Oregon Pain Management Commission February 21, 2018 - 9:00 AM - 12:00 PM Clackamas Community College - Oregon.gov

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Oregon Pain Management
        Commission

         February 21, 2018
           9:00 AM – 12:00 PM

       Clackamas Community College
        Wilsonville Training Center
29353 SW Town Center Loop E, Room 111-112
           Wilsonville, OR 97070
Oregon Pain Management Commission Meeting

                                                    Agenda
                                     February 21, 2019, 9:00 AM - 12:00 PM

                Clackamas Community College/ Wilsonville Training Center, Room 111-112
                       29353 SW Town Center Loop E, Wilsonville, Oregon 97070

Item/ Topic                           Introduced by                 Action                      Time Allotted
Welcome & Roll Call                  Nora Stern                     None                        9:00 - 9:10
Minutes & Agenda                     Nora Stern                     Summary, Discussion & Vote 9:10 - 9:15
o Approval of October 2018
    minutes. Approval and edits to
    agenda.

Public Forum 1 of 3 for 2019         Nora Stern                     Information Sharing         9:15 - 9:45

Oregon Board of Massage              Mark Retzlaff                 Information Sharing and      9:45 – 10:00
Therapists                           AMTA Oregon Chapter President Commission Feedback
   • Rulemaking Update

Legislation                          Mark Altenhofen                Information Sharing &       10:00 - 10:05
                                                                    Discussion
o   Update on CPTF/VbBS/HERC
o   HB 2265 Update

Community                            Nora Stern                     Information Sharing &       10:05 - 10:20
o   Update on Pt Facing Pain
                                     Kevin Cuccaro                  Discussion
    Module
o   Community Forums

Revised 02-14-19
Break                                                                        10:20 - 10:30

Clinician Education                Nora Stern        Information Sharing &   10:30 - 11:15
o Update on Pain Module            Kevin Cuccaro     Discussion
                                   Mark Altenhofen
o OPAT Pain Conference

o Curriculum Review Requirements
   & Planning

Commission Internal Business       Nora Stern        Information Sharing &   11:15 - 11:45
  o Mission Statement Draft        Kevin Cuccaro     Discussion
                                   Rebecca Duffy
   o Membership Vacancies &
                                   Michele Koder
     Recruiting
                                   Mark Altenhofen
Closing                            Nora Stern        Information Sharing     11:45 – 11:55

Adjournment                        Nora Stern                                11:55 - 12:00

Revised 02-14-19
Oregon Pain Management Commission: October 25, 2018
Topic:              Presented by:                  Primary Discussion Points:                                                  Actions:
Meeting Roll Call   Nora Stern      Members in Attendance:
                                    Nora Stern, Ruben Halperin, ReBecca Duffy, Alyssa Franzen, Michele Koder

                                    Members via Teleconference: Kevin Cuccaro, Kim Jones, Amber Rose Dullea, Kera
                                    Murphy

                                    Excused: Sen. Winters, Rep. Sheri Malstrom

                                    Members Absent: David Eisen, Coleen Carlisle, Kevin Wilson, Anthony Marrone and John
                                    Garofalo

                                    Nora asked for the public in attendance to identify themselves: Ryan Fowler, Alan
                                    Chino, Tim Harless, Philip Bowman, Sue Bergman
Mission Statement   Nora Stern      Nora announced that Rebecca has been working on updating the draft mission
Draft               Rebecca Duffy   statement to help focus the work of the commission. She went on to say this will be
                                    helpful when addressing complex topics to determine if they are within or out of the
                                    scope of the commissions work. This will also be helpful for ongoing collaborative
                                    efforts between the commission and educational institutions in the development of pain
                                    training.

                                    Rebecca summarized her review of the existing mission statement. She sees the current
                                    wording as being very broad and encompassing aspects that may not be realistic for the
                                    commission to accomplish. She read through the first section of the original mission
                                    statement for the group and pointed out content that seemed to be beyond the scope of
                                    work of the commission. For instance, the development of pain management
                                    recommendations is something that is done on a national and international level. In
                                    addition, the current mission seems to indicate that the commission has the
                                    responsibility to guide curriculum development in our educational facilities, which is a
                                    complex endeavor requiring significant human resources to accomplish.

                                    Rebecca’s draft reads: “The commissions mission is to improve pain management in the
Oregon Pain Management Commission: October 25, 2018
Topic:   Presented by:                  Primary Discussion Points:                                              Actions:
                     state of Oregon. The mission is to provide Oregonians with access to the best pain
                     management options available. The commission will endeavor to improve pain
                     management through education, development of collaborative endeavors, and
                     distribution of practice recommendations and research. The commission shall represent
                     the complex individual and community concerns of pain management to the Governor
                     and legislative assembly. The commission shall develop a pain management educational
                     curriculum and will update it biennially. The commission shall work with health
                     commission regulatory boards, professional educational organizations, other health
                     boards, committees or task forces to develop compassionate responses for pain
                     management for Oregonians based upon the best research and guidelines available.”

                     Rebecca went onto question whether the section below, Principles and Values, was
                     necessary. To her it seemed to be redundant and restated much of what was already in
                     the mission statement. Nora recommended that the group focus on the wording of the
                     mission statement first and then move to the other sections.

                     Michele Koder suggested removing language that refers to providing access to
                     treatment. Nora agreed and thinks providing “access” is outside the scope of the
                     commission. Nora also wondered if removing the second sentence in Rebecca’s draft
                     would work better. Kevin Cuccaro suggested keeping the word education and removing
                     the word management. Nora asked if he had an example of language that could be
                     used. Kevin suggested - provide Oregonians with access to the best pain education
                     available, instead of pain management might be better. Nora thought this was an
                     important shift because the commission is working toward facilitating a better
                     understanding of pain. Ruben also thinks this helps distinguish the commission from
                     other entities, such as HERC, in that we are not making coverage recommendations or
                     setting policy. He went on to add that the commission is not making defacto
                     recommendations as to how physicians should prescribe or treat. Ruben said this helps
                     clarify that the pain commission is an advisory board and repository for two-way flow of
                     information. Rebecca suggested using education instead of management in the title of
                     the commission. Nora agreed and thinks the term management is not helpful. Kevin C.
                     agreed and shared the content of a recent editorial on the subject. He thinks many
Oregon Pain Management Commission: October 25, 2018
Topic:          Presented by:                  Primary Discussion Points:                                                   Actions:
                             assumptions are made when using the word management and pain is thus interpreted
                             as something that can only be managed rather than improved. Rebecca added that
                             living with the experience of pain isn’t just pain, there are many other factors that affect
                             this such as economic factors, etc. She went on to say that while focusing on the term
                             education is important, there are still many factors outside of the control of the
                             commission.

                             Nora suggested having a smaller group work together on clarifying the details and create
                             a draft document or several versions for the larger membership to review. It would be
                             good if there were one or two commissioners who would be willing to work with
                             Rebecca to accomplish this task. Michele believes the intent of the initial legislation was
                             to create educational content for providers to reference. Nora would like to have
                             Rebecca and a small group revisit the original piece of legislation in a separate meeting
                             and then add this back to the agenda for the next meeting. She also recommended
                             focusing only on the mission statement and leaving the principals and values out of the
                             evaluation for now. Kevin C. agreed that it is important to focus on what the
                             commission actually has control over and it would be useful to what is the one key thing
                             that the pain commission has influence on. With that perspective in mind, Rebecca felt
                             it would be important to focus more on education for health providers, boards,
                             committees and individuals in our communities to help bring together a better
                             understanding of these issues. Ruben supported this proposal and said the commission
                             is the only coordinating entity that helps to make sure everyone is on the same page in
                             the use of best practices, philosophy around pain, and headed in the right direction.

Membership      Nora Stern   Mark shared that there are three professional and one public opening on the
Vacancies and   Mark         commission. He will be working on posting the opening on the OPMC website and
Recruitment     Altenhofen   sending out the required public notice. An email will also be sent out to commission
                             members to pass along to any candidates or professional organizations they are
                             associated with. Mark pointed out that it will be important to recruit a broad
                             professional and geographic representation in the candidates. Ruben had a question
Oregon Pain Management Commission: October 25, 2018
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                     about who has left and if there are specific professions the commission is seeking to fill.
                     Mark reported that Eric Davis CADC, Laura Scobie PA, and Catriona Buist, PhD have left
                     the commission. Colleen Carlisle, public member, has not attended a commission
                     meeting in quite some time and will be dismissed due to lack of attendance. Ruben
                     asked if there will be a priority on finding mental health providers or other professionals.
                     Nora indicated it would be good to have an LCSW on the commission, as that
                     professional designation has not been represented historically. She also added that
                     LCSW’s are not required to have continuing education in pain and this leaves a
                     significant gap because they are typically part of a multi-modal treatment approach.
                     Rebecca supports finding another chemical dependency professional to replace Eric
                     Davis and Ruben agreed with this perspective. Ruben thinks there is a significant need
                     for to include professionals that have both experience in chronic pain and substance
                     abuse. Amber Rose thinks that it is important that the chemical dependency
                     professional have experience working with the co-morbidities of addiction, as well as the
                     management of pain. She went on to emphasize that it is important not to forget about
                     treating pain in our current environment when discussing addiction.

                     Nora asked the commission members to keep all of this in mind when reaching out to
                     colleagues and that a broader representation geographically will be of priority when
                     filling the open membership positions. Rebecca asked if the commission has ever
                     considered adding a member with experience treating adolescents and pain. Nora said
                     this hasn’t been considered historically, but is an excellent call out. Kevin C. thought it
                     would be important to consider adding a psychologist, as Nora pointed out, but that it
                     would be also important for them to be experienced in working with trauma or PTSD.
                     He went on to emphasize that it would be useful for the commission to begin
                     considering the considerable overlap of addictions and persistent pain. Ruben also thinks
                     the commission is missing representation from oncology or cancer care, as the
                     distinction between cancer pain and non-cancer pain is really artificial. He went on to
                     point out that the risk of persistent pain in cancer survivors is significant in the research
                     and it is an area that is not receiving much support from a broader perspective. Michele
                     Koder indicated the commission has not had representation from emergency medicine
                     also. Alyssa Franzen indicated there is quite a bit happening currently in the acute care
Oregon Pain Management Commission: October 25, 2018
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                                  space right now and wondered if that was appropriate for the work of the commission.
                                  She went on to say that it is conscious decision that the commission should make as
                                  there is much work being done at the state level which includes ED, Surgical, Primary
                                  Care and Dental.

                                  Nora recommended that a summary list be put together and sent out to commission
                                  members for them to forward to those in their network. Ruben asked if there are any
                                  strategies to reach rural communities. Amber Rose said she would distribute to her
                                  contacts on the coast. Alyssa added possibly sending to QHOC, Rural Practice Network,
                                  CCO’s, etc.

Meeting Dates and    Mark         Meeting dates for 2019 will be distributed to the commission members via electronic
Planning for 2019    Altenhofen   calendar invitations. Location, time and day/week of each month will remain the same.
                                  Nora proposed two back to back meeting for either May & June or September &
                                  October. Ruben suggested only scheduling for June and October. Michele pointed out
                                  that the By-Laws state that meetings are to occur bi-monthly. Mark said that the
                                  meetings have in recently been held quarterly. Kevin mentioned that the August
                                  meeting could be more of a work group, sub-group, or conference call. Michele said
                                  Darren Coffman said there was a change to the number of sessions. Amber Rose
                                  thought the change from the By-Laws had to do with the available budget for OHA Staff.
                                  Mark will look into the changes by OHA.

Approval of          Nora Stern   Kevin C. had a question regarding attendance for the August meeting. He asked if John    Michele K. moved to
Minutes                           Garafolo and J.P. Garafalo are the same. Mark indicated that was an error and will       approve.
                                  correct.                                                                                 Ruben – 2nd.
                                                                                                                           Vote:
                                                                                                                           Aye: 9
                                                                                                                           Nay: 0

Legislative Update   Mark         Mark notified the commission that the next meeting of the Chronic Pain Task Force will
                     Altenhofen   be held on December 5th, 2018 at the Crown Plaza in Lake Oswego. Information is
                     Nora Stern   posted on the HERC web page.
Oregon Pain Management Commission: October 25, 2018
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                                   Nora provided some background and clarification regarding the work of the Chronic Pain
                                   Task Force. She said this is separate from the Back Pain Guideline work that has been
                                   done previously and will propose moving five diagnoses above the line to be eligible for
                                   reimbursement by the Oregon Health Plan. This will be the last meeting of the CPTF and
                                   their proposal will then be submitted to the Value Based Benefits Subcommittee and
                                   eventually the Health Evidence Review Commission for further deliberations.

                                   Mark also provided a brief update on HB 2265, which would require optometric
                                   physicians to take the 1-hour online pain education module offered by OPMC.

Update on Patient     Nora Stern   Nora provided information to the members about new work being done to create a
Pain Education                     patient facing online education tool. It is intended to be a module that will match what
Module                             is presented in the clinician module. The project is being funded through some
                                   additional grant money available from the CDC via OHA. Lisa Shields, from OHA, is the
                                   project manager and has been working with Nora to establish the scope of work. The
                                   project deliverables will include written education material and a short video segment
                                   on each of the five key domains that are already used in the clinician module. Michele
                                   asked if this will function like an App. Nora said it will be very similar and presented
                                   some slides of the current mock-ups being developed.

Update on Clinician   Nora Stern   Nora updated the commission on the module poster presentation she and Cat Buist
Pain Education                     presented to the IASP Conference. Kim Jones presented the module at the National
Module                             Rheumatology Conference as well. Kim provided a summary of her experience and
                                   noted that the presentation was well attended and received. She mentioned that some
                                   members of the audience asked what was not working or could be improved in the
                                   module, and she did not have enough information to provide an answer. Nora indicated
                                   there has not been much negative feedback around the module. Mark said he has
                                   received some concerns about printing completion certificates by some professionals.
                                   Kevin presented a perspective that he believes underlies the questions regarding
Oregon Pain Management Commission: October 25, 2018
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                     concerns for some physicians. He thinks many providers are worried about the potential
                     backlash, misunderstanding of the material and difficulty in managing patient
                     expectations associated with recommending the module. Kevin and Ruben discussed
                     this issue further and both agreed that it is belief that is held by many clinicians despite
                     what the research shows. Kevin said many patients are capable of understanding these
                     concepts when they have a good relationship with their provider and the language used
                     is not full of medical jargon. Nora said the module was set up with a video and patient
                     handout for this reason. All the provider needs to do is initiate the conversation and
                     then provide the materials to the patient for more information.

                     Mark reported on the statistics: Between January 1 and October 1st – 5,665 enrolled,
                     4,684 (83%) completed, 954 (17%) started but did not complete, and 27 enrolled but
                     never started the course. Michele asked if you can break it down by profession. Mark
                     indicated that it is possible to allocate the data by licensing board, harder to do by
                     professional designation. Ruben asked if there was intent to spread outside of Oregon.
                     Nora thinks this is a complex endeavor and outside of the scope of the commission.
                     Rebecca asked if the contracting piece was ever figured out within OHA. Mark said that
                     DOJ reviewed this issue. It is possible for other business or government entities to
                     purchase the course and use it under their own branding for a donation. Nora said the
                     module can be utilized by anyone for free in its current format. Alyssa said there is an
                     opportunity to do another round of communications on the module that can be tied into
                     the acute prescribing guidelines work that is happening currently. She also said there is
                     opportunity within the network of dental professionals she is tied in to. Nora would like
                     to get statistics by professional organization for the next meeting to help inform
                     communication efforts moving forward. She would also like to make this a part of a
                     larger conversation at the next meeting.

                     Kim relayed information on utilization within some of the clinics at OHSU. She said the
Oregon Pain Management Commission: October 25, 2018
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                            module is being used in the pain and rheumatology clinics. It is not well established in
                            the primary care clinics, which is where she believes it needs to be. Kim asked how
                            other organizations were handling the roll out of the model to their primary care clinics.
                            Nora said that Providence Health System has connected the module to their online
                            education software (Healthstream) and is making it a requirement within their nursing
                            department. It has not been loaded into Healthstream as an integrated content module,
                            however there is a link to take the module externally and then load the CME certificate
                            back into their software. Nora reports that it has been completed by 10% of the nursing
                            staff (around 22,000 professionals) in the first month of distribution. She also reported
                            it has been spread via leadership in the rehab department. Nora and Ruben discussed
                            how they were exploring making it a part of employee on-boarding, but that has been
                            met with some challenges. Providence Medical Group has also included reference to the
                            module in their ongoing email updates for their providers. Kim said OHSU did provide
                            information on the module in one of their weekly email news updates, saying it was
                            highly recommended but not required for providers.

                            Michele indicated she has been distributing to her colleagues at the Multnomah County
                            Health Department and thought adding it to the employee on-boarding process would
                            be worth looking into. Rebecca asked about how the module could be spread to other
                            county health department around the state. Nora wondered if that could be done
                            through OHA. Alyssa said that many counties in the state operate differently than
                            Multnomah, which is also and FQHC that employs physicians. Rebecca said she would
                            do some research on this and report back to the commission.

Curriculum     Nora Stern   Nora believes this is a very complex topic and should be handled initially by a sub-         Need to categorize
Review                      committee of the commission. Ruben thinks it also needs to be addressed in the mission       and structure this
Requirements                                                                                                             conversation for
                            statement revision. Nora agrees and sees this topic as overstepping the scope of the
                                                                                                                         review by a
                            commission. Ruben went on to say that all educational institutions have their own
                                                                                                                         smaller sub-group
Oregon Pain Management Commission: October 25, 2018
Topic:            Presented by:                  Primary Discussion Points:                                                    Actions:
                               oversight and accreditation. It is not clear to him what the commission is doing. Kevin      of the commission.
                               thinks this all comes down to control and that the commission should pull back in it’s
                               expectations. He thinks it would be more reasonable to provide a format or structure
                               that the commission recommend and the institutions could then adopt to their needs.
                               Nora wonders if there might be an easier way to do this work. She thinks this could be
                               simplified and the commission could act as a conduit to existing guidelines, such as those
                               developed by IASP. Ruben said the best the commission can do is make
                               recommendations about curriculum and there is very little control over whether an
                               institution adopts that or not. It is an overwhelming task that the commission does not
                               have the resources to accomplish.

Member Requests   Nora Stern   Nora discussed Anthony Marrone’s request to review why there are delays in approval
                               for non-pharmacological treatment. She said this is an example of an issue that is
                               outside of the scope of the commission and one that this group is unable to influence.
                               Michele recommended approaching the CCO medical directors as a possible solution.
                               Ruben indicated this is a significant issue that providers face and extends well beyond
                               OHP. Nora agreed and reiterated that this is why it is beyond the scope of the
                               commission.

                               Rebecca and Amber had introduced the issue of OUD diagnosis and coding at the last
                               meeting. They have not had an opportunity to discuss in the interim, but now feel it
                               may be outside the scope of the work of the commission. Amber Rose felt this started
                               based on how patients feel stigmatized around OUD and wondered if there are other
                               ways to educate providers on how not to re-stigmatize individuals. Ruben summarized
                               the difficulty and complexity of this issue and how OPG was wrestling with it in their
                               discussions. Kevin said there is a great deal of misconception and understanding of both
                               addiction and pain which leads to stigmatization. Ruben said the DSM V removed the
                               word addiction for that very reason and felt OUD was better terminology. Nora said the
                               commission would look into how to best handle this topic moving forward.
Oregon Pain Management Commission: October 25, 2018
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Public Comment   Nora Stern   There were five individuals signed up for public comment. A summary of their testimony
                              follows. Each individual had three minutes to present comments to the commission.
                              Nora asked each person to state their name and any conflicts of interest.

                              Tim Hartless, a resident of Tigard, veteran and chronic pain patient is here today to
                              share his experience and represent the American Chronic Pain Association. His primary
                              concern is around access to health care and stigmatization of those who are vulnerable.
                              He wants the commission members to keep in mind the significant barriers individuals
                              face. Tim talked about the difficulties many individuals face with regard to
                              transportation, increase in suicides, and other issues. He applauds the efforts of the
                              commission and knows this is a complex and difficult area address.

                              Philip Bowman is also here representing individuals who can not be present today and
                              the American Chronic Pain Association. He had two comments to make. One is the
                              issue of mixing individuals with heroine or other drug addictions and chronic pain
                              patients. He thinks there is a difference between the two. The other is how physicians
                              are educated. His perspective is that new doctors are being taught a contradiction with
                              regard to this same issue. That drug addiction and those using opiates for chronic pain
                              are one in the same.

                              Alan Chino gave a summary of his professional background and history as a member of
                              the OPMC. He did not disclose any financial conflicts of interest and stated he was here
                              representing himself today. His concerns center on the sense that the commission is
                              moving away from both patient advocacy and advice to the legislature and governor.
                              Dr. Chino asked to be corrected if he was wrong in that assumption. He also said he
                              would not be in favor of changing the name of the commission.

                              Amara Moon said she was at the last meeting and handed out a paper on a pilot
                              program regarding opiate taper. She left another copy of for the commission. Amara
                              said she emailed Mark with a request to distribute a copy of this paper. She went on to
                              say she attended an OPMC meeting in 2016 and provided testimony specifically to Note
                              60 of the Back and Spine guidelines, in which she objected. Amara says she has back
Oregon Pain Management Commission: October 25, 2018
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                          pain and utilizes opioids successfully. She believes an important part of the mission
                          statement is that the commission represents the concerns of patients. Amara believes
                          there is not enough patient input being considered and the divide is getting bigger. She
                          went on to state that Denise Taray, the former coordinator replied to confirm receipt of
                          materials. Amara said she sent Mark three emails and received no replies and left two
                          voicemails. Mark responded that he didn’t receive any of her email or voicemails.
                          Amara also suggested that audio of the previous testimony she gave to the commission
                          in 2016 was not available. Mark indicated that he worked with staff at OHA to respond
                          to her records request. Amara said she never received a copy of her 2016 testimony.

                          The meeting concluded with a discussion between an un-named member of the public
                          and Ruben around the clarification of an OUD diagnosis.

Adjournment   Nora        Adjourned 11:50 AM. Next meeting: February 21, 2019
Oregon Pain Commission Bylaws – Draft 2

Section 2. Mission:

The Commission’s mission is to improve pain management in the State of Oregon. The mission is to
provide Oregonians access to the best pain management options available. The Commission will
endeavor to improve pain management through education and, development of collaborative
endeavors, and distribution of practice recommendations and research. The Commission shall represent    Commented [KMK1]: I don’t know that we really do
the complex individual and community concerns of pain management to the Governor and the                either of these. Delete?
Legislative Assembly. The Commission shall develop a comprehensive pain management education            Commented [KMK2]: Again, I think we are failing in this
program curriculum and update it biennially. The Commission shall work with health professional         area. Thoughts?
regulatory boards, professional education organizations, other health boards, committees and task
forces, to develop compassionate responsible pain management for Oregonians based on the best
research and guidelines available.

Section 3. Principles and Values –

Work with national and international bodies contributing to advances in pain management.

Work co-operatively with health professional regulatory boards, committees and task forces to improve
pain management in the State of Oregon.

Serve Oregonians living with pain by understanding, and addressing, their experiences and barriers to
treatment.
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