Of Children's Palliative Care - The 1st National Conference Malaysia 2020
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The 1st National Conference
of Children’s Palliative Care
Malaysia 2020
Supporting from the beginning
25th to 27th June 2020
Sunway Medical Convention Centre
Petaling Jaya
Co-organized by: Co-sponsor:
Welcome address by the Organizing Chairperson
Dear Friends and Colleagues,
Welcome to the First National Conference of Paediatric Palliative Care Malaysia
(NCCPCM) 2020!
This conference is organised by the Malaysian Association of Paediatric
Palliative Care (MAPPAC) in collaboration with the Ministry of Health, Malaysia.
It is the first national conference on Paediatric Palliative Care in
Malaysia. This conference aims to promote a correct understanding of the
Paediatric Palliative Care concept. We hope that it will provide broad learning
opportunities for various parties interested in palliative care for children – ranging
from practical knowledge, attitude and skills on essential symptoms management
to psychosocial support.
The conference theme: “Supporting from the beginning”, is to remind all
of us that palliative care support starts from diagnosis of life limiting disease for
the children and their families. This support should extend from communication
needs, symptom management, end of life care until death and bereavement
support for family members.
The programme has been carefully planned to incorporate sharing from
local and international experts in children’s palliative care, voices from volunteers
and caregivers, as well as various categories of healthcare professionals. We aim
to provide a balanced view of interprofessional collaborative practice in optimising
the quality of life for children with life-limiting illnesses.
I want to take this opportunity to extend my gratitude to the conference
organising committee and the Ministry of Health members who have been working
tirelessly in ensuring the success of this conference. I also hope that the event will
be memorable and enrich your current practice.
I look forward to meeting all of you personally at the First National
Conference of Paediatric Palliative Care Malaysia 2020. We welcome you to join
the Gala Dinner on the second day of the conference as we build networks with
one another.
Yours sincerely,
Dr. Lee Chee Chan
Organizing Chairman
NCCPCM 2020
Scientific Programme
Day 1 25th June 2020 (Thursday)
0745-0830 Registration
0830-0915 Plenary 1
Paediatric Palliative Care Milestones in Malaysia: An Overview - Datuk Dr Kuan Geok Lan
0915-1000 Plenary 2
Malaysian National Palliative Care Strategy - Dr Richard Lim Boon Leong
1000-1030 Tea break
1030-1130 Speech by Co-Sponsor, Mr Lau Beng Long, Managing Director, Sunway Healthcare Group
Welcome address by Organizing Chairperson, Dr Lee Chee Chan, MAPPAC & MOH Malaysia
Keynote address by Datuk Dr Noor Hisham Abdullah, Director-General, MOH Malaysia
Opening Ceremony
Launching of National Handbook on Children’s Palliative Care
Press conference
1130-1230 Plenary 3
2-step vs 3-step WHO Pain Ladder: Which one is better? - Dr Rever Chak-Ho Li
1230-1300 Poster viewing
1300-1400 Lunch symposium
Symposium 1A Symposium 1B Symposium 1C
Recognising the need for Pain management in children Non-pharmacological
palliative care at diagnosis Rainforest Room management for pain
Lotus Room Chairperson: Dr Tan Chai Eng Ginger Room
Chairperson: Dr Fahisham Taib Chairperson: Dr Ng Su Fang
1400-1425 Identifying paediatric palliative Assessment of pain in children Music therapy for pain
care needs Dr Sitti Sulhoon Mohamed management
Dr Lim Voon Lee Ms Lim Kar Gee
1425-1450 Prognostication for children The art of using opioids in Hypnotherapy for pain
with life-limiting conditions palliative care management
Dr Chong Poh Heng Dr Fahisham Taib Mr Brandon Ho
1450-1515 Introduction of paediatric Refractory pain with opioids – Cognitive behavioral therapy
palliative care to medical what are our options? for pain
professionals and parents Dr Chong Lee Ai Dr Zubaidah Jamil
Dr Lee Chee Chan
1515-1520 Q&A
1520-1550 Tea break
Symposium 2A Symposium 2B Symposium 2C
Voices of doctors and medical Voices of volunteers in Voices of patients and
professionals children’s palliative care caregivers
Lotus Room Rainforest Room Ginger Room
Chairperson: Dr Teoh Yen Lin Chairperson: Ms Ee Su Im Chairperson: Ms June Thow
1550-1615 How I started PPC service in my Experiences of volunteering in Parents of children with spinal
hospital the hospital muscular atrophy
Dr Fahisham Taib Ms Esther Leong Ms Yap Sook Yee
1615-1640 My journey in community Volunteering at patients’ Parents of children with cancer
palliative care homes Dr Shukri Mohamed
Ms Elaine Teo Ms Pat Chin
1640-1705 Educating future healthcare Experiences of advocacy and Parent of a child with chronic
professionals about PPC fundraising for PPC neurological impairment
Dr Tan Chai Eng Ms Jasmine Teo Ms Suriyati Mahat
1705-1710 Q&A
Day 2 26th June 2020 (Friday)
0745-0830 Meet the experts
Dr Chong Poh Heng (PPC and home care)
Ms Queenie Luk (Psychosocial care)
Dr Rever Chak Ho Li (Symptom management)
0830-0915 Plenary 3
Resources and funding for paediatric palliative care service - Dr Chong Poh Heng
0915-1000 Plenary 4
Challenges and solutions for children with PPC needs from underserved communities –
Ms Queenie Luk
1000-1020 Tea break
Symposium 3A Symposium 3B Symposium 3C
Symptom management in Transition care Family integrity
specific situations Rainforest Room Ginger Room
Lotus Room Chairperson: Dr Sitti Sulhoon Chairperson: Dr Lim Voon Lee
Chairperson: Datuk Dr Kuan Mohamed
Geok Lan
1020-1045 Care for children with severe Transition from child to adult Siblings – Never leave me out
neurological impairment services Dr Yang Wai Wai
Dr Khoo Teik Beng Dr Aaron Hiew Wi Han
1045-1110 Managing symptoms of Transition from hospital to Family therapy – when
children with cancer home different caregivers have
Dr Rever Li Dr Teoh Yen Lin different opinions
Dr Ng Wai Sheng
1110-1135 Managing symptoms for Home extubation – Challenges and coping
children with renal failure preparation, challenges and mechanism for caregivers of
Dr Susan Pee practicality children with metabolic and
Dr Ng Su Fang genetic disorders
Dr Ch’ng Gaik Siew
1135-1140 Q&A
1140-1220 Ethical Issues Debate Oral Presentation
Lotus Room Rainforest room
Chair: Dr Tan Ru Wei Chair: Dr Felicia Chang
1220-1300 Lunch symposium / Poster judging
1300-1430 Friday prayers / Poster judging
Symposium 4A Symposium 4B
Communication skills in PPC Expressive therapy in PPC
Lotus Room Rainforest Room
Chairperson: Dr Ch’ng Gaik Siew Chairperson: Dr Yang Wai Wai
Therapy activity room for
1430-1455 Advance care plan and goals of Communication through art children
care Mr Raymous Wong Choon Yong Ginger Room
Dr Lee Chee Chan
1455-1520 Supporting parents after Communication through play Occupational therapy
breaking bad news therapy Physiotherapy
Ms Serene Wong Mr Chris Ng Art therapy
Music and drama intervention
1520-1545 Active listening skills Communication through music
Play therapy
Dr Loh Ee Chin Ms Joanne Lau
1545-1610 Talking to children about death Communication through
and dying creative drama intervention
Ms Serene Wong Dr Sujatha Doraimanickam
1610-1700 Tea break, poster viewing
1930-2200 Gala dinner
27th June 2020 (Saturday)
0745-0830 Meet the experts – Malaysian context
Dr Lee Chee Chan, Dr Fahisham Taib & Dr Chong Lee Ai
0830-0915 Plenary 5
Respite care programme- Ms Serene Wong
0915-1000 Plenary 6
Research changing practices in paediatric palliative care – Dr Chong Lee Ai
1000-1030 Tea break
Symposium 5A Symposium 5B Symposium 3C
End of life care Pyschosocial and spiritual Caregiving skills
Lotus Room care Ginger Room
Chairperson: Dr Susan Pee Rainforest Room Chairperson: Ms Elaine Teo
Chairperson: Dr Aaron Hiew
1030-1055 Symptom management at Spiritual care for children Functional transfer and
end of life and their family mobility to promote
Dr Tan Chai Eng Dr Jefri Irwan Haris participation in daily
activities
Ms Ee Su Im
1055-1120 Perinatal palliative care Dealing with fear and anxiety Medication management
Dr Lee Chee Chan in children Ms Hidayah Rosli
Dr Yang Wai Wai
1120-1145 Managing cultural diversity Social support at the end of Feeding issues and skin care
in the home setting life Ms June Thow
Dr Felicia Chang Ms Queenie Luk
1145-1210 Dealing with grief and Compassion burnout and Home chest physiotherapy
bereavement self care Pn Sornaletchumi a/p Koran
Ms Lee Voon Yee Ms Low Mi Yen
1210-1300 Closing and prize-giving ceremony
Do join us for the
NCCPCM 2020 Gala dinner
26th June 2020
at
Sunway Resort Hotel & Spa
Get to know one another and
have fun!
Launching of the National Handbook of
Children’s Palliative Care Malaysia
by
Director General of Health
Dato’ Dr Noor Hisham Abdullah
This handbook is written to guide healthcare
workers on practical management of children’s
palliative care to meet the needs for PPC
management in the hospital and community.
Conference Speakers
Plenary speakers
Datuk Dr Kuan Geok Lan Dr Rever Chak-Ho Li
Clinical Associate Professor, Consultant Paediatrician,
Dept of Paediatrics, Dept of Paediatrics and
International Medical Adolescent Medicine,
University (IMU), Tuen Mun Hospital,
Malaysia Hong Kong
Dr Richard Lim Boon Leong Dr Chong Poh Heng
Head of Department of Medical Director,
Palliative Medicine, HCA Hospice Care,
Hospital Selayang, Singapore
Ministry of Health (MOH),
Malaysia.
Ms Queenie Luk Ms Serene Wong
Assistant Professional Palliative Nurse,
Services Manager, HCA Hospice Care,
Children’s Palliative Care Singapore
Foundation,
Hong Kong
Dr Chong Lee Ai
Consultant of Pain and
Palliative Care Unit,
Dept of Paediatrics
Universiti Malaya (UM),
Malaysia
Dr Lim Voon Lee Ms Lim Kar Gee Ms Pat Chin
Paediatrician Music Therapist Volunteer – Home
Hospital Pulau Malaysian Music Therapy Companion
Pinang, MOH Association MAPPAC
Dr Lee Chee Chan Mr Brandon Ho Ms Jasmine Teo
Paediatric Palliative Certified hypnotherapist Volunteer –
Paediatrician, Association of Fundraising
WCHKL, MOH Hypnotherapy MAPPAC
Practitioners Malaysia
Dr Sitti Sulhoon Assoc Prof Dr Zubaidah Ms Esther Leong
Mohamed Jamil Volunteer
Paediatrician, Clinical Psychologist Childhood Cancer
WCHKL, MOH CUCMS, Malaysia Caring Society of KL
(CARES) Malaysia
Dr Loh Ee Chin Dr Fahisham Taib Ms Yap Sook Yee
Consultant Paediatric Palliative Co-founder
palliative physician Paediatrician WeCare Journey
Dept of Medicine Dept of Paediatrics
Universiti Malaya Universiti Sains Malaysia
(UM), Malaysia
Dr Shukri Mohamed Dr Ng Su Fang Mr Chris Ng
Advisor Paediatrician, Play Therapist,
Kump Ibu Bapa dan Sabah Women and Integrated Psychology
Sokongan Anak-anak Children Hospital, Network,
Kanser (KIDS) Malaysia Malaysia
Dr Khoo Teik Beng Dr Yang Wai Wai Ms Joanne Lau
Consultant Paediatric Lecturer & Clinical Music Therapist,
Neurologist, Psychologist, Absolute Music
WCHKL, MOH Dept of Paediatrics Performing Arts
UKM Centre, Malaysia
Dr Susan Pee Dr Ng Wai Sheng Dr Sujatha
Consultant Paediatric Clinical Psychologist, Doraimanickam
Nephrologist, Growing Space Public Health Specialist
Hospital Sultan Ismail, Psychology Centre specialising in Creative
MOH Drama Intervention
WCHKL, MOH
Dr Aaron Hiew Wi Han Dr Ch’ng Gaik Siew Dr Tan Chai Eng
Palliative Medicine Consultant Clinical Family Medicine
Physician Geneticist Specialist,
HKL, MOH Dept of Genetics Dept of Family
Hospital Pulau Pinang, Medicine,
MOH UKM
Dr Teoh Yen Lin Mr Raymous Wong Dr Felicia Chang
Paediatrician Art Therapist Palliative Care
Hospital Seberang Xiao En Counselling Practitioner,
Jaya, and Support Unit Beacon Hospital,
MOH Malaysia Malaysia
Ms Lee Voon Yee Dr Jefri Irwan Harris Ms Low Mi Yen
Clinical Psychologist Gunawan Clinical Psychologist
Dept of Psychiatry, General practitioner, Malaysian Assoc for
UKM Poliklinik Bakti Mindfulness Practice &
Research, Malaysia
Ms Ee Su Im Ms Hidayah Rosli Ms June Thow
Occupational Pharmacist, Palliative Nurse
Therapist, WCHKL, MOH ASSISS Palliative
WCHKL, MOH Service
Ms Elaine Teo Ms Sornaletchumi Dr Tan Ru Wei
Palliative Nurse a/p Koran Paediatrician
ASSISS Palliative Physiotherapist, Columbia Asia Hospital
Service WCHKL, MOH (Klang), Malaysia
Local and international speakers, including various healthcare professionals who
contribute to comprehensive management approach for children with palliative care
needs.
Learn about, learn with and learn from each other!
Call for Papers
Research on children’s palliative care is still greatly needed to further develop new
knowledge and identify new strategies that are suitable for the local and regional context.
We would like to welcome submission for free paper presentation in NCCPCM 2020.
Submissions on paediatric palliative care (from general to All abstracts will be published in a
specialist palliative care) are welcome on any of the supplementary issue of Malaysian
following themes: Journal of Paediatrics and Child
• Paediatric palliative care services in hospital Health, the official journal of the
• Pain and symptom management, including non- Malaysian Paediatric Association.
pharmacological therapies
• Psychosocial and spiritual care, including grief and
bereavement
• Improving awareness among healthcare
professionals and caregivers about supportive care
for children
• Transitional care from hospital to home
• Community paediatric palliative care service
• Quality of life of caregivers and children with
palliative care needs
• Ethical issues in managing children requiring
supportive care
Audits of current services and case reports with learning
value(s) pertaining to children’s palliative care are welcome.
The abstracts should be original and have not been
presented in other conferences or published in another
journal before.
The best abstracts will be selected for oral presentation.
Successful authors of abstracts will be notified by email by
April 2020.
The format for poster or oral presentation will be informed
in April 2020.
There will be prizes for the best paper for oral presentation
and posters.
Category 1st prize 2nd prize 3rd prize Further details are available at
Oral presentation RM800 RM500 RM300 the conference website
Poster presentation RM500 RM300 RM200 http://nccpcm2020.com/
Closing date for abstract submission Submit your abstracts online
1st March 2020
Participant category Early bird Normal registration
registration fees fees
(until 30th March st
(31 March 2020
2020) onwards)
Specialists RM500 RM550
Medical Officers RM450 RM500
Allied health RM350 RM400
professionals
Volunteers / caregivers RM250 RM300
/ undergraduate
students
International USD150 USD200
participants
Special rate for MAPPAC members.. Discount RM50 for early bird registration only!
Sign up now! www.mappac.org
Visit our conference website for more details
http://www.nccpcm2020.com
Contact us at:
016- 223 1357 (Pat Chin, MAPPAC)
Email: nccpcm2020@gmail.com
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