Hosted by Camp Sun rise - November 9th - 12th Baltimore Maryland 2017 Annual Conference
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President’s Welcome
Children’s Oncology Camping Association
2017 Annual Conference
November 9th – 12th
Baltimore Maryland
Hosted by Camp Sunrise
Table of Contents
President’s Welcome .................................................................................................................................................... 1
Camp Sunrise Camp Welcome ..................................................................................................................................... 2
Keynote Speakers.......................................................................................................................................................... 3
Platinum Sponsor .......................................................................................................................................................... 4
Special Supporter .......................................................................................................................................................... 5
Exhibitors ...................................................................................................................................................................... 6
Schedule - Matrix .......................................................................................................................................................... 8
Hotel Floor Plan........................................................................................................................................................... 11
Schedule of Events ...................................................................................................................................................... 12
Getting Around Baltimore........................................................................................................................................... 15
Baltimore Sights and Sounds ...................................................................................................................................... 16
More Activities .................................................................................................................................................... 17
Nearby Restaurant Discounts ..................................................................................................................................... 18
Baltimore Quick Bites.................................................................................................................................................. 19
Speakers ...................................................................................................................................................................... 20
Spirit of COCA-I Award ................................................................................................................................................ 29
2017 COCA-I Board of Directors.................................................................................................................................. 35
COCAcon 2017 Member Attendees ............................................................................................................................ 37
DEAR CONFERENCE ATTENDEES,
Welcome to Baltimore, Maryland!! There are so many things
to see and do; it will be difficult to squeeze them all
into one short visit. On behalf of the COCA-I Board of
Directors and Conference Committee , t h a n k you for
taking the t i m e to j o i n us. We're soooo very happy you're
here!!!
I can' t believe it's been a whole year since we
gathered together for the San Francisco meeting, hosted by our Camp
Okizu family. Marci Shea-Perry, Conference Committee Chair, has been
working side by side with the Camp S u n s h i n e a n d S p e c i a l L o v e teams
to bring us what will truly be an action packed non-stop thrill ride of
learning, laughter, and FUN!!!
I want to give a huge shout out to the Conference Planning Committee and t o
t h e Camp Sunshine, Camp Fantastic and BRASS Camp staff for their many
hours of hard work and brainstorming, and to our amazing Executive
Director, Don Golden, who is truly the talented man behind the curtain when
it comes to juggling so many tasks.
I also want to recognize and thank our sponsors and exhibitors, as well as KOA
Care Camps, who help make this conference possible. Please take a moment to stop
by, say hello, and THANK YOU!
Enjoy the 2017 COCA-I conference, and Happy Camping!!!
Dr. Mike
“Dr. Mike” Amylon,
President, COCA-I
COCAcon 2017 1
Camp Sunshine Camp Welcome
COCAcon 2017 2
Keynote Speakers
Friday November 10th
8:30 am – 10:00 am ABC East
Dr. Peter Adamson
Chair of the Children's Oncology Group (COG)
Dr. Peter Adamson is Chair of the Children’s Oncology Group (COG), a National
Cancer Institute (NCI) supported international consortium of more than 220
childhood centers that conducts clinical-translational research, including large-
scale clinical trials, in children with cancer. He is Professor of Pediatrics and
Pharmacology at the Perelman School of Medicine of the University of
Pennsylvania and he holds the Alan R. Cohen Endowed Chair in Pediatrics at
Children’s Hospital of Philadelphia (CHOP).
Dr. Adamson is Board Certified in Pediatric Hematology/Oncology and in Clinical
Pharmacology. He currently serves on the National Cancer Advisory Board (NCAB)
and is an internationally recognized leader in pediatric cancer drug development.
He also served as a member of the Blue Ribbon Panel of cancer leaders for Vice
President Biden’s National Cancer Moonshot Initiative.
Prior to becoming Chair of the COG in 2011, Dr. Adamson served as Director for
Clinical and Translational Research at Children’s Hospital of Philadelphia, as well
as Chief of the Division of Clinical Pharmacology and Therapeutics. Other key roles that he has held include co-Director of the University of
Pennsylvania’s - CHOP Clinical Translational Science Award (CTSA), Program Director of the General Clinical Research Center (GCRC) and
Principal Investigator of CHOP’s Pediatric Pharmacology Research Unit (PPRU). His laboratory research focuses on the clinical
pharmacology of new drugs for childhood cancer.
Saturday November 11th
8:45 am – 10:00 am ABC East
Scott Arizala
The Camp Counselor
Scott is one of the leading experts and trainers on kids, staff and the experience of
summer camp. As a professional speaker and international trainer, he has given
keynotes, workshops and educational sessions at numerous professional
conferences, training events, and with organizations.
He is the CEO of The Camp Counselor, a consulting and training company working
with hundreds of camps and thousands of staff & administrators across the
country. He is the proud partner of Bioverativ, delivering the Camp Academy
Program to camps for kids with bleeding disorders as well as the Executive
Director of Chasing Summer, an organization dedicated to creating access for
people with autism in recreation and education.
He is a pioneering contributor to and project manager of Expert Online Training,
the world’s leader in online training for camp staff.
He is a regular contributor to ACA’s Camping Magazine and is the author of the best-selling book on summer camp and youth development,
S'more Than Camp and contributing editor of Happiness, Diversity & Autism: Practical Strategies for Inclusion.
www.TheCampCounselor.com
COCAcon 2017 3
Platinum Sponsor
COCAcon 2017 4
Special Supporter
COCAcon 2017 5
Exhibitors
COCAcon 2017 6
COCAcon 2017 7
Track 1 Operations
Track 2 Programming
Track 3 Child Development
Track 4 Fundraising
Schedule - Matrix Track 5 Medical/CEU Eligible
Track 6 Staff Development
8:00 am – 2:00 pm
Thursday November 9th
Board Meeting (Orioles Boardroom)
10:00 am – 6:30 pm Conference Registration and Information Desk (Grand Ballroom Foyer)
Univ 3-4 West DEF Promenade Chesapeake Univ 1-2
2:00 pm - 3:00 pm Camping IS All Fun and Medical Round table I
Games Richard Brown, Dr. Kaye Wagner
Exhibits Open
3:15 pm - 4:15 pm
Dave Smith
Executive Directors
No Sessions Late Effects of Cancer
Treatment:
Neuropsychological,
Forum
Hattie Johnson, Melissa
Adaptive, and Social
McNichol Functioning
Dr. Lisa Jacobson
5:00 pm - 5:30 pm
New Attendees Meet & Greet (Harbor 1)
6:00 pm
President’s Reception - National Aquarium
9:00 pm – 11:00 pm Hospitality Suite (B&O Railroad)
COCAcon 2017 8Track 1 Operations
Track 2 Programming
Track 3 Child Development
Friday November 10th Track 4
Track 5
Fundraising
Medical/CEU Eligible
Track 6 Staff Development
7:00 am – 6:30 pm Conference Registration and Information Desk (Grand Ballroom Foyer)
7:30 am - 8:15 am Breakfast, Opening Ceremonies & Announcements (ABC East)
8:30 am – 5:30 pm Best of Show Showcase (Grand Ballroom Foyer)
8:30 am - 10:00 am Keynote: The Future of Cancer Care for Our Campers,
Dr. Peter Adamson, Chair-Children’s Oncology Group (ABC East)
Univ 3-4 West DEF Promenade Chesapeake Univ 1-2
10:15 am -11:15 am How to transition the If You Don't Ask...You Health Concerns for
Leadership: Teaching skills COCA-I Gold Ribbon Visitor
Magic of CAMP into a Don't Get Survivors of Childhood
that take ZERO talent Training Allen Brockman
year round program Cancer
Exhibits Open (Grand Ballroom Foyer)
Scott Arizala Brian Crater
Jason Hosick Dr. Kathy Ruble
11:30 am -12:30 pm The Adolescent and Young
Adult (AYA) Population -
Making it Real for Teen The Behavior Session - Why Donor Journey
Risk Management Their Unique Needs During
Campers do they do that? Bob Preston, Joe Tolle
Hattie Johnson
Jill Koss Scott Arizala
End-of-Life Care - Voicing
My Choices
Dr. Lori Wiener
12:30 pm - 1:30 pm Regional Meetings (TBA)
1:30 pm - 2:00 pm Exhibits Open (Grand Ballroom Foyer)
2:00 pm - 3:00 pm Techniques to keep your HELP! We Want ACA Accred Fundraising at
Room Escape training engaging and AYA Population
Rich Brundige
itation but Our Site Isn’t Camp Bring It On Allie Gubin, SW
interaction - Brian Moore Rhonda Mickelson Marilee Kontz
3:15 pm - 4:15 pm Pediatric Oncology Nurse
Experiences Volunteering at
Strap In, Hold Tight, Creating a nourishing Exploring Camp Brain-Med.
COCA-I Initiatives a Pediatric Oncology Camp:
Wait for a Delicious Meal environment Module Features
Beth & Matt Ruttler Dr. Meg Tippy Jeff Bowman A Research Study
Sally Hale, Dr. Dorothy Jordan
Exhibits Open ( Grand Ballroom Foyer)
4:30 pm - 5:30 pm
Annual Meeting (East Ballroom)
5:30 pm -
Dinner – On Your Own – Enjoy Charm City!
9:00 pm – 11:00 pm Hospitality Suite (B&O Railroad)
COCAcon 2017 9Track 1 Operations
Track 2 Programming
Track 3 Child Development
Track 4 Fundraising
Saturday November 11th Track 5
Track 6
Medical/CEU Eligible
Staff Development
7:00 am – 6:30 pm Information Desk (Grand Ballroom Foyer)
8:00 am - 8:45 am Breakfast & Announcements( West DEF)
8:45 am – 10:00 am
Keynote: Scott Arizala The Power of Programming ( West DEF)
Univ 3-4 West DEF Promenade Chesapeake Univ 1-2 B&O Railroad
10:00 am -11:00 am You, the Campers and Overview and Recent
Siblings: A Camp just Smile A Mile : Dream Bullying New Director's Forum
the "Elephant" in the Developments in Bone
for Us! - Donna Gregory Big with Small Steps Dr. Meg Tippy (under 3 years)
Cabin Smile A Mile Staff
Marrow Transplants Matt Ruttler,Gretchen Loose
Wendy Jensen Dr. Ken Cooke
11:30 am -12:30 pm Mini Session - Sibling
Panel
KOA Care Camps - How Campers with The Psychology of Young Professionals
----------------------------------- Coffee Klatsch
We Can Help Mark Solcum
Special Needs Children in Treatment Group
Golden Spoons and Karen McAndrew, Diane King Dr. Brandon Gig Briery Dr. Anna George, Psy.D. Astin Godwin
Magic Gnomes
Deanna Slade
12:30 pm - 2:00 pm Lunch On Your Own
2:00 pm - 3:00 pm Programming Round From Learner to Getting Your Foot into
Creating Inclusive Who, What, When,
table / Theme Ludacris: Building Lean/Agile for Non- Fundraising – Walks,
Spaces for All Genders Where, Why?
Exchange Positive Relationships Profits Randy Stamm Runs and Marathons
Jeremy Webb
Delegation Decisions Panel
Dina Datillo, Beth Jones, Ann with Staff Mary Ellen McKnight
Walsh Astin Godwin
3:15 pm - 4:15 pm The Language of
The Magic of Julia and Jack’s Photo Drumming Medical Round table II Staff Development -
Fundraising Round table
Programming Hattie Johnson Shack Resilience through Richard Brown, Dr. Kaye Round table
Deanna Slade Amy Warren Musical Expression Wagner Jake Semple
Josh Robinson
4:30 pm – 5:30 pm
Exploring Inclusivity in The Baggage They
Teen Camp Exchange Practical Cyber Security Research Update Camp Directors Forum
Dina Datillo
the Camp Setting Chris Thomas
Bring Dr. Mike Amylon Matt Ruttler, Tom Prader
Beth Jones, Jennifer Benton Mo Didion
5:30 pm – 9:00 pm
Silent Auction (ABC East)
6:30 pm -
Awards Banquet (ABC East)
COCAcon 2017 10Track 1 Operations
Track 2 Programming
Track 3 Child Development
Track 4 Fundraising
Track 5 Medical/CEU Eligible
Sunday November 12th Track 6 Staff Development
7:30 am - 9:00 am Continental Breakfast (University 1-2 Foyer)
Univ 3-4 West DEF Promenade Chesapeake Univ 1-2
8:30 am - 9:30 am Gold Ribbon Camp
Let There Always Be Song-
Dave Smith
Orientation
Brian Crater
Hotel Floor Plan
COCAcon 2017 11Schedule of Events
Wednesday, November 8th
8:00 AM - 4:00 PM Board of Directors Meeting ............................................................................................. Orioles Boardroom
Thursday, November 9th
8:00 AM - 2:00 PM Board of Directors Meeting ............................................................................................. Orioles Boardroom
10:00 AM - 6:30 PM Conference Registration & Information Desk ............................................................. Grand Ballroom Foyer
2:00 PM - 6:00 PM Exhibits Open .............................................................................................................. Grand Ballroom Foyer
2:00 PM - 3:00 PM CEU - Roundtable I .................................................................................................................. University 1-2
2:00 PM - 3:00 PM Programming - Camp IS All Fun and Games! ........................................................................... University 3-4
3:15 PM - 4:15 PM CEU -Late Effects of Cancer Treatment: Neuropsychological, Adaptive, & Social Functioning University 1-2
3:15 PM - 5:00 PM Operations - Executive Directors Forum ................................................................................. University 3-4
5:00 PM - 5:30 PM First-Time Attendees Welcome, Meet & Greet ................................................................................Harbor 1
6:00 PM - 11:00 PM President’s Reception/National Aquarium ...................................................................... National Aquarium
9:00 PM - 11:00 PM Hospitality Suite ....................................................................................................................... B&O Railroad
Friday, November 10th
7:00 AM - 6:30 PM Conference Registration & Information Desk ............................................................. Grand Ballroom Foyer
7:00 AM - 8:00 AM Board of Directors ........................................................................................................... Orioles Boardroom
7:30 AM - 8:15 AM Breakfast, Welcome, Announcements ............................................................................................. ABC East
8:00 AM - 5:00 PM Exhibits Open .............................................................................................................. Grand Ballroom Foyer
8:30 AM - 10:00 AM Keynote -CEU -The Future of Cancer Care for Our Campers ............................................................ ABC East
8:30 AM - 5:30 PM Best of Show Showcase ............................................................................................... Grand Ballroom Foyer
10:15 AM - 11:15 AM Fundraising - If You Don't Ask...You Don't Get ................................................................. Chesapeake Room
10:15 AM - 11:15 PM Operations -COCA-I Gold Ribbon Visitor Training ............................................................. Promenade Room
10:15 AM - 11:15 AM CEU -Health Concerns for Survivors of Childhood Cancer ....................................................... University 1-2
10:15 AM - 11:15 AM Programming - How to transition the Magic of CAMP into a year round program ................. University 3-4
10:15 AM - 11:15 AM Staff Development - Leadership: Teaching skills that take ZERO talent ......................................... West DEF
11:30 AM - 12:30 PM Fundraising - Donor Journey ............................................................................................ Chesapeake Room
11:30 AM - 12:30 PM Operations - Risk Management ......................................................................................... Promenade Room
11:30 AM - 12:30 PM CEU -The Adolescent and Young Adult (AYA) Population ...................................................... University 1-2
11:30 AM - 12:30 AM Programming - Making it Real for Teen Campers.................................................................... University 3-4
11:30 AM - 12:30 PM Child Development - The Behavior Session - Why do they do that? .............................................. West DEF
12:30 PM - 1:30 PM Regional Meetings................................................................................................................................... TBA
COCAcon 2017 122:00 PM - 3:00 PM Fundraising - Camp Bring It On Style ................................................................................ Chesapeake Room
2:00 PM - 3:00 PM Operations -HELP! We Want ACA Accreditation but Our Site Isn’t ................................... Promenade Room
2:00 PM - 3:00 PM CEU -AYA Population................................................................................................................ University 1-2
2:00 PM - 3:00 PM Programming - Room Escape ................................................................................................. University 3-4
2:00 PM - 3:00 PM Staff Development - Techniques to keep your training engaging and interaction ..........................West DEF
3:15 PM - 4:15 PM Operations - COCA-I Initiatives -Working for You All Year Around .............................................. Chesapeake
3:15 PM - 4:15 PM Operations Exploring Camp Brain-Med. Module Features ............................................ Promenade Room
3:15 PM - 4:15 PM CEU -Pediatric Oncology Nurse Experiences Volunteering at a Pediatric Oncology Camp....... University 1-2
3:15 PM - 4:15 PM Programming - Strap In, Hold Tight, Wait for a Delicious Meal ................................................ University 3-4
3:15 PM - 4:15 PM Child Development - Creating a nourishing environment ...............................................................West DEF
4:30 PM - 5:30 PM Annual Meeting .......................................................................................................................................TBA
5:30 PM - 12:00 AM Dinner- On Your Own
9:00 PM - 11:00 PM Hospitality Suite ....................................................................................................................... B&O Railroad
Saturday, November 11th
7:00 AM - 6:30 PM Information Desk ........................................................................................................ Grand Ballroom Foyer
8:00 AM - 8:45 AM Breakfast .........................................................................................................................................West DEF
8:45 AM - 9:45 AM Keynote ...........................................................................................................................................West DEF
10:00 AM - 11:00 AM Operations - New Director's Forum (under 3 years) ................................................................ B&O Railroad
10:00 AM - 11:00 AM Child Development - Bullying ...................................................................................................... Chesapeake
10:00 AM - 11:00 AM Operations -Smile A Mile - Dream Big with Small Steps .................................................... Promenade Room
10:00 AM - 11:00 AM CEU -Overview and Recent Developments in Bone Marrow Transplants ................................ University 1-2
10:00 AM - 11:00 AM Programming - Siblings Siblings: A camp just for us! ........................................................ University 3-4
10:00 AM - 11:00 AM Staff Development - You, the Campers and the "Elephant" in the Cabin ........................................West DEF
11:30 AM - 12:30 PM Staff Development - Young Professionals Group ..................................................................... B&O Railroad
11:30 AM - 12:30 PM Child Development - Campers with Special Needs .......................................................... Chesapeake Room
11:30 AM - 12:30 PM Operations - Coffee Klatch ................................................................................................ Promenade Room
11:30 AM - 12:30 PM CEU -The Psychology of Children in Treatment........................................................................ University 1-2
11:30 AM - 12:00 PM Programming - Mini Session - Sibling Panel ............................................................................. University 3-4
11:30 AM - 12:30 PM Fundraising - KOA Care Camps-How We Can Help..........................................................................West DEF
12:00 PM - 12:30 PM Programming - Golden Spoons and Magic Gnomes ................................................................. University 3-4
12:30 Pm - 2:00 PM Lunch On your Own
2:00 PM - 3:00 PM Getting Your Foot into Fundraising – Walks, Runs and Marathons .......................................... B&O Railroad
2:00 PM - 3:00 PM Child Development - Creating Inclusive Spaces for All Genders ....................................... Chesapeake Room
2:00 PM - 3:00 PM Operations - Lean/Agile for Non Profits ............................................................................ Promenade Room
2:00 PM - 3:00 PM CEU -Who, What, When, Where, Why? Delegation Decisions.............................................. University 1-2
2:00 PM - 3:00 PM Programming - Programming Roundtable/Theme Exchange ................................................... University 3-4
2:00 PM - 3:00 PM Staff Development - From Learner to Ludacris: Building Positive Relationships with Staff .............West DEF
3:15 PM - 4:15 PM Staff Development - Roundtable.............................................................................................. B&O Railroad
3:15 PM - 4:15 PM Programming - The Language of Drumming .................................................................. Chesapeake Room
3:15 PM - 4:15 PM Operations - Julia and Jack’s Photo Shack ......................................................................... Promenade Room
3:15 PM - 4:15 PM CEU -Round Table II ................................................................................................................. University 1-2
3:15 PM - 4:15 PM Programming - The Magic of Programming ............................................................................. University 3-4
COCAcon 2017 133:15 PM - 4:15 PM Fundraising - Fundraising Roundtable ............................................................................................ West DEF
4:30 PM - 5:30 PM Operations - Camp Directors Forum ........................................................................................ B&O Railroad
4:30 PM - 5:30 PM Child Development - The Baggage They Bring .................................................................. Chesapeake Room
4:30 PM - 5:30 PM Operations - Practical cyber security for people who'd rather be canoeing ..................... Promenade Room
4:30 PM - 5:30 PM CEU -Research Update ............................................................................................................ University 1-2
4:30 PM - 5:30 PM Programming - Teen Camp Exchange...................................................................................... University 3-4
4:30 PM - 5:30 PM Staff Development - What does it mean to be inclusive ................................................................ West DEF
5:30 PM - 9:00 PM Silent Auction ................................................................................................................................... ABC East
6:30 PM - 9:00 PM Awards Banquet ............................................................................................................................... ABC East
Sunday, November 12th
7:30 AM - 8:15 AM Breakfast
8:30 AM - 9:30 AM Operations - Gold Ribbon Camp Orientation .......................................................................... University 1-2
8:30 AM - 9:30 AM Programming – Let There Always Be Song ............................................................................ University 3-4
COCAcon 2017 14Getting Around Baltimore
Baltimore isn't a city known for its efficient public transportation system. However, there are 4 major options--bus, MARC
train, Light Rail, and Metro subway. Much of this info (fares, routes, etc.) can be found at http://www.mtamaryland.com.
A one way bus or subway fare is $1.70, and a day pass with unlimited daily use on the bus and the subway is $4.00, a weekly
pass is $22.00 and a monthly pass is $68. The buses run throughout the city and into Baltimore County. The bus system is
notoriously unreliable. If you have the misfortune to try and catch a bus when Baltimore City Public Schools let out, the
students ride the buses and if it's full, the bus will keep right on going, and you're just out of luck, because you have to wait
until the next bus, whenever that may be, and hope it's not full as well. This is most common between 2:30 and 4 PM
weekdays during the school year.
Subway
The subway runs East-West only, and does not link up with either of the other two rail systems. If you're coming to Baltimore
to go to Johns Hopkins Hospital, this is your best bet. It runs from Owings Mills Mall, on the west side of Baltimore County off
of 795, to Johns Hopkins Hospital, with stops in between. It is pretty reliable and a nice option if its limited stops go where
you need to go.
Light Rail
Next, there is the Light Rail. This is the North/South option, and again, it does not link up with the other two rail systems. For
a while now, either one half or the other of the light rail was totally shut down to double track the rails, and ridership has
plummeted. You can grab this at the airport.
MARC
Then there is MARC. The train schedules are mostly for commuters, and are unidirectional. You can get to Frederick, MD, DC
and WV using this rail system.
Charm City Circulator
The Charm City Circulator is a free bus that consists for two routes—the Purple Route which runs from Penn Station to
Federal Hill, and the Orange Route which runs from Hollins Market to Harbor East. It operates 7 days a week, connecting
parking areas, Amtrak, MARC, Light Rail, Metro Subway and buses are scheduled to run 10 minutes apart. The services also
integrates with the Water Taxi Harbor Connector, extending free service on the water for select routes.
If you want an easy, convenient way to see the city and its surrounding areas, your best bet is to rent a car. However, if you're
staying in only the city proper, you may be OK. However, note that not one rail system goes into the highly regarded Inner
Harbor area directly. For that, bring taxi money and your walking shoes. Driving around Baltimore is OK during non-rush hour
times, but good luck finding parking.
COCAcon 2017 15Baltimore Sights and Sounds
Watch this video for a quick tour of Baltimore
Arts and Entertainment District Map
“Totally Charmed in Baltimore,” a captivating article by AAA
Local Attractions
• Inner Harbor
• Oriole Park at Camden Yards
• Maryland Zoo in Baltimore
• Power Plant Live
• Little Italy
• National Aquarium in Baltimore
• Port Discovery
• Maryland Science Center
• Royal Farms Arena
• Hippodrome Theater - The France-Merrick Performing Arts Center
Sightseeing
Let those in the know show you around town
Baltimore Heritage Walking Tour
• Fell's Point, Mount Vernon, Pennsylvania Avenue
• Baltimore National Heritage Area
• +1 410 878 6411
Baltimore Sightseeing Tours
• Baltimore
• Baltimore Sightseeing Tours
• +1 888 848 3822
Day On The Bay Cruises
• St. Michaels, MD
• Watermark Cruises
• +1 800 569 9622
Fell's Point Ghost Tour
• Fell's Point Area
• Tour Baltimore, LLC
• +1 877 225 8466
Nautical Destinations
• Baltimore, Annapolis, E. Shore
• Nautical Destinations
• +1 800 697 1777
COCAcon 2017 16Spirit Cruises
• Inner Harbor
• Spirit Cruises
• +1 866 312 2469
More Activities
• Biking trail 12 miles
• Bowling 1.5 miles
• Horseback riding 5 miles
• Jogging/fitness trail 10 miles
• Snow skiing 56 miles
• Tennis 1 mile
Things to Do
The what, when and where on local happenings, special events and more
American Visionary Art Museum
1st Mariner Arena
Port Discovery Children's Museum
Baltimore National Aquarium
Historic Ships in Baltimore
Maryland Science Center
Walters Art Museum
Baltimore Museum of Art
Shows at Center Stage
Upcoming Shows at Rams Head Live
Spa Nearby
Elizabeth Arden Red Door Salon and Spa 7.7 miles Appointment is Required Phone: +1-410-323-3636
Services, Treatments & Amenities
• Facials
• Foot bath
• Manicures/pedicures
• Massages
• Paraffin hand treatments
• Waxing
Monica's Salon and Spa 0.5 miles Appointment is Required Phone: +1-410-625-2565
Services, Treatments & Amenities
• Facials
• Manicures/pedicures
• Massages
• Paraffin hand treatments
• Waxing
COCAcon 2017 17Nearby Restaurant Discounts
Downtown Harbor
• Pratt Street Ale House- 10% off all 4 days of conference (Free Pint cards will be placed in swag bags)
• Phillips Seafood- Coupons in swag bags
• Tir na Nog- 15% off all 4 days of conference
• Frank and Nick's-10% off all 4 days of conference
Canton
• Bo Brooks Crab House/Restaurant- Crab Upgrade ( $21 Value) Hard Shell crabs are priced by size, they are offering a
size upgrade.
• Looney's Pub 10% off all 4 days of conference
• Mama's on the Half Shell- Free glass of wine or Crush with purchase of an appetizer or Entree
• Nacho Mama's- Free House Margarita with purchase of an appetizer or Entree
Mt. Vernon
• Cazbar- 15% off all 4 days of conference
• Homeslyce- 15% off all 4 days of conference
• Rye Zendine- 15% off all 4 days of conference
COCAcon 2017 18Baltimore Quick Bites
COCAcon 2017 19Speakers
Dr. Peter C. Adamson, MD -Keynote and their well siblings, with Okizu and also the Children’s
Oncology Camping Association.
Chair of the Children's Oncology Group (COG)
He has been a member of the Board of Directors and the
Dr. Peter Adamson is Chair of the Children’s Oncology Group
Research and Education Committee of COCA-I for many years,
(COG), a National Cancer Institute (NCI) supported international
and currently is President of COCA-I. He previously served as a
consortium of more than 220 childhood centers that conducts
member of the American Cancer Society's Peer Review
clinical-translational research, including large-scale clinical trials,
Committee on Psychosocial and Behavioral Research.
in children with cancer. He is Professor of Pediatrics and
Pharmacology at the Perelman School of Medicine of the
University of Pennsylvania and he holds the Alan R. Cohen Scott Arizala -Keynote
Endowed Chair in Pediatrics at Children’s Hospital of Philadelphia The Camp Counselor
(CHOP).
Scott is one of the leading experts and trainers on kids, staff and
Dr. Adamson is Board Certified in Pediatric the experience of summer camp. As a professional speaker
Hematology/Oncology and in Clinical Pharmacology. He and international trainer, he has given keynotes, workshops and
currently serves on the National Cancer Advisory Board (NCAB) educational sessions at numerous professional conferences,
and is an internationally recognized leader in pediatric cancer training events, and with organizations.
drug development. He also served as a member of the Blue
Ribbon Panel of cancer leaders for Vice President Biden’s He is the CEO of The Camp Counselor, a consulting and training
National Cancer Moonshot Initiative. company working with hundreds of camps and thousands of
staff & administrators across the country. He is the proud
Prior to becoming Chair of the COG in 2011, Dr. Adamson served partner of Bioverativ, delivering the Camp Academy Program to
as Director for Clinical and Translational Research at Children’s camps for kids with bleeding disorders as well as the Executive
Hospital of Philadelphia, as well as Chief of the Division of Director of Chasing Summer, an organization dedicated to
Clinical Pharmacology and Therapeutics. Other key roles that creating access for people with autism in recreation and
he has held include co-Director of the University of education.
Pennsylvania’s - CHOP Clinical Translational Science Award
(CTSA), Program Director of the General Clinical Research Center He is a pioneering contributor to and project manager of Expert
(GCRC) and Principal Investigator of CHOP’s Pediatric Online Training, the world’s leader in online training for camp
Pharmacology Research Unit (PPRU). His laboratory research staff.
focuses on the clinical pharmacology of new drugs for childhood He is a regular contributor to ACA’s Camping Magazine and is the
cancer. author of the best-selling book on summer camp and youth
development, S'more Than Camp and contributing editor of
Happiness, Diversity & Autism: Practical Strategies for Inclusion.
Dr. Mike Amylon, MD www.TheCampCounselor.com
Professor of Pediatrics (Hematology/Oncology) Lucile Salter
Packard Children's Hospital, Emeritus
"Dr. Mike" - as he is affectionately known - was born and raised
Jeff Bowman
in New England, and received his undergraduate degree from Sales Manager
Brown University in 1972. He then moved to California as a Jeff is in his 8th year with CampBrain. Jeff worked for 10 years at
medical student at Stanford University, where he earned his Camp Robin Hood in Toronto prior to joining the team at
M.D. in 1976. After continuing at Stanford in a Pediatric CampBrain. Jeff has worn a number of different hats at
Residency and then Post-doctoral Fellowship in CampBrain - starting in tech-support, working in online
Hematology/Oncology, Dr. Amylon joined the faculty of the registration, providing training and now working in a Business
Stanford University School of Medicine in 1981. His early Development role.
research interests included clinical trials in the treatment of
pediatric leukemia and lymphoma. After completing additional
training in bone marrow transplantation at the University of Jennifer Benton
Washington and the Fred Hutchinson Cancer Research Center, Program Manager - Camp Mak-A-Dream
he inaugurated the hematopoietic stem cell transplant program Jennifer began as a volunteer with Camp Mak-A-Dream in 1995
at Stanford and directed the Pediatric Bone Marrow Transplant following her move to Missoula from the mid-west. She joined
Service at Lucile Packard Children's Hospital Stanford for many the team full-time in 1996.
years. Dr. Amylon currently is an Emeritus Professor (active) at
Jennifer also serves on the Board of Directors for the Ovarian
Stanford.
Cancer Survivors Foundation (based in Helena, Mont.), and
Dr. Amylon also has a long-standing interest in the psychosocial volunteers with other nonprofit organizations in the area.
impact of pediatric cancer and its treatment on patients and
their families. He has been extensively involved with Camp
Okizu, a program of peer support, respite, mentoring, and Dr. Brandon G. Briery, Ph.D.
recreation for children with cancer and their families, centered Chief Program Officer/Executive Camping Director
on a residential camping experience. Dr. Brandon Gig Briery is a Clinical Child & Pediatric Psychologist,
He serves as Medical Director and Vice Chair of the Board for the published researcher, author, and international speaker.
Okizu Foundation. He has conducted research into the impact of Involved in camps for children with special needs (including
camping and peer support programs on pediatric cancer patients cancer) since 1992, he’s been employed by Camp CAMP
COCAcon 2017 20(Children's Association for Maximum Potential) since 2007. busy schedule.
Brandon is an ACA Standards Instructor & Visitor, ACA Texoma Rich has trained scores of staff, volunteers, and Leaders in
LCOL Professional Development Chair, and Board Secretary for Training (LIT) over the years, in fact developing a curriculum for
the Children’s Oncology Camping Association-International. He LIT Training that has been shared and replicated at other camps.
also spins some mean tunes as CAMP DJ - his favorite "job" at He has volunteered to lead team building and other training
Camp CAMP! sessions at camps from the Northeast to the Deep South and
points beyond.
Allen Brockman He has been a frequent presenter at COCA-I conferences, further
sharing his knowledge and experiences to help strengthen the
Founder- Camp Rainbow Foundation international community of camps for children with cancer and
Marketing & Development Special Appointee, has been working their families.
with children with cancer and blood-related diseases since 1982. Rich Brundige has been in love of scavenger hunts and puzzles
He started volunteering at St. Louis Children’s Hospital and ever since watching the Goonies. At the time of writing this bio,
Cardinal Glennon Children Hospital working on the oncology he has participated in 15 room escapes through out the country
floor, and still volunteers there. He served as the Chairman of and has built 10 of his own for work and camps.
the St. Louis Metro Dream Factory, an organization that fulfills
dreams for seriously ill children, for 3 years.
In 1988, he and his wife Ronnie became the Founders of Camp
Tracy Bryan
Rainbow. The Camp Rainbow Foundation currently provides 5 Program Director - Camp Rainbow Gold
camping programs and serves more than 600 campers each year. Tracy joined Camp Rainbow Gold in spring of 2016 as Program
Allen is also a founding board member and past President of Director. Tracy is a native Oregonian, who grew up in beautiful
Friends of Kids with Cancer, an organization that provides Southern Oregon.
educational, emotional, and recreational programs for children She graduated college from the University of Oregon in Eugene,
with cancer. with a degree in Political Science and Nonprofit Administration
Allen has served on the COCA-I Board for 6 years; he was the (Go DUCKS!)
recipient of the 2015 Spirit of COCA-I award. Tracy became passionate about volunteerism and the
He holds a Bachelor’s of Science degree in Banking and Finance. importance of non-profits at a young age, and chose to attend U
He has over 35 years of sales and marketing experience, of O because of their non-profit program. Tracy has a passion for
including over 20 years serving as Vice President of Sales and people and making a difference in the community. In her spare
Marketing for 4 companies. Allen has extensive strategic time Tracy enjoys being home with her family and keeps busy
planning and branding experience. chasing after toddler twin boys, doing home projects with her
husband, and finding treasures while thrifting.
Richard Brown MSN, CRNP, JD, FAANP
Medical Director Camp Smile A Mile
Ryan Campbell
Camp Director and Assistant Director of Fundraising at
A pediatric nurse practitioner at Children's of Alabama and
Happiness Is Camping
Program Coordinator for the Pediatric Bone Marrow Transplant
Program. Ryan serves as the Camp Director and Assistant Director of
Fundraising at Happiness Is Camping in Hardwick, NJ. He has
Richard’s clinical practice is in Pediatric Hematology-Oncology,
been with camp full-time for three years and worked seasonally
Neuro-Oncology, and Bone Marrow Transplant.
for seven summers.
Certified as both a Pediatric Acute Care Nurse Practitioner and a
A family affair, Ryan aspires to become Executive Director once
Pediatric Primary Care Nurse Practitioner, and also a licensed
his father, Rich, retires.
attorney.
He graduated from the University of North Carolina and returns
His research interests include quality improvement, survivorship
to Camp this fall after spending most of 2017 working as a resort
issues following pediatric cancer treatment and BMT, palliative
manager at Walt Disney World.
care, ethics, healthcare law, pediatric critical care, bone marrow
transplantation, quality of life and self-esteem in chronic
childhood illness. Richard Serves as the Medical Director for Dr. Ken Cooke, MD
Camp Smile A Mile, Alabama’s program for children with cancer.
Herman and Walter Samuelson Professor of Oncology,
Director, Pediatic Blood and Marrow Transplantation Program
Rich Brundige Dr. Cooke is Director of the Johns Hopkins Kimmel Cancer
Camp Director - Camp Kids Are Kids Chicago Center’s Pediatric Bone Marrow Transplantation Program.
Rich has been involved with Pediatric Oncology camps since Prior to his appointment at Johns Hopkins, Dr. Cooke headed the
1997 and has been attending COCA-con since 2000. Rich has Pediatric Blood and Marrow Transplantation Program at
spent decades volunteering at multiple camps for kids with Rainbow Babies and Children’s Hospital, and University Hospitals
cancer around the US, and more recently has also taken on a Case Medical Center, in Cleveland, Ohio. He also co-directed the
staff role as Camp Director and Executive Director at Camp Kids Hematologic Disorders Program of the Case Comprehensive
Are Kids Chicago (CKAKC). Cancer Center at Case Western Reserve University.
Rich volunteers at Camp Ta-Kum-Ta, Camp Can Do, Camp No A nationally recognized transplantation immunology expert, Dr.
Worries, Camp CAMP, and any others he can squeeze into his Cooke focuses primarily on new strategies to prevent and treat
graft-vs-host disease and lung complications following blood and
CO CAcon 2017 21bone marrow transplantation. His research efforts have been Dr. Anna George, Psy.D
recognized by the Leukemia and Lymphoma Society and the
Psy.D., Johns Hopkins Hospital
American Society of Clinical Investigation. In addition to his
younger patients, Dr. Cooke also cares for adolescents and Dr. George is a staff psychologist in the Pediatric Medical
young adults. Psychology Program and specializes in the assessment and
treatment of children, adolescents, and young adults with
chronic and acute medical conditions, and serves as the primary
Brian Crater behavioral consultant within the Division of Pediatric Oncology.
Associate Executive Director - Camp Ronald McDonald for Good She is part of a multi-disciplinary team to evaluate and treat
Times child and adolescent cancer patients and childhood cancer
Brian joined camp in 1988 as Camp Director. Brian currently over survivors. Dr. George provides cognitive and behavioral
sees facility development & operations and works closely with interventions for children with various complex medical
the Camp program team. conditions. She is experienced in providing evidence-based
interventions for distress and anxiety related to medical
In addition to his CRM responsibilities, Brian has been a standing
procedures, barriers to medical adherence and
faculty lecturer at California State University, Long Beach,
behavioral/emotional difficulties resulting from medical
Department of Recreational and Leisure Services in the fields of
treatment. Her research interests include cognitive-behavioral
outdoor recreation and organized camp management.
interventions to enhance quality of life during treatment and
In addition, Brian currently serves on the National Board of the maintain long term adjustment after treatment.
American Camp Association (ACA), a Standards Visitor for ACA,
Dr. George received her Psy.D. in Clinical Psychology from Nova
chair of the National Council of Leaders Steering Committee; is
Southeastern University in Ft. Lauderdale, FL., and completed
the past-president and a current board member of Children’s
her predoctoral internship and postdoctoral fellowship in
Oncology Camp Association International (COCA- I).
pediatric psychology at The Kennedy Krieger Institute & Johns
Brian’s passion for research has led to co-authoring papers on Hopkins School of Medicine in Baltimore, Maryland.
the Psychological Impacts of a Camp Experience for Children
with Cancer and the Camp Awareness Project, a multi-facility
study assessing the value of a camp experience with healthcare Astin Godwin
professionals and unserved patient families. Brian is married to Program Director- Camp Sunshine
wife and best friend, Corrie, has three grown daughters and is
Responsible for family camps, sibling camps, and school age
known for his love of Diet Coke.
programs. Visits the Aflac Cancer Center at Children's Healthcare
of Atlanta weekly to connect with newly diagnosed and
Dina Dattilio hospitalized children. Astin was a volunteer with Camp Sunshine
for several years prior to joining our professional staff. He served
Program Manager - Camp Ta-Kum-Ta
in the United States Peace Corps and previously worked in
This session will give details of our successful long standing volunteer management in the non-profit sector.
exchange program between Camp TaKumTa and Camp Rap A
Hope. We'll share theme ideas as well as the logistics and
planning of this program Donna Gregory
MBA, CTRS - Chief of Recreational Therapy at the National
Maureen Didion Institutes of Health Clinical Center
Donna Gregory, MBA, CTRS - Chief of Recreational Therapy at
Director of Camp Dream Street
the National Institutes of Health Clinical Center.
Maureen Didion We Care Foundation 1990
She has volunteered with Special Love Inc., a community of
Founding board member, We Care Foundation 1991/1996 support for children and young adults with cancer and their
Director of Camp Dream Street, Arkansas 1992/present families in the Mid-Atlantic region for 30 years. She provides
Director of We Care Foundation Family Camp 2009/present program leadership to Camp Fantastic for children with cancer
Executive Director of the We Care Foundation Education and BRASS Camp for brothers and sisters.
University of Arkansas, Ft. Smith Donna graduated from the University of Maryland with a degree
2011 BA Business/Marketing in Therapeutic Recreation and received a Master’s degree in
Business Administration from Penn State University. Donna is
2016 BS Psychology BA Rhetoric & Writing
currently pursuing a PhD in Recreational Therapy from Clemson
She has over thirty years of experience in oncology camping. She University. Her research interests focus on the psychosocial
was a founding board member of the foundation and first benefits of oncology camps.
director of Camp Dream Street, Arkansas.
Donna lives in the D.C. metropolitan area. When she is not at
camp, work or school, Donna enjoys traveling and quality time
with family and friends.
COCAcon 2017 22Allie Gubin, SW achieve are as follows: Internationally recognized interpretive
dancer, expert in the art of “knock and don’t run” (otherwise
MSW, LCSW-C, Clinical Social Worker and the Young Adult
known as the ding-dong-stay), certified Taebo and Jazzercise
Patient Navigator at Johns Hopkins Kimmel Cancer Center
instructor, Professional Freestyle walker, Inventor and Sensei of
Allie works in conjunction with the Ulman Cancer Fund for Young the World famous Bedazzler — case and point – I’m 25% Dad,
Adults (UCF) and a multidisciplinary team of healthcare 25% serious, 62% fabulous, 48% mathematician, and 100% legit .
professionals at the Charlotte R. Bloomberg Children’s Center “To say it simply…. Camp changed my life! It Changed the way I
within the pediatric oncology division and the Kimmel Center to live every day, it changed the way I view this life we have
improve the cancer experience for young adults and to address together, It changed the way I give and received love, It changed
the unique needs of the young adults patients and their families. the way I am a father, son, brother, and friend. To give back even
She provides resources and counseling designed to empower a fraction of what I have received from being involved with CRG,
young adult patients and their families to take an active role in would take me a life time. I love and appreciate everyone who
their cancer experience and supports them as they face the has made this program what it is today… Keep Shining!!”
challenges of a cancer diagnosis.
Dr. Lisa Jacobson, M.Ed., Ph.D.
Sally Hale, RN, MN
Assistant Professor of Psychiatry and Behavioral Sciences
Executive Director of Camp Sunshine
Dr. Lisa Jacobson is a licensed psychologist and pediatric
Sally is Executive Director of Camp Sunshine, a non-profit neuropsychologist in the Department of Neuropsychology,
organization providing programs for children with cancer and Kennedy Krieger Institute. She also holds an appointment as an
their families. Sally has served in this position since 1987 and has assistant professor in psychiatry and behavioral sciences at the
led the organization through tremendous growth. Under Sally’s Johns Hopkins University School of Medicine.
leadership, Camp Sunshine has grown from a one-week summer Ph.D., University of Virginia (Virginia) (2008)
camp to a year-round, state-wide multidimensional organization B.A., Davidson College (North Carolina) (1993)
serving over 950 families of children with cancer each year. M.Ed., College of William and Mary (Virginia) (1996)
She has served on a number of boards and has consulted with Additional Training -
many nonprofits to strategically grow their organizations. Mailman Center for Child Development, Miami, Florida, 2008;
Sally is a graduate of Vanderbilt School of Nursing and has a Kennedy Krieger/Johns Hopkins University School of Medicine,
master’s degree in Child Health Nursing from Emory University. Baltimore, Maryland, 2010, Clinical Neuropsychology
She practiced as a staff nurse at Egleston Hospital for Children Research Summary
(now Children’s Healthcare of Atlanta) and as a nurse specialist Dr. Jacobson is interested in brain development and attentional
in hematology-oncology at the department of pediatrics at control, processing speed, and executive functions in children,
Emory University prior to joining Camp Sunshine. Sally and associations of these functions with learning and behavioral
volunteered as the camp nurse and assistant medical director of disorders. She is interested in studying children with identified
Camp Sunshine from its inception in 1983 until joining the staff disorders affecting executive functioning (e.g., ADHD, movement
in 1987. disorders, Spina Bifida, cancers and cancer treatment, etc.) as
well as children at risk for developing executive dysfunction, and
investigating ways in which parents and teachers can support
Jason Hosick children's development of EF skills.
Program Manager, Camp Rainbow Gold
She is working to develop clinical screening tools for identifying
As Program Manager my job revolves around preparing and children with executive dysfunction that can be used as part of
facilitating our 5 camps and year-round programs including the typical medical care visits for specific clinical populations. She
teen support group and college scholarship program. Although has collaborated on a variety of projects examining response
dressing up and painting my nails seem to be consistent tasks on variability in children with ADHD, characteristics of attentional
my to do list, my job also includes the serious stuff like risk disorders in referred children, influences of working memory on
management and upholding our accreditation standards which is reading fluency in ADHD, executive functioning in spina bifida,
key in keeping everyone safe. and validation of the Kennedy Krieger Independence Scales -
Volunteer management is also a huge portion of my work life Spina Bifida Version (KKIS-SB).
and honestly it is one of my favorite parts. They are the lifeline of
our program and I follow their lead in enthusiasm in the super
silly part of the “magic” that takes place when you are involved Wendy Jensen
with Camp Rainbow Gold. The beauty of the support our Certified Childlife Specialist - Sanford Children's
volunteers and families provide for each other is the main Wendy is a certified child life specialist with 15 years of
reason why I have fallen in love with this organization over 10 experience working at Sanford Children’s in Sioux Falls, SD.
years ago and still is the reason that drives my passion to spread As one the founders of Camp Bring –it-on, she has had a vested
our mission. Now on a personal side I can’t really think of much interest in supporting children of all ages cope with their
to say about myself except that I have been known to kiss my oncology diagnosis. For the past 9 years, Wendy has been the
own biceps and do the “shooter” move with my index fingers. I primary CCLS at Sanford Children’s Specialty Clinic
am constantly being accused of being aggressively unfancy and Oncology/Hematology Clinic.
still manage to gain many friends in spite of my personality and I
have done this all by living vicariously through myself. I have also
been known to beat people in “Connect Four” in just 3 moves!
Amazing I know. Other accomplishments I have managed to
COCAcon 2017 23Hattie Johnson children with cancer and their families in Georgia since 1983.
She has received numerous local, state, and national awards for
Executive Director- Camp Ta-Kum-Ta
community service. Dr. Jordan has done clinical teaching at the
Prior to becoming the Executive Director of Camp-Ta-Kum-Ta in Nell Hodgson Woodruff School of Nursing since 2011 and
2015, Hattie served as the Director of Development for Camp Ta- recently joined the faculty full time. Her clinical interests include
Kum-Ta where she worked with individuals, organizations, event early mental health screening, infant mental health promotion,
organizers and civic groups to successfully raise funds for camp early intervention, the universal prevention of psychiatric mental
programs and an ambitious capital campaign. health disorders and the integration of mental health into
She brings ten years of non-profit expertise and experience to primary care. Dr. Jordan has a particular interest in the access to
the organization. Prior to Camp Ta-Kum-Ta, Hattie was with the psychiatric mental health care for underserved and displaced
Make-A-Wish Foundation of Vermont and the Ronald McDonald youth and families.
House of Burlington, VT.
Hattie is a graduate of Saint Michael’s College where she
achieved a Bachelor’s Degree in Business & Psychology and later
Diane King
a Masters of Science & Administration Degree. Hattie also holds Vice Chair of the KOA Care Camps Trust
a Certificate in Non-Profit Management.
Diane and her husband Scott have owned the Springfield/Route
66 KOA in Springfield, Missouri for 13 years. They have one child.
Beth Jones Diane has been active in several charities including JDRF, PTA,
Camp Director - Camp Mak-A-Dream Boy Scouts as well as KOA Care Camps. In her spare time, she
Beth joined Camp Mak-A-Dream as the Residential Director in enjoys traveling, antiquing and spending time with her two
2006 and moved into the position of Camp Director in 2007. greyhounds
Originally from Massachusetts, Beth moved to Missoula in 1997
to be part of the staff of the Missoula Children’s Theatre where Marilee Kontz
she first became acquainted with Camp by presenting theatre
Children’s Camping Director of Sanford USD Medical Center
workshops there. She always knew she wanted to do more than
spend a few hours at a time with the special people she met at Marilee Kontz has served as the Children’s Camping Director of
Camp and was excited when the opportunity presented itself. Sanford USD Medical Center for 17 years.
Beth recently received a Certificate in Public Health from the She is responsible for managing the day to day operations of
University of Montana and is currently working on her Master's. camps throughout the Sanford Network by way of grant writing,
In her free time she enjoys spending time with her husband Eric ongoing fundraising events.
and son Isaac. She designs and implements training curriculum to support the
goals of Sanford Children’s camps. Oversees the preparation,
revision, and negotiation of contracts for host facilities.
Sydney Jones Marilee received the Sioux Falls Optimists Presidents Award in
President of the Board of Friends of Camp Sanguinity recognition to children in 2015 and is a past recipient of the
Sydney Jones graduated from Texas A&M University in 2000 with American Lung Association Impact award.
a degree in education.
She has taught for 16 years in elementary education in the state Jill Kos
of Texas. She earned her Master’s in Education in 2012 focusing
on curriculum and instruction. Certified Child Life Specialist, Director of Family Support
Services
Sydney discovered volunteering at camp in 2003, and has been a
counselor for 15 years at Camp Sanguinity out of Fort Worth, Jill Koss has worked at Cook Children’s Medical Center in Fort
Texas. Nine of those years she has been a counselor in the teen Worth, Texas for over 26 years. She was a child life specialist
cabins, and has led the teen programming for the last four years. with oncology patients when she first started attending Camp
Sanguinity in 1993, and has been the director of the camp since
Sydney is the current president of the Board of Friends of Camp
2003. For many years as a child life specialist, she coordinated
Sanguinity and has served on that board for 13 years.
teen camps for adolescent oncology patients, as well as specific
programming at Sanguinity for teen campers. As the Director of
Dr. Dorothy Jordan, DNP, APRN, PMHNP-BC, Sanguinity, Jill believes passionately that the camp experience
can be unique for teen campers, and creating a therapeutic
PMHCNS-BC
environment which speaks to their unique psychosocial and
Dorothy Jordan is an Advanced Practice Nurse in Georgia and is developmental needs is important.
board certified as a Family Psychiatric Mental Health Nurse
Certified Child Life Specialist, Director of Family Support Services
Practitioner, and as a Psychiatric Mental Health Clinical Nurse
Involvement: Camp Sanguinity, Ethics Committee, Pain
Specialist. Dr. Jordan graduated with a BS in Nursing from East
Management Committee, Patient Safety Committee, Family
Stroudsburg University in 1979, a MN in Child Health from Emory
Advisory Council, Readmission Reduction Work group, Schwartz
University in 1982, a Post Masters Certificate in Psychiatric
Rounds Planning Committee, Child Life Council Board of
Mental Heath from Georgia State University in 2008, and a
Directors, CLC - International Collaboration committee, CLC –
Doctor of Nursing Practice from University of Tennessee Health
Certification Appeals Committee Transition Program task force.
Science Center in 2014. Dr. Jordan is the founder of Camp
Sunshine, a nonprofit organization offering year round
recreational, educational, and supportive programming for
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