National Audit of Dementia Round 4 (2018) Sampling guidance for the Casenote Audit

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National Audit of Dementia Round 4 (2018) Sampling guidance for the Casenote Audit
National Audit of Dementia
                  Round 4 (2018)
Sampling guidance for the Casenote Audit
March 2018
                                          © HQIP 2018
National Audit of Dementia Round 4 (2018) Sampling guidance for the Casenote Audit
Timeline for data collection
The data collection period will be staggered as shown below. This is the sampling
guidance for the casenote audit. The guidance for individual questions in the
casenote audit will follow when the casenote audit has been finalised.

                Organisational       Casenote            Carer              Staff
                  checklist            audit          questionnaire     questionnaire

    March       Guidance issued

                 Data collection      Guidance
    April
                 opens 16 April        issued

                                   Data collection
                                    opens 21 May
                                   (collecting data     Guidance          Guidance
     May
                                    for discharges       issued            issued
                                      from April
                                        2018)

                                                      Data collection   Data collection
    June       Deadline:15 June
                                                       opens 4 June     opens 4 June

     July

   August

                                                      Data collection   Data collection
                                    Deadline: 21
 September                                              closes: 21        closes: 21
                                    September
                                                       September         September

   October

                                          2
Contacting the Project Team

            For any queries, please contact the project team:

                              nad@rcpsych.ac.uk

                                  Website:

                      www.nationalauditofdementia.org.uk

Or you may contact the team individually:

Chloë Hood, Programme Manager               chloe.hood@rcpsych.ac.uk

                                            020 3701 2682

Chloë Snowdon, Deputy PM                    chloe.snowdon@rcpsych.ac.uk

                                            020 3701 2697

Samantha Ofili, Project Worker              samantha.ofili@rcpsych.ac.uk

                                             020 3701 2707

Lori Bourke, Project Worker                 lori.bourke@rcpsych.ac.uk

                                            020 3701 2681

Emily Rayfield, Project Administrator       emily.rayfield@rcpsych.ac.uk

                                            020 3701 2688

Please note that when contacting the project team about your
casenotes, do not at any time include any identifiable data about
patients (for example: name, NHS number, address).

                                        3
Before you begin:
Please make sure you TEST the online data collection link before data collection opens:

http://rcop.formic.com/webforms/

This brings up Formic Web Forms. Click the Login button in the top left of the page to get to
the login page. You will then need to enter the unique username and password for your
hospital. These will be sent via post to your nominated audit lead.

If you cannot access the Formic Web Forms page, this is probably due to your local IT
settings and you will need to contact your IT department to ask them to approve the link.

Anyone entering data for the organisational checklist or casenote audit, as well as all staff
accessing the staff questionnaire online will need access to this website, so please do arrange
for this as soon as possible.

IDENTIFY the key people you are going to work with. This is a complex audit which should
not be carried out by a single lead. The guidance for each tool gives some suggestions of
colleagues who could help you to collect and co-ordinate the return of the different types of
data required.

Let us know if we can help. We are available to answer queries within office hours, or
you can email us, and we will respond as soon as we can.

We look forward to working with you.

                                               4
Completing the casenote audit
Each hospital site is expected to submit an audit of casenotes of patients discharged
with dementia, identified through ICD10 coding (listed at APPENDIX B). One form is to
be submitted online per set of notes audited.

Data collection opens 21st May with a deadline of 21st September 2018.

Each hospital will be asked for:

     1) The total number of eligible patients discharged from the hospital in April 2018.
        Please note this is a separate form to the casenote audit form and is a
        mandatory part of the audit.

     2) An audit return of eligible casenotes, for which the minimum sample will be
        50, and the maximum 100 patients. This will give larger hospitals the
        opportunity to return a larger sample. If your hospital cannot identify 50 patients
        discharged in April, you may continue to identify patients discharged in May.

Input will be required from:

     •    Your local audit lead;
     •    The lead for dementia or a senior clinician working in this area;
     •    Staff who normally undertake casenote audit, i.e. audit department or information
          services staff, junior doctors, dementia champions or nursing staff.

Data can be submitted online by persons other than the auditors.

Estimated time to complete:

We predict that 2-3 hours will be required to identify the sample and each casenote will
take between 15 minutes and 50 minutes to submit, with the first couple of sets taking
the longest to do, according to feedback from hospitals.

Organising your sample

1)       The casenotes identified should be from a single hospital site - and not trust wide.
         The number generated should be completed admissions, and not consultant
         episodes, as there will be many of these per patient.

                                                5
2)   A list of ICD10 codes used to generate HES data is provided (Appendix B). These
     codes indicate a diagnosis of dementia. They may appear in primary coding but
     are more likely to be a secondary or subsidiary code. Dementia may also appear
     in current history.

     All casenotes with any of the codings provided are eligible and should be used to
     generate a list. Patients should:
           • Have been discharged between 1 April – 30 April 2018 (you may
              continue into May if fewer than 50 patients were discharged in April);
           • Have a diagnosis of dementia;
           • Have been admitted to hospital for 72 or more hours;
           • And, where the patient has had more than one admission, please include
              only the first admission for this patient in your patient list.

3)   Submit the total number of patients identified via the short online form ”Total N
     patients identified for casenote audit”. You will be asked to enter the total number
     identified from April (and May if enough casenotes could not be identified from
     April alone). This data should be submitted online from 21 May onwards. Please
     note this is compulsory.

4)   Organise your list so that the patients identified are listed in date order that they
     were discharged from the hospital.

5)   Allocate each casenote a number, from 1 to the total number of casenotes
     identified. This is the number you will use when entering “number for patient” on
     the data collection form. Please note: This is not the hospital patient number or
     NHS number. Please do not enter this information anywhere on the data collection
     form.

6)   Online entry for each set of notes must be completed and submitted separately.

7)   If, after patient number allocation, a set of notes is found to be ineligible for this
     audit (e.g. it is later understood that length of stay was less than 72 hours),
     exclude this set of notes from data entry. You should then go on to the next set of
     notes in the sequence, but do not reallocate the number. E.g. if number 2 is
     ineligible, go on to enter data for number 3 (so your inputted casenote patient
     numbers will follow as 1, 3, 4 and so on).

8)   Continue to skip excluded records and move on to the next consecutively discharged
     and numbered patients in the series until you have reached your return total of
     50 - 100.

9)   Identify casenotes for the inter-rater reliability check (see Appendix A).

10) Please keep a copy of your list of audited patients. You will need this if your hospital
    is selected for quality assurance so that you can identify the notes again.

                                             6
Appendix A

                           Inter-rater reliability check
As part of the reporting process for this audit, we are asking sites to collect inter-rater
data to establish reliability.

The process requires two different people to extract and enter the data from the first
five casenotes in order of discharge date onto the data collection forms.

The process for identifying casenotes for audit is described earlier in this document.

Inter-rater reliability check

Identifying the cases to be double audited:

•     Follow instructions in “Organising your sample” and select the first five casenotes
      eligible to be entered into the data collection system (first five discharges). These
      casenotes will be re-audited.

Extracting the data:

•     Identify two separate people (‘first’ and ‘repeat’ auditor) who will extract information
      from the casenotes and enter data via the online casenote audit data submission
      form.

      First auditor on their data collection form:
       -    Ticks “Yes” to “Has this casenote been selected as data reliability check?”
       -    For the first case, enter “1” in the box which says, “Enter number for this
            patient”
       -    Collect all the information for this patient
       -    Do not involve the repeat auditor(s)
       -    Repeat the process for patients 2, 3, 4 and 5.

       Repeat auditor on their data collection form:
       -   Using the same five cases in the same order as the first auditor(s)
       -  Ticks “Yes” to “Has this casenote been selected as data reliability check?”
       -  Add “Rel” at the end of the number (so number 1 of the first auditor’s
          casenotes, is numbered 1Rel by the repeat auditor)
       -  Collect all the information for this patient
       -  Do not involve the first auditor(s)
       -  Repeat the process for patients 2, 3, 4 and 5, numbering them 2Rel, 3 Rel etc.

    N.B. If you have excluded any notes from your list due to wrong coding etc.
    so that (for example) your notes are numbers 1, 3, 4, 5, 6, then your second
    auditor notes should be numbered the same; 1Rel, 3Rel, 4Rel, 5Rel, 6Rel.

                                               7
Appendix B

                     List of Eligible ICD 10 codes

A81.0    Creutzfeldt-Jakob disease

         Subacute spongiform encephalopathy

F00*     Dementia in Alzheimer's disease

F00.0*   Dementia in Alzheimer's disease with early onset

         Alzheimer's disease, type 2
         Presenile dementia, Alzheimer's type
         Primary degenerative dementia of the Alzheimer's type, presenile onset

F00.1*   Dementia in Alzheimer's disease with late onset

         Alzheimer's disease, type 1
         Primary degenerative dementia of the Alzheimer's type, senile onset
         Senile dementia, Alzheimer's type

F00.2*   Dementia in Alzheimer's disease, atypical or mixed type

         Atypical dementia, Alzheimer's type

F00.9*   Dementia in Alzheimer's disease, unspecified

F01      Vascular dementia

F01.0    Vascular dementia of acute onset

F01.1    Multi-infarct dementia

F01.2    Subcortical vascular dementia

F01.3    Mixed cortical and subcortical vascular dementia

F01.8    Other vascular dementia

F01.9    Vascular dementia, unspecified

F02*     Dementia in other diseases classified elsewhere

F02.0*   Dementia in Pick's disease

F02.1*   Dementia in Creutzfeldt-Jakob disease

F02.2*   Dementia in Huntington's disease

F02.3*   Dementia in Parkinson's disease

                                       8
Dementia in:
         · paralysis agitans
         · parkinsonism

F02.4*   Dementia in human immunodeficiency virus [HIV] disease

F02.8*   Dementia in other specified diseases classified elsewhere

         Dementia in:
         · cerebral lipidosis
         · epilepsy
         · hepatolenticular degeneration
         · hypercalcaemia
         · hypothyroidism, acquired
         · intoxications
         · multiple sclerosis
         · neurosyphilis
         · niacin deficiency [pellagra]
         · polyarteritis nodosa
         · systemic lupus erythematosus
         · trypanosomiasis
         · vitamin B 12 deficiency

F03      Unspecified dementia

         Presenile:
         · dementia NOS
         · psychosis NOS
         Primary degenerative dementia NOS
         Senile:
         · dementia:
           · NOS
           · depressed or paranoid type
         · psychosis NOS

F04      Organic amnesic syndrome, not induced by alcohol and other
         psychoactive substances

         Korsakov's psychosis or syndrome, nonalcoholic

F05.1    Delirium superimposed on dementia

F07.2    Postconcussional syndrome

         Postcontusional syndrome (encephalopathy)
         Post-traumatic brain syndrome, nonpsychotic

                                       9
F10.6   Amnestic disorder, alcohol- or drug-induced
F11.6   Korsakov's psychosis or syndrome, alcohol- or other psychoactive
        substance-induced or unspecified
F13.6
F14.6
F15.6
F16.6
F17.6
F18.6
F19.6

G30.0   Alzheimer's disease with early onset

G30.1   Alzheimer's disease with late onset

G30.8   Other Alzheimer's disease

G30.9   Alzheimer's disease, unspecified

G31.0   Circumscribed brain atrophy

        Pick's disease
        Progressive isolated aphasia

G31.1   Senile degeneration of brain, not elsewhere classified

G31.8   Other specified degenerative diseases of nervous system

        Grey-matter degeneration [Alpers]
        Lewy body(ies)(dementia)(disease)
        Subacute necrotizing encephalopathy [Leigh]

I67.3   Progressive vascular leukoencephalopathy

        Binswanger's disease

                                       10
National Audit of Dementia

   Royal College of Psychiatrists

         21 Prescot Street

              London

              E1 8BB

www.nationalauditofdementia.org.uk
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