9am and finishes with a
delicious barbecue you can invite your colleagues, friends and family to attend,
complete with live entertainment and a silent auction (subject to COVID
restrictions). For more information, sponsorship opportunities and to book a
team, please email corporate@chestnut-tree-house.org.uk

Stay in touch          Email hello@chestnut.org.uk                 ChestnutTreeHouse           @ChestnutSussex

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Chestnuts - Chestnut Tree House
Christmas
crackers!                                                          Santa Night iDrop
                                                                   Saturday 20 November 2021
                                                                                      Ho ho ho! Our popular Santa
With our fabulous festive fundraisers, you
                                                                                      iDrop is back, and we’re inviting
can help make Christmas sparkle for the                                               you to test your nerves and see
children we care for and their loved ones                                             breathtaking views of Brighton
                                                                                      in this iconic i360 abseil with

Choose our Christmas cards                                                            a twist. Every penny you raise
                                                                                      will help our patients and their
Our 2021 range of Christmas cards has a delightful                 families through their own personal challenge, so
design for everyone. They come in packs of 10 and                  please sign up today.
you can buy them in our charity shops, use the form                Registration is just £45, with a minimum
enclosed with this newsletter or order online at                   sponsorship of £285 and you can find out more at:
www.chestnut.org.uk/onlineshop                                     www.chestnut.org.uk/santa-night-idrop-2

              Enjoy Reindeer Fun
                 From dazzling Christmas dance-offs
                 to a festive run or ramble, enjoy some
                exciting Reindeer Fun                              Christmas tree collections
             There are loads of reindeer-themed frolics            Following last year’s successful pilot, we’re
          to choose from, and we’ll give everyone free             expanding our Christmas tree collection in
           antlers, a red Rudolph nose and a Santa                 partnership with the fantastic charity, JustHelping
            suit (one suit per group). All we ask is that          As well as collecting trees in Brighton, we’ll be visiting
            you have lots of fun and raise as much                 Southwick, Shoreham, Bognor Regis, Crawley, Hastings
            sponsorship money as you can for Chestnut              and St Leonards. The collections will take place in early
             Tree House. Find out more and sign up today           January, so please check our website and social media
                   at: www.chestnut.org.uk/reindeer-fun            in December for more details. And if you’d like to help
                     Our thanks to the Lodge of Union 38, Sussex
                                                                   collect the trees, we’d love to hear from you. Just email
                     Freemasons for sponsoring Reindeer Fun 2020   hello@chestnut.org.uk

Animal World sensory networking
Wednesday 29 September 2021, from 11am – 1pm
Stanhill Court Hotel
Meet other like-minded businesses and discover the
sensory world loved by children with life-shortening
conditions, as you cuddle Louie the baby meerkat or
stroke Felipe the chameleon.
After a long period of uncertainty about the future, this
is a great time to grow your contact list and learn about
the sensory activities we offer. Reserve your place now by
emailing: corporate@chestnut-tree-house.org.uk

     Write to Chestnut Tree House, Dover Lane, Poling, Arundel, West Sussex BN18 9PX               Telephone 01903 871820

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Chestnuts - Chestnut Tree House
A million thank yous
You stood with us through the pandemic and helped make 2020 another
year of love, care and comfort for local children and their families

  274 children and young
    adults received our
  services across East and                                         596 COVID-safe community visits
  West Sussex and South                       974 overnight       were made by both Nurses and Care
      East Hampshire.                     stays took place,       Support Workers. This is despite the
                                          mainly for crisis or     impacts of shielding and lockdown
                                           end of life care.     restrictions, which made some families
                                                                 wary of using secondary care services.

    60 Annex activity day sessions were                               990 counselling and
   held from August to November, when                               therapy support sessions
   restrictions were lifted. Over the year,                        were provided for children
   our Activities Team sent out 819 fun                               with life-shortening
    activity packs to help keep children                              conditions and their
       entertained during lockdown.                                parents/carers and siblings.

Your kindness is incredible, and we hope you’re proud of these achievements.
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