Social media, communication challenges, and the role of a scientific writer in standing up for science - Medical Writing

Page created by Alexander Wade
 
CONTINUE READING
Social media, communication challenges, and the role of a scientific writer in standing up for science - Medical Writing
Social media, communication
challenges, and the role of a scientific
writer in standing up for science

Surayya Taranum                                      Modern communication technologies, including          over 55% of people believe that science and
4Clinics, Paris, France                              social media, are great tools for delivering timely   technology would reduce the number of jobs
                                                     scientific and healthcare information. However,       available.
                                                     these unregulated tools can also be used to spread        The COVID-19 crisis has spawned a full-
 Correspondence to:                                  science-related misinformation and conspiracy         fledged misinformation campaign across all social
 Dr Surayya Taranum                                  theories. The overabundance of information            media platforms (including Facebook, Twitter,
 154 rue du Faubourg Saint Martin                    available online makes it difficult for the lay       Instagram, and YouTube) and news channels,
 Centre les Recollets                                person to separate facts from fiction, and the        amplifying rumours regarding health conspir-
 75010 Paris, France                                 COVID-19 pandemic has thrown this challenge           acies, fictitious medical cures, and unsubstanti-
 surayya.taranum@gmail.com                           into sharp relief.                                    ated claims regarding the origin of the virus,
                                                         The term infodemic1,2 was coined to empha-        seriously undermining the efforts of public health
                                                     sise the impact of science and health mis-            authorities in managing the pandemic.8,9,10,11
 Abstract                                            information on undermining the management of          In fact, recent studies suggest that fake news may
 Social media and other communication                public health challenges (including disease           spread faster and wider than scientifically sound
 technologies are great tools to raise awareness     outbreaks), trust in scientific research and          information. So profound is the impact of
 regarding public health challenges and              knowledge, policy-making, and the evolution of        misinformation that models developed to
 measures to overcome them. At the same              public debate and narrative.3 For example, in the     forecast the spread of virus now take into account
 time, these modern technologies are used to         Ebola disease outbreak in West Africa in 2013–        the behavioural response of the public con-
 spread misinformation and conspiracy                2016, people who believed in the misinformation       cerning health interventions and public health
 theories on topics that include vaccines,           that virus transmission was airborne or mosquito-     policy.12
 genetically modified organisms, climate             borne were more likely to have used unsafe burial         “We’re not just fighting an epidemic; we’re
 change, and most recently, the COVID-19             practices.4 Studies on global trends in vaccine       fighting an infodemic”, stated the WHO
 pandemic. The resulting infodemic makes it          confidence showed wide heterogeneity in               Director-General Tedros Adhanom Ghebreyesus
 challenging for the lay audience to separate        responses between countries.5,6 A survey de-          at the Munich Security Conference in February
 scientific facts from misinformation. This          signed by the Wellcome Trust and conducted by         2020.13 Once COVID-19 was declared a Public
 article invites the scientific writer to consider   Gallup Poll between April and December 2018           Health Emergency of International Concern, the
 approaches used in public speaking and              showed that people living in high-income              WHO launched its WHO Information Network
 teaching to craft scientific articles and blogs     countries had the lowest confidence in vaccines.7     for Epidemics (EPI-WIN), as part of its info-
 that can be understood by non-expert readers.       According to this survey, in France, about 33% of     demic management strategy, to share scien-
                                                     people believe that vaccination is not safe and       tifically reliable information online with the

52 | March 2021 Medical Writing | Volume 30 Number 1
Social media, communication challenges, and the role of a scientific writer in standing up for science - Medical Writing
Taranum – The role of a scientific writer in standing up for science

public.14 The EPI-WIN has since been actively        2. What: Is your topic about? Is the impact             sections. For a more scientific audience, your aim
disseminating research updates and public health               you are aiming for? Is the objective –        should be to convey the content with clarity and
recommendations. The WHO is also partnering                    is it to inform, persuade, or explain?        consistency rather than showing off your writing
with NewsGuard (an online platform that rates                  Are the goals for this project? Are the       ability. Simple writing will produce clear, strong,
the credibility of news and health information on              strengths and weaknesses of this              and coherent papers, and enhance their
websites)15,16 and Wikipedia17 to track and                    research?                                     readability.
counteract COVID-19 misinformation.                  3. When: Does this take place? What impact                  Writing that has the feel of speech makes the
    For a non-expert reader, despite an abun-                  does the timing have on your topic?           reader more engaged, and solid scientific
dance of online information resources, the           4. Where: Is the location important? If yes, in         information builds trust with the audience. Take
biggest challenge is deciding which health                     what context?                                 the example of Dr Anthony Fauci, director of the
information is the most reliable. Often, science     5. Why: Are you writing this article? Why is            US National Institute of Allergy and Infectious
journalists without a science background tend to               the topic important? Why is it                Diseases (NIAID). His media interviews during
sensationalise scientific breakthroughs to capture             relevant to the reader?                       the COVID-19 pandemic have followed a simple,
the audience’s attention, a tactic that could                                                                consistent structure focusing on what we know,
potentially lead to the spread of misinformation.    The Feynman technique encourages writing as if          what we don’t know, and what we should do;22 his
In contrast, most scientific literature written by   you are teaching a child. Avoid                                          message is not lost in trying to
researchers is dense, with excessive use of          making it the reader’s responsibility          The Feynman               convey as much data as possible.
scientific jargon that makes it less accessible to   to understand you. Focus on fewer                                        Instead, Dr Fauci focuses on key
the non-expert. Here are a few points a scientific   points and develop them with
                                                                                                       technique              data and what steps we need to
writer should consider while writing a scientific    supporting facts and illustrations to            encourages              take based on the latest research
article or blog, to improve its readability.18       help the reader understand, and              writing as if you           in a way that inspires public trust
                                                     keep scientific jargon to a mini-              are teaching a            in science.
Be clear on the five Ws: who,                         mum. It has been said that if you                                            Posing a question and
what, why, where, and when                           can’t explain it to a 6-year-old, you
                                                                                                     child. Avoid             developing the article to unpack
Richard Feynman is widely considered to be one       don’t understand it yourself.                   making it the            and discuss it is another way to
of the most important physicists of all time. He                                                        reader’s              engage the reader. Consider this
pioneered the field of quantum electrodynamics,      Keep it simple                               responsibility to           cycle when writing or editing
and his work to advance our understanding of the     There are 1.8 billion websites, 5.6                                      your work: organise, simplify,
interaction between light and matter earned him      billion Google searches, and 500
                                                                                                  understand you.             and tell a great story that leaves
the 1965 Nobel Prize in Physics. Feynman was         million Tweets sent out every day.                                       the reader feeling enlightened
also a brilliant and eloquent speaker, with an       Over 55% of readers spend fifteen seconds or less       and curious to know more. Now that most
exceptional ability to synthesise and explain        on a piece of online content. Web readers have          scientific content is available online, the benefits
complex scientific concepts to students with no      short attention spans and can easily get lost in the    of writing simply also include improved
prior knowledge of deep science topics.19,20         details.21                                              credibility, better search
    The Feynman technique can be used to create          Make your text scannable, as the average
scientific content that resonates with its reader-   reader will not remember all the details. Develop
ship. Just like someone preparing a speech or        a strong framework that helps the reader make
lecture, a scientific writer needs to know and       sense of the content and remember
understand their target audience. As a scientific    relevant points. Use the “inverted
writer, your goal is to make science accessible to   pyramid” model of online content
your target audience. Consider the following         writing to place the most important
questions while crafting the outline for your        content – the who, what, when,
article or science blog:                             where, and why – at the top of the
1. Who: Is involved? Will benefit or be              page and develop the details with
              harmed? Is the audience?               clear, well-written text in later

        www.emwa.org                                                                       Volume 30 Number 1 | Medical Writing March 2021 | 53
Social media, communication challenges, and the role of a scientific writer in standing up for science - Medical Writing
The role of a scientific writer in standing up for science – Taranum

engine optimisation (SEO), and better reada-            Disclosures and conflicts of                                 influenza forecasts. Proc. Natl. Acad. Sci.
bility on mobile devices. The latter is important       interest                                                    2019;116: 2802–4.
as reading comprehension is reduced for the             Surayya Taranum is a scientific writer at 4Clinics.   13.   WHO. Director-General’s remarks at the
content presented on a mobile screen.23                                                                             media briefing on 2019 novel coronavirus
                                                        References                                                  on 8 February 2020. 2020 [cited 2021 Jan
Taking a stand – or not                                 1. Cinelli M, Quattrociocchi W, Galeazzi A,                 04]. Available from:
In general, the role of a scientific writer is in           Valensise CM, Brugnoli E, et al.                        https://www.who.int/director-general/
communicating about science rather than                     The COVID-19 social media infodemic.                    speeches/detail/director-general-s-
speaking up for it. However, advocating and                 Sci. Rep. 2020;10:16598.                                remarks-at-the-media-briefing-on-2019-
gaining public support for science is critical, and     2. Zarocostas, J. How to fight an infodemic.                novel-coronavirus—-8-february-2020.
effective scientific communication may also                 Lancet. 2020;395:676.                             14.   WHO. EPI-WIN updates. 2020 [cited 2021
entail science advocacy.24,25,26,27 In an unprece-      3. Starbird K. How a crisis researcher makes                Jan 04]. Available from:
dented first, last year, reputed scientific journals,       sense of COVID-19 misinformation. 2020                  https://www.who.int/teams/risk-
including the New England Journal of Medicine               [cited 2021 Jan 04]. Available from:                    communication/epi-win-updates.
(NEJM),28,29 Nature,30 Science,31 and the                   https://onezero.medium.com/reflecting-            15.   NewsGuard. NewsGuard is partnering with
Scientific American,32 publicly condemned the               on-the-covid-19-infodemic-as-a-crisis-                  the World Health Organization to fight the
Trump administration’s response to handling the             informatics-researcher-ce0656fa4d0a.                    “infodemic” of online misinformation.
COVID-19 pandemic. While the NEJM (in an                4. Tenkorang EY. Effect of knowledge and                    2020 [cited 2021 Jan 04]. Available from:
editorial signed by 34 editors) and Science                 perceptions of risks on Ebola-preventive                https://www.newsguardtech.com/press/
discussed the mishandling of the COVID-19                   behaviours in Ghana. Int Health.                        newsguard-statement-world-health-
response in the US, editors of Nature and the               2018;10:202–210.                                        organzation-partnership/.
Scientific American endorsed Joe Biden for              5. Johnson NF, Velásquez N, Restrepo NJ,              16.   NewsGuard. NewsGuard’s reports to the
president.                                                  Leahy P, Gabriel N, et al. The online com-              World Health Organization. 2020 [cited
    The COVID-19 crisis has made it clear that              petition between pro- and anti-vaccination              2021 Jan 04]. Available from:
the role of a scientific expert is open to public           views. Nature. 2020; 582:230–3.                         https://www.newsguardtech.com/who-
debate and criticism. Dr Fauci’s approach of            6. de Figueiredo A, Simas C, Karafillakis E                 reports/.
sharing accurate information and openness in                et al. Mapping global trends in vaccine           17.   McNeil Jr DG. Wikipedia and WHO join
discussing gaps in scientific knowledge human-              confidence and investigating barriers to                to combat COVID-19 misinformation.
ises science and creates public trust in scientific         vaccine uptake: a large-scale retrospective             2020 [cited 2021 Jan 04]. Available from:
research that is resilient to misinformation and            temporal modelling study. Lancet.                       https://www.nytimes.com/2020/10/22/
political fact-spinning. Debates on topics such as          2020;396:898–908.                                       health/wikipedia-who-coronavirus-
climate change, vaccinations, and genetically           7. Wellcome Trust. Wellcome Global Monitor                  health.html.
modified organisms (GMOs) must be focused,                  2018. 2020 [cited 2021 Jan 04]. Available         18.   Blastland M, Freeman ALJ, van der Linden S,
relevant, and convincing to withstand public                from: https://wellcome.org/reports/                     Marteau TM and Spiegelhalter D.
scrutiny and influence political decision-                  wellcome-global-monitor/2018/chapter-5-                 Five rules for evidence communication.
making.33,34 The use of patients’ perspectives,             attitudes-vaccines.                                     Nature. 2020;587:362–364.
patient advocacy groups, carers, and physicians         8. Buchanan M. Managing the infodemic.                19.   Farnam Street. The Feynman technique:
in communicating health information that is                 Nat. Phys. 2020;16:894.                                 the best way to learn anything. 2020 [cited
based on lived experience can be a valuable             9. Cinelli M, Quattrociocchi W, Galeazzi A,                 2020 Dec 22]. Available from:
resource in engaging public interest and tackling           Valensise CM, Brugnoli E. The COVID-19                  https://www.emwa.org/sigs/medical-
misinformation.35,36                                        social media infodemic. Sci. Rep.                       communications-sig
    Social media are changing the ways in which             2020;10:16598.                                    20.   Oxenham S. How to Use the Feynman
people communicate with each other. At the              10. Gallotti R, Valle F, Castaldo N, Sacco P &              technique to identify pseudoscience. 2015
same time, they are powerful tools that can be              De Domenico M. Assessing the risks of                   [cited 2021 Jan 04]. Available from:
leveraged to inform and educate the public on               ‘infodemics’ in response to COVID-19                    https://bigthink.com/neurobonkers/how-
health research and policy, and place medical               epidemics. Nat. Hum. Behav.                             to-use-the-feynman-technique-to-identify-
professionals and healthcare systems in a                   2020;4:1285–1293.                                       pseudoscience.
better position to respond to public health             11. Gregory J and McDonald K. Trail of deceit:        21.   Internet Live Statistics. 2020 [cited 2021
emergencies.37                                              the most popular COVID-19 myths and                     Jan 04]. Available from:
                                                            how they emerged. 2020 [cited 2021                      https://www.internetlivestats.com/.
Acknowledgements                                            Jan 04]. Available from:                          22.   Kaebnick GE. Anthony Fauci shows us the
The author would like to thank Dr Raquel                    https://www.newsguardtech.com/covid-                    right way to be an expert. 2020 [cited 2021
Billiones for editorial support.                            19-myths/.                                              Jan 04]. Available from:
                                                        12. Viboud, C. & Vespignani, A. The future of               https://blogs.scientificamerican.com/

54 | March 2021 Medical Writing | Volume 30 Number 1
Taranum – The role of a scientific writer in standing up for science

                                                                                                                It has been said that if
                                                                                                               you can’t explain it to a
                                                                                                                 6-year-old, you don’t
                                                                                                               understand it yourself.

      observations/anthony-fauci-shows-us-the-           Now it’s urging voters to oust Trump. 2020     35. BMJ. Why are patient and public voices
      right-way-to-be-an-expert/.                        [cited 2021 Jan 04]. Available from:               absent in COVID-19 policy-making? 2020
23.   Moran K. Mobile content is twice as                https://www.washingtonpost.com/nation/             [cited 2021 Jan 04]. Available from:
      difficult. 2016 [cited 2021 Jan 04].               2020/10/08/science-journal-                        https://www.bmj.com/company/
      Available from:                                    endorsement-trump/.                                newsroom/why-are-patient-and-public-
      https://www.nngroup.com/articles/            30.   Why Nature supports Joe Biden for US               voices-absent-in-covid-19-policy-making/.
      mobile-content/.                                   president. Nature. 2020;586:335.               36. Abbasi J. COVID-19 Conspiracies and
24.   Ross J. Anthony Fauci: scientists must       31.   Thorp HH. Trump lied about science.                beyond: how physicians can deal with
      ‘speak persistently’ to politicians. 2020          Science. 2020;369(6510):1409.                      patients’ misinformation. 2020 [cited 2021
      [cited 2021 Jan 04]. Available from:         32.   The Editors. Scientific American endorses          Jan 04]. Available from:
      https://www.timeshighereducation.com/              Joe Biden. 2020 [cited 2021 Jan 04].               https://jamanetwork.com/journals/jama/
      news/anthony-fauci-scientists-must-speak-          Available from:                                    fullarticle/2774709.
      persistently-topoliticians.                        https://www.scientificamerican.com/            37. Merchant RM and Lurie N, MD. Social
25.   Wong S. Anthony Fauci, MD: Science as a            article/scientific-american-endorses-joe-          media and emergency preparedness in
      voice of reason. 2020 [cited 2021 Jan 04].         biden1/.                                           response to novel coronavirus. JAMA.
      Available from:                              33.   Bagherpour A and Nouri A. COVID-19                 2020;323(20):2011–2.
      https://www.aamc.org/news-insights/                misinformation is killing people. 2020
      anthony-fauci-md-science-voice-reason.             [cited 2021 Jan 04]. Available from:
26.   Lee CM. Speaking up for science. Trends            https://www.scientificamerican.com/
      Immunol. 2016;37(4):265-7.                         article/covid-misinformation-is-killing-
27.   Paul P and Motskin M. Engaging the public          people1/.                                       Author information
      with your research. Trends Immunol.          34.   Gibbens S. A guide to overcoming COVID-         Surayya Taranum, PhD is a scientific writer
      2016;37(4):268.                                    19 misinformation. 2020 [cited 2021 Jan 04].    at 4Clinics. She is also Director of
28.   The Editors. Dying in a leadership vacuum.         Available from:                                 Operations at the Healthcare Business-
      N Engl J Med. 2020;383:1479-1480.                  https://www.nationalgeographic.com/             women’s Association Paris Chapter and
29.   Shepherd K. The New England Journal of             science/2020/10/guide-to-overcoming-            member of the EMWA SUS-SIG team.
      Medicine avoided politics for 208 years.           coronavirus-misinformation-infodemic/.

          www.emwa.org                                                                   Volume 30 Number 1 | Medical Writing March 2021 | 55
You can also read