G25 JOURNEY TAMIL NADU STATE AIDS CONTROL SOCIETY - Tamil Nadu State AIDS Control ...
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E BRATI
L N
E G
25
C
JOURNEY
IN THE FIELD OF PREVENTION-TO-CARE CONTINUUM
OF HIV / AIDS SERVICES
TAMIL NADU STATE AIDS CONTROL SOCIETY
MESSAGE MESSAGE
MESSAGE
In order to give an impetus to prevent the spread of HIV in our State,
Hon’ble Puratchi Thalaivi AMMA, created the Tamil Nadu State AIDS
Control Society (TANSACS) way back in 1994. Tamil Nadu thus became the
first state to constitute a State AIDS Control Society which was later
emulated by other states. TANSACS has successfully completed 25 years of
its journey and has achieved and is sustaining the intended results. The
Government of Tamil Nadu gratefully acknowledges the contributions made
by various stakeholders of TANSACS, who have helped in decline of
HIV/AIDS epidemic in the State.
Government of Tamil Nadu, in the footsteps of Hon’ble AMMA, has
successfully implemented various programs and innovations towards the
prevention and control of HIV/AIDS epidemic and has also extended the
continuum of care and support services to the People Living with HIV
(PLHIV) and High Risk Groups through TANSACS.
My best wishes to TANSACS on completion of 25 years in
successfully combating HIV/AIDS and I am confident that all the key
stakeholders and likeminded NGOs/CBOs, HIV Positive Networks and
Dr. Edappadi K. Palanisamy Dr. C.Vijaya Baskar
Partner Organizations will continue to work together to achieve the goal Minister, Health & Family Welfare Department,
Chief Minister, Tamil Nadu of “HIV FREE TAMIL NADU”, as well as provide care & support to the Tamil Nadu
PLHIVs.
(K. PALANISAMY)
Chief Minister of Tamil Nadu
2 3
FOREWORD CONTENTS
1 . J O U R N E Y O F TA N S A C S . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6
2 . TA RG E T 9 0 - 9 0 - 9 0 . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7
3. THE GENESIS .................................................................................................................... 8
4 . S E RV I C E S & P RO G R A M M E S . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 0
4.1. D S RC S U G A VA Z H V U M A I Y A M . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 1
4.2. I C TC N A M B I K K A I M A I Y A M . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 2
4.3. A N T I R E T ROV I R A L T H E R A P Y C E N T R E S A RT C E N T R E S . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 3
4.4. L A B O R ATO RY S E RV I C E S . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 4
4.5. S TAT E B L O O D T R A N S F U S I O N C O U N C I L ( S B TC ) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 5
4.6. S T R AT E G I C I N F O R M AT I O N M A N A G E M E N T U N I T ( S I M U ) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 6
4.7. I N F O R M AT I O N E D U C AT I O N A N D C O M M U N I C AT I O N ( I E C ) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 7
4.8. TA RG E T E D I N T E RV E N T I O N ( T I ) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 8
Dr. Beela Rajesh, I.A.S.
4.9. T E C H N I C A L S U P P O RT U N I T ( T S U ) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 9
Secretary to Govenment, Tamil Nadu
4.10. D I S T R I C T A I D S P R E V E N T I O N A N D C O N T RO L U N I T . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2 0
5. 25 YEARS OF TEAM CASCADE ............................................................................................21
6. EVENTS.............................................................................................................................25
7 . A N E C D OT E F RO M T H E F I E L D . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2 6
AIDS / HIV
4 5
AN AMBITIOUS
JOURNEY OF TANSACS THROUGH T R E AT M E N T TA R G E T
NATIONAL AIDS CONTROL PROGRAMME (NACP) TO HELP
END THE AIDS
IV NACP IV (2012+)
EPIDEMIC
Consolidated gains, focus
on High Risk Groups,
scaling up of services,
quality assurance.
III NACP III (2007- 2012)
Massive scale up with quality
assurance mechanisms.
50% reduction in new
II NACP II (1999- 2006) infections achieved. COMMUNITY MOBILIZATION DONE
Decentralisation to
states. AT THIRUVALLUR DISTRICT TO
I NACP I (1994- 1999) Limited coverage of ACHIEVE THE FIRST 90 OF THE
Initial Interventions.
90-90-90 TARGET.
services.
6 7
2017
THE GENESIS 2001 HIV Prevalence in the state is now 0.27%
which is less than National Average (as per
In 2001, HIV prevalence in the State was
2017 HSS) due to the collective efforts by
1.13% which has fallen to 0.58% (as per
TANSACS along with community
2007 HIV Sentinel Surveillance Report)
1994
participation.
due to the intensive efforts taken by the
TANSACS.
1993 Tamil Nadu State AIDS Control Society
(TANSACS) registered in 1994 is the first
The State AIDS Project Cell was such society in India for the prevention and
formed in January 1993 in control of HIV / AIDS.
1986 Tamil Nadu.
T h e 1 st H I V c a s e i n I n d i a w a s
detected in 1986 in Madras
Medical College, Chennai.
HIV DOES NOT MAKE PEOPLE DANGEROUS TO KNOW,
SO YOU CAN SHAKE THEIR HANDS AND GIVE THEM A
HUG: HEAVEN KNOWS THEY NEED IT.
- Princess Diana
8 9
DSRC
(Designated STI/RTI Clinics) 01 D S R C ( S U G A VA Z H V U M A I YA M )
ICTC
02
(Integrated Counselling and testing services)
D e si g n a t e d S T I / R T I C l i n i c s ( D S R C s)
ART
03
(Anti-Retroviral Therapy Centres ) a r e f u n c t i o n i n g a t a l l t he se c o n d a r y a n d
04
tertiary level government ho s p i t a l s.
Laboratory Services Counselling, testing and treatment for
Sexually Transmitted Infections (STI) are
TANSACS
SBTC
05
(State Blood Transfusion Council) p r o v i d e d a t t he s e C e n t r e s . S y n d r o m i c C a se
Ma n a g e m e n t a p p r o a c h i s f o l l o we d a t t he se
PROGRAMME SIMU
06
(Strategic Information Management Unit)
clinics for treatment of Sexually Transmitted
Infections and appropriate pre-packed color
IEC
07
(Information Education and Communication)
coded drug kits are given for treatment of
sy n d r o m e s.
TI
(Targeted Intervention) 08
09
1
TSU
(Technical Support Unit)
DAPCU
(District AIDS Prevention and Control Unit) 10
10 11
I C T C ( N A M B I K KA I M A I YA M ) ANTI-RETROVIRAL THERAPY CENTRES (ART CENTRES)
I n te g r a te d Co u n se l l i n g a n d T e sti ng Ce n tr e s
( I C TC ) i s th e e n tr y point for p r e v e nti o n - to - c a r e
c o n t i n u u m o f H I V / A I D S r e l a te d se r v i c e s. I CT Cs a r e A n t i - R e tr o v i r a l T h e r a p y C e n t re s ( A RT C e n t r e s )
b r a n d e d a s “ N a m b i k a i M a i y a m ” a n d th i s f a c i l i ty i s p r o v i d e l i f e - l o n g c a r e , su p p o r t a n d t re a tm e n t se r v i c e s f o r
a v a i l a b l e i n a l l p r i m a r y to te r ti a r y c a r e g o v e r n m e n t P e o p l e L i v i n g w i t h H I V / A I D S ( P L H I V ) . A RT C e n t r e s a r e
h o sp i t a l s. Co u nse l l i n g , te sti ng and need b a se d a v a i l ab l e at a l l t h e D i s t r i c t h e a d q u a r te r s h o s p i t a l s a n d
r e f e r r a l - l i nk a g e se r v i c e s a r e p r o v i d e d f r e e o f c o st a t m e d i c al c o l l e ge h o s p i ta l s i n t h e s t a t e . C o u n se l l i n g, L a b
2 3
d i a g n o s i s , t r e a t m e n t a n d l i n k a g e to so c i a l p r o te c t i o n
t h e s e C e n tr e s.
s c h e m e s a r e t h e k e y se r v i c e s p r o v i d e d a t t h e s e C e n t r e s .
T a m b a ra m S a n a t o r i u m H o s p i t a l ( C h e n n ai ) f u n c ti o n s a s t h e
C e n t r e o f E xc e l l e n c e ( C o E ) f o r H I V / A I D S tr e a t m e n t w i t h
s e c o n d a n d t h i r d l i n e A RT t r e a tm e n t f a c i l i t y .
12 13
5
T amil Nadu State Blood Transfusion Council (TNSBTC) with the
L ABORATORY SERVICES support of TANSACS runs 90 government blood banks across the state.
Around 4 Lakh units of blood is handled by these blood banks every year.
DID YOU KNOW
Counselling, screening, testing and other related services are provided at
that your HIV status can be
known within
these blood banks. Voluntary blood donation camps are organized regularly
30 minutes.
by these blood banks for collection of blood units.
STATE BLOOD TRANSFUSION COUNCIL(SBTC)
F I G H TAIDS A
NOT I
D
PEOPLE WITH S
DID YOU KNOW
1 Unit of blood can
save 3 lives!
L aboratory services function as the cross cutting interface for all the
services provided through ICTCs, DSRCs, ART, and Blood Banks. Lab Services
4
are attached with all the service delivery points of TANSACS. The assurance of
quality of HIV testing is ensured through External Quality Assessment Scheme
(EQAS) by reference laboratories, both at state and national level. These labs
are interlinked with 12 State Reference Laboratories and 3 National Reference BLOOD TRANSFUSION
Laboratories in the state.
SERVICES
14 15
STRATEGIC INFORMATION MANAGEMENT UNIT(SIMU)
IT IS BAD ENOUGH THAT
PEOPLE ARE DYING OF AIDS,
BUT NO ONE SHOULD DIE OF
IGNORANCE
- Elizabeth Taylor
INFORMATION EDUCATION AND COMMUNICATION(IEC)
7
T he SIMU division manages the reports of over 3000 facilities across the state that C ommunication is the key to generate awareness about prevention, care,
6
reports on various components of HIV/AIDS program. Strategic Information Management support and treatment services of HIV/AIDS. IEC is done through mid-media,
System (SIMS), PLHIV-ART Linkage System (PALS) and Supply Chain Management system mass-media and virtual medium campaigns to reach out to people with appropriate
(SCM) are the various platforms used by SIMU division for data collection and analysis. prevention messages. Youth groups are engaged through Red Ribbon Club (RRC)
Monitoring of the program implementation, data analysis and evidence based strategic activities at schools & colleges across the state to make them aware of HIV/AIDS. Folk
planning based on above tools are done by the SIMU division. Media is engaged to create awareness about HIV/AIDS in rural parts of the state.
16 17
TARGETED INTERVENTION(TI) T echnical Support Units are established by NACO to provide Technical assistance to State AIDS Control Societies
(SACS). Mandate of TSU is to support SACS to achieve the goals of the National AIDS Control Program, through mentoring
and hand-holding visits, capacity building, data analysis and evidence based strategic planning. TSU coordinates with all
the components and divisions of SACS for improved quality of program.
LET’S JOIN HANDS...
LoremTO FIGHT...
ipsum
LoremLorem
ipsumipsum
TO PROTECT...
Lorem ipsum Lorem ipsum
TO GIVE...
OUR LOVED ONES
A HEALTHY TOMORROW
T argeted intervention is a flagship prevention initiative of National AIDS Control Program, implemented
8 9
by TANSACS through engagement of Non-Government and Community Based Organizations. The aim of the TI
program is to prevent HIV among the High Risk Groups (HRG) like Female Sex Workers (FSW), Men who have Sex
with Men (MSM), Transgender (TG) and Injecting Drug Users (IDU). The program also caters to migrants and
truckers who are termed as bridge population. Behavioural change communication, referral and linkage services
to STI & HIV counselling and testing services, supply of free condoms are the services provided through TI
projects. TECHNICAL SUPPORT UNIT (TSU)
18 19DISTRICT AIDS PREVENTION AND CONTROL UNIT (DAPCU) 25 YEARS OF TEAM CASCADE
PROJECT DIRECTOR / MEMBER SECRETARIES
S.No PROJECT DIRECTOR FROM TO S.No PROJECT DIRECTOR FROM TO
ASPIRING FOR
AIDS FREE
1 Thiru P. R. BINDU MADHAVAN, I.A.S., 04-05-1994 04-08-1996 15 Thiru RUOLKHUMLIEN BUHRIL, I.A.S., 01-02-2011 06-06-2011
2 Thiru S. RAMASUNDARAM, I.A.S., 05-08-1996 30-11-1997 16 Thiru V.PALANIKUMAR, I.A.S., 08-06-2011 27-09-2011
INDIA
3 Thiru S. ALLAUDIN, I.A.S., 01-12-1997 11-01-2000 17 Dr A. CHITTARANJAN MOHAN DOSS, I.A.S., 27-09-2011 28-09-2012
4 Thiru T. JACOB, I.A.S.,(I/C) 12-01-2000 23-05-2000 18 Thiru KUMAR JAYANT, I.A.S., 28-09-2012 12-05-2013
5 Dr K. GOPAL, I.A.S.,(I/C) 24-05-2000 07-06-2001 19 Thiru KUMAR JAYANT, I.A.S.,(I/C) 13-05-2013 12-06-2013
6 Thiru R. CHRISTODAS GANDHI, I.A.S., 26-06-2001 28-08-2002 20 Thiru RAJENDRA RATNOO, I.A.S.,(I/C) 13-06-2013 30-08-2013
7 Thiru K. DEENA BANDU, I.A.S., 29-08-2002 19-06-2004 21 Thiru D. VIVEKANANDAN, I.A.S., 30-08-2013 31-12-2013
8 Dr S. VIJAYAKUMAR, I.A.S., 20-06-2004 05-03-2006 22 Dr P. SENTHIL KUMAR, I.A.S.,(I/C) 31-12-2013 17-02-2014
9 Thiru SHAKTIKANTA DAS, I.A.S., 06-03-2006 17-05-2006 23 Thiru D. VIVEKANANDAN, I.A.S., 17-02-2014 30-06-2014
12-03-2015
U nder NACP-phase III, programme implementation was decentralized to 10 Tmt SUPRIYA SAHU, I.A.S., 18-05-2006 20-12-2008 24 Dr C. N. MAHESHVARAN, I.A.S.,(I/C) 01-07-2014
10
district levels. As part of this decentralisation, District AIDS Prevention and Control Units 11 Dr S. VIJAYAKUMAR, I.A.S., 21-12-2008 16-02-2010 25 Thiru S. NATARAJAN, I.A.S., 12-03-2015 13-04-2017
(DAPCU) have been established to coordinate and monitor the implementation of HIV/AIDS 12 Thiru SHAMBHU KALLOLIKAR, I.A.S., 17-02-2010 06-10-2010 26 Dr K. SENTHILRAJ, I.A.S., 13-04-2017 18-12-2019
activities at the district level. DAPCU acts as the ‘single window’ for facilitating social PRESENT
13 Tmt P. AMUDHA, I.A.S., 06-10-2010 10-01-2011 27 Thiru DEEPAK JACOB, I.A.S., 18-12-2019
protection & entitlement schemes of state and central governments for the PLHIV and
14 Thiru K. S. MUTHUSWAAMY, I.A.S.,(I/C) 10-01-2011 31-01-2011
HRGs. DAPCU also focuses on mainstreaming and convergence of the program with NHM.
20 21EVENTS
EVENTS
22 23I TELL YOU, IT IS FUNNY,
BECAUSE THE ONLY TIME I THINK ABOUT HIV IS
WHEN I HAVE TO TAKE MY MEDICINE EVERY DAY.
-Magic Johnson EVENTS
24 25EMTCT-A RAY OF HOPE KALA’S NEW LEASE OF LIFE
GIVE A CHILD, HIV HAS CHANGED MY LIFE;
LOVE, BUT IT DID NOT
LAUGHTER STOP ME FROM
AND PEACE; NOT AIDS. LIVING.
R am ya , a b e a u t i f u l , 1 9-ye ar o l d H IV + g i r l go t m a r r i ed t o S ur esh , w i th t h e lat te r be i ng we ll aware o f h e r HI V + stat u s. Young Kala's story is that of grit and determination, and an inspiration to many like her who, with sheer perseverance and courage, climbs
She has been H I V+ , si n c e b i r t h, t hr o ug h t h e p a r en t t o c h i l d t r a n sm i s si o n ro u t e and h as be e n o n ART fo r th e last 10 ye ars. So o n out of the pits life throws them in. ART Centre team is proud to have played a small part in that wonderful tale.
afte r m arriage, R a mya c o n c e i v e d a c h i l d . But bei n g f ul l y a wa r e o f t h e p a i n and su ffe ri ng th at sh e face d fo r be i ng a PL HI V 28 year old Kala was married off as a social obligation to her sister's widower. Life became grim in a house where her step children stepped her
through out h e r l i fe , w a s n a t u r a l l y wo r r i ed t h a t h er p o s i t i ve st a t us m i g h t affe ct th e ch i ld as we ll. O n a v i si t t o th e ART ce nt re , aside and where little happiness or acceptance was at offer. As if that wasn't enough, after a few miscarriages, she was given the news that she had
during h er 3r d mo n t h o f pr e gn a n c y , R a m y a wa s r ef er r ed t o t h e E M T C T p ro g ramme by Sh ant i - an ART co u nse llo r at th e contracted AIDS from her husband. She was shattered to bits. A stranger in her husband's home, she was now beginning to lose hopes of raising her
c e n tre. Sh anti o f fe r e d c o u n s e l o n t h e E M T C T p r o g r a m m e a n d i n f o r m ed Ramya o f th e p o ssi bi li ty o f g i v i ng bi rth t o a no rmal own family - her own people from her own blood.
c hild. But this is where women like Kala, from their extended periods of loneliness and desperation, slowly find rays of hope. Kala yearned for a baby
A visibl y e l a t e d R a mya t hen r el i g i o us l y f o l l o wed t h e t r ea t m en t re g i me n and d e li v e re d a h e alt h y baby bo y. U p o n and stuck to that dream. During one of her visits to the ART centre she gathered courage to share her plight and her dreams with the counsellor. The
c ompl etion of 1 8 mo n t hs, t he b a b y wa s t est ed a n d d ec l a r ed H IV n ega t i ve . I t was t h e n th at Ramya fe lt sh e co u ld re wri t e counsellor referred her to the EMTCT and EID services. Following her counselor's advice, soon she got pregnant and delivered a male baby. She was
his to r y and no t l e t he r o w n st r u gg l es wi t h H IV a f f ec t t h e n ex t gen er a t i o n. T h i s mi racle h as i nsp i re d h e r t o le ad a lo ng and kept under regular EMTCT services with proper follow up. At the completion of 18 months, she got her child the confirmatory tests which revealed
he alth y l ife for t he sa k e o f he r c hi l d . F o r t h e P o n g a l F est i va l i n J a n 2020, Ramya i nv i te d Sh anti and ART C e nt re te am to h e r her child to be HIV negative! She made it sure that she shared this happy news with her counsellor first. Kala is now leading her happiest life, forming
house and cel e b r a t e d t he fe st i v a l wi t h j o y . R a m y a i n vi t ed S h a n t i a n d ART C e ntre te am to h e r h o u se and ce le brate d th e new dreams with her son, and determined as ever to turn them into a reality as well. *Excerpts from field.
*Names changed to protect confidentiality
fe s tival w ith jo y.
26 271097
HELPLINE NO
To Know about HIV / AIDS please contact
1800 419 1800
(Toll free Number)
www.tnsacs.in
fb.com/TANSACSTamilNadu twitter.com/tansacs instagram.com/tansacsYou can also read
